Child Hospice Annual Review

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Annual Review 2007/08 Together we make a lifetime of difference


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Who we are and what we do Children’s Hospices UK is the national charity that gives voice and support to all children’s hospice services. • We make the lives of children and young people who are not expected to reach adulthood, and their families, better by ensuring they receive the best possible care • We campaign and lobby on behalf of children’s hospice services, making sure their voice is heard by the Government • We fundraise for children’s hospices, so they can continue to improve their services to life-limited and life-threatened children, young people and their families • We raise awareness of the services offered by children’s hospices in the UK


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Message from the Chair The role of Children’s Hospices UK has never been more important and more relevant than it is today. It has been an extraordinary year which has created a number of very significant opportunities for us and the 44 children’s hospice services we represent. The publication of ‘Better Care: Better Lives’, the Government’s first strategy for children’s palliative care in England, marks the start of a new and promising era. Published in February 2008, the report promises a step change that could make a significant difference to thousands of children and young people who are not expected to reach adulthood, and their families. Children’s palliative care has never been so high up the Government’s agenda but we will have to fight to keep it there in the face of a much more challenging financial environment. As a result, our role as the national voice for children’s hospice services has never been more crucial. It is vital that we continue to work with our partners and members to ensure that the aspirations set out in the strategy are delivered. In particular, we must ensure that the strategy leads to more local spending on children’s hospices and other children’s palliative care services. Moving forward, we will develop our priorities and resources to ensure that they reflect the needs of children’s hospice services at this critical time in the evolution of children’s palliative care. By working together well, we will be stronger and more effective in everything we do, not just in England, but across all four countries. Together we will make a real difference to the thousands of children, young people and families who need our help and support.

David King, Chair of Children’s Hospices UK


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Children’s Hospices UK Highlights 2007/08

• Played a key role in the development of ‘Better Care: Better Lives’, the Government’s landmark strategy for children’s palliative care in England • Helped children’s hospice services to develop their care practices through joint research projects and workshops to enable the sharing of best practice and knowledge • Raised £668,090 for children’s hospice services in the UK • Ensured the public continued to learn about the invaluable work of children’s hospices, with our new website, new identity and our successful media relations work


“ Children’s hospices are such friendly places; the staff make a real effort to create a home from home. I have seen first hand the huge difference the expert care makes to children, young people and families.” Holly Willoughby, Children’s Hospices UK Patron

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Campaigning and lobbying

We are working with our partners and members to ensure that children’s hospice care remains high on the Government’s agenda. • In 2007/08, Children’s Hospices UK played a pivotal role in the development of ‘Better Care: Better Lives’, the Government’s first ever strategy to achieve better outcomes for life-limited and life-threatened children, young people and their families • We are campaigning to ensure that the funds to implement ‘Better Care: Better Lives’ are provided to Primary Care Trusts • Ongoing campaigning by Children’s Hospices UK, our partners and members, saw an extra £20 million provided by the Government as an emergency funding boost for children’s hospices in England until 2011 • We worked closely with the Every Disabled Child Matters campaign to give our members access to extra funding from Local Authorities

“ Children’s Hospices UK has been highly effective in championing the role of children’s hospice services in meeting the needs of life-limited and life-threatened children, young people and their families.” Christine Lenehan, Director, Council for Disabled Children


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The best possible care

In 2007/08 we continued working with our partners and members to help develop the best practices in children’s hospice care including: • A collaborative research programme to improve hospice services for life-limited and life-threatened young people and their families • A framework to ensure the best training for children’s hospice and palliative care staff • Improvements to hospice services for the siblings of life-limited and life-threatened children and young people • Meetings and workshops for children’s hospice care staff to network and share best practices • Obtaining more accurate statistics about children’s palliative care needs for the strategic development of future services

“ Children’s Hospices UK brings the national perspective to Acorns, helping to ensure that we are at the cutting edge in our delivery of hospice care services to children, young people and families.” Emma Aspinall, Head of Care, Acorns Children’s Hospice


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Raising awareness

Fundraising for children’s hospices

Children’s Hospices UK plays a crucial role in ensuring that the public understands the vital work of children’s hospice services.

Children’s Hospices UK’s national fundraising scheme enables national companies and organisations to raise funds for their local children’s hospice.

• Our communications team generated, on average, a national media mention every week. Highlights included coverage on ITV’s This Morning, the ITV lunchtime news, Channel 5 and substantial features in the Mail on Sunday YOU magazine

• In 2007/08 we distributed £668,090 to children’s hospice services throughout the UK

• The Children’s Hospices UK website was relaunched to provide improved information and services to our members, the general public and other stakeholders • We worked closely with ITV to develop a special ‘Challenge Anneka’ programme which was seen by millions. The challenge was for children and young people using children’s hospices, and celebrities, to make a CD together. Sales of the ‘Over the Rainbow’ CD exceeded 100,000 and the £250,000 royalties were distributed to children’s hospice services

• We formed successful fundraising partnerships with Team England Footballers Charity, Fortnum & Mason, Autoglass, SThree, the Round Table and the Boys’ Brigade • We were awarded Fundraising Team of the Year 2007 by the Charity Times • We expanded our fundraising team to develop a programme of national events which will raise additional funds for all our members


“ Fortnum & Mason is proud to be working in partnership with Children’s Hospices UK. It gives us a range of opportunities to show our support and 9 enables our staff and customers to get involved. Most importantly it’s good to know we can make a real difference to children and families.” Cathy O’Neill, HR & Customer Service Director, Fortnum & Mason


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National fundraising for children’s hospice services We distributed £668,090 to children’s hospice services throughout the UK

Openwork has been a major supporter for over four years, contributing £400,000 to date. This money has enabled us to further strengthen the support we give to our member children’s hospices and through them help make a difference to the children, young people and families they care for.

“ Through the Team England Footballers Charity partnership with Children’s Hospices UK, my England team-mates and I hope to raise awareness of the vital work that children’s hospices do in caring for children and young people who may not live to reach adulthood.” David Beckham


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Accounts for the year 2007/08 Income: £1,608,138 19% 59%

22%

£944,469

from fundraising donations

£350,370

from other sources

£313,299

from grants and trusts

Expenditure: £1,559,039 3% 17% 80%

£1,239,232

on charitable activities

£271, 517

on income generation (this represents the cost of raising funds to support core activities)

£48,290

on governance


About us Children’s Hospices UK is the charity that gives voice and support to all children’s hospice services. Our vision is for every child and young person who is not expected to reach adulthood, and their family, to have access to the highest standards of children’s hospice care and support close to home.

Children’s Hospices UK First Floor, Canningford House 38 Victoria Street, Bristol BS1 6BY www.childhospice.org.uk info@childhospice.org.uk Tel: 0117 989 7820 Fax: 0117 929 1999

Together we make a lifetime of difference Openwork is proud to support Children’s Hospices UK through its Community Involvement Programme

Designed by Free Range Graphic Design, www.frgdesign.com

Children’s Hospices UK is the working name of the Association of Children’s Hospices which is a registered charity in England (1103795) and is incorporated as a company limited by guarantee (4840209 - England)


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