Programs
April — May 2009 • Vol. 8 No. 3
CONNECTION
Team of the Future
Join other teens for Walk MS and help us move closer to a world free of MS.
Women’s Conference Join other women living with MS for inspiration, coping skills and networking.
Plus Shut Out MS Taming Stress in MS and much, much more
JOIN THE MOVEMENT
MOVING IS WHO WE ARE “Research shows volunteering can improve your health.”
Timothy Holtz, Director of Programs
People who volunteer provide a simple yet powerful gift: their time. It sounds simple but volunteering not only makes a huge impact in the lives of people with MS but can be an equally meaningful experience for you, too.
A study by the Corporation for National and Community Service found a significant connection between volunteering and good health. The report shows people who volunteer have greater longevity, higher functional ability, lower rates of depression and less incidence of heart disease. This is an exciting study but it comes as no surprise. Volunteers often tell Minnesota Chapter staff that personal gratification far outweighs the time and effort they put into volunteering. Many volunteers also comment on the close friendships and connections they have made through the experience. The valuable skills and fresh perspectives of volunteers are vital to the National MS Society and make a powerful difference to people affected by the disease. But if that’s not reason enough, now you have one more — you can improve your own life, too.
Changes in the works To cut costs we’re making some changes to the Programs Connection, starting with the June-July issue. Don’t worry — you’ll still get the same great information about upcoming programs, just in a more economical way!
Get active this spring season and volunteer your time. Volunteer at a chapter event or form a team, help plan and implement programs to support people affected by MS, join the MS Fitness Team and so much more. Visit www.MSsociety.org and click on volunteer to learn more.
Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Timothy Holtz Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter.
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Table of Contents Programs by topic Care partners Moving Forward with MS
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Healthy living Clubs and groups Exercise
26 24
Join the movement Walk MS
5 7 9
Managing MS symptoms Connect Locally Face Time with Your Local Neurologist Living with MS Shut out MS Taming Stress in MS
Hinckley
11 11
Ely Living with MS
17
Eveleth Shut out MS
11
Move it Zone
19
Hutchinson 26 9
Connect Locally
20
Twin Cities – Metro programs
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Poles for Balance and Mobility Taming Stress in MS Team of the Future Women’s Conference
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20
Mankato Moving Forward with MS
Young adults Walk MS
Shut out MS
26 15
Technology What’s online?
20
Bemidji
Shut out MS
Research Connect Locally
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Programs by location Austin
20 21 17 11 13
Personal connections Clubs and groups Women’s Conference
Team of the Future
Duluth
Newly diagnosed Clubs and groups Moving Forward with MS
19 15 11 13
Youth
Connect Locally
Living with advanced MS Poles for Balance and Mobility Women’s Conference
Move it Zone Moving Forward with MS Shut out MS Taming Stress in MS
15 7 13 6 9
JOIN THE MOVEMENT
Walking today for a future free of MS “It is fun to be with friends and we know we are helping a good cause.”
– Meghan Janssen
Meghan Janssen, co-chair of the Minnesota Chapter’s Teen Council and sophomore at Kennedy High School in Bloomington, Minn., Meghan Janssen is carrying on an important tradition at her school. She’s recruiting her peers to participate in Walk MS: Christopher & Banks Walk 2009 presented by Anchor Bank on May 3 as part of Team of the Future.
Meghan works hard to make it easy for teens to participate — she registers each participant and coordinates a school bus to transport her classmates to the walk. According to Meghan, the support from Kennedy High School principal and teachers is a big help. “They’ve seen the great turnout from the students and how many people want to help change this disease.”
Meghan’s older sister, Michaela, and her friend Lexi — Kennedy High graduates and former Teen Council members — started the tradition. After Michaela and Lexi graduated, Meghan picked up the reigns and has brought approximately 100 teens to Walk MS each year since. “My classmates and I enjoy walking because it is fun to be with friends and we know we are helping a good cause,” Meghan said. “The T-shirts and food along the way are also big incentives.”
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Multiple sclerosis touches Meghan’s family personally — her mother and other family members have the disease. Both Meghan and her sister Michaela are extremely involved with the Minnesota Chapter’s teen and young adult programs.
Get involved Learn more about Team of the Future on Page 6.
National Multiple Sclerosis Society, Minnesota Chapter
Walk MS Join the movement. Team Victory at Walk MS 2008. Chris Anderson, diagnosed with multiple sclerosis in 2004, formed Team Victory for Walk MS Twin Cities in 2005. Since then, family and friends have rallied together to walk with Chris and raise funds to help end the disease. “The support I have around me continues,” Chris said. “This is my fifth year participating in Walk MS. The fight continues — victory is inevitable.”
Each year, thousands of people come together to move closer to a world free of multiple sclerosis by participating in Walk MS: Christopher & Banks Walk 2009 presented by Anchor Bank — a one-day walk held May 3 in 17 communities throughout Minnesota and western Wisconsin. Funds raised through Walk MS help support MS research and programs and services for people living with the disease. This year the Minnesota Chapter anticipates nearly 10,000 people will participate in Walk MS events and raise more than $2.2 million.
Ways to get involved Walk Get involved by registering for a Walk MS event near you. While you’re at it, rally your friends and family together and form a team. Trouble with mobility? Walk MS routes are fully supported and accessible to wheelchairs. Or, consider choosing a shorter route option.
Volunteer Consider joining Walk MS as a volunteer. Whether you walk or volunteer, the Walk MS experience is all about coming together as a community to celebrate our progress and show our commitment to moving even closer to a world free of MS. Spread the word If walking and volunteering aren’t right for you, help us grow Walk MS bigger than ever by talking about the event to people in your community. Encourage friends, family, co-workers, neighbors and more to sign up for Walk MS.
ADDITIONAL RESOURCES May 3 n Walk MS Register at WalkMS.org. To volunteer, visit www.MSsociety.org and click on “Volunteer.”
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Team of the Future Join other teens for Walk MS and help us move closer to a world free of MS. May 3 n Various locations Help create a world free of multiple sclerosis at Walk MS: Christopher & Banks Walk 2009 presented by Anchor Bank Sunday, May 3. The Minnesota Chapter invites teens to join the event and walk at one of the “Team of the Future” Walk MS locations. Come meet other teens, have fun and join the movement to end MS.
Team of the Future locations n Duluth
n Rochester
n Minneapolis
n St. Cloud
Questions For more information, contact Caidin Riley at criley@MSsociety.org or Anne Geisler at ageisler@MSsociety.org.
As a teen walker, you will n
Be supported with snacks, drinks and encouragement
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Celebrate the great feeling of knowing you made a difference in the lives of people with MS
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Have fun hanging out with other teens
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Receive an official Walk MS event T-shirt if you raise $125 or more
Register To register for “Team of the Future,” visit www.MSsociety.org or e-mail Caidin Riley, youth programs intern, at criley@MSsociety.org. Once registered, you will receive all the information you need. You will find that family members, friends and classmates are often eager to help. The average walker raises $175, but you can set a goal that is right for you.
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National Multiple Sclerosis Society, Minnesota Chapter
Poles for Balance and Mobility Understand how using poles can empower you with the freedom of movement. April 25 n Minneapolis Jayah Faye Paley, educator and creator of the award-winning DVD “Poles for Balance & Mobility,” presents three free seminars about using poles to achieve and maintain mobility at Midwest Mountaineering’s Spring Expo.
Benefits of using poles include: n
Better posture, balance and coordination
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Energized limbs
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Even gait
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Exercise
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Fun
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Improved endurance
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Increased upper body strength
ADDITIONAL RESOURCES
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Joint preservation
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Navigation of tricky terrain with confidence and ease
www.PolesForMobility.com
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Reduced risk of falling
Participants not only learn about how to use poles to gain the above benefits, but also have the opportunity to try a variety of top quality LEKI poles and experience what it is like to use the whole body for walking and maneuvering.
Learn about using poles for mobility, balance and walking
Learn more about function, independence and mobility www.MSSociety.org (Click on Living with MS and then Mobility and Accessibility.)
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Poles for Balance and Mobility Space is limited. Registration form must be received by April 17. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Indicate which seminar(s) you would like to attend. q Poles for mobility and walking — 10:30 a.m.
MNM0CEDW20090425MP1
q Poles for hiking — 1 p.m.
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Saturday, April 25
9:45 a.m. – 4:30 p.m.
10:30 a.m.–12:45 p.m. Poles for mobility and walking 1–3:15 p.m. Poles for hiking 3:30–5:45 p.m. Poles for mobility and walking
Location Hubert H. Humphrey Center 301 19th Ave. S. Minneapolis, MN 55455 Classroom 35 www.hhh.umn.edu
Program fee There is no fee for this program.
Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
DVD or video
q Poles for mobility and walking — 3:30 p.m.
Jayah’s DVD will be available for sale at the seminar. The DVD is almost two-hours of training and priced under $20.
Questions
MNM0CEDW20090425MP3
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ If you need any special accommodations, please call 612-335-7970 to make arrangements. 8
For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
Women’s Conference Power Up III — Join other women living with MS for inspiration, coping skills and networking. May 16 n Plymouth Take the day off from family, work and everyday life and join other women living with multiple sclerosis for the third annual Women’s Conference. Learn from guest speakers and other women about the art of balancing work and family and ways to cope positively with MS. Dr. Yelena Usmnaova, neurologist at the Minneapolis Clinic of Neurology, will present strategies to stay healthy while living with MS. Dr. Greg Lamberty, neuropsychologist with Noran Neurological Clinic, will discuss ways to cope with cognitive issues and how to get help. At age 36, Elizabeth Lyon discovered a passion for running. She participated in several marathons, including the Boston Marathon. Her life used to revolve around running, but that changed in 1999 when Elizabeth started running slower and losing races. She was diagnosed with MS in 2002. Today, Elizabeth finds satisfaction in spreading MS awareness. Kinza Christenson, columnist for the Wisconsin Woman Magazine, author and radio personality, will provide inspiration and ideas on how to laugh and live your dreams. Conference participants enjoy a networking lunch with other women living with MS.
Take the day off from family, work and everyday life and join other women living with multiple sclerosis for the third annual Women’s Conference.
Additional resources Why Women? Visit www.MSsociety.org (click on “Why women?”)
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Women’s Conference Space is limited. Registration form must be received by May 8. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending @ $10 per person $_______ enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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Saturday, May 16 8:30 a.m. 9–10 a.m. 10:15–11:15 a.m. 11:30 a.m.–1 p.m. 1–2 p.m. 2:15–3 p.m.
9 a.m. – 3:30 p.m.
Check-in begins with continental breakfast Living healthy with MS — Dr. Usmanova My life with MS — Elizabeth Lyon Power lunch Solving cognitive issues — Dr. Lamberty Laugh and live your dream — Kinza Christenson
Location Radisson Hotel and Conference Center 3131 Campus Drive Plymouth, MN 55441 763-559-6600 www.radisson.com/minneapolismn_plymouth
Program fee There is no fee for this program.
Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
DVD or video A DVD or video of the program is available in the chapter’s lending library. Visit www.MSsociety.org and click on Library & Literature or call 612-335-7947.
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
Made possible with a restricted educational grant from
Shut out MS Learn how to manage MS symptoms and life challenges.
“I treat MS like it’s just another game I have to win. It’s just a longer game.” May 14 n Duluth and Eveleth May 15 n Bemidji Join professional hockey player Jordan Sigalet and learn how to shut out multiple sclerosis. Jordan will share his story of living with MS and how he makes his unique mark against the disease. Jordan has faced some serious opponents in his lifetime — both on and off the ice. In 2004, during a record-breaking season at Bowling Green State University, Jordan woke up one morning with a numb foot. Within 24 hours, he was completely numb from his neck down. After two worry-filled weeks of medical tests, Jordan was diagnosed with relapsing-remitting MS. At first, he only told his coach, close friends and family, but with his family’s support, Jordan took control of living with MS. He vowed he would not quit his beloved sport. He began drug therapy and finished the season with more than 80 saves. He exercised, followed a strict diet and made sure to always get a good night’s sleep. Today, Jordan views his
– Jordan Sigalet
MS just like he views hockey — a game that requires tremendous endurance and perseverance to win. He has teamed up with the National MS Society as an MS Ambassador.
Join Dr. Schapiro in Duluth and Eveleth World-renowned neurologist Dr. Randy Schapiro will present at the Duluth and Eveleth locations. Dr. Schapiro will discuss strategies and current techniques to manage MS symptoms.
Additional resources Managing MS Symptoms www.MSsociety.org (click on Living with MS) Read other personal stories of people living with MS www.MSsociety.org (click on Online Community)
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Shut out MS Space is limited. Registration form must be received by May 7. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Please check location: q Eveleth MNM0CEDW20090514EVE q Duluth MNM0CEDW20090514DUL q Bemidji MNM0CEDW20090515BEM Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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Various times, dates and locations Eveleth n Thursday, May 14 Noon Lunch 12:30 p.m. Take Control: Managing MS Symptoms — Dr. Schapiro 1:30 p.m. Shut out MS — Jordan Sigalet Duluth n Thursday, May 14 6 p.m. Dinner 7 p.m. Take Control: Managing MS Symptoms — Dr. Schapiro 8 p.m. Shut out MS — Jordan Sigalet Bemidji n Friday, May 15 Noon Lunch 1 p.m. Shut out MS — Jordan Sigalet
Locations United States Hockey Hall of Fame Museum 801 Hat Trick Ave., Eveleth, MN 55734 218-744-5167 www.ushockeyhallmuseum.com Greysolon Plaza Ballroom 231 E. Superior St., Duluth, MN 55802 218-722-7466 http://greysolon.blackwoods.com Hampton Inn 1019 Paul Bunyan Drive S., Bemidji, MN 56601 218-751-3600 www.hamptoninn.com
Program fee There is no fee for this program.
Register Online or by phone: www.MSsociety.org or 612-335-7970. By mail: mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
Questions Contact Timothy Holtz at tholtz@MSsociety.org. Made possible with a restricted educational grant from
Taming Stress in MS Learn strategies to reduce stress and manage MS symptoms.
May 19 n Brooklyn Center Having a chronic illness increases stress and given these tough economic times, many people are facing increased stress in their lives. Learn about strategies for managing stress day to day as it relates to multiple sclerosis. Participants also receive an overview of current MS treatment strategies, symptom management and potential future treatments.
ADDITIONAL RESOURCES Living with MS www.MSsociety.org (click on Living with MS)
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Taming Stress in MS Space is limited. Registration form must be received by May 12. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________
Tuesday, May 19 5:30 p.m. 6 p.m. 7 p.m. 8 p.m.
Check-in begins Dinner Taming Stress in MS — Denice Wax, MS-certified nurse MS treatment and management update — Dr. Gareth Parry
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Location
_____ # of people attending
There is no fee for this program.
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
6–9 p.m.
Holiday Inn Select and Suites Three Appletree Square Bloomington, MN 55425 952-854-9000 www.ichotelsgroup.com
Program fee Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
Made possible with a restricted educational grant from
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Moving Forward with MS Move forward together with family, friends, health care providers and others affected by MS.
June 6 n Mankato
“Don’t let the words ‘you have MS’ take control over you. Hear it, accept it, start therapy, and continue living your life every day”
If you or someone close to you has multiple sclerosis, you probably have a lot of questions and concerns. You may also feel overwhelmed and unsure of what questions to ask. This program gives you the information and support you need to live comfortably and confidently with this change in your life and help you make medical decisions about all aspects of your health. n
Learn about MS from an expert neurologist
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Team up with your health care providers
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Navigate the medication maze
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Consider clinical trials
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Understand how to talk about MS with your friends and family
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Gain information about resources available to you
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Learn how to cope with the anxiety MS may bring to your life
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Connect with other people whose lives are affected by MS
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Achieve optimal wellness
– Tracy Bohm, diagnosed in 2005
ADDITIONAL RESOURCES
Information for people newly diagnosed with MS www.MSsociety.org (click on Living with MS) South Metro Newly Diagnosed Self Help Group Meets the last Wednesday of the month at 6:30 p.m. at Jo Jo’s Rise & Wine, 12501 Nicollet Ave., Burnsville. For more information, contact Jennifer at 952-412-1296.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Moving Forward with MS Space is limited. Registration form must be received by May 29. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
Saturday, June 6 8:30 a.m. 9–10:30 a.m. 10:45 a.m.–noon Noon–1 p.m. 1–2:30 p.m. 2:45–3:45 p.m. 4–4:30 p.m.
9 a.m.– 4:30 p.m. Check-in begins with continental breakfast My life, my MS, my decisions — Timothy Holtz Understanding MS in your life — Sara Heinzen Networking lunch Learning about MS — Dr. Lisa Davidson Connecting with others discussion groups Conquering the anxiety and fear of MS — Sara Heinzen
Location Best Western 1111 Range St. Mankato, MN 56003 507-625-9333 www.BestWesternMinnesota.com
Program fee There is no fee for this program.
Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
DVD or video A DVD or video of the program is available in the chapter’s Lending Library. Visit www.MSsociety.org and click on Library and Literature or call 612-335-7938.
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org. Made possible with a restricted educational grant from
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Living with MS Learn strategies to enhance your life. June 20 n Ely Whether you just received a diagnosis of multiple sclerosis or have been living with the disease for a long time — this program provides information and tips to help you maintain your quality of life in the years ahead. Learn about strategies to deal with injection site management and skin breakdown. Participants also gain an overview of current MS treatment strategies, symptom management and potential future treatments.
Additional resources Living with MS www.MSsociety.org (click on Living with MS)
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Living with MS Space is limited. Registration form must be received by June 12. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending:
Saturday, June 20 8:30 a.m. 9 a.m. 10 a.m.
6–9 p.m.
Check-in begins with continental breakfast Injection site management and skin care — Missy Rosin, MS-certified nurse MS treatment and management update — Dr. Gary Beaver
Location Grand Ely Lodge 400 N. Pioneer Road Ely, MN 55731 218-365-6565 www.GrandElyLodge.com
Program fee There is no fee for this program.
Register Online or by phone Visit www.MSsociety.org or call 612-335-7970.
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.
Questions
Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
Made possible with a restricted educational grant from
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Move it Zone Connect with young adults affected by MS. June 13 n Hinckley The Minnesota Chapter hosts the Move it Zone at Grand Casino Hinckley on Bike MS: Larkin Hoffman MS 150 Ride for cyclists, volunteers and anyone who is dedicated to the MS movement. The Move it Zone is a place for people to kick back and relax, meet others who have joined the movement, enjoy exciting festivities and celebrate our commitment to a world free of multiple sclerosis.
Special opportunity for young adults at the Move it Zone Are you a young adult or young at heart? Do you or someone you care about have multiple sclerosis? Then we want to meet you. The Young Adult Advisory Group will host a get-together in the Move it Zone. This event is a great opportunity to meet other young adults affected by MS, share your ideas for future young adult events and have fun. Join us Saturday, June 13, from noon to 5 p.m. at Grand Casino Hinckley for some high-energy fun and games. Whether you are riding in the event or showing your support, the Move it Zone will be the place to be in Hinckley. Bring your friends and compete for fabulous prizes. We will see you there.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS. Hold that thought: cognition and MS Austin n May 4, 6:30 p.m. Grace Lutheran Church 2001 Sixth Ave. S.E. Austin, MN 55912 People with multiple sclerosis often have problems remembering things, finding the right words, concentrating on a task or following a conversation. An estimated 50 to 65 percent of people living with MS have some cognitive problem or problems.
This DVD presentation provides information about cognitive symptoms associated with MS, how cognitive changes are evaluated, treatment and strategies for managing cognitive changes. Time for discussion will follow the presentation. For information and to R.S.V.P., contact Larry at 507-285-3918.
What’s new in MS? Hutchinson n June 9, 6:45 p.m. Christ the King Lutheran Church 1040 South Grade Road S.W. Hutchinson, MN 55350 The Americas Committee for Treatment and Research in Multiple Sclerosis brings together clinical researchers, basic scientists and clinicians interested in MS and other demyelinating diseases. Come join us for a recap of the ACTRIMS fourteenth annual meeting, presented by two local clinicians in attendance.
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Dr. Yelena Usmanova is a neurologist with the Minneapolis Clinic of Neurology and Hutchinson Medical Center, and Dr. Brian Bonte is a family physician at Hutchinson Medical Center who was diagnosed with MS in 1995. For information and to R.S.V.P., contact Brian at 320-587-2020 or Ann at 320-894-7896.
National Multiple Sclerosis Society, Minnesota Chapter
Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, R.N. Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: May 13
What is a clinical trial?
June 10
Research update from the American Academy of Neurology Meeting
Dr. Gary Birnbaum Please R.S.V.P. at 763-302-8282, ext. 4823.
St. Mary’s Duluth Clinic MS Center Every other Wednesday at 6 p.m. Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981 Topics:
Apr. 15
Therapies to treat MS
May 6
What is and how to manage an exacerbation
May 20 Shared medical visits Dr. Gary Beaver
For more information, contact St. Mary’s Duluth Clinic MS Center at 218-786-8270.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Face Time with Your Local Neurologist University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412 Topics:
May 11
Fatigue and heat
For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry
The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750
Dr. Jonathan Calkwood
Topics:
April 15 Coping with grief and loss
April 22 How is MS diagnosed?
April 29 The role of occupational therapy in MS
May 6
Complimentary and alternative therapies in MS
May 13
Beginning an exercise program
June 3
Managing dizziness and vertigo
June 10
Dealing with summer heat
For more information, contact the Schapiro Center for MS at 763-302-4199.
Know a professional? We’re updating our referral lists of primary care doctors, urologists, therapists/counselors, attorneys and other professionals. If you’ve had a good experience with a professional who is knowledgeable about MS, let us know at 612-335-7900, 800-582-5296 or info@MSsociety.org. 22
National Multiple Sclerosis Society, Minnesota Chapter
What’s online? Check out new features on MSsociety.org and MS Learn Online®. Explore the new Web site With the recent launch of the redesigned Minnesota Chapter Web site, now it’s even easier for you to find and store the information that’s most important to you. After you’ve created an account and logged in, you can click on “My Content” from any page to save the page to your account. Other new features include: n
New sections for chapter and national news
n
Seamless navigation between the chapter and national sites
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A moving picture show highlights new and ongoing ways to join the movement
n
New home page tabs direct users to latest event and program information
Visit www.MSsociety.org to explore the new features and brand new look.
The new player features three programming channels: n
The Feature Presentation, a 10- to 12-minute webcast on a range of topics. New presentations go live the first and third Thursday of each month.
n
The Daily Minute, a one-minute factoid about MS every day of the week.
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A once-a-week Q&A where an MS Learn Online expert answers viewers’ questions. Email mslearnonline@nmss.org.
The new player launches when you click any topic at nationalMSsociety.org/mslearnonline. It works best with Microsoft Windows; Apple users may need to buy the program WMV Player Pro at flip4mac.com/wmv.htm to use the player. Visitors can download a PDF or an mp3 podcast. E-mail mslearnonline@nmss.org for notifications of upcoming programs.
Click onto MS Learn Online® MS Learn Online® celebrates its 10th year of online educational programs with a slew of new features and an all-new player. The upgrade, funded in part by Teva Neuroscience and EMD Serono/Pfizer, Inc., includes round-the-clock information covering a variety of topics including MS and the workplace, pediatric MS, medical self-advocacy, progressive MS, parenting with MS and more.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group
Inver Grove Heights water exercise The MS water exercise program is held at 10:10 a.m. Tuesdays and Thursdays at the Veterans Memorial Community Center and The Grove in Inver Grove Heights, Minn. A deep water class also is held Mondays from 7:15 to 8:05 p.m. To learn more, call 651-554-3420.
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.
WATER EXERCISE Albert Lea
Andover
Coon Rapids
Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.
YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon
Alexandria
Burnsville
Emma B. Howe Northtown YMCA Lisa Whitcomb, 763-717-1837 T/R, 11 a.m.-noon
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.
Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
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Detroit Lakes Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.
National Multiple Sclerosis Society, Minnesota Chapter
Duluth
Perham
Eden Prairie
Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.
Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.
Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.
Eden Prairie
St. Cloud Family YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.
Kingsley Commons Jeannie Zank 612-335-7939 F, 10:30 a.m.
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.
Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.
Inver Grove Heights The Grove Amy Crary, 651-554-3420 T/Th 10-11 a.m. Deep water M/W 7:15-8:15 p.m.
Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.
Marshall Marshall Area YMCA Cindy Rosa 507-532-9622 M, 4:30-6 p.m.
New Hope Northwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon
Staples Staples Community Center Kevin Grondahl, 218-894-2553 M/W/F, 9-10a.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.
Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.
Woodbury Southeast Area YMCA Lisa Kovac 651-739-6589 M/W 12:15-1 p.m.
Minneapolis
Uptown YWCA Lisa First 612-822-3504 F, Noon
New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.
GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Featured group
Let’s lunch: Working Professionals with MS
Clubs and Groups Join an MS club or group to
“We strive to
connect with other people
provide a safe
affected by MS, enjoy lively
environment for any
discussions, learn valuable
working (full or part
information and ways to cope
time) professional
with challenges, have fun and
(self-defined) who lives with MS.
be inspired. Read about groups
The group is very casual and topics
and clubs that are moving
have included disclosure in the
forward together and find a
workplace, symptom management
club or group in your community
and promotion of self-care. With
that’s right for you.
so many economic changes and workplace lay-offs, the group has also been a networking resource.” — Becky, group leader
BOOK CLUBS
Duluth
Mahtomedi
Apple Valley
Fourth Tuesday of the month 11 a.m. Barnes & Noble Betsy 218-724-9075
Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna 651-762-4084
Maple Grove
Third Wednesday of the month 7 p.m. Kingsley Commons Pat 612-521-4654
First Friday of the month 10 a.m. Barnes & Noble Cindy 952-891-5249
Fourth Monday of the month 10 a.m. Barnes & Noble Mary 763-420-4562 26
Minneapolis
National Multiple Sclerosis Society, Minnesota Chapter
Rochester
Park Rapids
Fourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall Larry 507-281-2447
For information contact Denise at 763-350-6957 or Susan at 218-237-2067
Roseville
Third Wednesday of the month 6:45 p.m. Fairview MS Achievement Center
First Tuesday of the month 10 a.m. Barnes & Noble Har Mar Carol 763-571-2290
Fitness clubs Minneapolis
St. Paul
For care partners Bemidji Care Partners
Third Saturday of the month 10 a.m. Chapter Office
Third Saturday of the month 10 a.m. North Country Regional Hospital
Rochester
Men’s Care Partner
Fourth Saturday of the month 10 a.m. Rochester Athletic Club
SELF-HELP GROUPS New group Excelsior/Minnetonka Second and fourth Saturdays of the month, 10 a.m. Dunn Bros. Coffee in Excelsior
MS Art Support Group (for artists, crafters & writers with MS) Third Saturday of the month 11 a.m. Contact Donna for location at 651-762-4084 or birchwild@aol.com
Breakfast Third Saturday of the month 10 a.m. Different restaurant each month Contact Dan for location at 651-779-9435 or dbr@danielrude.com
St. Paul Care Partners at MSAC Contact Lisa, 612-672-2815 MS Achievement Center
For couples Stillwater Couples Second Saturday of the month Noon Courage Center
For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month at 6 p.m. and third Thursday at 2:30 p.m. Goodwill/Easter Seals
For men Metro Area It’s Just
Last Tuesday of the month 1 p.m. Calvary Lutheran Church
Breakfast (with the guys) Various Saturdays of the month 10 a.m. Different restaurant each month Contact Rick for location at 763-208-8741 or rleaf@msnet.org
St. Louis Park Care Partners
For newly diagnosed
Third Tuesday of the month 6:30 p.m. St. Louis Park City Hall
South Metro for Newly Diagnosed
Perham Care Partners
Last Wednesday of the month 6:30 p.m. Jo Jo’s Rise & Wine
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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For people of color
Albert Lea
Bloomington
Metro Area MS Group for People of Color
Second Monday of the month 1:30, Dec. - Feb 7 p.m., March – Nov. Grace Lutheran Church
First Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July–Aug.
Alexandria
Brainerd MS Breakfast at the Mill
Second Saturday of the month 10 a.m. Wayman AME Church in Minneapolis
For people mildly affected by MS Southwest Metro MS group for mildly affected Third Saturday of the month 10 a.m. United Methodist Church in Eden Prairie
For professionals Let’s Lunch: professionals living with MS Third Saturday of the month 11 a.m. Chatterbox Pub in St. Paul
For women Maplewood Peer Emotional Support Women’s Group Third Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran Church
General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Hope Drop-In Center
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Second Monday of the month 5 p.m. St. Mary’s Office Building
Apple Valley First Thursday of the month 9:30 a.m. Christ Church
Arrowhead region Second Friday of the month 1 p.m. Babbitt Municipal Building
Austin First Monday of the month 6:30 p.m. Grace Lutheran Church
Belview Third Thursday of the month 7:30 p.m. Parkview Home No meetings Nov.–Feb.
Bemidji Third Saturday of the month 10 a.m. North Country Regional Hospital
Benson Fourth Tuesday of the month 7 p.m. Westwood Manor Apartments No meetings Nov.–Feb.
Third Monday of the month 9:30 a.m. Sawmill Inn
Burnsville/Apple Valley First Tuesday of the month 6:30 p.m. Fairview Education Center in Burnsville
Cambridge Third Thursday of the month 7 p.m. Cambridge Medical Center
Canby Second Thursday every other Month, April through December 4 p.m. Sanford Canby Medical Center
Chaska Third Tuesday of the month 12:30 p.m. Chaska Library
Coon Rapids North Suburban Second Wednesday of the month 7 p.m. Coon Rapids City Center
National Multiple Sclerosis Society, Minnesota Chapter
Detroit Lakes
Hibbing
Maple Grove
Second Monday of the month 6 p.m. Lincoln Park Assisted Living
Last Thursday of the month 1 p.m. Open Door Church
Second Saturday of the month 10 a.m. St. Joseph the Worker Church
Duluth
Hutchinson
Maple Lake/Annandale
First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
Second Monday of the month 6:45 p.m. Christ the King Lutheran Church
Eden Prairie
Inver Grove Heights/ West St. Paul
Third Monday of the month Noon Maple Manor East in Maple Lake
Third Tuesday of the month 7 p.m. Wooddale Church
Fergus Falls Second Wednesday of the month 11:30 a.m. United Church of Christ
Forest Lake Area Second Thursday of the month 6:30 p.m. The Meadows for Assisted Living
Gaylord First Sunday of the month 7 p.m. Lakeview Home No meetings Nov.–Feb.
Gibbon Third Saturday of the month 9:30 a.m. Gibbon Community Center
Grand Rapids Second Thursday of the month 12:30 p.m. Grand Rapids Public Library
First Monday of the month 7:30 p.m. Good Shepherd Lutheran Church No meetings Dec.–Feb.
Lake Elmo Third Wednesday of the month Noon Christ Lutheran Church
Litchfield Fourth Tuesday of the month 3 p.m. Meeker County Memorial Hospital
Luverne Third Thursday of the month 7:30 p.m. Rock County Family Services
Mankato Second Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center
Minneapolis Last Saturday of the month 10 a.m. Kingsley Commons
New Ulm Third Tuesday of the month 7 p.m. Oak Hills Living Center
Oakdale First Saturday of the month 10:30 a.m. Oakdale Library
Perham Last Tuesday of the month 1 p.m. Calvary Lutheran Church
Pierz/Little Falls First Wednesday of the month 1 p.m. Bethel Lutheran Church
Princeton Third Saturday of the month 10 a.m. Fairview Northland Regional Hospital
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Rochester
St. Paul Care to Share
Willmar
Second Wednesday of the month 7 p.m. Meadow Lake Senior Living
Second Wednesday of the month 7 p.m. Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location
First Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home
Roseville Second Wednesday of the month 6:45 p.m. Roseville City Hall
St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton
Staples Second Thursday of the month 4 p.m. Lakewood Care Center
St. Cloud Second Wednesday of the month 7 p.m. St. Cloud Public Library
Stillwater Third Wednesday of the month 6 p.m. Courage Center
Superior Second Tuesday of the month 6 p.m. Superior Public Library
Waseca Third Tuesday of the month 7 p.m. Waseca Medical Center
Windom/Cottonwood County Third Tuesday of the month 7 p.m. ALC Lutheran Church
Woodbury A.M. Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church
Woodbury P.M. Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury
Wayzata-Suburban West Hennepin First Thursday of the month 1 p.m. Original Pancake House, Wayzata
Additional resources
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Book clubs
Self-help groups
For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.
For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.
National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968 Camps and getaways Getaways Timothy, 612-335-7930 MS Camp Jeannie, 612-335-7939 Youth Camp Rachel Ring, 612-335-7937 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Book clubs Jeannie, 612-335-7939 Self-help groups Jeff, 612-335-7951 Education programs Timothy, 612-335-7930
Emergency assistance Heather, Jill or Sarah, 612-335-7900 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Rachel Ring, 612-335-7937 Family programs Timothy, 612-335-7930 Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965 Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967
Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Heather, 612-335-7947 Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Timothy (Programs), 612-335-7930 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971 Youth and teen programs Rachel, 612-335-7937
Calling from Greater Minnesota? Call 1-800-582-5296. phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Do you want to talk to someone who is also affected by MS? Let the Minnesota Chapter help you connect with someone who understands MS.
Meet face to face or visit over the phone — the choice is yours. Are you interested in being paired with someone going through similar experiences? Whether you have MS or have a loved one with MS, we can help. To learn more or get connected, contact Mentor Program Coordinator Connie Gunderson-Warner at 612-335-7964 or cgundersonwarner@MSsociety.org.
Thanks to my self-help group I found a support network and understand what to expect living with MS. My bequest to the National MS Society is like a gift to my extended family. Contact the society and ask how you can help others with MS through you will or trust.
I’M moving forward. Eric, diagnosed in 1951
Join the movement in a powerful way. Contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.