1 minute read
Introducing……
by Janet Brewer, M.Ed
Since its inception in 2009, the heart of Comprehensive Health Education Services has always been driven by accuracy, compassion, and integrity. Programming has consistently been designed by our participants; YOU ask…WE listen. The PEOPLE in our community make the difference. We have been blessed with funders who know our HEART…our commitment. As an organization we have brought innovative educational experiences to the most under-served members of the bleeding disorders community:
Inhibitors:
• Inhibitor Family Camp
• After the Shock
• Leverage
• Momentum
• Moms Uninhibited Meeting
• The only newsletter specific to the inhibitor community at that time, LifeLines for Health
Ultra-Rare Bleeding Disorders:
• F7 Retreat
• Glanzmann’s Thrombasthenia Symposia
• One Drop
Women with Bleeding Disorders:
• LadyBugs
Why may you ask? Because we live bleeding disorders, each and every day. Our founders, Janet Brewer and Eric Lowe have over 100 years of combined experience with bleeding disorders that run the gamut from hemophilia, vWD, AIDS, HIV/Hep C, inhibitors, patient, parent, sibling, family member. We don’t just know bleeding disorders-we LIVE them.
Based on our participant’s feedback, nSpiration was founded as a 501 c 3 in 2015, to assist families through hardships, and provide needed travel funds to attend national educational events. These events are a lifeline for those who seldom have met another person in their state with their particular set of lived experiences with their specific bleeding disorder.
There have been multiple changes in our community over the last 14 years, and like many national and regional patient advocacy organizations, CHES has pivoted, adapted, and reinvented itself. Effective 01/01/2023, CHES and nSpiration have combined to create CHES Foundation, a 501 c 3 with the same heart when it was founded back in 2009. Same people, same compassion, accuracy and integrity, same commitment to YOU, our families.
But we can’t do this without YOUR support!
Fundraising will become a big part of our continued ability to bring you the types of programs/events you have come to trust and rely upon. We cannot make them happen without you our CHES FAMILY.
Get involved. Invite others. It takes a village!
https://ches.education/fundraising