Programs Connection, Feb/March 2009 by National MS Society, Upper Midwest Chapter

Programs

February — March 2009 • Vol. 8 No. 2

CONNECTION

Surviving the Economy Making it through today, planning for tomorrow.

Men’s Retreat Spring training.

Plus Youth Camp Lock-in for Teens and much, much more

JOIN THE MOVEMENT

MOVING IS WHO WE ARE “Whatever financial problems you’re facing, we are here to help.” Right now, we face a global economic crisis. Living with a chronic illness can pose an array of financial challenges, but in tough times, these challenges are greater than ever before. Steve Korngable, Director of Programs

Families living with multiple sclerosis are asking the National MS Society, Minnesota Chapter for financial assistance and counseling and other critical services more than ever. If you need help, we have a number of programs available. n

Information and Referral Center — MS Navigators are licensed social workers who can provide information about community resources, financial assistance programs, employment consultations, affordable, accessible housing and more.

Personal Financial Counseling — Free phone consultations to help you address a variety of financial concerns from basic budgeting to investment review and planning (see Page 6).

Emergency Assistance and Independent Living Grants — Financial assistance for emergency needs and grants to help families living with MS purchase products and services from respite care for care partners to adaptive equipment.

Surviving the Economy – This program provides the tools you need to develop a financial plan to survive the rough economy and prepare for a more secure future (see Page 9).

We know that during economic times like these, everyone is affected. Whatever financial problems you’re facing, we are here to help. To learn more about any of the programs and services listed above, please see the directory on Page 31.

Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Timothy Holtz Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

Table of Contents MS Awareness Week March 2-8, 2009

What’s online? Youth Camp

Programs by topic Care partners Living with MS Moving Forward with MS

11 7 24

Insurance and money matters Connect Locally Personal Financial Counseling Surviving the Economy

19 6 9

Join the movement Connect Locally What’s online? Young adults living with MS

19 23 5

Managing MS symptoms Face Time with Your Local Neurologist Living with MS Moving Forward with MS

21 11 7

Newly diagnosed Moving Forward with MS

Personal connections Clubs and groups Lock-in for Teens Men’s Retreat

Technology What’s online?

Young adults

Healthy living Exercise

23 17

26 13 15

Living with MS Moving Forward with MS Young adults living with MS

11 7 5

Youth Lock-in for Teens Youth Camp

13 17

Programs by location Finland Youth Camp

Perham Connect Locally

St. Cloud Moving Forward with MS

Twin Cities – Metro programs Connect Locally Living with MS Lock-in for Teens Men’s Retreat Surviving the Economy

19 11 13 15 9

JOIN THE MOVEMENT

Surviving the economy, today and tomorrow “Multiple sclerosis is the big unknown. You can’t count on how your MS will be, but you can count on the Minnesota Chapter. Anytime you need it, seek assistance.” – Heather Clark, diagnosed in 1988 The Minnesota Chapter provides a number of programs and services to help people affected by MS navigate the complex world of money and get by during difficult times including free financial planning consultations, Independent Living Grants and Emergency Assistance. In light of this economic crisis, financial advice and guidance is in high demand, which is why the Minnesota Chapter is providing the Surviving the Economy program (See Page 9). Heather and Tim Clark with daughter, Emily After Heather Clark was diagnosed with multiple sclerosis in 1988, she immediately sought information, support and assistance from the National MS Society. Heather said that learning as much as she can about the world is part of who she is, which included her new diagnosis. Since then Heather and her husband, Tim, have taken advantage of society educational programs covering a range of topics — including financial planning, which in today’s tough economy, is more important than ever.

This program is designed to help families living with MS address important financial issues affecting their day-to-day lives and develop a financial plan to not only survive today’s economy, but prepare for a more secure future as well. Heather and Tim believe it is important for everyone to plan their financial future, especially those living with a chronic illness. “Multiple sclerosis is the big unknown,” Heather said. “You can’t count on how your MS will be, but you can count on the Minnesota Chapter. Anytime you need it, seek assistance.” To learn about other financial resources, visit www.MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter

Young adults living with MS Join the movement.

“After my diagnosis, when so much was changing for me, the MS Society provided support and helped me connect with others going through similar experiences. I try to be a positive “face of MS” and keep informed with the latest in research so I can help others understand MS and ways we can all help end this disease.” – Katie Netzel, diagnosed in 2005

People diagnosed with multiple sclerosis in their 20s and 30s have unique challenges. You are young and starting to figure out where your career is headed. You might be dating, recently engaged or even married. All of a sudden, you are hit with an MS diagnosis. The Minnesota Chapter recently formed a young adult advisory group to identify opportunities to serve young adults who live with MS or who have a loved one with the disease. Soon, you will see new opportunities for young adults to join the movement, connect with others and learn ways to cope with MS. In the meantime, check out the table of contents in the Programs Connection under young adults to find information about programs and services just for you.

Other opportunities for young adults Join the Young Adults Against MS Facebook group Visit www.Facebook.com. Volunteer Visit www.MSsociety.org. Form a Walk MS or Bike MS team Visit walkMS.org or bikeMSminnesota.org. Attend the Moving Forward with MS program See Page 7. Attend the Men’s Retreat See Page 15. Real Talk. Real Answers. Living with MS in your 20s and 30s. An online program that provides an opportunity to engage in candid and real discussion and get answers to your questions about MS. Visit RealTalkRealAnswers.com.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Personal Financial Counseling Free counseling sessions with financial experts to help you navigate the complex world of money. Financial planning can be an intimidating subject but there are experts who can provide guidance and support. The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS.

If you are interested in financial counseling, please contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org. Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.

Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this program. Individual counseling sessions are over the telephone and last less than one hour. These free professional consultations may help you address a variety of financial topics, including: n

Basic budgeting

Savings vehicles: pros and cons

Insurance analysis, claims assistance

Investment review and planning

Employee benefits analysis: medical plans, disability coverage and life insurance

Retirement planning: analysis and tax planning/effectiveness

Estate planning: strategies to maximize inheritances

Additional resources For information about financial and life planning, visit www.MSsociety.org (click on Living with MS, then Insurance and Money Matters).

National Multiple Sclerosis Society, Minnesota Chapter

Moving Forward with MS Move forward together with family, friends, health care providers and others affected by MS.

Feb. 28 n St. Cloud If you or someone close to you has multiple sclerosis, you probably have a lot of questions and concerns. You may also feel overwhelmed and unsure of what questions to ask. This program gives you the information and support you need to live comfortably and confidently with this change in your life and help you make medical decisions about all aspects of your health. n

Learn about MS from an expert neurologist

Team up with your health care providers

Navigate the medication maze

Consider clinical trials

Understand how to talk about MS with your friends and family

Gain information about resources available to you

Learn how to cope with the anxiety MS may bring to your life

Connect with other people whose lives are affected by MS

Achieve optimal wellness

“I don’t want to regret what I missed because I let MS hold me back. I am compelled to make use of the abilities that I do have as long as I can.” – Mark McNary, diagnosed in 2004

ADDITIONAL RESOURCES

Information for people newly diagnosed with MS www.mssociety.org (click on Living with MS) South Metro for Newly Diagnosed Self-help Group Meets the last Wednesday of the month at 6:30 p.m. at Jo Jo’s Rise & Wine, 12501 Nicollet Ave., Burnsville. For more information, contact Jennifer at 952-412-1291.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Moving Forward with MS

Saturday, Feb. 28

Space is limited. Registration form must be received by Feb. 20.

8:30 a.m. 9–10:30 a.m. 10:45 a.m.–noon Noon–1 p.m. 1–2:30 p.m. 2:45–3:45 p.m. 4–4:30 p.m.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Age________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending @ $10 per person

9 a.m.– 4:30 p.m.

Check-in begins with continental breakfast My life, my MS, my decisions — Timothy Holtz Understanding MS in your life — Sara Heinzen Networking lunch Learning about MS — Dr. Adam Carpenter Connecting with others discussion groups Conquering the anxiety and fear of MS — Sara Heinzen

Location Comfort Inn 4040 Second St. S., St. Cloud, MN 56301 320-251-1500 www.comfortinn.com

Program fee $10 per person. Fee adjustments are available upon request. Make checks payable to MS Society. Do not send cash.

$_______ enclosed

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Online or by phone Visit www.MSsociety.org or call 612-335-7970.

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

DVD or video

Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Questions

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By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

A DVD or video of the program is available in the chapter’s Lending Library. Visit www.MSsociety.org and click on Library and Literature or call 612-335-7938. For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org. Made possible with a restricted educational grant from

Surviving the Economy Making it through today, planning for tomorrow. March 14 n Burnsville Planning and managing finances can be daunting in the best of times. But in today’s tough economic climate, it can be truly overwhelming, especially for people living with a chronic illness like multiple sclerosis. Understanding how to manage your money day to day and plan for your financial future can help you face your own unique challenges. It can also help you focus on living your life to its fullest and achieve your goals.

Key topics of this program include: n

The building blocks of a financial plan

How to choose a financial planner

Managing investments in a volatile market

How to set a budget and manage expenses

Financing care for someone with MS

Managing your credit card debt

This program is part of the Financial Education Partners Program (FEP), a volunteer program endorsed by the National MS Society and presented by the Twin Cities Society of Financial Service Professionals. Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products. Social workers from the Minnesota Chapter will also be at the program to talk about MS Society resources that can help you survive the economy.

All attendees are eligible for door prizes and receive a complimentary copy of “Adapting: Financial Planning for a Life with MS.”

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Surviving the Economy

Saturday, March 14

Space is limited. Registration form must be received by March 6.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEDW20090314BUR

9:30 a.m.– noon

9 a.m. Check-in begins 9:30 a.m.-noon Surviving the Economy

Location Holiday Inn 14201 Nicollet Ave. Burnsville, MN 55337 952-435-2100 www.hiburnsville.com

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Living with MS Learn strategies to enhance your life. March 21 n Brooklyn Center Whether you just received a diagnosis of multiple sclerosis or have been living with the disease for a long time — this program provides information and tips to help you maintain your quality of life in the years ahead. Learn about strategies to enhance your emotional and mental capacities, maximize your productivity and independence and deal with injection site management and skin breakdown. A separate workshop addresses specific issues for care partners and how they can help the person they love cope with emotional and cognitive challenges. Participants gain an overview of current MS treatment strategies, symptom management and potential future treatments.

Additional resources Living with MS www.MSsociety.org (click on Living with MS).

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Living with MS

Saturday, March 21

Space is limited. Registration form must be received by March 13.

9:30 a.m. 10–11 a.m. 11:15 a.m.–12:15 p.m. 12:30–1:30 p.m. 1:30–2:30 p.m.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

10 a.m.–2:30 p.m.

Check-in begins Solving cognitive issues — Dr. Deanne Nerem A. Injection site management and skin care — Dr. Gary Beaver and Missy Rosin B. Assisting the one you love with cognitive and emotional issues — Dr. Deanne Nerem Lunch MS treatment and management update — Dr. Bruce Hughes

Location Crowne Plaza Minneapolis North Hotel 2200 Freeway Blvd. Brooklyn Center, MN 55430 763-566-8000 www.minneapolisnorthhotel.com

Program fee There is no fee for this program.

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.

Made possible with a restricted educational grant from

MNM0CEDW20090321BRC

Lock-in for Teens Join other teens affected by MS for a new lock-in with great new activities.

April 3 n St. Paul This year’s Lock-in for Teens has undergone a makeover — with a brand new location featuring an upstairs Teen Loft and great new things to do. The evening includes staying up all night, watching movies, eating pizza, playing games, baking cookies, surprise activities and a chance to get together with other teens affected by multiple sclerosis. Teens who have a parent or close relative with MS, or have MS themselves, are invited to bring a friend or two and join the fun.

ADDITIONAL RESOURCES

Join the Team of the Future at walk MS. Contact Nancy Dawn Van Beest at ndvanbeest@MSsociety.org Talkin’ Teens Chat Room A chat room on MSWorld for teens with MS ages 13 to 18. Visit www.MSworld.org.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Lock-in for Teens

Friday, April 3

Space is limited. Registration form must be received by March 30.

10 p.m. 10 p.m.â&#x20AC;&#x201C;8 a.m. 8 a.m.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Date of birth________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Name________________________ Date of birth________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Name________________________ Date of birth________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ If you need any special accommodations, call 612-335-7970 (by the registration deadline).

MNM0CKTW20090403STP

10 p.m.-8 a.m. Meet at Messiah Episcopal Church Lock-in activities Pick-up at Messiah Church Bring any or all: A friend or two, a snack, your favorite game or movie.

Location Messiah Episcopal Church 1631 Ford Parkway St. Paul, MN 55116 651-698-2590 www.messiahepiscopal.org All teens must be dropped off and picked up at the church.

Program fee There is no fee for this program.

Questions For more information, contact Nancy Dawn Van Beest at 612-335-7936 or ndvanbeest@MSsociety.org, or Rachel Ring at 612-335-7937 or rring@MSsociety.org.

Men’s Retreat Spring training.

April 18 n Plymouth Men living with multiple sclerosis face unique challenges. Not only may the disease affect them differently than women, but living with a disability as a man also may challenge traditional male roles and support networks. This retreat provides information about defining and building support networks, understanding MS from a male point of view and updates on current MS-related research.

The Men’s Retreat also features time for fun and a networking lunch.

Additional resources Join Walk MS Continue your spring training. Visit walkMS.org to register.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Men’s Retreat

Saturday, April 18

Space is limited. Registration form must be received by March 13.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending @ $10 per person $_______ enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

MNM0CVAC20090418PLY

8:30 a.m. 9–10:30 a.m. 10:45–11:45 a.m. Noon–2 p.m. 2:15–3:30 p.m. 3:45–4:45 p.m.

9 a.m.–4:45 p.m.

Check-in begins Who’s on our team? — Tom Ellis Research update — Dr. Dale Edberg Sports-themed networking lunch Bullpen Fun — James Wedgewood Pratt Men and MS — Dr. Jonathan Calkwood

Location Radisson Hotel and Conference Center 3131 Campus Drive Plymouth, MN 55441 763-559-6600 www.radisson.com/minneapolismn_plymouth

Program fee $10 per person. Fee adjustments are available upon request. Make checks payable to the MS Society. Do not send cash.

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.

Made possible with a restricted educational grant from

Youth Camp Help celebrate the 10th annual Youth Camp. June 14-19 n Finland Youth Camp is for youth who have a parent, grandparent, aunt, uncle, sibling or other close relative with MS. Youth camp is an active program in an adventurous place that provides youth an opportunity to have fun with others, share exciting adventures and build friendships. Participants must have completed third grade to attend camp and the program is open to youth in high school up to age 18. Graduating high school seniors have the option to attend as a camper or apply to be a counselor in training. Camp activities include: n

Adventure hikes

Campfires

Canoeing

Creative activities

High ropes course

Indoor climbing wall

MS education

Swimming

and more

Teen Adventure Younger teens spend a night out of the main camp, while older teens enjoy an overnight canoe trip. Both groups make their own meals, share campfire stories and enjoy the Northwoods. No experience is necessary and special equipment is provided.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ www.MSsociety.org

Youth Camp

June 14-19

Space is limited. Interest form must be received by Feb. 20.

Location

Complete interest form online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Parent name__________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Youth(s) name(s) and birthdate(s): _____________________________ _____________________________ _____________________________ _____________________________ _____________________________ _____________________________ My child(ren) will ride the bus from (check one): _____ Brainerd _____ Duluth _____ Minneapolis _____ North Branch _____ Rochester _____ St. Cloud _____ I know someone who would be a great camp counselor or nurse. Do not send payment with this form.

Finland

Beautiful Wolf Ridge Environmental Learning Center on the North Shore in Finland, Minn., includes two lakes and a view of Lake Superior. Campers stay in comfortable, modern dormitories and eat healthy meals in a cafeteria. www.wolf-ridge.org

Supervision Adult volunteer counselors and highly trained Wolf Ridge staff lead programs and supervise campers at all times.

Getting to camp Chaperoned buses transport kids to and from camp from six different locations: Brainerd Minneapolis Rochester Duluth North Branch St. Cloud

Program fee $150 per child. Do not send a check with the interest form. Upon acceptance, you will receive a billing invoice. Fee adjustments are available upon request.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7936. By mail Complete and return the interest form by Feb 20. An application will be mailed to you. Mail interest form to: National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415 Note: Completing an interest or application form does not guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. In some cases, individual needs may be greater than we can accommodate at Youth Camp. Upon acceptance, you will receive detailed information and a billing invoice.

Questions For more information, contact Nancy Dawn Van Beest at 612-335-7936 or ndvanbeest@MSsociety.org, or Rachel Ring at 612-335-7937 or rring@MSsociety.org.

INTEREST FORM

Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS.

MS Awareness Week Nationwide n March 2-8 The National MS Society is counting on you to engage new people in the MS Movement during MS Awareness Week March 2 to 8. This year’s theme, Move it., encourages everyone to move the message forward in their unique way. The Minnesota Chapter offers exciting opportunities for you to volunteer on street teams, advocate for people living with MS, register for Walk MS and Bike MS events, raise awareness in your communities and more.

MS Awarenes s Week March 2-8, 20 09

Additional resources Visit www.MSsociety.org for a toolkit full of excellent tools, resources and ideas.

Harnessed walking and exercise with MS Bloomington n March 4, 7 p.m. Nativity of Mary Church 9900 Lyndale Ave. S. Bloomington, MN 55420 People with MS may experience walking and balance difficulties. Contributing factors may include muscle weakness and abnormal compensatory patterns of movement — or problems with coordination of the muscles in areas such as the hip, knee and ankle. New treatments using specialized equipment may help improve abnormal muscle movement patterns. Harnessed walking is a functional

treatment option that may help people with MS improve their balance, walking and endurance. The Bloomington MS self-help group invites you to join them for this informative program featuring Megan Frost, physical therapist and recipient of the Minnesota Chapter’s 2008 Health Care Professional of the Year Starfish Award. For information and to R.S.V.P., contact Michelle at 952-831-5635 or mhargesheimer@yahoo.com.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Connect Locally Moving Forward Film Festival Eden Prairie n Saturday, March 21, 10 a.m. United Methodist Church 15050 Scenic Heights Road Eden Prairie, MN 55344 Join the Southwest Metro MS self-help group for mildly affected for a screening of the five winning films from the National MS Society’s MS Film Festival. The festival was launched to give people affected by MS a platform to tell their story and show the world how they move forward. Treats will be provided. For more information and to R.S.V.P., contact Nan at 612-272-9501 or nanvest@earthlink.net.

Additional resources Can’t make this program? To view the five short films, visit www.YouTube.com and search for “Moving Forward Film Festival.”

Estate and Financial Planning and Medical Assistance Perham n Tuesday, March 31, 1 p.m. Calvary Lutheran Church 619 Third Ave. S.W. Perham, MN 56573 Planning for your future is important no matter your income, asset level, age or family makeup. If you or a loved one is living with MS or other chronic disease, join the Perham self-help groups for people with MS and care partners to learn about the value of a health care directive and power of attorney, ways to protect your assets and avoid probate, current medical assistance guidelines and estate tax levels.

This program will feature presenter Susan E. Johnson-Drenth — an attorney with Vogel Law Firm whose areas of practice include estate planning, probate, probate litigation, elder law, guardianships and trust law including special needs trusts for people with disabilities. For information and to R.S.V.P., contact Colleen at 218-758-2502 or Mary at 218-346-4423.

National Multiple Sclerosis Society, Minnesota Chapter

Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, R.N. Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: March 11 Vitamin D and other complimentary medicines

April 15 Maintaining your health with MS

Please R.S.V.P. at 763-302-8282, ext. 4823. Dr. Gary Birnbaum

University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412 Topics:

March 9 Sexuality

For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry

phone 612-335-7900 or 1-800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ www.MSsociety.org

Face Time with Your Local Neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Dr. Jonathan Calkwood

Topics:

Feb. 8

Managing MS fatigue

March 4 MS Society services

March 11 Elder law: What is it and why do I need it?

March 18 Benefits of Yoga

March 25 Managing spasticity

For more information, contact the Schapiro Center for MS at 763-302-4199.

Canâ&#x20AC;&#x2122;t make it to these programs? Visit www.nationalMSsociety.org and check out webcasts and podcasts featuring well-known neurologists. Click on multimedia library, then webcasts and podcasts.

National Multiple Sclerosis Society, Minnesota Chapter

What’s online? Join the online community and be inspired.

Connect with others whose lives are affected by multiple sclerosis, whether you are living with MS, caring for a loved one or supporting the MS movement. Read their amazing stories and learn just how many ways there are to join the movement. Visit www.nationalMSsociety.org and click Online Community to learn more about the following.

Ambassadors and Familiar Faces — Meet celebrities who raise awareness and funds for the MS movement.

MS and Me — People just like you, sharing unique yet universal stories about life with MS.

Creative Artists — “Art endures,” the ancients said. Meet people who use the arts to ensure that nobody experiences MS alone.

Leaders and Activists — They bike. They walk. They demand change. Meet some champion fundraisers and activists who make the world better for people with MS.

The Future Generation — Wise beyond their years, these young people play a vital role in the MS movement.

Professionals — Think of it this way: MS didn’t choose them. They chose MS. What motivates health care professionals to embrace MS research, treatment or services?

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group

New ongoing water exercise program in Marshall The Marshall Area YMCA now offers an ongoing MS water exercise class. The Minnesota Chapter would like to thank Diane Johnson and Ruth Gernentz for instructing the seasonal MS water exercise class for the past 11 years and Doug Goodmund, from Marshall Parks and Recreation, for coordinating the program.

From left to right, Ruth Gernentz, Doug Goodmund and Diane Johnson.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.

WATER EXERCISE Albert Lea

Andover

Detroit Lakes

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon

Alexandria

Burnsville

Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.

Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

Duluth

Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Coon Rapids Low impact M/W, 10-11 a.m., Emma B. Howe Northtown YMCA Water exercise F, 10-11 a.m. Joel Giedlinski, 763-717-1859 T/R, 11 a.m.-noon National Multiple Sclerosis Society, Minnesota Chapter

Eagan

Perham

YOGA

Southwest Area YMCA Sjon Swanson, 651-456-9622 T, 9-10 a.m.

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

Bemidji

Eden Prairie Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.

Inver Grove Heights The Grove Amy Crary, 651-554-3420 M/W, 10:10-11 a.m.

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

Marshall Marshall Area YMCA Cindy Rosa 507-532-9622 M, 4:30-6 p.m.

New Hope Northwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon

St. Cloud Family YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.

St. Paul Humboldt Senior High School Pam Weiss, 651-632-6020 M,5:30-6:20 p.m. Jan. 26-March 9

Staples Staples Community Center Kevin Grondahl, 218-894-2553 M/W/F, 9-10a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Woodbury Southeast Area YMCA Lisa Kovac 651-739-6589 M/W 12:15-1 p.m.

Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.

Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

Minneapolis Kingsley Commons Jeanine Farrell, 612-925-8478 F, 2:30 p.m. Uptown YWCA Lisa First 612-822-3504 F, Noon

New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

Featured group

Clubs and Groups

Perham

Join an MS club or group to

“In helping one another, we discover that we help ourselves. We share the things that help each of us live better with MS. Focusing on the positive, we enjoy a relaxed camaraderie together, where laughter and tears may be shared comfortably.”

connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you.

— Mary Chase and Colleen Sazama, group facilitators

BOOK CLUBS

Duluth

Mahtomedi

Apple Valley

Fourth Tuesday of the month 11 a.m. Barnes & Noble Betsy 218-724-9075

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna 651-762-4084

Maple Grove

Third Tuesday of the month 7 p.m. Kingsley Commons Pat 612-521-4654

First Friday of the month 10 a.m. Barnes & Noble Cindy 952-891-5249

Fourth Monday of the month 10 a.m. Barnes & Noble Mary 763-420-4562 26

Minneapolis

National Multiple Sclerosis Society, Minnesota Chapter

Rochester Fourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall Larry 507-281-2447

Roseville First Tuesday of the month 10 a.m. Barnes & Noble Har Mar Carol 763-571-2290

SELF-HELP GROUPS For care partners Bemidji Care Partners Third Saturday of the month 10 a.m. North Country Regional Hospital

Men’s Care Partner Breakfast Third Saturday of the month 10 a.m. Different restaurant each month Contact Dan for location at 651-779-9435 or dbr@danielrude.com

Perham Care Partners Last Tuesday of the month 1 p.m. Calvary Lutheran Church

St. Louis Park Care Partners Third Tuesday of the month 6:30 p.m. St. Louis Park City Hall

St. Paul Care Partners at MSAC Contact Lisa, 612-672-2815 MS Achievement Center

For couples St. Paul

For newly diagnosed South Metro for Newly Diagnosed Last Wednesday of the month 6:30 p.m. Jo Jo’s Rise & Wine

Second Wednesday of the month 7 p.m. Fairview MS Achievement Center

For people of color

Stillwater Couples

Second Saturday of the month 10 a.m. Wayman AME Church in Minneapolis

Second Saturday of the month Noon Courage Center

For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability

Metro Area MS Group for People of Color

For people mildly affected by MS Southwest Metro MS group for mildly affected

First Tuesday of the month 6 p.m. Goodwill/Easter Seals

Third Saturday of the month 10 a.m. United Methodist Church in Eden Prairie

For fitness

For professionals

MS Fitness Club

Let’s Lunch: professionals living with MS

Third Saturday of the month 10 a.m. Chapter Office

For men Metro Area It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m. Different restaurant each month Contact Rick for location at 763-208-8741 or rleaf@msnet.org

Third Saturday of the month 11 a.m. Chatterbox Pub in St. Paul

For women Maplewood Peer Emotional Support Women’s Group Third Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran Church

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

General self-help groups

Benson

Aitkin

Fourth Tuesday of the month 7 p.m. Westwood Manor Apartments No meetings Nov.–Feb.

First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Hope Drop-In Center

Albert Lea Second Monday of the month 1:30, Dec. - Feb 7 p.m., March – Nov. Grace Lutheran Church

Alexandria Second Monday of the month 5 p.m. St. Mary’s Office Building

Apple Valley

Detroit Lakes

First Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July–Aug.

Second Monday of the month 6 p.m. Lincoln Park Assisted Living

Brainerd MS Breakfast at the Mill

First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Third Monday of the month 9:30 a.m. Sawmill Inn

Burnsville/Apple Valley First Tuesday of the month 6:30 p.m. Fairview Education Center in Burnsville

Arrowhead region

Cambridge

Austin First Monday of the month 6:30 p.m. Grace Lutheran Church

Belview Third Thursday of the month 7:30 p.m. Parkview Home No meetings Nov.–Feb.

Bemidji Third Saturday of the month 10 a.m. North Country Regional Hospital 28

Second Wednesday of the month 7 p.m. Coon Rapids City Center

Bloomington

First Thursday of the month 9:30 a.m. Christ Church Second Friday of the month 1 p.m. Babbitt Municipal Building

Coon Rapids North Suburban

Third Thursday of the month 7 p.m. Cambridge Medical Center

Canby Second Thursday every other Month, April through December 4 p.m. Sanford Canby Medical Center

Chaska Third Tuesday of the month 12:30 p.m. Chaska Library

Duluth

Eden Prairie Third Tuesday of the month 7 p.m. Wooddale Church

Fergus Falls Second Wednesday of the month 11:30 a.m. United Church of Christ

Forest Lake Area Second Thursday of the month 6:30 p.m. The Meadows for Assisted Living

Gaylord First Sunday of the month 7 p.m. Lakeview Home No meetings Nov.–Feb.

Gibbon Third Saturday of the month 9:30 a.m. Gibbon Community Center

National Multiple Sclerosis Society, Minnesota Chapter

Golden Valley

Mankato

Pierz/Little Falls

Second Monday of the month 7 p.m. Golden Valley Lutheran Church

Second Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center

First Wednesday of the month 1 p.m. Bethel Lutheran Church

Maple Grove

Third Saturday of the month 10 a.m. Fairview Northland Regional Hospital

Grand Rapids Second Thursday of the month 12:30 p.m. Grand Rapids Public Library

Hibbing Last Thursday of the month 1 p.m. Open Door Church

Hutchinson Second Monday of the month 6:45 p.m. Christ the King Lutheran Church

Inver Grove Heights/ West St. Paul First Monday of the month 7:30 p.m. Good Shepherd Lutheran Church No meetings Dec.–Feb.

Lake Elmo Third Wednesday of the month Noon Christ Lutheran Church

Litchfield

Second Saturday of the month 10 a.m. St. Joseph the Worker Church

Rochester Maple Lake/Annandale Third Monday of the month Noon Maple Manor East in Maple Lake

Minneapolis Last Saturday of the month 10 a.m. Kingsley Commons

New Hope Third Saturday of the month 10 a.m. Caribou Coffee

New Ulm Third Tuesday of the month 7 p.m. Oak Hills Living Center

Fourth Tuesday of the month 3 p.m. Meeker County Memorial Hospital

Oakdale

Luverne

Perham

Third Thursday of the month 7:30 p.m. Rock County Family Services

Princeton

First Saturday of the month 10:30 a.m. Oakdale Library Last Tuesday of the month 1 p.m. Calvary Lutheran Church

Second Wednesday of the month 7 p.m. Meadow Lake Senior Living

Roseville Second Wednesday of the month 6:45 p.m. Roseville City Hall

St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton

Staples Second Thursday of the month 3:30 p.m. Lakewood Care Center

St. Cloud Second Wednesday of the month 7 p.m. St. Cloud Public Library

St. Cloud-Granite City First Tuesday of the month 4 p.m. Whitney Center

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

St. Croix Falls

Waseca

Woodbury A.M.

Third Saturday of the month 2 p.m. Good Samaritan Nursing Home

Third Tuesday of the month 7 p.m. Waseca Medical Center

Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church

St. Paul Care to Share

Wayzata-Suburban West Hennepin

Woodbury P.M.

Second Wednesday of the month 7 p.m. Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location

Stillwater Third Wednesday of the month 6 p.m. Courage Center

First Thursday of the month 1 p.m. Original Pancake House, Wayzata

Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury

Willmar First Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home

Superior

Windom/Cottonwood County

Second Tuesday of the month 6 p.m. Superior Public Library

Third Tuesday of the month 7 p.m. ALC Lutheran Church

Additional resources

Book clubs

Self-help groups

For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.

For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter

Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968

Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967

Camps and getaways Getaways for care partners, couples, families, men and women Exercise programs Timothy, 612-335-7930 Jeannie, 612-335-7939 Rachel Ring, 612-335-7937 MS Camp Jeannie, 612-335-7939 Family, youth and care Youth Camp Nancy Dawn, 612-335-7936

partner programs Nancy Dawn, 612-335-7936

Chore services Kari, 612-335-7968

Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965

Clubs and groups Book clubs Jeannie, 612-335-7939 Self-help groups Jeff, 612-335-7951 Education programs Timothy, 612-335-7930 Emergency assistance Heather, Jill and Sarah, 612-335-7900

Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967

Calling from Greater Minnesota? Call 1-800-582-5296.

Information and Referral Center MS Navigators can answer questions about living with MS and connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies and organizations Steve, 612-335-7974 Lending Library Heather, 612-335-7947 Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Teen programs Rachel Ring, 612-335-7937 Volunteer opportunities Timothy (Programs), 612-335-7930 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

If not you, then who? We need you now, more than ever.

Walk with us May 3, 2009. If not you, then who?

MS research is moving at record speed, but for the first time in more than 50 years, we can’t keep up. That’s why events like Walk MS are so critical — to fund research for a cure.

Just think, if people with MS don’t drive the movement forward, who will?

This year, we call on everyone — especially people with MS — to join the movement.

We need your drive. We need your passion. We need you now.

MSsociety.org n 800-582-5296

we’re doing well by doing good.

We’ve always been in favor of hard work. Our National MS Society Charitable Gift Annuity is one hard worker! It provides us with tax benefits and a fixed income steam for life. And it helps the MS community move forward. Join the movement in a powerful way. Contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.

Michael, diagnosed in 2004