FAIR Time For Women

On June 1, 2022, nearly 50 national stakeholders from the bleeding disorders community were invited to collaboratively support women in the bleeding disorders community to accomplish three specific goals; enable diagnosis, treatment, and access to medication for women with bleeding disorders. Originally formed under the name Women’s Coalition for Equality in Bleeding Disorders Care, the idea was conceptualized by Education and Advocacy Director, Ashley Gregory, Hemophilia Foundation of Northern California, and Ray Dattoli, lifelong community member and advocate. FAIR seeks to unite our nationwide stakeholders by utilizing currently existing initiatives such as HFA’s Bleeders Bill of Rights (2015), NHF MASAC Recommendations, patient advocacy organizations, physicians, and industry to achieve these goals and ensure the voices of women with bleeding disorders experiencing lack of access to diagnosis, care, and treatment are heard.

https://www.hemophilia.org/healthcare-professionals/guidelines-on-care/masac-documents/ masac-document-264-masac-recommendations-regarding-diagnosis-and-management-ofinherited-bleeding-disorders-in-girls-and-women-with-personal-and-family-history-of-bleeding 03/04/2021 https://www.hemophilia.org/healthcare-professionals/guidelines-on-care/masac-documents/ masac-document-269-standards-and-criteria-for-the-care-of-persons-with-congenitalbleeding-disorders

Women’s Health Services and Equitable Access and Diagnosis and Treatment at HTC’s 04/29/2022