Programs
Summer 2011
CONNECTION
Grieving lost dreams. Welcoming new ones.
Discover strategies for facing the challenges of multiple sclerosis.
Home modifications
Learn about accessibility improvements.
Plus Twins game at Target Field MS research symposium MS= campaign and much, much more
JOIN THE MOVEMENT速
MOVING IS WHO WE ARE “We’ll keep the lights lit, Linda.”
Linda Munson,Vice President of Programs
Linda Munson, former vice president of programs at the National MS Society, Minnesota Chapter, retired from her position June 30. During her many years with the chapter, Linda left a significant impact in the area of programs and services.
Linda planted many seeds over the years and encouraged staff and volunteers to cultivate those seeds into something spectacular. She knew our staff alone could never effectively reach the more than 10,000 people with MS in our chapter area. She often said, “We need to keep the lights lit everywhere,” so she worked to ensure MS clubs and groups were empowered to deliver programs locally. She helped change the organization’s culture to better utilize volunteers and now, many develop and implement programs statewide. Linda also ensured financial and social services continued to be available through the recession. Because of her passion for programs such as caregiver respite and chore services, the Minnesota Chapter has become a model in service delivery. “Collaboration” and “connection” are words Linda used regularly. Her vision for a collaborative adult day program was realized in Sartell, Minn. She knew clinics could deliver client programs and made that connection. Among these accomplishments, she also oversaw a marriage between fundraising events and programs that connected more people to the Society’s mission. We will miss Linda greatly, but her impact on the Minnesota Chapter will continue long after her retirement. She helped build an expert team of committed leaders who promise to “keep the lights lit.” Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Maggie Flanagan MS Navigators Sarah Danen Jill Parkinson Heather Svenson Chapter President Holly Anderson
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Table of contents
Programs by topic Join the Movement® Activism equals … “MS=” campaign
Recreation, socializing and connecting 6 8
Care partners Care partner social Family outing Grieving lost dreams Mississippi River adventure
7 11 13 19
7 11 17 19 22 23 32
Research
Managing MS Research symposium, Winona Grieving lost dreams Emerging MS therapies Stay independent with home modifications Connect locally Face time with your local neurologist Finding the right MS treatment for you Treatment options Exercise
Care partner social Family outing Minneapolis day trip (baseball) Mississippi River adventure 20s and 30s social outing Connect locally Clubs and groups
9 13 15 21 23 25 27 28 30
Research symposium, Winona Face time with your local neurologist
9 25
Technology What’s online
38
Young adults Family outing 20s and 30s social outing
11 22
Programs are listed by location on page 4.
Money matters Personal financial counseling
37
JOIN THE MOVEMENT®
Programs by location St. Cloud
Albert Lea Treatment options
28
Grieving lost dreams Treatment options
11
Twin Cities
Bemidji Family outing
Carlton Connect locally
23
Duluth Connect locally
23
Hudson, WI Treatment options
28 23
Treatment options
29
Winona
Litchfield Connect locally
7 15 17 19 22 24 29
Willmar
Hutchinson Connect locally
Care partner social Emerging MS therapies Minneapolis day trip (baseball) Mississippi River adventure 20s and 30s social event Face time with your local neurologist Treatment options
13 28
23
Research symposium
9
Osakis Connect locally
4
23
National Multiple Sclerosis Society, Minnesota Chapter
Grieving an MS diagnosis and finding hope Experience the value in attending programs for care partners.
Barb Soder’s mother was diagnosed with MS when Barb was only 7 years old. “I remember attending an MS group’s Christmas party with Mom when I was about 9. It seemed like lots Barb Soder of people there were using those old-style metal wheelchairs. I wondered ‘Is this what’s going to happen to my mom?’ Looking back, I realize it was a pretty overwhelming experience.” In 2009, Barb and her mother attended “Grieving lost dreams. Welcoming new ones,” a National MS Society program featuring Tom Ellis, executive director of the Center for Grief, Loss and Transition. The program focuses on strategies for facing the challenges of MS and includes a morning session for people with MS and their care partners and a breakout session for care partners only. “A particular point Tom made during his presentation has especially stuck with me,” said Barb. “He helped me identify and name my own process of grieving over the impact MS would
have on my mom, me and our family. I had never thought of it that way before and continue to find it a true and helpful perspective. When a person is living with MS, the whole family also is living with it, and each member of the family has their own, unique experience of living with this disease.” Barb found the care partner breakout session especially valuable. “I never had the opportunity to attend a session just for us, the family care partners. I was surprised by how grateful I felt.” After the program, the Minnesota Chapter coordinated three follow-up sessions, also facilitated by Ellis. “Tom handed out these really nice notebooks and encouraged us to begin journaling as one way to take care of ourselves. Through the follow-up sessions with Tom and other care partners, I began to appreciate the importance of taking care of me! We can care better for others when we take care of ourselves.”
Learn more “Grieving lost dreams. Welcoming new ones” will be offered in St. Cloud Sept. 17. See page 13 for details.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
5
Activism equals … The National MS Society recently launched the “MS=” campaign, which asks people to share what MS equals to them. You’ve likely seen this campaign on our website, in our newsletters and perhaps even in your community. Just like MS means different things to different people, “activism” means different things, too. Are you looking for some easy ways to help influence change? Check out these suggestions:
Activism = sharing The easiest thing you can do is share your story with people in your community. Whether you’re talking to friends or co-workers or speaking to a rotary club or newspaper reporter, your story has the power to educate and inspire people into action.
Activism = inviting Building a relationship with your elected officials is important and not as scary as it may sound. Reach out to your state senator and representative, and your U.S. congress member to invite them to your MS group or club to learn more about the disease and how it affects people.
We asked our Facebook friends to complete the sentence, “Activism = _______.” The wide range of responses included, “awareness and progress,” “the fight for real change,” “educating others about MS” and “hope.” Activism truly is each of these things! With awareness and education, we can create hope and real change.
Activism = learning Stay up to date with the latest MS activism news by becoming an Action Alert member. Visit tinyurl.com/MSActionAlert to sign up. Plus, follow us on Twitter at twitter.com/MSactivismMN.
Activism = fashion Raise awareness and start conversations by wearing a National MS Society shirt, hat or other gear. Or simply wear orange!
Activism = speaking up If there’s an issue affecting you or others, let the Minnesota Chapter know! We’re always looking for stories about drug co-pay increases, changes in PCA services, issues with health plans, ADA challenges and more.
Questions? Contact Jenna at 612-335-7981 or jenna.washnieski@nmss.org.
6
National Multiple Sclerosis Society, Minnesota Chapter
Care partner social Connect with other care partners and enjoy appetizers.
Aug. 17 n St. Paul The National MS Society recognizes the importance of connecting with others who understand the challenges of caring for someone with MS. The Minnesota Chapter invites all care partners — including spouses, family and friends — to meet and socialize with others who share this unique role in a fun and casual setting. Create valuable connections while enjoying complimentary appetizers. Attendees must purchase their own beverages.
Details
Join us!
n Wednesday,
Aug. 17, 6 p.m.
n Sweeney’s
Saloon, 98 N. Dale St., St. Paul, MN 55102
n There
RSVP by Aug. 12 to Bethany at 612-335-7954 or bethany.hansen@nmss.org.
is no cost to attend this program.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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What does “MS=” to you?
MS = dreams lost. dreams rebuilt.
MS = thief
MS = skating on thin ice
This summer, the Minnesota Chapter brought the “MS=” campaign to a community near you. You may have seen “MS=” billboards, print ads and public service announcements, or maybe you noticed stories in your local newspaper about MS. This is part of the chapter’s commitment to reaching people and raising MS awareness throughout Minnesota and western Wisconsin. Many people submitted responses to the question, “What does MS equal to you?” Here’s what some of you said:
MS = Not knowing what tomorrow will bring MS = Seeing life from a unique perspective MS = Ticking timebomb MS = The reason I keep moving Tell the Minnesota Chapter what MS equals to you and learn more about the MS equals campaign at MSsociety.org. Click on “MS=” in the yellow box on the right-hand side of the screen.
8
National Multiple Sclerosis Society, Minnesota Chapter
MS research symposium Everything you need to know about the latest MS research and therapies.
Aug. 13 n Winona Learn about world-recognized multiple sclerosis research projects at the Minnesota Chapter’s fourth 2011 research symposium. Medical expert Dr. Istvan Pirko will answer questions about cutting-edge MS research and therapies as well as discuss new discoveries, novel therapies and experimental models being investigated at Minnesota’s Mayo Clinic Center for MS and CNS Demyelinating Diseases. In addition, learn about clinical trials in which people with MS can participate and what participants can expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS.
Featured speaker Dr. Istvan Pirko is associate professor of neurology at the Mayo College of Medicine. He graduated from the University Medical School of Debrecen in Debrecen, Hungary, and served as director of the Waddell Istvan Pirko, M.D. Center for Multiple Sclerosis at the University of Cincinnati from 2007 to 2009. In 2007, Pirko received the prestigious honor of being named one of the best doctors in America by bestdoctors.com.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
9
MS research symposium
Saturday, Aug. 13
Space is limited. Registration form must be received by Aug. 8.
Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
9–9:30 a.m. 9:30–10:30 a.m. 10:30–10:45 a.m. 10:45–11:15 a.m. 11:15–11:30 a.m.
9–11:30 a.m.
Check-in and breakfast Mayo Clinic MS research highlights Break MS research highlights Q&A session
Location Riverport Inn & Suites 900 Bruski Drive Winona, MN 507-452-0606
Program fee There is no fee for this program.
_____ # of people attending
Register
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1).
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.
MNM0CREW20110813WIN
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By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Family outing A fun day at the lake for the whole family!
Aug. 20 n Bemidji Come to scenic Lake Bemidji for a day of fun, food and family! Spend quality time together and meet other families affected by multiple sclerosis. Families can relax during a pontoon cruise on the lake, provided by Let’s Go Fishing. The pontoon is fully accessible, and fishing equipment will be provided for anyone who’s interested. Other highlights include a catered lunch, family-friendly activities and a prize drawing. The family outing is for families affected by MS, whether it be a parent, guardian or child living with the disease. This includes two-parent families, single-parent families and domestic-partner families. This one-of-a-kind outing, intended for families with young children, will take place at Ruttger’s Birchmont Lodge, a beautiful, historic resort located on the northwest shore of Lake Bemidji.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
11
Family outing Space is limited. Registration form must be received by Aug. 12. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending $_______ amount enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.
MNM0CFPW20110820BEM
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Saturday, Aug. 20 10:30 a.m. 11 a.m.–12:15 p.m. 12:15–1 p.m. 1–2:15 p.m. 2:15–2:30 p.m.
10:30 a.m. – 2:30 p.m.
Welcome Pontoon cruise and family activities Lunch Pontoon cruise and family activities Closing and prize drawing
Location Ruttger’s Birchmont Lodge 7598 Bemidji Road NE Bemidji, MN 56601
Program fee There is a program fee of $5 per person. Fee adjustments are available for this program. Make checks payable to the National MS Society. Do not send cash.
Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1). By mail Mail registration form and check to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Grieving lost dreams Welcoming new ones.
Sept. 17 n St. Cloud Join other people affected by multiple sclerosis to learn strategies for facing challenges of the disease and much more. This unique program also offers afternoon breakout sessions addressing the needs of care partners as well as men and women living with MS.
General session Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.”
Breakout sessions Join Ellis for an engaging, interactive discussion with other care partners, whether you are a spouse, partner, family member or friend of someone with MS. Discuss common issues for women living with MS with Jackie Higgins, F.N.P., B.C. from the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn. Men with MS will be joined by Dr. Robert Jacoby, neurologist at the Noran Neurological Clinic in Blaine, Minn.
Thomas M. Ellis
Dr. Robert Jacoby
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
Jackie Higgins
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Grieving lost dreams. Welcoming new ones. Space is limited. Registration form must be received by Sept. 12. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.
MNM0CEOW20110917STC
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Saturday, Sept. 17 9:30–10 a.m. 10–noon Noon–12:45 p.m. 12:45–2 p.m.
9:30 a.m. – 2 p.m.
Check-in General session: Grieving lost dreams. Welcoming new ones. Lunch Breakout sessions: Care partners, Tom Ellis Women’s issues, Jackie Higgins, F.N.P., B.C. Men’s issues, Dr. Robert Jacoby
Location St. Cloud Civic Center (Opportunities Suite, first floor) 10 Fourth Ave. S. St. Cloud, MN 55415 320-255-7272
Program fee There is no fee for this program.
Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1). By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Emerging MS therapies Find the right MS treatment for you.
Dr. Gary Birnbaum
Dr. Jonathan Calkwood
Dr. Jason Cornelius
Dr. Charles Horowitz
Dr. Yelena Usmanova
General session Sept. 17 n Bloomington Several new therapies for people living with MS recently have been introduced and many more likely will be on the market in the coming years. While that’s exciting news, if you or someone close to you has MS, you may feel overwhelmed. Get the information and support you need to understand new treatment options and to help you make decisions about important aspects of your health. This timely program also offers breakout sessions addressing varying needs of people with MS.
n
“Emerging MS therapies: the good, the bad and the ugly,” with Dr. Gary Birnbaum, MS Treatment and Research Center at the Minneapolis Clinic of Neurology
n
“Why and when to switch therapies,” with Dr. Jonathan Calkwood, Schapiro Center for MS at the Minneapolis Clinic of Neurology
n
“MRIs in prognosis and treatment of MS,” with Dr. Junger Tang, MS Treatment and Research Center at the Minneapolis Clinic of Neurology (not pictured)
Breakout sessions n
“Sleep and MS,” with Dr. Jason Cornelius, Minneapolis Clinic of Neurology
n
“Spasticity management: Botox, ITB pumps and more,” with Dr. Charles Horowitz, Minneapolis Clinic of Neurology
n
“New options in symptom management,” with Dr. Yelena Usmanova, Minneapolis Clinic of Neurology
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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Emerging MS therapies Space is limited. Registration form must be received by Sept. 12. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.
MNM0CEDW20110917BLO
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Saturday, Sept. 17
9:30 a.m. – 2:30 p.m.
9–9:30 a.m. Check-in and breakfast 9:30–10:30 a.m. Emerging therapies 10:30–10:45 a.m. Break 10:45–11:45 a.m. Why and when to switch therapies 11:45–12:30 p.m. Lunch 12:40–1:30 p.m. Breakout one 1:40–2:30 p.m. Breakout two
Location Sheraton Bloomington Hotel 7800 Normandale Blvd. Minneapolis, MN 55439 952-835-7800
Program fee There is no fee for this program.
Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1). By mail Mail registration form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Minneapolis day trip See the Twins and enjoy an evening at Target Field.
Sept. 20 n Minneapolis Hear the crack of the bat as you watch the Minnesota Twins take on the Seattle Mariners under the lights at Target Field. See MVPs Joe Mauer and Justin Morneau, plus Jason Kubel, Denard Span and all your favorite players alongside other people with MS and their families. The cost to attend is $26 per person. Group-rate tickets are limited to the first 100 people who register. Attendees are responsible for their own transportation.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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Thursday, Sept. 20
7:10 p.m.
Location Target Field 550 Third Ave. Minneapolis, MN 55403
Program fee Cost is $26 per person. Fee adjustments are not available for this program. Tickets will be mailed prior to the game.
Accessible seating Accessible seating is limited and available on a first-come, first-served basis.
Register Online or by phone For more information or to register, call Kari at 612-335-7968 or Jeannie at 612-335-7939. The deadline to register is Aug. 16.
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Mississippi River adventure Enjoy a relaxing canoe ride through the heart of the Twin Cities.
Sept. 25 n St. Paul Join other men and women with MS and their care partners (spouses, partners, parents and friends) to see the amazing blaze of fall colors on this unique adventure hosted by Wilderness Inquiry. View wildlife, learn about nature and see the Twin Cities from an entirely new perspective — the way people saw it 200 years ago. This scenic excursion starts at the East River Flats in Minneapolis and heads downstream to Hidden Falls Regional Park in St. Paul. Experienced in providing wilderness trips for people of diverse abilities, Wilderness Inquiry staff will lead the trip in 24-foot Voyageur canoes, which hold up to 10 people. Paddles and personal flotation devices will be provided. No previous paddling experience is needed! Just bring your camera, sunglasses, water bottle and rain gear. (We paddle rain or shine.) Meet at Hidden Falls Park in St. Paul, where a shuttle will take you from the parking lot to the river flats. Lunch will be provided. No children under 18, please.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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Mississippi River adventure Space is limited. Registration form must be received by Aug. 19. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending $_______ amount enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.
MNM0CRSW20110925MPL
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Sunday, Sept. 25 9–9:30 a.m. 9:35 a.m. 10 a.m. – 2 p.m. 3 p.m.
9:30 a.m. – 3 p.m.
Check-in at Hidden Falls Park parking lot Shuttle bus leaves lot Arrive at East River Flats, Minneapolis and enjoy canoeing and lunch Return to Hidden Falls parking lot
Location Hidden Falls Regional Park North entrance (MaGoffin Ave. entrance) 1415 Mississippi River Blvd. S. St. Paul, MN 55116
Program fee There is a $45 program fee per person. Fee adjustments are not available for this program. No children under 18, please.
Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1). By mail Mail registration form and check to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Stay independent with home modifications Home modification experts discuss simple ways to improve your quality of life. Featured accessibility experts Sept. 10 n 10–11:30 a.m. Are you thinking about remodeling your home or building new to remain independent and improve your quality of life? Join this unique tele-program to have your questions answered by experts who specialize in home accessibility modifications. Learn how ramps, stair lifts, roll-in showers, ceiling lifts and other assistive technologies are helping people with MS maximize their independence, and discuss home modifications you can make as well as approximate costs. Plus, get information about the Minnesota Chapter’s financial assistance grants, which can help with modification costs.
Featured accessibility experts n
Randy Behling AccessAbility Options
n
Bruce Stevenson Ability Solutions
n
Carisa Rasmussen Accessible Homes
n
Scott Ahlgren National MS Society, Minnesota Chapter
Join the conversation from your own home! Call 866-417-3327 (code 6034762475) Sept. 10 at 10 a.m. Submit your questions by Sept. 8 to Steve at steve.korngable@nmss.org or 612-335-7974. If you’re unable to dial in Sept. 10, you can access a recording of the session at MSsociety.org.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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20s and 30s social outing Connect with other young adults living with MS.
Sept. 3 n Shakopee Experience the excitement of horse racing at Canterbury Park with other people in their 20s and 30s who understand an MS diagnosis. Enjoy good food and even better company while feeling the thunder of the stretch run! Friends and family also are invited.
Details n Saturday,
Sept. 3, noon–5:30 p.m.
n Canterbury
Park, 1100 Canterbury Road, Shakopee, MN 55379, 952-445-7223
Sponsored by
n Lunch
buffet is from 1 to 2:30 p.m.
n There
is no cost to attend this program. No children under 18, please.
Please RSVP by Aug. 29 to Jill at 612-335-7938 or jill.parkinson@nmss.org.
Join us at a 20s and 30s happy hour People affected by MS in their 20s and 30s are invited to attend a happy hour social Aug. 19, at 5:30 p.m., at Oak City (5001 American Blvd. W., Bloomington, Minn.). For more information or to RSVP, contact Jill at 612-335-7938 or jill.parkinson@nmss.org; or Jeff at 612-335-7951 or jeff.fisher@nmss.org.
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National Multiple Sclerosis Society, Minnesota Chapter
Connect locally Connect with people in your community and learn about MS-related research, symptom management, ways to cope with MS and more. Face time with a Minnesota Chapter staff member Roseville n Aug. 10, 6:45 p.m. Fire Station #1, 2701 Lexington Ave., Roseville, MN 55113
Hutchinson n Oct. 10, 6:45 p.m. Christ the King Lutheran, 1040 S. Grade Road SW, Hutchinson, MN 55350 Join a Minnesota Chapter staff member to discuss the impact of health care reform on people with MS and other important topics. Come with questions and be ready to share your own experiences.
To RSVP for the Roseville program, contact Robin at 651-647-0809 or scheibs@comcast.net. To RSVP for Hutchinson program, contact Ann at 320-894-7896 or annlha@yahoo.com.
Harnessed walking and exercise with MS Osakis n Aug. 20, 10:30 a.m. Club Galeon Wellness Center, 410 W. Main St., Osakis, MN 56360 People with MS often experience walking and balance difficulties. Harnessed walking, which utilizes specialized equipment, is a functional treatment option that may help people with MS improve their balance, walking and endurance. The Alexandria MS group invites you to join them for this informative program featuring Megan Frost, physical therapist and recipient of the Minnesota chapter’s 2008 Health Care Professional of the Year Starfish Award.
Club Galeon Wellness Center is dedicated to providing wellness programming and outpatient rehabilitation services for seniors and people living with chronic illness or disability. To RSVP, contact Deb Merten at 320-761-5131 or debkittym@yahoo.com.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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Connect locally Adapting exercise or yoga Duluth n Sept. 6, 11:30 a.m. Bethany Baptist Church, 6700 Grand Ave., Duluth, MN 55807 In addition to being essential to general health and well-being, exercise is helpful in managing many MS symptoms. More and more MS experts agree that yoga, with its emphasis on relaxation, breathing, stretching and deliberate movements, may be a good choice of exercise for some.
Join Robin Davidson, physical therapist at Polinsky Rehabilitation Center of Essential Health, for a discussion and demonstrations on adapting exercise and yoga. Please bring a bagged lunch. To RSVP, contact Bev at 218-624-1212 or bevs2@juno.com.
MS news: New treatments and research Carlton n Sept. 26, 3 p.m. Bethesda Lutheran Church, 204 Fifth St., Carlton, MN 55718 Learn about a new medication to improve walking To RSVP, contact Karen at 218-879-7986 or in people with MS and other oral treatments in bkc3laine@yahoo.com. the pipeline. Plus, hear about the latest in chronic cerebrospinal venous insufficiency (CCSVI) research.
Hold that thought: Cognition and MS Litchfield n Sept. 29, 7 p.m. Meeker Memorial Hospital Conference Center, 612 S. Sibley Ave., Litchfield, MN 55355 An estimated 50 to 65 percent of people living with MS experience some cognitive challenge, such as difficulty remembering things, finding the right words, concentrating on a task, following a conversation or experience and more.
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Learn about cognitive symptoms associated with MS, how cognitive changes are evaluated as well as treatment and strategies for managing these changes. Time for discussion will follow. To RSVP, contact Ann at 320-894-7896 or annlha@yahoo.com. National Multiple Sclerosis Society, Minnesota Chapter
Face time with your local neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Highway 55, Golden Valley, MN 55422, 763-591-4700 Topics: Aug. 10 Genes and multiple sclerosis Sept. 14 Making your home accessible, featuring guest speaker Bonnie Birnbaum, A.S.I.D., C.I.D. Oct. 12 Occupational therapy including driving evaluations, Dr. Gary Birnbaum featuring guest speaker Cindy Gackle, O.T.R./L., M.S.C.S. Please RSVP to 763-302-8282, ext. 4823.
University of Minnesota MS Center Join Dr. Adam Carpenter Every other month at 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave., #500 Maple Grove, MN 55369, 763-898-1000 Topics: Sept. 12 What is a relapse? For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Adam Carpenter
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
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Face time with your local neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every other Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750 Topics:
Dr. Jonathan Calkwood
Aug. 10 Alternative and complimentary therapies
Aug. 24
Take a closer look at MS, featuring guest speaker Bobbie Junge, MS patient advocate from Fire and Accident Investigations, National Interagency Fire Center; Boise, Idaho (Please join us at 12:30 p.m. for lunch sponsored by Bayer HealthCare.)
Sept. 7
Osteoporosis and MS
Sept. 21 Having a successful doctor visit
Oct. 5
Oct. 19
Helping Paws — The benefits of helping dogs The balancing act — Improving gait and balance, featuring guest speaker Monica Wainio, P.T.
For more information, contact the Schapiro Center for MS at 763-302-4199.
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National Multiple Sclerosis Society, Minnesota Chapter
Details about this program are provided for your information. This program is not produced by the National MS Society.
Finding the right MS treatment for you
Sept. 15 n St. Paul Learning about multiple sclerosis is essential to managing its symptoms. Join us as medical MS experts present the science behind MS, current therapies to treat MS and insight into managing the disease.
®
Details n Registration: n Program:
5:30–6 p.m.
6–8 p.m.
Jimmy’s Conference & Catering 3565 Labore Road St. Paul, MN 55110
MS Active Source is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2009 Biogen Idec. All rights reserved
Featured speakers Join us! To register for this free program, call 866-955-9999; or register online at MSActivesource.com and click on the “Events” button. Robert Jacoby, M.D. Noran MS Clinic Minneapolis, MN
Dodie Russell, N.P. Noran MS Clinic Minneapolis, MN
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
27
Treatment options People with MS and their care partners are invited to attend a free educational program about AMPYRA®. Ampyra® (dalfampridine) Extended Release Tablets, 10 mg, was introduced March 2010. Learn more about this treatment option by visiting AMPYRA.com or attending one of the following programs.
Featured speaker Dr. Gareth Parry Dr. Gareth Parry is medical director of the University of Minnesota MS Center and the Clinical Neuroscience Research Unit, a neurology professor at the university, and medical director of the Fairview MS Achievement Center.
Join us to learn more
Aug. 10 n Albert Lea Sept. 7 n Hudson, WI
n Welcome:
Country Inn & Suites by Carlson 2214 E. Main St. Albert Lea, MN 56007
n Program:
6:30 p.m.
7 p.m.
Pier 500 500 First St. Hudson, WI 54016
Register by calling 800-397-8082 or visit AMPYRA.com. Space is limited — reserve your spot today!
Programs are sponsored by Acorda Therapeutics®, Inc. Programs are sponsored by Acorda Therapeutics®, Inc. AMPYRA® is a registered trademark of Acorda Therapeutics®, Inc. AMPYRA is marketed by Acorda Therapeutics®, Inc. and is manufactured under license from Elan Pharma International, Ltd. ©2010 Acorda Therapeutics®, Inc. All rights reserved.
28
National Multiple Sclerosis Society, Minnesota Chapter
Details about this program are provided for your information. This program is not produced by the National MS Society.
Featured speaker Dr. Jonathan Calkwood Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in Golden Valley, Minn.
Join us to learn more
Sept. 27 n Bloomington
n Welcome
and registration: 6:30 p.m.
n Program:
7 p.m.
Sofitel Minneapolis 5601 W. 78th St. Bloomington, MN 55439
Register by calling 800-397-8082 or visit AMPYRA.com. Space is limited — reserve your spot today!
Featured speaker Dr. Randall Schapiro Dr. Randall Schapiro is founder and former director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology and the Fairview MS Achievement Center.
Join us to learn more
Oct. 4 n St. Cloud
Oct. 5 n Willmar
5th Avenue Grill at Green Mill Restaurant Le St. Germain Hotel 2100 E. Highway 12 n Program: 7 p.m. 404 St. Germain W. Willmar, MN 56201 St. Cloud, MN 56301 Register Register by by calling calling 800-397-8082 800-397-8082 or or visit visit AMPYRA.com. AMPYRA.com. Space Space is is limited limited — — reserve reserve your your spot spot today! today! n Welcome:
6:30 p.m.
Programs are sponsored by Acorda Therapeutics®, Inc. Programs are sponsored by Acorda Therapeutics®, Inc. AMPYRA® is a registered trademark of Acorda Therapeutics®, Inc. AMPYRA is marketed by Acorda Therapeutics®, Inc. and is manufactured under license from Elan Pharma International, Ltd. ©2010 Acorda Therapeutics®, Inc. All rights reserved.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
29
Exercise Studies show exercise not only improves your overall health and well-being, but also can help to manage many MS symptoms. Move forward by finding an exercise program in your community. Featured group
Eden Prairie The Eden Prairie MS water exercise group meets every Monday and Wednesday from 10:30 to 11:30 a.m.
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Maggie at maggie.flanagan@nmss.org.
WATER EXERCISE Albert Lea
Detroit Lakes
Grand Rapids
Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.
Detroit Lakes Community & Cultural Center Leslie Johnson, 218-844-4221 T/R, 9-10 a.m.
Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M-F, 9-10 a.m.
Eden Prairie
Burnsville
Golden Valley
The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options.
Minnesota Valley YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
Courage Center Kaari Hilgert, 763-520-0385 T, 1-2 p.m.
Alexandria
30
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Inver Grove Heights
National Multiple Sclerosis Society, Minnesota Chapter
Mankato
Waconia
Minneapolis
Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.
Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.
Kingsley Commons Mary Salisbury, 651-690-1850 T/F, 10:30 a.m.
Marshall
Willmar
Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.
Kandiyohi County Area YMCA Christy Marthaller, 320-222-9622 Shallow water M-F, 8:30-9:30 a.m. Deep water M/W/F, 9:30-10:30 a.m. Shallow/deep combo M/W, 5:30-6:30 p.m.
Uptown YWCA Lisa First, 612-822-3504 T/F, Noon
New Hope Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.-noon
Perham Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11-11:45 a.m.
Woodbury
St. Cloud
Tai Chi
Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.
Mankato
St. Paul Jewish Community Center Christina Eide, 651-255-4762 T/R, 9:50-10:35 a.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Virginia Mesabi Family YMCA Chelsea Spreeman, 218-749-8020 T/R, 1-2 p.m.
Southeast Area YMCA Lisa Kovac, 651-739-6589 T, 11:15 a.m.-noon.
V.I.N.E. Summit Center, Karen Christy, 507-345-5262 T, 3:30-4:30 p.m.
YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S, 9:30-10:30 a.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m.; R, 6:30-7:30 p.m.
GROUP EXERCISE Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m. Muscular strength and range of motion M/W, 10 a.m.
Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
31
Featured group
Faribault MS Group
Clubs and groups Join an MS club or group to
The Faribault group has a diverse membership and comprises an array of experiences of living with MS. Group discussions allow us to learn from and support one another. Our hearts and arms are open wide to all who are living with MS, including spouses, partners and family. Join us! — Kurtis Klett, group leader
connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.
CLUBS
Duluth
Mahtomedi
Book clubs
Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075
Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Judy, 651-488-4454
Maple Grove
Minneapolis
Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562
Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654
Apple Valley First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249
32
National Multiple Sclerosis Society, Minnesota Chapter
Roseville
Forest Lake area
First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 651-646-4661 or Lisa, lhayesburt@comcast.net
Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043
Live FIT (MS Fitness discussion groups) Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King
Minneapolis Third Saturday of the month 10 a.m., chapter office
Nutrition club KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis
GROUPS New clubs and groups Carlton/Cloquet Fourth Monday of the month 3 p.m., Bethesda Lutheran Church in Carlton
St. Louis Park Care Partners Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall
Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville
Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church
St. Louis Park Care Partners Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall
Women Care Partners
CogniFitness
Third Saturday of the month Noon, Dorothy Ann Bakery & Café, Woodbury
Minneapolis
For couples
First Tuesday of the month 2 p.m., Aster Café
Stillwater Couples
For artists, crafters and writers with MS
Second Saturday of the month Noon, Courage St. Croix, Stillwater
Alexandria
MS Art & Crafts Interest Group
For GLBT
Fourth Saturday lunch bunch 11 a.m., D Michael B’s Bar & Grill at Viking Plaza Mall
Third Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville
Arrowhead region
For care partners
Social gatherings
Meeting monthly at regional restaurant Mary, 218-827-8327
Burnsville/Apple Valley Third Thursday of the month Noon, Perkins Restaurant, Apple Valley
Bemidji Care Partners Third Saturday of the month 10 a.m., North Country Regional Hospital
GLAMS Twin Cities (for GLBT living with MS) Third Thursday of the month 6:30 p.m., Walker Library, Minneapolis
St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
33
For men
For professionals
Austin
Men’s Group
Let’s Lunch: Professionals Living with MS
First Monday of the month 6:30 p.m., Grace Lutheran Church
First and third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater
Metro Area It’s Just Breakfast (with the guys) Two Saturdays monthly 10 a.m., restaurant varies Rick, 612-791-6473 or rleaf@msnet.org
For moms with young children Moms with Young Children First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina
For people of color Metro MS Group for People of Color Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis
For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie
Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul
For people recently to five years diagnosed South Metro Recently to Five Years Diagnosed Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington
For women Maplewood Women’s Peer Support Group
Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov. – Feb.
Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital
Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July
Second Thursday of the month 12:30 p.m., Gustavus Adolphus Lutheran Church
Buffalo
General groups
Burnsville/Apple Valley
Aitkin
First Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville
First Wednesday of the month 7 p.m., and third Monday of the month, 1 p.m., Hope Drop-In Center
Albert Lea Second Monday of the month 1:30 p.m., Dec. – Feb. and 7 p.m., March – Nov., Grace Lutheran Church
Alexandria Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March
34
Belview
Third Monday of the month Noon, United Methodist Church
Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center
Canby Second Thursday every other month, April – Dec., 4 p.m., Sanford Canby Medical Center
National Multiple Sclerosis Society, Minnesota Chapter
Chaska
Grand Rapids
Minneapolis
Third Tuesday of the month 12:30 p.m., Chaska Library
Second Thursday of the month 12:30 p.m., St. Joseph Church
Last Saturday of the month 10 a.m., Kingsley Commons
Coon Rapids North Suburban
Hibbing
New Prague
Last Thursday of the month 1 p.m., Open Door Church
Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb.
Second Wednesday of the month 6:30 p.m., Coon Rapids City Center
Detroit Lakes Second Thursday of the month 6:30 p.m., Lincoln Park Assisted Living
Duluth
Hutchinson Second Monday of the month 6:45 p.m., Christ the King Lutheran Church
Inver Grove Heights/ West St. Paul
New Richmond Second Thursday of the month 6 p.m., First Lutheran Church
New Ulm
First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec. – Feb.
Third Tuesday of the month 7 p.m., Oak Hills Living Center No meetings Dec. – Feb.
Eden Prairie
Lake Elmo
Third Tuesday of the month 7 p.m., Wooddale Church
Second Wednesday of the month Noon, Christ Lutheran Church
Third Saturday of the month 10:30 a.m., Oakdale Library
Excelsior/Minnetonka
Little Falls/Pierz
Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior
First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls
Fergus Falls
Third Thursday of the month 7:30 p.m., Rock County Family Services
Second Wednesday of the month 11:30 a.m., United Church of Christ
Faribault Third Tuesday of the month 6 p.m., Buckham Memorial Library
Forest Lake area Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living
Luverne
Mankato Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center
Maple Grove Second Saturday of the month 10 a.m., St. Joseph the Worker Church
Oakdale
Park Rapids Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services
Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church
Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital
Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
35
Roseville
St. Paul Care to Share
Wayzata/Plymouth
Second Wednesday of the month 6:45 p.m., The Fire Station One (Group also meets socially at a local restaurant at 6:45 p.m. the fourth Wednesday of the month.) Robin, 651-647-0809
Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429
First Thursday of the month 1 p.m., restaurant varies, Richie, 763-670-9114
Stillwater
First Tuesday of the month 7 p.m., Bethesda Nursing Home No meetings Jan. – Mar.
St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton
Staples Second Thursday of the month 3 p.m., Lakewood Care Center No meetings June – Aug.
St. Cloud Second Wednesday of the month 7 p.m., St. Cloud Public Library
Third Wednesday of the month 6 p.m., Courage Center
Superior Second Tuesday of the month 6 p.m., Superior Public Library
Thief River Falls Third Saturday of the month 3 p.m., Riverside Terrace
Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center
Willmar
Windom/Cottonwood County Third Wednesday of the month 7 p.m., ALC Lutheran Church
Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church
Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury
Additional resources Clubs and groups For more information about clubs and groups, visit MSsociety.org. Click “Programs and Services” and then “Clubs and Groups.” If you would like more information or are interested in starting a club or group in your area, contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.
Do you know a company that could support the Minnesota Chapter? Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri at 612-335-7925 or teri.cannon@nmss.org.
36
National Multiple Sclerosis Society, Minnesota Chapter
Personal financial counseling Free counseling sessions with financial experts to help you navigate the complex world of money. The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS. Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this service. Individual counseling sessions are over the telephone and usually last less than one hour.
These free professional consultations may help you address a variety of financial topics, including: n basic
budgeting;
n savings
vehicles: pros and cons;
n insurance
analysis, claims assistance;
n investment
review and planning;
n employee
benefits analysis: medical plans, disability coverage and life insurance;
Financial planning can be an intimidating subject, but there are experts who can provide free guidance and support.
n retirement
planning: analysis and tax planning/effectiveness; and
n estate
Additional resources
If you are interested in financial counseling, contact Steve at 612-335-7974 or steve.korngable@nmss.org.
For information about financial and life planning, visit MSsociety.org (click on “Living with MS” and then “Insurance and Money Matters”).
planning: strategies to maximize inheritances.
Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
37
What’s online? Online resources to help ease stress caused by MS.
The National MS Society offers a variety of interactive, online classes for people living with MS and their families. Topics range from working with your health care team to career decisions and financial planning and more. Take as many courses as you want at no cost, and work at your own pace and on a timetable that meets your schedule. Visit tinyurl.com/3nwft4s for courses on: n Adapting: Financial planning for a life
with MS ‌ Together A large part of navigating MS is managing your money and planning wisely for your future. It is never too early to begin evaluating your income, assets, debts, benefits and other resources. n Career decisions: Relationship matters
Living with MS is about transition, but with knowledge, you can find a path where you can continue to demonstrate your experience, talent and passion.
Start today Log on and get started at tinyurl.com/3nwft4s.
n Intimacy: Enriching your relationship
Intimacy and sexuality are sensitive issues for most people, but when you or someone you love has MS, there may be even more challenges. It helps to know there are ways you can manage problems and improve communication.
38
National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Camps Majestic Shores Resort Jeannie, 612-335-7939 Youth Camp Bethany, 612-335-7954 Care partner programs Bethany, 612-335-7954 Chore services Kari, 612-335-7900 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Lindsay, 612-335-7976 Client education programs Steve, 612-335-7974
Calling from Greater Minnesota? Dial 800-582-5296.
Emergency assistance Heather, Jill and Sarah, 612-335-7900 Equipment programs Equipment loan Equipment exchange Scott, 612-335-7900 Exercise programs Jeannie, 612-335-7939 Family programs Bethany, 612-335-7954 Giving to the National MS Society Shannon, 612-335-7928 Chris, 612-335-7965 Housing Steve, 612-335-7974 Independent living grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7900
Information and Referral Center MS Navigators Heather, Jill and Sarah, 612-335-7900 Inservices for organizations Steve, 612-335-7974 Lending Library Jill, 612-335-7900 Mentor Program Connie, 612-335-7964 Professional education Megan, 612-335-7955 Volunteer opportunities Josh (programs), 612-335-7984 Will (events), 612-335-7992 Walk MS, Bike MS, Mud Run MS, Run MS and motorsport events Ann, 612-335-7975 Youth and teen programs Bethany, 612-335-7954
phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org
39
We’re here for you. If you’ve recently been diagnosed with multiple sclerosis, you probably have a lot of questions. Or maybe you aren’t quite sure what questions to ask. Whatever the case, there’s a friendly voice on the line waiting for your call. Call the National MS Society to set up a newly diagnosed consultation. Whether you prefer to chat over the phone or in person, we’ll work with your schedule. If you aren’t able to talk with us during regular business hours, we can arrange an evening or Saturday consultation in advance. To arrange your consultation, contact Jill at 612-335-7938 or jill.parkinson@nmss.org.
Make a lasting mark.
Rick, diagnosed in 1991
There’s a simple, fulfilling way to make a lasting mark on the movement to end multiple sclerosis. Make a bequest, retirement plan or life insurance gift or a charitable gift annuity benefiting the National MS Society, and you’ll be welcomed into the Lawry Circle — a group of people dedicated to a world free of MS.
JOIN THE MOVEMENT® To learn more, contact Chris at 612-335-7965 or chris.neher@nmss.org.