THE 3rd ANNUAL ALS ONE SNOW BALL SPONSOR & EVENT PROGRAM

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3RD ANNUAL ALS ONE

SNOW BALL Supporting research & care for ALS

EVENT PROGRAM & SPONSOR GUIDE December 8th 2017 | 7:30pm The Jones River Trading, Kingston MA


GRATITUDE. We are so grateful to everyone who has helped make this event a huge success. Whether you have purchased tickets, sponsored, participated in our fundraising activities this evening, volunteered your time, or all of the above, we just couldn't have done this without you. That goes the same for all the support we've received this year. We are so grateful to all who support our efforts. Whether you've registered for the ALS ONE license plate, golfed, ran, swam, painted, trucked, frighted, dined, participated in any of our other events, or have been there as a valuable resource and supporter in any way...we are so thankful. This night is a celebration of a tremendous year and we hope you enjoy the eventing. We are so glad you're here.

ABOUT ALS ONE The ALS ONE team has identified the strongest therapeutic opportunities in ALS and are working together to expedite progress with the goal of finding breakthrough treatments or a cure for ALS by 2020, through the sharing of ideas and division of responsibility to advance research projects. A percentage of funds raised is directed to support improved care for people living with ALS. The ALS ONE scientific plan is milestone-driven and will require significant funding to advance. We raise funds through grassroots fundraising at events just like the ALS ONE SNOW BALL, major gifts, donor-advised funds, business partnerships, corporate sponsorships, and non-profit alliances. Your help is critical to the success of this unprecedented plan.

Dr. Merit Cudkowicz Chief of Neurology, Massachusetts General Hospital (MGH)

Dr. Robert Brown Chair of Neurology, UMass Medical Center & Medical School

Dr. Steven Perrin Chief Science Officer, ALS Therapy Development Institute (ALS TDI)

Dr. Nazem Atassi Associate Director, Neurological Clinical Research Institute, MGH

Dr. James Berry Co-Director, MGH Neuromuscular Division & MGH ALS Unit

Ron Hoffman Founder & Exec. Director, Compassionate Care ALS (CCALS)

WE ARE SO GRATEFUL FOR YOUR SUPPORT


Run of Show Our emcee for the evening: Jim Fagan ALS ONE SNOW BALL Hosts: Jen & Bob DiMartino ALS ONE Chairman of the Board: Matt Hogan ALS ONE Keynote Speaker: Zack Kennedy DJ: Mike Shaw - MPS Entertainment Raffles/Silent Auction: Open at 7:30 & Close @ 9:50

winners will be written and displayed on board at 10:15 The Faces of ALS Gallery & Video displayed in the lounge Holiday Sangria - compliments of Plymouth Bay Winery Photo Booth open 7:30-11:00 Complimentary Gifts: located at the giving tree Cash Bar: Beer & Wine located just beyond the stage Cash Bar: Full bar: Beer, wine & spirits located on side right ALS ONE Holiday Shop: located next to the main bar Lounge: located to the rear of the stage Passed Hors d'oeuvres: Asparagus wraps Grilled turkey sliders on cornbread with cranberry Sea Scallops wrapped in applewood bacon Coconut shrimp tempura Assorted artisan pizzas Braised short ribs with corn confit

8:00 Opening Remarks: Jim Fagan 8:30 Welcome: Jen DiMartino 8:35: A word from our Chairman: Matt Hogan Research Remarks: Zack Kennedy

UMass Medical Laboratory of Dr. Robert Brown Video: The story of ALS ONE Live Auction: Jim Fagan Music & Dancing: DJ Mike Shaw Desserts & Coffee Bread Pudding & Chocolate Mousse Coffee & Tea

Program ends - please drive safely


$15,000 PREMIERE SPONSOR

The Braun Family Proudly supporting ALS ONE

Wishing you a beautiful holiday season and a new year of peace and happiness.

from our family to yours! Michael, Monica, McCauley, & Micaela


$5,000 PLATINUM SPONSORS

Anthony Ferrara 350 West St, East Bridgewater, MA 02333

Proudly supporting the fight against ALS In Loving Memory of Janice Ferrara.


$5,000 PLATINUM SPONSORS


$5,000 PLATINUM SPONSORS

Tom & Patrice Shields

Congratulates

Jake, Joey & Scott Gosnell on receiving the

Boston Celtics Heroes Among Us Award

and proudly supports ALS ONE in the fight against ALS.


$5,000 PLATINUM SPONSORS

SOLAR, INC.

Noah Jones, Owner 34 Main St Ext #203, Plymouth, MA 02360 800-570-7166 Utility - Commercial | Development EPC | Asset Management

Voted #1 in Massachusetts - 2016 Ranked #50 Nationwide - 2017 Solar Power World Proudly supporting the ALS ONE SNOW BALL every year until a cure!


$5,000 PLATINUM SPONSORS

Proud supporters in the fight against ALS. In memory of our Founder, Kevin Gosnell.


$5,000 PLATINUM SPONSORS

Kevin Knippenberg, Owner We are a full service excavation company offering a variety of services but not limited to. Site development, Drainage, Retaining walls, & landscape construction. Duxbury, MA

PROUDLY SUPPORTING ALS ONE IN THE FIGHT AGAINST ALS

and wishing everyone a happy holiday season


$5,000 PLATINUM SPONSORS

38 Crafts St, Newton, MA 02458 | (888) 498-8356

Always Ready to Serve! ARS Restoration Specialists will respond to your Connecticut, Rhode Island, New Hampshire, or Massachusetts mold, flood, fire, smoke, or water damage emergency immediately. Our 20+ teams of nationally trained and certified emergency restoration specialists have been providing expert mold, flood, fire, smoke, or water damage clean-up, repair, removal, remediation, and restoration services 24/7 for over 30 years.

Proud supporters in the fight against ALS


$2,500 GOLD SPONSORS

David & Daniela Bridgwater & Family PROUD SUPPORTERS OF ALS ONE UNTIL A CURE

and wishing everyone a joyous holiday season and very happy new year!

Jed & Cortney Stevenson Proudly supporting ALS ONE and remembering all those who have lost their battle.


$2,500 GOLD SPONSORS

Tom O'Connor T. G. O'Connor Contracting 1098 Turnpike St., Stoughton MA tom@tgocc.com

In Loving Memory of

Thomas W. O'Connor Never Forgotten


$1,000 SILVERÂ SPONSORS Bob DiMartino

Realtor

617.922.8701 bobdimartino@comcast.net Boston through Cape Cod

Proudly supporting ALS ONE

Cindi & Darrell Ford 781.421.1111 We clean gutters so you don't have to. Wishing everyone a very happy holiday season!

Remembering our dear friend, Kevin Gosnell, and proudly supporting ALS ONE. Sending wishes to all for a very happy holiday! "Time is the most precious commodity in the world." Our exclusive pendant by

COLBY DAVIS OF BOSTON is available at colbydavisboston.com all proceeds go directly to ALS ONE.


$1,000 SILVERÂ SPONSORS

Proud supporters of ALS ONE

Happy Holidays to all! Katie Cronin's PNHS Senior Project Get a smile - give a smile for ALS ONE

Don't forget to shop with ALS ONE at the holidays and every day! Every bit adds up!


$500 EVERGREEN SPONSORS Maria & Joe Ray & Family Proudly supporting the fight against ALS Happy holidays to all!

Proudly supporting ALS ONE

TEAM KELSTER

Mark & Danielle Lembo

In Loving Memory of Linda Luna Duffy from her family

THE BACK HALL BENCH A donation and retail boutique where all proceeds go directly to ALS ONE.

30 CORPORATE DR., UNIT 200, PEMBROKE MA

When you choose to give

A Little Something™ to ALS ONE on a monthly basis, no matter how big or small, your donation is taken out of your bank account on the date you choose and will make a tremendous impact on our mission. Learn more at

ALSONE.ORG


$250Â CRIMSON SPONSORS Frank & Eve Perfetuo

Karen & Paul Kozlowski

Walter Hickey

Shiela & Phil Littlefield

Cedar Point Landscaping

Allyson & Patrick Spellman

Rob & Gina Tammaro

Johnna Barry Bridge Property

Audrey & Michael Loria

Rockland Fed. Credit Union

Brian Shifrin SHIFRIN LAW

Kelli & Dennis Crowley

ERA Belsito Real Estate

Neal & Jenny Splaine

Filter Sales & Service

Todd & Chris Gorell

Rob Hazel & Family

John & Christine Fagan

Robert Simms


GIFTS GENEROUSLY DONATED BY

Bob Samson

Ornaments

COMPLIMENTARY SANGRIA

EMCEE SERVICES KINDLY DONATED BY

JIM FAGAN PHOTOGRAPHY SERVICES DONATED BY

BILL BRETT

DIANE HALLETT

POINSETTIAS GENEROUSLY DONATED BY

KEVIN TOBIN


EVERY 90 SECONDS Every 90 Minutes someone is diagnosed with ALS and someone else passes away from it. Here are just some of the many FACES OF ALS™ who are battling or have lost their battle to that horrific disease. The print and video gallery will be on display at the ALS ONE SNOW BALL.

ALS ONE is a 501c3 non-profit organization [tax id: 47-4984263] 8 Industrial Way, Whitman MA 02382 | www.alsone.org


Remembering our Founder In May of 2015, Kevin Gosnell, a 47-year old husband, father of three and successful business owner, was diagnosed with ALS. After realizing that there was no cure and nothing that the doctors could do treat his devastating illness, he made a brave decision: to dig deeper, ask questions, and use the resources, team building skills and relationships he had cultivated as a business owner to create a new organization. ONE committed to bringing the best ALS doctors, researchers, and care practitioners from leading institutions together with one vision and goal. ONE organization committed to working together as a team to expedite the path to finding a cure for the disease from which he was dying. Kevin knew that the organization he founded would not save him, but he forged forward to provide hope for all those suffering, and to change the course of history for future generations. Kevin sadly lost his battle with ALS in August of 2016, just 15 months after his diagnosis. His legacy and vision continue through the work of ALS ONE. And this work will continue until his mission is realized and ALS ONE becomes ALS DONE.

Scan here to watch the video of how ALS ONE began:.


Our Thanks Dear friends, The ALS ONE SNOW BALL is always such an incredibly heartwarming night and there are so many volunteers to thank. for helping to ensure it's success. I'm beyond grateful to the ALS ONE SNOW BALL committee members, who have worked tirelessly to make the SNOW BALL possible. These folks have helped me over the past few months and I don't know what I'd do without them: Bob DiMartino, Deb Rabidou, Bonnie & Bob Samson, Kate Soltesz, Maria Ray, Rob Sheehan, & Kevin Tobin. We also thank Barrett's Restaurant Group and Plymouth Bay Catering for being so incredibly generous, Patrice Shields & Jim Fagan for their guidance and support! In addition, I am extremely grateful for the all-star volunteer team who spent the night of the 8th working to help make everything perfect: Dan & Jill Abbett, Kathy & Erin Carpenter, Molly Duggan, Maddi Giovanucci, Nick Graziano, Julia & Kristen Gruseck, Sarah Heffernan, Anna Horgan, Emily Mosca, Carolyn & Lilly Parker, Danielle Ray, Kylie Steidle, Julia & Julie Ann Stratton, Anniek Van Aarem. We couldn't have done this without you! I'm looking forward to another amazing year, one closer to a cure for ALS! Wishing everyone a warm and peaceful holiday and looking forward to seeing you all soon! All my best,

Jen Jen DiMartino Executive Director ALS ONE 8 Industrial Way Whitman MA 02382 jen@alsone.org

ALS ONE is a 501c3 non-profit organization. EIN# 474984263


Holiday Shop

Available at the SNOW BALL and online at www.alsone.org


Event Photos!

View over 400 event pictures by clicking this page!

Photo Credit: Diane Hallett - lead photographer, as well as other guest photos. Photo Booth Photos: Clear Choice Photo Booth. Special Guest photographer: Bill Brett


A treatment or cure for ALS by 2020. Improved care now for those battling ALS.

Thank you for helping to make a big difference! Wishing you and yours a very happy holiday and all the best in the new year!

ALSONE.ORG

ALS ONE is a 501c3 non-profit organization [tax id: 47-4984263] 8 Industrial Way, Whitman MA 02382 | www.alsone.org


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