Dementia handbook for carers Essex
Support Finding the support you need 1 Guide to who’s who 2 Health and Social Services 4 Local support services 6 Transport 18 Activities 20 National organisations 24 Financial support 26 Assistive technology 27 Care, quality and safety 28
Finding the support you need This booklet has two sections: •
a “Who’s who” of the types of medical and community professionals who are involved in the care of people with dementia
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a list of contact information for local and national organisations that may be able to give you information and help.
The Who’s who guide should help explain how different types of organisations work together and guide you to the right kind of contact if you have a query or concern. Support organisations work closely with one another so, if they are not able to help you themselves, they may direct you to the right organisation for your enquiry.
Tip: The lists of contact information include website addresses (URLs) for some organisations. These can be very long to type but if you go to the organisations’ home page you may be able to search for the information you need.
The list of contact information does not include every organisation in the area. Small groups that people have set up to meet a very specific need may not be included. It is likely that larger, local organisations will be able to put you in touch with them. Note that contact details for organisations may change over time. If you are having problems contacting an organisation listed here, you may need to check with Directory Enquiries or on the web. Local support organisations will also have up-to-date information. If you are contacting any of these services regularly it may help to write their details on the “Contacts” page within “Record Keeping”.
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Guide to who’s who Understanding the services and support that is available from different organisations, and how they connect, will help you find and manage support for the person you care for. Who to contact for healthcare, support and funding NHS
Community organisations
Social Services
Department for Work and Pensions
Medical care, referral and treatment
Community care support, help toaccess
Community care services and funding
Allowances and benefits
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Your GP
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Hospital clinics and wards
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Memory Clinic and Community mental health services
Voluntary organisations such as: •
Age UK
Social Services (local authority) provide services for:
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Alzheimer’s Society
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Parking and transport
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Supporting Carers in Essex
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Council Tax relief
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Benefits
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Care services
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Pensions
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Home adaptations
Accident and Emergency
Your GP is the route to NHS hospital and clinic services, apart from emergencies. Hospitals and clinics will feed back to your GP.
Support organisations and charities provide direct care services and help carers find out about other services. They can advise on applying for funding and benefits.
Medical care, referral and treatment A GP is responsible for the health of their patients at home and sees them for all health problems. A GP may refer patients to specialist doctors for diagnosis and treatment, and receives reports and advice about treatments from specialists. n
Dementia handbook for carers: Berkshire West Adapted by Healthwatch Essex 2015
Allowances
DWP gives allowances, benefits and pensions to some people with dementia and their carers. You have to apply for these and may need to re-apply if your needs change.
District Nurses
Your GP
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Social services assess and make recommendations for your care needs and provide some support services. Some services are free but you may be charged for others.
The Department for Work and Pensions (DWP) provides:
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District Nurses are an essential part of later stage home care. They visit patients at home to help treat physical symptoms, such as pressure sores and continence problems. They can help to access additional medical care and support. GPs or other medical professionals may refer you to your local District Nursing team. n
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NHS hospital clinics and wards Hospitals provide specialist medical care that isnot provided by a GP. A person may be referred to hospital by their GP, moved from Accident and Emergency (A&E) to hospital wards, or be given appointments by A&E to come back to a clinic. There is specialist mental health care in general hospitals to support people with dementia. Accident and Emergency (A&E) Hospital A&E departments give urgent and immediate care. A person may be referred to A&E by their GP, out-of-hours GP or other medical service; or they may call an ambulance, or come to the hospital independently. NHS Memory Clinic and Community Mental HealthTeam Psychiatrists Doctors based at Memory Clinics who may make home visits. Also available in general hospitals to support patients with dementia. They help with diagnosis and may prescribe medication. Clinic and community mental health nurses Specialist dementia care nurses who support patients with complex needs. They advise on day-to-day care and comfort, and suggest other services that provide support. Nurse prescribers Nurses who specialise in dementia medication. They may prescribe medicines (instead of the psychiatrist), adjusting medicine dosage at follow up appointments. Occupational therapists (OT) Work with Memory Clinics and hospitals to assess needs of people with dementia at home and recommend equipment to help with memory and mobility. May carry out Community Care and Carers’ Assessments for Social Services. May also give more general advice or suggest other services and support to help a patient. Speech and language therapists Specialists in communication problems and difficulties with eating or swallowing. May also be involved in diagnosing type of dementia and give general advice.
Clinical psychologists Develop and run treatment courses for people with dementia, such as cognitive stimulation therapy (CST). They treat patients and carers with problems, such as anxiety and depression. May also be involved in diagnosing dementia.
Community care support and help to access funding for care Voluntary organisations such as Age UK, Alzheimer’s Society, Essex Carers Support and Carers Trust provide community care. They often work in partnership with the Community Mental Health Team and Social Services. Their support ranges from respite care at home to day centres and activities. They may help you apply for funding.
Community care services and funding Social Services (local authority) carry out Community Care and Carers’ Assessments to find out what support you need. They provide support, such as day centres, respite care, care homes and transport and parking schemes. They fund personal budgets to help pay for care, if you are eligible. They are obliged to provide advice about services whether ornot you are eligible for funding.
Allowances and benefits Department for Work and Pensions (DWP) may provide some funding, including Attendance Allowance and Carers’ Allowance, pensions and other benefits. Some local community organisations can help you make your applications.
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Health and Social Services Medical dementia care Memory services in Essex are accessed via a GP referral. At these clinics you may see a variety of specialists who will provide an assessment of your situation, diagnose your condition, and can link you into a wide range of support services. Basildon Basildon Hospital Nethermayne Basildon Essex SS16 5NL Telephone: 03330 137068
North East Essex Memory Assessment, The Dementia Service & Recovery Support Teams Emerald Centre Turner Road Colchester Essex Telephone: 01206 228976
Billericay Mountnessing Court 230 Mountnessing Rd Billericay Essex CM12 0EH Telephone: 03330 137068
Older Adult Services Colchester & Tendring/North East Dementia Service The King's Wood Centre Colchester Essex CO4 5JY Telephone: 01206 228968
Brentwood Brentwood Resource Centre Greenwich Ave Brentwood Essex CM14 4SW Telephone: 01277 265300
Southend Day Asessment Unit Southend University Hospital Prittlewell Chase Westcliff-on-Sea Essex SS0 0RY Telephone: 01702 435555
Epping Riverlea House St Margaret's Hospital The Plain Epping CM16 6TN Telephone: 01279 827332
Harlands Centre Balmoral Road Westcliff-on-Sea Essex SS0 7DB Telephone: 01702 226190
Harlow Community Mental Health Team Latton Bush Centre Southern Way Harlow CM18 7BL Telephone: 01279 635658
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Mid Essex Memory Assessment and Support Service & Medication Monitoring Service The Crystal Centre Pudding Wood Drive Broomfield Chelmsford Essex CM1 7LF Telephone: 01245 515377
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Community care
Thurrock Jubilee Day Unit Thurrock Community Hospital Long Lane Grays Essex RM16 2PX Telephone: 01375 364532
Your local Social Services can help to work out what additional services and support people with dementia and their carers need. Everyone is entitled to an assessment of their needs. Social Services are also required to provide information and advice about care support to anyone about care support to anyone in their local area.
Uttlesford Older Adults Community Mental Health Team Western House Chapel Hill Stansted Mountfitchet Essex CM24 8AG Telephone: 01371 87134
Essex County Council Telephone: 0845 603 7630 Carers Emergency Planning (Essex County Council) Telephone: 0845 606 1212 Southend Borough Council Telephone: 0300 123 0808 Thurrock Council Telephone: 01375 652 868
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Local support services Dementia Support Service
General advice services
Advice and support for people with dementia and their carers. Liaison between the NHS and community services.
Citizens Advice Bureau
Basildon & Brentwood Telephone: 01268 415914 Email: Basildon-brentwood@alzheimers.org.uk Castle Point & Rochford Telephone: 01268 415914 Email: Basildon-brentwood@alzheimers.org.uk Colchester Telephone: 01206 573708 Email: colchester@alzheimers.org.uk Epping Forest Telephone: 01279 427522 Email: eppingforest@alzheimers.org.uk
Get advice online from www.adviceguide.org.uk for practical, reliable, up-to-date CAB information on a wide range of topics which is continuously reviewed. Please note some bureaux can only give advice to people living or working in a certain area so do check with the bureau that they are able to help you. Chelmsford Burgess Well House Coval Lane Chelmsford Essex CM1 1FW Telephone: 0844 993 8667 Website: www.chelmsfordcab.org Basildon District The Basildon Centre St. Martin's Square Basildon Essex SS14 1DY Telephone: 0344 477 0808 Website: www.bascab.org.uk
Grays & Thurrock Telephone: 01375 413756 Email: grays-thurrock@alzheimers.org.uk Harlow Telephone: 01279 418331 Email: harlow@alzheimers.org.uk Mid Essex Telephone: 01245 260 911 Email: midessex@alzheimers.org.uk
Braintree, Halstead & Witham 2 St Michaels Road Braintree Essex CM7 1EX Telephone: 0844 499 4719 Disability Benefits Outreach Team: 01787 479397 (Answerphone) Website: www.bhwcab.org.uk
Southend Telephone: 01702 345156 Email: southend@alzheimers.org.uk Tendring Telephone: 01255 474650 Email: tendring@alzheimers.org.uk
Uttlesford Telephone: 01371 872519 Email: uttlesford@alzheimers.org.uk 6
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Brentwood 8 - 12 Crown Street Brentwood Essex CM14 4BA Telephone: 0844 477 0808 Website: www.citizensadvice.org.uk/brentwoodcab
Rochford & Rayleigh Civic Suite Hockley Road Rayleigh Essex SS6 8EB Telephone: 0844 477 0808 Website: www.rochfordcab.org.uk
Castle Point The Whitehouse Rear of Council Offices Kiln Road Benfleet Essex SS7 1TF Telephone: 01268 759107
Southend 1 Church Road Southend on Sea Essex SS1 2AL Telephone: 0844 477 0808 Website: www.southendcab.org.uk
Website:
Thurrock Voluntary & Community Resource Centre High Street Grays RM17 6XP Telephone: 0844 477 0808 Website: www.thurrockcab.org.uk
www.castlepointcitizensadvicebureau.org.uk Colchester Blackburn House 32 Crouch Street Colchester Essex CO3 3HH Telephone: 0344 477 0808 Website: www.colchesteradvicenetwork.org.uk Harlow 13-15 Eastgate The High Harlow Essex CM20 1HP Telephone: 0344 477 0808 Website: www.harlowcitizensadvice.org.uk
Uttlesford Barnard's Yard Uttlesford Saffron Walden Essex CB11 4EB Telephone: 01799 618840 Website: www.uttlesfordcab.org.uk
Maldon St Cedds House Princes Road Maldon Essex CM9 5NY Telephone: 01621 841195 Website: www.citizensadvice.org.uk/maldoncab
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Information and advice about care and care support
Castle Point Telephone: 01702 549827
Listed below are a number of organisations that can provide information and support.
Chelmsford/Brentwood Telephone: 01245 505842
Age UK Information, advice and local services for people over 50. There are a number of local Age UK services acrossEssex. • National Helpline: 0800 169 6565 • Website: www.ageuk.org.uk
Colchester Telephone: 01376 573532 Maldon Telephone: 01621 857040
Age UK Essex Information, advice and a range of services, including financial advocacy, befriending, shopping services and community support. Details of services for your area can be found on the website or by calling Age UK.
Tendring Telephone: 01255 479377 Thurrock Telephone: 01375 392157 Harlow/Epping/Uttlesford Telephone: 01279 454304
Telephone: 01245 346106 Website: www.ageuk.org.uk/essex
Rochford/Southend Telephone: 01702 548423
Befriending Service Age UK’s Befriending Service is available across Essex to people over 60 who are suffering or at risk of the effects of loneliness and social isolation.
Renablement Service A partnership between Age UK Essex and Essex Cares. This service is designed to support patients who have been discharged from hospital. Telephone: 01245 346106
North East Essex Telephone: 01255 421 302 Essex Advocacy Service
West Essex Telephone: 01245 423 336
This service is designed to support those who are most vulnerable, or who find themselves at a particulary vulnerable point in their life. It supports individuals who cannot self-advocate and who do not have the right support around them and therefore need the support of a professional advocate to help them make informed choices and articulate their needs.
South East and South West Essex Telephone: 01268 525 353 Mid Essex Telephone: 01621 843590 Thurrock Telephone: 01708 866 684
Telephone: 0300 343 5736 Website: www.essexadvocacy.org.uk
Home Help and Sitting/Companionship Services Basildon Telephone: 01268 288839 Braintree Telephone: 01376 341465 8
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Dementia Connections Dementia Connections is a free, county-wide service being delivered by the Alzheimer’s Society and Age UK Essex. The service can be used by anyone who has dementia, doesn't live in residential care and is in need of short-term help to restore their confidence in or outside of their home. For more information about the service, please contact the local Dementia Connections team in your area: Mid Essex (Braintree, Maldon and Chelmsford) Telephone: 01621 854239 South East Essex (Rochford, Rayleigh, Castle Point) Telephone: 01268 204470
Alzheimer’s Society Provide information and support. Local services include dementia support, befriending service and activity groups such as Singing for the Brain and Dementia Cafés. National helpline: 0300 222 1122 Website: www.alzheimers.org.uk Online forum: www.alzheimers.org.uk/talkingpoint Local Offices Basildon & Brentwood Telephone: 01268 415914 Castle Point & Rochford
South West Essex (Basildon, Brentwood) Telephone: 01268 204469
Telephone: 01268 415914 Colchester & District
West Essex (Uttlesford, Harlow, Epping) Telephone: 01279 413442
Telephone: 01206 573708 Epping Forest
North East Essex (Tendring and Colchester) Telephone: 01621 854239
Telephone: 01279 427522 Grays
Age UK Colchester Telephone: 01206 368420 Email: enquiries@ageukcolchester.org.uk Website: www.ageuk.org.uk/colchester
Telephone: 01375 413756 Harlow Telephone: 01279 418331
Age Concern Canvey Island Telephone: 01268 515883
Mid Essex
Age Concern Harlow
Southend
Telephone: 01279 415553 Email: ageconcernharlow@btinternet.com
Telephone: 01702 345156
Telephone: 01245 260911
Tendring Age Concern Thurrock
Telephone: 01255 474650
Telephone: 01375 389872 Email: ageconcernthurrock@btconnect.com Website: www.ageconcernthurrock.co.uk
Uttlesford Telephone: 01371 872519
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Community Agents Essex A countywide network of agents and volunteers who support older people and informal carers to find and develop independent living solutions from within their local community. Cover every aspect of caring from benefits advice to the facilitating of respite breaks. Telephone: 08009 775858 Email: enquiries@caessex.org.uk
Carers Trust (Formerly Crossroads and Princess Royal Trust for Carers) National organisation for information and advice to carers. They can point you to local support services. Telephone: 0844 800 4361 Website: www.carers.org Supporting Carers in Essex A group of charities that are working together to support unpaid carers of all ages across Essex. The partnership provides a single contact point for carers anywhere in the county.
DIAL (Disability Information and Helpline) Provides help on any disability issue in Basildon and South Essex. Basildon office: Open Monday to Friday 10am to 4pm Telephone: 01268 285676 Email: enquiries@dialbasildon.co.uk Thurrock office: Open Monday, Tuesday and Thursday 10am to 4pm Telephone: 01375 389874/5 Email: dialgrays@basildon.co.uk Website: www.dialbasildon.co.uk
The services on offer include: Adult carer support in the community; Hospital support in all acute hospitals in Essex; Support for carers of people at end of life (in partnership with Macmillan Cancer Support) and Carers Rapid Response Service - offering respite breaks for carers experiencing exceptional difficulties or waiting to have a carer’s assessment.
Essex Carers Support Provide advice, information, guidance and advocacy for unpaid, informal family carers in Colchester, Tendring, Basildon and Castle Point. Telephone: 01255 474410 Email: admin@essexcarerssupport.org.uk Website: www.essexcarerssupport.org.uk
Led by Action for Family Carers, the partnership brings together: Essex Carers Support; Crossroads Care Tendring & Colchester; Crossroads Care Braintree District & Chelmsford; Crossroads Care East Anglia; Carers Trust Epping Forest, Harlow, Havering & Redbridge - Crossroads Carer Services; Crossroads Care Brentwood & Basildon.
Essex Cares Essex Cares provides services supporting older people to live safely and independently within their homes and local communities. This includes a re-enablement service and also the supply of disability aids and equipment. They also offer one-to-one support and run a number of wellbeing and activity centres. Telephone: 0800 035 9770 Email: info@essexcares.org Website: www.essexcares.org
Telephone: 0300 770 8090 Monday to Friday 9am to 4.30pm Email: info@carersinessex.org.uk Website: www.carersforessex.org.uk Carewatch Essex Carewatch provides social care and support for adults and older people living in their own homes across South East Essex. Services cover Basildon, Castle Point, Rayleigh and Rochford. Telephone: 01702 557007 Email: enquiries@cw-southend.co.uk Website: www.carewatchessex.co.uk 10
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Essex Dementia Care Provide a range of services which are designed to enable people with dementia to maintain the active lifestyle of their choice and to provide respite and emotional support to the main care-givers. This includes one-to-one support for people with dementia, and activity centres in Braintree, Chelmsford and Southend-on-Sea for those with dementia and their carers. Telephone: 01245 363789 Email: info@essexdementiacare.org.uk Website: www.essexdementiacare.org.uk Parkinson’s UK Information and support through a national helpline and local support. National helpline: 0808 800 0303 Website: www.parkinsons.org.uk
Telephone: 01702 546476 Email: info@peacefulplace.co.uk Website: www.peacefulplace.co.uk Podiatry Services Good footcare leads to reduced pain, increased mobility, increased physical activity and reduction in falls. Mid Essex Telephone: 0300 3039956 Email: cecspodiatry@nhs.net Website: www.provide.org.uk/service/podiatryservice/ South East Essex Telephone: 01375 364465 Website: http://www.sept.nhs.uk/ourservices/essex/south-east-essex-communityhealth-services/adults/foot-health/podiatry/
Local Support Groups There are branches of Parkinson’s UK in Billericay, Braintree, Brentwood, Chelmsford, Clacton-on-Sea, Colchester, Harlow, Maldon, Southend, Thurrock and Uttlesford.
Age UK Essex Toenail Cutting Service (Including Home Visits) Telephone: 01245 423 333 Email: toenails@ageukessex.org.uk
For all local enquiries: Telephone: 0844 225 3615 Email: bvso.easternsouth@parkinsons.org.uk
Speech and Language Therapy Assessment and advice concerning swallowing, feeding and communication.
British Red Cross The British Red Cross provides a wide range of services throughout Essex area, including fire and emergency support, home support and mobility aids Telephone: 0844 412 2830 Email: AdminBHE@redcross.org.uk For hand, shoulder and arm massage: Telephone: 01245 291 024 Peaceful Place (for Younger People With Dementia) Supports people with young onset dementia in South Essex. They currently operate a Day Centre in Rochford and a free advocacy service.
South East Essex (run by SEPT) Telephone: 01702 578613 West Essex (run by SEPT) Telephone: 01279 827520 Mid Essex (run by Provide) Telephone: 01621 727259 North East Essex (run by Anglian Community Enterprise) Telephone: 01206 588010 Email: ACECIC.adults@nhs.net
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Day care services Day care services offer a wide range of indoor and outdoor activities including social events for people with dementia. There are a number of day centres in Essex run by a variety of providers, including national organisations such as Care UK and the Alzheimers Society, the local authority and private companies. Crossroads Club at Imperial House, Clacton Takes place every Wednesday and Thursday. A range of activities on offer and can also arrange for people to have assisted showers while attending the club at no extra cost. Telephone: 01255 223988 Essex Cares The centres offer a warm welcome with a wide range of activities to support individuals to maintain wellbeing and to maximise independence enabling increased community involvement. For general Essex Cares enquiries Telephone: 0800 035 9770 Email: info@essexcares.org Website: www.essexcares.org Marylands Wellbeing & Activity Centre, Colchester Telephone: 01206 571862 Crocus Wellbeing & Activity Centre, Takeley Telephone: 01279 871223 The Hub @ Harlow Telephone: 0300 003 1624 Millicents Wellbeing & Activity Centre, Clacton Telephone: 01255 476331 Highfields Wellbeing & Activity Centre, Chelmsford Telephone: 01245 352250
Charles Dickens Court Wellbeing & Activity Centre, Chelmsford Telephone: 01245 444181 Hogarth Wellbeing & Activity Centre, Brentwood Telephone: 01277 230266 Lions Wellbeing & Activity Centre, Brentwood Telephone: 01277 223138 Rohan Court Wellbeing & Activity Centre, South Woodham Ferrers Telephone: 01245 352250 (Mon,Tue,Thur,Fri) St Lukes Wellbeing & Activity Centre, Rochford Telephone: 01702 530938 Tyrells & Tudors Wellbeing & Activity Centre, Thundersley Telephone: 01268 638410 The Harbour Club, Battlesbridge The Harbour Club is a day centre offering specialised activities and support for older adults living with dementia. Open 4 days a week, Monday to Thursday. Led by an HPC registered Occupational Therapist with a high staff to member ratio we deliver a high level of care. All Therapy Staff have completed dementia awareness training and been instructed on the principles of client centred dementia care and the philosophy of occupational therapy. Telephone: 07788 619 452 Email: info@theharbourclub.org.uk Website: www.theharbourclub.org.uk Merefields Day Centre Goldsmiths Partridge Road Harlow Essex CM18 6TD Telephone: 01279 411795
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Maplestead Day Centre Provide personalised and flexible daytime care for people aged 60 years and over. Their team has specialist expertise in supporting people who have Alzheimer's and other types of dementia, as well as individuals with physical disabilities. Dame Mary Walk Colchester Road Halstead Essex CO9 2FF Telephone: 0333 4343 020 Peaceful Place Day Centre For people with young onset dementia, supporting people under the age of 65 with dementia. St Lukes Place Dalys Road Rochford Essex SS4 1RA Telephone: 01702 546476 Email: enquiries@peacefulplace.co.uk Oasis Actvity Centres (provided by Essex Dementia Cares) Offer an active and stimulating environment which can accommodate the special needs of the person with dementia. Carers are very welcome, and find support through meeting and sharing with other carers. They currently operate Centres in Braintree, Southend and Chelmsford. Telephone: 01245 363789 Website: www.essexdementiacare.org.uk Care UK Manor Lodge, Chelmsford Day care and Dementia care available. Telephone: 0333 434 3052
Mountfitchet House, Stansted Day care and Dementia care available. Telephone: 03331 225 567 Barchester Healthcare Ashlar House Day Care Centre, Epping Day care and Dementia care available. Telephone: 01992 570 691 Runwood Homes Brewster Day Centre, Maldon Day care and Dementia care available. Telephone: 01621 843965 Longview Day Centre, Canvey Island Day care and Dementia care available. Telephone: 01268 697615 Warrens Day Centre, Halstead Day care and Dementia care available. Telephone: 01787 476236 Outlook Care Community Hub at Foxburrow Grange, Colchester The home has an all-day cafĂŠ, free wifi and daily newspapers and local residents are all welcome. There are also activity, sensory and therapy rooms, as well as a beauty salon and spa which can be booked by non-residents. Telephone: 01206 586900 Silver Birch Centre (provided by Carers Choices) Activity-led day care centres specialising in Dementia Care. Open from Monday to Thursday and Saturday. The centres are currently based in Benfleet and Basildon. Telephone: 01268 881136 Email: care@carerschoices.org Website: www.carerschoices.org
Maplestead Day Care Centre, Halstead Day care and Dementia care available. Telephone: 0333 4343 020 Dementia handbook for carers: Berkshire West Adapted by Healthwatch Essex 2015
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Southend Borough Council Run several day centres within the borough. Access is available after a social services assessment. Some of the day care centres can be taken on a personal payment basis. Private day care is also available. A list of approved private day care centres is available upon request. Telephone: 01702 215008
Thurrock Council Thurrock Council have 5 day centres in Thurrock for people with dementia and people with mild memory loss. The Day Centres are based in the Chadwell-St-Mary, Grays, South Ockendon and Stanford-le-Hope. There is also a centre in central Grays that provides care for people with memory loss. You need to contact the Council to find out if you qualify for this service. Community Solutions (adult social care) Telephone: 01375 652 868 Email: community.solutions@thurrock.gov.uk
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Wiltshire Farm Foods
Meal delivery services The person you care for may be eligible for Community meals (Meals on Wheels), provided by their local Social Services. The services listed below are businesses that charge for meal delivery.
Frozen meals delivery service. Telephone: 0800 773 773 (24 hour) Website: www.wiltshirefarmfoods.com
Apetito Hot meal delivery service. Telephone: 01225 809753 Email: info@apetito.co.uk Website: www.apetito.co.uk Creative Chefs Hot meal delivery service to people in Clacton, Frinton, Walton, Holland-On-Sea and Tendring. Telephone: 01255 434946 Email: mikeheeley@creativechefs.co.uk Website: www.creativechefs.co.uk Diners Direct Hot meal delivery service to people in Colchester, Wivenhoe, Alresford & Brightlingsea. Telephone: 01206 826681 Website: www.dinnersdirectcolchester.co.uk Herts Meals Ltd Hot meal delivery service to people in Essex. Telephone: 01279 417087 Email: info@hertsmeals.co.uk Website: www.hertsmeals.co.uk OakHouseFoods Frozen meals and grocery delivery service. Telephone: 0845 643 2009 Website: www.oakhousefoods.co.uk Tiptree Meals Hot meal delivery service to people in MidEssex. Telephone (Tiptree): 01621 816963 Telephone (Colchester): 01206 975870 Email: info@tiptree-meals.co.uk Website: www.tiptree-meals.co.uk Dementia handbook for carers: Berkshire West Adapted by Healthwatch Essex 2015
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Other helpful organisations Essex Fire and Rescue Service Free home safety checks, including making an escape plan, advice on action to be taken in the event of a fire and fitting smoke alarms. Telephone: 0300 303 0088 Email: webmaster@essex-fire.gov.uk Website: www.essex-fire.gov.uk Radar National Key Scheme A Radar key opens locked public toilets, for example in shopping centres, parks, bus and train stations. Radar keys can be bought online from Disability Rights UK. Website: crm.disabilityrightsuk.org/radar-nkskey Telecare and alarms Depending on the overall level of support you need, you may be eligible for a pendant alarm or other Telecare equipment following an assessment from your local council. An assessment can be either through Adult Social Care, or through one of the carelines listed below. Essex County Council already works closely with the Careline providers below. If, following an assessment, you're not eligible for any support from your council, or would prefer to pay for Telecare privately, you can still make private arrangements with them. Basildon Telephone: 01268 465151 Email: carelineadmin@basildon.gov.uk Brentwood Telephone: 01277 848975 Email: community.alarms@brentwood.gov.uk Castle Point and Rochford Telephone: 01268 465151 Email: carelineadmin@basildon.gov.uk Central Essex (including Braintree) Telephone: 01376 551600 x 25 Email: meccg.carecall@nhs.net Chelmsford (CHP) Telephone: 01245 613132 Email: darren.wallis@chelmerhp.org.uk
Colchester Telephone: 01206 769779 Email: jayne.harding@colchester.gov.uk Epping and Loughton Telephone: 020 8532 1065 Email: dpegler@eppingforestdc.gov.uk Harlow Telephone: 01279 446361 Email: careline@harlow.gov.uk Tendring Telephone: 01255 222727 Email: careline@tendringdc.gov.uk Uttlesford Telephone: 01799 510496 Email: fsimmonds@uttlesford.gov.uk The Silver Line The Silver Line is a free and confidential helpline which provides information, friendship and advice to older people. Open 24 hours throughout the year. Telephone: 0800 470 8090 Website: www.thesilverline.org.uk Counselling Directory Connecting you with professional support – online directory listing professional counsellors and psychotherapists. Website: www.counselling-directory.org.uk Specsavers Healthcall Specsavers Healthcall provides eyecare services at home to those who cannot visit a high street optician unaccompanied due to physical or mental disability. Telephone: 0800 198 1132 Website: www.specsavers.co.uk/home-eye-tests Visioncall Visioncall provides home eyecare to those unable to attend a high street optician unaccompanied due to physical or mental disability. Telephone: 0845 050 1831 Website: www.vision-call.co.uk
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Action on Hearing Loss Products include listening devices, telephones, amplifiers, hearing loops and text phones. The information line offers advice on a range of subjects such as hearing loss, deafness and tinnitus. Helpline: 0808 808 0123 For Products: 03330 144525 Website: www.actiononhearingloss.org.uk SCie Dementia Gateway – online training Free web-based module training on various aspects of dementia care. Website: www.scie.org.uk/publications/dementia/index. asp
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Transport Community transport schemes
Epping Forest Community Transport Telephone: 01992 565115
Community Transport schemes in Essex (and Thurrock) offer a wide range of transport services, such as social car, dial-a-ride, group travel and more. These schemes help people with restricted mobility, who are rurally isolated or not easily able to access conventional public transport.
Harlow Community Transport Telephone: 01279 446871 Email: communitytransport@harlow.gov.uk
Basildon Community Transport Services Telephone: 01268 465858 Website: http://www.basildon.gov.uk/article/427/Basil don-Community-Transport Braintree District Community Transport Telephone: 01376 557883 Website: http://www.braintree.gov.uk/info/200300/co mmunity_transport Brentwood Community Transport Telephone: 01277 228080 Website: www.brentwoodct.co.uk Castle Point and Rochford Wyvern Community Transport Telephone: 01268 754936 Website: www.wyverncommunitytransport.org.uk Chelmsford Community Transport Telephone: 01245 477750 Colchester CCVS Telephone: 01206 216600 Website: http://www.ccvs.org/what-wedo/transport-shopmobility/transportscheme/
Harwich Harwich Connexions Telephone: 01255 552010 Website: http://www.harwichconnexions.co.uk/cms/co mmunity-transport Maldon District Community Transport Telephone: 01621 843164 Tendring Community Transport Telephone: 01255 436962 Website: www.dial-a-ride.org Uttlesford Uttlesford Community Travel Telephone: 01371 875787 Email: info@uttlesfordcommunitytravel.org Website: www.uttlesfordcommunitytravel.org Other Community Transport schemes may exist in your local borough/district, for further information contact Essex County Council on 0845 603 7631 or email community.transport@essex.gov.uk Other Dial-a-ride schemes Dengie DaRT – serving Dengie and Maldon areas. FREE to users with bus passes. Telephone: 01621 874410 (Book in advance).
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Blue Badge parking scheme Parking Scheme for people with disabilities. Can be used in your own car or in taxis. Apply by contacting your Social Services. Essex County Council Telephone: 0845 603 7630 Southend Council Telephone: 01702 215003 Thurrock Council Telephone: 01375 366 381 Email: blue.badges@thurrock.gov.uk
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Activities Local activities Listed below are some popular local activities. New groups are set up regularly so do contact the organisation’s local branch to discuss what activities are available.
Exercise and social activities Age UK Essex Organise regular social events and outings for active older people, including talks, day trips, holidays, walks, tea dances and much more. There are also a wide variety of special interest groups. Some activities are more physically demanding than others. To find out what activities are suitable call or check their website. Telephone: 01245 346 106 Email: info@ageukessex.org.uk
Alzheimer’s Society activities Activities include Dementia Cafés, Bowling, Gardening projects, Singing for the Brain, Reminiscence and Walking. Contact your local Society office or see their web page. Website: www.alzheimers.org.uk Local Offices Basildon & Brentwood Telephone: 01268 415914 Castle Point & Rochford Telephone: 01268 415914 Colchester & District Telephone: 01206 573708 Epping Forest Telephone: 01279 42752
Website: www.ageuk.org.uk/essex/activities-events/clubs-and-groups
Grays Telephone: 01375 413756
Dementia Adventure Walk and Talk Together Park Walks Chelmsford The walks are free to attend and individuals should come with a carer or someone who knows them well. The walks are suitable for people of all abilities and take place on wheelchair friendly paths. Book in advance. Hylands Park, Fridays at 10.30am Telephone: 01245 237548 Email: Corinne@dementiaadventure.co.uk
Harlow Telephone: 01279 418331 Mid Essex Telephone: 01245 260911 Southend Telephone: 01702 345156 Tendring Telephone: 01255 474650 Uttlesford Telephone: 01371 872519
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Reminiscence activities
Dementia research
Museums in Essex The Essex Reminiscence Network Museums are full of objects, sounds and smells that can help trigger memories and many museums also have boxes carers can borrow free of charge to use in their own homes Contact: Sarah Girling, Heritage Education Officer, Essex Record Office Telephone: 01245 244679 Email: sarah.girling@essex.gov.uk Essex Libraries For carers Whether you want to relax, learn something new or if you need some information, Essex Libraries has a range of services to support you and those you care for. For instance, if you can’t get to the library, volunteers can bring books, audio books and DVDs to you and the person you are caring for, selected with your interests in mind. Just ask staff in your local library about the Home Library Service.
“Join dementia research” The National Institute for Health Research (NIHR) in partnership with Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society have developed 'Join dementia research', a new service which allows people to register their interest in participating in dementia research and be matched to suitable studies. The service delivers new opportunities for people to play their part in beating dementia; connecting researchers with people who want to participate in studies. Telephone: Alzheimer Scotland: 0808 808 3 000 Alzheimer's Research UK: 0300 111 5 111 Alzheimer's Society: 0300 222 1122 Email: comms.jdr@nihr.ac.uk Website: www.joindementiaresearch.nihr.ac.uk
Telephone: 0845 603 7628 Chelmsford Library Sensory Wall Chelmsford Library's sensory wall supports children and adults with specific needs, such as learning disabilities, sensory impairment and dementia. The wall features an activity panel, a sound-activated infinity tunnel, an LED light panel that reacts to touch and noise, animal sounds, mirrors and an interactive video floor. There are regular open public sessions when different aspects of the wall will be available. Contact: libraries.feedback@essex.gov.uk.
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National activity support Active Minds Provide activity products to help people with dementia and Alzheimer’s disease enjoy life. Telephone: 020 3488 2001 Email: info@active-minds.co.uk Website: www.active-minds.co.uk Age Exchange Activities and resources for older people based on reminiscences. Telephone: 020 8318 9105 Email: administrator@age-exchange.org.uk Website: www.age-exchange.org.uk
Forget Me Not Book Forget Me Not Book is an online memory book aimed at those people trying to find a way to improve the lives of the people they care about by collecting and sharing memories through photo’s and stories. Telephone: 01225 891778 Email: support@forgetmenotbook.com Website: www.forgetmenotbook.com
Robert Opie Collection Provides activities for reminiscence, based on a collection of British advertising imagery and nostalgia. Website: www.robertopiecollection.com Telephone: 0800 018 8844
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Specialist holiday providers The following companies specialise in holidays for people with dementia and their carers. Other companies may also be able to help with holiday plans if you tell them about your requirements. British Legion Provide holiday breaks for ex-service personnel and their carers and families at special holiday centres. You need to apply and they will assess your needs before offering a holiday. Telephone: 0808 802 8080 Website: www.britishlegion.org.uk/can-wehelp/care-and-support/breaks Buchanhaven Holidays Holidays in the Orkney Islands catered for the individual needs of people with dementia and their partner/carer. Telephone: 01856 874093 or 07759 330892 Email: mbuchan77@btinternet.com Website: www.buchanhavenholidaysorkney.co.uk Revitalise A national charity providing short breaks and holidays for people with dementia and physical disabilities, and their carers. Telephone: 0303 303 0145 Website: www.revitalise.org.uk Dementia Adventure Provide breaks for people with dementia and their carers. Telephone: 01245 237548 Email: info@dementiaadventure.co.uk Website: www.dementiaadventure.co.uk The Mede, Topsham, Devon The Mede is more than just a holiday home it offers day care facilities to benefit both the carer and the person with dementia. Telephone: 07718 976072 or 01392 421189 Email: sallie.rutledge@yahoo.co.uk Website: www.themede.org
Amy’s Holidays, Ireby, Cumbria A beautiful holiday home complete with disabled facilities is available to hire with, or without, care. With fully qualified staff available to attend the property to help with any care needed and day care already offered within the village Amy’s can facilitate a holiday for all the family. Telephone: 01697 371087 Website: www.amys-care.co.uk Godshill Farm Park House, Isle of Wight B&B and self-catering accommodation on Isle of Wight suitable for people living with dementia and their carers. Telephone: 01983 840781 Email: info@godshillparkfarm.uk.com Website: www.godshillparkfarm.net Mendip House, Somerset Bed and breakfast accommodation in an Area of Outstanding Natural Beauty close to the West Mendip Way. Welcomes families living with early stage dementia and memory loss. Host Jen holds a Nationally Accredited Qualification in Dementia Care. Telephone: 01934 842865 Email: info@mendiphousesomerset.co.uk Website: www.mendiphousesomerset.co.uk DisabilityHolidaysGuide.com Online resource designed to give disabled holidaymakers and carers choice and flexibility in finding and arranging holidays and activities. Website: www.disabilityholidaysguide.com Free Spirit Travel Insurance Specialist travel insurance for people with medical conditions and no age limits. Telephone: 0845 230 5000 or 02392 419 080 Email: contact@freespirittravelinsurance.com Website: www.freespirittravelinsurance.com
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National organisations Advice and support organisations
Parkinson’s UK Provide information and support through a national helpline and local support.
Age UK Information, advice and local services for people over 50. There are a number of local Age UK services across Essex.
National helpline: 0808 800 0303 Website: www.parkinsons.org.uk Frontotemporal support group For carers of people with Frontotemporal dementia. The group meets several times a year.
National helpline: 0800 169 6565 Website: www.ageuk.org.uk
Email: frontotemp@aol.com Alzheimer’s Society Information and support for people with all forms of dementia, their carers, family and friends. Also provide local services including dementia support, befriending service and activity groups.
Website: www.ftdsg.org
National helpline: 0300 222 1122 Website: www.alzheimers.org.uk
Telephone: 0131 473 2385 Website: http://lewybody.org
Carers UK Campaigning organisation that provides advice and support for a range of issues affecting carers, including legal and money matters.
Posterier Cortical Atrophy (PCA) support group Website provides information and support to people with PCA, and their families.
Helpline: 0808 808 7777 Email: advice@carersuk.org Website: www.carersuk.org
Website: www.ucl.ac.uk/drc/pcasupport
Lewy Body Society Fund research into Dementia with Lewy Bodies (DLB). Their website provides information about the condition.
Young Dementia UK National charity that helps people whose lives are affected by young onset dementia.
Dementia UK – Admiral Nursing Direct Admiral Nurses are specialist dementia nurses who support families affected by dementia.
Telephone: 01993 776295 Email: mail@youngdementiauk.org Website: www.youngdementiauk.org
Admiral Nurse Direct helpline: 0845 257 9406 Email: direct@dementiauk.org Website: www.dementiauk.org
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Dementiaweb 24 hour Dementia Helpline run by the Guideposts Trust. The helpline is designed to assist individuals and organisations caring for people with dementia. Telephone: 0845 120 4048 Email: info@dementiaweb.org.uk Website: www.dementiaweb.org.uk n
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Forces help British Legion Practical care, advice and support to the armed forces. They have a number of care homes and a visiting service. Telephone: 0808 802 8080 Website: www.britishlegion.org.uk Royal Air Force Association Welfare support to the RAF Family which includes RAF veterans and their relatives. Telephone: 0800 0182 361 Website: www.rafa.org.uk Soldiers’andSailors’FamiliesAssociation (SSAFA) Practical support and assistance to servicemen and women, veterans, and their families. Telephone: 0845 241 7141 Website: www.ssafa.org.uk Forcesline Forcesline is a free and confidential telephone helpline and email service that provides support for both current and ex-service men and women from the Armed Forces and for their families. Telephone: 0800 731 4880
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Financial support Department for Work and Pensions (DWP)
Advice lines CareAware UK – Elderly Care Funding Advice Provide free information and advice, specialising in care funding advice for older people.
Pension Service General enquiries about state pension eligibility, claims and payments. For help in making a claim Telephone: 0800 731 7898
Telephone: 0161 707 1107 Email: enquiries@careaware.co.uk Website: www.careaware.co.uk
For a change of address, bank details etc. Telephone: 0345 606 0265 Website: www.gov.uk/contact-pension-service
Carers UK Free advice and support for legal and money matters.
Disability Benefits Centre Advice and information about current claims.
Helpline: 0808 808 7777 Email: info@carersuk.org Website: www.carersuk.org
Disability Living Allowance (DLA) If you were born on or before 8 April 1948 Telephone: 0345 605 6055 If you were born after 8 April 1948 Telephone: 0345 712 3456 Website: www.gov.uk/disability-benefits-helpline
Firststop Free advice to older people, their family and carers on housing, finance and all aspects of care. Telephone: 0800 377 7070 Email: info@firststopadvice.org.uk Website: www.firststopcareadvice.org.uk
Attendance Allowance (AA) Provides help to people aged over 65 who have disabilities. Telephone: 0345 605 6055
Independent Age Free advice and information on social care, benefits, care options and funding issues associated with longer term care. They also provide a befriending scheme.
Personal Independence Payment (PIP) Provides help with the cost of long-term illhealth or disability for people aged 16–64. Telephone: 0345 850 3322
Telephone: 0800 319 6789 Email: advice@independentage.org Website: www.independentage.org
Carer’s Allowance Information on Carer’s Allowance and how to make a claim. Telephone: 0345 608 4321 Email: cau.customer-services@dwp.gsi.gov.uk Website: www.gov.uk/carers-allowance-unit
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Society of Later Life Advisers (SOLLA) SOLLA aim to assist consumers and their families in finding trusted accredited financial advisers who understand financial needs in later life. Telephone: 0845 303 2909 Email: admin@societyoflaterlifeadvisers.co.uk Website: http://societyoflaterlifeadvisers.co.uk
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Assistive technology AlzProducts Provide products that have been selected to help people living with dementia. Telephone: 024 7642 2224
Nottingham Rehab Supplies Provide a range of mobility products, disability aids and equipment. They also offer a product advisory service.
Website: www.alzproducts.co.uk
Telephone: 0845 121 8111 Email: customerservice@nrs-uk.co.uk Website: www.nrs-uk.co.uk
Aster Living Personal alarms and sensors for safety.
Pivotell Reminders and medication dispensers.
Telephone: 0333 400 8299 Email: info@asterliving.co.uk Website: www.asterliving.co.uk
Telephone: 01799 550979 Email: office@pivotell.co.uk
AT Dementia Assistive technology designed for people with dementia and their carers.
Website: www.pivotell.co.uk Tunstall Telecare products and services.
Telephone: 0115 74 8 4220
Telephone: 01977 661234
Email: info@trentdsdc.org.uk Website: www.atdementia.org.uk
Email: enquiries@tunstall.com Website: www.tunstall.co.uk
The Keysafe Company Police approved keysafes. Telephone: 01905 770333 Email: sales@keysafe.co.uk Website: https://keysafe.co.uk
Living made easy Practical advice on daily living equipment. Helpline: 0300 999 0004 Website: www.livingmadeeasy.org.uk
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Care quality and safety Advice lines Action on Elder Abuse Information, advice and support to people who have experienced or witnessedabuse. Telephone: 0808 808 8141 Website: www.elderabuse.org.uk
Care Choices Offer information and advice about arranging care and support services. Produce countywide care directories that include details of home care, residential and nursing care homes. These directories can be downloaded from their website or ordered by telephone. Telephone: 0800 389 2077 Website: www.carechoices.co.uk Care Quality Commission Check whether the services you receive (e.g. hospitals, care homes, GPs, dentists and services in your home) meet national standards. You can read their inspection reports or report a concern.
The National Care Line Information about care and support for older people, their carers and families. Telephone: 0800 069 9784 Email: office@thenationalcareline.org Website: www.thenationalcareline.org Samaritans National and local confidential telephoneservice. Telephone: 08457 90 90 90 Email: jo@samaritans.org Website: www.samaritans.org Citizens Advice Bureau Free, independent and confidential advice to help people to resolve problems. Website: www.citizensadvice.org.uk See local contact details under “Local support services” on page 5 of this booklet.
If you need to report a concern: Telephone: 03000 616161 Email: enquiries@cqc.org.uk Website: www.cqc.org.uk
Safeguarding Adults – AskSAL You can call this number for anything from straightforward information and advice about the abuse and the safety of the more vulnerable adults in Essex; to the disclosure of a specific concern about your own safety of somebody that you know. Telephone: 08452 66 66 63
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NHS and Social Services complaints and feedback Local Clinical Commissioning Group (CCG) Basildon and Brentwood CCG Telephone: 01268 594586 Castle Point and Rochford CCG Telephone: 0800 917 4694 NHS Mid Essex CCG Telephone: 01245 398750 North East Essex CCG Telephone: 01206 286 500 West Essex CCG Telephone: 01992 566122/3 Freephone: 0800 7833396 NHS Complaints Advocacy Service – SEAP Support and advice in case of NHS complaints. Telephone: 0300 34 35 736 Email: info@seap.org.uk Website: www.seap.org.uk
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Patient Advice and Liaison Service (PALS) Advice and support to patients, families and carers to resolve problems and concerns about NHS services. Mid Essex Hospital Services NHS Trust: Telephone: 01245 514130 Colchester Hospital University NHS Foundation Trust: Telephone: 0800 783 7328 The Princess Alexandra Hospital NHS Trust: Telephone: 01279 827211 Basildon and Thurrock University Hospitals NHS Foundation Trust: Telephone: 01268 394440 Southend University Hospital NHS Foundation Trust: Telephone: 01702 385333
Social Services Feedback Essex Telephone: 01245 434109 Email: complaintsofficer.socialcare@essex.gov.uk
Website: www.essex.gov.uk/Pages/Adultsocial-care.aspx Southend Telephone: 01702 215008 Email: c o u n c il @ s o u t h e n d . g o v . u k
Website: www.southend.gov.uk/info/20 0442/complaints_by_subject/ 450/adult_social_care Thurrock Telephone: 01375 652 643 Email: ascfeedback@thurrock.gov. uk
East of England Ambulance NHS Trust Telephone: 0800 028 3382
Website: www.thurrock.gov.uk/com plaints-procedure/socialcare-complaints
Healthwatch Support, advice or help to raise an issue or complaint about health services.
Healthwatch Essex Information Service Telephone: 0300 500 1895
Essex Telephone: 0300 500 1895 Website: www.healthwatchessex.org.uk Southend Telephone: 01702 356066 Website: www.healthwatchsouthend.co.uk Thurrock Telephone: 01375 389883 Website: www.healthwatchthurrock.org
Essex Advocacy If you notice a serious change in a person’s health which you believe is not being treated properly by ward staff. Telephone: 0300 34 35 736 Email: info@essexadvocacy.org.uk Website: www.essexadvocacy.org.uk
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Emergency and urgent care service Emergency services If you need the ambulance service, fire service or police assistance in an emergency call “999”. Urgent medical care If you need medical help fast but it’s not an emergency, call “111”. Healthwatch Essex.A company limited by guarantee and registered in England No.8360699. Registered office as above. Registered charity in England and Wales (1158356)
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Contact us To find out m ore about us, get in touch.
www.healthwatchessex.org.uk @HWEssex enquiries@healthwatchessex.org.uk 01376572829 RCCE House,ThreshelfordsBusinessPark, Inworth Road,Feering,EssexCO59SE
Berkshire Healthcare NHS Foundation Trust Fitzwilliam House Skimped Hill Lane Bracknell RG12 1BQ Telephone: 0118 960 5027 www.berkshirehealthcare.nhs.uk Š Berkshire Healthcare NHS Foundation Trust 2014 All rights reserved. 2015 Healthwatch Essex. A company limited by guarantee and registered in England No.8360699. Registered office as above.