brainstrust logbook 6 by brainstrust

IS S U E 6 F EB RUARY 2 013

Logbook THE MAGAZINE FROM

brainstrust – The Meg Jones brain cancer charity

brainstrust’s impact – 2011/12: Pages 2–3 Have you ‘herd’ about our fundraising cow? Page 4 Shared Decision Making and what it means for you: Page 4 New, free, counselling support for brain tumour patients: Page 11 Brain tumour support 24/7.

Call 01983 292405 or email hello@brainstrust.org.uk

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Hi – welcome to brainstrust’s 6th Logbook. This is our way of saying thanks for everything you’re doing to help in our mission to put every brain tumour patient and carer back in the driving seat.

E’RE GOING to be doing these a bit more frequently now as we’ve so much going on, so much to say thank you for, and it’s only right that you, as one of our supporters, know what we’re up to. Hopefully you’ll be as proud of what we’re achieving as we are, but you’ll recognise there’s still a lot that can be done to support brain tumour patients and carers – the people we’re helping every day need us and they need you, more now than ever before. At brainstrust, we’ve all come from different backgrounds; education, advertising, publishing, accountancy, design, IT and logistics to name but a few. But we have all been brought together by a couple of things. First off, we have all had direct experience of being told ‘you have a brain tumour’, or we have looked after someone that has, and experienced the feeling of isolation, fear and loss of control that comes with those words. The second thing? We find it so rewarding, so satisfying and nothing inspires us to work harder than when we are part of an organisation whose work is measured in people. Not cash. Of course money is important, but our belief is that the funds will come if you focus on the people first. So we continue to design our brain tumour support services with the people that use them at the centre, and we measure our work by counting the number of people we’ve helped, and keeping a record of what these amazing people say about what we’ve done for them. Of course, the more money we raise, the more people we can help, but these people, and our services must come first. Thank you for getting us this far, here’s to the next 6 months of growing our wonderful brain tumour community! Helen, Peter, Meg, Will, Tessa, Jacqui, Kim and brainstrust’s wonderful board of Trustees, Patrons and Advisors.

Hello Kim! MORE EXCITING NEWS as we welcome our newest member to the team. Kim Jeffreys joins brainstrust as Support Administrator. Kim brings over 20 years of high level logistics experience to the team and will be able to support our activities by increasing the operational effectiveness and efficiency. Kim has had several high profile roles with a number of industry leaders including the Rentokil Group, TNT and most recently was assisting one of the Volvo Ocean Race teams running their shore operations in Abu Dhabi and other high profile yachting campaigns. Even better, is that Kim’s enthusiasm is totally infectious! Say hello to Kim on kim@brainstrust.org.uk

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Measuring our work:

PEOPLE By Helen

brainstrust is currently helping over 900 patients and carers by phone, email and through the Meet Up programme.

HOUSANDS MORE PEOPLE every month are benefitting from our online resources and innovative community pages accessed through www.brainstrust.org.uk Simply sharing these numbers gives you an idea of how we’re increasing the reach of our work, but it doesn’t do much to demonstrate the quality, impact and effectiveness that we work so hard to attain. Hopefully the following words go to show this. We’re so proud of some of the things that the people we support everyday have to say:

I honestly can’t express how grateful we are to gain such proactive support. This is exactly what we as a family were looking for. Thank you. It is exactly as you say. You get it. Throughout this experience our family have been predominantly in the dark. Therefore, it is refreshing to have someone be so responsive and understanding.

Patient, Lincolnshire, November 2012

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I thought I’d write to say how much your support has meant to us both over the last few years. Your knowledge of these cancers, where to get the best treatment and your ability to fill in the blanks has made a huge difference to us; it really has encouraged us and given us hope at some quite dark moments.

Wow, it’s so nice that there are people like you to help people like me who don’t really know who to turn to and what options there are for me.

Carer, Bristol, May 2012

Patient, Essex, August 2012

I was so delighted to get your email and it has given us some hope... You have really raised our spirits. …Until I accidently stumbled on the brainstrust website we were all at sea as to what was available for my husband so we are hugely thankful to you. Carer, Ireland, April 2012 Your website is brilliant. Really informative and friendly and the best I have come across. But it is better than that! At the end of the phone is amazing support. Thank you! This is the first time I felt I have been listened to. Patient, Liverpool, February 2012

Your message brought tears to my eyes! Thank you so much for your kindness and understanding, I just knew you would understand when I sent my message. Everything you said is just so so.... right! I know you understand, thank you so much for listening and for being there when we need you, you have no idea how much it all means! Carer, Wales, April 2012

I have got more information and support from talking with you in the last five minutes than I have ever had before. Carer, London, August 2012

Financial Information

OUR AIM is to give everyone diagnosed with a brain tumour access to the resources that will put them back in control. We know that with more understanding of their own condition, brain tumour patients feel more in control and have more ownership of the decisions that are made with regards to treatment and follow-up appointments. Our coaching based relationship with brain tumour patients and carers enables them to develop their own resilience and to utilise brain tumour support resources from all providers to their full potential. With your continued support we can continue to broaden the reach of our support, so that we can help more brain tumour patients and carers get back on top of things.

By Peter

OUR 2011-2012 ACCOUNTS have been audited, approved, and filed with the Charities Commission (early!). We’re proud of how much we’ve achieved with the money you helped us raise, and we stand by the fact that we’ve no desire to be the biggest charity out there, we simply want to help as many brain tumour patients and carers as there are that need us, and do so in a sustainable way that sees us fit for the future.

How we spent your money in 2011/12

Funds carried over for projects planned for 2012/13: £43,998.00 Governance costs: £2,866.00

Supporting brain tumour patients and carers: £282,930.00

Over £1.4 million raised for brain tumour patients and carers so far 2006/07: £78k 2007/08: £49k 2011/12: £397k 2008/09: £211.6k

Generating income: £67,323.00

2010/11: £354k

2009/10: £330k

Total: £397,117.00 LO GB O OK: ISS U E 6 – F E B R UA RY 2 0 1 3

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Shared Decision Making 3 simple questions, and what this means for brain tumour patients and carers. By Will

RAIN TUMOUR PATIENTS are far more informed in making decisions about their health care than they were 20-30 years ago. However our conversations with patients reveal that some still express frustration and dissatisfaction. They do not feel that they have adequate (if any) input into the decisions health professionals are making about their health and their lives. Shared Decision Making is a process in which patients are encouraged by their health professional to participate in selecting the most suitable health treatments or care management options (Coulter and Clearly 2001). Not being properly informed about illness and the options for treatment/ management is the most common cause of patient dissatisfaction. Most patients want more information and a greater say in decisions about how they will be treated. Not surprisingly when they do so they have better experiences. Shared Decision Making uses evidence based information about options, pros and cons together with decision support counselling and implementing jointly agreed actions. Shared Decision Making is best used in any health care situation when there is more than one course of action. No one option is self-evidently best for everyone. Most medical decisions are complex. It is important to remember that… n The patient is an expert on him/ herself, social circumstances, attitudes to illness and risk, values and preferences n The health professional is an expert in diagnosis, prognosis, treatment options and outcomes Both patient and health professional need to work together jointly to make the decision. The health professional provides information about the treatment options, likely outcomes and uncertainties. The patient 4

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provides information about their values, concerns and preferences. If you’re a patient, and feel you should be playing a greater role in making decisions about your care, it’s surprisingly easy to change things. All you have to do is ask three simple questions of your clinician: n What are my options? n What are the pros and cons of each option for me? n How can I get support to help me make a decision that is right for me? Good isn’t it! We’re excited about this approach, which is slowly becoming ingrained in the healthcare system. Our aim has always been to give everyone diagnosed with a brain tumour access to the resources that will put them back in control, and sharing decisions with your clinical team is a big part of feeling in control and on top of things. Our coaching based relationship with brain tumour patients and carers enables them to develop their own resilience and to utilise brain tumour support resources and information from all providers to their full potential, helping them to make informed decisions. Indeed, many of our projects have been developed to make sharing decisions easier, and to ensure that patients are confident enough to make choices when they have to. We’re delighted to be seeing Shared Decision Making slowly creeping up the agenda, but it’s still not common practice. If you’re a patient, make sure you’re having your say – after all, you’re an expert too.

Fundraiser focus:

Ginny the Cow ONE OF OUR BIGGEST fundraisers of 2012. Quite literally. Trish Bell auctioned her Friesian ‘Ginny’ and donated the proceeds to brainstrust. Ginny raised an incredible £4,200 for our work and she’s now enjoying life in a field in Herefordshire. Can’t say we’ve ever been able to report a story like this before!

S M t Y p

A m W c C a o

Information Standard surveillance By Will

Small update here – every year brainstrust’s patient information projects and production process are reassessed by the Department of Health approved auditors and a report issued. Following our first year of producing information using our Information Standard accredited process, we secured another year’s accreditation. We have made some minor updates to our production process to enable us to update the patient information on our website more efficiently, which is great. LO G B O O K : I S S U E 6 – FEB RUARY 2013

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T a w b a s a w

A N C W a a a t f r a la W

On the Road By Helen

We’ve been travelling – a lot: Liverpool, Washington DC, Glasgow, Edinburgh, London, Glasgow, Stockbridge, London, Leeds, London, Winchester, Cowes, Manchester.

OVEMBER 2012 was our biggest month for travel yet. We were very lucky to have much of this travel covered by official bodies or, for the trip to Washington, airmiles donated by a very generous donor. Thank you, Alan!

So what were the highlights? Well the Meet Ups are always fabulous, thanks to our brain tumour community. You can read more about these on page 11.

And then there were our Christmas markets in Winchester and Cowes. We sold 150 packs of Christmas cards. So that’s 1500 brainstrust Christmas cards spreading the word, and £600 raised from card sales at one event alone. Wow! Team meetings in Stockbridge are an oasis; it’s our chance to connect with each other and talk about what’s been going on with patient support and fundraising. We love sharing success stories. And we love talking about what we have learned whilst we have been out and about. And Meg and Helen attended the National Cancer Research Institute Conference (NCRI) in Liverpool. We’re lucky to receive bursaries to attend this. This wasn’t just sitting and soaking up information; Helen did a presentation to clinicians on ‘How to write the lay person’s summary’ for research proposals. This was well received – described as a highlight and inspirational. It also got lots of laughs. But we did some learning too. We learnt that: LO GB O OK: ISS U E 6 – F E B R UA RY 2 0 1 3

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Stratified medicine is the future. And we’re well on with it. For example, researchers are now identifying subsets of tumour types. 6 subsets of GBM4 have been identified: IDH, K27, G34, RTKI PDGFRA, mesenchymal, classical RTKII. n Improvements in imaging mean that we can now see blood delivery, blood flow and pressure, junctions in the blood brain barrier, tumour cells (penetration and sensitivity). n Prognostic factors include age, performance and extent of resection of a brain tumour. We don’t think it is just because it is an area of interest for us, but the psycho-social aspect of living with a brain tumour was more evident. And then there was the Society of Neuro-Oncology Conference in Washington. This is an international conference. What an experience! Top notes here were: n The gap between science and patients was very much evident. n That awake craniotomies may encourage surgeons to be conservative. They will stop when a patient responds but wouldn’t if the patient was asleep. n The anticipation about Avastin – it does increase progression free survival but not overall survival. More data to follow in the Spring. n Quality of life needs to be higher up the agenda for research proposals. It is always the last outcome

measure researchers include and is always in a subsection. n What is happening to ensure that stratified medicine is taking into account Quality of Life? n Exercise and diet does a better job of maintaining cognition than brain training programmes

So what does all of this travel mean for brainstrust? We always ask about the key actions; it would be a waste of resource if we didn’t. n That our involvement with Government bodies like the NCRI is crucial. This is where we find out about the bigger picture with cancer generally and also with brain tumours. n That brainstrust is highly regarded by clinicians and researchers – we represent the patient/carer voice and can provide easy access to patient and public involvement (PPI). n We need to work on support for palliative care. That this is a gap was obvious and confirmed what we already knew. n Psycho-social research needs funding; we’re on the case! January is much quieter... Southampton, London, Newcastle, Brentwood. 5

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Wear Grey for a Day

T c p is

By Will

The day we turned the UK Grey for a Day. 1st October 2012.

NSPIRED BY brain tumour patient and brainstrust advocate, Shaun Skinner, over 9000 people wore grey for a day, raising awareness of the impact of brain tumours and of our work here at brainstrust. Wear Grey 2012 also raised over £6000 for our work to support brain tumour patients and carers.

And to what effect? Your help has resulted in a 30% increase in the number of patients that we’re helping week on week. We’re working longer hours, but that’s fine – we love to help people get back on top of things. With the funds you’ve raised, we’ve been able to hit the button on another order of ‘brain books’ for our brain boxes, and we can plan more Meet Ups over and above those already scheduled over on www.meetup.com/ brainstrust.

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Will (left) Shaun, and Meg on October the 1st

This is a big leap forward that will enable us to help more brain tumour patients and carers feel in control post diagnosis.

The BIGGEST thing though, is that you can have a voice. We have seen the potential that this day holds, and have learnt that it’s nothing without the 9000 of you that took part. We will be working with you and our patients, carers and friendly clinicians over the coming months to plan what we, as a community of 9000, can do to help next. We’ve proved that we can be heard, and you’ve proved that you can make a difference. NEXT YEAR, LET’S MAKE AN EVEN BIGGER IMPACT. Put 1st October 2013 in your diary today.

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The brainstrust ‘Wear Grey For a Day’ campaign went truly global and to the remotest places you can imagine. Here, this team of intre pid divers from UK, USA, Poland and the Cayman Islands are pictured proudly displaying their grey ribbon pins with Darwin’s Arc h beh ind them. Darwin’s Arch is effectively the most Northerly point in the Galapagos Islands, dee p in the South Pacific Ocean.

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Everest 88

L r t

By Jacqui

Stephen Venables said:

In our last Logbook, we mentioned that planning for the Everest ’88 event was well underway. Well now things are being finalised, we’ve some high profile sponsors on board and tickets are selling fast over at www.brainstrust.org.uk/everest88

❝2013 is a big year for Everest.

HE LEGENDARY 1988 ‘Neverest’ expedition, which climbed Everest by a new route without the aid of supplementary oxygen, will reunite for a special one-off event in support of our work to support brain tumour patients.

Celebrating the 25th anniversary of the renowned ascent, it is the first time the whole team has been together since Stephen Venables became the first Briton to reach the summit without oxygen. The expedition has been dubbed ‘the most adventurous in Everest’s history’ by world-renowned climber Reinhold Messner.

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❝In 1988 we knew we could make

choices that would directly affect the outcome of our expedition, but for people diagnosed with tumours the ability to make informed decisions isn’t necessarily available to them. brainstrust challenges the medical profession to improve research to deliver more effective treatment.

❞

The event, called Everest 88, is to raise money for the brain tumour charity brainstrust, and will take place on 14th March 2013 at the Royal Geographical Society in London. Stephen Venables, a patron of the charity, lost his son Ollie to a brain tumour aged 12. During an illustrated presentation followed by a Champagne dinner, the Anglo-American and Canadian team, which also included team leader Robert Anderson (US), Ed Webster (US) and Paul Teare (Canada), will recount their inspirational stories of the pioneering ascent of the Kanshung Face, that culminated in Stephen reaching the summit alone. Stephen will relive his epic tale of survival as he spent an unplanned night in the open at 28,000 feet – a world record for a solo bivouac.

It’s 25 years since we went up without oxygen, and 60 years since the first ever ascent. Everest was about overcoming challenges in some of the most inhospitable surroundings imaginable, but it was still nothing in comparison to the challenges faced by brain tumour patients.

The life of Stephen’s elder son who was diagnosed with a brain tumour and died aged 12, is celebrated in the bestselling book ‘Ollie: The true story of a brief and courageous life’.

The one-and-a-half hour talk will include some of the most dramatic photographs ever taken on the world’s highest mountain, and provide a unique opportunity to hear from the four-man team and their base camp support which included Norbu Tenzing, son of Norgay Tenzing, who made the first ever Everest ascent with Sir Edmund Hillary in 1953. All the funds raised by the event will go to brainstrust.

Tickets for the talk cost £20 and £125 for the Champagne reception and dinner. The event’s main sponsor is Rolex, with Apter Development also supporting the event.

Tickets are available from www. brainstrust.org.uk/everest88/ or by phoning 01983 292405. LO G B O O K : I S S U E 6 – FEB RUARY 2013

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‘ T w f t t e w a m A a w t a n g s g I a c

Liverpool Halloween Party raises a SCARY sum for brain tumour patients

d :

Run to the Beat 2012 By Tessa

WENTY SIX team brainstrust runners braved the freezing cold to take part in Run to the Beat on 28 October.

team brainstrust at

By Tessa In October, Mike and Paula Allen organised a Halloween fundraiser for our work.

T WAS AN INCREDIBLE EVENING, of which Paula says:

‘Funds where raised by our local pub, The Victoria, in Rainhill Merseyside, where the landlady Dot, and our fantastic closest friends all gathered together. Peter Joyce offered himself to be fully body waxed during the evening with everyone in the pub watching. Most of the local people and fantastic staff all attended in the most brilliant fancy dress outfits. An Auction took place which raised a fortune, the donations and prizes where amazing, all donated by the kindest people. Everyone who attended this buzzing pub on that night, supported the fundraising so generously it’s quite hard to believe, such a small community with such generous people, amazing. Mike and I are both so grateful and humbled, and also brought awareness to this cause which is needed.’ LO GB O OK: ISS U E 6 – F E B R UA RY 2 0 1 3

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The Halloween fancy dress evening raised a scary amount of money for our work, totalling £3046, enough to run our Meet Up programme for 8 months. Very sadly, Mike passed away at the beginning of this year. The amount raised at this Halloween event is a testament to what a wonderful man he was and he will be greatly missed. Do you have a great local pub? Perhaps they’d help you run a quiz night, Halloween party, or even a sponsored ritual of public humiliation, like Peter’s waxing! If you’d like help organising a similar event to help us support more brain tumour patients and carers, please get in touch. Call 01983 292405 or email me, tessa@brainstrust.org.uk

Gloves, scarves and woolly hats were the order of the day as 18,500 runners joined together to complete the 13 mile route. With 14 live music stages at the start/finish and along the route, the atmosphere inspired some brilliant personal best times, in spite of the hilly, challenging course. It was the first time brainstrust has been part of the charity village and it was fantastic to meet so many of our incredible supporters. Almost all of our amazing participants have a very personal reason for raising money for brainstrust and it was very inspiring to hear how brainstrust has helped people they love and care for. So far over £7,300 has been raised and we are, as ever, indebted to the efforts of our supporters. I know that fundraising is harder and harder each year, but every year we surpass our targets – so a huge thank you to everyone for making that possible. This year we have 50 places for Run to the Beat, and it will be back in its usual spot in early September, so please come and experience this truly unique event. To find out more, and to register, call us on 01983 292405 or visit www.brainstrust.org.uk/ join-in-events.php

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A day for brain tumour carers

E’VE TEAMED UP with The Brain Tumour Charity www.thebraintumourcharity.org to bring you the first ever day dedicated to brain tumour carers.

The day, on the 27th February, is for people who are looking after someone with a brain tumour.

Love Art. Love Music. Love unplugged. brainstrust was thrilled when the lovely Chris Dallender asked us to be this year’s charity benefitting from funds raised at his annual music and art event – Love Unplugged. The wonderful Love Unplugged team brought together hugely talented artists, musicians, designers and animators for an event that raised a whopping £4000. The event included an exhibition and music fundraiser, where the artist’s guitars were auctioned. Love Unplugged is dedicated to supporting small charities, and raising the profile of artists and musicians in the local area, with not-for-profit live music and arts projects. The music was absolutely brilliant. When we weren’t raising awareness and chatting away at the brainstrust stand in between sets (we had a well-positioned stand between the sushi stand and the bar), we were drinking local beers by candlelight, waving glow sticks and cheering on the bands. The venue – Munro House – in the arts quarter in Leeds, was buzzing and it looked amazing. We LOVED it, and we love Chris and his team. Thank you, Love Unplugged! www.loveunplugged.co.uk  10

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The programme is carefully designed with the carer at heart, and aims to: n Inform carers. n Provide insight into the patient/ carer journey. n Provide opportunities to establish a supportive network. n Support carers so that they feel valued by everyone. n Enable carers to care well.

We’re Hiring! Support Specialist

Sheffield and South Yorkshire (part time) Our aim at brainstrust is to give everyone diagnosed with a brain tumour access to the resources that will put them back in control.  Our coaching based relationship with thousands of brain tumour patients and carers across the UK enables them to develop their own resilience and to utilise brain tumour support resources from all providers to their full potential. Now, thanks to a generous sponsor, we have a great opportunity to start working in a much more focused way, helping people on a regional level. And we’re going to start in Sheffield. But we need your help. Are you a motivated, understanding, tenacious and smiley person with a keen ear? Do you harbour a dream to make things better for people diagnosed with a brain tumour?

Build resilience and a sense of well being in carers.

This is a national first, and is a much needed event for the brain tumour carer community, who we know needs help and support as much as the patient themselves. To see the informative workshop based programme for the day visit www.brainstrust.org.uk. You can register online too, or simply call 01983 292405 and we can answer all your questions.

If so keep reading. We could have the perfect job for you at our small but growing Charity. To find out more, call us on 01983 292405.

Community Fundraiser North of England

We are also looking to grow our fundraising team so that we can raise more funds to help us keep up with the demand for our support services. We are looking for an experienced Community Fundraiser with a friendly face and a good memory for names and faces. You will help manage an ambitious strategy to achieve further growth in voluntary income across the UK. Along with your smile, you must be able to write well, bring an understanding of the needs of brain tumour patients and carers with you, and hold an impressive track record of raising money for charity. Is this you? Hope so! Give us a call on 01983 292405 to find out more.

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We’ve been growing Meet Up communities and starting new ones By Meg

It’s a fabulous group, helpful, friendly and it ❝ feels like you’ve known them for years. Wonderful source of information and help. ❞ Carer, Southampton Meet Up, July 2012

brainstrust Meet Ups have continued travelling around the country. We’ve chatted with so many people that I am bursting with admiration for the inspiring people in our community. Since the last Logbook, we’ve shared suppers with the brain tumour community in Leeds, Cambridge, Southampton, Newport, Sheffield, London, Glasgow and Edinburgh. We are now excitedly planning loads of Meet Ups for 2013! We will continue building the lovely

say ‘hello!’ pop by and get a big pat on the back from us. Brain tumours are rare and we know there isn’t much opportunity to meet others who have been touched by this devastating disease. At a Meet Up, amongst all these people, everyone has something in common. They understand the impact a brain tumour has. In this company, you can share your insights and learn together. Or you can come, enjoy an evening out and talk with new friends about the weather, knowing that everyone around you understands what you’re going through. How comforting is that?

communities that already exist and have Meet Ups in new places too, so hopefully there will be one or two this year near you.

This was our first ❝ brainstrust meet up and

The beauty of Meet Ups is that everyone is welcome, and they are in an informal environment. Patients and carers attend, including those who are currently undergoing treatment, and those who finished treatment a while ago. Families or friends who have lost loved ones come along, and everyone can bring a guest or two. We also encourage clinicians and healthcare professionals to attend Meet Ups, and our fabulous fundraisers who want to

Carer, London Meet Up, October 2012

we were struck by the warmth and openness of this diverse group and to know that we are not alone. Everyone was so willing to share information which is brilliant.

❞

brainstrust announces dedicated counselling service for brain tumour patients brainstrust now offers a dedicated counselling service for brain tumour patients. This is in addition to our unique coaching-led support which has helped thousands of brain tumour patients and carers get back on top of things following a diagnosis.

broader focus and greater depth than coaching. Both Coaching and Counselling are transformative – and we are delighted to be able to offer both absolutely free as part of our extensive support offer’

Helen Bulbeck, brainstrust’s Director of Support Services says:

Jill Prawer, the trained counsellor who will be working with brainstrust’s patients qualified in 1994, and has brought with her some very focused aims for the service. Jill says:

confidential place, and to help them develop strategies for managing their future.’

‘Counselling comes into play in brainstrust when there is too much distress and a psychological intervention is needed. It has a

‘I want to give individuals who are affected in any way by a brain tumour the opportunity to talk through their feelings in a safe and

To find out more about this new, free service simply call us on 01983 292405 or email hello@brainstrust.org.uk

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Upcoming events Month

Date

Event

Location

Month

Date

Event

Location

February

TBTC Patient Info Day

Birmingham

May

Meet Up

Newport Wales

19th

Meet Up

Sheffield

June

8th – 9th

Murder Mystery at Cowes, the Royal Corinthian Isle of Wight Yacht Club

Nightrider – 100k Moonlit Bike Ride

London

23rd

Meet Up

Brighton

March

13th –15th

14th

Meet Up

Birmingham, West Midlands

British Neuropathological Society

London

Everest event Royal Geographic Society

London

Reading

18th

Meet Up

Manchester

TBC

Clay Pigeon Shoot

North Chatsworth, Hampshire

26th 26

TBTC Patient Info Day

Bedford

7th

Lincoln 10K Run

Lincoln

7th –13th

British Neuroscience London Association

Meet Up

Golf Day

Wrexham

14th

Brighton Marathon

Brighton

22nd

Meet Up

Glasgow

Meet Up

Aberdeen

Adidas 10K Forest Trail – Forest of Dean

Hampshire

Meet Up

Bicester

Society of British Neurosurgeons

Sheffield

12th

20th 22 – 24 nd

12 –13 th

July

Lark Rise Off Road Cycle Ride

Northants

24th

Meet Up

Plymouth

9th

Meet Up

Durham

10th –12th

British NeuroOncology Society Conference

Durham

14th

British 10K Run

London

Leeds 10K Run

Leeds

Meet Up

Southampton

London Triathlon

London

York 10K Run

York

Run to the Beat

London

Cardiff 10K Run

Cardiff

27 – 28 August

September

8th 8

October

Great North Run

Newcastle

15th

Bristol Half Marathon

Bristol

TBC

Meet Up

Sheffield

Wear Grey for a Day Nationwide

1st

Meet Ups

Various across the country

6th

Royal Parks Half Marathon

London

Great South Run

Southsea

National Cancer Research Institute

Liverpool

27th November

3 –6 rd

21st – 24th

25th

Edinburgh 10K Run Edinburgh

Edinburgh Half Marathon

Edinburgh

Edinburgh Marathon Edinburgh

Corporate Supporters

National Cancer Brighton Intelligence Network

23rd

London

12th TBC

11th

London

Meet Up

May

Birmingham

Reading Half Marathon

17th

April

brainstrust and The Brain Tumour Charity Carer Day

San Francisco World Federation of Neuro-Oncology/ Scientific meeting of the Society for Neuro Oncology

Key Meet Up

Conferences

Patient Info Day

Event Days

MUCH OF WHAT WE DO wouldn’t be possible without the ongoing help and support of some of our corporate friends. So a big ‘thank you’ for all your help in 2012 to all the lovely people at: Rolex UK ★ Apter International ★ Jagged Globe ★ Brewin Dolphin ★ Ogilvy ★ Jet Airways ★ Bellerby Globes ★ Warrens Stationery ★ Biopharma Technology Limited ★ Hunters ★ Orvis ★ Roxtons ★ John Robinson ★ BE Chaplin (Gunmakers) Limited ★ GMK Limited ★ Island Wine Company ★ The Hambrough ★ The Royal Hotel ★ Love Unplugged ★ Native Space ★ Pro Audio Systems ★ Think Creative ★ Tomy UK ★ Word Room ...and with apologies to those we have inevitably omitted. 12

Logbook 6.indd 12

LO G B O O K : I S S U E 6 – FEB RUARY 2013

11/02/2013 17:52