Progress Transition Guide January 2015

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January 2015

Planning a break? Interesting holidays to try

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The Local Offer

What’s available in your area?

The world of work

Top tips for getting a job

Get on your bike Cycling advice

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January 2015

IN THIS ISSUE

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Top tips to help you stay healthy and manage your weight.

WELCOME TO PROGRESS Keeping healthy and managing your weight Contributors and advisers.

6

Natspec

www.natspec.org.uk

26

The Association of National Specialist Colleges

PRIVACY AND SPENDING TIME TOGETHER

28

NEWS & WHAT’S ON?

Why should YOU vote?

FOR

WORK

PREPARING Progress brings you top tips for getting a job.

GET ON YOUR BIKE Need a New Year’s Resolution? Try something new - take up cycling.

18

30

21 & Post 16 education

Caroline Barrett explores your legal rights and post-16 education options.

www.progressmagazine.co.uk

Gill Leno explores this important relationship consideration.

UNDERSTANDING WILLS AND TRUSTS

The Local Offer

Progress explores the Local Offer and what might be available in your area.

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Int ere sti ng unu sua l hol idays

32

Planning a holiday? Discover somewhere different this year.

specialist

College Courses

44

Progress explains why you should vote.

A round up of the main news since our last issue plus details of forthcoming events.

14

Sex AND relationships

Disabled-Friendly

Housing

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46

Nigel Cullen breaks down the detail of wills and trusts. The importance of eye tests and how to access them.

LOOK AFTER

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YOUR

EYES

Find out what options could be open to you.

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Welcome from the Editor Welcome to Progress. To enable you to plan your year ahead we’ve put together a range of features to help you make 2015 your best year yet. If you’re looking to get a job, our feature on page 14 offers top tips and guidance to make sure you have the best opportunity to fulfil your employment potential. For those of you thinking about post-16 education, OUR NEW Caroline Barrett offers you information on specialist colleges, the types of courses they offer and your rights to access this type of education. Read Caroline’s article on page 21.

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If you’re in the mood for a holiday, many people begin to plan their breaks for the year ahead during these cold, wintery OUR NEWand interesting holidays. Have a look months. As such, we decided to look around the world, and country for unusual at what we found on page 32 and if you know of somewhere we haven’t thought of, we’d love to hear from you. My email is below.

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Also, this issue, we explore cycling. Whatever your disability, additional need or impairment, we like to think that you should have the opportunity to ride a bike. The article on page 18 gives ideas of where to start and the types of bikes available. Don’t forget that this year we have a General Election, this is our chance to vote for who we would like to run the country. It’s important that everyone who wants to vote, has the opportunity to do so. Read the piece on page 28 to find out more.

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• Jim McGurn, Get Cycling

• Gill Leno, Queen Alexandra College

• Richard Nelson, halow

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• Priya Tew, The British Dietitian Association

• Steven Jenkins, The British Dietitian Association

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T O Freeths • Nigel Cullen, D AY LLP

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• Stephen Kill, SeeAbility DOWNLOAD OUR FREE APP TODAY

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• Jane Hatton M.Sc FCIPD FITOL, Evenbreak

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I have to remind you that our successful Transition Event returns to the National Motorcycle Museum on the 4th June. Don’t miss your chance to attend this important conference and FREE exhibition. You can find out more about it on our new website www.progressmagazine.co.uk and on page 17.

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Care Choices Limited has taken every care to ensure that the information contained in this publication is accurate. The company cannot accept responsibility for any errors or omissions or if a service varies from the facilities listed either in an advertisement or the indices. Care Choices Limited does not endorse or support any particular institution included in this publication. © 2015 Care Choices Limited. Care Choices Limited reserves all rights in the title Progress and its design. Care Choices™ is a trademark of Care Choices Limited. ISBN 978-1-910362-13-6. Printed in England.

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The information and opinions contained in this magazine and on our website are for general information purposes only. The information and materials do not constitute legal or other professional advice. They are not intended to constitute legal or other professional advice, and should not be relied on or treated as a substitute for specific advice relevant to particular circumstances. Care Choices Limited and its Contributors do not accept any responsibility for any loss which may arise from this information and opinions.

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Ref. No: 4001/SC22/0115. Reproduction of any part of this publication in any form without the written permission of Care Choices Limited is prohibited. Published by: Care Choices Limited, Valley Court, Lower Road, Croydon, Nr Royston, Hertfordshire SG8 0HF • Telephone: 01223 207770 • Fax: 01223 207108 • E-mail: progress@carechoices.co.uk • Web: www.progressmagazine.co.uk­­­­­ SALES: Sue Speaight • NATIONAL SALES MANAGER: Paul Leahy • EDITOR: Emma Morriss • EDITORIAL ASSISTANTS: Amy Elizabeth Catlin & Rebecca Northfield • PRODUCTION: Jamie Harvey, Gemma Cook & Holly Cornell.

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Photograph credits: Preparing for work - images courtesy of Coleg Elidyr - www.colegelidyr.com • Get on your bike - images courtesy of Get Cycling CiC - www.getcycling.org.uk.

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www.sweettree.co.uk Award winning care from an award winning team. It’s generally not a learning disability that prevents someone from taking on new challenges or living more independently, but rather restrictions in the community. SweetTree’s Learning Disabilities team work creatively to design support packages that reflect personalities, likes, dislikes, goals and ambitions, focusing on what someone can do rather than potential obstacles. SweetTree’s outreach service provides the highest quality care and support possible at home and in the community. For SweetTree, the vision has always been to create a service that empowers people to have greater independence, choice and control over their lives. Working closely with friends, family and the local community to help people develop the personal, social and life skills needed to reduce social barriers and lead a more active and fulfilling life.

Dela Begum, Special Needs Manager 2014 at the National Care Awards Coleridge House, 1 Coleridge Gardens, London NW6 3QH T: 020 7624 9944 • E: dela.begum@sweettree.co.uk

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Powerful Media, in partnership with Shaw Trust, have launched Power 100: The most influential people in Britain with a disability or impairment.

PROGRESS NEWS

Bullying advice

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According to a recent survey by the National Children’s Bureau, many adults use language that is offensive to disabled people, without even realising the meaning of the words. NLOAD NLOAD AP

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The learning disability charity, Brandon Trust, has issued advice on how to avoid bullying. According to a recent survey by the National Children’s Bureau, many adults use language that is offensive to disabled people, without even realising the meaning of the words. These words are used in ‘everyday conversations’ however 72% of people surveyed said they would not use them again once they heard what the words really meant.

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First there was the Paralympics 2012 which mesmerised over a billion TV viewers. Then came the Invictus Games, Prince Harry’s successful international multisports event to celebrate the agility and sporting prowess of wounded and disabled servicemen and women. Now Powerful Media, in partnership with Shaw Trust, have launched Power 100: The most influential people in Britain with a disability or impairment. The list is the first of its kind to be published in Britain. Listing 100 of the most powerful, influential and inspiring disabled people in Britain it is, perhaps, no surprise that renowned physicist Stephen Hawking, 72, who was diagnosed with motor neurone disease aged 22, tops the list. More surprisingly another Stephen - Stephen Fry - comes in at number five. The popular 57-year-old actor, comedian, writer, presenter and activist, who was diagnosed with bipolar disorder, has publicly depicted his plight in the Emmy Award winning TV documentary Stephen Fry: The Life of a Manic Depressive. Also making it into the top 10 is Ade AdepitanLO MBE, AD N who the TV presenter and wheelchair basketball player contracted polio as a baby and lost the use of his left leg. The Top 10 is, however, dominated by women including Dame Tanni Grey-Thompson, the Welsh parliamentarian, TV presenter and former wheelchair racer, who makes it in at number two. TO Y D A The list is divided into eight categories: Arts, Fashion and Design; Business, Finance and IT; Media and Publishing; Entertainment; Politics, Law and Religion; Education, Public and Third Sector; Science Medicine and Engineering; and Sports. The publishers, Powerful Media, who are known for their Power List and Future Leaders List, recognise disability, ‘as defined by a physical or mental impairment that has a “substantial” and “long-term” effect on your ability to do normal daily activities.’ Dom Hyams, who edited the list said ‘This is a list to be proud of. We believe it will successfully inspire young people to fulfil their potential.’

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Disability Power List

- Keep a diary of events. Log the date, time and who was involved with as much information as you can remember;

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- Keep useful numbers in your mobile – a local taxi company, non-emergency police (101), etc; - Avoid giving out personal information, such as your address and NEVER disclose passwords or pinFREE numbers to anyone; OUR APP TODAY - Locate any local ‘Safe Places’ for when you’re

outFREE and about, as libraries, shops and DOWNLOAD OUR APPsuch TODAY cafes.

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Get on your bike - page 18

Need a New Year’s Resolution? Try something new - take up cycling.

Look after your eyes - page 49

The importance of eye tests and how to access them.

also including:

Space to Change • Hear my voice • A new sports scheme

Calvert Trust Exmoor awarded £3,000 Nearly 1.5 million votes were cast by the public in which Calvert Trust Exmoor were awarded a grant from Lloyds Bank to enable it to continue doing good work in the community. Calvert Trust Exmoor is a charity that provides residential adventure activity breaks for people with all types of disability; enabling people to overcome challenges, build confidence, gain self-esteem and discover it’s what you do with life that counts. The award from the Lloyds Bank Community Fund will be put into bursaries, which are then used to help guests who require financial assistance to be able to afford a break. Partnering up with the British Heart Foundation (BHF), Calvert Trust Exmoor has also now been fitted with a defibrillator. A defibrillator is a portable device that can be used by a member of the public to help restart someone’s heart if they have had a cardiac arrest. With chances of survival decreasing by 10% for every minute that passes without defibrillation, Calvert Trust Exmoor is hopeful that they will soon be able to obtain a second defibrillator in order to provide coverage for more rural areas.

CALVERT TRUST EXMOOR IS A CHARITY THAT PROVIDES RESIDENTIAL ADVENTURE ACTIVITY BREAKS FOR PEOPLE WITH ALL TYPES OF DISABILITY

World Responsible Tourism Awards 2014

A South African animal sanctuary and a Brazilian adventure resort specialising in accessible tourism were announced Joint Overall Winners at the World Responsible Tourism Awards 2014, sponsored by the Sultanate of Oman Ministry of Tourism and hosted in London. Harold Goodwin, Chair of the Judging Panel, explained why he felt the right people had won The English Federation of Disability the top spot, ‘The Sport’s (EFDS) latest report, Talk to Me, gives sport and fitness provider Sanctuary Alliance s guidelines to follow that are should benefit disabled people who for demonstrating want to take part in more physical activities. The aim of the stud that animal attractions y is to understand the needs, wants and desires of disabled people can liberate previously in sport and physical activity. Fewer than half the number of disa captive wildlife and, without petting or bled people take part in sport or physical activity for 30 minutes, onc exploitation, be commercially successful. e a week, compared to nondisabled people. The EFDS’s research ‘Parque de Sonhos for demonstrating has shown that seven in ten disabled people actually want to take that truly inclusive tourism can enhance the part in more physical activities, and the report builds more of an und adventure activity experiences for everyone, erstanding of how sport and fitness providers can enc and enable families and friends to share their ourage people with disabilities to take part. If you’d leisure and the experiences. Both winners like to try a new sport, read our Cycling feature demonstrate that it is possible to address the on page 18. rights agenda, to swim against the tide, and also achieve a successful business.’

Get involved in sport

www.progressmagazine.co.uk

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PROGRESS NEWS Cuts to student support Cuts to funding for Disabled Students Allowances (DSA) are due to come into action from as early as September 2015. According to a poll of over 500 disabled students by Randstad Student Support. 93% of disabled students say they would be unable to reach their full academic potential without the support of this scheme, and despite the fact that these funding cuts will affect 94% of those currently receiving DSA – 54% of them are not even fully aware of these plans of dramatic reform.

Two thirds of disabled students say that life in higher education is more expensive for those with some form of disability.

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Two thirds of disabled students say that life in higher education is more expensive for those with some form of disability, and 79% of students currently eligible for DSA say there is a chance of them dropping out of their courses if they become ineligible for this support. Victoria Short, managing director of Randstad Student and Worker Support, comments ‘equality of opportunity is why schemes like DSA exist… if disabled students must judge universities not by their teaching reputation, but on the likelihood of receiving the necessary support to study, then disabled students face a fundamentally different choice to others.’

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Space to Change A recent survey has prompted a mother whose son has special needs to launch a Space to Change campaign to encourage organisations, businesses and venues across the UK to improve changing facilities for disabled children. Over 2,200 parents took part in the survey, which was conducted by the online special needs community firefly-garden.com. 97% of parents surveyed admitted that changing their child when out and about was a problem and 57% are said to have changed their child on the floor of a public toilet. The campaign provides suggestions on how a venue can improve its facilities to better meet the needs of families who have children with special needs. In return they are awarded one of three levels: Green, Orange or Pink. 1-2page .pdf

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Over 2,200 parents took part in the survey, which was conducted by the online special needs community fireflygarden.com. Scope launches new online community The disability charity Scope has launched a new online community for disabled people and parents of disabled children to connect and share practical support, enabling them to search for ideas from hundreds of tried and tested tips (covering everything from travel to technology). All of these are contributed by volunteers with first-hand experience of disability. It is part of an initiative started by social o.uk zine.c a networking site g a essm progr Netbuddy, which www. merged with Scope earlier this year.

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PROGRESS NEWS

A new pa rtnership Midlands A ppren

ticeships a have anno nd Evenbre u n c e ak d a new part will see the nership th two comp a t anies work recruit peo ing togeth ple with dis er to abilities into roles, whic h are now Apprentice being pos ship ted online spe cialist jobs on Evenbreak’s board. Evenbreak is run by d isable people, an d as a soc d people,for disable d ial enterpri keen to pro se they are mote a po sitive disabled p eople in em image of ployment.

website ur new o d n a page 17 ore visit zine.co.uk. m t u o To find rogressmaga www.p

Midlands Apprenticeships and Evenbreak have announced a new partnership that will see the two companies working together to recruit people with disabilities into Apprenticeship roles.

LODGE GROUP CARE

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DA AY and adult services or We have a clear understanding of the importance ofY a smooth transition betweenD children transition from residential into supported accommodation. To enable focus on the individual, we have developed clear policy and procedures to ensure that they receive a service that best suits them and meets their personal choices and needs. Lodge Group Care endeavour to provide high standards of care and are proud of the achievements and good outcomes for those placed within our care services and have a long experience of meeting the standards set and required by both CQC and Ofsted. The ethos of our company is built around person centred planning and our mission is to ensure that support and care packages provided are based on individuality and service user input.

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Discrimination in the workplace Recent reports reveal that one in five people with a disability feel that they have been discriminated against whilst in employment. According to lawyers at Leigh Day, these reports highlight that despite progress in legislation and social attitudes, discrimination is still stopping disabled people from participating fully in the workforce – which has a negative impact for individuals and society as their potential contribution becomes wasted.

Recent reports reveal that one in five people with a disability feel that they have been discriminated against whilst in employment. Nine in ten disabled people have worked at some point, but only half of that number are currently in employment. The disability charity, Scope, has set out a series of actions for the next Government to increase the numbers of disabled people in work - which is vital to improving disabled people’s living standards over the next five years. Leigh Day want to form a plan of action in time for a new Government.

HEAR MY

VOICE

As part of Mencap’s Hear my voice general election campaign, the charity is calling for greater learning disability training for all hospital staff to put an end to widespread discrimination. 42% of NHS Acute Trusts do not have a learning disability liaison nurse, and no NHS Acute Hospital Trust has a learning disability liaison nurse to cover for a full 24-hours a day. The lack of learning disability training and awareness amongst hospital staff can contribute to very poor health care for patients, which is why Mencap wants to make sure that learning disability liaison nurses are suitably in place in all hospitals so people with learning disabilities get the support they need from the professionals involved in their care.

“Learners make good progress in developing independent living skills and in the extent “

to which they can carry out personal care tasks for themselves Bogs Lane, Harrogate, HG1 4ED

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Henshaws College - a great place to learn Henshaws College provides a personalised education for young people with learning difficulties, sensory impairments and physical disabilities. We will empower you with the skills and independence you need to achieve the future you want. • A curriculum rich in skills for Life, Learning and Work • Nationally recognised excellence in IT and Assistive Technology • Education, Care and Therapies working together to support learners • Expertise in visual impairment • First class Residential, Sports and Media facilities • Day and residential placements available

Henshaws College - part of your Local Offer For more information call 01423 886451 or email admissions@henshaws.ac.uk

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PROGRESS NEWS A new sports scheme

ople with challenges faced by pe lind afb de l na tio na the Sense, sensory loss. plans mme charity, has announced The need for the progra ed tur uc str t firs ons with to launch the emerged from consultati th wi le op pe lp he programme to ht and hearing re active people with sig despite dual sensory loss get mo loss that revealed that, gramme pro e Th . ort sp ough gh thr ou e thr activ m the the desire to be fro le op pe ort pp su rtu to aims ort, oppo nities rt of exercise and sp pa ort sp ke ma to 16 are not age of to do so do not exist or of rt pa As s. live y da tion. The their every perceived as a viable op d an s he ac co s ort sp Sport the project, programme is funded by trained s year. thi s he support workers will be nc England and it lau to better understand the

Learning Disability Alliance England launches On 21st November 2014, the Learning Disability Alliance England was launched in Manchester. Over 100 self-advocates, family members and allies met to talk, plan and agree a new way forward to defend the rights of people with learning disabilities. LDA England is an alliance of all those committed to the rights of people with learning disabilities. It brings together the four main umbrella organisations for people with learning disabilities: · National Forum of People with Learning Disabilities – representing self-advocacy groups; · National Valuing Families Forum – representing family groups across England; · Association for Real Change – representing 200 service providers; · Housing & Support Alliance – representing 150 service and housing providers. In just a few weeks over 100 further organisations and over 1,200 individuals have also joined the campaign. LDA England is the first alliance to bring together people with learning disabilities, families and their allies on the basis of equality and respect. After many years of slow progress the rights of people with learning disabilities are now under attack. This can be seen in a whole range of areas: · · · · · ·

Disabled people are the number one target for cuts; Self-advocacy has been radically cut; Social care has been cut by 28%; Housing rights have been significantly reduced; More disabled people are falling into poverty as benefits are cut; Politicians are using stigmatising language and this is encouraging hate crime.

LDA England was formed for the direct purpose of campaigning and lobbying. It offers individuals, organisations and charities a way to express their support for the rights of people with learning disabilities – firmly, objectively and without fear.

New online Carer’s Allowance application A new online Carer’s Allowance application system has been launched. Carer’s Allowance is a benefit for people who are looking after someone with substantial caring needs. 240,000 people in the UK claim the allowance each year, and until now, they had to do this by post or by using an outdated online system which was difficult to complete and put people off. In partnership with the Cabinet Office’s Government Digital Service, the Department for Work and Pensions (DWP) has launched a new digital service making the process easier for busy carers. It has been built around the needs of the users and means that people who are caring full-time are able to apply for their benefit at a time and in a way that suits them. One of the many improvements is a new way of checking that the person they care for understands the claim – so they no longer need to sign a form. The new service has been tested and improved with real users over many months. Early trials showed that most people claiming the allowance are now using the simpler, clearer, and faster online process instead of asking for a form to be posted to them. In fact, more than 125,000 claims have been submitted online since trials began in October 2013, with 90% of people being happy with with process. The service works on any device, making it convenient to do. In trials more than a third of claims were completed using a tablet or mobile phone. For those that are not able to use the online service, an assisted digital option is available. This could include, for example, using DWP’s Jobcentre Plus offices as drop-in centres to complete the service with Carer’s Allowance experts who can offer internet access and personal support. www.gov.uk/carers-allowance/howto-claim


ArtHalo

An introduction to Visual Arts A 12-week programme where we explore. We learn the skills to express ourselves through art. Inclusion in the class is important throughout. Catering for mild to severe learning disabilities, though a carer may be required. Art is a journey You have control over when it starts and when it ends. Art is a story that you can tell others without words. We want to invite you to start or continue your journey with us and to share your story. Being creative is an essential part of the human experience, and art should be accessible to everyone – inclusive to all and exclusive to none.

“Acquiring & developing new skills beyond the classroom”

What’s included? –12 x 2-hour sessions where we visit a range of themes within art and learn new skills –Access to a wide range of materials for you to work with whatever medium you choose –Initial drawing kit including art diary & sketch pad –Framing your final work (if required)

–Hiring of exhibition space –Drinks reception for your guests at your private view –A ‘care passport’ for you to take home that tells everyone how to best support you with your future artwork –Training for your carers on how to keep you supported with art at home

Courses are based in Croydon & Surrey, for more information call 0844 858 4811 or visit www.arthalo.org

We have very limited space and courses get booked up very quickly 1 to 1 courses are available upon request, please call for details.

Art Halo Newspaper.indd 2

08/01/2015 13:38

Achieving learning potential We work to ensure that blind and partially sighted children and adults, including those with additional disabilities, maximise their learning potential. We provide support, advice and information for parents, carers and professionals.

RNIB Pears Centre for Specialist Learning, Coventry

We offer individually-tailored education, care and therapies to children and young people with multiple disabilities and complex health needs who are blind or partially sighted, from pre-school up to 19. Our education and care are both graded “Outstanding” by Ofsted. To arrange a visit or for more information, call 024 7636 9500 or visit rnib.org.uk/pearscentre

RNIB College Loughborough

Our small friendly college supports students with a wide range of disabilities to achieve their goals. Students will learn practical skills within our college enterprises such as our eBay shop, arts centre and college shop. To arrange a visit or for more information, call 01509 61 10 77 or visit rnibcollege.ac.uk RNIB charity nos. 1156629, SC044876 and 1109

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WORK

Explore the benefits of your impairment(s)

Identify your strengths

PREPARING

FOR

Have a think about something that really makes you excited or interested. Do you lose a sense of time when you are doing this activity, and do you think you do it well, giving it your all? Even when you are tired or fed up, stressed or bored is there something you like to do and can do it even when you’re not feeling your best? This is called a strength – something you’re good at and enjoy doing. Make a list of these things. This might include using a computer, or being good at art or music. Also think about what type of person you are – are you reliable, friendly, good with people, or good at solving problems? Write all of these down too and have a think about how they would help you in the world of work.

There are many examples of how your disability could benefit your potential job and employer. If you have a hearing impairment you may be able to focus more in a noisy environment like an open plan office, you are unlikely to be distracted by office gossip. If you are on the autism spectrum, you may have skills that mean you enjoy specific repetitive jobs, or jobs which require accuracy. You may find that you are good at solving problems, finding ways around obstacles, or are a creative and determined individual. Your impairment or disability brings with it different benefits that can make a difference to employers. By knowing these things about yourself you can highlight them to potential employers too.

The world of work can seem like an unknown world for anyone, even if you have worked before and are looking to change your career. There are many things to think about, many options to explore.Progress brings you top tips for getting a job.

There are many examples of how your disability could benefit your potential job and employer. If you are Deaf, you are unlikely to be distracted by office gossip.


Decide when, and if, to mention your disability

If your impairments aren’t visible and you don’t need any reasonable adjustments (specific assistance) to help you apply for a job or attend an interview, you don’t have to tell the employer that you are disabled. Let them read or hear about all of your skills first. If you do need reasonable adjustments, or the employer is positive about disability (maybe offering guaranteed interviews to disabled people who meet the minimum criteria) then it is a good idea to tell them. Briefly describe what adjustments you would need, and focus on all the good qualities and benefits you bring to the role.

Looking for work

Writing your CV and covering letter

There are lots of places to find work, for example, look in newspapers or magazines for the latest jobs. Also register with online job sites, like Indeed (www.indeed.co.uk) or totaljobs (www.totaljobs.com), and if you like, make your profile – which includes your Curriculum Vitae and person specification – public, so agencies and employers can see you if they are looking for someone like you. Universal Jobmatch (jobsearch.direct.gov.uk) is run by the Government, and is always upto-date with jobs. You can search for pretty much anything using online job sites, as there is a huge selection. Recruitment agencies are also a good idea, as they do the searching for you. They can help you find temporary (or contracted) jobs, which can give you experience in many different types of work. Job fairs are interesting and useful if you can’t really decide what you want to do, or want to meet people and start the application process in a particular area of work. There are also specialist places that offer jobs for disabled people. Evenbreak is an online job site that matches disabled jobseekers with employers (www.evenbreak. co.uk). Also, Remploy has introduced iRemploy, a suite of online employment services for people with a disability or health condition. (www.remploy.co.uk/en/individuals)

A CV is a written description, usually no more than two pages long, that details your work experience, education and skills. Usually, a covering letter is sent with your CV, which is a letter that outlines your skills and experience, and why you would be suited for the role. Covering letters help employers pick out potential candidates for the job and add to what is on your CV. Try to find out (from the job advert or job description) exactly what the employer is looking for, and focus on those qualities in your CV and covering letter. For example, if it is a job that involves working with the public (e.g. in a shop or café) you could describe how friendly you are, how you like working with people, how good you are at asking questions to find out what people want. If you have any relevant experience (you might have had a previous job, or volunteered in your college canteen, for example) make sure you include that too. It is a good idea to tailor your CV and covering letter to each job application. There are many CV builders and covering letter templates available online, and these can help to give you an idea of where to start, whilst helping to make your own. Check out The National Careers Service CV and covering letter builder. Go to www.gov.uk and type in ‘CV builders’ in the search bar. The National Careers Service’s link should appear at the top.

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Succeeding at interviews

Looking at the strengths that you identified earlier, have a think about how well they fit the job, what situations you have been in that would show your strengths.

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Be prepared. Research the job and the organisation. Looking at the strengths that you identified earlier, have a think about how well they fit the job, what situations you have been in that would show your strengths. This way you’ll be ready to share them with the interviewer. Think of questions you may be asked, think of good answers and practise them if you’re worried, as this will help your confidence. Interviewers are just people too, they’re looking for the right person for the job and you’re looking for the right job for you. Try not to be too nervous and look at it as a conversation, sharing information about yourself and why you’d be good for the job, whilst learning more about the job and the company. Make sure you plan what you’re going to wear, something smart is best, like a suit or formal dress. Make sure you look well-presented, first impressions count in interviews. Take your CV with you and any documents you might need, like exam certificates. If you think your prospective employer may be worried about you being disabled, tell them how you are able to do specific tasks if, for example, you use a bigger monitor if you have sight impairment, or dictation software if you have poor co-ordination. Try to put their minds at rest and show them you can do the tasks needed for that job. Don’t forget to cover the benefits you thought about earlier. Remember to arrive ten minutes early to your interview. It’s better to be early than late.

Ask for reasonable adjustments

If you get offered the job and you need specific things to help you carry it out, tell them. This is better than you struggling without the right support or equipment. Employers have to provide reasonable adjustments by law, and often these are partly or fully paid for by Access to Work. Most of all, have confidence in yourself and your abilities – you need the employer to have confidence in your abilities and they won’t if you don’t.

With thanks to Jane Hatton M.Sc FCIPD FITOL, Director, Evenbreak www.progressmagazine.co.uk


Following the success of 2014’s event, where over 600 people attended and benefited from the day, we’re once again bringing you…

In association with

Becoming an adult

- building the best future for young people with additional needs

Thursday 4th June 2015

at the National Motorcycle Museum in Birmingham. (Coventry Road, Bickenhill, Solihull B92 0EJ)

To register your interest in attending, book your place or sponsor this event please contact Cheryl Yardley on 01223 207 770 or email info@progressmagazine.co.uk. The Transition Event is the one-day forum for young people with additional needs, their parents and professionals to explore the move to adulthood. Incorporating a series of main presentations, workshops, interactive sessions and an exhibition of service providers.

www.progressmagazine.co.uk/events

Supported by

SoLO Life Opportunities

Associate sponsor

Sponsors

Please visit www.progressmagazine.co.uk/events for more information or contact us on 01223 207 770


Cycling can be fun, easy and accessible. It is great exercise and once you have the equipment, doesn’t cost a lot.

GET ON YOUR BIKE It can be great fun to get out and about on a bike, enjoy the fresh air and the world passing by. All you need is the right equipment and the confidence to have a go.

When it comes to cycling, you must always feel confident enough to ride. If you don’t own a bike, or don’t know whether you can ride a bike, visit a cycling service or centre; you can try out bikes, rent or even buy one and they should offer other cycling accessories like clothing, helmets and lights too. Wearing helmets and suitable safety equipment is really important when riding a bike. When visiting a cycling service, have a look around the bikes and watch them being ridden. Don’t feel you have to ride a bike if you just want to look around. Cycling should be fun, not scary, try to relax and enjoy yourself. To help with your confidence, people who work at cycling services make sure that any bike you would like to try can meet your needs. Feel free to chat with staff; they are happy to help you. If you are a beginner, it is always best to have someone with you in case you are not sure what to do. Normally, there are volunteers who will cycle with you and help you get used to riding the bike. If you want to head out on your own, there are bikes available for that too. Cycling can give you a sense of freedom and be great fun. Regardless of your disability there should be a bike for everyone. Cycling can help you to become fitter whilst also giving you time and space to yourself. Disability should not be a barrier to be able to enjoy the freedom and fun of cycling.

There are many different bikes that you could try. Here are some examples.

Semi-recumbent bicycles

Many appreciate the sitting position of these laid-back machines. The lower seat makes the bike easy to get on and off. When you stop, your feet can be placed flat on the road. With your upper body upright, your neck is straight and free with no stress on your wrists.

Upright trikes

Trikes can give you real freedom. They provide a stable platform for those with poor balance. You can stop at any time and rest, without putting a foot down, and you can go up hills in very low gears at speeds which would be very slow on a bicycle.

Electric-assist bikes and trikes

Available as complete bikes or as retro-fit kits, these are ideal for people with little strength. They have a battery which helps make you go faster when you’re pedalling, so you don’t need to use as much effort.

Recumbent trikes

Available in two types: two wheels at the front (tadpole) and two wheels at the back (delta). These are best for those who want a fast and sporty machine. The riding spot is low, giving a nice and stable ride with great turning.

Hand cycles

These bikes are pedalled with your hands. The range includes tandems, off-road trikes and powered models. They come as a complete unit or a bolt-on kit which attaches to a standard wheelchair.


Bicycle tandem

A tandem is a bike with seats and pedals for two people. The best kind of normal tandem for disabled people is the versatile, solid, smaller-wheeled type. The seats adjust to allow riders of any age.

Recumbent front tandems

These tandems are suitable for adults, children or adult/ child combinations. The front passenger has a laid-back seat and the back passenger controls steering, gearing and braking. Both riders have an open view with heads close enough together for easy conversation.

Wheelchair tandems

These are fully functional tandem tricycles when bolted together, and fully functional wheelchairs when detached from the bicycle half.

Three or four wheeled side-by-side tandems

Riders of very different sizes and fitness can easily ride this kind of tandem. The design lets people who have little or no cycling experience cycle together.

Child-front tandems

Available as bicycles or tricycles, these can be made with fixed front handle bars or double steer.

Funding

Family Fund, are a grant-giving charity for families with disabled children will usually fund special needs cycles for anyone under 18. www.familyfund.org. uk Get Cycling, who provide bicycles and bicycle support to disabled people, do all the assessments for them. With thanks to Jim McGurn of Get Cycling. www.getcycling.org.uk

Cycling can give you a sense of freedom and be great fun. Regardless of your disability there should be a bike for everyone. If you would like to try out cycling, but are not sure where you should start, visit these websites to find out more:

Open Country help people with disabilities access the countryside. www.opencountry.org.uk

Cardiff Pedal Power encourage and enable children and adults of all ages to feel the benefits of cycling. www.cardiffpedalpower.org

Wheels for Wellbeing support people with disabilities to cycle in London.www. wheelsforwellbeing.org.uk

Companion Cycling is a charity that enables disabled people to cycle on adapted cycles around Bushy Park in South West London. www. companioncycling.org.uk

With thanks to Jim McGurn at Get Cycling, Gateway Wheelers and Companion Cycling.

Get Cycling is the National Disability Cycling Try-Out Centre offering every kind of disability bike to try. Operating all over the UK, Get Cycling has its main facility in York on the cycle path network. The centre stocks 50 difference specialised cycles to try, offers free, impartial advice, try-out roadshows and events as well as new and refurbished cycles and equipment for sale meaning there’s bound to be something for everyone. www.getcycling.org.uk

A tandem is a bike with seats and pedals for two people. The best kind of normal tandem for disabled people is the versatile, solid, smaller-wheeled type.

Gateway Wheelers organise suitable rides and cycles for disabled people to enjoy cycling. www.gatewaywheelers.org.uk

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MY CHARITY RIDE My name is Nick, I’ve been riding for over five years and have joined several charity events which have taken me to some amazing places like Sri Lanka, Madagascar, Nicaragua and Costa Rica. Last summer, I got involved with the halow250, a 250 mile bike ride from Putney to Guildford via France! My personal assistant, Jason Frommholz from halow asked if I wanted to ride with him. I love riding as it helps me keep fit and allows me to see nice places. In this ride I had the chance to meet new people, which I like - especially as one of them was motor-racing legend, Damon Hill. We trained hard for the ride to get Jason used to riding tandem and for us both to feel confident riding together. Jason and I rode the third leg of the challenge from Portsmouth to

Guildford. It was 60 miles long, but I was confident we could finish. Jason and I talked a lot to encourage each other, I kept reminding him of rhythm and pace to help us when we were feeling tired.

“Last summer, I got involved with the halow250, a 250 mile bike ride from Putney to Guildford via France!” We stopped for a break where we had bananas, homemade cake and jelly babies. It was great as Mum, Dad and Nan were there to cheer us on. Our final stop was at a pub. Dad bought us both a beer which we enjoyed. All 80 riders met up here before we rode the last mile together into Guildford. The welcome we got at the finish

line was amazing with hundreds of people cheering and clapping - I felt very proud and honoured to have taken part in a great event and help raise lots of money for the halow project. The halow250 is not just a great challenge but a fantastic riding experience. I would recommend the ride to cyclists everywhere!

With thanks to halow. www.halowproject.org.uk

Live your life to the full... If you want to Get Cycling then Get Cycling can help Contact us today!

Wear a MedicAlert ID Bracelet for peace of mind and 24/7 protection

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01904 636812 admin@getcycling.org.uk

www.medicalert.org.uk info@medicalert.org.uk 01908 951045


specialist

College Courses

& Post 16 education What type of education are young people with special educational needs (SEN) entitled to? Many people feel it isn’t clear once a young person turns 16. Furthermore, the law has recently changed and there is confusion about whether this will increase the rights of those studying beyond the age of 16. Caroline Barrett looks at the types of courses that are available and the legal rights of young people to have access to specialist education after the age of 16.

“ Most people with SEN will require some extra support such as one to one help, additional time or therapeutic support� What is on offer? Young people with SEN should be given the same opportunities to access education as those without learning difficulties. Here are some of the options that a local authority may be required to provide: 1. Further education colleges Young people may choose to pursue either A Levels or vocational courses - such as NVQs - at mainstream colleges. Most people with SEN will require some extra support such as one to one help, additional time or therapeutic support (such as occupational therapy), in order to access the curriculum effectively alongside students without disabilities. 2. Specialist colleges Alternatively, young people may wish to attend specialist colleges that offer specific provision for young people with disabilities. These colleges can provide either day or residential provision and are designed to prepare the young person for adult life - including employment or training where possible. There is an emphasis upon developing self-care and independence skills, although it is acknowledged that many young people who attend will require care throughout the rest of their lives. The courses on offer include those that will help people move to an apprenticeship, obtain work-based skills, development of personal and social skills, self-care, computer skills, communication and self-expression skills and personal safety. Many of these skills are taught in a variety of ways - such as through the use of performance, music and drama. Some people may prefer a combination of specialist and mainstream college. This might mean attending a mainstream college for a few days a week to obtain an NVQ or similar, but staying at a residential college to also study self-care and independence skills.

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3. Bespoke education provision For some young people (such as those with severe autism or challenging behaviour) education within a college environment is simply not possible. There are some specialist education providers that provide ‘bespoke’ education packages. These can sometimes be funded jointly with social services and normally involve one to one or two to one support throughout the day, engaging the young person in a range of activities, therapies and recreational sessions that are designed to build upon social skills and self-care.

“ There are some specialist education providers that provide ‘bespoke’ education packages.” Legal framework – the ‘old’ system Local authorities are under a duty to meet the educational needs of young people up until the age of 25. However, under the Education Act 1996, Statements of Special Educational Needs would only remain in place up until the child left school. This meant a Statement was only available up until a maximum age of 19. For most young people, however, Statements ceased at the age of 16, when they would pursue further education at a separate college. Young people with a Statement were entitled to a Learning Disability Assessment (LDA) when they left school, under section 139A of the Learning and Skills Act 2000. For those who did not have a Statement, the local authority also had the discretion to prepare an LDA. The format and content of LDAs is not prescribed in any specific form; however there is statutory guidance which sets out the type of issues to focus upon. This includes an emphasis on what the young person’s goals and aspirations are, how they can achieve those goals and the support that is required. The LDA can recommend specialist provision and should name a college that the young person should attend – this can include a specialist college. Unlike with Statements and new Education Health and Care (EHC) Plans (see below), the content of LDAs cannot be appealed to the First Tier Tribunal. Therefore the only way of challenging the LDA is to complain or, at last resort, to seek a Judicial Review in the High Court, on the basis that it is either irrational, unlawful, or the correct procedure has not been followed. Judicial Review is only concerned with whether a local authority has acted lawfully. It cannot substantively change the content or provision within the LDA like a Tribunal can, and a court will usually invite the local authority to carry out a new assessment if it is found to be flawed. Since we will not see all LDAs transferred to an EHC Plan immediately or at all under the new framework (see below), it is important to note that a Judicial Review may continue to be the only solution. However, any claim has to be made ‘promptly’ and in any event within three months of the decision being challenged.

Legal framework – the ‘new’ system The Children and Families Act came into force in September 2014. One of the biggest changes under this new law is that Statements are to be replaced with EHC


Plans, which will last from the age of zero up until a maximum age of 25. EHC Plans will cover not only the education provision that is required, but any health and social care provision that is necessary to meet educational needs. It is hoped that the new system will provide better continuity for young people transitioning into further education. As with Statements, EHC Plans are subject to annual review, but the assessments and provision should no longer change significantly upon reaching the age of 16. Importantly, if young people are unhappy with the content of the EHC Plans or the college that is named in them, this can now be appealed to the First Tier Tribunal. Arguably, this now puts young people in a stronger position when it comes to obtaining specialist college courses and/or residential provision. The Tribunal is able to look substantively at what support is being provided, whether it meets a young person’s needs and whether a specialist college should be named in the EHC Plan. The new Code of Practice for SEN applies to schools and colleges from the age of 0-25. Paragraph 9.79 confirms that if the young person or their parent makes a particular request for a college (including specialist college provision) then that request must be complied with. This is unless the local authority feels that it would be unsuitable for the young person’s age, aptitude or ability, or that it would be incompatible with the effective education of others, or the efficient use of resources. In other words, if the college is suitable for the young person and if there is nothing cheaper which can do the same job, the local authority should be funding the college of choice.

“ One of the biggest changes under this new law is that Statements are to be replaced with EHC Plans, which will last from the age of zero up until a maximum age of 25.” Obtaining an EHC Plan Most young people will currently still have either a Statement or an LDA. However, all young people will be transitioning over to the new system shortly: • For any young person coming up to the age of 16, they will be provided with an EHC Plan on transition. This means that their Statement will be converted into an EHC Plan when they leave school and it will include all necessary and relevant information concerning their goals, aspirations, and the support they require in further education along with a named college that can meet their needs. •

For young people who are already at college and have an LDA, they can request an EHC Plan and will be treated as a ‘new entrant’ into the system. Local authorities should, therefore, comply with that request in the usual way and complete an EHC Plan within a total of 20 weeks from the date of request - provided that the young person is eligible. It should be noted that it is not the intention of the new system to make fewer people eligible for EHC Plans than were previously eligible for Statements and LDAs. The criteria for obtaining an EHC Plan is the same as it was previously for obtaining a Statement.

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Young people who attend college without an LDA or Statement can submit a request to the local authority asking for a needs assessment to be carried out, which would ultimately result in an EHC Plan being provided if it is agreed that one is necessary. If the local authority refuses to carry out a needs assessment, or if it carries out a needs assessment but refuses to issue an EHC Plan, those decisions can be appealed to the Tribunal.

Preparing for adult life There is a significant range of courses on offer to young people over the age of 16, including some excellent courses and colleges that are specifically designed to help young people with SEN to transition into adulthood and learn important skills. Unfortunately, up until now some local authorities have been better than others in identifying young people’s needs and providing access to these specialist courses and colleges, and the ability to challenge this has been limited. It is hoped that under the new system more young people will be able to enforce their rights at the Tribunal and access provision that properly meets their needs and prepares them for life as an adult. For free resources, including factsheets and precedent letters relating to obtaining EHC Plans and complaining about inadequate provision, please see www.irwinmitchell.com/personal/protecting-your-rights/social-healthcare-law/thechildren-and-families-act-2014/factsheets-and-template-letters This article is intended as a general overview of the topic and is not intended to be specific legal advice in relation to any specific matter. You should contact a solicitor for specific advice if it is needed. Caroline Barrett is a Solicitor at Irwin Mitchell LLP www.irwinmitchell.com

The Mount Camphill Community is an independent specialist residential college for students aged 16 - 24 with a range of learning and social difficulties. The aim of the College is to develop new capabilities in each student through a practical path of learning and work that activates students’ own motivation and supports their evolving potential and independence. Camphill Communities are based on mutual care, respect and the spiritual integrity of every individual. • Set in 20-acre grounds of a former Victorian monastery. • Well equipped craft workshops including a weavery, a forge, a woodwork shop, a bakery, a pottery, a training kitchen and gymnasium. • Home to 65 people, including senior & volunteer co-workers, children & 35 students with special needs.

The Mount Camphill Community

Faircrouch Lane, Wadhurst, East Sussex TN5 6PT 01892 782 025 • office@mountcamphill.org www.mountcamphill.org

NE PAREXT NT DAY S’ Sa turd 14 th M ay arch

2015

Progress has got a new look

website

Paul Leahy 01223 206 965 • Sue Speaight 01223 206 962 E-mail info@progressmagazine.co.uk

www.progressmagazine.co.uk YOU CAN ALSO FOLLOW US ON

@progress_mag

Sue AtProgress


EMILY’S FL URISHED Despite receiving a high level of support for the previous five years, Emily had struggled to contain her aggressive behaviour. For everyone’s safety she had needed a lot of physical intervention and she chose to wear a walking harness to make her feel safe and secure. She often refused to go to school, or was aggressive while there which had severely limited her educational options. Simple things like using public transport also represented too much of a risk and her community opportunities were also very restricted. Emily came to Hesley’s College provision requiring a 2:1 staff ratio. She would be very selective about who could support her. A rigid reward system was needed to keep Emily focused and motivated.

At 20 years old, it was the perfect time to join the college provision. Emily was gradually introduced to a new, more adult-orientated programme and she really took to it. In her first 12 months at college, Emily has required no physical interventions. She no longer feels she needs the harness and feels safe and happy around her staff. She has taken on-board support techniques and is now able to self-regulate her behaviour, taking herself to her room when she feels she needs to. Emily regularly takes the bus into town with staff and is engaged in a varied and interesting programme based on more adult interests. She attends all sessions and participates whilst there and now has an excellent attendance record.

LEPMIS

With thanks to The Hesley Group. www.hesleygroup.co.uk

Emily no longer needs a reward system to motivate her and handles what each day brings with much less advanced planning. She is settled and happy and her support needs are consistently much lower. For the first time in many years her future looks bright. In short, Emily is thriving on a more adult approach to life.

Nurturing Independence halow supports young people aged 16-35 with a learning disability in Surrey

GAME ACCESS SOLUTONS PLAYSTATION 3 • X-BOX 360 • PC

LEPMIS provides a range of joysticks and adapters so that people with physical disabilities can play console games again. Even if you don’t have any arms.

ANY DISABILITY - ANY GAME

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The Switch Access Pod allows collaborative play – more than one person can play the same single player game, as you can distribute the switches and joysticks between a number of people.

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natspec

Natspec

www.natspec.org.uk

The Association of National Specialist Colleges Natspec, the Association of National Specialist Colleges, is the membership organisation for specialist colleges that provide education for students with more complex learning difficulties or disabilities. Colleges offer personalised programmes and individual support to help young people prepare for adult life, including: • Skills to live more independently or to manage or direct care support; • Work experience and volunteering that increase employment options; • Getting involved in the community and travelling independently, where possible; • Maintaining a healthy lifestyle. We have a directory of colleges which can also be viewed online at www.natspec.org.uk

Beaumont College offers day & residential programmes to young people aged between 18 & 25 with a broad range of physical and /or learning disabilities.

AALPS North (Adolescent to Adult Life Preparation Service), situated in Scunthorpe, North Lincolnshire, is an NAS accredited Transitions Service supporting people aged 16+ with autism, Asperger’s Syndrome, learning disabilities and complex needs. AALPS North benefits from extensive facilities and a highly experienced staff team who focus on developing strategies that help people on the autistic spectrum to achieve their individual dreams and aspirations. A person centred approach is taken with all the people within the service and individual programmes provide a structured routine. Existing skills, emerging skills and new skills are developed through a range of different teaching methods, often in real life situations and on a 1:1 basis. Outcomesfocused, person-centred development programmes enable people to successfully transition from higher dependency residential services into inclusive community living.

AALPS North

Winterton Road, Roxby, North Lincolnshire DN15 0BJ Tel: 01724 733777 E-mail: info@aalpsnorth.co.uk Web: www.optionsgroup.co.uk

Coleg Elidyr is a specialist college set within 180 acres of beautiful countryside in West Wales. We provide further education and training for young people aged 18-25 with a wide range of learning difficulties and disabilities, including autistic spectrum conditions. Learners follow their own personalised learning goals and our extensive facilities include a working farm, kitchen gardens, shop, bed and breakfast, and craft workshops. Our aim is to foster the development of the whole human being in order that each individual will develop the self-confidence to lead a richer, more independent life.

Our aim is to enable students to take responsibility for their lives in whichever form this takes and to realise their dreams in the safest way possible.

“Nearly all learners make exceptional progress in the development of their literacy, numeracy and independent living skills within a very short timescale. They make outstanding progress in applying their skills in practical, meaningful situations across the college.” - Estyn inspection report 2014

Beaumont College

Coleg Elidyr

Slyne Road, Lancaster LA2 6AP Tel: 01524 541400 E-mail: admissions@beaumontcollege.org Web: www.beaumontcollege.ac.uk

Rhandirmwyn, Nr Llandovery, Carmarthenshire SA20 0NL Tel: 01550 760400 E-mail: admissions@colegelidyr.ac.uk Web: www.colegelidyr.ac.uk

Derwen College is one of the largest specialist further education colleges in the country. It has been graded “Outstanding” at its last two consecutive inspections. Our individualised learning environment offers a unique approach to learners who are deaf/hearing impaired and have specific communication and language needs. We cater for all abilities and learning style, offering pathways to suit every ambition. Pathways include: Life, Work and Living and encompass a choice of day or residential provision. To arrange a visit please contact us on: 01302 386 700 Email: marketing@ddt-deaf.org.uk or go to our website: www.deaf-trust.co.uk

Communication Specialist College Doncaster

Leger Way, Doncaster DN2 6AY Tel: 01302 386 700 E-mail: admissions@ddt-deaf.org.uk Web: www.deaf-college.co.uk

The Fortune Centre of Riding Therapy is situated over 3 sites in the New Forest and runs a residential 3 year course for students between the ages of 16 and 25 who have a range of learning difficulties and/or disabilities. The course has been developed to encompass a range of essential life, basic & social skills, riding, vaulting & horse care. Each student has an individual programme which is personalised according to their needs, aspirations and expectations. Opportunities to learn & practise these skills are embedded in naturally occurring, practical activities using the motivating medium of the horse where possible.

The Fortune Centre of Riding Therapy

Avon Tyrell, Bransgore, Christchurch BH23 8EE Tel: 01425 673 297 Fax: 01425 674 320 E-mail: admissions@fcrt.ac.uk Web: www.fortunecentre.org

The college provides supported living and day provision to over 230 students and trainees with a wide range of learning difficulties and disabilities, including autistic spectrum conditions. The college’s specialism is personalised learning in real work environments. These could be in the wider community or on campus in our own shops, eateries, gardens, studios, offices, kitchens, workshops, small animal units or car valeting and recycling facilities. Learners are supported to lead the life they want and to be as independent as they can be.

Derwen College

Oswestry, Shropshire, SY11 3JA Tel: 01691 661234 E-mail: : enquiries@derwen.ac.uk

Web: www.derwen.ac.uk

Henshaws College is a national further education college in Harrogate for young people aged 16-25 with a wide range of disabilities and additional support needs. We offer every student an individually tailored curriculum focused on personal and social development, independence and employability. Our specialist staff support day and residential students to achieve their personal goals and aspirations for the future. Disability support services including therapies and assistive technologies, subject to funding, can be included as part of a wider package to maximise the progress each individual can achieve. “He is growing up, becoming much more confident and independent when he comes home.” - Parent

Henshaws College

Bogs Lane, Harrogate, North Yorkshire HG1 4ED Tel: 01423 886451 E-mail: admissions@henshaws.ac.uk Web: http://www.henshaws.ac.uk


27 Parkanaur College is a residential college committed to promoting equally the vocational education and personal development of people with a range of learning difficulties and disabilities. The College aims, within a residential setting, to provide the opportunity for people with disabilities to bridge the gap and facilitate the transition between school or the sheltered home environment, to employment and independent living accommodation. Students are offered a range of courses aimed at providing access to a variety of nationally recognised qualifications, vocational training and work experience. The College currently offers OCN qualification in General Administration, Horticulture, Catering and Hospitality and Assembled and Upholstered Furniture Production.

Royal College Manchester at Seashell Trust is an outstanding day and residential college. We have a unique focus and specialism around communication and offer three programmes: multi-sensory support, autism support and an entry level programme. Students make outstanding progress in their communication, independence and work skills. Our excellent curriculum provides an extensive range of learning opportunities, carefully matched to students’ needs and supported by onsite therapy, medical and inclusive sports facilities and community learning activities.

Royal College Manchester at Seashell Trust

Parkanaur College

57 Parkanaur Road, Dungannon, Co Tyrone BT70 3AA Tel: 028 8776 1272 E-mail: parkanaurcollege@btopenworld.com Web: www.parkanaurcollege.org.uk

RNIB College Loughborough is part of RNIB, the largest sight loss charity in the UK. We support students with a wide range of disabilities to achieve their goals. We are a small, friendly college where each member of staff wants to support and empower each student to achieve their full potential.

Seashell Trust, Stanley Road, Cheadle Hulme, Cheshire SK8 6RQ Tel: 0161 610 0100 E-mail: info@seashelltrust.org.uk • Web: www.seashelltrust.org.uk

Treloar College offers education and care to students with complex physical disabilities from 16 to 25 years of age. Education ranges from interactive and sensory classes, creative and enterprise courses to vocational studies. Our unique partnership with Alton College enables students to access a full range of A Level and BTEC courses at a mainstream provision. We combine health, care and education to enable students to realise their full potential and long term goals whilst getting the most out of life.

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Why should YOU vote? Every four years there is an opportunity to vote for the people who run the country. This is called a General Election and the next one is this year. Progress looks at the reasons behind why it is important to vote and how you can learn more.

Voting in the 2015 General Election is one of the most important things you can do, because it means you have your say in how you want the country to be run; influencing the issues that affect you. Many important Laws, like the Equality Act in 2010, were brought in by the Government of the time, changing the way society works and how society thinks. Without your vote, the country could be run in a way you don’t really like and it’s important you know who to vote for.

Why aren’t you voting?

Many young people don’t vote because they think their vote won’t make any difference, or they’d like to vote but don’t know enough about it. However, voting is very important as it shapes the way the country is run which could affect you. If you have no vote, you have no say. For example, our welfare system in the current Coalition Government (Conservative Party and Liberal Democrats) has been really

changed and a lot of people have been affected. One change that has had an impact is the Personal Independence Payment (PIP), introduced in April 2013. It replaced Disability Living Allowance (DLA). The Government said that PIP would be easier to understand than DLA, but a lot of disability groups see PIP as unfair and just a way for the Government to save money. According to a recent survey by Mencap, 60% of people with a learning disability say that registering to vote was too hard. A lot of young disabled people aren’t voting because of a lack of accessible information. The manifestos (documents saying what each political party will do if elected to Government) provided by the three major political parties were only put into ‘easy-read’ as recently as the last General Election in 2010. Politicians were effectively preventing you from learning about their plans and being able to make choose who

Voting in the 2015 General Election is one of the most important things you can do, because it means you have your say in how you want the country to be run.

to vote for. Making things easier to understand gives everyone a fair chance to change or support what may happen in the country. Feeling left out of politics can make you think that there is no point in voting. In the 2010 General Election, almost one quarter of people with disabilities (23%) gave ‘permanent illness or disability’ as their reason for not being registered to vote; the process of voting can be confusing and there can be difficulties at polling stations (the place you have to go to vote). A lot of this is down to not being able to access the facilities, not understanding politics, the main parties and what they want to do with our country.

Who can help you?

Some organisations, such as United Response and Mencap, have stepped in to provide easily accessible information around voting and elections, taking action to ensure that young people with learning disabilities are involved.


YES United Response has set up Every Vote Counts, an election planner that is designed for people with learning disabilities and hard to reach groups. Launched in 2010, the planner is broken down into 10 stages, so procedures and information needed to prepare people ahead of the election is easier to follow. Legal barriers, what voting means and the practicality of voting (mobility issues etc) are all covered in this innovative scheme. Regular updates will be issued in the run up to the election. Every Vote Counts has also launched brand new easy-read resources, available to anyone for free. They are broken down into three resources with an extra booklet aimed at helping supporter staff and carers use them. The resources make the following subjects accessible – How politics affects your life, How politics works, How to get involved in politics with the fourth leaflet called

NO Supporting people to find out more about politics. They can be ordered from the Every Vote Counts website www.everyvotecounts.org.uk Mencap is also lending a hand, creating the Easy Guide to Voting. It has everything you need to understand the voting and election processes, with simple language and bright, colourful illustrations. Each chapter can be downloaded. You can also register for the 2015 election. You can find it at www.mencap.org.uk/ allaboutvoting Mencap also has the Hear my Voice campaign, which is running alongside the election. Major issues are faced by people with learning disabilities every day, yet these issues are hardly, if ever, brought up for debate at election time. You can join the campaign and help raise awareness of these issues and make politicians aware. www.mencap.org.uk/hearmyvoice

MAYBE Dimensions is also trying to get young people with disabilities involved in politics. They are running the Love Your Vote campaign, which runs workshops all over the country that explain the political process and how to vote. You can even host your own Love Your Vote workshop, with the help of the campaign. Visit the website for more information and download your free Love Your Vote poster www.dimensions-uk.org/getinvolved/love-your-vote-getinvolved/

The date of the next General Election is set to be on the 7th May 2015, so make sure you are prepared. You don’t want to miss out on the opportunity to have a say on the future of the country.

Making things easier to understand gives everyone a fair chance to change or support what may happen in the country.

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The Local Offer

The Local Offer has been designed to make it easier for you to find out what is available in your area.

The duty to create a Local Offer came into force on 1st September 2014. As part of the Children’s and Families Act, LAs must set out a ‘Local Offer’ of support available to children and young people with SEND in their areas. It is hoped that, due to this, LAs will see where there are gaps in services and support and will listen to and work with families to meet their needs locally.

• Transport arrangements to and from school, post-16 education and early years’ providers;

This means that if you live in England, your LA should have set up a Local Offer.

• Childcare providers, including providers suitable for disabled children and those with SEN;

What should be in a Local Offer? According to the new SEN Code of Practice, a LA’s Local Offer must have details on many things including: • Special educational, health and social care provision including online and blended learning; • Information about arranging an assessment for an Education Health and Care Plan; • Arrangements for identifying and assessing children and young people with SEN; • Other educational provision including sports, arts or paired reading schemes; • Post-16 education and training provision; • Apprenticeships, traineeships and supported internships; • Information about provision to help prepare for adulthood;

• Sources of information, advice and support relating to SEND including parent forums and carer and support groups; • Support to help children move between education (ie primary to secondary);

• Leisure activities; • Support available to young people in higher education; • Arrangements for resolving disagreements, for mediation or making complaints; and • Rights to appeal a LAs decision to the First-tier Tribunal (SEND). The SEN reforms are said to have already had a positive impact on children and young people with disabilities, their families and carers. It should make it easier to access, choose and allocate services and more people should see the benefit. Having a Local Offer in your area means you can find out about things you may know are out there. It also helps communities make more changes, and have their say on what should be available for children and young people (up to 25 years old) with SEN in their area. It should be noted that the aim of the Local Offer is to improve transparency in the system, and


The Local Offer is something which has been introduced as a result of the Children and Families Act. All local authorities (LAs) are under a duty to publish a local offer, detailing what it has available for children and young people with Special Educational Needs and Disability (SEND) in the area. Progress explores the Local Offer and what might be available in your area.

to provide people with information about what may be available. It does not create any duty on the local authority to provide any or all of the provision in the Local Offer to children with SEN. Resources and provision will only be made following an assessment of a child or young person’s SEN.

How to find your Local Offer The Local Offer website (www.thelocaloffer.co.uk) is the fastest growing online social enterprise and can put you in touch with providers of education, health and social care services. It was made to reach out to children and young people with SEND and their families, carers, schools and those people who commission services. For the past few months, its goal has been to develop a ‘Road Map of SEND Provision’ across England. The database of providers that have been collected in The Local Offer website spans the nine regions of England and all the 152 local authorities. Anyone can access the information on the site. You can also find your LA’s Local Offer by visiting www.thelocaloffer. co.uk/the-local-offer-by-localauthority or you can use a search engine, like Google, to find it. Just type your region, followed by ‘Local Offer’ e.g. ‘Cambridgeshire Local Offer’ in the search bar.

Local differences

Building your future

LAs have embraced the Local Offer in different ways. Some have already completed it, whereas others are still in the process of putting one together. Some don’t appear to have a Local Offer set up yet. Technically this means they are in breach of the Regulations and the Code of Practice, which required them to have set up a Local Offer by 1st September 2014.

The Local Offer has been designed to make it easier for you to find out what is available in your area. It should make it easier for you to find out what services, support and other activities are in your area. Hopefully it’ll help you to build the life you want for yourself.

The way that each LA has tackled the Local Offer can vary from region to region. You may need to look a little harder (using a search engine) if your region isn’t as far forward as others. It could be because the website has not been updated in your area recently. Don’t be disheartened. LAs are slowly building their Local Offers, and soon you, your parents and carers will have this information. You can also search for providers by visiting www.thelocaloffer. co.uk/providers. There are lots of search options, and you can use your postcode, local authority, your category of SEND, what kind of service you want, or your age. A few services could be unique to your region and others could be national organisations, so you never know what you may find.

LAs have embraced the Local Offer in different ways. Some have already completed it, whereas others are still in the process of putting one together.

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I n te re s t i ng & u n us u a l h o l id ays

Are you tired of the same old getaways? Would you like to have some adventure in a strange, new place? Progress takes a look at some interesting and unusual holidays and destinations that you could definitely write home about.

It’s that time of year again, where you prepare your next holiday to fight away the chill of winter. You may be thinking about the same places that you know will be highly accessible and a safe choice. But, do you wonder what it would be like to get out of your comfort zone, and experience a bit more of the world? It will surprise you how much is actually accessible, and what you can experience and enjoy, with freedom, comfort, and safety.

Panda Inn, Sichuan, China This must be seen to be believed. Panda Inn is located near Mount Emei, a world heritage site. The 32-room hotel is covered in panda art, furniture and fluffy toys. The staff even dress in Panda suits. www.panda-inn.cn

Unconventional USA Now I know what you must be thinking. Disneyland? California? Texas? Actually, there is a lot more to explore than the home of Mickey Mouse and the major cities in America. It will surprise you just how unusual this rich and varied country can be. Why not rent a vehicle and explore the unseen and rural backdrops and landscapes? www.accessiblevans.com

Guanajuato mummy museum This is definitely not for the faint of heart. At the Guanajuato mummy museum in central Mexico, you will find the spooky attraction that holds over 100 naturally preserved bodies, known as mummies to the locals, within its walls. Exhumed between 1870 and 1958, they are displayed in many ways around the museum, allowing you to get up close and personal with the mummified women, men and children lining the hallways and rooms. The museum is actually an important part of Mexico’s cultural heritage. www.momiasdeguanajuato.gob.mx/english

Wheelchair accessible hot air balloons Up & Away ballooning in San Francisco became the first hot air balloon company to offer accessible air ballooning in 2011. Its passenger basket is specially designed so you can soar high over the picturesque Sonoma County Wine Country and almost touch the clouds! Would you like this to be your next adventure? Visit www.up-away.com/wheelchair.html to find out more.

Mysteries of Mexico Mexico has a lot of culture, landscapes and attractions that go unseen by many who just visit it for its glorious beaches. Your chance to enjoy these wonders is in your reach. Check out www.accesiblemexico.com to find out more.


Pancake Rocks, New Zealand In Punakaiki, where a small community lives, comes an unusual destination. The pancake rocks, which are deemed to be popular with tourists, are a result of the sea craftily shaping the limestone and sandstone rocks with immense pressure during high tides to make them look like stacks of yummy pancakes. Sounds strange, looks stranger.

Culture in China Have you ever thought about China? Its beautiful landscapes, its interesting people, its ancient and detailed history and tradition? Travel agency The China Guide can provide accessible trips for wheelchair users – whether it be for the day or holidays – around China’s attractions and cities. www.thechinaguide.com

Magic of Morocco Morocco is said to be one of the most beautiful, exotic and magical places in all of Africa. Known for its ancient and underground world of sorcery and healing, the country will certainly cast a spell on you. Morocco accessible travel will help you explore the astonishing natural beauty and culture of this African country in safety and comfort, without getting in the way of your adventures. www.moroccoaccessibletravel.com

Nature of New Zealand New Zealand seems, for a lot of us, unreachable. The country is renowned for its astounding natural beauty, stretching green landscapes and adventure. Accessible New Zealand makes it happen, giving you all of the experience of the country’s culture whilst keeping you safe and happy. www.accessiblenz.com

Djemaa El-Fna, Marrakech One of the top tourist attractions in Morocco, Djemaa El-Fna is one of the places you should go to if you visit or stay in Marrakech, which is also known as the ‘Red City’ because most of the city’s buildings are made of red sandstone. Djemaa El-Fna is a market square, and during the day it is filled with snake charmers and stalls. Then, once the snake charmers leave, magicians, storytellers and food stalls come to charm the crowds for the rest of the day and night.

Natural History Museum You need to experience this museum at least once in your life. It centres on nature and its beauty, danger and evolution. Animals, dinosaurs, plants and humans are just an example of what is presented. The exhibitions are immense, especially the dinosaur exhibition, where you can get up-close and personal with a T-Rex. www.nhm.ac.uk

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A fantastic fun filled destination on the east coast for adults with learning disabilities. Our holiday packages offer something for all our guests giving you the opportunity to see the sights, heritage and excitement that Lincolnshire and the seaside has to offer.

01754 763 941 or visit www.oceaneer.co.uk Call us now on

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FUN FILLED HOLIDAYS FOR ADULTS WITH LEARNING DISABILITIES

Calvert Trust Exmoor enables people of any age and any disability to experience exciting, challenging, and enjoyable accessible activity holidays with family and friends.

At our five star, fully accessible residential centre on the edge of Exmoor National Park all activities and facilities are specifically designed and equipped to cater for everyone. Stay with us for a few days, a week, or just for the day; however long you’re here you’ll discover it's what you CAN do that Counts!

01598 763221 exmoor@calvert-trust.org.uk

Helsey House Holiday Cottages Helsey House Helsey Nr Hogsthorpe, Skegness PE24 5PE Telephone: 01754 872 927 E-mail: info@HelseyCottages.co.uk

Helsey House Cottages are situated within the private grounds

of Helsey House in the hamlet of Helsey near Hogsthorpe on the North East Lincolnshire coast. They are single storey and on one level with no steps. Free wi-fi access.

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In need of a holiday or respite break?

Looking for somewhere that can provide expert and discreet care support so that you can fully relax and recharge?

Each award winning cottage has been converted from original cattle stalls belonging to the dairy farm. They have been furnished to the highest standard whilst maintaining original features and character of the buildings. There is ample parking in the grounds. The owners live on site so are available for help and advice. AVAILABLE FACILITIES: • We can arrange for groceries to be available on arrival • We have a wheelchair and a shower wheelchair available for guests’ use. A toilet seat riser and bed risers are also available. • An Oxford midi 150 mobile hoist is available for guests’ use. • Both cottages have laminated flooring for ease of mobility and are on one level. The Cow Shed

• A laundry room with a washer, sink with hot and cold water, tumble dryer and an iron and ironing board are all available. • Pets are welcome. We have our own free range chickens with fresh eggs for you to purchase.

The Dairy

www.helseycottages.co.uk @HelseyCottages

Join us at Park House Hotel in the beautiful parklands of the Royal Sandringham Estate for a truly special holiday experience. For over 25 years we have been providing award winning breaks to disabled guests and their carers who return year after year. With all the features you expect from a first class hotel and an exceptional level of disabled access and support we make sure your holiday is totally revitalising. For further details on the hotel and our care packages please contact the Reception Team on

Telephone: 01485 543000 Website: parkhousehotel.org.uk Email: parkinfo@leonardcheshire.org


Unbelievable UK What will also surprise you is how much there is to do in Britain, and how unusual some of Britain’s landmarks are. Why don’t you go away for a weekend and visit Avebury in Wiltshire? One of the best – and spookiest – monuments in Europe, it beats Stonehenge in its size…and mystery. Or for something a little tastier, have a chocolate-filled day at Cadbury World, where you can enjoy sweetly-inspired activities, like a 4D Chocolate Adventure. You can also visit the World’s Biggest Cadbury Shop! www.cadburyworld.co.uk Check out www.openbritain.net to see what unusual destinations are near you. They’re probably closer than you think. If you’re counting the pennies, try out a museum. Most are free and there is always one around no matter where you travel.

Experience Barnsley Museum and Discovery Centre Shortlisted for the Family Friendly Museum Award 2014, this museum is all about Barnsley, its people, and its history. You can discover the story of Barnsley for yourself, as well as adding to the archives, so you’re a part of its history. The Museum History Day is on the 22nd February, which will be full of fun activities and entertainment with a hands-on approach. www.experience-barnsley.com

Hastings Museum and Art Gallery A favourite for families, they have displays of local history (like the birth of television and Mods and Rockers), local wildlife, dinosaurs, Native American displays and a forever changing art exhibition. They also have a range of hands-on activities like fossil dig, dressing up, and instruments. www.hmag.org.uk Check out more free museums at www.visitbritain.com/ en/Things-to-do/Culture/Free-museums.htm

If you want to go on holiday, don’t forget to: • Book ahead so you’ve plenty of time to prepare. • Choose a good airline if travelling abroad, particularly if you have specific needs. Budget airlines may be cheaper but they may not be able to offer you all the support you need. Check to be sure. • Research into the best location and accommodation for you. • Buy travel insurance that will cover your condition. Make sure you tell them about everything. There are specialist insurers who may be able to help you. • Think about your support needs and whether you need to book a ticket for your support worker to accompany you. • Take your medication with you, and stock up for your holiday. Too much is better than not enough. Look into whether you need a copy of your prescription or a letter from your doctor. • Look at any transport you may need when you are there. Most of all, enjoy your holiday of a lifetime.

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The UK’s most award winning accessible holiday accommodation

Inspirational Wheelchair Accessible European Holidays For people with a real appetite for travel Makin’ Tracks tours are all about connecting you to the country you’re visiting.

Cosy, self-catering log cabins with stunning views of the Derbyshire countryside • M2 & M3a - stress free, easy level access for wheelchairs • No extras - mobile hoist, profile beds and equipment included • Explore local trails - hire the Boma 7 off-road buggy

You will be immersed in the character, colour, history and culture of where you are without having to waste time on those boring (but vital) down to earth issues like searching for the smoothest wheelchair routes or those elusive accessible toilets, thanks to our comprehensive research. With our own wheelchair accessible vehicle, an extensive range of moving & handling equipment and 30 years of hands-on experience, it’s no surprise that clients come away with us time and time again. We seek out new destinations every year, and can also create tours to suit you if you have something specific in mind or have an existing group of up to 8 people.

• Additional care support tailored to your needs • Relax and unwind on our working farm • We welcome children and pets • Help at hand from friendly on site owners Call David or Felicity on 01629 540262 e-mail: info@hoegrangeholidays.co.uk www.hoegrangeholidays.co.uk

0203 195 0151

For more information please visit

www.makintracks.eu

or telephone 01766 522457


Disabled-Friendly

Housing

Disabled-friendly housing is a home that has the right facilities to meet your daily needs. This can either be a purpose-built home or a somewhere that has been adapted for you. Progress looks at disabled-friendly housing, points to consider and where you can find it as supply is limited. If you have mobility needs, your home should be meet those needs. There are a number of ways a home can be disabled-friendly or adapted to meet your specific requirements. When looking for somewhere of your own, or even if you just want to review where you currently live, consider your specific needs and how you need them to be met to live happily and comfortably on a daily basis. • Do you need a parking space nearby or a ramp to the front door? • Do you have a mobility scooter than needs parking and charging? • If you have a wheelchair are doors wide enough? • Do you need hand rails inside or outside your building? • Can you climb stairs? If not, does the property have a stair lift, lift or is it on one level? • Do you have a bathroom on ground level? • Can you reach everything in your home? • Are kitchen cupboards or work surfaces too high? These considerations will help you to build a picture of what your home may need to enable you to live there happily and comfortably.

When looking for somewhere of your own, or even if you just want to review where you currently live, consider your specific needs and how you need them to be met to live happily and comfortably on a daily basis. Finding housing Housing can be a flat, a room in a shared house, a bungalow or a house. You could also consider supported living. It can be bought outright, with a mortgage, under a shared ownership initiative, rented privately or through a social landlord or housing association.

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We will support you the way you want us to!

Our support is different for each person as we design it around their individual needs and wishes. We will work with you, your family and other people important in your life, to make sure we get this right for you. We can support you to live in your own home, with other people or when you are out and about. We can support you for a few hours a week to 24 hours each day. We will help you build your skills to become more confident and independent so that you can make choices about everything that affects your life and puts you in control.

0800 0884 377 United Response is an award winning charity and has been supporting young people and adults with a wide range of needs and disabilities for 40 years.

get.support@unitedresponse.org.uk www.unitedresponse.org.uk/get-support Registered Charity No. 265249

The Beeches UK Ltd ASD • Learning Disability Challenging Behaviour • EBD The Beeches UK Ltd has been in existence for 12 years providing two Specialist Residential Care homes for children with learning disabilities and associated challenging behaviour with bespoke holistic care. Our Specialist School has been providing tailored individual tuition for 2 years. Our Supported Living domiciliary care agency has been assisting previous Beeches residents for 3 years.

unique personalised support

ubu is a specialist Health and Social Care support provider. We offer help and support to people with learning or physical disabilities, as well as people who may have social and/or behavioural difficulties which make it hard for them to find their place in everyday life. We believe that everyone, whatever their background and abilities can achieve great things. As such we work to ensure that vulnerable people are given the correct opportunities to enjoy a full and active lifestyle.

• 10-18 Residential Care • 10-18 SEN Specialist School • 18+ Supported Living

For more information, please call Denise Grayston on 01733 344448, email denise@beechesuk.co.uk or visit us at www.beechesuk.co.uk The Beeches & The Maples Residential Care Homes. The Beeches Independent School & Option One Care. All located in Peterborough , Cambridgeshire.

www.beechesuk.co.uk

ubu provide as much or as little specialised support as the people we serve need. This can encompass managing behaviour, gaining life skills, gaining qualifications and building relationships. We also work closely with family members and significant friends to assess and communicate all that we do. Everyone deserves the chance to become what they should be. For further details please visit our website:

www.ubu.me.uk unique personalised support


If you are looking for somewhere to live, the first place to start could be online. Websites such as Right Move www.rightmove.co.uk have lots of properties for sale or to rent privately. You can search by area and the type of property you’re looking for. It is unlikely to list whether a property is accessible however there should be pictures to look at and ways of getting in touch with the agent. To look for disabled-friendly housing, the Accessible Property Register specialises in promoting wheelchair accessible and adapted property, and wheelchair access holiday accommodation. Its website http://accessible-property.org.uk/start.htm also has a useful guide to different adaptations and a search facility. Most properties listed are to buy, however there are properties to rent and it even has the option to search for student accommodation. If you are considering supported or sheltered housing, it offers independent living with the option of support packages should they be required. They may also be more likely to be accessible, to have in place call systems, alarms or wardens should you need the security of someone available in the event that you need help. You can apply for council or housing association sheltered housing through GOV.UK. www.gov.uk/apply-for-sheltered-housing You can also contact your local authority’s housing department to ask whether they have any accessible properties available.

Housing can be a flat, a room in a shared house, a bungalow or a house. You could also consider supported living. It can be bought outright, with a mortgage, under a shared ownership initiative, rented privately or through a social landlord or housing association. Adapting your current home If you can’t find a disabled-friendly property, it is possible to make the adaptions to your current home to make it more accessible. Adaptations that you can make to your property include: - Widening doors and installing ramps; - Changing the way you access rooms or improving access – this could include widening doors or installing a stairlift; - Improving the bathroom including installing a wet room or bathroom downstairs; - Improving your heating system to meet your needs; - Changing any heating, lighting or power controls to make them easier to reach or use; - Installing a low-level kitchen or moving cupboards so you can reach them. Obviously, these things cost money but you may be able to access funding for some adaptations through a Disabled Facilities Grant. Contact your local authority and ask about the Disabled Facilities Grant if you need to make changes to your home including some of those adaptations listed above. A Disabled Facilities Grant will not affect any benefits that you’re getting but you will need to contact your local authority to ask if they can help you. You can also visit the GOV.UK website to see if you’re entitled. www.gov.uk/disabled-facilities-grants/ overview

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Home improvement agencies According to Foundations UK, the national body for home improvement agency and handyperson services, home improvement and handyperson service providers are local organisations dedicated to helping older people, people with disabilities and vulnerable people to live in safety and with dignity in their own homes. Services are focused on ensuring that existing housing is fit for purpose and that vulnerable people, predominantly homeowners, are able to continue living independently as long as possible. There are currently some 200 home improvement and handyperson service providers in England covering over 80% of local authorities Every home improvement agency provides a range of services depending on the needs of the local community. Their services can include: • Providing a list of reliable local builders and contractors; A suitable home is the single most important step towards living independently. You may need to ask yourself if your home is adequate for your needs, and if not, what does it need to meet your needs? The DLF (Disabled Living Foundation) offers a useful tool that can help you compile a list of your requirements. Visit: http:// asksara.dlf.org.uk to find out more. This website can also point you towards useful equipment that may help you with daily living. Wherever you live, you need to feel comfortable, settled and able to live the life you want. If you can’t find disabled friendly housing, there are alternative options to make your current home suitable for you.

• Visiting you at home to give advice about any problems you have with the condition of your home; • Setting out your housing options and helping you decide which is best for you; • Helping you obtain other local support services; • Checking whether you are entitled to any financial help (for example, disability benefits, or money to help you repair or adapt your home); • Helping with any work you decide to have carried out on your home. For example, drawing up plans, getting estimates and liaising with others involved in the work, such as council grants officers and occupational therapists; • Additional services such as a handyperson services, to carry out small jobs around your home, help with gardening, or coming home from hospital; • Helping to make your home more energy-efficient. The first visit and advice is free. Most home improvement agencies charge a fee if you decide to go ahead with any work using their assistance, which can normally be included with any grant you are eligible for. It is your decision whether you want the home improvement agency to help, and any costs will be discussed and agreed with you first. To find your nearest HIA visit www.foundations.uk.com/home/ where you can search on your postcode. With thanks to Foundations UK

Home Truths Unfortunately, there just isn’t enough disabled-friendly housing for everyone that needs it. Leading charity Leonard Cheshire has started a campaign called Home Truths which is calling on house builders and all political parties to commit to making sure the next generation of homes are all easily adaptable. They are asking for all new homes to be built to Lifetime Home Standards, and at least one in 10 new homes to be fully wheelchair accessible. The Lifetime Homes Standards are based on five main principles: inclusivity, accessibility, adaptability, sustainability and good value. Lifetime Homes Standards incorporates 16 design criteria which aim to create a home which is both flexible enough to meet the existing and changing needs of current households, and to also ensure that the needs of future occupants can be met through easy adaptions. The idea of the Home Truths campaign is that if someone becomes disabled, or their disability changes, they won’t need to pay for the changes to the walls or the stairs. Most importantly they will not be forced to move. This will only cost an additional £500-£1,000 (based on an average house), which is considerably lower than the amount of money otherwise spent on hospital visits and additional care. To find out more or to add your voice to the campaign visit: www.leonardcheshire.org/campaign-us/ourcampaigns/home-truths


www.ineedawheelchair.co.uk Tel: 01795 477280 E: katie.a@rms-kent.co.uk RMS Limited, Thompson House, Unit 10, Styles Close, Sittingbourne, Kent ME10 3BF

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is a gait trainer designed to help make the child’s self-movement easier. Its original design, with its patented height adjustment system, makes it unique in safety and elegance. It has a wide range of adjustments and supports which suit the different needs and requirements of the user.

• Seven versions • Two models: front drive and posterior walker in just one frame • Folding frame • Gait Trainer with constant centre of gravity • Precise and continuous adjustments • Interchangeable components • Two frames that cover five sizes • Ergonomic and independent supports for trunk and pelvis

Providing Specialist support and long-term solutions

Providing high quality and long-term solutions for adults with severe learning disabilities, autism and challenging behaviour. Here at Encompass we pride ourselves on offering a range of supportive services, which are tailored to your individual needs and assist your transition into independent living. Based in Dorset, we provide a whole host of services from dedicated Respite and Day Care, through to Residential Care and Support in Your Own Home. We are here to support you through any part of your care programme, to any degree that you require. So, if you would like to discuss any of our services

We provide 24 hour care and housing with a 2:1 staff ratio where needed, for individuals with complex needs, severe autism and challenging behaviour. We assist service users with all aspects of personal, medical and daily care.

Scenario Management support service users to access the community.

in more detail, please contact...

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Scenario Management 01253 869317 - Contact us for information Barbara O’Donnell

07773 718615 - barbara@smcare.co.uk Caroline O’Donnell

07525 688511 - caroline@smcare.co.uk

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Keeping healthy and Managing a healthy lifestyle and weight is important for your well-being. Progress explores this concern and offers some advice on how to keep a healthy weight.

According to Public Health England, one third of obese adults in England have a long-term illness or disability, compared to just a quarter of adults in the general population. Likewise, 35% of children with a disability are more likely to be obese compared to those without. Being obese or simply just ‘overweight’ means that you weigh more than what is recommended for someone of your age, height or even your build. This can be measured by your BMI (body mass index), a way of measuring your height and weight. These measurements are then compared to other people who are the same age as you to get an idea of where you sit against the average. The first step in tackling weight-related health issues is to understand it. There are many factors that can make people gain extra weight, including: • A lack of mobility (not moving around or exercising as much as you need to); • Various health conditions; • Certain medications; • Choice of lifestyle (spending more time sitting down than moving around); • Family genetics. Gaining weight can have an effect on your body, inside and out. You may notice your clothes getting tighter but any extra weight you have can put pressure on your joints (which help you walk and move), as well as your internal organs. All of this can also affect how you feel about yourself. The National Obesity Observatory (NOO), part of Public Health England said in a recent review that an ‘obese person had a 55% increased risk of developing depression over time, whereas someone who is depressed had a 58% increased risk of becoming obese’. It is not only important for your physical health to make sure you’re a healthy weight - but it is important to having a healthy mind, too.

Getting the Right Nutrition A balanced diet helps you to have a healthy body. Being obese or overweight can affect your health, lead to high blood pressure, Type 2 diabetes and coronary heart disease (to name a few), so try to remember that the occasional treat is okay but only as long as it’s not all the time. Finding the right balance with what you eat is the key to being a healthy weight; cut out all ‘treats’ and you risk having a negative relationship with food and are more likely to give up on eating healthily because you feel that you’re missing out. However, having too many means your body isn’t getting all the nutrients it really needs. Don’t try to do too much at once and don’t try to go it alone. You could contact a Dietician to provide you with more details. Dieticians specialise in helping you to make healthy food choices to meet your nutritional needs. To find out more about dieticians, visit: www.freelancedietitians.org


managing your weight Your GP is also a good place to start if you want to know whether you’re a healthy weight or to get advice and guidance on weight issues. It’s always important to ask for expert advice.

Exercise Maintaining a healthy and balanced diet is essential, but getting enough exercise is just as important. Many people aren’t sure where to start when it comes to exercise, or they get bored easily, but no one said it had to be boring! Is there a friend you can exercise with? What does your local gym offer? Physical activity helps us to become fit and healthy. To look at the types of exercise available to you, visit the NHS Choices website. There’s even a video for people with disabilities to help them get the right kind of exercise: www.nhs.uk/video/pages/ exerciseanddisability.aspx

Getting active According to NHS Choices Young people aged five to 18 should get at least 60 minutes of physical activity a day. For adults aged 19 and over, 150 minutes of physical activity a week is recommended.

Get a friend to join you. That way you can celebrate reaching a goal together. If you feel like snacking, think about whether you are hungry or thirsty. When did you last eat? You could try drinking a cold glass of water instead. It should help to stop unnecessary snacking - and it helps you to stay hydrated, too. Make sure you eat properly three balanced meals and two healthy snacks, eaten regularly throughout the day will prevent you from getting hungry and snacking too often. Don’t eat your meals in front of the TV! You might not be paying attention to when you’re full up and this can lead to eating more than you actually need. Are there any local sports groups you can join? Can you and a friend take up a social sport or hobby, such as football or cycling? What about drama or dance clubs? Get out more to avoid physical inactivity. It is important that you start small. Build up your targets gradually so that over time they become more like healthy habits. No one expects you to reach all of your goals overnight.

Remember It is important to remember that being healthy is about sustaining the weight that is right for you. It is not about comparing yourself to your friends, people in magazines or those on television. Always seek the advice of a medical professional (either your doctor, a dietician or a qualified GP) before you start any activities specifically designed to help you lose weight. If you need to achieve a specific weight, for health reasons speak to your doctor and they can help set you healthy and manageable goals or targets whilst providing you with the relevant support.

Keeping healthy - tips How else can you keep healthy? Tell your friends and family that you’re making changes to your lifestyle in order to become healthier. It’s surprising how far a little bit of support can go.

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i

TALKING ABOUT

Welcome back to our sex and relationships column with Gill Leno. Gill is happy to answer any questions you may have about sex and relationships. Don’t feel embarrassed or too shy to get in touch – there’s no such thing as a silly question. If you’re wondering about it, someone else probably is too.

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Privacy and spending time together PARE N

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Do ques you hav e an tion abou s about y t child sex with talking ? I’m your her anyo e to help ne.

In this issue we’re talking about privacy and spending time together, including some of the topics this can raise. One of the most common issues for young people who need extra support is that they may find it more difficult to arrange private time together with their boyfriend or girlfriend, especially if they only get to see each other at school or college. Of course it is important that you do get to have some time together, and the best way of ensuring that you get supported in this rather than encounter problems is to talk openly about your wishes with your parents, carers or support staff. As long as you are being safe and acting appropriately for the location, there shouldn’t be any problems that you can’t talk through. This can be a daunting prospect if you are a parent or a carer. The reality is that young people will want to spend time with boyfriends or girlfriends, whether that is with other young people as a group or alone as a couple. It is important that they feel confident in being able to bring this up so that there is the opportunity to support them in it. One way of helping this along is to mention it first, that way you can let them know that they will be listened to and respected.

For parents, young people, teachers and support staff, it can be useful to know what rights young people have and what support is out there for everyone involved. A good place to start is www.brook.org.uk which has simple, straightforward guides to rights, the law, and staying safe. Being consistent, clear and compassionate are important - as is a culture of open communication between young people, home and school/college. By talking openly and positively about romantic and sexual expression there is more opportunity to support positive choices and behaviour, as well as allowing young people to explore their developing sexuality and relationships safely and happily.

D have a o you questio n? Email

: editor progr @ nothin essmagazine g is off .co.uk – li no nee d to be mits and the re’s s hy. We one or ’ll c tw they’ll o each time hoose be an you ca anonymous, d n ask w s hateve o r you like .

If it’s urgent (or private) you can contact me at gleno@qac.ac.uk and I will email you back.

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Making a will or setting up a trust that includes a loved one with a learning disability can seem daunting. With Mencap’s expertise, it needn’t be. Mencap’s free wills and trusts seminars provide parents and carers with specialist legal advice to help you protect the financial future of a loved one with a learning disability. The seminars begin in March 2015 and will run throughout the year. The seminars take place across England, Wales and Northern Ireland and are an opportunity to access face to face advice from a specialist legal professional. To book a place or to order a free information pack, please contact:

Planning for the future of a loved one with a learning disability.

@

0207 696 6925 willsandtrusts@mencap.org.uk www.mencap.org.uk/willsandtrusts

Registered charity number 222377 (England and Wales); SC041079 (Scotland)

2014.156

Progress mag ad:Layout 1 04/08/2014 15:57 Page 1 2014.156_Progress Magazine 185x130.indd 1

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Unrivalled Private Client expertise Our experienced team shows real commitment to delivering the right quality of service at the best price. • Wills • Trust formation, administration & taxation • Lasting Powers of Attorney • Probate and Administration of Estates • Court of Protection Applications Nigel Cullen 0845 274 6879 nigel.cullen@freeths.co.uk

www.freeths.co.uk

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UNDERSTANDING WILLS AND TRUSTS

If you are a parent or carer of a young person with additional needs, have you given any thought to long-term plans for their future?

PLANNING FOR THEIR FUTURE

BY SETTING UP A WILL OR TRUST CAN TAKE AWAY SOME OF THE WORRY OF WHAT THE FUTURE MAY BRING.

If you’re just getting through day to day life, it may not feel like something you are able to think about just yet. However, planning for their future by setting up a will or trust can take away some of the worry of what the future may bring. Nigel Cullen sets out some of what you need to know about the importance of setting up a will or trust to protect your child’s future.


A WILL IS A LEGAL DOCUMENT THAT OUTLINES WHAT YOU WOULD LIKE TO HAPPEN TO YOUR THINGS WHEN YOU DIE. THIS COULD BE YOUR PROPERTY, MONEY OR EVEN THINGS YOU OWN.

What is a will? A will is a legal document that outlines what you would like to happen to your things when you die. This could be your property, money or even things you own. It is possible to draft a will using online templates; stationers also provide Will packs. However, there are risks of not getting the wording right or not dealing with the strict signing and witnessing requirements correctly. As such it really is advisable to consult a solicitor. The job generally only takes a few hours and is relatively inexpensive. Alternatively, ‘Will Weeks’ are advertised each year around March and October when participating solicitors will draft up wills in exchange for a donation to charity. Anyone dealing with instructions about writing a will need to be told about the type of property to be given away, where it is and the intended beneficiaries. If you later sell a particular item you have said that you originally wanted to gift to a friend then, of course, this gift will default. If the property mentioned in your will is not in your possession when you die, then it is obviously not there to be given away. Similarly, if after you have made a will you buy or come into property then this may need specific mention, so you should remember to review your will from time to time.

Why should I have a will? It is important to set up a will because if you die without having one, a process called intestacy will have be followed by Law. The Law related to intestacy decides who will receive your property after your death. This may mean that loved ones and charities you wanted to benefit will not. If you don’t write a will, under the Inheritance and Trustees’ Powers Act 2014 your property will be divided as follows: • All jointly owned property will pass to the surviving joint owner (as has always been the case). If you have property held exclusively in your own name then: • A surviving spouse or civil partner will receive a legacy worth up to £250,000 and personal belongings, but not property used solely or mainly for business purposes as well as those held solely as an investment.

Anything left over (the remainder of your estate) will be divided: • 50% to the surviving spouse/civil partner and • 50% to any of your children upon them reaching the age of 18. There are other aspects that you may need to consider, including the rights of your partner if you are co-habiting. Always seek professional advice to make sure your will can be followed as you intend. Frankly, if you want your loved ones to be provided for as you wish - making a will is recommended. Around twothirds of the population do not have wills. Gain peace of mind and limit the future scope for squabbles over property.

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TRUSTS ARE MAINLY SET UP TO

LOOK AFTER AND PASS ON ASSETS IN A WAY THAT BEST PROTECTS THE PERSON INTENDED TO BENEFIT FROM THE TRUST.

Why set up a trust? A trust is a way of looking after property, money and other valuable items, for people who may not be able to look after them. According to HM Revenues and Customs (HMRC), trusts may be set up for a number of reasons: • to control and protect family assets; • when someone is too young to handle their property and affairs; • when someone can’t handle their property and affairs because they lack capacity; • to pass on money or property while you are still alive; • to pass on money or assets when you die under the terms of your will (known as a ‘will trust’); or • under the rules of inheritance that apply when someone dies without leaving a valid will (in England and Wales). There are other types of ‘nonfamily’ trusts but they aren’t relevant here.

How do they work? Trusts are mainly set up to look after and pass on assets in a way that best protects the person intended to benefit from the trust. In this instance, it means the best way for you to put aside money, property and/or items for your child’s future, to make sure they get it as you intended if they aren’t able to manage it themselves. If you are making a gift to your child or putting aside some of your estate for their future benefit, as part of the trust you ask someone to be a trustee to manage whatever you have put into the trust. People you appoint as trustees will be responsible for carrying out your wishes (as written down in the Trust deed which is a legal document). There may be tax savings on ‘qualifying trusts’ for ‘vulnerable beneficiaries’. According to HMRC, ‘A beneficiary is anyone who benefits from a trust’. A vulnerable beneficiary is either a person who is mentally or physically disabled; or someone under 18 - called a relevant minor who has lost a parent through death. Over time a lot of law has grown up around the management of trusts which makes it seem complicated. Trust deeds can actually be quite

straightforward, but there are a number of formalities when drafting them. It is generally recommended that you consult with a solicitor to be sure that any proposed trust arrangement will work in the way you want it to. Especially to make sure of tax advantages and to avoid any arguments later which could damage the trust to the point of destroying the intended benefit altogether. Although it is not covered here - if you are planning for the future with wills and trusts, think too about writing a Lasting Power of Attorney covering your financial and welfare wishes should you lose capacity to manage your affairs during your lifetime. Planning for the future may not be something you’d like to think about, but by seeking professional advice and taking some time to set out your wishes, you can help to secure your child’s future.

With thanks to Nigel Cullen, Freeths LLP. www.freeths.co.uk


SeeAbility and Local Optical Committee Support Unit have found that 97% of adults with a learning disability cannot access specialist eye tests that are right for them. Why can’t you access an eye test? What is out there to help you?

LOOK AFTER

YOUR

EYES

Progress gives a clear view to help you look after your eyes.

The importance of eye tests Vision is key to understanding the world around you and having trouble with your sight can often make everyday activities more difficult. Problems with your eyes can make it hard for you to learn, communicate and move. Often, you or your family or carer can miss the signs that there is an issue with your sight. If you have a learning disability, sometimes people think it might be related to that.

enough time to complete the eye test in the best way for you. For example, you may need more time to do some parts of the eye test.

Eye tests, with the right equipment to suit your needs, can be simple and informative. Without one, many sight-threatening conditions, like glaucoma or diabetes, can go undetected. People with learning disabilities are 10 times more likely than others to have a serious eye problem, and six out of 10 people with learning disabilities need to wear glasses.

Sometimes you and your family or carer are not aware of potential sight loss and it can be a confusing time for everyone. Understanding how your sight may be impaired is important to help you have the best quality of life possible.

You can have your eyes tested by an optician, also known as an optometrist. Sometimes, it can be difficult for a high street optometrist to assess your sight and many would not consider themselves experts at making sure you’re receiving the correct care. Although they are trained to help you, there is often not

At the moment, lots of high street opticians cannot offer fully accessible eye care services for everyone. The only eye care services that are commissioned for people with learning disabilities are in parts of London. These tests are longer and the optometrists will have a full understanding of your eyes.

People with learning disabilities are 10 times more likely than others to have a serious eye problem, and six out of 10 people with learning disabilities need to wear glasses.

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If you are given glasses to wear to help your vision, there will always be a period of adjustment and adaptation, in which support will be needed to help you. If your sight problems are not checked out, in time your vision may get worse, and can lead to further, more severe sight problems, which can decrease your independence. This is often avoidable with the correct care and assessment.

What you need to know Having an eye test is very important, and you should have one every two years, or more if your doctor or optometrist suggest it. As stated above, lots of people with learning disabilities seem to have poor sight, and most of the time they simply need glasses. However, some people need medication (like eye drops) or treatment, and some people need operations. There are many different signs and symptoms that could highlight a potential eye problem, and some of them are: • Eye poking or rubbing; • Persistent red eyes; • Uneasiness with bright lights; • Depression, anger or frustration; • Bumping into things. If you have always had poor sight, you might not know that people can see much better than you. How bright or dark it is, your health and your medication can all affect how you see during the day. If there are any changes to your eyesight, you should get an eye examination. If you notice any of the above signs and symptoms, search the Sharing Our Knowledge section on SeeAbility’s website to find an optometrist near to you.

If you have always had poor sight, you might not know that people can see much better than you. How bright or dark it is, your health and your medication can all affect how you see during the day.

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It’s easy to get a sight test at an opticians near you, just choose the place, tell them that the test is for someone with a learning disability and ask if they are able to offer you a test. You can also ask if you are entitled to a free NHS eye test.

You must make sure that the eye test is fully explained to you, as you may find it a strange experience. You will be able to take a supporter or carer with you. They can help describe your needs and help you through the process. You also have the right to have reasonable adjustments, like using pictures instead of letters. If you have a learning disability it will determine the type of eye examination you will receive. You may need to match two pictures, objects or letters, and be able to do what your optometrist asks. Or if you have limited communication, the optometrist has ways of checking your vision and that your eyes are healthy. You must make sure that the eye test is fully explained to you, as you may find it a strange experience. It can be scary for some people, because someone is very close to your eyes for a few minutes, but it is important for you to be able to see the world at its clearest. If you are given glasses to wear to help your vision, there will always be a period of adjustment and adaptation, in which support will be needed to help you. Eye health is very important and can be easily checked to help you see clearly. Get in touch with an optician and ask about an appointment explaining clearly about any needs you may have.

With thanks to Stephen Kill at SeeAbility. www.seeability.org


Award SHC A4

12/6/14

12:49 pm

Page 1

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mu We’re one of the UK’s leading independent providers of residential services, schools and colleges supporting people with autism and complex needs. At Hesley we believe addressing everyone’s unique sensory needs is the key to unlocking their potential. It’s why we take a more personal approach to sensory assessment and integration. Our experienced in-house Occupational Therapy team lead a multidisciplinary approach to offer a more proactive and insightful sensory provision based on individual needs and goals. Breaking down the barriers people put around themselves when they find it hard to cope with the sights, sounds, smells and textures all around them. Using pragmatic, evidence-based problem-solving techniques we’ve created a leading occupational therapy practise that’s making huge differences to the lives of those who use our service. Helping them tackle the daily activities that are so fundamental for independent daily living. Find out more about the Hesley Occupational Therapy approach visit www.hesleygroup.co.uk or call 0800 0556789.

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