Cauda Equina Syndrome

“Imagine jumping from a helicopter and landing on a telegraph pole with a pineapple strapped to the top – that’s the simplest way to describe the pain of Cauda Equina Syndrome” says Claire Thornber, Founder of Cauda Equina Champions Charity.

Claire was just 39 years old when Cauda Equina Syndrome (CES) was introduced into her life for the first time. All it took was one turn in bed whilst sleeping in September 2010, and the sudden sharp pain that ran up Claire’s back told her – something was not right.

The following day Claire hobbled into A&E and was sent away and told to get some bed rest for having a ‘bad back’. Claire says: “Luckily I wasn’t the sort of person to take anyone’s advice, and always follow the beat of my own drum. It was starting to affect how I lived my day to day life and things such as – queuing in a supermarket, cleaning my home or the offices I was hired to clean was just impossible”.

Claire did her own research and the results showed symptoms of CES but was quickly alerted to red flags that can leave you with permanent disability if not treated as soon as possible. These red flags include bladder issues, irregular bowel movements, severe back pain, leg weakness and numbness, saddle numbness, and sex related problems.

This is just the beginning of Claire’s story…

Claire has since received a diagnosis, surgery, recovery, and has set up her very own charity – Cauda Equina Champions Charity which has helped hundreds of people around the world. The mission is to spread further awareness

The Sharp and Sudden Diagnosis

of the syndrome, whilst also helping CES sufferers not feeling isolated, unheard, or alone. Duncan James, British Boy Band member from Blue is also a CES survivor and is now the charity’s celebrity ambassador.

‘The Lost Tribe’ is the first book the Cauda Equina Champions Charity has launched and aims to educate sufferers of the syndrome, plus friends, family and even healthcare professionals who require further insight. All proceeds of the book sales will be going to the charity to continue to raise significant awareness across the United Kingdom.

The book also contains individual stories including Claire’s, written from the heart of medical experts, CES patients across the nation, plus the charity’s celebrity sponsor and fellow CES patient – Duncan James. ‘The Lost Tribe’ is available on Amazon and is number one in the charity book chart - paperback RRP £6.99 and Kindle RRP £3.99.

Link to shop here - https://www.amazon.co.uk/ dp/B0BGHR747X

Plus, follow our Facebook page for more information - https://www.facebook.com/ championscharity