3 minute read
by Marco Luffarelli
“SIMO…alla meta 2022”: Memorial Simone Luffarelli - 8th Edition
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Italy
This year we organized the eighth edition of "SIMO . . . alla meta", a charity event in memory of Simone Luffarelli, who died in 2006 at the age of 21 from a brain tumor .
Since 2015, with our friend Valerio Rahim, we have been organizing this day of celebration with our Primordial Chaos Sports Association .
Since the first edition we have been donating an average of € 1,000 .00 per year to the IRENE Onlus Association, the Regina Elena Hospital Association, which supports brain tumor patients and their families .
After the "Home Edition" online during the full pandemic in 2020 and the "Workout Edition" in 2021 to keep a safe distance, once again this year due to some organizational challenges with local officials we had to replace the usual SIMO…alla meta” race in the Esquilino district in Rome with a workout in the beautiful Piazza Vittorio Emanuele II .
As usual, we didn't give up and we reshaped the day, remembering my brother was too important to be able to skip a year .
With the support of the Municipality I of Rome (an area encompassing the centre of the city) and our sports promotion body (ENDAS) we were able to organize yet another day of celebration in honor of Simone .
In my usual speech, I wanted to reiterate my thanks to those present because they give us the strength to go on and give us an excellent reason to remember Simone with a smile .
Furthermore, I wanted to remind everyone that life is too short to spend it in solitude with the sole desire to excel in any field, when instead it should be necessary to share the joy of life with as many people as possible, especially with those who do not have the same luck as ours . n
Marco Luffarelli, right (President of Asd Chaos Primordiale) and Valerio Rahim (Vice-President and coach), left
Below: The 8th Edition of “SIMO…alla meta 2022” was well supported by family and friends of Simone Luffarelli, in his memory
Investors in research. Advocates for families.
We’re with pediatric brain tumor patients, survivors, and their loved ones along every step of their journey.
This artwork was donated by an artist who is the wife of a patient. The chameleon is a symbol of the multiforme nature of glioblastoma that changes and becomes resistant to drugs and is different for each person. The flower is a symbol of hope.
Glioblastoma.IT ODV
Glioblastoma.IT ODV is aimed at patients and caregivers with an eye on the panorama of international research and the goal of being of help in the short and medium term by providing updated information on specialized centers for the treatment of glioblastoma and putting in contact patients and caregivers with high-profile professionals. The funds we raise are intended to maintain our services and support patients who wish to try second line therapies through trials but also in the absence of trials or while waiting for the clinical trials begin.
If you are a patient or a caregiver visit our websites www.glioblastoma.it www.glioblastomamultiforme.it call us (+39 3351272678) or email us info@glioblastomamultiforme.it
