REGISTRY

Existing NF Registry members are encouraged to complete the Healthcare Access Survey this May. This once-a-year survey, conducted by researchers at Massachusetts General Hospital, asks about your or your child’s NF care during the last year (from June 2021 to May 2022).

The survey is done during May every year as part of NF Awareness Month. Your participation is very important! It should only take 20 minutes or less to complete. Your responses will be shared with researchers anonymously. You will not be asked about individual doctors that you visit.

Thank you for helping to improve NF care! To participate, log in to your Registry account. Click on the name of the patient (you or your child) and select “Clinician Performance Surveys.” If you have trouble logging in, email us at nfregistry@ctf.org.