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History of Racism & Inequity in Research

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Long history of research atrocities committed against people of color (e.g., Tuskegee Study, forced sterilization, intellectual property claims)

• Policy changes: 1993, Congress wrote the NIH inclusion policy into Federal law through a section in the NIH Revitalization Act of 1993 (Public Law 103-43) titled Women and Minorities as Subjects in Clinical Research.

• Important to acknowledge current medical racism (e.g., pharmacy deserts, Dr. Susan Moore’s death due to COVID, prison experimentation).

• Research studies tend to:

• Deemphasize the perceptions, thoughts, and interests of people of color, widening disparities in research outcomes and impacts. (e.g researchers of color or with lived experience

All this continues to influence the lack of trust in medicine and research (e.g. COVID-19 vaccine hesitancy)

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