Attracting Pharma
The Children’s Tumor Foundation provides answers to the questions that pharmaceutical companies are asking in order to invest in a rare disease such as neurofibromatosis.
Are teams of scientists working on this problem?
CTF’S SYNODOS TEAM SCIENCE INITIATIVES Designed and managed by CTF, a diverse team of renowned experts collaborate, participate, and immediately share all raw data in an NF Data Portal. By working together instead of in silos, we greatly increase the efficiency of research into difficult NF problems that are too complex to be solved by individual scientists.
Are there enough care and treatment centers?
THE CTF NF CLINIC NETWORK IS CONNECTING DOCTORS AND IMPROVING CARE
Where do we find experts?
CTF’S KEY OPINION LEADER NETWORK This expert network of specialists helps to guide drug discovery and development in order to increase scientific and clinical quality in decision making.
A growing network of CTF-affiliated clinics is cultivating relationships between patients and doctors, and working to standardize and improve NF patient care.
Are there patients engaged in the drug discovery process?
CTF PATIENT ENGAGEMENT PROGRAM NF patients and caregivers are recruited to our patient engagement training program, creating a team of Patient Advocates knowledgeable in all aspects of NF drug discovery.
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ANNUAL REPORT 2020
