Your essential guide to services and support
Queensland • Autism Parents’ Handbook
Your Essential Guide To Services and Support Creator:
Heeman, Heidi, author and designer
Title:
Queensland Autism Parents' Handbook : Your Essential Guide To Services And Support In Queensland / Heidi Heeman (author/designer); Iain Croft (editor)
Subjects:
Autism--Queensland Australia--Handbooks, Manuals, People With Autism-Services-Support-for--Queensland-Australia.
Disclaimer Heeman, Heidi, author and designer. Autism Parents' Handbook: Your Essential Guide To Services And Support In Queensland, Australia / Heidi Heeman (author); Iain Croft (editor) Every effort has been made to ensure that the information contained in this handbook is correct and up-to-date at the time of publishing (August 2015), however, as services change regularly this cannot be guaranteed. This handbook does not contain ALL of the services available in Queensland Australia for children on the autism spectrum or endorse any of the services listed. Please contact each organisation listed for more information to identify if their services meet your needs. This handbook is free for families, health and education professionals and may be shared or reproduced. No service or business was charged any advertising in this handbook. My sincere apologies for any errors or omissions. Please send any updates or amendments to me (Heidi Heeman) at cairnsautism@bigpond.com to be included in any websites, facebook updates, PDF files and future hardcopy editions. Please check: facebook.com/groups/resourcesforspecialneedsaustralia for latest version of the handbook. A special thank you goes out to the many families that put forward their family photos for use in this handbook.
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Queensland • Autism Parents’ Handbook
Introduction _______________________________________________________________________________ Welcome Autism families, carers, educators and medical professions and thank you for reading this handbook. I've recently written a Cairns Autism Parents Handbook, which was well received, on local support and resources, so thought creating a Queensland edition was the next step. However I got sidetracked and created 'Resources for Special Needs' version also. I am a single mother with two sons on the spectrum. At times it can be very overwhelming and exhausting raising two autistic children verses neurotypical children, one of the blessings is their milestones are spread out. Each day if they can say a new word, or do a new task, no matter how tiny it is, it makes it all worthwhile. I have essentially become an *Occupational Therapist and *Speech Therapist from the amount of work I have put into my sons, Samuel and Braiden and have a range of resources that could start an early childhood centre! I've spent thousands of hours of research, but can never go past Facebook. There are some wonderful supportive groups out there, it's amazing what you find, resources and long lasting friends who are in the similar situation. Even if I am up at 3am having a tough time, there is always someone online to chat and give support or vice versa. I hope for those reading this Handbook it will make life so much easier to navigate support and resources at hand for children on the spectrum. Thanks to Jacqui Little and Alison Lyons from the facebook group 'Resources for Special Needs' who have helped contribute towards this handbook, two very resourceful and well dedicated ladies in the autism community! Also thanks to all my Facebook friends whom I have never met in 'real life' but we share the special needs bond together. - and for those who all contributed their family photos for the handbook. I hope no matter where you are on your Autism journey this Handbook will be a useful guide for you.
Enjoy the read, Heidi (*without the official degree)
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Queensland • Autism Parents’ Handbook
Table of Contents Getting a Diagnosis
5
First Contacts after Diagnosis
8
Funding
12
Concessions
19
Early Intervention
20
Education
23
Service Providers in Queensland
25
NDIS
26
Advocacy, Legal & Your Rights
29
Local Parent Support Groups
32
Vehicle and Car Seat Safety
34
Autism Awareness - Media
35
Chewable Jewellery
38
Weighted Products
39
Social Stories (Apps, Books & Software)
41
Toileting - Apps & Resources
45
Useful Websites
49
Children’s Siblings & Social Skills Groups
52
Recreation
53
Autism Assistance Dogs
55
Sexuality, Continence and Sleep
57
Training Workshops & Seminars
58
Behavior
59
Visual Communication Aids & Resources
60
Safety, Tracking Devices, Mobile & Apps
66
Home Sensory Ideas On A Budget
72
Sensory, Fidget, Educational and Therapy Products
80
Special Needs Clothing
82
APPS - Websites To Follow
84
Toy and Resources Libraries
86
Useful Facebook Groups and Pages
87
Magazines, Book and Journals
96
Help-lines
98
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Queensland • Autism Parents’ Handbook
Getting a Diagnosis ____________________________________________________________ What is Autism? Autism is a complex neurobiological condition with difficulties in communication, social ability and repetitive behaviours or restricted interests. Symptoms range from mild to severe and approximately one per cent of the population has autism. People with autism generally have difficulty relating to others and may be more (or less) sensitive to sights, sounds, touch, smells and tastes than others. No one knows for certain what causes autism. Genetic and environmental factors are being researched, and there is no scientific evidence that vaccines cause autism. There is no “cure” for autism, although there are many treatments and therapies available to assist people with autism to reach their full potential. (Winthrop Professor Andrew Whitehouse, Telethon Kids Institute). Who is involved in Autism Assessments? In Queensland (Qld), paediatricians, psychiatrists and neurologists assess and diagnose ASD. Input to diagnosis may be required from speech language pathologists, occupational therapists and psychologists. Where To Get A Diagnosis? Autism assessments can be conducted in the Qld public health system or privately. Waiting times vary considerably, so it’s worth putting your name down on waiting lists as soon as you can. 1) Private system The first step is to make an appointment with your GP who will refer your child to a paediatrician. The paediatrician will assess your child and if indicated will refer you to a clinical psychologist and speech therapist to complete the assessment. The three professionals then communicate their findings with each other to reach a joint decision regarding diagnosis. 2) Public system There are two paths to access autism diagnostic services in the QLD public health system: • Child Development Services and • Disability Services Commission’s State wide Specialist Services The team currently working with your child (or your GP or Child Health Nurse) will advise which team is best for you to access and your GP will be able to refer you to the most appropriate service. What Is The Cost Of A Diagnosis? Diagnostic assessment through the Qld public health system is provided at no cost to families. The cost of private assessment will depend on the fees set by individual practitioners. Families who choose private assessment may be able to recover some costs through Medicare rebates, or private health insurers. A Medicare autism assessment and treatment rebates fact sheet is available from Medicare www.medicare.gov.au or Commonwealth Health Department at www.health.gov.au
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Queensland • Autism Parents’ Handbook
What Happens After The Diagnosis? The assessment team will contact the family to discuss the diagnosis. Recommendations for interventions will be made. Families can contact your local Autism Advisor located at Autism Qld who will provide information regarding eligibility and available funding for Early Intervention (therapy) and other funding and support services. Parent Connect Initiative (May be able to fund specialist to get a diagnoses.) http://www.communities.qld.gov.au/disability/support-and-services/our-services/parent-connect-initiative The Australian Government has committed $190 million to support families, and their children who have a diagnosis of an Autism Spectrum Disorder.
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Queensland • Autism Parents’ Handbook
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Queensland • Autism Parents’ Handbook
First Contacts Following Diagnosis ____________________________________________________________ The first thing to do after your child has been diagnosed with autism is: 1) Put the kettle on. Sit down. Take a deep breath; 2) Say to yourself, “It’s going to be alright, everything is going to be okay.” 3) Make yourself a cuppa, (or a wine) grab a snack (preferably chocolate) and read ahead . . .
Contact your local Autism Advisor– hosted by Autism Queensland. Head Office Tel: (07) 3273 0000 An Autism Advisor is able to assist you to access the early intervention funding in the package, families must have an acceptable diagnosis. An acceptable diagnosis is one of the following based on criteria in either the Diagnostic and Statistical Manual of Mental Disorders IV (DSM-IV) or the Diagnostic and Statistical Manual of Mental Disorders 5 (DSM-5), which was introduced in May 2013.
autism autism spectrum disorder (ASD) autistic disorder Asperger’s disorder childhood disintegrative disorder pervasive developmental disorder – not otherwise specified (PDD-NOS).
Access eligibility for the Helping Children with Autism (HCWA) Early Intervention Funding package. $12,000. Families from outer-regional or remote areas may be eligible to receive an additional one off payment of $2,000 (paid directly to families) They provide advice and information to families about Early Intervention services and other related community and support services for young children with ASD and their families. You can only use the funding with speech pathologists, occupational therapists and psychologists (and sometimes specialist teachers or intervention workers) who have been approved by the government.
Resources purchases can also be allocated from HCWA package. You can also use up to 35% of your child’s HCWA funding to buy resources that your child’s HCWA service provider has recommended. This means you can spend up to $2100 on resources in any one financial year, up to $4200 in total. The only thing to note is that the resources you buy must be directly linked with the early intervention service, or able to help you or your child’s other carers do the interventions at home. If you would like more information about the Helping Children with Autism package, call the Helping Children with Autism Inquiry Line on 1800 778 581 or email early.intervention@dss.gov.au Children over seven are not able to access early intervention funding through HCWA but are still eligible for Medicare items. Medicare items can be claimed for children who have not accessed early intervention funding through HCWA or Better Start if they have an eligible disability. The first step is to develop a treatment and management plan with your child’s health care professional. You can access up to four diagnostic/assessment services to assist the referring practitioner with diagnosis or to contribute to a child’s treatment and management plan. This plan needs to be in place before your child turns 13. You can access up to twenty treatment sessions once you have a treatment and management plan in place. This may include sessions with psychologists, speech pathologists, occupational therapists, audiologists, optometrists, orthoptists or physiotherapists. These sessions can be used up until your child turns 15.
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Queensland • Autism Parents’ Handbook National Disability Insurance Scheme (NDIS) Tel: 1800 800 110 Website: www.ndis.gov.au Facebook: facebook.com/NDISAus
As the National Disability Insurance Scheme (NDIS) is rolled out across Australia, children supported through HCWA will transition to the NDIS. The NDIS will start in Queensland from 1 July 2016 and will be fully implemented by 30 June 2019 and will be administered by the National Disability Insurance Agency. Disability Services Queensland Website: www.communities.qld.gov.au
The Department of Communities, Child Safety and Disability Services helps people with a disability and their families to access a range of supports and services. Children and adults who are eligible for specialist disability services will need to undergo an assessment and prioritisation process to be linked with available and appropriate services. Autism Services Pathfinder Website: www.raisingchildren.net.au Facebook: facebook.com/RaisingChildrenNetwork
This is a guide to getting a diagnosis, finding service providers, comparison of therapies, medication and other intervention, education, funding and support. Helping children with Autism has a national list of approved panel providers is available on the FAHCSIA Website: www.dss.gov.au/our-responsibilities/disability-andcarers/program-services/for-people-with-disability/helping-childrenwith-autism/providers
Autism Queensland Website: www.autismqld.com.au Facebook: facebook.com/autismqueensland
Head Office PO Box 354, Sunnybank Qld 4109 437 Hellawell Road Sunnybank Hills Qld 4109 Office hours: 8.30am-4.30pm (Mon-Fri) Tel: (07) 3273 0000 AQ provides a comprehensive range of specialised services and support for children and adults with ASD and their families throughout Queensland. •EarlyAQtion Early Intervention Programs •Family Support Services •Outreach Services •Customised Services •Information and Help Line •Respite and Accommodation Services •Research and Development •Training Services Early Days Online Workshops Tel: (07) 4034 6600 Facebook: facebook.com/earlydaysworkshops
(Contact Autism Qld for upcoming workshops) Online workshops Early Days provides free workshops for parents and carers of children with ASD or suspected ASD. Topics include learning about ASD and your family, interacting and behaviour. Information about the workshops is available from state and territory autism associations. Workshops are bases for children aged six years or younger. You can do online workshops in your own time or attend one-day workshops. Early Days online workshops can be accessed at www.prc.moodle.com.au/course
Parent Connect supports families of children with suspected, newly acquired or identified disability or developmental delay to gain the best outcomes. Website: www.parentconnect.org.au
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A Job For Life Dear Parent Congratulations on your successful appointment to the position of Autism Parent. We understand that you may be confused by this appointment, as you never actually applied for the post in the first place. You may also be concerned that there are no contact details in this letter, so you cannot write, call or email us to turn the position down. Your concerns are to be expected, and will become less over time. However we would like to make it clear right away that being an Autism Parent is a mandatory post with a Lifetime contract. There is no option to refuse the job, to negotiate terms and conditions, and no option to take a career break. It is an unpaid (in financial terms) post with no paid sick leave. You may be able to job share your role with a partner of family members: any such arrangements must be sorted out by yourself at a local level. Qualifications As this is a training post, the only essential qualification required is to be parent of an autistic child.
Essential personal qualities and experience: None. Autism parents are not special people. You may look at your Autism Parent colleagues and think; “wow, they are AMAZING!!”. It is important to remember that they, like you, do not have the option to suddenly stop being an Autism Parent. They persevere, they laugh, they cry, they celebrate, they do the job because they have to. They become “special” because of the extensive on-the-job training that they receive as part of being an Autism Parent (see Below) Desirable personal qualities: Able to manage daily functioning on less than four hours sleep; a taste for caffeine in all it’s wonderful forms; Training you will receive before taking up the post None Training you will receive on the job
Managing sleep deprivation Advocating for your child Appreciating and celebrating the small steps Networking within the multi-disciplinary team Arguing constructively with professionals Doctorate in acronyms (health and education) Learning who your true friends are Promoting awareness of Autism Sensory differences, modules 1-11,598 Completion of application forms, modules 1-5 (benefits, schools, health packages, respite services, local authority) Disinfecting Cookery level 1 (fries, nuggets and associated sensory-neutral foodstuffs) Doctorate in communication with your child: optional topics to include scripting, vocal stimming in context, the many meanings of a hand-flap. PhD in loving and accepting your child for the wonderful individual they are. Fighting like a bear to protect your child and their interests. Coffee appreciation.
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Queensland • Autism Parents’ Handbook Incentives and employee benefits: The more work you put in, the better the life chances will be for your child. There is no greater incentive than this. We appreciate that there is a lot to take in, and that it would be useful to have a short preceptorship period in order to familiarise yourself with the role and it’s challenges. Unfortunately, due to the fact that you’ve been doing this job without realising it since the day your child was born, there will be no further induction to the role. Autism Parent is an amazing job, which will challenge you and help you to grow in ways that you cannot imagine right now. It will make you laugh and cry. It will involve making tough decisions, taking risks and climbing mountains. It will bring you new friendships. It will give you a unique bond and relationship with your child. We are really pleased to have you as part of our team. Supportive forums to discuss your role and your progress in it can be found on Facebook, Pinterest, various blog sites and other social media. Yours Sincerely Human Resources Manager, Autismland. (Source/Original post - https://catonatrampoline.wordpress.com/2014/01/16/a-job-for-life)
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Queensland • Autism Parents’ Handbook
Funding ____________________________________________________________ 1) MEDICARE Helping Children with Autism program (HCWA) Autism Diagnostic Assessment Medicare rebates are available for assessment, diagnosis and the creation of a treatment and management plan by a consultant paediatrician or a psychiatrist for a child aged under 13 years of age. Under the HCWA program, a child can also be referred by a consultant paediatrician or psychiatrist for the following allied health services: up to four diagnostic / assessment services from psychologists, speech pathologists, occupational therapists to assist the referring practitioner with diagnosis or to contribute to a child’s treatment and management plan. The referrals must be written before the child’s 13th birthday. See Medicare items fact sheet for Helping Children With Autism at www.health.gov.au Early Intervention Therapy services (for Children under 7) Early Intervention funding under the HCWA program is aimed at providing increased access to Early Intervention for children aged up to six years with autism. This may include registered occupational therapy, speech therapy and psychology services. Funding of up to $12,000 (maximum of $6,000 per financial year) can be accessed until the child’s seventh birthday. Your Autism Advisor can assist you in identifying a suitable Early Intervention service provider. See www.dss.gov.au (search Helping Children with Autism) for eligibility and list of therapy service providers, which is updated weekly. For more information, contact Helping Children with Autism Helpline on 1800 778 581. Medicare items for consultant paediatricians or psychiatrists Medicare items are available for assessment, diagnosis and the creation of a treatment and management plan by a consultant paediatrician (MBS item 135) or a psychiatrist (MBS item 289) for a child aged under 13 years. A consultant paediatrician or psychiatrist can refer a child to an eligible allied health provider to assist with diagnosis of the child or for the purpose of contributing to the child’s treatment plan. Referrals for these allied health assessment services can be made by a consultant paediatrician as an outcome of the service provided under one of the MBS items 110-131, or as an outcome of a service provided by a psychiatrist under one of the MBS items 296-370. When a treatment and management plan is in place, the medical practitioner who develops the plan can refer a child for allied health treatment services, providing the child is aged under 15 years and had a treatment and management plan prepared for them before their 13th birthday.
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Queensland • Autism Parents’ Handbook Only one autism treatment and management plan can be prepared for a child in their lifetime. However, if a child sees a different medical practitioner to the one who prepared the treatment and management plan, the consultant paediatrician or psychiatrist who is seen subsequently can refer the child for any remaining allied health treatment services that are available to the child. Children with an existing treatment and management plan created under MBS items 135 or 289 can be reviewed under attendance items for a consultant paediatrician or psychiatrist.. Referring medical practitioners are not required to use a specific form to refer patients for the allied health services that are available through the Autism — Helping Children with Autism program. The referral may be a letter or note to an eligible allied health professional, signed and dated by the referring practitioner. Medicare items for allied health providers
Under the Helping Children with Autism program, a child can be referred by a consultant paediatrician or psychiatrist for the following allied health services: up to four diagnostic / assessment services from psychologists, speech pathologists, occupational therapists, audiologists, optometrists, orthoptists or physiotherapists to assist the referring practitioner with diagnosis or to contribute to a child’s treatment and management plan (for a child under 13 years of age). up to twenty treatment services from psychologists, speech pathologists, occupational therapists, audiologists, optometrists, orthoptists or physiotherapists (for a child under 15 years of age, providing a treatment and management plan is in place before their 13th birthday). These are the total number of services available to each child through the Helping Children with Autism program – not an annual entitlement. Assistance with diagnosis/contribution to a treatment plan*
MBS items for allied health assessment and treatment of autism/PDD 82000 Psychologist
82005 Speech pathologist
82010 Occupational therapist
82030 Audiologist, optometrist, orthoptist, physiotherapist * Prerequisite MBS items: 110-131 (paediatrician) or 296-370 (psychiatrist). Treatment services**
MBS items for allied health treatment of children with autism/PDD 82015 Psychologist
82020 Speech pathologist
82025 Occupational therapist
82035 Audiologist, optometrist, orthoptist, physiotherapist ** Prerequisite MBS items: 135 (paediatrician) or 289 (psychiatrist). A course of treatment for the allied health treatment services consists of the number of allied health services stated on the child’s referral, up to a maximum of 10 services. This enables the referring practitioner to consider a report from the allied health provider(s) about the services provided to the child, and the need for further treatment. Patients will require a separate referral for each allied health provider they are referred to and they will also need new referrals for each new course of treatment. Source - www.health.gov.au/internet/main/publishing.nsf/Content/autism-children
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Queensland • Autism Parents’ Handbook Better Access to Mental Health (Counselling and Psychology Services) Medicare rebates are available for up to 10 individual sessions and up to 10 group allied mental health services (psychologists, some social workers and occupational therapists) per calendar year to patients referred by their GP managing the patient under a GP Mental Health Treatment Plan or under a referred psychiatrist assessment and management plan. (This can include social skills programs.) Can get a Better Access Plan for yourself and/or your child as there are no age restrictions. Website: www.health.gov.au/mentalhealth-betteraccess Chronic Disease Management Plan (formerly called Enhanced Primary Care Plan) This Plan allows a GP to coordinate health care of patients with chronic medical conditions, including patients with these conditions who require multidisciplinary, team-based care from a GP and at least two other healthcare providers. Up to five sessions a year are partially covered by Medicare rebate and have no age restrictions. Website: www.health.gov.au/internet/main/publishing.nsf/content/mbsprimarycarechronicdiseasemanagement Once the above two entitlements have been exceeded, you can use private health cover to subsidise private OT, speech and psychology services for therapy.
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Queensland • Autism Parents’ Handbook
2) CENTRELINK Website: www.humanservices.gov.au The Payment Finder located on the website can help you locate a range of benefits that you may be eligible for, including Family Tax Benefit, Child Care Benefit, Child Care Rebate, Parent Payment, SchoolKids Bonus as well as some or all of the following:
Carer Allowance A fortnightly supplementary payment for carers who provide additional daily care and attention for someone with a disability. Not means-tested. www.humanservices.gov.au/customer/services/centrelink/carerallowance
Carer Payment A fortnightly, assets and means-tested income support payment for people who provide constant care for their child with severe disability and are unable to work as a result. www.humanservices.gov.au/customer/services/centrelink/carerpayment
Annual Carer Supplement and Child Disability Assistance Payment If you receive the Carer Allowance or Payment, you may be eligible for annual Carers Supplement of $600 paid around July each year. If you receive the Carer Allowance or Payment you may be eligible for annual payment of $1000 paid around July each year. www.humanservices.gov.au/customer/news/annual-carersupplement-and-child-disability-assistance-payment
Health Care Card A Health Care Card is automatically issued for your child when you receive the Carer Allowance. It entitles your child to concession rates for prescription medicines and other concessions, such as discounted public transport for some cardholders, bulk billing by selected doctors and higher refunds through the Medicare Safety Net. www.humanservices.gov.au/customer/services/centrelink/healthcare-card
Carer Adjustment Payment A one-off payment of up to $10,000 following a catastrophic event when a child under seven years of age is diagnosed with a severe illness, medical condition or major disability. You have two years following diagnosis in which to apply. www.humanservices.gov.au/customer/services/centrelink/careradjustment-payment
Disability Support Pension Financial support for people who have disability that stops them from working, are aged 16 years and over, and unable to work more than 15 hours a week. Check eligibility criteria. www.humanservices.gov.au/customer/services/centrelink/disabilitysupport-pension
Mobility Allowance Help for people with a disability aged over 16 years who cannot use public transport and need to access work or study/training.
Pensioner Education Supplement A small subsidy payment for secondary and tertiary part-time and full-time students who are already receiving a benefit or payment.
www.humanservices.gov.au/customer/services/centrelink/mobilityallowance
www.humanservices.gov.au/customer/services/centrelink/pensione r-education-supplement
Assistance for Isolated Children Scheme (AIC)
Inclusion Support Subsidy Paid to approved child care services, including out of school hours care and holiday programs, so that they can provide extra care for children with special needs. Your child care service will need to apply through their Inclusion Support Facilitator.
Payment made each term for students who cannot go to an appropriate state school because of geographical isolation, disability or special health needs. www.humanservices.gov.au/customer/services/centrelink/assistanc e-for-isolated-children
www.dss.gov.au/our-responsibilities/families-andchildren/programmes-services/early-childhood-child-care/inclusionand-professional-support-program
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2) MY FUTURE MY LIFE The My Future: My Life strategy is a key element of the Queensland Government’s commitment to supporting young people with a disability transition effectively from school to adult life. Eligible young people in years 11 and 12 (or equivalent) can access timelimited financial assistance to support them to achieve the goals as outlined in their SET plan (or equivalent) and that items and/or services requested have a direct and tangible link to the goals in the SET plan (or equivalent) Website: www.myfuturemylife.com.au
3) YOUR CHOICE YOUR LIFE Self-directed support is a funding approach that enables people with disability and their families to have greater choice and control over the disability services they receive. It is a key part of preparing Queenslanders for the National Disability Insurance Scheme (NDIS). Website: www.communities.qld.gov.au/disability/key-projects/your-life-your-choice
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4) OTHER FUNDING SOURCES Parent Connect Initiative Providing early intervention, prevention and transition support to parents of children with disability or developmental delay from birth to six years of age. (May be able to fund specialist(s) to get a diagnoses) Website: http://www.communities.qld.gov.au/disability/supportand-services/our-services/parent-connect-initiative
Home Schooling Info And Assistance Help for students who cannot go to an appropriate state school because of geographical isolation, disability or special health needs. Website: http://www.humanservices.gov.au/customer/services/centrelink/as sistance-for-isolated-children
Variety QLD Search: ‘Apply for assistance’. Provides grants for practical equipment, resources and experiences for children who are disadvantaged or have special needs. Website: http://www.variety.org.au/QLD
Financial Assistance A range of payments and services supporting people in need, including people with disabilities.Includes info and links to No interest loan scheme, concessions, rent or mortgage assistance, support from charities Website: www.qld.gov.au/community/losing-your-jobincome/financial-assistance
Apply for a Sports Voucher Eligible children and young people are provided with a voucher of up to $150 to help pay for club membership and/or participation fees. The vouchers can be redeemed at a sport or recreation club registered with the program. Website: www.nprsr.qld.gov.au/funding/getinthegame/index.html
The Community Aids, Equipment and Assistive Technologies Initiative (CAEATI) helps eligible people with a disability with the cost of aids, equipment or assistive technologies. Funding is capped at $10,000 per client for a period of 3 years. Website: www.health.qld.gov.au/mass/communityaccess/default.asp
At Home Care Grants The program provides one-off grants between $2,000 and $10,000 for the provision of essential support items, emergency respite care and renovations to make homes disability friendly. Website: www.youngcare.com.au/qldgrants
Medical Aids Subsidy Scheme (MASS) Continence Aids And Funds See if you can apply for both, one is a payment, other is continence aids delivered to your door such as nappies/pull-ups Website: www.health.qld.gov.au/mass/prescribe/continence/default.asp www.bladderbowel.gov.au
Continence Aids Payment Scheme (CAPS) Helps people aged 5 years or more who have permanent and severe incontinence to meet some of the costs of incontinence products. Website: www.humanservices.gov.au/customer/services/medicare/continen ce-aids-payment-scheme
Conveyance Allowance Do you drive your kids to school in your private vehicle? Live 3.2km or more away, 2 x payments, minimum $410 a year. Website: www.tmr.qld.gov.au/Travel-and-transport/Schooltransport/Assistance-schemes/School-Transport-AssistanceScheme.aspx
More information on the School Transport Assistance Scheme as well as application forms can be found on the TransLink Website: www.translink.com.au/tickets-andfares/concessions/school-transport-assistance
Spectacle Supply Scheme Medical Aids Subsidy Scheme (MASS) providing a comprehensive range of free basic spectacles (prescription glasses) for eligible Queenslanders Website: www.health.qld.gov.au/mass/prescribe/spectacles/default.asp
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CONCESSIONS ____________________________________________________________ Carers Business Discount Card Providing discounts on goods and services at participating businesses throughout Queensland. Website: www.qld.gov.au/community/support-for-carers/carer-card/
Companion Card Companion Card holders receive a second ‘companion' ticket at no charge on public transport and at participating venues. The 'companion' ticket is also exempt from booking fees. Website: www.qld.gov.au/disability/out-and-about/companioncards
Qantas Carer Concessions The Qantas Carer Concession Card is issued to people with a disAbility and high level support needs who require the full-time assistance of a carer whilst they are on the plane.
(iPad funding) Australian Disability and Indigenous Peoples' Education Fund 2 rounds (end of March and September each year) each year to apply for an ipad - you don't have to be aboriginal to apply, it's for all Australians with a disability. Website: www.adipef.org.au
A person is eligible if they need to have one-on-one support when seated on the plane for assistance with meals/drinks, transferring to the bathroom, orientation, communicating with the flight staff etc. A person would not be eligible if they only need assistance boarding the plane, or when they arrive at their destination Website: www.nican.com.au/about/qantas-carer-concession
Help for concession card holders - ANZ matching your $ dollar for dollar. Saver Plus provides an opportunity to have every dollar saved (up to $500) matched with an additional dollar for your own or your family’s education-related expenses.
Master Key Toilets If you have a child with a disability you can apply for a master key to open all public toilets. Website: www.masterlocksmiths.com.au/mlak.php
Carers Queensland Membership $10 per annum, offering more services, such as the CARE program offering you discounts on a big range of services and products.
Website: www.anz.com/personal/bank-accounts/help-selectaccount/concession-card-holders/saver-plus
Website: www.carersqld.asn.au
ANZ - concession card holder benefits, such as no monthly fees etc.
Also can provide a No Interest Loan Scheme (NILS) provides interest-free loans for carers on low incomes. The maximum amount that can be borrowed is $1200 Website: www.carersqld.asn.au/services/no-interest-loan-
Website: www.anz.com.au/personal/bank-accounts/help-selectaccount/concession-card-holders
scheme-nils
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Queensland • Autism Parents’ Handbook
Early Intervention ____________________________________________________________ Community Child Health Services The Child Development Service (CDS) operates to:
assist infants and children referred with special needs to maximise their developmental potential and functional abilities. help children reach optimal health, quality of life and well being. support families/carers of children with special needs and provide carer education.
Who receives the service?
Young children with developmental delay or disability, from birth up to (but not including) prep school year, requiring multidisciplinary assessment and intervention. Young children with developmental delay, from birth up to (but not including) prep school year, with more than one specific need within the following areas of development i.e.: gross motor; language and communication; fine motor; cognitive /adaptive; daily living; social; or behaviour. Children whose development is considered at risk, eg: very premature and low birth weight or high risk babies What services are offered?
Assessment of child’s development and special needs
Individual and group intervention.
Support, education, and practical assistance for families and carers.
Advice on and loan of therapy equipment.
Home, kindy and day care visits/programs. “Specialist” clinics.
Referral to and liaison with other agencies.
Website: www.qld.gov.au and search 'Child Development Service'
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Queensland • Autism Parents’ Handbook Liaison with Other Agencies: After written consent is obtained from the parents, relevant liaison takes place with other agencies to ensure a coordinated service approach, eg Disability Services, Education Qld, RFDS and Dept of Child Safety. What happens next?
The referral will be discussed with the team at the next weekly case conference
The parent/carer will be contacted either by phone or letter about the outcome of the referral. If the referral has been accepted, an information package including a Health Questionnaire Form will be forwarded to the parent/carer to be completed and returned.
The parent/carer will then be contacted to arrange an appointment for an initial assessment by one of the unit’s professional staff. (waiting lists for CDS services exist.)
What does it cost? This service is provided free of cost to children and their families.
Early Children's Development Program (ECDP) The department provides early childhood development programs (ECDPs) and services to support children aged 0-5 years with significant educational support needs arising from a diagnosed or suspected disability in the categories of intellectual disability, autism spectrum disorder (ASD), physical impairment, vision impairment, hearing impairment and speechlanguage impairment. Schools that have an early childhood development program are listed in the Directory of Special Education Programs in Queensland State Schools, see:Website: http://education.qld.gov.au/schools/disability/early-childhood-development-services.html
AEIOU – Early Intervention Centre AEIOU Foundation is a not-for-profit organisation dedicated to providing a bestpractice, fulltime early intervention and learning program for children aged 2½ to 6 years. Website: www,aeiou.org.au Facebook: facebook.com/pages/AEIOU-Foundation-for-Children-with-Autism/351589415589
Baby Bridges An early intervention program for children with a disability from newborn to five-years-old, their parents and carers. Baby Bridges is administered across Queensland through a partner network. Website: www.babybridges.org facebook.com/BabyBridges
Autism Queensland (AQ) AQ provides a comprehensive range of specialised services and support for children and adults with ASD and their families throughout Queensland. Contact them for an updated list of programs they run. Website: www.autismqld.com.au
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Queensland • Autism Parents’ Handbook
Inclusion Support Subsidy Paid to approved child care services, including out of school hours care and holiday programs, so that they can provide extra care for children with special needs. Your child care service will need to apply through their Inclusion Support Facilitator. Teachers in kindergarten services and long day care services can access support to assist children with disability to participate in their programs. Children with disability, including children with Autism Spectrum Disorder, can receive additional supports to participate in a kindergarten program. Kindergarten services can apply under the Disability Support Funding Program, Department of Education, Training and Employment, to receive additional funding to support your child’s participation in their kindergarten program. Additional support may include: equipment and play resources training and professional development for kindergarten teachers extra teacher aide time to support the child’s inclusion in the program. Kindergarten programs in long day care services may be eligible for the Australian Government’s Inclusion and Professional Support Program. This provides professional development and other assistance to child care services supporting children with additional needs. Kindergarten teachers can modify the kindergarten program to support the inclusion of your child. The wider kindergarten community can also be provided with information about Autism Spectrum Disorder to encourage inclusion of your child. Website: www.education.gov.au/inclusion-and-professional-support-program
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Queensland • Autism Parents’ Handbook
Education ____________________________________________________________ There are three main options in Queensland for primary and high school - state school, private school or home schooling. Find a School - Department of Education and Training Schools Directory. Website: https://schoolsdirectory.eq.edu.au
For information on Education Disability Policies see Website: www.education.qld.gov.au/schools/disability/index.html
Disability Standards for Education: A Practical Guide for Individuals, Families and Communities Website: http://resource.dse.theeducationinstitute.edu.au
School Guide - Private Schools in Qld
Distance Education The department provides distance education services through seven state schools of distance education, which were established to provide a schooling service to geographically isolated and other home based students with limited educational choice. Additionally, schools of distance education provide services to enhance learning opportunities by offering wider subject choice for mainstream school students and providing a service for by choice home based learners and students in a range of alternative education centres. Contact:
and click on Advanced School Finder - then Qld Map. Website: www.privateschoolsguide.com
Brisbane School of Distance Education Tel: (07) 3727 2444
Facebook: www.facebook.com/Schoolsguide
Cairns School of Distance Education Tel: (07) 4080 9111
Tutoring Offering tutoring to children from pre-school through to Year 12 in reading, spelling, comprehension, English and maths.
Capricornia (Rockhampton Campus) School of Distance Education Tel: (07) 4931 4800
Website: www.kipmcgrath.com.au
Disability Discrimination Act: Education Standards This website has been designed to help users understand important parts of the DDA Education Standards. Whether you are a person with a disability, an associate of a person with a disability, or a person involved in the delivery of education, this website will help you understand some important parts of the DDA Education Standards. It does not cover the full detail of the DDA Education Standards, just the more important parts of the Standards. Website: http://www.ddaedustandards.info or Disability Standards for Education 2005 www.comlaw.gov.au/Series/F2005L00767
Capricornia (Emerald Campus) School of Distance Education Tel: (07) 4987 4155 Charleville School of Distance Education Tel: (07) 4656 8999 Charters Towers School of Distance Education Tel: (07) 4754 6888 Longreach School of Distance Education Tel: (07) 4658 4222 Mount Isa School of the Air Tel: (07) 4744 8333
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Queensland • Autism Parents’ Handbook
Department of Education and Training: Contact closest Regional Office and speak to Principal Education Officer: Student Services Central Queensland Region Tel: 4951 6800 Darling Downs South West Region Tel: 4616 9111 Far North Queensland Region Tel: 4046 5222 Metropolitan Region Tel: 3422 8352 North Coast Region Tel: 3881 9600 North Queensland Region Tel: 4726 3111 South East Region Tel: 5562 4888 Website: www.education.qld.gov.au
Looking for an aged, disability or special needs carer to help you at home? With Find A Carer you can FIND and HIRE the Carer YOU want, without the high on-going Agency fees. Get started with a FREE search today! Website: www.findacarer.com.au
Download at http://bit.ly/1HtSaBi
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Queensland • Autism Parents’ Handbook (Application pending to become a service provider)
Service Providers in Queensland ____________________________________________________________ Approved Panel of Providers for Helping Children with Autism (HCWA) (Providers were correct at the time of Print August 2015) Panel providers are approved by the Department of Social Services (DSS) which is the government department that funds the HCWA program. DSS was previously known as Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA). I know! It can be confusing. The national list of approved panel providers is available on the DSS website: www.dss.gov.au/our-responsibilities/disability-andcarers/program-services/for-people-with-disability/earlyintervention-services-for-children-with-disability This website may include the costs of services and information about each of the approved panel of providers Panel providers may deliver their services through:
Home visits and/or clinics Outreach visits to schools, kindergarten or child care centres Individual therapy sessions and/or small group programs Workshops for parents
As the National Disability Insurance Scheme (NDIS) is rolled out across Australia, children supported through Helping Children with Autism funding Better Start will transition to the NDIS. For more information please call the Early Intervention Helpdesk on 1800 778 581 or email early.intervention@dss.gov.au
Ready to go aims to help Queenslanders with intellectual or learning disability get ready for the National Disability Insurance Scheme (NDIS), when it starts in 2016. There are different ways you can learn and get ready – through fun, interactive workshops, real-life activities and online tools. It is a project delivered by Queenslanders with Disability Network (QDN). We are one of 9 organisations funded under the Department of Communities, Child Safety and Disability Services as part of its NDIS Participant Readiness Initiative. These organisations are helping to meet the different needs of people with disability and their carers, to understand and prepare for the NDIS. Find out more: Phone: 07 3252 8566 or 1300 363 783 (local call) Facebook page: https://www.facebook.com/readytogoNDIS
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Queensland • Autism Parents’ Handbook
NDIS ____________________________________________________________ NDIS is the National Disability Insurance Scheme - a new way of providing community linking and individualised support for people with permanent and significant disability, their families and carers. Website: www.ndis.gov.au NDIS videos: Scroll through to watch a range of videos about the National Disability Insurance Scheme and how we can help people with disability. Website: www.ndis.gov.au/people-disabilityvideos-storiesquotes-and-cameos/videos
Australian Federation of Disability Organisations (AFDO) launches Disability Loop website. (May2015) Disability Loop aims to give people with disability and their families information about the National Disability Insurance Scheme (NDIS) that is up to date, easy to find and easy to use. Disability Loop is different to the NDIS website because it is run by and for people with disability and their families. It also brings together information from lots of different websites, not just the NDIS. Website: www.disabilityloop.org.au
NDIS My Access Checker: (for the online tool to check if eligible under NDIS) Website: www.ndis.gov.au/my-access-checker
Qld NDIS Calendar of workshops www.communities.qld.gov.au/gateway/reform-andrenewal/disability-services/national-disabilityinsurance-scheme-in-queensland/ndis-calendar
Discover: A Resource for people planning for the future Discover provides the information needed to navigate the new National Disability Insurance Scheme: DisabilityCare. You can download the book and worksheets for free or get a hard copy with worksheets in the mail, just pay for postage Website: www.endeavour.com.au/Our-EndeavourFoundation/News/Discover-guide
Website: www.ndisrights.org.au
NDIS: Queensland, Planning For Change Forum https://www.facebook.com/groups/1555404211380420/
NDIS Grassroots Discussion Facebook Group. A group for people with disabilities, family members and supporters to discuss the National Disability Insurance Scheme http://www.facebook.com/groups/239631286154106
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Queensland • Autism Parents’ Handbook
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Queensland • Autism Parents’ Handbook Raising Children Network Download this free app on children with autism spectrum disorder (ASD) and disability to get funding and services help, parent stories and reliable, easy-to-understand information. Proudly produced by Raising Children Network. You can use the Children with Autism & Disability app before and after a child is diagnosed with autism spectrum disorder (ASD) or disability. With this free app, you can:
use our pathfinder to navigate each stage of funding, services and support before and after diagnosis
connect to ASD or disability services in your area with a mapping tool and key contacts directory
navigate the Australian services system with step-by-step expert guidance
learn from other parents’ experiences through parent videos
get more information about disability and ASD from up-to-date, evidence-based articles.
The app is available for iOS and Android. Search the app store for ' Children with Autism & Disability – a parent guide'
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Queensland • Autism Parents’ Handbook
Advocacy, Legal & your Rights ____________________________________________________________ Queensland Parents for People with a Disability Inc. (QPPD) is a state-wide organisation involved in systems and family advocacy.
Children with Disability Australia (CDA) is the national peak body which represents children and young people (aged 0-25) with disability and their families.
Website: www.qppd.org
Website: www.cda.org.au
The Queensland Anti-Discrimination Act 1991 protects us from being treated unfairly in many areas of public life including at school and university, at work and when we are out and about in the community. Website: www.adcq.qld.gov.au
Carers Queensland offers an Information and emotional Support Line, advocacy, referral to HACC and other services in Queensland as well as telephone and face to face counselling for carers. Website: www.carersqld.asn.au
Queensland Advocacy Incorporated (QAI) is an independent, community-based systems and legal advocacy organisation for people with disability in Queensland, Australia.
Rights in Action provides support and help to people with disabilities in FNQ Cairns, Yarrabah, Mareeba and Atherton. Website: www.rightsinaction.org
Website: www.qai.org.au
Basic Rights Queensland (formerly "Welfare Rights Centre") is a state-wide specialist community legal centre, providing free advice, advocacy and legal services to people having problems with social security or disability discrimination.
Queenslanders with Disability Network Ltd (QDN) is a statewide network of people with disability. QDN is for people with disability, by people with disability, for citizenship and social justice. Website: www.qdn.org.au
Website: http://www.brq.org.au
The Autistic Family Collective is a community of families advocating together for acceptance, support and inclusion for Autistic children in Australia. Convened by Autistic parents and allies with Autistic children. Website: www.autisticfamilycollective.org.au
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Queensland • Autism Parents’ Handbook Independent Advocacy in Townsville Business Address: Office 2/179-181 Ross River Road Mundingburra QLD 4812 Postal Address: PO Box 3067 Hermit Park Qld 4812 Phone: 07 4725 2505
People with Disability Australia Incorporated (PWDA) is a national disability rights and advocacy organisation. Our primary membership is made up of people with disability and organisations primarily constituted by people with disability. Website: www.pwd.org.au
Website: www.independentadvocacy.org.au
Bundaberg Region: Mon-Fri 11am-4.30pm Unit 14 / 20B Quay Street, Bundaberg QLD 4670 Phone: 02 9370 3100 Toll Free: 1800 422 015
Speaking Up For You Inc SUFY is an independent individual social advocacy organisation for people with disability in Brisbane.
Fraser Coast Region: Tues-Fri 9am-5pm Suite 16D, Level 2, The Signature Building, 19-21 Torquay Road, Hervey Bay QLD 4655 Phone: 02 9370 3100 Toll Free: 1800 422 015
Business Address: Unit F2, The Precinct 1st Floor, 12 Browning Street West End QLD 4101 Postal Address: PO Box 5649 West End Qld 4101 Phone: 07 3255 1244 Website: www.sufy.org.au
Sunshine Coast Citizen Advocacy Programme Inc Citizen Advocacy is a movement which seeks to promote, protect and defend the rights and interests of people who have intellectual disability. Business Address: 4 Pine Grove Road Woombye QLD 4559 Postal Address: PO Box 160 Woombye Qld 4559 Phone: 07 5442 2524
Logan Region Shop 5, 76-86 Queens Road, Kingston QLD 4114 Phone: 02 9370 3100 Toll Free: 1800 422 015 Sunshine Coast Region: Mon-Fri 9am-5pm Unit 6, 9 Nicklin Way, Minyama QLD 4575 Phone: 02 9373 3100 Toll Free: 1800 422 015 Mount Isa and Lower Gulf Communities Mon-Fri 9am-5pm Unit 3/24 West Street, Mt Isa QLD 4825 Phone: 02 9370 3100 Toll Free: 1800 422 015 LGAs of Mt Isa, Boulia, Carpentaria and Cloncurry Contact Phone for all Contact Centres; Phone: 1800 422 015 Models of Advocacy Provided; Individual, Specialisation and Accepts all disabilities
Website: www.citizenadvocacy.com
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Queensland • Autism Parents’ Handbook Welfare Rights Centre Providing advice, advocacy and free legal services to people having problems with Social Security. This includes problems with Centrelink and problems with Disability Employment Service Providers. They also have an extensive list of resources and fact sheets on their web site to assist you to know your rights, processes and procedures, etc. 5 Green Square Close, Fortitude Valley, QLD 4006
Caboolture Disability Support Network Offering access to information and support groups and we advocate on behalf of the community with issues relating to disability. Website: www.cdsn.com.au
Phone: (07) 3847 5532 Website: www.wrcqld.org.au
_____________________________________________ Special Needs in Nth Qld Keep Up-to-Date with everything Special Needs
Sunshine Butterflies a registered charity and approved service provider that offers services and support to people with a disability and to their families in South East Queensland. Website: www.sunshinebutterflies.com.au
Special Needs in Nth Qld is focused on providing information on Professional Development, Training, Events and General Information that is relevant to North Qld - we will do everything we can to meet your expectations. Website: www.specialneedsnthqld.com
Cootharinga is a quality service provider who has been supporting people with disabilities in North Queensland for over 63 years. Provides accommodation and support services in Townsville, Cairns, Mackay, Rockhampton, Mount Isa and regions in between. Website: http://www.cootharinga.org.au
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Queensland • Autism Parents’ Handbook
Local Parent Support Groups ____________________________________________________________ Cairns Autism - Support and Resources. A supportive facebook (closed) group for locals. A safe, private and friendly place to connect with other autism families in Far North Qld. Ask questions, get support, share information and resources. Facebook: facebook.com/groups/cairnsautism Email: cairnsautism@bigpond.com
Cairns Autism Spectrum Group The core strength and purpose of C.A.S.G. is in providing the following: Access to current information, support and events for all financial members. A sympathetic environment in which to share and air issues without fear of criticism A forum for invited professionals to share their knowledge with members. CASG 'secret' Facebook page was set up as a service for members only. Membership is $50 for 3yrs. Website: www.casg.org.au Email: cairnsasg@gmail.com The Mareeba Autism Support Group Contact is Rebecca Patterson on 0417 925 865 or highlandearthmoving@bigpond.com as well as Kym Blackburn on 0429 496 911 or kymkai@bigpond.com www.facebook.com/AutismSupportGroupMareeba Cooloola ASD Support Group Meet: 09.00am -11.30am, Monday weekly. Tin Can Bay State School, Schnapper Creek Rd Tin Can Bay. Contact: Lee-Ann Murphy. Phone: 5488 0847. E-mail: leemurphy81@bigpond.com Central Highlands ASD Parent Support Group Emerald Meet: 10.30 am, last Friday of the month. Borilla Kindergarten, corner Borilla & Loch Streets. Contact: Jenny Finlay. Phone: (07) 4982 4734. E-mail: director@borillakindy.com.au. Address: PO Box 1564, Emerald 4720 Logan ASD Support Network (south of Brisbane) Social Events: Each month we have a Mum's Dinner or a Dad's dinner in the Logan City area. Contact Tara and David Collyer Website: www.loganasd.org.au
Weipa CapeAbility, Local Area Social and Support Group PO BOX 1050 Weipa, Qld 4874 Sharon Carter. Mobile: 0428 290 540 Mitch Mc Court. Mobile: 0448 044 754 Emma Dalla Costa. Tel: (07) 4069 8282 Mitchi Moon. Tel: (07) 4069 7393 Website: www.weipacommunitycare.com Ayr ASD Support Group Contact: Anita Julyan. Phone: (07) 4782 1123. Email: anitaandduncs@westnet.com.au Address: PO Box 140 Home Hill QLD 4806 Bowen ASD Support Group Meet: 1st Saturday of every month. Cooinda Family Centre, 20 Williams Street. Contact: Nadia Todd. Phone: (07) 4785 2812 or 0408 159 502. Email: nadiatodd1@hotmail.com Contact: Susan Milligan. Phone: 0408 779 441.Email: mark_sue@hotmail.com Postal Address: PO Box 469, Bowen 4805. North Brisbane Support Group (north of the river) Meet: Once a month on Wednesday, 10am – 12noon. Café Valetta, 12/353 Beaconsfield Terrace, Brighton. (The group also runs a closed Facebook group for those who may not be able to make meetings The name of the group is 'Brisbane Northside Autism Support Coffee Group’) Contact: Kathy Dimis (AQ FST). Phone: (07) 3273 0000. E-mail: fss@autismqld.com.au Address: PO Box 354 Sunnybank QLD 4109 Bundaberg ASD Support Group Coffee and Chats are second Wednesday every month at 7pm and second Friday of every month at 9.30am to noon at Kenalwyn House, Bundaberg Neighourhood Centre, 111 Targo Street. Contact: Norelle Kasberger. Phone: 0432 284 700. E-mail: bundabergasd@hotmail.com. Address: PO Box 5034 Bundaberg West 4670 For any enquiries please leave a message, Norelle will respond to your call outside of business hours Kids Outside the Box. (Gladstone) Contact: Katy Fowle. Phone: 0427 750 130. E-mail: autismsupport4680@hotmail.com Address: PO Box 4531, Gladstone 4680.
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Queensland • Autism Parents’ Handbook
Autism Gold Coast Inc Meet 10am–12pm, 1st Wednesday of the month and 7pm- 9pm, 3rd Wednesday of the month Lot 393, Cascade Gardens, 2730 Gold Coast Highway, BROADBEACH PO Box 2272, Burleigh Heads MDC Q 4220 admin@autismgoldcoast.com.au www.facebook.com/AutismGoldCoast www.autismgoldcoast.com.au Contact Debra or Helen (07) 5539 9903 Ipswich ASD Support Group Meet: When: 9.30- 11.45am, every 2nd Friday. Cr Bruce Casos office (Ipswich City Council), Shop 2, 38 South Station Road Booval. Saturday morning playgroup (during school terms only, check with group for more details). Download the flyer for more information. Contact: Jodie Kochman. Phone: 0419 744 701. Email: ipswich.asd.carers@gmail.com. Address: PO Box 39, Ipswich 4305
Mackay Autism Support Group Meet: 3rd Tuesday every month (during school terms). Where: venue changeable. Contact: Debbie Brooker. Phone: 4942 3458. Contact: Cheryl Blomfield. Phone: 4969 5110 E-mail: autismmackay@gmail.com North Queensland Autism Support Group (Townsville & surrounding areas) Meet: 10am, 1st Saturday of the month. NQCES Community Hut, Hodges Street. Contact: Gwenyth Cutler. Phone: 4774 0637. Email: secretary@nqasg.org.au Address: PO Box 2659, Aitkenvale, 4814 Southern Downs ASD Support Group Meet: Monthly, next meeting 18th June.Bush Children’s Place, 47 Guy Place, Warwick. Contact: Vicki. Phone: 0419 945 791. Contact: Jean. Phone: 0411 165 681. Email: southerndownsasd@hotmail.com
South Burnett Autism Support Group (Kingaroy) Where: 7pm, 1st Friday of every month. SB Care, Cnr Avoca & Kingaroy Sts, Kingaroy Contact: Jenny Lutz. Phone: 4164 1107. Email: jlutz@bne.catholic.edu.au
Sunshine Coast ASD Support Group Meet: Thursday 20th August & Thursday 22nd October. North Shore Community Centre, Little Mudjimba Room. Contact: Claire Gilmore. Phone: 0448 965 779. Contact: Sally Fitzgerald. Phone: 5493 6807. Email: sunshinecoastasdsupportgroup@live.com.au
Warwick ASD Support Group Meet: 10am -11.30am, 4th Monday of every month. St Marks Anglican Church Meeting Rooms, Albion Street, Warwick. Contact: Kellie Chapman. Phone: 0478 600 115. Email: warwickasd@gmail.com
Local Area Coordinators
QDN is a state-wide network of people with a disability, funded by the QLD Disability Community Care Services (DCCS). Its vision is to connect people with disability to build a voice of Queenslanders with disability to represent views and issues that impact on them. Tel: (07) 3252 8566 or 1300 363 783 Website: www.qdn.org.au
Linking children with disability and their families in regional, rural and remote areas with supports and services relating to their individual needs and interests, including accessing visiting specialists. For more information on services and support in your area you can contact your Local Area Coordinator (LAC) on 1800 177 120 or at www.communities.qld.gov.au Funded by DCCS to support individuals and families with their community/specific area through disability support and information.
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Queensland • Autism Parents’ Handbook
Vehicle and Car Seat Safety ____________________________________________________________ Houdini Harness most secure vehicle harness - will keep any Houdini's from escaping from their vehicle seat! Website: www.medifab.com.au
The Carrot child seat - providing various kinds of extension accessories and multi-adjustable features to allow longer use during the child’s life and to suit the wide spectrum of children’s needs.
Hurphy Durphy Seat Belt Buckle Guard Suited to both front release and top opening seat belt buckles. Once fitted, it can be removed easily by adults but is virtually impossible for children to unfasten, due to the use of heavy duty Velcro. This also removes the risk of accidental release. Website: www.hurphydurphy.com
Website: www.specialneedssolutions.com.au
Seatbelt Buckle Cover A seatbelt buckle cover is used to prevent undoing a seat beltmeets the requirements of Australian standards and fits onto seatbelt buckles of most cars.
buckle me up™ is a wireless seatbelt reminder and alert system for the back seats of passenger cars. Website: www.bucklemeup.com
Funding for vehicle and car seat equipment such as these can be found at www.health.qld.gov.au/mass/community-access/default.asp
Website: www.mobilityengineering.com.au/bucklecover.htm
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Queensland • Autism Parents’ Handbook
Autism Awareness - Media ____________________________________________________________ A few great videos explaining Autism, great for friends, carers, grandparents, teachers..
Nick has Autism. A kid-friendly animation that focuses on a boy with autism named Nick. It teaches children that students with autism may think differently or need some accommodations, but all students are of equal worth and should be treated as such. To view in Youtube go to : www.youtube.com/watch?v=mtRYKjucDHk
Marvelous Max is a 3 minute animated video for Primary School kids. The aim of the video is to create more awareness of autism spectrum disorder. To view in Youtube go to : www.youtube.com/watch?v=wc77MksM_2c
'What are you doing?' (trailer) is now available for sale to the public! If you are a parent, carer, family member, educator or industry professional, you will find the film to be a valuable educational tool and a great addition to your resource library. You can purchase your own copy of 'What are you doing?' for $20.00 plus postage www.whatareyoudoingfilm.com
Just Like You - Autism launches an exciting campaign that calls our communities, our kids and the world to learn, understand and accept those living with autism. (20mins) To view this in Youtube go to : www.youtube.com/watch?v=S0w6carvS8k
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Queensland • Autism Parents’ Handbook
Be Like Buddy™ Autism Videos Autism teaching videos, visual schedules and behaviour modelling stories for children on the autism spectrum hosted by BUDDY, the most energetic, fun and lovable puppet ever!!! Created by the parent of a child with autism. Each video in the Be Like Buddy™ series is available for immediate download with a corresponding visual schedule and storybook for printing!
Concerned about your child's eyes?
The Umbrella Network was created by families who have children with extra needs. Those needs can be extreme or minor. They can have a diagnosis or still not fit into one ‘box.’ By sharing ideas and tips on how to get the best out of the system we hope to empower families and help them be the best advocates for their children. Website: www.umbrellanetwork.org facebook.com/TheUmbrellaNetworkRockhampton
OPSM has come up with a novel way of helping. They are offering a free Penny the pirate screening kit. There is two types available including one for the free online app for the tech loving kids or one that has the book. more info and a short video clip on how it works ..at Website: http://www.opsm.com.au/penny
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Queensland • Autism Parents’ Handbook
Fantastic Resource! - Special Needs Toy Guide E-Book To help you find the right the right toy for your child with special needs Friendship Circle has launched a new e-book called Toys: A comprehensive guide to finding the right toy for your child with special needs. The purpose of this e-book is to narrow down the field of infinite toys to those which successfully target special interests and emerging skills. Here you’ll find tried-and-true toys and activities recommended by experienced therapists and parents – yes, even toys for children who refuse to play with toys, or children who prefer to spend hours each day watching objects spin. Download at www.friendshipcircle.org/blog/SpecialNeedsToyGuide.pdf
WELCOME TO HOLLAND
by Emily Perl Kingsley. (1987)
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
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Chewable Jewellery ____________________________________________________________ Ninja Babies Funkiness For Fun, Teething & Special Needs! BPA-Free chewable jewellery for infants to adults! Funky designs & vibrant colours!
Toothypegs: Teething Necklaces and Accessories
Website: www.ninjababies.com.au facebook.com/TheBabysRoomTownsville
Uniquely Awesome Kids ASD Resources Website: www.uniquelyawesomekidsasdresources.com www.facebook.com/pages/Uniquely-Awesome-Kids-ASDResources/199580190106174
Our products have been shown to assist with those that have oral sensory issues and like to chew, as well as tactile children that fidget. We have some great chunky necklaces, along with Elephant and Giraffe chewies that can assist in providing relief to your child and help them to calm and focus. Website: www.facebook.com/messages/toothypegs1
Sensory Haven Stocks a huge range of the Jellystone Designs Silicone necklaces and chews. Jellystone Designs jewellery is free from BPA, Phthalates and PVC with a fabulous soft-feel and texture. Jellystone Juniors is our “kids” of silicone jewellery range. Designed for children 3 years plus. Non-toxic Durable and strong (although not indestructible) Designs are stylish and funky Easy to clean in a steriliser, dishwasher or just soapy water. Fitted with a breakaway clasp for added safety. Website: www.sensoryhaven.com.au www.facebook.com/SensoryHaven
Sensory Oasis for Kids - is filled to the brim with amazing sensory, educational and fun products and ideas to help special needs kids feel super special! Amazing selections of Twiddle, Tangles, tags, bracelets and pendants and more! Website: www.sensoryoasisforkids.com.au www.facebook.com/SensoryOasisForKids
Sensamart develops high quality sensory smart products. Products include Sensachew chewable pendants.
Australia's largest range of silicone teething jewellery Shop online. Website: www.teethingjewellery.com.au/
Chewigem - Stylish, FUNctional jewellery, designed to look amazing, while discreetly serving your child's need to chew. Website: http://www.chewigem.com.au
Special Needs Toys - Children with autism and other sensory disorders, in particular, can greatly benefit from a range of sensory toys and activities, especially as part of a sensory diet. Offering a great range of Chewable necklace, pendants, bracelets and pencil toppers. Website www.specialneedstoys.com.au
Website: www.sensamart.com.au
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Weighted Products ____________________________________________________________ Calming Kids Australia is a wholly Australian owned and operated business dedicated to helping those children and adults with special needs. Website: www.calmingkids.com.au
Calming Moments Our Products are not only suited to kids on the autism spectrum, other kids will also adore our products. Website: www.calmingmoments.com.au/shop www.facebook.com/calmingmoments.com.au
My Diffability Australia is an online supplier of toys and resources for people with different abilities. Website: www.mydiffability.com.au www.facebook.com/mydiffability
Sensory Matters Many unique practical and fun products to help those living with Special Needs.
Sensory Gifts That Heal. Kids love them! Lukas' Sensory body socks are fabulous for tactile and deep pressure proprioceptive seekers, and for those who are tactilely defensive.
Website: www.sensorymatters.com.au https://www.facebook.com/sensorymattersaustralia
Website: www.sensorygifts.weebly.com (gallery only, order through facebook page) www.facebook.com/pages/Sensory-Gifts/752900211464128
Sensory Spot is a local online retailer of handmade weighted therapy items and fidgets located in Queensland. We make weighted blankets from lap size to single bed size along with weighted toys, cushions and much more.
One Stop Sensory Shop Website: www.onestopsensoryshop.com.au www.facebook.com/OneStopSensoryShop
Website: www.sensoryspot.com.au www.facebook.com/ReenieMayBoutique
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Queensland • Autism Parents’ Handbook Handmade weighted blankets, vest, cushions and fabric sensory blankets all made to order. Website: www.facebook.com/HugsFromMum
Nana's Weighted Blankets Ask yourself.. How long since you got to sleep through the night? What is a good night’s rest worth for you and your child? Call Nana. Website: www.facebook.com/pages/NanasWeighted-Blankets/379580441680
Jamarah Creations We are small homebased business making good quality handmade items eg Weighted Products.
Mummy & Me Custom Made Weighted Blankets Weighted blankets can make a phenomenal difference to those who have trouble getting to and/or staying asleep as well as helping them relax in stressful situations. Weighted Blankets are mostly used by those living with (but not limited to): Sensory Processing Disorder, Autism, ADHD, ADD, Anxiety and Restless Leg Syndrome. Website: www.facebook.com/Mummyandmeweightedblankets
Kreatively Stitched Weighted Lap Cushions, Peek a Bags, Personalised Santa Sacks Website: https://www.facebook.com/Kreativelystitched
Website: www.jamarahcreations.com.au www.facebook.com/JamarahCreations
____________________________________________________________ I Am AspienGirl and I Am AspienWoman.
If you are looking for a highly visual book on the unique adult female Autism spectrum traits, then this is the book for you. This 300 page book takes a unique approach by combining stunning imagery along with the feelings, thoughts and words of Autistic women (and those that love and support them). This book also explores common strengths and challenges, the stages leading up to a diagnosis, important needs, reasons for a diagnosis, disclosure and an Appendix of helpful tools. You will be inspired by a special group of 24 Autistic women lead by Dr.Temple Grandin, who showcase their unique strengths and provide helpful advice and tips.
To purchase eBook, paperback and hard cover go to www.aspiengirl.com and for more information about female Autism, see www.taniamarshall.com
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Social Stories (Apps, Books & Software) ____________________________________________________________ Social Stories are highly structured interventions that use stories to explain social situations to children with autism. They also help children learn socially appropriate behaviour and responses. Free online books for social skills - Learn about Bullies, learning to listen, a story about mongering anger, A tale about telling the truth, Sportsmanship, winning isn't everything, learning about courage and much more. Website: https://wedolisten.org/media
Trace Moroney Books A creator of exquisite children's books that touch your heart and soul . . . and just make you feel good. Her feelings series are fantastic for kids with autism to understand. Website: www.tracemoroney.com
Sandbox Learning - Social Stories (create online) Customise the illustrations to the An open market place where educators buy, sell child's appearance based on and share original teaching resources. gender, hair style and color, eye Great social stories available. color, skin tone, glasses, and method Website: www.teacherspayteachers.com of communication. Our collection of children's stories addresses emotional, social, One Place for Special Needs safety, and communication skills to foster character scoured the Internet to come development. Lots of choices for social stories. Website: www.sandbox-learning.com up with the most complete list of free social stories The Social Express targets core covering everything from deficit areas that stand in the way behavior to toilet training. We also have included of school, social, and life success stories showing sequential processing, the steps for for children and young adults with what to expect in a variety of activities. Some are social learning challenges. text only and others include pics. Website: www.thesocialexpress.com
ConnectAbility offers a visuals engine that is great for creating a quick social story on the fly. There are no downloads necessary. Simply select your template (choose from choice time, rules, schedules, personal stories and more), add Boardmaker images or upload your own images and print or save as a PDF.
Website: www.oneplaceforspecialneeds.com
LessonPix is an easy-to-use online resource that allows users to create various customized learning materials. LessonPix offers a simple three step process for creating a social story. Website: www.lessonpix.com
Website: www.connectability.ca/visuals-engine
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Queensland • Autism Parents’ Handbook Huge post on social stories just keep scrolling down! Website: http://www.autism-pdd.net/social-stories-autismpdd/
The New Social Story Book By (author) Carol Gray Carol Gray developed the Social Story in 1991 to promote social understanding in children with autism spectrum disorders (ASD). Now, nearly twenty years after their inception, Social Stories have become a standard approach for teachers and parents all over the globe, and the stories are more effective than ever. This 10th Anniversary Edition of The New Social Story Book offers over 150 of the most requested Social Stories, each one professionally written by Carol Gray. But it doesn't end there - Carol also teaches you how to write Social Stories yourself. Includes a FREE CD of printable, editable Social Stories! 265 Pages Available at most bookstores
Great list of Social Stories and Visuals Website: www.supportingautismspectrum.weebly.coml
Easy Social Stories Offering autism / special needs support, including inexpensive, instantly downloadable PDF files for self-printed booklets, mobile and computer use. Website: www.easysocialstories.com
Living Well With Autism Social Stories: Appropriate Behaviors. Also have social stories on: Health and Wellness Puberty Tips Personal safety Self care and grooming Website: http://www.livingwellwithautism.com/how_to_use_social_storie s/social_stories-behaviors
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Queensland • Autism Parents’ Handbook Talk'n Photos A simple to navigate talking photo album. Completely customizable, this app allows you to add text and voice recording to album covers as well as each entry (picture) within an album. Photos or symbols may be uploaded from your camera, taken with your iPad/iTouch/iPhone or downloaded from a large number of free clip
Conversation Social Stories and Simple PECS Communication Tool Conversation social stories is made up of four social stories about different conversational skills and simple communication tools to go with them. https://itunes.apple.com/au/app/conversat ion-social-stories/id485658095
https://itunes.apple.com/au/app/talknphotos/id502043039
Stories About Me Create their own social stories for their children and students. Blending photos, text, and voice recordings into a talking picture book, children can playback rich media stories of their own personal experiences. Swiping advances the pages and tapping plays the audio; simple as that!
Our Story for iPad Enables young children to take part in fun games which can help develop interests and skills that will be relevant to them when they start to read by creating your own social stories using your photos. https://itunes.apple.com/au/app/our-storyfor-ipad/id681769838
https://itunes.apple.com/au/app/storiesabout-me/id531603747
Story Creator - Easy Story Book Maker for Kids Easily create beautiful story books containing photos, videos, text, and audio all in one gorgeous collection. Story Creator truly brings your best stories to life and easily allows you to retell and share your most memorable moments.
StoryBuddy The original and very first Story Creator on the App Store! Create books with painting, photos, and text to share with friends and family! https://itunes.apple.com/au/app/storybudd y/id390538762
https://itunes.apple.com/au/app/storycreator-easy-story-book/id545369477
i Create... Social Skills Stories Customize sequential steps of a storyline, the app is designed to make unlimited personalised social skill story books by importing personal photos, adding titles, text and audio to unlimited pages in the story.
iPrompts® PRO - The Leading Visual Support Suite for Autism and Special Education Works great with kids who need more structure, including kids with Attention Deficit Disorder (ADD/ADHD), and even typical, pre-verbal toddlers!
https://itunes.apple.com/au/app/i-create...social-skills/id513666306
https://itunes.apple.com/au/app/ipromptsvisual-supports-schedules/id313144705
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Queensland • Autism Parents’ Handbook Stories2Learn A parent approved app that promotes social messages to individuals with autism and other developmental disabilities. S2L offers parents and educators the ability to create personalized stories using photos, text, and audio messages. These stories can be used to promote an individual’s literacy, leisure, as well as social skills. https://itunes.apple.com/au/app/stories2lea rn/id348576875
My Pictures Talk Create stories with pictures, audio, and video. Use for video modeling wanted behavior. My Pictures Talk helps you catalog, share, remember, and teach skills to those with autism or developmental delays. We allow you to bring your photos to life with text and audio. You can create talking photo albums, or use as a teaching tool to help promote wanted behaviors. https://itunes.apple.com/au/app/mypictures-talk-video-modeling/id368388315
App search engine - for more social story apps Website: http://appcrawlr.com/ios-apps/best-apps-social-stories
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Toileting - Apps and resources __________________________________________________________ Department for Communities and Social Inclusion Are you ready? An animated toilet training resource. This DVD includes the popular animation 'Tom's Toilet Triumph'. In addition, the DVD includes three short variations of the animation, with toileting sequences that can be chosen for a girl, and two versions for a boy; 'standing for a wee' and 'sitting for a wee'. Website: www.dcsi.sa.gov.au/services/disability-services/disabilitypublications-and-resources
Visual Aids for learning Free downloads - This sequence of visuals can help children in learning how to go to the toilet independently. Website: www.visualaidsforlearning.com/freesequences/91-toilet-training.html
Tips for Toileting By Sue Larkey Autism Spectrum Disorders: Strategies for home and school.
Toilet training for children with special needs. A simple, practical tool that offers tips and pictures to help you and your child learn the key milestones of toilet training. The app contains a boy and a girl version. Each version has three sections: Custom Sequence, Full Sequence and a Short Sequence https://itunes.apple.com/au/app/toilet-training-forchildren/id694524907
Potty time with Elmo. Narrated by Elmo, this is an animated storybook and song app that will help teach your child about potty training through storytelling and music. https://itunes.apple.com/au/app/potty-time-withelmo/id525507410
Potty Training Social Story. An interactive social story about potty training that is customizable for boys or girls. The app also includes a visual schedule for using the potty and an extensive FAQ page that lists answers written by a board certified behavior analyst to common potty training questions. https://itunes.apple.com/au/app/potty-training-socialstory/id473779642
Website: www.suelarkey.com.au/media/toilettips.pdf
Visual Schedules - Self Care. Download the PDF to print. Website: www.livingwellwithautism.com/how_to_use_picture_cards_a nd_schedules/self_care_visual_helpers
Potty Training Time. From hugs and high-fives to stickers and Snickers, there are many ways to encourage potty training. With the new POTTY TIME app, you have eight new ways to celebrate your child’s potty training success https://itunes.apple.com/au/app/potty-trainingtime/id473203652
Loads of strategies from Raising Children Website: www.raisingchildren.net.au/articles/autism_spectrum_disord er_toilet_training.html/context/556
Pepi Bath. (self-care, bathroom and toilet) A role-play game where children learn about hygiene in a fun way. https://itunes.apple.com/au/app/pepibath/id505124220
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Queensland • Autism Parents’ Handbook One Place For Special Needs. Here you'll find plenty of articles, strategies and tips for toilet training children with a variety of special needs. Plus you'll find resources for trouble shooting many types of potty problems like smearing poop, fear of the toilet and potty training regression. Website: www.oneplaceforspecialneeds.com/main/library_toilet_trai ning.html
Pinterest. Helpful tips, visuals, books, endless list. Website: www.pinterest.com/search/pins/?q=Toilet%20training%20aut ism
Step by Step Going Potty with the Wonkidos. Going Potty, is a fun animated cartoon of the Wonkidos teaching step by step how to use the potty. Reinforce the steps and behaviors kids need to know to feel confident to use the potty. https://itunes.apple.com/au/app/step-by-stepgoing-potty-wonkidos/id511333719
FREE visual and rewards chart from Wonkidos at www.wonkidovideos.com/ckfinder/userfiles/files/Wonkidos_Potty _Steps_and_Chart.pdf
The New Potty - Little Critter This charming tale of common potty training frustrations encourages children to keep trying. https://itunes.apple.com/au/app/the-new-pottylittle-critter/id415763952
Do2Learn. Varity of small to large visuals, to print out to make a sequence or social story. Website: www.do2learn.com/picturecards/printcards/selfhelp_toiletin g.htm
Thanks Alison Lyons from The Appy Ladies for This Great List www.theappyladies.com/potty-training
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Autism Awareness By Lana Evans 31/03/2014
The person is different Still worthy of support Comfort and good treatment What shall be the end report Are they smart or athletic Are they just average Or do they need to put a tick In the box to show they are average Just like you they have a personality Just like me the want affection Like the world they can be feisty Like everyone they want attention They may not know how to show Or the right way to react to things Give them to time to learn the go The right to react when it stings Blue it is for Autism Awareness For one day show you care For Autistics it a foreverness Why not help the learn to share Let's all be more aware Be patient and understanding Show the world we care Blue shall be the lighting
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Useful Websites ____________________________________________________________ The Sensory Spectrum. A website dedicated to Sensory Kiddos and their Parents to discuss and find information and resources. Website: www.thesensoryspectrum.com
Ian Bean - SEN ICT Training and Consultancy Web site of Ian Bean, former teacher and ICT coordinator at Priory Woods School, Inclusive Technology's Consultancy and Training Manager now Independent Special Needs ICT consultant and trainer specialising in the use of ICT and assistive technology to support learners of all ages with severe and complex additional needs. Ian has an amazing resource page with over100 free accessible activities to run on your computer. our activities have been carefully designed to help your students develop and build access skills using switches, touch-screens or pointing devices such as joysticks or eye gaze
The Social Express™ An engaging, educational software for children and young adults with social learning challenges. The online learning program uses individual webisodes to teach users how to think about and manage social situations. Each webisode-lesson covers a specific social skill and helps kids to practice and develop meaningful social relationships and succeed in life. Website: www.thesocialexpress.com
Autism Awareness Our nation's largest not-for-profit organisations, dedicated to increasing education & understanding of ASD in our community. Website: www.autismawareness.com.au
Website: www.ianbean.co.uk www.facebook.com/SENICT.info
Autcraft A whitelisted Minecraft server for children (and adults) that have autism and their families. What this means is that if you or a family member has autism and you own the computer version of Minecraft, you can register and apply to be put on the whitelist and play with other people just like you. Autcraft was created by Stuart Duncan (aka AutismFather in game) who not only has autism himself but also a child with autism as well. The server is administrated by adults that include autistics, parents of autistic children or a family member of someone with autism. There are also "Helpers" that include "jrhelpers" which are children that prove to be responsible, positive and helpful with people; and "srhelpers" which are adults that demonstrate some knowledge of the game as well as being respectful, responsible and helpful.
Autism on the Seas Autism on the Seas has been in collaboration with Royal Caribbean International since 2007 in developing cruise vacation services to accommodate adults and families living with children with Special Needs, including, but not limited to, Autism, Asperger Syndrome, Down Syndrome, Tourette Syndrome, Cerebral Palsy and all Cognitive, Intellectual and Developmental Disabilities. Website: www.autismontheseas.com
The Measured Mom is an education website which supports teachers and parents with thoughtful articles and free printables. Website: www.themeasuredmom.com
Website: www.autcraft.com
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The BRAVE Program is an interactive, online program for the prevention and treatment of childhood and adolescent anxiety. The programs are free, and provide ways for children and teenagers to better cope with their worries. There are also programs for parents. Website: www.brave4you.psy.uq.edu.au
Pinterest Whether you want information on visuals, sensory rooms, how to make a weighted lap bag, there are thousands of creative ideas to be discovered, the list is endless. Examples to search on Pinterest - sensory play, autism activities, sensory room, autism resources, sensory table ideas, home school ideas, social stories, pretend play, autism visuals just to name a few.
School Mum is a website full of tips, tricks, advice and fun for School Mums by School Mums. Load of resources and information on parenting, school help, health, holidays, challenges, activities and competitions. Website: www.schoolmum.net
Website: www.pinterest.com
Secret Agent Society is a social skills training program to help children feel happier, calmer and to make new friends. Website: www.sst-institute.net
Brolly Sheets - Quality Waterproof bed linen to take the hassle our of a wet bed, plus clothing and chair protectors. Website: www.brollysheets.com.au
BedSOK™ the first sleeping bag for beds. An all-in-one zip-up sheet set to keep children snug and secure all night long. Website: www.bedsok.com
Lycra Sheets are a fitted sheet similar in shape to a sock, designed to slip over the entire mattress in addition to traditional bedding. They are effective in calming over-stimulated children at bed time. They work in much the same way as the Sensory Body Socks. Website: www.frilledtobits.com.au/lycra-bed-sheets
SparkleBox 1000s of FREE teaching resources, just browse, download and print. Lots of Australian worksheets also.
Happy Hooligans Easy, inexpensive, crafts and activities for kids, as well as parenting topics and recipes for parents, teachers and carers. Website: www.happyhooligans.ca
3 Dinosaurs Is a web site with free printables, tip reviews, and book activities for tots, preschoolers, kindergarten, first grade & second grade. Website: www.3dinosaurs.com
Website: www.sparklebox.co.uk
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Queensland • Autism Parents’ Handbook Paging Fun Mums Replacing Insanity with FUN! Channel your inner crafter, photographer, cook, artist, decorator and designer and join us on the journey to being the funniest Mummy you can be!
Babble Dabble Do A website created by Ana AKA The Artsy MacGyver! Babble Dabble Do brings art, science, and design to families looking for creative inspiration! Website: www.babbledabbledo.com
Website: www.pagingfunmums.com
Spectronics is Australia and New Zealand’s largest supplier of special needs software and assistive technologies. Website: www.spectronics.com.au
One Page Profile Beautiful and useful templates. One Page Profile is a profile of a person, which is positively focused on their core qualities. There are three key sections to a One Page Profile:
KidsLearningStation (part of All Kids Network) is dedicated to providing high quality printable free worksheets for teachers, parents and other care givers. They have hundreds of free preschool worksheets and kindergarten worksheets that are perfect to add to any preschool or kindergarten lesson plan and beyond. So far we have collections of free worksheets for learning the alphabet, numbers, shapes, colors, math, reading, writing and much more and we are adding news ones all the time.
1. What other people like and admire about the person 2. What makes the person REALLY happy and is most important to them 3. How the person likes to supported
Website: www.kidslearningstation.com
Lots to choose from and are in word format templates.
Website: www.ot-mom-learningactivities.com
Website: www.sheffkids.co.uk/adultssite/pages/onepageprofiles1.html
Therapy Street for Kids fun occupational therapy learning activities are designed especially to boost kids’ school skills!
I Can Write - My Name! Create your own personalised worksheet to help your children learn to write their name. Website: http://www.kidzcopy.com.au/my-name
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Children’s Siblings & Social Skills Groups ____________________________________________________________ PlayConnect Playgroups are designed for families of children aged 0-6 years who have unique needs associated with having an Autism Spectrum Disorder (ASD) or developmental delays in communication, behaviour or social skills. PlayConnect is a welcoming place and a great way for families to connect with others, share knowledge and experiences, make friends in an environment of fun and mutual understanding.
Minecraft Camps are events held with 24 (sometimes more) children. Each child has their own computer, though they are all participating in the same ‘world’, so they can collaborate and play together. These events are usually held in schools in school holidays and on weekends.
PlayConnect is an early intervention strategy funded through the Australian Government Helping All Children with Autism Package. Children do not require a formal diagnosis or referral to come and enjoy all that PlayConnect has to offer. PlayConnect is a playgroup for the whole family and siblings and carers are also welcome and included at PlayConnect.
Website: www.buddyverse.net/minecraft-camps
Website: www.playgroupqueensland.com.au
Join them on facebook or see their website for upcoming events near you, or suggest your school to them to host a camp. Livewire Siblings (Starlight Foundation) The livewire.org.au Member community is a safe online environment for young people aged between 10 and 20 years, living with a serious illness, chronic health condition or disability - and their siblings. It’s a place for them to meet new friends, share experiences, creatively express themselves and know that they are not alone in their situation. Website: www.livewire.org.au/siblings
Young Carers Young carers are children or young people up to 25 years of age, who help care in families where someone has an illness, a disability, a mental health issue or who has an alcohol or other drug problem. This site provides resources and support to Young Carers. Website: www.youngcarers.net.au
Online forums / useful websites for siblings www.siblingsaustralia.org.au www.siblink.org.au www.sibs.org.au www.yourshout.org.au www.youngcarers.net.au www.livewire.org.au/siblings
Siblings’ Group - Autism Queensland Siblings’ Groups are open to children between the ages of 6 and 12 who have a brother or sister with Autism, and whose family is a current member of Autism Queensland. Contact: Family Support Team, Phone: (07) 3273 0000 Website: www.autismqld.com.au
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Recreation ____________________________________________________________ Sciensensory Day at Qld Museum Events for children with autism and sensory processing difficulties. Check in with their websites on upcoming events. Website: www.qm.qld.gov.au and www.sciencentre.qm.qld.gov.au
Circus Stars (Gold Coast) is a specially designed circus-training program for children with ASD founded by Youth Circus trainer Kristy Seymour. Circus Stars is an innovative way to develop gross and fine motor skills while having fun and building confidence! Website: www.circusstarsasd.com www.facebook.com/circusstars.autismcircus
Brisbane Kids Listing events and services in Brisbane for special needs. Website: www.brisbanekids.com.au/activities/brisbane-specialneeds
ZOO KEEPER FOR A DAY: A sensory Experience like no other! - Australia Zoo Contact them for bookings and events as these change all the time. Website: www.australiazoo.com.au/education/khakisensory-program
Apply for a Sports Voucher (Qld Gov) Eligible children and young people are provided with a voucher of up to $150 to help pay for club membership and/or participation fees. The vouchers can be redeemed at a sport or recreation club registered with the program. Website: www.nprsr.qld.gov.au/funding/getinthegame/index.html
Riding for the Disabled A voluntary, not for profit, organisation, which provides riding instruction and other activities associated with riding and harness driving for people with disabilities. Website: www.rda.org.au
Nature Play QLD's mission is to increase the time Queensland kids spend in unstructured play outdoors and in nature. It is founded on the understanding that unstructured play outdoors - nature play - is fundamental to a full and healthy childhood.
Access Arts Queensland Access Arts is the acknowledged leader throughout the Arts and Cultural sector in the development of emerging artists through mentoring and employment of professional artists and cultural workers experiencing disabilities and disadvantage. Website: www.accessarts.org.au
Website: www.natureplayqld.org.au
Special Olympics Queensland Transforms the lives of children and adults with an intellectual disability through yearround sports training and athletic competition in a variety of team and individual sports. Website: www.specialolympics.com.au/index.php/qld
Crossroads Crossroads is a disability support program in Brisbane that offers a range of flexible and innovative support options for people with an intellectual disability. We do this through a range of social, recreational, respite and holiday programs that provide life enriching experiences and relationships. Website: www.xrdsqld.org.au
Make sure you check out your local Recreation, PCYC and Aquatic Centres for programs.
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Minecraft Camps are events held with 24 (sometimes more) children. Each child has their own computer, though they are all participating in the same ‘world’, so they can collaborate and play together. These events are usually held in schools in school holidays and on weekends. Join them on facebook or see their website for upcoming events near you, or suggest your school to them to host a camp. Website: www.buddyverse.net/minecraft-camps
The Bond Sony Foundation Children's Holiday Camp is an annual camp for children with disabilities. Their aim is to provide the children with a chance to meet new friends in a warm and comfortable environment whilst enjoying a wide range of activities. We have a busy schedule of swimming, arts and craft, a petting zoo, a fire truck visit, a day trip to Sea World, a sailing activity and a Christmas Lunch to conclude the camp. Equally as important, the camp provides the parents of these children with some much-needed Christmas respite. For all involved, the camp is a truly rewarding experience and is an example of the difference Bond students can make when they engage with the community. Website: www.bondchildrensholidaycamp.org
Gold Coast Theme Parks Speak to “Visitor Information” on before you go or on arrival and identify that you have a child with special needs. You will be provided with a special badge/wrist band that will enable you to “jump the queues”, so you do not have to spend a lot of time waiting in lines.
Bribie Road Saddle Club Inc Run by a mother with three ASD children. She offers riding lessons, school holiday camps, birthday parties, pony rides and agistment. Her services to the autism community - not for profit, and accepts the Qld Governments sport vouchers. Website: https://www.facebook.com/saddleclub
Website: www.themeparks.com.au
Tag 5 TAG 5 believe that it is essential to provide accessible information to persons with disabilities about sports and recreational activities, life skills development, as well as other forms of assistance, support services and facilities. Services are designed to care and nurture all families who have members with a disability. Services include 48 hour and 5-day sport and recreational camps, in addition to a wide range of respite support options for people with a disability. Website: www.tag5.com.au
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Autism Assistance Dogs ____________________________________________________________ Public-Access Certified Autism Assistance Dogs are available from the following organisations: The Association of Australian Assistance Dogs North Queensland Inc. is a charitable organisation dedicated to the training and promotion of accredited Assistance Dogs for people with a disability. ASDOGS (NQ) Inc. Address: PO Box 2052 Mareeba, Queensland, 4880 Phone: 07 40923344 Website: www.asdogsnq.com.au
Smart Pups are based Sunshine Coast, Qld – will accept applications from Qld, NSW and ACT. Website: www.smartpups.org.au
Righteous Pups are based Bendigo, Vic – will accept applications from anywhere in Australia. Website: www.righteouspups.org.au
Guide Dogs Qld are based Brisbane, Qld - currently assessing the results of their pilot program but accepting expressions of interest. Website: www.guidedogsqld.com.au Canine Helpers is a community support organisation that provides assistance to people with a disability through the training and placement of different types of assistance dogs, including: - Service Dogs for people with physical disabilities; - Therapy Dogs for people with many other types of disabilities. Website: www.caninehelpers.org.au
mindDog assists mental health sufferers to procure, train and certify psychiatric service dogs. These dogs assist people with mental health disorders whose lives are often severely compromised by anxiety and fear. Website: www.minddog.org.au
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Assistance Dogs Australia PAWS (Parents Autism Workshops and Support) brings together parents of children with autism, to share experiences and explore the potential that a pet dog might have within the family. Website: www.assistancedogs.org.au
Many families who would like a Public Access Certified dog find the thought of so much fundraising daunting, as cost can be around $15,000, especially while still caring for their children with ASD. An alternative is to arrange to train and certify a pet, rescue dog or ex-show dog. In Queensland, the list of approved training institutions and trainers can be found here www.communities.qld.gov.au/disability/key-projects/guidehearing-and-assistance-dogs/for-trainers. Trainer Craig Murray doesn’t certify any dogs he hasn’t raised and trained himself, but his assistance dogs are free www.dogschool.com.au/Assistance-Dogs-pg24098.html. Another option for an assistance dog (though not Public Access Certified) is a companion/therapy dog. All of the organisations listed above, as well as Assistance Dogs Australia www.assistancedogs.org.au, Canine Helpers for the Disabled www.caninehelpers.org.au, Tameruke Labradoodles www.australialabradoodles.com Mind Dog www.minddog.org.au provide these dogs – often they are dogs who have been through the training required for Public Access Certification, but didn’t succeed in passing their Public Access Test.
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Sexuality, Continence and Sleep ____________________________________________________________ Separate books - Special Boys’ Business™ and Special Girls’ Business™ is a puberty resource written for boys and girls with special needs, including: Intellectual disability, Physical disability, Communication disorder and Autism As sex education is an important aspect of a child’s development, the authors have written and published a series of puberty books to prepare and support boys and girls for puberty. These sexuality education books have simple language, accurate information and fun illustrations which girls and boys will enjoy. The books are easy to understand, provide practical information and have attractive illustrations to help girls and boys manage this stage of their life with confidence.
Website: www.secretgb.com
Continence Advisory Service Qld is based in Brisbane. Medical Aids Subsidy Scheme (MASS) Prescribing medical aids and equipment such as Communication aids, continence aids, daily living aids For guidelines and how to apply see Website: www.health.qld.gov.au/mass and click on 'Prescribing medical aids and equipment'. Continence Aids Payment Scheme - (CAPS) (Commonwealth) Eligibility criteria listed on website for product subsidy about $530 per year is available to assist families with meeting the cost of continence products for their children. Website: www.humanservices.gov.au and search ‘CAPS’. _________________________________________________
_________________________________________________ Sleep clinics: please ask your Child Health Nurse, GP or paediatrician for a referral and further information. Melatonin and Circadin are also widely used to assist with sleep onset in children with autism. Please discuss with your General Practitioner to see if appropriate for your child.
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Training, Workshops and Seminars ____________________________________________________________ “The key is to prepare for the process as well as you can. When you come across a challenge, try to stay positive, keep asking questions and focus on what you can do next or learn next to help things along”. www.raisingchildren.net.au
Sue Larkey
Early Days Online Workshops (Contact Autism Qld for upcoming workshops)
An Australian teacher and author with extensive experience and research into education for kids with autism. Delivers seminars Nationwide.
Early Days provides free workshops for parents and carers of children with ASD or suspected ASD. You can do online workshops in your own time or attend one-day workshops. Tel: (07) 4034 6600 Early Days online workshops can be accessed at: Website: www.prc.moodle.com.au/course
Website: www.suelarkey.com
Dr Tony Attwood
Postive Partnerships Evidence-based materials and practical resources published online and delivered nationally through training for teachers and other school staff, and workshops for parents and carers of primary school aged children with autism. Website: www.positivepartnerships.com.au
International authority on Aspergers Syndrome. Website: www.tonyattwood.com.au
Dr Wenn Lawson A published psychologist, parent to four children and has autism spectrum condition, Wenn travels internationally to deliver workshops on autism.
Website: www.mugsy.org/wendy
Nelle Frances Offers real life tips, advice and strategies as a parent, daughter, educator and Author on all things Asperger's. Website: www.aspergerchild.com
Compass covers a wide range of topics that affect young people today including some of the following: - Autism and Aspergers - Attachment Difficulties - Anxiety and Depression - Brain Development and Neuroscience - Challenging Behaviours - Cognitive Behaviour Therapy - Self harm and Suicide - Solution Focused Interventions - Trauma
We use trainers who are the best in the field from across Australia and the world. Website: www.compassaustralia.com.au/seminars.html
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behaviour ____________________________________________________________ Stepping Stones Triple P gives you tips and strategies to manage the big and small problems of family life. It helps encourage behaviour you like, cope with stress and teach your child new skills. Supermarket meltdowns? Mealtime tantrums? Bedtime battles? When you’re the parent or caregiver of a child with a disability, sometimes life can be extra challenging. That’s why the Stepping Stones Triple P Project is currently offering parents in Queensland and Victoria free parenting support. Website: www.triplep-steppingstones.net
The RAP Parent Program (RAP-P) The Resourceful Adolescent Program - Parent Program (RAP-P) was developed to help parents promote the optimal family environment for healthy adolescent development. More specifically, the program addresses known family protective factors for adolescent depression and suicide and is designed as an early intervention program. It is generally run in communities through Queensland Health or Education Queensland. Website: www.rap.qut.edu.au/programs/rap-a.jsp
Management of Young Children Program (MYCP) Education Queensland's Management of Young Children Program (MYCP) provides an early and proactive intervention program for parents, which promotes skillbuilding and relationship development. In MYCP, parents are trained in multiple skills, including praise, instruction giving, behaviour-tracking, problemsolving, prompting and shaping desirable, purposeful behaviour. The program runs for approximately six weeks for parents of children aged two to seven years. For further information, parents should contact their local Education Queensland district office to see if one is run in your area. FABIC runs online workshops for parents of children with ASD to deal with emotional development, behaviour, anxiety and communication. Website: www.fabic.com.au/workshops-presentations/fabiccourses/changing-behaviour
The BRAVE Program is a free online program that offers resources and information for children and their parents. It is designed to help young people with anxiety overcome their worries, develop resilience and improve the quality of their lives. It’s designed for children aged 8 and up. Website: https://brave4you.psy.uq.edu.au/child-program
Headspace Headspace is the National youth mental health foundation. They are all about helping young people who are going through a tough time. Website: www. headspace.org.au
Bullying. No Way! A great resource created by Australia's educational communities as well as students, staff, parents, agencies, education officers and community members. It is intended to support young people to be safe, supported, respected, valued - and free from bullying, violence, harassment and discrimination. The website contains information and support for students on how to handle situations of bullying. For more information see www.bullyingnoway.gov.au
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Visual Communication Aids & Resources
____________________________________________________________
Boardmaker Software - create Visual-PCS Cards, onscreen activities by adding voice, sound, animation and video. Website: www.spectronics.com.au
Find Activities and Boards at www.boardmakerachieve.com/Activities/Search
or Boardmaker Share - Mayer-Johnson's board sharing/community site, must have Boardmaker to use the files.
Picto-Selector is a windows application for creating visual schedules. It is used by many teachers and parents. The download contains over 28000 pictos (images) and it's all Free to use. Website: www.pictoselector.eu
Tutorial on how to make one here. Website: www.mynameissnickerdoodle.com/2012/09/chorechart-tutorial.html
For high quality pecs cards, always 100% free! My PECS is your free resource to an extensive library of professional and high quality PECS cards and symbols. Search our catalog to get started. Website: www.mypecs.com
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PODD stands for: Pragmatic – the ways that we use language socially Organisation – words and symbols arranged in a systematic way Dynamic Display – changing pages. Works in with Boardmaker software (above) Website: www.spectronics.com.au
Mrs. Riley helps professionals, teachers, and parents collaboratively make pages of picture cards. If you've ever made a picture card with a custom image yourself, you know that it can be tedious. Website: www.mrsriley.com
They've wrapped the entire process into a single online application with these goals:
Grocery and Toys PECS A large collection (over 3200) of realistic pictures designed to improve the shopping experience for families with children with autism and communication difficulties.
The pictures from the Off We Go! series are great! They are available as a free download, just fill out your details on their quick form.
Website: www.grocerypecs.com
Toy PECS are a large collection (over 1300) of realistic picture exchange communication symbols. They are designed to assist children with autism and communication difficulties who use the picture exchange communication system (PECS). Website: www.toypecs.com
Easier - Designed to make simple tasks simple. Faster - Sharing is built right in so it's often a matter of search and print. Cheaper - Pay for only what you need.
•Going to a Birthday Party •Going to Buy Clothes •Going to Buy Shoes •Going to the Cinema •Going to the Dentist •Going to the Doctor •Going to the Hairdresser •Going to the Optician •Going on a Plane •Going to a Restaurant •Going to the Supermarket Website: www.offwego.ie/resources/free-downloads.html
How It Is Visuals (or pictures) are a great tool for seeing and understanding. This is a fantastic place to start if you are new to the world of visual aids for your child. Lots of freebies. Free Downloads! Website: www.visualaidsforlearning.com
An image vocabulary for children about feelings, rights and safety, personal care and sexuality. Website: www.howitis.org.uk/browse.htm
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Queensland • Autism Parents’ Handbook Create your own visual social stories books Let these guys do the work for you. Custom Photo Books where you can add text to photos make social stories. Websites: www.artisanstate.com
Download resources in many categories including booklets, puzzles and games, flashcards, worksheets, visual timetabling, activities, visual aids, emotions, teaching aids, matching and sorting, classroom display, clipart, E-books and social skills. Loads of information! Free to join.
www.vistaprint.com.au www.minibox.com.au
Website: www.autismbuddy.com
Sample of a Schedule or timetable for the home These can be purchased at PECS Australia Website: www.pecsaustralia.com
ASD Visual Aids Product range which consist of ‘Visual Symbols’ and stories to help in social situations, timetable boards, key chains, stress balls, stickers, traffic lights along with other communication tools.
Website: www.asdvisualaids.com
Do-N-Slide™ Picture To-Do Lists teach your child organisation and sequencing skills with visual prompts they can slide from from "to do"to "all done. "Their very own Visual Schedule provides planned activities or sequences in pictures, ordered the way things should happen. Website: www.do-n-slide.com
Magnetic Visual Schedules SchKIDules are personalized visual schedule systems designed to communicate a routine, sequence, activity or transition to a child. Website: www.autismschedules.com
PCS Downloads Basic / beginners pictures Website: www.childrenwithspecialneeds.com/pecsdownloads
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Queensland • Autism Parents’ Handbook Sandbox Learning - Social Stories Customise the illustrations to the child's appearance based on gender, hair style and color, eye color, skin tone, glasses, and method of communication. Our collection of children's stories addresses emotional, social, safety, and communication skills to foster character development. Lots of choices for social stories. Website: www.sandbox-learning.com
GoTalk Communication Device Series GoTalks are battery powered augmentative / alternative communication (AAC) devices used by people who cannot communicate well by speaking. An overlay of pictures (or words or symbols) is created. The overlay is slid into the GoTalk, and then the user can “talk” simply by pressing on a picture to play a message. This allows users – maybe for the first time – to communicate quickly and easily just by pressing a button.
Augmentative Resources Best and biggest catalogue full of amazing products!
Website: www.spectronics.com.au
Website: www.augresources.com
Health visuals Loads of free medical visuals such as A&E and Hospital, Blood pressure, Eyes, Healthy living, Noses, Operations, Skin, Teeth, Tests
An abundance of information - communication boards, social stories and visuals Website: www.oneplaceforspecialneeds.com
Website: www.widgit-health.com/downloads/index.htm
Colourful sets of high-resolution JPG images. Images can easily be resized to suit your needs. Downloads also includes a PDF document with the timetable images pre-arranged six to a page. You can download for free if you tweet or facebook post.
SpeechPage.com Discover The Exciting Way Your Therapy Sessions Can instantly Become more fun for your clients and easier to manage for you using colorful and heavyduty speechpages! Website: www.speechpage.com
Website: www.sparklebox.co.uk/special-needs
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Visual Engine - a tool for creating visual support. Free! Many children with Special Needs are visual learners. This means they understand and remember information better when the see and hear it rather than just hearing it. Visual Schedules A visual schedule shows what activity is currently happening and what activity will happen next. A schedule might show two events or it might show several. It is based on what the child can understand. Visual schedules provide information that does not “go away” like words do. This allows the child a longer time to process and understand the information. Visual schedules highlight the important information and provide predictability and structure. You need to teach the child to use the visual schedule starting with two symbols and showing the child that the symbol is related to the activity. Gradually increase the number of symbols. Once the child knows how the use the visual schedule, they may be able to use it independently without adult help. Website: www.connectability.ca/visuals-engine
Praactically Speaking This is an Aussie augmentative and alternative communication (AAC)information sharing page, particularly as it applies to young children with autism.
Visual Aids for learning Free sequence visual downloads such as: Death and Grief Lanyard Having a blood test Night Routines Bus Travel Teeth Cleaning Going to the dentist Emotions Swimming Lessons Hand Washing Getting a Hair Cut Morning Routine Bathing Toilet Training Having a Shower Behaviour Meal time Website: www.visualaidsforlearning.com
Free Speech Articulation Materials and Resources websites:
Speechie Freebies is a collaborative blog where you can find free materials and content to use in speech-language therapy! Website: www.speechiefreebies.com
Heidi has put together this blog to share some of the tips and techniques tha have worked for me over the years in teaching kids to improve their speech and more effectively communicate. Website: www.mommyspeechtherapy.com
Free speech therapy worksheets so you can easily download and print them out to use as part of your speech therapy program. Website: www.heatherspeechtherapy.com/worksheets
Free Speech Articulation Materials - Save, Print, Use! Website" www.testyyettrying.blogspot.com.au/p/downloadprint-free-speech articulation.html
Website: www.praacticallyspeaking.com Facebook: www.facebook.com/pages/PrAACticallySpeaking/1488812111389361
This resource page contains many examples of picture-and-word work sheet intended for use in speech-language pathology intervention. Website: www.speech-languagetherapy.com/~speech/index.php?option=com_content&view=article&id=37 3Aconsonants&catid=9%3Aresources&Itemid=117
Auslan Signbank is a language resources site for Free materials for practice with specific speech sounds. Website: www.speakingofspeech.com/Articulation_Materials.html Auslan (Australian Sign Language). Auslan is the language of the deaf community in Australia. Website: www.auslan.org.au
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Safety, Tracking Devices, Mobile and Apps __________________________________________________________ A perfect starter phone for kids. OwnFone is Australia's simplest mobile phone: a low cost, longlasting, low risk mobile phone for Australians, designed especially for kids and the elderly. Design your own! Website: www.kids.ownfone.com.au Facebook: www.facebook.com/OwnFoneANZ
AngelSense provides parents of children with special needs visibility into the child’s daily activities and well-being while under the care of others. (worldwide product) Key benefits: • Improving care by detecting mistreatment or bullying • Help locate a wandering or lost child • Peace of mind • Increasing the child’s sense of self-confidence • Higher level of independence for the child Website: www.angelsense.com Facebook: www.facebook.com/AngelSenseProtectingChildren
Trax is a small GPS tracker that can easily attach to your child, elderly demented or your beloved dog. You can easily monitor your loved ones in real time with your smart phone, I-pad or lap top. Trax is specifically designed for being used by children 2-7 years old, Pets and elderly diagnosed with dementia. (Australia is a supported country) Website: www.traxfamily.com Facebook: www.facebook.com/traxfamily
The Tile Great for your keys, handbag etc. Cheap, small, compact and light - handy to attach to kids clothing or shoes. However - Battery Duration & Lifetime of The Tile is 1year. You would need to purchase another one. Has its limits (of 100 feet) but good for at malls, playgrounds, outdoor venues etc. Website: www.thetileapp.com Facebook: www.facebook.com/thetileapp
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Queensland • Autism Parents’ Handbook Cheeky Echinda Selling ID and awareness products. - Single use purpose designed identification wristbands - Floating charm Awareness lockets - Stickers for car/home Special Needs and Autism - More ID and awareness products to comeBased in Melbourne, ship worldwide. Website: www.cheekyechidna.com.au - www.facebook.com/cheekyechidna
BuddyTag You can remain aware, alert and assured with BuddyTag, the latest child safety device that helps parents keep track of their kids when out and about. It comes with a free iOS or Android App, a bluetooth tag, a wristband with personal ID information. When the child with BuddyTag is out of the parent's proximity, our App will sound alarm on parent's phone. If the child did get lost, the personal ID information will help in getting the child reunited with the parent. There is also a Panic Alarm on the BuddyTag. Website: www.ruggabub.com.au/unique-baby-products/my-buddy-tag
One2Watch is a smart device for children featuring the latest design in intelligent emergency. It's not just a watch... it is a safety device which allows you to call your Children, monitor their location through GPS, and has a SOS calling feature in the event your Child feels they may be in danger. The One2Watch is a SIMPLE device for young Children to call their Parent's/Carers if they feel they are in any danger. Children are not required to remember phone numbers and help is at hand from the push of a button. Website: www.one2watch.com.au www.facebook.com/pages/One2Watch/1592286041030781
SafetyTat is a fun and colorful kids temporary safety tattoo customized with a mobile phone number. When applied to the arm of your child or loved one, SafetyTat provides an immediate, highly visible form of identification that stays in place even when wet! That's why it's "The Tat That Brings Kids Back!™" Website: www.safetytat.com - https://www.facebook.com/safetytats
AAC Wristbands Australia AAC ID Solutions is Australia's leading supplier of identification wristbands, silicone wristbands, lanyards and promotional products. Website: www.wristbands.com.au - www.facebook.com/wristbands.australia
Big Red Safety Toolkit by the National Autism Association. (NAA) NAA (USA) has created two digital safety toolkits that can be downloaded free, a Caregiver Toolkit and First Responder Toolkit. Although these are created in a format for Americans, the concept is great, so be aware that emergency numbers will need to be changed to Australian. Website: www.awaare.org
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ID4U Identity Bracelets, Dog Tags and Allergy Bands for Children, Women and Men. Website: www.id4u.com.au
WizID Australian supplier of wristbands, lanyards, access and identification cards as well as solutions for events, functions, venues, festivals and corporates. Website: www.wizid.com.au
Kids Kontact - Identity wristbands: The cost is small but the saving could be massive. A wandering child is every parents worse nightmare when visiting shopping and events and can cause distress to both parents and children alike. Kids Kontact specialises in safety, ID wristbands, allergy alerts and tracking devices to ensure that children remain safe and easily identifiable in an emergency. Website: www.kidskontact.com.au
Walkabout Bands Personalised Silicone Wristbands with no minimum order (Qld based) Silicone safety bands engraved with a contact persons phone number, ideal for toddlers, special needs, memory loss, athletes. Available in three sizes. Website: www.walkaboutbands.com
iStaySafe Pty Ltd was founded to empower children and parents with the knowledge and skills to lead a safer and ultimately happier life. Great informative ebooks on safety, bulling and stranger danger for a very small purchase amount. Website: www.istaysafe.com.au/ebooks
Daniel Morcombe Foundation 'Help Me' App. A great way to not only help keep kids safe, but assist people of all ages, from 7 to 97, covering all kinds of personal emergency situations! Website: www.danielmorcombe.com.au/app.html
Police Child ID (app) By AFP National Missing Persons Coordination Centre. The Australian Police Child ID App was designed and built by AFP based on software provided under licence by the FBI to help parents and guardians more easily collect and send important information about their child/children in the event of a disappearance or abduction. Website: https://itunes.apple.com/au/app/police-child-id/id547533218
Find My Friends (app) allows you to easily locate friends and family using your iPhone, iPad, or iPod touch. Just install the app and invite friends to share locations by choosing from your contacts or entering their email addresses. Also lets you set up location-based alerts that can notify you automatically when a friend arrives at the airport, a child leaves school, or a family member arrives home safely. You can also set up alerts to notify friends about changes in your location. Website: https://itunes.apple.com/au/app/find-my-friends/id466122094
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If I Need Help Patches, Shoe Tags, iD Cards, Window Clings, Bumper Stickers, Dog Tags, Pins, Clips & More!! Put patches, pins or clips onto your clothes, backpack, or device! Put your new Shoe tag on your favorite shoe with tieless laces. Wear your Dog Tag. Have your iD card in your wallet. Find out more about these exciting products in our shopping section Website: www.ifineedhelp.org
Medifab Walking Rein. A walking rein suitable for children, adolescents and adults with behavioral needs. It features a webbing harness that secures around the torso of the individual, with a rein strap that can then be held by a parent/carer/adult. Designed to be used in conjunction with education and behavioural interventions. Two models available. Website: www.ilcaustralia.org.au
KinderKord is a wrist to wrist connection for you and your child which leaves your hands free--while keeping your child physically connected to you. (note, if you can't purchase by Amazon international, they are also listed on ebay) Website: www.kinderkord.com
Children's Harnessess by Elaine, Inc Child Safety Harnesses for Baby or Toddler; Child-to-Adult Safety Harnesses for larger children and those with Special Needs; and Safety Harnesses to use with an Autism Dog. If you are looking for a strong, well-made, well-designed Safety Harness to keep your loved-one safe, you have come to the right place. If you are looking for a pretty fabric wrap with single row stitching, or stuffed animal backpacks with plastic d-rings and plastic snap hook detachable leads the length of your arm, then keep going because you won't find anything like that here. "You get what you pay for" and our Safety Harnesses are expensive. Website: www.childharness.ca
Australia Government Emergency Care Plan The Emergency Care Plan is a practical resource to support carers in their caring role. Download the Word document at: Website: www.dss.gov.au/node/32615
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Research __________________________________________________________ Telethon Kids Institute The Autism Research Team at the Telethon Kids Institute, led by Professor Andrew Whitehouse, investigates the genetic and neurobiological causes of autism, and conducts clinical intervention trials. To participate please contact: Tel: (08) 9489 7777 Email: autism@telethonkids.org.au Web: www.telethonkids.org.au
Autism CRC The Cooperative Research Centre for Living with Autism (Autism CRC) is the world’s first national, cooperative research effort focused on taking a “whole-of-life” approach to autism focusing on diagnosis, education and adult life. The Curtin University Autism Research Group (CARG), are leading Program 3, which focuses on finding supportive transitions from school to post school options, and education barriers that individuals on the autism spectrum face. If you would like to help email Autismstudy@curtin.edu.au Web: www.autismcrc.com.au
__________________________________________________________
Free Apps - Useful FREE apps by the Qld Government for: Sightwords Queensland Schools ReadyQld, Language development Tips and advice about bullying Social and emotional skills and more! Website: www.qld.gov.au/services/mobile
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Home Sensory Ideas On A Budget __________________________________________________________ A sensory room is an environment designed to develop people's sense. It can be used as a therapy for children with limited communication skills. Children with Autism and Sensory Processing Disorder (SPD) may have trouble processing one or more senses. Creating a sensory room to balance between relaxation and activity within the framework of a safe, adapted environment designed to stimulate senses such as feel, vision, sound, smell and taste, usually through special lighting, music, and objects. Bubble Column
Privacy Pop
$129 at Sensamart
The Privacy Pop is a unique bed tent designed to provide a snug fit around the bed for maximum privacy and seclusion from any unwanted distractions. Australia seller - www.mrmonkey.com.au
The Dark Den
Ocean Wave Projector
Mood LED Cube Seats
Mirrored Ball Set
Also comes in large size, 'Mega giant dark den' It also has built in speakers. From $14 on eBay There is another one called Aurora Wave - that has 7 colours.
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Disco Ball
Plasma Ball
Lava Lamp
$15 at Kmart
$20 at Kmart
Glitter Lava Lamp $12 Kmart
Projecting Galaxy Star Light
Colour Change light bulb
Rope Lights
$5 on eBay, $10 in Kmart
$5 eBay - $20+ in supermarkets, Bunnings etc
Bunnings - Lytworx 6m LED Multi Coloured Festive Rope Light $24.90
Boon Glo Nightlight With Portable Balls
DIY Bubble Column Platform
LED Net Lights -For Wall Or Ceiling
How to make one www.autismfrog.com/2013/11/16/diybubble-column-platform/
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Sensory Bags
Fairy Lights
Interlocking Soft Foam Mats/Tiles
Very cheap on eBay
Loads of ideas on Pinterest on how to make different sensory bags
Floor Pillow Or Crash Mat
Pillow Pets
Glow Pets
Peapod
You can put poly pellets in these and turn them into weighted cushions
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LED Light Spinning Wand
Jumbo Water Snakes
Sagosten
Put the cover over SAGOSTEN air element, sold separately $20 each
Vibrating Massage Tools
Rain Maker Toys
Other vibrating plush toys, balls also make fun
Lakeshore Giant Sight And Sound Tubes
Neck Wrap Animal Pillow
You can put polly pellets in these and turn them into weighted items also
Howdahug chair
Sensory Boards Unlimited on what you can make here! I suggest taking a look at Pinterest for some fantastic ides on DIY Sensory boards.
Or search for ' Primary Science Sensory Tubes' and you can add your own items in.
A HowdaHUG chair provides extra vestibular movement for children that require a rocking motion when seated on the floor or chair. It curves around the back which allows the seat to hug the body.
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Elmo's Vibrating Hands
Balll Pit
Have A Sensory Hamper
... or use a hard-plastic kids pool. 100 Pack of Play Plastic Balls, Kmart $13.00
Space Hopper Ball
Glow In The Dark Sensory Box
Peanut Gym Ball
Gym Mats
Pillow Bed
No Sew, Teepee
How to make one
www.itsalwaysautumn.com/2014/12/09/make-kids-pillowbed-easiest-cheapest-way.html
How to make one …
www.thehandmadehome.net/2013/02/a-no-sew-teepee
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Queensland • Autism Parents’ Handbook Mocka Teepee
Safety Scooter Board
www.mocka.com.au/teepees.html
Action Junior Jumper Mini Trampoline
Lycra Cloud Or Morph Suits
www.morphsuits.com.au
Classroom Display Fish Net
Room Wall And Floor Padding
Hang danlges off it such as blank CD's
BIg W and Kmart sells them for $40
www.edex.com.au/classroom-display-fish-net-blue.html
Water Led Speakers
Bright Light Pillow Starlight / Moonlight Cushion
Reject Shop, Big W eBay sells them $20-40
Big W and The Reject shops sells them
DIY Light Box
How to make one
www.growingajeweledrose.com/2012/03/do-it-yourself-lighttable-shapes-using.htm l
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Swivel Chair - IKEA
Jigsaw Softie Mirrors
Ikea products to North Qld see www.swedentoyou.com.au
Fibre Optic Lamp
Hanging Seat - IKEA
Swinging develops the sense of balance and body perception. It also brings a feeling of well-being and relaxation.
Oggz - Electronic Eggs
The Sensory Steamroller will help reduce your child’s anxiety, calm him or her and increase on-task behaviour.
Website: www.thesteamroller.com.au
Bubbles!
Smellems Bubbles
Make a Face Stress Ball
shop.australiangeographic.com.au/make-aface-stress-ball.html
Pin Art
Blob Frog Novelty Stress Ball
Light Up Glitter Balls
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Other Bedroom Ideas IKEA KURA Reversible Bed & Tent
'The Safespace
Rainbow Bed Canopy
www.fasequipment.com/flipbook/Autis m/files/assets/basic-html/index.html#1 .
Lego Feature Wall
DIY Magnetic Board
Use an oil drip pan or there are these Magnetic boards from IKEA
Hanging Decorations
Type in hanging decorations in eBay and you have 6,000 to chose from!
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Sensory, Fidget, Educational and Therapy Products Australian websites
_________________________________________________________ To source and supply the best products to support educators in homes, childcare centres, preschools, early learning centres, playgroups, special schools, primary schools, toy libraries, hospitals, and the general public Website: www.windmill.net.au
Sensamart is committed to providing high quality products that aim to fulfill the needs of special needs children that impact on and individuals ability to feel safe, calm and secure Website: www.sensamart.com.au
From puzzles to science, music to mathematics and craft to construction, we have over 7,500 toys and educational resources guaranteed to entertain and challenge young minds. Website: www.edex.com.au
My Diffability Australia is an online supplier of toys and resources for people with different abilities.
Inclusion, independence and fun! Website: www.specialneedstoys.com.au
Awesome Autism Resources at an Affordable Price. Website: www.awesomeautismresources.com
Website: www.mydiffability.com.au
Aiding in the development of special needs children. Website: www.sensorywonders.com.au
Educational Resources for Schools and The Early Years Website: www.kesco.com.au
Australia's largest supplier of educational resources Website: www.teaching.com.au
Sensory Matters has a wide array of unique, mostly handmade resources to benefit children and adults with special needs Website: www.sensorymatters.com.au
Products range is broad to encompass the needs of Mathematics, Literacy, Art & Craft, Developmental Toys, Puzzles, Outdoor Play Equipment, Games, Music & Dance, Babies & Toddlers, Sand & Water Play plus much more. Website: www.hop.com.au
An abundance of products available. Website: www.suelarkey.com.au
The Toy Bug - for fun Educational and Sensory Toys! Website: www.thetoybug.com.au
Providing tools to help children and adults with learning and communication difficulties, these resources help those interact and communicate with others. Website: www.prompteducation.com
Products that lead the field in supporting children “from the inside out” Website: www.shopau.sensorytools.net
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Products beneficial for those children with special needs such as autism, language delay, sensory processing disorder, ADHD. Website: www.sensorykids.com.au
Providing supplies for parents, Occupational Therapists, Speech Therapists, Physiotherapists, Teachers and other allied health professionals or just to people wanting to have a little fun with sensory toys Website: www.senseabilities.com.au
Life Skills 4 Kids offers an outstanding assortment of today’s most advanced resources designed specifically to help your child develop critical life skills and reach his or her fullest potential. Website: www.lifeskills4kids.com.au
Skillbuilders has an extensive and innovative range of educational toys and learning products for children from 0 – 18 yrs. Website: www.skillbuilders.com.au
Peppertown has the largest retail selection of playground accessories (slides, forts, swings plus much more) at competitive prices and we ship anywhere. Website: www.peppertown.com.au
Celebrating their 27th year in the business they have a wealth of resources to help children meet the challenges of learning. Website: www.elizabethrichards.com.au
Early Intervention for Autism Spectrum Disorder, Hearing Impairment, Global Delay, Downs Syndrome and so much more.. Website: www.theflashcards.com.au
Supplies schools and families with educational and special needs resources, including a wide range of chewy toys, jewellery, weighted products and writing aids etc. Website: www.teachmehowshop.com.au
Quality Play Equipment at Market Prices Website: www.ecoviva.com.au
Introduce your child to a world of possibilities by providing Educational Wooden Toys for Kids, Preschooler & Early Child Website: www.spielgaben.com
Special Needs Play Equipment provides fun & safe play equipment for residential and commercial settings.Swing sets, disabled swings & therapy swings. Website: www.specialneedsplayequipment. com.au
Fidget Blankets are handmade unique quilted sensory blanket/mats, designed for children with disabilities in mind. Website: www.facebook.com/Fidgitblankets Pencil Grips Plus we specialise in a range of pencil grips plus other innovative products that you can use within the home, classroom, or office. Website: www.pencilgripsplus.com.au
(this one is not Australian, but an awesome resource!)
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Special Needs Clothing (weighted, seamless and compression clothing)
__________________________________________________________ Seams Away – Clothing apparel for those children who have sensory issues. (currently having a closing down sale) Website: www.seamsaway.com.au - www.facebook.com/seamsawayclothing
JettProof undergarments are made from CalmTex, a light weight, breathable, high quality fabric with excellent stretch and recovery properties, which can be worn comfortably under a child’s clothing all year round Website: www.jettproof.com - www.facebook.com/JettProof
Able Clothing - Comfort and easy to wear with smart cool looks especially for children and young adults with conditions such as Cerebral Palsy, Muscular Dystrophy and Autism. Website: www.ableclothing.com.au - www.facebook.com/pages/AbleClothing/109200632575738
My Diffability – Suggestions on what makes clothing suitable for those with sensory issues and they supply them. Website: www.mydiffability.com.au/collections/clothing
Wonsie - Specialises in bodysuits for older children and small to medium adults. Website: www.wonsie.com.au - www.facebook.com/WonsieKids
Climagel Weighted Vest - and other weighted products.. Website: www.specialneedstoys.com.au
Seamless Socks (Aussie stores) Jefferies - Seamless organic cotton turn cuff socks. Website: www.happytoes.com.au/Cotton_Turn_Cuff_Socks_p/jf2290.htm
Sunfort - Plain school socks www.happytoes.com.au/ProductDetails.asp?ProductCode=SF7305B
It Makes Sense - SmartKnitKIDS Seamless Sensitivity Socks. Simple, welldesigned products that make life easier every day for people with sensitivities. Because it makes sense. Website: www.itmakessense.com.au/smartknitkids-seamless-sensitivity-socks
Fuss Free Feet - At Fuss Free Feet we believe in making positive steps towards enhancing the lives of children, families and communities, starting with one foot at a time. Website: www.facebook.com/fussfreefeet
For a list on Overseas Online Stores To Purchase Sensory Friendly Clothing see www.friendshipcircle.org/blog/2013/01/21/8-online-stores-to-purchase-sensory-friendly-clothing
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APPS - Websites To Follow __________________________________________________________ Features Free and Discounted Apps, Promo Codes and Giveaways Follow them on Facebook to get their daily deals and free apps straight to your newsfeed. 'Free App Friday' is the best day of the week. Always huge price discounts in April being World Autism Awareness Month . Friendship Circle - Special Needs Apps. With over a thousand apps now available to help individuals with special needs it has become increasingly difficult to find and choose the right special needs app. www.friendshipcircle.org/apps
App Crawlr AppCrawlr uses a new method to combine advanced data mining and statistical modeling technologies to provide users with the most relevant and trusted recommendations for searching and discovering apps. http://appcrawlr.com
Smart Apps for Special Needs A resource of special needs families, teachers and therapists.
www.smartappsforspecialneeds.com
The iMums Kids app & product reviews, news, interviews, articles and giveaways! Follow their facebook page, where the post a huge list of paid apps that has gone free on special daily. www.theimum.com www.facebook.com/TheiMum
AppyMall A Place to Discovery, Learn, Review and Download apps. A dedicated community for educational apps for infants, children and teens with thousands apps available for download with reviews and ratings for apps from parents just like you. www.appymall.com
Smart Apps for Android Keep an eye out each week for 'Free App Friday' for Android
The Appy Ladies A diverse group with various backgrounds and interests, who have a passion for apps and information. Sharing their knowledge and experiences with their followers. Providing iOS app reviews, information and resources for readers in a fun and friendly environment. http://theappyladies.com
AppAble As parents of Special Needs Children we know how difficult it can be to find the right app for your child. We hope to make this a little easier for you all by providing reviews and also showcasing the Developers who make the apps. www.appabled.com www.facebook.com/AppAble
Smart Apps for Kids
www.smartappsforkids.com/android www.smartappsforkids.com
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If you haven't discovered Pinterest yet, do it now!
This particular board is created by Lauren S. Enders SLP/Augmentative Communication Consultant/Assistive Technology Consultant. Lauren's done all the hard work for us, listing apps in categories in subject order, I guarantee you will find what you are looking for, and will save you hours searching for the right app. Website: www.pinterest.com/lasenders
Another great board is Speechie Freebies www.pinterest.com/speechiefreebie/ Search on Pinterest such as - sensory play, autism activities, sensory room, autism resources, sensory table ideas, home school ideas, social stories, pretend play, autism visuals just to name a few.
Lois Jean Brady, Speech Language Pathologist Assistive Technology Specialist has released her revised editon of her book 'Apps for Autism'. Available at all good bookstores.
Volume Sanity (App) Do you have a child who always plays video at full blast? I suggest to download this app. Note: for the app to work it always needs to be open, or running in the background. This app is fantastic and definitely saved my sanity! https://itunes.apple.com/au/app/volumesanity/id764527872?
ISBN-10: 1941765009 ISBN-13: 978-1941765005
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Toy & Resources Libraries __________________________________________________________ Noah’s Ark Resource Centre Noah’s Ark is a not-for-profit organization that is committed to the provision of high quality professional and developmental support to children with a disability and additional needs. They also run an Educational resources and Toy Lending Library. Website: www.noahsark.net.au Playgroup Queensland Toy Libraries offers a wide range of toys and equipment for use in playgroup sessions and at home. For more details on becoming a member in regarding Toy Libraries or Playgroup QLD playgroups in your area please the State Office Toll Free 1800 171 882. Website: www.playgroupqueensland.com.au/playgroup-programs-for-families/playgroup-programs/toy-libraries ARC toy library and Resource Centre (Cairns and Far North Qld) Children and young people (aged 0 to 18) who have a disability can use the Toy Library and Resource Centre. Mobile service to regional areas of Far North Queensland also available. Access to the ARC Toy Library and Resource is via payment of a yearly membership fee. Please contact ARC for current membership rates. Web: www.arcinc.org.au Facebook: www.facebook.com/arcinc Moreton Bay Region SEQ - Redcliffe Special Needs Library. The Redcliffe Special Needs Library Association provides a lending service to enhance the lives of people with special needs and their families. Website: www.rsnl.org.au Facebook: www.facebook.com/pages/The-Redcliffe-SpecialNeeds-Library-Association/792280670797242 Maryborough Toy and Special Needs Library An extensive range of toys, educational resources, play equipment and specialised disability equipment. Annual membership fee may apply. 10-20 toys may be borrowed for a 3 week period. Hours: Monday, Tuesday, Thursday 1-4.30pm, Wednesday 10am-4.30pm, Saturday 9-12am. Address: 239 Lennox Street, Maryborough, Tel: (07) 4190 5893 Website: www.frasercoast.qld.gov.au/toy-libraries Nerang Branch Library Special Needs Library The Special Needs Library provides a collection of resources and equipment to assist with the development and rehabilitation of children and adults with special needs. Items are available for loan to support a range of developmental needs such as fine and gross motor skills, speech and language skills and imaginative play. Address: Corner White and Price Streets Website: www.goldcoast.qld.gov.au/library/special-needs-library-10117.html The Community Resource Centre is a purpose-built centre to provide access to resources and facilities for people for people who have an identified physical, psychological, intellectual or social need and for professionals and organizations that assist them. It also houses resources that can be used by teaching professionals to enhance their own, their students' and parents' teaching and learning needs. Adaptive Technology Space, Life Skills Training Areas, Treatment and Interview Rooms, Meeting and Training Room, Indoor and Outdoor Play Spaces. Website: www.banana.qld.gov.au/community-resource-centre
Make sure you check in with your local autism support group for lending resources. such as toys and books!
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Useful Facebook Groups and Pages ____________________________________________________________ Resources For Special Needs Group. This facebook group has been developed over several years to the point where it reaches and assists over 8,000 mothers, carers, professionals and others involved with special needs around the world. Resources for Special Needs provides a single place to access advice, apps and the opportunity to participate by assisting others. This group is an illustration of the best in human behaviour. People who can help, do so. Everyone benefits. facebook.com/groups/resourcesforspecialneedsaustralia Learning to Learn Group People with complex special needs require an individual learning regime. Parents and carers are best equipped to know what works for them. Our collective knowledge in an easy to navigate site may be very useful. You may feel new and have nothing to share: this is not true. Your questions will help others discover new thoughts and ideas about home educating their children. Your tips, your links to resources, etc will be useful to others. A feature of this group is that it values and respects diversity: we believe there is no one right way to home educate and that every individual family builds an educational experience to meet the needs of that family facebook.com/groups/specialneedslearning Autism Discussion Page Bill Nason is a mental health professional, with a master’s degree in clinical psychology and more than 30 years of experience in treating individuals with developmental disabilities and autism spectrum disorders. Over the years he began to specialise in autism spectrum disorders and developed a strong compassion for these children. In May of 2011 he started this Facebook page which has now grown to 80,000 members. Through his articles and slide presentations members encouraged him to write a book, which he did, two of them. This page is a wonderful resource and support for many parents, children, teachers, professionals, and people on the spectrum. facebook.com/autismdiscussionpage His books are a must read!
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Queensland • Autism Parents’ Handbook Moreton Bay Region ASD Support Group (Closed group) For Caboolture, Redcliffe and Pine Rivers Carers living in our beautiful Moreton Bay Region, Our group consists of parents who are following treatment paths that includes traditional therapies such as: occupational therapy; speech therapy; psychology/psychiatric help, medication, those who are following diet management plans, those that are embracing holistic therapies and those who are combining all of the above, however you are parenting your special child, you are welcome here. www.facebook.com/groups/242572062494487 ASD Matters (Closed group) A group for families to socially network, that is full of information, lovely helpful and supportive members, it's a place to share experiences, ask questions, to just connect with other people in similar circumstances. Everyone enjoys this group the way it is, friendly, helpful, easy going and supportive. www.facebook.com/groups/asdmatters Mackay Autism Support Group (Closed group) You must email autismmackay@gmail.com before you can be a part of our Facebook page. This page is only part of our support group services. This group is a support group of parents of children/adults diagnosed or in the process of diagnosis with an Autism Spectrum Disorder. Group is also open to those diagnosed with ASD or Aspergers. www.facebook.com/groups/133009150350 Homeschooling on the Spectrum (Qld Support Group for ASD Families) (Closed group) Homeschool help, advice and networking for those who homeschool children on the Spectrum. We are Queensland based. www.facebook.com/groups/203287163166767 Special needs kids. For all that love one, QLD (Closed group) This group is set up for those with any kind of special needs ,and to support any Mum, Dad, Grandparent, Family members , teachers, health professionals, Carers that care and love a child or children with special needs. www.facebook.com/groups/specialneedskiddiesforallthatloveoneQLD QLD Special Education teachers sharing ideas (Closed group) This group has been formed to support Special Educators' in Queensland schools to network and share ideas and resources. www.facebook.com/groups/183384861869062
ASD Support Group Logan City (Closed Group) A group for parents of ASD children in Logan Citywww.facebook.com/groups/ASDLogan
Autism Townsville (Open group) A page for parents to come & share their ideas, experiences, funny moments, frustrating moments & to remind ourselves we are not in it alone. A place to celebrate our beautiful children, nieces, nephews, grandchildren and siblings. www.facebook.com/groups/456898937713139
Special needs teens Mackay (Closed group) The aim of this group is to bring teenagers / young adults between the age 12 - 18 yrs old with special needs and their families from Mackay and surrounds together - to build new friendships ! www.facebook.com/groups/specialneedsteensmackay
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Ipswich ASD Parents and Carers Support Group (Closed group) If you are requesting to join this group, please message an introduction to one of the admins of this group first before approval is given. This is a group for people in the Ipswich and surrounding areas that care for and or have Autism Spectrum disorders. We hold regular meetings during the school term at Cr Bruce Casos office (Div 4), as well as other events and activities for the whole family to attend. www.facebook.com/groups/204273796294757 Sunshine Coast ASD Support Group (Closed group) To join you must live on the sunshine coast and you must have a family member with asd - adult or child. If you have requested to join a message will be sent to you before being accepted they often go to your 'others' folder in yo ur messages. Please respond as you will not be admitted until we receive your response. www.facebook.com/groups/137270879619568 Qld Families with ASD (Closed group) Hey Queensland families living the ASD life.. This page is for us... Please share any info on ASD friendly events here.. Love to hear about get togethers at parks , conferences , fundraising events.. It's all about supporting our whole autism community. www.facebook.com/groups/223073477712320 Special Needs Fraser Coast (Closed group) www.facebook.com/groups/136802299832177 SE Qld ASD Mums & Dads (Closed group) Connect with others in the SE Qld & Darling Downs region. Doctors can give all the technical information in the world, but sometimes all we need is a friend. So, share your stories, ask questions and most importantly be yourselves! www.facebook.com/groups/420397901313050
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Queensland • Autism Parents’ Handbook ASD Matters (Closed group) A group for families to socially network, that is full of information, lovely helpful and supportive members, it's a place to share experiences, ask questions, to just connect with other people in similar circumstances. www.facebook.com/groups/asdmatters Penrith Area Autism Family Support Group *Asd People And Their Carers Only* (Closed group) This group is for Autistic Adults and parents/carers of Autistic children living in the Penrith Area. Before you ask to join this group please read our group description. Requests to join this group will not be approved unless you send a message to our administrators introducing yourself. www.facebook.com/groups/penrithareaautismfamilysupportgroup Western Sydney Autism Resources Network (Closed group) Western Sydney Autism Resources Network exists to connect Autistic people and their families with appropriate supports. Anyone in the Penrith area or close surrounds with an interest in Autism is welcome to join. www.facebook.com/groups/penrithautismsupportnetwork Blue Mountains Autism Family Support Group (Closed group) This group is for Autistic Adults and parents of Autistic children living in the Blue Mountains. Before you ask to join this group please read our group description. Requests to join this group will not be approved unless you send a message to our administrators introducing yourself. www.facebook.com/groups/176102115830012
Blue Mountains Autism Resources Network (Closed group) Group exists to connect Autistic people and their families with appropriate supports. Anyone in the Blue Mountains area or close surrounds with an interest in Autism is welcome to join www.facebook.com/groups/1403908169872048 Friends Care Online - Carers Qld (Closed group) Friends Care Online was established by Carers Queensland to offer carers a way to selectively share information quickly, easily and confidentially with others who understand. This group is all about communication. It's a safe, private space for you to talk about your caring role with people in similar situations. www.facebook.com/groups/friendscareonline NDIS Grassroots Discussion (Closed group) A group for people with disabilities, family members and supporters to discuss the upcoming National Disability Insurance Sch eme (DisabilityCare) and what we need from it to live full lives. www.facebook.com/groups/239631286154106 Aussie Mums Raising ASD/Autism Children (Closed group) A chat group to share advice & info with other mums who raise children with asd/autism. We are a group for people living in Australia. www.facebook.com/groups/121324437997447 Autism - Adelaide Mums Group (Closed group) A group for Adelaide mum's who want to learn more, share what we've tried and support each other. www.facebook.com/groups/11039658105 Adelaide ASD Single Parents (Closed group) A place for single ASD Mums and Dads to meet www.facebook.com/groups/1407941149476814 ASD Teen Clubhouse (Closed group) ASD teen social group. Make friends, share your talents, hang out. This group is for Asd Spectrum kids only. Bullying, rudeness and inappropriate posts won't be tolerated. www.facebook.com/groups/553766974744799 Parents of teens with autism (Closed group) This is a group for parents who have teens with autism. It is a place to share questions, concerns and ideas that might be helpful to other parents with teens with autism. www.facebook.com/groups/357664334311965
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Queensland • Autism Parents’ Handbook Single Parents of Children with Autism/Aspergers/Special Needs (Australia) (Closed group) A safe place where single parents can get support. Please be mindful of others :) www.facebook.com/groups/341694159191307 Western Sydney Autism Support (Closed group) A place for parents, families and carers of children and young people with asd and adults with asd to come together and share their stories, their journey, good days and bad days, swap info and just have a safe place to come to to talk to people that know what its like to living with Autism. www.facebook.com/groups/westernsydneyautismsupport ASD Kidz & Familyz Inc. Second Hand Therapy/Sensory and Educational Items. (Closed group) Buy/sell second hand Therapy Items related to but not limited to ASD and other related conditions eg. Books, resources, sensory toys, therapy equipment and more.. All welcome.. www.facebook.com/groups/370675029615897 SPECIAL KIDS AUSTRALIA Support, Services, and Funding Options (Closed group) This group has been set up for members to get information on what services, support groups, and funding options are available in Australia. www.facebook.com/groups/SKOZsupport Autism Parents Australia (Closed group) Autism Parents Australia is a Facebook group. This group is created to support one another and share ideas. www.facebook.com/groups/autismparentsaustralia Social Group SC (Closed group) A Social Network group on the Sunshine Coast, for people aged 18-35 who have ASD. www.facebook.com/groups/socialn etworksc Partners of adults with / or suspected of having Aspergers Syndrome (Closed group) This is a support page for partners to share experiences and give advice, support and offload etc. The page is not in any way whatsoever intended to be discriminatory, labelling or oppressive to people on the spectrum etc or to anyone else but it is intended to be a space where partners can freely express their feelings and views and be heard. www.facebook.com/groups/partnersofadultswithaspergers NSW Autism support for parents & carers (Closed group) NSW Autism support for parents and carers was founded by Susanne Woods in Orange NSW. I found that there was a need for parents and carers to be able to have somewhere available at all times for support. www.facebook.com/groups/229634433724398 Autism Information and Services (Victoria) (Closed Group) Autism information and services in Victoria. Please feel free to add any information you find that you think may help others. www.facebook.com/groups/autism.info.victoria
Special Kids Australia Buy Sell Swap and Giveaway (Closed group) A place where you can offload your old stuff, or request new stuff. It is almost impossible to find second hand special needs gear that doesn't cost the earth, so this page has been created to try and help each other. Anything relating to special kids can be sold here, including regular every day toys that are great for therapy. www.facebook.com/groups/SKOZbuysell Special Things For Special Kids (Open group) ST4SK is a networking front for the Hervey Bay Special School P & C www.facebook.com/groups/160049337390510
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Autism Support for Families in Geelong & Surf Coast (Open group) A group we can call our own. Connecting parents, carers, relatives, kids, teachers, workers and everyone else throughout the Barwon region. www.facebook.com/groups/132716300111968 ADHD/ASD Support Group Central Coast NSW (Closed group) We created this group with the hope of starting a support group for us parents on the Central Coast NSW. This group is open to all mum's and dad's, with boys and girls on the spectrum. www.facebook.com/groups/CCADHD Aspergers Australia (Open group) Asperger's, the invisible disability. Supporting tolerance for Asperger's/High Functioning Autism. www.facebook.com/groups/18621523232 AFDO - Australian Federation of Disability Organisations (Open group) The Australian Federation of Disability Organisations (AFDO) has been established as a primary national voice to Government that fully represents the interests of all people with disability across Australia. www.facebook.com/groups/94977962793 Autism Ladder (Closed group) A private area for discussions etc The intention is to keep the group free of "noise" of other activities to promote open, honest and helpful discussions. www.facebook.com/groups/426422537448172 Special needs kids, Australia (Closed group) Come on in and join with us. You are not alone anymore!!! Is there someone special in your life that has special needs? Child or Adult, All are welcome www.facebook.com/groups/specialneedskidsnsw Somerset ASD Parents support group. (Closed group) This group is a place to offer advice, support, seek answers and to come together with people on similar journeys with their children. www.facebook.com/groups/199522683548189
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Queensland • Autism Parents’ Handbook Meltdown Corner (Closed group) A closed group where folk on and off the autistic spectrum can huddle, muddle, think, pool, vent, ask, advise, seek, warn, plan ... and autistically meltdown (safely). www.facebook.com/groups/meltdowncorner ASD Limestone Coast (Closed group) Our Aim is to facilitate positive networking, support and information sharing for anyone with an interest in ASD and living in and/or servicing the limestone coast region. www.facebook.com/groups/ASDlimestonecoast The Australian Autism Association (Public Group) The Australian Autism Association has been established to provide support, knowledge and guidance to the ASD community. www.facebook.com/groups/1537135573172149 Buy/Sell Disability products Australia new & used (Open group) www.facebook.com/groups/keeden00 SPD Australia Buy, Sell, Swap (Closed group) Buy, sell, swap our preloved therapy equipment (example: weighted products, scooter boards) to others who are in need. www.facebook.com/groups/323145034411304 Special Needs Parents Australia Discussion Group (Closed group) Closed discussion group for parents with special needs kids to openly discuss anything. All I ask is that you are polite in your discussions. www.facebook.com/groups/specialneedsparentsaustraliadiscussiongroup Special Kids Equipment Exploring The Minefield (Closed group) Carolyn Lamb-Miller is a wealth of knowledge and will help with advice and equipment. She also has Just Juniors Disability Products www.facebook.com/JustJuniorsDisability- www.facebook.com/groups/SNEquipment
ASD Support Group (Closed group) This is a group to support parents / carers / friends for ASD (autism spectrum disorder) Share your experiences never know you may just make someones day. www.facebook.com/groups/autismspectrumdisorder CASPAR - Canberra Autism Spectrum Parents and Relatives (Closed group) This is a group for those in and around Canberra who care for children (and adults!) on the autism spectrum. It is a place to make connections with other people in our community who are all in this crazy boat together, a place to share information, useful links, handy hints etc. Please contact Admin before joining. www.facebook.com/groups/casparcanberra Autism Mums Australia (Friendship And Support Group) (Closed group) www.facebook.com/groups/AutismMumsAustralia STEPS Care for carers (Closed group) The STEPS Care for Carers (CFC) Service delivers an integrated service to support individual Carers and Carer Groups. STEPS recognises that Carers play a valued and key role in the community by improving the quality of life of the people that they care for. Carers should thereby be strengthened and encouraged to manage and rejuvenate their Carer relationships. If you want to join the steps carers group you need to send an email to bethb@stepsgroup.com.au www.facebook.com/groups/careforcarers Autism Spectrum Disorder Families in South Australia (Closed group) Our mission is to unite the Autism community ♥ We'd like to introduce you to new people, allow you to network with others and receive support from those who truly understand. We also promote socialisation and organise various activities throughout the year such as ladies nights out, Dad's weekends away, family picnics/bbqs, get togethers at places such as wildlife parks, movies, cafes etc www.facebook.com/groups/171128586242696
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Queensland • Autism Parents’ Handbook Parents of Autism Angels - Perth (Nth and Sth of the River) (Closed group) This group page is for parents and carers of children with Autism (ASD) who live North and South of the River in Perth WA. A page where we can share our "Autism journey", ask questions and get advice from others who are going through same. www.facebook.com/groups/242496742539950 PMAN Perth Metropolitan Autism Network (Closed group) This is a Perth/West Australian based support network which was launched as a result of a Positive Partnerships workshop but is open to all the Perth families out there dealing with autism. www.facebook.com/groups/560607700674392 Melbourne AUTISM (support group) (Closed group) HELP!!! You need advice? willing to share advice? Do you feel alone? Do you just want to talk to someone that ACTUALLY u nderstands where you are coming from? As parents we have a tough job raising children alone, yet on top raising and supporting children with autism is even harder. Lets support each other, talk about it. www.facebook.com/groups/308663722514316 Asperger’s Women & Children (Darwin) (Closed group) This group has been set up as a support network for those in need of assistance... with information and bits and bobs that will assist more people to feel accepted and loved. www.facebook.com/groups/1449247638712742 Dalby & Western Downs Autism Spectrum Disorder Group (Closed group) https://www.facebook.com/groups/342423119201269 ASD Parents Connect ~ Parents of ASD Teens and Young Adults (Closed group) An Australian support group for families with teens and young adults on the spectrum who are in high school and/or making the transition to adulthood or who are already out in the "real world". www.facebook.com/groups/ParentsofASDTeensandYoungAdults Second hand sensory and autism toys (Closed group) www.facebook.com/groups/1508365292716073 Special Needs Books and DVD's - Rant or Rave! (Closed group) Sharing opinions and reviews with each other on any Special Needs Books, DVD's, or any other media. If you have any used 'Special Needs' books or media you wish to sell you can also place an add here. www.facebook.com/groups/specialneedsbooks Sensory ideas for children with disabilities (Closed group) This group is not just sensory room ideas but for any sensory play at all. www.facebook.com/groups/508120676006427 Autism & the iPad (Closed group) Facebook group to discuss enabling technologies for children with special needs. www.facebook.com/groups/125550250851327 On Sarah's iPad (Open group) On Sarah's iPad is a blog that can be found at www.onsarahsipad.wordpress.com The blog discusses educational Apps for Apple devices, occasionally other mobile devices, and the odd desktop computer program. This group exists so that Sarah can send you alerts to Apps that might be reduced in price or free for limited times. www.facebook.com/groups/351196844892855 Educational App Talk (Closed group) Educational App Talk - a place for teachers, parents, students and therapists to come together to better tomorrow's education, today. www.facebook.com/groups/EdAppTalk
IPAD apps for Developmental Disabilities (Closed group) Share your favorite IPAD/ Android app that is helpful for individuals with developmental disabilities, including autism. Please provi de link and brief description. www.facebook.com/groups/118669738216934
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Queensland • Autism Parents’ Handbook Apps For Autism (Open group) Apps recommended by parents for our kids. www.facebook.com/groups/112660098801528 iTeach Special Education- iDevices in Special Education (Open group) This group is a very active support network for those using iOS devices and apps in special education. We welcome any special education/general education/inclusion teachers, program specialists, administrators, service providers (SLP/OT/PT), AT consultants/specialists, ABA therapists, parents, students, as well as app developers! www.facebook.com/groups/iTeachSpecialEducation Augmentative Communication Resources & Help (Open group) Have questions, information regarding Augmentative Communication, the devices etc? Welcome to our group! We have many wonderful people in our group to help you find some answers, information and more! Our group consists of parents, teachers, therapists and more. www.facebook.com/groups/aacresources Speech Therapy Ideas (Open group) A group for SLPs to share speech therapy ideas with each other. www.facebook.com/groups/46172851327 Teaching Resources for Sale/Swap Australia (Closed group) A place where we can buy/sell our excess teaching resources. Feel free to share the group with all of your teaching friends. www.facebook.com/groups/301897986518477 Autism Living Life On The Spectrum (Closed group) Are you a Parent, Carer, Community Member or Professional with an interest in Autism Spectrum Disorders, maybe you know someone who is impacted by Autism or would you like to know more about Autism ? As I am very passionate about the world of Autism I wanted to create a group where Parents, Community Members and Professionals can come together to create greater understanding and increased Acceptance in the world of Autism. This group will offers free resources, shares wisdom and gives you an insight of the knowledge and information that has assisted us with 'Living Life On The Spectrum' and I would love to take this opportunity to invite you to join me in being a part of this amazing community. www.facebook.com/groups/386313431561301
For the Kiwi's From Behind The Cloud - kiwi families of children with ASD living in Oz (Closed group) This group has been set up for kiwi families of children with any ASD currently living in Australia. Our people often struggle with lack of support from government agencies and disability services because of their residency status. Our mission is to support and sha re information that others may or may not already know about receiving help while living in Australia. www.facebook.com/groups/behindthecloud Aroha Angels Assistance for Kiwis in Australia who have a child with a disability. Individual requests for equipment will be assessed on a case by case basis. Sometimes, there will be no competition for an item, and other times we may have to make a choice as to where it goes. When considering the needs of a family, we will first try and help those who are not eligible for any funding at all. This will primarily affect those who are immigrants without permanent residency, and cases of noncustodial Carers. www.facebook.com/ArohaAngels
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Magazines, Books and Journals __________________________________________________________ Autism World Magazine The essential free bi-monthly digital magazine supporting all those in the Autism and Aspergers communities. Produced in Perth for iPad, iPhone, Androids and all computers. Contact Editor: Iain Croft iain@magswest.com Website: www.autismworldmagazine.com Jessica Kingsley Publishers (JKP) Independent UK based publisher specialising in autism. Website: www.jkp.com Footprint Books Australian publisher and supplier of JKP and other autism books. Website: www.footprint.com.au/browse-autism-books.asp
Autism Aspergers Digest American bi-monthly magazine created to meet the needs of teachers, therapists and family members who face the challenge of autism. Website: www.autismdigest.com
Source Kids Australia's first magazine for parents, carers and professionals creating positive outcomes for children with special needs. Website: www.sourcekids.com.au Children with Disability Australia (CDA) Our national peak body representing children and young people (aged 0-25) with disability. To receive their fantastic Listen Up! magazine in the mail full membership is FREE for young people with disability (18-25 years) and families of children with disability across Australia. Website: www.cda.org.au
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Help-lines __________________________________________________________ Autism Advisory and Support Service (Australia wide) Tel: 1300 222 777 - 24 hour Autism Hotline Headspace Online chat and telephone support at eheadspace Website: www.eheadspace.org.au Carers Advisory Service Tel: 1800 242 636 - This service is available Monday to Friday 9am to 5pm Website: carersqld.asn.au/services/carer-advisory-service Parenting Qld Line Tel: 1300 30 1300 - 7 days a week, between 8am and 10pm. Website: www.parentline.com.au MensLine Australia Tel: 1300 789 978 - 24 hours, 7 days Website: www.mensline.org.au Child safety service centres Tel: 1300 684 062 - 9am to 5pm, Monday to Friday. Outside of usual business hours, the Child Safety After Hours Service Centre: Telephone: (07) 3235 9999 Freecall:1800 177 135 (Queensland only) Website: www.communities.qld.gov.au/childsafety/about-us/contactus/child-safety-service-centres/far-north-queensland-region Kids Helpline Tel: 1800 55 1800 - (free call except from some mobile phones) 24 hours a day, 7 days a week. Online counselling service specifically for young people aged between 5 and 25 years. Website: www.kidshelp.com.au Beyond Blue Tel: 1300 224 636 - Information and referral for depression and anxiety. Website: www.beyondblue.org.au/get-support/get-immediate-support Lifeline Crisis Support Line Tel: 13 11 14 - 24 hours a day, 7 days a week The Family Relationship Advice Line Tel: 1800 050 321 - 8 am to 8 pm, Monday to Friday, and 10 am to 4 pm on Saturday (local time), except national public holidays.
No call is considered trivial!
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Publication of this handbook was proudly supported by Autism World Magazine
and with the help of Jacqui Little and Alison Lyons, resources extraordinaires and Facebook group administrators at Resources for Special Needs - Australia
Our grateful thanks for helping this Autism Parents Handbook reach Queensland families and health and education professionals supporting families affected by autism.
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