Stepping Stones NH 2016 2017

Stepping Stones A guidebook for people with disabilities, their families, and the professionals who support them

NH 2016-17

A specialty publication of Parenting New Hampshire, sponsored by

OUR MISSION:

“Dignity, full rights of citizenship, equal opportunity, and full participation for all NH citizens with developmental disabilities.” COUNCIL MEMBERS: Kristen McGraw, Chairperson Katherine Epstein, Vice-Chairperson Jennifer Bertrand Karen Blake Denise Colby Jeff Dickinson Adrienne Evans John Fenley Kenda Howell Kristin Ingram Lynne Clay Lori Noordergraaf Michele Petersen Jim Piet Todd Ringelstein Michelle Schladenhauffen Mary Schuh Tracy Walbridge Elizabeth Webster

COUNCIL STAFF: Isadora Rodriguez-Legendre, Executive Director David Ouellette Chris Rueggeberg Mary Lawson Mikayla Collins

OUR BELIEF: We believe that citizens of all abilities are fully able to participate and contribute meaningfully to our society when given the supports and opportunities they need. OUR WORK: We work to give people with disabilities a strong voice and to bring groups together to plan and build a better life for all NH citizens with developmental disabilities.

On behalf of the NH Council on Developmental Disabilities, Welcome to Stepping Stones NH!

www.nhcdd.org • (603) 271-3236 • 2½ Beacon Street, Suite 10 Concord, NH 03301-4447

Table of

CONTENTS

4 Welcome 7 Reaching New Heights 11 Finding the Perfect Match 14 Looking for a Job? 18 Family-School Partnerships 20 College: Not Out of the Question 22 More than Just a Camp 24 How to Get the Services and Support You Need 25 Resource Guide

7 On the cover: Read about Chris Waddell and his many accomplishments on page 7.

Our Sponsors New Hampshire Council on Developmental Disabilities 2 Â˝ Beacon Street, Suite 10 Concord, NH 03301-4447 603 271-3236; www.nhddc.org

Crotched Mountain Foundation 1 Verney Dr., Greenfield, NH 603 547-3311; www.crotchedmountain.org

The New Hampshire Council on Developmental Disabilities assists individuals and families advocate for the necessary policies, programs and supports to enable people of all abilities to live in dignity, with full rights of citizenship, equal opportunity and full participation. The Council initiates activities and projects for people with disabilities that create positive, long-term change to participate in all aspects of community life and supports community initiatives that promote full citizenship and inclusion.

Crotched Mountain offers a comprehensive array of services to help children with disabilities learn, achieve, build new skills and participate in life to the fullest. Services on our Greenfield, NH campus include a special education school, a rehabilitation hospital that specializes in recovery from brain injury and complex medical conditions, outpatient developmental pediatrics, outpatient developmental physical therapy for children and audiology services. Our accessible recreation and sports program (CMARS) brings children and their families together for outdoor activities including skiing, kayaking, cycling and more. ATECH Services in Concord helps children throughout the state to access their world through assistive technology and clinical therapies. Young children with autism benefit from our Applied Behavioral Analysis treatment centers in Concord and Manchester.

Summer/Fall 2016

Dear Stepping Stones NH Readers and Supporters: In this issue of Stepping Stones NH, our main focus is on adult success stories as well as the resources available to create those stories. We would like this issue to inspire other adults with disabilities to strive for success in reaching their goals. We at Stepping Stones NH have always had the intention to change the perception of disabilities and show everyone what people can do when they have the drive to succeed. In this issue of Stepping Stones NH, you will not only read about how several New Hampshire residents achieved their goals, but also how others can do the same. Whether it is finding a job or becoming an active member of the community, anything is possible. Also, read the story of Chris Waddell, a paraplegic who climbed to the summit of Mount Kilimanjaro, and went on to create the nonprofit organization One Revolution — whose goal is to turn the perception of disability upside down. Throughout this issue, we hope you will get to know the different resources that have led many adults in New Hampshire to work with their disabilities and be happy and successful. You will read about NHTI’s Disabilities Services library — located in the Academic Center for Excellence — and how Vocational Rehabilitation can help you as it has helped others. Additionally, check out the useful article about People Centered Planning. We sincerely hope you enjoy this issue and thank you for your continued support.

David Ouellette, Director of Projects david.l.ouellette@ddc.nh.gov; 271-3236

Check out our Facebook page, which features information, events, conferences and workshops that pertain to developmental disabilities issues in New Hampshire: facebook.com/NHCDD. Also, you can go to our online resource guide at nhddresources.org.

4 www.steppingstonesnh.com

Stepping Stones

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Stepping Stones NH is published each year by McLean Communications 150 Dow Street, Manchester, NH 03101 (603) 624-1442, fax (603) 624-1310 WWW.steppingstonesnh.com Please forward any inquiries or correspondence to 150 Dow St., Manchester, NH 03101. For editorial information, please call (603) 624-1442, x157. For information on how your company can advertise in Stepping Stones NH, or on the Stepping Stones NH website, steppingstonesnh.com, call (603) 624-1442, x154. ©2016 McLean Communications, LLc All rights reserved. Reproduction in whole or part without written permission is not allowed. Articles and advertisements in Stepping Stones NH do not necessarily reflect the opinions of the publisher. We do not assume responsibility for statements made by advertisers or editorial contributors. The acceptance of advertising by Stepping Stones NH does not constitute an endorsement of the products, services, or information. We do not knowingly present any product or service which is fraudulent or misleading in nature.

Building Foundations That Last a Lifetime…

Your Success Is Our Mission Some of the best New Hampshire job candidates are able-bodied workers with disabilities. These are people who don’t let the little things get them down, and who know how to solve problems and work around obstacles. NHVR works with both youth and adults with disabilities alike, providing each with the services that they need to prepare them for today’s workforce. If you’re interested in hiring a qualified worker with a disability, or if one of your valued employees becomes disabled and you want to keep them on the job, give me a call. I’m Jim Hinson, and I specialize in working with employers in your situation. I can help you with your questions about Workforce Accommodations, Financial Incentives, Employee Retention, Staffing, Support Services, and much much more. Give me a call. I look forward to working with you.

Statewide Program Coordinator Corporate Relations

Offices in Berlin, Concord, Lebanon, Keene, Manchester, Nashua & Portsmouth. Give me a call at 603-271-7093 today!

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Imagine the Possibilities When a disability makes playtime, school or home activities challenging for your child, contact Crotched Mountain’s ATECH Services. From switch-enabled devices to iPad apps for learning and communication, our innovative and customized assistive technology solutions can open up a world of possibilities for your child. • Applied Behavioral Analysis • Augmentative Alternative •

Call today for an appointment! 603.226.2900

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• • • •

Communications Assistive technology Home modifications Used durable medical equipment Vision & hearing consultations Wheelchair seating

Navigating the world of developmental disabilities can be confusing, frustrating, and overwhelming at times. You may feel lost. You may be unsure of what options you and/or your child have. That’s why the My Opinion Matters blog and forum were created. Parents, self-advocates, and professionals from all across New Hampshire have a place to share their stories, experiences, and tips. Have a question? Visit the My Opinion Matters forum section of the site and ask for advice. Your opinion matters, and we’d love to hear it. Visit MyOpinionMattersNH.com to read more personal stories about people in New Hampshire. And don’t forget to share your own story, too!

57 Regional Drive, Suite 7 Concord, NH

STEPPING STONES NH • 2016-2017 5

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Reaching new by Bill Burke

ummiting Mount Kilimanjaro is an extraordinary feat. Doing it without the use of legs is unheard of. Yet it’s the kind of challenge Chris Waddell, who became the first paraplegic to ascend the legendary mountain in 2009, seems to relish. Waddell, a 47-year-old author, athlete, adventurer and TV personality, tours as a motivational speaker to help spread the word about turning the perceptions of disability upside-down. “My mission is to tweak your perspective just a little bit so that you see your world differently, thereby allowing you to be more productive, more efficient and more purposeful and happier,” Waddell says of his mission. It’s a charge that’s led him around the world – and up the slopes of Mount Kilimanjaro. Waddell, who grew up for a time in Rindge, was a promising young skier at Middlebury College in Vermont in 1988 when an accident at Berkshire East Ski Area left him paralyzed from the waist down. A ski popped off in the middle of a turn during a practice run, and in the ensuing fall he broke two vertebrae and damaged his spinal cord. “I had no idea how he’d react [initially,]” his brother, Matt Waddell said. “He’d had injuries before — a torn ACL, broken ankle — but there is a short playbook for those recoveries. I wasn’t aware of any short recovery playbooks for severe spinal injuries, so I had no idea what to expect.

Chris Waddell can do anything, including climbing one of the tallest mountains in the world

Above: Growing up on skis in Rindge; Waddell was gifted his first pair at birth. Below: Waddell was a promising young skier at Middlebury College before a ski accident left him paralyzed from the waist down.

STEPPING STONES NH • 2016-2017 7

But it became pretty clear early on that he wanted to get right back to his life. That then became the expectation that he’d push right ahead, get back to school, have a friend give him a piggy-back ride to a class on the third floor that had no elevator, get back on skis, going back out on the tiny mountain in western Massachusetts where we first learned to ski.” According to Waddell family lore, Chris was all-but born on skis. He was gifted his first pair at birth, and taught himself to ski on small hills until he took to the slopes in Sunapee, first, and then around the region. He showed a strong, competitive drive from a

young age – a trait that very likely served him well when adversity reared its head. “If there was something to climb on, he’d climb on it and want to go higher,” his mother, Nancy Waddell said of Chris as a youngster. “When he first skied on a lift with the racing team – he might’ve been five in his Sears Toughskin jeans and hand-me-down skis – he killed himself to keep up with older kids. That’s just how he was. If someone could do a back flip on a diving board, he had to figure out how to do it. His brother was just the same. They egged each other on the whole time. The trees in our backyard became slalom gates.” The accident that left Waddell without the use of his legs at just 20-years-old may have ended the dreams of some athletes. But then, Waddell is no ordinary athlete. “He was still in the hospital, flat on his back with a million tubes coming out of him, and he said to me, ‘mom, can you write out the check so I can do my semester abroad?’” Nancy Waddell said, laughing at the recollection. “It didn’t really surprise me, but I was trying not to be a nervous mother. He did go back to college without missing a semester. He told me: ‘I’m not going to sit home and play Nintendo.’ He wanted to be with his friends in the middle of winter in Vermont.” His brother said Chris’s natural athletic ability — and that ever-present competitive drive — likely played a role in his determination to get back to living his life the way he wanted. “He was always naturally athletic and picked sports up quickly,” Matt Waddell said. “There was a diving board at the pool we went to and he was the best diver. He could score on a

Above: Waddell taught himself to ski on small hills before taking on the slopes in Sunapee. He was about five years old when he first skied on a lift with the racing team. Center: Chris’s natural athletic ability – and competitive drive – likely played a role in his determination to get back to living his life the way he wanted.

Above: Also a track athlete, Waddell took the silver medal in the 200 meters in the Sydney Summer Paralympics.

More about Chris Waddell started the nonprofit bicycle kick in soccer. You never know when Another program, storytelling clinics, organization One Revolution because he helps individuals understand how storytellsomebody’s world changes that dramaticalwanted to change the perceptions of people ing impacts the way people view disabilities ly, but, no, it didn’t surprise me that he was with disabilities, as well as inspire people to and inspires others to move forward and able to quickly pick it up and excel.” accomplish amazing things despite having accomplish great things. When news arrived that Chris had been challenges. One Revolution created several One Revolution holds screenings of the programs with this in mind. in an accident, his father, James Waddell, documentary of the same title. The film Nametags empowers students by letting shows Chris’s personal history and what began to wonder what it would mean for his them know that they can choose the figuramotivated him to climb the heights of Mount son’s future. He said that as a child, Chris tive nametags they wear. Kilimanjaro and beyond. A question-andcould achieve whatever he wanted, and ofThe program discusses the four S’s of answer session follows the film. ten worked diligently until he achieved resilience: Upside Down Grants is a funding program • Self: Are you a victim or a survivor? those goals. It was a trait that remained a for student filmmakers with disabilities to • Situation: Is your situation overwhelming enable them tell their stories and “Turn the prominent part of his recovery. or simply challenging? perception of disabilities upside down.” “After the initial shock of the accident • Support: Become a part of a team. For more information about One Revoluwore off, I did believe that Chris would not • Strategies: One of the many ways you can tion or any of the above programs, go to dwell on his disability, but that he would beaccomplish your goals. www.onerevolution-org. — Jesse D. Estes gin to explore what he could do and continue to expand possibilities,” James said. “His goal right after the accident was to reThen there was the small task of climb- but he’s also always had a great support turn to college by the second semester and to ing Mount Kilimanjaro – the highest moun- team of friends, coaches, school administrafind a way to ski.” tors and family that have said, “Ok let’s see tain in Africa at 19,341 feet. “I think I said to him, ‘how are you going what we can do to make it happen. Don’t let to do that?’” Nancy Waddell said. “Of obstacles deter you and you may need help course, he had done his homework and had where you didn’t before.” “When someone is facing a life-changing it all figured out.” To start with, anyway. Chris gathered a event, it takes a while to deal with the reality team that included several Middlebury that life will be different,” James said. “After friends – one of whom is an orthopedic doc- the initial shock it is important to take contor – and embarked on a scouting mission. trol of the situation. Don’t allow others to The exploratory trip revealed that the at- direct your rehab. Be proactive, research the tempt was going to necessitate some addi- availability of resources, reach out to others tional work on his climbing vehicle – a four- who have had the same experience and wheeled hand cycle that allowed Waddell to don’t accept no for answers to your quespower himself up the long, arduous path. tions. Attempt to keep a positive attitude. With some needed tweaks to the vehicle, There will be failures and disappointments Chris and his team mounted the attempt, but there will also be many accomplishand in 2009 they traveled to Tanzania and ments. The victim and their family are in charge of their own destiny.” Waddell was back in school after just two reached the Roof of Africa. Nancy Waddell said that the support sysThe climb was captured on film and was months, and within two years he had been tem was key, but Chris’s own attributes have made into a documentary called “One Revnamed to the U.S. Disabled Ski Team. It was helped him attain success through the ensuolution.” Directed by Amanda Stoddard, it just the beginning of a remarkable stretch ing years. shows the challenges Waddell faced during that saw Waddell amass a diverse list of “I think his best achievement is how he’s achievements. He went on to become the the grueling climb, and features an intimate willing to reach out to people and make fun look at his determination to complete the most decorated male skier in Paralympic hisof himself to make someone else feel better,” seemingly insurmountable task. (Visit onetory, winning 12 medals over four games in Nancy said. “He’s very self-deprecating. revolution.org/the-film/ to watch a trailer of 11 years. Also a track athlete, he took the He’s willing to make fun of himself, but he’s the film.) silver medal in the 200 meters in the Sydney also willing to learn to do things differently. “His purpose was that most people Summer Paralympics. He was also named It shows people that he’s not perfect. couldn’t relate to skiing as a vehicle to an “Unsung Hero of Compassion” by the “He likes to take a chance at doing differchange their perspective of disabilities,” NanDalai Lama, and one of the “25 Greatest Skient things, and if people don’t like cy Waddell said. “But climbing a mountain ers in North America” by Skiing Magazine. it, that’s up to them. That’s his na– maybe more people could relate to that, In 2010, he was inducted into both the Parature and always has been.” and that’s when he decided to do it.” lympic Hall of Fame and the U.S. Ski and Matt Waddell said his brother wanted to Snowboard Hall of Fame. As if that wasn’t Bill Burke is the managing editor for custom do as much as he could without limitations. enough, Waddell was named one of People publications at McLean Communications in Manchester. He is also a columnist for Magazine’s “50 Most Beautiful People in the As a result, most of the physical rehabilitation work became his own responsibility – Parenting NH Magazine. World.”

STEPPING STONES NH • 2016-2017 9

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Finding the perfect By Jim Hinsen

match

athan Brown is a 37-year-old man who enjoys listening to music, following the Boston Red Sox, fishing, working out and playing games on X-box. To support many of these activities, he successfully works two part-time jobs — one as a member of a mobile landscaping crew and the other as a dishwasher at the Airfield Café in North Hampton. He has a proven track record of being dependable and dedicated, and he has a reputation for being a hard worker. Employment success is important to Nathan because it gives him the opportunity to meet new people while working in the community. It also allows him to work toward his goal of achieving financial independence. Getting hired for a job did not come easily to Nathan and he needed some assistance. Nathan has been diagnosed with intellectual disabilities, Down Syndrome and Generalized Anxiety Disorder. But he has not allowed these challenges to hold him back from being successful in achieving his goals.

NH adults with disabilities have support to help find jobs that suit them and their employers

In the past Nathan worked at a variety of jobs but nothing seemed to fit his short-term needs or long-range goals. He struggled with a variety of barriers that were difficult for him and did not have the proper support to overcome them. New Hampshire Vocational Rehabilitation (NHVR) was contacted when Nathan first expressed his desire to work as a dishwasher. Michael Brown, supervisor of the NHVR’s Portsmouth Regional Office served as Nathan’s vocational rehabilitation counselor. In partnership with NHVR, the employment team at Great Bay Services (GBS) and One Sky Community Services, Nathan led his team to develop an Individualized Plan for Employment (IPE) that provided the supports he needed to accomplish his goal of becoming a dishwasher. The IPE that Nathan and his team developed included services such as one-on-one job coaching, job development supports and a Job Person Assessment. These services were put in place to ensure that when a

Nathan Brow n, works as a di sh wash37er, at th e Airp or t Ca North Ham pton . Brféowin n found th e position through a partne be tw een New Ham psrs hip Vocational Rehabilithire ation, Great Bay Serv ice and One Sky Comm un s ity Serv ices.

STEPPING STONES NH • 2016-2017 11

potential employer was identified, Nathan would be a perfect fit for the job and the job would be a perfect fit for him. Having a game plan in place, GBS reached out to Scott Aversano, owner of the Airfield Café, to set up a job assessment. This gave Nathan an opportunity to try dishwashing and see if he enjoyed it. During this assessment period, Scott and Theresa Aversano were able to see Nathan at work and how he interacted with other members of the team. Nathan enjoyed working as a dishwasher. He kept a good pace and had friendly interactions with his new coworkers. A few weeks later, Great Bay Services job developer, Lauri Ferguson, reached out to Scott Aversano to discuss future employment plans for Nathan. Scott explained that there was an opening for a dishwasher on Fridays, which is one of the busiest days of the week at the Airfield Café. Nathan went in for an interview and was offered the position the same day. After Nathan accepted the job offer at the Airfield Café, NHVR authorized Great Bay Services to complete a JPA. The JPA evaluates and identifies any barriers that might prevent Nathan from being successful in his new job. Areas examined were Nathan’s disabilities, his job duties, and the actual work environment. GBS worked one-on-one with Nathan during his first few shifts and identified a few barriers that needed to be addressed. Nathan was determined to thrive at his new job and worked with his team to

12 www.steppingstonesnh.com

develop and implement a plan to overcome these barriers in order to meet his long-term goal of working independently — with little or no supports. Job coaching was needed less and less as time passed. As the staff got to know Nathan, and vice versa, natural supports (employees helping employees) began to take root and Nathan no longer required his initial onsite support. Great Bay Services continues to communicate with the Airfield Café regarding Nathan’s employment and support needs — both for Nathan and the business — as they come up. Nathan shows great pride in his work at the Airfield Café. You can tell by his self-confidence that working has had a positive impact on his life. This job match has been successful not only for Nathan but also for the Airfield Café, NHVR, Great Bay Services and One Sky Community Services.

Jim Hinson is a Supervisor at the state Department of Education, Vocational Rehabilitation. He is responsible for establishing community partnerships with New Hampshire business owners and community leaders to assist in efforts to recruit, hire, retain and promote the hiring of people with disabilities. Jim retired from the U.S. Coast Guard in 2004 after 21 years; he has two grown sons and lives in Loudon with his wife, Lisa. He can be reached at Jim.Hinson@doe.nh.gov or 271-7093.

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Grants available thethe Grants availablefrom from NewHampshire Hampshire Council onon New Council Developmental Disabilities Developmental Disabilities

The New Hampshire Council on Developmental Disabilities offers small

grants to individualsCouncil or groupson to support disability-related activities and The New Hampshire Developmental Disabilities initiatives that help achieve the Council’s mission of “Dignity, Full Rights offers small grants to individuals or groups to support of Citizenship, Equal Opportunities, and Full Participation for all New disability-related activities and initiatives that help achieve Hampshire Citizens with Developmental Disabilities.” The grants are awarded mission based on available funds. Full Rights of Citizenship, the Council’s of “Dignity, Please contact Carol at (603) 271-3236 Equal Opportunities, andStamatakis Full Participation for all New or carol.m.stamatakis@ddc.nh.gov Hampshire Citizens with Developmental Disabilities.” The grants are awarded based on available funds.

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The Council p up to $1000 to conferences, t disability-rela Hampshire

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Looking for

Vocational Rehabilitation services can help you become employed

By Jesse D. Estes

any people with disabilities receive benefits from the government or rely on family members to support them. As a result, they may feel as if they are not contributing as productive members of society. Many also fear they won’t be able to find employment that will accommodate them or allow them to earn a living and feel a sense of accomplishment. People with these concerns would likely benefit from sitting down with someone at New Hampshire Vocational Rehabilitation. James Piet, public relations specialist for the Department of Education, Vocational Rehabilitation, said, “Employment is our primary goal.” Every state and territory in the United States has vocational rehabilitation services. In New Hampshire, there are seven offices run by the Department of Education, although other state departments may also run VR programs. A lot of people hear about vocational rehab through their friends or neighbors who are clients, as well as through schools, physicians or therapists. To be eligible for these services, one must have a documented disability and be seeking employment. Some of the clients that contact the VR program are as young as 14, although minors that are seeking employment must be invited by their school’s IEP (Individual Education Plan) team. Help with obtaining documentation can be provided if needed — as having the correct documentation is very important. The process to determine eligibility can take up to 60 days or more. Once a client sits down with a counselor, they can discuss career goals and determine what services are needed to reach those goals. If the client does not have any specific career goals, the counselor can provide tools to assist them in the decisionmaking process.

14 www.steppingstonesnh.com

job?

There is no charge for most of the services provided by VR, however a financial assessment may be required for some of the higher-priced services such as vehicle modification. The assessment determines if the client is able to contribute financially towards the cost of the service. If it is determined that the client is unable to contribute, Vocational Rehabilitation covers all expenses. The number of services available to each vocational rehabilitation client is broad in scope. However long-term on-the-job support is not available through this program. If a client does need long-term support at their job site they might benefit from contacting an Area Agency. There have been some recent changes at New Hampshire Vocational Rehabilitation, specifically in the way they provide transitional services to students. The five main areas of focus for these changes are self-advocacy, workplace readiness, work-based learning, career exploration counseling and comprehensive transition or post-secondary. These services are offered to any student with a disability who is interested in seeking employment while they are in high school — as well as after high school. They are also available to anyone with a disability who is evaluating their career goals. For more information, contact Vocational Rehabilitation services at 271-7095. Jesse D. Estes is a General Studies student at NHTI and worked with the NH Council on Developmental Disabilities as a student intern. He wrote several stories for this edition of Stepping Stones. Estes lives in Concord.

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w Your child may be eligible for some in-home Ne year!services funded in part through health insurance. s thi For more information: birchtreecenter.org/insurance. The Birchtree Center admits students of any sex, race, creed, color, marital status, national/ethnic origin, and economic status. EOE. Program development was funded in part by a grant from the New Hampshire Charitable Foundation’s Greater Portsmouth Rehabilitation Center Fund and the John and Lelia Lamson Fund.

Newington, NH • A nonprofit organization www.birchtreecenter.org • 603-433-4192 Coolest Companies for Young Professionals Award, 2013

STEPPING STONES NH • 2016-2017 15

Community Support Network Inc. 10 Ferry St., Suite 401, Concord, NH 03301 (603) 229-1982 info@csni.org 16 www.steppingstonesnh.com

About Us Community Support Network, Inc. (CSNI) is a not for profit organization that works in support of the ten Area Agencies throughout the State of New Hampshire that provide services to individuals with developmental disabilities and their families. CSNI provides administrative and financial services to the Area Agencies, establishes policy positions on legislative or regulatory issues, and manages grant programs benefiting our constituents in the community of individuals with developmental disabilities. CSNI serves as the communication and contact center on issues and services for those seeking information on developmental disability issues.

Our Mission CSNI and its member agencies will continually strive: • To promote public policy, at all levels, which enhances the lives of people with disabilities and their families. • To educate ourselves, the people we serve, and the general public, about issues important to people with disabilities and their families. • To facilitate the exchange of information among member agencies in order to share best practices and promote state of the art supports to people with disabilities and their families.

New New Hampshire’s Hampshire’s Area Area Agencies Agencies

NORTH COUNTRY NORTH COUNTRY Northern Human Services 87 WashingtonHuman Street Northern Services Conway, NH 03818 87 Washington St., 603-447-3347 Conway, NH 03818 www.northernhs.org 603-447-3347 www.northernhs.org

CLAREMONT/UPPER VALLEY UPPER VALLEY Pathways of the River Valley

Pathways of the 654 Main Street RD#3, Box 305, Claremont, NH 03743 Claremont, NH 03743 603-542-8706 603-542-8706 www.pathwaysnh.org

River Valley

LAKES REGION LAKES REGION Lakes Region Community Lakes Region Community Services Services Council 719 North Main Street 67 Communication Dr., Laconia, Laconia, NH NH 03246 03247 603-524-8811 603-524-8811 www.lrcsc.org www.lrcsc.org

CONCORD CONCORD AREA AREA Community Bridges Community Bridges 525Pembroke Clinton St., 70 Road Bow, NH NH 03304 Concord, 03301 603-225-4153 603-225-4153 www.communitybridges.org www.communitybridgesnh.org

MONADNOCK REGION MONADNOCK REGION Monadnock Developmental Services Monadnock Developmental 121 Railroad Street Services

SEACOAST REGION SEACOAST REGION One Sky Community Services 755 Banfield Road, Suite 3 Community Developmental Portsmouth, ServicesNH 03801

NASHUA REGION NASHUA REGION Gateways Community Area Agency of Greater Services Nashua 144 Canal Street

DOVER & ROCHESTER AREA DOVER & ROCHESTER Community Partners AREA 113 Crosby Road, Suite 1 Community Dover, NH 03820 Partners

NHSt., 03431 121Keene, Railroad 603-352-1304 Keene, NH 03431 603-352-1304 www.mds-nh.org www.mds-nh.org

144 Canal St., Nashua, NH 03064 Nashua, NH 03064 603-882-6333 603-882-6333 www.gatewayscs.org www.areaagencynh.com

MANCHESTER AREA MANCHESTER AREA Moore Center Services The Moore Center

132 Titus Ave., Street, #400 195 McGregor Manchester, NHNH 03103 Manchester, 03102 603-668-5423 603-206-2700 www.moorecenter.org www.moorecenter.org

603-436-6111 195 Hanover St., Ste 40, www.oneskyservices.org Portsmouth, NH 03801 603-436-6111 www.cdsregion8.org

113 Crosby Rd., Suite 1, 603-516-9300 Dover NH 03820 www.communitypartnersnh.org 603-749-4015 www.communitypartnersnh.org

DERRY & SALEM AREA DERRY & SALEM AREA Community Region 10Crossroads Community (formerly 10) Support Region Services 8 8Commerce CommerceDrive, Dr., Suite 801 Atkinson, Atkinson,NH NH03811 03811 603-893-1299 603-893-1299 www.region10nh.com www.communitycrossroadsnh.org

STEPPING STONES NH • 2016-2017 17

Family-School partnerships in By NH Connections

he research is clear — when schools, families and community groups work together to support learning, children do better in school, stay in school longer and like school more. This sounds like such a simple concept, but it can often be difficult to make a reality. Why should people work together? People need to know what’s in it for ME? Ultimately, family-school partnerships in special education are about what’s in it for all of us!

special edu

A Parent’s Perspective

Partnerships allow parents to connect with school personnel outside of the special education/IEP process. Partnerships provide the ability and opportunity for parents to develop their leadership and communication skills. Partnerships provide a vehicle to strengthen relationships between parents, staff and the school district. Partnerships encourage communication and the development of a team. Partnerships allow discussions and feedback about parent concerns and school initiatives in a safe and constructive way. Partnerships provide opportunities for parents to be more active in their school/school district and better prepared to support their child’s learning. Partnerships foster respect and shared responsibilities among parents, community members, teachers and school leaders.

me?

Personal Connection and Parent Input

Ability Relationships Team New Ideas Engagement Respect

Partnerships provide staff and parents the opportunity to gain knowledge and resources beyond their own area of expertise.

Staff Development

Partnerships allow for parents and school personnel to gain more accurate and positive views about each other’s attitudes, intentions and abilities and to feel “heard.”

Heard

Partnerships allow for discussion from a variety of perspectives. Parents can gain a better understanding of the concerns of school district personnel and learn ways to address them, increasing their effectiveness working with their child’s IEP team.

Increased

Partnerships provide an opportunity for families and school staff to have open, two-way communication.

18 www.steppingstonesnh.com

What’s in it for

Effectiveness

Provides Two-way Communication

RESOURCE GUIDE

ucation

The New Hampshire Council on Developmental Disabilities has created an online resource guide to help people with disabilities and families find the information, services, and supports they need. Find links to: • Information and referral services, guidebooks and online resources • Information and resources on specific disabilities or topics • Disability service providers • State offices and programs • How to apply for public benefits • Legal services and guides

A School District’s Perspective

NHDDResources.org

Partnerships with families help keep things real and relevant, which results in more practical and identifiable outcomes. Partnerships provide the ability for a school district to develop the leadership and communication skills of its parents. Partnerships provide a vehicle to strengthen relationships between parents, staff and the school district.

Partnerships encourage communication and the development of a team.

Partnerships allow for discussions and feedback about school initiatives and activities in a safe and constructive way. Partnerships encourage parents to be more active in their school/school district and better prepared to support school initiatives. Partnerships foster respect and shared responsibilities among parents, community members, teachers and school leaders. Partnerships provide staff and parents the opportunity to gain knowledge and resources beyond their own area of expertise.

CARING FOR OUR COMMUNITY

Partnerships allow for parents and school personnel to gain more accurate and positive views about each other’s attitudes, intentions and abilities and to feel heard.

We believe that all people are of great value and we strive to be innovative in providing quality supports needed for individuals to lead meaningful lives in their community.

Partnerships allow for a variety of perspectives. School staff can gain a better understanding of the concerns of families and learn ways to address them, increasing their effectiveness in working with families and other staff.

AL L DAY. EV ER Y DAY. F OR A L I F ETIME .

Proudly serving infants with developmental delays, children and adults with disabilities and seniors in need of care.

www.gatewayscs.org GATE WAYSCOMMUNIT YSERVICES1981 COMPANY/GATEWAYS-COMMUNITY-SERVICES

Partnerships provide an opportunity to communicate with families that school staff do not have to manage! NH Connections is a project of the Parent Information Center and is funded by the NH Department of Education, Bureau of Special Education. For more information, call (800) 924-7005 or visit www.nhconnections.org or www.picnh.org

PROUDLY NAMED BUSINESSNH MAGAZINE’S 2016 NON-PROFIT BUSINESS OF THE YEAR

1 4 4 C A N A L S T R E E T N A S H U A , N H 0 3 0 6 4 T: 6 0 3 - 8 8 2 - 6 3 3 3

STEPPING STONES NH • 2016-2017 19

College is not

out of the question

By Jesse D. Estes

or people with disabilities who struggled through high school, college may not seem like an option. But you can get help at the college level in the form of a Reasonable Accommodation Plan (RAP). Several college campuses — including Concord’s Community College, NHTI — have a learning center or Academic Center for Excellence equipped with a Disabilities Services program. The difference between an Individual Education Plan (IEP) for a high-schooler and a Reasonable Accommodation Plan is that the student has more choices and responsibilities. In high school, the services are automatically provided, whereas in college — once the student provides documentation that services are needed — it is their responsibility to request these services. At NHTI, the Academic Center for Excellence not only provides Disabilities Services, but also has a Math Lab where students can receive tutoring and a Writing Center where help is provided for any writing assignment including research papers and essays. This help is available to all students, with or without disabilities. The Disabilities Services program can provide separate testing accommodations and occasionally extend test times when needed. They are also able to generate audiobooks from chapters of the student’s textbooks and offer options to help a student study, as well as become more organized and focused. This addresses the fact

20 www.steppingstonesnh.com

that some students take longer to process things into their long-term memory. Students with a Reasonable Accommodation Plan meet with a disabilities specialist for a minimum of one hour each week to review progress and to determine if any changes are needed. Beverly Boggess, the coordinator of the Disabilities Services at NHTI, said with the help of the Reasonable Accommodation Plan, a student with disabilities can have

the same opportunities as anyone else. She has seen many students move on to bachelor’s degree programs or make career connections on their own. The General Studies degree program, which is available to all students, can be useful for those that are unsure of what direction they are going in. This program allows students to shift gears to find the right fit that matches their skills and talents as well as their interests. Boggess said she knew a non-traditional student who had difficulty reading as well as a learning and attention deficit. After

Programs help students with disabilities pursue higher education

testing and establishing their RAP, the student enrolled in an English class. With the help of audiobooks — provided by Disabilities Services — the student gained confidence in their ability to handle reading as-

signments and the different technologies available to enable students to help themselves. Funds were applied for to develop text-tovoice software and other supports, which allowed the student go on to a bachelor’s degree program.

The library at NHTI is a welcoming place for all students to find the resources they need.

Jesse D. Estes is a General Studies student at NHTI and worked on Stepping Stones as part of his internship with the New Hampshire Council on Developmental Disabilities. Estes lives in Concord.

monarchschoolne.org

Unlimited possibilities for students with special needs

SELF-ADVOCACY LEADERSHIP TEAM

It keeps your feet on the ground and helps you climb that slippery slope.

SALT serves as a consultant to the New Hampshire Council on Developmental Disabilities and other organizations. Our members are talented citizens with developmental disabilities who want to effect positive change in New Hampshire. We are committed to supporting people who experience disabilities by tackling big issues that keep them from living community. quality lives in the communit SALT is available to any agency in New Hampshire to:

• Provide input on any proposed policy that impacts people with disabilities

• Advise any New Hampshire agency or board about how to effectively include people with disabilities

Advocacy It adds spice to your life

“Where Opportunities are Boundless”

2 ½ Beacon Street, Suite 10 • Concord, NH 03301-4447 Phone (603) 271-3236 • Fax (603) 271-1156 • www.nhcdd.org

Visit our new website @ www.opportunitynetworks.org

Rehab Therapy for Children Northeast Rehab offers a wide array of therapy services including physical, occupational, and speech therapy. New Location

Lowell, MA

1230 Bridge Street

NORTHEAST REHABILITATION HOSPITAL NETWORK

Pediatrics Program Building Function With Fun!

Lawrence, MA 101 Amesbury Street

Salem, NH

Nashua, NH

70 Butler Street

383 East Dunstable Road

Tewksbury, MA

Londonderry, NH

1555 Main Street

Opening in October

Methuen, MA

386 Merrimack Street

1F Commons Drive Unit 38

(603) 681-3230 • www.NortheastRehab.com STEPPING STONES NH • 2016-2017 21

More than just a

camp Adamâ&#x20AC;&#x2122;s camp provides therapy (and fun!) for children with special needs, and supports their families, too

By Emily James

am blessed to be the mother of a fun-loving 10-yearold child. She is a trooper and has overcome many challenges.

22 www.steppingstonesnh.com

She is dually diagnosed with Down Syndrome and autism and is medically complex. Three years ago the school district brought up the idea of sending her to camp. I had not considered this a possibility. For all of her positives, my daughter also has a

wide range of medical problems. None of the local options were a good fit. That first year, an option did not exist for her so we went to aqua therapy instead. Lucky for us, the following year I found Adamâ&#x20AC;&#x2122;s Camp New England. I am so grateful to have

Maya James works with music therapist Ryan Judd at Adam’s Camp at Loon Moun tain in summer 2015. Photo by Nicole Curran Photography.

found a camp capable of meeting all of her needs. For her, it fun-filled camp experience, but with many bonus features as well. Adam’s Camp is a nonprofit organization that was founded in Colorado in 1986 by the par-

ents of Adam, a five-year-old boy with Cerebral Palsy. Adam’s Camp New England was developed in 2013 and offers programs on the island of Nantucket, Mass. and on Loon Mountain in Lincoln. The goal of Adam’s Camp is to provide a variety of intensive, personalized and integrated therapeutic programs for children with special needs and their families in a recreational setting. The camp provides fun, social connections and growth in independence for youth and young adults. The Adam’s Camp signature model is five campers, five pediatric therapists over five days. Before camp starts, parents converse with the therapists to establish goals for the camp. After each camp day, the therapists discuss how that day went and plan for the next day. There was real therapy going on at the camp and I could see improvement in her skills. I think the success comes from working with top-notch, dedicated therapists who are allowed to work with the team of five children and each other intensively. The collaborative approach plays a big part. Every person promotes improvement on the same goals. The camp motto is, “When a child has special needs, the whole family has special needs” The experience is entirely family-centered. There is a parent group that meets each morning to connect with others and participate in facilitated discussions on topics that matter most to them, or

they can use that time to just get some much needed respite. There is also a sibling program where they do fun activities during the day. Like parents, siblings also need resources and support. Developing these relationships helps siblings deal with having a brother or sister with special needs. In trying to pinpoint why this was such a different experience, I realized that one of the reasons was there was no sense of an adversarial approach. With the school district I was often arguing about what the goals should be. When I talked with the therapists at the camp and suggested goals I would like to see worked on, there was agreement. After sitting through many contentious IEP meetings it was a refreshing change. On the last day of the camp, there is a show put on by the campers and their therapists, just like a typical summer camp. In addition, parents meet with the therapy team to discuss what they think the next steps should be. Parents leave with a detailed clinical report complete with photos that can be shared with the school district and other therapists. Some of the approaches have been emphasized by my daughter’s school team. Adam’s camp is very powerful. It provides a new set of eyes and ears on problems that you care about. A team of highly qualified therapists will use multiple modalities to address these goals throughout the six-hourlong day. This intensive ap-

proach produces results. For example, one of my goals in the first year for my non-verbal daughter was to have an accurate yes or no headshake. This goal would help her communication to be more accurate so it would help curb the behaviors that were a result of frustration. I would say that the camp experience boosted her accuracy by 50 percent. It was truly amazing. For my daughter, the camp was a camp first and the emphasis was on having fun. The therapeutic aspect was so well hidden from my daughter I doubt that she realized she was getting speech, occupational, physical, art and music therapy each day. She just thought it was camp! As you might imagine, an experience like this comes with a cost. The Adam’s Camp organization actively fundraises throughout the year and the cost to families is roughly half the actual cost to run the camp. They provide scholarships and work with the families to identify funding sources. Adam’s Camp has been a fantastic experience for my daughter and our entire family. Summer 2016 will be our third summer and we hope that you, too, will consider joining us.

Emily James is a teacher and the proud mother of three children. She is the co-chair of the Family Support Council for Northern Human Services. She resides in Wolfeboro with her husband, Martin, and their children.

STEPPING STONES NH • 2016-2017 23

How to get the services and supports you

need

From the New Hampshire Council on Developmental Disabilities

eople throughout New Hampshire have successfully navigated the maze of health care, education and human service systems to obtain needed supports and achieve a high quality of life for themselves or a loved one living with a disability. It can be done! If you are a parent, one of the best sources of information and support, in addition to your family, friends, health care providers and other professionals, is other parents who share their experiences and wisdom. We are very fortunate that in New Hampshire there is a strong tradition of parents supporting parents. Many of the agencies that support children with disabilities are operated by parents or have parents on staff. These professionals, who have personally experienced the challenges of supporting a child with a disability, bring an exceptional degree of care and commitment to their work. The resource guide on the pages that follow is designed to provide a starting point and map to help people who are experiencing a disability or caring for a child or adult with a disability find the services and supports they need. Many organizations exist solely to provide information to people and families about how to access needed supports or to assist those who are having difficulty finding services, are having problems with their services or would like information about their legal rights. These informational resources are listed at the beginning of the guide. One of the best resources for someone beginning the journey is a comprehensive guide of services and supports for children and adults, titled “Maneuvering the Maze,” produced by NH Family Voices and available online free of charge. Family Voices is a “Family To Family Health and Education Center” assisting families of children, youth and young adults with chronic health, physical, developmental and mental health challenges, through one-to-one phone assistance, educational materials, online resources, a lending library and quarterly newsletter. Of the 10 staff members, eight are parents of children and young adults with disabilities or chronic health conditions, and two have disabilities. According to co-director Martha-Jean Madison, families find it valuable to brainstorm with the staff about possible solutions to the challenges they are experiencing. “Sometimes support is just listening. We listen and want to

24 www.steppingstonesnh.com

support a parent wherever they are at.” Besides supporting parents themselves, they also provide training to parents who want to support other parents. Another important resource for parents is the Parent Information Center on Special Education (PIC). PIC provides telephone or email support to families with questions about early supports and services, special education, and other disability related concerns, workshops, advocacy training and informational materials. ServiceLink Aging and Disability Resource Centers are located throughout the state and serve people of all ages, income levels and abilities. ServiceLink provides local community-based supported information and supported referral services, options counseling, assistance with understanding and accessing Medicare and Medicaid and a comprehensive online resource directory for individuals seeking information about long-term services and supports. To better support those in need of services, the NH Department of Health and Human Services recently launched an initiative known as NHCarePath. NHCarePath represents the state’s vision of improved access to services through statewide collaborations and cross training for organizations that provide services, to ensure those seeking help receive consistent information and are provided with resources and information for all their needs. The NHCarePath website, nhcarepath.org, provides helpful information for those seeking resources and support, as well as provides tools and resources for professionals; including training and informational materials. The Disability Rights Center provides legal information, advice and in some cases legal representation, to children and adults with disabilities on a wide range of disability-related issues. Many other information resources are listed on the pages that follow. The needs of people of all ages and abilities change over time. What worked for a child in elementary school may not be effective when they are in high school or when they are adults. For parents, it is important to maintain a close relationship with your child’s primary care physician and school staff, and be involved as much as possible with agencies and service providers. Share with them your child’s gifts, challenges and aspirations. At times it may take patience, perseverance and diplomacy to get the services needed for you and your family. New Hampshire is a leader in community-based services for people with disabilities. You or your loved one can lead a full and productive life given the right support services and opportunities. You do not have to make this journey alone.

RESOURCE GUIDE

Programs for Students on the Autism Spectrum

The New Hampshire Council on Developmental Disabilities has compiled this listing to help people with disabilities and their families find information, services, and supports. A more comprehensive version is available online at nhddresources.org or may be obtained by calling (603) 271-3236.

CONTENTS I. Information and Referral Services, Guidebooks, and Online Resources II. Information and Resources on Specific Disabilities or Topics: • Advocacy and Self-Advocacy • Assistive Technology • Autism • Blind Resources • Brain Injury • Bullying • Children with Disabilities or Significant Medical Needs • Deaf and Hard of Hearing • Dental Services • Developmental Disabilities and Acquired Brain Disorders • Employment • GED/Adult Education • Government Benefits and Agencies • Housing • Independent Living - Adults with Physical Disabilities • Legal Assistance • Mental Health and Suicide Prevention • Research and Training • Transition • Transportation

Information and Referral Services, Guidebooks and Online Resources Maneuvering Through the Maze A comprehensive resource guide of state health and human services agencies, educational resources, private associations and organizations that serve people in New Hampshire with physical, developmental, mental health and chronic illnesses and their families, from birth to adulthood. Produced by NH Family Voices. nhfv.org/Publications.html NH Family Voices A “Family To Family Health and Education Center” assisting families of children/youth and young adults with chronic health, physical, developmental and mental health challenges. Provides oneto-one phone assistance, educational materials, online resources, a lending library and quarterly newsletter. (603) 271-4525 or NH only (800) 852-3345 x 4525 Funded by state and federal grants, as well as donations from community partners and supporters. nhfv.org Parent Information Center on Special Education (PIC) Telephone/email support to families with questions about early supports and services, special education, and other disability-related concerns, interactive workshops for parents, volunteer advocate training and informational materials (online and printed).

54 Old Suncook Road, Concord, NH (603) 224-7005 or (800) 947-7005 Funded in part or whole by the U.S. Department of Education. nhspecialed.org Disabilities Rights Center (DRC) Information, referral, advice, legal representation and advocacy for individuals with disabilities on a wide range of disability-related problems. Online resources and materials available on a wide range of disability-related topics. (603) 228-0432 or (800) 834-1721 (v/tty). Federally-funded Protection and Advocacy Center. drcnh.org ServiceLink Aging & Disability Resource Centers From local offices throughout the state, assists individuals to access and make connections to long-term services, supports and resources, access family caregiver information and supports, explore options and understand and access Medicare and Medicaid. After hours appointments are available as needed. Callers are automatically connected to the ServiceLink office in their area. Funded by the State of New Hampshire and federal government. 1-866-634-9412. nh.gov/servicelink Online ServiceLink Community Services and Supports Resource Directory: referweb.net/nhsl/ Brain Injury Association of New Hampshire Resources compiled by the Brain Injury Association of New Hampshire. bianh.org/resourcedir.html Family Resource Connection of the New Hampshire State Library Collects and makes available to New Hampshire residents current and useful information on all aspects of caring for, educating and raising healthy children, especially young children with special needs. Provides online library catalogue and online directory of children’s services. Materials can be borrowed through the library free of charge. 20 Park St., Concord, NH (800) 298-4321. A collaborative effort of the NH Departments of Health & Human Services, Education, and the NH State Library. nh.gov/nhsl/frc/ Governor’s Commission on Disability Provides information on the Americans with Disabilities Act (ADA) and accessibility issues, including accessible parking spaces, housing, voting and transportation. 121 South Fruit Street, Suite 101, Concord, NH (800) 852-3405 or (603) 271-2773 nh.gov/disability Online list of state and federal government benefit programs for people with disabilities: nh.gov/ disability/information/community/benefitsforpeople.htm NH Statewide Independent Living Council (SILC) Provides a monthly resource newsletter, archives of past issues and online “tip sheets” on benefits,

housing and health care, based on an independent living philosophy. 121 South Fruit Street, Concord, NH (800) 852-3405 or (603) 271-0476 A federally funded independent, cross disability council. silcnh.org NH Family Ties (Formerly Parent to Parent of NH) Provides parent matches between experienced parents, who “have been there” with new or “referred” parents of children with special needs who are just beginning to meet the challenges of a disability or chronic health condition within the family. Available through the area agency network as part of their family support services. NH Family Ties provides information and referral to community resources, services, support groups, state support programs, and others. Ashlee Fye, Statewide Coordinator (800) 499-4153 x 241 nhfamilyties.org 211 New Hampshire Information and referral for general human services including help with food, emergency housing, employment, health care and counseling is available by dialing 211 in NH or (866) 444-4211 from out of state. Operated by United Ways of New Hampshire. 211nh.org NH Care Path Designed to be New Hampshire’s “front door” that quickly connects individuals of all ages, abilities and income levels to a full range of community services and supports, including housing, transportation, financial assistance, Medicaid, veterans’ services, mental health, drug and alcohol services and more. Operated by the NH Department of Health and Human Services. 1-866-634-9412 nhcarepath.org

RMCC-STEPPING-S-printerready.pdf

B O S T O N C O N S E R V A T O R Y. B E R K L E E . E D U

KNOWLEDGE IS

POWER

Disability.gov M A United States Government inter-agency web portal that provides access to comprehensive Y information about disability-related programs and services. The site contains thousands of CM trusted resources, updated daily, from the federal government, educational institutions, non-profit MY organizations and state and local governments. CY disability.gov CMY

Information and Resources on Specific Disabilities or Topics

Advocacy and Self-Advocacy ABLE NH (603) 271-2336 or (603) 271-3236 ablenh.org ABLE (Advocates Building Lasting Equality) advocates for the human and civil rights of all children and adults with disabilities and promotes full

AT RMCC, OUR DEVELOPMENTAL SPECIALISTS WORK WITH THE WHOLE FAMILY TO HELP CHILDREN DISCOVER THEIR OWN UNIQUE POWER FOR LEARNING. UNLOCK YOUR CHILD’S POWER. 603-778-8193 WWW.RICHIEMCFARLAND.ORG

STEPPING STONES NH • 2016-2017 25

Resource Guide participation by improving systems of supports, connecting families, inspiring communities and influencing public policy. New Hampshire Council on Developmental Disabilities 2 ½ Beacon Street, Suite 10, Concord (603) 271-3236 nhcdd.org Federally funded agency that supports public policies and initiatives that remove barriers and promote opportunities in all areas of life in order to carry out its mission of “dignity, full rights of citizenship, equal opportunities, and full participation for all New Hampshire citizens with developmental disabilities.” Members are appointed by the Governor and represent people with developmental disabilities, parents, guardians and agencies that serve people with disabilities.

Working at Kil’n Time Art Studio in Plymouth

Employment First and First in Employment!* *NH Developmental Services Quarterly Employment Report

Call LRCS at 603-524-8811 and visit lrcs.org

New Hampshire Leadership Series (603) 228-2084 or (800) 238-2048 nhleadership.org Intensive seven-session leadership training provides parents and people with disabilities with state-of-the-art information and strategies to effectively impact local and state organizations on issues related to individuals with disabilities and their families. People First of New Hampshire c/o NH Council on Developmental Disabilities, 2 ½ Beacon Street, Suite 10, Concord (603) 271-3236 peoplefirstofnh.org Statewide self-advocacy organization and umbrella of 17 self-advocacy groups for people with intellectual and other developmental disabilities around the state providing resources, training, and support. Call for the chapter in your area or on how to start one. Assistive Technology Crotched Mountain ATECH Services 57 Regional Drive, Suite #7 Concord, NH 03301 (800) 932-5837 or (603) 226-2900 atech@crotchedmountain.org crotchedmountain.org/Programs-and-Services/ ATECH-Services/ATECH-Services/ Formerly NH-ATEC, this highly specialized clinical program provides evaluation and consultation services in the area of assistive technology. Services include augmentative and alternative communications (AAC), seating and wheeled mobility, access and independent living and computer access. Autism NH Virtual Autism Center Maintained by NH Council on Autism Spectrum Disorders 2 ½ Beacon Street, Suite 10, Concord info@nhcouncilonasd.org nhvirtualautismcenter.info Provides a single point of entry to a common, high-quality and comprehensive body of information about NH services for those who experience autism spectrum disorders and the best practice guidelines that inform them. Autism Resource Center Crotched Mountain ATECH Services, 57 Regional Drive, Concord (603) 226-2900, x. 29 or (800) 932-5837 autismresources@crotchedmountain.org crotchedmountain.org/Programs-and-Services/ ABA-Treatment-for-Young-Children-with-Autism/ Autism-Resource-Center/

26 www.steppingstonesnh.com

The Autism Resource Center is a service at no cost to families that can be your single point of contact for support, information and services for autismrelated disorders. The Autism Resource Center will help you to navigate the developmental service system, explore treatment options, identify funding options and advocate for your child. Blind Services The New Hampshire Association for the Blind 25 Walker St., Concord (603) 224-4039 or (800) 464-3075 sightcenter.org Offers support and help to any New Hampshire citizen of any age who is experiencing vision loss to the point where the person’s ability to function in daily living has been impaired. NH Services for the Blind & Visually Impaired 21 South Fruit Street, Suite 20 Concord, NH 03301 (603) 271-3537 V/TTY: 1-(603) 271-3471 (800) 581-6881 education.nh.gov/career/vocational/blind_visu. htm Provides those services necessary to help people with visual loss to enter, re-enter, or maintain employment. Most services are provided without charge to the referred individual as the Services for Blind and Visually Impaired Program is supported by your State and Federal tax dollars. Brain Injury Brain Injury Association of NH 52 Pleasant St., Concord (800) 773-8400 or (603) 225-8400 (NH only Information & Resources) (800) 444-6443 (National toll-free Brain Injury Resource Line) bianh.org The Brain Injury Association of New Hampshire helps people with brain injury-related disability to live in their own home and community. Chartered state affiliate of the Brain Injury Association of America (BIAA: biausa.org). Comprehensive online resource directory: bianh.org/ resourcedir.html Bullying Come Together NH A collaboration of the NH Council on Developmental Disabilities, Bully Free NH and other concerned community members committed to building respectful, inclusive communities in New Hampshire. They are bringing awareness, intervention, and prevention of peer abuse/bullying to NH schools and communities. cometogethernh.org NH Department of Education Bullying and cyberbullying Resources education.nh.gov/instruction/integrated/title_iv_ cyber_bully.htm Disability Rights Center – NH Information about the legal rights of students with disabilities experiencing bullying in school. drcnh.org/bullying.html StopBullying.gov stopbullying.gov A federal government website that provides information from various government agencies on what bullying is, what cyberbullying is, who is at risk, and how you can prevent and respond to bullying.

Is mealtime a miserable time? Children with Disabilities or Significant Medical Needs YOUR Pediatrician Provides the gateway to proper assessment, diagnosis, and initial treatment, services, and supports. Your Local School District If you have a child with a disability who is eligible for special education services, your child may receive services from ages 3-21. You should contact your school district before your child turns three, the time when the school district becomes responsible for your child’s education. NH Medicaid for Children (Coverage for children up to age 19 and “Katie Beckett” option) 129 Pleasant Street, Concord (877) 464-2447 Children’s Medicaid Unit dhhs.nh.gov/dfa/medical/children.htm Provides comprehensive health and dental insurance to NH children ages 0-19 if their families do not have access to insurance or it is unaffordable (formerly NH Healthy Kids). Also, Home Care for Children with Severe Disabilities (HCCSD), commonly known as the “Katie Beckett” option, is available for severely disabled children up to age 19 whose medical disability is so severe that they qualify for institutional care but who are being cared for at home. Only the income and resources of the disabled child are counted towards eligibility for this program. In-Home Support (IHS) Waiver for Children with Severe Disabilities NH DHHS Bureau of Developmental Services 105 Pleasant St., Concord (800) 852-3345 x 5034 Provides assistance for children with the most significant medical and behavioral challenges requiring long-term supports and services, who live at home with their families, are Medicaid eligible, and meet the ICF/MR level of care and other qualifications of the program. The goal of the IHS waiver is to provide those services which are necessary to allow the individual to remain at home with his/her care-giving family. Services are provided through the Developmental Disabilities Area Agencies. Family Centered Early Supports and Services (FCESS) NH Bureau of Developmental Services 105 Pleasant Street Concord (603) 271-5122 or (800) 852-3345 x 5122 or 5034 dhhs.state.nh.us/dcbcs/bds/earlysupport/ index.htm The program is designed for children birth through age two who have a diagnosed, established condition that has a high probability of resulting in delays, are experiencing developmental delays, or are at risk for substantial developmental delays if supports and services are not provided. FCESS are delivered in the family’s home by designated non-profit and specialized service agencies located throughout the state. Special Medical Services NH Department of Health and Human Services 129 Pleasant Street – Thayer Building, Concord (800) 852-3345 x 4488 or (603) 271-4488 dhhs.nh.gov/dcbcs/bds/sms/specialcare.htm The NH Title V Program for Children with Special Health Care Needs. Administers health programs and services for children ages birth to 21 years, who have, or are at risk for, a chronic medical condition, disability or special health care need. Works together with families and their health care providers, community agencies and schools to help obtain access to needed health care

and related services. Provides care coordination services; support for child development and neuromotor clinics; nutritional and feeding/swallowing consultation; psychological and physical therapy services. NH Partners in Health 129 Pleasant Street – Thayer Building, Concord (800) 656-3333; TDD Access: (800) 735-2964. dhhs.nh.gov/dcbcs/bds/sms/pih/ Helps families of children with a chronic health condition that significantly impacts daily life. Partners in Health’s role is to advocate, access resources, navigate systems and build capacity to manage the chronic health condition of their child. Locations throughout the state. No income requirements. NH Partners in Health Regional Sites and Towns Served: dhhs.nh.gov/dcbcs/bds/ sms/pih/documents/towns.pdf

Little Bites can help with specialized feeding and speech therapy for kids of all ages! Early diagnosis of a feeding disorder is important, the longer the issues are left untreated, the more complex they can become. 1802 Elm Street, Manchester, NH 03104

603-345-8710 • www.littlebitesfeedingtherapy.com

New Hampshire Connections Aims to improve educational outcomes for all children, while meeting the unique needs of children and youth with disabilities through strengthening family-school partnerships. admin@picnh.org, (800) 947-7005 nhconnections.org See other sections for additional children’s services.

Deaf and Hard of Hearing HEAR in New Hampshire Local and national resources for children who are deaf. (603) 624-4464 hearinnh.org/resources.php Northeast Deaf and Hard of Hearing Services Inc. 57 Regional Drive, Concord (603) 224-1850 (Voice) (603) 224-0691 (TTY) Video Phone (VP): 968-5889 ndhhs.org New Hampshire’s “one-stop” resource for services specific to the Deaf and Hard of Hearing community and for information about hearing loss. Gallaudet University State Resources for Deaf and Hard of Hearing gallaudet.edu/clerc-center/information-and-resources/info-to-go/resources/resources-by-state/ state-resources---new-hampshire.html Lists resources that provide information and referral or direct services to deaf and hard of hearing children in the state of New Hampshire. It is a starting point for people who are looking to identify the different types of services statewide. Dental services Donated Dental Services (Dental Lifeline Network) dentallifeline.org/new-hampshire/ A statewide program that provides comprehensive treatment by volunteer dentists to elderly, disabled and medically challenged individuals. (800) 292-1241 Easter Seals Dental Center (Manchester) easterseals.com/nh/our-programs/dental-center/ Staff is trained to evaluate, monitor, and respond to patients with a wide range of disabilities and special medical needs. Accepts Medicaid 603-621-3482

Therapeutic Horse Experiences Grooming, leading and petting horses provides wonderful benefits to children. Working with specialists and small ponies, your child can build motor skills, improve cognitive skills, develop social skills and gain confidence. 603.547.3311 ext. 1852 www.cmf.org/CMEC One Verney Drive, Greenfield NH

Give your child a therapeutic horse experience! STEPPING STONES NH • 2016-2017 27

Resource Guide Developmental Disabilities and Acquired Brain Disorders NH DHHS Bureau of Developmental Services 105 Pleasant St., Concord (800) 852-3345 x 5034 dhhs.nh.gov/dcbcs/bds/index.htm The New Hampshire developmental services system offers individuals with developmental disabilities and acquired brain disorders a wide range of supports and services within their own communities through 10 designated non-profit area agencies that serve specific geographic regions. Supports include: • Service coordination • Day and vocational services • Personal care services • Community support services • Early supports, services and early intervention • Assistive technology services • Specialty services and flexible family supports, respite services and environmental modifications • In-Home Support (IHS) Waiver for Children with Severe Disabilities Area Agencies and Communities Served: dhhs.nh.gov/dcbcs/bds/agencies.htm Employment Work Incentive Resource Center nhwirc.org New Hampshire’s online destination for information about benefits, planning and work incentives for individuals with disabilities. New Hampshire Vocational Rehabilitation Guide education.nh.gov/career/vocational/cust_guide.htm A description of the vocational rehabilitation process and overview of the entire NHVR process, from application to post-employment services.

Helping those with Developmental Disabilities and Acquired Brain Disorders Build a Life Filled with Hope and Success

Oneskyservices.org

Serving 24 seacoast communities for over 33 Years 28 www.steppingstonesnh.com

Vocational Rehabilitation Helps people with disabilities of all ages get jobs. NH Department of Education Bureau of Vocational Rehabilitation 21 South Fruit St., Suite 20, Concord (800) 299-1647 education.nh.gov/career/vocational/ Regional Offices: Berlin .................................................. (603) 752-2271 Concord ............................................. (603) 271-2327 Keene ................................................. (603) 357-0266 Lebanon ............................................. (603) 448-5793 Manchester ........................................ (603) 669-8733 Nashua ............................................... (603) 889-6844 Portsmouth ........................................ (603) 436-8884 nhworks (603) 271-7275 nhworks.org Information center for job seekers and employers. Lists current job openings, New Hampshire economic and labor market information, education and training programs, employment laws, small business resources, and local Works Centers locations. Work Centers provide technical assistance on preparing resumes and cover letters, job search workshops, employment counseling, aptitude and skills testing, and career exploration tools. Sponsored by the NH Workforce Opportunity Council. GED/Adult Education NH Bureau of Adult Education GED & Adult Education Information 21 South Fruit St., Suite 20, Concord (603) 271-6698 nhadulted.org The New Hampshire Bureau of Adult Education

supports educational services to adults who have not received a high school diploma or GED certificate or who do not read, write, or speak English. Grants to school districts and not-for-profit organizations make it possible for local adult education programs to serve adult learners whose skills range from very basic to high school level. Partnership in Employment: Supporting Adults with Intellectual and Developmental Disabilities in their Communities aucd.org/docs/resources/pie_adults_Nov2014_ families.pdf A project of the Institute for Community Inclusion at the University of Massachusetts Boston, and the National Association of State Directors of Developmental Disabilities Services. Overview of day and employment services for people with developmental disabilities and guidance for those assisting them to become employed and be part of the community. Government Benefits and Agencies Government Benefits for People with Disabilities nh.gov/disability/information/community/benefitsforpeople.htm A list of links and contact information for government benefit programs that support people with disabilities. Apply Online for Benefits with NH EASY New Hampshire’s Electronic Application System (NH EASY) offers New Hampshire residents a fast and easy way to apply online for cash, medical, child care, Medicare Savings Program, and/or food stamp benefits. nheasy.nh.gov NH Department of Health and Human Services 129 Pleasant Street, Concord (800) 852-3345 dhhs.nh.gov Provides services for individuals, children, families and seniors and administers programs and services such as mental health, developmental disability, substance abuse and public health. The DHHS website contains a comprehensive description of programs and services administered by the Department and how to apply. DHHS District Offices: dhhs.nh.gov/contactus/districtoffices.htm Local offices where you can apply for Medicaid, financial assistance, food stamps and other benefits. Social Security 70 Commercial Street, Suite 100, Concord Toll-free: (800) 772-1213; TTY (800) 325-0778; FAX: (603) 228-5206 ssa.gov Applicants for SSDI and SSI can file for benefits online at SSA.gov website, by phone or by visiting a local Social Security Office. Special Education NH Department of Education Bureau of Special Education 101 Pleasant St., Concord (603) 271-6693 education.nh.gov/instruction/special_ed/index.htm Comprehensive reports, data and regulations relative to special education are available online.

NH Circuit Court — Probate Division 45 Chenell Drive, Suite 2, Concord (855) 212-1234 probateservice@courts.state.nh.us courts.state.nh.us/probate/index.htm The Circuit Court Probate Division has jurisdiction over all matters related to wills, trusts and estates, guardianships and involuntary commitment proceedings, adoptions, name changes and partition of real estate. Probate judges preside over these cases from courthouses located in each of the 10 counties throughout the state. Housing NH Housing Finance Authority 32 Constitutional Drive, Bedford, NH (800) 640-7239 or (603) 472-8623 TDD: (603) 472-2089 nhhfa.org New Hampshire Housing Finance Authority is a self-supporting public benefit corporation. The Authority administers a broad range of programs designed to assist low- and moderate-income persons and families with obtaining decent, safe and affordable housing. Home Ownership Programs, Multi-family Housing Programs and Rental Assistance Programs. Local Public Housing Authorities hud.gov/offices/pih/pha/contacts/states/nh.cfm Provide housing for low-income people and families in local communities. Brain Injury Association of New Hampshire Housing Assistance Guide bianh.org/pdf/Housing.pdf List of housing assistance resources compiled by the Brain Injury Association. Disability.gov’s Guide to Housing disability.gov/resource/disability-govs-guidehousing This guide has information about government agencies and organizations that can help you find an affordable place to live. You’ll also find information about rental assistance programs, assisted-living facilities and modifying your home to make it accessible. Granite State Independent Living’s Home Access Modification gsil.org/community-based-disability-supports/ home-access-modification Granite State Independent Living’s trained staff can consult with you around your accessibility needs and provide referrals to licensed vendors throughout the state of New Hampshire. In many cases their trained staff can assist in establishing a plan and identifying funding sources for your accessibility project. USDA Rural Development in Vermont/New Hampshire (802) 828-6000 or (802) 828-6080 rd.usda.gov/nh Mission is to improve the quality of life in rural areas. Provides technical assistance to communities, and funding and resources for home purchase, apartment rental and repairs. New Hampshire Community Loan Fund 7 Wall Street, Concord (603) 224-6699 communityloanfund.org Collaborates with a wide range of donors and lenders, and with business, nonprofit and government partners. Provides financing and support to people with low and moderate incomes for affordable housing.

US Department of Housing and Urban Development (HUD) New Hampshire Programs and Services (603) 666-7510 portal.hud.gov/hudportal/HUD?src=/states/ new_hampshire Assistance with home ownership, subsidized apartments, public housing, foreclosure assistance, homeless resources and discrimination. Counseling and other services available. State of NH Foreclosure Prevention Initiative For immediate assistance dial 211 homehelpnh.org On this site, you will find important tips on alternatives to foreclosure as well as other valuable resources to assist you. There is also a list of qualified housing counselors who can help you assess your situation and offer specific suggestions. Independent Living: Adults with Physical Disabilities Granite State Independent Living 21 Chenell Drive, Concord (800) 826-3700 or (603) 228-9680 gsil.org New Hampshire’s only Independent Living Center. Provides information, specialized services, and peer support for persons with disabilities following the principles of personal choice and direction. Provides home care services, personal care, community-based disability supports and employment services including benefit counseling. Also see State Independent Living Council (SILC) listed above.

Legal Assistance Guide to New Hampshire Legal Services Programs courts.state.nh.us/selfhelp/documents/legal_ services_brochure.pdf Produced by the NH Judicial Branch NH Legal Aid (800) 639-5290 nhlegalaid.org/ A cooperative effort of the legal services agencies serving New Hampshire’s low-income population to provide legal information, referrals, and pro se assistance. Online application for legal assistance. Website provides links and contact information to a number of nonprofit agencies that provide a range of services to low income people across the state. Includes online self-help guides. NH Judicial Branch Self-Help Center courts.state.nh.us/selfhelp/index.htm Basic, practical information about the New Hampshire court system, how it works, and what the procedures are for bringing a case to court. Also see NH Circuit Court, Probate Division information ABOVE.

Helping people live meaningful lives through Advocacy, Innovation & Collaboration

Serving Carroll, Coos and Upper Grafton Counties

Visit our website: www.northernhs.org

Disabilities Rights Center (DRC) See above. NH Bar Association Pro Bono Referral Program (800) 639-5290 or (603) 224-3333 Connects low-income individuals with volunteer attorneys who provide free legal services in family law, bankruptcy, consumer, housing and senior citizen matters.

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Resource Guide New Hampshire Legal Assistance (800) 562-3174 nhla.org Provides free legal advice and representation to low–income people and older adults in civil matters involving basic needs, including food, shelter, income, medical care and public benefits. Local Offices: Berlin................................................(800) 698-8969 Claremont........................................(800) 562-3994 Concord...........................................(800) 921-1115 Manchester......................................(800) 562-3174 Portsmouth......................................(800) 334-3135 Foreclosure Relief Project..............(877) 399-9995 Senior Citizens Law Project...........(888) 353-9944 or (603) 624-6000 The “Law Line” – NH Bar Association Talk to a lawyer free of charge on the 2nd Wednesday of the month, from 6 – 8 p.m. (800) 868-1212

Applied Behavioral Associates, LLC

Norcross Circle, PO Box 1304 North Conway, NH 03860 603-356-6616 508-485-5300 info@aba4kids.org

ADVERTISER INDEX Applied Behavioral Associates, LLC......................30 Birchtree Center, The............................................. 15 Boston Conservatory at Berklee...........................25 Carriage Barn Equestrian Center, The................. 13 Cedarcrest Center.....................................................6 Community Support Network Inc (CSNI)......16-17 Constellations Behavioral Services....................... 12 Crotched Mountain Foundation.......... 5, 13, 27, 31 Easter Seals.............................................................. 15 Enhanced Life Options...........................................29 Gateways Community Services......................13, 19 Granite State Music Therapy.................................27 Independent Services Network...............................6 Lakes Region Community Services Council........26 Little Bites Feeding & Speech Therapy, LLC........27 Living Innovations................................................... 10 Manchester Community Music School................28 Monadnock Developmental Services.................. 12 Monarch School of New England......................... 21 New Hampshire Council on Developmental Disabilities....................................... 2, 5, 13, 19, 21 NH Vocational Rehabilitation..................................5 NHDHHS Bureau of Developmental Services....28 Northeast Rehabilitation Hospital Network........ 21 Northern Human Services.....................................29 NUThin’ but GOOD TIMES!................................... 10 One Sky Community Services...............................28 Opportunity Networks........................................... 21 OT In Motion...........................................................27 PathWays of the River Valley.................................26 Residential Resources, Inc...................... back cover Richie McFarland Children’s Center.....................25 Student Matters,LLC...............................................29 The Moore Center....................................................6 Touchstone Farm......................................................5 Visual Victory Training Center...............................10

University of New Hampshire School of Law Civil Practice Clinic Assists low-income clients with a variety of issues from consumer protection, collection and foreclosure defense (including Chapter 13 bankruptcy), predatory lending and auto fraud. Will take cases from Merrimack, Belknap, Sullivan and Hillsborough counties. (603) 225-3350 Mental Health and Suicide Prevention SAMHSA Behavioral Health Treatment Services Locator and Treatment Referral Helpline findtreatment.samhsa.gov/ (800) 662-HELP (4357) or (800) 487-4889 (TDD) Use the Locator to find alcohol and drug abuse treatment or mental health treatment facilities and programs around the country. Or call the SAMHSA Treatment Referral Helpline. Free and confidential information in English and Spanish for individuals and family members facing substance abuse and mental health issues. 24 hours a day, 7 days a week. Sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) NAMI NH 85 North State Street, Concord (800) 242-6264 or (603) 225-5359 naminh.org NAMI NH is a statewide network of affiliate chapter support groups, staff and volunteers that provide information, education and support to all families and communities affected by mental illness. Community Mental Health Centers NH DHHS Bureau of Behavioral Health (800) 852-3345 x 5000 or (603) 271-5000 dhhs.nh.gov/dcbcs/bbh/centers.htm Regional agencies provide publicly funded mental health services to individuals and families who meet certain criteria. Services include 24-hour emergency services, assessment and evaluation, individual and group therapy, case management, rehabilitation, psychiatric services and specialized programs for older adults, children, and families and short-term counseling and support. Mental Health Peer Support NH DHHS Bureau of Behavioral Health (800) 852-3345 x 5000 or (603) 271-5000 dhhs.nh.gov/dcbcs/bbh/peer.htm

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Local Peer Support Agencies provide services to adults with mental illness who self-identify as a recipient, former recipient, or as at significant risk of becoming a recipient of publicly funded mental health services. Provided by and for people with a mental illness. Includes face-to-face and telephone peer support; outreach; monthly educational events; activities that promote selfadvocacy; wellness training; after hours warm line; crisis respite. Disaster Distress Helpline disasterdistress.samhsa.gov/ (800) 985-5990; TTY: (800) 846-8517 Website and helpline for those affected by a disaster and in need of immediate assistance, information, support, and counseling. Callers will be connected to the nearest crisis center.

National Secondary Transition Technical Assistance Center’s Age Appropriate transition assessments toolkit nsttac.org/content/age-appropriate-transitionassessment-toolkit-3rd-edition Designed to help with the selection of assessments for students in regards to transition planning. Disability.gov’s Guide to Student Transition Planning disability.gov/resource/disability-govs-guidestudent-transition-planning Links to transition resources. Transportation New Hampshire Transportation Resources bianh.org/Transportation.pdf Transportation resources compiled by the Brain Injury Association of New Hampshire.

Suicide Prevention Lifeline suicidepreventionlifeline.org (800) 273-TALK (8255) New Hampshire Suicide Prevention and General Resources theconnectproject.org (603) 225-5359 or (800) 242-6264 (These are NOT Crisis response numbers) Research and Training UNH Institute on Disability (603) 228-2084 or (800) 238-2048 iod.unh.edu Provides a university-based focus for the improvement of knowledge, policies, and practices related to the lives of people with disabilities and their families. Offers seminars and workshops, webinars, interdisciplinary evaluation and consultation, leadership training, and customized, on-site support in schools.

NHCarePath Page on Transportation nhcarepath.org/transportation NH Department of Transportation: Public Transportation Information (603) 271-3734 nh.gov/dot/org/aerorailtransit/railandtransit/ transit.htm Information about public transportation in New Hampshire, with links to regional transit providers. National Rehabilitation Information Center: Guide to Finding Transportation Services naric.com/?q=en/FAQ/where-can-i-find-transportation-services Information on finding transportation services.

Transition NH Parent Information Center’s Life After High School Toolkit nhspecialed.org/life-after-high-school/ Strategies, tools and resources for families of youth with disabilities to assist in creating successful transition plans. Next Steps NH: Options for Life After High School nextsteps-nh.org/ Transition and career development resources for special educators, students, parents and others interested in increasing transition and career development opportunities for youth with and without disabilities.

FOr More INFORMATION: A more comprehensive version of this guide is available online at nhddresources.org or may be obtained by calling (603) 271-7039.

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