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Sunday, November 3, 2013 The Bakersfield Voice
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PHOTO BY APRIL MASSIRIO
Local women tell stories of living, dealing with chronic MS disease BY LISA KIMBLE Community contributor
B
akersfield resident Sarah Swanlund is very matter-offact when discussing living with multiple sclerosis for most of her adult life. “It is an inconvenience,” she said. That perspective — practical, yet realistic — has allowed the 42-year-old married mother of two to lead a healthy, productive life, despite an obvious decline in her physical abilities. Swanlund was just 25 when she first began to experience what she called a tingling sensation in her hands and face. Her knees also ached. Wisely so, her physician focused on the source of the tingling and a diagnosis came quickly. Multiple sclerosis, a chronic disease that damages the nerves of the spinal cord, brain and optics resulting in multiple areas of scar tissue, affects an estimated 400,000 people in the United States and some 2.5 million worldwide. Christine Grontkowski, community development manager with the Kern office of the Southern California and Nevada chapter of the National MS Society, says there are about 900 people in Kern County living with MS. “There are so many cases that go unnoticed or misdiagnosed,” Gron-
Y O U R
tkowski said. Vision problems are usually among the first tell-tale signs of the disease that affects a person's muscles, balance and control as well. “My doctor told me not to let the disease affect my life decisions,” Swanlund said. And she didn’t. She put off treatment for a few years, and started a family. She experienced some optic neuritis, so her lazy eye kicked in. But as her body compensated for itself, changes were noticeable. “There has been a lot of physical progression,” she said. Her ability to walk and hand strength have been affected significantly. She used to ride her bike to and from work at Kern Regional Center. She now uses a walker and relies on hand controls while driving. But that is merely part of the “inconvenience” she is managing successfully. Hitched to her husband’s bike, she participates in Ride for MS events here and across the state. Swanlund practices restorative yoga, swims and exercises daily. She receives a shot of Betaseron every other day, and takes medications to deal with injection site reactions and sleeplessness. She also now takes a relatively new please turn to MS / PAGE 2
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Taylor Prather, 14, suffers from multiple sclerosis but now is the healthiest she has been since she was diagnosed, she said.
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The Bakersfield Voice Sunday, November 3, 2013 ■ Submitting your stories for The Bakersfield Voice is simple and FREE! Just go to: bakersfieldvoice.com and create a profile.
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Rotary Club to host ethics competition BY JIM WILLIAMS Community contributor
T
he Rotary Club of Bakersfield East is sponsoring an ethics team competition titled, “Ethics On Tap.” The purpose of the event is to raise funds to support the Youth Financial Literacy Program for underserved high school seniors and emancipated youth. This program was developed and implemented by members of the Bakersfield East Rotary Club and Bakersfield Twilight Club during the summer and fall of 2012. Currently, this after-school program is being offered at East High School, Mira Monte High School and Covenant Community Services. The competition will be held at TL Maxwell's Restaurant & Bar and Bar — at 1421 17th Place — from 6 to 8 p.m. on Nov. 21.
Businesses and organizations are invited to enter teams in the competition. Teams are required to have a minimum of two members and a maximum of six members. The application fee is $35 per team member for teams with two or three members. The fee is $25 for teams with four to six members. There will be a second competition in early 2014 if we receive more than six team applications. More information: contact Jim Williams at jwilliams83@bak.rr.com. In addition, the public is invited to submit ethical questions for the contest. Questions should be sent to jwilliams83@bak.rr.com or mailed to Youth Financial Literacy, P.O. Box 2486, Bakersfield, 93303.
Military veterans: Join Optimal Hospice ‘Vet to Vet’ program BY RHONDA FRANKHOUSER Community contributor
O
ptimal Hospice Care has been providing quality hospice care in the Kern County area since 1998. Throughout the years, Optimal Hospice has added various programs to better serve the specific needs of the patients and families in its care. For the past few years, Optimal has partnered with the National Hospice and Palliative Care Organization to provide specialized programs that cater specifically to the needs of our nation’s veterans. One of those programs is the Veteran to Veteran Volunteer Program. The program places volunteers with past military experience with veteran
MS CONTINUED FROM PAGE 1 medication, Ampyra, which she calls "the walking pill," and credits a good diet, hydration and regular exercise for helping her deal with secondary-progressive MS. "People stop me and remark that I am doing so well," she said laughing. "My advice to others is to do as much as you can while you can. All those little things you want to do in life, do them sooner than later." Most people diagnosed with MS are between the ages of 20 and 50. Cases among children are rare, which may explain the medical roller coaster 14year-old Taylor Prather of Bakersfield has been on for the past few years. "I started having pains ever since I could talk," Prather recalled. "My joints were always really hurting." She was diagnosed with relapsingremitting, the most common form of MS in which flare-ups occur during an acute attack, then disappear almost completely. The young soccer player first began having trouble with her feet. "There was always a problem with my soccer shoes." Heat is considered a trigger. The
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■ Circulation: If you would like to receive our weekly publication or cancel delivery, please e-mail: voicedelivery@bakersfield.com or call 392-5777. Be
PHOTO BY APRIL MASSIRIO
Bakersfield resident Sarah Swanlund is very matter-of-fact when discussing living with multiple sclerosis for most of her adult life, calling it “an inconvenience.”
summer of 2010, had been an especially hot one for the 11-year-old as she headed into sixth grade. "I was feeling really rundown," Prather remembers. An MRI revealed what was first thought to be a brain tumor. Surgery was considered, and she began receiving radiation.
patients. “We have found that often this opens up a type of communication that only occurs between individuals who have similar military experiences,” said Karen Budnick, volunteer coordinator for Optimal Hospice Care. “Sometimes these patients relate to the veteran volunteers on a level they are never able to share with other people, including members of their own family.” The volunteer department at Optimal Hospice is currently recruiting veterans who might be interested in offering support to other veterans through this program. Optimal is also looking for patient family support volunteers, registered pet therapy volunteers for
Taylor had lost sight in her left eye and was experiencing sharp pain. “Doctors thought it would only be a matter of time before she would lose sight in her other eye,” her mother, Shelly Gilliland, said. Doctors at Stanford University Medical Center determined the suspected tumor was actually inflammation of the optic nerve, something often associated with MS. Prather was diagnosed with optic neuritis, but a conclusive diagnosis of MS was not yet made. “They told us they thought it could lead to MS,” Gilliland said. In May 2011, the young girl’s condition worsened and Taylor was hospitalized. “She went from a normal 11-year-old girl, walking, to a child with the mentality of a 5-year-old on feeding tubes,” her mother said. Doctors at UC San Francisco diagnosed Taylor with MS. “All I could see was Taylor with a wheelchair and wondering how her life was going to change,” said Gilliland, her voice trailing. Today, just two years after the heartwrenching experience in which she couldn’t walk on her own and was told she might not be able to walk normally ever again, Taylor Prather miraculously is the picture of health.
the CarePals team, licensed hairstylists and compassionate individuals interested in providing companionship to patients living in care facilities in and around Kern County. Optimal also has a great need for volunteers willing to support patients in the outlying communities such as Taft, Lamont, Shafter, Delano and Kern Valley. For more information about the Vet to Vet Volunteer program, or any other programs offered by Optimal Hospice Care, call the volunteer department at 716-4000 or email rfrankhouser@optimalcares.com. Rhonda Frankhouser is the volunteer coordinator for Optimal Hospice Care.
“It’s not really bad, mostly. Every day there are some aches and pains and numbness, but nothing major,” Prather said. “Looking at her today, you would never guess that she couldn’t walk or see,” her 21-year-old sister, Jordan Prather said. Taylor Prather, an incoming freshman and a cheerleader at Stockdale High, receives a shot of Rebif three times a week and strength trains four times a week at Pair & Marotta Physical Therapy. “It is very important to stay active and keep my body strong,” said Taylor, who receives an MRI twice a year. “We take it day by day,” Gilliland said. “Stress is a huge factor because it can wear her down, making her vulnerable to more lesions in the brain or flare-ups.” Sister Jordan added: “She is the healthiest she has been since she was diagnosed.” Now, Taylor said she has no time to feel sorry for herself. “Things can always be worse.” This article first appeared in Bakersfield Wellness Magazine, BWell. For more on local health and wellness, go to bwellmagazine.com, or find us on Facebook and Twitter (@BWellMag).
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Sunday, November 3, 2013 The Bakersfield Voice
Tuesday, November 12TH at Rabobank Theater Shopping Bazaar 3:30 pm | Cooking School 6:00 pm
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The Bakersfield Voice Sunday, November 3, 2013