ANZUP | A little below the belt magazine | February 2022

Page 53

Penile cancer survivorship Penile cancer survivorship in Western Australia amongst rural patients and Aboriginal and Torres Strait Islander people

Penile cancer falls within the rare cancer category. Due to the low number of people with rare cancers, the amount of research and clinical trials on these disease types are drastically less than those with common cancers. With less research, we have less information about these cancers and less community awareness, therefore diagnosis remains slow and treatment availability is limited. All of this adds to the increased mortality rates for rare cancers. Along with these challenges, non-Indigenous Australians, Aboriginal and Torres Strait Islander people are disadvantaged across an array of health and socioeconomic factors. This includes information and literature on survivorship amongst rural patients and Aboriginal and Torres Strait Islander People, which presents a priority for researchers. Cancer in Aboriginal and Torres Strait Islander people of Australia

An average of

1,279

5 year relative survival from cancer was

new cases of cancer a year in Indigenous Australians in 2009-2013

in Indigenous Australians in 2007-2014

3,626

An average of

Indigenous Australians alive at the end of 2013 who had been diagnosed with cancer

50%

DR. SIMEON NGWESO

Survivorship of many cancer types in the Aboriginal and Torres Strait Islander People, such as breast, prostate, colorectal, and lung cancer, is known. However, penile cancer survivorship amongst rural patients in Australia and Aboriginal and Torres Strait Islander People has not been published within the literature.

Dr. Simeon Ngweso recently undertook a study to review survivorship of penile cancer patients in Western Australia who were Aboriginal or Torres Strait Islander, or patients who were from rural communities, by performing a comprehensive, retrospective review of prospectively recorded penile cancer cases within the Western Australia Cancer Registry.

The research Penile cancer is a very rare cancer and accounts for less than 1% of all cancers in males. A retrospective review of prospectively recorded penile cancer cases within the Western Australia Cancer Registry, between 1992 and 2017, was undertaken. The review found 186 cases of invasive penile cancer were recorded. Of this group, 62 patients (33.3%) were from rural WA, nine patients (4.8%) were Aboriginal, and five Aboriginal patients and 13 rural patients died from penile cancer. This review demonstrated that penile cancer patients from WA who were Aboriginal, or from rural WA, were at a greatly increased risk of death due to penile cancer.

Conclusion and next steps 551 deaths

a year from cancer in Indigenous Australians in 2011-2015

https://www.aihw.gov.au/reports/cancer/cancer-inindigenous-australians/contents/table-of-contents

Moving forward, more research is needed to understand disease characteristics amongst these vulnerable populations. Also, joint efforts amongst key stakeholders are necessary to address health discrepancies and improve outcomes. It is the responsibility of all health service organisations to consider and action their part in closing the gap in health inequalities experienced by Aboriginal and Torres Strait Islander people.

A LITTLE BELOW THE BELT 53


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Articles inside

ANZUP’s 2021 Below the Belt Research Fund Recipients

6min
pages 57-58

Spotlight on penile cancer

4min
pages 51-52

Penile cancer survivorship

2min
page 53

ANZUP trials – kidney

1min
page 47

Thoughts from a Trial Investigator

6min
pages 48-50

Spotlight on kidney cancer

5min
pages 45-46

ANZUP trials – bladder

1min
page 38

A translational sub-study for bladder cancer

2min
page 37

CLIMATE trial led by ANZUP now open

6min
pages 42-44

Make a difference with ANZUP

0
page 34

Spotlight on prostate cancer

5min
pages 22-23

A clinical trial and a lucky life

8min
pages 26-28

Trials coming soon

4min
page 21

ANZUP and TrialHub bring prostate study to regional Victoria

4min
pages 24-25

ANZUP Below the Belt YourWay

2min
page 20

Grant application success

1min
page 17

Addressing Disparities in Cancer Care

4min
pages 18-19

Consumer Advisory Panel (CAP) Update

2min
page 9

CEO Update

4min
pages 7-8

Patient-led concept development

4min
pages 13-14

Noel Castan Fellowship Update

5min
pages 15-16

Friends of ANZUP

2min
page 12

Message from the Chair, Professor Ian Davis

9min
pages 5-6
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