Dementia in Europe magazine, issue 34, October 2020

Page 41

30 YEARS OF ALZHEIMER EUROPE

Jean Georges looks back on his 24 years as Executive Director of Alzheimer Europe On 1 November 1996, Jean Georges joined Alzheimer Europe as its first Executive Director. In this interview, he looks back at some of the key achievements of the organisation and its plans for the coming years. This year marks 30 years of Alzheimer Europe – what are your reflections on this anniversary? Looking back on the history of Alzheimer Europe, I want to start by paying tribute to the vision of the founders of our European movement: Michael Coote from Ireland, Henk ter Haar from the Netherlands and Franz Baro from Belgium felt that their associations could both learn from other organisations and share their innovative projects and activities with others. They convinced the representatives of 106 associations from six countries (Belgium, Finland, Ireland, Netherlands, Poland, and Spain) to meet for the first time on 3 September 1990 and to formally launch Alzheimer Europe. At this meeting, they adopted the following statement “Because we are all satisfied that we will benefit from European co-operation, and together can put more pressure on the

European Council, Commission, Parliament and other national and supranational organisations, we have decided to form a European Jean Georges Alzheimer organisation.” Co-operation and lobbying European institutions remain important priorities of Alzheimer Europe to this day. Fundamentally, some of the key roles and priorities of the organisation remain unchanged. I had the privilege to meet all three of the Alzheimer Europe is, above all, the umbrella founding fathers and I was happy to hear organisation of national Alzheimer’s assohow proud they were of the increasing rec- ciations and their support continues to be ognition and scope of the association which an important role. The membership of the they created. association has of course grown from the 10 founding organisations from 9 countries to Alzheimer Europe’s role has evolved and 39 associations from 35 countries. now looks significantly different to its earlier years – can you tell us more about how Similarly, we continue to raise awareness of and why this change occurred? dementia, represent the interests of people with dementia and their carers and lobby the I am truly proud to have been able to lead European institutions for a greater recogniAlzheimer Europe over the past 24 years and tion of dementia as a public health priority. accompany and, sometimes, instigate the However, the importance given to these primany changes that the organisation has orities has changed considerably. undergone. At the beginning of Alzheimer Europe, the focus was predominantly on supporting national members, helping them setting up websites and providing them with material, such as the Care manual or the Children’s book, which could help them in providing advice to carers and much needed information on Alzheimer’s disease. As the member associations continued to grow themselves and as the awareness of Alzheimer’s disease increased, Alzheimer Europe started to focus more on its policy work and in 2006, we adopted our Paris Declaration with the political priorities of the European dementia movement. This was followed by the development of our European

Henk ter Haar (Netherlands), Michael Coote (Ireland) and Franz Baro (Belgium) together in 1991

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Articles inside

Campaigning to “Bring Dementia Out”

10min
pages 32-35

organisation Looking back at 30 Years of Alzheimer Europe shaping dementia policy in Europe

20min
pages 47-56

Jean Georges looks back on his 24 years as Executive Director of Alzheimer Europe

7min
pages 41-43

Alzheimer Europe’s Honorary Treasurer reflects on the financial history of the

4min
pages 45-46

Iva Holmerová shares some of her highlights as Chairperson of Alzheimer Europe

3min
page 44

of dementias Brain Health Scotland initiative is launched

5min
pages 39-40

EU progresses in relation to health, research and budget policy

10min
pages 20-23

Vienna forms a working group of people with dementia

17min
pages 30-35

Alzheimer Europe hosts online meeting of Government Experts on Dementia

3min
page 24

Lancet Commission identifies 12 modifiable risk factors that could account for 40

8min
pages 36-38

COVID-19 pandemic poses questions for policy makers in supporting people with dementia and their carers

7min
pages 27-28

Kate Lee takes the helm at Alzheimer’s Society

3min
page 29

World Health Organization shares updates on its progress on work related to dementia

4min
pages 25-26

Germany launches its new National Dementia Strategy

5min
pages 18-19

PARADIGM project organises online Patient Engagement Open Forum

4min
pages 9-10

MOPEAD: shifting the paradigm to early diagnosis of Alzheimer’s disease

6min
pages 14-15

Alzheimer Europe elects new Board

7min
pages 4-5

Alzheimer Europe speaks to Vice-President Dubravka Šuica about the EU’s plans on

6min
pages 16-17

Helen Rochford-Brennan reflects on her time as Chairperson of the European Working

6min
pages 6-7

Celebrating one year of the RADAR-AD Patient Advisory Board

6min
pages 11-13

Alzheimer Europe calls for urgent action to address COVID-19 impact on research

3min
page 8
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