FREE NORTHEAST FLORIDA & SURROUNDING AREA’S ONLY MAGAZINE FOR AUTISM SPECTRUM DISORDER
FRIENDS WITH AUTISM ISSUE 2 • APRIL 2018
Top Five Self Care Tips for Autism Parents By Katrina Hayes
| Magazine
AUTISM AWARENESS ACCEPTANCE
Common Threads Among Autism Moms Business Spotlight: Seagull Bakery Exercise and ASD Helping Teens with Their Social and Emotional Needs Autism and Bullying What Autism Means to Me Preparing your Child for Postsecondary Education
ISSUE 2 | APRIL 2018
FRIENDS WITH AUTISM MAGAZINE President/CEO Founder Carrence Bass Editor in Chief Toby DeRoche Inside this Issue Top 5 Self-Care Tips for Autism Parents By Katrina Hayes Common Threads Among Autism Moms By Janeen Herskovitz, LMHC Business Spotlight: Seagull Bakery By Carol Lombardo Helping Teens with Their Social and Emotional Health By Kelly Weedon Noda Exercise and Autism Specturm Disorder By Mark Fleming Autism and Bullying By Toby DeRoche What Autism Means to Me By Chris Regan Preparing Your Child with ASD for Post-secondary Education By Tara Rowe Friends with Autism Resource Listing
EDITORIAL OFFICES 2133 Broadway Ave, Jacksonville, FL 32209 SUBSCRIPTIONS https://makingstridesforautism.org/fwa-magazine.html
We Connect the Community to Autism Disclaimer In no event will Making Strides for Autism or its affiliates be liable for any incidental, indirect, consequential, or special damages of any kind, or any damages whatsoever arising out of or in connection with the use of this publication or its contents or any other organizations referred to in this publication. The views and opinions expressed in the following articles are those of the authors and do not necessarily reflect the official policy or position of Making Strides for Autism or its affiliates. Examples of analysis, treatments, or recommendations performed within this article are only examples. They should not be without consulting your professional medical or therapeutic providers. Copyrights All content and images used on this site are owned or licensed by Making Strides for Autism and affiliates for use on this site only. Unauthorized use is prohibited. Nothing contained herein shall be construed as conferring any license or right under any Making Strides for Autism or affiliate copyright or trademark. Health and Treatment Information This publication may contain information on medical, therapeutic, and health-related topics. This information is not meant to be a substitute for the advice provided by your own physician or other medical professional. You should not use this information for diagnosing or treating a health problem or disease but should always consult your own physician.
FROM SMALL STEPS TO MAKING STRIDES Imagine ALL of the community agencies and businesses working together to improve the quality of life for you and your loved ones with autism. We Did. Finally, there’s a place where families and people on the autism spectrum feel they’re understood and accepted. Making Strides For Autism, Inc. (MS4A) was founded in March 2016. We're a 501(c) (3) nonprofit organization with a social enterprise business model. At Making Strides For Autism, Inc., our goal is to lessen the emotional and financial impact of autism on families and people living in Northeast Florida with autism spectrum disorders (ASD). We are dedicated to providing support, training, and advocacy to those we serve; creating job training and meaningful jobs for people with autism, and to raising public awareness about autism and its effects on families and society. We bring hope to all who have loved ones with autism and focus on connecting with the community to create more opportunities for people with autism. Our families reside in the Northeast Florida counties of Duval, Baker, Clay, Nassau, and St. Johns. We partner with a coalition of agencies, organizations, municipalities, schools, and businesses working together to provide quality services, products, resources, and solutions to the autism community. Through our community partnerships we're able to reach families with unmet needs living in the counties we serve and areas surrounding our region. Making Strides For Autism, Inc. is making impact by creating a more autism-friendly Northeast Florida community.
WE CONNECT THE COMMUNITY TO AUTISM
HELLO READERS! Thank you for reading our second issue of Friends With Autism Magazine. As we continue our goal of connecting the community to autism, you will find several key events for all of us to hopefully take part in throughout the month of April. April as you all likely know already is Autism Awareness month. At Making Strides for Autism, we firmly believe that we should be past this point by now. For us, April is Autism Acceptance month. Through the pages of this issue, you will read articles from both parents of autistic children as well as autistic adults. you'll learn about a local bakery that was founded on the idea that an autistic person is just as capable as anyone else. You will also hear from several contributors who have tips about self-care, exercise, and navigating complex topics like isolation and bullying. I hope you all enjoy this issue as much as I do, and I look forward to meeting as many of you as possible at one of the many events you will see referenced on the following pages and on our Facebook site and web page. Thank you!
We hope you enjoy this one. TOBY DEROCHE Editor-In-Chief
2ND ANNIVERSARY CELEBRATION AND OPEN HOUSE Cheers to 2 years! It’s time to celebrate! We request the pleasure of your company at the Ribbon Cutting Ceremony & 2-year Anniversary Celebration of Making Strides For Autism, Inc.. When: Friday, April 13 at 3 PM - 6 PM. Where: Making Strides for Autism 2133 Broadway Avenue, Jacksonville, Florida 32209 Learn more about Making Strides For Autism, Inc., Our Friends With Autism Initiative, Becoming an Autism-Friendly Business, Meet our Team and Board, Meet Autism Families, and Other Professionals. 3:00 pm Guest Arrive 3:15 pm Brief Speeches 3:30 pm Ribbon Cutting/Group Photos 3:35 pm Refreshments/Light Hors D' Oeuvres, Tours, Mingling/Networking, Kid's Crafts Activities, Door Prizes 6:00 Event Ends Speakers include: Jax Chamber of Commerce, Tina Robbins, Senior Account Manager Disabled Services City of Jacksonville, Kevin McDaniel, Chief, ADA Coordinator Making Strides For Autism, Inc., Carrence Bass, President/CEO Sign up at www.bit.ly/ms4aopening
Top 5 self-care tips for autism parents
Parenting is hard work, and parenting a child with autism brings along a unique set of challenges. For so many of us, it seems impossible to find find time to take care of ourselves when all of your time is dedicated to your family. In this issue of Friends With Autism Magazine, we bring you the top five tips from an autism mom and advocate with practical strategies for Self-Care.Â
Meet Autism Advocate Katrina Hayes MAKE TIME
MAKE IT FUN
FIND RESPITE
Schedule self-care
It's easier to commit
Look for respite
into your day.
to self-care if you
through your insurance,
Remember that it
find something that
state programs, autism
takes 21 days to
really lights you up.
groups, or private
form a habit, so plan
My suggestion is to
companies (like
time to read,
find a Meet Up
Carrie's Care Respite).
exercise, or for
group that focuses
All of our
spirituality. Find a
on an activity you
responsibilities with
time that works for
enjoy. Plus many of
IEPs, doctors, and
you. Morning
the groups also
therapies take a toll,
routines will help to
have disability
and respite is a good
get you going, while
events if you are
strategy to combat the
night routines will
looking for others in
inevitable fatigue. You
help you clear your
a similar position to
can often find
mind and sleep
yours. Check out
professionals with
better. I like
www.meetup.com.
training and
www.thefabulous.co
experience with
for new habit ideas.
autism.
BREAK OUT YOUR COMFORT ZONE Your child might be all about routine and predictability, and you may have acclimated to this need as well. We grow when we get out of our comfort zone. We typically need variety to keep ourselves interested. Personally, I found a Beach Body workout routine that I enjoyed, and recently became certified in the Core de Force fitness program. If you need ideas, visit shufflemylife.com/v7/.
MAKE A GRATITUDE LIST Always remember to be thankful for what you have. Our situation is not typical, and we must find a way to be thankful. We are susceptible to depression when we look back and to anxiety when we look forward. Effective parenting consists of being in a state of presence. Meditating and making a gratitude list will keep you focused on the positive. I'm grateful for my spirituality, a fulfilling career, my son's Eskimo kisses and hearing him sing. I'm grateful that learned to remove toxic influences and that I can focus on the positive. You can find gratitude journals to help (www.chroniclebooks.com/gratitude.html).
Check out www.BeachbodyCoach.com/AutismFitMom for more areas of support. Katrina Hayes is an award winning Autism Advocate, Speaker, and Actress. Above all, she is a positive change ambassador with a vision to empower as many people as possible and be that voice of hope for the youth, ultimately leaving the world in a better state than she first entered it. Katrina is the loving mother and sister to two beautiful souls with Autism who inspire her to be her best self every single day.
3RD ANNUAL WORLD AUTISM AWARENESS KICK OFF
Join us on April 8th as we celebrate the 3rd Annual World Autism Awareness Day and Month! World Autism Awareness Month/National Autism Awareness Day Proclamation Signed by Mayor Lenny Curry and presented by the City of Jacksonville. Community Resource Fair, Speakers, Music, Special Announcements, New AutismFriendly Businesses, Kids Activities, MS4A NEW Popup Sensory Tent, Sensory Bag Application Opens to Families, Daily's Dash Serving Coffee & Cocoa, Bubbles Are Our Super Power, Kee2Beauty By Design Face Painting, Sports Team Appearances, Giveaways, and More! Over 60 vendors are participating in the resource fair! This event is FREE and open to the public. Sponsored by the City of Jacksonville's Disabled Services Division and the Mayor's Disability Council! Interested in volunteering or being on the committee? Signup at www.bit.ly/ms4avolunteer Our Volunteer Coordinator Ashley Greene will contact you after submission. Interested in sponsorship? Email friendswithautism@makingstridesforautism.org
FIRST ANNUAL FRIENDS WITH AUTISM 5K AND COMMUNITY WALK THANK YOU ALL FOR THIS HUGE SUCCESS!!! Thank you to all of the runners, sponsors, vendors, volunteers, and supporters who came out to our first 5k run in February. The event was an overwhelming success, and a wonderful example of connecting the community to autism.
Congratulations to the winners! We had runners from age 6 - 70, and they were all inspiring! Special congrats to the top overall winners Bonny Turnage (21:29) and Jeremy Rushok (19:48).
FUN FOR EVERYONE!
THANKS TO OUR SPONSORS
We had a beautiful day for our run, and everyone had a blast! It was wonderful to see nearly 200 participants come out for our first 5k. We had people from all over Northeast Florida/South Georgia and as far as the St Pete/Tampa Bay area come together in support of this important movement.
We also want to give a special thanks to all of our sponsors as well. City of Jacksonville Disabled Services Mayor's Disability Council Invo Behavior and Therapy Services Brain Balance Center of Jacksonville Proactive Life Skills Ultimate Racing, Inc.
CONGRATS TO THE GRANT WINNERS! First Place - Noah's Arc of Support - $500 (medically needed items, assistive technology, medical copays, etc.) Second Place - Team Hunter - $250 (medically needed items, assistive technology, medical copays, etc.) Third Place - Oak Hill Academy-Duval Schools/Oak Hill Elementary School - 5 Sensory Bags for their classrooms
Common Threads Among Autism Moms By Janeen Herskovitz, LMHC
I've been organizing and leading therapeutic support groups for mothers of children on the autistic spectrum since 2008. During my second semester in graduate school, a series of serendipitous events led to the opportunity to design and lead a group for a local non-profit organization, and it took off like wildfire. During the past six years, I've met hundreds of mothers who have children with varying degrees and severity of autism and related disorders. Often, the children are so different, that if you put them all in the same room together they wouldn't appear to all have the same disorder. What's remarkable is that their moms all have several things in common that transcend the limits of ethnicity, race, finances, religious beliefs and marital status. Often, these mothers would never have even been in the same room together, let alone become a network of support for one another. Despite their differences, I continually see striking similarities among these women. Technically, I don't think I can call it "research", but rather "clinical observations" concerning the majority of the mothers who have attended my groups. Here are just a few commonalities I've noted based on the data I've gathered. Grief Having a child diagnosed with autism spectrum disorder is devastating. Every single one of the moms I've met who have attended my groups have substantiated this experience. You won't often hear me use such a definitive qualifier as "always" or "in every situation", but I can honestly say that every woman who has attended my groups has described the experience of their child's diagnosis as a difficulty that changed their lives forever. The process of grieving the loss of a healthy child and learning to live with a "new normal" is one of the greatest challenges these women have had to endure. Unfortunately, this grief cycle does not end with traditional "acceptance and closure", as it is not a death in the traditional sense, but rather the death of a dream and a relearning about the new circumstances that will change their family forever. It's cyclical grief and it's dynamic and changing in nature. Sound a bit dramatic? It's not. It's their reality. Autism effects almost every major functioning process of a child: communication, behavior, sleep, health, social interactions, education, and activities of daily living. If that's not enough, these kiddos are often notorious for unknowingly putting themselves in harm’s way. This creates a perfect storm of heightened awareness on top of the grief cycle. An exhausting combination to say the least.
Fear and Worry It's no surprise that ASD mommies worry. They worry about the future, about what will happen after they die, about their marriage surviving the stress, and how this experience will affect their other "typical" children. These are at the top of the list. Most of them worry throughout the day, fearing the dreaded "call from school". This is the call that usually starts off, "Mrs. Jones, this is Normalville Elementary School calling. Little Jimmy jumped into the retention pond at recess today. He's fine, but a little wet, and we think it would be best if you picked him up." (True story. Names have been changed to protect identity.) Feeling Misunderstood Everyone has experienced being misunderstood in their lives, but it seems these moms have more than their fair share. While moms of kids who have disorders such as Downs Syndrome, a physical disability, or a terminal illness seem to receive a great deal of compassion and kindness from others, those of us with autistic children find this area lacking. I overheard one ASD mom say, "When your kid is diagnosed with cancer, or your spouse dies, people ask how they can help. But when your kid is diagnosed with autism, no one brings casseroles." Judgement is often the alternative. Extended family start telling you your child needs harsher discipline. Some friends try to help by telling you their kids "do the same thing", unaware that their attempt to normalize your situation just made it worse. Strangers share disapproving glances and "you're-a-badmom" stares as your twelve-year old child melts down in the supermarket check-out line. Teachers accuse us of being "overly emotional" or "unstable" when we tear up during an IEP meeting. It's rough. Bravery, courage, and a sense of humor. Before my readers accuse me of being too negative, let me end on a positive note. In all of the data and information I have collected over the years, I have consistently seen that autism moms have a remarkable level of courage. And they can laugh; At themselves, at their situation, and at the ridiculousness that accompanies parenting a child with ASD. Now, keep in mind that my data is skewed a bit, as my sample is all autism moms who have attended my support groups. This means these moms in particular know they need a little help, admit it, are willing to make time for their own self-care, and commit to the group process. As John Wayne said in a statement about courage, they "...are afraid, but saddle up anyway." They make courage a daily practice and they live researcher Brene’ Brown's statement that "Courage starts with showing up and letting ourselves be seen." Considering the upstream swim they endure, against the waves of grief, fear and judgement, their courage, sense of humor and connection with others in the group helps keep their heads above water when they feel like giving up. As a group leader, and fellow autism mommy, they often inspire and strengthen my own resolve to "just keep swimming." Janeen Herskovitz is a licensed mental health counselor in the state of Florida and owner of Puzzle Peace Counseling, LLC. She earned her Bachelor’s degree in Special Education from Rowan University in New Jersey, (1995) and her Masters of Arts in Mental Health Counseling from Webster University (2010). She is a trained as an EMDR Trauma Therapist, and writes as a Topic Expert contributor on Autism Spectrum at goodtherapy.org. She has been married to her husband, Joe since 1995, and together, they have two teenage children.
Janeen’s private practice, Puzzle Peace Counseling is located in Ponte Vedra Florida and helps autism families live more peaceful lives. Her podcast, Autism Blueprint, covers a variety of topics surrounding autism in the home.
BUSINESS SPOTLIGHT: SEAGULL BAKERY Seagull Bakery is a full service, online bakery, begun in November 2013. It provides classic and contemporary desserts including vegan and gluten free, all made from scratch. Simply go to the website www.seagullbakery.net to order online, and arrange either delivery, pickup, or mail order! Seagull Bakery was created by the parents of Lara Lombardo, who has autism. When she entered the job market, there were no appropriate opportunities for their daughter. Because of this gap, they eventually started a bakery to ensure her career. The business has been successful in its mission to employ, teach, .and mentor adults and teens on the spectrum. The word “inspire” should be added to that statement, because the bakery has been an inspiration to many families, whose children are entering the employment realm. From a young age, Lara loved baking at her home in Jacksonville Beach. After her mother heard Temple Grandin speak about the importance of guiding teens on the spectrum towards an early career path, she encouraged Lara towards a career in baking. But with Lara’s learning differences and behavior challenges, traditional culinary classes weren’t a suitable match for her. It became necessary to find an alternate way for her to learn skills and develop her creativity..
Her parents used their local connections, going deep into the community to find an entry level job for a few hours a week at a bakery in Avondale. Also, a pastry chef who lived nearby went to her home twice a week for a year, and taught her one-to-one. Other chefs came forward and some talented neighbors offered to teach her their favorite recipes. In this quiet, focused manner she learned many secrets of baking and began selling her wonderful treats to friends and family. A cottage industry was started, and because of the excellent desserts and remarkable story, the bakery boomed! The bakery quickly outgrew her parent’s kitchen, and in order to sell retail, the bakery moved into a commercial kitchen on Southside Blvd, where it remains today. It shares space with The Perfect Pear Catering Company, whose owner took the fledgling bakery under her wing. Over 5 years later, and Seagull Bakery is still a thriving business, looking to remain as a beacon of light in the world of autism employment Seagull Bakery is looking to expand into a retail space in the near future. Meanwhile they offer baking classes for schools and transition programs, and have plans for a permanent classroom to teach individuals on the spectrum the secrets of baking, both for enjoyment, as well as career exploration. There’s a tremendous need for training and employment opportunities for people on the autism spectrum. This population has a wealth of talents and with a supported environment, our “kids” can become very employable adults! But as Seagull Bakery illustrates, it takes a true collaboration with the community, Their story spotlights the importance of community partners, for businesses large and small to step up and be a part of this new normal, and to help with the gainful employment for adults with autism. Please support Seagull Bakery, The Perfect Pear, and other businesses who are helping our autism community.
UNIDOS POR EL AUTISMO Unidos por el autismo es un grupo de apoyo para familias de niños latinos con autismo. Nuestro objetivo es informar y educar a la comunidad latina en nuestra área sobre autismo, recursos, servicios comunitarios para mejorar la calidad de vida de nuestros niños.
La reunión de Unidos por el autismo se llevará a cabo el tercer jueves de cada mes, de 6:00 p.m. a 8:00 p.m. en varios lugares. Debido a un nuevo entorno con gente nueva, encuentre una niñera para la noche.
¡Cada mes tendremos un padre, compañía, agencia o terapeuta como nuestro orador invitado con comida, bebidas y para disfrutar! ¡Esperamos ver caras familiares y conocer otras nuevas también!
HELPING TEENS WITH THEIR SOCIAL AND EMOTIONAL HEALTH By Kelly Weedon Noda MA, BCBA I’m a mom to two teenage girls. When I tell people this, some laugh knowingly, but most offer pity. It’s an interesting twist since the majority of my career I’ve have helped hundreds of parents get their teens to do homework, improve their reading and study skills and more. I now work with teens who are socially isolated or rejected by their peers. Parents ask me to intervene when their kids are being teased or bullied, or if they’re not developing or maintaining friendships. As moms and dads, we often hope it’s a phase and that it will get better. But the science of behavior shows that negative experiences will more likely discourage teens from trying to make friends after a while. This puts their mental health at risk. So what can be done?
NEGATIVE EXPERIENCES WILL MORE LIKELY DISCOURAGE TEENS FROM TRYING TO MAKE FRIENDS. SO WHAT CAN BE DONE?
Tips for parents of teens showing signs of peer rejection or social isolation: Tip 1- Use positive reinforcement For many kids, especially those with ADHD, anxiety or Autism, social situations are hard. Celebrate the attempts and successes, no matter how small. If they have a setback, address it and move on. Staying positive and recognizing hard work ensures they’ll keep trying. Tip 2- Encourage self-awareness Sometimes teasing is really embarrassing feedback about hygiene or something else hard to hear. Everyone has to recognize they aren’t perfect. If we know what we need to work on, we’re able to practice and develop skills in that area. Acknowledging a weakness in social situations, such as having trouble keeping a conversation going or not knowing how to play fair, is the first step in building social skills. Tip 3 - Help them find an appropriate source of friends Your teen might be trying to fit in with a group that doesn’t accept him. You can suggest trying another group based on common interests. If they haven’t been able to make friends at school, enroll them in an extracurricular. Free activities at the library or even volunteering gives them exposure to peers who share their interests and provides practice and opportunities for developing relationships. Tip 4 - Coach them through tough situations When teasing, bullying, rumors or gossip happen, give advice based on what other teens do. Tattling or having a parent step in can make things worse. Teach your teen to shrug it off and make it apparent to the teaser that it doesn’t bother them. Having a group of friends also protects against bullying. Of course, if bodily harm is at stake, they need to involve an adult. Tip 5 - Enroll in a social skills class Social skills classes are available to teens with and without diagnosed disabilities and can help when a teen is experiencing trouble making or keeping friends. The PEERS® program is a parent-assisted, research-based program that consists of 14 sessions to teach conversation skills, electronic communication, appropriate uses of humor, sportsmanship, hosting gettogethers, handling teasing and bullying and more. For more information on PEERS®, visit http://www.proactivelifeskills.org/social-skills--peersreg.html
Kelly Weedon Noda, MA, BCBA, is the Owner/Director of Proactive Life Skills (PLS) Therapy & Learning Center, an academic and behavioral support center for individuals with developmental and intellectual disabilities. Kelly has worked with teens since 2007 as a language arts/English teacher, tennis coach, ESE teacher and ABA therapist. She earned a master of arts in English from UNC-C in 2007 and a master of arts in Exceptional Student Education with a concentration in applied behavior analysis from UWF in 2017.
EXERCISE AND AUTISM SPECTRUM DISORDER
When someone thinks about what therapies are needed when their loved one is diagnosed with Autism, they usually think about improving socialization skills, improving mood/behavior, decreasing meltdowns, and improving overall cognitive functioning. What if I told you there is a therapy that can help with all of those that also improves overall health and wellness of an individual? That would be exercise. Yep, that’s right. Exercise has been scientifically proven to help all of those areas.
BY MARK FLEMING
Before we get to the results from some of the studies though it’s good to take a look at some other areas. Like the current health of the population. Did you know that 17% of children with Autism are obese? This is on par with the national average. That is not something anyone should be proud of when it comes to comparing to the rest of the country. Children with Autism also spend less time being physically active during school, like P.E and recess, than their peers. This lack of activity can account for some of the obesity issue. When thinking of how to get this population motivated to exercise, it’s good to know what barriers there may be.
EXERCISE IMPROVES SOCIALIZATION SKILLS, MOOD AND BEHAVIOR, DECREASING MELTDOWNS, AND IMPROVES OVERALL COGNITIVE FUNCTIONING The majority of barriers tend to be perceived by the individuals loved ones, like not having the intellectual ability to exercise or that there are no organizations or programs out there for this population in the exercise realm. Let me say this right now, no matter someone’s intellect they can exercise. With all the different equipment and tools made available along with highly trained individuals focusing to work with this population, there is little excuse from that area. There are also numerous programs and organizations looking to help in the exercise areas as well, it just takes some searching. The real barriers are muscle motor deficiencies and being left out of playing games at school. Both can be overcome but need to be addressed to get past them so this population can get adequate exercise. Now, we can talk about the benefits that exercise has solely for this population.
Besides all the great health benefits exercise can grant this population, like reduced chances of diabetes, cardiovascular disease, and obesity, it can also help calm the mind and lead to a reduction of numerous behaviors that may impede an individual’s daily life. These behaviors include both stereotypy behavior and meltdown-like behavior that are usually brought on by some type of stress. With these behaviors diminished, then other areas can improve like attention span and socialization with peers. With increased socialization and attention span, then an individual’s overall cognitive functioning will improve. These changes will improve mood and subsequently behavior as well. Now that I have persuaded you that exercise is paramount for someone with Autism, there are a couple guidelines to understand. First off, exercise induces stress as well as reduces it, meaning that you want to start off small and work your way up so that both body and mind can adjust to this new therapy. Second, understand the surroundings of the area where either you/loved one is exercising. Since stress is already being placed on the body any sensory issues may seem multiplied. Take extra breaks if needed. Third, use simple exercises that can be easily taught and are functionally appropriate. Many people forget the muscular imbalances and muscular issues some individuals with Autism face and all of them need to be accounted for to prevent injury or frustration which both lead to quitting exercise in the long run. Lastly, listen to the individual/yourself. The only person that understands their body is that person. If there are signs of fatigue or anxiety, just create another break or rest. Exercise is supposed to be for the long haul, not just for now.
Author Bio: Mark Fleming is an autistic adult with a Bachelors and Masters degree in exercise science and owns/operates his own personal training business for individuals with Autism and related disorders. www.puzzlefit.com
Autism and Bullying BYÂ TOBY
DEROCHE
Bullying has become a daily problem for children of
At this point, there is a well-established link
all ages in schools. For kids with autism, this problem
between bullying and the elevated risk of suicide in
is even greater and more complicated. Children with
autistic children. No one should find this surprising
autism struggle with social interactions, which leads
when people on the spectrum as a group are
to increased bullying. To make matters worse, they
excluded from most activities, assumed to be
often miss out on the benefit other children sticking
incompetent, and treated like they are less
up for them. The only recourse left is to reach out to
important than their peers. Now is the time to push
teachers and parents. Teachers could be intimidating,
for acceptance. To help you in your efforts, I want to
and all children are known to keep things from
share three tips you can use, especially during
parents. Even in the best environment, the situation is
Autism Awareness Month:
challenging for those with limited communication skills.Â
Tip 1. Advocate for your child. Talk to your kids, talk to your neighbors, talk the teachers, and in some
The problem is not limited to the school setting. Even
cases even talk to your kids class. Explain that some
in your own neighborhood, your children could be
kids think and act differently, but no matter what
bullied by others. With autism, our children do not
they should be treated equally.
always pick up on the social cues to know when others are harassing them. At least not right
Tip 2. Include anti-bullying measures in your formal
away. When they realize the kids they thought were
plans. If you have an IEP or a therapy plan, include
friends were actually making fun of them, they will
education and training for your child to recognize
likely be crushed. Of course this is compounded by
and react appropriately to bullies.
having to see these same kids at school the next day. The sense of isolation increases and the problem
Tip 3. Push for complete acceptance. We are past
grows exponentially.
the point of needing autism awareness, and we are now pushing for complete acceptance. Treating others differently because of a autism is totally unacceptable in schools and among neighbors.
What Autism Means to Me BY CHRIS REGAN
My very first exposure to Autism, even though I had no concept of it at the time, was when I first watched the 1980s movie Rain Man when I was a young child. The main character of the movie is Raymond Babbett, a man with Autism who is portrayed as an absolute genius with math, numbers, probabilities, and remembering things throughout history. On the other hand, he was unable to grasp many of the common situations around him. His social skills were mostly non-existent, and he had extremely rigid personal choices, preferences, and routines. His brother, Charlie Babbett, was initially a self-centered, egotistical jerk who, once he recognized Raymond’s genius intellect, exploited him in Vegas to win money to pay off his personal debts. However, the more time he spent with Raymond, the more Charlie began to learn that his brother really did care about him despite all his issues. In the end, Charlie became more understanding and loving of Raymond.
Rain Man made a strong impression on me, because I thought that Autism was only classified as a severe disability to the degree displayed by Raymond. When I was officially diagnosed with Asperger Syndrome, a milder form of Autism, in the fifth grade, I didn’t know what to think at first. I doubted myself and believed that I was inferior to all other students at my private Catholic school. I was extremely scared when my family decided to switch me over to the public school system, because I had never had any exposure at all with this type of setting. However, the more that I learned about the special services and assistance available to me, the more comfortable I became with utilizing these services. I ended up feeling more confident in myself.
Also, I noticed at lunch that there was a special table where the same group of students sat each day, and two of the students were in wheelchairs. One day, I decided to ask them if I could sit with them, and they said I could. From that day on, I ate lunch with them every day. As I got to know them better, I discovered that each person had a disability as well. Some of them had Cerebral Palsy, some of them had ADD/ADHD, and some of them even had Autism/Asperger’s just like I did. I began to realize that I was not alone, and that there were people out there dealing with issues just like I was, for better or worse. It gave me a new perspective on how I viewed myself, as I finally saw that I was not an outcast or freak. Autism doesn’t just mean one thing. Autism encompasses a wide spectrum of diversity. Some people may have it easier, and some people may have it harder. I want to help people everywhere see that Autism does not only mean a condition where people have severe handicaps and may never be able to be independent. I want them to see that Autism includes people can be higher functioning just like me, have the potential to decide their own destiny, and become empowered, independent self-advocates. I couldn’t be any prouder of myself for how far I have come, and I desire to help others finally see that people with Autism everywhere deserve the same chances and opportunities as everyone else.
About the author Christopher Michael Regan is the new Youth Advocate at Parents Of the Panhandle Information Network, the North Florida program of the Family Network on Disabilities. As a Youth Advocate, he travels throughout the North Florida region conducting special workshops and conferences for youth and young adults with disabilities. He possesses extensive personal and professional history with regards to helping them become empowered self-advocates who are able to achieve a greater level of success and independence. Christopher's mission is to help youth and young adults with disabilities everywhere recognize the potential they have and take advantage of the resources out there that allow them to reach it.
PREPARING YOUR CHILD WITH ASD FOR POSTSECONDARY EDUCATION By Tara Rowe Assistant Director of THRIVE at UNF
Preparing your student for the exciting journey of postsecondary education can be both exhilarating and frustrating. As more students with disabilities graduate high school and attend postsecondary education, it is imperative that parents begin the transition process as early and as soon as you can! One of the ways parents can prepare for the next step in your child’s life is to familiarize yourself and your student with the specific requirements, resources, and steps needed to transition from high school to college. Here are a few ways you can start early and start now: Documentation for disability registration must be current (within 3 years of attending the institute) and must come from a licensed professional (this means no IEP’s and no school recommendations). Familiarize yourself and your student with the policies and laws that protect your student. Note: IEPs and IDEA are not eligible/permissible in any college/university setting Review resources and supports offered by the campus disability office – if you are unsure, contact the main office and ask! Attend as many parent information sessions as possible and ask questions! Ask your child’s transition specialist what areas your student may struggle with in a postsecondary education setting. These wonderful resources know what is needed to be successful after high school. If your child is not able to answer/complete the tasks listed below, you can start by working and practicing these very important skills needed to be successful at UNF!
THE EARLIER STUDENTS START IN PREPARING FOR LIFE AFTER HIGH SCHOOL, THE LIKELIHOOD OF SUCCESS ALSO INCREASES
For students to answer honestly: For students to answer honestly: Can you wake up in the morning by yourself and be ready for class by yourself? Can you remember to take medications when they are required without needing to be reminded by anyone else – and can you notify your doctor/parents when you need to refill your meds? Can you ask for help when you need it? Are you able to manage your time between work, school, and leisure? Are you able to sit in a class and take notes without any help? Are you able to sit in class without interrupting the teacher? The questions listed above are only a few of the important skills needed to be successful at UNF. These are skills that can be learned now and the sooner you can master each of these, the more comfortable and confident you will feel when you start at UNF! Research has shown that the earlier students start in preparing for life after high school, the likelihood of success also increases (Kohler, Gothberg, Fowler, & Coyle, 2016). In order to make sure that your student is ready for UNF, it is important to recognize that there are specific skills and expectations required for students that can be drastically different than those in high school If you are not sure, who can you ask?
Reference: Kohler, P. D., Gothberg, J. E., Fowler, C., & Coyle, J. (2016). Taxonomy for transition programming 2.0: A model for planning, organizing, and evaluating transition education services and programs. Western Michigan University. Available at www.transitiona.org About the Author: Tara Rowe is the assistant director of THRIVE at UNF. One of the original creators of THRIVE, Tara has extensive experience working with college students with ASD and provides trainings, workshops, presentations, and much more nationally. For more information about THRIVE, check out our website at: www.unf.edu/drc
Autism is an “invisible� disability and as such it is important for families and people on the spectrum to feel more comfortable and welcome in public places. The Friends With Autism Community Resource Directory is here to connect families, people on the spectrum, and the community together. Businesses on this directory have a level of understanding and acceptance of autism. Please understand unless the business is a direct autism provider, the staff does not have extensive training in autism. However, they have an attitude of acceptance and a willingness to learn. In the future these businesses will be easily identifiable by the Friends With Autism identification branded logo displayed on their websites and business doors or windows. This directory is provided for informational purposes in the hope that families and individuals living in Northeast Florida and surrounding areas will more easily find providers, resources, and businesses to meet their individual needs. The inclusion of a particular provider or business is not an endorsement of that provider or business by Making Strides For Autism, Inc. Making Strides For Autism, Inc. reserves the right to refuse to include any organization, business, or group on the Friends With Autism Community Resource Directory.
BEHAVIOR ANALYSIS SUPPORT SERVICES Angela Adelinis (877)823-4283 http://behavioralsupports.com/
CORNERSTONE SPECIAL EDUCATION ALLIANCE 101 Century 21 Dr, Suite 112 Jacksonville FL 32216, US (904)570-9776 http://www.cornerstonesea.com/
DISABLED SERVICES OF JACKSONVILLE 117 W. Duval St.,Suite 205 Jacksonville, FL 32202 Telephone: (904) 630-4940 http://www.coj.net/departments/par ks-and-recreation/disabledservices.aspx
HEAL FOUNDATION P.O. Box 140 Ponte Vedra, FL 32004 (904)716-4198 http://www.healautismnow.org/
INVO BEHAVIOR AND THERAPY SERVICES J2701 N. Rocky Point Dr. Tampa. FL 33607 (800)356-4049 support@invotherapies.com
FAMILY NETWORK ON DISABILITIES (POPIN) Kathy Powell 2196 Main Street, Suite L Dunedin FL 34698, US (800)825-5736 http://fndusa.org/
MAKING STRIDES FOR AUTISM, INC.
2133 Broadway Ave Jacksonville FL 32209, US (904)862.6040 https://makingstridesforautism.org/ info@makingstridesforautism.org
NORTHEAST FLORIDA ADVOCATES FOR AUTISM AND RELATED DISABILITIES Yulee FL, US (904)624-6148 https://www.facebook.com/NEFLadvocates
PROACTIVE LIFE SKILLS /PLS THERAPY & LEARNING CENTER 13121 Atlantic Blvd, Suite 200 Jacksonville FL 32225, US (904) 491-2111 http://www.proactivelifeskills.org/
SEAGULL BAKERY
3724 Southside Blvd Jacksonville FL 32216, US (904)930-7240 http://www.seagullbakery.net/
SPECTRUM SIGNS & GRAPHICS Doyle Haynes 3653 Regent Blvd, Suite 402 Jacksonville FL 32224, US (904)281-9999 http://www.spectrumsignsfl.com/
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The directory is now available online to visitors across Northeast Florida and surrounding areas. It has many features and more opportunities for you to connect with an ever growing number of visitors to our site. By becoming part of the Friends With Autism Community Resource Directory, you are making your information available 24/7 to families, caregivers, educators and other professionals who help families of children with autism in Northeast Florida and surrounding areas. Your business information will be transferred by Making Strides For Autism, Inc. to a free basic listing if you are currently on the Heal Foundation resource directory. All listings have the option to upgrade. Your directory listing are controlled entirely by you via a members interface where you can log in, edit details, add photos & videos, share events, and even special promotions to advertise deals and offers to your customers. You also have the opportunity for banner advertising. We hope you
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Available Levels Free Listing Basic listing on the Friends With Autism Community Resource Directory. Includes: Business Name, Address, Phone, Email, Fax, Website, and use of Friends With Autism Identification Brand Logo. Red Level Listing ($50/annual) Everything in the Free Basic Listing. Plus: Business Logo, Business Tagline/Short Description, Ability to Add Events to the Event Calendar, Basic Listing Added to the Friends With Autism Resource Magazine Directory. Blue Level Listing ($150/annual) Everything in the Free Basic and Red Listing. Plus: Links to Your Social Media Pages, Detailed Business Description, Photo Gallery for Your Profile, and Ability to Add Discounts, Deals, and Coupons.
like our new community resource directory service. Making Strides For Autism, Inc. reserves the right to reject any entries that we believe are not appropriate for our directory. Please note that your submission will be reviewed and verified before it is placed into the directory. Making Strides For Autism, Inc. makes the final decision on which businesses, groups and organizations are included
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