Kidney Living Fall 2017 by The Kidney Foundation

Living

KIDNEY Fall 2017 Volume 10 â&#x20AC;¢ Number 2

www.kidney.ca/ontario

A PUBLICATION OF THE ONTARIO BRANCH

THE DIABETES KIDNEY DISEASE CONNECTION

contents

FALL 2017

THE FOUNDATION OF KIDNEY CARE/FUNDRAISING 3 Editor’s Message: An Important Link 12 Kidney Walk 2017 21 Community Highlights 24 Calendar of Events LIFESTYLE/FOOD & NUTRITION 3 Easy as ABC 4 Take Control 5 Hearty Chicken Soup (Recipe) 6 Eating Guidelines for Diabetes and Chronic Kidney Disease 7 Put Your Best Foot Forward

PERSONAL STORY 8 Amazing Kidney Kids Destiny, Teagan, Ian, Cortlynn and Zack 11 A Full Life Catherine Bell 14 Diabetes: Related Complications Led to Kidney Failure Debra Beaupre 15 From Diabetes to Kidney Failure Daljit Juneja 16 Exercise Helps Set New Path Jay Moon SERVICES AND SUPPORT 18 Connecting with a Community of Support 19 Get the Facts

MEDICAL RESEARCH 20 Meet Researcher Richard E. Gilbert, MD PhD Cover image:iStock.com

Canadian Publications Mail Agreement #40011479 Return Undeliverable Canadian Addresses to Trish Reynolds, Communications Manager, Circulation Department, 1599 Hurontario St., Suite 201, Mississauga, ON L5G 4S1; email: communications@kidney.on.ca. Phone: 1-800-387-4474.

©2017 Kidney Living, the contents of which is subject to copyright, is published twice a year. Reproduction in whole or in part, in written, electronic or any other format, without prior written permission, is strictly prohibited. For more information, contact Trish Reynolds, Editor at treynolds@kidney.on.ca or 1-800-387-4474 Ext. 4981.

The appearance of advertising in Kidney Living does not imply an endorsement by The Kidney Foundation of Canada, nor guarantee the quality, effectiveness of any products or services.

Editing, design and printing by GEPM Group Inc. www.gepmgroup.com

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LIFESTYLE

An Important Link Be aware of the connection between diabetes and kidney disease

ccording to the Ontario Renal Network, 40 percent of all new cases of kidney failure are due to diabetes, making it the most common cause of end-stage kidney failure in Canada. Management of both diabetes and kidney disease is complex and for many patients, they may also face other healthcare complications including visual impairments and neuropathy. Diabetes is a condition that is caused by the lack of insulin in the body or the body’s inability to properly use normal amounts of insulin. High blood glucose levels can damage the tiny blood vessels in the kidney, which can alter the kidneys’ ability to filter blood. This in turn can lead to the overflow of a protein called albumin in the blood stream and then eventually in urine. Almost 10 percent of Ontarians have diabetes, putting them at higher risk for end stage kidney disease. As I comb through this issue, it strikes me that three out of the four people we featured had diabetes, but were unaware of increased risk for kidney failure. Clearly, more public awareness is needed. We invite you to use this issue of Kidney Living to share the important message of kidney health with your personal network. Use it to start a conversation about kidney health, to create a better understanding of what kidney disease is, who it affects and how it is managed. If you or someone you love has diabetes, ask your physician to screen you annually for kidney disease. Trish Reynolds, Editor Communications Manager The Kidney Foundation of Canada, Ontario Branch

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Easy as ABC Five Tips to Healthy Living with Kidney Disease and Diabetes

by Monica Bagga, BScPharm, PharmD, CDE A. AVOID

Avoid certain medications and stay hydrated when you are sick or have an infection. Some medications that are important for treating your diabetes and kidney disease can be harmful if you are dehydrated or unable to eat. Always ask your pharmacist. B. BLOOD VESSELS

Regular health checks with a physician will help ensure that you are up to date on preventative measures for your overall vasculature health. These include things such as optimizing blood pressure, cholesterol, glucose and other factors to keep your overall body healthy. Ask your doctor. C. CONTROL SMOKING

It’s hard, but try to stop smoking. Nicotine can accelerate the vasculature damage to our small blood vessels like kidneys, eyes and the nerves that supply the feet. D. DIET

Eat a healthy, balanced nutritional diet. Try to incorporate a lot of coloured vegetables and fruits and always make sure your diet is appropriate to your kidney function. Ask your dietitian. E. EXERCISE

Stay active to maintain a healthy weight and manage stress. Exercise is not only good for your body, but also great for stress reduction. It doesn’t have to be complicated. Go out for a walk, bike ride or even try yoga. 

Monica Bagga is a Certified Diabetes Educator and Doctor of Pharmacy working at the Windsor Regional Hospital as a Clinical Pharmacist specializing in Diabetes. www.kidney.ca/ontario

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FOOD AND NUTRITION

Take Control

Eating Well with Diabetes and Chronic Kidney Disease

by Laura Bjorklund MSc. RD, CDE, Sault Area Hospital

iabetes is one of the leading causes of chronic kidney disease in Canada. There are many individuals working to balance both conditions in order to prevent diabetes and kidney disease-related complications such as nerve problems, eye diseases and heart disease. Eating well can help stabilize blood sugar and keep you healthy while you manage chronic kidney disease. Diet recommendations for those with diabetes and chronic disease are quite individual, taking into account many factors including your age, other disease conditions, current laboratory results, weight history and personal goals. A registered dietitian can advise you on the best nutrition recommendations for you as an individual. The following are some general tips to keep you healthy until you can meet with a dietitian: Regular eating

• Try to eat three meals per day. If you are not able to eat full meals, try four to six small meals per day • Avoid skipping meals and try to keep meals four to six hours apart. If meals are more than six hours apart, have a small snack • Try to eat your first meal within one to two hours of waking Balanced meals • Include three to four food groups at each meal • Include protein foods (meat and alternatives) at each meal • Include a moderate amount of carbohydrate food (grains, starches, fruit, dairy etc.) with each meal. Be mindful of serving sizes Limit foods high in salt or sodium • Cook meals from scratch and use fresh ingredients • Avoid packaged and highly processed meals • Eat at home more often than at restaurants • Use herbs and spices to flavour food without adding salt • Avoid salt substitutes that contain potassium chloride Avoid foods high in added sugars • Avoid high-sugar items such as regular pop, fruit juices and drinks, syrups, jam, honey, cakes, candy and pastries • Low/no calorie sugar substitutes may be used instead of sugar Adapted from: Chronic Kidney Disease Nutrition Fact Sheet: Diabetes & Diet. Cancer Care Ontario. 

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FOOD FOOD AND AND NUTRITION NUTRITION

Hearty Chicken Soup Portions: 8 Serving size: 1½ cups Ingredients 1 pound boneless, skinless chicken breasts, uncooked 1½ cups onion 1½ cups celery 1 tablespoon olive oil 1 cup fresh carrots 1 cup fresh green beans 3 tablespoons all-purpose white flour 1 teaspoon dried oregano 2 teaspoons dried basil ¼ teaspoon nutmeg 1 teaspoon thyme 32 ounces low-sodium chicken broth ½ cup 1% low fat milk or rice milk 2 cups frozen green peas ¼ teaspoon black pepper Preparation 1. Cut chicken into bite-size pieces. Dice onion and celery. Peel and slice carrots. Cut green beans into 2-inch pieces. 2. In a large skillet over medium heat, lightly brown chicken for 5 to 6 minutes. Remove from heat. 3. In a separate skillet, heat olive oil over medium heat and sauté onion and celery for 5 minutes. 4. Add chicken pieces, carrots, green beans, flour, oregano, basil, nutmeg and thyme. Mix well and cook for 3 minutes. 5. Transfer ingredients to a 4-quart pan. Add broth and milk; bring to a boil. 6. Stir peas into soup and cook for 5 minutes. 7. Add pepper to taste before serving.

Adapted from: www.davita.com Photo credit: GPancorvo

Information and tools to help you manage your renal diet.

KIDNEYCOMMUNITYKITCHEN.CA www.kidney.ca/ontario

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FOOD AND NUTRITION

Eating Guidelines for Diabetes and Chronic Kidney Disease Frequently asked questions StoryBlocks.com

Q My diabetes diet says to choose whole grains more often, but my kidney diet tells me to eat white bread - which one should I follow?

A Choose white bread in the amounts recommended in your diabetes diet or ask your dietitian if some whole grain products can be included in your diet. Whole grains are higher in potassium and phosphorus. Research shows that it is the total amount of carbohydrates that matters most in controlling blood glucose. Q I was taught to treat low blood sugar with orange juice, but now I’m not allowed to drink that anymore. What should I do if my sugar gets too low?

and check your sugar again. If it’s still low, treat again. If your next meal is more than an hour away, or you are going to be physically active, eat a snack with a carbohydrate and a protein source. Good examples are toast and peanut butter, or half a sandwich. Q I have such a different diet than the rest of my family. How can I expect them to eat like this?

A Actually, many of the dietary changes you need to make are also healthy changes for your family. Things like avoiding salt and simple sugars, and choosing smaller portions of meat and protein (unless you are on dialysis), are all healthy choices that can benefit everyone.

A Any type of juice is effective in treating a low blood sugar. Cranberry or apple juice will work exactly the same way orange juice does. Orange juice has more potassium than other juices and is not recommended if you tend to have higher blood potassium levels. If you are on a fluid restriction, the best way to treat a low blood sugar is with candies or glucose tablets so you don’t add any extra fluids.

Q Should I continue to choose more legumes as directed by my diabetes diet?

Q How do I treat an episode of low blood sugar?

Q I have several other medical conditions and I don’t know how to make everything fit together what can I do?

A If you find yourself sweating, shaking or feeling particularly hungry, your blood sugar may be too low. If you have any of these symptoms, check your blood sugar right away. If it’s low (<4 mmol/L), eat 15 g of fast-acting carbohydrate, such as glucose tablets, 1 tbsp honey or ¾ cup apple juice, right away. Wait 10 to 15 minutes

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A Legumes are high in phosphorus and potassium and should be avoided unless your dietitian tells you how to safely include them in your diet. If you are vegetarian, you should see a registered dietitian as soon as possible to make sure you are meeting all of your nutritional needs.

Ask your doctor for a referral to a registered dietitian. The dietitian will work with you to create an individualized eating plan that takes all your medical conditions into account. Source: Eating guidelines for diabetes and chronic kidney disease, Kidney Foundation Fact Sheet 

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LIFESTYLE

Put Your Best Foot Forward Foot care tips for those living with diabetes

by Jason Liu, Chiropodist in the Centre for Diabetes and Endricronology, St. Michael’s Hospital, Toronto

When to see a doctor • If you have any swelling, warmth, redness or pain in your legs or feet, see your doctor or foot specialist. • If you have thick or hard skin on your toes or on the bottom of your feet), ingrown toenails, warts or slivers, have them treated by your doctor or a foot care specialist (such as a podiatrist, chiropodist or experienced foot care nurse). Do not try to treat them yourself. • Ask your doctor to examine your feet on an annual basis.

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ver time, diabetes can damage the nerves and cause poor blood flow especially in the hands and feet. Diabetes Canada warns that people living with diabetes are less likely to feel a foot injury, such as a blister or cut. Left unnoticed and untreated, even small foot injuries can quickly become infected, potentially leading to serious complications. 1. Cut your toenails straight across rather than down the sides of the nails. It is safer to leave nail and callus care for a chiropodist. 2. Wash your feet every day, even between the toes, and dry gently and thoroughly before putting on socks and shoes. 3. Apply moisturizing cream to the feet to keep the skin soft and prevent fissures (cracks in the skin), but do not apply the cream between the toes as it will make the skin too moist and prone to infections. 4. Examine your feet daily for cuts or scratches, wounds, swelling and inflammation. If you are unable to check yourself, you can use a mirror or get someone to check for you. 5. Wear white socks so you will know if you have a cut on your foot. 6. Avoid burning your feet by checking the bath water temperature with your elbow, and avoid putting your feet close to any heat sources. 7. Check your footwear regularly to ensure there is nothing inside the shoe that could aggravate your feet, and that your shoes are the correct size. 

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PERSONAL STORY

Amazing Kidney Kids A Q&A with some cool kids who are affected by kidney disease

Destiny

How are you involved with The Kidney Foundation? I walk each year to raise money to help other kids like me. How old were you when you and your family found out about your kidney disease? I was two years old when we found out I had polycystic kidney disease. What do you tell your friends when they ask you about your kidney disease? We don’t really talk about it, except me and my one friend because we both have kidney issues. Why do you think other people should learn about kidney disease? People need to learn about kidney disease so that they can help their friends and family in their communities. It is important that people know there is support and that they understand that “kidney disease” can mean many different things.

Destiny and Destinee

From Destiny’s Parents Destiny makes us proud more often than we could possibly express, especially in the past couple of years when Destiny has taken a very active role in the annual Kidney Walk. We are very proud that she is using her voice to educate and support people who are affected by kidney disease while also encouraging her peers to become involved in raising awareness.

Teagan

Teagan and her parents

Ian and his mom

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How are you involved with The Kidney Foundation? My mom is a board member for The Kidney Foundation of Canada and I often come along with her to meetings. My mom and I also raise money every year through my school for the Kidney Walk and we’ve walked for the past four years. How old were you when you and your family found out about your kidney disease? I was born very prematurely at only 24 weeks and lost oxygen when I was delivered. This caused my kidneys to have a kind of stroke because blood wasn’t flowing through them properly. By the time I was only three month old, I was already in late stage CKD. What do you tell your friends when they ask you about your kidney disease? I show them my scar and tell them that I now have a new kidney that was given to me by an amazing donor who came forward and got tested. So I have three kidneys! I also tell them how much better I feel. Why do you think other people should learn about kidney disease? Kidney disease can strike a person in many ways, it’s not just something that happens when you are older or when you don’t eat right. Kidney www.kidney.ca/ontario

PERSONAL STORY

disease can take over your life too. Before I had my transplant, I felt so yucky I didn’t want to eat anything. I was tube fed for most of my life. When I had to start dialysis, I was taken out of school because I had to be in hospital so much and I couldn’t be exposed to germs. Today, thanks to my donor and transplant, I feel much better, but I still have a lot of medicine to take and doctor visits to make sure I am doing okay. There is still no cure for kidney disease but I hope that there will be one in my lifetime! From Teagan’s parents Our family owes so much to the work that The Kidney Foundation of Canada does for families like us. They educated us with things like how to maintain a proper diet for Teagan’s disease, what to expect when she started dialysis, what options we had and what a transplant would be like. Most of all, we are encouraged by the research that The Foundation is involved in and we try to help in any way we can to bring hope to those suffering with this disease. Just the other day, Teagan sat for her routine bloodwork all by herself. She did not cry and did not need to be kept still. She was a very brave young lady. We couldn’t be prouder with how she handles herself and her disease with such bravery and optimism for a better day.

Ian

How are you involved with The Kidney Foundation? I participate in the Kidney walk every year. I raise money for them because I like helping people. How old were you when you and your family found out about your kidney disease? I don’t have kidney disease but my auntie and my mom both do. I was so little that I don’t ever remember my auntie not having kidney problems. Almost seven years ago she got a transplant. Now she doesn’t have to go to dialysis. I was nine when my mom started dialysis but I remember www.kidney.ca/ontario

her being very sick before that. What do you tell your friends when they ask you about your mom’s kidney disease? My friends just ask my mom questions about her catheter. Sometimes I help explain to them why she has to have a catheter in her chest. Why do you think other people should learn about kidney disease? So they can help by donating also. From Ian’s mom The Kidney Foundation is there for us when we really truly need them. Once, before I started dialysis I was too sick to get out of the house to get some necessary blood work done. The Kidney Foundation was there and helped pay for a nurse to come out to my house to get the blood drawn. I am always proud of Ian. He is always willing to help. He even wants to come sit at dialysis with me and is disappointed that he isn’t allowed. Since getting sick, simple things like climbing the stairs to do laundry has become impossible. I really don’t know what I would do without him and his amazing support. He is always there for me, and understands when I’m having a rough day. He gives me all the hugs and kisses a mom could ask for. I am super lucky and blessed to have such an understanding young man for a son.

Cortlynn

How are you involved with The Kidney Foundation? I am part of it because my dad needs a kidney transplant. I go to the office for books to share with my friends about kidneys (she is referring to the Life of Brian book). We have a fundraiser for my dad too “No Kidneying Around.” How old were you when you and your family found out about your kidney disease? I was born into this life of kidney stuff with Daddy. What do you tell your friends when they ask you about your kidney disease? He needs a new kidney. His kidney

Ontario Branch 1599 Hurontario St., Ste. 201 Mississauga, ON L5G 4S1 1-800-387-4474 905-278-3003 kidney@kidney.on.ca African-Caribbean Kidney Association 1-800-387-4474 Ext. 4140 acka@kidney.on.ca Brampton 1-800-387-4474 ext.4120 Brant County 1-800-387-4474 ext. 4130 Central Ontario 1-800-387-4474/905-278-3003 dpiotrowski@kidney.on.ca Chinese Renal Association 1-800-387-4474 Ext. 4977 shukyu.fong@kidney.on.ca Eastern Ontario 613-724-9953/1-800-724-9953 slaniel@kidney.on.ca Hamilton & District 1-800-387-4474 Ext. 4969 jbertoia@kidney.on.ca Kingston 613-542-2121 slaniel@kidney.on.ca London & District 519-850-5362 rramzanali@kidney.on.ca Niagara & District 1-800-387-4474 Ext. 4969 jbertoia@kidney.on.ca North Bay 1-800-387-4474 Ext. 4110 Northern Superior 807-624-2680 mharms@kidney.on.ca Sarnia-Lambton 519-344-3462 ehayter@kidney.on.ca Sault Ste. Marie 705-949-0400 tmcmillan@kidney.on.ca Timmins-Porcupine 705-235-3233 tpkidney@ntl.sympatico.ca Waterloo – Wellington & District 1-800-387-4474 Ext. 4862 eturney@kidney.on.ca Windsor & District 519-977-9211 emuscat@kidney.on.ca

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PERSONAL STORY

does not work. Why do you think other people should learn about kidney disease? Cause then they can tell other people and can see if they are a match for Daddy and he can get a new kidney and then he won’t be sick anymore. From Cortlynn’s parents It is reassuring to know we have support through the transitions whether it be diet, direction to the right support staff or funding for various items. These seem so basic but can become so overwhelming at times. Help in direction through the process and simply knowing we are not alone in the process; we haven’t been and will not ever be. Cortlynn has painted pictures the last two years as a contribution to raise money. She made a shopping list of supplies, spent time painting and having us write the titles of each painting and a story of why she painted it for each one. She priced them and sold them at our event. It was so touching; her initiative and love is so big. One even sold in a live auction for $130!

Zack

How are you involved with The Kidney Foundation? I volunteer at the Kidney Walk every year and have been attending walks since I was little. My mom has kidney disease and she volunteers too. How old were you when you and your family found out about your kidney disease? I don’t remember because my mom has always had kidney trouble. I think I’ve always had an awareness. What do you tell your friends when they ask you about your kidney disease? My mom has kidney disease. If they ask, I tell them that she has kidney failure. That means they don’t work anymore so she had to get a new one. That is why she couldn’t do as much as she used to. She was pretty sick and tired all the time and it sucked. But then she got a new kidney a year ago and she is doing better. We can do more things

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Making Every Kilometre Count, One Step at a Time!

Cortlynn and her dad

together, walk longer distances and get outside. Why do you think other people should learn about kidney disease? I’m not sure. They should eat healthy and exercise. From Zack’s parents A lot of my family volunteer for Kidney Foundation activities. We like to help raise funds and awareness. It’s like giving back. 

hank you to the many participants, volunteers and donors for your support of the 2017 Kidney Walk. (See some of the photos on pages 12-13.) We are thrilled to announce that through your generous spirit over $750,000 was raised to provide hope and support to the tens of thousands of Canadians living with kidney disease. Walks were held in 37 communities across the province over four weekends in September and October. Patients, caregivers, family, friends and health professionals united to fundraise and come together as a community to raise awareness and funds to support research and programs that help ease the burden of kidney disease. Thank you to national sponsor Otsuka Canada Pharmaceutical Inc., provincial media sponsor YESTV, T-shirt supplier Entripy Custom Clothing and the many local and regional sponsors who supported the event through sponsorships and gifts in kind. We would like to recognize the outstanding efforts of our Kidney Walk Champions—those individuals who raised over $1,000. A list of Champions is posted on the Ontario Walks page. 

Zack, deep sea fishing www.kidney.ca/ontario

PERSONAL STORY

A Full Life

In 1973, Catherine Bell was just starting her life.

by Natalie Richard

q Catherine and

Gerald Bell (right) joined by Ontario Branch President, Greg Robbins and his wife, Chris at A Time to Shine

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n her early 20s, Catherine Bell felt as if nothing could hold her back, until a repeated kidney infection led to a diagnosis of glomerulonephritis. After realizing her kidneys were going into failure, Catherine’s doctors sent her to St. Michael’s Hospital in Toronto to begin dialysis. There, while crying in her hospital room, Catherine met Dr. Goldstein for the first time. “I remember being there, just crying and crying,” says Catherine, “And all of a sudden this big booming voice said, ‘Why are you crying?’ I cried some more and said, ‘My life is over!’ And this man I’d never met before said, ‘What for? You are so lucky! If this was any other organ failing you would be dead. If this was 10 years ago we wouldn’t be able to do anything, but today we can. Just think about how lucky you are!’” The stranger Catherine met at St. Michael’s was Dr. Marc Goldstein. Throughout Catherine’s treatments, Dr. Goldstein emphasized keeping a positive attitude and above all, highlighted the importance of being an empowered patient. Three months after starting dialysis, Catherine, inspired by Dr. Goldstein’s positive attitude, decided, in spite of the rigours of her dialysis schedule, to get engaged. She was married in 1974 and six weeks after her wedding Catherine received the call for a transplant.

Even during the lead up to the transplant, Catherine recalls Dr. Goldstein’s insistence that she had to take care of herself first. “‘You need to take care of yourself and you need to know what your body is telling you,’ that’s what I remember him saying. He was asking me about my creatinine levels and what my blood pressure was.” Everything seemed to be going well, except Catherine felt there was something missing. As a young newlywed, Catherine had her heart set on starting a family. In 1977, no one at St. Michael’s had attempted a birth post-transplant. In spite of this, Catherine approached Dr. Goldstein to see if they could make it work. While there were a lot of things that could go wrong during a pregnancy post-transplant, Dr. Goldstein and the nephrology team worked with Catherine and her husband every step of the way. “He was amazing to me, all the time,” Catherine recalls, “The night my water broke and I went to the hospital, he was there. My husband, white as a ghost, didn’t want to go in the room and so Dr. Goldstein went with me and brought his own children’s pediatrician to check the baby over. He was just there for me. Of course we named the baby after him. My son is Marc, spelt with a c, just like Dr. Goldstein.” Today, Catherine is living with her second kidney transplant which she received in 2001 under Dr. Goldstein’s care. At 65 years of age, she cherishes the many memories she has made with her family, something she attributes not only to her positive attitude but to Dr. Goldstein’s excellent patient care. She recently celebrated her 65th birthday surrounded by family, including her six-year-old grandson, Sullivan. On October 19, Catherine and her husband, Gerald, joined with the kidney community at The Kidney Foundation’s celebration, A Time to Shine, to recognize the many achievements of Dr. Marc Goldstein. For Catherine, it was another chance to say thank you even though to her, “Thank you really doesn’t seem to say enough when I owe my life and my son’s life to [Dr. Goldstein].”  Fall 2017 / Kidney Living /

FUNDRAISING FUNDRAISING

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FUNDRAISING FUNDRAISING

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PERSONAL STORY

Diabetes: Related Complications Led to Kidney Failure

“I

Diagnosed with diabetes in her early 20s, she didn’t realize the devastating impact the condition could have on her kidneys.

by Nicole Laidler

She wishes she had known more about the connection between diabetes and kidney disease at a younger age

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knew that I needed to keep my sugars under control, but I don’t remember having a conversation with anyone about why that was so important,” Debra Beaupre recalls. The first sign of kidney trouble began almost two decades ago when Deb lived in Saskatchewan. “My doctor performed a biopsy because I had a lot of protein in my urine,” she explains. A move to Montreal meant there was little follow up. It wasn’t until Deb came to London and met the healthcare team (at London Health Sciences Centre) that she began to understand the connection between her diabetes, her diet and the health of her kidneys. “I was told I might have to go on dialysis one day, but in my head, that day was many years down the road,” she says. Unfortunately, that day came suddenly in May 2013. Deb’s kidneys failed as the result of diabetesrelated complications. Unable to breathe and covered in sores, she was admitted to hospital and immediately began hemodialysis. “Dialysis was like someone gave me a new lease on life,” Deb says. At first, she told very few people about her kidney disease. “By this time, I had a better understanding of the impact diet can have on your organs and I was worried people might think it was my own doing because of my diabetes,” she explains. But when Deb learned she was eligible for a kidney transplant, she began sharing her story and asking people to register their wishes to be an organ donor. On June 24, 2015, Deb received a kidney from a living donor —the wife of a man she works with. “It’s very unusual to have met your donor,” she notes. “Once a year around the anniversary I send her a note thanking her for the wonderful gift.” Deb is enjoying her new-found health, and is focused on leading a healthy lifestyle. She is passionate about sharing her journey with others by participating in the Patient and Family Advisory Committee, speaking to community groups about organ donation, and volunteering with The Kidney Foundation of Canada. She wishes she had known more about the connection between diabetes and kidney disease at a younger age, and urges other diabetics to be proactive about their kidney health. “Even if you are young, be aware and take care of yourself,” Deb says. “Do the best you can to keep your kidneys happy.”  www.kidney.ca/ontario

PERSONAL STORY

From Diabetes to Kidney Failure

Daljit’s kidney failure was a shock to him and his family.

aljit Juneja arrived in Canada in 1970 and soon began his career in the Ministry of Transporation as a Project Engineer. Through the Ministry, Daljit and his colleagues were asked to complete a routine annual medical check-up. In his fourth year, one of the doctors called Daljit back about some puzzling results. When Daljit asked for more information, he was told to visit his family doctor. Daljit learned he was diabetic and began adjusting his lifestyle to cope with his diagnosis. While Daljit and his wife felt they were very informed about how to manage life with diabetes, no one told them about the effects it could have on the kidneys. In fact Daljit was told “not to be too concerned.” While managing his diabetes, Daljit continued to work and enjoyed watching his family grow. He became a grandfather and eased into retirement in 2002. It was not until 2009 that, during a routine blood test, Daljit was told that his kidneys were failing. “It was explained that I needed to have dialysis in order to live,” Daljit recalls, “My doctor was honest and initially it’s very hard to believe that you’re on dialysis but, over time, you learn to cope with it.” Coping with the sudden onset of kidney failure, Daljit went from managing diabetes to juggling dialysis and a renal diet as well. Overall though, Daljit is remarkably positive and thankful for the treatment options that extend his life. Dialysis allows him to watch his children, and grandchildren, grow. For Daljit, his strength comes from his faith and his family. Now, with that same strength, Daljit is sharing his experiences with others and The Kidney Foundation of Canada through a national video series sharing the connection between diabetes and kidney failure. “Every day I go through diabetes and most days I do dialysis too. My day starts with getting up at 5 o’clock… they come to my room with a stretcher and they pick me up to take me to the hospital where dialysis is 3.5 hours. You are hooked to the machine, which acts like a kidney. They take your blood out, clean it and pump it back into your body. When the dialysis finishes, the nurses help unhook you. Then, it’s time to go home for lunch,” Daljit explains, “Sometimes, your blood pressure will drop or you’ll get lots of cramps, so coping with all of these things isn’t easy. During the day, you get tested for sugar levels, make sure you have your medicine and insulin and that’s all very challenging at my age. But, you get used to this, knowing your life depends on it.” If you know someone living with diabetes, talk to them about the impact on their kidney health and share Daljit’s story. Take the online assessment to see if you are at increased risk for kidney disease. Visit www.kidney.ca/risk. 

www.kidney.ca/ontario

by Natalie Richard

Daljit Juneja

If you know someone living with diabetes, talk to them about the impact on their kidney health

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PERSONAL STORY

Exercise Helps Set New Path

At age 16, Jay Moon was diagnosed with type 1 diabetes.

by Natalie Richard

q Jay finds ways to make exercise enjoyable

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he real evidence of the impact diabetes was having on Jay Moon’s kidneys came 15 years after his diagnosis. As his kidney function declined, Jay realized he would need to go on dialysis to survive. Instead of focusing on the negatives though, Jay was grateful to have treatment options. “You have to learn how to adapt or things aren’t going to be very pleasant. We tried to stay positive,” says Jay. Jay’s optimistic outlook and determination to take back control of his own health led him to start getting active. Before he began dialysis, Jay realized there was a lot he could do to take control of his health. In part, this came from the news that due to his weight, a transplant was not a viable treatment option for him. “When I heard that, I began to try and get as fit as I could for both physical and mental benefits,” says Jay. Beginning with short walks around his neighbourhood, Jay gradually increased his exercise routine after he began dialysis.

www.kidney.ca/ontario

PERSONAL STORY

p Jay Moon

“I started my walking regimens four months before I began dialysis. At first, I could barely get around the block without getting winded. Once I began dialysis, I lost some fluid weight and, feeling better, I dedicated myself more to the exercise, gradually.” By using his phone to track the kilometres he walked every day and sticking with his new routine, Jay eventually lost enough weight to qualify for the transplant wait list. “By the time the transplant happened, I had got myself to about 170 pounds from the 260 pounds I was before dialysis. After my transplant I kept walking, but because the doctors worried about my feet, being a recently recovering diabetic, I switched to cycling.” The successful kidney/pancreas transplant meant Jay could continue to focus on his health and championing organ donation awareness through volunteering in the Stratford region. “I have this individual’s [kidney/pancreas] and I will never know who they are, but every day I got them,” Jay notes gratefully. “I have a lot of good in my life and it’s not all directly related to my transplant, but the enjoyment I get out of every day is because I’m not having to worry about diabetes or dialysis, so I’ve got that person, whoever they might be.” Today, Jay is an active member in his community and has returned to his full time work. He encourages others to become advocates for their own health by asking questions and learning about services available in the community. By learning about risk factors of kidney disease, such as diabetes, people can empower themselves to do what they need to get active and get healthy today. 

Connect with others... Kidney Connect Peer Support is for people living with - and affected by - kidney disease

Connect with our volunteers in the way that you feel most comfortable: Support Groups By phone In-person Online at kidneyconnect.ca

1.866.390.PEER (7337) www.kidney.ca/ontario

Fall 2017 / Kidney Living /

SERVICES AND SUPPORT

Connecting with a Community of Support It is good to have people in your corner

by Trish Reynolds

It is a safe place where you can share your journey, learn from others, or simply sit back and listen to the conversation and know that you are not alone in your experience.

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hen Angela Persaud learned that her kidneys were failing, she did everything in her power to learn as much as she could about kidney disease. A type 2 diabetic for 30 years, Angela wasn’t aware of the complications that diabetes would bring to her life. At one of the information sessions at the hospital, Angela learned about the Kidney Connect support group—and says that she’s “been going religiously ever since.” Over the years, Angela has tried to educate herself; she has sourced information from brochures, she regularly attends information sessions and appointments with her medical team, but credits the information sharing at the support group as an integral part of learning. “When I was first diagnosed, I was anxious,” said Angela. “Brochures don’t tell you much, I’ve learned so much from people going through it.” The Kidney Foundation’s Kidney Connect Peer Support program is offered by phone, in person, and in some areas in a group setting. It is a safe place where you can share your journey, learn from others, or simply sit back and listen to the conversation and know that you are not alone in your experience. For Angela, the group has become an important network of support. “I’m a widow, and on my own, so when I have news, I can talk to members of the group and keep in touch. It’s great to know there are people in my corner.” From transplant recipients, to dialysis patients to pre-dialysis patients like Angela, there is something to learn from all of the group members. “I listen to all of the stories and take away the information positively. I want to learn about others’ experiences. I know that it doesn’t mean it’s going to happen to me, but if I have the information I’m better off.” Angela equates this to the information sheet you receive with a new prescription. “You read the information provided that lists all the things that could happen, but not everything happens. You are more prepared just by knowing what could happen.” This information sharing helps make Angela a better patient too. Learning from others’ experiences has prompted Angela to ask more questions at her own medical appointments. When it came time to discuss modalities, Angela was armed with the information and feels that she made an informed decision about her treatment choice. Once the decision was made, she also asked to have the access in place well in advance. Angela has become a key advocate for the group she attends in Mississauga and encourages others to give it a try. “For me, I’m better off, the more I know.”  www.kidney.ca/ontario

SERVICES AND SUPPORT

Get the Facts

SERVICES AND SUPPORT

Finding informed and balanced advice in the age of Dr. Google and Facebook

by Trish Reynolds

Questions to consider when searching online information

• Check who supports the web site? Who maintains it? Who pays for it? • How current is the information? Does the site post the date when it was last updated? • If the information on the site is not original, does the site provide references about the source of the information? • Does the site display the name/logo of the institution or organization responsible for the information? • Does the site display the author’s name, qualifications and credentials, if relevant? • What is the purpose of the site? Is it to give you information or to sell you a product? • Is the information balanced or more onesided?

www.kidney.ca/ontario

MediaBakery.com

n the days, weeks and months after facing a health diagnosis, it is perfectly natural to want to learn as much as you can about your health condition and related treatment options. However, not all information can be treated equally. Take time to gather information from multiple sources and ask many questions. Being informed and educated is an important part of managing your kidney disease. Source it!

1. Your healthcare team is a valuable source of information, and can provide guidance on other resources and supports that might be available in your community. 2. The Kidney Foundation of Canada has a variety of information (brochures, Living with Kidney Disease handbook, fact sheets, information and referral program) on many topics related to kidney disease, its causes, diagnosis and treatments. Visit www.kidney.ca. 3. Talking with someone who has a similar experience may be helpful. Trained peer support volunteers don’t offer medical advice, but will share their experience with you. 4. If you choose to seek answers from Dr. Google and your online social community, take a few moments to check the information to ensure that you can trust it. 

Fall 2017 / Kidney Living /

MEDICAL RESEARCH

Meet Researcher

Richard E. Gilbert MD PhD St. Michael’s Hospital

ow did you become interested in nephrology?

Richard Gilbert is Professor of Medicine at the University of Toronto, Canada Research Chair in Diabetes Complications, and Head of the Division of Endocrinology at St. Michael’s Hospital in Toronto. His major interests are in the treatment and prevention of diabetic complications with an emphasis on diabetic kidney disease.

I did a 12-month fellowship at Guy’s Hospital in London, England studying diabetic kidney disease in the South Asian population there.

What are you currently researching?

New therapies to prevent, slow and even reverse the development of chronic kidney disease. Despite all our currently available treatments, diabetes remains the most common cause of end-stage kidney failure in Canada which requires dialysis or transplantation to preserve life. Stem cells offer the exciting potential of not only slowing the progression of diabetic kidney disease but of reversing the disease once it has already occurred. While highly successful in animal studies, human stem cell studies have been far less impressive. Among the likely reasons for this, is the type of cells that are used in humans, as opposed to those conducted in animals. Notably, donor stem cells in animal studies are derived from healthy animals with the same genetic makeup. To avoid rejection, human studies have focused on using autologous cells that come from the same patient. As these stem cells come from an unhealthy individual, they do not function well. The proposed study seeks to find a way around this key obstacle. We have found that many types of stem cells work, not by creating new tissues but by secreting factors that allow organs to repair themselves. After several years of painstaking research, we have identified the factor that we believe is responsible for the kidney-protective properties of certain stem cells. The current proposal seeks to test this factor, called CXCL-10, to see whether it could stop the development of diabetic kidney disease in a mouse model. A successful outcome of this study will allow us to move ahead with getting this new form of treatment ready for human use. What word would you use to describe the kidney research community in Canada? Why?

The kidney research community are world leaders in the field because they are exceptionally collaborative. How will your research impact the treatment of kidney patients? What is the long term goal?

We are currently getting prepared to conduct a clinical trial using stem cells to treat individuals with advanced diabetic kidney disease as a component of the Can-SOLVE CKD SPOR. Health Canada has asked us to do some additional animal studies before moving into humans. These, we hope, will be completed within the next 12 months. What does the grant support from The Kidney Foundation mean to you? p Dr. Richard Gilbert

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The support from The Kidney Foundation of Canada has made all the difference.  www.kidney.ca/ontario

COMMUNITY HIGHLIGHTS

community highlights

u Kidney Clothes Team Hits the

Streets in Peel

This fall the Kidney Clothes team swung into action picking up donations as part of our Region of Peel partnership pilot on October 18.

t March Drive Volunteer Mary Durling Honoured

Volunteer, Mary Durling, of Stittsville contributed to her community through her dedication to numerous charities and community groups. As an avid March Drive canvasser, Mary annually donated her time to benefitting the Eastern Ontario Chapter of The Kidney Foundation. Her activism continues to inspire both her daughter-in-law, Cheryl, and granddaughter, Rachel, to be active with The Foundation as volunteers. “She’s an inspiration to many others too as she was a very giving lady,” says Cheryl. “She raised four boys on her own and still involved herself in a lot of charity work to give back. She made us proud, volunteering just out of her heart.” This fall, Mary’s memory was honoured in Stittsville as Cypress Gardens Park was renamed Mary Durling Park to honour Mary’s generous contributions to the Stittsville community. Photo credit: The Ottawa Citizen

www.kidney.ca/ontario

Fall 2017 / Kidney Living /

COMMUNITY HIGHLIGHTS t Saluting our Volunteers in

q Team Garber’s Spooky Haunted

House in Milton raised funds and many chilling screams to benefit The Kidney Foundation.

Organized by Mitch Garber, who was diagnosed with kidney disease in 2013, the annual charity Haunted House features screaming zombies, spook-tacular volunteers and an array of treats and tricks to delight all visitors. Raising $10,050, Team Garber’s gruesome event brought in visitors of all ages to the frightful fundraiser.

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Kitchener-Waterloo On October 17, the Waterloo Wellington and District Chapter hosted a Volunteer Award and Renal Information Night, recognizing the contributions of its outstanding volunteers and partners at the Cambridge Chamber of Commerce. The informative evening also included a presentation by Kim Hendrick, Interim Renal Director, Grand River Hospital, and a presentation of the role of Patient and Family Advisory Council (PFAC). L to R: Some of the honorees: Fitz the Whip, Celebrity Men; Sabine Wirth, Renal Professional Award; Harvey Thomson, Chapter President; Charles Doering, Celebrity Men; Betty Seminowicz, Outstanding Volunteer Award. Also recognized for their volunteer achievements were Karen Campbell, President’s Award; Carol Sallasvaara Patient Programs Award; Chartwell Wellington Park Retirement Residence, Kidney Walk, Award of Excellence, Juneyt Yetkiner Award of Merit; Outstanding Corporate Partner and Nicklin Auto Parts and Recyclers, Service Award.

www.kidney.ca/ontario

COMMUNITY HIGHLIGHTS u Celebrity Men - London

London’s Ninth Annual Celebrity Men’s Fashion Show did not disappoint. The show opened with special model—Archie Brindleton. a London treasure, who is a therapy dog and the Assistant Chief - Fire Safety Dog of the London Fire Department (London, Ontario, Canada). Top: The finale of the 2017 London Celebrity Men Fashion Event Bottom: Archie

q A Time to Shine honours Nephrologist Dr. Marc Goldstein

The Kidney Foundation celebrated A Time to Shine, its annual fundraising gala on October 19 at the Palais Royale. The event brought together corporate and community leaders to honour Dr. Marc Goldstein and celebrate the work of the kidney community. Dr. Goldstein was joined by Hilary and Scott de Veber, who helped present the Dr. George deVeber distinguished service award. Dr. de Veber, who passed away in November, 2016 was the founder of The Kidney Foundation in Ontario. Dr. Marc Goldstein (centre) with Hilary and Scott de Veber

The Kidney Foundation of Canada, Ontario Branch 2017 - 2018 Board of Directors

Greg Robbins, President Richard Bernreiter Moe Jiwan Craig Kerr Craig Lindsay Michael Mastrionardi Mary-Pat Shaw Sonya Solman Susan Tkachuk Dr. Gordon Wong Maynard Young Terry Young Cathy Zackrias Executive Director Jim O’Brien Ontario Branch 1599 Hurontario St. Suite 201 Mississauga, ON L5G 4S1 1-800-387-4474 905-278-3003

www.kidney.ca/ontario

E-newsletter Get Kidney Foundation news direct to your inbox by registering for our free monthly e-newsletter. Receive the latest news and information aimed at people living with kidney disease, their families and supporters. Find out how the Foundation can help you, what you can do to support kidney patients, and what’s happening with kidney research in Canada. Register today—kidney.ca/ontario/e-news. Fall 2017 / Kidney Living /

COMMUNITY HIGHLIGHTS

For details about events in your community, call The Kidney Foundation of Canada Chapter nearest to you, or visit www.kidney.ca/ontario.

December 2017 6 10 12 12 13

Kidney Connect Peer Support Group, Kitchener Holiday Party, Scarborough Kidney Connect Peer Support Group, St. Catharines Kidney Connect Peer Support Group, Thunder Bay Kidney Connect Coffee Club, Oshawa

January 2018 9

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Kidney Connect Peer Support Group, Kitchener Kidney Connect Peer Support Group, St. Catharines Kidney Connect Coffee Club, Oshawa Kidney Connect Peer Support Group, Thunder Bay Kidney Connect Peer Support Group, Mississauga

February 2018 13

Kidney Connect Peer Support Group, Niagara, St. Catharines Kidney Connect Peer Support Group, Kitchener

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PASTALICIOUS, Sarnia Kidney Connect Peer Support Group, Thunder Bay Kidney Connect Coffee Club, Oshawa CRA Chinese New Year Dinner, Scarborough Kidney Connect Support Group, Mississauga

March 2018 1-31 3 8 8 8 13 13 21 21 26

Kidney Health Month Italian Night, Ottawa World Kidney Day World Kidney Day Ladies Event, Toronto Artilicious, Kitchener-Waterloo Kidney Connect Peer Support Group, Kitchener Kidney Connect Peer Support Group, St. Catharines Kidney Connect Coffee Club, Oshawa Kidney Connect Support Group, Thunder Bay Kidney Connect Support Group, Mississauga

April 2018

1-30 Be a Donor Month 10 Kidney Connect Peer Support Group, St. Catharines 11 Kidney Connect Peer Support Group, Kitchener 15-21 National Volunteer Week 17 Kidney Connect Peer Support Group, Thunder Bay 18 Kidney Connect Coffee Club, Oshawa 24 Kidney Connect Support Group, Mississauga 28 Ontario Branch Annual General Meeting (location tbd)

May 2018 8

10 10 11 24

Kidney Connect Peer Support Group, Kitchener Impressions 2018, Hamilton Celebrity Men, KitchenerWaterloo Celebrity Men, Windsor Celebrity Men, Sarnia

Canadian Publications Mail Agreement # 40011479

Postmaster: Please return undeliverable Canadian addresses to The Kidney Foundation of Canada, 1599 Hurontario St., Ste. 201, Mississauga, ON L5G 4S1

24 / Kidney Living / Fall 2017