Podcast Launched to Combat Loneliness in Dementia Patients

Dementia Australia has unveiled a pioneering podcast, the frst of its kind in the country, designed to address the profound loneliness and social isolation often experienced by those living with dementia. Created by individuals living with dementia, the podcast is co-hosted by Jim Rogers, who has younger onset dementia, and journalist Hamish Macdonald, whose father is living with dementia with Lewy bodies and Parkinson’s disease. Over the course of seven episodes, Jim and Hamish delve into various aspects of life with dementia, engaging with others living with the condition, caregivers, and health experts. They explore topics ranging from the initial diagnosis and managing symptoms like sleep disturbances and hallucinations, to traveling, staying active, and maintaining relationships. The stories shared in the podcast are unfinchingly honest—sometimes raw, occasionally heartbreaking, but also heartwarming.

“I felt very lonely after my dementia diagnosis. It’s a pretty scary place to be,” Mr. Rogers shared. “Hearing others’ experiences in a positive light through a podcast like this would have been invaluable to me when I was frst diagnosed.”

New survey results released by Dementia Australia underscore the need for such a podcast. The fndings reveal that one-third of respondents believe people tend to avoid or exclude loved ones with dementia, while nearly half perceive that social connections diminish post-diagnosis.

“As a journalist, I’ve met many individuals living with dementia, but it hit home a few years ago when my dad was diagnosed,” Mr. Macdonald said. “The stories shared in this podcast are powerful; they break down barriers that prevent people from seeking help and combat the social isolation that often accompanies a dementia diagnosis. The courage of those who have opened up about their deeply personal experiences to assist others is truly inspiring.”

Joining Jim and Hamish on the podcast are several individuals living with various forms of dementia, including Heather Cooper, Catherine Daskalakis, Pam Eade, Juanita Hughes, Ann Pietsch, Anthony Pollock, and Kevyn Morris. Dom O’Leary, who cared for her father with dementia, also contributes, alongside experts like Professor Nola Ries from the University of

Technology Sydney, Associate Professor Stephanie Rainey-Smith, a neuroscientist from Murdoch University, and Kristin, an Advisor from the National Dementia Helpline.

Dementia Australia CEO, Professor Tanya Buchanan, commented, “In Hold the Moment, listeners will experience the podcasters’ challenges and victories as they navigate the profound changes that come with a dementia diagnosis. This podcast is a powerful testament to living well despite the daunting realities of dementia.”

“I want to extend my heartfelt thanks to everyone who contributed to the podcast and to the Australian Government for its support. Their willingness to share their stories and expertise will undoubtedly help others.”

“I’m also thrilled to welcome Hamish Macdonald as an Ambassador for Dementia Australia. His commitment to raising awareness about dementia and supporting our organization has been extraordinary.”

You can listen to Hold the Moment on your preferred podcast platform.