Consumer Advisory Panel

Where did 2015 go… I keep hearing only 6 more Fridays before Xmas and by the time you get to read this report there will probably be only 2 Fridays to go. Since the last update which was after the ASM it has been a relatively quiet time for the CAP and maybe it is just as well as quite a few members have taken a well-deserved holiday.

Community engagement: There will be another edition of ANZUP’s consumer magazine “A little below the belt” published before the end of the year with contributions from CAP members. As always please consider recommending this publication to your patients, family and friends should they be interested in learning more about clinical trials. We do get very encouraging feedback on the quality of the information and presentation, so it is well worth promoting.

Below the Belt Pedalthon: One of the features in the next magazine will be lots of photos and an update on another very successful Below the Belt Pedalthon. Ian Davis, Peter Grimison, Ray Allen and I joined Simon Clarke and the ANZUP team, along with over 350 riders, to witness what was a fabulous day where we raised not only funds but awareness of ANZUP and the important work we do. Please consider marking the date, Tuesday 20 September 2016, in your diary and join Simon and the ANZUP team at Eastern Creek. If you haven’t watched the video clip https://www. youtube.com/watch?v=11Hl2icB_EY&app=desktop please take a moment to do so, you won’t be disappointed!!

As you know as a consequence of the Pedalthon and the funds raised the Board established the Below the Belt Research Fund to support ANZUP members in their research endeavours. In line with ANZUP’s strategic plan there will be CAP representation on the grant review panel. CAP membership: The CAP Terms of Reference (TOR) calls for current members who have served a 3 year term to reapply for a further term. I would like to take the opportunity to thank the entire current CAP for their contribution, generosity and support over the past few years. It has been a steep learning curve for us all and so enjoyable working with you.

We are also very grateful to those ANZUP members who have contacted Margaret and myself to nominate potential new members to serve on the CAP. This process ensures we have a well-represented panel across all the diseases we represent and who are keen to attend and contribute to the sub-committee discussions. I am pleased to report we have had several discussions with potential new members and we look forward to progressing this over the coming months.

2016: We look forward to continuing to be engaged across all ANZUP research activities and projects. The CAP is also in discussion about how we can help to increase community awareness and engagement to support ANZUP’s mission. We look forward to exploring these ideas with the broader ANZUP membership over the coming months.

Thanks and Happy Christmas: On behalf of the CAP we thank the ANZUP board, Marg, Liz, Yi and Andrew for their ongoing support. Also our sincere thanks to Leonie Young, ANZ BCTG CAP Chair, who continues to provide such fantastic mentorship and guidance to the CAP.

I wish you all a safe and happy festive season with family and friends. I am sure that 2016 will be another fantastic year for ANZUP and we look forward to being a part of this.

BELINDA JAGO Chair ANZUP Consumer Advisory Panel

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