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Resources and Information
National Fragile X Foundation
FRAXA Research Foundation
The National Fragile X Foundation is an organization created to support families with fragile X-associated disorders. Their website includes information about the associated disorders, clinical care, and ongoing research. They will help you find a local family organization or a way to connect with other premutation carriers.
FRAXA Research Foundation supports research to help reduce the effects of the fragile X mutation, with a focus on fragile X syndrome. This website provides information of on-going research and clinical trials.
HTTPS://FRAGILEX.ORG
Fragile X-Associated Tremor/ Ataxia Syndrome (FXTAS) This document provides summary information about FXTAS and clinical care. This was provided by the FXTAS Task Force. HTTPS://FRAGILEX.ORG/FXTASCONSENSUS-DOCUMENT
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HTTPS://WWW.FRAXA.ORG
National Society of Genetic Counselors The National Society of Genetic Counselors website is a great resource to find a genetic counselor in your area. HTTPS://WWW.NSGC.ORG
