Full event brochure - Charity Ball 2017

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Holder Signature

ST HELENS

Place of birth

RUNWITHGEORGE

Gender MALE

Nationality BRITISH CITIZEN

Given names

Surname MATHIAS

Date of Birth 23 JUN 2006

GEORGE RICHARD

Code GBR

Type P

A L D ER HEY char i t y BA L L D o cumen t of Ide n tity

RE


Welcome

to the alder hey children’s charity run with george ball 2018

It is a great honour to be able to welcome you to this very special event in support of Alder Hey Children’s Hospital. Alder Hey is a wonderful place which has been part of the local community for over 100 years and is now the busiest children’s hospital in the UK. Treating over 270,000 children every year, it touches the lives of families not only in the north of England but across the U.K and overseas. I am very proud to be here this evening and to see such fantastic support for such a worthwhile cause. The money that we raise tonight will make a real difference to the lives of the young children in our care. I’d like to say a special thank you to George who is a truly inspirational young man and I hope that together we can make his birthday wish, to raise even more funds for Alder Hey, come true here tonight. Thank you all for your generous support. Have a wonderful evening. Sir Malcolm Thornton, Chair, Alder Hey Children’s Charity

Hi, I’m George Mathias. Thank you so much for coming to support Alder Hey tonight, the night before my birthday! I never dreamed when I started running, just how exciting my journey would be. I wanted to say thank you to Alder Hey for saving my little brother James’s life, and giving me the best friend I had dreamed of. My mission is to make sure as many children as possible get the chance to grow up with their brothers and sisters, and so I want to carry on raising as much money for life saving equipment as possible. I hope you enjoy the night, and that together we can make a real difference to the lives of children and their families across the UK. Thanks for your support, it means the world. Winner Pride of Britain 2017

IN THE COMMUNITY


Ambassadors

AR RI VA L

These are some of our other amazing fundraising ambassadors, each with their own story, some of which we have shared with you on your tables. Please take a moment to read why your ambassador thinks helping Alder Hey Children’s Charity is so important.

James & George

Archie

Ben

Hayden & Lewis

Geelan Brothers

Frankie

Erin

Ben

Freddy

Harry

Huzaifah

Caitlyn


William and Isabelle

Jacob

Katie

Megan

Ruben

Rose

Sonny & Ria

Saoirse

Lily

Jess

Ted

Hollie

Grace

Kenzie


the MENU for the evening CanapĂŠs (served from 7.15pm) Rob Greaves Cumberland chipolata, mustard mayonnaise Mini smoked salmon and cream cheese ice cream cones/Smoked salmon lollipops (gin cured/beetroot/treacle) Goats cheese, oven dried tomato, basil pesto, crouton Trio of beetroot, feta cheese croquette, honey jelly Scotch quail eggs, sausage and rosemary Scouse croquette, pickled red cabbage

Dinner Five week hung fillet of Bowland beef, rocket & parmesan salad, vine roasted tomatoes, chunky chips, pepper sauce (V) Baby vegetable tart, rocket and parmesan salad, vine roasted tomatoes, chunky chips, red pepper sauce

Dessert George’s chocolate birthday cake

oved


One of our newest ambassadors is 6 year old Frankie who was diagnosed with Juvenile Idiopathic Arthritis when he was just 18 months old. Despite his arthritis Frankie loves to dance and is a huge Michael Jackson fan – in fact his moonwalking talents have already raised money for Alder Hey.

TBC


YOUR mc for the evening Name:

BEN Shephard Ben is one of the best known faces on British Television, hosting shows including ‘Good Morning Britain’, ‘Ninja Warrior’, ‘Tipping Point’ and ‘Goals on Sunday’. Ben ran with George last August, taking him around the Ninja Warrior course, and he has been a huge supporter ever since. He even presented George with his Pride of Britain Award. When asked who he wanted to host the evening, there was only one name on George’s mind……his friend Ben! We are thrilled that Ben came straight from the Good Morning Britain Studios to be with us tonight. Thank you so much!

“It is my pleasure to be your MC for this special evening. I first met George when I ran with him around the Ninja Warrior course last August, and I was so proud to be able to announce live on Good Morning Britain that he had won the Pride of Britain Young Fundraiser of the Year Award. We have become great friends ever since! As a father of two boys myself, it is so wonderful to see the dedication George has shown with his incredible efforts to say thank you to Alder Hey Children’s Hospital for saving his little brother James’ life. Tonight’s entertainment is going to be spectacular, so sit back, prepare for lift off, and enjoy your evening!” Ben Shephard


YOUR ENTERTAINMENT Name: JON CULSHAW Jon is a man who needs no introduction, having been a regular on TV for over 20 years. Starting his career as an impressionist on Spitting Image, Jon has gone on to huge success with ‘The Impressionable Jon Culshaw’, ‘2DTV’, ‘Newzoids’ and ‘Dead Ringers’. Let’s hope there are a few people in the room tonight who Jon can impersonate!

Name: PETE FIRMAN Pete Firman is the UK’s leading comedy magician, and a TV regular, appearing on ‘The Next Great Magician’, ‘Tonight at the London Palladium’, ‘The Generation Game’ and ‘The John Bishop Show’ among many others. Be prepared for Pete’s unique blend of magic and comedy!

Name: PAUL ZERDIN Not many people can say they have been on ‘America’s Got Talent’. Fewer still can say they have WON IT!! Since winning in 2015, Paul has enjoyed sell out tours in the US and UK, and he has flown in especially tonight from Las Vegas, where he is the resident headline act at Planet Hollywood Resort. With three appearances at the Royal Variety Performance, Paul is a man in huge demand, and we are delighted he is joining us tonight. We’re not sure who he’s bringing with him though!


An Auction with a difference! During the evening we are hosting an auction with a difference in that we are asking for support for medical equipment which we need in the hospital. This will be a ‘collective auction’ with multiple bidders winning the opportunity to ‘buy’ the equipment. The highest bidder will win naming rights to the equipment and all donors will be recognised on the wall of fame next to the equipment. In addition, bids over £10,000 will be recognised on the donor wall in the main atrium. For those of you who wish to take part in the auction, details of the lots are on the following pages. If not, don’t worry, you can still make a difference and contribute to the evening using the pledge cards on your tables.

PLEDGE CARDS On your tables you will find pledge cards which you can use to support Alder Hey Children’s Charity to an amount of your choice.

£1k could fund sensory toys for our patients. These toys not only entertain young children, but also help children with their cognitive development, their physical skills as well as enhancing children’s communication and social skills. £3k could fund equipment that will enable patients undergoing surgery to have their anaesthetic delivered directly into the bloodstream, removing the need for the use of gas, which means our young patients will come round after surgery more quickly and more comfortably. £5k could allow a music therapist to work with our children and families on our wards helping patients with their recovery and rehabilitation. £10k could support the furnishing of one of the counselling rooms in the new Alder Centre, which provides support for bereaved siblings and parents.



Auction lots

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LOT NO.1

MAKING MRI SCANS FUN

SensaVue sends visual and auditory signals from a variety of media sources to a high-resolution 32” display, which can be positioned virtually anywhere in the MRI suite, ensuring children are calmed, distracted and entertained during what can be a traumatic and long examination. 5 year old Grace from Hoylake, has a condition called Chiari I malformation where the lowest part of the back of the brain extends into the spinal canal. This can put pressure on the brainstem and spinal cord; the most common symptoms are headaches or pain in the back of the head or neck. Mum Linda said “Grace has had various scans before including MRI to monitor her condition and she only had surgery in March last year, but I was really anxious about this procedure in particular as this is the first time she’s had an MRI without general anaesthetic. I rang the hospital up twice because I was so nervous, but they were great and really reassured me. It helped a lot knowing that she would have a DVD to watch as I knew this would keep Grace calm. We were even allowed to bring our own in.” Jen Cornett, Radiographer said “When we explain to parents that there is a television, it really helps them to feel less anxious and helps them to then explain the process to their child as a ‘fun’ experience. We’ve even had lots of donations of DVD’s from parents who have seen what a difference the equipment makes.” Heather Roper, Radiographer said “The DVD player is an essential distraction device to enable us to do the scan without general anaesthetic (GA). There are risks associated with GA and the whole process takes a lot longer, the child can’t eat before anaesthetic so we prefer not to use it when we can. Picking and watching a DVD is part of the whole experience and makes the prospect of the scan a lot less daunting.The current system is now very old and needs to be replaced. We want to continue with the amazing results we achieve and so this equipment desperately needs updating.”

The total cost for this equipment is £22,500


Pippa with play specialist Pat

LOT NO.2 Enhancing our Epilepsy Surgery Alder Hey is proud to be part of the Northern Children’s Epilepsy Surgery Service, one of just four centres offering ground-breaking epilepsy surgery in the UK. The epilepsy patients we treat here are severely affected by their condition, some children suffering multiple seizures on a daily basis. Our main goal when caring for children with epilepsy is to become seizurefree, dramatically improving their quality of life including sleep, psychological development, educational prospects and even the ability to learn to drive when they reach adulthood. It has been demonstrated that this surgery can dramatically reduce seizures and the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Our specialist team can identify the area of the brain where the epilepsy comes from and take it away. However, it is crucial that we are able to identify the boundaries of the section to be removed with absolute accuracy. There are two pieces of equipment that work together and are crucial in preparation for this surgery. They allow the surgeon to stimulate parts of the brain to identify the origin of seizures and safely remove that part. The detailed readings ensure that the surgery avoids any area of eloquent cortex - the areas that deal with senses, speech and movement. The new equipment would double the amount of readings that can be taken, so that our team can map all the readings during one single procedure with pinpoint accuracy. This minimises stress for the patient and family and dramatically reduces risk in surgery for the child. The technology will work twice as hard for our patients and help our world class neurosurgeons give children with epilepsy the chance to flourish and have an excellent quality of life.

The total cost for this equipment is ÂŁ94,000


Patient Kira with Consultant Orthodontist Susana Dominguez-Gonzalez

LOT NO.3

REDUCING REPEAT EXPOSURE TO RADIATION CBCT systems are often used in dentistry and provide excellent 3D images of teeth, soft tissue and nerve pathways. The technology has distinct advantages over outdated CT methods. It dramatically reduces the amount of time it takes (now just 20 seconds) and the amount of radiation that our patients are exposed to by around 90%. Repeated radiation exposure of the head and neck area can cause long term problems, including potential damage to the child’s eyes. Another transformative feature of this technology is the size of the area it can scan, opening up amazing possibilities for our consultants across many departments. Our current equipment is limited in that it only allows us to capture an area around the size of a credit card, whereas the new system would expand the field to the entire craniofacial area. This means that the scanner could help many more children across more departments including Ears, Nose & Throat, Maxillofacial and Oral surgery, Orthodontics, Craniofacial and Audiology. The new system would provide dramatically improved image quality and help experts at Alder Hey to continue to provide world-class diagnosis and treatment to a catchment of over 8 million children across the UK.

The total cost of the equipment is ÂŁ120,000


LOT NO.4

Robotics in neurosurgery: Maintaining a world Class Alder Hey.

Consultant Paediatric Neurosurgeon Benedetta Pettorini trialing the equipment

The Kinevo Robotic microscope has been described by leading brain surgeons at Alder Hey as ‘one of the best pieces of equipment’ they have ever trialled.

During neurosurgery, surgeons need to magnify a brain tumour and the area around it to ensure that they can see and remove all or as much of the tumour as they possibly can. To help them do this, the multifunctional microscope has a 3D effect so they are able to see the depth of the tumour, dramatically increasing accuracy. Another key feature is the endoprobe, which can bend round complex tumours and internal body parts to ensure nothing is missed. This particular function is game changing as it has the potential to avoid second phase surgeries in complex tumours. This not only minimises risk but reduces stress and anxiety for patients and families. It is common for surgeons to swap over during long surgeries. The microscope allows the surgeon taking over to get up to speed with the procedure much more quickly and efficiently as each step is logged and then magnified on screen. This can mean operations being shorter and less intrusive for the child. The wifi connectivity allows specialists from across the world to link in, guide and advise surgeons. This is also an excellent tool for medical students to watch and learn from live surgeries. While the surgeons do use magnifying equipment in surgery already, it is over ten years old and the extra vital functions of the Kinevo Robotic microscope such as the endoprobe, are truly priceless. It is like comparing using an iPhone 3 to an iPhone 8. The neurosurgery department at Alder Hey is world class and Kinevo will help neurosurgeons to maintain their excellent reputation nationally and internationally, aiding them to do their absolute best for some of our most vulnerable patients from across the country.

The total cost of the Kinevo 900 Robotic Visualisation System is ÂŁ450,000


JUST HEARING ABOUT GEORGE'S ACHIEVEMENTS MAKES US FEEL EXHAUSTED... PHEWWWW! THE HUT ADVERT

WE ARE PROUD TO SUPPORT RUN WITH GEORGE AND ALDER HEY CHILDREN’S CHARITY.

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Good luck to George and Alder Hey Children’s Charity. We hope you RUN up lots of money for life saving equipment! With love from everyone at Belerion Capital.

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Clare White, Chief Executive Alder Hey Children’s Charity T: 0151 252 5827 M: 07717 484 777 Eaton Road, Liverpool, L12 2AP www.alderheycharity.org Registered Charity Number: 1160661


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