Urgent Action Needed: Community is Both the Challenge and Solution for People with Dementia

IAN ROGERS

Dementia Australia has issued a call for urgent action as new research released during Dementia Action Week reveals that the ongoing lack of understanding of dementia among Australians continues to fuel stigma and discrimination. The report, titled “‘People in the Community’ are the Challenge and the Solution: Towards a Dementia-Friendly Future,” highlights that while community support can be transformative, it is also the primary source of challenges faced by those living with dementia.

Key fndings from the 2024 research show:

• 71% of people with a loved one living with dementia reported their loved one was patronized by others.

• 76% felt their family member or friend with dementia was treated as though they were not intelligent.

• Two in three identifed people in the community as the most frequent source of discrimination.

• One in three reported that people avoided or excluded their loved one with dementia. Additionally, other surveys by Dementia Australia show persistent misconceptions, with one in three Australians still believing that dementia is a normal part of aging—a belief that has grown slightly over the past decade. Alarmingly, 68% of respondents in both 2012 and 2024 indicated they know very little about dementia.

Bobby Redman, Chair of the Dementia Australia Advisory

Committee and an individual living with dementia, expressed her frustration over the lack of progress in understanding and awareness. “It’s almost unbelievable that we still have to talk about this. Why do people treat us differently? What have we done to deserve this? All we are asking for is to be understood, respected, and supported—basic human rights,” Ms. Redman said.

She emphasized the need for communities to recognize dementia as a disability, despite its invisibility, and to provide the necessary support to reduce social isolation. “If councils, businesses, and organizations acknowledged this, we could feel less isolated and more included,” she added.

While some communities are making efforts to combat discrimination and foster inclusion, Ms. Redman stressed that much more must be done to create dementia-friendly environments across the country.

Professor Tanya Buchanan, CEO of Dementia Australia, noted that the research confrms “people in the community” are the primary source of discrimination toward those living with dementia. “The stigma surrounding a dementia diagnosis can discourage people from seeking healthcare, including early diagnosis, and it often leads to reduced social engagement, which in turn negatively affects the physical, cognitive, and emotional well-being of the individual.”

Professor Buchanan called for collective action, urging local, state, territory, and federal governments, as well as community groups, to raise awareness and understanding of dementia and take steps to make communities more inclusive.

The report serves as a stark reminder that greater education, understanding, and community-driven initiatives are essential to reducing the stigma and discrimination faced by those living with dementia.

“It is incredibly disappointing that Australians’ understanding of dementia has not shifted in a decade and profoundly concerning that more people now think dementia is a normal part of ageing than they did a decade ago. Dementia is not a normal part of ageing.

“We know that we can do better as there are great examples of dementia-friendly communities from around the country.

“And that’s why this Dementia Action Week (16-22 September) Dementia Australia is calling for urgent and sustained action by communities and governments at all levels to increase their awareness and understanding of dementia – and to become the solution.”

Head to dementia.org. au/DementiaActionWeek to fnd out how you can join us to create a future where all people impacted by dementia are supported and welcomed in their communities, no matter where they live.