Prisma Health Upstate Survive and Thrive Resource Directory by Prisma Health

Upstate survive and thrive resource directory

Center for Integrative Oncology and Survivorship

Helping you thrive The World Health Organization defines health as “A state of complete physical mental and social well-being and not merely the absence of disease or infirmity.” At the Center for Integrative Oncology and Survivorship, part of the Prisma Health Cancer Institute, we work to encourage every individual and family affected by cancer to have the best quality of life possible. Our hope is that the resources in this guide will help you achieve that goal.

Table of contents Part 1: Prisma Health programs Center for Integrative Oncology and Survivorship............. 2 Integrative and complementary therapies........................ 2 Integrative Oncology visit....................................................... 3 Adolescent and Young Adult Cancer Program (AYA)......... 3 Cancer Genetics Program......................................................... 4 Should I seek genetic counseling?...................................... 4 Cancer Support Community at Prisma Health Cancer Institute............................................ 5 Community Care Program ....................................................... 6 Lymphedema Management Program ................................... 6 Prisma Health Hospice Program.............................................. 6 Prisma Health Palliative Care Program................................... 6 Smoking Cessation Program ....................................................7

Online support groups and communities .......................... 23 Prescriptions ................................................................................ 23 Senior assistance ....................................................................... 24 Support for children of parents with cancer ..................... 24 Support for parents with children and teens...................... 25 Survivorship and wellness........................................................ 25 Transportation support.............................................................26 Local/regional transportation support..............................26 Long-distance travel...............................................................26 Young adult support.................................................................. 27

Part 4: Resources by diagnosis

Emotional health........................................................................... 8 Combating feelings of isolation – support groups and individual counseling ...................................................... 8 Dealing with distress ............................................................... 9 Spirituality ................................................................................... 9 Mental health .............................................................................. 10 Help lines................................................................................... 10 Local mental health centers.................................................11 Physical health............................................................................. 12 Appearance .............................................................................. 12 Exercise...................................................................................... 12 Fatigue ........................................................................................14 Nutrition .....................................................................................14 Sexual health............................................................................ 16 Smoking cessation ................................................................ 16

Bladder cancer........................................................................... 28 Brain tumor...................................................................................28 Breast cancer...............................................................................28 Colorectal cancer ......................................................................30 Esophageal cancer......................................................................31 Gastric cancer .............................................................................31 Gynecologic cancers (cervical, ovarian, uterine)...............31 Head and neck cancer.............................................................. 32 Kidney cancer.............................................................................. 32 Leukemia and lymphoma ....................................................... 33 Liver cancer.................................................................................. 33 Lung cancer ................................................................................ 33 Melanoma ....................................................................................34 Multiple myeloma ......................................................................34 Pancreatic cancer ...................................................................... 35 Prostate cancer .......................................................................... 35 Skin cancer................................................................................... 35 Testicular cancer ........................................................................ 35

Part 3: Support by topic

Part 5: County resources for cancer survivors

Cancer information/Education................................................17 Cancer survivor website customization................................17 Cancer wellness retreats ......................................................... 18 Caregiver support....................................................................... 18 Caregiver support groups..................................................... 18 Caregiver resources................................................................ 18 Cognitive changes and cancer treatment ......................... 19 Confusion and delirium............................................................ 19 Fertility support .......................................................................... 19 Financial assistance ...................................................................20 Copays, insurance matters and accessing grants.........20 General financial assistance.................................................20 Home assistance........................................................................ 21 LGBTQIA+ support.....................................................................22 One-on-one mentor support ................................................22

Anderson County.......................................................................36 Greenville County.......................................................................36 Spartanburg and Cherokee counties....................................36 Laurens County...........................................................................36 Cancer Support Community at Prisma Health .................36

Part 2: Resources by need

Part 1: Prisma Health programs Center for Integrative Oncology and Survivorship (CIOS) Prisma Health’s Center for Integrative Oncology and Survivorship is a patient-centered program integrating traditional cancer care with evidence-based integrative therapies. Complementary therapies are nonmedical and address emotional, spiritual and physical needs. Complementary therapies with traditional cancer care treat the “whole patient.” CIOS works with you to identify the most appropriate resources and create a plan to optimize your physical and emotional health during and after your cancer treatment. We are dedicated to helping you live your best life with a cancer diagnosis.

Integrative and complementary therapies • • • • • • • • • •

Integrative Oncology visit “Moving On” Oncology Rehabilitation Program (physician-referred 12-week exercise program) Exercise navigation Nutrition counseling and workshops Mindfulness-based stress reduction programs Distress management and individual counseling Support groups and classes Spiritual care Sexual Health Evaluation Referrals

These therapies help manage cancer symptoms and maintain energy levels from diagnosis to after treatment.

Who is a survivor? An individual is a cancer survivor from the time of diagnosis, throughout treatment and beyond. CIOS works to facilitate the best quality of life possible from the initial point of survivorship. CIOS is one of the first centers to combine integrative oncology and survivorship. This combination improves outcomes, highlights cancer prevention and enhances quality of life. CIOS houses a multidisciplinary team of professionals consisting of physicians, nurse practitioners, nurses, nutritionists, counselors, social workers and other clinicians who provide direct services or referrals for patients during all stages of survivorship along with programs that address their needs.

Integrative Oncology visit An IOS visit will provide patients with an introduction to the activities, resources, and educational opportunities within and outside of CIOS. This one-on-one appointment allows patients to discuss their individual needs and questions about mental, physical, and emotional survivorship health with a doctor or nurse practitioner. To schedule a visit, call 864-455-1346. Details about every CIOS service is listed throughout the booklet. For more information on CIOS, call 864-4551346 or visit PrismaHealth.org/CIOS.

Not only is the individual who is diagnosed a survivor but also anyone who is affected by an individual’s cancer, be it a family member, friend or voluntary caregiver. Adolescent and Young Adult (AYA) Cancer Program When facing cancer, adolescents and young adults confront different personal, psychosocial and medical challenges than younger children and older adults. Issues related to school, work, childcare, fertility, genetics, sexuality, psychology, and financial concerns are complex and require a multidisciplinary approach to ensure these needs are met. That’s why Prisma Health created the Adolescent and Young Adult (AYA) Cancer Program — a collaborative program offering coordinated cancer care for young adults ages 15–39. Bringing together specialized care providers from both the pediatric and adult worlds, our doctors and caregivers are committed to improving outcomes for AYA patients. For more information, call 864-454-2922 or visit PrismaHealth.org/AYA

Make a difference: Volunteer The Center for Integrative Oncology and Survivorship welcomes volunteers! We understand that volunteering is giving of yourself and your time. We greatly appreciate any amount of time that you are able to provide. Please call 864-455-5809 for more information about volunteering.

Cancer Genetics Program The program is staffed by board-certified genetic counselors. The program’s goal is to identify individuals and families at increased risk of having an inherited cancer syndrome and to offer options for genetic testing, screening, and medical management based on medical and family histories. For many families, genetic testing can affect management recommendations to ultimately reduce the risk of developing certain types of cancer and identify those individuals in the family who can be defined as high risk. CIOS also offers a phone screen option if you are referred for cancer genetic counseling. That means you can speak with a board-certified cancer genetic counselor from the comfort of your home. For more information, please visit PrismaHealth.org/CIOS/CancerGenetics.

Should I seek genetic counseling? If you or a close family member (parent, child, brother/sister, aunt/uncle or grandparent) has a history of any of the following, or if previous genetic testing in your family has revealed a known gene mutation, please ask your doctor about referring you for an appointment for genetic counseling. Breast cancer • Diagnosed at an early age (50 years or younger) • Two different breast cancers in the same person at any age • Triple negative breast cancer (ER/PR/Her2Neu negative) at age 60 or younger • Diagnosed with breast cancer at any age with: - One relative with breast cancer before age 50 or ovarian cancer at any age OR - Two relatives on the same side of the family with breast cancer or pancreatic cancer at any age • Male breast cancer • Multiple relatives on the same side of the family with breast cancer at any age • Breast cancer with any of these other cancers or features: - Sarcoma, thyroid cancer, adrenocortical carcinoma (cancer), brain tumors, stomach cancer, leukemia/ lymphoma, pancreatic cancer, metastatic prostate cancer • Ashkenazi Jewish Ancestry Other female cancer • Ovarian cancer at any age • Uterine cancer diagnosed before age 50 • Uterine cancer and colon cancer at any age Colon cancer or polyps • Colon or rectal cancer diagnosed before age 50 • More than 10 colon polyps in his or her lifetime • Colon or rectal cancer with any of the following cancers in the same individual or another family member, especially if diagnosed before age 50: - Uterine stomach, ovarian, small bowel, kidney/ureter, brain, pancreatic, bile duct Other cancers • Pancreatic cancer at any age • Metastatic prostate cancer at any age For more information on cancer genetics, call 864-455-1346 or visit PrismaHealth.org/CIOS/CancerGenetics.

Cancer Support Community at Prisma Health Cancer Institute Cancer Support Community (CSC) is the largest nonprofit provider of psychosocial services to cancer survivors in the country. Prisma Health is proud to be its first hospital partner. Programs offered are free, evidence-based and open to anyone who has been impacted by a cancer diagnosis including family members, caregivers and patients receiving care outside of Prisma Health. The CSC at Prisma Health offers programming to address the emotional and social needs of those affected by cancer. The CSC mission is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. Part of CSC programming is to offer a monthly calendar of items in these four areas: • Support services: Connections to persons who share similar experiences and can truly understand what you are going through, support groups and individual counseling from our multidisciplinary team so that no on faces cancer alone. • Education: Empowering through evidence-based workshops and classes. Monthly educational opportunities focus on different elements of survivorship such as complementary therapies (e.g., Reiki, aromatherapy and acupuncture), the latest treatments, and many other topics promoting a healthy life in the present and best chance of relapse prevention. • Healthy living: Classes and programs help strengthen the body, soul and mind. These include yoga, resistance exercise, walking groups, meditation, mindfulness and nutrition. Note that these activities are all taught with the recognition that, at different points in time, individuals have different limitations; class instructors provide different options so that everyone can participate regardless of present ability. • Social activities: Opportunities to socialize with other survivors and engage in gatherings that are nourishing as well as enjoyable. Look for the calendar and more information at PrismaHealth.org/CIOS/CSC. For more information about current programming, a list of support groups, or to be placed on the mailing list for the calendar, call 864-455-4399 or email CSC@PrismaHealth.org.

Community Care Program Often those who are chronically ill need more than medical help when they go home from the hospital. The Community Care Team is a group of volunteers who assist with nonmedical tasks such as errands, household chores, meals, transportation, visits, yard work, etc. This program requires a referral. Be sure to ask your care team if you meet the eligibility requirements necessary for a referral. For more information, please visit PrismaHealth.org/CommunityCare.

Lymphedema Management Program (LMP) Lymphedema is swelling that occurs when the lymphatic system has been disrupted because of surgery, radiation, infection, disease or trauma. LMP at Prisma Health’s Center for Integrative Oncology and Survivorship helps patients prevent or control cancer-related lymphedema. The program includes decongestive therapy by specially trained and certified physical therapists, presurgery screening, lymphedema education and oncology rehabilitation. The program is located at the Prisma Health Cancer Institute, 900 W. Faris Rd., First Floor, Greenville, SC 29605. Physician referral is required. For more information, call 864-455-3459 or visit PrismaHealth.org/CIOS/Lymphedema.

Prisma Health Hospice of the Foothills Hospice helps patients with a terminal illness live the remainder of life as fully as possible in peace, comfort, and dignity – and with less worry. Prisma Health Hospice provides care at home, in the hospital or in one of our nursing facilities. Keep in mind that hospice isn’t about giving up. It’s about living with disease. Hospice care can even help some patients improve or stabilize. For more information, talk to your care team about hospice care or call 864-455-3987 (Greenville), 864-8828940 (Seneca).

Prisma Health Palliative Care Palliative care is specialized medical care for people with serious illnesses that focuses on reducing symptoms, pain and stress. Palliative care is an approach to care that you may want to access at any stage of a serious illness. It helps you manage symptoms and address concerns that matter most to you such as treatment option pros and cons, decisions in line with personal values and goals, and what to expect with your care plan and how to tailor it to what matters most to you. For more information, talk to your care team about palliative care or call 864-455-3287.

Smoking Cessation Program Prisma Health is proud to offer QuitSmart, a smoking cessation program. This highly successful program takes an evidence-based, multidisciplinary approach to systematically wean patients off tobacco. Making the decision to quit smoking is one of the most important actions you can take to improve the health and quality of life for yourself and for those closest to you. We look forward to helping you be smoke free. QuitSmart takes place at the Prisma Health Center for Integrative Oncology and Survivorship, 900 W. Faris Rd. Greenville, SC 29605. For more information, call 864-455-6243 or visit PrismaHealth.org/CIOS/QuitSmoking. For an appointment, call 864-455-1346.

Part 2: Resources by need Emotional health Combating feelings of isolation with support groups and individual counseling Research shows support groups can improve social connections while increasing self-esteem and overall wellbeing. These connections can help reduce negative emotional side effects during and after cancer treatment while also improving survivorship outcomes. Support groups are actively taking place at Prisma Health Cancer Institute and with community partner organizations. All programs are free of charge and open to anyone who has been impacted by a cancer diagnosis. If you have questions on how to get connected, call 864-455-4399. The Cancer Association of Anderson offers several support groups and educational seminars for patients and caregivers. Call 864-222-3500 for more information and group meeting schedule. The Cancer Society of Greenville County offers several support groups for patients, caregivers and those experiencing loss. Groups meet in person at 113 Mills Ave., Greenville, SC. Call 864-232-8439 for the current list of offerings and meeting schedule. Cancer Support Community (CSC) at Prisma Health: PrismaHealth.org/CIOS/CSC 864-455-5809. Programs to address the emotional and social needs of all individuals affected by cancer. Support services include support groups, connections to persons who share similar experiences and can truly understand what you are going through, and individual counseling from a multidisciplinary team so that no one faces cancer alone. Cancer Support Community (National): cancersupportcommunity.org 888-793-9355 The largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. Cancer Support Community MyLifeLine: mylifeline.org Private support portal to easily connect cancer patients and caregivers with friends and family to reduce stress, anxiety and isolation. • By creating your own private website, you will find hope, regain control, document your journey, and receive social, emotional, and practical support from friends and family throughout the treatment process and beyond. • On MyLifeLine discussion boards, you can connect with others like you. Share your unique cancer experiences and offer insights, coping strategies and inspiration. Covering a wide range of topics such as coping with side effects of cancer treatment, nutrition with cancer, and caregiver support, our discussion boards are moderated by licensed mental health professionals and are available 24/7.

See following section on mental health for additional national helpline resources.

Dealing with distress Distress and cancer diagnosis The National Cancer Institute defines distress as “emotional, social, spiritual, or physical pain or suffering that may cause a person to feel sad, afraid, depressed, anxious, or lonely.” People in distress may also feel that they are not able to manage or cope with changes cause by normal life activities or by having a disease, such as cancer. Patients with cancer may have trouble coping with their diagnosis, physical symptoms or treatment. Experiencing cancer diagnosis can be a stressful and uncertain time. While it is natural to feel symptoms of distress, it is important to allow yourself to recognize these feelings and accurately report them to your medical care team. Openly reporting feelings of distress is a very important piece of your overall cancer care. Building this rapport with your providers will enable the best opportunity for your care team to help manage or reduce your distress and connect you with helpful resources that may help alleviate cancer-related distress. For more details on recognizing cancer-related distress, please visit: What is Cancer-Related Distress? | OncoLink at www.oncolink.org (search “cancer related distress”)

“You don’t have to be positive all the time. It’s perfectly OK to feel sad, angry, annoyed, frustrated, scared and anxious. Having feelings doesn’t make you a negative person. It makes you human.” – Lori Deschene

Distress screening: What you need to know During each provider visit, you will be asked to rate your distress on a scale from 0 to 10. Distress in patients with cancer is defined as the unpleasant experience of combined factors that may interfere with the ability to cope with cancer. These factors may include practical (e.g., financial, housing, transportation), emotional, spiritual, social and physical concerns. Regularly asking you to evaluate your distress from 0 (no distress) to 10 (extremely distressed) gives your oncology team the opportunity to provide support and connections to resources you may find helpful.

Spirituality Amid diagnosis, treatment and planning for your physical health, you may experience distressing emotions of fear, worry or grief. You may also have questions about your future and how to have the life you want. Spiritual health services exist to help you express yourself and understand your own feelings and desires. Center for Integrative Oncology and Survivorship (CIOS) chaplain: The oncology chaplain is available on-call and for appointments. He works with patients and outpatient Cancer Institute staff of any spiritual expression. You can visit with the chaplain for free in person or by phone. Contact Chaplain Blake Miller at 864-399-8312 or Blake.Miller@PrismaHealth.org.

Mental Health Helplines American Cancer Society Cancer Helpline: 1-800-227-2345 The American Cancer Society Helpline provides support in over 200 languages via phone and chat, available 24 hours a day, 7 days a week. It provides information on ACS programs, local resources and support. Cancer information specialists help answer questions about treatment options and potential side effects and provide information on programs, services and resources, emotional support, transportation and lodging assistance. American Psychosocial Oncology Society Helpline: 1-866-276-7443 This national resource helps people with cancer and their caregivers find emotional support in their own communities. This referral program, part of the Cancer Support Helpline® (affiliated with the Cancer Support Community), connects cancer patients, their caregivers and advocacy organizations with psychiatrists, psychologists, nurses, social workers, and counselors skilled in the management of cancer-related stress. Cancer Support Community Helpline: 1-888-793-9355 CSC’s toll-free helpline is open weekdays 9 a.m.–9 p.m. EST and weekends from 9 a.m.–5 p.m. EST Learn more at cancersupportcommuity.org/cancer-support-helpline. Helpline services include: • Connecting callers to local or national resources, including support groups, transportation services and other programs • Short-term cancer coping assistance • Short-term housing resources • Treatment decision-planning • Financial navigation regarding the costs of cancer and its treatments • Specialized information and navigation in pediatric oncology, finances, clinical trials and genetics/genomics • Access to an online distress screening program, CancerSupportSource® • General information about Cancer Support Community

Local mental health centers Anderson Mental Health Center: 200 McGee Rd., Anderson, SC 29625; 864-260-2220. Center for Integrative Oncology and Survivorship (CIOS): 900 W. Faris Rd., First Floor, Greenville, SC 29605; 864-455-1346. Individual counseling Greenville Mental Health Center: 124 Mallard St., Greenville, SC 29601; 864-241-1040. Includes acute crisis services. Greenwood Mental Health Clinic: 1547 Parkway, Ste. 200, Greenwood, SC 29646; 864-223-8331. Greer Mental Health Clinic: 220 Executive Dr., Greer, SC 29651; 864-879-2111. Laurens Mental Health Center: 442 Professional Park Rd., Clinton, SC 29325; 864-938-0912. Oconee Mental Health Clinic: 115 Carter Park Dr., Seneca, SC 29678; 864-885-0157. Pickens Mental Health Clinic: 337 W. Main St., Pickens, SC 29671; 864-878-6830. Prisma Health Behavioral Health and Psychiatry – Upstate Outpatient Programs • Brownell Center: 701 Grove Rd., Greenville, SC 29605; 864-455-8988 • Patewood General Psychiatry Clinic: 10 Patewood Dr., #130, Greenville, SC 29615 864-455-8988 • Child Psychiatry and Psychotherapy Clinic: 200 Patewood Dr., A100, Greenville, SC 29615 864-454-5612 • Baptist Easley Counseling: 112 John St., Suite 101, Easley, SC 29640; 864-442-7585 • Greer Center for Psychiatry: 109 Physicians Dr., Greer, SC 29650; 864-797-9170 Simpsonville Mental Health Clinic: 20 Powderhorn Rd., Simpsonville, SC, 29681; 864-963-3421 . Spartanburg Area Mental Health Clinic: 250 Dewey Ave., Spartanburg, SC 29303; 864-585-0366. Union Mental Health Clinic: 130 Medical Sciences Dr., Union, SC 29379; 864-427-1224.

Physical Health Appearance American Cancer Society (ACS): cancer.org; The American Cancer Society is an excellent resource for tips on how to care for your appearance during cancer treatment. Topics include dealing with hair loss, caring for your skin and more. Visit cancer.org and search “appearance.” Anderson County Cancer Society: 215 East Calhoun St., Anderson, SC 29621; 864-222-3500 Wigs, hats, gently used breast prostheses and mastectomy bras. Assistance for uninsured patients with breast cancer to be professionally fitted for their first bra and prosthesis. Cancer Society of Greenville: cancersocietygc.org; 113 Mills Ave., Greenville, SC 29605; 864-232-8469. Wigs, hats, turbans, sleep caps and mastectomy supplies available for no cost. Cherokee and Spartanburg County Cancer Association: 295 E Main St., Suite 100, Spartanburg, SC 29302; 864-582-0771. Provides wigs, hats, turbans, ostomy supplies, mastectomy supplies, hospital gowns, disposables, and nutritional supplements at no charge regardless of income level or insurance status. Look Good Feel Better Foundation: lookgoodfeelbetter.org, 1-800-395-LOOK (5665). Offers online resources and monthly workshops conducted by a licensed cosmetologist to help women deal with appearance-related side effects of treatment. Registration required. Parisienne Hair Solutions: parisiennewig.com; 1003 Grove Rd., Ste. D, Greenville, SC 29605; 864-297-8235; Monday–Saturday, 9:30 a.m.–5:30 p.m. Helps those battling hair loss, providing a range of options to restore appearance, dignity and self-confidence. Provides wigs, toppers, extensions, custom hair systems, hats, scarves and scalp care products. Prisma Health Center for Prosthetics & Orthotics: 900 W. Faris Rd., First Floor, Greenville, SC 29605; 864-455-5230. Specialty shop providing lymphedema compression garments, mastectomy bras and camisoles, mastectomy bra forms, seamless microbead puffs, and postsurgical garments. Second to Nature Post Surgery Prosthetics, Clothing and Care: 621 E. Main St., Easley, SC 29640; 864-855-4712. Specialty boutique providing breast forms, bras, swimwear, camisoles, shoes, wigs, hats and turbans to meet the needs of women during and after cancer treatment.

Exercise According to the American Cancer Society (ACS), regular exercise can be helpful before, during and after cancer treatment. Physical activity can help the body and brain work better, reduce feelings of fatigue, improve muscle strength, strengthen the immune system and improve overall quality of life. American College of Sports Medicine Recommendations: • 150 minutes of moderate or 75 minutes of vigorous intensity activity each week • Resistance training at least 2 days per week • Stretching exercises at least 2 days per week • Start slowly and build up the amount of physical activity Before treatment, it’s important to stay active to help reduce complications from surgery, anxiety and distress from treatment.

During treatment, factors such as type of cancer, treatment and personal fitness level can influence the ability to exercise without limitations. However, it is vital to stay as active as possible during treatment. After treatment, take time and be patient when trying to exercise. A low or moderate intensity activity for a healthy person can seem like a high intensity activity for a cancer survivor, so increase exercise gradually.

Two visit options to help counteract fatigue and side effects (offered by the Center for Integrative Oncology and Survivorship) Exercise Navigation During an exercise navigation visit, a CIOS oncology rehabilitation nurse practitioner will discuss exercise vital signs and suggestions based on the patient’s current physical condition. The visit also offers a body composition scan for more information on muscle and fat distribution as well as referrals to local fitness programs. To schedule a visit, call 864-455-1346. Moving On Oncology Rehabilitation Program Moving On is a free 12-week program for cancer survivors who have completed their treatment for cancer. This program allows patients with cancer to “move on” past the challenges of their disease by decreasing fatigue, increasing strength and improving quality of life. The program centers on aerobic conditioning and strengthening, which have been repeatedly demonstrated as beneficial for patients experiencing profound fatigue and deconditioning associated with cancer. Physician referral is required. For more information, call 864-455-1346.

Recommended local exercise resources and programs Cancer Association of Anderson: Anderson County cancer survivors can register for the 8-week Oncology Rehab Program WELL-FIT. If you are currently in treatment or have finished within the past year, call the CAA office at 864-222-3500 to enroll in WELL-FIT. Cancer Support Community at Prisma Health: Offers several weekly activities including yoga, chair exercise, strength and stability classes. For a schedule of classes and/or more information, call 864-455-4399, email CSC@PrismaHealth.org or visit PrismaHealth.org/CIOS/CSC. Exercise is Medicine Greenville®: eimgreenville.org Comprehensive, medically based program for adults experiencing at-risk chronic health conditions such as hypertension, obesity, hyperlipidemia or hypercholesterolemia. Through Exercise is Medicine®, participants are encouraged to continue with exercise and healthy lifestyle choices. For questions or referrals, contact EIMG coordinators at Jessica.Driggers@PrismaHealth.org, 864-455-4392. Or contact any partner practices listed on the webpage that you may be affiliated with. LiveStrong at the YMCA: LiveStrong.org/YMCA-search Free 12-week program with two 90-minute sessions each week. Includes cardiovascular conditioning, strength training, balance and flexibility exercises. Evaluation includes fitness and quality of life assessment before, during and after participation. Facilitated by YMCA-certified instructors. Requires referral and medical clearance from physician. Visit webpage above and enter ZIP code to find a participating YMCA near you. For information, reach out to your local participating YMCA branch identified via the LiveStrong website. Prisma Health MoveWell online workout programs MoveWell is a free, easy and convenient online workout program featuring a series of movements that can be performed using limited equipment. Depending on your current fitness level, you can modify each movement to create a workout focused on cardiorespiratory fitness, muscle endurance, balance and core stability.

Sportsclub Fitness and Wellness – p.r.e.p. (Physician Referred Exercise Program): sportsclubsc.com/prep Cancer Wellness Track – Sportsclub’s 60-day program to introduce patients to exercise. Participation includes intake and supervision with on-site registered nurse and medical fitness trainer, customized exercise program based on health history, 2 weekly professionally supervised small group sessions. Progress checks, nutrition seminars, and full access to all 3 Sportsclub facilities. For information, reach out to your local participating Sportsclub facility.

Fatigue Exercise: Research shows that exercise can help reduce cancer-related fatigue. See previous section for exercise resources to help you stay active during and after cancer treatment. Counseling: Learn how to save energy, reduce stress and distract yourself from fatigue. (See a list of resources in the Mental Health section.) Nutrition: Proper nutrition is an important component in fighting fatigue. (See following section on Nutrition.) Managing sleep problems: People with cancer often have an increased risk for sleep-wake disturbances. Be sure to mention any problems falling asleep or staying asleep to your doctor. Regular exercise and relaxation techniques can often help alleviate sleep issues. Visit cancer.org and see information on sleep disturbances under the “dealing with side effects” section.

Nutrition

Help with intravenous nutrition Feeding tubes can be recommended for patients depending on diagnosis, treatment plan and treatment side effects that may disrupt a patient’s ability to stay properly nourished. Here are resources specific to intravenous nutrition that may provide additional support. MD Anderson Cancer Center: mdanderson.org (search “feeding tubes”). Information on when patients need intravenous nutrition, different types of feeding tubes and how they work. Oley Foundation: oley.org, 1-800-776OLEY (6539). National organization dedicated to enriching the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, resources, donated supplies and networking.

According to the National Cancer Institute, good nutrition and healthy eating habits are important for patients with cancer during and after treatment. Cancer and cancer treatments may affect appetite and the ability to eat enough food. It is vital to have nutrition support to feel your best and improve quality of life during and after cancer treatment. It is also important for cancer survivors to be aware of prevention-focused diet recommendations to reduce the risk of recurrence. Nutrition counseling: 864-455-1346. Prisma Health Center for Integrative Oncology and Survivorship offers personalized nutrition counseling to help those with cancer achieve optimal nutrition during and after cancer therapy. Nutrition counseling is provided by a registered and licensed dietitian nutritionist with oncology experience to help you maintain and enhance nutritional status across the continuum of care. Group classes are offered on a regular basis on topics such as food preparation, nutrition advice and best diet practices for cancer survivorship. American Institute for Cancer Research (AICR): aicr. org, 1-800-843-8114. Library of recipes, programs on diet education, healthy eating tools, free seminars on diet and cancer, a quarterly newsletter, and more.

Change in nutrition Nutrition is a vital component to your treatment plan during and after cancer therapy. Many changes may occur that can affect your nutrition status. Change in taste: You may develop a metallic taste in your mouth or have increased or decreased sensitivity to salt or spice. Appetite: You may notice a decrease or increase in appetite based on your stage of treatment and type of treatments. Gastrointestinal changes: You may develop nausea, vomiting, diarrhea, constipation or dry mouth. For information related to symptom management and good nutrition during or after treatment, visit oncologynutrition.org or cancer.org/treatment. Check with your local cancer society as many organizations provide free nutritional supplements and feeding supplies.

Cancer Dietitian: cancerdietitian.com. Lifestyle tips for prevention and survivorship. Cook for Your Life: cookforyourlife.org. Free cooking website that aids survivors and their families by providing easy-to-make healthy recipes, instructional videos and informative articles; only website with a unique search tool to help users find recipes to suit their needs as they go through the rigors of cancer treatment. Creative Juices Consulting: creativejuicesconsulting.com. Local resource dedicated to supporting cancer survivors, caregivers and others to increase the intake of living plant-based foods daily. Cooking classes, nutrition counseling and cancer coaching available. Moms Meals: momsmeals.com, 1-877-508-6667. Cancer Support Meal Delivery Service offering menu options to meet the nutritional needs of patients with cancer at any time, with a special program tailored to post-hospital stay meal delivery. Each of the meals is developed with input from registered dietitians specializing in oncology and in accordance with guidelines from the American Institute for Cancer Research Oncology Nutrition: oncologynutrition.org. Tools for eating when you don’t feel well, cancer-fighting nutrition, recipes and resource library. Physicians Committee for Responsible Medicine: pcrm.org, 202-686-2210. Provides comprehensive information about the role of dietary factors in keeping people healthy during and after cancer treatment. Offers classes, books, video programs, fact sheets, brochures and other educational materials on cancer prevention and survival.

Sexual health According to the American Cancer Society (ACS), sexuality and intimacy after a cancer diagnosis has been shown to help with feelings of distress. However, cancer treatment can affect body image, sexual function and sexual desire, all of which can lead to sexual dysfunction. Sexual health evaluation (SHE) visit: During a SHE visit, patients will receive one-on-one sexual health evaluations with a nurse practitioner to help understand and overcome sexual health challenges related to cancer treatment. Patients can discuss their personal concerns and receive evidence-based recommendations to help restore their sexual well-being. Appointments are open to all female patients. For more information, call 864-455-5847. To schedule a visit, call 864-455-1346.

Smoking cessation American Lung Association Lung Helpline and Tobacco Quitline: 1-800-LUNGUSA (586-4872 and press 2), Monday–Friday, 7 a.m.–5 p.m., CT. Become An Ex: becomeanex.org. Free smoking cessation program with a customized quit plan, text message support, interactive guides and tools, and expert advice and tips from the Mayo Clinic. National Cancer Institute Smoking Quitline: 1-877-44U-QUIT (448-7848) between 9 a.m.–9 p.m. EST. Counseling by trained persons. Nicotine Anonymous: nicotineannonymous.org. Group meetings offered by phone and online to support those who wish to quit smoking. QuitSmart: Center for Integrative Oncology and Survivorship, 900 W. Faris Road, Greenville, SC 29605. Provides the tools and a customizable plan to achieve a tobacco-free goal with the assistance of a QuitSmart certified nurse practitioner and nurse navigator at no charge. For more information, call 864-455-6243. For an appointment, call 864-455-1346. QuitWell: Prisma Health and the American Cancer Society have developed a customized program to stop smoking. Consists of one small group class each week for 5 weeks and includes a workbook, handouts, on-site facilitator and “Quit Kits” for participant. Call 864-455-WELL (9355) to enroll or get more information. South Carolina Tobacco Quitline: 1-800-QUIT-NOW. Offers free, 24/7 quit support to all SC tobacco users. Nicotine patches, gum or lozenges are available.

Part 3: Support by topic Please note: Resources listed throughout this booklet are a guide to many avenues of support available to individuals and family members facing cancer diagnosis. You may find additional resources specific to you.

Cancer information/Education Acknowledging reputable resources for reliable information It is expected to feel the need to be as informed as possible about your cancer diagnosis. However, it is important to remember each diagnosis and patient is unique. Below is a list of reputable informational websites, cancer centers and research institutions preferred by your cancer care team. Please note: Additional resources will always be provided based on provider preference. Additional resources specific to cancer type are also listed in this booklet. It is always recommended to check with your providers to ensure accuracy of information obtained via personal internet search.

American Society of Clinical Oncology (ASCO) National Cancer Institute Oncolink

www.cancer.net www.cancer.gov www.oncolink.org

888-651-3038 1-800-4-CANCER n/a

Mayo Clinic MD Anderson Memorial Sloan Kettering Cancer Center National Center for Complementary and Integrative Health

www.Mayoclinic.org www.MDanderson.org Mskcc.org www.nccih.nih.gov

n/a n/a n/a n/a

Cancer survivor website customization These sites afford the opportunity to develop one’s own website to keep others up to date on your journey. It allows the telling of your own story to everyone at one time versus reiterating it multiple times. It also empowers the expression of one’s own thoughts and feelings. Loved ones can give their support and feedback. Caring Bridge: caringbridge.org. Offers a place to share health updates, photos, videos, and more with your friends and family as you navigate your cancer journey. It replaces countless texts and emails with a free, easyto-use communications platform. MyLifeLine (Cancer Support Community): mylifeline.org. Exists to easily connect cancer patients and caregivers with friends and family to reduce stress, anxiety and isolation. Its goal is to help patients and caregivers find hope, regain control, document their journey, and receive support from loved ones throughout treatment and beyond. Offers discussion boards for patients to connect with others who share their specific cancer diagnoses or have had similar experiences.

Cancer wellness retreats Casting for Recovery: castingforrecovery.org, 888-553-3500. Provides healing outdoor retreats for women with breast cancer for free. Offers opportunities for women to find inspiration, discover renewed energy for life, and experience healing connections with other women and nature. Open to women with breast cancer of all ages, in all stages of treatment and recovery. Wind River Services: windriverservices.org/cancer-wellness-retreats.html. Offers free in-person and virtual retreats for North and South Carolina residents with any type of cancer. Library of resources and helpful information regarding integrative practices and well-being listed on the website.

Caregiver support Caregivers to people with cancer may experience a wide range of stressors. As a key participant in your loved one’s care, it is important to know the resources available to you as you begin or continue the journey as caregiver.

Caregiver support groups Cancer Society of Greenville County: cancersocietygc.org; 113 Mills Ave., Greenville, SC 29605; 864-232-8439. Monthly family members and caregivers groups. Call for updated times and group meetings. Cancer Support Community at Prisma Health Caregiver Support: PrismaHealth.org/CIOS/CSC. The Cancer Support Community at Prisma Health offers ongoing educational workshops and meetings to support caregivers. Please call 864-455-4399 to find out the latest offerings available. Caregiver Action Network: caregiveraction.org. CAN (the National Family Caregivers Association) is a nonprofit organization providing education, peer support and resources to family caregivers across the country free of charge.

Caregiver resources CIOS Caregiver’s Toolkit: An informative booklet that serves as a guide to success for anyone taking on the role of a caregiver of someone with cancer. Contains helpful information about being a caregiver, stressmanagement techniques, counseling options, local resources, for in-home help, support services, an SC power of attorney form, and more. Call 864-455-4399 to receive a caregiver’s toolkit. Empowering Caregivers: care-givers.com. Education and information on many caregiver issues, links to weekly chats, free biweekly newsletter, journaling opportunities. Family Caregiver Alliance: caregiver.org, 1-800-445-8106. Supports and assists caregivers through education, research and services that include publications, caregiver training, workplace programs, research and policy initiatives, and advocacy. Lotsa Helping Hands: lotsahelpinghands.com. Connects caregivers through the power of community (whether you need help or want to provide it). National Alliance for Caregiving: caregiving.org, 202-918-1013. National nonprofit agency for caregivers offering free studies and brochures.

Cognitive changes and cancer treatment, side effects and chemo brain According to the American Society of Clinical Oncology, more than 70% of people with cancer experience problems thinking, paying attention or remembering things. Often referred to as “chemo brain,” cancer diagnosis can come with cognitive side effects that may make you feel “cloudy,” regardless of whether you have received chemo treatment. Cognitive changes can also be a side effect with treatments such as hormone therapy, radiation and surgery. Cognitive changes before, during and after cancer treatment are common, and for some can be long term. However, there are recommendations on what you can do day to day and lifestyle changes known to help sharpen your mental abilities or decrease your risk of developing cognitive changes in relation to cancer treatment. American Cancer Society: cancer.org (search “chemo brain”) Informational resource identifying what people with chemo brain might experience, what causes chemo brain, what to ask your doctor, and day-to-day coping and treatments to alleviate chemo brain.

Confusion and delirium Sometimes patients with cancer can experience new or worsening confusion and, in some cases, delirium. This can present as trouble thinking or acting as they normally would. It is important to notify your care team about any signs of extreme confusion or delirium as this might be a result of medication or something more serious going on in the body. American Cancer Society: cancer.org (search “confusion and delirium”) Information resource identifying the difference between confusion and delirium, possible causes, what to look for, and when to call your doctor.

Fertility support Fertility Center of the Carolinas: 890 Faris Rd., Suite 470, Greenville, SC 29605. 864-455-4673. Works with patients to combat infertility and many other conditions, such as hormonal abnormalities, postmenopausal symptoms and uterine abnormalities. FORCE (Facing Our Risk of Cancer Empowered): facingourrisk.org. Information on how pregnancy impacts hereditary cancer risk and options for assisted reproduction. Information on effects of cancer treatment on fertility, treatments and pregnancy after cancer treatment. Livestrong Fertility: livestrong.org/what-we-do/program/fertility. Provides reproductive information, resources, and financial support to survivors whose cancer and its treatment present risks to their fertility. Piedmont Reproductive Endocrinology Group: pregonline.com, 866-725-7734. South Carolina’s largest network of fertility centers. Offers a full range of onco-fertility services (fertility services provided to a recently diagnosed cancer patient wanting to explore options for having future children) for men, women and couples.

Financial assistance Copays, insurance matters and accessing grants CancerCare Co-pay Assistance Program: cancercare.org/copayfoundation, 1-866-552-6729. Provides financial assistance to help with copayments for prescribed treatments. Monies are from different grants that CancerCare receives. Grants are diagnosis specific and vary in availability dependent on the grants received. Contact 855-55-COPAY with any questions. Healthwell Foundation: healthwellfoundation.org, 1-800-675-8416. Addresses the needs of individuals who cannot afford their insurance copayments, premiums, coinsurance or other out-of-pocket healthcare costs. Medical Assistance Tool (PPA): medicalassistancetool.org, 571-350-8643. Offers a single point of access for more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. Matches patients with resources and cost-sharing programs that may help lower your out-of-pocket costs, whether or not you have insurance. My Good Days Chronic Disease Fund: mygooddays.org, 1-877-968-7233. Organization dedicated to helping overcome the burdens of treatment costs with services such as copay assistance, travel assistance, diagnostic testing assistance, monthly premium costs, help researching insurance plan options and more. National Organization for Rare Disorders (NORD): rarediseases.org, 1-800-999-6673. Assists uninsured or under-insured individuals in getting medications. Offers assistance with medication, financial assistance with insurance premiums and copays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists. Patient Access Network Foundation: panfoundation.org, 1-866-316-7263. Assists patients with out-of-pocket healthcare costs including deductibles, copayments and coinsurance. Patient Advocate Foundation’s Co-pay Relief Program: copays.org, 1-866-512-386. Provides financial assistance to qualified patients with copayments, coinsurance or cost-sharing associated with prescription drugs through funds dedicated to specific disease states. In some instances, assistance with insurance premiums and/ or ancillary services associated with the disease also may be available. Patient Services Incorporated (PSI): patientservicesinc.org, 1-800-366-7741. Provides free disability legal aid for families facing chronic medical conditions through the ACCESS program. Assists with copay, premium, ancillary, travel and infusion costs for a range of chronic and rare diseases. Also provides health insurance education and resources to better understand the terms involved with your health insurance plan.

General financial assistance Bone Marrow Foundation: bonemarrow.org, 1-800-365-1336. Provides financial assistance to bone marrow transplant patients to help cover costs associated with transplants. An online application is available and requires physician and social worker assistance to complete. Cancer Association of Anderson County: cancerassociationanderson.org, 864-222-3500; 215 East Calhoun St., Anderson, SC 29631. Financial assistance for patients in active treatment offered for treatment-related expenses up to $1,000 a year. Such expenses include prescription medicine, local and long-distance travel, and payment for health insurance premiums. Professional fitting for mastectomy bra and prosthesis offered for uninsured breast cancer patients at no charge.

Cancer Association of Spartanburg and Cherokee Counties: cancerassociation.org, 295 E. Main St., Ste. 100, Spartanburg, SC 29302; 864-582-0771;. Provides financial assistance for cancer medications, nutrition supplements, medical equipment, home care supplies and gas cards. Cancer Financial Assistance Coalition: cancerfac.org. A coalition of financial assistance organizations that provides financial help to patients with cancer. Cancer Society of Greenville: cancersocietygc.org, 113 Mills Ave., Greenville, SC 29605; 864-232-8439. All services are free, and no appointment is necessary. Provides free cancer-related health supplies and medical and home health care equipment. Also offers nonmedical financial assistance, prescribed medications and transportation assistance. Livestrong: livestrong.org, 1-855-220-7777. Livestrong Cancer Navigation Services provides assistance to cancer patients, caregivers, family and friends. This program offers education, information about treatment options, counseling services, and assistance with financial, employment or insurance issues. Social Security Administration for Disability: Apply online at ssa.gov, 1-800-772-1213. Triage Cancer: triagecancer.org, 424-258-4628. Nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers. United Way: For a list of all emergency and charitable organizations in your area, call 211 or visit uwasc.org. Women’s Cancer Fund: womenscancerfund.org: Pays for select nonmedical expenses associated with cancer to ease the financial burdens of undergoing treatment. Application is required.

“Never doubt that a small group of individuals can change the world.” – Margaret Mead, author

Home assistance Note: This is not a comprehensive list of home health care resources. You may find it helpful to search local home health resources available for you via internet search. Be sure to check with your insurance provider to find out about coverage availability. Many services are discounted or free, and many home health companies work with a variety of healthcare plans. Cleaning for a Reason: cleaningforareason.org Provides free home cleaning to patients battling cancer. Their goal is to remove the burden of cleaning and allow those recovering from surgery, in active treatment or in hospice to focus on their health and spending valuable time with loved ones. GetCareSC: getcaresc.com. Extensive resource for in-home assistance, transportation assistance, senior resources, disability resources, adult caregivers, meal support and more across South Carolina.

Prisma Health Community Care Program: PrismaHealth.org/CommunityCare. Assists patients who lack the ability to complete basic nonmedical tasks by pairing them with a group of volunteers to help with their identified needs. Services include transportation, errands, chores and yardwork. To be eligible for a referral, patients must have been recently discharged from one of Prisma Health’s hospitals, be 18 years or older, and be chronically ill, uninsured, underinsured, or non-homebound requiring additional assistance. This program requires a referral. Be sure to ask your care team if you meet the eligibility requirements necessary for a referral. Senior Helpers: seniorhelpers.com, 864-326-9891. Nonmedical in-home care for seniors with chronic conditions. Helps manage daily symptoms and challenges, transportation to errands and medical appointments, respite for family members, assistance with engaging and calming activities, assistance with exercise regimen to reduce depression and anxiety, verbal communication and emotional support, monitoring condition of skin and lower extremities, medications reminders, meal preparation to maintain nutrition.

LGBTQIA+ support CancerCare: cancercare.org (search “coping with cancer as an LGBTQ+ person”). Information on coming out to your healthcare provider, self-advocacy, and support, and ensuring comprehensive care that meets your needs during cancer diagnosis. FORCE: facingourrisk.org. Education on risk management, treatment and support groups specifically for LGBTQIA+ community members considering genetic testing for hereditary cancer or who have tested positive for a genetic mutation. The LGBT Cancer Project: lgbtcancer.org, 917-301-1913. Lesbian, gay, bisexual and transgender cancer survivor support and advocacy nonprofit organization. The online support group community, Out With Cancer, is committed to improving the health of LGBT cancer survivors with peer to peer support, patient navigation, education and advocacy. National LGBT Cancer Network: cancer-network.org, 212-675-2633. Provide resources for support as well as a vast library of information for LGBT+ individuals impacted by cancer. Out: The National Cancer Survey is a national survey for LGBTQ cancer survivors to share their cancer stories. National LGBT Cancer Project-Out with Cancer: www.lgbtcancer.com. First and leading lesbian, gay, bisexual, and transgender cancer survivor support and advocacy nonprofit organization committed to improving the health of LGBT survivors. Offers many LGBT cancer support groups. Queer Wellness Center: queerwellnesscenter.org, 30 Pointe Circle, Greenville, SC; 864-655-5193. LGBTQ+ community center and wellness clinic offering access to healthcare, social services, wellness resources and more. The wellness center is in collaboration with Pride Link, Amaryllis Counseling and 864 Pride.

One-to-one mentor support 4th Angel (cancer patient and caregiver mentoring program): 4thangel.ccf.org, 1-866-520-3197. Part of the Scott Hamilton CARES initiative. One-on-one confidential outreach and support from a mentor; opportunity for patients and caregivers to connect with someone who went through similar experience. Cancer Hope Network: cancerhopenetwork.org. Connection to others with the same diagnosis.

Imerman Angels: imermanangels.org, 1-866-IMERMAN (463-7626). Global nonprofit that matches and individually pairs a person touched by cancer with someone who has already fought and survived the same type of cancer (a Mentor Angel). Cancer caregivers also receive 1:1 connection with other caregivers and survivors.

Online support groups and communities Association of Cancer Online Resources (ACOR): acor.org. A unique collection of online communities designed to provide timely and accurate information in a supportive environment. CancerCare: cancercare.org. Counseling support groups, educational opportunities and financial assistance. Cancer Support Community: cancersupportcommunity.org., 888-793-9355 (helpline). Online nationwide support groups facilitated by licensed professionals. Cancer Support Community at Prisma Health: PrismaHealth.org/CIOS/CSC, 864-455-5809. Virtual programs to support cancer survivors, caregivers and family members. Programs focus on four areas of wellness: healthy living, support services, education and social events. A full calendar events is available via above weblink.

Prescriptions The Assistance Fund: tafcares.org, 1-855-845-3663. Helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles and other health-related expenses. GlaxoSmithKline: gskforyou.com 1-866-475-3678. Financial assistance for patients who are uninsured, meet financial income eligibility criteria, have Medicare and meet other program requirements. Healthy Connections Prescription Assistance Programs in South Carolina https://www.scdhhs.gov/sites/default/files/PrescriptionAssistance-Letter.pdf List of programs in South Carolina to assist low income or needy individuals in obtaining necessary prescription medications free or at a substantially reduced cost. Help Rx: www.helprx.info. Mission is to provide the best markdowns on prescription drugs on the web. A free service. Discounts are good at virtually every pharmacy in the U.S. Customer service toll free number: 1-844-234-3057

You may want to find out if the pharmaceutical company that makes your medication has a prescription assistance program – many do!

Needy Meds: needymeds.org, 1-800-503-6897. Provides an extensive online listing of programs to help patients access pharmaceutical patient assistance programs, generic medications for a discounted price, coupons, rebates and more. Simplefill: simplefill.com, 1-877-386-0206. Offers a full-service prescription assistance company that researches, qualifies and maintains patient’s enrollment in all sources of Rx assistance available to them. Welvista: welvista.org, 1-800-763-0059, ext. 100. Works with pharmaceutical companies to dispense over 200 name-brand medications to working, uninsured SC residents under the age of 65 with an income at or below 200% of the Federal Poverty Level. Eligibility is for 1 year and requires a $20 refundable application-processing fee. An application may be obtained online or by mail at Welvista, 2700 Middleburg Dr., Ste. 104, Columbia, SC 29204.

Senior assistance Senior Action: senioraction.org, 864-467-3660. Organization that serves close to 5,000 seniors throughout Greenville County. Services provided include home-delivered meals, lawn service, medical transportation, wellness programs, financial planning, and lifestyle and outreach programs. Senior Solutions (Anderson, Oconee and Walhalla counties) upstateseniors.org Anderson – 864-225-3370; Oconee – 864-885-1000; Walhalla – 864-642-4916 Senior Access Referral program offering transportation, information and referral services; adult day care; home care; home delivered meals; congregate dining sites and senior centers.

Support for children of parents with cancer Prisma Health Child Life Services: 864-455-5927 or DanaBird@PrismaHealth.org. The diagnosis of cancer in an adult loved one affects everyone in the family, including children and teens. Child life specialists are experts in child development, specializing in working in medical situations offering support to children birth to 18 years old. Child life specialists are available to provide guidance and support as you navigate your cancer diagnosis with your children and teens. How can a child life specialist help you? • Helps adults explain the cancer diagnosis in a way children can understand • Meets with children to process worries about their adult loved one’s illness • Helps children understand and manage their thoughts and feelings • Helps children learn what to expect about a new or ongoing diagnosis and changes in their loved one’s abilities and appearance • Provides referrals to support services in the community • Provides resources that can support ongoing conversations at home about diagnosis • Supports children and adults with end-of-life issues (expected or unexpected) and grief Kesem: kesem.org, 253-736-3821. National nonprofit organization dedicated to supporting children through and beyond their parent’s cancer with free, fun-filled creative programs and a lasting community. Free yearlong support, weeklong overnight summer camp open to children of parents with cancer. Local South Carolina Chapter: Email clemson@kesem.org

Support for parents with children and teens Inheritance of Hope: InheritanceOfHope.org, 914-213-8435 (call), 833-644-1013 (text). Nonprofit organization uniquely supporting children and families of parents faced with life-threatening illness. Retreats, community events and resources to inspire hope in families as they navigate their loved one’s illness. Let There Be Mom: lettherebemom.org, 864-608-9819. Provides services to mothers and fathers who have been diagnosed with a life-threatening illness. Families must have at least one dependent child (18 years old or younger). Additionally, the family’s physician must agree that the parent’s illness is life threatening and attest to the fact that should the mother or father refuse medical treatment their life expectancy would be 2 years or less.

Survivorship and wellness American Institute for Cancer Research: aicr.org. Information to navigate questions about cancer types, nutrition and lifestyle recommendations, and treatment tips. Tools to manage everyday well-being including dietary needs, recipes and physical activity recommendations during and after treatment. Cancer Survivors Network (American Cancer Society): csn.cancer.org. Online community for cancer survivors, families and friends. Cancer Survivors Park of Greenville, SC: 52 Cleveland St., Greenville, SC 29601. The Cancer Survivors Park is a great place to reflect and destress. The area is a unique blend of gathering spaces and natural walkways that provide a place of renewal and healing for anyone who visits. It is both a tribute to survivors learning to live and thrive through cancer as well as a place of reflection and remembrance of those who have passed on and left friends and families as “survivors” of their lives and heritage. The park also serves as a focal point for education about the disease, information about resources and inspiration for continuing along the healing journey. Cancer Survivors Park Prevention and Wellness Series: On the second Thursday of every month, the Cancer Survivors Park Alliance hosts a guest speaker to lead a discussion on the prevention of cancer and chronic disease. These discussions are conducted virtually via Zoom, giving attendees the opportunity to log in and ask questions in real time. All discussions are recorded and available to view at cancersuvivorspark.org or call 864255-5010. National Cancer Institute: Office of Cancer Survivorship: survivorship.cancer.gov, 1-800-422-6237 Monday– Friday, 9 a.m.–9 p.m. ET. Offers resources for survivors and caregivers, including support groups and helpful information about health and wellness, late effects of treatment, palliative care, follow-up care after cancer treatment and more. National Coalition for Cancer Survivorship (NCCS): canceradvocacy.org. Oldest survivor-led cancer advocacy program in the country; evidence-based advocacy, patient education, access to credible and accurate patient information such as NCCS’ award-winning Cancer Survival Toolbox. Wind River Services: windriverservices.org. In-person and virtual workshops, cooking classes, cancer wellness retreats, personal survivor-family getaways, and survivor outreach programs for survivors with all types of cancer. Wind River Services are focused on helping cancer survivors deal with the physical and emotional stress of cancer and providing opportunities to make new friends and improve quality of life.

Transportation support Note: This is not a comprehensive list of transportation resources. You may find it helpful to search local transport resources available for you via internet search. Be sure to check with your insurance provider to find out about coverage availability for transportation assistance. Many services are discounted or free, and many companies work with a variety of healthcare plans.

Local/regional transportation support American Cancer Society (ACS): For ACS support, reach out via Live Chat or call the Cancer Helpline at 1-800227-2345. CancerCare: cancercare.org, 1-800-813-HOPE (4673). Provides financial assistance for transportation costs (based on income qualifications). Call to determine if you meet criteria; if approved, application will be mailed. Cancer Association of Anderson: cancerassociationofanderson.org, 864-222-3500. Mileage reimbursement program: Pays for miles from home to medical appointments and back. Uber arrangement and a philanthropyfunded transportation van available. Cancer Society of Greenville County: cancersocietygc.org, 864-232-8439. Mileage reimbursement program: Pays for miles from home to medical appointments and back. Caring Hearts Homecare Agency. LLC. & N.E.M. Transportation: cheartshomecare.com; for local phone, 844-436-5093; for transportation, 601-207-5125. Provides transportation for chemotherapy and radiation appointments, physical therapy, pharmacy stops, medical and outpatient appointments, and hospital discharge. Modivcare: modivcare.com, 1-866-910-7688. Provides transportation to and from medical appointments. Book a ride on the Modivcare Member portal or call an automated reservation assistant. Contact your health plan to confirm and understand your transportation benefits before scheduling a ride. Senior Solutions Transportation Support: sscares.com/senior-transportation-services. Non-emergency medical transportation assisting seniors to and from medical appointments, personal errands and more. Prepared to assist seniors with walkers, wheelchairs and mobility needs. Appointments are booked online. Tandem Transport: tandemtransport.com, 864-284-6000. Ambulance, stretcher van, wheelchair, long distance and group transport service. Available for specialized transportation assistance to and from medical appointments, everyday transport, special events and ambulance/stretcher transport.

Long-distance travel Air Care Alliance: aircarealliance.org, 215-395-1645. Free air transportation for any legitimate, charitable, medical-related need. Transportation is also arranged for those who are financially distressed or in a timecritical, non-emergency situation because of their medical condition. AirCharityNetwork.org: aircharitynetwork.org, 1-877-621-7177. Provides free air transportation to specialized healthcare facilities for patients who meet qualifications for transport. Advanced notice is required. American Cancer Society Hope Lodge: cancer.org/HopeLodge, 1-800-227-2345. Offers cancer patients and their caregivers a free play to stay when their best hope for effective treatment may be in another city. Closest location is in Charleston, S.C.

Cancer Association of Anderson: cancerassociationofanderson.org, 864-222-3500. Financial assistance available for long-distance treatment appointments via stipend check. Cancer Association of Greenville County: cancersocietygc.org, 864-232-8439. Income-based transportation allowance for out-of-town travel and room and board. Corporate Angel Network: corpangelnetwork.org, 914-328-1313. Arranges free travel on corporate aircrafts for cancer patients. Participation is open to all cancer patients along with bone marrow and stem cell donors and recipients who are ambulatory and do not require medical assistance while traveling. Eligibility is not based on financial need, and patients may travel as often as necessary. Healthcare Hospitality Network: HHNetwork.org, 1-800-542-9730. Nationwide listing of nearly 200 unique, nonprofit organizations that provide free or low-cost lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. Please check the www. hhnetwork.org for location listings. Joe’s House: Joeshouse.org, 1-877-563-7468. A nonprofit organization that helps cancer patients and their families find a discounted place to stay when traveling away from home for medical treatment. Mercy Medical Angels: 757-318-9174, MercyMedical.org. Provides transportation for patients who cannot afford to travel to long-distance healthcare.

Young adult support Dear Jack Foundation: dearjackfoundation.org. The Dear Jack Foundation provides impactful programming that directly benefits adolescents and young adults (AYA) diagnosed with cancer to improve their quality of life and create positive health outcomes from treatment to survivorship for patients and their families. Dear Jack addresses the physical and emotional needs of AYA cancer patients, survivors and their families. One-on-one patient support and wellness programs allow the Dear Jack Foundation to empower patients, survivors, and their caregivers in their healing and to provide assurance that they are not alone in their cancer journey. Livestrong: livestrong.org/we-can-help/young-adults. Information, advice and advocacy for young adults with cancer. Offers information and resources concerning feelings and emotions, fertility, health and wellness, money and insurance, and practical needs. Prisma Health Adolescent and Young Adult (AYA) Program: PrismaHealth.org/AYA 864-454-2922 When facing cancer, adolescents and young adults confront different personal, psychosocial, and medical challenges than younger children and older adults. The Prisma Health AYA program offers specialized cancer care for young adults 15–39. Stupid Cancer: stupidcancer.org, 212-619-1040. Resources, events, webinars, and a vast support community for adolescents and young adults affected by cancer. Its goal is to empower young people by ending isolation and building community. Offers resources for mental health, building a family, relationship health, college and careers, and health equity. The Samfund: thesamfund.org, 617-938-3484. Resources and financial support for young adults affected by cancer. Offers caregiver support, family building support, financial assistance, work resources, undergraduate tuition assistance and more.

Part 4: Resources by diagnosis Bladder cancer Bladder Cancer Advocacy Network (BCAN): bcan.org, 1-888-901-BCAN (2226). Provides educational services, offers online support groups, increases public awareness and advances research for the bladder cancer community. United Ostomy Associations of America Inc.: ostomy.org, 1-800-826-0826. Offers information, support and advocacy for those living with an ostomy and their caregivers.

Brain tumor American Brain Tumor Association (ABTA): abta.org, 1-800-886-ABTA (2282). Supports brain tumor patients and their families, provides educational materials, and offers ability to start a support group. National Brain Tumor Foundation (NBTF): braintumor.org, 617-924-9997. Provides information, counseling and patient support services to brain tumor patients and their families; newsletter; patient-to-patient support line; resource guide; list of support groups; and training for caregivers. Southeastern Brain Tumor Foundation: sbtf.org, 786-505-SBTF (7283). Information, education, and support services for brain tumor patients and their families; list of support groups; links to additional brain tumor organizations to brain survivors throughout the Southeast.

Breast cancer Breastcancer.org: breastcancer.org, 610-642-6550. Information, education, and community section with forums and stories. BrightPink: brightpink.org, 312-787-4412. Information, education, resources, and a blog for patients and their families. Clemson Area Bosom Buddies: facebook.com/ClemsonAreaBosomBuddies. Breast cancer survivor group located in the Clemson, South Carolina, area. Dense Breast Info: densebreast-info.org. Information for patients and providers on breast density and the risk for breast cancer. Educational tools, mammogram info, screening technologies and educational videos. Living Beyond Breast Cancer: lbbc.org 855-807-6386. National nonprofit that connects people with trusted information and a community of support. National Breast Cancer Foundation Inc.: nationalbreastcancer.org. Website to increase awareness, educate, and provide support services to patients and survivors. OMH Breast Friends Group. Oconee County breast cancer support group meeting every other month on Tuesdays. Call 864-650-4764 or 864-903-2846 for meeting details and more information.

The Pink Fund: pinkfund.org, 877-234-PINK. Financial support to help meet basic needs, decrease stress levels, and allow breast cancer patients in active treatment to focus on healing while improving survivorship outcomes. Our 90-day grant program allows us to meet their critical expenses for housing, transportation, utilities and insurance. Reach to Recovery Program (American Cancer Society): reach.cancer.org. Connects people facing breast cancer – from diagnosis through survivorship – with trained volunteers who are breast cancer survivors. Remember Betty: rememberbetty.com. Alleviates financial burdens associated with breast cancer for patients and survivors by providing direct financial support, allowing the time and space to focus on recovery and quality of life. SHARE – Self Help for Women with Breast or Ovarian Cancer: sharecancersupport.org, 844-275-7427 (ASKSHARE). Supports, educates and empowers people affected by breast, ovarian, uterine or metastatic breast cancer. Sharsheret: Sharsheret.org, 1-866-474-2774. Addresses the needs of Jewish women with breast and ovarian cancer. Sisters Network Inc: sistersnetworkinc.org, 713-781-0255, 1-866-781-1808. National African American breast cancer survivorship organization. Offers resources, educational discussions, financial support; curates a monthly e-newsletter; and organizes events. Susan G. Komen – South Carolina: komensouthcarolina.org, 919-808-2868 (local) or 1-877-GO KOMEN (4656636) (helpline). Online community, education, connections to resources, and both local and national events. The Tigerlily Foundation: tigerlilyfoundation.org, 1-888-580-6253. National breast cancer foundation providing education, awareness, advocacy and hands-on support for young women (15–45) before, during and after breast cancer. Young Survival Coalition (YSC): youngsurvival.org, 1-877-YSC-1011 (972-1011). Focuses on issues unique to young adults diagnosed with breast cancer. Education, virtual and in-person support groups, personal stories, as well as conferences and events.

Colorectal cancer Anal Cancer Foundation: analcancerfoundation.org, 1-646-593-7739. Provides support, financial assistance, resources, forums, programs, and events to raise awareness and support patients. Colon Club: colonclub.com. Nonprofit organization that provides education and support groups for young people (under 45) diagnosed with colorectal cancer as well as caregivers. Colorectal Cancer Alliance: ccalliance.org 1-877-422-2030. Organization of colon and rectal cancer survivors, caregivers, and other individuals touched by colorectal cancer. Quarterly newsletter, support groups, a virtual national conference, and advocacy. Colorectal Care Line: colorectal.pafcareline.org, 1-866-657-8634. Limited financial assistance for education, transportation, insurance navigation, etc. Fight Colorectal Cancer: fightcolorectalcancer.org, 1-877-427-2111 (helpline). Assistance in finding local, regional and national resources for financial support. Guides patients thought eligible workplace benefits and disability. Assistance navigating insurance matters. Education and emotional support resources.

Esophageal cancer Esophageal Cancer Awareness Association: ecaware.org, 1-800-601-0613. Provides outreach for esophageal patients, caregivers, survivors; increases public awareness; offers education and information in a supportive environment. Esophageal Cancer Education Foundation: fightec.org, 732-385-7461 (hotline). Education, support groups and postsurgery guides for patients, families and caregivers.

Gastric cancer Debbie’s Dream Foundation: debbiesdream.org, 954-475-1200. Nonprofit providing education and support to patients, families and caregivers. Raises awareness through events and advocacy efforts. Gastric Cancer Foundation: gastriccancer.org. Education, online support, advocacy, stomach cancer patient registry, nutrition and research.

Gynecologic cancers (cervical, ovarian and uterine) Support groups Cancer Support Community at Prisma Health Gyn-Onc Support Group: PrismaHealth.org/CIOS/CSC. In collaboration with the South Carolina Ovarian Cancer Foundation, this group is open to all women across South Carolina. Encourage, empathize and connect with cancer survivors facing similar challenges, worries and joys. FORCE (Facing Our Risk of Cancer Empowered): facingourrisk.org. National nonprofit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. Foundation for Women’s Cancer: foundationforwomenscancer.org. Increases awareness and education, supports expanded research and training, and provides knowledge and hope for women diagnosed with cancer. Monthly Survivor Lunches – Greenville Lunch Bunch: scovariancancer.org, 864-373-6306. Informal group specific to ovarian cancer that meets once a month (2nd Monday at noon) for lunch or dinner to talk, support each other and meet new patients.

Resources National Cervical Cancer Coalition: nccc-online.org, 1-800-685-5531. Education regarding cervical cancer and relation to HPV, support for women with cervical cancer. National Ovarian Cancer Coalition: ovarian.org, 1-888-682-7426. Education regarding ovarian cancer. Goal is to improve survival and quality of life for women with ovarian cancer. Ovarian Cancer Research Alliance: ocrahope.org, 866-399-6262. Research, education, advocacy, and events for women and families dealing with ovarian cancer diagnosis. SHARE – Self Help for Women with Breast or Ovarian Cancer: sharecancersupport.org. 1-844-ASK-SHARE (275-7427). Educational materials, tools and resources, and support groups for patients and caregivers. South Carolina Ovarian Cancer Foundation (SCOCF): scovariancancer.org, 864-373-6306 (Upstate chapter); 110 B Edinburgh Ct., Greenville, SC 29607. Supports women diagnosed with ovarian cancer, educates the public, and supports research.

Head and neck cancer Head and Neck Cancer Alliance: headandneck.org, 1-866-792-HNCA (4622). Provides educational materials, survivorship webinars, patient support, mentor programs and financial assistance. Oral Cancer Foundation: oralcancerfoundation.org, 949-723-4400. Reduces suffering and saves lives through prevention, education, research, advocacy and support for people with oral cancer and their loved ones; offers education and comprehensive resource list. Support for People with Oral and Head and Neck Cancer (SPOHNC): spohnc.org, 1-800-377-0928. Local support group chapter: St. Francis Cancer Center, 104 Innovation Dr., Greenville, SC 29607. Call toll-free number above for more information on group meetings. Provides current information for patients trying to gain a better understanding of their illness including support, education, resources and blog.

Kidney cancer Kidney Cancer Association: kidneycancer.org, 1-800-850-9132. Offers education and patient resource including a “just diagnosed” toolkit, information on clinical trials and a specialist directory. National Organization for Rare Diseases: rarediseases.org, 1-202-588-5700. Offers support, financial assistance and education about rare diseases, such as advanced renal cell carcinoma.

Leukemia and lymphoma Bone Marrow Foundation: bonemarrow.org, 1-800-365-1336. Offers support for bone marrow patients and families, information and resources, financial assistance. Leukemia and Lymphoma Society: lls.org, 1-914-949-5213. Offers education, support groups, and resources for patients and caregivers. Lymphoma Research Foundation: lymphoma.org, 1-800-500-9976. Focuses on chronic lymphocytic leukemia, small lymphocytic leukemia, Hodgkin lymphoma, and non-Hodgkin lymphoma; FAQs, financial assistance, and education. National Organization for Rare Diseases: rarediseases.org, 1-202-588-5700. Offers support, financial assistance and education about rare diseases.

Liver cancer American Liver Foundation: liverfoundation.org, 1-800-465-4837. Provides information, resources and relevant links for liver cancer.

Lung cancer American Lung Association: lung.org 1-800-LUNGUSA (586-4872). Provides health information for those living with lung diseases, education, resources, research, advocacy and events. Caring Ambassadors Program: caringambassadors.org. Addresses diagnosis, staging and challenges of living with various types of lung cancer; offers resource links; advises parents and family members about communicating with children about lung cancer. GO2 Foundation for Lung Cancer: 1-800-298-2436 (helpline); 202-463-2080 and 650-598-2857 (general questions). Resources cover diagnosis and staging, risk factors and early detection, treatment and side effects. Also offers support groups, one-on-one support and a lung cancer registry. Lung Cancer Research Foundation: lungcancerresearchfoundation.org, 1-844-835-4325 (helpline). Research, events, resources, and support groups for patients and caregivers. LUNGevity Foundation: lungevity.org, 312-407-6100 or 1-844-360-5864 (HELPline). Education and resources for patients and caregivers. Newsletters, webinars and coast-to-coast events. Mesothelioma.com: mesothelioma.com, 1-800-336-0086. Offers information about mesothelioma, including types, statistics and treatment options; also information for veterans impacted by mesothelioma; promotes awareness and advocacy; helps connect victims of asbestos exposure to legal resources.

Melanoma Aim at Melanoma: aimatmelanoma.org, 833-2ENDMEL (236-3635). Focuses on research, advocacy, education and one-on-one support for melanoma patients. American Melanoma Foundation (AMF): melanomafoundation.org, 858-412-3271. Focuses on education and awareness about melanoma for patients and their families. Skin Cancer Foundation: skincancer.org. Education, support, and resources for skin cancer (including melanoma) patients and their families.

Multiple myeloma International Myeloma Foundation: myeloma.org, 818-487-7455. Focuses on research, educational materials, support groups and advocacy. Offers free downloadable publications and virtual support groups. Prisma Health Myeloma Support Group: first Thursday of every month, 7–8 p.m. This group is for patients, caregivers, family members and friends who have or are affected by myeloma. It is a great way for those affected by myeloma to interact with each other, share their stories and receive input on their journeys with this disease. The support group also provides education on new treatments and approved medications.

Pancreatic cancer Hirshberg Foundation for Pancreatic Cancer Research: pancreatic.org, 310-473-5121. National, nonprofit organization dedicated to advancing pancreatic cancer research and providing information, resources, and support to pancreatic cancer patients and their families. Pancreatic Cancer Action Network (PanCAN): pancan.org, 1-877-272-6226. Focuses on research, support resources for patients, webinars, events and access to clinical trials. Pancreatica: pancreatica.org, 831-658-0600. Focuses on pancreatic cancer topics, informational blog and resources. Call 1-800-433-0464 for a free service that will place you in contact with a fellow survivor or to volunteer to contact someone more recently diagnosed with pancreatic cancer.

Prostate cancer National Alliance of State Prostate Cancer Coalitions: naspcc.org, 1-877-627-7228. Education, awareness, resources, and webinars for patients and their families. Monthly publication Prostatepedia features informal conversations with doctors, patients and activists about prostate cancer. Prostate Cancer Foundation (PCF): pcf.org, 1-800-757-CURE (2873) or 310-570-4700. Offers information about prostate cancer staging, treatment and side effects; patient resources, latest research information, and health and wellness updates for those living with pancreatic cancer. Us TOO International: ustoo.org, 1-800-808-7866 or 630-795-1002. Offers support groups, one-on-one support, webinars on treatment decisions and helpful information. Helps men and their families learn about prostate cancer so that they can make informed decisions about treatment options and cope with physical and emotional issues. ZERO – The End of Prostate Cancer: zerocancer.org, 1-844-244-1309 (helpline) or 202-463-9455. Offers resource library, information for patients and their families, financial assistance, patient and caregiver support groups, information for veterans, and information on racial disparities in prostate cancer.

Skin cancer Skin Cancer Foundation: skincancer.org. Offers information on tools and education pertaining to skin cancer prevention and early detection along with resources for skin cancer treatment, educational materials on medications and treatments, and support resources for skin cancer patients.

Testicular cancer Testicular Cancer Foundation (TCF): testicularcancer.org, 1-855-390-8231. Modern resource for education about testicular cancer detection and diagnosis. Cojone Club network of support and brotherhood. Virtual support groups also available. Testicular Cancer Resource Center: thetcrc.org. Extensive directory with resources about testicular cancer, common questions concerning treatment and quality of life, support, and advice. Testicular Cancer Society: testicularcancersociety.org, 513-696-9827. Awareness and education, support for fighters and caregivers.

Part 5: County resources Cancer Association of Anderson County: cancerassociationanderson.org, 215 E. Calhoun St., Anderson, SC 29621; 864-222-3500. Offers financial assistance and support groups. Cancer Association of Spartanburg and Cherokee Counties: cancerassociation.org, E. Main St., Suite 100, Spartanburg, SC 29302; 864-582-0771. 209. Provides financial assistance for cancer medications, nutritional supplements, medical equipment, home care supplies and gas cards. Cancer Society of Greenville: cancersocietygc.org, 113 Mills Ave., Greenville, SC 29605; 864-232-8439. Offers a wide range of support services, including financial assistance, individual counseling, support groups, personal care equipment, ostomy supplies, prosthetics, wigs and more. Laurens County Cancer Association: hopeincommunity.net, 1337 Medical Ridge Rd., PO Box 6, Clinton, SC 29325; 864-358-7376. Offers range of quality-of-life services dedicated to those facing the uncertainty of cancer: fuel assistance, nutritional supplements, household and personal hygiene items, cancer education, and community events. Cancer Support Community (CSC) at Prisma Health Cancer Institute: Kerri.Susko@PrismaHealth.org, 900 W. Faris Rd., Greenville, SC 29605; 864-455-5809. Programs address the social and emotional needs of all individuals affected by cancer and offer support, educational classes, healthy living programs, and a community for all survivors. This directory was made possible by donors in the Upstate who have generously given to the Prisma Health Cancer Institute.

“If I had my life to live over, I’d dare to make more mistakes next time. I’d relax, I would limber up. I would be sillier than I have been this trip. I would take fewer things seriously. I would take more chances. I would climb more mountains and swim more rivers. I would eat more ice cream and less beans. I would perhaps have more actual troubles, but I’d have fewer imaginary ones. If I had my life to live over, I would start barefoot earlier in the spring and stay that way later in the fall. I would go to more dances. I would ride more merry-go rounds. I would pick more daisies.” – Nadine Stair, author Her answer, at age 85, when asked what she would do if she had her life to live over again.

Center for Integrative Oncology and Survivorship Prisma Health Cancer Institute, first floor 900 W. Faris Rd. Greenville, SC 29605 864-455-1346