Programs
June — July 2008 • Vol. 7 No. 4
CONNECTION
Women Against MS Be inspired to join the movement.
Managing MS as a Team Take charge of MS as a couple.
Plus Family Fun Day Teen Day at the Beach and much, much more
JOIN THE MOVEMENT
MOVING IS WHO WE ARE “Helping people with MS find accessible, appropriate housing is one of our priorities.” Helping people with multiple sclerosis find accessible, appropriate housing is one of the Minnesota Chapter’s priorities. We want to make sure that people affected by the disease Steve Korngable have access to housing that meets their physical Long-term Services needs as well as their financial situation. We Manager do this by collaborating with other groups and organizations and exploring new ways to meet your housing needs. Kingsley Commons, which opened last June, features 25 accessible and affordable apartments for people with MS. This residence is nearly full. The chapter is exploring three more housing developments with CommonBond Communities that feature accessible units for people with mixed incomes. The chapter is collaborating with developers who provide accessible and affordable condominiums along the Hiawatha Light Rail Line and near the Midtown Global Market. Chapter staff are also available to help you find an accessible home that meets your personal needs. Consider taking advantage of Independent Living Grants, which can provide financial assistance for home modifications and adaptive equipment needs.
New accessible apartments to open this fall Another exciting development, Charlotte Commons will open this September near the University of Minnesota. These apartments will offer three accessible and affordable units for families. This project is provided through a collaboration with Project for Pride in Living and ResCap. Apartments will feature roll-in showers, grab bars, open space under sinks and kitchen cabinets with rollout shelves. Potential residents must income qualify. To be added to the interest list, contact Steve Korngable at 612-335-7974. Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@mssociety.org Editors Timothy Holtz Emily Wilson MS Navigators Sarah Danen Jaclyn Groneberg Claire Loesch Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter.
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalmssociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Table of Contents
Programs by topic
Personal Connections
Employment
Clubs and Groups Managing MS as a Team
What’s online?
15
Technology
Family Family Fun Day Managing MS as a Team
5 9 16
Inspiration Women Against MS
7 13
Travel 8
Youth Family Fun Day Teen Day at the Beach
5 11
St. Cloud Managing MS as a Team
Newly diagnosed Clubs and Groups Managing MS as a Team
15
Programs by location
Managing MS symptoms Face Time with Your Local Neurologist
What’s online? 2009 cruises
Healthy living Exercise
18 9
18 9
9
Twin Cities – Metro programs Family Fun Day Teen Day at the Beach Women Against MS
5 11 7
JOIN THE MOVEMENT
Join me for the Women Against MS luncheon “This is a disease that affects every individual differently and we want to work to end it.” – Barb Thornton, diagnosed 1998 Ten years ago, after experiencing double vision at her son’s hockey practice, Barb Thornton was diagnosed with multiple sclerosis. Her doctor recommended she get in touch with the National MS Society, which led her to attend a newly diagnosed program. Barb said that although the program was very informative, she remained in denial about her MS for some time. She continued to gather as much information about MS as she could, but just was not ready to become active with the Minnesota Chapter. All that changed in 2005 when Barb attended the Women Against MS luncheon. She enjoyed the luncheon so much she wanted to volunteer for the event but didn’t feel she had enough spare time to make a commitment. When Barb retired from teaching last year, she had time to give and knew exactly how she wanted to spend it. Barb is now a dedicated member of the Women Against MS committee.
“I’ve met so many people, volunteers and staff, who are so committed to the mission and the work of the MS society,” Barb said. “I love being able to use my gifts to support the luncheon projects. From finding items and creating baskets for the silent auction, to hosting a table, I have been able to give back.” Barb encourages everyone to attend the 2008 luncheon. “It is a great opportunity to support the work of the Minnesota Chapter while enjoying a great lunch and an inspiring speaker, without making a huge time commitment,” she said. “Whether you live with MS, know someone who is touched by the disease or want to be educated about MS, you can support people affected by MS and help end this disease for our children and all future generations.”
Additional resources Learn more For more details about Women Against MS, see Page 7 or visit www.MSsociety.org.
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National Multiple Sclerosis Society, Minnesota Chapter
Family Fun Day Have fun and connect with other families. ADDITIONAL RESOURCES “Keep S’myelin” A fun newsletter to help children and their parents talk and learn about MS together that includes games, puzzles, stories and more. View the interactive version online at www.nationalmssociety. org/multimedia-library/kids-keep-smyelin. Someone You Know Has MS: A Book for Families A story about Michael and his family that explains MS and explores children’s fears and concerns. For children ages 5 to 12. Contact the chapter for a free copy.
July 26 n Shoreview If you would like to learn more about MS Youth Camp, or if your children have already attended Youth Camp, join other families for fun, lunch and time with friends at the Shoreview Community Center. Parents will meet and children can meet new friends or catch up with fellow campers. After fun activities, lunch and a slide show, family members can enjoy the Tropics Indoor Water Park or the gymnasium. The community room will also be open for teens and adults to enjoy games and conversation.
Family Getaway The 2008 Family Getaway will be held Oct. 10 to 12 at the Arrowwood Resort in Alexandria. Look for more details in the August–September issue.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Family Fun Day Space is limited. Registration form must be received by July 18. Please print ID# (from mailing panel) ________ Name of parent or close relative with MS _____________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Complete names and ages of others attending: _____________________________ _____________________________ ______________________________ _____________________________ _____________________________ ______________________________ $______ enclosed ($5 per family) Special accommodations: If you need any special accommodations such as an ASL interpreter, vegetarian meal, or transportation please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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Saturday, July 26 10:30 a.m. 1–3 p.m. 3–8 p.m.
10:30 a.m. – 3 p.m.
Fun activities, lunch and Youth Camp presentations Enjoy the Tropics Indoor Water Park or community center On your own — community center and water park open.
All children under 16 must be accompanied by an adult family member to attend this program. A parent or other adult must accompany children under age 6 inside the water park. (Supervisory adults must wear a bathing suit and be within arm’s reach of children at all times.)
Location Shoreview Community Center and Tropics Indoor Water Park 4580 Victoria St. N. Shoreview, MN 55126 651-490-4700 www.ci.shoreview.mn.us
Program fee $5 per family. Fee adjustments available upon request. Make checks payable to MS Society. Do not send cash.
Register Online or by phone Visit www.mssociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Nancy Dawn Van Beest at 612-335-7936 or ndvanbeest@mssociety.org.
Women Against MS Be inspired to join the movement.
Featuring: Sue
Thomas ized speaker and best-selling author
Nationally-recogn
“One can only learn lessons by embracing MS. I don’t fight it.” – Sue Thomas Aug. 7 n Minneapolis Women Against MS is a benefit luncheon with an inspirational speaker. This year’s keynote speaker is Sue Thomas, nationally-recognized speaker and best-selling author of the autobiography “Silent Night.” Though diagnosed with hearing loss at 18 months, Sue did not let it slow her down. She was tenacious in learning to read lips and was later hired by the F.B.I. for her skill. Sue’s work was dramatized by the PAX TV series “Sue Thomas: F.B.Eye.” Sue was diagnosed with multiple sclerosis at age 51 and dedicates her time to speak at Women Against
A benefit luncheon for the National Multiple Sclerosis Society, Minnesota Chapter
MS luncheons across the country. The luncheon also features an auction to raise money for the Minnesota Chapter Scholarship Program. The success of our luncheon depends on volunteer table hosts. Table hosts invite nine friends, colleagues or associates to sit at their table and contribute in support of the National MS Society, Minnesota Chapter. A minimum contribution of $75 is requested. To learn more, make a reservation or become a table host, contact Rachel Hughes at 612-335-7965 or rhughes@mssociety.org.
Thank you to our 2008 sponsors
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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2009 cruises Join the MS Society for a travel opportunity of a lifetime. The Minnesota Chapter, in partnership with Flying Wheels Travel, will offer two accessible cruises in 2009.
March 1–8, 2009 n seven-night western Caribbean cruise Cruise with family and friends and enjoy a stressfree, accessible travel experience. Ports of call include Jamaica, Grand Cayman and Cozumel. Prices begin at $1,906 per person, double occupancy, and include roundtrip airfare from Minneapolis, roundtrip transfers from Miami airport, stateroom accommodations, all shipboard meals, entertainment, welcome reception, MS Society events throughout the cruise, farewell reception, gratuities and government taxes and fees. Reservation deadline is June 30, 2008.
Oct. 1–13, 2009 n 12-night Mediterranean Greek Isles cruise Step back in time to old-world charm, experience the great treasures of ancient Greece and enjoy the ambience of the seaside towns of Italy. Ports of call include Barcelona, Nice, Florence, Rome, Mykonos, Santorini, Athens, Ephesus and Naples. Prices begin at $3,891 per person, double occupancy, and include roundtrip airfare from Minneapolis, roundtrip transfers from Barcelona airport, stateroom accommodations, all shipboard meals, entertainment, welcome reception, MS Society events throughout the cruise, farewell reception, gratuities and government taxes and fees. Reservation deadline is Aug. 1, 2008. 8
Timothy Holtz, programs manager for the Minnesota Chapter and an MS-experienced guide, and an MS-certified nurse will be on board to assist with your care needs. Cruises are open to both couples and singles. Chapter staff and Flying Wheels Travel will facilitate roommates for single travelers to reduce cost. The chapter does not offer fee adjustments for the cruise. Deposits of $250 per person are due at the time of reserving your stateroom. Final payment is due later. For more information or to make reservations, contact Chris Deming at Flying Wheels Travel at 507-451-5005 or Christine@LL.net.
National Multiple Sclerosis Society, Minnesota Chapter
Managing MS as a Team Take charge of MS as a couple. Aug. 9 n Bemidji Even in the best of times, maintaining a healthy relationship can be hard work. Living with multiple sclerosis can make it even harder. The Managing MS as a Team program will help couples minimize the impact of MS on their lives. Participants will learn how to: n Improve communication and problem solving skills
Additional resources Personal Financial Counseling n
The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS. To learn more, contact Steve Korngable at 612-335-7974 or 800-582-5296 or skorngable@mssociety.org.
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Achieve greater fulfillment in your relationship
n
Manage MS as a team
n
Help your relationship thrive
When you know how to take charge as a couple, MS does not have to rule your relationship. LuAnn Pierce will facilitate. She is a licensed clinical social worker with more than 20 years of experience in the field. LuAnn has worked with the National MS Society as a nationwide information and referral specialist and develops and facilitates workshops on a wide variety of topics that include parenting, successfully managing transitions and dealing with specific emotions such as loss and grief. She has written many articles related to these and other similar topics, with articles appearing in Woman’s World magazine.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Managing MS as a Team Space is limited. Registration form must be received by Aug. 1. Please print ID# (from mailing panel) ________ Name of person with MS _____________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Complete names of spouse/ partner attending: _____________________________ _____________________________ $_____ enclosed ($25 per couple) Special accommodations: If you need any special accommodations such as an ASL interpreter, vegetarian meal, or transportation please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
Saturday, Aug. 9 9–9:30 a.m. 9:30–10 a.m. 10–10:30 a.m. 10:30–10:45 a.m. 10:45–11:15 a.m. 11:15 a.m.–noon Noon–1 p.m. 1–1:30 p.m. 1:30–2:30 p.m. 2:30–2:45 p.m. 2:45–3:15 p.m. 3:15–3:30 p.m. 3:30–4:20 p.m. 4:20–4:30 p.m. 4:30–5:30 p.m.
9 a.m. – 5:30 p.m.
Welcome and introduction Couple enrichment and why it’s important Blocks to communication Break Communication danger signs Small group activity Lunch MS challenges Events and hidden issues Break Talking without fighting XYZ statements Problem solving Ground rules Talking with your partner about MS challenges
Locations Holiday Inn Express 2422 Ridgeway Ave. N.W. Bemidji, MN 56601 218-751-2487 www.ichotels.com
Program fee $25 per couple. Fee adjustments available upon request. Make checks payable to MS Society. Do not send cash.
Register Online or by phone Visit www.mssociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@mssociety.org. 10
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Teen Day at the Beach Enjoy a summer afternoon at the beach.
ADDITIONAL RESOURCES Aug. 9 n Plymouth The Minnesota Chapter invites teens ages 13 to 18 who have a parent or close relative with multiple sclerosis to enjoy a day at the beach and bring a friend or two along. Join other teens for swimming, playing on the beach, paddle boating, canoeing, kayaking, playing sand volleyball and more. This fun-filled day also includes a picnic in the park.
When a Parent Has MS: A Teenager’s Guide A booklet for older children and teenagers who have a parent with MS that discusses real issues brought up by real teenagers. Contact the chapter for a free copy. National MS Society on MySpace Network with others at www.myspace.com/ mssociety. National MS Society on YouTube View the latest in MS Society PSAs and videos at www.youtube.com/nationalmssociety.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Teen Day at the Beach Space is limited. Registration form must be received by Aug. 1.
Saturday, Aug. 9
Participants will receive detailed information about the program. In the event of severe weather, the program will be cancelled.
Please print ID# (from mailing panel) ________
Locations
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Program fee
Complete names and ages of others attending: _____________________________ _____________________________ _____________________________ _____________________________ _____ # of people attending @ $5 per person $_______ enclosed Special accommodations: If you need any special accommodations such as an ASL interpreter, vegetarian meal, or transportation please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.
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3 – 9 p.m.
Clifton E. French Regional Park Plymouth, MN 55441 www.threeriversparkdistrict.org
$5 per person. Fee adjustments available upon request. Make checks payable to MS Society. Do not send cash.
Register Online or by phone Visit www.mssociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, contact Rachel Ring at 612-335-7937 or rring@mssociety.org, or Nancy Dawn Van Beest at 612-335-7936 or ndvanbeest@mssociety.org.
Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, R.N. Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: July 9
Complimentary and alternative medicine: What is its place in MS care?
Please R.S.V.P. at 763-302-8282, ext. 4823. Dr. Gary Birnbaum
St. Mary’s Duluth Clinic MS Center Join Dr. Gary Beaver and Missy Rosin, MS-certified nurse Every other Wednesday at 6 p.m. Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981 Topics: June 25 When your spouse/partner has MS
Dr. Gary Beaver
July 9
Staying cool with the summer heat
July 23 Vision and eye problems with MS
Aug. 13 Health directives
For more information, contact St. Mary’s Duluth Clinic MS Center at 218-786-8270.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Face Time with Your Local Neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Randy Schapiro and Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750 Topics:
June 18
Nutrition and healthy eating
June 25
Using braces and orthotics
July 9
Speech and swallowing problems in MS
Dr. Randy Schapiro
July 16
Dealing with summer heat
July 23
Managing tremors and balance problems
July 30
How can the MS Society help you and your MS?
Aug. 6
Exercise and MS
Aug. 13 Driving with MS
For more information, contact the Schapiro Center for MS at 763-302-4199. Dr. Jonathan Calkwood
University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Monthly at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412 Topics:
July 14
Beat the heat
For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry
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National Multiple Sclerosis Society, Minnesota Chapter
What’s online? First-of-its-kind career resource for people with MS Monster®, the leading global online careers and recruitment resource; the National MS Society; and Biogen Idec and Elan, recently collaborated to launch MS Workplace, a first-of-its-kind online initiative that provides MS-specific career advice, workplace tips and job postings targeted toward the MS community.
By logging on to www.MSWorkplace.com, you can easily access content to help you better understand how to manage MS while continuing down your career path. n
Information about working with MS
MS Workplace is a free, web-based resource that includes convenient links to educational and career information, as well as job search capabilities. The site also offers a section for employers who have an employee with MS to help them better understand the disease.
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Ways to prioritize workplace goals
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Tips for talking with supervisors and colleagues about MS
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Answers to frequently asked employmentrelated questions regarding MS
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Information for people with MS looking to re-enter the workforce
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Guidance for companies about supporting an employee with MS
Site features include:
MS Workplace features Monster’s industryleading search and match capabilities, expert career advice and an array of tools such as a resume builder and salary center. In addition, users can post their resumes and access job postings from Monster’s national database where they can choose opportunities that may accommodate the specific needs of people with MS. For every resume submitted through the MS Workplace site, Monster Additional resources will make a donation to the National MS Society to support education programs Check it out around the country. To learn more or create a free account, visit www.MSWorkplace.com.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group
Burnsville water exercise
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@mssociety.org.
“After two classes per week over a period of time, I cannot believe how comfortable and able I’ve become. My balance, muscle strength and endurance have improved tremendously, enabling me to be more active out of the water.” – Jeannette Negri, Burnsville water exercise participant
WATER EXERCISE Albert Lea
Andover
Detroit Lakes
Family YMCA Bill Villarreal, 507-373-8228 T/R, 1-2 p.m.
YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon
Alexandria
Burnsville
Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 Call for details.
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.
Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
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Coon Rapids Emma B. Howe Northtown YMCA Joel Giedlinski, 763-717-1859 T/R, 11 a.m.-noon
Duluth Duluth Clinic, Fitness & Therapy Center Erica Strage Fruehling, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.
National Multiple Sclerosis Society, Minnesota Chapter
Eagan
St. Cloud
Minneapolis
Southwest Area YMCA Trenne Fields, 651-456-9622 T, 9-10 a.m.
Family YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.
Uptown YWCA Daina Person, 612-215-4205 F, Noon
Eden Prairie
St. Paul
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Humboldt Senior High School Pam Weiss, 651-632-6020 M/R, 5:30-6:20 p.m. S, 8:30-9:20 a.m.
Kingsley Commons Jeanine Farrell, 612-925-8478 F, 2:30
Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.
Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.
Inver Grove Heights The Grove Amy Crary, 651-554-3420 M/W, 10:10-11 a.m.
Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.
New Hope Northwest YMCA Laura Kueny, 763-592-5515 T/R, 11 a.m.-noon
Perham Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11: 45 a.m.
Staples Staples Community Center Kevin Grondahl, 218-894-2553 W/F, 11 a.m.-noon
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.
Waconia Safari Island Sara Johnson, 952-442-0695 M-F, 8:30 a.m.
YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.
New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10:00, Thursday 6:30-7:30
GROUP EXERCISE Tai Chi Chih for Balance Mankato Centenary United Methodist Church Rich Schreiner, 507-388-7652 June 9-August 25 6:00-7:00pm
Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 Fridays, 10:30-11:15
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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Featured group
Clubs and Groups
New Hope Newly Diagnosed
Join an MS club or group to
“The value of a group
connect with other people
for people recently
affected by MS, enjoy lively
diagnosed is that it
discussions, learn valuable
affords opportunity
information and ways to cope
to network with
with challenges, have fun and
and learn from one
be inspired. Read about groups
another as we come to terms with
and clubs that are moving
our diagnosis. Our guest speakers
forward together and find a
provide information that group
club or group in your community
members find valuable during
that’s right for you.
this sometimes-frightening stage following a diagnosis. Realizing that other people care about you is one of the hallmarks of our group.” — Paul O’Brien, group facilitator
BOOK CLUBS
Eden Prairie
Maplewood
Apple Valley
Last Monday of the month 10 a.m. Barnes & Noble
Fourth Tuesday of the month 6:30 p.m. Bakers Square
Maple Grove
Minneapolis
Fourth Tuesday of the month 10 a.m. Barnes & Noble
Third Tuesday of the month 7 p.m. Kingsley Commons
First Friday of the month 10 a.m. Barnes & Noble
Duluth Fourth Tuesday of the month 11 a.m. Barnes & Noble 18
National Multiple Sclerosis Society, Minnesota Chapter
Rochester Fourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall
Roseville First Tuesday of the month 10 a.m. Barnes & Noble Har Mar
Staples First Tuesday of the month 5:30 p.m. The Spot Café
SELF-HELP GROUPS New group Cambridge Third Thursday of the month 7 p.m. Cambridge Medical Center
For care partners Bemidji Care Partners
St. Paul Care Partners at MSAC Second Tuesday of every other month 7 p.m. MS Achievement Center
For couples Stillwater Couples Second Saturday of the month Noon Courage Center
For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m. Metropolitan Center for Independent Living
For people of color Metro Area MS Group for People of Color Second Saturday of the month 10 a.m. Wayman AME Church in Minneapolis
For people mildly affected by MS Southwest Metro MS group for mildly affected Third Saturday of the month 10 a.m. United Methodist Church in Eden Prairie
For professionals Let’s Lunch: professionals living with MS Third Saturday of the month 11 a.m. Chatterbox Pub in St. Paul
Third Saturday of the month 10 a.m. North Country Regional Hospital
For men
For singles
Metro Area It’s Just Breakfast (with the guys)
Elk River Care Partners
Various Saturdays of the month 10 a.m. Different restaurant each month
St. Paul Maximize Being Single
First Wednesday of the month, 6:30 p.m., Senior Center
Perham Care Partners
Second Saturday of the month 10 a.m. Fairview MS Achievement Center
Last Tuesday of the month 1 p.m. Calvary Lutheran Church
For newly diagnosed
For women
New Hope Newly Diagnosed
St. Louis Park Care Partners
Third Saturday of the month 10 a.m. Parish Community of St. Joseph
Maplewood Peer Emotional Support Women’s Group
Third Tuesday of the month 6:30 p.m. St. Louis Park City Hall
Third Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran Church
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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General self-help groups
Benson
Aitkin
Fourth Tuesday of the month 7 p.m. Westwood Manor Apartments No meetings Dec.–Feb.
First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Access North
Albert Lea Second Monday of the month 7 p.m. Grace Lutheran Church
Alexandria Second Monday of the month 5 p.m. St. Mary’s Office Building
Apple Valley First Thursday of the month 9:30 a.m. Christ Church
Arrowhead region Second Friday of the month 1 p.m. Babbitt Municipal Building
Austin First Monday of the month 6:30 p.m. Grace Lutheran Church
Belview Third Thursday of the month 7:30 p.m. Parkview Home No meetings Nov. - Feb.
Bemidji Third Saturday of the month 10 a.m. North Country Regional Hospital 20
Bloomington
Coon Rapids North Suburban Second Wednesday of the month 7 p.m. Coon Rapids City Center
First Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July - Aug.
Detroit Lakes
Blue Earth
Duluth
Fourth Monday of the month 7:30 p.m. Senior Citizen’s Center
First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
Brainerd MS Breakfast at the Mill
Eden Prairie
Third Monday of the month 9:30 a.m. Sawmill Inn
Burnsville/Apple Valley First Tuesday of the month 7 p.m. Fairview Education Center in Burnsville
Canby Second Thursday every other month 4 p.m. Sanford Canby Medical Center
Chaska Third Tuesday of the month 12:30 p.m. Chaska Library
Second Monday of the month 6 p.m. Lincoln Park Assisted Living
Third Tuesday of the month 7 p.m. Wooddale Church
Elk River First Wednesday of the month 6:30 p.m. Guardian Angels
Fergus Falls Second Wednesday of the month 11:30 a.m. United Church of Christ
Forest Lake Area Second Thursday of the month 6:30 p.m. The Meadows for Assisted Living
Gaylord First Sunday of the month 7 p.m. Lakeview Home
National Multiple Sclerosis Society, Minnesota Chapter
Gibbon
Mankato
Perham
Third Saturday of the month 9:30 a.m. Gibbon Community Center
Second Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center
Last Tuesday of the month 1 p.m. Calvary Lutheran Church
Maple Grove
Third Monday of the month 3 p.m. Bethel Lutheran Church
Golden Valley Second Monday of the month 7 p.m. Golden Valley Lutheran Church
Grand Rapids Second Thursday of the month 12:30 p.m. Grand Rapids Public Library
Hibbing Last Thursday of the month 1 p.m. Open Door Church
Hutchinson Second Monday of the month 6:45 p.m. Christ the King Lutheran Church
Lake Elmo Third Wednesday of the month 11:30 a.m. Christ Lutheran Church
Litchfield Fourth Tuesday of the month 7 p.m. Meeker County Memorial Hospital
Luverne Third Thursday of the month 7:30 p.m. Rock County Family Services
Second Saturday of the month 10 a.m. St. Joseph the Worker Church
Maple Lake/Annandale Third Monday of the month Noon Maple Manor East in Maple Lake
Minneapolis Last Saturday of the month 10 a.m. Kingsley Commons
Mora
Pierz/Little Falls
Princeton Third Saturday of the month 10 a.m. Fairview Northland Regional Hospital
Rochester Second Wednesday of the month 7 p.m. Meadow Lake Senior Living
Roseville
Second Monday of the month 7p.m. Kenebec Hospital
Second Wednesday of the month 6:45 p.m. Roseville City Hall
New Ulm
St. Anthony/New Brighton
Third Tuesday of the month 7 p.m. Oak Hills Living Center
Fourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton
Oakdale First Saturday of the month 10:30 a.m. Oakdale Library
Paynesville Second Thursday of the month 6 p.m. Rose Community Center
Staples Second Wednesday of the month 3:30 p.m. Lakewood Care Center No meetings June–August
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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St. Cloud
Superior
Second Wednesday of the month 7 p.m. Easter Seals Office
Second Tuesday of the month 6 to 8 p.m. Superior Public Library
St. Cloud-Granite City
Third Monday of the month 7 p.m. Waseca Medical Center
First Tuesday of the month 4 p.m. Whitney Center
Waseca
St. Croix Falls
Wayzata-Suburban West Hennepin
Third Saturday of the month 2 p.m. Good Samaritan Nursing Home
First Thursday of the month 1 p.m. Wayzata Community Church
St. Paul Care to Share
West St. Paul/Inver Grove Heights
Second Wednesday of the month 7 p.m. Macalester Plymouth Church
Windom/Cottonwood County Third Tuesday of the month 7 p.m. ALC Lutheran Church
Woodbury A.M. Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church
Woodbury P.M. Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury
First Monday of the month 7:30 p.m. Good Shepard Lutheran Church
Stillwater
Willmar
Third Wednesday of the month 6 p.m. Courage Center
First Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home
Additional resources
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Book clubs
Self-help groups
For more information about book clubs, visit www.mssociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or jzank@mssociety.org.
For more information about self-help groups, visit www.mssociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@mssociety.org.
National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Joel, 612-335-7933
Emergency assistance Scott, 612-335-7967
Information and Referral Center MS Navigators can answer questions about living with MS and connect you to resources. Claire, Heather, Jaclyn and Sarah, 612-335-7900
Equipment programs Camps and getaways Getaways for care partners, couples, Equipment Loan families, men and women Equipment Exchange Timothy, 612-335-7930 Scott, 612-335-7967 MS Camp Inservices for companies and Exercise programs organizations Jeannie, 612-335-7939 Jeannie, 612-335-7939 Steve, 612-335-7974 Youth Camp Family, youth and care Nancy Dawn, 612-335-7936 Lending Library partner programs Claire, 612-335-7938 Champions Nancy Dawn, 612-335-7936 Heather, 612-335-7947 Rachel Ring, 612-335-7937 Giving to the MS Society Mentor Program Chore services Shannon, 612-335-7928 Cathy, 612-335-7964 Kari, 612-335-7968 Rachel Hughes, 612-335-7965 Clubs and groups Book clubs Jeannie, 612-335-7939 Self-help groups Jeff, 612-335-7951 Education programs Timothy, 612-335-7930
Professional education Megan, 612-335-7955
Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967
Volunteer opportunities Timothy (Programs), 612-335-7930 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971
Calling from Greater Minnesota? Call 1-800-582-5296. phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.mssociety.org
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A world of resources,
The Minnesota Chapter Lending Library is your source for the latest information about MS. Plus, it is free and easy to use. Browse our books, videos, DVDs and audio tapes online at MSsociety.org. We will mail your materials with prepaid return postage. You can also browse the library by visiting the chapter office weekdays from 8:30 a.m. to 5 p.m.
right at your fingertips.
Make a gift that costs you nothing during your lifetime. Life with MS is uncertain, which can make it difficult to contribute financially to the MS movement today. But there is an easy way to create a legacy of support that costs nothing in your lifetime.
Support the National MS Society with a gift through your will. It’s simple and your gift can be any amount. To learn more, contact Shannon at swolkerstorfer@mssociety.org or 612-335-7928.