parent SYRACUSE
October 2012
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Autumn antics WonderWorks offers unique fun for kids Things 2 Do this season
All for Lily Local family raises awareness, money for research of toddler’s fatal disorder
Boo! 2
Reflections on Halloween October is prime pumpkin time
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2 • Syracuse Parent and CNY Family • October 2012
From the editor
Halloween: A retrospective
E
very year, on Oct. 31, children from around the country will pull their masks on, wave their magic wands, grab their jack-o-lantern buckets and set off on their treat-collecting trip along the streets of their neighborhood. Our tradition is for my husband and father to take the kids around the neighborhood while my Momsense mother and I stay behind to hand out candy. We really enjoy the night — I whip up a batchof chili (see recipe for a vegetarian version on page 6) with cornbread and take turns answering the door with my mom, oohing and ahhing over the little ones and scratching my head over the fact that there are still plenty of older kids trick-or-treating. I figure — why not? Might as well do it while you’re still a kid, even if you are 17. It’s amazing to look back at the kids various costumes, from Cassidy’s Halloween debut as a bunny rabbit and Jacob’s as a sleepy dragon at just 30 days old, to last year’s three-peat of a Mario Brothers character — Toad and Cassidy’s incomprehensible “Vampire-Cowboy-Mermaid.” It’s been a wonderful holiday over the years for my family — one that’s always full of smiles, sweets and love. Happpy Halloween, and may you and your little goblins have many more.
Jennifer
Wing
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First Halloweens:
BUNNY: Cassidy, 2002, 7 months old
DRAGON: Jacob, 2003, 30 days old
The Margaret L. Williams Developmental Evaluation Center presents KidSpeak
Several years ago, Dr. Carroll Grant, the director of Margaret L. Williams Developmental Evaluation Center visited the classroom of a child with autism at his parent’s request. This child had difficulty communicating with the other children and sometimes behaved in unexpected ways, such as, walking on his toes, lining objects up in a row. These atypical behaviors confused his classmates who tended to avoid or make fun of him, causing him to become more frustrated and somewhat aggressive. This school visit left Dr. Grant wanting to do more in helping others understand how the neurobiological disorder of autism effects how children learn and behave. She hoped that a better understanding would lead to greater acceptance and potentially friendships. In 2005, the Kohl’s Cares Program made Dr. Grant’s vision a reality. The financial support of the Kohl’s program enabled Dr. Grant to develop KidSpeak: An Interactive Puppet Workshop about Autism and Asperger’s Syndrome. The 30-minute workshop is designed to help young children better understand their peers with autism and provide See KIDSPEAK, PAGE 4
Syracuse Parent and CNY Family • October 2012 • 3
Openers
When all seems glum, a surprise lightens the mood
WonderWorks lands in Syracuse
First Northeast location opens early next month By Farah F. Jadran It’s been whirling around in the air, and where it lands…well, it’s no mystery — it’s landing in Syracuse! WonderWorks, a family-friendly amusement park for the mind, will be opening to the Central New York community in early November. The family attraction is not only the first location to open in the Northeast, but also it’s the first time it will be located in a shopping center like Destiny USA. “It’s the first location to not be a standalone structure,” said Jackie Vasquez, corporate director of sales and marketing for WonderWorks. “This [WonderWorks] location will be located all on level on the third level of Destiny USA.” Want to experience Syracuse’s newWhile CNY’s amusement park for the mind est family attraction? Email fjadran@ will have many firsts, WonderWorks and its eglenewsonline.com to enter for your family-friendly appeal will remain the same, chance to win a Family Four Pack to according to Vasquez. WonderWorks! Enter once by Oct. 31 to WonderWorks features more than 100 inbe eligible. The winner will be notified teractive exhibits that utilize some of the most on Nov. 1. sophisticated graphic and audio presentation Tickets for the winner of the Family 4 techniques available. Pack will be available at Will Call by Nov.
Win a Family 4 Pack to WonderWorks!
See wONDERwORKS, PAGE 4
ABOVE: Visitors lay on a bed of 3,500 sharp nails without
feeling the pain from any nail. RIGHT: Phosphorescent images of guests appear and remain on a special wall. Guests walk away, and their shadow stays behind.
15.
For every parent, there are moments when you’ve had enough of the kicking and hair pulling and squabbling. Sunday evening was one of those times. The end of a weekend with no big plans invites those sullen feelings. There were quick stops at the Fayetteville Festival, and multiple playgrounds visits in between errands and meals and trying to find a quiet minute to catch up on work. But 48 hours of uninterrupted family time and all four of us were a little sick of one another. John couldn’t, or wouldn’t, stop finding excuses to pull Abby’s hair. Abby couldn’t, or wouldn’t, stop copping an attitude when asked to do anything. Carrie and I couldn’t, or wouldn’t, stop snapping at the kids for their infractions, both small and large. It culminated at dinner, when Abby interrupted nine or 10 too many times, and was sent away to think about her manners. So Carrie and I were left at the table, seething about our daughter and her attitude and what we were going to do about it when all of a sudden this loud, strange noise stopped the conversation. It sounded like furniture being dragged across the floor above our heads. We looked around. Both kids were within sight, so what could be up there? It started, then stopped. Started then stopped. And then Carrie excitedly said, “I know what that is!” and ran out the back door. As I followed her out, there against the blue backdrop of a perfect early fall evening was a rainbow-colored hot air balloon, hanging low above our neighbor’s yard, fiercely lit by the nearly setting sun. We yelled for the kids to come outside, then moved into the front yard to get a better view. Up and down our street, wide-eyed children of all ages had come out of their homes to catch a glimpse. The street was abuzz with the excited shouts of kids. Up and down the street there must have been 25 or 30 people looking up at this beautiful sight. And when the balloon slowly drifted out of sight, I grabbed the keys, piled the kids into the back of the car, and the four of us headed out to chase down this balloon for a better view, which we found about a half mile down the road in the parking lot of the Manlius Car Wash. “It’s sooooo beauuuutiful,” Abby said, with wonder in her scratchy little voice. John hopped and skipped with joy as the
David
colorful orb drifted silently above before loudly igniting its flame. On the nearly still evening, the balloon stayed within From the sight for a few minutes before Publisher gliding silently over the trees and out of view. We jumped back into the car, happy and excited, and drove back home for dessert. When you see the wonder and surprise of something new and exciting reflected in the smiles and bright eyes of your children, it strips away any bitterness that their misbehavior created. It sounds funny, but on Sunday evening, we needed that balloon to drift over our heads. Timing, I suppose, is everything.
Tyler
David Tyler is the publisher of Syracuse Parent. He lives in Manlius with his wife, Carrie, and two children, John, 6, and Abby, 5. He can be reached at dtyler@eaglenewsonline.com.
Editor - Jennifer Wing
434-8889 ext. 340 editor@syracuseparent.net
Associate Editor - Farah F. Jadran calendar@syracuseparent.net
Ad Sales - David Tyler 434-8889 ext. 302
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Syracuse Parent and CNY Family is a unit of Community Media Group LLC. Published monthly. Deadline for advertising and calendar events is the 15th day of the month preceding publication. Display advertising rates available upon request. Syracuse Parent reserves the right to refuse advertising for any reason. We do not guarantee any of the information, services, or products published in this or any issue. The opinions expressed by contributors do not necessarily reflect the opinions of this paper. Copyright © 2008 by Syracuse Parent and CNY Family. No portion of Syracuse Parent may be reproduced without permission from the editor.
4 • Syracuse Parent and CNY Family • October 2012 From page 3
Vasquez described the “story of WonderWorksâ€? and how it came to land in Syracuse: WonderWorks was once a top secret research laboratory on a remote island in the Bermuda Triangle. As legend has it, the world’s greatest scientists — led by Professor Wonder — were given the task of creating a man-made tornado and harnessing the power of it. During this experiment, something went awry and the power of the tornado was unleashed throughout the laboratory. This created a swirling vortex that was strong enough to rip the laboratory from its foundation. It was carried thousands of miles away and landed upside-down on the third level of Destiny USA in Syracuse. Remarkably, all of the experiments remained intact and functional. Vasquez says the story holds true beginning with the appearance of the entrance to the amusement park. “It looks very dramatic,â€? she said. “All of our columns are broken, the windows are broken‌it really looks like it just landed here.â€? In order to enter the building and participate in the fun, Vasquez says all guests must step inside the inversion tunnel and be turned right side up to begin their journey. One of the unique attractions inside WonderWorks is the opportunity for families to ride the WonderCoaster — a virtual reality roller coaster that visitors design and then ride. The ride moves 360 degrees in every direction. Next on your list of things to do should be the 4-D Extreme Motion Ride. This 12-seat theater takes guests along an amazing adventure that transcends time, space and imagination by combining the 3-D film with special effects and full motion seats. Vasquez says the selection of movies will rotate throughout the season. Another favorite Vasquez suggests is the Bubble Lab. “There’s nothing better than making gigantic bubbles,â€? Vasquez said. “It’s always popular. You can step into the bubbles‌it’s very hands on, and doing it together as a family is fun.â€?
Another part of the family fun comes with the Giant Piano, Vasquez says. If you couldn’t guess, this attraction is simply what you imagine — you can carry a tune on the giant keys laid out on the floor. There’s also laser tag and several space exhibits such as the Shuttle Landers, which gives guests the chance to experience the first-hand challenge and skill needed to land the Discovery space shuttle. Why is this more than just a kids’ place? “It really is an all age facility,� Vasquez said. “Adults love to be kids! There’s so many great things about it and they can all interact together. The adults get involved, too.� Also, Vazquez suggests this new location is even more family-friendly because it’s located in a place where you can enjoy some attractions, then shop or eat lunch in Destiny USA, and then return to WonderWorks for more activities. In addition, the location will host field trips, birthday parties and also corporate events for team building. “It’s a great place for all ages,� Vasquez said. “Grandparents should come with the grandkids, and adults can come with family and friends.� Vasquez says that guests should expect to interact with other guests and for kids to make new friends. Whether it’s the fact that WonderWorks was turned upside down, or that there’s an opportunity you’ll enter an anti-gravity chamber, chances are you’ll find something that intrigues everyone in the family. Farah F. Jadran is the associate editor of Parent, a publication of Eagle Newspapers. She can be reached at fjadran@ eaglenewsonline.com.
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supportive strategies for teachers. The Workshop also has been successfully adapted for teens and adults. After each Kidspeak Workshop, there is a question and answer period with the puppeteers who are experts on autism (clinicians representing the disciplines of school psychology, special education and speech and occupational therapies) and the two puppet characters Sally and Carey. Sally portrays a child with Autism, who uses an IPAD and language board to talk. Carey portrays a child with Asperger’s Syndrome and likes numbers and computer games. The Workshop discusses Sally’s and Carey’s interests and challenges. For example, Sally’s rocking back and forth and waving her fingers in front of her eyes are explained as ways that help Sally to calm down when upset. When Carey stands too close to Sally and she becomes upset, he is encouraged to be a good social detective and figure out what might be bothering her. In addition to learning about the unique learning styles of children with autism, the audience is encouraged to look at the ways people are similar, such as, everyone is good at something and finds something difficult. Having special interests, feelings and the desire to have friends are characteristics that ALL children have, whether they have special needs or not. It is hoped that Kidspeak helps build understanding and acceptance. Hundreds of children have participated in the KidSpeak Puppet Workshops, and their feedback indicates that Kidspeak has the potential to influence a sense of empathy. For example, one little girl sent this note after a recent KidSpeak performance,, “Please tell Carey that he is my most favorite because he is funny and talkative and most of all loves computer games just like me and tell Sally that I can be shy too and its ok� KidSpeak Workshops are offered weekly to community settings, such as, elementary schools, recreational camps etc, .in Onondaga and bordering counties. For information or to schedule a KidSpeak performance, please visit kohlsautism. com or call the Margaret L. Williams Developmental Evaluation Center at 472-4404.
WonderWorks
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From page 2
ď ‰ď ˆď ‰ď ˆď ‰ď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆď ‰ď ˆ
Kidspeak
Syracuse Parent and CNY Family • October 2012 • 5
Health & nutrition
It’s prime pumpkin time By Terry Podolak , RD A time to celebrate the nutritious vegetable — the pumpkin! Pumpkins are not only for decorating but are a great addition to your menus — making pumpkin soup, muffins, pie and pumpkin seeds. Pumpkins seeds are a good source of omega 3’s and magnesium. Did you know the pumpkins best suited for carving on Halloween are not necessarily the best for making pumpkin pie? There are two categories of pumpkin: canning and carving. For baking, look for “pie pumpkin” or “sweet pumpkin” which are sweeter and less watery than jack-o-lantern pumpkins. Store in a cool, dry place. Once a pumpkin is cut, it must be cooked that same day. If you do buy a pumpkin to cook with here are the preparation and serving suggestions: Remove stem and cut pumpkin in half.
Remove seeds and stingy mess Choose one of the cooking options: Boil or steam: Cut the pumpkin into large chunks, rinse them, place them in large pot with 1cup water, cover and boil for 20-30 minutes until tender, or steam for 12 minutes Oven: After cut the pumpkin in half, rinse with cold water, place the cut side down on a large cookie sheet, and bake at 350 degrees for one hour until tender Microwave: cut pumpkin in half, place cut side down on microwave safe plate, microwave on high for 15 minutes until tender. Dice pumpkin, steam, and sprinkle nutmeg on it. Simple Pumpkin soup: Puree pumpkin and carrots, sliced onions, leeks, and chopped celery and parsley Roasted pumpkin seeds: Rinse seeds See pumpkin, page 8
Pumpkin Mini Muffins with Maple Cream Cheese Frosting Yield: 5 dozen
Ingredients:
Paper baking cups 2 cups whole wheat pastry flour 1 ½ teaspoons baking soda 1 ½ teaspoons ground cinnamon ¾ teaspoon salt ½ teaspoon ground nutmeg ½ teaspoon ground ginger ½ teaspoon ground allspice ½ teaspoon ground cloves 1 (15 oz) can pumpkin puree ¾ cup packed light brown sugar ¾ cup granulated sugar 3 large eggs ¾ cup vegetable oil
Frosting:
16 oz cream cheese, softened ½ cup butter, softened ½ cup pure maple syrup 4 cups powdered sugar
Directions:
Preheat oven to 350°. Place paper baking cups into miniature muffin pans. Combine flour and next 7 ingredients in a medium bowl. Combine pumpkin and next 4 ingredients in a large bowl. Add flour mixture to pumpkin mixture, stirring just until moistened. Spoon batter into cups, filling 2/3 full. Bake, in batches, 15-17 minutes. Let cool in pans on wire racks for 5 minutes. remove from pans and let cool completely. Prepare frosting: Beat first 3 ingredients in a large bowl until light and fluffy. Gradually add powdered sugar, beating at a low speed after each addition until well blended. Spread maple cream cheese frosting over tops of cooled muffins and enjoy!
Pump up the pumpkin!
Pumpkins not only make tasty fall treats, but they are also packed full of nutrients to keep our bodies healthy. These nutrients include fiber, potassium, selenium, and vitamin A. Pumpkin seeds are an excellent source of magnesium, which is vital for heart health.
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References: Grotto, D. (2008). 101 Foods That Could Save Your Life. Bantam Dell. New York: NY. Rutland, J. (2011). Pumpkin Mini Muffins. Coastal Living. Available at http://www.myrecipes.com/recipe/pumpkin-minimuffins-50400000116071/.
6 • Syracuse Parent and CNY Family • October 2012
Health & nutrition
October is Vegetarian Awareness Month By Julie Mellen, RD, CDN, CDE, SUNY Upstate Medic al University A well-planned vegetarian diet that includes a variety of fresh foods is a healthy way to eat. Studies have shown that vegetarian diets can lower cholesterol and reduce risk of heart disease, high blood pressure, type 2 diabetes, certain cancers and obesity. A vegetarian diet or a plant-centered diet is lower in total fat, saturated fat and higher in fiber; all of which is helpful in managing weight and may help you live longer. Going meatless can also help save resources such as land (used to grow animal feed) and fresh water (used to irrigate the land). Whether or not you choose to go vegetarian full time or not, why not try going meatless a few times each week. It’s a great way to experiment with alternative protein rich foods such as legumes, soy and whole grains and a variety of vegetables. The Healthy Monday Initiative and the Meatless Monday initiative are part of a Global Public Health campaign. These initiatives encourage and invite each of us to experiment with something new one day a week (Monday) in an effort to improve health. They encourage us to explore healthy options, increase vegetable intake, try new recipes and new activities…to think outside our box, so why not give it a try? Types of vegetarians Lacto-ovo vegetarians do not eat meat, poultry and fish. They may eat eggs and dairy. Lacto vegetarians do not eat meat, poultry, fish, and eggs. They may eat dairy. Vegans do not eat any animal products…no meat, poultry, fish, eggs, milk, cheese or other dairy products or foods containing any of these foods. Nutrients to focus on for vegetarians Protein- Protein has many functions in our body and is important for growth and tissue maintenance. Many plant foods are good sources of protein. Protein needs can easily be met by eating a variety of plant-based foods. Combining different protein sources at meals has been found to be unnecessary. Protein is found in beans, nuts and seeds, peas, soy based foods products (veggie burgers/products, tofu, tempeh), whole grains, dairy products and eggs. Iron –Iron is needed to form hemoglobin, which carries oxygen in the blood. Good sources include iron fortified cereals, dried beans, dark green vegetables, black-eyed peas, lentils, blackstrap molasses, whole grain breads, dried fruits. Foods rich in vitamin C (oranges, citrus juice, tomatoes, bell peppers, broccoli) help absorb iron from plant foods. Calcium- Calcium is important for building and maintaining bones and teeth. Dairy products are an excellent source of calcium. If you choose not to include dairy
products in your diet than be sure to include other sources such as calcium- fortified cereals, soy based beverages, tofu, calcium -fortified juices and breads and greens leafy vegetables such as collard greens, bok choy, mustard and turnip greens. Vitamin D- Vitamin D works with calcium to maintain our bones and helps the calcium we consume be absorbed. It is found in dairy foods, fortified cereal and soy milk products. Our body also makes its own vitamin D when exposed to sunlight. Vitamin B-12- This vitamin is found in animal products including eggs and milk and also in fortified grains and soy products. If you choose to go vegan, you may need to supplement vitamin B-12 Some meals you eat may already be vegetarian or can be made vegetarian: Pasta and beans, pasta and vegetables( primavera), pesto pasta, pizza, lasagna made without meat, veggie stir fry over brown rice, bean burritos and tacos, cheese quesadillas, vegetable lo mein, peanut butter sandwich ,hummus and pita bread, split pea, lentil or black bean soup, vegetarian chili…just omit the meat and replace it with beans and more chopped vegetables. There are plenty of vegetarian meatless products at the grocery store to help you prepare meatless meals…veggie burgers, hot dogs, sausages, soy nuggets, soy crumbles etc. Also you can find Almond milk, Rice milk, Coconut milk, Soy milk, soy cheese, soy yogurt, tofu, tempeh, seitan, bulgur wheat.
Vegetarian Chili
Total Time: 45 minutes, Serves six
A hearty meatless chili! Freeze leftovers in small containers for a ready-to-eat meal.
1 tablespoon vegetable oil 1 onion diced 2 carrots diced 2 garlic cloves, minced Kosher salt to taste Black pepper to taste 2 bell peppers diced 1 zucchini diced 2 teaspoons ground cumin 2 tablespoons plus 1 teaspoon chili powder 2 (15-ounce) cans of beans (light kidney, dark kidney, and/or black beans), drained and rinsed 1 1/2 cups water 1 (28-ounce) can chopped tomatoes Shredded cheddar cheese (optional)
Instructions
Heat the oil over medium heat. Add the onions, carrots, and garlic. Cook until the onions have softened, about 5
Some cooks put other, less traditional vegetables, such as corn, in their chili. minutes. Add the bell pepper and zucchini to the pot and season with salt and pepper. Add the cumin and chili powder and stir. Simmer until the carrots are knife tender, about 8 to 10 minutes. Add the beans, water, and can of tomatoes stir to combine. Increase the heat to high and bring to a boil. Reduce the heat to low and gently simmer until the vegetables are soft (about 15 minutes). Sprinkle with cheese if you wish. Serve with homemade cornbread.
Additional resources and recipes: VegWeb.com Vegetarian times Eatright.org ChooseMyPlate.gov meatlessmonday.com
Mammography saves lives October is Breast Cancer Awareness Month The Adelphi New York Statewide Breast Cancer Hotline & Support Program is urging women to get mammograms. “October is Breast Cancer Awareness Month, a significant time to remind women to be proactive about their health and get mammograms,” says Hillary Rutter, the director of the Adelphi
Breast Cancer Program “Often women will put their own health on hold as they take care of family members; we want send out the message that when you take care of yourself, you’re taking care of your family.” For more information and to locate an accredited
mammography facility nearby, call the Adelphi New York Statewide Breast Cancer Hotline & Support Program at (800)8778077. Callers can also get emotional support from the hotline’s specially trained volunteers, most of whom are women who have had breast cancer.
The hotline has been in existence for 32 years and is the oldest breast cancer hotline in the country. It is a project of the Adelphi University School of Social Work on Long Island. All services are free. The website is: adelphi.edu/nysbreastcancer.
Health & nutrition
Syracuse Parent and CNY Family • October 2012 • 7
For love of
Lily
L
Family raises awareness about condition that claimed their little girl
Lily Sateriale passed away at 20 months old from Sudden Unexplained Death in Childhood (SUDC), a rare disorder similar to SIDS that affects children over the age of 12 months. Photo courtesy of Laura and Micah Sateriale
Make sure to get a flu vaccination every year
Submitted by Emily A. Young Public health educator Onondaga County Health Department Getting a flu vaccine every year is the best way to prevent yourself and others from getting the flu. In a typical year, over 200,000 people nationally visit the hospital because of flu complications. Although sometimes the flu may be mistaken for a severe cold, it can have much more serious effects for the young, the elderly, and others with health conditions. The Centers for Disease Control and Prevention (CDC) recommends that everyone 6 months old and older get a flu shot each year. The Onondaga County Health Department, in partnership with University of Rochester, is offering three (3) flu and pneumonia vaccine clinics this fall. In addition to the flu shot, FluMist®, a vaccine that is sprayed into the nose, will be available for healthy people ages 2 to 49 years old. Appointments can now be made by using either the on-line flu scheduling system found at onflu.net or by calling 435-5752, from 9 a.m. to 4 p.m. Monday through Friday. The CDC continues to reinforce that an annual flu vaccine is particularly important for persons at high risk for or for those who have contact with people at high risk. Those include the following: ● Pregnant women ● Household contacts of persons at high ● Children younger than five, but especially children younger than two years old risk for complications from the flu ● People 50 years of age and older ● Household contacts and out of home ● People of any age with certain chronic caregivers of children less than six months of medical conditions age (these children are too young to be vac● People who live in nursing homes and cinated) other long-term care facilities ● People who live with or care for those at Getting a flu vaccine helps to protect your high risk for complications from flu, includ- health as well as that of your family, friends, ing: and others. Get your flu vaccine … to protect ● Health care workers yourself and others!
By Sarah Hall
ily Sateriale was the puzzle piece that completed her family. “We always wanted a big family. When we had Lily, our whole family dynamic changed. It was like we were a complete family finally,” said Laura Sateriale, Lily’s mother. “We all got along so well. The kids got along. We had a good system.” Born May 28, 2010, Lily was the youngest of four with twin older sisters, 8, and a big brother, 5. The 20-month-old was perpetually in pigtails, always singing, always laughing. “She had a dog that adored her. He was her prized possession,” said Micah Sateriale, Lily’s father. “She was just starting to learn how to color, and it really surprised us with how well she could hold a crayon and a pencil.” “She was always making us laugh. She was really funny, really sweet,” Laura said. “She was a really laid back baby. She was the perfect baby everyone wants to have. She was really easygoing.” But the Sateriales’ idyllic life with Lily was all too brief. The little girl died on Feb. 16, 2012, in her sleep without an explanation. Losing Lily Needless to say, Lily’s passing came as a shock. “Lily was always healthy. If anything, she was the healthiest of the four,” Laura said. “She was doing really well, growing really well. The day before she passed, there was no indication there was anything wrong. She was running around and playing. I remember her sitting in her high chair having lunch, trying to jump out, and she just thought it was so funny. She was like she always was. She’d just started going up and down the stairs, and she’d been doing that all day. Nothing made us thing anything was wrong.” The family had no history of toddler deaths, and Lily’s most recent pediatric appointment had indicated no problems. The evening of Feb. 15, Micah and Laura had taken the older kids to their religious education class at their church and arrived home late. “We were just all over the place,” Laura said. “We put her to bed and said good night, and she got up at midnight and she wanted a bottle, and she was sitting up and she was fine, and then at some point during the night, she passed away, and we had no idea. He went to work, and I was getting the kids ready for the day…” When Laura went in to check on her youngest, she found her unresponsive. Lily was already gone. “When you’ve relived it and dealt with it, you can tell the story — not emotionlessly, but you become numb,” she said. “It’s so overwhelming. In the beginning, all of our families came in to town — they live out of state — and they had to just remind us to breathe. You just can’t even function. You don’t even know how to live.” “You just have to take it one day at a time.” Micah said. “You just want to stay in bed all day,” Laura said. “But you can’t. You have to keep going for the other kids.” The Sateriales were also faced with the devastating task of telling their other children that their beloved baby sister had passed away. “How do you tell them?” Laura asked. “They didn’t really react. I think they were just shocked.” She said their twin girls, who went to school the day Lily died and had the support of their school and church, have dealt with it more easily than their 5-year-old son, who has understandably struggled. “Our son has had a lot of trouble with it, a lot of anger issues. He talks about death all the time,” Laura said. “He’s never understood. We never had that talk. We put it off. Now we had no choice.” What is SUDC? What made it even harder on the entire family was the fact that there were no answers about Lily’s death. Unable to determine another cause, the medical examiner ruled Lily’s death to be the result of Sudden Unexplained Death in Childhood (SUDC). According to the SUDC Program website (sudc.org): “SUDC is the sudden and unexpected death of a child over the age of 12 months, which remains unexplained after a thorough case investigation is conducted. Similar to SIDS (Sudden Infant Death Syndrome), SUDC is a diagnosis of exclusion, given when all known and possible causes of death have been ruled out. By definition, SIDS applies only to the death of babies younger than 12 months, while SUDC victims are past their first birthday whose deaths go unexplained even after an autopsy, a death scene investigation and medical history review. “SUDC is not new, but it is rare with a reported incidence of 1.2 deaths per 100,000 children, compared to 54 deaths per 100,000 live births for SIDS. Presently, SUDC cannot be predicted and/or prevented since its cause is unknown. Most SUDC deaths occur between the ages of 1 and 3, but researchers have looked at cases of children as old as 15.” The SUDC Program was created at the CJ Foundation for SIDS in September 2001 by Laura Crandall and Chelsea Hilbert, both of whom lost their toddler-aged children to SUDC and approached the CJ Foundation for support and answers. Today, the SUDC See lily, page 8
8 • Syracuse Parent and CNY Family • October 2012 From page 7
Program raises research funds and provides a centralized resource for information, support and advocacy. It serves families and professionals affected by the tragedy of SUDC, and promotes awareness of SUDC in communities. According to the SUDC Program, research dollars are crucial in uncovering the mystery of SUDC, but no federal funding stream exists for SUDC; most of the money that goes toward research comes from families who have lost a child to the disorder. The Sateriales said the lack of answers has been one of the most frustrating parts of the whole experience. “When we called 911, a lot of people started showing up. There’s a procedure they have to follow by law, this forensic whatever, including a thorough autopsy. That was horrendous, but we wanted to know why,” Laura said. “First the viral screens came back negative, then the bacterial, then the toxicology — every category came back negative. Eventually the medical examiner called us, and I remember it was one month to the day after Lily passed, and said, ‘I’m sorry, but this is one of those cases where we’ll just never find out what happened.’ On top of everything else, to have no logic, no reason, no explanation at all… On top of that, if we don’t know, how can we know about our other children? Even now, we still check on the kids five or six times all night long to make sure they’re still breathing.” Of the numerous theories about SUDC that do exist, none of them pertained to Lily. “It seems like a lot of the research focuses on certain theories, like theories of heart disease in families and seizures,” Laura said. “A lot of the research suggest that SUDC is connected to febrile seizures, but none of that applied to her.” The SUDC research center, once located in California, has recently moved to Boston to work with the Children’s Hospital there. The Sateriales are hopeful that they’ll be able to work more closely with the center now that they’re on the same coast, but there are other factors that prove prohibi-
Pumpkins
tive. “It requires a lot of testing, DNA testing and everything, and that’s not attainable for a lot of families,” Laura said. “And there are just so many theories. It’s so early in the research that there’s no way to try to pinpoint anything at this point.”
Lily’s Walk for Answers
To support SUDC research, the family organized a walk, Lily’s Walk for Answers, on Sunday, Sept. 23, at Longbranch Park in Liverpool. “We got involved in the program right after we found out that’s what it was classified as,” Laura said. “Some other families had done walks and runs to raise money, and we saw the need for research and awareness. When we talked to our pediatrician and other doctors, they didn’t know what it was, so we knew we had to do something to promote research in the community. Plus, the group was so great to us. They offered support and helped us connect to a network. It’s such a good program.” In addition to raising money for SUDC research and increasing awareness about this little-known disorder, Lily’s Walk for Answers had the added benefit of letting people in the community know that Lily Sateriale existed. “We want people to know Lily and remember her,” Laura said. “It’s important to us that people know about her.” “She was a wonderful child,” Micah recalled. “She was so smart and funny, and she had such a beautiful voice.” “She had grown up so much in those last months,” Laura said. “She wasn’t a baby anymore. She was one of the kids. It was so amazing to see her little personality starting to emerge.” The Sateriales are hopeful that the walk and others like it will help to bring an end to suffering like that which they’ve known. “The worst thing is going to the meetings and seeing other families that have been through this after Lily passed,” Laura said. “If we can prevent another family going through what we’ve been through… I just don’t want someone else to have to go through this.”
From page 5
well, and then spread on cookie sheet. Roast at 375 degrees for 20-30 minutes until dry and cool. Sprinkle on salt, if desired. Source: 101 Foods That Could Save Your Life, David Grotto, RD, LDN Tips on sweet treats for Halloween: Remind kids that if hungry make sure to eat foods that will help their bodies stay healthy and strong and give them the en-
ergy to enjoy the Halloween season. They can still fit in their treats in moderation. If over restrictive, it often sets up battles that will eventually lead to binging. If you don’t want to give out candy- try granola bars, stickers, pencils, party favors Also, if you are in need of gluten free ideas check out celiac.com for tricks and treats.
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Baltimore Woods Nature Center Interpretive Center Closed. The interpretive center will be closed for the holiday. Trails are open dawn to dusk. The center will re-open 9 AM Tuesday, Oct. 4. Baltimore Woods Nature Center is located at 4007 Bishop Hill Road, Marcellus. 673-1350. Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Café Artwork Presented by Terry McMaster. Oct. 1 through Oct. 31.Terry McMaster believes that art should not just reflect aspects of the visible in life, but should reveal experiences of the mythic world of the invisible, intangible and transcendent. He is a psychotherapist, social worker and artist who lives in Syracuse, NY. This show includes paintings and photographs from 2001 to 2012. Barnes & Noble Dewitt. 3454 Erie Boulevard East. 449-2947. Maxwell Movie Night, Monday. 6 PM. Please note the earlier date this month, as the library is closed on Columbus Day on the second Monday. Movie Nights are free and open to the public. Seating is limited, so come early. Films are always family-oriented, and we provide the popcorn! Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
Tue Oct 2
NOOK Tablet and NOOK Color. 7 PM. Bring your NOOK Tablet or Color and learn about the many features of these dynamic interactive devices at this 1-hour tutorial. Please RSVP at the NOOK counter or call the store at 449-2948. Barnes & Noble Dewitt. 3454 Erie Boulevard East. Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Storytime with Miss Colleen. 10 AM. Barnes & Noble story times are always fun, filled with great books, silly songs and cool activities. Great for toddlers and preschoolers! Please call to confirm. 3454 Erie Blvd East, DeWitt, NY 13214. For more information, call 449-2948
Wed Oct 3
Stories with Sally. 10:30 aM.For the under-3 crowd is on Wednesdays. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Creative Discovery for Kids. 4:30 to 5:15 PM. Kids ages 5 to 10 are invited to join Ms. Rose Wednesdays for stories and crafts with fun, seasonal themes. Creative Discovery is free, but attendance is limited. Register through the library’s online event calendar at www. maxwellmemoriallibrary.org.
Thu Oct 4
NOOK, The Simple Touch Reader.7 PM. Bring your NOOK and explore the many features of our fabulous, easy to use eBook Reader. Please RSVP at the NOOK counter or call the store at 449-2948. Barnes & Noble Dewitt. 3454 Erie Boulevard East.
Fri Oct 5
Quilting in the Woods Retreat. 6 PM. Amboy 4-H Environmental Education Center. This retreat will begin Friday, Oct. 5 and run through Noon on Sunday, Oct. 7. Whether an experienced quilter that has been making quilts for years or just discovering the rewards
do
of quilting, this retreat is perfect. It’s packed full of great projects, quilting instruction, good food and lots of fun. Saturday evening is social time with games and prizes. Participants will make new friends while spending the weekend quilting with people who share the same interests and love for quilting. For more information, or to register, please call the 4-H office at 963-7286, ext. 302, or email mmm65@cornell.edu. The Complete History of America-Abridged performed by the three cultural guerillas (actors) of Reduced Shakespeare Company. 8 PM. An evening of comedy and history; 600 years of history in 6000 minutes! “It’s not the length of your history that matters--it’s what you’ve done with it!” Cash bar available by Rusch’s. Tickets are available by calling The Palace Theater, 19 Utica St., Hamilton. 8241420. Visit www.palacetheater.org.
Sat Oct 6
Everything For Baby Rummage Sale. 9 AM to 2 PM. Your one-stop shop for maternity, infant and toddler clothes, toys, books, games, bedding, accessories and more. Liverpool Elks Lodge, 3730 Cold Springs Road, Baldwinsville. You Gotta Have Balls: How a Kid from Brooklyn Started from Scratch, Bought Yankee Stadium, and Created a Sports Empire by Brandon Steiner. 1 PM. Meet & Greet and Signing. Steiner went from a kid who sat in the nosebleed seats at Yankee and Shea Stadiums to CEO of Steiner Sports Marketing Inc., one of the largest sports marketing and memorabilia companies in the U.S., with an inventory of more than 10,000 collectibles. Barnes & Noble DeWitt. 3454 Erie Boulevard East. Saturday Story Time with Ms. Rose for infants and toddlers to age 4. 10:30 AM. No registration is required for any of the story times, but please sign up through the library’s online event calendar to help with planning. A parent or guardian must remain with children and participate with them during Stories with Sally and Saturday Story Time. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
crowd is on Wednesdays. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Creative Discovery for Kids. 4:30 to 5:15 PM. Kids ages 5 to 10 are invited to join Ms. Rose Wednesdays for stories and crafts with fun, seasonal themes. Creative Discovery is free, but attendance is limited. Register through the library’s online event calendar at maxwellmemoriallibrary.org.
Thu Oct 11
Preemie: Lessons in Love, Life, and Motherhood by Kasey Mathews. 7 PM. In this riveting, honest, and often humorous memoir, Preemie chronicles the journey of one tiny baby’s tenacious struggle to hold on to life and the mother who ultimately grew with her. Talk and Signing. Barnes & Noble Dewitt. 3454 Erie Boulevard East. 449-2947.
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Sat Oct 13
CNY Reading Council Books & Brunch. 8:30 AM (Registration) 9 AM (Presentation). K-8 teachers and librarians are invited to a presentation brunch on the topic: “Using Informational Texts to Support the Common Core.” Sign-in and refreshments at 8:30 AM; program begins at 9 AM. Two sessions: one for elementary, one for middle school. Please RSVP to Kathy Lester: klester@mph.net or contact her for more information. Barnes & Noble Dewitt. 3454 Erie Boulevard East. The 6th Upper States Independent Awards Night. 7 PM. Come enjoy live music and a fashion show while local artists receive continued on next page
• Piano/Keyboard • Ear Training • Percussion • Music Reading
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Sun Oct 7
Syracuse Opera Preview: Puccini’s TOSCA. 1 PM. Douglas Kinney Frost, director of music, and selected principals from the show will present a preview of Giacomo Puccini’s TOSCA. Barnes & Noble DeWitt. 3454 Erie Boulevard East.
Mon Oct 8
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
Tue Oct 9
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
Wed Oct 10
Star Party: Elusive Planets.8 to 10 PM Backup date, Oct. 15. Farewell to the summer Milky Way, hello to the fall skies! Without the Moon, many distant galaxies can be viewed in a telescope, as well as the elusive planets Uranus and Neptune. $5 for members, $15/ family; $8 for nonmembers, $25/family. Baltimore Woods Nature Center is located at 4007 Bishop Hill Road, Marcellus. 673-1350. Stories with Sally. 10:30 aM.For the under-3
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Syracuse Parent and CNY Family • October 2012 • 9
1 0 • Syracuse Parent and CNY Family • October 2012
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Mon Oct 15
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. If These Trees Could Talk. 10:30 AM to Noon. Join Baltimore Woods Naturalist Tom Meier on a journey through time. The shape of the forests at Baltimore Woods is intimately tied to the lifestyles of all the people who came before. This hike will take an inspiring look at the history of the preserve and the ever changing relationships between people and the land, as told through the eyes of the colorful autumn trees. $5 for members, $15/family; $8 for nonmembers, $25/family. 673-1350. 4007 Bishop Hill Road, Marcellus.
Tue Oct 16
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of
Camillus. For more information, call 672-3661.
Wed Oct 17
Stories with Sally. 10:30 aM.For the under-3 crowd is on Wednesdays. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Creative Discovery for Kids. 4:30 to 5:15 PM. Kids ages 5 to 10 are invited to join Ms. Rose Wednesdays for stories and crafts with fun, seasonal themes. Creative Discovery is free, but attendance is limited. Register through the library’s online event calendar at www. maxwellmemoriallibrary.org.
Thu Oct 18
Variety program: help for dogs; animal stories; music from the heart. 7 PM. Free and open to the public. Liverpool Public Library, 310 Tulip St., Liverpool. Parking on street or in garage under library (free). 457-0310 for directions. Ruth Sturgis will tell about Hardeko Helping Paws Pantry, which helps people keep their companion animals during times of financial hardship by providing free food and medicine. Renee Felice will tell stories about animals as heroes.
Fri Oct 19
Star Party: 20th Annual National Astronomy Day. 7:30 to 9:30 PM. Cloud date: Oct. 20.It’s National Astronomy Day! Come and view the planets Uranus & Neptune through telescopes, plus the early winter star clusters such as the Pleiades, along with the king of the Planets, Jupiter, rising in the east. $5 for members, $15/family; $8 for nonmembers, $25/family. 673-1350. 4007 Bishop Hill Road, Marcellus.
do
Sat Oct 20
Double Dog Dare Walk. 8 to 9:30 PM. Baltimore Woods dares you , no, double dog dares you, to walk through the woods with only the moon lighting your way! Search for creatures that go bump in the night and treats hidden along the trails. $5 for members; $15/family; $8 for nonmembers, $25/family. 673-1350. 4007 Bishop Hill Road, Marcellus. Harvest Book & Bake Sale. 10 AM to 3 PM. The Friends of NOPL @ Cicero are having their annual book and bake sale. We will be selling baked goods, used books, videocassettes, DVDs, audiobooks on cassette and CD, and music CDs. A $2.00 bag sale (bags provided) will be from 1:30 to 3 PM. 8686 Knowledge Lane, Cicero.699-2032 nopl.org. Saturday Story Time with Ms. Rose for infants and toddlers to age 4. 10:30 AM. No registration is required for any of the story times, but please sign up through the library’s online event calendar to help with planning. A parent or guardian must remain with children and participate with them during Stories with Sally and Saturday Story Time. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Mushroom Growing Workshop. 10:30 AM to Noon. In this workshop Owen Tallman, “The Imaginary Farmer”, will talk about the basics of mushroom biology (including mushroom reproduction!), introduce some excellent edible mushrooms you can cultivate fairly easily, and discuss approaches to home and farm mushroom cultivation. Participants can receive a Grow-it-Yourself oyster mushroom kit and have the option of mixing it up there in the workshop. With kit included: $30 for members; $45 for nonmembers. Without kit: $8 for members; $12 for nonmembers. 673-1350. 4007 Bishop Hill Road, Marcellus. Benefit Concert/ 8 PM. The Tri-Valley YMCA presents Eden Brent, blues singer and pianist. “A force to reckon with....aggressive, sultry, not and cool.”-The Wall Street Journal. Visit www.ymcatrivalley.org to learn more and purchase tickets. Performed at The Palace Theater, 19 Utica St., Hamilton. 824.-1420.
Sun Oct 21
Saturday Story Time with Ms. Rose. 10:30 AM. For infants and toddlers to age four. No registration is required for any of our story times, but please sign up through our online event calendar. A parent or guardian must remain with
BLESSED SACRAMENT SCHOOL
Mon Oct 22
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
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Tue Oct 23
Judy’s Book Club. 7 PM. Judy and the group discuss To be Sung Underwater by Tom McNeal, the epic love story of a woman trying to remember, and the man who could not even
3219 James Street, Syracuse, NY 13206
Wed Oct 24
Stories with Sally. 10:30 aM.For the under-3 crowd is on Wednesdays. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Creative Discovery for Kids. 4:30 to 5:15 PM. Kids ages 5 to 10 are invited to join Ms. Rose Wednesdays for stories and crafts with fun, seasonal themes. Creative Discovery is free, but attendance is limited. Register through the library’s online event calendar at www.maxwellmemoriallibrary.org.
Thu Oct 25
Migration & Stewardship Project. Oct. 25 & 26. Children will work will explore migration through maps, discussion and participation in Migration Headache, a physical activity that highlights the impact of human activities on migrating birds. Then, they will work on a project that will leave an improved habitat for birds and other wildlife at Montezuma. 365-3588. Montezuma Audubon Center. 2295 State Route 89, Savannah.
Sat Oct 27
Halloween Storytime. 11 AM. Dress in your favorite costume and stop by for a spooky story or two featuring Monster’s Monster by Patrick McDonnell as well as other Halloween favorites.673-1350. Barnes & Noble Dewitt. 3454 Erie Boulevard East. Saturday Story Time with Ms. Rose for infants and toddlers to age 4. 10:30 AM. No registration is required for any of the story times, but please sign up through the library’s online event calendar to help with planning. A parent or guardian must remain with children and participate with them during Stories with Sally and Saturday Story Time. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Kids Halloween Party. Noon to 2 PM. Infants through 12 years of age. This is being hosted by V.F.W. Ladies Auxiliary No. 5538 Boonville. At the post home, located on 108 Park Avenue , Boonville. Kids are encouraged to dress in Halloween costumes. The ladies ask that an Adult attend with the with there child / children. There will be refreshments served, a craft to do, and games to partake in. And at the end of the continued on next page
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begin to forget. Barnes & Noble Dewitt. 3454 Erie Boulevard East. Storytime with Miss Colleen. 10 AM. Barnes & Noble story times are always fun, filled with great books, silly songs and cool activities. Great for toddlers and preschoolers! Please call to confirm. 3454 Erie Blvd East, DeWitt, NY 13214. For more information, call 449-2948 Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
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recognition for their talent and dedication in the Arts (visual and performing). Tickets available at the door. Visit USIawards.com to learn more. The Palace Theater,19 Utica St., Hamilton. 824-1420, Saturday Story Time with Ms. Rose for infants and toddlers to age 4. 10:30 AM. No registration is required for any of the story times, but please sign up through the library’s online event calendar to help with planning. A parent or guardian must remain with children and participate with them during Stories with Sally and Saturday Story Time. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
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Mon Oct 29
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661.
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dren’s stage. A great way to get information and connect with local authors and illustrators. Barnes & Noble Dewitt. 3454 Erie Boulevard East.
Wed Oct 31
Stories with Sally. 10:30 AM. For the under-3 crowd is on Wednesdays. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Creative Discovery for Kids. 4:30 to 5:15 PM. Kids ages 5 to 10 are invited to join Ms. Rose Wednesdays for stories and crafts with fun, seasonal themes. Creative Discovery is free, but attendance is limited. Register through the library’s online event calendar at maxwellmemoriallibrary.org.
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Tue Oct 30
Sally’s Story Time. 10:30 AM. For preschoolers ages 3 to 5. Maxwell Memorial Library is located at 14 Genesee St. in the village of Camillus. For more information, call 672-3661. Society of Children’s Book Writers and Illustrators Group. 7 PM. Welcome, Central New York children’s writers and illustrators! Come for a discussion at our chil-
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party every girl and boy will receive some goodies for your trick or treat bag. Email boonvilleschatter @yahoo.com for more information. Skulls, Bones, and Foul Play. 11 AM to Noon. It’s a “whodunit” with a natural twist! Come learn how to identify skulls, scat, and other traces that animals leave behind. Then put your forensic skills to the test to close the case on some unsolved mysteries. Help us find Baltimore Woods’ Most Wanted! $5 for members; $15/family; $8 for nonmembers, $25/family. 673-1350. 4007 Bishop Hill Road, Marcellus. Scorch by Gina Damico. 1 PM. Talk, Q&A and signing. In her second book about teenage grim reaper Lex Bartleby, Damico provides an amusing blend of whimsy and humor with serious drama and blood. Barnes & Noble Dewitt. 3454 Erie Boulevard East.
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Syracuse Parent and CNY Family • October 2012 • 1 1
1 2 • Syracuse Parent and CNY Family • October 2012
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