October 2001 Edition - Access Press by Access Press

October 10, 2001

Inside New Special Ed Rules — p. 3 Janet Reno Interview — p. 4 2001 Legislature Review — p. 13

Directory of Organizations — Page 8

“The stakes are too high for government to be a spectator sport.”

—Barbara Jordan

Non-profit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 12, Number 10

SOURCES

RESOURCES

October 10, 2001

DISABILITY HOLOCAUST REMEMBERED HADAMAR DURING THE WAR by Susan O’Connor [Last March, while on a faculty exchange to Norway, Augsburg College professor Susan O’Connor traveled with a group of 28 Norwegians, some with disabilities, to Hadamar, Germany to visit the site where thousands of people with disabilities were put to death as part of the Nazi program from 1941 to 1945. What follows is an account of her trip.]

New State Program For People With Disabilities by Deb Holtz

innesotans with disabilities will define, develop, and drive the quality assurance system for the services they receive if the goals for a new division within the Minnesota Department of Human Services (DHS) are met. The new Community Quality Initiatives Division was formed out of a desire to have a coordinated approach to quality assurance for community services to people with disabilities. In the past, DHS has sponsored many successful quality assurance projects, such as the development of performance indicators in mental health; reviews of chemical health services; and a variety of consumer surveys for people with developmental disabilities, people living with HIV/ AIDS, and people with traumatic brain injuries. Our division will build upon these efforts and coordinate them for the benefit of all disability groups. We hope to define quality more broadly. Quality measurement traditionally has focused on health and safety, and systems processes rather

than individually defined quality of life. Assuring that individually defined needs for health and safety are met and providing streamlined, easy-to-use processes are integral components to quality, but they are just parts of the entire picture. Basic questions regarding a person’s quality of life need to be asked. Do people enjoy satisfying, ongoing social relationships? Do they enjoy equal employment opportunities? Are people connected to and involved in their communities? These and other more informal aspects of community life need to be considered and measured as part of overall quality.

Persons with Disabilities administration.

Another priority of the team will be working to improve the consistency and reliability of information being provided statewide to people with disabilities. We have heard from consumers that systems need to be developed so that people and their families have the information, tools, and power to direct their own supports and have real choices. Our team will work toward these goals with other divisions within the Continuing Care for

To assist people of all ages who have a disability to move out of nursing homes

To further develop a consumer-directed personal care assistance program, and

Our division already has engaged a broad base of representatives of people with disabilities while doing our most pressing work this summer: writing proposals for millions of dollars in federal grants to improve services for Minnesotans of all ages with a disability or long-term illness. The grants are sponsored by the Centers for Medicare and Medicaid Services, formerly known as the Health Care Finance Agency. The grant funds must be used for three purposes:

To change the state’s infrastructure to enable more people of all ages who have a disability to live in the community, rather than in institutions.

New Program - cont. on p. 13

he killing in Hadamar began in January 1941. Hadamar, Germany was the site where 15,000 people with disabilities were put to death between 1941-1945. It was part of Hitler’s “euthanasia” program, the term used to describe what we now know as The Holocaust. Up until August 1941, many of the murders were committed in the infamous gas chambers. After that date, the archbishop of the area began to question what was happening, and from then until the end of the war in 1945, another 5000 people were killed there in a more secretive manner, either by being intentionally overmedicated or by being starved to death. 15,000 people with disabilities were killed at Hadamar, and between 200,000 and 275,000 in total throughout the rest of Germany and in surrounding countries. The history of what happened at this institution in 1941 begins much earlier. In 1934, those who didn’t fit into the ideal of the Nazis— the poor, the unemployed, and others, over 400,000 people in all—were sterilized. This happened to both men and women. The history of Hadamar itself relates initially to people with disabilities, although, toward

the end of the war, elderly people and even wounded soldiers were sent there to clear out the hospitals. People with all types of disabilities, including epilepsy, were sent to Hadamar. Those who were institutionalized at the time were brought from the institutions to what were called “transit centers.” These were like collection sites. Once there were enough people at a transit center, the hospital was called and three buses came out to pick them up and transfer them to Hadamar. They were told only that they were being transferred to another institution. They arrived at Hadamar and were unloaded into a large room with beds lined up in a row (similar to what we think of in our state hospitals), where they stayed until their deaths. Three main criteria were used to determine who should be killed. First, could the person work? Second, would the person go back to their family or stay in the institution for the next 20 years? Third, did family members ever visit the person? (If they were, there would be more questions to answer.) Documents would be falsified and doctors would have a list of ailments from which to choose an “official” cause of death for the death certificate— TB, perhaps, or lung disease; maybe heart attack, or some other known killer. This was all legally sanctioned. The language used was that they were providing people “mercy deaths,” a chilling phrase to many people with disabilities. Of course, the terms—“euthanasia” and “mercy killing”— were important to help cover up what was really happening.

Doctors, nurses, and administrators were the perpetrators. Although administrators did not carry out the killings personally, they organized the murders, examining the records but never meeting the people. They made the lists of people to be killed. Each day these lists would be sent to doctors who, in the mornings, would go over the records and decide who would be killed that night. All of these people (doctors, nurses, administrators) were from outside of the town of Hadamar so as to avoid any personal connections and maintain the secret. When night came, those selected were told that they were being taken down to the showers. They were led down the dark stairway to the small basement, where up to 80 people at a time were packed. After being taken to this room, they were told to disrobe, and then to enter the shower. As our tour entered this room, the gas chamber, we were met with yellow floor tiles and yellow bathroomtype tiles on the wall. The room—about 15 feet by 12 feet—seemed very tiny, with a single basement window. As we stepped in, Uta, our guide, pointed to the plugged hole where gas would come out of the wall and up to the ceiling as a shower on the people. On the other side, doctors watched as the people fell. The thought of so many people dying in this small room became overwhelming for most of us. It felt to me as if this should be some sort of sacred ground upon which we were standing. I had been prepared for everything I saw, having heard the backHolocaust- cont. on p. 12

October 10, 2001

Tim Benjamin & Jeff Nygaard Editors

n the front page this month, Augsburg professor Sue O’Connor gives us a chilling tour through a death camp in Hadamar, Germany where, between 1941 to 1945, the Nazis put to death 15,000 disabled individuals, calling it “mercy killing”. Professor O’Connor has been instrumental in bringing this photo exhibition to Augsberg College,

one of two sites in the United States that the exhibit will be displayed. From Professor O’Connor’s description of the effects this display had on her, it is a must see, and for many of us who are not likely to travel to Germany, a once-ina-lifetime opportunity to see the fate of the disability community just one generation earlier.

***

cility in Mexico in the early 70s which was depicted in the Tom Cruise movie “Born on the Fourth of July”. Larry’s musical talent allowed him to share the stage with musical icons like Bob Dylan and Neil Young. Larry will be missed and our sympathies go out to the Kegan family.

Also on page 1, Deb Holtz of the DHS explains a new state program. The new program has three purposes, all of which improve the quality of life in community-based living for people with disabilities. Some heavy hitters from the disability community will be involved in running this *** program. Check it out. This could be a very positive step Our Culture Column is missforward. ing this month. Columnist *** Lolly Lijewski, like all of us, was devastated by the attack Another veteran of the dis- in New York and Washington ability community has passed D.C.. Lolly reminded me of away. Larry Kegan was a how vulnerable we really are pioneer in sexual education here in America, especially us for people with spinal cord in the disabled community. injuries. Larry was also in- How will the new regulations strumental in developing a at the airports affect disabled community-based living fa- travelers? Lolly was spending

time researching these effects through her many contacts in the transportation arena and wasn’t able to find time for her column. Hopefully, Lolly will have some answers to this question for us in future articles. This attack has put in a whole new light on a sign that many of us see every day: “In An Emergency Use The Stairs.”

in the media. Much to my surprise, I found myself making conversation with a wonderful, warm-hearted, soft-spoken woman who made me as comfortable as if I were chatting with a longtime friend. Thanks to all who made this interview possible.

***

We have finally found the time here in the office to catch up on some of the internal tasks that were put on the back burner while we were in transition. Thank you for your patience, and a HUGE thank you to all the friends that have renewed their donations. It is your support that keeps the ball rolling. Q

John Tschida and the staff of Courage Center made it possible for me to interview former Attorney General Janet Reno August 25th. Driving over to the Courage Center facility in Golden Valley I imagined myself interviewing the hard-nosed, strictly-business woman who is portrayed

***

What You Said: 2001 Access Press Reader Survey by Laurie Eckblad Anderson

hank you to all the readers who responded to our 2001 survey in the August issue! Your time and thoughtful input is appreciated. As a newcomer to the Access Press staff, I have learned a lot from reading and working with the surveys. Because the responses given

are important to us, we wanted to share some of the trends and highlights with you. We received a total of 34 responses. A few came in from close by—other offices in the Griggs Midway Building—and others came in

from as far away as Willmar, Crookston, and River Falls, Wisconsin. Most of the respondents are people with disabilities, and many of those without disabilities stated that they have a family member, co-worker, and/or a friend with a disability.

Pages and the Skyway News. When asked what their favorite regular features of the paper are, the top three vote-getters were: in-depth articles, political coverage, and cultural issues within the disability community. Respondents also had a chance to determine what additions might be made to the paper, space allowing. The top three among the choices given were: technology and disability, medical issues for people with disabilities, and educational opportunities for people with disabilities.

When asked how long they have been reading Access Press, the answers ranged from three months to “since the beginning.” One reader even claims to have been reading the paper “forever!” Lots of people suggested new places to make Access Press available, including large churches, all supermarkets, all public libraries, and When given a chance to make anywhere you can get the City their own suggestions for

additions, various readers voted for more fun in the paper with items such as crossword puzzles and short fiction by and about the disabled. Another trend was for items dealing with social life, such as low-cost activities, and social outlets for those over 50. Some unique suggestions for additions included more photos, new product reviews by users, and “dirty politics and disability.”

Many readers also want us to add items that are more entertaining or more personal, such as poetry by readers, book and website reviews, and success stories about people with disabilities in business and other areas. Our advertisers can take heart, because practically every respondent reads at least one of our three types of ads (display, employment, and classified) and most read two or more types. Twothirds of those responding go on to use the products and services of our advertisers!

Throughout the survey there was strong support for hard news topics. Unique requests included votes for more investigative articles, features on specific disabilities, and When asked what they liked insurance information on most about Access Press, devices for the disabled. many people mentioned political coverage and legislative updates, the hope and inspiration it gives them, and keeping the community SPECIALIZED TRANSPORTATION informed. Some of the unique answers included: “the feisty 612-529-5019 attitude,” the fact that it’s free at drop-sites, and the layout MEDICAL ASSISTANCE PROVIDER and use of color. Some readers mentioned that they would like to get the Survey - cont. on p. 4

ACCESS PRESS Co-Founder/Publisher (1990-1996) ...................................................... Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ........................... Charles F. Smith Board of Directors ...................... Bill Dessert, Margot Imdieke Cross, and Steve Kuntz Co-Editors ...................................................................... Tim Benjamin and Jeff Nygaard Cartoonist ......................................................................................................... Scott Adams Production .............................................................. Presentation Images, Ellen Houghton Editorial Assistants ........................... Donna McNamara and Laurie Eckblad Anderson ACCESS PRESS is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 11,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $15/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. Paid advertising is available at rates ranging from $14 to $18/column inch, depending on size and frequency. Classified ads are $8.00, plus 35 cents/word over 20 words. Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art.

BRING YOUR BOSS TO LUNCH Tuesday, Oct. 23, 2001 11:30 a.m. to 1:00 p.m. University Club 420 Summit Ave. Saint Paul, MN Come to our annual Employer Recognition Lunch sponsored by the Saint Paul Mayor’s Advisory Committee for People with Disabilities

ACCESS PRESS is available on tape. Call MN State Services for the Blind, 651-642-0500 or 800652-9000.

Call 651-266-8891 to reserve your table.

Inquiries should be directed to: ACCESS PRESS • 1821 University Ave. W. • Suite 104S • St. Paul, Minnesota 55104 • (651) 644-2133 • Fax (651) 644-2136 • E-mail: access@mninter.net.

Optional $15 donation per person • Limited seating

October 10, 2001

New Special Education Rules Coming In November by Sue Abderholden

ast January the Minnesota Department of Children, Families and Learning (DCFL) proposed new rules governing special education in Minnesota. The rules were rewritten to reflect the new federal regulations which were issued in March of 1999, and to changes required by the Minnesota legislature that year. DCFL used many methods to obtain input. They looked at past task force reports, convened a group to compare to compare state and federal regulations and convened new task forces to reach agreement on specific areas of the rules. The first hearing on the proposed rules took place in January. Many families and advocates were concerned that there was not enough time between when the rules were published and the date of the hearing to do a full analysis of the changes and to notify families. The hearing officer agreed, and a new hearing

was scheduled for April. At the April hearing so many people wished to comment that another day was added to accommodate them all. The hearing officer released his report on September 4, 2001. The rules will then be reviewed by an Administrative Law Judge, submitted to the Revisor’’s Office, filed with the Secretary of State and the Governor, and then published in the State Register. DCFL is anticipating that the new rules will be effective by midNovember. Many Changes Coming So what are the changes? There are many significant changes of which families and advocates should be aware. The first change is that many definitions and requirements that were duplicative, meaning that they were also in the federal regulations, were deleted from the Minnesota regulations. There were some exceptions to this, for ex-

ample when entire sections of the federal regulations were placed in to Minnesota rules. On the surface, this action of reducing duplication makes sense. In practice, however, it will mean that families will need copies of both the Minnesota and federal regulations to understand the special education system. Extended school year services (ESY) are critical to many students who have a disability. Without them they could regress to a point that they spend a significant portion of the new school year relearning skills. The proposed regulations define recoupment and regression and establish when a child is entitled to ESY services, including that it is needed to ensure the pupil receives a free and appropriate education. Advocates are concerned that the criteria may prevent some students from receiving ESY because the rules have a long recoupment standard. However, they also

believe that it may be easier to obtain ESY services for some students during breaks in the school year other than the summer break.

tional or behavioral disorder. Other changes were made to the criteria that were not supported by the advocacy community. The impact of these changes won’t really be Advocates pushed to have known until they are fully legislative language included implemented. in the regulations that requires school districts to have spe- DCFL is proposing to change cial education advisory com- the name and criteria for mittees. Some school districts students who have mental have mistakenly believed that impairments. This category they didn’t have to involve will now be labeled “Develparents, and advocates felt it opmental Cognitive Disabilwould be helpful to include ity,” as recommended by a that language in the regula- task force. Many advocates tions. They were not success- were opposed to this change ful in convincing the depart- because they felt it would be ment to include this language. confusing to families since it blends two labels into one. DCFL proposed changes to Advocates also were concriteria for several disabili- cerned that the criteria are ties. The criteria for ““Emo- more restrictive than standard tional or Behavioral disor- definitions used in the field. ders” were changed to recognize behaviors that don’t Also changed were the critestand out, such as withdrawal, ria for “Other Health Imand others associated with paired,” or OHI. The diagnodepression. For the first time, sis for Attention Deficit Disa functional behavior assess- order/Attention Deficit Hyment will be required for peractivity Disorder (ADD/ children who have an emo- ADHD) will now need to be made by a licensed physician, although documentation can come from mental health professionals. Advocates were concerned because a field survey of the new criteria showed approximately 39% For more information, visit of the children classified as the New Mobility website at OHI would lose their eligibilwww.newmobility.com/ Q

Wheelchair Users’ Modeling Contest N ew Mobility Magazine and Rolli-Moden Catalog are sponsoring a modeling contest for wheelchair gimps. Two men and two women will be chosen. You don’t need to be a Hollywood glam gimp and don’t have to look like a body perfect ab sitting in a wheelchair; you just gotta be a wheelchair crip 18 or older (geezers welcome) with dignity, energy, and poise.

address, phone number, e- your entry to: New Mobility/ mail address, and a biographi- Rolli-Moden, Modeling Concal sketch of 100-200 words. test, PO Box 767, Santa Monica, CA 90406. Winners get the following: a photo shoot with professional photographer, photos featured in New Mobility and Rolli-Moden, $200 in duds from Rolli-Moden, $200 worth of books and mags, and a 4year subscription to New Mobility plus other mags.

To enter, send four goodquality color photos (4 x 6 inch prints) of your bodacious self in different poses. Photos should be clear, sharp, and realistic (no hanging from the chandelier or perching upon a tree limb unless these are regular activities). Include a typed page with your name,

Please note that all photos become the property of New Mobility and may be used in future promotions. Also, winners are not guaranteed ongoing modeling work. Judges’ decisions are final. The deadline for submissions is December 30, 2001. Send

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ity for special education. Changes were also made to sections involving evaluations, Individualized Education Program development, conciliation conferences, and due process procedures. Many of these sections, however, simply adopted language from the federal regulations. Many advocacy organizations commented on the proposed regulations, such as PACER Center, Arc Minnesota, and the Disability Law Center. Their comments can be obtained by contacting them, or check on their websites. (see below) PACER Center will develop materials that reflect the new rules once they are published. Families and advocates are encouraged to download the rules from the DCFL or PACER website. The federal regulations can be downloaded from the web as well through www.fape.org. Website addresses for organizations mentioned in this article are: PACER Center: www.pacer.org; Arc Minnesota: www.arcminnesota.com; Disability Law Center: www. mnlegalservices.org/mdlc/) MN DCFL: www.cfl.state.mn. us/ Q

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October 10, 2001

Interview With Janet Reno by Tim Benjamin

ormer Attorney General Janet Reno received a standing ovation as she proudly walked onto the stage to accept the National Courage Award this past August 25th. She accepted the award on behalf of many people, beginning with the six other people that were honored that night: Jim Williams, Emmit McGarrity, Kris Flaten, Mark Curran, Linda Baune, and Mike Chevrette. I had the opportunity to speak with Ms. Reno earlier that day at Courage Center. She discussed with me some of the things that she would have liked to have done during her tenure as United States Attorney General to enhance compliance to the ADA. She talked about trying to persuade businesses “by the right

of it,” that compliance is the right thing to do, the smart thing to do, and that we all need to do it together. She said that “All America has to do is look around and see the number of people who have access to recreational opportunities, rental cars, restaurants, stadiums to realize that the bottom line of America is helped with compliance.” I asked Ms. Reno how we could get the entire population to embrace the ADA like they have with other civil rights laws. She said, “there has to be a moral force behind the law.” Again and again, she said, business people would come to her department expressing that the regulations were “terrifying.” The regulations had been drafted for the most part

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before she got there. Ms. Reno spoke of the need to have public support behind a civil rights law in order for it to be effective. “If we want to have the moral force of some of the civil rights laws then it’s got to be implemented with regulations that convey the fervor of that moral force. The ADA didn’t convey moral force and businesses moaned and groaned about it. I think that is what has slowed down the acceptance of the ADA as a civil rights law. One thing that appalled me was the costs involved in providing access to sidewalks. I thought if we can send people to the moon we ought to be able to develop a machine that comes in and grinds down the curb, vacuums it up, and resurfaces the sidewalk all in one action at a reasonable cost. To my knowledge, that machine has not been developed yet.” She explained to me how she thought too many people were concerned with the up-front costs and not the return on investment.

Gautier Davis of the Dade County Welfare Department: “What she taught me was the magnificence of the human spirit. That we can do everything for others, but nothing is the substitute for the spirit that the heart and soul engender in special human beings. And we honor those tonight who have the spirit and who have helped engender the spirit in those that face difficulties and obstacles in living.”

On the Courage Center and disability rights in Minnesota: “I think it is important that we spread the word about the Courage Center. No program is any better than the people who constitute it. And I’m not sure that you can match what you have done here in Minnesota. But we can try. And we can organize this area to an even greater extent. We can organize communities across this nation to ensure that there is no one left out. Not the most severely disabled, not anyone is left out because of their disabilities. That we look at everyone as though their abilities become In the course of her speech possibilities and that the word upon receiving the Courage “disabilities” is forgotten.” Award, former Attorney General Reno touched on many On organizing: “Community subjects related to disability. organization is one of the Here are a few excerpts from most difficult tasks that social workers, counselors, police her comments: officers, or anyone can underOn one of her role models— take. But it is one of the most “one of the greatest people I vital and if we could organize have ever met”—Corrine the communities of American

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On mental illness as a disability: “Let us analyze what the disabilities are in America. And take steps to address them in an educated,

thoughtful way. Is it mental illness? How does it happen? What are the circumstances? What can be done to prevent it? What can be done to make sure that services for the mentally ill are available in a convenient fashion all across America?” On prevention and treatment of medical conditions that lead to disability: “When you cannot prevent [disability], what can you do then? We are on the threshold of breakthroughs for spinal cord injuries that, as Adlai Stevenson would say, ‘stagger the imagination and convert vanity to prayer.’ It is a time when further research may open the door to answer questions that we have only dreamed might be answered. But let us take the energy in this room and start looking at what we can do in a concentrated, informed way, based on an analysis of the data, to identify every disability and to figure what we can do, short-range and long-term, to prevent the problems.” Q

SURVEY - Cont. from p. 2 paper faster in the mail. Others wanted us to include “more specific hypocrisy and discrimination highlights.” Many readers expressed general satisfaction with the paper, saying things like “Keep up the good work” and “Thanks for keeping us informed.”

Your comments will help us as we try to take Access Press into the future. The survey is an important part of our planning, but it isn’t the only way for our estimated 25,000 readers to give us feedback. So, to the 24,966 readers who didn’t have time to fill out a survey, we encourage you to write, call, fax, or e-mail us any time with your ideas. Q

Thanks to the 34 of you who filled out a survey for helping to keep US informed!

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to ensure that we reach out in effective ways to give everyone opportunity to be their best, we can make a difference. First, by preventing problems and one of the beginnings is ensuring that every child in America has a good strong foundation of learning, of health care, of housing, of nurturing, of nutrition, so that they can grow in the strongest, most positive ways. And that children who are born in this world with defects are given an even firmer foundation, knowing that if we commit monies up front—and time, and resources, and expertise, and research up front—we can make far more of a difference than if we wait until they are 21, or 25, or 30. Those early years are such formative years and we can help form a future for those children in that situation.”

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October 10, 2001

Letter To The Editor . . . This is in response to the Access Press September 10th column on Mental Illness/ Brain Disorders. It is unfortunate that Pete Feigal feels he had lost his soul because he believed in working cooperatively with the Mental Health Association (MHA) and other organizations that members of NAMI-MN disagreed with. We at NAMI-MN spent many hours in collaboration with MHA and the many organizations that make up the Mental Health Legislative Network. However, in the past, and this year, we believed in some issues that weren’t supported by all, and chose to pursue them independently. Despite these differences, yeoman effort by all involved, whether on joint initiatives or an independent issue, the results in the past session were extremely successful. This was clearly pointed out in stories in Access Press. We feel that it was a banner year for families and persons affected by severe and persistent mental illness.

issues and our organization is strong and vibrant. The top three priorities for the Board are: (1) assure a solid financial basis, (2) fully support our NAMI-MN staff, and (3) establish NAMI-MN as the powerful voice on mental illness.

Responses to meet our needs for funding from appeal letters, grant requests, and fund-raising events have been positive. As a result of a generous gift, NAMI-MN, in conjunction with Clear Channel Communications, will have ten poster-sized billboards in the Twin City area placed on primary and secondary arteries in the more populated areas. This is part of a “Mental Illness Awareness Week” campaign with the message, “Schizophrenia is a treatable medical condition” designed to educate and to bring hope. Additionally, five other organizations have partnered with NAMI-MN to do more poster-sized billboards in November. We feel the program will lessen the There have always been fear and stigma surrounding changes with state organiza- this common but misundertions and Boards of Directors. stood illness. It is appropriate for affiliates to ask about any concerns and In November, NAMI-MN to help foster positive changes. will be holding our annual The Board members, 13 conference featuring numerstrong, have addressed the ous workshops for consum-

ers, family members, and providers. Topics include establishment of mental health courts, diagnosing and treating bipolar disorder in children, implementation of the Medicaid Rehabilitation option, research on schizophrenia, ECT (electro-convulsive therapy) from the perspective of a professional and a consumer, affordable housing, community support services, and mental health legislation.

The following performances will be Audio Described (AD) for people who are blind or have low vision, or Interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing.

Bradshaw’s Shadows by Richard Bradshaw; 10/12-13; AD Fri., 10/12, 7:30; In the Heart of the Beast Puppet & Mask Theatre, Mpls; *$5-8; 612-721-2535, www.hobt.org

paramountarts.org or www. Community Theater at the cmct.org Mature themes, not Black Box, St. Cloud, 320recommended under age 16. 259-5463; www.paramount arts.org or www.cmct.org Glimpses: Dances Made by Hauser Dancers; 10/26-27; La Befana; 11/20-12/23; ASL ASL Sat., 10/27, 3:30; Nancy Wed., 11/21, 10:00 a.m., Sat., Hauser Dance Co. members, Dec. 1, 2:00; AD Fri., 12/7, at Patrick’s Cabaret, Mpls, 10:00 a.m., Sun., Dec. 9, 612-871-9077;$8, students, 2:00; In the Heart of the Beast seniors, MDA $6; nhdc@tc Puppet & Mask Theatre, internet.net Mpls, 612-721-2535; www. hobt.org Strike! Turn Out at the Mill by Eliza Anderson, music/ lyrics by Gary Rue; 10/19-11/ 4; ASL Sun. 10/28, 2:00; AD Tues., 10/30, 11:00; Stepping Stone Theatre, Landmark Center, St. Paul, 651-225-9265; www.steppingstonetheatre.org

Tartuffe by Moliere; AD Fri., 11/30, 8:00; Theatre de la Jeune Lune, Minneapolis, 612-333-6200; www.jeune lune.org Bingo, by Michael Heitzman, David Holcenberg & Ilene Reid; 9/18-12/9; AD/ASL Sat., 12/1, 2:00; Ordway McKnight Theatre, St. Paul, 651-224-4222, TTY 651282-3100; www.ordway.org

How to Improve Your Golf Game by David Babcock; 10/ 26-12/2; AD Fri., 11/9, 8:00; ASL Sun., 11/11, 3:00; Mixed Blood Theatre, Mpls, 612338-6131; $10; www.mixed The Nightingale 11/30-12/9; blood.com ASL Sun., 12/2, 3:00; AD Fri., 12/7, 7:30; The Urban Driving Miss Daisy by Alfred Spectrum Theatre Co. perUhry; 11/9-18; ASL Sun., 11/ formed at Central City The18, 2:00; Central Minnesota atre, Mpls, 612-869-5080. Q

HOUSING AND PERSONAL CARE SERVICES

Martha Hage & Sam Jasmine’s RADIO SHOW Disabled & Proud, It’s Not An Oxymoron 10/16: Jean Parker, Disability Radio Worldwide 10/23: Pledge Week – Call in your pledge!

Accessible Performances

Twelfth Night by William Shakespeare; runs thru 10/28; ASL Sun., 10/14, 2:00; Commonweal Theatre, Lanesboro, 507-467-2525 or 800-657-7025; www.common At the conclusion of the wealtheatre.org conference, NAMI-MN will hold a business meeting at Description of the World; which fifteen new Board AD Sun., 10/14, 7:00; Themembers will be elected, atre de la Jeune Lune, increasing the Board to a Minneapolis, 612-333-6200; strong 25 members, and www.jeunelune.org introduction of a top-notch Executive Director with The Legend of Sleepy Holtwenty years of experience in low by Washington Irving; working for and with persons 10/12-21; ASL Sun., 10/21, with disabilities. Also, an 2:00; Young People’s Theannouncement will be made atre production; Rochester for the formation of our first Civic Theatre, 507-282-8481; ever Advisory Council con- www.rochcivictheatre.org sisting of community leaders and experts in mental illness, Dracula by Steven Dietz 10/ housing, diversity, etc. I can 19-28; ASL Sun., 10/21, go on, but in conclusion, 2:00; Ctrl MN Com. Theater, NAMI-MN is very alive, at Paramount Theatre, St. well, and we look forward to Cloud, 320-259-5463; www. celebrating a very successful 25th Anniversary in 2002. Joseph R. Zwack, President, NAMI-MN

10/30: Artist of the Month: Renowned musician Joseph Baird 11/6: No Disabled and Proud due to election night coverage.

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METRO MOBILITY PUBLIC FORUMS FOR RIDERS SET FOR EARLY NOVEMBER

For more information call (651) 645-7271 or (800) 466-7722. For services or housing call Cami, for employment as a personal care attendant call Al or Angie.

he Metropolitan Council will hold two public forums in early November to gather information from riders and other consumers on how well the Metro Mobility program is meeting their transportation needs. Public forums are scheduled as follows: • Thursday, November 1, 2001, 7:30 - 9:00 p.m., Minneapolis Convention Center - Room 103-F, 1301 2nd Avenue S., Minneapolis • Friday, November 2 2001, 12 noon - 1:30 p.m., Mears Park Centre Bldg., Chambers, 230 E. 5th Street, St. Paul. All interested persons are encouraged to attend the forums and offer comments. People may register in advance to speak by calling Metro Mobility Customer Services at 651-602-1111, or 651-221-9886 TTY. Riders may also wait and sign up to speak at the forums. Sign language interpreter services will be provided at the forums. Upon request, reasonable accommodations to persons with disabilities will be provided if requested by October 19. The forums are designed so people can comment on how Metro Mobility is working for them and offer ideas for improvement. Metro Mobility staff members will be on hand to answer general questions and respond to comments. Riders seeking follow-up on a specific incident or concern are asked to contact the Metro Mobility Customer Services Department at 651-602-1111 (651-221-9886 TTY). Riders who do not attend a forum can still participate as follows: • Dave Jacobson, Metropolitan Council Metro Mobility Service Center, 230 East Fifth Street, St. Paul, MN 55101 • Fax comments to Dave Jacobson at 651-602-1660 • Send TTY comments to Dave Jacobson’s attention at 651-221-9886 • E-mail comments to: data.center@metc.state.mn.us. Comments will be accepted until Friday, December 14, 2001.

Accessible Space, Inc.

October 10, 2001

Mental Illness/Brain Disorders

Be Not Afraid by Pete Feigal

once met a man who never slept. It wasn’t that he couldn’t sleep, he just wouldn’t. He was afraid to. He told me that every bad thing that had happened to him came when he was asleep, or unprepared, or when he had somehow let his guard down, or been soft or weak. He reasoned that by always staying awake, he could see

danger coming, protect him- living, has given me an self, and be safe. Exhausted, intimacy with fear and, like but safe. this man, I once believed the myth that I could minimize The tragic events of Septem- danger by taking total control ber 11th, and the grief and of my environment. fear they brought, made me remember this man. Living When fear comes, we harden with the unpredictability of our hearts and bodies to the diseases of mental illness protect ourselves. Sometimes and multiple sclerosis, and the we’re paralyzed, unable to unpredictability of simply move, sometimes we race around, trying to make ourselves into a moving target and harder to hit. We build fortresses and walls, draft armies, pay insurance companies, doctors, and governments to protect us from danger as we try to minimize the risks of being human. But when we live in fear from everything that can hurt us, we Supplemental Staffing for insulate ourselves from life Skilled Nursing & itself, because pain, fear, Assisted Living Facilities danger, grief, death are un24 Hours — 7 Days/Week avoidable ingredients of life. No matter how hard we work Personal Care Attendants and try to get all our “ducks in Home Health Aides one line,” things that can hurt us will inevitably touch us at Trained Medical Assistants – TMA some time in some way. Nursing Assistants Registered – NAR

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and property. As a nation, we spend more than $300 billion a year on planes, tanks, guns, and soldiers to protect ourselves. We spend billions on health and life insurance to shield us from the costs of illness and death. And with all these expenditures, thousands of dollars for every man, woman and child in the United States, nobody feels safe. Even before September 11th.

heartbeat. Sometimes we’ll have joy, and sometimes we’ll have sorrow. Many times we’ll be afraid. But the object of faith and courage is not to eliminate difficult circumstances. It’s not about trusting in a God who will save us from danger, or who—if only we believe strongly enough— will make everything better. The real question of faith and courage is when pain and loss inevitably come our way, do we pull back in fear that we Gandhi said, “Where there is will be destroyed, or do we fear, we lose the way of our deepen our trust in our innate spirit.” When we are in fear, capacity to endure them? we focus all our attention on the point of danger and lose The most-used phrase in the our capacity to find any Christian gospels is “be not courage, security, or peace in afraid.” It’s used over 300 ourselves. We become so times. The gospels were obsessed with what threatens written at a time when early us that we lose sight of our Christians were being arrested and persecuted, so they “hearts of courage.” weren’t saying “be not afraid” It seems that genuine faith, because there was nothing to strength and courage comes be afraid about. They were from the ability to trust in saying that if you had that what is most fundamentally strong, quiet place inside, that true within ourselves. Cir- trust in your own spirit, it cumstances will change, and didn’t matter if you were Americans spend more than things good and bad are going arrested or persecuted, it $50 billion on security equip- to happen. Our lives and the didn’t matter if you were ment to protect their homes world can change in a attacked by terrorists, or battling mental illness or

multiple sclerosis. If you have that place of courage and serenity in your heart, no matter what, things will be all right. Faith isn’t an insurance policy to protect us from life. True safety doesn’t come from the absence of danger, but from the presence of faith and courage. If we seek our safety within our own hearts and not in the manipulation of environment and circumstance, that’s the only time we can be safe. That’s how we “stay awake” in this dangerous world. And by making our hearts vulnerable by loving and trusting others, friends, family, a power higher than ourselves, we may find that we can let our guards down for a few hours, share the burden of danger, and let ourselves finally rest in safety, knowing that someone else we trust will stand guard, and we all can be watchful for each other. So be not afraid. Get some sleep. I’ll take the first watch, you take the second. Q

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October 10, 2001

Religion and Disability

Hello Nicole:

How Do I React? by John Schatzlein

he terrorist events in New York and Washington have generated many feelings and activities. One of the activities for me has been to be able to remember that we must not see this horror as acts of one religious group, but rather as acts perpetrated by individuals who are controlled by a need for extremism and violence, and a completely warped justification system.

reinforce my need, in fact everyone’s need, to resist hate and stereotyping. It was a message that reminded me that we have to be able to focus on individuals rather than classes, groups, or entire cultures. It said to me that— above all—I must not hate.

hatred. Strength, derived from this inner spirit, will prevail. Over time it will give us the direction and energy needed to carry forward with a renewed commitment to make this world a better place. It will prevent isolationism by helping us understand that we need each other, irrespective Since September 11th, I have of culture, functional abilitried to learn more about how ties, gender, religion, or persons with diverse cultural sexual orientation. backgrounds around me have reacted to this catastrophic We will all be impacted by event. I have heard fear of recent events. We will need to increased prejudice, retalia- be strong, work together, and tion, unworthiness, shame, seek better understanding and uncertainty about the and awareness of each other.Q ability to move about within the general community. I have John Schatzlein works in the also seen a pulling together, a Catholic Charities Office for willingness to interact and Persons with disAbilities discuss concerns and feelings. I have felt a bonding to improve efforts to work side by side and to move forward.

It was ironic that, as I was listening to the unfolding events in New York, I was also going through stacks of documents piled on my desk. Buried in the middle of this pile was a handout we received at one of our diversity training programs. It is a colored card that has a world map on it. Below the Earth are hands of multicolored individuals reaching up to the globe with the words Many of us have had to draw “You are entering a Hate Free on our inner spirituality to Zone” above and below. help us reflect and understand why and how we will go How apropos it was for me to forward without increased find this and immediately suspicion, prejudice, and even

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Hello Nicole, My 12-year-old son, Tim, is dealing with big emotional issues. We have Tim into a counselor, but he’s not specifically trained for the trials of an adolescent with a disability. It’s incredible to me that there is no one that seems to be an “expert” with these issues. Tim is still struggling and is depressed often, angry at other times. He doesn’t like to talk about it with me, so I’m not even sure exactly what his issues are, but I definitely understand how he can get depressed. At this age, the need for assistance with private things like bathing, dressing, and using the toilet is more difficult for him to accept than when he was younger. I’m able-bodied so I can’t even imagine how irritating it all must be for him. I regularly tell him he’s my hero because he’s dealt with far more in his 12 years than 95% of people do in their entire lifetime. Do you have any recommendations? Sincerely, Dad Dear Dad,

sponse to his pain will affect how he thinks about himself and his life, and how he learns to cope during hard times. Many parents, however illogically, feel responsible for their child’s difficulty and believe it’s their duty to make the “problem “ go away. No one wants to see their children suffer, but if we can start to see difficult times as useful learning processes (rather than as problems to be avoided) we can teach our children to feel more comfortable and hopeful within their depression, anxiety, or anger. Likewise, since your son’s issues focus in large part around the negative implications of his differences, it is especially important that you validate the normalcy of your son’s emotions so that his depression, for example, does not just become something else “wrong “ with him. Help him understand that his feelings of depression or anger about not being able to be as independent as he wants to be, or because he feels cast out socially at times, is not a problem, but a healthy and normal response to an unfair situation.

Adolescence is when we are striving to be independent and define who we are, yet, at the same time, we desperately need to fit in and be socially acceptable. This dichotomy is enough to frustrate any teenager—add to it a disability that limits independence and carries a heavy social stigma, and it’s easy to see why your son is having difficulty.

what they are really saying is: “You must be exceptional because your life is so horrible that no regular person could live that way.” While I know they mean well, these types of statements are insulting and isolating. It is much more helpful to say, “I can see how this is really hard and I admire the way you are handling it. I doubt I could do any better with it than you are.” Once you have the channels of communication open with your son, regularly ask him if there is anything you could do to make things easier. Brainstorm ideas that could increase his independence and privacy, and be willing to make changes in the family’s routine if necessary. As much as possible, introduce your son to adults with disabilities who are living happy, independent, and productive lives so that he can start to see how it can be done. Having disabled role models is extremely important, yet that is something that is often missing from the lives of children with disabilities. Make sure that if he is not happy with this therapist, you offer him other options. Allow him to experiment and find a therapist or support group he connects with. Trust that he knows what is good for him. The more your son has a sense of control over his life, and the more he learns that he can manage without having to be Superman, the better he will feel about himself and his abilities.

The attitude you take when talking with your son is just as important as the words you say. Talk to him as an equal. Make sure you are expressing compassion, and not pity, for his situation. To the degree that you have trouble imagining yourself coping in your son’s position your son will have trouble finding support from you in learning how to cope. Do not tell your son that Although you can’t take away he is your hero. When some- -- Nicole your son’s pain, your re- one tells me I am heroic, I feel

Question? Complaint? Comment? Write to Nicole: % Access Press, 1821 University Ave. W, #104 S; St. Paul, MN 55104; HelloNicoleAccess @yahoo.com

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October 10, 2001

Directory of Organizations for Persons with Disabilities Editor’s Note: Please let us know if there are any errors in your listing, and tell us what you think of the new format. If you would prefer your organization be in a different category, please let us know your wishes. Thank you! ADVOCACY ORGANIZATIONS ACT-UP MN, Robert Halfhill, 612-870-8026 Advocating Change Together, Kathy Sanders, 651-641-0297 ARC - Anoka/Ramsey Co.s, Marianne Reich, 763-783-4958 ARC - Hennepin/Carver County, 952-920-0855, archennepincarver.org ARC - MN, Bob Brick, 651-523-0823, 1-800-582-5256, mail@arcminnesota.com ARC - Suburban, Marianne Reich, 952-890-3057 ARRM, Bruce Nelson, 651-291-1086 Justice for All, 202-488-7684, Justin and Yoshiko Dart MN Consortium for Citizens With Disabilities, Tom Brick, 651-296-3478 MN Developmental Achievement Ctr Assoc, 651-647-9200 North Suburban Consumer Advocates for the Handicapped (NSCAH), Jesse Ellingworth, 763-783-4708, 763-783-4724 TTY Ombudsman for Mental Health & Mental Retardation, 651296-3848, 1-800-657-3506, www.ombudmhmr.state.mn.us. BRAIN INJURY SERVICES A Chance to Grow, Bob DeBour, 612-521-2266, newvisions @mail.actg.org Brain Injury Assoc. of MN, Stephanie Weiss Lake, 612-3782742, 800-669-6442, info@braininjurymn.org Traumatic Brain Injury-TBI Metro Services, 612-869-3995 COMMUNITY-LIVING SERVICES Community Bridge Consortium, Pat Svendsen, 651-748-7437 V/TTY, psvendse@isd622.k12.mn.us Community Involvement Programs, 612-362-4400 Help Yourself, Sara Meyer, 651-646-3662 Henn. Co. Lib. Homebound Serv., Becky Mobarry, 952-8478850 Kaposia, Inc., Cindy Amadick, 651-224-6974, camadick @kaposia.com Metro Ctr. for Independent Living, 651-646-8342 V, 651-6032001 TTY SE MN Ctr for Independent Living (SEMCIL), 507-285-1815, 507-285-0616 TTY SILC-Statewide Independent Living Council, Bill Bauer, 651296-5085 V, 651-297-2705 TTY So. MN Independent Living Enterprises & Serv. (SMILES), Alan Augustin, 507-345-7139 West Henn. Commu. Services, Mary Perkins, 952-988-4177 EDUCATION ORGANIZATIONS Adaptive Recreation & Learning Exchange, Kristen Abel, 612861-9361 V/TTY, kabel@ci.richfield.mn.us Adult Basic Ed/Special Needs, Betty Sims, 651-290-4729 Center for Learning & Adaptive Student Serv. (CLASS), Robert Doljanac, 612-330-1648, class@augsburg.edu Fraser Community Services, Diane Cross, 612-861-1688, diane@fraser.org Learning Disabilities Program (Family Services of St. Paul), Jan Parkman, 651-767-8321 Learning Exchange, Lynn Dennis, 952-885-8531, TTY 952885-8590 MELD (MN Early Learning Design), 612-332-7563 V/TTY, info@meld.org Mpls. Community and Technical College, Office for Students w/ Disabilities, Melissa Newman, 612-341-7000 V/TTY MN Higher Education Services Office, Sarah Beth Mueller, 651-642-0533 PACER Center, Inc., Pat Bill, 952-838-9000 V/TTY, tbill@pacer.org Parent Support Network (EBD/ADD/ADHD/LD), 763-7834949 POHI District Consultants-Mpls. Public Schools, Jim ThomasAnwatin Coord., 612-668-2450 Project Compass, Adult Disability Program - Winona Comm. Educ., Helen Newell, 507-454-9450 Voice/TTY, hnewell@isd861.luminet.net Reuben Lindh Learning Center, 612-721-5111

GOVERNMENT SERVICES Dakota Co. Social Services, 952-891-7400, www.co.dakota .mn.us Division for Persons w/ Developmental Disabilities, 651-2822086 Mpls. Advisory Commitee for People with Disabilities, Margot Imdieke Cross, 651-296-6785, elizabeth.held@ci.min neapolis .mn.us MN Children with Special Health Needs, 651-215-8956, 1-800-728-5420 V/TTY MN Dept. of Human Services, Traumatic Brain Injury Program, 651-582-1938 MN Gov. Council On Dev. Disabilities, Deborah Tompkins, 651-296-4018 V, 651-296-9962 TTY MN State Council on Disability, 651-296-6785 MN State Services for the Blind, 651-642-0500, 800-652-9000 St. Paul Advisory Commitee for People w/Disabilities, Roger Schwagmeyer, 651-266-8891

RECREATIONAL SERVICES continued Camp Winnebago, Kathy Geely, 507-724-2351, campwinn @means.net Capable Partners, Jonathan Leslie, 763-542-8156 Ski for Light, 612-827-3232 US Electric Wheelchair Hockey Association, Craig McClellan, 763-535-4736 Wilderness Inquiry, Corey Schlosser-Hall, 612-379-3858, 800728-0719 V/TTY, www.wildernessinquiry.org

REHABILITATION CENTERS Courage Center, John Tschida, 763-520-0520, 612-520-0245 TTY, johnt@courage.org Functional Industries, Don Tribyl, 763-682-4336 Lifetrack Resouces, 651-227-8471, TTY 651-227-8471 Metro Work Center, Inc., 612-729-7381, mwc@onvoy mail.com Midwest Special Services, Lyth Hartz, 651-778-1000 Opportunity Partners, 952-938-5511, 952-930-4293 TTY HEALTH ORGANIZATIONS Owobopte, Inc., 651-686-0405 Children’s United Hospital, 651-220-8000 Rehabilitation Centers, MRCI - Burnsville, 952-894-4680 Gillette Children’s Hospital, Lynn Carpentier, 651-229-3845 MRCI - Carver/Scott 952-445-6811 Health Psychology Clinic, U of M, 612-624-9646 MRCI - Chaska, 952-448-2234 Methodist Hosp. Ctr. for Senior Services, 952-993-5041 MRCI - Fairmont, 507-238-4388 Methodist Hosp. Parkinson Center, 952-993-5495 MRCI - Industrial Operations, 507-386-5600, Methodist Hosp. Stroke Supp. Grp., 952-993-6789 mrci@mnic.net Shriner’s Hospitals for Children, Karen Boyer 612-596-6105 MRCI - Lakeville, 952-898-5025 Sister Kenny Institute, Deb Rasmussen, 612-863-4622 MRCI - New Ulm, 507-233-2700 Rehab Services Branch, 651-296-5616 or 800-328-9095, 651HEARING IMPAIRMENT SERVICES 296-3900 TTY Deaf Blind Services MN, Jean Greener, 612-362-8454 V/ TTY, info@dbfm.org RESIDENTIAL SERVICES Deaf & Hard of Hearing Services Metro, Marie Koehler, 651- Accessible Space, Inc., Stephen Vanderschaaf, 651-645-7271, 297-1313 TTY,651-297-1316 www.accessiblespace.org MN Assoc. of Deaf Citizens, Inc., Douglas Bahl, 763-757- Altern. for People with Autism, Inc, Mike Amon, 763-5605998 TTY 5330, afpwa@mr.net MN Commission Serving Deaf & Hard of Hearing People, Anoka Metro Reg. Treatment Ctr., Judith Krohn, 763-712651-297-7305 TTY 4000 MN Relay Service, 1-800-627-3529, sprint.trscustserv@mail. Homeward Bound, Inc., 763-566-7860 sprint.com Nat’l Handicap Housing Inst., Inc., Mike Bjerkesett, 651-639Self Help for Hard of Hearing (SHHH), Leslie Cotter, 6519799, nhhi74@aol.com 772-4931 V/TTY The Phoenix Residence, Darlene M. Scott, 651-227-7655 Sight & Hearing Association, 651-645-2546 RESOURCE CENTERS LEGAL SERVICES Access for All, Mike Chevrette, 651-481-4062 Legal Advocacy for Persons with Dev. Disabilities, 612-332- ALS Assoc. (Lou Gehrig’s Disease), 612-672-0484 1441, mnlegalservices.org Alzheimer’s Association, John Kemp, 952-830-0512 Legal Aid Society of Mpls, Laurie Moser, 612-332-1441 Am. Behcet’s Disease Assoc., 1-800-723-4238 MN Disability Law Ctr., 612-332-1441 American Cancer Soc.- MN Div., 612-925-2772, 1-800-2272345 MENTAL HEALTH SERVICES Am. Cancer Soc. (Ramsey Co.), 651-644-1224 Alliance for Mentally Ill - Wash. Co., Bob Rafferty, 651-439- Amer. Diabetes Assoc., Lee Johnson, 763-593-5333 3800 Amer. Heart Assoc., Betty Young, 952-835-3300, wwwam Alliance for Mentally Ill of MN, 651-645-2948 ericanheart.org Centre for Mental Health Solutions, Tamera, 952-922-6916, American Lung Assoc., 651-227-8014, 1-800-642-5864 (in www.tcfmhs.org MN), info@alamn.org Henn. Co. Mental Health Ctr., Joel Pribnow, 612-348-4947 Arthritis Foundation, Deb Dressely, 651-644-4108 Mental Health Association, 612-331-6840, 1-800-862-1799, Catholic Charities, Program for People with Disabilities, John www.MentalHealthMN.org Schatzlein, 651-222-3001 Mental Health Consumer/Survivor Network, 651-637-2800, Chemical Injury Resource Assn., 651-647-0944 1-800-383-2007, csnmt@uslink.net Chronic Fatigue Syndrome Association of Minnesota, 651Mental Health Law Project, Pat Siebert, 612-332-1441 644-4975 MN Assoc. for Child. Mental Health, 651-644-7333, 1-800- Cystic Fibrosis Foundation, Molly Boyum, 651-631-3290, 528-4511, dsaxhaug@macmh.org minn@cff.org MN Depressive & Manic Depressive Assoc., 612-379-7933 Disability Institute, Wendy Brower, 952-935-9343 Pilot City Mental Health Center, Sy Gross, 612-348-4622 Down Syndrome Assn. Of MN, 651-603-0720, dsam@mm.com Duluth Consumer & Family Regional Resource Center, 218RECREATIONAL SERVICES 728-3531 Achilles Track Club-Uptown, Kay Christianson, 612-822- East Suburban Resources, Sue Schmidt, 651-351-0190 or 7872 MRS 800-627-3529 Boy Scouting for People w/ Spec. Needs, Jan Bovee, 651-224- ELCA Committee on Disabilities, Linda Larson, 612-7881891 8064 Camp for Child. & Teens w/ Epilepsy, Deborah McNally, 651- Epilepsy Found., John Thompson, 651-646-8675, 800-779646-8675, 1-800-779-0777 0777, infoefmn@mr.net Directory - cont. on p. 9

October 10, 2001

DIRECTORY- Cont. from p. 8 RESOURCE CENTERS continued Hemophilia Foundation of MN, 763-323-7406 Independence Crossroads, Rob Olson, 612-854-8004, info@independencecrossroads.org Indian Family Service, Maggie Spears, 612-348-5788 League of Women Voters, 651-224-5445, office@lwvmn.org Leukemia Society of America, MN Chapter, 952-545-3309 Lupus Foundation of America, MN Chapter, 612-375-1131, mnlupus@aol.com Lyme Disease Coalition, Linn Olivier, 651-644-7239, lymenet_mn@yahoo.com Lyme Disease Network of MN, Linn Olivier, 651-644-7239 MN AIDS Proj., Lorraine Teel, 612-870-7773, 612-870-0700 MN Resource Center, Kim Feller, 612-752-8102 MN Stroke Association, 800-647-4123, www.strokemn.org Muscular Dystrophy Assoc., Christina Van Vooren, 952-8325517 (Mpls. district), 952-832-5716 (St. Paul district) National Ataxia Foundation, Donna Gruetzmacher, 763-5530020, naf@ataxia.org Nat’l Center for Youth w/ Disabilities, Elizabeth Latts, 612626-2820 Nat’l. Multiple Sclerosis Society, MN Chapter, Jill Retzer,612335-7900, 1-800-582-5296 V/TTY, jretzer@mssociety.com People, Inc. Epilepsy Services, Anne Barnwell, 612-3389035, www.orgsites.com/mn/epilepsy Spina Bifida Association of MN, Lisa Schaffee, 651-222-6395 Twin Cities Autism Society, 651-647-1083 United Cerebral Palsy of MN, JoAnn Erbes, 651-646-7588, 1800-328-4827, ext.1437, ucpmn@isd.net

SERVICE DOGS continued Helping Paws Of MN, 952-988-9359, helpingpaws@ens.net SOCIAL SERVICES Capella Management Group, Gerald Glomb, 651-641-0041 NW Henn Human Services Council, 763-493-2802 V/TTY

VISION IMPAIRMENT SERVICES continued Deaf Blind Services MN, Jean Greener, 612-362-8454 V/ TTY, info@dbfm.org Radio Talking Book, 651-642-0500 Sight & Hearing Association, 651-645-2546 United Blind of MN, Inc., 763-391-3699 Vision Loss Resources, 612-871-2222 Volunteer Braille Services & Large Print, 763-971-5231

SUPPORT Emotions Anonymous, 651-647-9712, eaisc@mtn.org Gay and Lesbian Helpline, 612-822-8661 V/TTY VISUAL/PERFORMING ARTS Spinal Cord Injuries Help Line, Roger Hoffman, 651-464-7559 Interact Center for the Visual and Performing Arts, 612-3395145 V, 612-339-6465 TTY, interactcenter@aol.com TECHNOLOGY VSA MN, 612-332-3888 V/TTY, info.mn@vsarts.org Closing the Gap, MaryAnn Harty, 1-507-248-3294, info@closingthegap.com VOCATIONAL SERVICES AccessAbility, Inc., Darren Mack, 612-331-5958, TRANSPORTATION dmack@accessibility.org Metro Mobility, 651-602-1111, 651-221-0014 TTY Access to Employment, Lori Sterner, 763-543-6980V/TTY Goodwill Industries/Easter Seal, Lynette Bergstrom, 651-646U of M AFFILIATED PROGRAMS 2591 V, goodwilleasterseals.org Institute on Community Integration, Vicki Gaylord, Hennepin County Vocational Services Program, Shanna Melton, publications@icimail.coled.umn.edu, 612-624-4512 612-348-8370, shanna.melton@co. hennepin.mn.us U of M Disability Services, 612-626-1333 V/TTY, Lifeworks Services, Susan Sczcukowski, 651-365-3732, webmaster@disserv.stu.umn.edu sks@lifeworks.org U of M Disabled Stud Cultural Ctr, 612-624-2602, 612-626- Midway Training Services, Barbara Kale, 651-641-0709 7003 TTY Rise, Inc., 763-786-8334, bdepoint@rise.org TSE, Inc., Phil Saari, 651-489-2595 VISION IMPAIRMENT SERVICES Vinland Center, Carol Jackson, 763-479-3555 V/TTY, vinland Am. Council of Blind Services, James Olsen, 612-332-3242 @vinlandcenter.org BLIND, Inc., Joyce Scanlan, 612-872-0100 Wings, Debbie Atterberry, 612-752-8844, djatterberry SERVICE DOGS Candle in the Window, Kathy Szinnyey, 1-502-895-0866 @juno.com Hearing and Service Dogs of MN, Alan Peters, 612-729-5986 Commu. Ctr for the Blind, Dave Andrews, 651-642-0513 V, 612-729-5914 TTY, hsdm@bitstream.net

If your organization would like to be included in the Directory of Organizations, contact ACCESS PRESS at Suite 104S, 1821 University Ave.W. St. Paul, MN 55104 • 651-644-2133 • access@mninter.net

October 10, 2001

IN BRIEF . . . . Give Feedback On State Services As reported in the May 2001 The State is soliciting input on has set up for this purpose at Access Press, the State of Minnesota is reorganizing some of its programs that serve people with disabilities.

this process from citizens. To www.mntransition.org learn about the process and call (651) 215-1094. give your input, visit the special website that the State

October is “Access For All” Month Governor Ventura has proclaimed that October, 2001 is “Access for All Month.” With this proclamation, the state recognizes Mike Chevrette’s organization and its goal of “gathering and

disseminating accessible travel information for persons with disabilities...” Stating that “the disabled community is the only minority group that anyone can join at any time,” the proclamation notes that

“improved access breaks down barriers and enhances the quality of life” of all Minnesotans. The State also sees the work of “Access for All” as a way to bring in more tourism.

Open Forum On IDEA Congress is planning changes ment on how important spe- sessions on Tuesday, Oct 23rd: to the Individuals with Disabilities Education Act (IDEA). The PACER Center, in collaboration with the U.S. Dept. of Education and the Great Lakes Area Regional Resource Center, will present an open forum to give feedback to the federal govern-

cial education is, why it works, and how it could be better. Minnesota is one of only seven states to be selected by the Education Department to host such a public forum.

One session is 1 to 4 p.m., and the other is 6 to 8 p.m. Both sessions will be held at the PACER Center in Bloomington, 8161 Normandale Boulevard. For more information, call PACER at 952-838-9000 in the Metro area or toll-free The forum will be held in two at 1-800-537-2237.

Metro Regional Disability Committee Named M

innesota Department of Human Services (DHS) Commissioner Michael O’Keefe has named 14 people to a committee that will advise the state’s metropolitan area direct services for people with mental illness, developmental disabilities, chemical dependency, traumatic brain injury, and other disabilities. Named to the State Operated Services (SOS) Metro Network Regional Advisory Committee are: Daniel Fischer of Bloomington; Steven Kuntz of Crystal; Sister Jo Lambert of St. Paul; Margaret Lunacek of New Brighton; Mustafa Mohamed of Minneapolis;

VSA arts of Minnesota will disabilities so their work in cludes grant recipients from the arts might continue; and to identify Minnesota artists with disabilities who are dedicated to making arts production and/or presentation a central part of their lives.

1996-98. The application deadline is Friday, November 9, 2001. For an application, call 612-332-3888 or 1-800801-3883 (in greater Minnesota) or e-mail jon.mn@vsarts. org. If you need a format The program is open to other than standard print, individuals in all art disci- specify PC diskette, audio plines: visual, performing, tape, Braille, or large print. written, media, etc. This in-

Call For Volunteers In conjunction with Mental to spend time with people ment, and friendship. If you Illness Awareness Week (October 7-13), Hennepin County’s Mental Health Volunteer Program requests your help. Volunteers are needed

affected by mental illness. Participating volunteers are asked to meet every other week with one person to provide support, encourage-

are interested in volunteering, please call Jackie Connolly at (612) 348-2875 or e-mail via Jackie.Connolly@co.hennepin. mn.us

Local Employer Recognized Fifteen Dakota County employers will be recognized at a luncheon for their outstanding achievements in hiring people with disabilities. The October 16, 2001, luncheon will be hosted by the Dakota County Rehabilitation Services, a partner of the Minnesota Workforce Center. It starts at 11:30 a.m. at the Old Chicago

Restaurant in Apple Valley ability Awareness Month. (14998 Glazier Avenue). Rehabilitation Services, supThe “Recognize Your Boss” ported by both State and luncheon is designed to federal funds, assists people heighten awareness of the with disabilities who need contributions that people with services to help them enter the disabilities bring into the workforce, or to find and keep public workforce. The event a job. To locate an RS office also honors the October in your area, call (651) 296observation of National Dis- 5616. In Brief - cont. on p. 15

METROPOLITAN CENTER for INDEPENDENT LIVING MCIL offers services for people with disabilities, their families and friends, service providers, and interested community members in the 7-county metro area. Information and Referral (Information hotline: 651-603-2039) Advocacy Independent Living Skills Training Individual Peer Support Deaf I.L. Services Personal Assistance Services (M.A. Subsidized) Ramp Project Transition Program ADA Information Meeting Rooms Computer Lab Resource Library Support Groups ...Chemical Dependency with Physical Disability GLBT with Disability Chemical Dependency with Traumatic Brain Injury

1600 U NIVERSITY A VE . W., S UITE 16, S T. P AUL , MN 55104-3825 651-646-8342 V OICE 651-603-2001 TTY 651-603-2006 F AX HTTP:// WWW . MCIL-MN.ORG

DHS’ SOS administration includes the state regional treatment centers and also provides other communitybased services to people with disabilities, often in partnership with other health care providers. The SOS Metro Network includes Anoka Regional Treatment Center, Eastern Minnesota State Operated Community Services, and the Minnesota Extended Treatment Options Program in Cambridge. Q

The advisory committee will be charged with bringing observations, questions, and concerns to the attention of the DHS commissioner, SOS management, and the SOS This information is available Governing Board, a citizen on the DHS website: group that sets strategic policy www.dhs.state.mn.us direction for the system.

Governor’s DD Council Seeks Applicants

Grants For Artists With Disabilities award six $1,000 grants to Minnesota artists with disabilities through its Artist Recognition Grant Program, funded by the Jerome Foundation. The program’s goals are: to recognize excellence in arts produced by persons with disabilities; to provide financial awards and tangible encouragement to artists with

Norman Munk of Minneapolis; Kari Myrold of Cologne; Beth Nelson of Eagan; Kim Opat of Robbinsdale; Rijuta Pathre of Maplewood; Eddie Jane Pelkey of Cedar; Peggy Mann Rinehart of Minneapolis; Trisha Stark of Minnetonka; and Julie YoungBurns of Minneapolis.

he Minnesota Governor’s Council on Developmental Disabilities is seeking applications from people with developmental disabilities and parents of children with developmental disabilities to serve on the 25-member Council. Meetings are held on the first Wednesday of even-numbered months at the Earle Brown Center on the University of Minnesota’s St. Paul Campus. The Council is a federally mandated and funded advisory group charged with providing information, education, and training that will enable people with significant disabilities to become independent, productive, and included in community life. Council members are appointed by the Governor. A developmental disability is defined as a severe, chronic disability that is attributable to a mental or physical impairment or a combination thereof; is manifested before

the individual attains age 22; and is likely to continue indefinitely. If applied to infants and young children, this term describes individuals from birth to age nine, inclusive, who have substantial developmental delay or specific congenital or acquired conditions with a high probability of resulting in developmental disabilities if services are not provided. Developmental disabilities result in substantial functional limitations in three or more of the following major life activity areas: self care, receptive and expressive language, learning, mobility, self-direction, capacity for independent living, and economic selfsufficiency. Developmentally disabled individuals need a combination and sequence of special, interdisciplinary, or generic services, supports, or other assistance that are of lifelong or extended duration and are individually planned and coordinated.

Applications are due before December 1, 2001. A onepage application form is used for all appointments by the Governor. The form is available by writing to the Secretary of State, Open Appointments, 180 State Office Building, 100 Constitution Ave., St. Paul, 55155-1299 or by calling the Secretary of State’s Office at 651/297-5845. Applicants may also complete or submit an application online at www.sos.state.mn.us (Go to “Open Appointments” and then “Forms.”) For additional information about the Governor’s Council on Developmental Disabilities, contact Colleen Wieck, Executive Director, at 651/ 296-9964; 877/348-0505 tollfree; 651/296-9962 TDD. You may also e-mail her at colleen.wieck@state.mn.us or visit the Council’s website at www.mnddc.org or www. mncdd.org Q

Diamond Hill Townhomes We are currently accepting applications for our waiting list at Diamond Hill Townhomes, a great property located near the Mpls. International Airport. We have two and three bedroom townhomes that are HUD subsidized and rent is 30% of the total household's adjusted gross income. We have a large number of mobility impaired accessible units and we are scheduling appointments for persons in need of a mobility impaired accessible unit immediately. To schedule an appointment please call (612) 726-9341

October 10, 2001

HOLOCAUST- Cont. from p. 1 institution for 20 years in barbed wire fence three layers Norway. As we stood there in deep. This area still houses From the dissection room we the gas chamber, he solemnly those labeled “criminally moved to the crematorium. bowed his head and said, “I insane.” We questioned why We began to walk down a sort of hallway where we passed under about four arches. I th th thought it was odd when, at the end of the hall, it looked like an altar. When I got A photographic exhibit of Hadamar Germany, the site where closer, I saw it was a picture of 15,000 people with disabilities were killed between 1941 From the gas chamber we the ovens. The ovens had and 1945 as part of Hitler’s euthanasia program, will be on th th were led into the dissection been removed, but we stood display from November 7 through November 11 in the room. It reminded me of a around the small area where Christensen Center commuter lounge at Augsburg College. basement laundry room: ce- bodies were burned. 10,000 ment, stark, cold. There in people were gassed and cre- An opening reception, with comments about the exhibit, will front of us was a large, thick, mated between January and be held on Wednesday, November 7, at 7:00 p.m. in the gray, cement table fastened to August 1941 in this small Hoversten Chapel in the Foss Center at Augsburg College, 2211 Riverside Avenue in Minneapolis. the ground. It lay tilted basement. ground upon our arrival the previous night. But the reality of standing in the space where it occurred, and hearing again the HOW of it all, was overwhelming. I listened, but I couldn’t take it all in. I heard the words, but I had to shut down at times to try to process the enormity of it.

slightly, with a drain at the bottom. Bodies were sometimes brought here, and body parts, especially brains, were removed. They would then be sent to one of three universities in Germany, where they were used for teaching purposes. Not until students found out about this in the 1990s, and demanded that they be buried, was the practice discontinued. Uta told us “there are still probably body parts being used in some Universities.” For some reason, on that day this room overwhelmed me. I realized that at certain times I sort of went numb and then once I could muster up the courage to let the feelings in

again I would break down.

HADAMAR PHOTO EXHIBIT NOVEMBER 7 –11

Later in the day, we had a small ceremony here where we placed some flowers, and a few people in the group made some comments. Around the corner were pictures of some of the people who died, hanging there as though keeping a watchful eye, or making us look into theirs and remember. The place was so still, so cold, yet so filled with lessons that reach to the very core of one’s soul.

The event is sponsored by the Diversity Committee at Augsburg College, the Minnesota Association for Higher Education and Disabilities (MNAHead), Access Press, Advocating Change Together (ACT), and the Augsburg Disability Association (ADA) You are invited to come and witness an important part of history. To learn more, call the college at 612-330-1494.

can only imagine myself being in here, seeing people I know. One falls, and then another, and then you say ‘When will it be me?’ Or, worse yet, ‘Will I be the Because we stayed right in the last?’” building, on the second floor, we were able to come back The next day we visited the alone, or with one or two cemetery. As we climbed the people, and process it a little stairs up a beautifully landmore. I went back with Per, a scaped hill we could not help man who had lived in an but notice on our left the

this was still in use but no answer was given. Those who died by overmedication and starvation were buried, 10 deep, here in the cemetery. No names, only numbers. Decades later the cemetery was converted into a simple grassy area with stone images from each religion. They said the families like that they can see the symbols if they visit. It seemed ironic to me that this place could be given the appearance of serenity, where nothing hap-

pened. It seemed as though it was covered up and somehow the images of a cross, a Star of David, and the Islamic crescent moon (though not accurately portrayed) made it all OK.

overwhelms me, or teaches me, or even makes me smile. Maybe the sense of closure is in the action that we take after being there. What we do toward others as professionals, friends, family, and more importantly as humans I— The most striking image for guess—are the true test of the me was the stone wall around impact. That, too, is a daily the small graveyard. In one struggle. small section there was an iron gate. When I walked Before traveling to Germany, over and looked out through I met a woman psychiatrist the iron bars, I saw a beautiful from Norway who was instrugreen field. It was large and mental in bringing the exhibit expansive, and the sky met it, to her country. She was in her and it looked as though it 70s when she heard about this could take you anywhere. and began questioning how There was something about her peers could commit such the field that drew you to it. acts. What she was left with That image, seen through the after her pursuit was the wrought-iron gate that held us connections that exist today, in, provided a powerful end- those things that have become ing to our stay. part of the norms of many societies, including the United Many questions stayed with States. I did not come away me upon my return from with that “distancing” feeling Hadamar. I ask myself, of “How could THEY do “Would I have spoken up in this?” Rather, I must ask 1941... especially for people myself if I see the same with disabilities? Do we do it attitudes and beliefs that led today?” That last question to Hadamar being perpetuhaunts me even more now as I ated in our own time, in our think of my/our work in the own country. And I ask field. I feel, even more myself if my behavior constrongly, that there are some tributes or complicates things things I don’t want to be part in any way? I’m fearful the of, and I feel very clear about answer is yes. Q that. Augsburg College will be I don’t know how one puts sponsoring a photo exhibit in closure on such an experi- November based on the ence. I don’t think one can, Hadamar camp; for details nor should. Each time I re-tell see the notice on this page. the story something new

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October 10, 2001

Legislative Review 2001, Part 3: A Variety Of Changes by Anne L. Henry Editor’s Note: This is the final part of a three-part series explaining the ins and outs of the various laws and policies affecting people with disabilities put in place by the legislature in 2001. Part 1 of this three part series had to do with the income, asset, and eligibility standards for programs serving people with disabilities. Part 2 focused on laws having to do with community supports to allow people to get out and stay out of institutions and live independently in the community. This month’s Part 3 includes one final provision having to do with community supports, and then summarizes all of the various “uncategorizable” provisions passed into law this past session. Reorganization of Disability Waivers The 2001 legislature approved a proposal by the Department of Human Services (DHS) to reorganize three separate disability waivers into one waiver. The purpose of the new “disability waiver” is to provide community care to persons under 65 years of age who need the level of care provided in a nursing home or a hospital. The new disability waiver requires that individuals are offered an informed choice between institutional care and community-based care, and that persons receive case management including assessment, development of an individual service plan, assistance with obtaining service providers and access to service plus coordination, evaluation, annual reviews and information on an individual’s right to services including time lines and appeals. The legislation requires a statewide average payment amount shall be implemented January 1, 2002 with an aggregate, needsbased method for allocating funds. This new aggregate method of funding should better serve persons with higher needs than the current individual cap based on an average nursing home or hospital payment. Consumer-directed community supports are required to be offered as an option to all eligible persons

by January 1, 2002. By January 1, 2003, the Commissioner is required to simplify and improve access to services through the establishment of a common service menu for all persons using the disability waiver. Until the new payment system is in place January 1, 2002, the Commissioner can approve higher waiver funding based upon the extraordinary needs of the individual beginning July 1, 2001. The higher amount must be necessary to prevent institutionalization or to get the person out of a facility. Child Maltreatment Review Panel Funding was approved for A Child Maltreatment Review Panel allowing persons to request a review of decisions by DHS or the Department of Children, Families, and Learning (DCFL) on child maltreatment reports. The Child Maltreatment Review Panel is patterned after the Vulnerable Adult Review Panel established in 1999. Autism Therapies A new service entitled “Intensive Early Intervention Behavior Therapy Services for Children With Autism Spectrum Disorders” has been added to the list of services covered by Medical Assistance as of January 1, 2003. The provision has detailed eligibility requirements, including IQ and age criteria, along with continuation criteria after six months of treatment. In his message on the signing of the Health and Human Services Omnibus

NEW PROGRAM - Cont. from p. 1 Receiving these funds would advance Minnesota’s vanguard work in moving people from institutions to the community and in expanding life choices for them and their families. We need to develop consumer-directed, personcentered service systems so individuals with disabilities are engaged in the systems design process before services are developed, rather than asking people to fit into service models after the fact.

bill, Governor Ventura expressed fiscal and policy concerns with this section. He stated that he expects the Legislature to work with DHS “to make improvements” next session to address the narrow focus in both diagnosis and treatment strategies. The grant funds also would enhance our efforts to bring Medical Assistance many consumers to the table. Managed Care Will We will know by October 1, Remain Voluntary for Persons with Disabilities The commissioner of human Under 65 Years of Age services is required to request Language which eliminated a day services home and the requirement that managed community waiver to allow care remain a voluntary op- Medicaid reimbursement for tion for persons with disabili- supported employment and ties under 65 was changed by community inclusion day the Legislature. The volun- training and habilitation (DT tary status of managed care & H) services. The provision for persons under 65 eligible will require counties to pay for Medical Assistance now the non-federal share to match has no expiration date so that federal Medicaid funds. Curany managed care will have to rently, counties pay the full cost for about 1 in 4 adults remain voluntary. with developmental disabiliNew Requirements When ties who participate in DT & H services. The section is Same Agency Provides Both Day and Residential effective either July 1, 2003 or two years after federal Services approval of the waiver, whichNew language requires that an ever is later. individual needing both day Public Guardianship and residential services should Changes have two different agencies provide these services. However, the same agency may Several significant changes provide both day and residen- were made to the Public tial services if the person and Guardianship Statute, includtheir legal representative are ing a new requirement that a offered a choice of providers guardianship service provider and agree in writing to both meet the ethical and best day and residential services practice standards of the from the same provider. The National Guardianship Assoperson’s Individual Service ciation. Although counties Plan must describe how the are not considered guardianperson will be protected and ship service providers, this in contact with individuals not new definition should be helpful in trying to employed by the agency. get counties to conMedicaid Funding for Day tract with qualified private entities to Programs Leg. - cont. on p. 14

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2001, if we are awarded the grants. [Editor’s note: Just as we were going to print, Access Press received word that United States Department of Health and Human Services Secretary Tommy G. Thompson announced that the Minnesota DHS has been awarded two grants: $900,000 for the Consumer Directed PCA initiative, and $2.3 million for the Real Choice Systems Change initiative.] With or without the federal funds, however, consumers will be involved in this system. We are especially concerned about engaging people with whom we traditionally haven’t connected well: people with severe disabilities, people who are homeless, people who are immigrants and may not speak English, people with very low incomes, tribes, and communities of color. Staff will be doing outreach in these communities. Our goal in forming this division was to assemble a team of people with diverse disability backgrounds and experiences. Most of our staff members have personal experiences as consumers and/or as parents, siblings, or adult children of people with disabilities. Their backgrounds include personal and professional experience in the areas of developmental disabilities, traumatic brain injuries, mental health, HIV/AIDS, physical disabilities, and chemical health. Professional experience also includes work in direct services delivery, surrogate decision making, continuing care policy, program evaluation, quality assurance and improvement, research and data collection and management, the Americans with Disabilities Act, disability and diversity training, and outreach to tribes and com-

munities of color. The team will focus its efforts in three primary areas: citizen engagement in the design and monitoring of quality assurance and improvement systems, performance measurement and evaluation, and policy development and implementation. Team members include: Katherine Finlayson, planning director; Jean Martin, data systems lead; Karen Pedersen, outcomes evaluation and performance measurements; Linda Wolford, lead policy specialist; Sandy Foy, liaison to counties; JoAnn Cardenas Enos, assistive technology expert and consumer outreach to tribes and communities of color; Joyce Jorgenson, consumer outreach lead; Kelly Moch, special projects consultant; and Marsha Nadeau, administrative support. People will be informed in a number of ways – primarily through community and consumer organizations representing them or local social service agencies – about opportunities to participate in developing a quality assurance system. Meanwhile, anyone interested in more information about our division’s activities is encouraged to contact the Community Quality Initiatives Division to request a copy of the one-page abstracts describing the grants and/or to have their names added to a mailing list for future contact. Call 651634-5099, voice; 651-5821808, fax; 1-800-627-3529, TTY; or 1-877-627-3848, speech-to-speech through the Minnesota Relay Service. Q Deb Holtz is director of the Community Quality Initiatives Division within the Minnesota Department of Human Services.

October 10, 2001

LEGISLATIVE REVIEW - Cont. from p. 13 perform guardianship duties. Language clarifying that a county guardian does not have to be found inadequate or unfit to be removed in favor of a family member was adopted. Family members must still be found to be able to act in the person’s best interest. Funding of $250,000 per year for two years was provided to assist counties to transfer persons from public to private guardianship. Patient Protection Act A number of patient protection provisions were adopted after changes were made to meet Governor Ventura’s objections to the inclusion of state employee health plans in the access to specialty care provision. The Act provides for 1) recommendation to the Legislature on health coverage during participation in a clinical trial, due January 15, 2002; 2) continuity of care improvements for some medical conditions; and 3) access to specialty care, including requiring a process for obtaining a “standing referral,” conditions for a mandatory standing referral, and coordination of services by a specialist.

Minnesota Family Investment Plan (MFIP) Extensions for Parents Caring for Children or Adults with Disabilities Participants eligible for extension of the 60-month cash assistance limit include those who are ill or incapacitated, those whose presence in the home is required to care for a family member whose illness is expected to last more than 30 days, or will qualify for MFIP benefits beyond 60 months, and who are caregivers for a child or adult who qualifies for home care or as a person with severe emotional disturbance or serious and persistent mental illness. In addition, parents who were granted extensions can qualify for employment and training services for the number of months spent in exempt status. DHS Licensing Staff Increases A DHS budget proposal to increase licensors to improve service was funded for over $2 million for 14 new staff. The appropriation requires DHS to meet the promised outcomes of: reduced average length of investigation of licensing complaints to 75 days; completion of all licensing reviews with one or two years as required in statute;

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and completion of negative $8 up to 20 words, 35¢/word thereafter. Must be prepaid. Mail with check to: licensing action decisions ACCESS PRESS, 1821 University Ave W, #104S, St. Paul, MN 55104 within 45 days of county (651) 644-2133 recommendations. State Waiver of Immunity for Violations of Federal Rights Statutes

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1991 Ford E150 Handicapped Van. 51,000 miles. The Legislature decided to Crow River lift.. Very good allow current, former, and condition and clean. 763prospective state employees 449-0365 to sue the state for violations of the Americans with Dis- 1992 Ford Econoline conabilities Act, the Age Dis- version van. Handicap accescrimination in Employment sible-driveable. Crow River Act, the Fair Labor Standards lift. Excellent condition. No Act, and the Family Medical rust, a must see. Call Judy or Leave Act. The United States leave message, 651-464-1768. Supreme Court in the Garret case has recently held that Quickie P110 wheelchair under the Eleventh Amend- with battery charger. Good ment, a state is immune from condition. Best offer. (651) damage actions in federal 227-6349. court unless it waives its immunity. This Act clears the Support bar for bathtub. way for such lawsuits. $20 or best offer. Please call (651) 227-6349. Other Changes 1993 “Vibo” Pontoon Boat A criminal background check 24FT w/2/3 Canopy Wheelevery three years will be chair Widened Doors-Small required for non-family pri- fold down ramp on front vate guardians for two or entrance. Less than 130 hours more persons use on 40 Horse Force Motor. Elec. Start, Power Tiller, Fish The Council on Disability depth finder, Live-well. Askwhich was to sunset as an ing $450000. Previous owners agency this July, is extended wheelchair users. Contact: to July 1, 2003. Q J.Schatzlein 952-881-2129 or 651-215-2216. Anne Henry is an attorney with the Disability Law Center in Minneapolis.

FOR RENT Stonehouse Square Apartments, 215 NE BROADWAY ST., MPLS., 1 BDRM Section 8 Rental Apartments. 4 units designed for physically handicapped persons. Occupants pay 30% of their income as rent. Now accepting applications for the waiting list. CALL 612-3783945 Mon-Thurs, 2 pm - 6 pm Friday 9 am - 1 pm

Holmes-Greenway Housing One and two bedroom apartments designed for physically handicapped persons. Convenient SE Minneapolis location. Call (612) 378-0331 for availability information. Equal Opportunity Housing. MISCELLANEOUS Charlie Smith’s cats are in desperate need of a home. Jasmine and Lizzy are two female cats, very friendly and in good health. Would like to keep them together but will split them up if necessary. For info call 612-970-4048

Lewis Park Apartments: Barrier free housing with wheelchair user in mind. Section 8 subsidized. Oneand two bedroom units. For more information on availability call (651) 488-9923. St. Paul, MN Equal Opportu- “Words of Love” is a CD by nity Housing. Snoopi Botten, a musician with cerebral palsy who Seward Square Apartments: writes and performs inspiraWe are currently accepting tional songs using a synthetic applications for our waiting speech system. To order, call list at Seward Square Apart- (612) 872-7233 or visit ments in Minneapolis. Seward Snoopi’s website at http:// Square is barrier-free housing hometown.aol.com/dectalk/ and is federally subsidized. myhomepage/index.html. For an application, please call (612) 338-2680. Equal Opportunity Housing.

Professional Directory M.A.T. METROPOLITAN AREA TRANSIT, INC. SPECIAL TRANSPORTATION PROVIDER Mn D.O.T. Certified Transportation Specialist 612-379-4107 MA, U-CARE Minnesota, Private Insurance - Pay

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www.independencecrossroads.org 8932 Old Cedar Ave. So., Bloomington, MN 55425 Office (952) 854-8004 Fax (952) 854-7842

October 10, 2001 ADMINISTRATIVE ASSISTANT Centex Multi-Family Communities, L.P.

Access To Employment Employment ads are $14 per col. inch; Oct 31 is the deadline for the Nov. 10 issue. Mail to: ACCESS PRESS • 1821 University Ave. • #104S St. Paul, MN 55104• FAX 651-644-2136 • E-mail: access@mninter.net

Centex Multi-family Communities, L.P., is the multifamily development arm of Centex Development Company, L.P., an affiliate of Centex Corporation. Established in 1950 in Dallas, Texas, Centex Corporation is a Fortune 500 Company and the nation’s premier company in construction-related business. Centex Multi-Family Communities, L.P., has an immediate opening for an Administrative Assistant in the Twin Cities Area. The ideal candidate will have outstanding interpersonal skills and an excellent telephone manner, computer experience, strong clerical and organizational skills, the ability to type a minimum of 60 wpm and be able to work with minimal supervision. Salary commensurate with experience. Please submit resume to: Centex Multi-Family Communities, L.P., c/o Kelly & Fawcett, P.A., 2350 U.S. Bancorp Piper Jaffrey Plaza, 444 Cedar Street, St. Paul, MN 55101, or fax to (651) 223-8019. Applications must be submitted to the above address by Friday, October 19, 2001 at 5:00 p.m.

COMPUTER PROGRAMMER VB/ASP/SQL

Large, technically progressive law firm seeks programmer/analyst to join our Advanced Applications Department for projects in Visual Basic, Active Server Pages, IES+, XML, MS SQL Server, Exchange, Access, and Office/VBA, all under Windows 2000/XP. We prefer strong writing skills and experience with any of the following: document management systems and other legal applications; current Word, Excel, and Outlook object models; CDO; ADO; DHTML; Active Directory; Web Services; SharePoint; BizTalk; COM+; Microsoft .NET Framework. Bachelor’s degree required; Computer Science major preferred, or equivalent experience. We offer a professional work environment, competitive wages and an excellent benefits package, including a discounted bus program Metropass. For additional information about Faegre & Benson, visit our website at www.faegre.com. Please send resume and salary history to Centex Multi-Family Com- Human Resources: munities, L.P., is an Equal Opportunity/Affirmative Ac- FAEGRE & BENSON LLP 2200 Wells Fargo Center tion Employer. 90 South Seventh Street Minneapolis, MN 55402 Fax: 612-766-1763 E-Mail: HR@Faegre.com Equal Opportunity Employer

Gray Plant Mooty, a 130+ attorney downtown Minneapolis law firm, has the following open position: COLLECTIONS/ CREDIT MANAGER Experienced person to manage/administer credit and collections for our law firm, and provide supervision for a part-time collections clerk. A minimum of 3 years of related experience and/or training required. Collection experience in a professional service environment a plus. We offer a professional work environment, educational opportunities, a culture emphasizing work/life balance, competitive salaries & benefits (including medical, dental, profit sharing and 401k). Send resume with cover letter to HR, Gray Plant Mooty, 3400 City Ctr; 33 S. 6th St., Mpls, MN 55402; fax to 612333-0066; or e-mail to Anne.Weinauer@gpmlaw.com. Equal Opportunity and Affirmative Action Employer

ADMINISTRATIVE ASSISTANT Great Opportunity below! Faegre & Benson LLP, Minnesota’s second largest law firm, has an exciting, new opening for an Administrative Assistant. This position will provide administrative support to our rapidly growing Litigation Technology Services department. You will prepare general correspondence and documents; provide telephone support; reconcile invoices for payment; provide initial orientation to temporary staff; maintain lists of client & matter names; schedule conference rooms; create & run various reports; maintain departmental calendars; track and review billable hours for staff; along with a variety of other duties and projects.

Accounting CLIENTS & MATTERS ASSISTANT Faegre & Benson LLP, Minnesota’s second largest law firm, is seeking applicants for a Clients & Matters Assistant. This person reports to our Credit and Collections Manager and performs various client and matter maintenance functions including: opening, closing, and updating client and matter information on our Elite Accounting System; generating conflicts of interest reports for new matters; generating and distributing various reports related to the clients/matters database; researching client payment applications; posting cash receipts; and other cash accounting functions. Candidates should have a 2 yr. accounting or business degree; 2+ years accounting and/or database experience in a corporate or service industry environment; excellent communication and analytical skills; and a team-oriented work style. We offer a competitive salary, outstanding benefits package, and exceptional opportunity for professional growth. For additional information about our law firm, visit our website at www.faegre.com. Please send your resume and salary history to Human Resources:

Ramsey County

· · · ·

IMMIGRATION PARALEGAL Attention Liberal Arts Majors: Have you considered a career in law? If you have excellent writing and research skills and are looking for an exciting career opportunity in International and Immigration Law, we may have just the job you’ve been looking for. Faegre & Benson, Minnesota’s 2nd largest law firm, is seeking applicants for a Paralegal position in our Immigration Law Group. You would work with attorneys and have extensive interaction with multinational corporate clients; research and draft petitions and prepare government filings on behalf of leading international scientists, business executives and highly skilled technical workers. We are seeking candidates with a BA or MA in Liberal Arts with a strong academic record and strong computer software skills. Interest and experience in International Affairs and foreign languages a plus. Must have demonstrated abilities in writing and research. For additional information about Faegre & Benson, visit our website at www.faegre.com Send resume and writing samples to Human Resources:

Our ideal candidate will have around three years of administrative experience with excellent organizational, computer & communication skills. In addition, our candidate will be people, service & actionoriented and have a proactive flexible work style. Faegre & Benson LLP offers competitive wages and an excellent benefits package, including a discounted bus programFAEGRE & BENSON LLP Metropass. For additional 2200 Wells Fargo Center information about Faegre & 90 South Seventh Street Benson, visit our website at Minneapolis, MN 55402 www.faegre.com. Please send Fax: 612-336-3846 resume and salary history to FAEGRE & BENSON LLP E-Mail: HR@Faegre.com Human Resources: 2200 Wells Fargo Center Website: www.faegre.com 90 South Seventh Street FAEGRE & BENSON LLP Minneapolis, MN 55402 Equal Opportunity Employer 2200 Wells Fargo Center Fax: 612-766-1763 90 South Seventh Street E-Mail: HR@Faegre.com Minneapolis, MN 55402 Fax: 612-766-1763 Equal Opportunity Employer E-Mail: HR@Faegre.com

OUTREACH WORKER Legal Aid (MMLA) seeks FT or PT translator/outreach worker. Fluency in Hmong lang & familiarity with culture req. Sal: FT-$21,670 +, DOE (pro-rate for PT); fully Equal Opportunity Employer pd fam hlth & excel vac bens. Resumes to: Susan Carroll, 1206 42nd Ave N, MpIs, MN 55412. EOE/AA. Open ‘til filled. EXPLORE NEW EMPLOYMENT OPPORTUNITIES As a leading rehab & resource center for people with disabilities we offer a variety of openings in the following areas: Clerical Seasonal Card Sales Therapists & Aides Nursing/CNAs Please call our job hotline at 763-520-0518 or visit our website at www.Courage.org for details on current positions available. Courage Center, 3915 Golden Valley Road, Golden Valley, MN 55422. Fax 763-520-0866. EOE. We seek diversity.

Legal

Ramsey County invites you to join us in building a better community through public service in the following fields: • • • • • • • •

Administrative, Management and Technical Services Building and Facility Services Clerical and Secretarial Services Community and Social Services Court, Legal and Law Enforcement Services Property Records/Revenue Services Public Works and Transportation Services Parks and Recreation Services Contact our Job Hotline for a recorded list of current job openings at:

(651) 266-2666 Ramsey County Human Resource Dept. 430 RCGC West 50 West Kellogg Boulevard Saint Paul, Minnesota 55102 (651) 266-2700 or (651) 266-2728 (TDD) You may also view a list of current job openings and other useful Information, or download application materials, on internet at: www.co.ramsey.mn.us

Legal PROBATE AND TRUST SPECIALIST Faegre & Benson LLP, one of Minnesota’s leading law firms, is seeking applicants for a new position in our Trusts and Estates practice group. You will be working with lawyers and paralegals with a variety of matters, and will be responsible for maintaining probate estates on a daily basis; collecting and transferring estate and trust assets; preparing accountings of estate and trust administrations; and preparing federal and state estate tax, fiduciary income tax, and gift tax returns. We prefer a 4-year degree and/or a paralegal certificate and 2 or more years of relevant experience. We will also consider recent graduates with an interest in probate; who possess mathematical aptitude, a strong accounting background and experience with computer spreadsheet applications. Our ideal candidate will be detail-oriented, possess excellent communication & analytical skills, be able to work independently & exercise good judgment. Faegre & Benson LLP offers competitive wages and an excellent benefits package, including a discounted bus programMetropass. For additional information about Faegre & Benson, visit our website at www.faegre.com. Please send resume, salary history, writing sample and transcripts to Human Resources: FAEGRE & BENSON LLP 2200 Wells Fargo Center 90 South Seventh Street Minneapolis, MN 55402 Fax: 612-766-1763 E-Mail: HR@Faegre.com Equal Opportunity Employer

IN BRIEF - Cont. from p. 10 Chronic Fatigue Conference On Sunday, October 28th, the Chronic Fatique Syndrome (CFS) Association of Minnesota and the American Association for CFS will sponsor a conference entitled “The WellInformed CFS Patient: Opening doors to Better Care.” The conference will bring patients and providers together in a number of presentations, covering such issues as medical research, clinical practices, psychological support,

alternative therapies, legal strategies, and advocacy. The conference will be held at the Holiday Inn Select in Bloomington, MN, from 9 a.m. to 6 p.m. For more info, contact Val Baertlein, Executive Director, Chronic Fatigue Syndrome Association of Minnesota, 651-644-4975 or 866644-4975 toll-free. Or, on the web, visit http://www.immune support.com:443/track/ events/aacfs.cfm

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SPONSORS OF ACCESS PRESS: Thanks to the following sponsors for supporting ACCESS PRESS this year. ------------------------------------- BASIC SPONSOR ------------------------------------Margaret Beier John Hartson Beth Jensen Debra Johnson Rosanne Kramnicz Steven McKeever Kathleen M. Miller Cindy Moore Jane & Albert Olson Carla Reichenberg Paul W. Taylor Kelli N-E Wysocki ------------------------------------- FRIEND SPONSOR ------------------------------------Lynda Adams Mary Andresen Steven Anderson Marisa Bennett Patrick Bilbrey Mike & Karen Bjorgan Susan Blaylock Maynard Bostrom Bob Brick Wendy Brower Carlyn Bryngelson Susan Bulger Deah Cain Carol Jo Cochran Lynne Corneli Marty Cushing Justin & Yoshiko Dart Jolene Davis LeRoy deBoom Barbara Droher Neil Doughty Craig Dunn Mel & Georgia Duncan Peg & Joe Figliuzzi Mary Frank-Wawokiyawin Candace & David Gislason Tom Gode Rep. Kevin Goodno Nadine & Andy Groven Patricia Guerrero John Hoffman Bradley J. Holmes Judy Hunt Cindy & Gregory Johnson Deb Johnson Ericka Johnson Linnea Johnson Hoff Barb Kane Mary Kay Kennedy Diah Kinion Beth Knutson-Kolodzne Eugene Kook Sherry Lampman Sue Lasoff Bruce Larson David Larson Linda Larson John Marty Dorothy McCoy Kelly Matter Desiree Menuey Kathy Moran Paul Mueller Jim & Cindy Musselman Bill & Joan Overby Mary & Henry Pattridge Richard Peterson Margery Pilhofer Robert J. Geldert & Roberta Pinkosh Dwight & Chris Porter Barbara Proehl Virginia Puzak Julee Quarve-Peterson Kelly Rathcke Kim Rezek Brian Rogers Patricia L. Rogers Stuart Rosen James Ross Scott Rostron Ginger Rudberg Patricia Rydeen Arthur Sauter Elizabeth Smith Adele Spavin Diane Sprague Gerry & Barb Tollakson Caryl Wattman Teri Welcher Curt Wiehle David Wood Accommodating Care, Inc. Accord Health Care Services All Temporaries, Inc Alliance for the Mentally Ill of MN Arc of Anoka/Ramsey Cty Arc Suburban Arc Minnesota Assistive Speech Technology Research Labs Axis Healthcare Best Care Blue Sky Designs, Inc. Brain Injury Assn. of MN Consumer Council of The Alliance for the Mentally Ill Disabled Dealer East Suburban Resources Franciscan Sisters of St. Paul Forensic Alliance of Mentally Ill Fraser Community Services Home Health Care JQ-P, Inc. Kaposia MBW Company Metro Mobility Service Center Staff MN Bio Brain Assoc. NAMI Northeast Contemporary Services Resource S.M.I.L.E.S.

------------------------------------- BRONZE SPONSOR ------------------------------------Sue Abderholden Steve Alarik Anonymous Susan Asplund David Baldwin Kathleen Ball Jeff Bangsberg Jill Bedow Janet Berndt Sandi Lane & Monte Blair Bill Blom Anita Boucher Tom Brick Deb Bryan Rick Cardenas Michael & Janice Chevrette Margot Imdieke Cross Stephanie Cunningham Robert Gregory Diane Greig Luther Granquist Martha Hage Roger A. Hoffman Ellen & Skip Houghton Dianna Krogstad Linda Lattin LoRene Leikind Lolly Lijewski Joel McGuiggan Christopher Meyer Cliff Miller Jim Morse Bill Niederloh William O’Dowd Manley Olson Louise Pattridge Catherine Reid & Liddy Rich Ann Roscoe Rick & Debbie Ryan Patricia Siebert Barb Smith John Smith Peter & Pamela Stanfiel Mary Jane Steinhagen Erica Stern Eric & Caroline Stevens J. Quinn Tierney Helen Thompson Candace Warne Linda Wolford Jerrold Wood Joe & JoAnn Zwack Dept. of Occupat’l Therapy-U of M Div.MN Rehab. Assoc Job Placement & Dvlpmt Equity Services-St. Paul FastServ Minnesota Work Incentives Connection Merrick Companies New Dimensions Home Health Care Pat Siebert, MN Dis. Law Ctr. National Results Council New Ways United Cerebral Palsy of MN ------------------------------------- SILVER SPONSOR ------------------------------------Karen Adamson Jamie Becker Scott Beers Robert E. Buuck LeAnne & Larry Dahl Chris Duff Catherine Eilers M. Therese Gockenbach Paula Goldberg Doris & John Groven Lori Guzman Judy Haaversen David & Susan Houghton Ronna Linroth Lynn Noren Michael Otubushin RISE Inc. Dean Doering & Lisa Scribner Kevin Sullivan Kay Willshire Arc Hennepin County Help Yourself Job Placement & Development Division, MN Rehab Assn Mental Health Consumer/Survivor Network Mpls. Advisory Committee MN Developmental Achievement Ctr Assoc. (MnDACA) Pacer Center St. Paul Mayors Advisory Committee on People with Disabilities Twin City Transportation Vinland Center ------------------------------------- GOLD SPONSOR ------------------------------------Scott Beers Shirley Larson Margaret Perryman Bridget & Diane Smith In Home Personal Care, Inc. MILS ------------------------------------- DIAMOND SPONSOR ------------------------------------Case Management Systems, Inc. Rapit Print

------------------------------------- BENEFACTOR SPONSOR ------------------------------------------------------------------------- IN MEMORY------------------------------------Medtronic Foundation Troy Fahlenkamp & Valerie Birosh by David Dreier Mabel Heuer by Dawn Doering Miss Irene MacKaloney by Roger Hoffman Bill & Renee Smith by Becky J. Bugbee-Tong ------------------------------------- IN HONOR ------------------------------------Bill Smith by Joe & Peg Figliuzzi Uncle Bill & Aunt Renee Smith by Mary & Henry Pattridge Cecelia Bilbrey-Baer by Patrick J. Bilbrey Charlie Smith by Lee Ann Erickson Charlie Smith by Barbara Kane Anne Henry by Karen Adamson Charlie by Fern Rogstad Charlie Smith, by Tracy Kochendorfer Charlie Smith by Sister Kenny Institute Charlie Smith by Tom & Mimi Fogarty Kyle by Joe & JoAnn Zwack Ruth Riggs by Corbin Kidder Bill & Renee Smith by Helen Thompson Jaehn Clare by Candice Warne College of Saint Catherine’s Occupational Therapy Masters Program by Steven Anderson Bill, Renee, & Charlie Smith by Kathy & Paul West Linda Wolford in memory of Tony Lebahn U of M Occupational Therapy Education Program by Erica Stern