LIAFLine
April 2006
Memories in Motion May 20, 2006
NEWSLETTER OF THE LONG ISLAND ALZHEIMER’S FOUNDATION
INSIDE THIS ISSUE... • Alzheimer’s Disease – 100 Years Later • LIAF’s Adult Caregiver’s Group • 18th Annual Long Island "Coping and Caring" Conference & Expo • 12th Annual Outstanding Service Awards Luncheon • AMA gives BIG • Advanced Skill Building Workshop • Memory Paddle Challenge Team • Free Conferences & Workshops • Donations
Alzheimer’s Disease: One Hundred Years Later by Gisele Wolf-Klein, M.D. Introduction Recently, The Lancet published a global perspective of Alzheimer’s disease based on twelve international experts’ reviews. Today, Alzheimer’s disease is known to be a common illness, with an estimated prevalence of 4.5 million people in the U.S., and 24.3 million worldwide. Given the projected rate of increase in the elderly population, this number is expected to triple by 2050. Dementia causes a greater disability burden than many chronic care conditions, including stroke, musculoskeletal disorder, cardio vascular disease, and all forms of cancer. This creates new challenges and therapeutic opportunities for all of us, healthcare providers and caregivers. Survival of Patients with Alzheimer’s Disease Survival of elderly patients afflicted with Alzheimer’s disease is shorter compared to the life expectancy of the U.S. population. Despite new technology and approaches, length of survival has not changed in the last century. In the very first documented case of Alzheimer’s disease, Augusta
D., the patient died five years later despite the best of medical and nursing care. International data has confirmed a median survival of approximately five years. The rate of death for Alzheimer’ patients was more than double the rate in the general elderly population. In a 2001 Canadian study, 10,263 subjects at least 65 years old were randomly sampled throughout the country and screened for cognitive impairment. For the group as a whole, the unadjusted median survival was 6.6 years. For women at 70 years of age the median survival was 8.0 years for those afflicted with Alzheimer’s disease compared to 15.7 years for the general U.S. population. As a whole, the median survival from time of diagnosis was 4.2 years for men and 5.7 years for women, putting it on par with class III congestive heart failure and malignancies. Causes of death in Alzheimer’s disease and other dementia In Augusta D., the official anatomical diagnosis listed cause of death as septicemia due to decubitus; anatomical diagnosis: moderate hydro-
cephalus (external internal), cerebral atrophy; arteriosclerosis of the small cerebral vessel; pneumonia of both inferior lobes; nephritis. The hundred years to follow would lead to repeat findings that pneumonia is a major contributor to death in AD patients. In a 1986 Finnish study bronchopneumonia was indeed found to be the most common cause of death in dementia. A few years later, death certificates of 398 AD and 348 vascular dementia patients were obtained from the Registrar General for Scotland through December 1994. Bronchopneumonia again was identified as the immediate cause of death in 70.9% of the Alzheimer’s patients and 51.7% of the Vascular Dementia group. A 2000 study in Geneva, Switzerland sited the immediate cause of death in AD in 342 hospitalized demented and non-demented elderly as bronchopneumonia and cardiovascular disease. The 20 04 Japanese Radiation Effects Research Foundation Adult Health Study after the Hiroshima bombing looked at Continued on page 4
LIAFLine
Executive Director’s View
Founder’s Corner Dear Friends, Welcome Spring!
Hello everyone!! As Spring is a time of renewal, we at LIAF spent a productive and invigorating two days in New York City renewing our strategic vision and focus. Thanks to our Trustee Peter Scotese, we were introduced to the American Management Association (AMA) and their President and CEO Ed Reilly. AMA very generously donated one of their facilitators, Jim Austin, a highly experienced strategic planner with years of management background in the healthcare industry, as well as a meeting room for our session. Several Trustees and a few senior staff spent the time considering the future of LIAF over the next five years, discussing such topics as fundraising; branding, communications and marketing; technology innovations – both in terms of office technology, upgrades to the web site, and more online outreach to our community; developing more strategic partnerships; and whether to expand existing programs and services. We have more to do, but we are most grateful to Peter, Ed Reilly, Jim Austin and AMA for getting us underway. We are commemorating 100 Years of Alzheimer’s Disease all this year; and soon we will begin planning to celebrate LIAF’s 20th anniversary, which will occur in 2008. Our preparations will commence later this year. If you have ideas, please send them our way!!
As we continue to recognize the 100th year anniversary of the discovery of Alzheimer’s disease, I am proud to honor the Long Island Alzheimer’s Foundation’s Advisory Board. We are aware daily of the work provided by the staff and Trustees but as I always say we have an army at LIAF working to provide a better world for those touched by Alzheimer’s. The Advisory Board was founded almost 10 years ago and is made up of eight different groups providing wisdom and service for LIAF’s community. The Service Provider, Medical, Scientific, Public Relations, Government Relations, Legal, Caregiver and Client Council meet as a whole and as individual groups. The over 70 members of this Board provide services such as Speaker’s Bureau, LIAFLINE newsletter articles, Legal Brief (our once a year newsletter updating news in the Alzheimer’s related legal world) and attend Trustee meetings to keep our staff and Trustees aware of important issues from their perspective and how it might affect our LIAF community. Thank you for all of your hard work. This year we honored someone very special to me at our Outstanding Service Awards Luncheon, Jean Korosh. Jean started volunteering for LIAF in our founding year 1988 and continues to this day. A very wonderful thank you, Jean, for your friendship and support; you have my gratitude and love always, God bless. On a personal note, after 10 years of participating in New York University’s research program at the Center for Brain Health, I am proud to say all of my testing remains "normal." My best, Janet
LIAFLine The Long Island Alzheimer’s Foundation, Inc. Leslie Gonzalez, Editor 5 Channel Drive, Port Washington, NY 11050 (516) 767-6856 Fax: (516) 767-6864 e-mail: info@liaf.org Internet: www.liaf.org LIAFLine is the newsletter of the Long Island Alzheimer’s Foundation, Inc. (LIAF). It is supported entirely by contributions and is intended for caregivers, service providers and anyone interested in Alzheimer’s Disease or the Foundation. Articles, news items, correspondence, or other materials of interest are welcomed for publication consideration.
® 2006 The Long Island Alzheimer's Foundation, Inc
Best regards,
Material in LIAFLine may be reproduced, with proper reference to source. Any statements of fact and opinion are the responsibility of the authors herein and do not imply an opinion or endorsement on the part of The Long Island Alzheimer's Foundation, Inc.
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April 2006
LIAFLine
Caregiver's View
Adult Child Group Creates a New Family of Support By Judi Talit, M.S., CRM Sometimes I’ll take out my mother’s jewelry box and put on her earrings or a favorite necklace and remember how she looked wearing them; when her eyes still sparkled with life and she was beautiful. For that moment, just a little while, I can forget how dull her eyes are now. I can forget how many times I’ve wanted to call her and decided to hang up the phone instead because I know that she no longer understands or cares about what I am doing in my life. She cannot give me what I need anymore. And so I feel sad… but I also know I’m not alone. There are countless others just like me losing mothers and fathers day by day. We watch their independence slide away, or be taken away from them by our own sense of responsibility for their safety. It is an enormous responsibility and burden to feel roles change suddenly, as a parent becomes more like a child with “special needs”. It’s dramatic when we have our own children to compare with our parents growing in reverse. My mind is cluttered with things to do for mom -- not just the simple things like shopping or ordering medicines, but tasks that can become overwhelming for the mind to process: How will I protect her assets? Who will have power of attorney? What are her end of life wishes? How will I organize her papers for tax preparation? I breathe… and feel overwhelmed again. I am not alone in this, and because of that, I have more confi-
dence to face the things I don’t think I can. On Tuesday nights I will see a group of other women and men traveling the same journey; some of whom have already faced the challenges I am now facing and will be my mentors… and others just beginning, as I was when I first joined the support group sponsored by LIAF specifically for adult children of parents with Alzheimer’s. When I first came to the group, it was because my sister said I needed to “get some support for yourself.” I was crying so much from exhaustion, despair, grief and resentment. I needed to educate myself about the basics of Alzheimer’s disease. I needed to network. But I wasn’t ready to
share. I thought I would come and sit in the background and listen. How could I reveal such personal stories? How could I show strangers my anxiety and insecurity about my new role as a caregiver? But sharing became easy among peers, and with an encouraging and empathic group leader. Before I knew it, I was sharing. And crying. And sighing. And then, I was breathing… like I hadn’t been able to in a long time. The weight was lifted from my shoulders with the relief that I was finally not alone. I have grown so much from being in the presence of others doing extraordinary tasks with love and respect for the parents who raised them. For many, it Continued on page 6
Memories in Motion A 20-mile and 30-mile “Ride to Remember” and a 2-mile “Walk to Remember”
SATURDAY, MAY 20, 2006 Registration: 7:15 AM – 8:15 AM Start: 30-Mile Bike Course: 8:15 AM 20-Mile Bike Course: 8:45 AM 2-Mile Walk Around the Campus: 9:00 AM
Location: Long Island University at C.W. Post Campus, East Gate, Northern Boulevard, Brookville, NY Registration: $25– Received by May 12 NOTE: A minimum pledge of $50 (in addition to the registration fee) must be turned in on or before the day of the event to be eligible to participate.
To register, volunteer or for sponsorship or other information, call LIAF toll free at 866-789-5423 or visit our website at www.liaf.org April 2006
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LIAFLine
Medical Update 100 years later
...Continued from page 1
the effect of dementia on mortality by studying death certificates from 1992 to 1996 of 2,172 subjects over the age of 60. With this larger sample size, results still showed that mortality from pneumonia and stroke was elevated for both AD and vascular dementia, independent of other medical conditions. In addition to the infectious causes for death such as pneumonia, some dementia patients can develop complications from the antipsychotic medicines they take for treatment of agitation. Some of these drugs have now received “black box” warnings from the FDA. According to an April 2005 FDA Public Health Advisory, older patients who are given antipsychotic medicines are more likely to die prematurely. This doesn’t mean that all medications should be discontinued, but rather that caution should be exercised. Finally, elder abuse and neglect can be a serious problem in the overall approach to terminal Alzheimer’s patients, according to the National Center on Elder Abuse (2005); between one and two million seniors age 65 and older are abused every year by their caregivers. The declined cognitive and physical state of AD patients may increase their vulnerability to maltreatment. A major contributing factor to the high prevalence of elder abuse in dementia patients is the enormous burden placed on overwhelmed caregivers. More than six million people provide long term, unpaid care to disabled elders in the U.S. End of Life Care in Terminal Alzheimer’s Disease The philosophies of palliative care and hospice should become the 4
April 2006
standard of care in advanced stages of Alzheimer’s disease. The most important objectives are to provide comfort, support, and relief of suffering while preserving the patient’s dignity near the end of life. These objectives can be met in the home, assisted living setting, skilled nursing facility, and acute care hospital. In order to qualify for hospice care, patients must fulfil all of the following criteria: “stage seven or beyond according to the Functional Assessment Scale, inability to ambulate without assistance, inability to dress without assistance, inability to bathe without assistance, urinary and fecal incontinence, and intermittent or constant ability to speak is limited to six or fewer intelligible words, weight loss during the previous six months and serum albumin less than 2.5 gm/dl.” Specific Issues for Consideration in the Provision of Palliative Care in the AD Patient Pain The patient with Alzheimer’s disease may not be able to communicate pain verbally, thus the caregiver needs to look for subtle physical signs, such as labored breathing, groaning, frowning, unusual body positioning or motions indicative of inflammation, infection, skin breakdown, burns, contractures and fractures. Pain scales have been developed to standardize pain assessment in the non-communicative patient. A caregiver familiar with the demented patient’s routine can provide invaluable assistance in the timely recognition of pain. For example, the wife of the demented patient may observe that the patient may refuse to eat, thus indicating a possible dental problem.
Nutrition The refusal or inability to drink and eat is a normal part of the disease progression. Alzheimer’s patients have cravings for sweets, which remain present throughout the late stage of the illness. Interventions to improve food and fluid intake include providing finger foods if the patient cannot grasp and handle utensils, using bread makers or baking cookies before meals to stimulate appetite, and providing pleasant music, social interaction and person attention at meal times to make eating more of a social event. Anxiety and Agitation Treatment of anxiety, agitation and depression is essential in end of life care. Medications and psychotherapy, as well as noise reduction, light treatment, aromatherapy, massage, music and pet therapies, may all be components of such treatment. An innovative approach of using interactive robotized toys and dolls has been piloted in Japan. Advance Directives As appropriate, end of life planning should be addressed early in the course of disease, so that the patient can still express his or her wishes. Elderly patients commonly do not discuss advance care planning because of a perceived lack of urgency. After Death: Ending Care Autopsy Deciding whether or not to obtain an autopsy is often a difficult choice for caregivers and family members. The Alzheimer’s Association has created a guideline titled “A Lasting Gift for Your Family,” which Continued on page 6
LIAFLine
Events
Coping and Caring Conference LIAF held it’s 18th Annual Long Island Alzheimer’s Foundation “Coping and Caring” Conference and Expo on Saturday, March 25, 2006. The comprehensive educational conference provided valuable information for families and professional caregivers dealing with Alzheimer’s disease and related dementias. Approximately one hundred fifty attendees and a dozen vendors registered for this year’s event, which was held at the Long Island Marriot in Uniondale, NY from 8 am to 3:30 pm. Joe Verghese, M.D. M.S., of Montefiore Medical Center, and Assistant Professor of Neurology at the Albert Einstein College of Medicine, delivered the keynote
Thirteenth Annual Golf Classic Monday, June 19, 2006 The Sands Point Golf Club
address. Dr. Verghese’s discussion, titled the “Cognitive Benefits of Cognitive Leisure Activities,” explained how intellectually stimulating activities such as board games, card games, reading and dancing can reduce the risk of dementia. Other speakers included Felicia Pasculli, Esq., who discussed the latest issues in Medicare; Mary S. Mittelman, Dr. P.H., who discussed Alzheimer’s coping strategies and psychological research; Darby Morhardt, M.S.W., L.C.S.W., who discussed family issues and subjective experience; Cathleen P. Lear, M.S., R.N., who discussed the healing power of laughter; and Barbara Vogel, L.M.S.W., Director of Social Work at
Dr. Joe Verghese
LIAF, who facilitated the Adult Children Caregivers Panel. LIAF would like to thank all who sponsored this year’s event, including The Bristal Assisted Living, presenting sponsor and master of ceremonies; All Metro Health Care, Cold Spring Hills Center for Nursing and Rehabilitation, Pfizer, Sterling Glen and Sunrise Senior Living. ❍
HONOREE — JIM WHITE President & CEO, AI Friedman L.P. SPONSORSHOP OPPORTUNITIES
"Fore" Some $3,000 • One Foursome; Including Golf, Two Golf Carts, Brunch & Evening Reception. • Full Page Journal Ad.
Birdie $1,500 • Two Golfers; Including Golf, One Golf Cart, Brunch & Evening Reception. • Half Page Ad.
Individual $750 • One Golf Entry; Including Golf, Brunch & Evening Reception Evening Reception Only – $250
GOLF TIPS JOURNAL ADVERTISMENT OPTIONS Full Gold Page - $1000 (7-1/2w x 10 h) • Full Silver Page - $750 • Full Page - $500 • Half Page - $300 (7-1/2 w x 5 h) • Quarter Page- $175 (3-3/4 w x 5 h) • Tee Sign - $500 • Green Flag - $500 Above contributions in excess of $300 for the day are tax deductible. All proceeds benefit LIAF’s Programs and Services. For more information, to register for the outing or to support it, call: (516) 767-6856 or send an e-mail to info@liaf.org or visit our website at www.liaf.org April 2006
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LIAFLine
Caregiver's View 100 years later
...Continued from page 4
provides specific directions to facilitate the arrangement of autopsies. Brain autopsy does aid dementia research and may provide helpful information for family members concerned about specific genetic risks. Caregiver Bereavement The course of bereavement for informal caregivers of the Alzheimer’s patient may be different than the usual course of grief response. Home caregivers showed rapid recuperation from depression
Adult Child Group
April 2006
Conclusion Despite all the technological advances of the last century, epidemiologic studies indicate that the average lifespan of the Alzheimer’s patient approximates five years, on
par with Class 3 congestive heart failure, and many cancers. Realizing the limited time that we have to enjoy and appreciate the company of our loved ones fighting Alzheimer’s disease enables us to maximize each moment we spend with them as they progress. More than with any other illness, earlier initiation of discussions about advance directives and goals of care is crucial while the patient still has capacity. ❍ This article has been edited for content.
...Continued from page 3
isn’t easy. Some had difficult, controlling parents. Others have memories of their loved one being "the best mother or father.” Both scenarios are sad. This is one of those clubs no one wants to join, but there is a universal sigh of relief when entering the door to a support group. It’s a feeling of coming home, a place where you can share your deepest feelings, express your most frightening thoughts and be received unconditionally. It is a place where strangers become a working family. Whatever stage a parent is in Alzheimer’s disease, there are things to learn from others further along in the journey. Barbara Vogel, L.M.S.W., is the group leader, facilitator and keeper of our stories. She is the professional that directs us to the heart of the matter when we are skirting around a difficult topic. She is our Alzheimer’s disease educator and resource base for eldercare lawyers, home health aides, doctors and other geriatric
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within months of the death of their demented relatives. According to Shulz, “The home caregiver may begin to grieve while the patient is still alive. They may psychologically distance themselves and rehearse what life will be like once he or she is gone.”
care professionals. She is the voice of reason when we cannot be, and she is witness to our pain and suffering as adult children. LIAF sponsors a number of educational support groups for spouses and adult children. Some are live-in caregivers. Others watch spousal parents care for the parent with Alzheimer’s. Some parents still live on their own and others are already placed in assisted living or nursing homes. It may be time to take the keys away, get help in the house for a resistant parent, deal with a stubborn spousal parent, work through conflicts with siblings or deal with being the only child. Or, you may need to get finances in order, protect assets, undergo nursing home placement, and make end of life decisions. Acting responsibly and making painful and emotional decisions does not necessarily flow smoothly. That is where we become cheerleaders for each other: We cry, celebrate together, and applaud each difficult step. Twice a year, LIAF spon-
sors a daylong retreat that nourishes and rejuvenates a tired soul. This journey can be a lonely one fraught with burdensome responsibilities and uncertainty. But it becomes almost bearable when shared with those who have walked this path as well. Getting support is not weakness, but strength. A support group makes us educated, proactive, and strong advocates for parents who may no longer be capable of speaking for themselves. ❍ Judy Talit, M.S., CRM Judi Talit is the creator of Healing Alternatives and co-director of the Center for Jewish Meditation and Healing. She works with individuals and families in crisis, using alternative healing modalities such as reiki, breathing techniques, visualization and meditation. She lectures, is author to numerous articles, and has a guided meditation CD/cassette titled "Light of the Heart Meditations for Self Healing." Judi is also the Stress Management Educator at HealthBridge, an Integrative Wellness Center in Manhasset. She has an M.S. in Education and is a Certified Reiki Master.
LIAFLine
Community
Hearts of Gold The Long Island Alzheimer’s Foundation held its 12th Annual Outstanding Service Awards Luncheon April 4, 2006 at The Garden City Hotel. The luncheon is a salute to those who go above and beyond the call of duty, friendship and responsibility to the Alzheimer’s disease community. Over approximately 275 guests attended this year’s event, themed “A Heart of Gold” and sponsored by The Susan De Santi, Ph.D., Outstanding Bristal Assisted Living. All Metro Health Service Award Honoree Care served as People’s Choice Sponsor. Honored were Susan De Santi, Ph.D., Distinguished Medical Achievement Award; Drew Scott of New 12 Long Island, Media Excellence Award; and Jean Korosh, Lifetime Achievement Award. An additional thirty were named Service Award Nominees, including the Town of Brookhaven’s Adult Day Care Program. ❍
LIAF Conferences & Free Workshops A P R I L / M AY ■ All about Forgetfulness Wednesday, April 5th, 3 PM Smithtown Library, Smithtown ■ All about Forgetfulness Thursday, April 6th, 6 PM The Regency at Glen Cove Glen Cove ■ All about Forgetfulness Thursday, April 20th , 10 AM Petromelis Senior Center College Point ■ Stress Reduction for the Caregiver Tuesday, April 25th, 2 PM Senior Care Westbury. Jericho ■ Optimal Nutrition Thursday, May 4th, 2 PM Port Jefferson Library Port Jefferson
Jean Korosh, Lifetime Achievement Award
Drew Scott of News 12 Long Island, Media Excellence Award
Our Special Valentine’s LIAF’s 2nd Annual Valentine’s Dance was held on February 15, 2006. Participants included members of LIAF’s client, caregiver and adult children support groups and social programs. With its festive decorations and spirited live music, the dance served as a bright spot for LIAF families living with the day-to-day challenges of Alzheimer’s disease. ❍ We thank the American Management Association, which very generously provided the Long Island Alzheimer’s Foundation with meeting space and a facilitator to work on a strategic plan for the next five years. They have also offered periodic training for LIAF staff members. ❍
■ Elderly Care Law Wednesday, May 10, 2 PM Garden City Library. Garden City ■ All about Forgetfulness Friday, May 12th, 10:30 AM Mastic Library, Shirley ■ All about Forgetfulness Monday, May 15th, 1 PM Merrick Library, Merrick ■ All about Forgetfulness Wednesday, May 17th, 6:30 PM Forest Hills Community House Kew Gardens ■ All about Forgetfulness Tuesday, May 23rd, 1 PM Hempstead Public Library Hempstead Registration is required; seating is limited. Please call LIAF at 516-767-6856 to register. ❍
LIAF staff meets in AMA provided space
April 2006
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LIAFLine
Community
Advanced Skill Building Workshop Teepa Snow, Education Director at the Alzheimer’s Association Eastern NC Chapter, lead an interactive, Advanced Skill Building Workshop at Long Island Alzheimer’s Foundation headquarters on March 10. Teepa explained to caregivers that how they help an individual can make a great difference. “You’ve got to greet people before you meet people,” advised Teepa, who demonstrated to guests a step by step, positive approach to greeting and waking patients. Guests paired into teams and followed each learning exercise. The following key advice was selected from Teepa’s workshop: When interacting with a patient or loved one, a person is advised to approach from the front to let them know you are coming. Go slowly, because perception and reaction times slow as we age. Once in proximity, move to his or her side -- you want to be supportive and not confrontational. Next, get low. Don’t let your height intimidate. Offer your hand, and let them start the interaction. Call his or her name, the name that he or she prefers, and wait.
A Visit to Memory Lane
Start your message: • Give basic information. “It’s time to…” • Give simple choices. “This or that…” • Give simple step directions by breaking down the task. “To go to eat…lean forward… pull your feet in…” • Ask the person to help you, because it feels better for them to give than to receive. • Ask the person if they will at least try, because sometimes you will try even if you don’t think you can. Do not ask, “Are you ready?” or “Do you want to?” because that offers the option of saying "No." Do not get wordy. Keep it short. Then, wait for a response. Silently count to ten. If there’s no response, ask again. If he or she is responding, give positive touch and feedback: “Good job,” with a smile or nod. “Yes,” with a hug. “That’s it,” with a stroke or rub. When communicating with a patient or loved one, it is important to pay attention to the three ways in which you communicate: How you speak, what you say and how you respond. When speaking to him or her, how is your tone of voice?
Third and fourth grade students of the Service Club at St. Mary’s Grammar School in Manhasset visited members of the Memory Lane Club on March 10, 2006. The students share their time once a month with the group. Together, they colored shamrocks in celebration of St. Patrick’s Day. ❍ 8
April 2006
Teepa Snow, center, demonstrates how to positively approach patients.
Remain friendly, not bossy or critical. How is your pitch of voice? A deeper voice is preferable to the high pitch often used for young children or pets. How fast is your speech? Speak slow and easy, not pressured or fast. Use the positive approach methods detailed above. Pay close attention to how you respond to the person. Always be careful about personal space and touch, especially when he or she is distressed or being forceful. If what you’re doing is not working – Stop, back off, and give the person space and time. Decide on what to do differently, and then try again. Remember, YOU have the power. Keep it calm, adult, positive and simple. ❍
LIAFLine
Community
Olympic Athletes Take The “Memory Paddle Challenge” This year the Long Island Alzheimer’s Foundation is pleased to announce two Olympic women athletes will be kayaking in the 6th Annual “Memory Paddle Challenge”, August 10th to 16th. Kathy Colin and Dru van Hengel will be making the grueling, 300 mile journey, circumnavigating Long Island to raise awareness of Alzheimer’s disease. Both women are Olympic competitors, and compete in world champion and national competitions. Kathy and Dru are dedicated to increasing public awareness of this devastating disease, and will be paddling 8 to 10 hours a day for 7 days. As competitors, they are also excited to beat the previous record.
Dru van Hengel, Olympic athlete
Memory Paddle Challenge August 10-16, 2006 250,000 paddle strokes are required to complete the 300 mile journey. Every paddle stroke challenges you to care and to give. Sponsor one or more of these paddle strokes for $1.00 each. All proceeds directly benefit people afflicted with Alzheimer’s disease.
An informational conference for families, friends and professional caregivers dealing with Alzheimer’s disease and related dementias.
To register or for more information, call LIAF toll-free at 866.789.5423.
Kathy Colin, Olympic athlete
Sixth Annual
Asian Alzheimer’s “Coping and Caring” CONFERENCE
Opening and closing ceremonies will be held August 10 and August 16 at Manhasset Bay Yacht Club in Port Washington. ❍
Sponsor the Strokes
Coming Soon!
SAVE THE DATE REGATTA TO REMEMBER Sunday, July 16 at the Manhasset Bay Yacht Club
I ACCEPT THE CHALLENGE! I will sponsor:
■ 5 ■ 25 ■ 50 ■ Other ——— Paddle Strokes! Name Address City
St
Zip
Phone
■ Check Enclosed ■ Visa ■ MC ■ Amex ■ Discover Card # Exp Signature
April 2006
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LIAFLine
Donations Memorials In Loving Memory Of: George Adams Michael Amenta Maria Americo Estelle Amsel Jean Andreocci Bernard Annenberg Virginia Armando Santa Armocide Joan Ayala Marian Babb Rose Baena Ruth Baker Amelia Balletta Rosemary Barbieri Rose Baron Marilyn Barrow Emanuela Battaglia Joan Behan Beloved Mother of Barbara & Susan Shake Bekmessian Roslyn Berger Mrs. Carol Berlinghof Gertrude Berman William Bernhard Santa Bertin Thomas Biesty Regina Bigayer Kitty Blatter Fran Boehm William Bohn Joan Bonanno Albert Brayson, Sr. Marty Brooke Dave & Rita Brooks Rita Brooks Jack Bruckner Doris Burke Bruni Esther Buscher Anne Calderone Esther Camhi Joseph Carey Veronica Caspary Lucille Cavalla Edward Cavanaugh Mae Cerer Columbia Cerreta Helen Chadwick Theresa Chiapetta Fannie Christy Josephine Cicio Dorothy Cimino Rose Clemente
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April 2006
George Conklin, Jr. Mr. Christopher Connors Nick Coppola Joyce Corcoran Stanis Coryell Ann Cox Walter Cox Mary Crowley Paula Anne Curran Josephine D'Acchille Patricia Daniels Mervin Dattelbaum Elizabeth Anne Davis Alba Del Vecchio Mrs. Frances DePascale Paul DiMarzio Shirley Dinner Margherita DiPrima Dorothy Dooley Charles Dreitlein, Jr. Andre Duchange Ruth Erwich Lorraine Mary Fallica Dr. Arthur Feinberg Sally Fischer Sheldon Flanzig Gertrude Fortuna Mary Freniere Anthony Gallo Ellen Gerken Rita Glass Cecil Goldsmith Sara Gonzalez Etta Gordon Mrs. Lois Greco Sue Greenleaf's Mother Helen Groder Dorothy Hall Carol Hand Anna Harazim Doris Hardhardt Thomas Hart Marion Harvey Margaret Hay Perreira Phyllis Hayden Irene Hayes Pat Hehn Frances Helly Bessie Herz Robert Hoffman David Hollander Scotty Holmes Brian Hunt Jane Jankowski Dorothea Johnke
Meron Johnson Jack Judge Ruth Kahn Pearl Kalikow Calvin Kamin Stanley Kapsack Mrs. Olivia Kastarian Deena Katz Henry Kaye Mary Keratt Helen Kesselman Berta Kessler Agnes Kleinberg Marcia Kluger Doris Kushner Josephine Lauricella Toby Lehrer Laura Leist Hilda Lemuth Murray Lerman Marion Leviss Mrs. Kate Lieblich Hannah Limmer Albert Lipari Joseph LoDato Margaret Lods Loving Mother, Grandmother, Great Grandmother Richard Maehr, Sr. Charles Mandel Dominica Martinez Ines Masciandaro Agnes McGilly Elizabeth McKibain Thomas McMahon Edward Mellon Jerry Mendelson Cornelius Meskers Michael Miller Marion Irene Mitchell Alfred Mittel Margherita Moja Tessie Moriates Vincenza Moscato John Napolitan Josephine Nemia Bert Olshever Bernard O'Rourke Joanne Palmer Joe Papathomas Manny Pearlmutter Mary Perry Virginia Pisani John Pollock Mary Porter Irving Radler Warren Reide
Muriel & Sidney Resnick Sylvia Reynolds Carmelo Ricciardo Fred & Rose Rispoli Madeline Rocco Gordon Roiter Gloria Rosen Barbara Rosman Ida Ruchman Margaret Rudden Eli Saul Joseph Schaefer Harry Schapiro Dorothy Schawbe Isabelle Scheer Charles Scheetz Marjorie Schumm Dorothy Schwabe Helen Schneider Harry Shapiro Helen Shrayer Selma Shwom Eleanor Single Chet Sly Gloria Smith Rose Soren
Anthony Spero Eleanor Steeneck Robert Stock Doris Studer Bill Swenson Ceil Tabak Rosen Victoria Tomosello Joseph Tringali Carmelo Triola Stephen Truncale Sophia Tuckman Eddie Vandenberg's Mother Edna Vilensky George Walsh Fred Weismantel Norma Weiss Bob Wermes Lee Widrow Marie Wildemann Marie Wren Fay Zess Helene Ziegler Mr. Zimmer Eleanor Zuber
Honorariums In Honor Of: Roslyn Berger Ruth Bier's 90th Birthday Robert Bishop Debbie Brajevich Shirley Brodman Anthony & Larraine Correri J.V. Davis James DeNicola Paul Eibeler Joseph Grunder Long Island Alzheimer’s Foundation Rosemary Nappi Pat Nigro Anne Pores Kelly Roberti Peter Scotese Sam & Esther Skolnik's Anniversary Marion Sussman
To make a donation in memory or in honor of someone, or to celebrate a special occasion, please send your contribution to: LIAF 5 Channel Drive, Port Washington, NY 11050 A personalized tribute card will be sent to the individual being honored or to the family of the person being memorialized. See coupon on opposite page.
HELP LIAF HELP OTHERS! I Wish to Make a Donation of $_______ to LIAF
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(A minimum gift of $10 is suggested) Contributor Name:
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Please make checks payable to: Long Island Alzheimer’s Foundation, Inc. 5 Channel Drive • Port Washington, NY 11050
Contributions to LIAF are tax-deductible to the full extent of the law. A copy of our most recent financial statement can be obtained from the NYS Office of the Attorney General, Charities Bureau, 120 Broadway, New York, NY 10271.
LIAF Product Order Form Newly Up-dated Eighth Edition
Alzheimer’s Disease Directory of Services for Long Island A comprehensive, one-of-a-kind guide to resources and services available in Nassau, Suffolk, Brooklyn and Queens to individuals and families dealing with Alzheimer’s disease and related dementias. Directory (Print): $50.
For family and professional caregivers...
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Living With Alzheimer’s Your video survival kit This award winning three-part video series was produced especially for Alzheimer’s Disease caregivers by experienced family and professional caregivers. Its wealth of information on coping with the challenging aspects of this devastating disease comes from experts in medicine, research and caregiving. Get it today. You owe it to yourself and those you care for.
New Discounted price :
Beautiful full color poster (24”x36”) with origional design by Miriam Cassell. Makes a lovely gift. All proceeds from poster sales benefit LIAF.
Light of the Heart Meditations for Self-Healing, a CD (also available on audio cassette) with two guided meditations: The Healing Garden surrounds you with love, and The Treasure expands all that is positive and life enhancing. Judi Talit’s soothing voice and gentle words take the listener on a deeply relaxing journey towards a place where the mind and body can heal. Appropriate for reducing caregiver stress, as well as easing Alzheimer’s related agitation.
“A Walk Down Memory Lane” Big Band Favorites sung by Kristin Kovner CD…$15
$15.00
Guidelines to the Caregivers A 60-minute audiocassette. Practical tips for caring for an individual with Alzheimer’s Disease and coping with the stress of caregiving.
$5.00
When Meme Came to Live at My House An aid for parents to acquaintchildren with the reality of Alzheimer’s...$5.00
Name: Address: City/St/Zip:
Information Booklets
Publication Title
BOOKS The 36-Hour Day The “Bible” for Caregivers ...$10.00
Telephone: ( Qty Cost
About Alzheimer’s Disease
1.00
Caring For Someone With Alzheimer’s Disease
1.00
About Choosing A Nursing Home
1.00
Total
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Item
Cost 20.00 15.00 15.00
About Entering A Nursing Home
1.00
About Paying for Nursing Home Care
1.00
LIAF Cookbook Living With Alzheimer’s Video Series The Light of the Heart Meditations for Self-Healing CD by Judy Talit Guidelines to the Caregivers Audiotape
About Hospice
1.00
A Walk Down Memory Lane CD
15.00
About Dementia
1.00
Advance Medical Directives
1.00
About Do-Not-Resuscitate Orders
1.00
10.00 5.00 50.00 20.00
Life-Sustaining Treatments
1.00
The 36-Hour Day When Meme Came to Live at My House Alz Directory of Services Color Poster Information Booklets - Total
Total Cost
(enter total in order form on right)
Qty
5.00
Total Cost (Prices include shipping & handling.
Total
CHANGE SERVICE REQUESTED
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PAID RED BANK, NJ PERMIT NO. 558
5 Channel Drive Port Washington, NY 11050
CALENDAR Upcoming Events... ■ Coming Soon… ASIAN "COPING & CARING" CONFERENCE Date and Location to be announced ■ MEMORIES IN MOTION RIDE / WALK Saturday, May 20, 2006 Long Island University at C.W. Post Campus Brookville, NY ■ 13TH ANNUAL GOLF CLASSIC Monday, June 19, 2006 Sands Point Golf Club Port Washington, NY ■ REGATTA TO REMEMBER Sunday, July 16, 2006 Manhasset Bay Yacht Club Manhasset, NY ■ MEMORY PADDLE LAUNCH Thursday, August 10, 2006 Manhasset Bay Yacht Club Port Washington, NY ■ MEMORY PADDLE RETURN Wed., August 16, 2006 Manhasset Bay Yacht Club Port Washington, NY ■ 5TH ANNUAL PAWS TO REMEMBER PET WALK Sunday, Sept. 17, 2006 Gardiner County Park Bay Shore, NY ■ 19TH ANNUAL REMEMBRANCE BALL Friday, November 3, 2006 The Garden City Hotel Garden City, NY
LIAF Products and Services ■ A Telephone Hot-Line open Monday through Friday, 9 AM to 5 PM. ■ A Resource and Referral Center, the largest of its kind on Long Island, has the latest information about Alzheimer’s disease, including fact sheets, pamphlets, books, magazines, newsletters, article reprints, videos, audiotapes and lists of support groups, nursing homes, day care programs, and related community organizations. ■ Staff Social Workers assist families with much-needed information, counseling, support, referrals and linkages to community-based programs. ■ Early Stage Program that includes weekly support groups plus Al’z Club, a weekly intellectual stimulation and socialization program. ■ The Memory Lane Club, a social model adult day services program, meets five days a week and provides Alzheimer’s clients with stimulating recreational and social activities and much-needed respite for their caregivers. ■ LIAFLine, a Free Informative Newsletter, with a distribution of close to 30,000. Includes articles about research, caregiving, medical developments and other important topics. ■ Support groups for caregivers. ■ Alzheimer’s Companions, an In-Home Respite Program offering companionship and cognitive stimulation to Alzheimer’s patients while caregivers take time off.
■ A Caregiver’s Friend, a telephone “buddy” program pairing trained volunteers with caregivers to offer reassurance, support and education. ■ Living With Alzheimer’s, an awardwinning trio of educational video programs, provides caregivers and health professionals with a thorough and supportive look at coping with Alzheimer’s disease. ■ Annual “Coping and Caring” Conferences and Free Workshops provide caregivers with timely information that can help the Alzheimer’s patient receive the proper medical treatment and help the caregiver cope with the stress of caregiving. ■ In-Service Training for medical, health, nursing home and home care professionals. ■ Alzheimer’s Disease Directory of Services for Brooklyn, Queens, Nassau and Suffolk, a comprehensive publication that assists caregivers with locating services, support groups, community services, nursing homes and other related organizations. ■ Guidelines to the Caregivers, an audiotape with many excellent caregiver tips. ■ The Happy Days Club a socially and physically engaging program aimed towards individuals in the moderate stages of Alzheimer’s disease. ■ A Speakers’ Bureau provides community groups with knowledgeable speakers. ■ Periodic International Research Symposia that assemble the world’s foremost Alzheimer’s researchers to collaborate on new treatments.
Call LIAF at: (516) 767-6856 or send e-mail to: info@liaf.org