CSI Impact Brochure 2017

Cicely Saunders Institute staff

WHO Collaborating Centre for Palliative Care & Older People

The Cicely Saunders Institute The first purpose built Institute in the world for research, teaching and delivery of palliative care & rehabilitation

Contact us: Cicely Saunders Institute King’s College London Bessemer Road London SE5 9PJ United Kingdom Tel: +44 (0) 20 7848 5516 Fax: +44 (0) 20 7848 5517

E-mail: palliativecare@kcl.ac.uk Visit our website: www.csi.kcl.ac.uk

POS family of measures Download the POS family of measures for free! Simply register at the POS website: http://pos-pal.org/maix/about-us.php News & Events at the Institute The Institute hosts a seminar series which is free to attend and open to the public. To hear about news and upcoming events at the Institute, please send us an email to join our mailing list palliativecare@kcl.ac.uk and follow us on social media.

@CSI_KCL

www.youtube.com/user/CSIKCL

www.facebook.com/CicelySaundersInstitute

You matter because you are you, and you matter all the days of your life...’ - Dame Cicely Saunders

The Cicely Saunders Institute’s mission is to pioneer the very best in palliative care and rehabilitation by integrating cutting-edge research, skilled multiprofessional care and innovation in engagement and education. We are passionate about ensuring people live better with life-limiting disease, with dignity and choice, and minimal suffering, including to the end of their lives.

Worldwide, 107 people die every minute. Each year in the UK, palliative care is needed by two thirds of the half million people who die. We have improved palliative care locally and globally through development of the Palliative care Outcome Scale (POS) and other tools

The number of deaths will increase by almost 20% in the next 20 years, and fewer than 1 in 10 people will die at home if current trends continue, despite research showing most people would prefer to die at home. We have made significant improvements in respecting and achieving people’s preferred place of care and death  We transformed how people’s preferences are respected and achieved at the end of their lives: place of death is now a core health policy measure.

 POS enables care teams to quickly tailor care to needs, improving the care and quality of life of patients and providing support for their families.  It has had an outstanding impact on clinical knowledge, for instance the POS-S renal is recommended by NHS Kidney Care as a Gold Standard tool.  It has underpinned collaboration with Australia to develop UK standards for palliative care outcomes, through our CCHANGE project .

 Our work has driven policy for end-of-life care in the UK, Europe and Australia and helped to reduce institutionalisation at the time of death despite an ageing population.  We highlighted barriers that must be overcome and aids that could help people at the end of life to achieve their preferred place of care and death.

Transforming clinical practice

 We have developed and evaluated new treatments and services to tackle difficult symptoms such as breathlessness, depression, pain, spasticity and cachexia. We have developed and tested new tools to improve communication and palliative care in intensive care. Impact on policy  Our research discovered that provision of home-based palliative care doubles the odds of dying at home and suggested best models of care.  Palliative care for patients with advanced cancer should be part of any programme designed to reduce A&E admissions. We showed that palliative care reduces the odds of these patients attending an A&E department in the last month of their life by 50%.

‘Cicely Saunders Institute research was one key source of evidence that enabled key figures to embark on public debate and discussion of death and dying in a new way... There is no doubt that the work of the Institute was often dominant in the use of evidence over preferences and that this often drove the public debate’ - Impact of Place of Death, 2013.

 POS has been culturally adapted for use in 20 EU countries, Africa and in other countries around the globe. ‘The POS is one of the four most commonly used measures for clinical care, audit, training and research in Europe and Africa’ - The European Commission and the European Association for Palliative Care, 2014

‘POS is improving the quality of care through analysis of the data leading to changes in how the organisation delivers care’ - Impact of the APCA African POS on care and practice, 2013

The Institute’s international collaborations and the countries using its palliative care tools.

 Our work provides evidence for policy makers and care providers (Equity in the provision of palliative care in the UK: Review of Evidence, 2015). Developing leaders  Our bespoke PhD programme, aided by the Graduate School of King’s College London has enabled doctors, nurses and others to become independent researchers leading research teams and winning grant funding at an international level.  Our interprofessional MSc programme has advanced the knowledge of the principles and practice of palliative care and provides students with skills to appraise research and conduct methodologically robust studies.  Many of our graduates have gone on to assume leading roles as professors, chief executives, readers, lecturers and research fellows. Our PhD and MSc alumni have made a global impact on capacity building in palliative care and are producing high quality research  Nearly 300 national and international students have graduated from our PhD and MSc programmes, and have published 741 scientific outputs in textbooks and journals including the British Medical Journal and the Lancet.