December 2006 Edition - Access Press by Access Press

December 10, 2006

Inside ■ Voting Heroes—p. 3 ■ Techno Toys—p. 4 ■ Jan Malcolm Interview—p. 5

Year-End Quiz!

“The grand essentials of happiness are:

something to do, something to love, and something to hope for.” – Allan K. Chalmers

Page 12 Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 18, Number 12

Minnesota’s Disability

Community Newspaper

December 10, 2006

Trickster Spirits Meet Dijereedoos Interact Theater and Kevin Kling Travel Down Under for Exciting Collaboration by Sandy Moore

Steve Goldsmith playing the dijereedoo on a Northern Minnesota lake last January, with filmmaker Dominique Schwartz. Goldsmith and his Tutti Ensemble of Australia are collaborating with Minneapolis-based Interact Center on a new theater work to premiere in February 2007.

ationally-acclaimed American actor/ playwright/storyteller Kevin Kling is traveling this February with artists from Interact Center to premier their latest work, “Northern Lights Southern Cross: Tales from the Other Side of the World.” The group, including Jeanne Calvit, Artistic Director of Interact Center, two of Interact’s performing artists and Al Baker, Native drummer and medicine man, will perform at the Bundaleer Festival in South Australia and at the Adelaide Fringe Festival. They will perform in collaboration with the Tutti Ensemble, a theater company focusing on original music theater that includes artists

with and without disabilities, led by composer/music director Pat Rix. The idea for the new work emerged when Rix was in Minnesota visiting Interact. She and Calvit took a day trip, and while gazing out at the St Croix River and the lush Minnesota landscape, they were struck by the stark differences in the environments of their two homes. And yet there were many similarities, such as the fact that both countries were founded by pioneers who dominated and nearly destroyed indigenous populations. When Calvit brought Kling into the mix, the inspiration to create this epic new work took root, and the cross-

cultural collaboration began. Northern Lights/Southern Cross sprang from their shared vision to create compelling theater that challenges society’s view of persons with disabilities. The result—a rich mix of original solo and choral music, storytelling, poetry, scripted work, shadow puppetry and projected imagery—reaches across cultures to explore the fear of “other,” as well as the shared experiences that shape the lives of artists with disabilities—especially those from minority cultures. Working with disabled artists from Native American, African American, European and Aboriginal Interact - cont. on p. 8

Roadblock Removed From Driver’s Ed Settlement Means St. Cloud’s High School Students Who Are Deaf Will Get Interpreters for Classroom and Behind-the-Wheel Training by the MN Disability Law Center Staff

eather Breitbach, Amelia Boos, Ashley Antonelli, Craig Roering and Charles Schumacher are all high school students in St. Cloud who are at the age when they want to start driving a car. They are also deaf. When they called private driver’s educa-

Rick Macpherson argued on behalf of the students. (photo by Rochelle Roehrich)

tion schools in the St. Cloud area to sign up for classroom instruction and behind-thewheel training, they asked the schools to provide a sign language interpreter so that they could fully participate in classes. All of the schools refused to do this. The students and their parents promptly contacted the Minnesota Disability Law Center (MDLC) for help, which turned out to be the best step they could have taken. Attorneys from MDLC told the students and parents that the schools were clearly violating the Minnesota Human Rights Act and the Americans with Disabilities Act by refusing to provide an interpreter for classes. Both laws require private businesses to provide interpreters when

necessary to make their programs fully available to deaf customers. MDLC filed a lawsuit against the schools on behalf of the students; the schools then agreed to settle the case and to provide interpreters for these particular students and for other deaf students who will take driver’s education in the future. The schools will not only provide qualified interpreters for classroom and behindthe-wheel training without charge to the students, but will also notify all customers in promotional brochures and notices posted in schools that interpreters are available. The Benefits These students will not only be able to get driver’s education and their licenses, but also take advantage of lower

insurance rates because they took driver’s ed. Driving makes it easier to be connected to friends and social events, and to have access to jobs. This settlement puts all Minnesota schools on notice that they must provide inter- Have licence will travel! Amelia Boos (left) and Heather Breitbach can preters for stu- now show off their wheels (and driving skills), thanks to the advocacy work of the Minnesota Disability Law Center. dents who are deaf. These St. Cloud students and their parPostscript from Boos Again, thanks with the ents can be proud that the “Good news—We passed! Driver’s Ed issue. You’ve results of the case they took been a great and a wonderful to MDLC will benefit thou- “I want you to know I took my help. Both of you.” —Amelia. sands of deaf children and Driver’s Test today and I ■ adults across the state. This passed. I was so shocked and is a victory for the whole surprised. I can finally be in- Reprinted with permission state. dependent like I want to be. from MDLC Advocate, 12/06.

December 10, 2006 ings and beginnings. Looking around the Minnesota disability community, there are some great things to recall about 2006, and many that hold promise for 2007.

Tim Benjamin, Editor

ith all the holiday festivities taking place and the new year right around the corner, it’s natural to think about end-

In last month’s issue, we featured many of the notable accomplishments in the community, celebrating along with the Minnesota State Council on Disability, the Metropolitan Center for Independent Living, and Access Press’s Charlie Smith award recipient, John Smith. They all contributed to making this community stronger in 2006. This month we feature Courage Center, and the fabulous job Jan Malcolm, Executive Director, has done since coming on board. With Ms. Malcolm’s experience in healthcare administration, she has picked up the Courage Center ball and run with it for a little over a year now, demonstrating leadership, confidence and true professional-

ism. She has been stabilizing and reinventing old programs. The pain clinic is a good example of one of the reinvented programs that Courage Center now offers. When Ms. Malcolm first took the job at Courage Center, I asked her if in one year I would be able to go through the facility and ask the staff if they had met her; she hesitated for a moment and said that she would “let the program directors and department directors handle the dayby-day contact with their staff,” but that she hoped she would have an opportunity to meet many of them. In the last three or four months, I have not run into an employee of Courage Center that hasn’t been introduced to her or at least been recognized with a nod, a smile and “you’re doing a good job” from her. Speaking for the paper, I can say that since our first meeting, Ms. Malcolm has always made herself available to Access Press and has been very gracious about offering help.

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Access Press Co-Founder/Publisher (1990-1996) .................................................. Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ....................... Charles F. Smith Board of Directors ....................................... JoAnn Cardenas Enos, Mike Chevrette, Kelly Matter, Tom Squire & Kay Willshire Editor ......................................................................................................... Tim Benjamin Assistant Editor .............................................................................................. Bret Hesla Cartoonist ..................................................................................................... Scott Adams Production ...................................................... Ellen Houghton at Presentation Images Sales/Marketing ...................................................................................... Lance Hegland Distribution ......................................................................................... S. C. Distribution Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 11,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $25/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. We reserve the right to edit all submissions. Editorial material does not necessarily reflect the view of the editor/publisher of Access Press. Paid advertising is available at rates ranging from $16 to $20.70/column inch, depending on size and frequency of run. Classified ads are $10, plus 45¢ per word over 12 words. Advertising and editorial deadlines are the last day of the month preceding publication, except for employment ads which are due by the 25th. Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S St. Paul, Minnesota 55104 • 651-644-2133 • Fax 651-644-2136 E-mail: access@accesspress.org • Web site: www.accesspress.org

The Interact Center for Visual and Performing Arts has also been doing a lot of reinventing recently, with a new version of the play, The Worldwide Church of the Handicapped. The production has turned out to be as wonderful—and as hard to get tickets for—as the first version. Beyond reinvention, in the last year, Interact has been in collaboration with the Australian theater company, Tutti Ensemble, which, like Interact, features original theater that involves artists with and without disabilities. The two groups are getting together in February to debut their newest work, Northern Lights, Southern Cross: Tales from the Other Side of the World. The new play takes a deep look at, and challenges society’s views about, people’s abilities and disabilities— through music, storytelling, puppetry and much more. I’m very excited about the debut of Northern Lights, Southern Cross here in Minnesota. The collaboration between the two

theater groups had the support of the U.S. National Endowment for the Arts and the Australia Council for the Arts. If you’re an Interact fan and have a few extra dollars to donate, it would be a wonderful thing to say that you, too, have been involved in supporting this creative endeavor across two hemispheres.

cated options for reaching their customers in print and online. I’m grateful to all of you who reach out to the disability community through Access Press, offering your products, services and information. Since the beginning, and throughout 2006, Access Press has also received the support of hundreds of volunteer writers and other contributors who make it a fine source of information and debate in our community. The paper receives the unwavering dedication of its board of directors. Many friends and individual financial donors and philanthropic partners provide not only financial support but show their trust in me to use their financial support in a responsible way. For that I thank you all.

Here at Access Press, we deeply appreciate everyone who has supported the paper this year. The monthly endeavor putting out a statewide newspaper has been an ongoing challenge since Charlie Smith first started out in 1990, and in recent years the challenges have become increasingly demanding. The paper began at a time before the Worldwide Web and global media conglomerations. Right now, newspapers all over the country—from the New York Times to community papers Have a great December! ■ like ours—are finding it hard to survive. Our advertisers have increasingly sophisti-

Letters To The Editor ... Lost Cemeteries Are Common Dear Editor: While it is always sad to hear of lost cemeteries, you are exaggerating when you view it as a slight to the disabled [“Coalition Seeks Lost Cemetery,” Access Press, 10 November 2006]. In addition to being a woman with disability, I am also an amateur genealogist, and I can tell you that there are lots and lots of lost cemeteries. It is easy to lose one when it does not contain your own family members; it is easy to lose one when “progress” demands a certain piece of property; it is easy to lose one when you think the dead—of any color or ability—do not deserve to “rest in peace.” Losing cemeteries has happened to black Americans in New York (to cite a recent case), to native peoples (too many cases to cite), and to white folks without a descendant to make sure cemetery upkeep continues. Thanks for your faithfulness in publishing the paper. Laura Hill Roseville, MN

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Anonymous grave markers in the St. Peter State Hospital Cemetery, before the cemetery restoration began.

December 10, 2006

Get-Out-The-Vote Drive Pays Off Merrick Brings New Voters into Political Process by Mai Thor

nyone who remains skeptical about the importance of voting has not met the participants (clients) of Merrick, Inc. These are people with disabilities who understand the importance of voting; indeed they made voter education and participation their top priority for the recent election. Located in Vadnais Heights, Merrick is a 501 (c)(3) nonprofit company that provides vocational and social opportunities for adults with developmental disabilities. However, Merrick is doing much more than just helping people find work. Merrick is dedicated to providing support for participants from a holistic approach based on person-centered planning. Along with the emphasis placed on building vocational skills, Merrick also promotes emotional growth through development of self-advocacy and leadership skills. Colleen Timbers, Merrick’s Program Director, explains that teaching people about voting rights is a great way to achieve these goals. She explains that, contrary to how people with developmental disabilities are often perceived, participants at Merrick know that they need to vote. “They are watching

the news. They know what’s going on. They know the candidates and issues and want to exercise their right to vote as a citizen,” Timbers stated. Voting is such an important right to the individuals at Merrick that they decided to do a get-out-the-vote drive this year. In advance, participants took part in get-out-the-vote training from the Minnesota Disability Law Center, where they received voter registration cards, learned the basics on who is eligible to vote, and made posters to encourage everyone to vote. Participants were especially excited to learn about the AutoMark voting machine, which the Office of the Secretary of State brought out to Merrick for several demonstrations before Election Day. This year, 206 clients of Merrick were surveyed and 63 of those voted on November 7th. Of these, 24 were new voters and 11 used the AutoMark. The Election Day experiences of three of these new voters reveal the range of possibilities. Loren and Tricia voted for the first time due to the information they received at the get-out-the-vote trainings. They both had positive experiences at the polling place,

where their caregivers provided them the support they needed. In Loren’s case, he had always been told he could not vote because he was under guardianship. However, with the recent changes in the Voter Rights Bill, Loren is now eligible to vote and he exercised that right.

people may know the importance of voting and want to exercise this right, they continue to need supports to actually vote. She stated that many of the people from Merrick who did not vote this year were erroneously told they couldn’t vote, either because they are not eligible, they couldn’t read the ballot, or because they did not have anyone to help them. Timbers stated that voter education is important and that Merrick will continue to work with groups such as Arc Greater Twin Cities, Minnesota Council of Nonprofits-Minnesota Participation Project, ACT, and the Minnesota Disability Law Center to inform others on the voting rights of people with disabilities.

Roberta and Elise both wanted to use the AutoMark when they voted. Roberta’s AutoMark experience went smoothly; she had a positive voting experience. However, when Elise arrived at her polling place, she was told that the AutoMark was not working due to a malfunction. Elise was not discouraged by this news. “I still wanted to vote,” she said, and received the necessary assistance to mark a paper ballot. Timbers said that despite being registered to vote, many Each of these voters demon- people with disabilities do not strated self-advocacy by exer- get the opportunity to actually cising their right to vote. All of cast a ballot due to a lack of them indicated that they would understanding by their encourage people with dis- caregivers. Some of these abilities to vote because it is caregivers do not understand their right. “They do have the their clients’ desire to exercise right to vote, especially if their civic responsibility to they’re under guardianship and vote. Timbers wants to target the court order has not revoked caregivers in preparing for the the right to vote,” stated 2008 elections. In addition, she Roberta. wants to continue providing voter education to the clients Voting will continue to be a at Merrick. Through trainings priority for Merrick. Timbers and conferences, all people can explained that even though learn how to express their wishes through voting and ultimately become more involved in the political process. “If you vote, you’re involved in choosing people that will make decisions for you that reflect what you care about,” stated Timbers.

Merrick clients Elise, Tim, Roberta, and Tricia, who all participated in the organization’s successful get-out-the-vote efforts last month. example of this value. Why does he think it’s important to vote? “For change. There was a shift in seats this election year. So, if you want changes and know that it’s important

to vote, then you should vote.” Congratulations to Merrick for the hard work and success of their 2006 get-out-the-vote drive! ■

Alert Regarding Ticket To Work Citizen Action Needed Now to Prevent Further Delays by Kathleen R. Hagen

ocial Security Administration (SSA) Deputy Commissioner Martin Gerry has recently announced yet another delay in the issuance of final Ticket to Work regulations. The first date was to be last spring. Then it was moved back to this fall. Now we are being told that they want to further tweak the details for final approval next Learning about voting rights spring. is not just about candidates and polling places. It is also The Ticket to Work Advisory about something that Merrick Panel responded that people deeply values—encouraging with disabilities had already people to think for them- waited too long, and requested selves and form opinions that the regulations to be isabout the world around them. sued, with the understanding Tim from Merrick is a great that certain provisions would

be re-drafted and amended later. If SSA does not act now, we can expect still longer delays. The current Social Security Commissioner, Joann Barnhart, is leaving in January. There will be a new acting commissioner until a new commissioner is appointed. If the new regulations are not implemented, existing problems with the program will persist. Currently, a provider of services, known as an employment network (EN), isn’t paid for providing help with placement and employment training until the person is actually placed and is working. Ticket - cont. on p. 15

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December 10, 2006

Disability Technology

Giving A Techno-Toy For The Holidays? Whether for Yourself or Someone Else, Make Sure the Gadget Is Accessible by Jeni Mundl

alk into Best Buy or CompUSA and you are immediately bombarded with the latest and greatest in technological products whether hardware or software. Cell phones, computers, personal digital assistants and digital cameras line every aisle, advertising extraordinary memory and features making the average customer glowing with anticipation of what benefits and fun the product will hold for them. Some are dreaming of becoming more organized while others are dreaming of playing the latest games. Whatever your goal... the salespersons are there to sell it to you whether you need it or not. It is easy to be swayed by a sweet-talking salesperson, so make sure you know what you’re looking for before you head to your local store or online Web site.

beneficial or problematic. For instance, a person with a cognitive disability needs a device to be simple to use. Multipurpose devices increase the difficulty to operate the device by adding multiple steps to access each feature and decreasing intuitive nature of the product. A person with a physical or visual disability, however, may benefit from having one device rather than many devices to operate, thus streamlining the process. A smart phone is an example of a multipurpose device; it works as a cell phone, organizer, PDA and MP3 player. Access versus Functionality Whatever device you choose, the first step in finding the best option is testing it out and talking to other users about their experiences. Nothing is more disappointing than to wait excitedly for a new “toy,” only to find that it is not accessible to use. For instance, many people have purchased the Razor cell phone on recommendations of friends, but have not been able to benefit from the technology because of the small size of buttons which must be pressed to place calls and access the features.

The first step in defining what you should buy is determining how you plan to use the device. Are you looking for a simple solution, the ability to add adaptations, or a multipurpose device? By answering these questions, you are on your way to making a knowledgeable decision rather than purchasing an item that may Cell phones not meet your needs. The everpresent cell phone is practically a necessity in Standalone versus today’s world; the ring of their Multipurpose music can be heard from the Over the past five years, the doctor’s office to the playtrend in technology has been ground. Yes, even elementary to provide more and more op- school children are commonly tions. For individuals with found with their ear snugly disabilities, this change can be pressed against the speaker on

a cell phone. The first concept to understand when purchasing a cell phone is that different cellular companies have different protocols of transmission. You must match the protocol to both the phone and your provider. The two types of protocols are GSA and CDMA. If you are planning on purchasing a certain model of cell phone, you must ensure it will work with your cell phone company. Adaptations available for cell phones are few. HearMore. com started selling a few products for amplification and hearing aid compatibility. Pressing buttons is another accessibility issue. ITalk and Vocalization by Broadband Communications provide the only truly hands-free system for people with physical disabilities. Firefly is a good solution for people with cognitive disabilities as it allows for only prepro-grammed numbers and has five large buttons to operate it. Several phones have come out with voice output to assist blind individuals in finding numbers when using a directory system. Another option is Talking Cell Phone Accessibility 2, which can be added on to most new-generation products. Personal Digital Assistants A Personal Digital Assistant (PDA) is an electronic organizer and scheduler. It is basically a small handheld computer on which many software programs such as Microsoft Out-

look and Pocket Word can be installed. Some PDA products are multipurpose, providing a camera, scheduler, cell phone, organizer, MP3 player and more into one single product.

vary — the biggest question is regarding the features you get for the $370 device. Rockbox is an open source replacement firmware for MP3 players. It runs on a number of different models and allows those MP3 The normal method of PDA players to have their own operation—using a small sty- screen reader. lus to press tiny keys on an onscreen keyboard—is probDigital Cameras lematic for many users with Say Cheese. The benefits of disabilities. Fortunately, more digital cameras over SLR film and more adaptations are be- models include instant viewcoming available on a monthly ing, no cost in developing the basis. PDASay is a voice- pictures onto the computer, activated applet providing sharing pictures with friends SOME functionality but is not through e-mail, high-resoluentirely hands-free. External tion at an affordable price, and and larger keyboards are one using software to fix up flaws option to overcome the prob- in pictures taken. lem with access. A thicker stylus can be purchased at There are a few adaptations on OfficeMax for individuals with the market today. For the indidexterity and grasp limitations. vidual with limited muscle Both Dolphin and Freedom control, a switch operated digiScientific manufacture voice tal camera is available from output personal digital assis- Orcca, along with various tants and organizers. mounting arms to attach a digital camera to a wheelchair. MP3 Players Similarly, the user with low Downloading music is all the vision may prefer using a 2.7 rage with teenagers. An MP3 inch LCD screen over the stanplayer, such as the IPod, pro- dard 2.0-2.5 inch display. vides a medium where music Some cameras come with the can be loaded onto a com- capability of creating a voice puter, organized, edited, and note to help the individual readded to a playlist of music member what the picture is or preferences. One such device where it was taken. may hold over 500 songs. The access problems arise from the Game Controllers small dial used to scroll Fun and games are crucial for through the playlist and the learning and developing, even tiny writing on the display. though we would sometimes like to negate this fact. (Yes, some One adaptation for the blind games are more appropriate than user is Milestone. However, others—but the fact still rethe reviews on this product mains.) Most kids are familiar

with the latest games for the PlayStation, Xbox, Game Boy, and Sega. Not surprisingly, children with disabilities want to play these games with their peers—and many need adaptations to do so. Enabling Devices and RJ Cooper sell several varieties of large-button and switch-operated game controllers. Additionally, there are game controllers that work with sipping and puffing on a straw to operate the entire game. Visual impairments can be accommodated by using larger monitors. Many games on the computer are purposely designed around specific learning needs. There are some good programs now available for people with cognitive and learning disabilities to work on coordination, attention, academics, and problem solving. We all have become accustomed to the latest and greatest advancements in technology. Although assistive technology still lags behind the initial release date of these new products, the good news is that there seems to be a trend to make the products more universally designed for all to use. In the meantime, when you purchase those techno-toys, you need to be considered the adaptations available— whether voice input, switch access, voice output or other. Jen Mundl is an assistive technology specialist at Courage Center.

Living Independently

Dressing Up For Winter Adaptive Clothing Can Make the Outdoors Fun by Lisa Schmidtke

here’s no excuse for being underdressed this winter—whatever your particular needs. That’s because of the wealth of innovative entrepreneurs out there. Take Dawn Wells, for example. Who would have known as we were watching Gilligan and his crazy band of castaways marooned on a deserted island that Mary Ann would turn out to be the true savior. But it’s true! Dawn Wells may have played a scantily clad, happy-go-lucky castaway but, since then, she’s been hard at work creating Wishing Wells Collections. Inspired by her aging grandmother, this adaptive clothing collection includes innovative alternatives to typical fasteners. Many of her pieces are reversible back-to-front, with Velcro clo-

sures that provide not only a tion with a professional, adapsecure fit, but ease of use if tive custom clothing company, dexterity is a problem. Specially For You. They’re experts in taking the most difAnd who would have known ficult clothing need and findthat my father’s solution to my ing creative, affordable solumother’s cold-but-curled tions for each individual. hands would inspire my latest venture. I’ve taken the camou- On a larger scale, Silvert’s is flage hand muff idea from my the “Easy Wear, Easy Care father (yes, he purchased it in Clothing Company.” Their the hunting department) and Web site is also “easy,” not am offering it in polar fleece in only categorizing their lines classic colors. And there’s by men’s and women’s clothmore. Instead of the shifting ing, but also by physical conblanket that many wheelchair ditions such as Alzheimer’s, users employ to keep warm, Arthritis and Scoliosis. For I’ve modified the U-shaped clothing that needs to stand up shower lap-robe by giving it a to the industrial washing maflannel lined belt (in the same chines at care facilities, Buck polar fleece) that snaps around & Buck offers quality clothing the users’ waist. A matching for home health care and nursponcho with extra long zipper ing home residents. completes the outfit. I’m proud to design this line in conjunc- As Breast Cancer Awareness

Resource Contact Information Bell Horn: Buck & Buck: Housecalls Network: Orthotics Geriatrics: Silvert’s: Specially For You: Underneath It All: Wishing Wells:

www.bell-horn.com www.buckandbuck.com www.housecalls-network.com 952-893-9238 www.silverts.com/index.cfm www.speciallyforyou.net www.underneathitall.com http://dawn-wells.com/Wishing_ Wells/wishing_wells.html Zappos.com: www.zappos.com

month wraps up, adaptive undergarments come to mind; I think of the many women struggling to maintain their dignity after surgery. Underneath It All, located in Eden Prairie, has created a line of breast forms, bras and swimsuits for will come to your home and mastectomy patients and oth- measure your feet for diabetic ers with hard-to-fit body types. shoes and inserts covered by Medicare. Bell-Horn offers a It wasn’t long after I entered wide range of compression the assistive equipment busi- hose, socks and stockings. ness that I realized why my #1, Zappos may be the Web’s most fastest-selling product is a sock popular shoe store. Not only aid. My debilitating conditions do they offer free standard affect circulation, which is shipping on all orders, but they most noticed in the ankles and also have a great selection of feet. Socks and shoes can be wide-width shoes. difficult to put on, but are very important to protect delicate From head to toe, there’s no skin tissue that, as with diabet- excuse for being dressed inapics, cannot suffer scrapes and propriately no matter your situcuts. To ensure a proper fit, ation. Not with these compaRoger at Orthotics Geriatrics nies that offer a such a large

variety of price, style and customization. ■ Lisa Schmidtke is president and founder of Housecalls Network, a directory of resources to help seniors, people with disabilities and their caregivers live independently. Housecalls Network does not endorse any particular provider. They assume no responsibility for transactions between readers and listed organizations. FFI: lisa@house calls-network.com, 952-2210722, www.housecalls-net work.com.

December 10, 2006

Canâ&#x20AC;&#x2122;t Find My Way Home by Pete Feigal

n 1992, I was fighting a crippling depression that had lasted three years, and was in a day-treatment program at Abbott-Northwestern. I would spend weekdays there and then evenings and weekends at home. The despair I felt at that time was so total, so overwhelming, so agonizing, that my â&#x20AC;&#x153;pain meterâ&#x20AC;? was buried in the red, 24 hours a day. I hurt so bad that I couldnâ&#x20AC;&#x2122;t see color, I couldnâ&#x20AC;&#x2122;t hear music, couldnâ&#x20AC;&#x2122;t tell day from night. When people talked to me, it seemed as if their voices came

from miles away, like hearing people across the lake on a still summer night. I hurt so much for so long, that I couldnâ&#x20AC;&#x2122;t feel anything. And what was more terrible was that I had come to think that this was my normal state, where I was supposed to be. Like Jim Morrison and â&#x20AC;&#x2DC;The Doorsâ&#x20AC;&#x2122; sang: â&#x20AC;&#x153;Iâ&#x20AC;&#x2122;ve been down so long, it looks like up to me.â&#x20AC;? I remember that I was waiting in my car at the Burger King drive-thru, when a song came on the radio. It was an old

â&#x20AC;&#x2DC;Blind Faithâ&#x20AC;&#x2122; song of Steve Winwood and Eric Claptonâ&#x20AC;&#x2122;s called: â&#x20AC;&#x153;Canâ&#x20AC;&#x2122;t Find My Way Home.â&#x20AC;? Itâ&#x20AC;&#x2122;d been so long since

â&#x20AC;&#x153;And I sat and wept in my car.â&#x20AC;? I heard it, and such a favorite, years ago, that it somehow pierced this thick cloud of pain. And for just a brief moment, I became aware that the window was open, and it was snowing and my arm and the window controls were soaked by the melting flakes. I be-

came aware that it was a dark, wild December afternoon with the clouds rushing across the sky like a herd of gray buffalo. I could smell the food cooking in the Burger King, and see the traffic hurrying by, and hear Steve Winwoodâ&#x20AC;&#x2122;s sad, high voice singing: â&#x20AC;&#x153;...and Iâ&#x20AC;&#x2122;m near the end, and I just donâ&#x20AC;&#x2122;t have the time. And Iâ&#x20AC;&#x2122;m wasted and I canâ&#x20AC;&#x2122;t find my way home.â&#x20AC;? And I sat and wept in my car. In sadness that I, too, had been lost for so long, and I couldnâ&#x20AC;&#x2122;t find my way home. And in happiness that I could,

just for a second, hear the song, and smell the burgers, and see the clouds and feel the snow. Could sense my heart breaking, that I was still alive, not a dead person liked I believed I was so often.

And the next day in group therapy, when asked how I felt, I said that I hurt. Not why I hurt, just simply that I hurt. And I began to grieve, and let my heart continue to break open, and heal. And Iâ&#x20AC;&#x2122;m still healing, still going. â&#x2013;

Good Rehabilitation Not Enough Courage Center Models Holistic Rehabilitation by Clarence Schadegg In a recent interview with Access Press, Jan Malcolm reflects on her first year as Courage Centerâ&#x20AC;&#x2122;s Chief Executive Officer. How would you describe your first-year experience as the CEO of Courage Center?

of different stakeholders to help set an overall vision and direction for public health in the state; it was not to be an expert in every one of the many programs MDH runs. Similarly, my job at Courage is to provide leadership, and to help the organization play the strongest role it can in service to the disability community; it is not to do management at a detailed levelâ&#x20AC;&#x201D;especially since we have very talented managers and operational leaders who know far more about rehabilitation than I ever will.â&#x20AC;?

â&#x20AC;&#x153;Itâ&#x20AC;&#x2122;s been a year of learning. Courage is a complex organization with many parts, so Iâ&#x20AC;&#x2122;d say Iâ&#x20AC;&#x2122;m still climbing the learning curve, and will be for as long as Iâ&#x20AC;&#x2122;m here! Iâ&#x20AC;&#x2122;ve also developed a tremendous appreciation for several specific things about Courage: the pro- What is your current operafessional skills and caring of tions budget? How has it changed since you stepped â&#x20AC;&#x153;Disability is a natural into the role as CEO?

part of life that weâ&#x20AC;&#x2122;ll all â&#x20AC;&#x153;We have total revenues of experience someday if just under $40 million dollars. we live long enough.â&#x20AC;? Our 2007 budget grew by about 15%. About 2/3 of our revenues come from reimbursement for services like our inpatient and outpatient therapies. Between 25% and 30% of the budget comes from the communityâ&#x20AC;&#x2122;s philanthropic supportâ&#x20AC;&#x201D;individual donors, corporate and foundation grants, and special events like the Walk â&#x20AC;&#x2DC;N Roll with Courage and the annual CelebraHow did your role as Com- tion of Courage.â&#x20AC;? missioner of Health for the State of Minnesota from Are you still actively in1999 to 2003 prepare you volved with federal health for your role as CEO of care initiatives? And how do Courage Center? these health care initiatives benefit/support people with â&#x20AC;&#x153;The Health Departmentâ&#x20AC;&#x2122;s disabilities? charge is to protect and improve the health of all Minne- â&#x20AC;&#x153;Nancy Larkin, our Chief Opsotans, certainly including erating Officer, and John those with disabilities and Tschida are both active in naother complex conditions. I tional rehabilitation organizahadnâ&#x20AC;&#x2122;t worked in a govern- tions such as the American ment public health agency be- Congress of Rehabilitation fore I became commissioner, Medicine, a research and just like I hadnâ&#x20AC;&#x2122;t worked in policy group, and the Amerirehabilitation before joining can Medical Rehabilitation Courage. My job as commis- Providers Association. There sioner was to work with a lot are some real concerns at the our staff; the tremendous support we get from the community in terms of volunteering and charitable contributions to our mission; and the trust our clients put in us, the effort they give to setting and achieving their goals and the difference we are able to make together in the quality of their lives.â&#x20AC;?

federal level about where Medicaid and Medicare are headed. The rehabilitation industry continues to be challenged by Medicare changes that are investing fewer dollars in the equipment people with disabilities need, such as wheelchairs. Weâ&#x20AC;&#x2122;re also seeing

â&#x20AC;&#x153;Health and independence require more than Jan Malcolm just good medical rehabilitation.â&#x20AC;? injuries, Parkinsonâ&#x20AC;&#x2122;s disease, and/or blindness? Medicare reimbursement changes that are not creating the kind of consumer-focused financial incentives that contribute to positive health and independence outcomes. Medicaid changes in the last year could also mean higher copayments for people with disabilities, and we know people canâ&#x20AC;&#x2122;t afford the co-pays we have in place today. Weâ&#x20AC;&#x2122;re hopeful that the next Congress will take us in a more positive direction. My own focus is now more specific to state-level policy, but I am still involved with a couple of national organizations having to do with public health administration and health services research. While not specific to disability concerns, these organizations are working on improving access to health services, and improving health status for all people. I believe that part of what we in the disability community need to do is to be at the â&#x20AC;&#x153;big tableâ&#x20AC;? of health reform, so that the needs of the people we serve are central to the design of health policies, not an afterthought.â&#x20AC;? Do you support stem cell research? Why do you or do you not believe stem cell research may benefit people who live with spinal cord

â&#x20AC;&#x153;My personal belief is that stem cell research offers a lot of promise and certainly ought to be pursued. I do worry that our cultural biases toward searching for â&#x20AC;&#x153;curesâ&#x20AC;?â&#x20AC;&#x201D;and spend-

â&#x20AC;&#x153;I do worry that our cultural biases toward searching for â&#x20AC;&#x153;curesâ&#x20AC;?â&#x20AC;&#x201D; and spending almost without limit for new technologiesâ&#x20AC;&#x201D;can (if weâ&#x20AC;&#x2122;re not careful) crowd out basic investments in therapies and social supports that help people with disabilities to live as independently as possible.â&#x20AC;? ing almost without limit for new technologiesâ&#x20AC;&#x201D;can (if weâ&#x20AC;&#x2122;re not careful) crowd out basic investments in therapies and social supports that help people with disabilities to live as independently as possible. I hope we will always take a â&#x20AC;&#x153;both/andâ&#x20AC;? rather than an â&#x20AC;&#x153;either/orâ&#x20AC;? approach that recognizes the need for balanced funding. Technological and research advances over the last 50 years have created our first elderly generation of people with disabilities, and this is a Holistic - cont. on p. 12

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December 10, 2006

News At A Glance . . . NAMI’s Provider of the Year: Mental Health Resources

NAMI’s Professional of the Year: Amy Rice

Participants Needed for Youth Internet Study

The National Alliance on Mental Illness of Minnesota (NAMIMN) presented Amy Rice of Spectrum Community Mental Health Center with its Professional of the Year Award at its Annual Conference, held Nov. 4 in Bloomington. Rice was recognized for her outstanding efforts to create a program where adults with mental illness can learn and develop their visual art skills. [Source: NAMI-MN]

The Children’s Partnership (TCP) is collecting first-hand accounts of how digital technologies are helping youth with disabilities in school, at home, at work and in their communities. These stories will be featured in the next issue of their publication, Digital Opportunity for Youth., which will focus on how broadband-enabled technologies help youth with disabilities to lead active, healthy lives.

The National Alliance on Mental Illness of Minnesota (NAMIMN) presented Mental Health Resources with its Provider of the Year Award at its Annual Conference, held Nov. 4 in Bloomington. Mental Health Resources was recognized for providing a broad array of services and supports to assist people with mental illness. Mental Health Resources has also worked hard to merge the chasm between public and private funding streams, and they are strong supporters of mental Volunteer Greeters Sought health advocacy efforts at the state capitol. [Source: NAMI- Volunteers needed to provide general assistance and informaMN] tion to visitors of the Ramsey County Government Center East. Volunteers must be at least 18 years of age. Contact Ramsey Ending Homelessness One Person at a Time County Community Human Services—Volunteer Services at Tom* was staying in a shelter and struggling with severe and 651-266-4090 for additional information or e-mail to persistent mental illness. Until recently, finding permanent volunteerservices@co.ramsey.mn.us. [Source: Ramsey housing and improving his situation would have taken months County] – and maybe years – to address. But a new program, Project Homeless Connect, is changing the landscape and bringing Tax-Forfeited House hope to many homeless people like Tom. Project Homeless Becomes Community-Living Option Connect hosts events where volunteers and service providers An abandoned property at 3216 Garfield Ave. S. in the Lyndale come together to provide a one-stop shop to meet the needs of Neighborhood in south Minneapolis, rehabilitated through the homeless people. county’s Tax-Forfeited Property Program, soon will become home for four people with disabilities. The board approved a At a Homeless Connect event in March, Tom met a housing rental agreement for the property with Culture Homes Inc, a provider who specialized in helping people just like him. They licensed adult foster-care provider for the county that provides sat down, talked and decided that Tom was a good fit for having housing and culturally specific services for Somali men with an apartment but he needed a mental health evaluation and a mental health needs. doctor to agree that Tom could manage the apartment by himself. Tom and the housing provider simply walked across Hennepin County has hundreds of clients living in nursing the room where Tom got his evaluation and a doctor’s autho- homes, and faces challenges under a Supreme Count decision rization. That night, for the first time in a very long time, Tom that requires counties to find community-based housing for slept is his own room those who can live under less extensive care. Using taxforfeited properties to provide services for clients is part of a Without Project Homeless Connect, this scenario would have larger collaboration with the state of Minnesota; Hennepin involved Tom’s going to various locations to get needed County Human Services and Public Heath; and Hennepin documentation or signatures – feats which are sometimes Housing, Community Works and Transit. overwhelming to people already in crisis. “The importance of Project Homeless Connect is that people don’t have to go all This is the third county tax-forfeited property that has found a over town to get the services they need and constantly retell second life as a residence for home care, and more are planned. their story,” said Cathy ten Broeke, the Hennepin County-City Remodeling tax-forfeited homes for housing is less expensive of Minneapolis coordinator to End Homelessness. “They can than long-term care in a nursing home, and provides residents simply come to one location. “When we make the path to with more opportunities for independence and self-reliance. independence simpler for people in crisis there are at least two [Source: Hennepin County Board] good outcomes. People like Tom, who can live more independently rather in a government-sponsored shelter, benefit. And Program Will Integrate Health Care, government gets better results when people in need are helped Social Services for Disabled The Hennepin County Board approved $375,000 to design and in a way that they themselves can sustain,” she said. develop an Integrated Care Initiative that weaves together Services offered at Project Homeless Connect include housing, health care and social services for people with disabilities. employment, medical care, dental care, mental health care, benefits and legal assistance, eye doctors, haircuts, transportation Under state and federal policies, counties are moving people assistance, food, and clothing. Nearly 2,000 homeless people who are disabled and on Medical Assistance to managed care received services at the first two Homeless Connect events, thanks in order to improve health care access and control costs. to approximately 750 volunteers and more than 200 service However, to live successfully in the community, people who are disabled may need social service supports, such as help with providers. The third event took place earlier this month. housing. Hennepin’s initiative would link health care services For further information on Project Homeless Connect, go to of the Metropolitan Health Plan with social services of the www.homelessconnectminneapolis.org or call 612-673-2525. county’s Human Services and Public Health Department, pro* Tom is a pseudonym viding a more seamless system for clients. [Source: Hennepin [Source: Hennepin County News] County News]

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TCP is a public policy and advocacy organization that focuses on children’s issues involving technology and health. They share their publications with policymakers, advocates and other decision makers, hoping to make stronger arguments for increased technology access. To share a story, please contact Jessica Rothschuh at 310-2601220 or jrothschuh@childrenspartnership.org. [Source: www.childrenspartnership.org]

Give a Little Time, Get a Lot in Return It only takes a few hours a month to make a huge difference in the life of an adult who experiences depression, anxiety or another psychiatric disability. Being a friendship volunteer helps your new friend stay active, improve their health and fulfill their dreams. And the best part is, you’ll not only see what it does for them, you’ll feel what it does for you. A variety of volunteer positions are available. FFI: Volunteer Coordinator at Guild Incorporated, 651-4572248 ext. 36, volunteer@guildincorporated.org, or www.guildincorporated.org. [Source: Guild Inc.].

Hennepin, Minneapolis Schools Partner to Provide Mental Health Services for Kids The Hennepin County board approved continuing to partner with the Minneapolis Public Schools in the children’s mental health component of the federally-funded Safe Schools/Healthy Students pilot program. The pilot program is currently in kindergarten through eighth grade at seven Minneapolis school sites. About 150 teachers have participated in training about children’s mental health, and almost 350 students have been referred to the school-based mental health clinician. Of those referrals, about 286 students received mental health services. The school district will reimburse the county $45,000 for mental health coordinator services provided by a senior clinical psychologist from the mental health center. The psychologist coordinates mental health services for Safe Schools/Healthy Students, including screening of students, training staff about children’s mental health, research and evaluation of the pilot, and coordinating services through school and community resources. [Source: Hennepin County Board]

Share Your Love of Science! Volunteer at The Bakken Museum Looking for a way to give back this season? The Bakken Museum of Minneapolis needs volunteers who enjoy science to help provide a truly electrifying experience for visitors of all News At A Glance - cont. on p. 14

Diamond Hill Townhomes We are currently accepting applications for our waiting list at Diamond Hill Townhomes, a great property located near the Minneapolis International Airport. We have two and three bedroom townhomes that are HUD subsidized and rent is 30% of the total household's adjusted gross income. We have a large number of mobility impaired accessible units and we are scheduling appointments for persons in need of a mobility impaired accessible unit immediately. To schedule an appointment please call (612) 726-9341.

December 10, 2006

Upcoming Events

To list an event, e-mail access@accesspress.org Minnesota Futurists Every Saturday We meet weekly at 825 Summit Ave, Minneapolis from 9:30 a.m. - 11:30 a.m. 21st century topics of interest are discussed in detail, with input from all attendees. Cost: $1.00 per meeting. Resident contact: Earl Joseph. The facility is wheelchair accessible, and we typically meet in the secondfloor conference room. ‘Artful Lives’ Exhibit Dec. 4 to 29, 2006 “Artful Lives” is an exhibit of artwork created by people with developmental disabilities that brings beauty to the world and joyously celebrates life. For the month of December, paintings, including self-portraits, sculptures, charcoal drawings, and more will grace the Hennepin Gallery at 300 South 6th St., Minneapolis. Also, Hennepin Cty will display a 50-by-6 foot montage that will hang from a bridge on the Public Service Level of the Government Center. Organized by Partnership Resources, Inc., an agency that provides employment and artistic opportunities for individuals with developmental

disabilities, ‘Artful Lives’ features selected work created by 65 artists with disabilities. Each artist participated in one of Partnership Resources classes.

behaviors at home and in school are invited to Raising Your Spirited Child, a monthly parent networking group from Arc Greater Twin Cities and South Washington County Schools School Age Family Details: Free and open to the Education Program (SAFE). public, Monday-Friday, 7:30 a.m. to 5 p.m. Directions at The group generally meets the www.hennepin.us. FFI: first Wednesday of each month www.partnershipresources.org. from 6:30 – 8:30 p.m. at Lake Junior High, 3133 Pioneer Drive, Woodbury. ParticipaHearing Loss Support tion is open to parents throughGroup out the seven-county Twin December 16, 2006 Hearing Loss Association of Cities metro area. No cost, but America Twin Cities Chapter must preregister at 651-768meets the 3rd Sat. of each 6416 (leave name and nummonth (except June, July and ber). FFI: Arc Greater Twin August). Hearing loss affects Cities, 952-920-0855, www. over 32 million Americans. arcgreatertwincities.org. This is a support group that Adapted Ski and can help you live with your Snowboard Lessons hearing loss. The next meetWinter 2006-2007 ing, Dec.16th, will feature a holiday party and speaker Jerry Powder Ridge Winter Rec. Yanz from the Starkey Foun- Area, Kimball, MN, will be ofdation. Location: Courage fering adaptive ski/snowboard Center, 3915 Golden Valley lessons this winter. They can Road, Golden Valley. Time: accommodate students with 9:30 a.m. to noon. FFI: physical disabilities, speech, hearing & visual impairments www.hlaatc.org. by using special equipment & Spirited Child Network Grp teaching techniques. Come enjoy the snow at Powder January 3, 2007 Parents of children with intel- Ridge. 800-348-7734 x 23. lectual and developmental disabilities who have challenging

New Year’s Eve Fireworks Dec. 31, 2006 The Downtown Riverfront District and MPRB New Year’s Eve Fireworks Show will light up the winter sky beginning at 8:30 p.m. Sunday, Dec. 31, downtown along the Mississippi River. Spectacular viewing of the fireworks will reach from 35W to Broadway, and at parks including Father Hennepin Bluff Park, Boom Island Park, Historic Main Street Park, St. Anthony Main, the Stone Arch Bridge and West River Parkway. Lake Harriet Winter Kite Festival Jan 13, 2007 Kites of all colors, sizes, shapes and themes will fly over Lake Harriet from noon to 4 p.m. on Saturday, Jan. 13. Events near the Lake Harriet Bandshell (4135 W. Lake Harriet Pkwy.) include kite flying and demonstrations; children’s ice fishing expo and medallion hunt; ice skating and a marshmallow roast. The event, which is free, is hosted by Lyndale Farmstead and Linden Hills Parks, and co-sponsored by Minnesota Kite Society, DNR’s “Fishing in the Neighborhood” and “Minnaqua,” & East Harriet Farmstead Neigh-

borhood Assoc (EHFNA). FFI: www.minneapolisparks. org or call Winter Kite Festival at 612-370-4948. In case of extreme weather or poor ice conditions, the event will be re-scheduled for Jan. 20.

Kites of all colors, sizes, shapes and themes will fly over Lake Harriet Saturday, Jan. 13, in the Winter Kite Festival. City of Lakes Loppet Feb 3-4, 2007 The 35km Urban Cross Ctry Ski Race spans two days, Sat & Sun, Feb. 3-4, featuring the beautiful trails and lakes of the Twin Cities. Thousands of skiers, including many of the sport’s best, ski through woods, over parkways and across lakes. Skiers of all ages and abilities will be challenged and thrilled by this beautiful

urban course. Spectators are also welcome. The complete schedule, maps, registration & more available at www.cityof lakesloppet.com. Winter Activities in the Park Winter 2006-2007 The Minneapolis Park and Recreation Board (MPRB) offers a variety of winter activities in the park system that enables Twin City residents and visitors to enjoy all that the MN winter has to offer. Wirth Regional Park—1301 Theodore Wirth Pkwy. Crosscountry skiing, snowboarding, designated sledding and tubing hills. Call 763-522-4584. Columbia Golf Course—3300 Central Ave. NE. Cross-country skiing, designated sledding and tubing hills. Call 612789-2627. Hiawatha Golf Course—4553 Longfellow Ave. Cross-country skiing. Call 612-724-7715. Gross Golf Course—2201 St. Anthony Blvd. Cross-country skiing. Call 612-789-2542. Grand Rounds Byway District—50 miles of designated groomed walking trails. FFI: www.minneapolisparks.org Events - cont. on p. 11

Understanding Your Needs Working Toward Your Goals Gillette Lifetime Specialty Healthcare offers a coordinated team of specialty-care providers for adolescents and adults who have disabilities, such as cerebral palsy, spina bifida, traumatic brain injuries, and neuromuscular conditions.

Physician Specialists ■ Cardiology ■ Family practice ■ Internal medicine/ pediatrics ■ Neurology ■ Neurosurgery ■ Orthopaedics ■ Physical medicine and rehabilitation ■ Urology

Assistive Technology Services ■ Alternative and augmentative communication ■ Computer access and environmental controls ■ Customized seating and mobility devices ■ Rehabilitation engineering ■ Upper-limb, lower-limb and spine orthotics

Rehabilitation Services ■ Occupational therapy ■ Physical therapy ■ Speech and language therapy Social Services ■ Psychiatry ■ Psychology ■ Social work

For more information or to schedule an appointment, call 651-229-3944.

550 County Road D New Brighton, MN 55112 www.gillettechildrens.org

December 10, 2006

INTERACT-

Cont. from p. 1

communities, Northern Lights/ to look at differences, and try Southern Cross gives depth to set things into perspective. and insight to issues of cul“We also learned about tural difference. heyokes, the trickster spirits, The Northern Lights portion contraries who do everything of this story began to take shape backwards. These spirits have in January of 2006, when ten deep resonance in the world of artists from the Tutti Ensemble the disabled—they are wrong, came to Minnesota to experi- contrary, annoying; they elicit ence winter for the first time. Twenty artists from Interact “These [trickster] spirand Tutti traveled to the north- its have deep resonance ern wilderness, facilitated by in the world of the disWilderness Inquiry of Minne- abled—they are wrong, apolis, and were immersed in contrary, annoying; they experiences that even most Minnesotans have never had: elicit anger—or laughdogsledding, snowshoeing, ter—and they reflect our taking a sauna and jumping prejudices back at us.” through a hole in the ice of a anger—or laughter—and they frozen lake. reflect our prejudices back at In a long weekend with Ojibwe us. They aren’t ‘normal,’ and leaders at Lac Courte Oreilles they force us to reach into our (la cout o ray) reservation in own humanity, or know when Wisconsin, the group took part we are ignoring it. They are in a drum ceremony, attended the sacred, honored spirit of a pow-wow, met with medi- ‘otherness.’” cine men and went ice fishing. Ideas started brewing when the In March of 2006, Kling and group heard stories of Winne- one of Interact’s Native Ameriboujou, the Great Spirit, who can artists, Sindibad, traveled was sent to the other side of the to Australia to develop the world to set things right. “Right Southern Cross portion of this away,” said Calvit, “we recog- collaboration. They went to nized the timelessness of our the Arkaroola Wilderness instinct to collaborate, to bring Sanctuary, an area important artists together from the south- to Aboriginal culture and the ern and northern hemispheres tribal region of the Adnaja-

mathana people, and participated in ritual ceremonies. In contrast to Minnesota, this part of Australia is the most arid on the continent. In the performance, the artists explore a variety of new images as they bring these ideas to life on stage. In one scene, disabled/heyoke spirits wander into life, geared up with backpacks and curiosity. In another scene, a spirit goes to sleep in one hemisphere and wakes up in the other, looking up at the sky and realizing that the sky is different. The sky is important in both Australian and Native American cultures—the Great Spirit comes from the sky. The heyokes come from the Thunderbird, who lives in the sky. A deep, resonant connection was made at Lac Courte Oreilles when Aboriginal artist Steve Goldman played his dijereedoo. As the voice of the Outback and the voice of the drum held time in sacred suspension, another key piece of the artistic vision fell into place. Tutti Ensemble’s musicians will bring in the voice of the Earth – a distinct character in the work – by representing through sung and spoken word the voices of trees, rocks, fire

Members of Interact Center and Australia’s Tutti Ensemble pose during their trip to the Minnesota northlands last January.

Kevin Kling asks cultural guides about some of Australia’s flora and fauna. He and Interact artist Sindibad traveled to the Arkaroola Wilderness Sanctuary in March 2006 as part of a collaboration with the Tutti Ensemble. and wind – sounds with its stars of the Southern Cross. source in the natural world. Calvit believes this will be a The work on Northern Lights groundbreaking piece of work is now progressing on two for Interact: “I believe this continents, and information work, in both content and is being shared thanks to e- scope, will be a first on any mail and long distance phone stage in Minnesota. It will have calls. In February, Interact a strong educational value, will will travel to Adelaide for be multidisciplinary in nature four weeks of rehearsal be- and will push the boundaries fore the opening, performed of the art form. It will include in the outdoor festival in the artists from the disability and Bundaleer Forest beneath the native communities of both

countries in work that explores music and mythology in unexpected ways.” Postcript: This project is fully funded except for three airline tickets costing $5300. If readers would like to make a taxdeductable donation to make this project happen, they should call Jeanne Calvit at 612-339-5145. ■

Dogsledding was just one of the northern Minnesota experiences that Interact Center artists shared with their Australian counterparts.

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December 10, 2006

Great Service! Deaf2Work Minnesota Matches the Right People with Great Jobs by Beth DePoint

ith a broad smile across his face, Yoonis Warsame greets customers with a friendly Hello! Those checking out at the Home Depot store in Burnsville immediately notice a strong sense of service, or, as the company’s slogan goes, “You can do it. We can help.” What they may not at first realize, however, is that Warsame is deaf and reading their lips. Warsame came to the U.S. six years ago from Somalia and is still learning American Sign Language (ASL). Some Home Depot customers who are deaf seek him out when checking out.

of Hearing unit. Together, they recruit, hire and support men and women who are deaf and hard of hearing in a wide range of employment positions throughout The Home Depot stores.

Acord’s plan was readily accepted, and in September, 2005, she began meeting with area human resources managers. The first three people were hired in February 2006. Today, fifteen local people have jobs, earning competitive Job placement, occupational wages and (most) working fullcommunication, and follow- time hours with benefits. up support specialists from the Minnesota Employment Cen- “The response from the store ter (MEC) work with job seek- managers has been phenomers, assisting them in applying enal,” said Acord. “Every for jobs, offering on-site job training, developing communication support services, and provideing follow-up support services to help ensure successful employment. MEC is an interagency collaborative job placement program with Rise, Lifetrack Resources, Inc., and Rehab Services.

Luke Harabor works as a freight handler in the receiving department at the Home When Diane Acord, a rehaDepot store across town in bilitation counselor with Rehab Services in St. Paul, first “His coworkers find him learned of the Atlanta-based a hard-working, friendly Deaf2Work program, she contacted Home Depot for more guy who can always be information. Confident the counted on to get the job same kind of program could work well in Minnesota, she done.” put together a formal proposal northeast Minneapolis. Origi- for The Home Depot to connally from Romania, Harabor sider expanding it here. had several different kinds of jobs before settling in Minneapolis and starting work at Home Depot in March 2006. His coworkers find him a hardworking, friendly guy who can always be counted on to get the job done. They communiComputerized cate with Harabor using gesDesktop publishing: tures, written notes and lipAdvertiments reading. Both men are part of an exciting new employment program called Deaf2Work Minnesota. The program, which originated in the Atlanta area, joins the local home improvement retailer with Rehabilitation Services (RS) Office of the Minnesota Department of Employment and Economic Development (DEED) Deaf and Hard

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single one has been 100 percent behind the program. They are willing to make accommodations when necessary and are eager to keep people successfully employed. Coworkers, too, have been very supportive.” Of great benefit to the employers is Deaf2Work’s recruitment and screening of qualified candidates and its readily available consultation staff. In addition to receiving compensation and benefits, the new employees are becoming more self-confident from their success on the job and appreciate the accommodations made for communication and new staff training, noted Acord.

Now 21 years old, Warsame had little formal education in Somalia and worked as a welder. In his free time, he enjoys playing soccer and says he is a “very good player.” Warsame, who is learning both Luke Harabor, who is from ASL and English, is teaching Romania and lost his hearhis new coworkers sign laning as a young child from an guage, too. illness, once asked his father, “Where did my ears go?”

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“I have a very good job and nice coworkers. They are my friends and I like working with them. Kathy (Schumacher) helps me when I need it.” After six months in his cashier’s position, Warsame will have the opportunity to apply for other positions if he chooses. A talented artist who enjoys oil painting, sculpture, and sketching, Harabor fits in well with his friendly coworkers in the shipping and receiving department.

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With much to learn about his many job duties, Harabor initially received some training directly from his coworkers. He also learned a lot on his own and enjoys the fast pace and hard work of the 9-5 day shift. He recently took the test to become a U.S. citizen and is awaiting the results. All involved are currently working to expand Deaf2Work, both throughout Minnesota and in other states. ■

THANK YOU Many thanks to the wonderful volunteers who gave their time to help Access Press with the 2006 Charlie Smith Award banquet and with our recent mailings.

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Yoonis Warsame immigrated from Somali and is working as a cashier at the Home Depot store in Burnsville through a program called Deaf2Work.

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December 10, 2006

Commentary

Astronauts And Ventilator Users The “Problem” Is the Environment, Not the Person by Audrey King

sk the man in the street what he knows or thinks about people who use ventilators. Chances are he’ll tell you they’re braindamaged, vegetative, “ill” or dying, just bodies being kept alive at great expense to society. How wrong he is! What the man in the street doesn’t know is that although the phrase “on a ventilator” does conjure up the hopeless images just described, we’re really talking about a wide range of scenarios. We do indeed have ill or dying patients, those who are comatose, the seriously injured, all of whom require intensive hospitalization, ventilators and skilled medical care. But, there are many ventilator users who are medically stable, mentally alert, ambitious and desperately eager to live life’s goals with as much independence and control over their own lives as possible. Typically, they have lived with their disability for some time and are knowl-

edgeable and competent with weightless outer space envirespect to their own needs and ronment. He can’t feed himequipment. self unless he learns new ways to coordinate his hand-toThe problem that prevents such mouth movements. He reindividuals from achieving in- quires specially prepared dependence and control, from food. Nobody talks about his living their own “self-directed” bowel and bladder needs, but lives within their own commu- it’s difficult to imagine how he nities, lies not within the ven- could possibly cope without tilator-dependent person but some special kind of clever overwhelmingly within the at- collecting device! The astrotitudinal and physical environ- naut can’t even sustain his ments in which they live. body’s need for oxygen. He requires “life support” systems Consider the astronaut, for for his very survival. example. When you think about it, you realize he is in Yet, who would label an astronaut “disabled,” “deficient,” “Society doesn’t see [the or in need of intensive medical astronaut’s] physical in- attention? Society doesn’t see capacities as “problems” his or her significant physical incapacities as “problems” that that need to be fixed . . . need to be fixed. Assumptions It’s the environment . . . of helplessness, inability, inthat is deemed to be the competence, or needing to be “cared for” never exist. In fact, problem . . .” it’s the opposite! Rigorous fact, severely disabled. He can- training and expectations to not walk properly unless he carry onerous responsibility in wears special boots to keep his carrying out complex and defeet on the ground in that manding outer space tasks are

the norm. Astronauts are “heroes.” It’s the environment—the “moon”—that is deemed to be the problem, never the astronauts’ deficiencies. His or her environment is perceived as

“…there are many ventilator users who are medically stable, mentally alert, ambitious and desperately eager to live life’s goals with as much independence and control over their own lives as possible.” hostile, alien, incompatible with life and definitely not accommodating to the astronaut’s physiological requirements. So, at enormous expense and billions of tax dollars, assistive devices are created to enable that astronaut’s physical and physiological needs to be “accommodated” so he or she can

function, stay alive and breathe tions. A person’s physical in that unfriendly world. abilities often cannot be changed, but the attitudinal and And so, it would seem that physical environment in which meeting the needs of “dis- they live certainly can. ■ abled” earth-bound humans, whose unique physical require- Originally published in ments make it difficult to live Rehabilition Digest under the and function in an everyday title, “A Matter of Percepworld, depends largely on tion.” society’s values and percep-

December 10, 2006

Home Access Answers

How To Make Transfers Easier by Jane Hampton Dear Jane, My husband was injured in a car accident and is now a quadriplegic. I have been using a moveable patient-lifter to transfer him from his wheelchair to the bed or commode chair. I am finding this maneuver to be very cumbersome, and I am also worried I might injure my back trying to facilitate these transfers. We are also having a “storage” issue with this equipment and find it is always “in the way.” Do you have any suggestions? Jean, Red Wing, MN Dear Jean, With many of our clients, we have found use of a ceilingmounted lifting device to be a terrific solution for permanent lifting issues. This type of equipment will not only eliminate the physical strain of operating and moving a rolling lift, but also eliminate your storage problem. Ceiling mounted lifts, (also known as overhead lifts and

“ . . . a ceiling-mounted lifting device … will not only eliminate the physical strain of operating and moving a rolling lift, but also eliminate your storage problem.” track lifts) consist of a batterypowered hoist that is guided by an overhead track system to lift, transfer and transport in-

EVENTS -

dividuals with physical limitations between the bed, wheelchair, toilet, bathtub, shower chair, changing table, etc. Ceiling-mounted lifts not only operate vertically (up and down) but also horizontally (side to side). The vertical movement is operated by a motor that is set in motion using a control panel on the hoist or by a handheld remote control. The horizontal motion can also be motorized depending on the unit installed.

vide continuous tracking between the bed and bathroom. Most installations require reinforcing the ceiling in all locations where the track will be • mounted. Architectural modifications may be required at doorways between rooms to allow the track to pass through • the header above a doorway (if applicable) and to provide • a continuous, flat ceiling.

motor and body support/sling to a different track location in the home (in the event the bathroom is not located adjacent to the bedroom)? Does the manufacturer have the type of sling or body support needed by your husband? Does the unit support the size and weight of your husband? Does your husband need to have a sling that provides an opening for toileting and bathing? Can the lift go into the tub or shower area? Does the track system offer configurations to address paths of travel needed between transfer points (such as a turns and curves)? Due to architectural issues, do you need a model that can operate around the header of a door (such as a door between a bedroom and bathroom)? Is the finish of the rail system at ceiling important to you (such as white, chrome, etc.)? Does the model offer useful accessories? Does the vendor offer demonstrations for you to try out the sling and/or body supports to ensure proper selection? Does the system come with a warranty? If so, how long? Who installs the system? Is installation included in the price quoted?

The units are typically designed with many safety fea- • Ceiling lifts utilize a sling or tures that allow for smooth stop harness to support individuals and start, as well as emergency • as they are lifted. Manufactur- locking and lowering features. ers typically offer their own line of slings and/or body sup- “Most installations reports to be used with their lifts. quire reinforcing the A variety of slings and/or body ceiling in all locations • supports are available to address multiple lifting and trans- where the track will be fer needs. Some examples in- mounted.” clude slings made to support individuals in a reclined posi- Depending on the manufaction, slings made for toileting turer, various methods for • and bathing applications, as charging batteries are utilized well as slings and/or body sup- to ensure continual reliability ports made to support indi- of the equipment. • viduals during unweighted walking or gait training. There are a variety of manu- • facturers and equipment opTrack systems are customized tions available. The following to your home layout to meet questions may help you deyour configuration and trans- cide which product is right for fer needs. Commonly, a track you, your husband, and those • system will be located over the that care for him: bed (for transfers between a • Do you need a model that • wheelchair and bed), as well allows for independent use as in the bathroom to facilitate by your husband or will a transfers onto the toilet and caregiver be operating the into a bathing area. Dependequipment? Lift technology has opened the ing on your home configura- • Do you need a system that door to independence for many tion, it may be possible to prowill allow you to transfer the of our clients. If this is some-

Cont. from p. 7

Mpls Parks Ice Skating Winter 2006-2007 Take advantage of the Minnesota winter with a few spins on the ice rinks of the Minneapolis Park System. The Minneapolis Park and Recreation ice rinks for ice skating, hockey and broomball. Indoor Rinks Parade Ice Garden, 600 Kenwood Pkwy (behind the Mpls Sculpture Garden). 612370-4846 www.paradefsc. org. Northeast Ice Arena, 1306 Central Ave NE 612-782-2123 Outdoor Rinks Each winter MPRB freezes over outdoor rinks in many neighborhood parks. Contact the individual facilities below for information about warming rooms, skate rental, lessons or leagues they might offer. (S—Skating, H—Hockey, BB—Broomball.) Armatage Park: S, H 56th & Russell Ave. S 612-370-4912

Bohanon Park: H 4927 Bryant Ave. N 612-370-3932 Brackett Park: S, BB 2728 39th Ave. S 612-370-4924 Bryant Square Park: S, H 31st St. & Bryant Ave. S 612-370-4907 Bryn Mawr Park: S, 2 BB W. Laurel & Morgan Ave. S 612-370-4833 Fuller Park: S 4800 Grand Ave. S 612-370-4963 Harrison Park: S, H 5th & James Ave. N 612-370-4951 Kenny Park: S, H 58th & Freemont Ave. S 612-370-4901 Lake Hiawatha Park: S, H 2701 E. 44th St. 612-370-3944 Lake Hiawatha Pk/Sch: S, H 4305 E. 42nd St. 612-370-4952 Lake Harriet Bandshell: S 612-370-4900 Lake Nokomis: S, 2 BB 4965 Nokomis Pkwy 612-370-4845

thing you and your husband are interested in, I would recommend you meet with a product representative who can give you a demonstration on features that can help you not only today, but also into the future. ■ Do you have a question for Jane and Accessibility Design? We’ll cover all of your questions in future issues of Home Access Answers. Please contact us: 952-925-0301,

www.accessibilitydesign. com, info@accessibility design.com Jane Hampton, president of Accessibility Design, founded the company in 1992 to enhance lives through design and project management. They provide design, consultation, project management, and product recommendation services specializing in home access for individuals with disabilities at all stages of life.

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Lake of the Isles: S, H 25th & E. Isles Pkwy 612-370-4875 Linden Hills Park: S, H 43rd & Xerxes Ave. S 612-370-4913 Logan Park: S, H, BB 690 13th Ave. NE 612-370-4927 Longfellow Park: S, H 3435 36th Ave. S 612-370-4957 Loring Pk: S, no warming rm 1382 Willow St 612-370-4929 Luxton Park: S, H 112 Williams Ave. SE 612 370-4925 Lyndale Farmstead Park: S 40th & Bryant Ave. S 612-370-4948 Lynnhurst Park: S, H 50th & W. Minnehaha Pkwy 612-370-3939 Matthews Park: S, H 2318 28th Ave. S 612-370-4955 McRae Pk: Perm. in-line/H rink 906 E. 47th St 612-370-4909 North Commons Park: S, H 1801 James Ave. N 612-370-4921

Pearl Park: S, H 414 E. Diamond Lake Rd. 612-370-4906 Powderhorn Park: S 3400 15th Ave. S 612-370-3941 Sibley Park: S, H 1900 E. 40th St. 612-370-4954 Van Cleve Park:: S, H, BB 901 15th Ave. SE 612-370-4926 Waite Park: S, H 1810 34th Ave. NE 612-370-4959 Webber Park: S 4400 Dupont Ave. N 612-370-4916 Windom Park: S, H 2251 Hayes St. NE 612-370-4905 For ice conditions and rink closings, call the rink hotline at 612-313-7708. It is is updated on a regular basis. www. minneapolisparks. org. ■

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December 10, 2006

FAQ @ DLL

Choosing (and Paying for) Assistive Technology by the Disability Linkage Line Staff

ere are some of the most commonly asked questions callers ask the Disability Linkage Line (DLL) about assistive technology:

ists can help you assess what AT you need to be able to perform your job duties. The DLL can help you connect with the appropriate agency.

If you want AT that isn’t jobHow do I know what assistive related, there are many retechnology is best for me? sources in print and on the Internet that can help you sort If you need assistive technol- out what AT will work best for ogy (AT) to do your job, you you and how to fund the AT can get an assessment through you need. Beside reading and the state agency that serves researching your options, you people with your type of dis- should talk with people who have used the AT you want to “. . . some AT . . . may be buy, so that you learn how it has worked for them.

quite costly—but that doesn’t mean it is out of reach! STAR also has an online funding directory that can help you find resources to pay for the AT you need.”

ability. For example; people who are Deaf will work with Deaf and Hard of Hearing Services, people who are blind will work with State Services for the Blind, and people with all other types of disabilities will work with Rehabilitation Services. Technology special-

Where can I find or sell used equipment? The STAR Program (A System of Technology to Achieve Results) has a new online classified ad program, called the STARTE program (STAR Technology Exchange), which promotes the reuse of AT. STARTE is a user-driven database that is designed to connect sellers and donors of previously used AT with people that need AT. STARTE can be used by all Minnesotans with disabilities, and some

entries will be accepted from residents of neighboring states. The database is not for distributors. To list a device on STARTE, it should be usable or operable safely and independently by people with disabilities. STAR recommends that used software not be sold or bought on STARTE. How do I pay for the AT I need? While some AT is low cost and easy to obtain, some AT may be quite costly—but that

“…a new online classified ad program, called the STARTE program… is designed to connect sellers and donors of previously used AT with people that need AT.” doesn’t mean it is out of reach! STAR also has an online funding directory that can help you find resources to pay for the AT you need. The online directory (also available in print or alternative format by calling the numbers listed below)

1.866.333.2466

mation and assistance. DLL’s information specialists make it easier for people to explore options, choose services, and successfully connect to serThe Disability Linkage Line vices. Anyone can call DisThe 2006 funding directory (DLL) provides free, state- ability Linkage Line for help gives you: wide, disability-related infor- at 1-866-333-2466. • Ideas for strategizing on how to get the AT you need • Resources for funding the Cont. from p. 5 AT you need • Forms to help you keep track good thing. People are living dation. Dave unfortunately of what you need to do longer and happier lives be- died after just one year, but • A worksheet to fill out when cause of the incremental ad- contributed greatly at Wilko’s you are ready to apply for vances that science has side. Dave Phillips brought funding achieved. Disability is a natu- great fundraising skills to ral part of life that we’ll all Courage and deepened You can access STARTE experience someday if we live Courage’s relationships across online at www.mnstarte.org or long enough. Science will the community. Eric Stevens by contacting the Minnesota never change this reality. But brought new strengths in busiSTAR Program directly by as an organization we’re open ness and financial management dialing 651-201-2640 or Toll to any scientific breakthroughs and strategic planning. I have Free 1-888-234-1267, MN that positively contribute to the opportunity to build on all Relay at 711 or 1-800-627- quality of life — for those with of these strengths to help posi2527 (TTY), Speech-to- and without disabilities.” tion Courage for the next stage Speech, Telephone Revoice of our long and distinguished Service at 1-877-627-3848. To Reflecting back on one year history. I have more of a health request a copy of the 2006 as a leader of Courage Cen- care background than my preDirectory of Funding Re- ter, how are your directives decessors, so I hope I can help sources in print or alternate as CEO different from those to solidify Courage’s place in format, call 651-201-2640, of your predecessors? the larger health care con888-234-1267 (Toll-Free), tinuum. I do strongly believe, 800-627-2527 (TTY) or send “I’d like to acknowledge the though, that health and indean e-mail to star.program important contributions of all pendence require more than @state.mn.us. ■ of Courage’s past leaders. just good medical rehabilitaWilko Schoenbaum was a real tion. Courage’s holistic apEach month, the DLL will fo- visionary, and he clearly never proach to health, vocational cus on an area of interest to knew the meaning of “can’t and social integration is an people with disabilities in Ac- do.” He saw a world of greater important model of how the cess Press. DLL does not en- opportunity for people with system should work in a coordorse any particular provider. disabilities and did so much to dinated, client-centered way.” They assume no responsibil- help create it. Dave Hershey ■ ity for transactions between worked with Wilko for many the readers of this article and years and Dave took over the To learn more about Courage listed organizations. If you directorship of Courage Cen- Center, go to www.courage. have questions you’d like to ter when Wilko moved over to org or call 763-588-0811. help build the Courage Founis a comprehensive “how to” resource that can make navigating the maze of AT less intimidating, and getting the AT you need less frustrating.

see answered in this column, contact the DLL at 1-866-3332466 or e-mail us at Dhs. DisabilityLinkage@state.mn.us.

HOLISTIC -

Disability Access Symbols

Minnesota’s connection to disability-related information and assistance Housing Personal care assistance Transportation Employment Disability beneﬁts Assistive technology and much more!

Here’s The Year-End Quiz by Access Press

ttention readers. Now Directions: Match each access a. Access for People Who Are that we have featured symbol (number) with its name Blind or Have Low Vision a different disability (letter). b. Accessible Print (Large access symbol for each of the Print) past 12 issues, it’s time to test c. Assistive Listening Sysyourself. tems d. Audio Description e. Braille 1. 4. 7. 10 f. Closed Captioning g. Information Symbol h. Open Captioning i. Sign Language Interpretation j. Telephone Typewriter k. Volume Control Tele2. 5. 8. 11. phone l. Wheelchair Accessible

12.

For more information about the various access symbols, or to download electronic TIFF copies, please visit the Graphic Artists Guild at www.gag.org/ resources/das.php.

Call today for a free info kit. Answers - cont. on p. 15

December 10, 2006

Accessible Performances The following performances will be Audio Described (AD) for people who are blind or have low vision, or Interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing. Selected performances offer reduced admission prices for the patron and one companion. When calling a box office, confirm the service (ASL or AD), date, time, ticket price and anything else needed, e.g. length of performance, etc. If you attend a show, please share your feedback with the performing organization, interpreter, and VSA arts of Minnesota. Accessible performance information is compiled by VSA arts of Minnesota, 612-332-3888 or www.vsaartsmn.com. Also see section of Accessible Movie Theaters. Inspecting Carol Nov. 24 - Dec. 17, 2006 U of M Centennial Showboat, Padelford Packet Boat Co. at Harriet Island Reg. Park, St. Paul. ASL: Sat., Dec. 2, 8:00 p.m. Tix: $27 at 651-2271100; www.showboat.umn. edu or www.Showboat Theater.com

The Mousetrap Nov. 17 - Dec. 17, 2006 Theatre in the Round Players. Theatre in the Rnd, 245 Cedar Ave., Mpls. AD: Sun., Dec. 17, 2:00 p.m. Tix: $20, srs/ students disc; 612-333-3010; www.theatreinthe round.org

Holiday Traditions Tours Nov. 24, 2006 - Jan. 18, 2007 Mpls Institute of Arts, 2400 3rd Ave. S., Mpls. ASL: Sun., Dec. 3, 2:00 p.m.: Period Rms tour begins in Bell Decorative Arts Crt, 3rd flr); 3:30 p.m.: Purcell-Cutts House tour (bus

â&#x20AC;&#x2122;Tis the Season to Attend Live Shows

The Rivals Nov. 3 - Dec. 23, 2006 Jungle Theater, 2951 Lyndale Ave. S., Mpls. AD: Wed., Nov. 22, 7:30 p.m. Tix: Reduced to $8, 612-822-7063; Web: www.jungletheater.com Edgardo Mine Nov. 4 - Dec. 17, 2006 Guthrie Theater, McGuire Proscenium, 818 - 2nd St. S., Mpls. AD: Sat., Nov. 25, 1:00 p.m. (sensory tour 10:30); also Fri., Dec. 1, 7:30 p.m. ASL: Fri., Dec. 8, 7:30 p.m. Tix: disc. to $17; reg. $22-$52; 612-3772224, TTY 612-377-6626; www.guthrietheater. org

A Christmas Carol Nov. 18 - Dec. 23, 2006 Commonweal Theatre. St. Mane Theatre, 206 Pkwy Ave. N., dwntwn Lanesboro. ASL: Sun., Dec. 10, 2:00 p.m. Tix: Reduced to $10, 507-4672525, 800-657-7025; E-mail: tickets@commonweal theatre.org; Web: www. commonweal theatre.org

Dr. Seussâ&#x20AC;&#x2122; How the Grinch Stole Christmas Nov. 8 - Dec. 31, 2006 Childrenâ&#x20AC;&#x2122;s Theatre Co., 2400 3rd Ave. S., Mpls. AD/ASL: Wed., Dec. 13, 10:30 a.m.: Fri., Dec. 15, 7:30 p.m. Tix: Mention VSA Offer: $13 tik; reg disc: $20; 612-874-0400; www.childrenstheatre.org

Altar Boyz Dec. 19 - 31, 2006 State Theatre, 805 Hennepin Ave. S., Mpls. ASL: Sat., Dec. 23, 5:00 p.m. Tix: $35 - $49; ASL or AD offered if requested in advance: 612-373-5639 or 5609; hotline 612-373-5650; TTY 612-373-5655; E-mail: accessible@orpheum.com Web: www.hennepintheatre district.org/guestservices/ aslad/

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Irving Berlinâ&#x20AC;&#x2122;s White Christmas Nov. 28, 2006 - Jan. 7, 2007 Ordway Ctr for Performing Arts Main Hall, 345 Washington, St. Paul. ASL: Fri., Dec. 8, 8:00 p.m. AD: Sat., Dec. 9, 2:00 p.m. Tix: 651224-4222, TTY 651-2823100; www.ord way.org/services/access.asp Black Nativity: A Homecoming Nov. 30 - Dec. 24, 2006 Penumbra Theatre Co., Hallie Q. Brown / Martin Luther King Center, 270 N. Kent St., St. Paul. ASL: Sat., Dec. 9, 7:00 and 9:30 p.m. Tix: $15-40; 651-224-3180 (specify ASL); E-mail: boxoffice@penum bratheatre.org Web: www. penumbratheatre.org

Disneyâ&#x20AC;&#x2122;s Beauty & the Beast Dec. 1 - 19, 2006 Youth Performance Co, Howard Conn Fine Arts Ctr, 1900 Nicollet Ave., Mpls. AD/ ASL: Sat., Dec. 16, 4:00 p.m.; Lutefisk Champ and Other Tix: disc. to Â½ price; reg. $10, Frozen Holiday Tales students 14 & Â&#x201E; or srs $8; Adv Nov. 25 â&#x20AC;&#x201C; Dec. 31, 2006 resv. req. for Audio Descrpt.; History Theatre, 30 E. 10th St., 612-623-9080; www.youth St. Paul. AD: Sun., Dec. 3, performanceco.com 2:00 p.m. ASL: Sun., Dec. 10, 2:00 p.m. Tix: disc. to $15; The Best Christmas 651-292-4323; www.history Pageant Ever theatre.com Dec. 1 - 23, 2006 SteppingStone Theatre for Youth Dvlpmt, Weyerhaeuser Auditorium in Landmark Ctr, 75 W. 5th St., St. Paul. ASL: Sun., Dec. 10, 2:00 p.m. AD: 5$03 &2168/7,1*

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Tues., Dec. 12, 11:00 a.m. Tix: $11, student/sr $9; 651-2259265; www.steppingstone theatre.org Little House Christmas at Plum Creek Dec. 7 - 17, 2006 Fargo-Moorhead Community Theatre, Fargo-Moorhead Community Theatre, 333 Fourth St. S., Fargo. AD: Sat., Dec. 16, 7:00 p.m. ASL: upon

request in advance. Tix: Reduced to $7.50, $6 srs, $4.50 students, $3 ages 3-12; 701235-6778, 877-687-7469; Web: www.fmct.org Alice in Wonderland Dec. 8 - 16, 2006 Rosetown Playhouse at Roseville Area Middle School Theater, 15 Cty Rd B2 E, Little Canada. ASL: Fri., Dec. 15, Perform - cont. on p. 14

ACCESSIBLE MOVIE THEATERS Accessible Movie Theaters The movie complexes listed below offer MoPix-equipped captioning or description services. For show times, call the theater; sign up to receive their e-mail list; contact MN Open Captioned Films, www.mnocfilms.org/ movies.html or Rear Window Captioned Film, Web: http:/ /ncam.wgbh.org/mopix/ nowshowing. html#mn

level lot between Sears and Kohlâ&#x20AC;&#x2122;s. Accessible films in Auditorium 4. Science Museum of MN Omnitheater, 120 Kellogg Blvd. W., St. Paul. Rear view captioning and DVS for most films in the Omnitheater or the 3D Cinema. Showtimes vary but are approximately hourly during regular museum hours: Mon-Wed 9:30 a.m.- 5:00 p.m., Thur-Sat. 9:30 a.m. - 9:00 p.m. , Sun. 12:00 noon - 5:00 p.m. TTY 651-221-4585; E-mail: info@smm.org ; Web: www.smm.org/visitorinfo/ hours/showtimes_dynamic. php or www.smm.org/info/ accessibility.php.

Crown Theater Block E Movie Complex, 600 Hennepin Ave., third floor, Mpls. Enter parking ramp on 7th St next to the Hard Rock CafÃ©. 612-338-1466. Accessible films in Auditoriums 2 and 12. Note: DVS patrons: If show is in Theatre 2, request headset with Letter C. If show Lakes 10 Theatre, 4351 is in Theatre 12, request head- Stebner Rd., Hermantown. set with Letter G. 12 Accessible Parking spaces near theater. Movie AMC Eden Prairie Mall 18 Line: 218-729-0335; EmerTheatres, 4000 Flying Cloud gency: 218-729-0334; Fax: Dr at Eden Prairie Shopping 218-729-0334; E-mail: Sfen Center, Hwy 212 and 494, nessey@cectheatres.com. â&#x2013; 952-656-0010. Park in upper

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A Christmas Carol Nov. 26 â&#x20AC;&#x201C; Dec. 30, 2006 Guthrie Theater, 818 - 2nd St. S., Mpls. ASL: Tues., Dec. 5, 10:30 a.m.; Sat, Dec. 9, 1:00 p.m.; Thurs., Dec. 14, 7:30 p.m. AD: Sat, Dec. 9, 1:00 p.m. (sensory tour 10:30). Tix: disc. to $17; reg. $22-$52; 612-377-2224, TTY 612-3776626; www.guthrietheater. org

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avail. from MIA to house). ASL: Thurs., Dec. 7, 7:00 p.m.: Period Rms tour begins in Bell Decorative Arts Crt. Tix: exhibition admn charged; interpreted tour free; Visitor/Mbr Services, 612-870-3131 or TTY 612-870-3132; E-mail: dhegstro@arts mia.org Web: www.artsmia. org

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A Passion for Paintings: Old Masters from the Wadsworth Atheneum Oct 8, 2006 - Jan. 7, 2007 Mpls. Institute of Arts, Target Gallery, 2400 3rd Ave. S. Tour begins by the Information Desk. ASL: Sun., Nov. 5, 2:00 p.m. Tix: Spc exhibition adm chg; interpreted tour free; 612870-3131 or TTY 612-870-3132; E-mail: dhegstro@artsmia. org; Web: www.artsmia.org

A Christmas Carol Nov. 17 - Dec. 28, 2006 Stages Theatre Co., Hopkins Center for the Arts Mainstage, 1111 MainSt, Hopkins. ASL: Sun., Dec. 10, 2:00 p.m., and Wed., Dec. 13, 10:00 a.m. Tix: $14, $11 children (age 2-17) and srs (age 60+); 952-9791111; www.stagestheatre.org

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Church Basement Ladies Ongoing Performances Plymouth Playhouse performs at the Best Western Kelly Inn, 2705 Annapolis Lane (I-494 & Hwy 55), Plymouth. ASL: Wed., Nov. 22, 8:00 p.m.; Wed., Dec. 20, 8:00 p.m. Tix: Reduced to $22; 763-5531600; ask for ASL discount; www.plymouthplayhouse.com

Â¼ mile west of Hwy. 280 Across from KSTP

December 10, 2006

PERFORM-

Cont. from p. 13

7:30 p.m. Tix: ½ price (reg: $9 Ticketworks: 651-209-6689 or adult/sr, $7 student, $5 child 5 www.ticketworks.com; www. & ); 651-792-7414 ext. 2; interactcenter.com. www.rosetownplayhouse. org Love Letters Dec. 29 - Jan. 6, 2007 A Christmas Carol Sally Struthers & John ComThrough Dec 30, 2006. mand perform benefit for Wurtele Thrust Stage, Guthrie Blmngtn Civic Theatre, Theater, 818 2nd St. S., Mpls. Blmngtn Ctr for the Arts AD: Dec 9, 1:00 PM (sensory Schneider Theater. 1800 W. tour 10:30 a.m.). ASL: Dec. Old Shakopee Rd. AD: 20, 10:30 a.m. Tix: Reduced Thurs., Jan. 4, 7:30 p.m. ASL: to $17; reg. $22-$52; 612-377- Sat., Jan. 6, 7:30 p.m. Tix: 2224, TTY 612-377-6626. Reduced to $31; reg. $32-38; www.guthrietheater.org 952-563-8575; www.bloom ingtoncivictheatre.org Worldwide Church of the Loot Handicapped Jan. 5 - 28, 2007 Through Sat, Dec 16. Interact Ctr, 212 3rd Ave. N., Theatre in the Round, 245 Ce#140, Mpls. AD: Sat, Dec 2, dar Ave., Mpls. AD: Sun., Jan. 3:00 p.m. and Sat, Dec 9, 7:30 28, 2:00 p.m. Tix: $20, srs/ p.m. ASL: 3:00 & 7:30 p.m. students disc; 612-333-3010; Tix: disc to $10 for AD/ASL; www.theatreintheround.org

Arts of the Pacific Islands Jan. 7, 2007 Mpls. Inst. of Arts, 2400 3rd Ave. S., Mpls. ASL: Sun., Jan. 7, 2:00 p.m. Tix: exhibition adm chg ; free interpreted tour begins in Target Wing, 2nd flr atrium; 612-870-3131 or TTY 612-870-3132 or E-mail: dhegstro@artsmia.org Web: www.artsmia.org The Belle of Amherst Jan. 10 - 14, 2007 Fargo-Moorhead Community Theatre, 333 4th St. S., Fargo. AD: Sat., Jan. 13, 8:00 p.m. ASL: request in adv. Tix: disc to $12.50, $10 srs 65+, $7.50 students; 701-235-6778, 877687-7469; www.fmct.org

Buried Child Jan. 11 - 27, 2007 Tin Roof Theatre Co. at Main Ave Theatre, 716 Main Ave., Fargo, ND. AD: Sat., Jan. 20, 7:30 p.m. Tix: disc $8 (reg. $15, student/sr $10); 701-3065843; www.tinrooftheatre. com

Chicago Jan. 16 - 21, 2007 Ordway Ctr for the Performing Arts Main Hall, 345 Washington, St. Paul. ASL: Fri., Jan. 19, 8:00 p.m. AD: Sat., Jan. 20, 2:00 p.m. Tix: 651224-4222, TTY 651-2823100; Web: www.ordway.org/ services/access.asp

Ave. S., Mpls. AD: Fri., Jan. 26, 8:00 p.m. ASL: Upon req. ASAP. Tix: disc to $33 for AD/ASL; $40 Fri.; $45; Sat.; $35 rest; www.southern theater.org

100 Men’s Wife Jan. 20 - Feb. 10, 2007 History Theatre, 30 E. 10th St., St. Paul. AD: Sun., Jan. Woman Before a Glass 28, 2:00 p.m. ASL: Sun., Feb. Carousel 4, 2:00 p.m. Tix: Reduced to Jan. 13 - Feb. 4, 2007 Jan. 18 - Feb. 4, 2007 $15; 651-292-4323; Web: MN Jewish Theatre Co at Hillcrest Ctr Theater, 1978 Ford Nautilus Music-Theater at South- www.historytheatre.com Pkwy, St. Paul AD: Sun., Jan ern Theater, 1420 Washington 21, 2:00 p.m. Tix: disc to $13 (reg. $17-24), 651-647-4315; www.mnjewishtheatre.org

NEWS AT A GLANCE -

from p. 6

ages. Adults can choose from a variety of assignments, shift options and commitment levels. Youths and teens under age 16 can volunteer with adult. People with disabilities encouraged to apply; the museum is accessible. Volunteers can enhance visitor experiences through storytelling and demonstrations as a Tour Guide; explain exhibits and interactive activities as an Exhibit Interpreter; facilitate and encourage exploration, play and problem solving as a Family Science Saturday Activity Assistant; and more.

Theater Review

Vestibular Sense Recent Mixed Blood Premiere Examines the World of Autism by Patricia A. Moore

FFI: www.thebakken.org or call 612-926-3878. [Source: Bakken Museum]

Part D Plans: Still Time to Change When a young man with autism and a perseverant predilection for roller coasters gets caught up in Fourth of July hi-jinks at a Norse theme park, his autism proves to be simultaneously an advantage and a bane. This touching, comic drama illustrates the frustration and élan of people with autism and the friends,

family, and colleagues who surround them. Written by Ken LaZebnik, Garrison Keillor’s co-screenstory writer for the “A Prairie Home Companion” movie. (Summary from www.mixedblood.com.)

I would have to reiterate that “Vestibular Sense” was an astounding play with remarkable acting from all cast members! The play leaves you with a heart-wrenching, mind-awakening, soul-moving compassion that can lead to a greater understanding of life for anyone who is disabled. Not to close them in but to be open to life’s realities for them. I was deeply touched; I felt some tears and enjoyed a few laughs!

laywright Ken LaZebnik got his inspiration for his new play “Vestibular Sense“ from his two family members who live with autism! He used the play to awaken our minds to this disability, and to give us a greater understanding of the everyday obstacles that people with autism have to overcome. These are basically the same obstacles faced by people with other disabilities.. “Vestibular Sense” presents the age-old specter of disability stereotypes: how the general public tries to box in disabled people, how those without disabilities think they know best for people with disabilities. But the play does more; it opens our minds to a different possibility—that each situation involving someone who is disabled should be looked at openly and each person treated uniquely! The Mixed Blood Theater cast, through Mr. LaZebnik’s strong characters, offer deeply affecting performances. Brian Skellenger was outstanding in his portrayal of Isaac and his life with autism—truly a Tony Award-winning effort. His performance touched my heart. I live with a disability myself and his work opened my mind to the many ways a disability affects people! Through the eyes of Isaac, I was able to see to how my disability affects a lot of people that I don’t really pay attention too.

The supporting roles are quite familiar as types for anyone with a disability. In the roles of Etta (played by Karen Landry), Seneca (Ansa Akyea), and Risky (Lada Vishtak), we see the people who are positive influences, trying to help. Unfortunately, there are the others, like Emin (Barzin Akhavan), Ekdahl (Raul Ramos), and B.J. (Nate Krantz), who are simply negative and use their disability to take advantage.

Thank you Ken LaZebnik for writing “Vestibular Sense,” an astonishing play for those of us who are disabled. Thank you Mixed Blood for a great array of cast members who were able to show us the complexities, both stark and subtle. As a person with a disability, I was moved; seeing the familiar in a new light and the possibilities in new ways. Once again, INCREDIBLE PERFORMANCE! ■

Just when we thought we were all set, it’s time to check and see if we should stay with the same Medicare Part D plan or change to another plan. From November 15, 2006 to December 31, 2006, people who are currently on Medicare Part D plans are in an open enrollment period. Insurance premiums on all the plans are likely to change, in many cases, increase, for 2007. The plan that was best for you this year may not be best next year. It is necessary for people on Medicare Part D plans to check their coverage, to see if another plan will cover their drugs more cheaply next year, or, even, to make sure the same medications they have in 2006 will be covered by the plan in 2007. It’s fairly easy to compare drug plans. There are several computer tools to help. You can go to www.medicare.gov. For more claimant-centered assistance, you can go to www.medicarerights.org, or www.aarp.org. If you have a disability, you can get an appointment through the Disability Linkage Line: 1-866-333-2466. The Linkage Line is located at the Metropolitan Center for Independent Living, MCIL, at 1600 University Avenue in St. Paul. You can find other resources to help compare medical plans through senior centers or assisted living facilities. Just be sure to avail yourself of the opportunity to check your current plan to see if it’s still the best plan for you. If it is, you need do nothing. Your coverage will continue under that plan. If you need to change plans, you must complete that process by December 31, 2006. [Source: Kathy Hagen, Staff Attorney, Minnesota Disability Law Center] ■

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December 10, 2006

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Employment ads are $16-$17 per col. inch. Oct 31 is the deadline for the November 10 issue. Mail to: ACCESS PRESS, 1821 University Ave. #104S, St. Paul, MN 55104 • FAX 651-644-2136 • E-mail: access@accesspress.org Utility Financial Analyst 3 Minnesota Public Utilities Commission The Minnesota Public Utilities Commission seeks candidates for Financial Analyst 3 who have technical experience in the electricity industry and the skills and knowledge to direct and conduct investigations of financial matters involving electric utility companies. Financial analysts examine and interpret complex utility company financial statements and prepare reports regarding the appropriateness of rate base, income statements, and revenue requirements. The incumbent would be responsible for evaluating regulatory matters, clarifying record evidence to ensure completeness, preparing reports based on record information to assist Commission decisionmaking, as well as monitoring and, at times, participating in regional and national forums on energy issues.In addition to industry experience, candidates should hold a degree in accounting; additional professional certification would be significant. Candidates must apply online at www.doer. state.mn.us (click on “Employment Information”; “Search for a job” (left margin); under “Dept” choose “Public Utilities Comm”). Please submit information by December 29, 2006.The Minnesota Public Utilities Commission is an Affirmative Action/Equal Opportunity Employer and complies with the ADA.

TICKET -

Utility Rates Analyst 3 Minnesota Public Utilities Commission The Minnesota Public Utilities Commission seeks Utility Rates Analyst 3 candidates with technical experience in the electricity or natural gas industries and the skills and knowledge to direct and conduct investigations of rate matters involving these industries. Rates analysts evaluate utility company proposed rate structures, allocations of revenue requirements to classes of customers, class cost studies, rate of return and cost of capital studies, and delivery of service proposals. The incumbent would be responsible for evaluating regulatory matters, clarifying record evidence to ensure completeness, preparing reports based on record information to assist Commission decision-making, as well as monitoring and, at times, participating in regional and national forums on energy issues.In addition to industry experience, candidates should hold a law degree or graduate degree in business, economics, finance, statistics, or energy public policy.Candidates must apply online at www.doer.state.mn.us (click on “Employment Information”; “Search for a job” (left margin); under “Dept” choose “Public Utilities Comm”). Please submit information by December 29, 2006.The Minnesota Public Utilities Commission is an Affirmative Action/Equal Opportunity Employer and complies with the ADA.

Cont. from p. 3

Under these regulations, ENs are losing interest in providing service because they stand a good chance of not ever being paid.

The new regulations would ing ENs more incentive to acallow for periodic payments cept tickets. ■ to ENs through the whole process of finding work, thus giv-

Ticket to Work Regs: What Can You Do? There is less than a month left to urge SSA to implement regulations before January. The time to act is now. Contact the White House and voice your concerns today (Fax: 202-456-2461, e-mail: comments@whitehouse.gov). •

law giving Americans with disabilities the ability to choose their own support services and to maintain their health benefits when they return to work.” Taking three years to implement needed improvements to the regulations is not “swift implementation.”

The message should be brief, not a form letter. Be sure to give your name and address and whether you have a disability or work with people • Because the current reguwith disabilities. lations and payment system cost ENs more money Here are some pointers, but than they receive to assist be sure to put it in your own Ticket users, the majority words. of current ENs are not “taking Tickets.” • On Feb 1, 2001 President Bush signed the New • The wait has been so long Freedom Initiative, which that each day the reputacalled on the SSA to tion of the Ticket to Work “swiftly implement the as a failed program grows.

People with disabilities had so much hope when the Work Incentives Act was passed in 2000 with the interim regulations in place. It will be unconscionable if their hopes for independence are squelched by the dragging of feet on the part of the SSA. • It is imperative that the final Ticket to Work regulations be published now.

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ANSWERS Cont. from p. 12 1. 2. 3. 4. 5. 6.

d l i k f j

7. 8. 9. 10. 11. 12.

g h e a b c

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Thank you for any assistance you can give. ■ Kathleen R. Hagen, Attorneyat-Law, Protection and Advocacy of Beneficiaries of Social Security, Minnesota Disability Law Center

Virginia Hand Therapist 11 years

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