2013–14 ANNUAL REPORT
SAVOUR LIFE
ETASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL ASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR YOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIA NTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULM EIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYP HROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFE ULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY ISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARC LUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY UTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART NFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME OUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S ENNOX-GASTAUX CP LIMB GIRDLE MUSCULAR DYSTROPHY LIVER FAILURE POSSIBLE NEONATAL EMOCHROMATOSIS METASTATIC MEDULLOBLASTOMA MITOCHONDRIAL ENCEPHALOPATHY ECROTIZED BOWEL WITH RESECTIONS PLUS CARDIAC ARRHYTHMIA NEURONAL CEROID LIPOFU MPHALOCELE PULMONARY HYPERTENSION OSTEOGENIC SARCOMA WITH LUNG METASTASES ALLISTER-KILLIAN SYNDROME PANHYPOPITUITARISM PARTIAL DELETION CHROMOSOME 20 ULMONARY ARTERIAL STENOSIS SEVERE HYPOGLYCEMIA PROPIONIC ACIDEMIAC BERNARD-SO YNDROME PULMONARY HYPERTENSION RELAPSED METASTATIC GASTRIC SQUAMOUS CELL CAR LE ROSAI-DORFMAN DYNDROME END STAGE SMA TYPE 2 STATIC ENCEPHALOPATHY SEIZURE ISORDER SYSTEMIC SCLEROSIS TRISOMY 18 WALKER-WARBURG SYNDROME WILLIAM'S DISEAS CRANIA MULTIPLE CONGENITAL ANOMALIES AICARDI SYNDROME AICARDI-GOUTIERES SYNDRO IDS WITH HIV ENCEPHALOPATHY ALOBAR HOLOPROSENCEPHALY AMINOACID DECARBOXYLASE EFICIENCY AML AMINOACID DECARBOXYLASE DEFICIENCY ANGIOSARCOMA OF HIP WITH PULM ETASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RAS NCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY CO YPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOL YPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHOL USPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELETIO YNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL NOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED NCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUTAR CIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONOM EUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE BROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUBE YNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE
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“As a physician at Canuck Place Children’s Hospice I see just how much courage it takes our children and families to face each new day. At Canuck Place we do everything we can to make each day special. My work is very rewarding. Every day I witness how much families love one another.” —DR. AMY MABIE Canuck Place Children’s Hospice
Canuck Place Children’s Hospice | Annual Report 2013–14
RAL CLEAR AMILIAL E PULMONARY ASIS TYPE II RT DEFECT OPATHY CP OCARCINOMA ENSORY HEART OSOME 15 TON'S DISEASE ONATAL THY LIPOFUSCINOSIS TASES E 20 RD-SOULIER LL CARCINOMA ZURE DISEASE SYNDROME XYLASE H PULMONARY AL RASMUSSEN'S HY COMPLEX C CHOLESTASIS CHOLESTASIS DELETION NITAL TED GLUTARIC UTONOMIC NTILE JOUBERT EASE
3
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Canuck Place Children’s Hospice | Annual Report 2013–14
Fa m
d.
Courage lives here … At Canuck Place Children’s Hospice (CPCH) we give children and families the tools to live in the moment, in the hospice and in their home communities. We believe the end of life should be lived as fully as the beginning. We are British Columbia’s recognized pediatric palliative care provider. Over 560 newborns, children and teens with life-threatening illnesses and their families receive care from CPCH through outreach programs and two provincial hospice
locations; Vancouver and Abbotsford. Services include clinical respite and family support, pain and symptom management, 24-hour phone consultation support and in-house clinical care, art and education, recreation therapy, grief and loss counselling and end-of-life care. Through the investment of the community, our talented team, and over 325 energetic volunteers, we make a lasting difference in the lives of children and the families who love them.
REPORT FROM OUR BOARD CHAIR + CEO 2013-14 Annual Report Letter from John Nicola and Margaret McNeil Canuck Place Children’s Hospice (CPCH) is making a difference for BC’s children and families. Canuck Place provides care for children with life-threatening illnesses in our two provincial hospice locations and in their home communities, empowering them to celebrate each moment, build precious memories and manage the pain and symptoms of their illnesses and conditions. As British Columbia’s recognized pediatric palliative care provider, we play an important role in the health care system. Not only do we provide end-of-life care, but we work with families throughout the entire span of a child’s life from the point of diagnosis through the progression of the illness. Canuck Place provides education, art, recreation therapy, counselling including music and play therapy, much-needed family and child respite, and 24-hour clinical care. The specialized range of services and professional, dedicated staff support the challenging transition families must make as they face the tragic and unnatural circumstance of losing their child. Programs extend to the entire family; parents and siblings receive counselling support. Our expert clinicians care for over 160 different diseases and conditions and administer over 150 medications. In 2013-14 we provided specialized care to over 560 children and families from across BC. Our organization faced a challenging increase of 77% deaths on program and a 31% increase in nursing and physician consults in patients’ homes, in hospitals and over the phone to parents and caregivers who needed support from across BC. How do we meet the growing need? Our goal is to double the amount of provincial pediatric palliative care beds as we are currently only meeting 20-25% of the provincial need. We know we can’t do it alone. Canuck Place and the children and
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This last year saw us celebrate the Phase Two opening of our Four-Phase plan at our second provincial pediatric palliative care hospice, Dave Lede House, located in the Fraser Valley. Our community services The end of life should be team is providing recreation therapy, grief and loss counselling and nursing consults in patient as fully as the beginning. homes, in hospitals and in the community. Our Fraser Valley development team is hard at work to furnish the Abbotsford location to move into Phase 3 in 2016 where we will see partial opening of our patient beds and family suites. Gratitude is a theme at our organization. We see it every day in the faces of parents, siblings and children in our care. It inspires the entire staff at Canuck Place. Our nurses, physicians, counsellors, therapists and support team are grateful to witness the love of a family and the special moments that emerge through challenging, life-altering experiences. We are grateful for the incredible donor community that has allowed CPCH to thrive for almost 20 years and fill a critical role in BC’s care of children with life-threatening illnesses. At Canuck Place we believe the end of life should be lived as fully as the beginning. Especially for BC’s kids with life-threatening illnesses and the families who love them. With gratitude, JOHN NICOLA
MARGARET McNEIL
Board Chair
Chief Executive Officer
lived
Canuck Place Children’s Hospice | Annual Report 2013–14
families we care for are so thankful for the donors, supporters, partners and friends who generously have lifted this organization and are committed to our future.
Grief + Loss Counselling
The Ross Family.
THE ROSS FAMILY FINDING HOPE “How do you raise a child you know is going to die?” asks mother Amy Ross. “How do you find comfort and meaning and build a life and a family around such a reality? Why us? These were the questions my husband and I pondered after our little Gabrielle was born in October 2010 with a terminal genetic disorder called I-Cell. Canuck Place filled us with so much hope. “After three years of being with us, Gabrielle passed away at Canuck Place. Hope is not a long life. We couldn’t cure our daughter. All we could do was
love her and be the best parents we could be. Hope was knowing we had somewhere amazing to take Gabrielle for respite and for her final days in peaceful surroundings with her three brothers. She taught her three brothers about empathy and she helped us, and everyone she met, put things into perspective. Hope was knowing that my little angel was having her pain managed and finding peace even when she was sick. Hope for our family now is receiving bereavement counselling from Canuck Place and finding meaning and steps to move forward through incredible loss.”
SURREY
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The Ismirnioglou Family.
THE ISMIRNIOGLOU FAMILY FULFILLING A WISH “In December 2009 Joshua was just 11-years old when he was diagnosed with rhabdomayosarcoma. After a relapse in 2012, Canuck Place managed Joshua’s care. Joshua’s pain and symptom care stays at Canuck Place meant we could all be together. Our daughter Monica was able to keep up with her schooling and spend time with her brother Josh. “When Joshua’s illness progressed in 2013, he really wanted to be in our home surroundings. Canuck Place provided
home visits from nurse practitioners to support the medical care in our home. CPCH nurse Camara came the day Josh was having a hard time breathing. She took over Josh’s medical needs and I was able to just be his mom and hold him in my arms until his last breath. This was the greatest gift I ever received. Canuck Place allowed Josh to be in his home, his happiest place, and we were able to support Joshua in his wish to be where he was happiest.”
ABBOTSFORD
Canuck Place Children’s Hospice | Annual Report 2013–14
End-ofLife Care
Respite Care
Sam Treschow and his younger brother, Paul.
THE TRESCHOW FAMILY SURVIVING A CRUSHING LOSS Jill and Michael’s son Sam was diagnosed with Duchenne Muscular Dystrophy (DMD) at the age of seven and the family spent many years receiving respite and pain and symptom management through Canuck Place. The family received devastating news when Sam was diagnosed as a teen with cancer. The family, including younger brother Paul, spent the last weeks of Sam’s life at Canuck Place. “I know, deep in my heart, the big role that Canuck Place plays in the recovery
of parents and families from a terrible emotional, mental, and physical toll,” says Michael. “Losing one’s child is a crushing loss. Watching your child go through two terminal illnesses is an unspeakable anguish. The care Canuck Place provided Sam and our family during his illness and death still ripples out in our lives. How sweet for Jill and I to now watch our other son finding his way, becoming ever more magnificent. How much do we owe Canuck Place for that sight? It’s incalculable.”
KELOWNA
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The Hernandez Family.
THE HERNANDEZ FAMILY DOING EVERYTHING THEY CAN Little Mason Hernandez was born with a brain stem abnormality and Moebius Syndrome, an extremely rare congenital neurological disorder. He and his parents, Reynaldo and Melanie along with younger brother Perry, were referred to Canuck Place in 2011 for respite and pain and symptom management. “Canuck Place guides us through all of Mason’s care,” Reynaldo explains. “Everything from care plans to
medication. It gives us a sense of normality.” Perhaps most importantly, Canuck Place has allowed this family to be just that – a family that spends time together. “Canuck Place has given us the opportunity to enjoy time with Mason,” says Reynaldo. “It’s also let Mason just be a kid, instead of a kid with special needs. As a father, I often think, ‘Am I doing everything I can for him?’ Canuck Place has given me that confidence. It has allowed us to be parents and a family.”
SURREY
Canuck Place Children’s Hospice | Annual Report 2013–14
Pain + Symptom Care
CHANGE MAKERS
$1.7 MILLION
HOCKEY FAN LEAVES A LEGACY FOR CANUCK PLACE Canuck Place Children’s Hospice is extremely honoured to recognize June Adeline Butler, who generously left a legacy of over $1.7 million to benefit children with life-threatening illnesses and their families. June was born in Ontario and passed away in February 2011 in Vancouver. Her passions included reading, giving books to others (especially children) and listening to Vancouver Canucks games broadcast by Jim Robson on the radio.
June’s incredible gift will be used to support various pediatric palliative care programs at CPCH such as our resource library and expressive therapies, and will ensure that Canuck Place can continue to provide a vital lifeline to BC’s children and families in their greatest time of need. Our heartfelt thanks and utmost gratitude to June Butler and her family. If you are interested in leaving a legacy gift in your will to Canuck Place, please contact us at 604.731.4847.
11 Canuck Place Children’s Hospice | Annual Report 2013–14
Canuck Place Recreation Therapist, Amy Wightman and Team Canuck Place’s Jenna Prem.
TEAM CANUCK PLACE – KIDS CARING FOR KIDS Making memories is an important part of Canuck Place Children’s Hospice and the spirit and creativity of one 12-year-old has helped many families do just that. When Jenna Prem was eight-years-old, she had an opportunity to give to an organization of her choice for Christmas. Jenna carefully selected CPCH and immediately set to work on a bake sale. By canvassing her local grocery stores around Cloverdale for donated baking supplies, Jenna and her mom teamed up and, over the course of three weeks, baked Nanaimo bars, chocolate haystacks, shortbread and tiger butter. These home-baked treats were in turn sold and hand-delivered to friends and family by donation and hundreds of dollars were raised.
Jenna however did not stop there. With the funds raised, she took her contribution one step further by purchasing a variety of gift cards for the movies, restaurants and activities like Build-A-Bear to provide outings for the families of CPCH to make memories together. This annual tradition, now in its fifth year, has garnered her classmates support and they will all be baking to help have a larger impact. “Canuck Place lets families be together,” said Jenna. And with Jenna’s help, families on the provincial program can create new memories together in the process. Thank you, Jenna, for being a Change Maker for CPCH.
B e co m
on e str
om g fr
bro
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l np
ac
es
.
CHANGE MAKERS
Team M&P Mercury.
COMMITTED TO MAKING ONCE-IN-A-LIFETIME EXPERIENCES POSSIBLE M&P Mercury and the Annual Sea Ray Rendezvous For the team at M&P Mercury, business is all about people and giving back to the community. Partnering with Canuck Place six years ago, M&P Mercury have hosted the Annual Sea Ray Rendezvous for their customers on the Labour Day weekend. Since 2007 this event has raised over $70,000 for Canuck Place. “Once you have visited Canuck Place and seen the invaluable work that happens daily to bring families together to cherish every moment available and then also to help those left behind to move on with their lives after great tragedy, what else can a person do but offer support?” asks Bob Pappajohn, President of M&P
Mercury. “It is heartbreaking to know that some children have such short lives and so little time to experience the world and be with their family and friends. Canuck Place fills a deep need to make every moment count for every child they care for, and this is absolutely worth supporting.” Creating this event and helping Canuck Place is all about teamwork for employees at M&P Mercury. “We work in an industry that sells experiences and brings people together” says Pappajohn. “Taking time to give back to Canuck Place reminds us that we are working towards a common purpose of helping people make the most of all the little moments of their lives.”
13
Darlene Edvall of Penticton, BC.
MONTHLY DONOR PROVES A LITTLE GOES A LONG WAY For over 17 years Penticton resident Darlene Edvall has committed funds each month to Canuck Place. When she first began giving she was a single mom with two kids in their early teens. She didn’t have a lot to give. “Things were tight,” said Darlene. “I was watching TV and Trevor Linden made a heartfelt plea for support. Number 16 was something of a hero to me, and when he spoke about the kids and their determination to fight on, to enjoy their lives day by day, and the courage of both the kids and their families, I thought about how I would feel if one of my kids was sick and was living at the hospice.” Darlene understood the power of longterm commitment. “At first, I was just going to give a single donation, but I decided to make it monthly, no matter
how little I could afford, because the need would be ongoing. I also thought it would be easier for Canuck Place as a nonprofit to plan for the future knowing they would be receiving a regular donation.” Darlene started and, with her big heart, just keeps on giving. She made the decision to select Canuck Place as a beneficiary of her will. “I believe in the work they do at Canuck Place and how they help children and their families. I want to continue to help, even when I am no longer around to make monthly donations. As I said, the need will sadly, always be with us, and Canuck Place helps ease the pain, fears and makes the unbearable a little easier to bear. This is such a worthwhile purpose, I can’t imagine not wanting to help.”
—ERIC STEPHANSON CPCH Spiritual Care Leader
Canuck Place Children’s Hospice | Annual Report 2013–14
Photo Credit: Rachael Ryder
“We can feel so weak and small and broken, yet sometimes experience breakthroughs of insight, light, and wholeness which seem incongruous with our loss and grief. One mom said to me, ‘My life has changed forever — for the good — because of the suffering of my daughter, and I don’t know how to get other people to understand me. I have felt most alive in the worst time of all!’’
CHANGE MAKERS
Paul Dunstan, President of Plenary Group NA and his wife and CPCH volunteer, Kate.
SUCCESS IS ABOUT GIVING BACK AT PLENARY GROUP The corporate culture at Plenary Group dictates that being successful in today’s world carries a great responsibility to provide for others. The Plenary Group strives to give back to the community in many ways, financially or through their employees volunteering their time. “Supporting Canuck Place is particularly important to us,” says Paul Dunstan, President of the North American operations of Plenary Group. “Facing a serious illness is the most challenging issue any person has to handle. When a child has to go through it, it is both
an honour and an opportunity to provide support to those children and their families through a wonderful organization like Canuck Place.” Paul’s wife, Kate, has been a volunteer with the Gift of Time Committee and at the hospice. “We have four children of our own,” says Paul. “Canuck Place is particularly close to our hearts. We went through a difficult period when one of our children was quite ill. Kate and I were deeply appreciative of the support we received from the community and want to give back in whatever way we can.”
15 Canuck Place Children’s Hospice | Annual Report 2013–14
PROVINCE OF BRITISH COLUMBIA: IT TAKES A TEAM TO MAKE CARE POSSIBLE
les.
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Canuck Place is grateful for the support of the Province of British Columbia.
gigg
These funds have fluctuated between 20% and 35% of Canuck Place’s overall funding and had a positive impact on CPCH delivery of services at no cost to families who are in need of specialized care.
It takes a team to make pediatric palliative care a reality in our province. Through the fundraising efforts of our organization and the support of generous individuals, organizations, and corporate partners, Canuck Place delivers exemplary quality care essential for children with life-threatening illnesses.
Lou d
Since 2000, five years after Canuck Place opened its doors, the Province of British Columbia through the Ministry of Health and other ministries, provided annual grants to support a portion of the clinical care programs provided to children and families across BC.
WHO WE ARE
children on our program. I am so grateful for the opportunity to get to know the children and their families through the months and sometimes years they are on the Canuck Place program.”
TAKING ON CHALLENGES: CANUCK PLACE PHYSICIAN DR. PETER LOUIE Pediatric palliative care specialist, Dr. Peter Louie plays a key role in caring for patients at Canuck Place and also coordinates the rotations of fellows, pediatric residents and medical students. His smile and genuine care is always felt inside the hospice. Dr. Louie was drawn to Canuck Place because of the multi-disciplinary team structure and challenges of intricate care. “I really enjoy the complexity of pediatric medicine we encounter through the conditions and diseases presented by the
Dr. Louie has been deeply moved by the commitment and dedication of the families who care for their children. “The complexity of care of the children on our program is daunting even to most physicians. When the kids are not in our care they are in their own homes, all over this province. Parents must provide care 24/7. I am always aware that as a physician, my shift ends, but for families this is not the case. That is why the Canuck Place program is so important for these children and their families. Canuck Place plays an important function in the health care system through the care provided to children with lifethreatening illnesses.” Being a part of the Canuck Place clinical team has taught Dr. Louie important skills. “From our nursing and counselling team I have learned how to better communicate to families during challenging situations. I have learned to be both comforting, to be present and to provide hope in unimaginable circumstances.”
PHYSICIANS
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GIVING BACK AND SHAPING A FUTURE: CANUCK PLACE VOLUNTEER MATT SMYTH From an early age, Matt Smyth knew he wanted to help others. He patiently waited to apply and at 16 was on board with Canuck Place Children’s Hospice. This is when he discovered his passion for the organization. “In my first year, I volunteered once every other week but I realized early on that just wasn’t enough,” said Matt. “From that point forward, we made sure I was here every week.” Matt has filled his weekly shifts over the past six years with a variety of roles
Canuck Place Children’s Hospice | Annual Report 2013–14
including Peer Volunteer, Family Volunteer and now as a Bereavement Volunteer. To move into this role, Matt completed 34 hours of additional hospice training – a significant commitment to CPCH that also demonstrated his eagerness to learn and expand his skill set. Since completing his training, Matt is regularly involved in the bereavement groups, assisting in activities that help get siblings on the program to open up. For Matt, the biggest reward is watching them grow throughout their year in the bereavement program. “These kids spend 99.9% of their time as the only kid they know who has had a brother or sister die. When they enter this program, instead of being isolated in that experience, they are in a room full of kids that are in a similar situation and there is comfort in that.” The time Matt has contributed through his volunteer work has also shaped his future. This year he will enter the medical program at UBC. Through his work at CPCH, Matt realized the importance for him to enter a profession where he can have a direct impact on the people he cares for. “I feel so thankful to volunteer for Canuck Place. It’s made such an impact on my own life.”
VOLUNTEERS
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WHAT WE DO
CANUCK PLACE CHILDREN’S HOSPICE — PHASED PLAN DAVE LEDE HOUSE — ABBOTSFORD 1 Building Completion/Takeover 2 Community Centred Services 3 Community and Partial In-patient Services 4 Full Operations
1
19
2
3
4
1
2
3
PHASE 1 BUILDING TAKEOVER January 2014 — COMPLETED
PHASE 2 COMMUNITY CENTRED SERVICES Phase 2 of Canuck Place Children’s Hospice – Dave Lede House — Abbotsford on the Dave Lede Campus of Care began in spring of 2014. During Phase 2 the hospice began operating community-centred services. That means consultation visits by physicians, nurses and counsellors in hospitals and homes, individual and group grief and loss support, and recreational therapy for children and families registered in the program. Children and families will continue to have support from the Vancouver location, including access to hospice admissions, and the 24-hour phone consultation support.
4
1
2
3
4
1
2
3
4
PHASE 3 COMMUNITY AND PARTIAL IN-PATIENT SERVICES 2016 Phase 3 of the Province’s second pediatric palliative hospice in Abbotsford will include the progressive opening of an additional 9 patient beds for children and families in BC. Initially, Canuck Place will operate 4 of these beds. Children and families will be admitted for stays for respite and family support and pain and symptom management.
PHASE 4 FULL SERVICES 2017 Phase 4 will see full occupancy and operation of all programs at the Abbotsford location. With the second hospice operating full services, Canuck Place will have 18 patient beds and 9 family suites available to care for our Province’s children and families through the two locations.
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2014-15
Canuck Place Children’s Hospice | Annual Report 2013–14
2013-14
ie s
are made.
WHAT WE DO
DISEASE QUADRANT OUR PROGRAM
Canuck Place Children’s Hospice is British Columbia’s recognized pediatric palliative care provider. Children who are cared for at Canuck Place have the following diseases and conditions:
QUADRANT 1
QUADRANT 2
Life-threatening conditions for which curative treatment may be feasible but can fail.
Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities.
Examples: · cancer · irreversible organ failure
Examples: · cystic fibrosis · HIV/AIDS
QUADRANT 3
QUADRANT 4
Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years.
Irreversible but non-progressive conditions with severe disability susceptible to health complications and premature death.
Examples: · neurodegenerative · metabolic diseases
Examples: · anoxic brain injury · severe cerebral palsy
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Families who have a child diagnosed with life-threatening illness have unique challenges and paths. This illustration depicts a possible family journey and the programs and care Canuck Place provides.
1
• Life-threatening diagnosis
• Recreation therapy
• Newborns to 19 years old
• Counselling, play and music therapy
• Referral to CPCH • Eligibility reviewed
4
• Education and art • 24-hour medical consultation phone line • Mobile clinical care team
2
• Admission and intake to CPCH • Child-centred, family-focused — integrated clinical team planning and care
5
• End-of-life care • Memory making
6
• 24-hour in hospice clinical care
3
• Pain and symptom management care • Respite for families in our family suites — care for children on our clinical floor
THE INVESTMENT
A lifetime of difference for families facing unimaginable circumstances
• Bereavement and loss counselling for parents, siblings and families — for as long as support is needed • CPCH family events
Canuck Place Children’s Hospice | Annual Report 2013–14
A FAMILY JOURNEY AT CANUCK PLACE
CLINICAL OUTCOMES
CHILDREN AND FAMILY ON CPCH + FAMILIES PROGRAM BYCHILDREN BC HEALTH REGION: 2013
ON CPCH PR BY HEALTH REGION: 2013
28
19
FRASER
51
VANCO
INTERIO
76
264
NORTH
CHILDREN + FAMILIES ON CPCH PROGRAM 129 BY HEALTH REGION: 2013 28
19 FRASER HEALTH
51
VANCOUVER COASTAL HEALTH INTERIOR HEALTH
264
76
VANCOUVER ISLAND NORTHERN HEALTH
129
VANCO
OUT OF PROVINCE + UNKNOWN ADDRESSES
OUT OF + UNKN
Un
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nal
23
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2% 2%
CNS CONDITION
8% 27% 11%
NEUROMUSCULAR ONCOLOGY/CANCER
Canuck Place Children’s Hospice | Annual Report 2013–14
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DIAGNOSTIC CATEGORIES FOR CHILDREN DIAGNOSTIC CATEGORIES FOR CHILDREN ON CPCH PROGRAM: 2013 ON CPCH PROGRAM: 2013
CHROMOSOMAL/MULTI-ORGAN METABOLIC/BIOCHEMICAL
16%
STIC CATEGORIES FOR CHILDREN ON CPCH PROGRAM: 2013 17%
17%
CNS CONDITION
27%
NEUROMUSCULAR ONCOLOGY/CANCER CHROMOSOMAL/MULTI-ORGAN METABOLIC/BIOCHEMICAL
17%
CARDIOPULMONARY IMMUNOLOGIC/INFECTIONS OTHER
CARDIOPULMONARY IMMUNOLOGIC/INFECTIONS OTHER
5
0
7
2
2
CONGENITAL SYNDROMES
10
(Compared to 48 in 2012 – 13 FYE)
NEUROMUSCULAR
10
TOTAL DEATHS 2013 – 14: 85
IMMUNOLOGIC-INFECTIONS
15
18
METABOLIC/BIOCHEMICAL
19
INCREASE IN DEATHS CARDIOPULMONARY
20
26
77% CNS CONDITION
25
CHROMOSOMAL/MULTI-ORGAN
30
ONCOLOGY/CANCER
CLINICAL OUTCOMES
TOTAL DEATHS ON PROGRAM BY DIAGNOSTIC GROUP 2013-14
1
25
There were 1,262 consults in-home, in-hospital, and via phone in 2013 by CPCH pediatric palliative care physicians and advanced practice nurses. CPCH
Canuck Place Children’s Hospice | Annual Report 2013–14
CLINICAL PEDIATRIC PALLIATIVE CARE MOBILE CONSULTATIONS: 2010-2013 provides care and support for families all over the province, remote and urban locations – just where families need help the most.
1400 PHONE CONSULTATIONS
1200
1000
600
humanity. Livin
200
e s s of
400
Full n g in
un
IN-HOME + HOSPITAL CONSULTATION VISITS
Number of Consultations
800
ce
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ty .
in
0 2010
2011
2012
2013
CLINICAL OUTCOMES
BEREAVED SIBLING AND PARENT GROUP SUPPORT
718
Attendance by bereaved families at CPCH counselling programs in 2013
BEREAVED SIBLING SUPPORT GROUP ATTENDANCE
260
The work of the counselling team is to provide support to children and families through all the different stages of their personal journey. Using skills from the disciplines of social work, spiritual care, expressive therapies (art, play and music) and recreational therapy, the counselling team works to come alongside children and family members
Attendance at CPCH bereavement support group in 2013 by siblings who had lost a brother or a sister
in a way that is supportive of their relationships and background. Depending on each family’s unique circumstances, members of the counselling team offer many different forms of support. Many Canuck Place parents report that participation in the support groups decreases their feelings of stress and isolation.
27
Canuck Place Children’s Hospice’s recreation therapy Summer in the City, Teen Camp and Family Camp programs provide opportunities for children with life-threatening illnesses, their siblings and parents to participate as a family in adventure activities such as waterparks, ziplining, visits to farms and bug zoos and ceramic painting (to name a few). Summer in the City takes place across BC in the Okanagan, Victoria, Vancouver, Abbotsford, North Vancouver and Chilliwack. Teen Camp and Fall Family Camp take place in Squamish.
2013-14 CHILDREN, FAMILY + SIBLINGS PARTICIPATION IN CAMPS AND SUMMER IN THE CITY PROGRAM
Canuck Place Children’s Hospice | Annual Report 2013–14
EXPERIENCES TO REMEMBER
29 Canuck Place Children’s Hospice | Annual Report 2013–14
Life
is no
t mile
s to n e s
— i t i s m o m e nt s .
FINANCIALS 2013–14
REPORT FROM THE AUDIT + FINANCE COMMITTEE During the fiscal year ended March 31, 2014 we were very close to achieving our general fundraising targets and extremely fortunate to have received a special $2 million grant from the Province of British Columbia in addition to ongoing funding from the Ministry of Health. CPCH is also grateful to be the beneficiary of bequests from the estates of individual supporters. Receipt of several significant one time bequests was the primary reason our total revenue exceeded our budgeted revenue by $1.5 million for the year. We have again demonstrated our ability to keep expenses under tight control which resulted in our actual operating expenses coming in $260,000 less than budget. We recognize the need for substantially higher levels of revenue generation in the near future to support the significant increases in expenditures that will be necessary to operate our second provincial hospice in Abbotsford. Achieving this will allow us to provide our services to a greater proportion of the children and families of BC who need them.
Our budgeted surplus for year ending March 31, 2014 was $298,000. However, with unexpected one-time bequest revenue of $1.5 million and expenditure savings of $260,000, we ended the year with a surplus of just over $2 million. Carrying forward this surplus will assist us in moving forward with our fourphased plan to make Dave Lede House in Abbotsford fully operational. CPCH continues to develop sustainable fundraising programs using multiple strategies, events and donor development. All funds generated are carefully stewarded and operational plans and expenditures are controlled to ensure we operate within the capacity of our revenue generation. R. THOMAS BURLEY, FCA Chair, Finance and Audit Committee Treasurer, CPCH Board of Directors
JOAN HILL, CA Director of Finance, Facilities and IT
31
FINANCIAL HIGHLIGHTS STATEMENT OF FINANCIAL POSITION
31 MAR 2014
31 MAR 2013
ASSETS
Current assets
$5,922,347
$6,046,930
Capital assets
$15,962,552
$11,763,502
$21,884,899
$17,810,432
$2,896,047
$3,660,459
TOTAL ASSETS LIABILITIES + NET ASSETS
Current liabilities Obligations under capital lease Deferred capital contributions
51,086 11,532,608
7,015,569
7,405,158
7,134,404
$21,884,899
$17,810,432
$7,381,502
$6,874,409
4,081,682
1,996,655
Canuck Place Children's Hospice Foundation
130,000
136,765
Interest and other
112,050
114,912
TOTAL REVENUE
11,705,234
9,122,741
6,652,755
6,095,520 1,880,870
Net assets TOTAL LIABILITIES + NET ASSETS STATEMENT OF OPERATIONS REVENUE
Donations Province of BC
EXPENSES
Staffing costs (including physicians, nurses, other) Direct program expenses
1,913,101
Marketing and promotion
132,297
91,674
Regulatory, administration and other
489,585
426,984
Amortization
446,742
301,534
TOTAL EXPENSES
9,634,480
8,796,582
Contributions to Canuck Place Children's Hospice Foundation
1,800,000
496,306
SURPLUS / (DEFICIENCY) OF REVENUE OVER EXPENSES
$270,754
$(170,147)
The complete Canuck Place Children’s Hospice Society financial statements audited by KPMG LLP Chartered Accountants and from which this summary is extracted, are available upon request and on www.canuckplace.org. As all charities are required to do, we report additional financial information to the Canada Revenue Agency in our annual tax return.
Canuck Place Children’s Hospice | Annual Report 2013–14
CANUCK PLACE CHILDREN’S HOSPICE SOCIETY
FINANCIALS 2013–14
FINANCIALS
CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION UNAUDITED FINANCIAL HIGHLIGHTS STATEMENT OF FINANCIAL POSITION
31 MAR 2014
31 MAR 2013
Current assets — investments
$6,021,990
$4,172,122
TOTAL ASSETS
$6,021,990
$4,172,122
Net assets
$6,021,990
$4,172,122
TOTAL LIABILITIES + NET ASSETS
$6,021,990
$4,172,122
$150,570
$151,865
1,800,000
496,306
Interest and other
51,277
56,131
TOTAL REVENUE
2,001,847
704,302
21,980
13,973
130,000
136,765
$1,849,867
$553,564
ASSETS
STATEMENT OF OPERATIONS REVENUE
Donations Contribution from Canuck Place Children's Hospice Society
Regulatory and administration Contribution to Canuck Place Children’s Hospice Society SURPLUS OF REVENUE OVER EXPENSES
“ Children want to live, to experience new things, to discover friendships which matter; they are best supported through play or schoolwork or outings which give opportunity for relational support and friendship. The most important element of care in a hospice for children is the quality of relationships. This reflects an essential spiritual value of what it is to be human.” —CPCH COUNSELLOR
33 Canuck Place Children’s Hospice | Annual Report 2013–14
CANUCK PLACE CHILDREN’S HOSPICE SOCIETY
SOURCE OF FUNDING: 2013–14
SOURCE OF FUNDING: 2013–14
INTEREST + OTHER
PROVINCE OF BC
1%
35%
64%
DONATIONS
SOURCE OF DONATIONS: 2013–14
SOURCE OF DONATIONS: 2013–14
CFKF * GIFT OF TIME GALA
1%
INTEREST + OTHER
6% 9%
ANNUAL GIVING
INDIVIDUAL, CORPORATE + COMMUNITY
35%
11%
PROVINCE OF BC
15% 23% PLANNED GIVING
*CANUCKS FOR KIDS FUND
FINANCIALS 2013–14
USE OF FUNDS FOR PATIENT CARE: 2013–14 Through all stages of a child’s illness, an individual program is designed to meet the needs of each family. Services include 24/7 physician and nursing support and consultative services,
RECREATION THERAPY
3% 3%
end-of-life care, pain and symptom management, respite care, school, music and play therapy, recreation therapy and counselling. Use of funds for patient care costs include the following:
VOLUNTEER SERVICES
COUNSELLING
7% FACILITIES + GARDEN
FOOD SERVICES + HOUSEKEEPING
8% 10% 69% CLINICAL CARE NURSING + PHYSICIANS
bl ta
fo r
m
co
Learn t
ob
o ec
ort mf
ab
le
—
i be
ng
un
“The thing I love most about Canuck Place is that the whole family is cared for by the whole staff and the volunteers.” —CPCH PARENT
69%
10%
CLINICAL CARE NURSING + PHYSICIANS
FOOD SERVICES + HOUSEKEEPING
•
Clinical care nursing
•
•
Physicians
Provide nutritional and dietary meals for the children and families
•
Respite
•
Ensure the hygienic needs of the children and families are met
•
Pain and symptom management
•
•
Medicine, medical supplies, pediatric medical equipment
Provide additional comfort and support to family members throughout their stay
•
Clinical mobile consultations
•
24-hour BC-wide patient care hotline
7%
8%
FACILITIES + GARDEN •
Providing a home-like, comfortable atmosphere
•
Fully wheelchair accessible
•
The residence is surrounded by beautiful gardens
3%
3%
COUNSELLING
RECREATIONAL THERAPY
VOLUNTEER SERVICES
Counselling services are available to parents, siblings, loved ones and the child, to assist them in finding the courage and resources to cope with their challenges both during the child’s illness and after their child dies.
Recreational therapy is an immensely important aspect of Canuck Place’s integrated care.
Canuck Place volunteers provide care and support in the following areas:
•
Full-time recreational therapist
•
Family volunteer
•
Exciting and age-appropriate excursions for the children
•
Peer volunteer
•
Reception volunteer
•
Kitchen volunteer
Excellent on-site play and recreational facilities
•
Garden volunteer
Snoezelen room — a multi-sensory room
•
Indoor/Outdoor maintenance volunteer
•
Counselling and grief support
•
Equipped vehicles to transport children in wheelchairs
•
Spiritual care
•
Social work
•
Expressive therapies
•
School program
•
Housekeeping volunteer
Art program
•
Volunteer driver
•
• •
Canuck Place Children’s Hospice | Annual Report 2013–14
e.
35
SUPPORT
Canuck Place Children’s Hospice gratefully acknowledges the following organizations and individuals for their generous support of CPCH programs and services in the 2013-14 fiscal year. *DECEASED
GIFTS FROM ORGANIZATIONS $1,000,000 +
Dave Lede Family Charitable Foundation
The Giving Tree Foundation of Canada
Pan Pacific Whistler
HomeLife Benchmark Realty
Playtime Gaming Inc.
Ledcor Group of Companies
Lafarge Canada Inc.
Province of British Columbia
May and Stanley Smith Charitable Trust
$500,000 – $999,000
Canucks For Kids Fund
Nicola Wealth Management Ltd. Nuheat Industries Limited
$100,000 – $499,999
Plenary Group
Brookside-Hershey Canada Inc.
Tamara Foundation
TELUS
TD Bank Financial Group
Trans-Continental Textile Recycling Ltd.
The Sutherland Foundation Inc.
Under The Same Sun Foundation Variety — The Children’s Charity
The Valley Feed Bag, Inc. W J Weaver Foundation
Patrick Roberge Productions Inc. RBC Foundation Ritchie Bros. Auctioneers Robert L. Conconi Foundation Summit Sheet Metal Ltd. Super Save Group The J.W. McConnell Family Foundation The Radcliffe Foundation UPS Foundation, Inc. The Vidalin Family Foundation Vitalus Nutrition Inc.
Bow before the mystery that is
life. Liv
e i n ra dical
ama ze m
YVR for Kids
Westmont Hospitality Canada Limited
$50,000 – $99,999
$10,000 – $24,999
BC Bakery & Deli Foundation
Aldergrove Financial Group
Goldcorp
ATI Telecom International
H.P. Construction Ltd.
BCLC
London Drugs Foundation
Bedrock Granite Sales Ltd.
PricewaterhouseCoopers
BMO Bank of Montreal
RBC
Canadian Direct Insurance
Rempel Bros. Concrete Ltd.
CIBC Children’s Foundation
Richmond Auto Mall
CIBC
Snow Cap Enterprises Ltd.
Country 107.1
True Direction Foundation
Empire Masonry Ltd.
$25,000 – $49,999
Gallagher Bros. Contractors Ltd.
Apex Exteriors Ltd.
The Howard Foundation
Edgewater Casino Limited Partnership
Ecotex Healthcare Linen Service Inc.
Mardina Construction Ltd.
Electronic Arts (Canada) Inc.
Musgrave Group
Epic Entertainment Corp.
Wal-Mart Canada Corp. $5,000 – $9,999
593123 Alberta Ltd. Accenture Ltd. Allmar Social Committee AMB Holdings Ltd. The Andrew Mahon Foundation Aqueduct Foundation — Nighthawk Fund Canucks Sports & Entertainment Celtic Cross Charitable Foundation Clearbrook Iron Works Costco Wholesale Canada Ltd.
e nt .
THANK Y
37
BC Hockey Benevolent Foundation
GLI Test Labs Canada ULC
Olympic Dairy Products Ltd.
General Glass Industries Ltd.
Best Buy Canada Ltd.
Greygates Foundation
One City Window Cleaners
HAB Family Foundation
BMO Investments Inc.
H.Y. Louie Co Ltd.
Little Hugs Big Hearts Foundation
Bosa Properties (104) Inc.
HealthPlus Pharmacy
Onni Property Management Services Ltd.
MacKay CEO Forums
Bradner Homes Ltd.
Holland America Line
Marshall Aerospace Canada Inc.
British Columbia Institute of Technology
Innovative Fitness Consultants Inc.
British Columbia Wall & Ceiling Association
Jason Soprovich Realty Inc.
Morguard Investments Limited Naked Eye Enterprises Provincial Employees Community Services Fund
Canadian Western Bank
Island City Baking Co. Jericho Foods Jones Food Store Equipment Ltd.
RBC Dominion Securities Inc. — Abbotsford Branch
Centaur Products Inc.
Retirement Concepts The Sook Ching Foundation
CGI Information Systems & Management Consultants Inc.
The Djavad Mowafaghian Foundation
Compugen Inc.
Kintec Footlabs Inc.
Dayhu Investments Ltd.
Labatt Breweries of Canada
Deloitte & Touche Foundation Canada
Ledgir House Ltd.
The R K Grant Family Foundation Vancouver Minor Hockey Association
Centennial Foodservice
K&H Dispatch Co. Ltd. Ken and Eva Hansom Fund Kerrisdale Equipment Ltd.
Dr. Dennis Lee Inc.
Opus DaytonKnight Consultants Ltd. Ouest Business Solutions Inc. Pace Processing Pemberton Leasing Services Ltd. Phoenix Structural Design Ltd. Piteau Associates Engineering Ltd. Puratos Canada R.C. Purdy Chocolates Ltd. RBC Capital Markets RBC Global Asset Management ReMax Sabre Realty RepliCel Life Sciences Inc. Revera Retirement LP Rogers Foods Ltd.
DIGI Canada Inc.
Leon Judah Blackmore Foundation
Vancouver Sun Children’s Fund
Division 15 Mechanical Ltd.
M & L Painting Ltd.
Rolfe, Benson LLP
W.D.I. Services Ltd.
Double Deck’d Poultry Ltd. Dynamic Funds
Macquarie Group Foundation Limited
RT Agencies Inc.
Westminster Savings Credit Union
Rupert Coast Sort Ltd.
Weyerhaeuser Co. Ltd.
Enterprise Paper
Mary Kay Cosmetics Ltd.
Russell Investments Canada Ltd.
F & E Strumpski Foundation
McKesson Foundation
Saputo Dairy Products Canada
F. K. Morrow Foundation
MDA Corporation
Saxbee Insurance
Facet Advisors LLP, Chartered Accountants
Meadowlands Horticultural Inc.
Dr. Jaspreet S. Sidhu Inc.
Mini-Load Disposal Ltd.
Signode Canada
The Fairmont Chateau Whistler
Napaja Enterprises Ltd.
Simplified Insurance Solutions
Fasken Martineau DuMoulin LLP
NAV Canada
Sirocco Mining Inc.
Fidelity Investments
Noise Digital Inc.
Spectra Energy
Army Navy & Air Force Veterans in Canada
First West Foundation
Normandie Poultry Farm Ltd.
Stanley Security Solutions
FirstService Residential BC Ltd.
Stryker Canada
Ashcroft Old Timers Hockey Team
Floorindo Inc.
North American Telecommunications Group
$1,000 – $4,999
98 Corporate Group Resource Ltd. A. Nurmohamed & Associates Inc. Adera Foundation Society Alexander Dubichev Alianz Development Aquilla Foundation
K YOU
Canuck Place Children’s Hospice | Annual Report 2013–14
Farm Credit Canada
TD Waterhouse/Private Client Group
$5,000 – $9,999
Shaw Communications Inc.
Allan Kiss
Textile Trimmings
Air Canada Foundation
Shylee Rose Jewelry
Kevin Layden and Kristy Brinkley
The Children’s Oral Care Centre
Holland America Line
SK Sanitary Specialties Mfg. Ltd.
Lucy Prentice
The Christina and Hedley G. Ivany Charitable Foundation
Lugaro
Something Fishy Aquariums
John and Susan Rose
Miss604
The Feldman Agency
The Plaza Galleries
Jason and Monica Soprovich
Radiant Communications
The Mahon Rowland Foundation
The Room at Hudson’s Bay
Talal and Christi Yassin
Sony of Canada
The Original Cakerie Ltd.
(2) Anonymous Donors
Vancity Buzz
The Secret Garden of Woodbridge Ponds
The Sports Exchange
TidyTrailers.com
Thomas and Lori Burley Family Fund
Westmont Hospitality Canada Limited
True Blue Wire Products Inc.
Willy van Yperen Jewelers Ltd.
Whistler Blackcomb
Truist
Yaletown Laser
Vancity
$1,000 – $4,999
Vancouver Canucks Limited Partnership
All Seasons Mushrooms Inc.
Weissach Performances Ltd. Western Pacific Enterprises GP Westside Tom Gradecak Realty White Raven Enterprises Inc. WoodWorks The Hardwood Floor Company Ltd.
Allstar Holdings Inc. Atkinson’s Bacci’s Blue Shore Credit Union Boboli Canadian Closet
WorksafeBC
Century Plaza Hotel and Spa
WTPM Consulting Services Ltd.
Carpetizing
Zinetti Food Products
Fairmont Pacific Rim
(1) Anonymous Donor
False Creek Healthcare Centre Fred Welsh Ltd.
GIFTS IN KIND
Helijet International Inc.
$50,000 – $99,000
IPAC Chemicals Ltd.
The Vancouver Sun
Long Beach Lodge Resort
$10,000 – $24,999
Anderson Air Blackhills Winery Canterbury Coffee Food Service Ltd. Hawksworth Restaurant North American Telecommunications Group The Vancouver Courier The Westin Bayshore
Westjet
GIFTS FROM INDIVIDUALS $100,000 – $499,999
Joan Proudfoot and GSP Enterprises Ltd. in memory of Garry Proudfoot $50,000 – $99,999
$5,000 – $9,999
Ken Alexander Deb and Don Breen Ron and Ann Brinkhurst Mike Burdick David and Deborah Cottrell Raymond C. George Abdul and Shamim Jamal Shafiq and Azmina Karmali
James and Kimberly Allard
Brett Knelson
The Herberts Family in memory of Dr. Lewis Thorne Herberts
Wes and Brenda Koop Stanley Lang
(1) Anonymous Donor
Lyle Langlois
$25,000 – $49,999
Ryan and Cindy Beedie Carole Clugston Mr. and Mrs. W.E. Couling Niki and Chris Cumming Bjorn and Rochelle Moller John and Claire Nicola
Clive and Susan Lonsdale Marie MacDonald Mike and Leah Mansell Grant and Jane Maxwell Paul Stevenson Sylvie Vanderkerkhove Colin and Jane Warner
Millson Technologies
$10,000 – $24,999
Dr. Eric Webber and Dr. Farah Valimohamed
Misch Shop Inc.
Howard and Gail Addison
(2) Anonymous Donors
Pandora Vancouver
David and Susan Ainsworth
PetroKleen
Steven and Karen Bruk
Photos by Kathryn
Jim and Laurie Case
Poignant Moments Books — Ernest Poignant
Amar and Natallie Doman
Predator Ridge
Paul and Kate Dunstan
Pro Organics
Bruce and Sandra Gibson
SCA Tissue
Neil Duke and Candace Yip
$1,000 – $4,999
Elaine Adair Sheial Aikey Bruce and Donna Aitken Lloyd and Hilda Algar Dr. Haneef Alibhai and Yasmin Alibhai James and Jean Allan
THANK Y
39
Alex and Jodi Cristall
Kristyna Gustavson
Neil Martens
Neil and Colleen Andersen
Greg and Dhana Cruickshank
Gurdev Hayre
Margaret McNeil
Barb Anderson
Janice Dalzell
Richard Hermann
Dr. Ailve McNestry
Chris Archbold
Frank and Petra Danielson
Dr. Mark Hill and Joan Hill
Carey Melnichuk
David and Heather Ashley
Martin Davis
Pascal Hirsig
Herbert and Maria Menten
Margaret Barbeau
Alceo DeAnna
Bob Hole
Dr. Andrew B. Merker
Keith Begg
Stanley and Rani Dee
Florence Hungerford
Allison Mick
Cameron Belsher and Sarah Lee-Belsher
Jasdeep Dhaliwal
Bill and Francine Iles
Brad and Marion Miller
Dave and Amber Bezahler
Charles Douglas
Kenneth Issel and Elaine Weber
Gary and Barbara Miller
Russell Scott Dowling
Richard Jaffray
Richard and Margaret Moignard
Phil and Sally Dreaver
Curtis Johansson
Betty Montpellier
Beverly Duke
Family of Ethel Johnson
David Mueller
Sylvester and Maria Dye
Brad Johnstone
Marianne Muir
Helen Edwards
Hassan Karim
Steve Munford
Farrokh Elmieh
Rahim and Lyle Karim
Timothy and Liana Murphy
Michael and Wendy Epp
Andrew and Corri Kaweski
Rodney Muse
Patricia Evans and John Stonier
Scott Keast
Earl Everall
Charlotte Kelly
Dr. Stephen Nantel and Catrina Nantel
Ron and Diane Exley
Brent and Laura Kennelly-Mohr
James and Katherine Fenton
Tim and Annalisa King
Rob and Melissa Fiorvento
Daren Kinnaird
Jan Fisher
Stephen Knight and Jodi Shapray
Albert Fok
John and Amanda Kump
Kate and Nicholas Furber
Dr. Jonathan Leipsic and Karly Leipsic
Dave and Charu Gadhia
Emily and Darren Lazare
Chris Gailus and Jane Corrigan
David and Teresa LePoidevin
Dave Gardiner
Jeffrey Lim
Michael Geist and Amanda Harradine
Annemarie Locher
Christopher Hyland
James and Bev Logan
Michael Gellard
Franco Lombardo
Richard Genovese
Dr. Peter Louie
Christopher and Shelley Philps
Ross Gibson
Georgina L. and Andrew B. MacDonald
Hilda Pipke David Porte
Iain and Michelle MacDonald
Ron Potter
Dr. Jas Madahar and Baksho Madahar
Ellen M. Powell
David Marshall
David and Isobelle Purdy
Paul Billing Alessandro and Nicole Bitelli Carolynn Blair Joshua Blair and Andrea Martin Blair Jason and Rebecca Bond Kristen Boon Robert and Kathy Brady Tejinder Brar Iain and Marni Brinton Thomas and Lori Burley Louise Burns Ronald and Penny Bush David and Tamara Bustos Dr. Andrew Campbell Trevor Carr Stuart and Christie Case Juliette Cavazzi Paul and Ellen Challinor Jeff and Bettina Charpentier Derrick and Carolyn Cheyne Len Chin Malcolm and Bonnie Christie Mike Cinnamond and Jan Watson Gary and Marilyn Corbett Curtis Cousins
Ken Gordon Robert Gordon
Wes Coutu
Barbara Grantham and Andrew Wilkinson
Kenneth Cowie
Kelly Graves
K YOU
Kevin and Carla Nash Murray and Patty Neilson C M Ng Dennis and Leanne Ohman Carole Olsen Caroline Ong Baljit and Mady Parmar Stefano Passaglia Colleen Patrick Annabel Perry Samuel and Margaret Perry Dr. Gerald Philippson
William Greg Pritchard
Shirley Marshall
Co
u ra g
e an
d resi
ry. l i e n ce . Dr e a m a n d d i s co v e
Canuck Place Children’s Hospice | Annual Report 2013–14
Dr. Shazhan Amed and Salim Popatia
John and Sylvia Quilty
Maurizio and Natalie Zinetti
Constance Beatrice Davis
Jean Rae
(6) Anonymous Donors
Donna Jean Campbell
Richard C. Raymond Amy Rempel
GIFTS IN KIND
Hansi Nissen Helen Pincombe
Canaccord Capital Corporation Jeans Day Carter’s Kids Care CMHDS Charity Classic Golf Tournament
Kirsten Ridd
$10,000–$24,999
Jacqueline Carol Joan Colville
David and Pixie Riddle
Roswitha Byford
James Lionel Williamson
Joan Robertson
Jean Duguay
Joan Ethelwyn Heriot
Ronald and Terry Robinson
Richard Genovese
Josephine Lavina Perkins
Crofton House School Holiday Market Fundraiser
Sean Salem and Saeedeh Salem
$5,000–$9,999
June Adeline Butler
Dreams Do Come True Edith Cavell Elementary School Winter Carnival
Ethel Samoleski
David Foley
Lois Ellen Davis
Clem Samson
Tanya Slingsby
Margaret Bain Sellars
Nick Sandquist
Michael Tan
Nicol Kohut
Salim Sayani Geoff and Cindy Scott Ken and Ruth Scott Hussein and Nadia Shivji Richard Short Randall Siteman Leo Smyth Dr. Casey Souter and Kathy Souter Alan and Margaret Souther Michelle Sutter and Robert Ellmore Dr. Suretha Swart Christopher Thompson
$1,000–$4,999
Ronald Cliff Alex and Jodi Cristall John Figliola Bill and Betty Lou Fox Reynaldo and Melanie Hernandez Jas Hundal Susan Kellof Eugene Kwan Dr. Christian Len Harald and Sharlene Ludwig
Verna Leonora Abear William Alvin Ivey
CNR Employees Charity Chest Fundraiser
Edward Burns Memorial Golf Tournament Eric Hamber Secondary School Diversity Club
Yaeko Suzuki
FVREB & REBGV Commercial Golf Tournament
KEY COMMUNITY PARTNERS + EVENTS
GeneROCKsity Concert for Canuck Place
Abbotsford Heat Game Night Fundraiser
Harmonies of Hope
ACG & BIV Business Leaders Golf Tournament
HomeLife Charity Golf Classic
Allmar’s Annual Charity Golf Tournament APEGBC Greater Vancouver Invitational Golf Tournament
Holt Renfrew Shopping Night Iceman Racing Team and Tim & Nancy Nemeth Fundraiser Jamie Booth Golf Classic Jewels & Jacks Fundraiser
John Tomlinson
Dr. Peter Lutsky and Shari Goldman-Lutsky
In memory of George Tough and his Grandson Andrew Homeniuk
Cora MacDonald and Lawrence Roulston
Avid Fitness Centre Blackberry Mile Fundraiser
Howard and Loula Trottier
Nav Nijjier
Peter Tsiandoulas
Babak Nurbakhsh
BC Bakery and Deli Foundation Golf Tournament & Dinner
Ladies Auxiliary Canadian Legion #6 Donation
Ross and Barbara Turnbull
Joan Proudfoot
M&P Mercury Annual Sea Ray Rendezvous
Warren and Twyla Wall
BC Ferries — Tsawwassen Terminal Employee Fundraiser
Grant Russell
Trent and Emma Walsh
Talal and Christi Yassin
BC Ranch Cutting Horse Association Calcutta Bridleless Donation
Matthew McNair Senior Secondary School Fundraiser
Murray West
ESTATES
BC Shopping Centre Association Annual Charity Golf Tournament
Maxxam Analytics Employee Fundraiser
Edmund and Sieu Lan Wong
Berry Industries Golf Tournament
Judith Woods
We are honoured to recognize the gifts received from the estates of the following individuals:
MD Cosmetic & Laser Clinic % of Sales Donation
Ruth Wright
Fred Joseph Wharton
Eddie Yen
Bernice Linda Gibbeson
Michael and Monique Watt
Ariel’s Amazing Race
Boilermakers Lodge 359 Q-Ride British Columbia Electrical Association Luncheon
Kiwanis Club of Chemainus & Crofton Donation Kiwanis Club of Vancouver Donation
Melissa Santos Haircutting Fundraiser MHPM Project Managers Trivia Night Fundraiser
THANK Y
41
THE DONOR BILL OF RIGHTS
Mitzvah of Valuing Philanthropy Program
CANUCK PLACE CHILDREN’S HOSPICE VALUES THE SUPPORT OF DONORS AND THROUGH OUR ORGANIZATIONAL MEMBERSHIP ASCRIBES TO THE AFP DONOR BILL OF RIGHTS:
Miz Mooz Boutique Fundraiser NAV Canada Golf Tournament Nelson Hotel’s Uptown Sportsbar 50/50 Draw Noah Yelizarov Memorial Hockey Tournament Oakridge Centre Fountain Coins Donation Outdoor Resorts Indio Owners Sunshine Invitational ParaEducators’ Network of BC Donation Parisotto’s Your Independent Grocer “Give a Little, Help a Lot” Fundraiser PwC & Richmond Auto Mall Annual Charity Golf Tournament RE/MAX Sabre Realty Annual Charity Golf Tournament Revera Retirement/Fleetwood Villa Butterfly Release Robo Cam Services Canucks Suite Fundraiser Sahara Sisters Group Fundraising Dinner
· To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes. · To be informed of the identity of those serving on the organization’s governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities. · To have access to the organization’s most recent financial statements. · To be assured their gifts will be used for the purposes for which they were given. · To receive appropriate acknowledgement and recognition.
· To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law. · To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature. · To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors. · To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share. · To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.
Stanley Security Solutions Employee Fundraiser Strokin’ It Wild Golf Tournament The Alma Mater Society — UBC Fundraiser The Giggle Dam Dinner Theatre Fundraiser The Historic Dewdney Pub Thursday Night Fundraiser Vancouver Real Estate Forum Speakers Donation Vista D’oro Farms Langley Winery Fundraiser WMABC Golf Tournament
K YOU
REGISTERED CHARITY NUMBERS CANUCK PLACE CHILDREN’S HOSPICE SOCIETY 13386 7523 RR0001
CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION 86370 4920 RR0001
Canuck Place is a Registered Canadian Charity with the Canada Revenue Agency (CRA) www.cra.gc.ca and operates as a Society and a Foundation. As a Registered Charity, Canuck Place is required to file an annual information return with the CRA, a portion of which is available to the public, and must meet certain requirements of the Income Tax Act concerning expenditures and activities.
Canuck Place Children’s Hospice | Annual Report 2013–14
Mike Gibson Memorial Golf Tournament
BOARD OF DIRECTORS 2013-14 CPCH SOCIETY JOHN D. ROSE (CHAIR) R. THOMAS BURLEY MICHELLE CYBULIAK NEIL DUKE LAURA EDWARDS KATE FURBER BARBARA GRANTHAM (RETIRED) KRISTYNA GUSTAVSON GORD HUSTON HELEN H. LOW DARREN MILLARD JOHN NICOLA ANAR POPATIA PATTI SCHOM-MOFFATT GAVIN TOY KEN VOTH KATHERINE WHITTRED
2013-14 CPCH FOUNDATION JOHN D. ROSE (CHAIR) R. THOMAS BURLEY NEIL DUKE GORD HUSTON JOHN NICOLA PATTI SCHOM-MOFFATT KATHERINE WHITTRED (RETIRED)
PRIVACY POLICY Canuck Place Children’s Hospice Privacy Policy Canuck Place Children’s Hospice is committed to protecting the privacy of the personal information of its employees, volunteers, members, donors and other stakeholders. Canuck Place values the trust of those we deal with, and of the public, and recognize that maintaining this trust requires that we be transparent and accountable in how we treat the information that you choose to share with us. Canuck Place is committed to ensuring that all personal information is properly collected, used only for the purposes for which it is collected, and is disposed of in a safe and timely manner when no longer required.
We care about your privacy Canuck Place is committed to protecting the privacy and confidentiality of your personal information. Canuck Place Children’s Hospice does not sell, rent or trade our mailing lists. We will use your contact information to keep you informed of programs, services, special events and funding needs. However, if at any time you wish to be removed from our mailing and/or e-mail list, please contact us by phone at 604.731.4847, by e-mail privacy@canuckplace.org or by mail at 1690 Matthews Avenue, Vancouver, BC V6J 2T2. Please allow 10 business days for us to update your records. Charitable Registration # 13386 7523 RR0001 We respect all donors’ wishes either to have their name publicly associated with their donation or to remain anonymous.
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Canuck Place Children’s Hospice was accredited with Exemplary Standing by Accreditation Canada; the highest level of accreditation granted to healthcare organizations, following an assessment of the quality of its services with nationally accepted standards. Accreditation Canada is an independent, not-for-profit organization that sets standards for quality and safety in health care and it accredits health organizations in Canada and around the world. Organizations that are accredited by Accreditation Canada undergo a rigorous evaluation process. Following a comprehensive self-assessment, trained surveyors from other accredited
health organizations conduct an on-site survey to evaluate the organization’s performance against Accreditation Canada’s standards of excellence. Canuck Place programs and services were assessed during a three day onsite survey through the following sets of standards: governance; customized leadership; infection prevention and control; hospice, palliative and end-of-life services; and customized management of medications. Canuck Place was assessed against national standards comprising of almost 400 applicable criteria and met all the required organizational practices. The report issued by Accreditation Canada identified many of CPCH’s strengths including responsiveness to change, new challenges and the inclination toward innovation as contributing factors to its recognition as a leader in the field of pediatric palliative care. Research, best practices and knowledge exchange were identified as strategic priorities and there is strong evidence that focus and effort are being applied to these areas.
BOARD OF DIRECTORS 2014-15 CPCH SOCIETY JOHN NICOLA (CHAIR) R. THOMAS BURLEY MICHELLE CYBULIAK NEIL DUKE LAURA EDWARDS KATE FURBER KRISTYNA GUSTAVSON GORD HUSTON HELEN H. LOW DARREN MILLARD MARK MYLES ANAR POPATIA JOHN D. ROSE PATTI SCHOM-MOFFATT GAVIN TOY KEN VOTH KATHERINE WHITTRED
2014-15 CPCH FOUNDATION JOHN NICOLA (CHAIR) R. THOMAS BURLEY NEIL DUKE GORD HUSTON PATTI SCHOM-MOFFATT GAVIN TOY JOHN D. ROSE (RETIRED)
Canuck Place Children’s Hospice | Annual Report 2013–14
Canuck Place Children’s Hospice accredited with Exemplary Standing by Accreditation Canada
“There’s two sides to it. You meet a lot of children that are sick, but then you feel so fortunate that you get to meet all these special kids that maybe don’t have a long time here. And they are brave. These children are tougher, more resilient, more joyful than any adult I have ever met. Before we had Charlie Anne this was a world I didn’t want to know anything about. But now I am here and I see the beauty of it, the heartache and I am a better human being because of it.” — CHERIE EHLERT CPCH Parent
“ I thought I’d never love again after my son died. Canuck Place helped me and I now know I can love a child again.” — CPCH BEREAVED DAD
“ We never give up on providing comfort for the kids on our program.” — HAL SIDEN CPCH Medical Director
“ At Canuck Place we see the offering we are bringing as bold. But we also know it must be humble as it is part of a greater journey of the child and family.” – CPCH NURSE
“ Accept children for who they are and allow them to teach us about what we do not know. Refrain judgement and be open to what they have to offer.” – CPCH COUNSELLOR
“What I love about Canuck Place is appreciating every moment. Our families live with courage every single day. Canuck Place is all about appreciating every moment that a family has with their child and a child has with their family, and creating opportunities for that to be the best that it can possibly be.” —MARGARET McNEIL CPCH CEO
METAST RASMU MYOPA INTRAH VEIN ST CHROM MULTIP DISSEM GLUTAR AUTON INFANT JOUBE LENNO HEMOC NECRO OMPHA PALLIST PULMO SYNDR SLE RO DISORD ACRAN AIDS W DEFICIE METAST ENCEPH HYPOP TYPE II SUSPEC SYNDR ANOMA ENCEPH ACIDUR NEURO FIBROS SYNDR
METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILI INTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULM VEIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS T CHROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DE MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATH DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCAR GLUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSO AUTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEAR INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOM JOUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S LENNOX-GASTAUX CP LIMB GIRDLE MUSCULAR DYSTROPHY LIVER FAILURE POSSIBLE NEONAT HEMOCHROMATOSIS METASTATIC MEDULLOBLASTOMA MITOCHONDRIAL ENCEPHALOPATHY NECROTIZED BOWEL WITH RESECTIONS PLUS CARDIAC ARRHYTHMIA NEURONAL CEROID LIPOF OMPHALOCELE PULMONARY HYPERTENSION OSTEOGENIC SARCOMA WITH LUNG METASTASES PALLISTER-KILLIAN SYNDROME PANHYPOPITUITARISM PARTIAL DELETION CHROMOSOME 20 PULMONARY ARTERIAL STENOSIS SEVERE HYPOGLYCEMIA PROPIONIC ACIDEMIAC BERNARD-SO SYNDROME PULMONARY HYPERTENSION RELAPSED METASTATIC GASTRIC SQUAMOUS CELL CA SLE ROSAI-DORFMAN DYNDROME END STAGE SMA TYPE 2 STATIC ENCEPHALOPATHY SEIZURE DISORDER SYSTEMIC SCLEROSIS TRISOMY 18 WALKER-WARBURG SYNDROME WILLIAM'S DISEA ACRANIA MULTIPLE CONGENITAL ANOMALIES AICARDI SYNDROME AICARDI-GOUTIERES SYND AIDS WITH HIV ENCEPHALOPATHY ALOBAR HOLOPROSENCEPHALY AMINOACID DECARBOXYLAS DEFICIENCY AML AMINOACID DECARBOXYLASE DEFICIENCY ANGIOSARCOMA OF HIP WITH PUL METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RA ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY C HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHO TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHO SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELET SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUT ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONO NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUB SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE
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