A MUST HAVE SURVIVAL GUIDE FOR TODAY’S FAMILY CARERS SUMMER 2022 | Issue 2 QLD
HOME CARE Assessments Explained CARER PAYMENTS
7
Do you know all that’s available?
QUESTIONS
carers must ask
12
Home Care Providers
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TIME OU
Puzzles, Quizzes Word Games Riddles & More
T
popular & helpful APPS for carers DOUBLE TROUBLE
DEMENTIA
Looking after both parents
Carer survey results are in Full report inside
CEO Maree McCabe AM
HELPFUL AND PRACTICAL CONTENT FOR FAMILY CARERS AND THEIR ELDERLY LOVED ONES
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This Issue’s Contributors Maree McCabe AM Chief Executive Officer Dementia Australia Rachel Lane Principal - Aged Care Gurus and Co Author of Aged Care, Who Cares Paul Koury Founder - Publisher Australian Carers Guide Mary Bart Chair of Caregiving Matters Rosie Bourton: Former Centrelink Officer Current Financial Advisor Michael Clohesy Wills and Estates at Gathered Here National Head of Legal Services Pat Irwin BA, AICB, CPCA President of ElderCare Wesley Rush Freelance Journalist Theresa Albert DHN, RNCP Will Richardson Puzzles supplied by Richardson Publishing Group Apology: Dealing with Angry and Emotional Elderly Parents article in our Spring Edition was written by Jennifer Brosnan
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Australian Carers Guide | SUMMER 2022
H
ello and welcome to the second edition of the Australian Carers Guide. First thing I’d like to say is a big thank you to all our lovely readers who wrote, emailed and rang us to voice their gratitude for creating this magazine just for you. Your responses confirmed the huge need to have a resource full of practical and educational information for carers. But my highlight was having the privilege of speaking to many of you and hearing your remarkable stories. The proofs in the Print Whatever one does prior to launching a new publication, there is still nothing like subscriptions sales and reader feedback to confirm that there was indeed a huge void in the market for carers to have their own publication. A magazine that sees them, appreciates them, informs, educates, and empowers them. We knew that a large majority of readers aged 50+ still prefer print as their reading choice but it’s nice to have it confirmed by the enormous number of annual subscriptions we received. The larger font format added to the attraction of our magazine and was greatly appreciated by you all. Shaping our magazine together A special thank you to all of you that shared your ideas for the things you would like to see added in future editions. There were some great suggestions such as a News and Current Affairs
section as well as ongoing updates in the roll out of New Services Available from our New Aged in Age Care article. The Australian Carers Guide belongs to you and exists to serve you to meet your needs therefore we have taken your suggestions on board and will include them in upcoming editions. If you would like to put forth your suggestions, ideas or any feedback, please send emails to Editor@ acguide.com.au or write to us at PO Box 6155 Wantirna VIC 3152. Highlights In this Edition In this edition you’ll find many great informative articles to enjoy. One of the highlights is the top 7 questions you must ask home care service providers. It’s essential to be well informed and satisfied with the providers you chose to come into your home for your loved one’s care. Government initiatives to assist our elderly to stay home has spawned a myriad of new providers and agencies that’s why these 7 must ask
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Whether you’re new to caring or have been providing care for many years, you will find something interesting, meaningful, and entertaining in every edition.
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questions will help you sort the wheat from the chaff. Keeping you up to date Our Aged Care landscape is rapidly changing, triggered by the Royal Commission’s recommendations. Funding from the $17.9 billion allocated in this year’s Federal budget for Aged Care reform was announced by treasurer Mr. Josh Frydenberg.
One of the most exciting initiatives being rolled out is Face to Face personal assistance for people needing help with My Aged Care. Yes, you read it right. The federal Government is rolling out a new initiate to assist carers in navigating and understanding the My Aged Care website by providing Face to Face assistance. And whilst it was the Federal Health minister, the Hon Greg Hunt who announced the initiative, it was the hard work that our Carer advocates have been doing behind the scenes that have helped bring about action for positive change.
ISSUE 2 Summer 2022
(VR) was having on residents in care. In this edition we look at how technology is assisting carers in the management of their elderly loved ones. We selected the 12 most popular and helpful apps which will surely help you through the caregiving journey. Home Care Assessments We had received multiple requests from our readers wanting to better understand the Home Care Assessment process. There is much confusion around RAS, ACAT and ACAS and what the differences are and how it all works. Check out our feature article inside. Take Time Out For Yourself We received so much feedback on our Time Out Puzzle section that we have included an extra 2 pages. We included a maze which has been clinically proven to help with cognitive processes. When you need to take some time out, grab a nice drink and curl up and enjoy our 8 pages of entertainment including Brain games, Word Searches,
Crosswords, and much more, for your enjoyment. Online – But Wait, There’s More Also be sure to visit our website which contains further practical resources, including videos, podcasts, and other carer stories for you to enjoy. The Australian Carers Guide is produced four times per year in Print, Digital and Online formats. Subscription offers are inside. We had a lot of fun again putting this edition together for you and hope you enjoy reading it. All feedback to Publisher@acguide.com.au Paul Koury - Publisher
Technology: App App & Away With technology playing a bigger role in our lives, it’s no surprise to see it being used in the Aged Care. In our last edition, we looked at the impact that Virtual Reality
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Featured Contents 15
HOME CARE ASSESSMENTS EXPLAINED
27
CARER PAYMENTS
30
7 QUESTIONS TO ASK A HCP
40
DOUBLE TROUBLE
46
SEXUALITY AND AGING
50
ABOUT AUSTRALIAN CARERS GUIDE The Australian Carers Guide is a valuable resource for everyone who is caring for an aging parent, spouse or an elderly loved one. Out of the 2.7 million informal carers in Australia, 1.3 million care for their elderly family members or a loved one. Until now, there has never been anything in the mainstream market specifically for our family carers. Our guide delivers useful and practical information, all geared toward the carers and their well-being.
Being a carer for an elderly loved one is challenging enough without being expected to know and remember all the RAS, ACAT, ACAS and their differences. We explain it all. We list all the carer payments available which you may not know about. We explain each one, what you need to qualify, and how to apply. With more and more Home Care providers entering the Aged Care market, it’s important to choose the right one. We reveal the 7 must ask questions which will help you sort the wheat from the chaff. Some of us carers are looking after both parents at the same time. This situation brings about its own unique set of circumstances. Summer has always been seen as the month of love and age doesn’t change that. Only thing that changes is how our bodies respond. We look at how other older couples are still finding pleasure well into their 90’s.
PET THERAPY - WHO RESCUED WHO?
The benefits for older adults of spending time with a pet are well documented. Pet attachment is linked to strengthened emotional health, reduced depression and lower psychological distress.
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MULTI GENERATIONAL LIVING
84
10 TIPS FOR RETIREES WHO ARE CARERS
Many generations of families are choosing to live together for a myriad of reasons from financial to practical. With this comes challenges which we offer wise advice to reduce the clashes that can occur. Is retirement not quite turning out as you expected? Has sitting on a tropical island, sipping Martinis, been replaced by caring for a loved one? Make the most of retirement years with these words of advice.
Publication Mail Sales Product Agreement No. 72365477 Australian Carers Guide is published by PAK Allied Media on a quarterly basis. All rights reserved. Contents may not be reproduced without written permission of the publisher. Printed in Australia.
SUMMER 2022 | Australian Carers Guide
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Circle of Trust Trust is at the centre of everything that we do at Arcare As Australia’s only true 5 -star aged care group, you’ll enjoy the finest living environments with luxurious interiors. Beyond beautiful surrounds and chef prepared meals, when you join an Arcare community you will be supported by our unique Relationship-First Approach, that includes your own dedicated team. This commitment to continuity fosters friendships and trust.
Call 1300 ARCARE or visit arcare.com.au
Regular Contents 10
Publisher PAUL KOURY paul@acguide.com.au
YOUR FEEDBACK
18
TECHNOLOGY
Pre-press ROB BELL Limeworks.com.au Distribution/Circulation STEVE BISSETT Are Media Pty Ltd
A place where you can interact and share your thoughts with us and share anything that’s on your mind. is being used more and more within the Aged Care sector. We share the most popular apps that are helpful for carers and their elderly.
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LAW
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DEMENTIA Discrimination survey results revealed
Protect your kid inheritance Expert advice on how to protect your kids inheritance from unwanted third parties like uncle Sam.
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FINANCE
98
TIME-OUT
106
RECIPES
110
NEWS & VIEWS
Production Assistant KRISTY HATTON production@acguide.com.au
Design Exec MURRAY ROBERTS Limeworks.com.au
An area where you will find useful tips, wise advice and helpful updates.
Maree McCabe and Carers Australia releases the results of their survey on discrimination and Covid 19. Maree offers some suggestions on how we can support the carers of those living with dementia.
Advertising Sales LEANNE CLARKE leanne@acguide.com.au
Content Advisor JUDYTH GLANVILLE Highlandmarketing
THE SCOOP
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Office Manager JOSIE MAYER josie@acguide.com.au
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Publication Office PAK Allied Media ACN; 34 611 117 303 Suite 3/13 Elm Street Bayswater Victoria 3153 Tel: 1300 717 515 Acknowledgment The Australian Carers Guide acknowledges the Wurundjeri People as the traditional custodians of the place we now call Bayswater, where this magazine is published. We pay our respects to their Elders past and present and emerging.
Tis the season to talk aged care Rachel Lane knows only too well that the gathering of family during the festive season often leads to discussions around their elderly parents future health needs. Eight pages of Fun: Puzzles, Sudoku, Word Search and Quizzes to enjoy. Meals that Heal Healthy Quick & Easy Summer Meals.
In response to the RC recommendations, the govt will begin rolling out My Aged Care face to face assistance for anyone needing help.
SUMMER 2022 | Australian Carers Guide
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Scoop
THE
TIPS, WISE ADVICE AND HELPFUL UPDATES ACTIVITIES
QUICK FACTS
Fun and fabulous: Games and puzzles are often an easy way to engage older adults living with memory loss or low energy. If you don’t use it, you lose it.
• C herophobia is the irrational fear of fun and happiness.
Our Time Out Puzzle Section: In this edition, we have included a maze that will daze allowing you to train up hand-eye co-ordination and mental alertness. The more seniors enjoy the activity they are engaged in, the more rewarding they feel when completing each puzzle.
• The average male gets bored on a shopping trip after 26 minutes; women don’t get tired until after around 2 hours.
Sensory Fidget: Fidget toys, like fidget spinners and koosh balls, keep the seniors’ hand and minds busy through touch-based activities. Such toys soothe their anxious minds and prevent them from pulling at the clothes and picking at their skin. Scrapbook Evening: Scrap-booking was a staple in many households when our seniors were young, and are still an enjoyable activity today. Now that it’s the festive season, more families gather so makes the perfect time to pull out old family photos and memorabilia which can help stimulate seniors memories from long past years. Hide & Seek Memory Game: Hide and Seek is still a classic, but instead of hiding yourself, hide a valuable item such as their tooth brush. Hide a small surprise with the item to bring extra fun to the ‘young at heart’ players.
TO GIVE IS TO RECEIVE
• 30% of our aging characteristics are controlled by genetics - the remaining 70% are controlled by lifestyle factors such as exercise, nutrition.
TOILET TIME Getting to the bathroom on time becomes more important as we age. Check out these thoughtful ways to help a loved one make it. lear the path to the bathroom. Ensure it’s C free of obstacles and as direct as possible Leave the bathroom door open Install a ‘light up’ toilet seat se of duct tape strips U and nightlights to create a path to the bathroom Place a bedpan in their bed
One way to feel happier is to get involved in your community by serving as a volunteer. Research shows that feel-good hormones and brain activity increase during volunteering activities. In addition, you will be able to expand your social network and meet more like-minded individuals, which mitigates any feelings of isolation. Perhaps join a carer walking groups in your area. 10 Australian Carers Guide | SUMMER 2022
FAST FACT People with vision loss experience: • Double the incidence of difficulties in daily living and social dependence • Double the incidence of falls • Double the mortality rate • Triple the incidence of depression • Quadruple the incidence of hip fractures
THE
CELLULITE: FACT OR FICTION
NORMAL SKIN
Exercise or cutting calories will get rid of cellulite
FALSE. This type of fat corresponds to metabolized fat from food and genetic fat deposits often found around the buttocks CELLULITE and thighs. Losing weight by forcing yourself to follow a restrictive diet won’t solve the problem; nor will exercise. In fact, a diet can prove counter-productive, since you also risk losing muscle mass and accentuating any cellulite buildup. Walking, running, biking or skipping form part of an overall cellulite-busting strategy, giving a real boost to venous and lymphatic circulation.
Source: health.gov.au
FAMOUS QUOTES “Getting old is like climbing a m ou n t ai n ; you get a little out of breath, but the view is much better!”
The Mediterranean diet is the most effective.
- Ingrid Bergman
ROSACEA: JUST A BLUSH?
Scoop
TRUE. Cellulite is an inflammatory condition. A Mediterranean diet based on foods rich in antioxidants (fruit and vegetables, seeds, nuts, wholegrain cereals) is the best weapon for mass destruction. Foods with fast-acting sugars, with high glycemic indexes, should be avoided because they promote the storage of fat and cause insulin levels to spike. Watch out for hidden salt too.
2/3
of doctor visits Rosacea is a longlasting condition by seniors that produces lead to a prescription flushing and redness Source: tga.gov.au at the centre of the face and across the cheeks, nose or forehead. Inflammatory lesions are frequently encountered. While often relatively benign, it can be associated with burning, stinging, swelling and thickening of the facial skin. Rosacea is almost three times more prevalent among women. Source: raccgp.com.au
Source: houseofwellness.com.au
MORE DRUGS, MORE HOSPITAL VISITS... The risk of hospital visits climbs with each medication prescribed, according to a study from the U of T. The average senior takes seven drugs each year. The study suggests a second look at some drugs which are inappropriate under specialist guidelines. Source: health.gov.au SUMMER 2022 | Australian Carers Guide 11
YOUR FEEDBACK
We’ve got mail
👋
Hello fellow carers Since publishing our first edition, we received so many emails and dare I say snail mail, that it was hard to choose which 3 to include in this issue. Some wrote simply to express their appreciation but most of you wrote to express the variety of difficulties you were having caring for your elderly loved ones. I was personally touched by your stories and the good news is that there are some wonderful changes coming to our Aged Care sector since the Royal Commission handed down its recommendations. So, stay tuned. AVOIDING BURNOUT
GET A SECOND OPINION
NEVER TOO OLD TO LEARN
A friend was lucky enough to get a copy of your magazine. They were sold out when I tried. My daughter is such a saint and looks after her mother-in-law nearly full time. She is always exhausted and on the verge of burning out. I wanted her to read your brilliant article on self-care which I believe will help her realise the importance of putting the oxygen mask on herself first.
Thank you for a great magazine. It’s very informative. My husband had started displaying unusual behaviour a few years ago so I took him to a GP for tests. The GP said there was nothing wrong with him. I was unsatisfied so sought a second opinion. The second GP diagnosed him with dementia (vascular).
It’s been very hard to get support during the pandemic. My six grandkids taught me how to Zoom, so I check in with one of them every day. I’m not as fearful about technology anymore as I can see the huge benefit. My mind was telling me it’s all too complicated, but it was just unfamiliar, that’s all. My grandkids were so patient and I can’t thank them enough because now I have something to look forward to every day.
Sue, NSW
of the time but if you have no peace, listen to your gut and get a second opinion. It certainly won’t hurt.
🟨 Hi Sue, that’s great to hear.
We know how many carers are doing it tough however caring with no energy is even harder.
José, TAS
🟨 GPs are wonderful most
Richard, VIC
🟨 Great to hear. Technology is
a wonderful tool for seniors and our Technology article introduces you to even more helpful apps.
Paul Koury, the publisher for the ACG was invited to speak at the launch of the Carers for Caring Program at the Leopold Community Centre. “I was humbled to speak to this amazing group of people and grateful to hear all the issues facing carers and how our guide could provide information and helpful resources to make their journey easier.” From left to right Lynda Binder, Alan Davis, Jennifer Polley, Kylie Rawson, Kerrie Tomkins, Sherrill Roach, Paul Koury To give us your feedback, please write us at Australian Carers Guide, P.O. Box 6155 Wantirna, VIC 3152. Or email at Editor@acguide.com.au SUMMER 2022 | Australian Carers Guide 13
Do you know your aged care choices? Seeking additional care for an aging loved one can feel overwhelming. Their loss of independence can be extremely distressing, and expectations weigh heavily on family.
PLANNING FOR YOUR NEEDS Being time poor or supporting a family member who is showing resistance to care, means carers often struggle alone. Dana Sawyer from My Care Path explains, “Many carers don’t know their options. Planning together, we consider lifestyle, cultural, family and budgetary considerations, empowering carers to make choices centred around their unique circumstances”.
provide highly personalised aged care coordination with empathy and sensitivity, to help families support the best interests of their elderly loved ones. Mary from Victoria was supported by My Care Path to secure a care package for her elderly mother. “Navigating the system was completely foreign to my sister and me”, she said. “Jayne from My Care Path guided us every step of the way with kindness and compassion. Now Mum has the support she needs to stay living in her much-loved home”. Whether seeking in-home or residential aged care, the team at My Care Path are ready to support you to understand your choices.
STAYING HOME FOR LONGER Many older Australians prefer to stay in their homes for as long as possible and, increasingly, they can. My Care Path’s expert consultants
Discover your options: mycarepath.com.au 1300 755 702
AUSTRALIA’S PREMIER AGED CARE COORDINATION SERVICE Your path to quality aged care My Care Path is a national aged care coordination service. Whether you are considering government or privately funded options, looking for home or residential care providers, our end-to-end service will support every step. We will navigate this complex sector providing you with expert advice, to find the right support for your loved one.
Our services include: ✔ Aged care advocacy ✔ Selecting an aged care service to match your needs ✔ Home Care Package Comparison report ✔ Shortlisting aged care vacancies ✔ Explaining fees and charges ✔ Assistance with Centrelink and admission paperwork ✔ Support accessing and understanding ‘My Aged Care’ Every case is unique. No matter your budget or care needs, you don’t need to struggle through the system on your own.
Call us on 1300 755 702 mycarepath.com.au 14 Australian Carers Guide | SUMMER 2022
H ome care
Home Care
Assessments Explained
B
eing a carer for an elderly loved one is challenging enough without being expected to know and remember the many Acronyms used in the Aged Care sector. When looking to get your loved one assessed, you will most likely come across terms like RAS/ACAT/ACAS but what do they mean and how are they different? It’s important to understand what they mean as it will assist you in accessing the right care for your loved one. The main two that you will do well to understand is RAS – Regional Assessment Service and ACAT – Aged Care Assessment Team (or ACAS – Aged Care Assessment Service in Victoria only).
RAS vs ACAT All together, these terms come under the broader base of My Aged Care (MAC).
My Aged Care was introduced on 1 July 2013. The design intent was to allow the needs of older persons to be assessed and supported to locate and access services. Despite the so called “ease” with which a person’s needs can be assessed, navigating My Aged Care can be confusing and overwhelming. Breaking down the jargon and acronyms may give carers a simpler understanding of My Aged Care. While RAS and ACAT/S both fall under the broader umbrella that makes up My Aged Care, which pathway is better and where do I start? SUMMER 2022 | Australian Carers Guide 15
Referrals for an assessment can be made directly to My Aged Care via several ways. They can be made via a self-referral, through a carer, or through a GP or other health professional. An assessment is free of charge and there is no obligation to accept any of the recommendations. Assessments are usually face to face in either the client’s or carer’s home, or in some circumstances, in a hospital or alternative setting. To be eligible for referral, a person must be over 65 years of age (50 years and over for Aboriginal and Torres Strait Islander people).
looking to move into Residential Aged Care, an Aged Care Assessment is required. Approvals can also be sought for access to Residential Respite (short term support up to 63 days in a residential care facility).
An assessment with RAS is usually undertaken with a trained Home Support Assessor. The assessment determines the person’s needs, and then supports them to link into appropriate services that are required for them to live at home independently and to gain access to their community. This assessment is tailored for people who are relatively independent and wanting to access at-home services at low level care and needing basic entry level services. Referrals are then generated via a referral code or by direct referral to an appropriate Commonwealth Home Support Programme Provider.
HOME CARE PACKAGES PROVIDE FOUR LEVELS OF SUPPORT:
Examples of services that can be accessed include domestic support, home maintenance, personal care and Allied Health. A full list can be found at: www.myagedcare.gov.au In most states and territories, this process has been tendered out to organisations funded by the Commonwealth Government. In Victoria and Western Australia, current state models continue, with the Department of Health and Human Resources responsible for providing Regional Assessment Services across Victoria. For persons with more complex needs who require a greater level of support at home or are no longer able to live at home and are
The Aged Care Assessment is usually conducted by a Nurse, Allied Health or Social Worker, usually with experience in aged care. A person’s care needs are assessed to determine the best level to meet these needs through Commonwealth funded Home Care Packages.
LEVEL 1: BASIC CARE NEEDS LEVEL 2: LOW LEVEL CARE NEEDS LEVEL 3: INTERMEDIATE CARE NEEDS LEVEL 4: HIGH-LEVEL CARE NEEDS
The package is made up of a large proportion of Australian Government Subsidy and a contribution that is paid by the client.
Further information about costs and income-tested care fees can be found at www.myagedcare.gov.au (search on site Fee Estimator) or call my Aged Care on 1800 200 422. With the assessment determining a person’s care at the time, most people are likely to enter in at either a Level 1 or Level 2 Home Care Package. Given our aging population, the trend to live longer at home and the changing health of older persons, it is not uncommon for reassessments to be required to review the levels of Home Care Package support.
RAS is designed to complement the existing Aged Care Assessment Teams/Services. It has been flagged that the two services will merge in the future to enable one, rather than two currently very similar assessments. 16 Australian Carers Guide | SUMMER 2022
As outlined in the Royal Commission into Aged Care Quality and Safety (2018), there are substantial gaps in Aged Care, both in Residential Care and in meeting the needs of older people in their own homes. The current period of six to 18 months or longer is too long for older people and their carers to wait for their packages to become available. Hence the injection of $6.5 Billion, announced by the Federal Government in May 2021, and more than 80,000 Home Care Packages brought out in the next two years is long overdue. Once the assessment is completed and a person is approved, they are entered into a national priority system, based on when they were approved and the priority for services approved at the assessment.
FOR THOSE ASSIGNED THEIR HOME CARE PACKAGE, WHAT IS NEXT? With the introduction of My Aged Care in 2013 the choice of provider lies with the consumer. Each individual has the right to choose a provider that is right for them. The Government then pays their Service Provider a subsidy to arrange a package of care services to meet their needs. This is usually arranged via a meeting where a care plan is designed around their unique care needs. A provider may be sourced using the “Find a Provider Tool” on the My Aged Care Website. Comparing providers for their fees and the number of services they are able to provide is recommended.
IN CONCLUSION, WHICH IS THE RIGHT DIRECTION TO TAKE AND WHY HAVE I BEEN REFRERED TO THE RAS AS APPOSED TO THE ACAT/S? RAS is a great option for those requiring more immediate, entry level support to enable their loved one to remain at home. Often this is the assessment of choice even if an Aged Care Assessment is required. This is due to limited or slow access to more immediate supports and services due to the length of wait times for an Aged Care Assessment or Commonwealth Funded Package. The services via the RAS are often at basic entry level and may be short term only. An Aged Care Assessment via the ACAT/S is available to all people over the age of 65 (50 years and over for Aboriginal and Torres Strait Islander People). People undertaking an Assessment may at the time also be seeking approvals for residential aged care and residential respite options.
For those unsure, the RAS may make a recommendation and guide the carer to access an Aged Care Assessment and complete the referral.
Otherwise contacting My Aged Care is recommended, either calling 1800 200 422 to discuss or by enquiring via My Aged Care using an eligibility checker at myagedcare.gov.au/eligibility-checker SUMMER 2022 | Australian Carers Guide 17
T echnology
18 Australian Carers Guide | SUMMER 2022
12 Popular & Helpful Apps for Carers SUMMER 2022 | Australian Carers Guide 19
New technology is helping carers and their elderly improve their health outcomes.
In this article, Wesley Rush shows you the most popular and helpful ‘apps’. Some connect you with common services, others helps you create support networks, reduces stress, improve sleep and improve mental health.
COMMON SERVICES The National Disability Insurance Agency (NDIA) has launched the ‘my NDIS app’ for self-managing National Disability Insurance Scheme (NDIS) participants. Participants, nominees and child representatives who self-manage their NDIS plan can use the app to view their selfmanaged budget as well as make and manage claims on the go. The app is available from the Google play store and Apple app store. Dementia Australia’s Dementia-Friendly Home app enables the home to be made more dementia-friendly. This can allow a dementia sufferer to stay in their own home, enjoy their regular lifestyle activities, and remain engaged with their community for longer. Using interactive 3D game technology, the app provides carers ideas to make homes more accessible for people with dementia. Many of the app’s suggestions are small, inexpensive solutions. It’s available from the iTunes App Store or Google Play for $2.99. Dementia Caregiver Solutions features expert advice, strategies and tips to manage the most challenging dementia related behaviours and high-stress situations.
APPS THAT SPECIFICALLY CARE FOR CARERS There are multiple StressLess type apps available. (Search ‘stressless’ in your Apps Store.) Such apps can include psychology 20 Australian Carers Guide | SUMMER 2022
education about stress reduction and cognitive behavioural therapy. They can incorporate mindfulness skills training, wellbeing enhancement and behavioural/ enjoyment activation techniques.
ANXIETY & STRESS REDUCERS Sanvello is a digital toolkit that combines cognitive-behavioural therapy with coaching to reduce stress, anxiety, depression, and improve or maintain great mental health. Some carers have found that Sanvello is excellent for selfcare and feeling good. Sanvello includes: n Mood and goal tracking n Activities that allow you to journal and examine thought patterns n Managing difficult emotions, building confidence, developing a mindfulness practice
Take time to feed your mind with healthy words and thoughts.
n Therapy and one-on-one coaching. Sanvello premium version may be covered by health insurance. The MindMate app is about cognitive and physical health maintenance/improvement. It can tackle memory loss and cognitive decline as well as keep a carer and loved one’s mind and body fit and active. Promoting healthy ageing and healthy lifestyles, MindMate offers:
nG ames that stimulate core cognitive areas: problem-solving, speed, memory and attention n Personalised exercise routines, daily activities n Delicious recipes and nutrition advice n Goals, progress tracking. Meditation and breathing exercises have been found to be very effective. InsightTimer is a free self-care resource app that can help caregivers reduce anxiety, relieve stress, and sleep better by mastering meditation techniques. InsightTimer offers: n Thousands of guided meditations n Calming music, sound healing, and chanting mantras n Discussion groups and community features. Headspace guides users through daily mindfulness practices and offers meditations for sleep, focus, stress, sadness and resilience. Headspace offers workouts that promote fitness, two minute mini meditations, ‘SOS’ meditation sessions for panic or anxiety, and progress tracking.
SLEEP, SWEET...Z Z Z Z Z Z . . . Meditation may promote sleep. Yet meditation apps don’t have sleep-specific features. Different sleep apps do different things. There are soothing sounds, music, and guided meditations apps. Alarm clock apps have advanced clock features. Sleep tracking apps record and interpret sleep data. Despite a lack of research into sleep tracking apps, there is much positive testimonial evidence of their effectiveness. Education and mindfulness about your sleep that a sleep tracking app creates in turn provides the motivation and know-how you need to solve your sleep problem.
The Sleep Cycle app tracks and interprets your sleep data. It has a smart alarm clock that uses your phone’s sensors to predict your lightest period of sleep during a predetermined 30-minute wake-up window. Having your alarm go off during your lightest sleep cycle can make waking up easier and reduce fatigue and grogginess (Sleep Foundation, 2021) . Other Sleep Cycle features include, yet are not limited to: n Sleep movements and cycles tracking n Sleep statistics and statistics analysis n Sound recordings (premium edition) n Sleep aids (stories, relaxation sounds, and guided meditations) (premium edition) n Heart rate measurements (premium edition) n Notes (premium edition) BetterSleep offers a full library of sleep-inducing sounds and noises, and other programs to help you sleep. BetterSleep charges an annual subscription fee. BetterSleep features: n Binaural beats that play a slightly different frequency in each ear to reduce anxiety and stress n Ocean waves, rain, and wind sounds. n Guided meditation and controlled breathing programs n Pre-bedtime exercises n Sleep hypnosis Calm is a sleep app that allows you to pick stories for adults that are read in soothing voices. The app can also be used for meditation, mindfulness, stretching routines, music, soundscapes and breathing exercises. Calm does not track your SUMMER 2022 | Australian Carers Guide 21
sleep data, nor does it have an alarm clock Sleep problems of caregivers are well known. Both caregivers and those they care for can use one. If you’re an in-home family carer, of course improving the sleep of a loved one automatically improves your chances for better sleep as well.
BUILD A CARE TEAM - MANAGE, COORDINATE, ORGANISE, CONNECT, COMMUNICATE Reduce the burden of work and responsibility by sharing-out jobs. The Caring Village app helps a primary caregiver build a village of care helpers who perform caregiving tasks (e.g. once a week). Invite family, friends, neighbours and care professionals to share in the care. Assemble your team. This lets you rest easier, rest more, stress less and reduce your caregiving workload. Your personalised village app becomes the command centre for all caregiving activities. ‘Shareable To Do Lists’ comprise automated reminders which are sent to team members. The app designers claim it makes it easier and safer for families to coordinate activities, collaborate with one another, and improve communication when making important caregiving decisions. The primary caregiver can easily ask for help when a need arises. A care management app keeps schedules of events, medication lists, legal, medical and financial documents, daily care plans, to do lists, check lists, volunteers and wellness journals in one place. Everyone’s caregiving situation is different. Because many apps are free, it costs nothing to try different potential software solutions to find a sort that best helps you.
MEDICAL APPS - MONITORING, MEDICATION TRACKING, EMERGENCY PREPAREDNESS Medical apps are specifically designed to help alleviate caregivers’ frustrations and concerns 22 Australian Carers Guide | SUMMER 2022
to do with medication management, condition monitoring and preparedness. Medisafe works as a reminder and tool of education about medical conditions and medicines specific to your loved one. It also connects caregivers, seniors and the medical community to provide cohesive care. Med Guide is a health and wellness platform that simplifies medication management and incorporates safety features. eCare21 provides round-theclock patient monitoring through wireless and wearable devices such as a smartwatch or FitBit. You can track the wearer’s glucose, heart rate, activity, medication, weight, calorie intake and sleep. You, your loved one, other family members and doctors access this useful information from anywhere at any time. Dementia Australia’s Dementia-Friendly Home app enables the home to be made more dementia-friendly. This can allow a dementia sufferer to stay in their own home, enjoy their regular lifestyle activities, and remain engaged with their community for longer. Using interactive 3D game technology, the app provides carers ideas to make homes more accessible for people with dementia. Many of the app’s suggestions are small, inexpensive solutions. It’s available from the iTunes App Store or Google Play for $2.99. Dementia Caregiver Solutions features expert advice, strategies and tips to manage the most challenging dementia-related behaviours and high-stress situations. MyReef 3D Aquarium provides a relaxing view of fish in a reef. Users interact with the fish or simply watch them swim. This app can be used by people with even advanced forms of dementia. Free with ads. $2.99 without ads. Available at the App Store and Google Play. ACG
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CARER PAYMENTS Are you receiving
all you can?
WHO IS A CARER? If you provide unpaid care and support to family members, friends or a loved one who has a disability, medical condition or is frail of age, then you a Carer. Carers differ in age, sex, location, cultural and socio-economic backgrounds which reflect the diversity of our Australian community and collectively play an integral part in Australia’s health system. As unpaid carers help to relieve pressures in our healthcare system, the Government makes financial payments and Over services available to two-thirds ofrs assist carers and pr imary care their families. are women and
a clos e m os t care for a They include: relative sucahreans t partner, p . 1. Carer Payment or child 2. Carer Allowance 3. 4. 5. 6.
Carer Supplement Essential Medical Equipment Payment Continence Aids Payment Scheme Pensioner Education Supplement
FACTS ABOUT CARERS IN AUSTRALIA Australia has over 2.7 million carers, so 1 in every 10 Australians is a carer. Of these 2.7 million, almost half, 1.3 million cares for an aging parent, spouse or elderly loved one. One
third are primary carers – carers who provide most of the informal help for a person with disability or for someone who is frail of age. Over two-thirds of primary carers are women and most care for a close relative such as a partner, parent or child. Depending on the care provided and the situation of the one being cared for, there are a few payments made available by the government as listed before.
TYPES OF CARE • Caring may include physical personal care and assistance. • Carers may provide emotional, social, or financial support. • Caring may also involve helping the person they are caring for to be organised, reminding them to attend appointments, and dealing with emergencies.
PERSONAL CARE
Caring extends beyond just physical care. It can involve physical personal care and assistance such as dressing, lifting, showering, feeding or providing transport. However, it can also involve care of a supervisory nature, such as helping the person they are caring for to be organised, reminding them to attend appointments, dealing with emergencies, and ensuring they are safe from harm. SUMMER 2022 | Australian Carers Guide 27
CARE RELATIONSHIP One of the things all carers and the people they care for have in common is being in a care relationship. Care relationships can be long term, such as caring for a person with lifelong disability or chronic conditions such as dementia, or short term, such as caring for a person with a temporary medical condition.
LET’S TAKE A CLOSER LOOK AT EACH AVAILABLE PAYMENT AND THEIR ELIGIBILITY CRITERIAS: 1 Carer Payment, Is a payment that provides income support if you’re unable to work in substantial paid employment because you are providing full time care to a child with a severe disability, or a severe medical condition. As this is paid at the pension rate, it also qualifies the carer for a Pensioner Concession Card. The current maximum rate for a single person is $967.50 per fortnight, or $729.30 for a member of a couple. • Constant care is defined as daily care which is the equivalent of a normal working day. The Treating Health Professional and carer are generally required to state this in the application. • Pensions income and asset test is the same as the Age Pension. • The care receiver must be on a means tested income support payment – for example, a person in receipt of a DVA War Widow payment will need to complete the Income and Asset for care receiver form. • There is no requirement for the carer and care receiver to live together. • You and the person you care for must be Australian Permanent Residents and in Australia to claim. • Care generally cannot be shared for Carer Payment, except in some extreme cases.
2 Carer Allowance Is an income supplement available if you’re providing additional daily care and attention for an adult or child with disability or a medical condition. It is not assets tested and can be paid in addition to wages or another income support payment. The current rate of Carer 28 Australian Carers Guide | SUMMER 2022
Allowance is $131.90 per fortnight. It can be paid for up to two adults over 16 in your care. • Care and Attention is care that is required daily for a minimum of 12 months unless the care receiver is an adult with a life expectancy of 3 months or less. • Care must be provided in a private residence that is your home or a private residence that is the care receiver's home for Carer Allowance. • If you don’t live with the person you care for, you have to provide at least 20 hours of care every week. An additional form is required (the Carer Allowance questionnaire). • You and the person you care for must be Australian Permanent Residents and in Australia to claim. • Carer Allowance can be paid for a maximum of two adult care receivers and any number of children. • Carer Allowance may be shared by two carers who are NOT members of the same couple. The two carers must care for the same (adult or child) care receiver and each meet Carer Allowance qualification criteria. • If you are caring for a child and do not qualify for payment level of Carer Allowance you may still be eligible for a health care card. • The above list is not exhaustive. Additional eligibility criteria does apply.
3 Carer Supplement An annual payment for those who care for a person with a disability or medical condition. • The carer must be in receipt of Carer Allowance or Carer Payment on 1 July each year. • The supplement is $600 each year for each eligible payment and each care receiver. • There is no need to claim this separately as it is paid automatically. • A Child Disability Assistance Payment of
$1,000 per child under 16 may also be payable if you receive carer payments in respect of a child.
4 Essential Medical Equipment Payment (EMEP) This payment helps with the additional costs of running essential medical equipment, medically required heating or cooling, or both. If you are the carer of a dependent child, you can claim EMEP where the dependent child is the person with medical needs. A payment of $164 per year can be used for each piece of eligible essential medical equipment.
Sickness and Carers line on 13 2717. Please note that you are no longer able to complete a paper form for Carer Allowance or Carer Payment, however you can ask for the Service Officer to assist you with a telephone claim if needed.
Carers Gateway Other supports for carers include the Carer Gateway, a resource to assist carers in meeting their own needs and taking care. They provide phone counselling, an online carer forum, and self-paced coaching and skills programs designed to equip carers with support, skills and general information.
5 Continence Aids Payment Scheme (CAPS)
Accessing Respite
Is an annual or biannual payment that helps you meet some of the costs associated with continence and continence related products if you have permanent and severe incontinence. • You must be 5 years or older to qualify and meet residency requirements. • You must have permanent and severe loss of bladder and bowel function. • You must be a holder of a Centrelink or Department of Veterans’ Affairs Pensioner Concession Card, unless you have an eligible neurological condition. • The payment rate for 2021/22 is up to $635.10 per person. • To apply, download a copy of the CAPS application form on the Department of Health website. A section of the form must also be completed by an appropriate Health Professional.
This information is current as of 3 December 2020.
It is important for carers to take a break from their roles to recharge and take care of their own needs. Carers can access respite care, which can be provided by family and friends or by a respite service. Respite can occur in home, at a centre or in a residential care facility. Respite can be for a short period of time, such as a few hours per week, or for a longer period of time. Some community organisations offer care for particular groups (for example, activities for children or cultural groups). They may also offer activities for the care receiver, such as social events or therapy sessions. Some carer groups also offer activities for carers (for example, morning teas or yoga classes) to help carers take a break. Contact the Carer Gateway on 1800 422 737 to find out more about the respite care that is available in your area.
6 Pensioner Education Supplement This payment helps with the cost of study in an approved course if you get certain payments, such as Carer Payment. This payment is up to $62.40 per fortnight for eligible students.
Applying The easiest way to apply for a payment from Services Australia is via your MyGov account. Centrelink must be linked to your account. Or you can claim via Centrelink online. Alternatively, you can contact the Disability,
Written by Rosie Bourton
Financial Planner: Expert in Social Security & Aged Care rules & legislation. Developed her expertise from over 10 years with the Department of Human Services Centrelink.
SUMMER 2022 | Australian Carers Guide 29
A dvocating
7home care questions
carers should ask
providers
Picking the right at-home care provider for your elderly loved one can be quite a challenge. It may feel like a daunting task that requires a lot of time researching your options before coming to a proper conclusion. With that in mind, we’ve put together a list of 7 questions that you should ask a home care service provider before enlisting their services. 30 Australian Carers Guide | SUMMER 2022
1
What services are you capable of offering me?
One of the biggest questions to ask is what services the home carer is capable of offering. Many basic home care services will take care of personal needs such as helping you wash, get changed and clean your home, but there are also specialised services that may require a bit of extra knowledge to perform correctly and safely. This could include anything from cooking meals for you every day or helping you connect with relatives and friends with the help of technology such as social media. It’s vital that you first start by writing down a list of your personal needs and what you expect from home care services. Then asking if the service is capable of meeting those needs, or even doing a bit of research yourself by looking at their website or brochures. Remember that starting a conversation with the carer is often the best way to learn what services they can offer and to see how confident they are at offering those specific services. If you’re unsure what kind of services you need, then letting the carer know about your condition is a great way to see what kind of help and assistance they can provide you with.
2
What kind of experience do you have with clients with my conditions and needs?
Not every elderly home care service is going to have years of working experience in the field. It’s a good idea to ask them bluntly about how much experience they have in the industry and if they have any experience dealing with your specific condition. You want a home care provider that is not only experienced but also confident that they can provide the assistance they say they can.
If they don’t have any experience with your exact condition then ask around and contact multiple different home care agencies to see which service is best suited for your needs. An experienced carer who has worked with different clients is going to have far more experience and will know how to take care of your needs. However, it’s also perfectly fine to hire a carer with little to no experience as long as they have a reputation for taking good care of their patients. Home carers are going to get very close and personal with you, so you’ll want to be paired with a carer that matches with you in terms of attitude, personality and potentially even lifestyle choices. This will help you reduce potential conflicts. Other special needs that could be considered include cultural, language or even religious reasons. Having a carer that can speak and read in your first language may be ideal.
3
How long has your agency been in business? A common and often very important question to ask is just how long the agency has been in business. This is often directly related to how much experience the agency has in working with different clients and can speak volumes about how the company works. However, it’s good to keep in mind that the quality of care received from a home SUMMER 2022 | Australian Carers Guide 31
care company isn’t always related to how long they’ve been in business. Some newer home care agencies are worth using due to their impeccable services, perhaps older home care services may have grown complacent, resulting in poor quality of service. It might not be the most important quality of a home care service, but it’s a useful question to ask regardless. The way the home care agency answers this question could have a drastic effect on how trustworthy they seem. Ensure that you read testimonials and reviews about the business and their services, these can often be found on Google reviews.
4
Do you rely on contract workers for home care or do you train and employ your own staff instead?
There are still many home care services that use third-party or freelance carers instead of employing and training their own. This is a strategy still used by both large and small home care agencies. For smaller companies, it gives them a wider reach without having to use their own employees, and for larger companies, it gives them the ability to take on more client requests and jobs. However, the quality of care that they can offer may drop significantly. For a much more personalised and understanding home care service, it’s vital that the home care provider employs and trains its own staff. This allows the company to maintain consistent quality across all of its services and to reduce the potential for inconsistency. This also helps to ensure that the carers that are assigned to you will be vetted and insured to avoid future complications.
A home care provider should be committed and flexible to adapting to clients’ needs 32 Australian Carers Guide | SUMMER 2022
5
Will my family members and I be able to have a say in the way you carry out your services?
A key to offering an excellent home care service is providing flexibility. Instead of feeling like you need to pick a home care provider based on what they can offer you, the focus should be on your personal needs and the provider adapting based on what information you offer them. As a result, it’s often extremely important that you and your family members and friends have a say in how the service is carried out. The more people involved in this process, the more accurate and relevant the information will be. This will allow the home care provider to change their services and adapt depending on what the best options would be for the client in question. A home care provider should be committed and flexible to adapting to clients’ needs and offering a variety of options in order to meet those demands.
5
Will I be paired with the same carer or multiple different ones?
Home care services rely heavily on the bonds and relationships that you build with your carer. However, many carers cannot commit to a completely 24/7 service, so there might be occasions where you’ll be assigned a different carer for a couple of days due to rotation of shifts and holiday periods. It cannot be guaranteed that you’ll receive home care from the same person forever. It can be challenging working with several different carers over a short period of time. High-quality care services often have no choice but to assign two or more different carers to you. The good thing is that they’ll usually adjust their home care services to take this into
consideration. For instance, if there’s a new carer assigned to you, then they’ll request that your old carer shares information about you so that your new carer can quickly fit into their role.
7
What methods do I have available to pay for your services?
Lastly, it’s important to consider the payment options you have available. Everyone has their preferred payment methods and you may be able to receive financial assistance from government bodies and authorities. The financial help available to you will vary greatly depending on your personal circumstances and you might find that the cost of high-quality home care is lower than you’re expecting.
Ask the provider if there are options to reduce or split the cost. Consider all available options to ensure that you can comfortably pay for the service and that you take advantage of all the cost-saving measures available. Finally, if you’re considering the option of home care in the future, then keep these questions in mind because they’ll help you better understand the home care services and the type of people that work for the agency. Home care services are a long-term investment and it’s vital that you pick the right service from the beginning so that they can truly support you and help you to live a comfortable and carefree lifestyle.
SUMMER 2022 | Australian Carers Guide 33
S elf Care
10 feel great tips to
help you
Photos: CanStock Photo
look good
By Marguerite Weir
34 Australian Carers Guide | SUMMER 2022
and
T
he popular saying, “if you look good, you’ll feel good” is true at any age. It’s never too late. Look for those age-defying secrets that will keep you stylish, happy and self-assured. Remember, feeling great isn’t just about your outward appearance. It’s about boosting your mood, improving your health and maybe even jump-starting your love life! Style yourself Putting on a new outfit may give you the pick-me-up you need. You’ll be fresh, clean and prettier in a matter of moments. But sometimes just adding a more affordable accessory such as a colourful scarf, floppybrimmed hat or fashionable pashmina is all it takes. Putting away winter clothes and cleaning out your closet can give you a “new season” feel. Each season, try to get rid of clothes that don’t fit and things you’ve been holding on to. Replace them with a couple of classic pieces that will help you look your best. When all is said and done, you’ll likely find you have more clothing choices than you think. If getting dressed is becoming a challenge, consider clothing lines designed specifically for seniors. Many practical yet stylish choices are made from easy-care, stretchy fabrics with simpler openings and fewer buttons.
having the same hair cut. It can be thrilling to try a different style or new colour, and you could surprise yourself with how good you look! Before your next visit to the salon or barbershop, flip through your favourite magazines to find some styles that catch your eye. Compare the shape of your face and the age of the person whose hair you admire to determine if it will suit you. Of course, your stylist can recommend a cut that best suits your features and personality too. Remember to be straightforward with your stylist and say no if you’re not comfortable with his or her suggestions, but keep an open mind; it is a change, after all. Men can also update their look with a beard or goatee. Just make sure to trim it regularly - wear the beard, not the other way around. Noticing a little more grey? Ask your barber about a hair colour made just for men. This will be specially formulated so it doesn’t cover all the grey, making it look more natural. Tender tootsies Our feet get a lot of use so it’s important for both men and women to take care of them, especially if you have dry, cracked skin or a foot fungus that needs to be treated. Because our hands and feet are the furthest from our heart, circulation decreases as we age. Mani and pedis include a “mini-massage” for hands, wrists, feet and lower legs to promote circulation. Making a mani or pedi part of your beauty routine will prevent hangnails, calluses and dead skin from building up, which make
Love your hair No matter what our age, we can often get stuck in the routine of Australian Carers Guide 35
skin rough and tough. If you’re caring for someone with limited mobility, keep in mind that many professionals will make at-home visits for both hair and spa treatments. Keep it clean It’s important to maintain personal hygiene. Bathing can be enjoyable, refreshing and at times therapeutic. Those living at home can access many options to make bathing and showering easy and safer: non-slip bathmats, shower benches, flexible shower heads and bathtubs with doors all make keeping clean a breeze. Doing the laundry and ironing on a regular basis will keep you looking (and smelling) your best. If you’re the caregiver of a single senior man, keep in mind that many older men have never had Remember, to complete these tasks and may feel apprehensive. being cheery Take the time to show and putting on a your loved one the smile are your best ropes and establish a accessories. routine.
test them on your wrist to smell the full “bouquet”; this will help you decide if the scent mixes with your natural pheromones. And don’t be bullied by salespeople; even if your intention is to buy, tell them you’re just looking and always ask for samples if you can’t decide at the store. Make-up your day As we age, our beauty concerns change; lacklustre lips and thinning eyebrows are some common concerns. Your local drug store beautician can help you find the right products for your skincare routine and introduce you to seasonal shades to keep you looking great. Staff at the cosmetics counters will often provide a free makeover when a customer is thinking about a new look. Pick out a few items you’d like to try and have your makeup professionally applied. This way, you can get tips on application and
Don’t be afraid to ask if you need help. Take our word for it: most people (family, home caregivers, nurses) would prefer to help rather than have you skip personal hygiene all together. An extra note: taking good care of teeth or dentures is a must to ward off gum disease and bad breath. Remember, regular visits to the dentist are still essential in your later years. Scent-sory expressions Choosing a new fragrance is a simple way to feel refreshed. When looking for a new perfume or cologne, remember that most brands offer the scent in a variety of strengths in moisturisers, aftershaves, shower gels and shampoos. Perfumes in an eau de toilette, a milder version of the same fragrance, are often less expensive. Try before you buy and look out for allergies and skin sensitivities. When sampling your choices, always 36 Australian Carers Guide | SUMMER 2022
sample a product before you decide to buy. Need a lift? There are now new alternatives to invasive cosmetic surgery. Most spas and dermatologists offer “non-surgical facelifts” that don’t require any recovery time and show immediate results. These services improve the skin’s appearance by smoothing
wrinkles, eliminating sunspots and getting rid of jowls and crow’s feet. Consultations are recommended before deciding on the right options and your doctor and aesthetician can give you further information. And don’t forget, a smile is a natural facelift!
except that services have improved over the centuries to offer a variety of luxurious body wraps, facials and massages. Most spas provide a list of their services online or at reception and offer complimentary treats such as tea, coffee and snacks that add to the pampered feeling. Read up on “spa etiquette” and what to expect ahead of time. Be sure to ask
Get back to the boudoir A little known beauty secret is to get intimate with your partner. It’s proven that enjoying intimate moments once or twice a week can actually fortify the immune system, reduce arthritis pain, improve circulation and balance hormone levels so skin glows and hair shines. Natural changes in anatomy as we age are nothing to be anxious about; they can provide an opportunity to be playful with toys, scented or flavoured lubricants and more comfortable positions, like the “hot hula.” Have your hubby lie down, straddle him on top and gently “hula” from side to side for a slow, controlled experience that doesn’t put too much strain on either partner. Book a spa date The word “spa” is Latin for “health from water,” and ancient civilisations would frequent such places to unwind after army campaigns and to socialise. The purpose of modern spas is still the same; these are sites of tranquility and rejuvenation,
GET IN BLOOM Surround yourself with pretty things. It was reported that Sir Elton John once spent an estimated £293,000 on fresh flower arrangements for his home. Why? “Because I like flowers,” he quipped. Common sense tells us that flowers make us happy, whether as a gift or fresh-picked bouquet, and science proves this is true. Having flowers around the house improves our emotional state and reduces stress. Visit local farmer’s markets for inseason bouquets, or take the clippers out to your garden and arrange a creative bouquet for yourself or a friend. Gardening is a great way to spend time outside, get a little exercise and get your hands dirty. Watching your garden bloom all summer will inspire a sense of pride and brighten up your yard. Tea parties with neighbours can be fun and fragrant. Just make sure you’re properly covered up to avoid sunburn when you’re out there pulling weeds. SUMMER 2022 | Australian Carers Guide 37
questions about when to arrive and what to bring when you book services. Depending on the treatment and the time you have, your spa experience could take a few hours - you might also be able to reserve a spa lunch or afternoon tea. Think about inviting a friend or book a date with your daughter and make it a blissful day. Those on a budget can still enjoy the spa. If you’re online, there are plenty of deals and coupons to be found - just ask a friend or tech-savvy grandchild for help. (I bet they’ll be willing to help if you offer to take them with you!) If all else fails, consider asking for a gift certificate as a birthday present. For men only Husbands, fathers, brothers, sons - grooming is much more popular with the younger crowd, but trying to encourage your man to part with that tired old sweater and those baggy pants may be a challenge. Think positive. Visit the drug store for shampoos, soaps and shaving necessities. Take your dad to a men’s store where the assistants are well-trained and will make short work of
38 Australian Carers Guide | SUMMER 2022
putting together a couple of more modern outfits. Don’t forget to make regular appointments with the barber and arrange for transportation if needed. Back in the day, women often encouraged their men to go for a haircut, took care of their washing and ironing and helped their husbands pick out clothes, so this might be all new territory for a single man. With a bit of effort, you’ll have a more dapper, happier guy who’ll be much more confident socialising and in better shape all around. Look good, feel great! Remember, being cheery and putting on a smile are your best accessories. Hold your head high and look around rather than staring at the ground. Greet passersby with a pleasant “hello” or a polite nod. You’ll feel more confident and energised in no time at all, and the people you meet will be glad that you’ve brightened their day with your upbeat attitude. Marguerite Weir is a freelance writer.
Stroke Foundation Help after
stroke
StrokeLine: 1800 787 653 StrokeLine’s health professionals provide free information, advice and support. They can help you find the support and services you need
www.strokefoundation.org.au
F amily caring
DoubleTrouble BY MARY BART
40 Australian Carers Guide | SUMMER 2022
Caring for Both Parents
S
andy’s world has been turned upside down. In the last four months, her mom has had a severe stroke and her dad has been diagnosed with Parkinson’s disease. Sandy struggles to think about how on Earth she will manage. How can she take care of her parents and her own family and keep working? Let’s help Sandy double her chances of success being a carer as she deals with the double-whammy she now faces. Here are some great ideas that will help Sandy and others who are caring for several people at the same time.
Providing care is a job and it needs to be run as a business. This means getting organised.
PUT ON YOUR BUSINESS-MANAGEMENT HAT
Carer’s survival checklist ✔ Keep your sense of humour - it can save the day. ✔ Drop the guilt. You cannot solve all issues or do everything yourself. ✔ Exercise every day. ✔ Eat well and limit your alcohol consumption. ✔ Get your sleep and “power nap” when you can. ✔ Stay socially engaged. ✔ Pamper yourself. ✔ Make time for things you enjoy. ✔ Keep your medical and dental appointments. ✔ Ask yourself this question: “Has my health improved since I have been a carer?” Most likely not, so consciously remember to be kind to yourself.
Providing care is a job and it needs to be run as a business. This means getting organised. Create a “mobile office.” Purchase an accordion filing binder with a handle and predefined sections to manage the paperwork for each person. Dividing the binder into the following sections will save countless hours of time and frustration: • medications—past and present • medical treatments—past and present • banking information • bills paid and due • your own out-of-pocket expenses • phone numbers and email addresses of medical professionals, family, and friends
• legal documents, such as power of attorney, advanced directives • ATO tax filing slips • calendar for making appointments
Once you get in the habit of using this mobile office, you will have the key paperwork at your fingertips when needed. This will enable you to be more efficient at the doctor’s office, dealing with a bank or explaining medical issues and medications. Keeping everything organised will decrease your stress and improve your ability and effectiveness in running and managing everchanging care situations for more than one person. SUMMER 2022 | Australian Carers Guide 41
PICK PRIORITIES Deciding what matters most is a key component of managing care. Priority setting can be divided into two main sections. The first is the actual physical caring that you give, such as bathing, feeding or dressing your care recipients. The second section is the setting of “business priorities” for tasks, appointments and schedules. Let’s take a look at each.
Physical caregiving It is especially important to prioritise which of the two people you are caring for will get the most of your attention on any given day or moment. Often, on a daily basis, you will need to determine who is the most stable and predictable, and who is most likely to need more care and attention. To help keep you grounded, create a safe and comfortable environment for the most stable of the two at that moment - perhaps putting on a movie or their favourite television show to keep them happy for an hour. This will allow you to focus your energy on the more-needy parent. As the physical, mental and spiritual health of both care recipients changes, you will need to adapt and shift your focus and energies as required.
Business priorities The second part of setting priorities is your ability to focus on the “business priorities.” Create a written list of all the things that need 42 Australian Carers Guide | SUMMER 2022
to be done and divide those tasks into groups based on their importance. If possible, create an adjustable plan of what has to happen and what could get pushed off the list for another week (or removed altogether). For example, perhaps there is a medical appointment that has to happen this week, while taking a loved one to get their hair cut or to the bank, that could wait another few days. Making decisions and creating lists and plans will give you peace of mind. It will also allow you to more easily “push back” when you receive unnecessary requests from others or need to explain yourself.
and not pass judgement?” When you’re in the thick of it, it is vitally important to look out for yourself. Communicate your own needs, limits and resources. Knowing what role everyone is prepared or not prepared to play might cause disappointments and conflicts, but it will quickly show you where everyone stands. These difficult conversations about who will “Lead, follow or get out of the way” are all about setting expectations, so that you can plan and manage accordingly.
GET INVOLVED
Connecting with the local agencies that deal specifically ARE YOU IN OR OUT? with the health issues of Do you remember the old the people for whom you business expression “Lead, are caring is essential. In follow or get out of Sandy’s case, she the way”? That could reach out to expression is a the local groups When good way to of the Heart help manage you’re in the Foundation, family Stoke thick of it, it is dynamics, Foundation conflicts and vitally important to and expectations Parkinson’s as a carer. look out for yourself. Australia. Carers Communicate your own These have to groups offer make tough needs,limits and activities, decisions education and every day, resources. support. With some of which guidance, carers might not sit well can learn more about with others. And, as how to manage the health one of my friends is fond issues at play, both now of saying, “Wouldn’t it be and in the future. Many helpful if family members communicated and accepted local groups have carer peer-support programs what each person is ready, willing and able to contribute that will help Sandy and others learn that they are to help care for a loved one,
not alone. She will likely find comfort and support from meeting with other families who are dealing with similar circumstances. Sandy might also want to contact the local hospital, library or seniors group in her area to see what support services they offer.
SEEK HELP, TWICE No matter how skilled, dedicated or passionate you are, at some point you will have to accept the reality that extra help is required for one or both parents. Being a carer is only sustainable when you have a team working with you. Deciding who will be on your team can be an ever-changing challenge. Sometimes family and friends will help, or a homecare agency might fill in the gaps, especially when there are two sets of complex needs. Part of accepting help is being able to change your expectations on how care is provided. Create a handbook for each parent where instructions and notes can be shared. Treat those being cared for as individuals and honour their preferences, interests and individual style. Someone else will make a meal differently, help out in the bathroom not exactly as you would or help dress your loved one in a different sweater than you would have chosen. Fret not. Others can often do things well— sometimes even better than you—and your parents will gradually adjust.
Live in the moment and acknowledge when things go well As you work with your care team, remember to be thankful. Even a one-hour break can be a wonderful treat. It takes a village to offer sustainable care. Create your village, adjust when required and always praise those who go the extra mile.
EMBRACE CHANGE Change is a natural part of life as a carer. Health issues, family dynamics and resources seem to never stay the same. What worked last week might no longer work today. Stay calm and find ways to anticipate change and, when it comes, accept it and work with it as best you can. Having a sense of humour is also a great “change-management” tool. Experts suggest that there are two types of change. One type is when things get worse, sometimes instantly, such as your loved one falls in the bathroom and breaks a hip. The other type is when change adds value, dignity or convenience to the carer situation, such as when the grocery store has online ordering or the pharmacy starts delivering prescriptions and medical supplies to save you the trip.
CREATE GREAT MEMORIES Capturing special moments and creating great memories
will help you through the hard times and bring a smile to your face when you look back. In fact, the memories you make throughout your carer journey will be of great value to you, the people for whom you are caring for, and their families and friends. Here are some ideas to consider to help you create great memories. Find joy in the simple things
Live in the moment and acknowledge when things go well. It could be the joy of having made a simple soup and sandwich for lunch that everyone enjoyed. These typical daily moments can create lasting, happy memories and stability. For example, I fondly remember the egg sandwiches and mushroom soup lunches that I made for my parents. We all loved those meals and they were some of our best, happy times together. Keep a camera nearby
Today, digital cameras are everywhere, including in our phones. Consistently think about taking pictures. Spontaneous moments are often the best (and funniest) to capture. Take pictures of your loved ones individually, together and, yes, do a few selfies too. These pictures will last a lifetime and bring great joy for years SUMMER 2022 | Australian Carers Guide 43
Do something separately and new together
Regardless of health limitations, think of something new that each person can enjoy. Be creative and see if there is something different that can break up the daily routine while being enjoyable and manageable for all. Perhaps you could ask a friend to drop by with their dog for a visit or take a drive to a new area of town. Try having something different for dinner or eating on your best tableware. Watching movies or listening to music can create a calmer atmosphere and new memories, and break the drag of the daily routine. Leverage the Internet Social media tools such as
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Skype, Zoom, WhatsApp and Facebook can be wonderful ways to connect. These are powerful, inexpensive ways to stay in touch and build amazing memories. Celebrate Don’t forget to celebrate the good times together. This could be as simple as acknowledging that the day went well or honouring special events such as birthdays, family events and holidays. Bring treats, put on some music, take lots of pictures and know that sometimes life can be really great.
may even say a “double whammy” - alternatively, it can be looked at as a time to create twice the good memories. Success as a carer is supported by careful planning, seeking the right help and getting the ongoing education you need. Sandy and others caring for several people at the same time will, no doubt, have twice the pride and joy from their efforts.
ONE FOR TWO Caring for two people at the same time can indeed be “double trouble” and some
Mary Bart is the chair of Caregiving Matters, an Internetbased charity that offers education and support to family carers.
P ersonal Relationships
COU PL T HE E ’ S IN IR s t ill e njo 9 0 ’ s y in v a r io in t im a c us f or m y s
Photos: CanStock Photo
Sexuality 46 Australian Carers Guide | SUMMER 2022
and Aging
H
ow people experience and express their sexuality will change throughout their lives. Aging brings about natural changes, both physically and emotionally, which can affect our reproductive health, sexual intimacy and sexual response or arousal. As we all approach later life, two of the things which brought us the greatest joy and took up most of our energies and time – our children and/or our careers – are no longer as prevalent in our everyday life. This means that our personal relationships take on an increased importance. While the frequency or ability to perform sexually will generally decline modestly as seniors experience the normal, physiological changes that accompany aging.
Reports show that the majority of men and women between the ages of 50 and 80 are still enthusiastic about sex and intimacy. Sex is a way to affirm the love of life. It expresses the closeness of our deepest relationships and is an important measure of quality of life. The dating game revisited Some seniors are single again after years with one intimate partner. Others have never hooked up with a long-term partner but haven’t been in the dating scene for a while. Still others are in the process of “coming out” and openly seeking a same-sex partner for the first time in their lives. Regardless of the circumstances, it can be nerve-wracking to be back in the dating scene later in life. You may be ready to date but you aren’t sure what the rules of the game are anymore. The basic rules are the same:
Communicate Use protection Have fun As a senior, you may no longer have to worry about unplanned pregnancy, but everyone has to protect themselves from sexually transmitted infections (STIs). STIs have no age limits and if you are sexually active, you need to practice safe sex. The most important protection is to learn how to use a condom and lots of lubrication to negotiate safer sex with your partner.
Sex is good for your health! Let go of old sexual habits. Focus on being sensual and enjoying all the ways you can feel sexy alone and with a partner. Be patient and go slow! Explore different types of touch, sex toys and the different things that make you feel sexy and confident. Bring up the subject of sex, share your fears or worries with your partner and clearly communicate what you like and don’t like. You may have to plan sex more, but you can use these planned times to find the best time and place to ensure maximum comfort and pleasure!
Women’s sexual health As women grow older, they experience a hormonal transition that signals the shutting down of their reproductive cycles. This is menopause. In many ways it is similar to the transition they experienced in adolescence
Respect yourself Respect your partner SUMMER 2022 | Australian Carers Guide 47
What is perimenopause? Perimenopause refers to the time when a woman first starts experiencing signs of menopause until her menstrual period actually stops for a year. This transition can take several years. Sex is painful. What can I do?
when things were just starting up. Everyone ages in slightly different ways. There are a number of common physical and emotional changes you may experience but then again…you may not.
Waning hormones after age 50 cause thinning of vaginal tissues and can make sex painful. Use water- or silicone-based lubricant before and during sex to reduce the discomfort of vaginal dryness. Do not use cream, petroleum jelly or any other moisturiser that is oil-based. You can buy personal lubricant at the grocery or drug store. Talk to your doctor about lubricants or hormone treatments designed specifically for seniors.
Signs of aging
Men’s sexual health
All women have different experiences. Here are some common physical signs that a woman may experience:
rinary incontinence U (when urine accidentally leaks) More frequent urination
Decreased sexual desire and arousal
Mood swings
In general, sexuality is often associated with youth but in reality, many women find sexual joy and strength in their later years. They no longer worry about pregnancy and are comfortable communicating their sexual needs with a partner.
As men grow older, their levels of testosterone (the male sexual hormone) naturally decline, causing changes in their sexual health, sexual function and emotions. Signs of aging All men have different experiences – some men experience dramatic fluctuations in their hormone levels while others notice relatively little change. Here are some common physical signs of aging that a man may experience:
Less firm or less frequent erections
I ncreased ‘recovery time’ or time between erections
Menopause
Decreased force of ejaculation
Over a lifetime there are two significant milestones in your physical sexual development: puberty and menopause. The onset of menstruation means that a female is physically able to get pregnant. Menopause is the opposite transition. Ovaries decrease the production of estrogens which signals the end of menstruation and ability to get pregnant. Technically, menopause signifies menstruation has ended for at least one whole year.
Urinary incontinence
Decreased sexual desire and arousal
Increased risk of prostate cancer
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Until recently, men were not encouraged to talk with one another about their experiences or to seek help with their sexual health changes because “men should always be interested in sex and ready to go.” Thankfully, this is changing.
What is erectile dysfunction (ED)? Erectile Dysfunction (ED) is different from having a hard time getting it up or maintaining an erection because you drank too much, are tired, or feeling distracted by other concerns. The health department defines erectile dysfunction as “…when a man can’t get and keep an erection long enough to have sex on at least 50 per cent of tries.” The Australian Male Sexual Health community defines ED as a problem that persists for more than three months. It is a common problem, affecting about one in every three men on a regular basis. It is more common in men over age 65 but it affects middle-aged and younger men as well. What causes erectile dysfunction? A lot of males are embarrassed to talk about ED because they assume it is some kind of sexual inadequacy on their part but this is not true. It can be your body or mind’s way of indicating there is an issue that needs addressing. There are a number of physical causes and medications that can cause ED. Physical causes usually stem from damage to the blood vessels that carry blood to the penis or to the nerves that carry signals of arousal from the brain to the blood vessels themselves. For example, ED can be caused by a stroke, diabetes, hardening of the arteries, smoking, Parkinson’s disease, alcoholism, Multiple Sclerosis (MS), liver or kidney failure, brain or spinal-cord injuries, Hypogonadism, or radiation to the testicles (treatment for prostate cancer). However, ED is not just a physical health problem. The mind-body connection is strong, and how a man feels or what he thinks has direct impact on what his body does. Mental causes of ED include stress, anxiety, depression and grief. For example, a man who has experienced ED once may begin to worry that it will happen again. The anxiety he feels becomes a self-fulfilling prophecy because he cannot relax and his body responds by shutting down.
If this is happening, remove the goal of penetration altogether from your next several sexual encounters. Once your mind learns not to anticipate it, it will stop letting you get so anxious. Try to maintain perspective. It’s perfectly normal and okay for your sexual drive to slow as you age. Try not to put too much pressure on yourself to be sexual in the exact same ways you were when you were younger. Look at this as an opportunity to rediscover your sexual self as an adult. Is there help? Yes – there is something you can do about ED. One thing you can do is practise relaxation techniques to ease your mind and remind yourself that you are not alone. Boost up the foreplay with your partner and take the focus off penetration. You don’t have to “perform” in order to have a sexually satisfying relationship. Other treatments depend on what the cause is. Your doctor can run some tests and may recommend hormone shots or medication such as Viagra, Levitra or Cialis. It is important, however, that you consult a physician before taking medications to stimulate arousal so that you fully understand the risks and benefits of various options. In July of 2005, the Australian Health department issued a health warning to men who take Viagra, Levitra or Cialis about risks of vision loss or impairment caused by blockages to the optic nerve. Any man who notices sudden vision loss or vision-related problems while taking these drugs needs to seek immediate medical treatment. Whilst there maybe physical limitation to the act of sex as we age, the enjoyment gained by the appreciation of that which remains in each other, can generate a deeper heartfelt arousal. Life is truly short and full of troubles of its own so still having the opportunity to experience intimate pleasure, in whatever form that is for you, makes every day is a great day. SUMMER 2022 | Australian Carers Guide 49
P et Therapy
Who
rescued ?
who
Researchers found that even one 30-minute-long session of Animal Assisted Therapy (AAT) reduced loneliness.
Photos: CanStock
Journal of Gerontology
50 Australian Carers Guide | SUMMER 2022
T
he benefits for older adults of spending time with a pet are well documented. Pet attachment is linked to strengthened emotional health, reduced depression and lower psychological distress. Seniors with dogs, for instance, go to the doctor less and report fewer illnesses. Dog walking provides them with exercise and positive social interaction, and encourages playfulness. Even the snootiest of cats will allow their owners to play with them - when it suites them! Pets also satisfy the human need for touch, and provide nonjudgemental affection. Pets can be a support system when no family or friends are nearby. They often help their owners remain emotionally stable during times of stress or crisis. It could be said that, together, they help each other survive. Many seniors will choose to adopt an older “rescue” pet and say, “I’m not sure who rescued who.” That’s an impressive list of benefits! But what happens when living circumstances change?
socialise with others and get to know her neighbours. As her disease progressed, Judy knew she needed to move into a retirement community, but she was wary of cliques and not being accepted. She was so happy when she learned that Boris could move in, too - here was her sure-fire icebreaker and conversation starter! Then tragedy struck. Boris was diagnosed with a serious kidney disease and to spare her pal any more pain, Judy made the heartbreaking decision to have him put down. Without her little mascot, Judy was lost, stayed in her apartment, stopped eating, and began refusing visits and medical attention. All this just because of a dog? Take note: Boris was much more than a dog for Judy. He was actually an essential part of her coping strategy that allowed her to make transitions in her life. Boris provided companionship, imposed a welcome routine, inspired Judy to exercise and gave her the unconditional love that she was so worried she’d never receive. Fellow retirement home residents would have accepted Judy with or without her dog - but she wasn’t ready or willing to go that route. About six months after Boris died, the veterinary clinic called Judy to say that a four-year-old dog, Wilbur, had been left with them - was she interested in taking him on? She jumped at the chance, and soon she Dog walking and her new companion provides them were able to move with exercise and into the retirement positive social residence and create a new, safer, more interaction convenient life for Judy.
Meet Agnes
Meet Judy Living with diabetes had always made Judy feel like an outsider, but her little dog Boris had given her a reason to get up every day,
Agnes went to the store one morning. Unfortunately, she fell in the parking lot and was sent to hospital with a broken hip. A nosey neighbour, whom Agnes had never liked, cared enough to arrange with Agnes’ out-of-town family to take her dog to the safety of a boarding kennel. However, Agnes SUMMER 2022 | Australian Carers Guide 51
worried excessively about Goldie, her German shepherd, working herself into near hysteria at the thought of having to “put the dog down.” After all, how she would ever regain enough mobility to manage a big dog like her beloved Goldie? Goldie gave Agnes someone to care for and care about. Having Goldie meant investing in another life, a commitment to the future, and a focus on something other than her physical problems and fears about growing old. Losing Goldie came to represent losing control of her own life and facing the future alone. The hospital social worker “Until one contacted Goldie’s has loved an veterinarian, who animal, a part of went to visit Agnes one’s soul remains when she returned unawakened.”
home. The veterinarian told her that Goldie was doing well at the kennel, and reviewed the dog’s daily routine and exercise needs. At age eight, Goldie was a passive, gentle dog who required only three short walks a day; other visits out the back door could be managed by Agnes on her rollator. The vet suggested that his dog walker, who had been walking Goldie at the boarding kennel, would be willing to carry on when Agnes returned home. Masterfully, the promise of a new regimen of visits, dog walks and cups of tea became the focus of Agnes’s day and greatly assisted in her stress-free recovery.
–Anatole France
When a pet
cannot stay
with its owner
n Not all circumstances allow pet ownership to continue. Here are some tips to deal with such situations. n Get the owner’s input when planning. Do they have ideas or preferences? It will ease their mind to know their furry friend will be cared for. n Ideally, the current owner will help the pet transition to its new owner. This might involve visiting with the pet, going on walks and allowing the pet to be cared for part-time in its new home before full-time ownership begins. n Once adopted, allow the previous owner to have continued contact with the pet. n An older person’s pet should be provided for in a will and a carer named. n If a carer is not named in the will, the pet’s veterinarian will often help re-house it among their clientele or might refer you to reputable organisations that re-home pets.
Meet Eric
into a retirement community together. Seven years later, Eric suffered a stroke and died. While his suite was being cleared out, Tootsie bolted. A week later she reappeared in the lobby but, of course, Eric was gone. What to do?
Eric was a reclusive single man. His cat, Tootsie, was his “family” and, with a bit of negotiating, the pair successfully moved
The receptionist, a cat lover, had the idea of “donating” Tootsie, who was really no trouble, to the dementia residents’ wing.
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A bed, scratching post and toys were placed in the common area, and Tootsie eventually became bolder and more friendly. Residents would be pleasantly surprised when Tootsie jumped into their lap for a visit. She seemed to know who was lonely and needed comfort that day. Even the most reclusive residents started to keep their doors open in case the cat wanted to visit, and they shared cat treats from a bowl at the nurses’ station. When Tootsie’s kittens were born, a result of her short “vacation” after Eric passed, it was as if the residents had been electrified! Playing with the kittens, naming them, making them toys, finding them homes
among their families and staff and even changing the litter box became a focus. Nothing was too much trouble.
Best of friends Pets exist in the here and now. They don’t worry about a tomorrow that might be frightening for dementia patients or worrisome for a person living with cancer. Animals soothe and centre people, and bring them a sense of peace. Their non-verbal communication can also be easily understood and appreciated by people who are no longer able to speak. Animals can evoke long-term memories. Talking about this pet or that one can bring back your childhood memories, and they can stimulate discussion, memory retention and positive associations in times of need. Judy, Agnes and Eric all show how pets are part of our lives, and can remain an active partner throughout life’s transitions.
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L ifestyle
Is multi-generational
living for you
(and yours)?
58 Australian Carers Guide | SUMMER 2022
BY PAT IRWIN
Advances in homecare, public transportation, assistive technologies and increased mobility have made it possible for more older adults to decide where and how they would like to live—and a growing number are deciding to share a roof with their children and grandchildren. This is known as multi-generational—“multi-gen”—living.
M
ulti-gen living is defined as at least two adult generations of a family living together. This might be grandparents living with their adult children and grandchildren, parents and their adult children sharing a house, or even a four-generation home that includes greatgrandkids.
More than 40% of young adults in their early 20’s are still living at home with at least one parent. These adult children are commonly referred to as the “boomerang generation,” as they leave home and then return due to finding value in sharing space, care for kids and household duties. And can we blame them? With the median house price of an Australian home in Sydney being $1.19M an almost unreachable goal for many millennials in the gig economy— staying with Mum and Dad makes sense.
Different configurations In these situations, accommodation can range from traditional layouts to custom designs where a separate living area is organised for each generation and Mum and Dad’s or Grandpa and Grandma’s designated areas are shared. There can even retirement savings can also make significant be separate kitchens and entrances. contributions to family finances. With Usually, however, the classic family family members pitching in to home is adapted, structurally or cover rent or mortgage and in practice, to accommodate insurance payments, food, “ Almost 20% everyone. maintenance costs, decorating of Australians and modifications, the cost This way of living is of living is improved for live in multi-gen popular with about 20% of everyone. Australians living in a multi-
homes.”
Sharing the care generational households. This Jan 2020 UNSW In busy families, grandparents is partly because of the aging who are active enough to population. Experts suggest provide childcare build stronger that increased life expectancies relationships with their grandchildren and (currently 85 years of age for men and often save the family money when it comes 87 for women) are giving older adults to childcare or after-school costs. They might more time to build and strengthen their also fill in when children are ill. Playing a role relationships with their kids and grandkids. in their children’s and grandchildren’s lives Housing affordability also plays its part. can give seniors a sense of purpose and help Adults who migrated to Australia as children, them to avoid the loneliness and isolation as well as second-generation Australians, are that can creep up in later years. particularly likely to live with a parent and grandparent. This may have been their way of life growing up in the country they moved from, and is often the pattern while families become established in their new Australian life.
Sharing the costs The number of younger adults moving back in with their parents is also steadily increasing, mirroring socio-economic trends.
On the other side of the coin, a watchful eye and eldercare can also be provided for older adults in a multi-gen home. Shared meals, housekeeping and day-to-day interactions benefit everyone. And, for working adult children, the stress of worrying about an elder who lives elsewhere is eased when their parent is under the same roof.
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Do your homework You’re all excited about renovating for Mum or Dad. Before getting started, here are some things to consider. Current and future care: Assess your parents’ present and projected mobility and need for assistive aids, and consider space for live-in carers.
As with all major projects, obtain three written estimates, do your homework about zoning and building permits, expect slippage and have alternative plans in case of delays.
Housing needs: Look critically at the size and layout of the available space. Review your home’s proximity to doctors, clinics and other services, and logistics surrounding participation in social and community activities.
Obtain any necessary financing commitments in advance.
Social support: Evaluate the amount of space your parents will need to entertain their own friends; their need for transportation to errands and parking. Talk with your parents about their level of desire to be totally independent versus wanting to share some space, time or meals with the family. Be clear: • Is your whole family committed to the project? • Are contacts in social services, community care and private care in place to help prepare for changes and provide support?
A written agreement Everything may seem rosy today, but take the time to consider all eventualities. It’s wise to clearly document your parents’ contribution to renovation costs and/or ownership of the property, especially if property is held jointly. Remember that this renovation will increase the property’s value and any capital gains should be reflected accordingly. Decide ahead of time what your parents should contribute to ongoing maintenance and housekeeping, if anything. And make sure there is an “escape clause” if things just don’t work out, or in case of major life changes such as divorce, serious illness or death, or if you or your spouse are relocated or decide to move. Next steps
• Have you sourced information on vendors of special equipment, such as stair lifts?
•R elocation help may be available from family or professionals to help downscale, sell, store and distribute possessions. Be sure to involve your parents in planning the move. Hire a reputable moving company to make the transfer as smooth as possible.
• Do you or your parents have the financial means to renovate?
•B e realistic and honest in managing your family’s expectations.
Do the maths:
•R emember that your parents’ needs will change over time, and that there might be sudden deteriorations in their health.
• Have you an architect to design the space and a contractor to implement the construction?
Costs can vary enormously in a project, based on the design and scope. If, for example, a granny flat is already in place, it may only require accessibility modifications. For perspective, compare the costs of your home’s renovation, care and ongoing maintenance to alternatives such as homecare, a retirement home or a nursing home. 60 Australian Carers Guide | SUMMER 2022
• Be honest about care; if the burden becomes too heavy then an accredited facility might be best placed to provide what’s needed. •C onsider asking for independent assessments by family doctors and social services at regular intervals, to notice and address what you might miss when you see your parents every day.
What to watch for The benefits of multi-gen living are undeniable but here are some caveats to consider: Issue: Living with others may be more difficult for those who have been accustomed to living alone. √ Solution: Respect each person’s privacy and allocate everyone a personal space. Agree on noise and lifestyle habits, such as smoking and bedtime hours. Issue: Chores. √ Solution: Establish household rules for chores such as shopping, meal preparation, household cleaning and maintenance. Issue: Disagreements. √ Solution: Establish a way to resolve conflicts and address problems ahead of time. Issue: Financial misunderstandings. √ Solution: Review potential concerns before
everyone moves in. Draw up a written agreement for financial matters such as home ownership, who benefits from capital improvements, and the cost and resale value of home alterations. Issue: Parenting and behavioural concerns. √ Solution: Establish rules ahead of time, outlining who has the final say when it comes to younger children’s care and discipline. Making it happen Architects and homebuilders associations are ready. Floor plans and building designs targeted at multi-gen living have started to incorporate private apartments, granny flats, elevators and ramps, as well as accessible, open floor plans with wider doorways and hallways for everyone’s convenience and safety. If you’re planning to renovate, be sure to seek professional advice regarding building codes, accessibility guidelines and zoning requirements—just to be sure. Pat M. Irwin, BA, AICB, CPCA.
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abbreviations
When it comes to Aged Care, acronyms are plentiful…ACSA, HCP, CHSP… But what do they all mean? Fear no more. We’ve compiled a list of the most commonly used ones – how they work and their service to the community.
ACAT: Aged Care Assessment Team Helps the elderly and their carers determine what kind of support will best meet their needs when they are struggling in their current living situation. Ever had a chat with someone where the talk is littered with acronyms – but you have absolutely no idea what they’re saying?
ACAS: Aged Care Assessment Service (Victoria) Only provides teams who help frail older people and their carers, to work out what kind of care will best meet their needs. After each assessment, a patient’s level of support and service needs are recommended. ACF/ACH: Aged Care Facility or Aged Care Home Accommodation for older people who can no longer live at home independently, who require help/support for everyday tasks/health care. ACIA: Aged Care Industry Association (ACIA) Association of aged care providers, whose members operate residential aged 62 Australian Carers Guide | SUMMER 2022
care, home care, home support and retirement living services. ACS: Aged Care Services Support and services provided to older people in their own home or in an aged care home to assist with everyday living, health care, accommodation and equipment. ACSA: Aged & Community Services Australia The leading national peak body supporting not-forprofit, church and charitable providers of retirement living, community, home and residential care. ADL: Activities of Daily Living Refers to the basic skills needed to properly care for oneself and meet one’s physical needs in six areas: eating, dressing, bathing, toileting, continence, and mobility. It’s used as an indicator to determine the level of care and supportive services needed in senior’s care plan. AIP: Ageing in Place Indicates that a resident can enter an aged care facility at low care and can remain there as their care needs increase to a high care. ATSI: Aboriginal Torres Strait Islander
CA: Carers Australia The national peak body representing Australia’s unpaid carers, advocating on their behalf to influence policies and services. CBC: Centre Based Care For elderly people who require low to medium living support, group activities, excursions and social support are provided in a local centre. CC: Community Care Personalised care and support services to help the elderly continue living at home. CDC: Consumer Directed Care Are services chosen by the elderly person living independently at home, they decide the types of services and care and the providers of the services. CHSP: Commonwealth Home Support Program The entry-level home support program assists older people to live independently in their homes and communities. It also provides respite services to give carers a break. COTA: Council on the Ageing Provides leadership in social policy and community information, and education for older persons.
CRCCs: Commonwealth Respite & Carelink Centres Assists carers by providing access to information, respite care and other support appropriate to carers’ needs and circumstances, and the needs of those they care for. DAP: Daily Accommodation Payment Is the daily non-refundable payment for accommodation in an aged care home. It can be paid regularly up to a month in advance, similar to paying rent. DOH: Department of Health Develops and delivers policies and programs and advises the Australian Government on health, aged care and sport. DTC: Day Therapy Centre Offer a range of services (physiotherapy, podiatry, occupational therapy) for older people living independently either in their own home, or aged care homes. HC: Home Care Services/support given to older people with care needs to live independently in their own homes. HCP: Home Care Packages A program funded by the Australian Government to support older people with complex care needs to live independently in their own homes. They use a consumer-directed care approach to ensure the support suits a person’s needs and goals.
HCS: Home Care Service(s) Support/care services provided to an elderly person in their own home. ILU: Independent Living Unit A small home designed for older people who are actively independent, usually in a village environment MAC: My Aged Care Provides the entry point to the Australian Government Funded aged care services for the general public. NDIS: National Disability Insurance Scheme NDIS provides information and connections to services for people with disability. The scheme also provides support for their families and carers. NESB: Non-EnglishSpeaking Background NSA: National Seniors Association Is a not-for-profit membership organisation and advocacy group of working and retired older Australians. OPA: Office of Public Advocate OPAN: Older Persons Advocacy Network An agency that can provide information to consumers their families and carers about their rights and responsibilities when accessing aged care services. RAD: Refundable Accommodation Deposit Is a lump sum payment for accommodation in an aged care home. This is the price of a room, in lump sum form that you have agreed with your aged care home to pay and
is fully refundable when you leave the aged care facility. RAS: Regional Assessment Service Is the program which undertakes aged care home support assessments RC: Respite Care Services designed to give carers a break from their caring role during planned or regular breaks, short holidays or emergencies. RV: Retirement Village Group of residential premises predominantly occupied by senior citizens who live in apartment style rooms /suite of rooms. SM HCP: Self-Managed Home Care Packages A program funded by the Australian Government to support older people with complex care needs to live independently in their own homes. The elderly package receiver can choose the provider(s) and services given, including the workers or contractors, when the services are provided and can control how the funding is spent. STRC: Short-term Restorative Care A program which provides services to older people for up to 8 weeks (56 days) to help them delay or avoid long-term care. VHC: Veteran’s Home Care Home care for eligible veterans, war widows/ widowers through the department of Veterans’ Affairs. SUMMER 2022 | Australian Carers Guide 63
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64 Australian Carers Guide | SUMMER 2022
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L aw
How to protect your
kid’s
inheritance
66 Australian Carers Guide | SUMMER 2022
Avoiding family provision claims against your estate BY MICHAEL CLOHESY & ELIZA CAMPAIN
I
’m often asked how to avoid claims against a deceased estate; particularly by people with estranged children. The only truly effective way I suggest is to spend everything before you go. Unfortunately, that is often not a realistic solution and elderly people struggle with the idea that their disrespectful and absent adult child (who may have caused them great personal suffering) could get a share of their hardearned money after they pass. Parents often wish to reward their ‘good child’ who has spent time and energy supporting, loving and caring for their parents in their twilight years. Unfortunately, parents need to be mindful that a claim may be made against their estate if there is an uneven distribution in their will to their adult children or if they completely exclude a child as a beneficiary in their will. These types of claims are known variously throughout Australia as ‘Family Provision Claims’. A claim of this nature allows a disgruntled adult child who has not been provided with ‘adequate provision’ from their late parent’s estate to contest the terms of the will.
“
From experience children seek equality more than anything else.
”
Unfortunately, these claims are becoming more common. In the Victorian Supreme Court alone, there were 406 of these claims filed last financial year. Family Provision claims are litigious in nature, lengthy in duration and drain significant funds from the deceased estate. In other words, such a claim should be avoided at all costs. Several different strategies outlined below can help you minimise the likelihood of a claim being made against your estate after you pass. A professional estate Family planning lawyer will Provision turn their mind claims are litigious to these in nature, lengthy strategies in duration and drain when significant funds from drafting your the deceased will. estate. To reduce the possibility of your Will being contested, consider the following:
1. MAKE A ‘FAIR’ WILL Let’s say you have two children, and you leave 50% of your assets to one child and 50% to the other child. This scenario will definitely reduce the risk of one child contesting the will as there has been an ‘even’ distribution. From experience children seek equality more than anything else. Yet, a ‘fair’ will does not mean the assets need to be distributed evenly amongst children or other beneficiaries. A ‘fair’ will often requires a judgement of the potential beneficiaries who may have a claim against your estate and an evaluation of whether SUMMER 2022 | Australian Carers Guide 67
your intended distribution provides for their proper maintenance and support.
2. SPEND OR GIFT YOUR ASSETS BEFORE YOU DIE A simple tactic is to spend your assets or gift them to others before your death. By doing so, there are minimal assets left in the estate for children or family members to quarrel over. A person can provide a gift to a specific individual upon contemplation of their death (the legal term is donation mortis causa). This type of gift no longer forms part of their estate as the donor does not legally own the asset anymore. Be careful, however. New South Wales has special laws that allow for ‘notional estate claims’ against deceased estates. A notional estate claim is an application to the court by a claimant to reacquire assets that were distributed before the death of the willmaker back into the deceased estate. The strategy of gifting assets before a person dies may sound smooth sailing. However, it may not be practical as it could impair the availability of future or unforeseen expenses such as an accommodation bond for a nursing home. There is also the possibility that disgruntled family members can challenge a gift made before a person’s death based on undue influence or lack of mental capacity.
3. MAINTAINING A RIGHT OR INTEREST IN YOUR GIFTED ASSETS A downfall to gifting assets before a person’s death is that the person is depriving themself of the asset. However, a person can reserve some right or interest in the asset before gifting it to a loved one. For example, an asset (like the family home) can be gifted to a relative with the condition that the relative pays a rent charge or 68 Australian Carers Guide | SUMMER 2022
provides an annuity. In this scenario, the person still receives a benefit from the asset in the form of income. This income can support the person for the remainder of their life. Once the asset is gifted, the legal title will pass to the relative, meaning the asset does not form part of the estate and is not susceptible to a claim.
4. PLACING YOUR ASSETS IN A FAMILY TRUST A family trust is a valuable mechanism to remove assets from a person’s estate. A family trust arises when a person or company holds assets for other people’s benefit, usually their family members. It is possible to still maintain control of the assets through acting as trustee for the trust. However, a possible downside is the transaction costs associated with placing any real property or shares into the trust.
5. HOLDING YOUR PROPERTY IN A JOINT TENANCY A simple technique to reduce the chance of a claim against an estate is to transfer property into joint ownership. Holding property in a joint tenancy is typical for married couples or couples who live together on a genuine domestic basis. For example, let’s say that mum and dad own their family home as ‘joint tenants’. (Check your Certificate of Title to see if this is the case). Upon mum’s death, dad will automatically become the sole owner of the property. The property will not pass through mum’s estate, meaning that the house is protected against a claim. Joint ownership can also be used by a parent who wishes to give property to a child on the expectation that the parent will die first. Notably, joint tenancy is different to property held as a ‘tenancy in common’. For a tenancy in common, the deceased’s share will form part of their estate. Again, have a
look at your Certificate of Title to see which one it is.
6. BINDING DEATH BENEFIT NOMINATION FOR SUPERANNUATION These days, a large portion of people’s wealth will sit in their superannuation account. Since superannuation funds are technically not ‘personal assets’, they do not fall within a deceased person’s estate. For this reason, people should turn their minds to where those proceeds will go after their death. It is possible to direct your superannuation proceeds to selected individuals through a Binding Death Benefit Nomination. The Nomination form will often lapse after three years, meaning it requires continual upkeep. You can often find these forms via a simple online search.
your death. This payment will not become part of a deceased person’s estate. However, a person must be cautious if their policy is ‘self-owned’. In that case, the proceeds may be paid to the estate and therefore are susceptible to a claim. This article is merely a general summary of several strategies to minimise a family provision claim. As each person’s situation is unique, it is recommended that legal advice is sought to develop a tailored strategy for your estate planning.
Michael Clohesy is the National Head of Legal Services at Gathered Here. Michael can be emailed at michael@gatheredhere.com.au
7. LIFE INSURANCE POLICY If you own a life insurance policy, you may direct any payment to another person upon
SUMMER 2022 | Australian Carers Guide 69
D ementia care
Dementia Discrimination D
uring this year’s Dementia Action Week, Dementia Australia released a report Discrimination and dementia - enough is enough, showing that people living with dementia and their carers experience discrimination that can lead to social isolation, loneliness and poor mental health. We know that COVID-19 has intensified these experiences.
Dementia Australia surveyed 900 people about dementia, discrimination and the impacts of COVID-19.
The respondents identified as either people living with dementia, family carers, family/friends of a person with dementia, healthcare professionals or people who were not impacted by dementia. BY MAREE MCCABE AM, CEO DEMENTIA AUSTRALIA
70 Australian Carers Guide | SUMMER 2022
The impact of anticipated discrimination affects those living with dementia, their carers and families How
Extended carers family and friends
Research demonstrates that this discriminatory behaviour impacts all aspects of a person’s life; from the way they engage socially to the types of services they access and receive and the way their human rights are interpreted.
A recent Joint Position Statement issued by Carers Australia and Dementia Australia in October 2020 also spoke about the discrimination faced, not only by people living with dementia, but also by their family and friend carers.
Examples of the discrimination include:
Carers report that even family and friends of a person with dementia may feel awkward in their presence and seek to avoid them, which can cause the carer to feel embarrassed, outcast and lonely.
• Families and friends dropping off and people with dementia reporting they are less likely to be included in social occasions and engagement. • Carers of people living with dementia being less likely to receive support from employers and potentially experiencing heightened financial and mental health impacts. • not disclosing their fears of dementia or a diagnosis or being reluctant to present for diagnosis when symptoms appear. This often results in self-isolation and poor mental health outcomes as well as hindering their access to services and supports. • accepting discriminatory behaviour because they do not feel empowered to speak up when their rights are compromised. • experiencing poorer care and fewer treatment options than those with other chronic diseases and not feeling able to challenge the system.
Fear of discrimination can exacerbate the social isolation already experienced by carers of people with dementia, as they dedicate many hours of their lives to their caring role. They also report experiencing increased anxiety, isolation and fatigue, which can lead to burn out and poorer mental health than those not in a caring role. It is important for the mental health and wellbeing of carers that they receive a break from their caring role to maintain their own independence and participate in social activities. The discrimination faced by carers is largely inseparable from the discrimination associated with those they care for, despite the World Health Organisation stating that people living with dementia, their families and carers have the right to be free from
SOME OF THE SURVEY RESULTS INCLUDED: • 43% of people living with dementia and 38% of family carers had postponed health or medical visits due to COVID-19 restrictions. • 32% of family carers indicated they had experienced poorer mental health or loneliness due to COVID-19 restrictions – 37% also noticed these impacts on the person they care for with dementia. • 34% of family carers and 30% of people living with dementia indicated their physical wellbeing had declined due to COVID-19 restrictions. SUMMER 2022 | Australian Carers Guide 71
discrimination, including intended or unintended discrimination on the grounds of a diagnosis of dementia. The need for better education It is critical for carers of people living with dementia to be supported in their caring role and able to live lives free from stigma and discrimination. They need to be able to access high-quality respite care that is responsive, respectful and culturally appropriate, and which addresses the needs of the person they care for as well as respecting the person’s individuality and promoting a good quality of life. While there are some communication techniques that can help carers to avoid negative responses from others and some mental health techniques that can help them avoid internalising stigmatisation, the key to systemic change is better educated communities and better educated families. Small acts of support and understanding can make a big difference in the lives of people living with dementia, their families and carers. When communities work together to become more inclusive and support people living with dementia and their carers, they can continue to engage in activities that are important to them. A concerted effort to improve community awareness to alleviate the discrimination faced by carers of people living with dementia is key.
The Joint Position Statement issued by Carers Australia and Dementia Australia recommended:
• The development of an awareness campaign - raising awareness by sharing stories of discrimination with the media as well as social posts around types of discrimination that carers of people living with dementia might experience.
72 Australian Carers Guide | SUMMER 2022
• Creating additional carer support services such as respite services, community support groups, and counselling to better meet the needs of carers caring for a person living with dementia. This is particularly important for the mental health and wellbeing of carers. • Providing a multi-component early intervention support program for carers of people living with dementia that combines education and training opportunities to equip carers to fulfil caring duties - with access to psychosocial interventions and supports that help to maintain the carer’s mental health and wellbeing. • Designing a service access gateway and a holistic assessment process that recognises the importance of carer supports alongside services for people with dementia. • Ensuring aged care support packages place equal importance on the needs of carers and people living with dementia. • Making mental health support services more broadly publicised, available and accessible for people who are specifically impacted by dementia. • Information and education about people living with dementia and the caring role people undertake be widely available on government and relevant service provider websites. Some tips for supporting carers include:
Keep in touch
Carers of people living with dementia can often end up isolated given the amount of time they spend caring for their loved ones. Do keep in touch through phone calls, emails, visits, letters or cards. Don’t worry if you don’t have all the answers, you can just listen without offering advice or judgement. Make sure you ask how THEY are doing, not just the person they care for.
If you can, do continue to keep in touch. Maintaining connection may be particularly important around birthdays or important cultural holidays.
Encourage them to take a break
It can be difficult to find the time to take a break when you are caring for a loved one. Help them take a break by offering to spend time with the person they care for. Or, if a carer you know is taking a holiday, perhaps you can offer to check in on the person they care for while they are away. Sometimes carers of people living with dementia may feel guilty about taking a break. Reassure them it’s ok and that you are here to support them.
Help to share some of the responsibilities
To take pressure off the primary carer, offer to help with some of the care tasks or responsibilities. Some practical ways of showing support might be to drop off meals, do their dishes, help in the garden or do some laundry. Ask what kind of support they would feel comfortable with and what might be helpful. From speaking to carers of people living with dementia, we know that one of the most helpful things is when family and friends can be regular in their support. Can you offer to reliably share some responsibilities once a week or once a month? This might be achieved by bringing together a small group of friends or family to create a roster.
Invite them out to an outing or event together Help carers by organising activities you can do together to relax. This might be small – like bringing over a magazine they like to read or making them a cup of tea. If you’re inviting them out for coffee or an activity, give them the option to either include the person they care for or to go
along by themselves. Keep the invitation open and flexible.
Encourage them to seek support if they need it
You can help a carer find support that works for them by becoming more educated on dementia and the services available. You can call the National Dementia Helpline (1800 100 500) to find support groups and services in their area. You can also register to become a Dementia Friend. As a Dementia Friend, you will build an understanding of dementia, the challenges faced by people living with dementia, what a dementia-friendly community means to people living with dementia, and how to support people living with dementia to stay connected.
Help them to look after their physical health
It might be difficult for carers to prioritise their own health as well as the health of the person they care for. Cook them a healthy meal or snack, encourage them to exercise with you or help them stay social by signing up to a community class together.
Support them to maintain good mental health If you notice changes in mood such as sadness and grief, encourage them to seek mental health services, talk to a professional or call the National Dementia Helpline on 1800 100 500. A little support can make a big difference to someone’s life and experience of dementia. Visit discrimination.dementia.org.au for more information. SUMMER 2022 | Australian Carers Guide 73
There are 14 dangerous things in this picture Can you spot all of them?
Stay safe! • Stairs without handrail
• Smoking. Cigarettes left unattended
• Flip-flop slippers
• Deactivated fire alarm
• No automatic shut-off coffee maker
• Clutter on staircase
• Cloth on space heater
• Open bottles of medicine
• Newspapers too close to lamp
• Overloaded outlets
• Outdated medications in cabinet
• No handle and no deadbolt on door
• Loose extension cords in traffic areas • Loose rugs
74 Australian Carers Guide | SUMMER 2022
COMIC CORNER
Jokes Laughter is good for the soul and a merry heart does good
like medicine My partner has put on so much weight over winter, that he can only play SEEK now.
My hubby takes two pairs of pants to
GOLF in-case he gets a HOLE IN ONE What do you call a dog with NO LEGS? It doesn’t matter because he wont be able to come How many seniors does it take to change a LIGHT BULB? One, but she paid the telemarketer $2000 for the new bulb My dentist told me I need a crown
FINALLY
someone that understands me Three men walked into a
BAR
you’d think one of them would have seen it
SUMMER 2022 | Australian Carers Guide 75
M ental Health
Help prevent
dementia-related
wandering
Photos: CanStock Photo
S
By Mark MacLean
tuart arose early, ready for a new day and excited about the prospect of a day doing the job he loved. He put on his favourite tie and headed out the door, briefcase in hand, to go to work as an insurance adjustor. In reality, however, Stuart is 85 years old and has been retired for 20 years. He also has Alzheimer’s disease, a brain disease that can take those who have the condition back to a different time and place.
“A person may want to go back to a former job he or she had, even though it may no longer exist,” says Monica Moreno, director of early-stage initiatives for the Alzheimer’s Association. “Or someone may have a personal need that must be met. For example, that individual may be looking for the bathroom, but be unable to find it. So he or she goes searching and gets lost. There’s always a purpose and intent. It’s just a matter of identifying the triggers.”
Wandering is one of the potential symptoms of Alzheimer’s disease and other dementias. According to a leading authority on the issue, those who wander often are trying to get to a familiar destination with a specific purpose in mind—such as a former job.
With this in mind, family carers should watch for the signs that a senior may wander and take precautionary measures to help curb the risk. Doing so will go a long way to helping everyone stay safe and increasing peace of mind.
76 Australian Carers Guide | SUMMER 2022
Who’s at risk of wandering? A wandering event causes immediate panic and can be one of the worst scenarios for the family of a person with dementia. Unfortunately, however, it’s a situation that occurs all too often. According to experts, six out of 10 people living with Alzheimer’s or dementia will wander at least once. The reality is that any senior living with Alzheimer’s and other forms of dementia is at risk of wandering. Furthermore, the behaviour can affect individuals at all stages of the disease, as long as they’re mobile. Wandering can happen at any time and is not just limited to those on foot - individuals using wheelchairs or other mobility aids are also capable of heading out on their own. A recent survey conducted by Home Instead Senior Care revealed that nearly 50 percent of families have experienced a loved one with Alzheimer’s wandering or getting lost. Of those, nearly one in five called the police for assistance. Understanding why a senior may wander can go a long way in helping to prevent wandering episodes and locating missing loved ones without the need for police assistance. Why do seniors with Alzheimer’s wander? A common misconception about Alzheimer’s and wandering is that the individual who wanders often does so without purpose. One of the most frequent reasons a senior with Alzheimer’s might wander is due to the desire to go back to a previous home or to a former workplace. Individuals often don’t
There are 16,000 Australians under the age of 65 years old living with dementia.
realise they are already home, or that they have been retired for many years. This might seem confusing to carersgivers, but it’s vital to understand so families can prevent future wandering episodes. Meet Dan Dan’s wife of 50 years lives at home. The only problem is, she doesn’t know it. “A daily request is for me to take her ‘home,’ says Dan, “ despite the fact she is home and is surrounded by her familiar home décor. She can’t say where home really is and my attempts for her to describe what home means have had no effect. It appears as if ‘home” is where she was a mother to our five children.” That desire to go home is one of the common triggers for wandering in individuals with Alzheimer’s disease. They often don’t realise they are home, so they are on a quest For those to try to get there. who wander The following and are lost for more points, from than 72 hours only the Alzheimer’s 20% survive. Association, describe five common triggers that can prompt an individual with Alzheimer’s or another form of dementia to wander, and explain what family carers can do to help. 1 Delusions or hallucinations. Individuals with Alzheimer’s disease can misinterpret sights and sounds. Carer Evelynn says her mother wakes up in the middle of the night, insisting that someone is in the house and intent on doing her wrong. “I had to put an extra lock on the front door because she wakes up at night or from a nap in her chair and believes someone is at the door or on the porch, and she needs to let them in,” Evelynn says. As Evelynn has found, extra safety features are sometimes needed in a home to ensure a loved one stays safe. 2 Overstimulation. Individuals with Alzheimer’s disease can become easily upset when in a noisy and crowded environment. If that happens, they may try to escape SUMMER 2022 | Australian Carers Guide 77
from the chaos and wander. Avoid large, noisy places. Look for restaurants with quiet areas. Discourage big parties and family gatherings, or find a quiet room for your loved one to sit, then invite guests in to visit one at a time. 3 Fatigue, particularly during late afternoons and evenings. The later in the day, the more tired an individual with Alzheimer’s disease can become. This can lead to restless pacing back and forth. Furthermore, the shorter daylight hours during winter can often lead people with Alzheimer’s or other forms of dementia to become confused about the time and become fatigued more quickly. Activities and exercises during the afternoon and evening can calm an individual and help to minimise the triggers for wandering. 4 Disorientation to place and time. Like Dan’s wife in the real-life example above, individuals with Alzheimer’s disease may not recognise they are already home. Avoid busy places that can cause confusion. Refrain from correcting the individual, and reassure the person he or she is safe. If the individual is feeling anxious, agitated or restless, take
Wandering
whys and whens
Common triggers can run the gamut from tiredness and confusion at the end of the day (commonly referred to as “sun-downing”) to a change in routine, such as a move from home to a care community. The frequency of wandering typically varies according to the stage of the disease. “I work with many individuals living in the early stages of the disease,” says Moreno. “Typically the challenge during this stage of the disease isn’t wandering, it’s getting lost.” The early stages of Alzheimer’s disease tend to involve more disorientation, while the later stages may involve wandering. Regardless of the whys, those who wander are often looking for safety and reassurance because they are feeling lost, abandoned or disoriented. If the person with dementia wants to “go home” or “go to work,” consider using communication focused on exploration and validation. Try to refrain from correcting the person. For example, you might say: “We’re staying here tonight. We’re safe and I’ll be with you. We can go home in the morning after a good night’s rest.” 78 Australian Carers Guide | SUMMER 2022
him or her for a walk. 5 Change in routine and unmet needs. Lydia had just moved to a long-term care community. Confused about leaving her familiar home, Lydia was found wandering in her new environment in an effort to make her way back to the place with which she was most familiar. Reassure the individual with Alzheimer’s disease that he or she is not lost or abandoned. And put safety features in place to keep that person safe. Establish a regular routine. Those who have Alzheimer’s disease do better in a structured environment. Because unmet needs also can trigger wandering, make it a practice to suggest a loved one go to the bathroom after a meal. Keeping your loved one safe While you can’t stop someone with Alzheimer’s from experiencing the urge to wander, there are precautions you can take to help keep them safe. Ensure your loved one wears identification. The number-one thing you can do is ensure that an individual at risk always wears a form of identification, such as a bracelet from the MedicAlert Safely Home program. This is a fee-based, 24-hour nationwide emergencyresponse service for individuals with Alzheimer’s disease or with a related dementia who wander or have a medical emergency. Reduce the likelihood of outside wandering. Many products exist on the market to help keep older adults with dementia safe at home. These include alarms that attach to the doors and windows, covers for doorknobs that help prevent an individual from leaving the home and higher-security locks or motion detectors throughout the house. Other strategies include placing locks out of eye-level view, and painting doors and door frames the same colour as walls to “camouflage” exits. Make the home safe. It’s also important to realise that wandering can happen within the home. To keep seniors safe at home, make sure that walkways are well lit and clutter free. Closing off certain parts of a room or locking doors will help to create a path that is less likely to cause individuals with Alzheimer’s to become disoriented or confused. Extra lights at entries, doorways,
stairways, and areas between rooms and bathrooms will also help to minimise the possibility of accidents due to wandering. Meet Arlene A carer named Arlene says her husband often awakes at night not knowing where he is or thinking it is time to get up. “So we put a motion detector in the bedroom,” she said. “That has worked well for me.” Tips to be proactive about safety and wandering Make a path in the home where it is safe for an individual to wander. Closing off certain parts of a room or locking doors can help achieve this goal. Such paths can also be created outdoors in a garden, for instance. One family carer remembers her husband getting outdoors in the middle of the night in the dead of winter. “A fence kept him from wandering from home, so he went into the garage. He was banging on the door at 5 am, which woke me up. If he had gotten out of the yard, he would possibly have died from the cold.” Install barriers and fences in yards to help ensure that a loved one doesn’t wander from home or into unsafe territory. Keep walkways well lit. Add extra lights to entries, doorways, stairways, and areas between rooms and bathrooms. Use night lights in hallways, bedrooms and bathrooms to help prevent accidents and reduce disorientation. Place medications in a locked drawer or cabinet. To help ensure that medications are taken safely, use a pill box organiser or keep a daily list and check off each medication as it is taken. Remove tripping hazards. Keep floors and other surfaces clutter free. Remove objects such as rugs, magazine racks, coffee tables and floor lamps. Be proactive Learning as much as you can about Alzheimer’sand dementia-related wandering will go a long way in not only keeping senior loved ones safe, but also reducing carer anxiety. Try these tips from preventingwandering.ca
1 Know your environment. Are there lakes,
wooded areas or shopping centres that could attract an interested senior? What has the individual been talking about? Was there a mention of wanting to visit someone or a specific place? Keep a list of the places where your loved one may wander. 2 Be prepared if a loved one becomes lost. Register with the Missing Senior Network program. This free web service helps family carers to create a list of contacts they can alert should their loved one go missing. The service enables carers to notify their network of friends, family and businesses in the event a loved one become lost. 3 Combat anxiety, agitation and restlessness with reassurance and diversions. The more anxious a loved one becomes, the more likely he or she could be headed out the door. During those times, provide activities that can divert and entertain. Also reassure the person that he or she is safe and that everything is OK. 4 Educate others. Tell as many people as possible about the disease - from trusted neighbours and shop owners, to the staff of restaurants where your loved one likes to eat so they are aware. 5 Ensure constant supervision. Too much activity or noise can trigger a “flight” reaction. Avoid large, noisy gatherings and crowded places. As dementia progresses, your loved one may need constant supervision to remain at home. This is not something you should try to do alone for extended periods. 6 Take care of yourself and get help. You’ve heard it before, but it’s true: You can’t be a good carer unless you first take care of yourself. Keep up-to-date on medical checkups and get respite help. Mark MacLean is the Managing Director of Home Instead Senior Care. SUMMER 2022 | Australian Carers Guide 79
F inance
Tis the season to talk about AGED CARE
by rachel lane from aged care gurus
S
ome call it the silly season, others call it the festive season but I call this time of year “aged care season”. It’s a time when families come together, maybe for the first time since last Christmas, and realise that Mum or Dad or both need some (or a lot of) care. So, if your family gathering turns into a conversation about “what are we going to do to help Mum?” Here's my 12 tips for navigating the aged care season.
80 Australian Carers Guide | SUMMER 2022
1 Talk about it.
Conversations about care can be hard. Maintaining good communication and having a “with you” rather than “to you” attitude can make the transition easier for everyone. There is a wide range of accommodation and care options, sometimes older people feel like a conversation about aged care is a slippery slope to a nursing home when really having these conversations and planning early can be the best antidote to needing to move into residential aged care. But if the decision is made to move into residential aged care, starting your research sooner rather than later normally means you have far more choices.
2 Look into Home Care.
There’s a range of home care services, including Commonwealth Home Support Programme (CHSP), Home Care Packages, Department of Veteran’s Affairs (DVA) services and private care. While many people think of home care as a regular service you can access more than just your regular care. Home care services can also include equipment and aids, home modifications, respite services, home and garden maintenance and social activities.
Commonwealth Home Support Programme (CHSP) The range of services
available vary from one provider to another, as does the amount you will pay. People who can afford to do so will be asked to pay a cocontribution towards their services based on their income.
Home Care Packages are provided on a
consumer directed care basis, which means that you control the budget of funds in your home care package. You need to choose a provider to host your package and you can receive your services from them, from other approved service providers or a combination. You can even self-manage your package if you wish. The amount you pay for your Home Care Package depends on the level of package you receive and your assessable income. There are 4 levels of package; the basic daily fee is based on the level of your package and ranges from $9.88 per day at level 1 to $11.02 per day at level 4. In addition, you can pay an income tested care fee, based on your assessable
income of up to $15.81 per day if you are a pensioner or $31.63 per day if you are selffunded.
Department of Veteran’s Affairs (DVA)
People who are eligible for DVA services should contact them about the wide range of services and support they provide to returned servicemen and woman and their widow/er.
3 Arrange an assessment of your care needs.
The first step in accessing government funded aged care is to have your care needs assessed, which starts with a call to MyAgedCare. If you are going to be receiving Commonwealth Home Support Programme (CHSP) services, then you will need a Regional Assessment Service (RAS) assessment. If you want to access a Home Care Package, a respite stay or a permanent move to an aged care facility you will need to have an Aged Care Assessment Team (ACAT) assessment (known as ACAS in Vic). The assessments are free and easy but you can be waiting many weeks, sometimes months at busy times. The assessment will normally be conducted face to face in your home where you will be asked questions about the things you are able to do for yourself and those that you need help with. Rest assured that the assessment team are there to help you.
4 Take a Break.
Respite in an aged care facility can give carers a much-needed break. It is also a great way to “try before you buy”. A respite stay of 2 or 3 weeks is normally long enough to get a good idea of the activities, the other residents, the food and most importantly the care. Respite is also very affordable as there is no accommodation costs or means tested care fee, you only pay the Basic Daily Fee, currently $53.56 per day. Of course, if you receive extra or additional services, which can include wine with meals, hairdressing, massage or Foxtel then you will need to pay for those.
5 Consider Downsizing.
Retirement villages and land lease communities are becoming a popular choice for people who need some care because they SUMMER 2022 | Australian Carers Guide 81
provide the independence to do what you can for yourself with care and support for things that you can’t (or don’t want to) do. If you’re thinking about making the move to a retirement community, it’s important to crunch the numbers. Make sure you break down the costs into the Ingoing, Ongoing and Outgoing as simply comparing based on the upfront price means that you are ignoring two key elements of costs (what you will pay while you live there and when you leave). Other important questions that you should ask include: •
whether you need to pay stamp duty
•
how the ongoing costs are determined
•
ow much money you can expect to h receive after you leave
•
ow soon you will get it the money h after you leave
Some contracts are subject to guaranteed repayment time frames while others rely on the dwelling being sold to the next person.
6 Research your options. Whether you are considering moving into a granny flat with family, downsizing to a Retirement community or moving into residential aged care you need to do your research. In the words of the movie “The Castle” “It’s the vibe”. Most retirement communities will have opportunities for you take a tour, join in an activity or two or attend an open day – gather as much information as you can from the staff and from the residents who are living there. When it comes to granny flats it’s important to remember that living with family is not the same as joining them for dinner on a Sunday or the occasional holiday. Make sure you think about the dynamics of the house now and in the future. 7 Crunch the numbers.
Funding the move into a granny flat, retirement community or aged care home often involves the sale of your current home. If you receive a means tested pension such as the Age Pension make sure you understand
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the impact of your move on your pension and other entitlements such as rent assistance and concession cards. For many people the amount of money they will get for their current home will be greater than what they spend on their new home. This often causes a reduction (or loss) of pension under the assets test. There are different asset thresholds depending on whether you are single or a couple and based on whether you are classified as a homeowner or not. Once your assets exceed the relevant threshold, your pension reduces by $7,800 per year for each $100,000 – which can have a terrible effect on your cash flow.
8 Timing.
If you are a couple, then the timing of your move into aged care can make a significant difference to your costs. It’s important that you understand the impact of moving together or separately (even a day apart). You see, your home is exempt from your aged care means test while your spouse lives there. Moving in separately can enable the first person to qualify as a “low means resident” and have some or all of their accommodation cost subsidised by the government. Before you employ such a strategy make sure you are happy with the accommodation you will be provided and that you have crunched the numbers on what it will mean for your pension and your cost of aged care in the longer term. It may sound crazy, but it is possible for low means residents to end up paying more than the market price.
9 Supersize your superannuation.
Downsizers who are over the age of 65 and have lived in their home for 10 years or more can qualify to make a “Downsizer Contribution” to their superannuation. You do not need to satisfy the work test or the age test to make a downsizer contribution and if you are eligible you can contribute up to $300,000 from the sale of your home (which means an eligible couple could contribute up to $600,000). You can only access the scheme once (once accessed, you cannot use it again on another
property) and your contribution will need to be made within 90 days of your home selling (unless there are extenuating circumstances) with the appropriate downsizer contribution form completed for your super fund. The contribution doesn’t count towards your contribution caps and there is no requirement that you purchase a new home. However, your superannuation is included in the means testing arrangements for the Age pension.
10 Have a trusted Attorney.
Having an Enduring Power of Attorney enables a trusted person or people, rather than a tribunal or a court, to make decisions for you when you can’t. Powers of attorney can be made for financial decisions, medical decisions and lifestyle decisions. You may wish to nominate the same person or different people for different roles. Make sure you have one.
11 Estate Plan.
A good estate plan is more than “just a will” – it considers the assets that will be part of the estate and those that won’t and provides a clear document of your wishes. It is really important to have one and have it properly documented. It doesn’t need to be complicated, although
there can be significant financial benefits to having a testamentary trust (which is where your will creates a trust that is responsible for the distribution of assets and income). The most important thing is to speak to a legal professional about who you do (and possibly don’t) want to receive your assets when you are gone.
12 Get Advice.
Whether it’s a granny flat, a retirement community, home care or an aged care home, crunching all of the numbers can be complicated. Advice from a Retirement Living and Aged Care Specialist will ensure you understand all of the choices that you have and the strategies you can use to make it more affordable. The right advice is well worth the cost. Rachel Lane is the principle of Aged Care Gurus where she oversees a national network of specialist advisers. She writes regular columns on retirement living and aged care for the Sydney morning Herald, Melbourne's The Age and the Brisbane Times and she regularly speaks on TV and Radio. Rachel has co-authored a number of books, including the Best Seller Aged Care, Who Cares? and her new book Downsizing Made Simple. All figures are correct as of November 1st 2021
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C arers
Photos: CanStock Photo
10
Tips for
retirees who have become carers
By Mary Bart
84 Australian Carers Guide | SUMMER 2022
Is retirement not quite turning out as you expected? Have those dreams of sitting on a tropical island, sipping martinis, been replaced by caring for a loved one? Make the most of retirement years with these words of advice: Keep an optimistic attitude 1Having an optimistic attitude and
a good sense of humour can only increase your enjoyment of the world. Life often throws us nasty surprises and curve balls, but staying upbeat will sustain you through difficult times. If you find yourself becoming overwhelmed with feelings of sadness, hopelessness or depression, seek professional help. Being a primary carer might have not been in your planned future, but it is a transition that is often part of the aging process and is now your new normal. Accepting and embracing this change will better allow you to make the most of each day.
Take care of your health 2Create and maintain a regimen to
take care of your health. With others counting on you, staying active, alert and healthy can make all the difference. Part of being healthy means not over-eating or -drinking, and taking the time for your own medical and dental check-ups and appointments. Being physically active is key. Try walking the block, taking a Zumba class or even regularly following an exercise video at home to keep supple and fit.
tay connected and embrace 3 Slife-long learning
Participate more, share more and do what you can to spend time with others. Here are just a few ideas… • If you have always enjoyed your book club, an evening class or simply having coffee with a friend, keep doing them. If necessary, ask friends or family for help so that you can take time for yourself on a regular basis.
• Seek out local support groups to help you deal with your loved one’s health issues. Most health-related organizations (e.g., the Alzheimer
“If you can’t change your fate, offer such groups for families with change your common issues, needs and realities attitude.” to come together. Society, Heart and Stroke Foundation)
• Do things with grandchildren or young adults—their energy and joy for life can be contagious. In addition, young people offer a wonderful connection to new ideas and technologies that will open doors for you. • Explore cultural activities. Enjoy a free concert in the park, visit a museum or check out the animals at the local zoo. If mobility is an issue, look online to make sure your chosen place is accessible. • Get involved in politics. Learn more about your neighbours and their issues and concerns. Offer to lend a hand with campaigns and support the next candidate running in your riding. • Technology is a great, often inexpensive way to stay connected. Try a computer class, learn to Skype or take an online course. The internet will expand your world, increase your links to the outside and sustain your
Amy Tan
Meet Sam Sam’s heart attack forced him to rethink his life, and ultimately led to an earlierthan-expected retirement. He also had to change his eating habits and add more exercise to his days. Through the months of Sam’s recovery, his family offered their love and support by preparing his meals, cleaning his home and doing his shopping. Sam now is an active retiree who plays golf regularly with friends, travels and volunteers at his local hospital. According to Sam, “I am very thankful for the support of my family and now lead a rich, full life.” SUMMER 2022 | Australian Carers Guide 85
Meet Ruth Ruth’s husband, Luke, has dementia. Ruth, who is 72 years old, now spends most of her time caring for Luke and rarely leaves him alone. Ruth shares her thoughts about her life. “I thought that when I quit work I would visit with friends and Luke and I would travel. That is nothing close to what my life is today. Today, I work harder than ever before to keep my husband, myself and our home going. Caring, although not what I had planned for this stage of my life, is now allowing me to cherish every day with Luke. I know that my carer will not last forever, but, for today, it is my life. It is my purpose.” spirits, even during the most miserable winter weather. Embracing life-long learning is all about consciously keeping a sharp mind. Challenging yourself to try something new - such as playing the piano, taking an art class or simply trying a new recipe - will make sure your brain stays active.
4 Consider your financial stability
Managing your finances so that you can deal with any nasty surprises will make you feel more comfortable and secure. As a carer, there might well be extra costs that you hadn’t thought about. Will you need to pay for homecare services, medical supplies or prescriptions? Perhaps this is the time to “right size” your home. That might mean moving into a smaller place, such as a flat or bungalow, or upgrading your existing house so that it has a safer bathroom, wider doorways and less challenging entrances and exits. The decisions you make about where you live should take into account potential future health needs, ease of maintenance and proximity to medical services. If it is possible in your situation you might also consider going back to work on a part-time basis, both to bring extra cash and as a way to stay socially 86 Australian Carers Guide | SUMMER 2022
engaged. Do the math. Look at your current and expected expenses and compare them with the money you have. A financial planner can often identify areas where you can change your spending to allow you to maintain your lifestyle. Of course, all financial planners will tell you to live within your means and make (often difficult) adjustments to keep your head above water.
Think about spirituality 5 Spirituality is not the same as
religion. It is about you knowing who you are, how you handle challenges and what your place is in this world. How you see yourself and your world is drawn from your purpose in life and your ongoing values. Knowing who you are will keep you strong, and able to tackle and conquer each day.
your legal affairs in order 6It isGetnever too early and sometimes
too late to get your legal affairs in order. Work with a lawyer to draft a power of attorney document and will, and make sure the person you are caring for also has his or her affairs in order. Working with a lawyer to write these documents will ensure that your wishes, values and beliefs are respected, and will also bring greater peace of mind in your retirement to you and your family.
7 Give back and volunteer
Ask retirees why they volunteer and they will probably say that they like to support a project or cause they
believe in, and that allows them to use their skills and knowledge to make a worthwhile contribution. There are many volunteering opportunities out there, such as mentoring or helping at the local food bank. Staying active and involved has clear health benefits, such as reducing the likelihood of loneliness, depression and isolation, and keeping the body and mind sharp and engaged. It is usually easy to finding volunteering opportunities, especially if you use the internet. Most organizations have websites and many community services groups post placements. Find something that interests you and give back. You will achieve great satisfaction by helping others.
Explore new 8 hobbies
Take time for yourself and activities that make you feel happy and fulfilled. Going back to an old favourite or trying a new hobby that you’ve never had time for in the past can be good for your mind, body and soul. Ok, so skydiving might be a bit risky, but lots of us still decide it’s now or never and jump on our 60th, 70th or 80th birthdays! Think of things you enjoy doing and be sure to write them into your schedule. Don’t feel that you have to go for the big adventure. Simple things, such as knitting a scarf, reading the latest book from your favourite author, planting bright flowers in the garden or taking photographs of birds in the park, can be just as fulfilling. These activities don’t cost much money, yet will bring a wealth of joy into your world.
“The trouble with retirement is you never get a day off.” Abe Lemons
Create goals for your hobbies and plan special things to look forward to improve your golf score, join friends for a mid-week game of cards or try a new recipe each week. Be bold and creative, and your days will become more fun and rewarding.
9 Make life plans
In contrast to our younger working or childbearing years, our time as older adults can be less well structured and lack a specific roadmap. For some, having short, medium and long-term
Meet Sylvie and Alex Alex has a young family that Sylvie is helping take care of. Since her husband passed away, she’s had more time to visit her grandchildren, pick them up from school and participate in their evening activities. However Sylvie was feeling lonely and not very safe, as well as being strapped for cash. Alex and his wife recently invited Sylvie to move into their home. Together they’ve created a comfortable in-law suite. Sylvie now feels safe, comfortable and happy. I have the best of both worlds. I’m able to maintain my independence, cook for myself when I want to, and see my friends. I’m also able to see and help my son and his family whenever I like. It’s a sensible, long-term solution for us all.
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10 Foster relationships plans can be comforting. Think about today. What is on your plate, and how can you make the most of living in the moment? Where can you expect your life to be in five, 10 and 20 years? Having an idea of these time frames will allow you to design a plan that might have different activities or responsibilities for each time period. For example, you might be living in a large house today and want to downsize in a few years; or plan to reduce your working hours. Creating a life plan will not only help you to stay positive, but will also keep you on track to reach your personal goals.
Meet Rose This mother of three took early retirement to care for her sister. Rose is still very active. She volunteers at the local church and attends fitness classes to keep herself healthy. “I try to see friends on a regular basis, and focus on eating well, but it’s hard to juggle everything.” “I’ve got my hands full caring for my older sister Babs. She’s got bad arthritis and needs me to shop, take her to appointments and cook most of her meals. She fusses quite a lot and calls me from her apartment at all hours, day and night—it’s hard for both of us. I’m afraid she soon won’t be able to live on her own.”
Close relationships give our lives purpose and shape who we are. As we get older, we can decide who we want to associate with, and we can let friends, family and acquaintances either stay with us or drift away. Try to stay close to people who are dear, regardless of the miles that separate you. If your marital status changes then you might wish to think about exploring new romantic relationships. Seek out community and hobby groups that will introduce you to interesting potential friends.
I hope you find some of these tips helpful. Being a carer reshapes our worlds, dreams and plans. However, both caring and retirement offer new opportunities and challenges. Success in negotiating these will be achieved by maintaining a positive attitude, adapting to change and taking care of yourself. Fulfillment will come through cherishing the good days, planning for better days and dreaming of great days. Mary Bart is the chair of Caregiving Matters, an internet-based registered charity that offers education and support to carers
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88 Australian Carers Guide | SUMMER 2022
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Keeping older adults safer
Images: CanStock
By Mary Bart
We watch the news and feel sad when we hear about an older pedestrian who has been hurt, or even killed while crossing the road. We look at proven ways this tragedy could have been avoided
SUMMER 2022 | Australian Carers Guide 89
T
he truth is, more older pedestrians are dying on our roads today than in previous years. Let’s take a look at the numbers, issues and ways older pedestrians can stay safe.
The numbers Pedestrian deaths in Australia are on the rise, and it is recognised that road safety has been far more focused on vehicle drivers and occupants than on those on foot. According to the Guardian, 159 pedestrians were killed on Australian roads in 2019. Of that total, more than 80 percent were older adults. This is a 20 percent increase over the past five years and, with an aging population, represents a worrisome trend that is only expected to get worse. Melbourne had 19 deaths as it neared the end of November, with 60 percent of those deaths occurring in
10 Safety tips
1 Walk defensively. Be visible, walk in safe, well-lit places. 2 Make eye contact with drivers if possible. 3 Cross at lights or crosswalks. 4 Put your cellphone and headphones away. 5 Wear reflective clothing and carry a flashlight at night. 6 Understand and obey the rules of the road. 7 Look right and left before crossing. 8 Watch for cars backing up in parking lots - the driver might not see you. Parking lots can be as dangerous as roads. 9 Look out for cars coming out of driveways and laneways. The driver’s view can be blocked by bushes or trees. 10 If there are no footpaths, walk facing the traffic coming toward you.
90 Australian Carers Guide | SUMMER 2022
being people aged 65 years or older. Sydney has reported 3,834 pedestrian collisions from 2004 to 2014, resulting in 1105 fatalities. As the expression goes, “Speed kills.” The World Health Organisation says there is a 90 percent survival rate for pedestrians hit by a vehicle Most travelling at 30 km/h or pedestrians are slower. However, this rate drops struck despite dramatically, to the fact that they 50 percent, when have the right the vehicle is going of way. at 45 km/h or more. The type of vehicle also plays a significant role in the likelihood of death. For instance, minivans, sport utility vehicles and pickup trucks were involved in 37 percent of all pedestrian deaths in Toronto in 2019. Many believe it is
because these types of vehicles are heavier and sit higher, so that they directly hit a person’s torso rather than their legs.”
Walk defensively As I see it, the responsibility for pedestrian deaths is shared by three groups: local governments, drivers and pedestrians.
Municipal governments could be doing more by educating the public, improving law enforcement and re-engineering crosswalks, road signs and traffic lights for safer crossings. Indeed, a report by the OECD’s International Transport Forum suggests that road deaths are a result of poor law enforcement, and the more troubling reality that our society does not care enough about road deaths. Motorists often drive too fast and are distracted by cell phones, texting, music, GPSs and passengers. Pedestrians sometimes take unwise risks by darting out into traffic without looking, failing to cross at pedestrian crossing or traffic lights, looking at their mobile phone while walking and not wearing reflective clothing at night. Often, for older adults, the long distance to walk to a proper crossing is too hard so they simply decide to jaywalk. Some underestimate the speed of the traffic or the slow pace of their walking, putting themselves in a vulnerable perhaps even fatal - position. In addition, older pedestrians can also be impaired by alcohol and medication which. can pose a grave danger to themselves and others. In 2008, almost 40 percent of pedestrians killed had been drinking, and 27 percent had a blood alcohol readings of over 1.3.
Safety tips for drivers BACKING UP
WEATHER / TIME OF DAY
Turn your head to look back when reversing - don’t let your car camera do all the work. Maybe hit your horn to alert pedestrians, even roll down your window to listen to what is around you. Parking lots are particularly dangerous places. According to the TAC, 52 percent of all back-over injuries occur in parking lots, and the Health and Safety Council tells us that around two-thirds of drivers are distracted by searching for a parking spot. Try to find a spot that lets you drive right through, to avoid backing up.
Adjust your driving to the road conditions. Rain, wet weather and slippery roads may cause you to slide or have difficulty stopping for pedestrians. It is equally important to adjust your driving based on the time of day. It is very hard to see pedestrians at night, dusk or dawn, especially if they are not wearing reflective clothing. The “commuter sun” rising and setting as you go to and from work can be blinding, and can make it easy to miss seeing a pedestrian about to cross the road.
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Reality check Older adults often have reduced mobility and move slowly. They may also have compromised memory, hearing and sight. Physical and cognitive declines can cause people to stop driving and walk more. “Older adults are more vulnerable on our roads and are more likely to be victims of road violence…and this is a trend we’ve known for a while.” Figures even show that people older than 70 years are more likely to be involved in serious accidents.
Countermeasures and solutions Experts suggest that lowering the speed limit on every road in every major Australian city would reduce the rate of deaths. One Queensland study has recommended “providing shortened crossing distances, or longer crossing times, to increase the convenience and safety of walking for elderly populations.” Other studies have suggested that the stricter enforcement of driving laws and road re-engineering (e.g., including speedbumps, barriers and lane restrictions) could be used to slow traffic down.
BUILT UP AREAS Driving in heavy traffic area can be stressful, particularly that it’s been awhile since we’ve done that thanks to COVID . Getting used to city driving, which is crowded, congested, noisy and full of distractions we may miss the pedestrians which are everywhere, often darting out and not obeying all the rules of the road. If you’re not comfortable with the fast, hectic, changing pace of inner city driving, consider whether it’s possible to take public transport. If you really have to drive, take extra time and be strictly vigilant around pedestrians. 92 Australian Carers Guide | SUMMER 2022
But pedestrians, especially those who are vulnerable, must be mindful of how they’re behaving. Purposefully reducing the risks of being hit and knowing their physical limitations should be part of their own and “I enjoy long, romantic their carers’ personal safety walks...to plans. One of the more the fridge.” effective ways to reduce Unknown collisions at night is to wear reflective clothing, patches or tags arranged in a “biomotion configuration” to take advantage of eyecatching movements from the pedestrian’s legs, feet and arms. Roundabouts have been shown to reduce pedestrian/vehicle accidents by almost 75 percent. Auditory messages, improved warning signs in work zones, vehicle volume dispersal plans and calming measures also increase pedestrian protection. But at the end of the day, we all need to aware and respectful of each other when it comes to road safety. ACG
PEDESTRIANS WITH SPECIAL NEEDS Whether it is a toddler, an older person using a walker or a visually impaired person, drivers need to be extra cautious, kind and patient while these pedestrians cross the road.
CROSSINGS / TRAFFIC LIGHTS Before turning, stop at the corner and look to see if pedestrians are crossing or waiting to cross the road. When making your turn, let the pedestrian fully cross your path before moving forward. When a traffic light turns green, take a moment to make sure no pedestrians are still crossing the road.
expert advice CAUSES OF SARCOPENIA What causes muscle loss? Experts think that several factors contribute to muscle loss (also known as sarcopenia). Physical inactivity is one of them but it’s not the whole story, since active people also lose muscle. Other reasons might include age-related hormonal changes that reduce muscle cell growth, reduced nerve activity, inflammation, insufficient protein or calorie consumption, and a decline in our body’s ability to get energy from protein. Researchers are working to better understand sarcopenia. For example, one recent study looked at whether eating more protein can help prevent muscle loss in older adults (conclusion: Probably yes, but further research is needed). Another study has explored the connection between muscle health and declining nerve activity (conclusion: Regular exercise might help to grow new nerves and preserve muscle mass and strength). The search for answers continues. In the meantime, we can slow muscle loss by living a healthy lifestyle, eating well and exercising regularly.
UP AT NIGHT My caregiving duties are causing me to lose sleep. Any suggestions? Caring for a family member is a labour of love that delivers both rewards and hardships. Sleep deprivation is a common consequence of being on-call day and night. And even without disruptions, many carers have trouble falling staying asleep. Here are a few tips: • Don’t eat a meal big snack before bedtime. • Avoid drinking coffee, tea or caffeinated soft drinks and eating chocolate in the afternoon or evening. • Try to go to bed at the same time every night. • Avoid screen devices for at least 30 minutes before bed.
MEALTIME MANAGEMENT
Photos: CanStock
I’m worried that my dad isn’t eating enough. He has no appetite and is becoming frail? As we age, it’s not uncommon to eat smaller amounts because we are less active and require fewer calories. However, we still need three nutritious meals a day to prevent vitamin deficiencies and malnutrition, which can lead to serious conditions. It’s therefore important to keep an eye out for signs that an older loved one may not be eating properly. Here are some tips to keep nutrition levels high. 1) F or a nutrient-rich diet, spread peanut or other nut butters on toast and crackers; sprinkle finely chopped nuts or wheat germ on yogurt, fruit and cereal; add extra egg whites to scrambled eggs and omelettes; use whole milk; and add cheese to sandwiches, vegetables, soups, rice and noodles. 2) Use lemon juice, herbs and spices to flavour bland foods. 3) Provide nutritional supplements, such as multivitamins (with a doctor’s approval). 4) I f your loved one is not feeling well or is unwilling to eat, try tempting them with meat or vegetable broths as a temporary option. Homemade soups can be just as nutritious as any other meal. 5) E ncourage healthy food choices for meals and snacks. Choosing a piece of fruit or cheese, a spoonful of peanut butter or a fruit smoothie is a good way to get extra nutrients and calories between meals. 6) S peak to their doctor if you suspect they have poor nutrition and ask for a referral to a registered dietitian. SUMMER 2022 | Australian Carers Guide 93
Q&A TIME FOR A BREAK
DRIVE SAFELY
I’m going away for a week’s holiday and am worried that my sister won’t be able to manage our dad’s angry outbursts. He has early-onset dementia and his day-today care can be difficult.
Does the doctor have to take away my mother’s driver’s licence if she has Alzheimer’s? Strange as it sounds, she’s okay driving. Driving is very important. It gives people independence and can be significant for keeping appointments, managing daily activities and generally enjoying life. Losing one’s licence can be terrifying. Your mother’s doctor must follow ministry guidelines about your mother’s safety or the safety of others when she is driving. In Australia, the “gold standard” for determining whether someone is safe to continue driving is based on different things depending on which state you are in. Please read our article on Safe Driving in this issue for details. Your mother should talk with her doctor about her ability to drive. He or she might want other members of the healthcare team (e.g., an occupational therapist or neuropsychologist) to assess her situation. Your mother might be safe to drive now, but you might want to consider discussing alternatives with family and friends. Visit www.tac.vic.gov.au/road-safety/road-users/older-people
A: Looking after yourself is crucial when you are a caregiver, so be sure to get away! It is often difficult for carers to take a break and depend on others, especially when you don’t know how well someone else will be able to step in and provide care.
Photos: CanStock
In the case of a person with dementia, any change can be a trigger for an outburst so familiarity with routines and situations is key. Getting your sister involved ahead of time will help. Your dad needs to become familiar with her presence and her approach. Similarly, your sister will benefit from seeing how your dad reacts to things and how you handle his reactions. Leave notes outlining day-to-day activities and tips so that your sister can better understand your dad’s behaviour and to help her cope. Your family might also benefit from visiting the Dementia Australia website, where you will find some valuable information, tips and resources.
FAMILY STRUGGLES I ’m the primary carer for my mother. No one else does anything, but they all complain about what I’m doing or not doing. I’m getting worn down? Families have their own unique characteristics. They can bring us joy and frustration, in equal measure! Your family members might be feeling helpless or guilty about the situation and expressing these feelings through anger and complaints. If talking things out is not the solution for you then try to focus on yourself - how you are feeling and what you need? Look after yourself; get some physical exercise so you feel energised; take some time out to relax; and recognise the signs of your own stress and don’t let it get the best of you. If your mother’s needs are being met then you are doing a good job. That may be all that matters. If you have a friend you can reach out to then do so. And don’t hesitate to look for support elsewhere, outside of your family, if possible. If things get to the point of overwhelming you, then please reach out to Carer Gateway on 1800 422 737
An Australian Government Initiative
Monday to Friday, 8am to 5pm local time. Call Carer Gateway if you need emergency respite 1800 422 737 24 hours a day, 7 days a week. They will talk through what you need and help you to find local services and support to help you. Register to join the online forum and be part of a supportive community with other carers. SUMMER 2022 | Australian Carers Guide 95
Time Out
Improve your memory, concentration and reasoning. The benefits of puzzles are numerous. They maintain or develop problem-solving skills, and help you relax, even when they are so frustrating.
Wordwheel Find as many words of three or more letters in the wheel as you can. Each word must use the central letter and a selection from the outer wheel – no letter may be used more times than it appears in the wheel.
1.
Can you find the nine letter word hidden in the wheel? 2.
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Wordsearch Can you find the words in the grid?
They will be placed only once and may be either horizontal, vertical or diagonal and go either forwards or backwards. Words can cross. BADMINTON
NETBALL
BASKETBALL
ROWING
BOWLING
RUGBY
CRICKET
SKIING
CYCLING
SNOOKER
DIVING
SQUASH
GOLF
SURFING
GYMNASTICS
SWIMMING
HOCKEY
TENNIS
HORSE RACING
VOLLEYBALL
Jumbo Arrow-word
Complete the clues to fill the grid. The arrows show the direction in which the answer to each clue should be placed.
Bits of meat of low value
Light downy particles
In good health
South African political party (inits)
Was in first place
Kind or sort
Republic once ruled by Idi Amin
Remove from office suddenly
___ Mirren: English actress
Discharges
Leg (anag)
Connected Primary time standard (inits)
Sphere or globe At that place; not here
Later
Is indebted to pay
Distinctive feature
Observed
Primates
Not any of
Gosh!
Willow twig
That vessel
___ Air: area of Los Angeles
Possess
Run at moderate pace Creative activity
Very long period of time Empty space
Wily
Piercing cry
Cow and yak hybrid
Upset; hurt
Opposite of no
Definite article
Flat-topped conical hat ___ one's welcome: remain for too long Sorrowful
Diving seabirds
Earthy pigment
To and ___: from place to place
Arduous journeys
Small insect Genetic make-up (inits)
17th Greek letter
Indian state
Song for a solo voice
Look after
Bird of prey Dr ___: US record producer
Endure
Stir-fried noodles (4,4) Jamaican style of music
School of fish
Father
SUMMER 2022 | Australian Carers Guide 99
Jumbo Crossword
S olu t io on p ns age 113
Complete the crossword clues to fill the grid.
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LOVE PUZZLES? All puzzles are kindly supplied by Richardson Puzzles & Games - their puzzle book range is available to purchase from all good book retailers.
100 Australian Carers Guide | SUMMER 2022
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ACROSS
DOWN
1. Stagnation or inactivity (6)
2. Kettledrums (7)
5. Drenched (6)
3. Projecting horizontal ledge (5)
8. Plunderers (7)
4. Hue (5)
11. Small shelter (3)
5. Elevated step (5)
12. Single-celled organism (6)
6. Domain (7)
13. Condition of not being named (9)
7. Power over others (9)
14. Wind direction indicator (4)
8. Greek white wine (7)
15. Without much energy (4-7)
9. Writing desk (9)
19. Bothersome people (9)
10. Wash with clean water (5)
20. Very inexpensive (4,5)
16. Stale and unoriginal (9)
22. Dishonest (10)
17. Affirm with confidence (4)
24. Imperative (6)
18. Theme for a discussion (5)
25. Close mental application (13)
20. Wet thoroughly (5)
31. All that exists (10)
21. Scoundrel (5)
33. Partner in crime (10)
23. Indifferent to emotions (5)
36. Loyalty in the face of trouble (13) 40. Equipping with weapons (6)
26. Musical instrument (5)
42. Comparatively (10)
27. Converses (5)
45. Arise; start (9)
28. Pleasant (4)
47. Having a practical point of view (9)
29. Distribute (9)
49. Spanish tennis star (6,5)
30. Ends; goals (4)
53. Unit of power (4)
32. Elector (5)
54. Among other things (Latin) (5,4)
34. Island in the Mediterranean Sea (5)
55. Deceive with ingenuity (6)
35. Large bird of prey (5)
56. Our star (3)
37. Semiaquatic reptile (9)
57. Unusually lucky (of a person’s life) (7)
38. Disloyalty (9)
58. Gives in (6)
39. Parody (5)
59. Shows indifference (6)
41. Ready to eat (4) 43. Chanted (7)
If you solved the maze like this, you are a traditional thinker
What type of thinker are you?
If you solved the maze like this, you are a lateral thinker
46. Ripping (7)
A
A
44. Golfing measure of distance (7) 48. Arrive at (5)
Traditional or Lateral?
50. Accumulate (5) B
B
51. Big cats (5) 52. Daisy-like flower (5) SUMMER 2022 | Australian Carers Guide 101
Codeword
Can you crack the entire code to complete the crossword grid? Each number from 1-26 represents a letter of the alphabet from A-Z. Every letter appears in the grid at least once, and is represented by just one number. We’ve given you 3 letters to help you start.
11 21
13
5 2
7 1
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Give your brain a daily workout!
Solut io n on pa s ge ??
Looking for a mental challenge? This edition’s brainteasers will really get those cogs whirling!
Sudoku
Place the numbers 1-9 once in each row, column and 3x3 bold-lined box.
EASY
MEDIUM
HARD SUMMER 2022 | Australian Carers Guide 103
Kriss Kross
3 LETTERS
7 LETTERS
WED
BESIEGE
4 LETTERS
PRODDED
DOZE
8 LETTERS
5 LETTERS
AGENCIES
GABLE
MULBERRY
LOVES
9 LETTERS
NICHE
GENIALITY
TWICE
REPLACING
6 LETTERS
10 LETTERS
BUSHES
CENTIGRADE
CHALET
11 LETTERS
PLENTY
CONSIDERATE
REMARK SELECT
Square Maze
104 Australian Carers Guide | SUMMER 2022
Find the path without breaking through walls. Start from the entrance arrow at the top and end at the exit arrow at the bottom.
5
Secrets to
By Theresa Albert, DHN, RNCP
T
better sleep
he jury is in: Driving drowsy is as dangerous as (if not more so than), driving drunk. And yet, millions of us do it every day. We bolster ourselves with caffeine and keep going–there’s just so much to be done! Shift workers suffer the greatest impact, but in one 2014 study, 4.5 per cent of Australians (that’s 1.2 million people, and mostly women), used prescription sleeping pills and another million used tranquilizers, daily. If we soldier on with our bad habits, we’ll never get a better night’s sleep. Experts suggest that the main culprits to a good night’s rest are:
1 Caffeine: It can take up to 20 hours
to clear your liver of caffeine. You may not think it is affecting you so try cutting off earlier and earlier in the day until your last sip of the stuff is 2pm.
2 Indigestion: Eating too late at night
interferes with your sleep. It isn’t so much that you have heartburn or that “full-feeling” keeps you awake, which are both true, but it is more that when you sleep, hormones are released. They have the “reboot” role and eating, especially a heavy meal, interferes. Stop eating two to three hours before bed.
3 Stress: Stress is a huge factor in not
getting a good sleep and you need to be aware of your state of mind right before you hit the hay. Sitting in front of a flickering computer or TV screen, balancing your chequebook or
fighting are not restful activities. There is a process that your body needs to go through before it lets itself relax. Think of it as sleep foreplay. A warm bath, journal writing, 20 deep breaths and reading, rather than looking at a spreadsheet.
4 Vigorous exercise at night: Exercise
is great for you! It heats up your metabolism long after you stop exercising, to maximise your burn. But this complicates matters for the reboot. That’s when you might notice that you aren’t sleeping well and turn to caffeine to stay awake through the day (which takes you back to the top of this list). It’s a vicious cycle. So if the only time you can exercise is at night, try to finish at least three hours before you expect to sleep.
5 Lack of magnesium: It takes calcium
to flex a muscle and magnesium to let it go flaccid–a simple physiological fact. We spend a lot of time flexing our muscles in the actions of being, laughing and blinking but not a lot of time giving them what they need to relax. Some high-magnesium foods are oats, dates, nuts, figs, milk, seafood, molasses, seeds, wheat germ and other whole grains. An example of optimum daily magnesium intake might include: one cup of yogurt, one cup of oatmeal, five almonds, five ounces of fish and one cup of warm milk (before bed). Supplementing with 100 milligrams of magnesium before bed can do wonders. Theresa Albert is a personal nutritionist, author & food writer. www.myfriendinfood.com SUMMER 2022 | Australian Carers Guide 105
R ecipes Caring
meals that heal BY KARA O’ROURKE & ANNE DIGBY
Hi Everyone, Summer is here, more freedoms are here, and it has given us a renewed zest for life. These recipes have been selected for their nutritional benefits and guaranteed to put a spring in your step. I had to include my foodie friend Anne’s refreshing Quinoa salad and her favourite Zucchini bread recipes.
Green Pikelets
I have huge respect for baby spinach. It is basically tasteless so you can throw it in almost anything. But its nutritional profile is what makes it so incredible. With a decent amount of potassium which is protective of the cardiovascular system, not to mention the antioxidants, fibre, calcium, vitamin C, iron just to name a few. Once all plated with your favourite toppings, the colour is just beautiful.
INGREDIENTS 1 cup milk (oat milk is a healthy alternative) 1½ cups baby spinach 1 egg 2 tablespoons maple syrup (or 1 tablespoon honey)
1 teaspoon vanilla extract 1½ cups plain flour (spelt flour is
1 teaspoon cinnamon Pinch of salt 1 teaspoon baking powder ½ teaspoon baking soda 1/3 cup fruit of your choice
(my go to is sliced banana and strawberries)
Often eaten together and will leave you feeling light and full of energy.
a healthy alternative)
Enjoy preparing these meals and don’t forget the secret sauce of ‘love’ which makes all meals taste bellissima.
Place wet ingredients in a high speed blender and blend until smooth. Transfer to a bowl. Add dry ingredients and whisk only until just combined. Transfer to a jug and set aside.
106 Australian Carers Guide | SUMMER 2022
2 tablespoons full fat Greek yoghurt
METHOD
Place large pan on medium to low heat and lightly grease with butter or oil. Pour pikelet mix until desired size and cook until small bubbles appear. Flip and cook for a further few minutes. Transfer to a plate with paper towel and repeat with remaining batter. Serve with yoghurt and your favourite fruit.
“What’s a festive season without pizza! This pizza is so easy to whip up and you can play around with the toppings to create your own pizza masterpiece”
Homemade Vegetarian Pizza
This delicious pizza uses spelt grain which is an ancient form of wheat, much higher in fibre and easier to digest than modern wheat. I have added almond meal to the base to give it even more fibre and protein.
INGREDIENTS PIZZA BASE 1 cup whole meal spelt flour (or wholemeal plain flour) ½ cup almond meal (or plain flour)
1 teaspoon baking powder
TOPPINGS
2 tablespoons olive oil
80g Sliced mushrooms
1/3 cup milk (I use organic oat or rice milk)
Half red capsicum finely sliced
½ teaspoon salt
Fresh mozzarella (or cheese of choice)
½ cup tomato paste
1 cup baby spinach
METHOD For the base. Preheat oven to 180 C. Place dry ingredients into a large bowl and mix until combined. Make a well in the centre. Add wet ingredients and mix with a fork until it comes together. Place on a floured surface and place a warm bowl over the dough and leave for 20 minutes. Lightly dust an oven tray lined with baking paper with flour. Place dough on tray and roll out to approximately half cm thick. Bake for 10 minutes. Assemble your pizza by spreading the tomato paste, followed by sprinkling baby spinach, capsicum and mushrooms and lastly your choice of cheese. Bake for 15 minutes.
SUMMER 2022 | Australian Carers Guide 107
R ecipes Caring Zucchini bread with optional bacon & cheese
This recipe is great to freeze and makes a delicious and simple breakfast. To freeze, slice the loaf and freeze individual slices. Microwave the zucchini bread whilst the egg is poaching. Top the warm zucchini bread with tomato relish and then the poached egg.
INGREDIENTS 4 Eggs ¼ cup Olive Oil 2 Zucchini, grated (or 1 zucchini and 1 carrot) 1 cup Bacon, diced, cooked and cooled 1 cup Cheese, grated (½ cheddar and ½ Parmesan is good) 1 cup Self Raising Flour ½ tsp Baking Powder
108 Australian Carers Guide | SUMMER 2022
½ tsp Bicarbonate of Soda Pinch of Salt Black Pepper
METHOD Preheat oven to 160C (fanforced) and line a loaf tin with baking paper. Cook bacon in a frypan and set aside to cool. In a bowl, whisk the eggs and oil together. Add the grated zucchini, cheese and bacon and stir
to combine. Add the flour, baking powder, bicarb soda, salt and pepper and mix again. Spoon into the prepared tin and bake for 1 hour or until a skewer is inserted comes out clean. Remove from the oven and leave in the tin for 10 minutes before transferring to a wire rack to cool completely.
Delicious
Quinoa salad Quinoa is a delicious, gluten free grain (actually it’s more of a seed) that is available in supermarkets. It is packed full of nutrients - high in protein, vitamins and minerals. It comes in three main colours: red, white and black, which are often found in combination and they taste very similar. You can use any combination of fruit and or vegetables you have on
METHOD
Enjoy preparing these meals and don’t forget the secret sauce of ‘love’ which makes all meals taste bellissima hand: roast pumpkin, corn, raisins, mango, sun dried tomato, beetroot, broccoli, beans, mushrooms are all fantastic in this salad.
INGREDIENTS 1/4 cup uncooked quinoa 1 cup water or stock 1 Lebanese cucumber, chopped 2 tomatoes, chopped ½ small red onion, finely chopped (soak in cold water
½ avocado, chopped into small cubes 10 kalamata olives, finely chopped Handful of fresh mint leaves, finely chopped Dressing Juice or ½ lemon 2 tablespoon olive oil 2 tablespoon balsamic vinegar Pinch salt Pepper
for a few minutes after chopping)
To cook quinoa: Rinse quinoa thoroughly. This removes any natural bitter flavour. Add rinsed quinoa to the cooking liquid and bring to a boil. Reduce heat to low, cover and simmer until tender and most of the liquid has been absorbed (10 to 15 minutes). You can tell that it’s cooked when it is a little translucent in the centre. Fluff with a fork. Allow to cool. To Assemble: Add each of the chopped ingredients to a bowl with cooled quinoa. Sprinkle the lemon juice, olive oil, balsamic vinegar, salt and pepper over the ingredients and toss well. Delicious served with slice of Zucchini bread.
SUMMER 2022 | Australian Carers Guide 109
NEWS VIEWS MEDIA RELEASE 27 OCTOBER 2021
My Aged Care to offer Face-to-Face Support The Hon Greg Hunt MP The Morrison Government is creating a one-stop-shop to make it easier for senior Australians and their families to connect to aged care services. Building on the Government’s My Aged Care website and call centre, Services Australia will offer face-toface support so people can access information about aged care, health and social services in one location. Starting with 15 Initial sites From next week, senior Australians in an initial 15 Services Australia locations will be able to access My Aged Care face-to-face support from specially trained Aged Care Specialist Officers. The opening of these services is a further delivery of the Government’s commitment to improving care for senior Australians, as part of its $17.7 billion response to the Royal Commission. The first 15 Services Australia sites, listed below, are a combination of rural and metropolitan centres and will be in place on 1 November 2021 Targeting 80 sites by Dec 2022 The My Aged Care face-to-face service will expand to 80 sites by December 2022, with 10 Aged Care Specialist Officers providing outreach support to senior Australians in rural and remote areas.It comes as the Morrison Government extends the successful aged care navigator trials, led by COTA Australia with 22 community organisations, to
December 2022. Trials are informing the design of the national care finder program which begins January 2023. Minister for Health and Aged Care the Hon. Greg Hunt said the local services would make it easier for senior Australians and their loved ones to make decisions about care as they age. “Planning for aged care can be overwhelming for many senior Australians and their families. Finally a 1 on 1 sit down service The new My Aged Care face-toface service allows seniors and their representatives to sit down with a service specialist and talk through their aged care needs,” Minister Hunt said. Minister for Senior Australians and Aged Care Services the Hon. Richard Colbeck said the expanded service offering would give people greater choice in how they accessed aged care information. “This new face-to-face service is designed to work together with the Government’s My Aged Care website and call centre,” Minister Colbeck said. Aged Care Navigation Trial “We’ve seen through the aged care navigator trials how important it is to offer a face-to-face service. And that support has been very well received, with more than 100,000 people getting help to understand, engage with and access the aged care system. “Alongside the introduction of the My Aged Care face to face service, we are extending the navigator trials with a greater focus
&
The Hon. Linda Reynolds CSC said Services Australia’s Aged Care Specialist Officers would help with providing in-depth information about aged care services, offering financial information, registration and referral for aged care assessments and with connecting senior Australians to local support services, social workers, interpreters and advocates. Specialised assistance offered “In addition, all Services Australia service centre staff can provide general information about aged care and assist with connecting people to more specialised assistance, including My Aged Care’s online or phone services,” Minister Reynolds said. “Whether you are looking for help at home, or considering a move to residential aged care, our staff can assist and step you through the process. “We’re also linking Services Australia and My Aged Care call centres, so that callers can be transferred easily between the two services. A full list of sites offering the faceto-face service is available on the Services Australia website, or visit the My Aged Care website www.myagedcare.gov.au for information about government aged care services. Appointments to speak with an aged care specialist in a participating site can be made by calling Services Australia on 1800 227 475. COTA Australia continues to lead the aged care navigator trials with its partner organisations.
Below are the first 15 sites operating since 1 November 2021and are a combination of rural and metropolitan locations Woden, ACT Coffs Harbour, NSW Hurstville, NSW Wallsend, NSW Orange, NSW
110 Australian Carers Guide | SUMMER 2022
Airport West, Vic Shepparton, Vic Glen Waverley, Vic Maroochydore, Qld Nerang, Qld
Townsville, Qld Darwin, NT Fremantle, WA Norwood, SA Launceston, Tas
&
MEDIA
RELEASES
MEDIA RELEASE 11 NOVEMBER 2021
shopping, exercise, leisure, etc.
Six in Ten Australians on Disability Access
48% of Australians believe getting. formats (e.g. live captions or audio descriptions) is difficult for people with disabilities. Just 38% thought it was not a problem.(the rest were unsure)
61% of Australians say the government should do more to improve access to buildings, transport, employment, information and support - for people with disabilities. That’s the central finding of a survey commissioned by disability support provider Hireup and carried out by Omnipoll. The research comes in the wake of last month’s draft Disability Royal Commission report, which highlighted the access issues that led to a “severely deficient” vaccine rollout for people with disability and their support workers. Nationwide research findings
Hireup - Australia’s leading online platform for people with disability to find and hire their own support workers – commissioned OmniPoll© to conduct the nationwide research. Key findings reveal: 61% of Australians say the government should do more to improve access to buildings, transport, employment, information and support - for people with disabilities. Just 22% think the government is doing enough. 68% believe access to employment and being given opportunities to work is difficult for people with disabilities. 62% believe access to buildings, public spaces and facilities is difficult for people with disabilities. 53% feel that emotional support, in addition to that provided by family and friends, is difficult for people with disabilities to access. 53% think that it is difficult for people with disability to access support or help for everyday activities such as
43% feel that relevant medical/health resources and support is difficult to access for people with a disability. (9% unsure) From the CEO
Hireup CEO Jordan O’Reilly says, “In the race to get fully vaccinated, people with disabilities have been left behind. Given the data from the UK in 2020 that showed 60% of people who died of COVID had a disability, this is unforgivable. But it’s also symptomatic of the accessibility problems facing people with disabilities more broadly - whether that’s in accessing employment opportunities, buildings, a bus, information, or everyday support. What’s good is that people across Australia do recognise these issues. Our research shows 61% of Australians think the government should be doing more to improve access and quality of life for people with disability.” Employment sentiment
The Hireup-commissioned research found that 68% of Australians are critical of the access to employment opportunities for people with disabilities, viewing it as ‘difficult’. Of that group, nearly half (47%) believe employment access is ‘very difficult’. “Access to employment is a significant and ongoing issue, with only 48% of people with a disability of working age employed, compared with 80% of others ,” says O’Reilly. “There is an overriding misconception within the business community
that people with disabilities often need more supervision them miss opportunities have the same chances everyone else. Education addressing misconceptions the key to change.” Mel a user-experience (UX) designer, uses a wheelchair and believes access and inclusion go far beyond the physical space. “As a woman with a disability working in the tech industry, which is male dominated, access has been a real challenge. A cultural shift and new mindset
To me it’s about a cultural shift and a mindset. I feel I am constantly trying to work twice as hard to challenge the perceptions of disability and the stereotype, when in fact it comes down to education.” This view is echoed by Natalia Hodgins, who lives with myalgic encephalomyelitis/chronic fatigue syndrome, and often faces a different type of discrimination. “Because of the way disability is portrayed in the media and popular culture, most people look for a visible marker, like a wheelchair or a guide dog. In reality, of the 4. 4 million Australians living with disability, only 4.4% are wheelchair users while 90% are living with an invisible disability.” The power of words
“The most powerful thing a business or leader can say to someone with a disability is, ‘You are absolutely the right person for this opportunity, what can we do to make it work for you?’ Humans are all different and unique and we don’t all fit into the traditional work model of Monday to Friday, 9-5pm. Post-COVID, I think the businesses who will win the talent war are those who treat their employees as human beings and take a flexible approach. SUMMER 2022 | Australian Carers Guide 111
Continued Harmony can be achieved For many people with disabilities, they’re not looking for expensive accommodations, they just need the ability to control how, where and when they work, so they can manage their condition while building a career.” Difficulty moving in public spaces The Hireup survey revealed that 6 in 10 Australians believe access to buildings, public spaces and facilities is difficult for people with disabilities, despite some of the work being done by government at local and state levels. Hireup support worker Alax McGilvray says, “Many people live with a disability but most people only feel disabled when the environment doesn’t cater to the needs of everyone. A person who uses a wheelchair in public feels more disabled when a ramp, or an elevator is not available. Inclusion starts when
112 Australian Carers Guide | SUMMER 2022
public environments are built and created with the concept of being usable by all people. Issues with continence “I support a young boy who uses a wheelchair and continence products because of a cerebral palsy diagnosis. When his mother and I take him to the movies, he needs to be changed on the floor of the cinema, in the corner so no one can see, because cinemas don’t have larger change tables in accessible bathrooms. That’s really not something that should still be happening.” Accessing emotional support beyond that of family and friends is important too, especially in relation to being able to undertake everyday activities COVID lock downs have shone a spotlight on the importance of social interactions and connectedness for wellbeing. Hireup continues to advocate
“Hireup continue to provide support for more than 10,000 people with disability and their families each year. The connections through Hireup are truly life changing for people. Coupled with the broader NDIS – a $30 billion nation-building project, which now covers 500,000 people – we have the opportunity to start addressing the issues highlighted in our research. With everyday Australians voicing the concern that governments should do more to improve access and quality of life for people with disability, we have a fighting chance of making real change happen,” adds Jordan O’Reilly. About Hireup Revolutionising disability support work in Australia. Hireup is an innovative business driven by a desire to achieve real and revolutionary change for Australians with disability. Through an NDIS registered online platform, Hireup provides people with`disability the tools to find, hire and manage support workers.
PUZZLE SOLUTIONS Jumbo Crossword
Square Maze ↓
S T A I AMO P HA L N D I R O O URG S U EVE O S T E E RE
S I S SOAKED RA I DERS H HUT I O E A I EBA ANONYM I T Y VANE L D I G I S E S FHEART ED NU I SANCES A V O O A N P TCHEAP MENDAC I OUS K R I C R T ENT CONCENTRA T I ON E A R H I P I R Y T H I NG A C COMP L I C E E M A T E O B A ADF AS TNESS ARM I NG L R P R T Z L L A T I VE L Y OR I G I NA T E I N A A O P O E P R A GMA T I C R A F A E L N A D A L E A O H D M I S R WA T T I N T ERA L I A OU TW I T C O E R G SUN E N CHARMED Y I E L DS SHRUGS ↓
Word Search
Sudoku - EASY 4 3 2 9 8 6 5 1 7
8 1 6 3 7 5 9 4 2
5 9 7 4 1 2 3 6 8
6 4 5 2 3 1 7 8 9
1 2 9 7 6 8 4 3 5
7 8 3 5 4 9 6 2 1
3 7 1 8 5 4 2 9 6
9 6 4 1 2 7 8 5 3
Sudoku - MEDIUM 4 5 9 6 1 8 3 7 2
2 5 8 6 9 3 1 7 4
3 2 6 5 4 7 1 8 9
1 8 7 9 2 3 4 5 6
8 3 4 1 7 6 9 2 5
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5 6 1 2 8 9 7 3 4
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2 9 3 4 6 5 1 8 7
8 7 5 9 2 1 4 3 6
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C G H E A N P L A C I N G E A T L C W T W I C E E T N D Y T R I V E S G M R A A P R O D D E D K E
Word Wheel NURTURING: gin, gnu, grin, grunt, gun, inn, nit, nun, nut, ring, ruin, run, rung, runt, tin, tun, tuning, turn, turning, unit, urn TARGET: 12, GOOD: 16, EXCELLENT: 20.
CROCODILE: cider, circle, circled, cleric, coder, colder, cooler, cord, core, credo, cried, crocodile, decor, dire, doer, door, drool, idler, ire, lire, lord, lore, older, orc, ore, oriole, recoil, red, redo, relic, rice, rid, ride, rile, riled, rod, rode, rodeo, roe, role TARGET: 22, GOOD: 30, EXCELLENT: 36.
SUMMER 2022 | Australian Carers Guide 113
EMERGENCY CONTACTS
CRISIS - EMERGENCY - INFORMATION : INSTANT HELP AVAILABLE BELOW Emergency medical care 000 (TRIPLE 000)
Emergency assistance 000 (24 hours/7 days) Lifeline’s 24/7 service on 13 11 14 Suicide Call Back 1300 659 467 24/7 telephone counselling service Beyond Blue’s support 1300 22 46 36 SANE Australia’s service 1800 187 263 Carer Gateway 1800 422 737 Urgent mental health care for anyone having a mental health crisis: NSW Mental Health Line 1800 011 511 ACT Mental Health Triage Service 1800 629 354 SA Mental Health Triage Service 13 14 65 NT Crisis Assessment Triage Service 1800 682 288 WA Mental Health Emergency Line 1800 676 822 QLD 24-hour mental health care 1300 642 25 TAS Mental Health Services Helpline 1800 332 388 VIC Mental Health Services go to health.vic.gov.au for your local provider MindSpot Clinic call 1800 61 44 34 for adults with anxiety or depression QLife’s support service on 1800 184 527 National Dementia Helpline 1800 100 500 Centrelink for Carers & Disability 13 27 17 Aged & Disability Advocacy 1800 818 338 Centrelink for ABTSI 1800 136 380 Centrelink for older Australians 13 23 00 Department of Veterans Affairs 1800 555 254 My Aged Care 1800 200 422 Medicare 13 20 11
National Continence Helpline 1800 330 066 Healthdirect for a nurse triage service 1800 022 222 (all states except for Victoria) NURSE ON CALL phone 1300 60 60 24 for health help from registered nurses in Victoria Poisons Information Centre 131 126 for 24/7 assistance 1800 RESPECT 1800 737 732 for sexual assault/domestic and family violence counselling Gambler’s Help hotline 1800 858 858 24/7 Australian Men’s Shed Association 1300 550 009 MensLine Australia 1300 78 99 78 support to helping men deal with relationship problems GLBTI peer support on 1800 184 527 Mon–Thurs 6 pm–10 pm, Fri–Sun 6pm–9pm National Alcohol and Other Drug 1800 250 015 for free 24/7 Hotline support National Debt Helpline 1800 007 007 for free financial counselling
Elder Abuse Prevention 1300 651 192
Relationships Australia 1300 364 277 relationship support services
Translating and Interpreting Service (TIS National) 13 14 50 and 1800 131 450
Translating and Interpreting Service Dementia Support Australia 1800 699 799
114 Australian Carers Guide | SUMMER 2022
TODAY
INFINITE INFINITEAGED AGEDCARE CARE INFINITE INFINITEAGED AGEDCARE CARE INFINITE AGED CARE INFINITE AGED CARE
SPRING 2021 | Issue 1 QLD
ARE ARE YOU YOU ARE ARE YOU YOU ARE YOU ARE YOU A A CARER CARER A CARER CARER AA CARER AininCARER need need of of in in need need of of inin need of need of aaaabreak? break? break? aabreak? break? break? ENQUIRE ENQUIRE ENQUIRE ENQUIRE ENQUIRE ENQUIRE ABOUT ABOUT ABOUT ABOUT ABOUT ABOUT RESPITE RESPITE RESPITE RESPITE RESPITE RESPITE TODAY TODAY TODAY TODAY TODAY TODAY
800 463 468
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Resp it perm e and anen t plac e s avail able
Considering aged care for a loved one? At Bupa Aged Care, whether for respite short-stay or as a new home, our experienced registered nurses and carers provide the care each resident needs in the way they prefer. Care is first and foremost. We embrace and support residents to live their day their way, with teams dedicated to their well-being.
New residents welcome. To book a visit with us, call 1800 785 509
bupaagedcare.com.au/carer
People rarely expect to need aged care, but if your family does, we’ll guide you through the steps.