Programs
Spring 2010
CONNECTION
Youth Camp
Share great times with other young people touched by MS.
Women’s Conference Join other women living with MS for inspiration, coping skills, socializing and fun.
Plus MS Summit Summer MS research symposium Relationship Matters and much, much more
JOIN THE MOVEMENT
MOVING IS WHO WE ARE “Just remember, we are here to help!” Taking care of your mental health is just as important as your physical health. But health insurance plans don’t always provide Sarah Danen, Director coverage for counseling services, which can be very expensive. That’s why the National of Client Services MS Society, Minnesota Chapter is offering a brand new program that provides financial assistance to help people with MS pay for counseling services. The Counseling Assistance Program provides limited financial assistance — up to $750 per person, per year — for fees and/or co-payments for counseling with a licensed professional. If you are interested in this program and aren’t already seeing a professional counselor, just call the Minnesota Chapter for a referral list of counselors and therapists in your area. In addition to this new program, the chapter offers an array of financial assistance grants to help people living with MS and their families move forward in spite of the disease, including the Aids for Daily Living Grant; Adaptive Equipment/Home and Vehicle Modification Grant; Chore Services Grant; Care Partner Relief Grant; and Emergency Assistance. People affected by MS also can take advantage of free telephone consultations with experts in employment How to apply discrimination and financial and estate To apply for the Counseling planning. Services Program or any other financial assistance grants or Just remember, we are telephone consultations, call here to help! 612-335-7900 or 800-582-5296. Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.
Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Kari Harju at the Minnesota Chapter.
Promising treatments for MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.
Programs by topic
Youth
Join the movement
Youth Camp
There’s no off-season for activism Challenge Walk MS: Twin Cities
5 15
Managing MS symptoms
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Programs by location Aitkin Multiple sclerosis: What it’s doing to me…
Connect Locally 23 Exercise 28-29 Face Time with Your Local Neurologist 24-26 MS Summit 6 Multiple sclerosis: What it’s doing to me… 16-19 Thinking it through 20
19
Annandale Youth Camp
13
Bemidji Multiple sclerosis: What it’s doing to me…
19
Brainerd
Recreation, socializing and connecting
Multiple sclerosis: What it’s doing to me… 16-17
Clubs and groups Connect Locally Day Trip 20s and 30s social outing
Duluth
30-34 23 11 22
Relationships MS Summit Relationship Matters
6 21
Connect Locally 23 Face Time with Your Local Neurologist 24-26 MS Summit 6 Summer MS research symposium 9
Technology 27 7
Twin Cities — Metro programs Challenge Walk MS: Twin Cities 15 Connect Locally 23 Day Trip 11 Face Time with Your Local Neurologist 24-26 Multiple sclerosis: What it’s doing to me… 16-17 20s and 30s social outing 22 Thinking it through 20 Women’s Conference 7 MS Summit
6
Worthington
Young adults Connect Locally 20s and 30s social outing
18
Wisconsin Dells
Women Women’s Conference
Fergus Falls Multiple sclerosis: What it’s doing to me…
Research
What’s online?
Face Time with Your Local Neurologist 24-26 Multiple sclerosis: What it’s doing to me… 16-17
23 22
Summer MS research symposium
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JOIN THE MOVEMENT
One week, lifelong friendships “To this day, MS Youth Camp is still the best part of my summer.” – Michaela Janssen This August will be my fifth year attending MS Youth Camp. I first attended camp my junior year in high school after Lexi Moser — who I did not know well at the time but is now one of my closest friends — asked Michaela Janssen me why I was wearing a Walk MS T-shirt. That day we learned both of our moms live with MS. She told me I had to go to MS Youth Camp, but I was hesitant because I had never been away from my family for five days, I did not know anyone very well and this MS stuff was new for me. But I went anyway and at the end of the week, I didn’t want to leave. I made new friends whom I still talk to — my only friends who completely understand how MS affects life. In fact, one of those people is my college roommate, Erin Weber. Because of our Youth
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Camp connection, we started the University of St. Thomas Students Against Multiple Sclerosis Club to spread MS awareness to our peers. Once I turned 18, I couldn’t be a camper anymore so I volunteered as a counselor. I relate to the kids because, just like them, I have a family member with MS. They ask me about what camp was like when I was younger and about my mom and how I deal with MS. I think I learn more from them than they learn from me, and it amazes me what these kids go through every day and how they handle providing care for their family members with MS. My life would be completely different if I did not go to camp and I don’t know what I would have done without that support system. To this day, MS Youth Camp is still the best part of my summer and just like that Learn more first year, I never want to leave. See Page 13 to learn more about Youth Camp.
National Multiple Sclerosis Society, Minnesota Chapter
There’s no off-season for activism. Join the movement.
The legislative session may be coming to an end, but it doesn’t mean your work is done. In fact, summer is the ideal time to build relationships with your legislators and get involved in your community.
MS Society events Are you participating in Walk MS, Bike MS or other events this summer? Do any MS Society events take place in your town? Reach out to participants to educate them about MS issues. Plus, encourage them to sign up for the chapter’s Action Alert list to learn simple ways to make changes for people living with MS.
Thank you, MS activists, for educating legislators and raising awareness! Nearly 140 activists sent e-mails, visited or called their legislators, more than 20 activists wore orange to the chapter’s prescription co-pay hearing during MS Awareness Week and 10 participated in MN-CCD’s Tuesday at the Capitol.
Out and about at community events Spring and summer are perfect for having picnics, attending community festivals and chatting with neighbors. Elected officials are often at these events, too! Introduce yourself and share your story. Remember, your “elevator speech” should be less than two minutes. Also remember that your legislators want to hear from their constituents and understand the issues that affect the communities they represent.
Step up and become a leader This summer the chapter will call upon activist leaders in Senate districts statewide. Do you want to be a liaison between your district and the MS Society? Do you enjoy staying on top of the issues that affect your community? Would you like to train and mobilize other activists in your area? If so, we want to hear from you!
GET INVOLVED Ready to continue your activism throughout the summer? To get involved, contact Jenna at 612-335-7981.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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MS Summit Learn, network and socialize with our neighbors to the east.
May 21-22 n Wisconsin Dells Join members of the Wisconsin Chapter for this exciting program for people living with multiple sclerosis and their families. The MS Summit offers a chance to participate in educational workshops and a fun way to socialize and network in a supportive environment. An expert panel will discuss Wisconsin state resources available to people with MS. The MS Summit also features a variety of break-out sessions on topics including: n Relationships n Fatigue
Keynote speakers
n Nutrition n Insurance n Clinical
trials
n Research
MS Summit Dr. Julie Bobholz
Dr. Colleen Hayes
Dr. Julie Bobholz, a well-known neuropsychologist, will discuss emotional wellness. Dr. Colleen Hayes, a nationally-recognized MS researcher, will share information about her research on vitamin D and MS.
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Kalahari Resort, Wisconsin Dells Registration is free. Rooms are available at reduced rates (through April 21): $99 Friday, $129 Saturday. Saturday breakfast is provided. To register, visit wisMS.org or call 800-242-3358 or 262-369-4400. Sponsored by
National Multiple Sclerosis Society, Minnesota Chapter
Women’s Conference Join other women living with MS for inspiration, coping skills, socializing and fun.
May 22 n Bloomington Take the day off from family, work and everyday life and join other women living with multiple sclerosis for the fourth annual Women’s Conference. Learn from guest speakers and other women about the art of balancing work and family and ways to cope positively with MS. At the conference, Dr. Yelena Usmanova, neurologist at the Minneapolis Clinic of Neurology, Edina office, will discuss common issues for women with MS and provide the latest update on MS research. Tom Ellis, director of the Center for Grief, Loss and Transition, will present ways to take care of you, let go and move forward with MS. Also, Amye Scharlau, a comedian with a unique connection to MS, will provide an opportunity to relax and laugh. Plus, enjoy a “fashion makeover” from Christopher & Banks. Learn tips to achieve your wardrobe’s fullest potential, keep a fresh look on a budget and gain confidence in accessorizing to look and feel your greatest.
“It was fun and informative; it was good to connect with other women.” “Excellent day — thank you! It was what I need in my life today.” — 2009 Women’s Conference participants
Conference participants will enjoy music and have time to socialize during lunch, and door prizes will be drawn at the end of the day.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Women’s Conference Space is limited. Registration form must be received by May 14. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending
Saturday, May 22
8:30 a.m. – 3:30 p.m.
9-9:30 a.m. Check-in and continental breakfast 9:30-9:40 a.m. Welcome 9:40-11 a.m. Women’s issues and MS, Dr. Usmanova 11-11:15 a.m. Break 11:15 a.m.-12:15 p.m. Fashion makeover, Christopher & Banks 12:15- 1:30 p.m. Lunch and social time 1:30-2:45 p.m. “Taking care of me,” Tom Ellis 2:45-3 p.m. Break 3-3:30 p.m. Let’s laugh, Amye Scharlau 3:30-3:35 p.m. Wrap up and door prizes
Location Sheraton Bloomington Hotel 7800 Normandale Blvd. Minneapolis, MN 55439 952-835-7800
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
Program fee
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
Questions
MNM0CEDW20100522BLO
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There is no fee for this program.
Register Online or by phone Visit MSsociety.org or call 612-335-7900.
For more information, visit MSsociety.org or contact Kari Harju at 612-335-7968 or kharju@MSsociety.org.
Summer MS research symposium Everything you need to know about the latest MS research and clinical trials.
June 5 n Worthington Learn everything you need to know about MS research at this second of four 2010 research symposiums. An expert will answer your questions about the latest cutting-edge MS research and therapies. Each symposium also includes a session outlining the process of clinical trials, how people with MS can participate in trials and what participants can expect from the experience. Plus, you’ll be able to visit exhibitor tables to learn more about MS drug therapy options.
Featured speakers Dr. Gareth Parry is medical director of the MS Center and the Clinical Neuroscience Research Unit, as well as a professor of neurology at the University of Minnesota. His clinical and research interests are in the area of neuromuscular diseases and MS. Parry is vice chair of the National MS Society, Minnesota Chapter’s Clinical Advisory Committee and a frequent contributor to chapter MS education programs. Dr. Adam Carpenter is a neurologist and faculty member at the University of Minnesota MS Center in the Twin Cities. Carpenter spends his time trying to understand MS from both a clinical and research perspective and recently conducted research surrounding biomarkers and magnetic waves as they relate to the disease.
Dr. Gareth Parry
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
Dr. Adam Carpenter
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Summer MS research symposium Space is limited. Registration form must be received by May 28. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________
Saturday, June 5
8:30-9:10 a.m. 9:10-9:15 a.m. 9:15-10:15 a.m. 10:15-10:30 a.m. 10:30-10:45 a.m. 10:45-11:45 a.m. 11:45 a.m.-noon
8:30 a.m. – noon Check-in and breakfast Welcome MS research highlights Question and answer session Break and exhibits Understanding clinical trials Question and answer session
Location Worthington Travelodge 2015 N. Humiston Ave. Worthington, MN 56187 507-372-2991
Program fee There is no fee for this program.
_____ # of people attending
Register
Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
Online or by phone Visit MSsociety.org or call 612-335-7900.
Name________________________ Address_____________________ City_________________________ State________ ZIP_____________
Questions
By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415 For more information, visit MSsociety.org or contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.
Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
Made possible with a restricted educational grant from MNM0CREW20100605WOR
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Day Trip Excursion down the Mississippi.
June 5 n Harriet Island, St. Paul Enjoy an early summer boat excursion and the timeless splendor of the mighty Mississippi River with others living with multiple sclerosis and their families and friends on this special day trip. This historically-narrated sightseeing excursion includes a box lunch and an opportunity to socialize with old friends and meet new ones. See and experience an array of interesting and historic sights along the way, including: n Pig
Eye’s Cave
n Minnesota
River mouth
n The
St. Paul High Bridge
n Pike
Island
n Fort
Snelling
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Day Trip Space is limited. Registration form must be received by May 21. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _______ # of people attending @ $23.25 per person $_______ enclosed Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7968 to make arrangements. Requests must be received by the registration deadline date.
MNM0VCR20100605STP MNDT10A,B,C,D.
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Saturday, June 5
11-11:30 a.m. 11:30 a.m. Noon-1:30 p.m. 2 p.m.
11:30 a.m. – 2 p.m. Check in at Harriet Island Boat Landing Board the boat Boat excursion with lunch Arrive at landing — depart for home
Location Harriet Island Boat Landing Wabasha St. and Plato Blvd. St. Paul, MN riverrides.com
Program fee Cost is $23.25 per person (includes lunch).
Register Online or by phone Visit MSsociety.org or call 612-335-7900. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415
Questions For more information, visit MSsociety.org or contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.
Youth Camp Share great times with other young people touched by MS.
Aug. 23-28 n Annandale Youth Camp is a great way for youth who have a parent with MS, or who live in a household with someone with MS, to have fun, share exciting adventures and build friendships. This year, Youth Camp is held at the beautiful new lakeside setting at Camp Friendship near Annandale, Minn., located 60 miles northwest of the Twin Cities. Campers enjoy a variety of activities, including: n Indoor
and outdoor swimming
n Pontooning n Adventure
and canoeing
hikes
n Campfires n Creative n High
activities
ropes course
n Indoor
climbing wall and game room
n MS
education
n and
much more
Participants must have completed third grade to attend Youth Camp and the program is open to youth up to age 18. Teens age 18 have the option to attend as a camper or apply to be a counselor in training. Bus transportation to camp will not be provided.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Youth Camp Space is limited. Applications must be requested by May 15. Application must be returned by June 1.
To apply The full application is available at MSsociety.org. To request an application by phone, please call 612-335-7900 or e-mail Steve Korngable at skorngable@MSsociety.org. Note: Completing an application form does not guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. In some cases, individual needs may be greater than we can accommodate at Youth Camp. Upon acceptance, you receive detailed information and a billing invoice.
Aug. 23-28
Annandale
Location Camp Friendship (friendshipventures.org) 10509 108th St. N.W. , Annandale, MN 55302 Camp Friendship is located on Clearwater Lake, near Annandale. The camp’s 115 acres offer a scenic, comfortable setting for indoor and outdoor youth activities and its 15,000 square foot program center features a gymnasium, indoor swimming pool, weight and exercise room, game room and canteen area. Campers stay in modern cabins and cottages and eat healthy meals in a cafeteria. Cabins and cottages offer bathrooms, showers, and semi-private sleeping areas.
Supervision Adult volunteer counselors and highly-trained Camp Friendship staff lead programs and supervise campers at all times.
Getting to camp Campers must find their own transportation to Camp Friendship.
Program fee $150 per child. Do not send a check at this time. Upon acceptance, you will receive a billing invoice. Fee adjustments are available upon request.
Questions For more information, contact Steve Korngable 612-335-7974 or skorngable@MSsociety.org.
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Challenge Walk MS: Twin Cities Crew for a cure.
“The event is small enough to be personal and intimate, yet big enough to be exciting and feel like you are a part of something great.” Jenny Grise with son, Brayden, and husband, Travis, at the Challenge Walk MS finish line in 2009.
Jenny Grise met her husband, Travis — the love of her life — one year after he was diagnosed with multiple sclerosis. Through the years, the couple has not only faced the challenges of the disease together, they’ve also fought back together. In 2002, Jenny and Travis began participating in Challenge Walk MS: Twin Cities, a three-day, 50-mile walk to raise funds to help end MS. According to Jenny, when Travis’ MS began progressing, they had a difficult time facing their friends and family. “Challenge Walk gave us an opportunity to say, ‘Yeah, this is a bummer, but we are raising money, and you can help,” Jenny said. But after the couple’s son, Brayden, was born, Jenny no longer had time to train for the 50-mile walk. Instead, she began volunteering as part of the Challenge Walk MS Crew — a group of volunteers that helps ensure the event runs smoothly from start to finish.
“Our job is to set up, provide snacks and water, tear down and clean up, but it’s the extra things that make it fun,” she said. “We meet about a week before the walk to discuss the theme of the weekend. From there, we plan decorations, costumes, music, games and more to make our rest stop fun for the walkers.” For Jenny and Travis, Challenge Walk MS has become a meaningful yearly tradition. Volunteer with Crew Challenge Walk MS 2010 will be held Sept. 24 to 26. To learn about joining Crew or becoming a walker, visit MSsociety.org. Or call Will Ziegenhagen at 612-335-7992 or wziegenhagen@MSsociety.org.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Multiple sclerosis: What it’s doing to me... Understand n MS
and its symptoms
n The
role of the central nervous system in MS
n Current
Made possible with financial support from
therapies that treat MS
Featuring pro golfer Brett Massingham
Brett Massingham
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Brett Massingham was born and raised in Southern California where he still lives with his wife, Melissa, and son, Hogan. He attended San Diego State University and played on the golf team. After college in 1990, Massingham became a professional golfer — a lifestyle that kept him travelling. Soon after, he was diagnosed with MS and has lived with the disease for 15 years. Massingham is the only person living with MS to play on the PGA tour and is still a PGA professional who plays in select tournaments. He is also a patient advocate for Bayer HealthCare Pharmaceuticals with a passion to speak to others about MS, giving them hope that their dreams are not out of reach.
National Multiple Sclerosis Society, Minnesota Chapter
Details about this program are provided for your information. This program is not produced by the National MS Society.
April 28 n Bloomington Marriott Minneapolis Airport 2020 American Blvd. E. Bloomington, MN 55425 952-854-7441 n Registration:
6-6:30 p.m.
n Dinner
and program: 6:30-8:30 p.m.
Dr. Jonathan Calkwood Dr. Jonathan Calkwood is director of the Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology. He serves on the Minnesota Chapter’s Clinical Advisory Committee and is certified with the American Board of Psychiatry and Neurology. Calkwood specializes in MS treatment and is fellowship-trained in neuro-ophthalmology.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter the meeting code: BDP10380.
May 4 n Brainerd The Lodge at Brainerd Lakes 6967 Lake Forest Road Baxter, MN 56401 218-822-5634 n Registration:
6-6:30 p.m.
n Dinner
and program: 6:30-8:30 p.m.
Linda Marden, M.D., F.A.A.N. Dr. Linda Marden is a board certified Neurologist at the Cuyuna Regional Medical Center in Crosby, Minn. She is a Fellow of the American Academy of Neurology and is currently an officer for the AAN General Neurology Section.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter the meeting code: BDP10426
June 15 n Duluth Northland Country Club 3901 East Superior St. Duluth, MN 55804 218-525-1941 n Registration: n Dinner
6-6:30 p.m.
and program: 6:30-8:30 p.m.
Dr. Gary Beaver Dr. Gary Beaver specializes in MS and is section chair of the department of neurology and director of the Duluth Comprehensive MS Center at St. Mary’s Duluth Clinic. He is also chair of the National MS Society, Minnesota Chapter’s Clinical Advisory Committee and a frequent contributor to chapter MS education programs.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter the meeting code: BDP10450.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Multiple sclerosis: What it’s doing to me... Understand n MS
and its symptoms
n The
role of the central nervous system in MS
n Current
Made possible with financial support from
therapies that treat MS
Featured speakers Jamie Brown, PA-C. n May 6
Jamie Brown, PA-C
Jamie Brown has been a physician assistant at the MeritCare Multiple Sclerosis Center in Fargo, N.D., for two years. In addition to caring for people with multiple sclerosis, she sees patients with a variety of neurological conditions. She received her master’s degree in physician assistant studies at the University of Wisconsin La Crosse-Gundersen Lutheran-Mayo P.A. program in LaCrosse, Wis. Brown is originally from Moorhead, Minn., and returned to the area after completing her training.
Dr. Linda Marden n May 13 and June 24 Dr. Linda Marden is a board certified neurologist at the Cuyuna Regional Medical Center in Crosby, Minn. She is a Fellow of the American Academy of Neurology and is currently an officer for the AAN General Neurology Section. Marden has a special interest in migraines, but enjoys treating all types of neurological problems. Dr. Linda Marden
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National Multiple Sclerosis Society, Minnesota Chapter
Details about this program are provided for your information. This program is not produced by the National MS Society.
May 6 n Fergus Falls Mabel Murphy’s Eating and Drinking Establishment 3401 Hwy. 210 W., Fergus Falls, MN 56537 218-739-4406 n
Registration: 6-6:30 p.m.
n
Dinner and program: 6:30-8:30 p.m.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter the meeting code BDP10416.
May 13 n Bemidji Hampton Inn & Suites Bemidji 1019 Paul Bunyan Drive S.E., Bemidji, MN 56601 218-751-3600 n
Registration: 6-6:30 p.m.
n
Dinner and program: 6:30-8:30 p.m.
To register, call Betaplus at 800-788-1467. Select option 4 and then enter the meeting code number: BDP10424.
June 24 n Aitkin 40 Club Restaurant & Bar 950 2nd St. N.W., Aitkin, MN 56431 218-927-7090 n
Registration: 6-6:30 p.m.
n
Dinner and program: 6:30-8:30 p.m.
To register: Call Betaplus at 800-788-1467; select option 4 and then enter the meeting code number: BDP10423
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Thinking it through:
Details about this program are provided for your information. This program is not produced by the National MS Society.
The impact of MS on your cognitive function.
May 11 n Shoreview
®
Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.
Details Registration: 5:30–6 p.m. MS ActiveSource is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. © 2009 Biogen Idec. All rights reserved
Program: 6–8 p.m. Hilton Garden Inn-Shoreview 1050 Gramsie Road Shoreview, MN 55126
Featured speaker Join us!
Praful Kelkar, M.D., Noran Neurological Clinic, Fridley, MN
To register for this free program, call 866-955-9999. Or register online at MSActivesource.com and click on the Events button.
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National Multiple Sclerosis Society, Minnesota Chapter
Relationship Matters A program for couples living with MS.
Couples engage in creative and interactive course curricula. Classes offered include: n 8
Hours to a Lifetime of Relationship Satisfaction offered through in-person workshops and revolving six-week teleconference series.
n Jumpstart
Kim, diagnosed in 1986 Having a successful relationship is hard work even in the best of times. MS can make it even more challenging. The National MS Society offers a program specifically designed to help couples negotiate and manage the uncertainty of MS — Relationship Matters: A Program for Couples Living with MS. The Relationship Matters program helps you and your partner minimize the impact of MS on your lives by: communication and problem solving skills
Your Relationship: Reclaim Your Wellbeing offered in collaboration with Can Do Multiple Sclerosis (formerly The Heuga Center for Multiple Sclerosis) through a series of six weekly teleconferences.
n Online
classes: n Intimacy: Enriching Your Relationship n Career Decisions: Relationship Matters n Adapting: Financial Planning for a Life with MS…Together. Through participation, you will acquire skills and access resources to better manage the effects of MS on your relationship. Choose the format that best suits your lifestyle and approach to learning, whether it’s in person, online or by phone. Registration is ongoing. For more information call 800-344-4867 or e-mail couplesprogram@nmss.org.
n Improving
When you know how to take charge as a couple, MS doesn’t have to rule your relationship.
n Learning
Funding for this project was provided by the United States Department of Health and Human Services, Administration for Children and Families, Grant: 90FE0090.
how to manage MS as
a team n Developing n Helping
skills for life
your partnership thrive!
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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20s and 30s social outing Connect with other young adults living with MS.
June 5 n Plymouth Meet, eat and connect with other young adults at this special social outing created just for people with multiple sclerosis in their 20s and 30s. n 11:30
a.m. Welcome and introductions
n Noon–4:30
p.m. Picnic, games and
activities Clifton E. French Regional Park Skyview Picnic Pavilion 12605 Rockford Road, Plymouth, MN
Join us! To register, contact Jill Parkinson at 612-335-7938 or jparkinson@MSsociety.org.
Located at the Clifton E. French Regional Park, this program offers a chance to enjoy a variety of outdoor activities and games while connecting with others who understand the challenges of an MS diagnosis. There is no cost to attend this program and food and beverages will be provided. Spouses, significant others and children are welcome.
Sponsored by
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National Multiple Sclerosis Society, Minnesota Chapter
Connect Locally Connect with people in your community and learn ways to cope with MS. Harnessed Walking and Exercise with MS New Brighton n April 27, 6 p.m. Christ the King Lutheran Church, 1900 N.W. Seventh St., New Brighton, MN 55112
St. Cloud n May 12, 7 p.m. CentraCare Health Plaza, Windfeldt Room, 1900 CentraCare Circle Drive, St. Cloud, MN 56303 Harnessed walking is a treatment that may help people with MS improve their balance, walking and endurance. Join physical therapist Megan Frost, the chapter’s 2008 Health Care Professional of the Year and one of the Twin Cities Business Journal’s 2010 Health Care Heroes.
To R.S.V.P. for the New Brighton program, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org. For the St. Cloud program, contact Paulette Como at 320-253-6779 or pmc_56303@yahoo.com.
MS research update and progressive MS St. Paul n May 12, 7 p.m. Macalester Plymouth United Church, 1658 Lincoln Ave., St. Paul, MN 55105 Learn the latest MS research and treatments, including research related to primary-progressive MS, from Dr. Gareth Parry. Parry is medical director of the MS Center at the University of Minnesota-Twin Cities and was awarded the
chapter’s 2009 Health Care Professional of the Year Starfish Award. R.S.V.P. to Beth Jensen at 612-825-7990 or bajensen@usiwireless.com or Mary Lynn McGinley at 651-644-1429.
Meet and greet — MS diagnosis 2005 to 2010 Burnsville n May 26, 6:30 p.m. Mediterranean Cruise Café, 12500 Nicollet Ave., Burnsville, MN 55337 Were you diagnosed with MS within the last five years? Join the Burnsville MS group for a casual get-together. Enjoy conversation and Mediterranean cuisine and connect with others who understand
the challenges of an MS diagnosis. R.S.V.P. to Carol Jagers at 612-310-0070 or carolandhans@usiwireless.com or John Westerfield at 612-824-5270 or johnjeff@westerfield.com.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Face Time with Your Local Neurologist Get answers straight from the source. Local neurologists host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: April 21 Is your home safe? Modifications for people with MS May 12 Disability — what is it? Guidelines for getting disability from your employer and Social Security Dr. Gary Birnbaum June 9 Emerging therapies for MS — Good, bad and ugly July 14 Research update from American Academy of Neurology and European Neurology Society Call 763-302-8282, ext. 4823 for more information.
St. Mary’s Duluth Clinic MS Center Every other Wednesday at 6 p.m. Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981
Dr. Gary Beaver
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Topics: April 28 Discussion on treatment options May 12 Treatment options for exacerbation and relapses May 26 Injection site management and skin care June 16 An update from Consortium of MS Centers June 30 MS: what it’s doing to you and what you can do about it July 14 Pain and MS July 28 Alternative and complementary therapies Call 218-786-8270 for more information. National Multiple Sclerosis Society, Minnesota Chapter
Face Time with Your Local Neurologist
The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750 Topics:
Dr. Jonathan Calkwood
April 21
Improving gait and balance
April 28
Diagnosing MS (join us at 12:30 p.m. for lunch sponsored by Bayer Healthcare prior to the program)
May 5
How to be politically active and tell an impactful story
May 12
Elder Law — planning for your future
May 19
Acupuncture
May 26
Emerging therapies
June 2
No program — holiday week
June 9
Dealing with summer heat
June 16
Visual rehabilitation
June 23
Group medical appointment — by invitation only
June 30
Understanding clinical research trials (join us at 12:30 p.m. for lunch sponsored by Questcor prior to the program)
No program — holiday week
July 7
July 14
Managing injectable therapies and associated side effects
July 21
What is CIS?
July 28
Group medical appointment — by invitation only
For more information, contact the Schapiro Center for MS at 763-302-4199.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Face Time with Your Local Neurologist
University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N., Minneapolis, MN 55412, and Fairview Maple Grove Clinic, 14500 99th Ave. #500, Maple Grove, MN 55369
Dr. Gareth Parry
Topics:
May 10
MS and traveling (Kingsley Commons)
June 14
MS medications (Fairview Maple Grove)
July 12
MS research (Kingsley Commons)
For more information, contact the University of Minnesota MS Center at 612-626-2675.
Noran Neurological Clinic Every other month from 1 to 3 p.m. Locations vary. Minneapolis office, 2828 Chicago Ave. S., Suite 330, Minneapolis, MN 55407 Topics:
June 1
Treating relapsing-remitting multiple sclerosis
Call 612-879-1500 to register.
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National Multiple Sclerosis Society, Minnesota Chapter
What’s online? Watch, read or listen online to learn about living well with MS.
Webcasts and podcasts on topics from A to Z MS Learn Online offers an extensive menu of topics about multiple sclerosis — available 24/7 and in the format of your choice. Whether it’s a PDF printout to relax in a chair with, an audio file on your MP3 player, or an online webcast, all you need is a computer and a reliable Internet connection. Visit archived presentations or explore new ones. Feature Presentations go live the first and third Thursday of each month. Current topics include the newly-approved treatment Ampyra, disease modifying therapies, a series on symptom management, physical fitness at home, complimentary and alternative medicines and much more. Click on the Daily Minute for a one-minute factoid about MS. At Q&A, distinguished neurologist Dr. Mary Hughes answers a viewer’s question each week. E-mail your own question to mslearnonline@nmss.org.
Check out MS Learn Online Watch, read, or listen at nationalMSsociety.org/MSLearnOnline.
Tips for staying well just a click away People with MS can access online brochures about many topics to help you stay well. Visit nationalMSsociety.org/StayingWell to read about acupuncture, dental health, nutrition, exercise, intimacy and sexuality, emotional health, stress management and more.
Learn about staying well To access the staying well brochures, visit nationalMSsociety.org/StayingWell and choose from a variety of topics.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group
Marshall water exercise The Marshall Area YMCA invites you to join the MS water exercise class, which meets Mondays from 4:30 to 6 p.m. To register, contact Cindy Rosa at 507-532-9622.
What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.
WATER EXERCISE Albert Lea
Burnsville
Detroit Lakes
Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.
Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.
Alexandria
Coon Rapids
Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.
Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W, 4:30-5:30 p.m. T/R, 9-10 a.m.
Emma B. Howe Northtown YMCA Trin Peterson, 763-717-1837 T/R, 11 a.m.-noon
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Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.
National Multiple Sclerosis Society, Minnesota Chapter
Eden Prairie
St. Cloud
Minneapolis
Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.
Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.
Kingsley Commons Jeannie Zank, 612-335-7939 F, 10:30 a.m.
Golden Valley
St. Paul
Uptown YWCA
Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.
Jewish Community Center Robin Feickert, 651-255-4762 T/R, 9:45-10:25
Lisa First, 612-822-3504 F, Noon
Grand Rapids
Stillwater
Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.
Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.
Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.
Inver Grove Heights
Virginia
The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options
Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.
Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.
Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.
New Hope
Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.
Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 T/R 11:15-noon.
Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.
GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday
YOGA Bemidji
Northwest YMCA Marvin Peterson, 763-535-4800 T/R, 11 a.m.-noon
Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S 9:30-10:30 a.m.
Perham
Eden Prairie
Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.
New Hope
Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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Featured group
Excelsior MS (many surprises) Group
Clubs and Groups Join an MS club or group to connect with other people
“Our group is built upon education, sharing, friendships and support. While we deal with the many different stages and surprises that MS brings to our lives, we gain personal management and achievement as we experience new challenges along the way. Speakers such as neurologists, meteorologists, nutritionists and
affected by MS, enjoy lively
more visit our group monthly.”
or jfisher@MSsociety.org
discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951, 800-582-5296
— Denise Watts, group leader
BOOK CLUBS
Maple Grove
Minneapolis
Apple Valley
Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562
Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654
Mahtomedi
Rochester
Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna, 651-762-4084
Fourth Tuesday of the month 7 p.m., Barnes & Noble Apache Mall Larry, 507-281-2447
First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249
Duluth Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075
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National Multiple Sclerosis Society, Minnesota Chapter
Roseville
For care partners
For men
First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Kathy, 651-698-4732
Bemidji Care Partners
Men’s Group
Third Saturday of the month 10 a.m., North Country Regional Hospital
First and third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater
Fitness clubs Duluth
Men’s Care Partner Breakfast
Third Saturday of the month 3 p.m., Lutheran Church of Christ the King
Third Saturday of the month 10 a.m., Pippin’s Restaurant in Roseville
Minneapolis
Perham Care Partners
Third Saturday of the month 10 a.m., Chapter office
Last Tuesday of the month 1 p.m., Calvary Lutheran Church
Rochester Fourth Saturday of the month 10 a.m., Rochester Athletic Club
St. Louis Park Care Partners
GROUPS
Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall
New groups
Women Care Partners
Faribault for 20s and 30s
Third Saturday of the month Dorothy Ann Bakery & Café, Woodbury
Third Saturday of the month 9:30 a.m., Buckham Memorial Library
KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis
For artists, crafters and writers with MS MS Art & Crafts Interest Group Third Saturday of the month 11 a.m., D’Amico & Sons Café in Roseville
For couples Stillwater Couples Second Saturday of the month Noon, Courage St. Croix in Stillwater
For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living in St. Paul
Metro Area It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m., Different restaurant each month Contact Rick for location at 612-791-6473 or rleaf@msnet.org
For moms with young children Moms with young children First Monday of the month 6:30 p.m., Patrick’s Bakery and Cafe
For people of color Metro MS group for people of color Second Saturday of the month 10:30 a.m., Sumner Library in Minneapolis
For people mildly affected by MS Southwest Metro MS group for mildly affected Third Saturday of the month 10 a.m., United Methodist Church in Eden Prairie
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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For professionals
Alexandria
Burnsville/Apple Valley
Let’s Lunch: professionals living with MS
Second Monday of the month 5 p.m. (No evening meetings Dec.–March) St. Mary’s Office Building Fourth Monday coffee social 10:30 a.m., Daily Grind House of Java
First Tuesday of the month 6:30 p.m., Fairview Education Center in Burnsville (Group also meets for lunch social at Perkins in Apple Valley at noon every third Thursday of the month) R.S.V.P. to Mike at 952-898-2857
Third Saturday of the month 11 a.m., Chatterbox Pub in St. Paul
For people recently to 5 years diagnosed South Metro Recently to 5 Years Diagnosed Last Wednesday of the month 6:30 p.m., Jo Jo’s Rise & Wine
For women Maplewood Peer Emotional Support Women’s Group Second Thursday of the month 12:30 p.m., Gustavus Adolphus Lutheran Church
General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Hope Drop-In Center
Albert Lea Second Monday of the month 1:30 p.m. Dec.–Feb., 7 p.m. March–Nov. Grace Lutheran Church
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Arrowhead region Second Friday of the month 1 p.m., Four Corners Café No meetings in Nov.–March
Austin First Monday of the month 6:30 p.m., Grace Lutheran Church
Belview Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov.–Feb.
Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital
Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings in July
Buffalo Third Monday of the month Noon, United Methodist Church
Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center
Canby Second Thursday every other Month, April-Dec. 4 p.m., Sanford Canby Medical Center
Chaska Third Tuesday of the month 12:30 p.m., Chaska Library
Coon Rapids North Suburban Second Wednesday of the month 7 p.m., Coon Rapids City Center
Detroit Lakes Second Monday of the month 6 p.m., Lincoln Park Assisted Living
Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church
National Multiple Sclerosis Society, Minnesota Chapter
Eden Prairie
Hutchinson
New Richmond
Third Tuesday of the month 7 p.m., Wooddale Church
Second Monday of the month 6:45 p.m., Christ the King Lutheran Church
Second Thursday of the month 6 p.m., First Lutheran Church
Inver Grove Heights/ West St. Paul
Third Tuesday of the month 7 p.m., Oak Hills Living Center
Excelsior/Minnetonka Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group building in Excelsior
Fergus Falls
First Monday of the month 5:30 p.m., Khoury’s Restaurant No meetings Dec.–Feb.
Second Wednesday of the month 11:30 a.m., United Church of Christ
Lake Elmo
Forest Lake Area
Litchfield
Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living (Group also meets socially at 6:30 p.m. the fourth Thursday of the month) Contact Susan at 651-464-1043
Fourth Tuesday of the month 3 p.m., Meeker County Memorial Hospital
Gaylord First Sunday of the month 7 p.m., Forever Young Senior Center
Grand Rapids Second Thursday of the month 12:30 p.m., various local restaurants Contact Sally at 218-326-1371
Hibbing Last Thursday of the month 1 p.m., Open Door Church
Second Wednesday of the month Noon, Christ Lutheran Church
Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services
Mankato Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center
Maple Grove Second Saturday of the month 10 a.m., St. Joseph the Worker Church
Minneapolis Last Saturday of the month 10 a.m., Kingsley Commons
New Prague
New Ulm
Oakdale First Saturday of the month 10:30 a.m., Oakdale Library
Park Rapids Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services
Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church
Little Falls/Pierz First Wednesday of the month 1 p.m., Bethel Lutheran Church in Little Falls
Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital
Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living
Roseville Second Wednesday of the month 6:45 p.m., The old Fire Station
Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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St. Anthony/New Brighton
Stillwater
Willmar
Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church in New Brighton
Third Wednesday of the month 6 p.m., Courage Center
First Tuesday of the month 7 p.m., Bethesda Pleasant View Nursing Home
Staples
Second Tuesday of the month 6 p.m., Superior Public Library
Windom/Cottonwood County
Thief River Falls
Third Tuesday of the month 7 p.m., ALC Lutheran Church
Second Thursday of the month 4 p.m., Lakewood Care Center
St. Cloud Second Wednesday of the month 7 p.m., St. Cloud Public Library
St. Paul Care to Share Second Wednesday of the month 7 p.m., Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location
Superior
Third Saturday of the month 4 p.m., Riverside Terrace
Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center
Wayzata-Suburban West Hennepin First Thursday of the month 1 p.m., Original Pancake House, Wayzata
Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church
Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury
Additional resources Clubs and groups For more information about book clubs and groups, visit www.MSsociety.org. Click on programs and services, and then Clubs and Groups. If you would like more information or are interested in starting a book club or group in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.
Do you know a company that could support the MS Society? The Minnesota Chapter recently received a generous grant from the UCare Fund to support chapter programs promoting healthy living — like the exercise programs listed on pages 24 and 25. Do you know of a company that could sponsor the Minnesota Chapter’s clubs and groups? If so, let us know! Contact Teri Cannon at 612-335-7925 or tcannon@MSsociety.org.
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National Multiple Sclerosis Society, Minnesota Chapter
Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968 Camps Majestic Shores Resort Jeannie, 612-335-7939 Youth Camp Steve, 612-335-7974 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Book clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Education programs Steve, 612-335-7974
Calling from Greater Minnesota? Call 800-582-5296
Emergency assistance Heather, Jill or Sarah, 612-335-7900 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Family programs Steve, 612-335-7974 Giving to the MS Society Shannon, 612-335-7928 Rachel, 612-335-7965 Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967
Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Megan (Programs), 612-335-7955 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971 Youth and teen programs Steve, 612-335-7974
phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org
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A little common ground makes all the difference. An MS diagnosis in your 20s and 30s can be overwhelming, and even scary, especially with careers, relationships, families and other life changes in full swing. But sometimes, talking with others who understand firsthand can make a world of difference.
Connect with other 20s and 30s. The Minnesota Chapter offers unique opportunities for people affected by MS in their 20s and 30s, like the social outing on Page 22, and much more. To learn more, visit MSsociety.org or contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.
Make your mark on t he future
You can make your mark on the future of the MS movement through a bequest to the National MS Society, Minnesota Chapter. It’s a simple, flexible way to make a meaningful gift — ensuring research continues moving forward and families touched by MS receive the support they need.
JOIN THE MOVEMENT Make your mark through a bequest to the society today. To learn more, contact Rachel Hughes at 612-335-7965 or rhughes@MSsociety.org.