Patient navigators are here to assist you. Dealing with a chronic illness like lupus is often overwhelming and sometimes we need help. The LFA, GOC has a team of trained patient navigators that are ready to assist you. To be connected to a patient navigator in your area contact our office at 1(888) NO- LUPUS or email us at info@lupusgreaterohio.org.
Here are some new programs to ask your local patient navigator about:
We have joined forces with Uber Health to provide reliable transportation to your doctor. It is our goal to reduce barriers to care and transportation is one of them. There is no smartphone required! Patients without access to a smartphone or the Uber app will get notifications with ride details by text message or phone call to their landline. Technology should never be a barrier to healthcare. The Uber Health dashboard is HIPPA-supported and was specifically designed for healthcare companies to handle sensitive data, so they can safeguard patients’ information from start to finish. Please contact the office for more information, we might be able to help you with this barrier. There are some limitations and requirements, let us see if we can help. Call 1-(888) NO-LUPUS.
We have partnered with BetterHelp to support you and your wellbeing by providing you with easy and convenient access to professional therapy online. BetterHelp is offering one free month to our constituents. You can sign up today by visiting our website at https://lfaohio.salsalabs.org/ onemothofbetterhelp/index.html. If you have any questions about the program or you would like assistance registering give us a call at 1(888) NO-LUPUS. Just like seeing a counselor in a clinical setting, BetterHelp allows you to connect with your therapist in a safe and private online environment. All counselors are licensed, accredited professionals. Anything and everything you share is confidential. Access your private chat room on any device with an internet connection at any time. Communicate with your therapist as often as you want and whenever you feel it’s needed via text, talk, phone, & video.
Strategies to Embrace Living with Lupus Fearlessly (SELF), a new online self-management program designed to help people with lupus build and enhance skills in four pillars of lupus self-management: managing symptoms, managing stress, managing medications and working with their healthcare team. You can explore this program more on our website by visiting this page. https://www.lupus.org/ resources/self?utm_source=Chapters
Key features of the platform include: - SELF Activity Center This activity portal provides access to resources, tools, and activities that are tailored to the user’s specific needs and can be completed at their own pace. - Symptom Tracker Users can track and make notes about their symptoms daily, so that they can recognize patterns. - Medication Tracker Users can keep track of all their medications in one place. - Journal Users can take notes at doctor’s appointments, jot down questions to discuss at future appointments, or simply write about their mental and physical health. MAGALIVING WITH LUPUS MAGAZINE ZINE
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