Robertsons Give Hope to Families Facing OI Diagnosis

Woodstock resident LaTosha Robertson and her daughter, Crystal, 11, have demonstrated remarkable resilience and determination in their journey with osteogenesis imperfecta (OI). The bone disorder can result in fractures and affects approximately 1 out of 20,000 births.

Crystal was diagnosed with OI before she was born and, despite the prognosis that she may never walk, she has defied the odds. Through five surgeries, fractures and countless medical visits, Crystal’s unwavering spirit has propelled her to ride a bike without training wheels and thrive academically.

“Even as a baby, every time Crystal would have a fracture, she would break and recover, and then would meet milestones and continue to progress,” LaTosha said. “I am in awe of her resilience.”

LaTosha attributes Crystal’s progress to their faith, emphasizing the importance of trust in God, prayer and supportive communities during challenging moments. “We believe that Jesus is our healer, so that has helped us tremendously. Our family reads the Bible, and we refer to scriptures to encourage and sustain us. Trust God and continue to pray!” she said.

“Although OI is characterized as weak bones, I have repeatedly declared over Crystal that she has ‘strong bones.’ I’ve been saying it all her life by faith,” LaTosha said. “The sky is the limit, and I know she will do amazing things.”

Throughout their journey, LaTosha and Crystal have found support from various sources. Family played a crucial role, with LaTosha’s grandmother and younger sister offering invaluable assistance during the early stages. In-home daycare and faith-based environments have provided a nurturing environment for Crystal’s growth and development.

Medical resources, particularly the multidisciplinary teams at Children’s Healthcare of Atlanta, and the public and private school systems have played a significant role in their journey. Crystal first attended public school, where an individualized education plan was created to cater to her unique needs. Before she started at a private school in east Cobb, a customized plan also was implemented to ensure her success, inclusion and safety, LaTosha said.

Crystal hopes to encourage other families who are dealing with an OI diagnosis. “A lot of times, when you smile it encourages people and makes them happy. Having joy all the time encourages other people when you’re going through tough times, and that makes you happy, too,” she said.

Crystal is excited to attend Children’s Healthcare of Atlanta’s Camp Wishbone Family Weekend in September, where she will have the opportunity to participate in canoeing, kayaking, fishing, horseback riding, ceramics, biking, arts and crafts, archery and climbing. Her experience with OI proves there always is room for triumph, growth and joy in the face of challenges.