Working together for children 2017 Annual Review
Contents 02 03 05 07 09 15 47 59
Chief Executive’s message Our philosophy of care Our history of service Fast facts Highlights of 2017 Patient stories Our supporters Join our team
Head of Orthotics, Sean Hogan with patient Ahmad
Dr Michael Brydon Chief Executive, Sydney Children’s Hospitals Network
Welcome to our 2017 Annual Review As we look back over the year, we are proud of our significant advancements in research, infrastructure, technology and sustainability, all achieved with the aim of enhancing the quality of care we offer and the experience we deliver to our precious patients and their families. We are appreciative of the role our generous sponsors, donors and supporters play in these achievements. Without you, so many of our achievements would not be possible. In this review, we share stories of some of our remarkable patients and their families who, with the support and guidance of dedicated teams at The Children’s Hospital at Westmead, have conquered great obstacles and achieved against the odds. These stories bring to life the difference that your ongoing commitment has made in a child’s life. With your support, we are able to attract the best talent, invest in game-changing research and apply that research to directly change lives, acquire equipment, build infrastructure and develop plans and programs that better support families. The staff included in this review represent every one of the 4,476 people who work across a range of disciplines and services, from cleaning, food and laundry to research, clinical, and allied services, whose passion and dedication drives them to go above and beyond every day. Our staff and volunteers demonstrate not only how much can be achieved when we work as a team, but also highlight the many ways that passionate and dedicated staff bring everything they have to care for sick and injured children.
Thank you for walking this road with us. Together we can do more for sick kids.
Our philosophy of care Our ambition for the future: International leaders in children’s health
Our purpose for the future:
Helping children and young people live their healthiest lives
Elijah with Julie, Administration Assistant in Physiotherapy
Our history of service The Children’s Hospital at Westmead has been caring for children for 137 years.
1878 Fundraising begins
From the beginning we have had the help of generous sponsors, supporters and donors to thank for our progress.
The group petitioned the Premier for a hospital and were told they could have half the money if they raised the rest themselves.
Fundraising began when a group of women from the community identified the need to serve the sick children of Sydney.
1880 The Hospital opens at Glebe The Sydney Hospital for Sick Children was opened, but soon outgrew its 40-bed capacity. 1882 Nursing training begins at the Hospital It was only in 1889, when the Australian Trained Nurses’ Association was established, that formal training was introduced nationally.
1880
1904 The Hospital is renamed The Hospital changes its name to The Royal Alexandra Hospital for Children. The Hospital is still legally known by this name, in addition to The Children’s Hospital at Westmead. 1906 The Hospital moves to Camperdown
2017
The small Glebe buildings are outgrown and the Hospital moves to larger premises at Camperdown.
1919 Volunteering is formalised
1977 Advanced medical imaging arrives
From the earliest years, volunteers played a central role in the Hospital. Their work was formalised with the establishment of a Voluntary Helpers Department. Some of the Hospital’s current dedicated volunteers have been serving for 45 years.
The first CT scanner was installed in the Hospital, the first in an Australian children’s hospital. A new x-ray theatre block was also completed.
In the 1930s, the most common reason for admission to hospital was diphtheria. Other fatal illnesses of that time were pneumonia, gastroenteritis, tuberculosis, typhoid, scarlet fever and whooping cough. Gastroenteritis was the major cause of mortality in infants. 1949 Paediatrics recognised as a speciality A pioneer of specialist health care for children, Sir Lorimer Dods, was appointed Australia’s first Professor of Child Health, and the Australian Paediatric Society was founded. The main lecture theatre at The Children’s Hospital at Westmead carries his name in recognition of his contribution to paediatrics. In the late 1940s, medical students were taught that all children with leukaemia died within six months of diagnosis, and most of those were within the first month. Today, 85 per cent of children survive childhood cancers. We’re working towards a 100 per cent survival rate. 1960 Social Work is named While ‘almoners’ had been assisting families to access medical treatment since 1930, the name change reflected the department’s extended services, recognising the complex impact of childhood illness on families. 1976 Hope for end-stage kidney patients The Nephrology Department establishes itself as the only unit in Australia to use dialysis and transplantation to manage chronic renal failure in children. That year four children had kidney transplants and four more were treated with maintenance dialysis.
1979 First bone marrow transplant Over the next four years the procedure was refined and used successfully on a sevenweek-old baby in 1984. By the late 1980s, transplantation was an established procedure in the Hospital. Each advancement usually required new equipment, more staff, or both. While the Hospital received government assistance for maintenance costs, there was little provision for these new advancements. 1987 First cochlear implant fitted The Children’s Cochlear Implant Centre was established and recognised as one of the first facilities in the world to offer a paediatric cochlear implant program for profoundly deaf children. 1995 The move to Westmead The Hospital moves from Camperdown to Westmead and with around 320 beds, provides a total healing environment for patients and families from all over NSW and beyond. 2005 Research building opened Turning today’s research into tomorrow’s cures, and keeping The Children’s Hospital at Westmead at the forefront of paediatric care, a dedicated research building was opened, funded by donations and government support. 2017 Westmead Redevelopment This year sees significant, future-focused building works, which will result in a new shared hospital building with acute services. From those humble beginnings, and the first 55 patients in 1880, The Children’s Hospital at Westmead now treats more than 80,000 children every year.
7,800
9,600
24,000
books borrowed from the Book Bunker
interactions with Delta Dogs
visits to the Starlight Express Room
$32,777,135
859,482
265,254
2,000
57,676
1,000
received in donations
knitted bears given out by volunteers
outpatient appointments
Emergency Department presentations
Fast facts
sheets laundered
Hospital School registrations
163
81,690 children treated
playgrounds and courtyards
170
41,903
33,374
Clown Doctor rounds
35
departments
x-rays taken
inpatient admissions
49,275
500+
4,476
123
315
jelly pots served
2,200
donated artworks
volunteers
paint colours on the building
staff
beds
SIDS research breakthrough
Funds raised for The Children’s Hospital at Westmead go towards vital research, which translates into potential cures, better treatments and improved outcomes for children. Your donations help us purchase some of the equipment, which enhances our diagnostic, surgical and treatment capacities. It also funds new medicines that are not yet provided by the state, as well as some therapies.
“
Researchers at The Children’s Hospital at Westmead have identified low levels of a certain brain protein that regulates sleep arousal in babies who died from Sudden Infant Death Syndrome (SIDS). The discovery will help pave the way for further research that may one day lead to screening for this risk at birth. Dr Rita Machaalani, Manager of the Sleep Unit, and doctoral student Nicholas Hunt at the University of Sydney, studied 27 babies who died from SIDS and found they had decreased levels of orexin – a neuropeptide that regulates wakefulness and arousal. They suggest lower levels of orexin indicate that the response to tell these babies to wake up was not as strong as in other infants. Unlocking the mystery of how this protein is associated with the ability to wake up in SIDS babies will be the next challenge for researchers. Making SIDS a thing of the past and giving hope for the future so no parent or family will ever have to worry about or suffer through a terrible, unexplained loss of their baby, is our laboratory’s aim. Dr Rita Machaalani Manager of the Sleep Unit
Highlights 2017
“
Many of these significant developments and achievements have been made possible thanks to your support.
Leading the way in newborn care
Surgical waiting times reduced
Nurses in the Grace Centre for Newborn Intensive Care have established a training centre to bring staff in neonatal intensive care units from across the country up to speed in a revolutionary model of care for sick and premature babies.
The Children’s Hospital at Westmead reduced waiting times for patients requiring elective surgery. 100 per cent of patients in the most urgent categories (A and B), and 93 per cent of patients in the less urgent category (C) now recieve their surgery in the timeframe recommended by the surgeon.
Each year, the Grace Centre for Newborn Care provides treatment and care for 600 newborn babies, many requiring surgery in their first few days of life. The Newborn Individualised Developmental Care and Assessment Program (NIDCAP) helps provide support and reduce the stressful effects of the environment and medical procedures. Simple strategies like dimming lights, minimising noise and maximising skin-to-skin contact between parent and baby have been shown to have a remarkable impact on the brain growth and development in sick and premature infants.
This was achieved through several initiatives implemented by the waitlist team. For example, the Collaborative Care initiate in which 130 patients were treated at six participating private hospitals across various specialties including ENT, ophthalmology, plastics, orthopaedics, general and spinal surgeries. Other initiatives included reallocation of vacated sessions; offering of extra lists to surgeons with waitlists issues; and managing PICU surgical bookings.
Clinical Nurse Consultant, Kaye Spence AM, has played an integral role in implementing the NIDCAP model of care, which staff in the Grace Centre for Newborn Care have been using for more than 10 years. The Centre is now establishing itself as the first NIDCAP Training Centre in Australasia, with Nadine Griffiths approved as the first trainer for Australasia.
Kaye Spence Clinical Nurse Consultant, Neonatology The Grace Centre for Newborn Intensive Care
“
“
Having worked at The Children’s Hospital at Westmead for nearly 30 years as a Clinical Nurse Consultant I have seen many changes. The one change that truly motivates me is seeing the synchronicity between babies and their parents when supported by caring nurses. Supporting nurses to gain experience in interpreting the baby’s language is one of the goals of our NIDCAP Training Centre.
Support for young people with eating disorders
Coordinated services make life easier
A partnership between the Sydney Children’s Hospitals Network and the Butterfly Foundation opened the Child and Adolescent Day Program for Eating Disorders at Butterfly House, Crows Nest.
The Kids Guided Personalised Services (GPS) Care Coordination program supported more than 300 children this year with chronic and complex conditions. Providing sustainable care as close to home as possible, whether it is at home, day only or outpatient care, helps reduce the need to stay overnight in hospital and significantly improves the experiences of our patients and their families.
The Network, specifically the Eating Disorders Service, is responsible for the clinical oversight, delivery and management of this multidisciplinary treatment program. The team includes services from clinical psychology, social work, paediatrics, psychiatry, a clinical nurse consultant, dietetics and non-clinical support staff. The day program, which is an Australian-first in-community facility, focuses on the role of the family at the core of the treatment strategy. The day program provides care for patients from around NSW who have not recovered with existing inpatient and outpatient care, and provides clinical consultation, training and support to regional and rural families and clinicians.
Kids GPS families avoided coming to hospital on 560 occasions, saved almost 15,000km in travel and avoided 136 absences from school. “Navigating the maze of the health system and knowing what is available close to home can be a challenge for families of children with chronic and complex conditions. Kids GPS strives to partner with patients, families and care teams to help lessen the burden of chronic and complex conditions on family life, and help children and families spend less time in hospital and more time at home,” says Christie Breen, Network Nurse Manager, Ambulatory Services.
“
I am personally motivated to ensure that we deliver truly patient-centred care, by tailoring our services to benefit children and families and empower them with choices. Many families of children with complex needs describe the health system as being difficult and full of barriers – it is incredibly satisfying when families express joy and thanks when Kids GPS helps to break these barriers down. The goal is that eventually this becomes the norm rather than something parents feel is extraordinary. In leading the team in Kids GPS towards this goal, I hope that we can also influence this change on an organisation-wide level. Christie Breen Network Nurse Manager Ambulatory Services
The Children’s Hospital at Westmead became the first paediatric centre to go live with electronic medication management from the bedside. Wireless internet connection is also enabling clinicians to access medical records electronically (eMR) from the patient bedside, and for the first time in Australia, use a paediatric Electronic Medications Management (eMeds) system while administering complex treatments to oncology patients. The roll-out of the first phase of the Electronic Medications Management (EMM) system is complete. The next stage, for which we are seeking donor support, is the continued roll-out of My Health Memory greatly benefiting patients and their families. This is a key feature of the Network’s MEMORY Strategy, which will also see the implementation of a fully-integrated health record for all children that includes their detailed health history and can be shared with other hospitals, clinicians and the patient’s family.
“
Guest Wi-Fi launched The Children’s Hospital at Westmead now provides free Wi-Fi for patients, families and visitors. In partnership with NSW Health, The Children’s Hospital at Westmead and Sydney Children’s Hospital, Randwick were the first public facilities in the state to have Wi-Fi installed. Guest Wi-Fi enables families to more easily communicate, be entertained and attend to work and school while in the hospital.
Redesign of surgical waiting bays After consultation with families, the waiting bay in theatres at The Children’s Hospital at Westmead has been redesigned. Patients and families said they wanted more chairs, distractions, someone to reassure the child and better information about where to go. With the aim of improving the patient experience, the team got to work creating a forest wall mural, adding signage, additional seating and developing a new information brochure for families about surgery. Volunteers were enlisted to support families during this potentially stressful time. “All perioperative staff actively participated in this project to ensure that the preoperative environment for the children was very calming and well supported by our fantastic volunteers,” says Colleen Hamilton, Nurse Manager, Perioperative Services. The most rewarding part was that we listened to the patients and families, and then implemented the recommendations put forward by them to improve their perioperative journey. The front patient holding bay is an area where children and their families are often anxious and to provide an environment that reduces their anxiety is extremely rewarding and a credit to all the staff working in the operating suite. Colleen Hamilton Nurse Manager Perioperative Services
“
MEMORY strategy
‘Heart and Minds’ research leads the world
New equipment A new CT scanner is helping thousands of patients at The Children’s Hospital at Westmead.
Associate Professor Nadine Kasparian, who leads the Psychology Clinical Service and Research Program at the Heart Centre for Children, was awarded a prestigious National Heart Foundation of Australia Future Leader Fellowship (2017-2020).
The new technology enables safer diagnostic and medical care for children by reducing radiation exposure by 60 per cent. It also has the ability to deliver quicker and more accurate scans and 3D images of the body.
Her Hearts and Mind program combines medical psychology and developmental neurobiology research with clinical care to improve the health and wellbeing of our young patients and support their families from the time of diagnosis through all stages of treatment and beyond. One example is Cherish – a world-first study exploring the physical, emotional and social changes parents experience after their baby’s diagnosis, and enriching our understanding of the early life experiences of babies with heart disease.
“
Our vision is to transform congenital heart disease to ‘congenital heart health’, and I feel deeply privileged to work with our young patients and their families at the Heart Centre for Children to achieve this.
This year also saw the arrival of a new neurosurgical microscope, which enables enhanced brain surgery as well as two new mobile x-ray machines. These machines deliver resolution equivalent to the newest x-ray, with images available for the department to view immediately at the bedside.
“
Nadine Kasparian A/Professor (Medicine), The University of NSW and Head (Psychology) of the Heart Centre for Children
The upgrade to the Siemen’s SOMATOM Force CT scanner, worth $2 million, was a gift from major benefactor, Sargents Pies Charitable Foundation. The Foundation has given more than $14.7 million since 1998, helping to give sick children access to the highest quality medical equipment and paediatric care.
Bear Cottage redevelopment Bear Cottage has undergone major renovations in the last year, which ensures we continue to provide world class palliative care into the future. The renovations were the first major works to be undertaken since Bear Cottage opened in 2001. The community rallied behind the initial build, to create a beach house-type facility to provide respite and palliative care to children, and raised $10 million to construct Bear Cottage.
This year we celebrated several special milestones: • 50 years of service for Senior Staff Specialist Associate Professor Henry Kilham • 45 years of volunteering for Joan Wood • 30 years of the Ward Grandparent Program • 10 years of PAEDS (Paediatric Active Enhanced Surveillance)
“In 2016/17 a new roof was built along with improvements to the air-conditioning, lighting and general maintenance. A new meeting room and extension to our office area has added valuable space for a service that continues to expand. A fresh coat of paint complemented the enhancements ensuring Bear Cottage continues to be the home-away-from-home for many families caring for children with life-limiting illnesses,” says Narelle Martin, Nursing Unit Manager. My life has been enriched by working at Bear Cottage. The resilience the children and their families show in facing incredibly difficult journeys is inspirational.
Narelle Martin Nursing Unit Manager at Bear Cottage
17
I feel privileged to be a part of their journey and to be able to make a small difference to their lives.
20
Mahatma Gandhi said ‘the best way to find yourself is to lose yourself in the service of others’.
“
“
Service milestones
We’d love you to meet some of our patients‌ Each child has faced extraordinary challenges in their young lives, and shown courage and strength beyond their years. Each story profiles not only a remarkable family, but also dedicated Hospital staff members who go above and beyond every day to make the outcomes and experiences as positive as possible for children and families in their care. Along with the passion and commitment they bring to their roles, your support enables our staff to do their best work. It’s your donations that take our research forward, purchase necessary equipment and provide exceptional care to help children live their healthiest lives.
18 Brooke’s story
‘A unique surgery saved my life’
24 Ahmad’s story
‘Standing tall thanks to my team’
28 Elijah’s story
‘Driven and determined to achieve my goals’
32 Alexander’s story
‘The power of positive thinking’
36 Chelsea’s story
‘Fighting for ‘Team C’ together’
A unique surgery saved my life
Brooke, age 10
Dr Albert Shun
Surgeon Dr Albert Shun and patient Brooke
As part of a school project Brooke nominated Dr Albert Shun for Australian of the Year. Her reasons for choosing him were simple. Among them, she mentioned the more than 300 liver and 100 kidney transplants he has done over the last 29 years and the recognition he receives for his outstanding work (including the Order of Australia in 2007). She says, “He is a very kind, gentle and happy person, who is always willing to spend time with his patients.” She talks about how he thinks outside the square to save people’s lives. But the reason that stands out most is more personal. “Dr Shun has a very special place in my heart because on 16 December 2006, I was one of his patients and he saved my life. He performed lifesaving surgery on my liver to allow it to function properly so I can be the person I am today.” Today she is blessed with a perfectly normal life filled with school, friendship, laughter, sport and play. Brooke was born with jaundice, from a rare combination of biliary atresia with a choledochal cyst. She was diagnosed at eight weeks of age when liver function tests were abnormal. “With Brooke’s diagnosis, my husband Mark and I felt like our world was turned upside down. This was our baby girl who had such a rare and incurable disease. We decided very early on that this would keep us strong and united as a family so we could get through this terrible disease together,” says her mum Melissa. The early days were difficult for everyone in the family. “She had recurring episodes of cholangitis (an infection of the bile ducts) and was hospitalised for seven to 10 days at a time, several times a year.
As time went on, the cholangitis got worse and more difficult to treat,” says Melissa. When she was eight weeks old, her abnormal bile ducts and gallbladder were removed and the bile duct stump joined back onto her duodenum. The operation was successful initially but she continued to struggle with recurrent infections or cholangitis. Brooke was admitted to hospital about six times a year for the last few years. “We needed to devise another procedure in order to create a permanent way to drain the bile and prevent recurrence of cholangitis,” says Dr Albert Shun, Head of Transplant Surgery. This is what lead to his pioneering a unique solution for Brooke’s problem. “When we went in, we saw there was a lot of scarring from bile trapped inside the liver, which was contributing to impaired bile drainage. We had previously joined the upper part of the bile duct to the duodenum, and this time we revised the procedure by using a piece of bowel lower down to form an independent loop to drain the bile from the liver.” Biliary atresia is the most common liver disease that requires transplantation. By creating this drainage system, Albert and his team were able to prevent further bile duct infections and negate the need for a liver transplant. For Brooke, while she still may require further treatment in the future, this surgery turned her life around. “Since the surgery Brooke has been feeling great,” says Melissa. It’s not easy choosing a new treatment, without a track record of success or proven benefits. “We all went into this decision with a positive approach, but not without stress and uncertainty, but deep down we knew we needed to try something to benefit Brooke and give her every chance possible to live happily and as normal as possible. Brooke’s positivity really made Mark and I very proud.
With Brooke’s unusual condition, it was particularly important that there was a good rapport between the surgical team and family. Having a relationship of trust and openness helped the family feel supported and empowered to make good decisions. “This area is not black and white, and so it’s imperative that parents are on board and involved with an unusual procedure. It’s important for parents to know you have their child’s best interests at heart, as we need their understanding and support,” says Albert. It’s his job, but it is so much more than a job for Albert. Having served as a surgeon at The Children’s Hospital at Westmead for more than 30 years, he has developed enduring relationships with many of his patients, like Brooke and her family.
“Brooke says that Dr Shun is her lifesaver as he gave her the chance to be her again.” “Mark and I feel very lucky to have met Dr Shun and that he has given our daughter another chance at life and to live as a happy young girl. My daughter always looks out for him in hospital as he has been a big part of her life. Many people at Westmead have impacted our lives in many different ways. It hadn’t always been easy dealing with the system of going to hospital but we know that the people who work there impact the lives of so many.” “Brooke has a lot of kind things to say about ‘her’ nurses in the Clancy Ward. We are grateful to paediatric gastroenterologist, Dr Michael Stormon, and his team who have looked after Brooke with great attention over the years, and the many more that have treated and cared for Brooke,” says Melissa. “We regard all those who have cared for Brooke, and seen us at our most vulnerable, as part of our family.”
Brooke with her mum Melissa
Standing tall thanks to my team
Ahmad, age 10
Head of Orthotics, Sean Hogan with patient Ahmad
Ahmad lives life at full speed. He is funny, friendly and social, and always has a smile on his face. Born with spina bifida, he has been part of the Hospital family since birth. “I met Ahmad in the Neonatal Intensive Care Unit,” says physiotherapist, Suzie Taylor. Ahmad was born with congenital foot deformities that required casting soon after birth to correct them. He had to have his casts changed every week for the first 12 weeks. “I got to know the family pretty well,” she says with obvious affection for Ahmad. “In that first year, he had surgery, splints, developmental assessments, and ongoing gross motor therapy. As a toddler, Suzie taught Ahmad how to move on the floor, consistently working to improve his gross motor skills – even though he fought with her constantly. “He cried, he resisted, he threw tantrums. To say he wasn’t keen on therapy would be an understatement!” says Suzie. When Ahmad started showing interest in walking, a little before his second birthday, the family was introduced to Sean Hogan, Head of Orthotics, and his team. They were also met with resistance from Ahmad. “He hated the casting and measuring required to build a reciprocating gait orthosis (RGO), which enabled him to stand vertically and learn to walk, and in fact any kind of activity that involved being touched,” says mum, Jamal. Nevertheless, Sean and Suzie persisted and together they helped Ahmad learn to walk efficiently using his RGO. As he grew up and began to understand the process he began working with, rather than against, his team. Due to his growth, Ahmad needs a new RGO every year to 18 months. Sean sees him much more regularly though. He has visited the Orthotics Department about 46 times in the last eight years.
“Ahmad is a robust walker, so he’s always in for repairs,” says Sean. His RGO (previously camouflage printed, now spiderwebs) wears all sorts of battle scars – scratches on the stainless steel rods and aluminium joints, and regularly sports snapped rivets and battered screws. “Which is great,” says Sean. “He’s maximizing the mobility that the RGO offers. He’s a typical boy” Ahmad’s RGO is in the department for repairs every few months. “I make sure to beef it up with extra-strong welding and adult hip joints so it can try to keep up with Ahmad!” laughs Sean. When it’s in for repairs, his mother asks only: how soon can I get it back. “His RGO means everything to Ahmad - and everyone around him,” says Jamal. “It’s essential in his everyday life. Ahmad spends all day in the RGO, even when he is at school. He performs every task while it is on and it hasn’t limited him from doing anything.” The Orthotics Department looks something between a workshop and a place of magic and their work makes a profound difference to children’s daily lives. It takes about 25 hours of toil to make each RGO from casting to the finished polypropylene article. The department sees about 5,500 occasions of service per year, and this would equate to about 3,000 individual orthoses each year, including up to 14 RGOs. Sean, who began his career in engineering, has been at The Children’s Hospital at Westmead for 30 years. “I wouldn’t want to be anywhere else,” he says. “It’s a technical and clinical job, this combination makes the work unique and interesting. It is very rewarding and gratifying to see the benefits orthotics can bring to kids with spina bifida, scoliosis and so many other conditions. Being allowed to be part of their growth and development is amazing.” Both Suzie and Sean count helping Ahmad become an upright, mobile young man as one of their highlights.
“Suzie motivates Ahmad every day to do his best and teaches him to stay positive. In the beginning, Ahmad found it difficult to listen and keep up with all the tasks she assigned him. Today, Ahmad asks for more tasks and ‘homework’ activities. He stands taller and walks much better than he did a few months ago let alone a few years ago,” says Jamal. Using an RGO, which has become an extension of himself, negates the need for a wheelchair, and allows Ahmad to be independent and mobile, and has a host of other physical, emotional and psychological benefits. Then there are the less tangible benefits too, of being able to interact at eye-level with his peers, the independence movement gives him and the opportunity to exercise choices. There’s no doubt that this all contributes to a fuller life. Suzie saw Ahmad recently during a visit to the local public school he attends. “Ahmad was standing in a circle playing handball with his friends. That is unheard of for someone with his level of paraplegia. It’s astonishing how little he needs a wheelchair. I have seen him really blossom.”
“He has enormously exceeded our expectations for what he can do.” There are only two specialist paediatric spina bifida services in NSW that offer mobility options in high level braces such as RGOs, and these are available at The Children’s Hospital at Westmead and Sydney Children’s Hospital, Randwick. As a result, Suzie is often asked to speak at conferences and provide education on spina bifida and mobility. Ahmad is such a fantastic example of what can be achieved with a team approach. “When I ask if I can talk about him at the events, Ahmad is always keen and asks for feedback on how the audience responded. He is so proud that he can help other people learn about this condition. He is a truly inspiring young man.”
Ahmad with his physiotherapist, Suzie
Driven and determined to achieve my goals
Elijah, age 16
Elijah in the gym
Elijah was airlifted to The Children’s Hospital at Westmead with multiple injuries including a severe traumatic brain injury after a devastating skydiving accident in Goulburn in November 2015. Elijah spent six and a half weeks in Paediatric Intensive Care Unit and around six months in the Commercial Travellers Ward before moving to Ronald McDonald House, where he continued his rehabilitation journey on the outpatient Kids Rehab Day Program for another five months. While using the gym for physical therapy at The Children’s Hospital at Westmead, Elijah met Administration Assistant in Physiotherapy, Julie Newman. “At that time, he could not talk or eat or focus on anyone. He was very thin and he had a tracheostomy to open his restricted airway to enable breathing. I saw him and remembered my own son in exactly the same situation. We clicked straight away,” says Julie. Julie and Elijah have developed a lasting relationship based on deep understanding, mutual respect and humour. “As Elijah came to the department every day, mostly twice a day, for physiotherapy and occupational therapy, I gradually began to see an improvement, so I made sure I spoke to him each time. I also let the family know I had been in the same situation so they did not feel alone,” says Julie. Once Elijah started to find his voice he adopted terms of endearment for the diminutive Julie. “I would often see him in the corridors on his walking frame with the physios and he would
laugh; he has a great sense of humour and is quite funny. He calls me Smally, Shorty or Smurf, and I call him Stretch.” He brought so much passion and joy into his sessions and Elijah soon made friends far and wide, becoming well known for his sunshiny disposition, in Kids Rehab and around the Hospital. When asked recently what his best memory of being in rehab was, his response was ‘probably going to the gym and seeing Julie in the mornings’. The gym was a natural place for Elijah to find himself, as someone who loves sport. Previously a talented long-distance runner who trained at least five days a week, a basketball player and blue belt in jujitsu, his love of sport is perhaps only eclipsed by his love of sports shoes. “Elijah has an epic sneaker collection and he has always wanted to own a sneaker shop,” says his mum, Robin. On his journey at The Children’s Hospital at Westmead, Elijah received service and care from around 100 different medical, nursing, allied health, administration and support staff from many different teams. This includes Kids Rehab, Neurosurgery, Endocrinology, Orthopaedic Ward teams and outpatient staff, the Hospital School teachers, Domestic Services and Volunteers. “Everyone has a part to play, and no matter how small, it’s all an important part of the bigger picture,” says Jan Hancock, Acting Neuro Rehab Manager in Kids Rehab. “It has been a privilege to be a part of Elijah and his family’s journey through The Children’s Hospital at Westmead and to see how far Elijah has come. He is an inspirational young man.” “Elijah never complained about doing anything. He always did what was asked of him by all the therapists. He is such an example of what a human being can achieve against all odds,” says Julie.
A witty and charismatic character, Elijah has a wonderful group of friends who have been incredibly supportive through his journey, including his best friend, Molly, who has been by his side throughout. It is perhaps the remarkable positivity of this family, their extraordinary dedication to healing and the loving community that surrounds and supports them that has fueled Elijah’s progress. Elijah has some big dreams and the work ethic to back them up. True to his love of sports, Elijah desperately wants to run again and he very much wants to be a Paralympian (as well as an abled bodied Olympian). Elijah currently participates in an intensive rehab program in Canberra where he does three hours per day, three days a week. In addition to working hard at rehab, he attends school and trains with a recumbent stationary bike at home. “By the evening he’s a pretty tired young man,” says Robin.
“Elijah is and has always been incredibly driven to set goals and achieve them.” “Back in 2013, Elijah set himself a challenge to run a minimum of a mile (1.6 km) every single day for a year. It was long after the year was up and the goal was completed that Elijah’s running streak came to an end when he tore a hamstring racing his cousin,” says Robin. Elijah ran daily for an incredible, uninterrupted 426 days! Setting goals and working towards them with determination is a trait Robin attributes to Elijah’s father, Jose. After the accident, Jose committed to running a minimum of 2km every day until Elijah was able to walk independently. He had no idea then how long this would go for but he didn’t care. So far Jose has run 663 days in a row and has no plans to stop.
Elijah with Julie, Administration Assistant in Physiotherapy
The power of positive thinking
CNC Robyn Shoemark
Alexander, age 2
Dr Julie Curtin
Alex with Clinical Nurse Consultant, Robyn
Alexander is very adventurous and determined. “From a very early age Alex loved to climb and was often found on top of the table and chairs and other places he shouldn’t be,” says mum Alicia. Alex has two older brothers whom he adores. He loves playing soccer with them and doesn’t understand why he can’t always do the things they do. The reason Alex can’t always run with the big boys is that he is learning to manage haemophilia – a bleeding disorder in which there is insufficient clotting factor in the blood and internal bleeding can occur at any time. Alicia and her husband, Rob, discovered that Alex has haemophilia when he was six days old. “After he received routine injections at birth, he developed haematomas in his legs. A few days later he was jaundiced and having phototherapy in the Hospital’s special care nursery,” says Alicia. “When the nurses tested his bilirubin levels, the pin prick in his heel continued to ooze blood.” A blood test confirmed Alex had severe haemophilia A. “The diagnosis was a complete shock to us. Having had two healthy boys, learning the news that our little man had this genetic disorder was confronting. Haematology Department Head, Dr Julie Curtin and Clinical Nurse Consultant, Robyn Shoemark spent considerable time talking with us to educate us on haemophilia and how this could be managed throughout Alex’s life. While we are on this journey to learn how to manage haemophilia as a family it is a great comfort to us that we have the best medical team looking after him (and us too)!” says Alicia.
Alex has visited the haemophilia treatment centre at The Children’s Hospital at Westmead, the Kids Factor Zone or KFZ, regularly since birth.
doing is the very best thing for Alex. They inspire us and it is so rewarding to see these children grow up with normal joints and doing all the things other children do.”
“As parents, you want to bubblewrap your children, especially children with haemophilia, to keep them safe. As Alex started moving we became increasingly worried about whether he was going to have a bleed,” says Alicia.
“Haemophilia is forever, but with regular treatment to prevent bleeding, people with haemophilia can live full lives and achieve their goals and dreams,” says Julie.
Haemophilia is a relatively rare disorder affecting about 25,000 people in Australia. “People with haemophilia lack one of the blood clotting factors (factor VIII or factor IX) essential for blood to clot normally. These people are at risk of bleeding. While this is sometimes superficial, the real danger for people with haemophilia is internal bleeding such as into joints or muscles, which over time can lead to severe joint damage and arthritis,” says Dr Julie Curtin. After two injuries, a month apart, the team decided to start regular prophylaxis treatment to prevent Alex from bleeding. Alex was enrolled in a clinical trial which tests a longer-lasting clotting factor for kids under 12 years old. This medication is required only twice a week, instead of three times. While that may not sound like a big difference, it means 52 fewer needles for Alex per year. The options for treatment are either a surgicallyinserted port or using a small butterfly needle inserted directly into the vein. With Julie and Robyn’s guidance and support, Rob has learned to administer the treatment into Alex’s veins at home, saving the family travelling to the Hospital twice every week, and keeping family life as normal as possible. “For Rob and Alicia taking on the job of administering the factor to Alex from such a young age is a courageous and demanding decision which we fully supported. It gives us great joy to see their success and knowing what they are
“Alex is the youngest patient who is successfully treated at home. We were all able to work together for the best outcome.” “We now have reassurance that his clotting factor levels are higher and he therefore has more protection against those falls that cause internal bleeding,” says Alicia. Alex’s participation in the trial means the team is able to demonstrate that the product is safe and effective. Hopefully this treatment will be available to all patients with haemophilia in the not-too-distant future. Robyn has been the haemophilia CNC for 10 years. “Even though I do the treatment, which involves needles, the kids still like to come to the Kids Factor Zone. We play games, sing songs and blow lots of bubbles. The KFZ feels like a second home for some patients when they visit here as often as they do. The kids all know where the iPad is, which toys they want to play with or which show they want to watch on the TV. Alex always comes in with a smile and leaves with that same cheeky grin. If I’m lucky, he even blows me a kiss!” says Robyn. In the future, Alex will be able to do his own treatment, with Robyn’s guidance. “I will help teach him to be confident and independent. That thought makes it all worthwhile and puts a very big smile on my face,” she says.
Fighting for ‘Team C’ together Chelsea, age 5
Chelsea with Stef, Assistant in Nursing
Just before Christmas in 2015 Chelsea’s mum, Barbara, brought her to the Emergency Department after a night of aches and pains. “Chelsea had been having spasmodic pains on and off for about seven weeks prior to this, but because they never lasted long and never affected the same part of her body, nothing jumped out at us that anything was wrong with her,” says Barbara. “I absolutely thought the doctors would laugh at me and tell me she had growing pains.” But that wasn’t to be. A few hours later Chelsea was diagnosed with acute lymphoblastic leukaemia (ALL); and the next day she was diagnosed with being Philadelphia Positive, a rare chromosomal association with that cancer, as well. “It turned out she had many other attributes of ALL, such as anaemia, swollen lymph glands and bruising. Our worlds were rocked by the devastating news,” says Barbara. During the year that followed, Chelsea and her family spent 350 nights in hospital. Her treatment has included; 30 clinic visits, 17 general anaesthetics, nine lumbar punctures, eight bone marrow tests, six radiation sessions, 55 blood transfusions, 85 platelet transfusions, 273 blood tests, 19 x-rays, 23 scans/ MRIs, 18 physiotherapy sessions, 55 play therapist visits, four nights in intensive care, as well as a host of infusions and antibiotics and countless vomit bags and bed pans. “The time our family has been separated has been extremely hard. The activities we have all missed out on together, the feeling that part of our daughter’s childhood has been taken away from her, it’s really hard to deal with. Watching her in so
much pain and feeling helpless is so difficult as a parent,” says Barbara. The love and support from those around them has kept the family going. “Family, friends, school, the local community, our physical culture club, our employers and work colleagues. So many people support us and this is truly overwhelming!” says Barbara.
“You simply have no choice. We cannot give up and so we fight, every day with everything we have. We do it so Chelsea can grow up and have a wonderful life.” “People have called us incredible and amazing, but we aren’t, we just get up and get through it,” says Chelsea’s dad, Brendan. “The ‘amazing’, ‘incredible’ people are the ones who turned up from day one to help us. From the doctors and social workers who have been with us the whole way, to the incredible nurses from ED, the wards, the oncology clinic and our home away from home, Camperdown Ward, where we have been treated like family members. All the staff, volunteers, the ward grannies, the Clown Doctors, Starlight Express Room, Ronald McDonald House and all those we have been involved with at the Hospital just make this whole thing work.” Despite facing extraordinary challenges, Chelsea is all smiles. She’s a smart, cheeky, loving, cuddly little girl who adores her sister, 11-year-old Chloe, her dogs, dancing, art and Lego. Usually intensive chemotherapy is done over six months, but Chelsea’s treatment lasted 18 months as she was so ill from complications. In the end the protocol was abandoned and replaced with an oral chemotherapy alternative.
She is now almost 20 months into her treatment and feeling her best since diagnosis. Her hair has started growing back, she’s been able to attend school more often, and generally feels better on a daily basis. She still attends clinic once a week to flush out her central line, have blood tests, adjust chemotherapy levels and medications, and have any necessary blood or platelet transfusions. There’s only one person who’s allowed to change Chelsea’s central line dressings, Assistant in Nursing in the Oncology Treatment Centre, Estefania Giraldo. “Stef is one of many amazing nurses on our medical team that has built a great rapport with Chelsea. She has taken the time to get to know her and is now more like a friend than a nurse. She has a calming influence over her and is fabulous at what she does,” says Barbara. “Initially Chelsea found the dressings painful when changed as the alcohol that is used to clean the site of the central line burned,” says Stef, who offered an alternative that didn’t hurt. Now Stef is the only one who can do the job. Chelsea will wait for Stef to be available, and makes sure to tell Stef how she likes it done. “I really enjoy working with Chelsea and kids like her because they always have a smile on their face no matter what. I also put myself in the shoes of our families and think this is how I would like my Mum or my child to be treated. It is very rewarding to help families, even if it is with small gestures, because the journey in the treatment for cancer, especially for a child, is not an easy one. I know that every small act is appreciated by the child and the whole family,” says Stef. “The medical team at Westmead are second to none. Our ‘Team C’, have become our family and have had to share some pretty dire moments with us. They want her to be well again and are doing everything in their power to make that a reality,” says Barbara.
Our supporters Alex with Mum, Alicia
Thank you to all our generous supporters who have helped The Children’s Hospital at Westmead and Bear Cottage in so many ways over the last financial year. Our supporters come from all walks of life and from every sphere of the community and we are truly grateful for your commitment. On behalf of the Board, staff, children and their families, thank you for your care and generosity.
Congratulations to the 2016 – 2017 Inaugurated Founders
Congratulations to the 2016 – 2017 Inaugurated Benefactors
Cerebral Palsy Alliance Research Foundation Estate Late Olga Lillian Bayley Estate Late Olga Pennington NRMA Insurance and Product Underwriting Owen Miller Foundation PKU Association of NSW Inc.
65k for 65 Roses AHG NSW Pty Ltd Balance Foundation Bear Cottage Christmas Wrapping Station Gerry and Suzanne Commerford Estate Late Angela Anne Stevens Estate Late Betty Dobrianskyj Estate Late Ivy Mary Walker Estate Late Joan Evans Estate Late Josephine Agnes Virgona Estate Late Joyce Esme Steenbhom Estate Late Kenneth Reginald Ellis Estate Late Robert Clarence Cattlin Estate Late Rupert George Masters Estate Late Vera Clarke Event Hospitality & Entertainment Limited Hyundai Help for Kids Intrepid Travelling Troupe J.P. Morgan Australia Maple-Brown Family Foundation Bill and Edna Marinic Morgan Stanley Australia Limited William F Noble & Joyce E Sproat Malcolm & Claudia Stephens The Children’s Help Foundation Westfield Warringah Mall Westpac Banking Corporation
Thank you to our new and continued supporters who have generously donated in 2016 – 2017
Sir Charles Clubbe KBE Awardees Sargents Pies Charitable Foundation The Kids’ Cancer Project Woolworths Supermarkets
Founders
Benefactors
Robert Albert AO Amway Australia Pty Ltd Bear Affair Committee Bridgestar Pty Ltd CHW – Volunteers Commercial Travellers Cot Fund Cornucopia Committee Inc Costco Wholesale Australia Pty Ltd DOOLEYS Lidcombe Catholic Club Helen Economous The Late J O Fairfax AC Fight Cancer Foundation Fire and Rescue NSW Grace Gala Committee Humpty Dumpty Foundation Inghams Enterprises Pty Ltd Jardine Lloyd Thompson Pty Ltd John & Lois Turk Charitable Gift Kids With Cancer Foundation Manildra Group Perpetual Trustee Company Limited RedKite Sir Robert & Lady Mollie Askin Charities Trust Sporting Chance Cancer Foundation Starlight Children’s Foundation Sydney Trains The George Gregan Foundation The Macintosh Foundation Variety – The Children’s Charity
4 Tracks 4 Kids 400 in 4 Charity Ride ACCO Australia Allergan Australia Amway One by One Foundation ANZ Stadium B. Braun Australia Pty Ltd BlueScope Steel Limited Bob (Tug) Wilson’s Walk for Kids with Cancer Borgnis Street Residents Camp Quality Limited Caring for Kids - Bankstown Group Coca-Cola Amatil (Aust) Pty Ltd ConnecTeD Foundation Incorporated Dell Australia Pty Ltd Dunn Family Trust Fund Endeavour Energy Australia Era Polymers Pty Ltd Everyday Hero Fire and Rescue NSW – Katoomba Matthias Fuchs George & Janet Parker Memorial Trust (EVOLHOPE) James Graham AM & Helen Graham Gresham Partners Limited H & R Israel Fund Howards Storage World
ICAP Australia Pty Ltd Insurance Australia Group J & G Bedwell Endowment K & G Gluck Trust Kapstream Capital Liangrove Foundation Pty Ltd Lowy Foundation Pty Ltd Macquarie Group Foundation Limited McGrath Mazda Liverpool Mirvac Mirvac Homes Pty Ltd Newman’s Own Foundation Fund NRMA Motoring & Services NSW Rural Fire Service Ottomin Foundation Robert & Alexandra Priestley R & A Family Holdings Pty Ltd Save Our Sons Scholastic Australia Shipping Industry Golf Challenge Sydney Invitational The Freedman Foundation The Humour Foundation The Manildra Foundation The Profield Foundation The Shaw Foundation Tony McCullough Foundation Trust Toys R Us (Australia) Pty Ltd Unilever Australia Trading Ltd Western Earthmoving Pty Ltd Whites Group Pty Ltd Woodhead Family Benefaction Zipper Tickers
Major Supporters Individuals and Families Thank you once again to everyone for your continued support of The Children’s Hospital at Westmead and Bear Cottage. Space only allows a limited listing of supporters who have given.
Sarah Abela Anthony Aboud Simon Adam David Adams Adamsas Family Lenore Adamson Catherine Agius Michael Ahrens Ghazi Ali Constantina Alifakiotis Amelia Alispahic Felicity Allen David & Janine Allman Bob & Elaine Allo Mark Altus Gloria Amedee Jan Amery David Anderson The Late Graham Anderson Marinos Angelodemou Adam Angus Donald Anstey Catherine Anthony Valerie Appleroth Takako Arain George Armstead R Ashby Mohammad & Caitlin Ashrafinia Marie Astridge Wally & Jody Atallah Robert Attanasio Cindy Attanasio J L McDonald & R J Austin Julie Au-Yeung Serdar Avsar Henry Aw
Ruth Ayling Peter Baines Anthony Bakhos Carl & Nicole Baldry Christopher Ball Cynthia Banham Peter Barclay E Barker Stephen Barnett John Barwick Ken Basha Vince Battaglia Trent Baxter Brianna Baxter Ilknur Bayari Ronda Bayssari Lauren Begany Michelle Behar Argeo Beletich K Bell Max Benjamin Hertha Berger Alexander Berlee Michael Berry Alhad Bhalerao Ernest Bickford Vesna Bilic Charles Blackburn Stephen Blackler Dena Blackman Marcus Blackmore David Blom Alison Bloomfield Philip Blundell Craig Bolton Carlo Bongarzoni Grace Boole Serve & Helen Bordignon Vincent Bosco Robert Botros Ian Boydell Elias Boys Sinead Brady Frances Brenchley Colleen Briody Michael Broe Carol Brooks Stephen Brooks
Jenny Brown Maxwell & Annie Brown Norman Brunsdon Michael Bryce Peter Budd Richard & Susan Bunting Clare Burrows E Butler M Cahill Ian Cairns Gary & Judy Cairns Dennis Callaghan Tom & Leighonie Callan Ron Callus Daniel Caltabiano Luigi Caltabiano Kerri Cameron John Cameron Peter Campbell Min Campenhout Clelia Cantarella Joanna Capon OAM Nicholas Carle Malcolm Carter Peter Catalogna Claire Cehner Richard Chadwick Barry Chambers Connie Chan Dylan Chan Justin & Isabel Chan Michael Chant William & Lily Chen Ping-Huang Chen Ashish Chhabra Luis Chiaverano William Chiu Beverley Chivers Saejin Choi Fang Chu Mabel Chua Peter Chun Yi Chung Sarah Churchill Erin Claire A M Clark Patrick Clark Ross Clark Jim & Angela Clark
Deirdre Clarke Lisa Clay M Clift John Cloney Bernard Cohen Patricia Coleman David Colmer B Conybeare Stephen Cook Sash Corbeski Timothy Cormack Stuart Couchman Darryl & Ann Courtney-O’Connor Marnie Coventon Eden Cowdery Chris Cowell Simon Cox Karen Crawley Louis & Frances Cremona Trevor Croker Adrian Cudrig Leonard Cunningham Alan & Suzanne Curgenven Wayne Darcy Michael Darling Sabyasachi Dash Craig Davies Scarlett Dawson Keith De Jong Michael de Saxe Dunstan De Souza Eddy & Valerie DeMarco X Demosthenous Phil Dempsey Steve Dempsey Baljinder Kaur Dhariwal Antonio Di Dio Charlotte Di Mascio & Friends Remy & Asya Di Ponio Peter Dickinson Robbie Dinich Harry Dixon SC Gavin Doak Alan Docherty Rob Docker Peg Dodd David & Kellie Donohue Michael Donovan Stephanie Dorrian
David & Elizabeth Dossetor Anthony Drew Saskia Driscoll Yoram Drutman Craig & Kylie Du Rieu Travers Duncan Colin Dunleavey Sarah Dunmore Georgia Dunn Andrew Dunn Beverley Dunn Natalie Duns Jonathan Egan Michael Egan Matthew & Sonia Eggins-Allman Gabriel & Nadia Elias Tracey Elkerton Hazel Elsley K Emery Anaheeta Engineer Elizabeth Ewen Melissa Wong Experian Sally Faerber Lebol Fajloun Family of Hayden Cho John Fanning David Farrugia David Fenlon Stephen Ferguson Darin Ferguson Kate Finch Steve & Amy Firth Glenda Fleming Steve Fletcher Toni Flynn Grant Forster Isabella Forte Gavin Fox-Smith John Frakes David & Ines Frearson Lindsay Freeman Karl & Olivia Fretwell Vivienne Fries Richard Fry Jeffrey A Fuhrman Rene Fulko Lim Susan Fuller Ernest Fung Dominic Fussell
Chris Gabriel David & Gillian Gale Paul & Mary Galea Tom Galletta Aiden Galvin Dharini Ganesan Raju Selliah Ganeswaran Rodrigo Garcia John Gaskell Dean Gathercole Mal Gay Jade Gee Andrew Geoghegan Chady Georges Mario & Eleni Gerassis John Gertrude Joseph Giandomenico Richard & Elizabeth Giannone Parvinder Gill Louisa Glindermann Elaine Gock-Young Soon Goh Oscar Gonzales Erin Goodsell Mira Gorgioski B & T Gorman Geoffrey Goundrie Gary Goundrie Shane Govender Rahul Goyal Sanjeev Goyal Megan Grace Neville Grace Graf Family Cheryl Grant Michael & Carolyn Gray Richard Gray Jessica Graziano Joe & Carmen Grech David Greco John Gregory Scott Griffin D J Griffiths P Grigg John Grigg Carlie Griggs Mark Gross Krisoula Grozos H Gunasekera
Devina Gupta Matthew Gwynne David & Mai Ha Aju Hadiwijaya Utz Hahn Tyson Hain Nina Hall Hall Family Roger Hallaran David Halliday Warren Halloran AM John Hamilton Lorna Hamilton Mark Hancock Peter Handel Susana Hands Deirdre Hanley Joanne Hannay Patricia Hardy Adrian Hargreaves Stephen Harris Nick Harris Alan Harris Catherine Harris David Harris Tristan & Pepper Harris Keith Harrison Michelle Harvey Simone Haslinger Elizabeth Hassell Bassan Hawchar Scott Hawker Jacquie Hawthorne Jean Hay Jayson & Beverley Haydon Greg Hayes Frederick & Rhonda Haynes Simon & Fiona Hellams Simon Henderson Luke Hepworth Ben & Margherita Hershman Michelle Higgins Stephen Hing Theo Hiotis Janice Hiskett-Jones Steve Hitchman Gy Ho Yoon Mei Ho Rob & Roslyn Hodgkins
Luke Hodgson Phoebe Hodgson John & Sue Hogan Frank Holden Malcolm & Sonja Holden Guy Holland-Bosworth Darren Holley Sally Holliday J Honan Greg Hook Jessica Hore Catherine Horne Ankine Horvath Mark Hourigan Mark Howard Kenneth & Isobelle Howells James Howson Hsiu-Feng Hsieh Josef Huber Brendan Hughes Richard Hughes Ryn Hughes Lincoln Hunt Ian Huntley Lee Hutchison Campbell Hyde Wendy Hyett Robert (Bob) Ingham OA Yen Bird Invita Muhammad Iqbal Cecil Isaac Vaughan Itautoka Susan Jackson Johann Jacobs Veronique Jadoul Adam Jaffe Phil Jamieson Robyn Jamieson Murali Jayaraman Brian Jefferys Anthony Jelich Clayton Jenkins Thomas Jenkins Linda Johnson A Johnson Cheryl Jones K Jones Greg Jones Reinier Jongejan
Uma Joshi Oliver Kaether Kathy Kafataris Kareem Kareem Tharmini Karunakaran Gopinath & Norisha Karunakaran Ponniah Karunakaran Calm Kat Donald Kay Debra Keable Lucy Keady Louise Keady Elaine Keane Mike Keaney Elizabeth Keast John Kennedy G Kennelly Mary Kenny John & Nadia Keogh John Keogh Hoomayun Kermani Christopher Kerr Jamil Khadem Pervez Shahbaz Khan Gulam Khandaker Shabbir Kharodia Peter Khoury Paul Kiceec Roderick Kidd David King Tony King Richard Kirby Chris Knight Shirley Knight Siew Koo K & D Koolloos Sandy Kosasih Kevin Kosovich Namrata Kotecha Damien Koureas Irini Koutsogiannis Janakan Krishnarajah Jonathan Kusilek Kritesh Lal Stephen Lam Alan Lamberton Michael Lansky Jeremy Larkin Rachael Laurie
Gary Lawler Lynne Lawlor Sandy Le Stephen Lead Niall Lenahan Marianne Lesnie Joseph Leung Nei Leung Elizabeth Lewin Mike Lewis Thomas Lin Quan Lin Judy Lipman James Lloyd Alison Loader Sarah Lockett Glenys Longitust Edward Loong Gary Lord Michael Lowe Jan Ludeke Melissa Lueckl Emily Luke Thu Nga Luu Immy M Meryll Macarthur Bruce Macdiarmid Pauline MacDonald David Macefield Rory Macewan Christina Machado Alena Mackie Campbell MacLeod Sian Macswan Michael Madden Sloane Madden Mishkel Maharaj Paul Malouf Gordon Malouf Paul Mansfield Jan Manton Jennifer Manton Helen Martin Derek Martin Alexandra Martin Frank Martin AM Michael Martin Robert Mather John Matthews
Moira Matthews Meredith Matthews Mark Matur Roy Maxwell Carole May Danielle Mayson Eliza McAllister Kevin & Deidre McCann Krystell McCardell Darren McCardell David McCrostie Marilyn McDonald Duncan McDonald Alison McDonald David McDonald D J McIntosh Amelia Mckee Jane McKellar Anita McKenzie Anthony McLandsborough Belinda McLean Jacqui McNamara Richard & Paula McPhail T McPherson Anastasia Melopoulos Chris & Joanne Mentis Tempe Merewether John Merkel Louise Messara Keven & Catherine Messer Glynn Meth Susan Metzmacher Peter & Jill Middleton Liz Migliorini Paul Migliorini Keith Miller Jonathan & Bina Miller Betty Miller George Miltenyi Ma Minjun Ljubomir Mirosevic Craig Mitchell Michael Monaghan Daniel Mong Roger Montgomery Joel Moran Gwyneth Morgan James Morley Catherine Moroney
Diane Morris Joshua Morris Charmaine Morse Christopher Mourd Mick Moussa Robert Moussaoumai Anil Mudaliar David & Margaret Mullen John Munce Julie Munley Jon Munoz David Murray Paul Musico Carmelo A. Mustica Aparna Nagashayana Nikki Napier Ian Narev Sarkis & Bernadette Nassif JPN Foundation Nikhil Nath Jenny Nettleton Andrew Ng Hue Lan Nguyen Alexander Nguyen Thi Bay Nguyen Luong Nguyen Trinh Quang Nhuit Cassandra Nicholls Mark Nielsen Hugh Norburn Liliane Novak John O Brien Joe O’Kane Daniel O’Neill Siti Onn John Duffy Orora Marino Orozco Kerilyn Osborn Barbara Osborne Jason O’Sullivan Trent Ottawa Peter & Lauraine Overton V Pace Amy Page Fiona Pantazis Effie Pantazis Chris & Valasia Papadakis Chris Parker Prudence Parkhill
Richard Parkinson Tim Parmenter Dominic Parsons Terry Parsons Brett Paul Scott Paul Goran & Zoran Pavic Gilly Paxton Lloyd Pearce Stephen Perchard Austin & Brigid Perrin C Perrott Darren Phua Andrew Phung Giridharan Pillai Michael Pinczuk Reg & Heather Pollock Gary Pontifex Andy Pontin Alan Popely Pamela Porteous Chris Poulter Malcolm Price Carolyn Priestley Mary Puskas Vikram Puttaswamy Canh Thi Quach H Quinlan Antonia Quispe Natalie Rawlinson Felicity Re Clare Reavey Stephen Reed Mary Regan Velma Reibelt Geoff Reidy Tiara Relativo Sarah Rennie Lawrence Retson Linda Retson Adam Reynolds Robert Reynolds Reza Rezaeian Matthew Richardson Scott Richardson R & M Richardson Gaby Riddington Janne Roberts Annaleise Robertson
Ian Robertson Robertson Family Graham Robey Lorna Robin Julie Rogers Teresa Rositano Victor & Shelagh Ross Peter Rowe Kay Roweth Ed Roweth Anne Rozenauers Kit Rumjahn Peter Russell Danielle Ryan Kevin Ryan Hafiz Saadullah Sharmin Saadullah Joseph Sabato Adele Saliba Ruth Sampson Asha Samuel Giuseppa Sarandrea Danny Sarkis Sudha Sathiaseelan Vasanthi Satkunaseelan Lisa Schrei Mark Schultz Erwin Schuttinga Bryan Scott Gordon Scott Meredith Scott Mohan Sekaram Chris Selby Vinko Seman Vivian Shalala Allan Shaw Gemma Sheather Mollie Shelley Ross Sherlock Richard Sherman Mary Sherwood Shimnon Shimla Chris Shore Soo Cheng Siew Hedley Simons Ken Sinclair Gurvinder Singh Piyush Sinha Mark Siow
Mark Sirotti Mary Siu Lalithambal Sivasanthakumar Daniele & Angela Siviero Carole Slee Vesna Sleiman Sarah Smit Paul & Gloria Smith Alan Smith Jennifer Smith Ronald Smith June Snedden P Sparks Hugh Spear Freerk Speckmann Kaye Spence Hekmat Spindary Daniel Spira Eddie Spurr Irene Stacey Kevin Staines Russell & Jennifer Staley Bradley Stannard Margaret Stayner Jodi Steel Darren Stein Alison Stephen Andrew Stevens James Stewart Tim Stewart Colin Stewart John Stoel Irene Stone Christopher Stott Robert Styles Danielle Sue-See Tony Suters Dorset & Jenny Sutton Anthony Sweetman Geoffrey Symonds Mike T Belinda Taateo Beryl Tan Edite & Daisy Tang Cindy Tang Anthony Tannous Pierre & Jezell Taouk Joseph Taouk Ella Tavares
Peter Taylor Elijah Taylor Rob Taylor Matthew Taylor Russell Taylor Taylor Family Bala Murugan Thirumeni Allan & Joan Thompson Katherine Thompson Sophie Thomson Paul Threlfo Mark Thurgood Vivien Thuy Khim Lal Timilsina Patricia Tompkins Bruce Tong Wendy Tonkin Gavin Torrens Ann Touchard Quoc Dung Tran Daniel Tran Trang Tran Bhaumik Trivedi Robert & Katrina Tucker Stefanina Tusa Kyle Ulaszek Paul Uren Karin Ursino Ranjani Utpala Anthony Van De Putte Elisabeth van Leeuwen Kerry Cambridge & Warwick Vance John Vanson Dean Vasil Maria Vasiliades Vicki Vasiliades Bernadette Veld Christos Velis Steve Veljanoski Catema Venezianl Patricia Vidal K & H Vincent Donna-Maree Vinci Minal Vohra Milena Vrankovic Belinda Wade Tony & Gai Wales Mark Walker
A & A Walker Philip Walker Chris Waller June Ward Geoff & Lorraine Warnick Robert & Cecily Waterworth Marjorie Watson Peter Watts Gregory Watts Peter Wedgwood B Weise Garrie Wells Roseline Welsh Courtney West Lorraine West David West Erin Wheatley Peter Wheeler Kate White Rob White Stephanie Wicks Susan Wilkinson Lee Williams Nikki Williams Lisa Lewin & Glenn Williams Paul Williams Patricia Williams Margaret Williamson Wendy Wilson Kylie Wilson John & Adrienne Wilson Penny Wilson Cameron Wilson David Winterbottom Steven Witt Patricia Wong Peter Wong Cheu Yen Wong Chris Wood Brian Woolmer Helen Wootton Marcia Worrad David Wright Michael & Jackie Wright Edward Wrighter Kevin & Helen Wyld Elizabeth Wynn Will Xiao Nick Xouris
Lynn Yager John & Margaret Yates Andreas & Helen Yianni Andy Yong R & Y Young Yu Zhou
Major Supporters Organisations and Community Fundraisers 13 CABS A & M Kazzi & Sons Pty Ltd ABC Tissue Products Pty Ltd Ada Latham Fundraising Adtrans Hino Pty Ltd AHG – Castle Hill Nissan Allergy & Immunology Foundation of Australasia Amyson Pty Limited Andrews & Rech Pty Ltd ANSTO ANZ AOOB Springwood Arkhadia Foundation ASQB Window Safety Assetinsure Holdings Pty Ltd Associazione Tre Venezie Australian Bakels Pty Ltd Australian Food Allergy Foundation Australian Reptile Park Australian Stockbrokers Foundation Ltd Baby Kingdom Bank of America (Australia) Bankstown District Sports Club Limited Bankstown Sports Men’s Bowling Club Barker College Baseplan Software Group Belle-Laide Events Bellunesi Nel Mondo Bennett Elder Smash Repairs Pty Ltd Better Homes & Gardens, Seven Network Ltd Big W Bikes for Burns
BioMarin Pharmaceutical Australia Pty Ltd Black Family Endowment Account Blackmores Bluescope Lysaght Bourke Gibbons Fundraising for Children Braver Stronger Smarter Inc Brighton Lakes Golf and Recreation Club C & M Antoniou Pty Ltd CAF America Canley Heights RSL & Sporting Club Ltd Carat Carnival Cruise Lines Australia Castle Hill High School Celebration Sing Out Cerner Corporation Pty Limited Challenger Channel 9 Wide World of Sports Charity Cabaret for Bear Cottage Charity Greeting Cards Pty Ltd CHE Proximity Cherry On Top Photography Chios Island Association Christian Paul Watches Church of Love, Peace and Unity Citigroup Clare’s Angels Clark Equipment Sales Pty Ltd Club Demonstration Services Clyde & Co Coffee4Kids Foundation Commonwealth Bank Condotel Pty Ltd Coombs Shoe Service Cornerstone Presbyterian Community Church Corporate Management Services (Australia) Pty Ltd Count Charitable Foundation Cripps & Cripps Property CT Freight Pty Ltd Curwoods Lawyers Debbie Costelloe Fundraising Deemah Stone Pty Ltd Dell Facilities Deutsche Bank Dream Design Property
Earthing Solutions Pty Ltd Ela’s Night of Angels Fundraising Elite Joinery Group Pty Ltd Elliniki Filanthropiki Peryiatiki Incorporated Equity Trustees Wealth Services Limited EROS Charity from the Heart Ettamogah Social Club Everlast Shopfitting Pty Ltd Fairfield RSL Memorial Club Ltd Festa di San Rocco di Cepagatti Finsynergy Pty Ltd First Hand Foundation First Wave Technology Forever Johnno Fortnum Foundation Pty Ltd Foxy’s Memorial Golf Day FTF Car Club of NSW Inc G Brothers Mercedes Benz Gilbert & Roach GK Kirkby Pty Ltd Gladesville Bowling & Sports Club Limited GlaxoSmithKline Consumer Healthcare Pty Ltd Godolphin Australia Pty Ltd Goldman Sachs Halix Pty Ltd Heartland Motors Pty Ltd Herbert Smith Freehills Hillsbus Hitec Drainage P/L HomeWorld Group of Companies Hope for Ollie Hornsby Girls’ High School IGA Turramurra Plaza Illumina Australia Pty Ltd IMC Financial Insight Enterprises Australia Pty Ltd Intact Projects Pty Ltd International College of Management Ironhill Management Pty Ltd ISGM ITS PipeTech Pty Ltd J Drain A White & Co Pty Ltd JDC Flooring Jessica Alispahic Fundraising
Joanna Capon & Associates Julie Gravina Fundraising Just Promotions Kemsea Services International Pty Ltd Kicking Goals for Sick Kids Kim Cancellier Fundraising Laissez Faire Catering Larke Hoskins Suzuki & Larke Hoskins Honda Lights for Kids Lindt & Sprungli (Australia) Pty Ltd Lions Club of Castle Hill Inc. Lions Club of West Pennant Hills – Cherrybrook Inc. Macarthur Swimathon for CF Macquarie Bank Macquarie Group Limited Magdalene Catholic High School Magdalene Foundation Mainstream Electrical & Roysted Pty Ltd Market Rock Maxil Pty Ltd McGrath Revesby Melissa Lewis Foundation Mending Small Hearts Fundraiser Merrylands Cricket & Social Club MFS Investment Management Milwaukee Powertools Aust. Mitsubishi Electric Australia Pty Ltd Mount Beulah Chapter 5 – Order of the Eastern Star Murray Valley Meat Trading Company Mustang Owners Club of Australia (NSW) My-T Automotive Narrabeen North Public School nib foundation NIB Health Funds Nottingham Park Enterprises Pty Ltd Novotel Manly Pacific NSW Department of Education & Training NSW Government – HRIS NSW Health
– Employees Contributions NSW Kids in Need Foundation Limited NSW Master Builders Bowls Club NSW Police Force Headquarters Oneview Healthcare Orchestra 81 Ord Minnett Pallet Logistics Paragon Risk Management Pty Ltd Paul Ramsay Foundation Pen Underwriting Perpetual Foundation Perpetual Foundation – Sibley Endowment Petersen Family Foundation Pherrus Financial Services Philippa Hogg Fundraising Pie of Origin Fundraising Pilu Restaurant Pomed Pty Limited Popink Precious Hearts Inc Professional Polish Prospect Electrical Wholesalers Pty Ltd Rapid Relief Team (RRT) Rat Pack Golf Tours Inc. Rayskm Pty Ltd Richfield Hairdressing Right2Drive Seven Hills Robyn Pickworth Fundraising Rotary Club of Balgowlah Rotary Club of Belrose Rotary Club of Frenchs Forest Rotary Club of The Hills-Kellyville Rouse Hill Renegades Rugby Rydges Hotel Ltd Samson’s Fruit & Vegetable Supply Sanofi-Aventis Australia Pty Ltd SAS Institute Australia Pty Ltd SD Fitness Service Pty Ltd Selim Foundation Pty Ltd Serendipity Craft Group Shimano Australia Cycling Pty Ltd Shop Distributive & Allied Employees’ Association SIDS Stampede Slater and Gordon Lawyers
Smart Analytics Pty Ltd Smith Charitable Fund Snell’s Vending Pty Ltd – Beverly Hills Solar D Specsavers St George Foundation Limited St John Sydney Xewkija Association Incorporated St Johns Park Bowling Club St Johns Park Women’s Bowling Club Stage Artz Stephen Richardson Memorial Golf Day Supply Chain Department Unilever Aust Survive The Ride Association of NSW Sutherland Mazda Sutherland Nissan Sydbricks Incorporated Sydney City Civil Australia Pty Ltd Sydney Mariners Sydneysiders Express Inc. Synevi Tak Fuk Investments Pty Ltd Team Bianca The Australian Traffic Network The Bald and the Beautiful The Belalberi Foundation Pty Ltd The Blackmore Foundation Pty Ltd The Candlelight Gift Incorporated The Crown Resorts Foundation The Dick and Pip Smith Foundation The Good Guys The Good Guys Foundation The JB Bedwell Endowment The Khong Team The King’s School The Lee Falk Memorial Bengali Explorers Club The Luscombe Family Foundation The Packer Family Foundation The Payne Family Charitable Fund The Pitch Group The Ponds High School The Rogers Group L.P.
The Schwinghammer Foundation The Sebastian Foundation The Wales Family Foundation Tiny Miracles Fundraising Gala Dinner Transport Management Centre Travinh Fellowship’s Association Incorporation UBS AG Australia Branch Unifoods Unilever Australasia Foundation United Resource Management Pty Ltd Urban Land & Housing Group Warner Bros. Entertainment Australia Pty Ltd Westfield Group Westfield Parramatta Westfield Payroll Services Westmead Autism Westpac Banking Corp Operations Service Centre Wiggles and Giggles Childcare Centre - Leonay Wilson Asset Management Women & Business Wot Not Wyatt’s Walk GJK Facility Services Global Nutrition Australia Pty Ltd
Roll of Honour The Children’s Hospital at Westmead and Bear Cottage are extremely appreciative of and honoured by our many caring supporters who have left a gift in their will. Their generosity will enhance the lives of our young patients and families now and in the future. Mabel Therese Anthony Joan Collyer Armstrong Olga Lillian Bayley Norma Florence Boyle Matthew Brancelj Norman Archibald Byrne Rita Kathleen Carter Robert Clarence Cattlin Marija Cepernic William Francis Chapman Nigel Clarke Vera Clarke Jean Lillian Coughran Edward Joseph Shedden Davis Betty Dobrianskyj Eric Christopher Douglas Kenneth Reginald Ellis Joan Evans Violet Falls Rosa Gertrude Feder Allan Alfred Foster Thelma Anne Fulham Beth Lorraine Grainger Elsie Margaret Greig Shirley Wallace Grieb Heinz Walter Peter Hannemann Beryl Jean Harris Ian Robert Harris Ian Richard Hellstrom Patricia Marea Hirst Peter Edwin Hoban
Doreen Johnstone Katharina Kazimierczuk Bruce Thomas Kenny-Royal Robin Ann Lawson Judith Winsome Leunig Patrick David Loughnan Rupert George Masters Leslie Allan Maurer Barry Mellor Lily Inta Mitrovich Dennis John Moore Mary Adelaide Neal Olga Pennington Barbara Madeline Powell David Samuel Ratner Dorothy Gladys Ridgway Neta Frances Saunders Joyce Mary Sivertsen Joyce Ethel Sproat Joyce Esme Steenbhom Angela Anne Stevens Ester Kaarina Tuomainen Josephine Agnes Virgona Nola Aileen Wagner Ivy Mary Walker Colin John Weir Ethel Florence Rose Wellard Evan Frederick J Williams Dianne Elizabeth McIndoe Wishaw Ruth Aileen Woods
Join our team
Your generous support of The Children’s Hospital at Westmead is greatly appreciated by our patients, families and staff. Title:
Mr
Mrs
Miss
Ms
Leaving a gift in your will, no matter how large or small, is a wonderful legacy to leave for the next generation.
Other: _____________________________________________
Please send me information about leaving a gift to The Children’s Hospital at Westmead in my will.
First name:_________________________________________
I have already left a gift to The Children’s Hospital at Westmead in my will.
Last name:_________________________________________ Organisation:________________________________________ __________________________________________________ Address:___________________________________________ __________________________________________________ Suburb:____________________________________________ State: _____________________________________________ Postcode:__________________________________________ Phone:_____________________________________________ Mobile:____________________________________________ Email:_____________________________________________ __________________________________________________ I would like to: Make a donation of $______________________________ Donation payment: (please tick) Cheque (made payable to: The Children’s Hospital at Westmead) Credit card: Visa
MasterCard
Amex
Card No:___________________________________________ Exp date:___________________________________________ Name on card: ______________________________________
Signature: _________________________________________
Our Privacy Policy is available on our website bandagedbear.org.au/ about-us/privacy-policy. Please contact our Privacy Officer with any queries via privacyofficer@bandagedbear.org.au You can change the frequency or way that we communicate with by calling us on (02) 9845 3367. If you do NOT want to receive you any future communications from The Children’s Hospital at Westmead please tick this box. Occasionally we allow other like-minded organisations to contact you with information that may be of interest to you, including some organisations located outside Australia. Those organisations allow us to do the same and this helps The Children’s Hospital at Westmead to reach more people with vital information. Please tick here if you do NOT want to receive communications from organisations we trust.
Please forward your gift to: Fundraising Department The Children’s Hospital at Westmead Locked Bag 4001 Westmead NSW 2145 Phone: (02) 9845 3367 Fax: (02) 9845 3457 bandagedbear.org.au Your gift of $2 or over is tax deductible. Funds will be used at the discretion of the Chief Executive to improve the health and welfare of children cared for by The Children’s Hospital at Westmead.
Thank you for your valued support CODE: ANNUALREVIEW2017
Thank you to the children, families and staff of The Children’s Hospital at Westmead who are featured in this publication.
Financial information can be accessed via Sydney Children’s Hospitals Network’s Annual Review at schn.health.nsw.gov.au
Thank you to the children, families and staff of The Children’s Hospital at Westmead who are featured in this publication.
Financial information can be accessed via Sydney Children’s Hospitals Network’s Annual Review at schn.health.nsw.gov.au
Cover image: Surgeon Dr Albert Shun and patient Brooke
Fundraising Department The Children’s Hospital at Westmead Corner Hawkesbury Road and Hainsworth Street Westmead NSW 2145 Australia Locked Bag 4001 Westmead NSW 2145 Phone: (02) 9845 3367
bandagedbear.org.au 2018 The Children’s Hospital at Westmead PRD4284/1217