Does dementia affect someone you love?
I was 45 when my mom, Evelyn, first showed signs of dementia…she was only 68. Because my siblings live far away, I am my mom’s primary caregiver. Finding a way to balance taking care of her and my life has been near
impossible. I found myself at a
crossroads – I needed space from my mom to concentrate on work and get a break. Her care and supervision is a demanding 24/7 job! But, my mom also needed a full life with social engagement. It’s not easy to find solutions, and there are
limited care options for those with dementia.
I finally found an amazing enrichment day center for those with dementia at the Institute on Aging. It’s been an incredible
help
since I get a break and can focus at work. And my mom does better when she attends; she’s more social and aware. It’s been a huge
relief! I am excited they have found a new
space because their building is closing. The new location in the Presidio is beautiful and peaceful - perfect for my mom.
I felt totally
alone. But I realized I wasn’t when I saw the numbers.
#1
1:05
65
seconds is how long it takes for another person in the U.S. to be diagnosed with dementia.
caregivers are family and friends. Caregivers experience physical, emotional and financial stress.
80
percent of those with dementia live at home.
1in2
36%
people age 85+ in the Bay Area has dementia.
increase in those diagnosed with dementia by 2020 in San Francisco.
They are
staggering.
152,164 18.4
The average annual cost for formal and informal care for a person with dementia in San Francisco is
$
billion hours of care, valued at $232 billion, are provided by family and other unpaid caregivers. These caregivers experience physical, emotional and financial stress.
Projected number of people 65 and older in the U.S. with Alzheimer’s Dementia Millions of people with Dementia
13.8 11.6
8.4
5.8 4.7
2010
2020
2030
2040
2050
HOW WE ARE HELPING: ENRICHMENT DAY PROGRAM Dementia is an extremely isolating disease, not only for the person with dementia, but their loved ones as well. Balancing everyday life and the care for a loved one is taxing on a caregiver, additionally the social isolation that lends itself to dementia is extremely detrimental to those suffering from cognitive challenges. For 15 years, we have been giving families who are impacted by this disease some relief. Our Enrichment Day Program allows adults with various stages of dementia to remain active and engaged within a caring community while providing caregivers with much needed respite. For the past 17 years, California Pacific Medical Center, California Campus, has been home to the IOA Enrichment Day Program. With the closure of CPMC California Campus, IOA needed to find a new location by the summer of 2019.
home care / caregiver respite
Currently, our program provides a safe, compassionate place for aging adults to spend a few days each week outside the home. The program also makes it possible for a family caregiver to continue their daily routine, including maintaining a career and balancing care with personal time. We are there to help both senior and caregiver, and bring greater opportunities for socializing and happiness while aging in place. Our staff specializes in supporting those with physical and cognitive challenges, while providing their supportive family members with respite opportunities. Our program offers: n
n n n
n
n
Door-to-door transportation to and from our center Daily group exercise Mental and intellectual stimulation Activities that encourage artistic expression and creativity, including art and music Intergenerational activities with children and young adults of all ages Support groups for caregivers and family members
intergenerational activities
We offer a venue to not onl
family support
art therapy
community outings
cognitive and phyiscal stimulation
ly connect with others but with their own sense of self.
THE FUTURE: PRESIDIO LOCATION After two years of searching IOA has found the perfect fit for the new location in the revered Presidio. The Presidio and the Presidio Trust have a longstanding history in San Francisco as does Institute on Aging. Whether it be through an incredible and welcoming park in the epicenter of a busy city or programs to provide places for elders, both organizations want a space for “inspiration, education, health, and enjoyment of all people.” These organizations want to partner to build a new space for the Enrichment Day Center. After all, the Institute is attempting to do the same as the Trust, “Saving and Sharing an American Landmark,” for what are our elders if not landmarks of our culture and society. The Trust provides the perfect space for our Enrichment Day clients to thrive; the beauty and open spaces the Presidio delivers the perfect fit, including:
n
n n n n n
Meets required footprint and allows us to serve over 300 families Beautiful open spaces providing outdoor exploration Within two miles of current location Bus and parking access Least disruptive transition for clients Family friendly location
Last, but certainly not least a program such as this, contributes to the diversity of San Francisco. Many families with young children and seniors are being pushed out of San Francisco due to housing costs. It is imperative for a society to have many generations and intergenerational interactions to build a strong culture. Carving out a space for seniors in the diversity of San Francisco only helps everyone.
HOW YOU CAN HELP We ask you to help us create a lasting legacy of dementia care for those in San Francisco. Your gift will make the new Enrichment Day Center a reality. By helping to fund the move, renovation and furniture, your support will allow us to serve double the number of clients with our unique dementia care services. We have raised $1.5 million to date towards our $2.4 million goal! Your gift creates a lasting legacy, interlacing your family name with the betterment of the lives of those impacted by dementia.
PRESIDIO ENRICHMENT CENTER Renovation Furniture
Total
$2,350,000 $120,000
$2,470,000
Thank you for your consideration. Questions? Please contact: Tom Briody at tbriody@ioaging.org/415-750-4100
The Leadership of The Institute on Aging
J. Thomas Briody, MHSc President and CEO I am the third generation of family serving the needs of older adults. My grandmother recognized that there were many older people in her community that had no one to care for them and opened a “home for the aged”. My career has been dedicated to helping people to age in a healthier way. I am now experiencing this world in a much more personal way. My parents are 88 years old with early signs of dementia. While I should be “expert” in this arena, when you add the emotional aspects of it being your loved one, experience isn’t enough.
Roxana R. Blades, MBA Chief Financial and Administrative Officer My mother Rosa was diagnosed with Alzheimer’s in 2003 and passed away in October. During the 14-year span, my mother slowly deteriorated: reverted to her native language, lost her ability to walk, feed herself, etc. She also lost her ability to recognize her husband, daughters, grandchildren, and other loved ones. This experience has made our family stronger and we now talk about what we would want if diagnosed. Thank you to my mother for always showing us the path and how to face challenges.
Aaron McPherson, DPT, MBA Vice President of Integrated Care Services
Jacqueline Murray , MBA Vice President of Marketing and Communications
I have dedicated my career, at first clinically, and now administratively to serving older adults with dementia and other neurological disorders. I have continued to find that work is most fulfilling when I am able to connect with individuals with different stages of dementia at their level and provide care with dignity. It means so much to watch these individuals continue to live meaningful lives and to support their families through the aging process.
My stepfather passed away from dementia, at the end he couldn’t recognize me and always thought I was his sister. It was a long and difficult road for all of us: him, my mother, and myself. Living in Hawaii, we had no services or aid, and had no idea what the best next steps were – and my mom is a nurse! We felt lost at sea. We muddled through and ultimately moved him to California for better care. I would have given anything to have someone guide us through it
Janice Vorfeld Chief Operating Officer I’ve been a hospice volunteer for years and have supported patients with Alzheimer’s disease. But none of that prepared me for being in the trenches with my family. When my Dad was diagnosed with cancer, I jumped in to help. But I quickly realized that his caregiver, my step mom, was suffering from dementia, and Dad had been hiding it from us. By the time he died, she needed full time care. His only ask of us was that we make sure she was taken care of. My brother and I did all we could but it’s so hard to navigate this disease.
Patrick Arbore, EdD Director & Founder, Friendship Line A population of people <60 who were mostly invisible in the 1980’s were people who experienced HIV Associated Dementia. I still recall with shock and horror the added grief when friends, who had already been diagnosed with HIV, were also experiencing memory loss. Not only were their bodies ravaged, but their minds were under attack as well. I remain alarmed about the number of older people who are diagnosed with cognitive impairment. We must never forget all people who are suffering and may suffer the loss of their memories because of dementia and those who care for them.
Dustin Harper, MBA Vice President of Strategic Partnerships It wasn’t until my experience at IOA that I had any real understanding of dementia. Of course, I knew about memory loss, but I had no previous insight into the debilitating behaviors and personality changes that can occur. The psychologist who trained me used to compare the brain of someone with dementia to a scratched CD – sometimes they get stuck and when they do it is really hard to watch or listen to, but if you can help get them unstuck, they still have plenty of songs to play.
Ashley Hill Senior Director, Home Care and Support Services In high school I volunteered at Skilled Nursing Facilities, where I developed a compassion for the aging population, specifically those diagnosed with dementia, seeing first-hand the challenges of the disease process. It was then I knew my calling was in Geriatrics, as I felt a large responsibility to advocate for those who are unable to advocate for themselves. Much of my career has focused on educating both families and caregivers about dementia, and highlighting opportunities for meaningful engagement.
The Institute on Aging Institute on Aging is a 40-year young non-profit organization dedicated to preserving the dignity, independence, and well-being of aging adults and people living with disabilities. The Institute believes the future should be something to look forward to, at every age, and brings together pioneering experts, seasoned champions and hands-on caregivers to make growing older better for elders and their families. Specializing in providing programs and services for aging adults, the Institute is a nationally recognized thought leader and sought after by the New York Times, Washington Post, San Francisco Chronicle, and others for its insight and expertise in the aging space.
As the leading advocate for older adults and those who care for them, we offer a broad spectrum of services and support to help aging adults maintain their independence.
In addition to providing home care and case management services, we operate San Franciscoâ&#x20AC;&#x2122;s Elder Abuse Prevention Program; The Friendship Line, a free 24-hour suicide prevention warm line for seniors; enrichment centers for adults experiencing Alzheimerâ&#x20AC;&#x2122;s and dementia; behavioral health, the Program of All-Inclusive Care for the Elderly (PACE), which provides medical care, and rehab; and CONNECT, a free community referral service for all things elder.
Alongside traditional care models, the Institute has developed innovative and revolutionary care management models that transform the lives of aging adults while saving the Medicaid system millions of dollars. Offering over 20 different programs, four new major initiatives have been launched over the last five years that included geographic expansion from the Bay Area into Southern California. These expansions have created immediate enhanced quality of life for many aging adults, and the Institute has increased the number of lives it touches from 8,000 to 20,000 over 10 years. Its ability to build self-sustaining, life transforming, and community enhancing models position the Institute as the best suited to launch an all-encompassing dementia center.
We’re answering your call on aging. As the leading advocate for older adults and those who care for them, we offer a broad spectrum of services and support to help seniors maintain their independence as long as it is safe to do so. In addition to providing home care and case management services, we operate San Francisco’s Elder Abuse Prevention Program; The Friendship Line, a free 24-hour suicide prevention “warm” line for seniors; adult day care centers for adults experiencing Alzheimer’s and dementia; the Program of All-Inclusive Care for the Elderly (PACE), which provides medical care, physical therapy and enrichment activities for older adults; and CONNECT, a free community referral service for all things elder. Call Institute on Aging Connect: 415.750.4111
San Francisco 3575 Geary Boulevard San Francisco, CA 94118 415.750.4111 Marin 930 Tamalpais Avenue San Rafael, CA 94901 415.750.4111 Peninsula 881 Fremont Avenue, Suite A2 Los Altos, CA 94024 650.424.1411 San Mateo County 1660 South Amphlett Boulevard, Suite 219 San Mateo, CA 94402 650.424.1411 Santa Clara County 2033 Gateway Place, 5th Floor, Suite 500 San Jose, CA 95110 408.474.0685 San Bernardino/Riverside County 3200 E Guasti Road, Suite 100 Ontario, CA 91761 909.599.2323
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