winter 2015
Southern California & Nevada Chapter
MS Connection Newsletter
step by step walk ms 2015 free from falls
INSIDE 03 THIS ISSUE
research
page 6 page 13
06
13
21
special events
programs connection
self-help groups
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MS connection: winter 2015
letter from the president
cheers to the new year
The Society’s promise around research is clear: stop disease progression, restore what’s been lost, and end ms forever. addressing the challenges of everyone affected by ms requires a similar focus and promise.
Connect with us online: www.nationalMSsociety.org/CAL Like us: facebook.com/MSsoutherncal Follow us: twitter.com/MSsoutherncal Watch us: youtube.com/MSSoCalChapter
I am so proud of the accomplishments our MS community has made over the past year. Our fundraising successes, research breakthroughs, accomplishments in advocacy, and, most importantly, efforts to connect people and their families to the resources they need all contribute to the truly remarkable work we did in 2014. None of this would be possible without the incredible support of our fundraisers, donors, volunteers, families, friends, and staff who support our efforts to spread awareness, be a strong voice, and inspire one another. I also thank YOU, a person living with this disease, for demonstrating strength, sharing your story, and encouraging us to fight for a cure. The National MS Society is more than an organization dedicated to addressing the challenges of MS; we are a family comprised of hard-working individuals who want to do something about MS now. We have a lot to look forward to this year, including: • Opportunities to learn in person and online about topics such as research, employment, symptom management, and more; • MS Awareness Week (March 2 - 8), our annual week to celebrate our progress and tell the world about multiple sclerosis; • Inspiring community events such as Walk MS, the Beat MS Dance Walk, Bike MS, and more; I hope you’ll join me in looking forward to another great year of progress for the MS community. n
nationalmssociety.org/cal | 1-800-344-4867
annual meeting fueling impact in ms research
The Southern California & Nevada Chapter will host its Annual Meeting on January 31, 2015 in Alhambra, CA. A panel of MS researchers, including Barbara Giesser, MD, Seema TiwariWoodruff, MD, and Emmanuelle Waubant, MD will present and answer your questions on exciting MS research, including cognition and MS, gut bacteria, and exercise. RSVP today! Call 800-344-4867 or visit nationalMSsociety.org/AnnualMeetingLA to register. n
3 new ms therapies Three new therapies for relapsing forms of MS were approved by the FDA in 2014, including Plegridy™ (peginterferon beta-1a), a less frequent, new dose of Copaxone® (glatiramer acetate), and Lemtrada™ (alemtuzumab). There are now 13 treatment options available for people with relapsing forms of MS, and even more in the research pipeline. “It is encouraging to have additional treatment options that may help people with MS manage their disease as we move towards our ultimate goal of ending MS forever,” said Timothy Coetzee, PhD, Chief Advocacy, Services, and Research Officer at the National MS Society. n
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Southern california & nevada chapter annual Meeting
National Multiple Sclerosis Society Southern California & Nevada Chapter 5150 W. Goldleaf Circle., Ste. 400 Los Angeles, CA 90056 1-800-344-4867 Chair: Kim Phillips Chapter President: Susan Bradley Editor: Emily Hazlett © 2015 National MS Society, Southern California & Nevada Chapter; Published Quarterly—Winter 2015
Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.
4 RESEARCH
The role of microglia A type of immune cell called microglia, which is widely believed to exacerbate chronic adult brain diseases such as multiple sclerosis, might actually slow the progression of neurodegenerative diseases, according to new research. The research was led by Dr. Bruce Trapp, chair of the Department of Neurosciences at Cleveland Clinic’s Lerner Research Institute, and was published in Nature Communications in July 2014. “Our findings suggest the immune system protects the brain after injury or during chronic disease, and this role should be further studied,” Dr. Trapp says. “We could potentially harness the protective role of microglia to improve prognosis for patients with traumatic brain injury and delay the progression of Alzheimer’s disease, MS and stroke. The methods we developed will help us further understand mechanisms of neuroprotection.”
How microglia work Microglia are primary responders to the brain after injury or during illness. Dr. Trapp’s team used an advanced technique called 3D electron microscopy to visualize this activation of microglia and subsequent events in animal models. They found that, when chemically activated, microglia migrate to inhibitory synapses, which are the connections between brain cells that
MS connection: winter 2015
slow the firing of impulses. Microglia then dislodge the synapse, thereby increasing neuronal firing and leading to a cascade of events that enhance survival of brain cells.
Dr. Bruce Trapp
Dr. Trapp’s past research has included investigating the causes of neurological disability in people with MS, the cellular mechanisms of brain repair in neurodegenerative diseases and the molecular biology of myelination in the central and peripheral nervous systems. In 2009, he received the National MS Society’s 2009 Stephen C. Reingold Award and, in 2013, he was inducted into the Society’s Volunteer Hall of Fame for Scientific Researchers. He also received the John Dystel Prize in 2003, awarded jointly by the Society and the American Association of Neurologists to recognize outstanding contributions to the field of MS research. n
Originally published in the Ohio Buckeye MS Connection newsletter.
stay connected to research news To follow the latest MS research, visit www.nationalMSsociety.org/research, or sign up for MS eNEWS at www.nationalMSsociety.org/signup.
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nationalmssociety.org/cal | 1-800-344-4867
open enrollment: what you need to know It’s winter, which means that, in addition to unpacking your sweaters and staying cozy, it’s also open enrollment time. This means evaluating your current health insurance plan for whether it still meets your medical needs and considering different coverage if it doesn’t. The three month Open Enrollment period for the Health Insurance Marketplace, the online health insurance shopping ‘portal’ through the Affordable Care Act (ACA), ends February 15, 2015.
health insurance marketplace The Health Insurance Marketplace is an online health insurance shopping ‘portal.’ It allows individuals and families to compare available health plan options, submit an application for health insurance and cost help, and enroll in their chosen health plan. Details about price, benefits, quality and other features are presented to help you select the plan that best meets your needs.
What you should know about open enrollment Open Enrollment is the only time of year that people who are not already insured can apply for coverage and tax credits unless they qualify for a special enrollment due to certain circumstances (i.e. a job change, out-of-state move, having a baby, etc.). It is also the only
time current enrollees in a Marketplace plan can compare their current coverage to other options and enroll in another plan better suited to their needs and budget. Current enrollees in Marketplace plans are strongly urged to contact the Marketplace to verify or update their income, household size and other information to assure they receive the maximum tax credit and cost help for them and their family. Before enrolling in a new plan, people with MS should check to see if their prescription drugs and health care providers are covered. A good source of help comparing plan details for people with chronic illnesses is www.PuttingPatientsFirst.net. Visit www.healthcare.gov to register or switch plans. If you have questions about MS and the Health Insurance Marketplace, call our MS Navigators at 800-344-4867 for assistance. n
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MS connection: winter 2015
walk ms
moments that matter
Getting married is an exciting time full of anticipation and hopefulness. For Anna Morrow, her wedding day represented another important milestone in her life. Her dress was ready, the guest list complete, and she was just days away from taking many memorable steps down the aisle toward her new future.
toward her future husband. She danced the night away, thankful for every step she was still able to take.
Two weeks before her wedding, Anna became paralyzed down her entire right side. “I couldn’t walk very well, see out of my right eye, or use my right arm,” Anna recalled. After many tests, doctors found lesions on her brain during an MRI, leading to an official diagnosis of multiple sclerosis. Luckily, Anna’s excellent team of health professionals were able to put her on immediate treatments to help her regain enough strength to walk.
In April 2014, Anna and her husband, Chris, participated in Walk MS: Long Beach with a team of family and friends. Finding community and support through events like Walk MS is important to the Morrow family, especially now that they are expecting their first child in March. “I have tried to stay active within the MS community,” said Anna. “It’s good to see people who go through the same struggles that I do and know that we can support one another.”
A week later, surrounded by hundreds of family and friends, Anna strode down the aisle
Walk MS connects people with MS and those who care about them. Register today! n
register today! visit walkms.org or 800-344-4867 April 11, 2015 Conejo Valley, Conejo Creek Park North Desert Cities, Palm Desert Civic Center Park Las Vegas, Sunset Park San Luis Obispo, Sinsheimer Park
April 25, 2015 Antelope Valley, Lancaster Marketplace Fresno, Fig Garden Village
April 18, 2015 Inland Empire, Citizens Business Bank Arena
May 2, 2015 Big Bear, North Shore Elementary School Santa Barbara, Leaderbetter Beach Reno/Sparks, Idyllwild Park Terrace
April 19, 2015 Greater Los Angeles, Pasadena Rose Bowl
May 3, 2015 Long Beach, Shoreline Park
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NATIONALMSSOCIETY.ORG | 1-800-344-4867 | 1-800-344-4867 nationalmssociety.org/cal
challenge ms FUNDING THEwalk MISSION
CONNECT AT CHALLENGE WALK MS: A COMMUNITY OF SPIRIT & STRENGTH
Over 175 Walkers joined us this past September at Challenge Walk MS. This amazing group raised over $600,000 for MS while creating awareness over their 3-day, 50-mile journey. Congratulations to our teams raising over $25,000 this year! • Hurt SO Good! - $65,612.98 • Aye, Aye Captain - $45,672.05 • NorCal Streetwalkers w/ Good Carma - $38,372 • Team Momentum - $37,723.81 • Pardee Homes - $27,805.84 Check out our Elite Feet Top Fundraisers, each raising over $10,000 each! 1. Anne Allen $32,900 2. Brian Grey $13,295 3. Jeanne Woodard $10,385 Thank you to our 2014 sponsors:
BRAND DEVELOPMENT ADVERTISING
MEET ANNE ALLEN Anne (pictured with her team in the center in the orange hat) was our #1 Top Fundraiser, and she was also inducted into the 2014 National MS Society Volunteer Hall of Fame for her incredible contributions over the years. Diagnosed with MS in 2006, Anne Allen registered for her first three-day 50-mile Challenge Walk MS in 2008 at the suggestion of physical therapist and friend, Sylvia. “Sylvia saw an advertisement and said, ‘why don’t we do this?’ and I was like, ‘OK.’” It is this same laidback attitude with which Anne navigates her journey with primary-progressive MS. As a self-described realist, she admits, “I know my MS is very progressive, but that’s okay. This disease only defines you if you let it, and it’s important to me that I do what I can… to find a cure and new treatments.” Anne completed her seventh Challenge Walk MS in September, and her team, Hurt So Good! also participates in Walk MS and Bike MS. To date, she has raised nearly $700,000 including $75,000 for a local respite care program to help provide temporary relief to family caregivers.
Challenge Walk MS is a personal challenge of spirit and strength that brings people together who want to make a big difference in the lives of people living with MS. Join us in 2015 from September 25-27. Learn more, register to walk or volunteer, or donate at myMSchallenge.com or 800-486-6762.
8 bike ms
a new start
MS connection: winter 2015
thank you to our sponsors RECREATE PMS(FROM PDF)
The air buzzed with anticipation as thousands of cyclists crowded near the new start line at Bike MS: Santa Monica to Santa Barbara on October 11. Emcee Audrey Blank welcomed and thanked cyclists, volunteers, friends, family members, and donors for their incredible efforts to raise over $1.256 million, surpassing the 2014 goal. Riders embarked on a beautiful two-day journey from Santa Monica to Santa Barbara, covering 150 miles of sweeping ocean vistas, challenging hills, and terraced farmlands. “This event is unique. Different types of people take on this ride for many different reasons, which gives it a warmth not found on a regular ride,” commented a veteran participant. n Registration will open in early January for Bike MS: Santa Monica to Santa Barbara 2015 on October 10 & 11. Learn more at bikeMSsocal.org!
corporate cup winners Congratulations to Turner Impact, Anacapa Brewing Cyclists, Phillips 66 Black Gold, Criminal Minds, Team Long Beach, and Union Bank who won in this prestigious award for raising the most money for people living with MS in each of their categories. All it takes is one person to start a corporate team and your company’s name can make the list in 2015!
bike ms by the numbers
over
$$
raised over
1,500 participants
$1.256 million
to support 20,000 people with MS in so. california & nevada
thank you.
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nationalmssociety.org/cal | 1-800-344-4867
muckfest ms
LA Gets mucky The inaugural MuckFest MS Los Angeles brought over 1,500 participants to play, romp, run, and jump in the mud on October 25. The event, which raised over $150,000, challenged muckers to a 5K trail with 19 obstacles, including muddy pits, trenches, and craters. MuckFest MS is the fun mud and obstacle 5K for everyone. If you can laugh, you can do it; no special training required. There’s no better way to experience this event than by forming or joining a team. Registration is now open for the 2015 MuckFest MS Los Angeles on October 24. Grab your friends and start a team today - learn more at muckfestms.com! n
awareness
ms awareness week 2015 mark your calendars: march 2 - 8 MS Awareness Week is March 2 - 8 and people everywhere are creating connections stronger than the ones MS destroys. During this special week, take action to help others learn more about MS and what they can do to make a difference.
How can I get involved? Share why you connect! Create your own connection image on MSConnection.org to share with your network and include in our gallery.
Take action! Advocate for change and join the MS Activist Network. Visit nationalMSsociety.org/advocacy to sign up. Join an event! From Walk MS to Bike MS, Challenge Walk, MuckFest, and DIY fundraising, there’s an event for everyone. Every connection counts when it comes to increasing awareness and support of our cause. Stay up-to-date with all the MS Awareness Week activities in your community on our website, nationalMSsociety.org/CAL. n
10 advocate for change
major victories
With the help of hundreds of MS Activists, two important bills supported by the MS California Action Network were recently signed into law by Governor Brown: The first victory came from Senate Bill 1052, which requires the Departments of Managed Health Care and Insurance to jointly develop a standard formulary template to be used by the health plans and insurers to display their drug formularies. This will make it easier for consumers to compare across plans. Our second major legislative achievement is the passage of Senate Bill 964 (Hernandez), which requires the DMHC’s oversight of health plans in regards to compliance with timely access to care and provider network adequacy standards. This duel success would not have happened without the direct involvement of hundreds of MS Activists throughout California. From conducting face-to-face visits with legislators to testifying at committee hearings, staff and volunteers played a crucial role in these victories. If you have a background in political activism or would like to learn more about the Society’s priorities and efforts, please email Policy Director Stewart Ferry at stewart.ferry@nmss.org.
MS connection: winter 2015
giving
benevolent backers We are grateful to the foundation and corporate supporters who contributed $45,000 in grant awards between September 16 – December 1, 2014: • $12,500 from Friends of the National Multiple Sclerosis Society in general operating support for the Northern Nevada office • $10,000 from the San Manuel Band of Mission Indians to support the Connect to MS Care initiative in the San Bernardino and Riverside Counties • $7,500 from the Albert and Elaine Borchard Foundation to support the Chapter’s Educational Scholarship Program for Students Affected by MS • $5,000 from Change a Life Foundation to support direct financial assistance for an individual with MS • $5,000 from Chevron to support MS Service Day 2015 in Kern County • $4,000 from Kaiser Foundation Hospitals to support the Improving Access to MSRelated Health Care initiative in Kern County • $1,000 from the Carl E. Wynn Foundation to support The Centers for Optimal Living with MS n
nationalmssociety.org/cal | 1-800-344-4867
11
the power of a gift This fall, the Kenrose Kitchen Table Foundation granted its record-breaking gift of $1,625,000 to the National Multiple Sclerosis Society in support of MS research and the Southern California & Nevada Chapter’s mental health programming. The gift was made in honor and memory of the Power family’s mother, Julie, who lived with multiple sclerosis for 24 years. Dave Power, founder of J.D. Power and Associates, along with his children Jamey, Mary, Jonathan and Susan, created the Kenrose Kitchen Table Foundation in 2005. True to their family’s entrepreneurial drive and focus on innovation, the mission of the Kenrose Kitchen Table Foundation identifies and supports unconventional solutions to today’s problems and invests in innovative solutions and ways of thinking that bring breakthroughs in medical research. “Our ‘investment’ in the National MS Society provides our family with great pleasure and hope. The innovations in MS research, the strong collaboration among researchers, scientists, and industry, and the overall leadership provided by the Society is extraordinary. We know that we
The Power Family (left to right): Jonathan, Mary, Dave, Sue, and Jamey. are on the offensive in fighting this disease. And, momentum is building,” shared Jamey Power, Trustee for the Society’s Southern California and Nevada Chapter, as well as a member of the NOW Cabinet for research fundraising. Inducted into the National Multiple Sclerosis Society Circle of Distinction in 2010 for outright giving exceeding $1,000,000, the Kenrose Kitchen Table Foundation has since contributed millions of dollars to excel MS research. This phenomenal grant highlights the family’s continued commitment to the cause, care and cure of multiple sclerosis. n
send a card & make a difference Tribute gifts are an easy and thoughtful way to make a difference and show someone you care. When you make a donation, you are not only moving us closer to a cure and improving the lives of people affected by this disease today, but we will also send a lovely, personalized card to the individual of your choice. To make a gift or to find out more about the Tributes campaign, please visit nationalMSsociety.org/TributeGifts or call Diane Sant at 310-479-4456 ext. 66108.
12 golden circle research salon On November 19, 2014, nearly one hundred Golden Circle donors and top fundraisers joined a panel of MS researchers and clinicians at the Riviera Country Club in Pacific Palisades, CA. Co-hosted by Fern and Bob Seizer and Pam and Stan Maron, the event was moderated by special guest, Timothy Coetzee, PhD, Chief Advocacy, Services, and Research Officer at the National MS Society. Guests learned about the latest in MS research from Robert Fox, MD (Cleveland Clinic Mellen Center for MS), Barbara Giesser, MD (University of California, Los Angeles), and Craig Walsh, PhD (University of California, Irvine).
MS connection: winter 2015
Research topics were focused on the Society’s three priority areas: progressive MS, nervous system repair, and lifestyle/wellness factors. Dr. Fox’s anecdotes highlighted new and exciting progress in research for progressive forms of MS, including possible treatment options, work happening through the Progressive MS Alliance, and the importance of utilizing advanced MRI technology. Dr. Giesser focused on research around lifestyle and wellness factors, including the study of exercise as a strategy to treat cognitive disfunction. Dr. Walsh gave an exciting report on the great strides being made around the area of nervous system repair, which could potentially allow for the restoration of neurological function for people with all types of MS, including progressive forms of the disease. n
Stan Maron, Sheri Safan, and Pam Maron
left: Steven Seizer, Fern Seizer, Julie Kaufer, and Kim Phillips
Dr. Timothy Coetzee, Dr. Robert Fox, Dr. Barbara Giesser, and Dr. Craig Walsh
right: Henry & Claudette Taylor
nationalmssociety.org/cal | 1-800-344-4867
living with ms
Recognizing anxiety By Julie Stachowiak, PHD
It is not often that I feel “lucky” as a person with multiple sclerosis. However, I do feel extremely fortunate to have never experienced a mood disorder as a symptom of my disease. For a very brief time when I was younger, I suffered periodic depression as a symptom of premenstrual syndrome, and that was enough to give me the tiniest glimpse into the enormity of a mood disorder. When I was diagnosed with MS and learned about the variety of symptoms that I could experience, my fear of depression and cognitive dysfunction far outweighed my fear of losing mobility. At the annual meeting of the Americas and European Committees for Treatment and Research in MS (ACTRIMS-ECTRIMS), I learned that more people with MS have an anxiety disorder than have depression. One study of 7,786 adults with MS showed that 54.1 percent had “excessive symptoms of anxiety,” while 46.9 percent had “excessive symptoms of depression.”
More people with MS have an anxiety disorder than have depression. It turns out that the prevalence of anxiety disorders in people with MS is roughly three times the prevalence of these disorders in the general population. Anxiety has received only a fraction of the attention that depression has received as
13 a disorder overall. However, it has been shown that anxiety in combination with depression, rather than anxiety or depression alone, are associated with increased thoughts of self-harm and more social problems. Despite its high prevalence Dr. Julie Stachowiak in people with MS, as well as the potential risks when anxiety is combined with depression, the treatment or management of anxiety in MS has not been specifically studied. In my opinion, this is a problem since MS symptoms can be made worse by the side effects of anti-anxiety drugs, which include: drowsiness and lack of energy, clumsiness, impaired thinking and memory loss, and slurred speech. What I would like to emphasize for anyone experiencing symptoms of an anxiety disorder or depression is to know that it is not your fault. If you are feeling any of the symptoms of these mood disorders, please seek professional help from a mental health professional who has experience treating people with MS. n If you suspect you are experiencing depression, anxiety or other mental health issues, call an MS Navigator at 1-800-344-4867 to connect with a mental health professional. To learn more about depression or cognitive changes associated with MS, visit www.nationalMSsociety.org/ depression and www.nationalMSsociety. org/cognition.
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MS connection: winter 2015
programs connection winter 2015
nutrition & MS Guiding Personal Choices Diet and nutrition is the most popular wellness topic capturing the interest of the MS community. As researchers are making significant connections between nutritional factors and MS, learn what you can do to positively impact the effects of MS. Denise Nowack, registered dietitian nutritionist will discuss how a holistic approach to diet can contribute to living well with MS. Participants will learn how: • Nutritional factors may prevent or delay the progress of the disease • Diet can impact symptoms and the toll symptoms can play in a person’s nutritional well-being • A holistic approach to diet can contribute to living well with MS
upcoming programs: Fresno Saturday, March 7, 2015 | 10:00am - 11:30am Hampton Inn & Suites Fresno 327 East Fir Avenue, Fresno Call Fotini at 559-439-2514 for more information. Las Vegas Springs 2015 | Date coming soon! Call Angela at 702-736-1478 for more information.
Valencia Saturday, March 21, 2015 | 10:00am Location coming soon! Call Christine at 661-321-9512 for more information.
Space is limited for this free program. Call 800-344-4867 or visit nationalMSsociety.org/ CAL to register today!
learn more about nutrition! Visit www.MSconnection.org/blog to read a conversation about diet and nutrition with Dr. Ellen Mowry and Denise Nowack.
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nationalmssociety.org/cal | 1-800-344-4867
north american educational program
Mood and cognition don’t exist in isolation— mood affects cognition, and vice versa. For example, a person who is depressed is more likely to have difficulty staying focused on a task, may process information more slowly, and will have more difficulty than usual in planning and problem solving. Likewise, a person with memory problems may feel increasingly anxious about forgetting important events, or may become depressed because of his or her changing abilities. It can become a perpetuating cycle. This program explores why and how people with MS experience changes in mood and cognitive functioning, and provides the latest information on how these symptoms can be addressed — from physical activity, medications and counseling to self-management strategies. Attend one of the listed Self Help Groups to watch an educational video and learn more about this topic. Join others in discussing various resources and treatment options for managing mood and cognition.
Brought to you through educational grants from: Bayer Healthcare; Genetech; Genzyme, a Sanofi Company; Mylan; Novartis Pharmaceuticals; Questcor Pharmaceuticals, Inc.; and Teva Neuroscience.
upcoming programs: Friday, January 9, 2015 | 10:00am Hemet Self-Help Group, Hemet Public Library; call Denise at 909-519-4410 Wednesday, January 28, 2015 | 10:00am Upland Self-Help Group, Calvary Chapel; call Denise at 909-519-4410 Monday, February 2, 2015 | 10:00am Temecula Self-Help Group, Mary Phillips Senior; call Maby at 760-562-4533 Tuesday, March 10, 2015 | 12:00pm Rancho Cucamonga -- Moms with MS SelfHelp Group, Rancho Cucamonga Resource Center; call AnaMaria at 909-463-0334
For other locations and dates near you, call 800-344-4867.
get connected! Connect with a local self-help group in your community. Visit page 21 to find a group near you! No one should have to face MS alone. Join MSConnection.org to connect with people like you, share your experiences, and get support.
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MS connection: winter 2015
living well with ms take the next step! Living Well with MS is an extraordinary program designed to help those living with a recent diagnosis better understand multiple sclerosis and develop lifestyle strategies that helps diminish the effects of the disease. This 12-week wellness class can help you explore what you can do to positively impact their personal well-being. The Living Well Experience provides fun and interactive activities that let you try out new strategies while exploring topics like fatigue, stress management, employment & careers, relationships, and more! Discussions connect you with others—just like you— where you can share experiences and learn first hand from each other. Plus, our “Ask the Expert” teleconference series connects you with healthcare professionals who understand MS and can answer your questions. Each week, the class offers information that can help you: • Better manage MS and its symptoms • Develop healthy eating habits and understand the role nutrition plays in MS • Learn how you can incorporate exercise into your life • Develop positive emotional and spiritual health practices to use across your lifetime
beth, diagnosed in 2009 Discover what you can do to enhance the manageability of your disease and integrate healthy lifestyle practices in your everyday life. Spring online session begins Monday, March 9, 2015 and is available to anyone with a recent diagnosis, no matter where you live! The Marilyn Hilton MS Achievement Center at UCLA will offer Los Angeles participants additional in-person sessions twice a month with a team of MS professionals to complement the online course. In-person sessions take place every other Saturday from 10am - 3pm, beginning March 14, 2015. Pre-registration required. Deadline to enroll is March 4, 2015. Visit www.LivingWellWithMS.com or call Tiffany Jordan at 310-479-4456 ext. 66130 for an application today!
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nationalmssociety.org/cal | 1-800-344-4867
FREE From falls: Levels 1 & 2 Falls are quite common among people with MS. But there is something you can do to reduce your risk and prevent unnecessary injuries that can impact your well-being. Free From Falls is an 8-week fall prevention program designed specifically for people with MS who may be at risk for falling. Level 1: For people who are able to walk with or without the use of a three-point cane (at most). Level 2: For people who are able to walk at least 30 feet but require the assistance of a walker, crutches or a scooter. In just 8 weeks you will: • Gain an increased awareness of what can contribute to falls • Identify strategies you can use to prevent falls in your home and in the community • Engage in and develop a fitness plan to improve balance, endurance, strength, and mobility to reduce fall risk • Increase your confidence to avoid falls and manage falls, if they do occur In a fun, supportive group atmosphere, expert instructors in rehabilitation, health, and wellness will help you develop a personal plan to maximize your safety and well-being.
Pre-registration is required and space is limited. Call TODAY for your application!
Upcoming Workshop Locations Bakersfield (Level 2) Tuesdays, January 27 - March 17 6:30pm - 8:30pm San Joaquin Community Hospital Contact: Christine, 661-321-9512 ext. 66401 Fresno (Level 2) Wednesdays, February 4 - March 25 4:30pm - 6:30pm San Joaquin Valley Rehabilitation, Fresno Outpatient & Fitness Center Contact: Fotini, 559-439-2154 ext. 66602 Las Vegas Introductory Workshop (Level 1) Saturdays, January 24 - March 13 10:00am - 2:00pm Physiotherapy Associates, Tenaya Clinic Contact: Angela, 702-736-7272 ext.66702 Call today for an application! Space is limited.
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MS connection: winter 2015
is it depression...or fatigue? Join this 8-week telephone support group to learn how depression and fatigue are expressed in the body, and how they differ. You will learn the causes of fatigue, signs of depression, the link between some medications for MS and increased rates of depression, and how to discuss these important issues with your doctor. This group is led by Theresa Mortilla, MFT, a licensed marriage and family therapist. She has also lived with the challenges of MS for many years and has first-hand knowledge of the topics covered in class.
register today! 8 Tuesdays, beginning February 3 - March 24 6:30pm - 8:00pm This is a telephone support group and callin information will be provided once you are registered. Spaces is limited and registrations are accepted on a first-come, first-serve basis. To register, please contact Mary Ann Holm, Manager of Clinical Services at 310-479-4456 or maryann.holm@nmss.org. Registration deadline in January 28, 2015 and space is limited. Call today to reserve your spot!
cognifitness workshop keeping the mind moving
upcoming workshops
This fun and interactive workshop will introduce CogniFitness, the Society’s mental exercise program, and will help you learn tricks to strengthen your cognitive skills and help you do things in a different way. Learn to facilitate focus and concentration; improve memory using new strategies; improve organization, problem solving and critical thinking skills; and more! While designed for people living with MS, family and friends are welcome to take part.
Antelope Valley February 28, 2015 | 10:00am - 2:00pm Palmdale Regional Medical Center 38600 Medical Center Drive, Palmdale Visalia February 28, 2015 | 9:30am - 1:30pm Kaweah Delta Rehabilitation Center 840 Akers Street, Visalia Pre-registration is required and space is limited! Register online at nationalMSsociety. org/CAL or call 800-344-4867.
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nationalmssociety.org/cal | 1-800-344-4867
dial, listen & learn
teleconferences RSVP today at nationalMSsociety.org/ telelearn or call 800-344-4867.
MS Research: Your Questions Answered
Tuesday, January 20, 4:00pm Thursday, January 22, 7:00pm Explore current work being done by the Progressive MS Alliance Initiative and the Wellness Work Group with Bruce Bebo, Associate Vice President of Research, National
MS Society and Doug Landsman, Senior Director of International Research Programs, National MS Society.
managing ms bladder and bowel symptoms
Tuesday, March 17, 4:00pm Thursday, March 19, 7:00pm Learn strategies for managing bowel and bladder symptoms in MS with Pat Kennedy, RN, CNP, MSCN, Can Do Multiple Sclerosis and Dr. Marlene Murphy Setzko of the Mandell MS Center.
employment & MS teleseries Legal Basics – Know Your Rights
Thursday, February 12, 5:00pm Learn about your rights under the Americans with Disabilities Act (ADA) including disclosure. Discuss practical ways to be proactive in your work situation and hear about employment rights-related experience from an individual living with MS.
Managing Cognitive Symptoms and Fatigue in the Workplace
Thursday, February 26, 5:00pm Neuropsychologist, Dr. Cynthia Sullivan, and occupational therapist, Tracy Carrasco, will discuss how cognitive dysfunction and fatigue may present themselves and share practical ways to manage them on the job.
Support to help you find employment
Thursday, March 12, 5:00pm Employment resources vary depending how your MS impacts your ability to work. Join specialists Samantha Mankin, Russell Bowe, and Adam Streets. will discuss how to use their resources to find employment opportunities appropriate to your needs.
guide to flexible and home-based jobs
Thursday, March 26, 5:00pm What are the latest trends in the work-fromhome and flexible job markets? Brie Reynolds from Flexjobs.com, will walk through the latest trends in these markets, top career fields and most common jobs available.
20 Financial Assistance We offer Direct Financial Assistance to people with MS and their families to help access needed services that are not available using other resources or insurance. The program is based on financial need and offers funding for the following services. Checks are made out and sent directly to the vendor. For more information, call 800.344.4867 or 310.479.4456.
MS connection: winter 2015
SUPPORT SERVICES
Sherak Emergency Fund: Funding for unexpected one-time situations (food, rent, utilities). Official documentation demonstrating proof of emergency is required. Limit: up to $300 within an 18-month period. Durable Medical Equipment: Share of cost for durable medical equipment (wheelchairs, hand rails, etc.). Limit: up to $400/year. Rhoda Goetz Personal Care Fund: • Home Assistance Fund: Provided through a licensed home care agency for a person experiencing an exacerbation or post-hospital visit who does not have a caregiver. Limit: Up to 72 hours per year. • Chore Service Program: Light housekeeping only for those unable to manage these tasks. Limit: up to $300/year.
MEDICAL CARE
SUPPORT FOR FAMILY MEMBERS
MS Physician Consult program: Funding for one-time consult with an MS specialty neurologist. Must have limited geographic and/ or insurance resources.
Grisanti Respite Fund: Provided through a licensed home care agency for the family member who is a full-time care partner and needs time off. Limit: up to 50 hours/year.
Physical/Occupational/Speech Therapy: Inhome evaluation and five to six follow-up visits for a person who cannot leave home.
Supporting the Family: A fund to take care of special out of the ordinary family needs (i.e. school pictures, sports uniforms, etc.) Limit: up to $300/year.
Individual counseling/telecounseling sessions: 6–10 visits per year with a licensed therapist who is experienced in MS.
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nationalmssociety.org/cal | 1-800-344-4867
self help groups
Connect
Lakewood/Long Beach 3rd Sunday, 1:00 pm, May Boyer Park Call Fran at 562.925.4405
Community Self-Help Groups
Please contact the group’s facilitator(s) to learn more about a specific self-help group listed below, or contact the Chapter at 800.344.4867.
Los Angeles 3rd Thursday, 6:00 pm, Fairfax Branch Library Call Michael at 213.804.1249 or Allison at 323.876.7606
at-home Telephone Group
Monrovia/Pasadena 2nd Monday, 10:00 am, First Presbyterian Church Call Aynn at 626.303.4343
3rd Wednesday, 1:00 pm Toll-free dial-in number: 1-888-279-3775, entry code 4001#
Los Angeles County Antelope Valley 3rd Thursday, 6:30 pm, Robertson Honda Call Christine at 661.321.9512 Boyle Heights/USC Wellness Center Spanish speaking group 2nd Saturday, 10:00 am, The Wellness Center at the Historic General Hospital Call Carlos at 213.261.3685 Central LA 4th Saturday, 12:00 pm, Bilbrew Library Call Alva at 323.233.5413 Downey - The Force MS Self-Help Group Thursdays, 10:00 am Rancho Los Amigos Rehabilitation Center Call Staci at 310.603.6853 or 310.918.8977 Downey - Young Professionals Group for people in 20s - 40s. 2nd Saturday, 10:00 am, Rancho Los Amigos Rehabilitation Center. Contact Sarah at 562.401.7622 or Beth at ypg@nmss.org
North Hollywood - Drumming Group Learn a unique way to express yourself. No musical experience needed. 2nd Saturday, 12:00 pm, Remo Drum Center. Call Beth at 818.219.1715 Santa Clarita 2nd Thursday, 6:30 pm, Saint Kateri Catholic Church. Call Eire at 661.297.6887 South Bay/Harbor City 3rd Tuesday, 4:15 pm, Gardena Mayme Dear Library. Call Pattie at 310.769.0694 Tarzana/Northridge – Spanish Speaking Group 2nd Saturday, 9:00 am, Tarzana Community & Cultural Center. Call Maria at 818.370.8073 Tarzana – Let’s Play social group 3rd Saturday, 12:00 pm, Tarzana Community Center. Call Linda at 818.222.7678 West Covina 2nd & 4th Wednesdays, 11:00 am, Senior Center North Building. Call Tadd at 626.962.7909 West LA Last Monday, 6:30 pm, Veteran’s Memorial Building. Contact Susan at archivesusie@aol.com West LA – Men’s Group 3rd Tuesday, 6:00 pm, Fraser Communications Call Larry at 310.926.1641
22 Channel Islands Arroyo Grande 2nd Tuesday, 6:00 pm, United Methodist Church Call Ellen at 805.343.6094
MS connection: winter 2015
Murrieta - So Cal MS Outlaws 4th Wednesday, 10:00 am, Trinity Lutheran Church Call Roxie or Bill at 951.506.3787
Morro Bay Last Saturday, 10:30 am, St. Peters by the Sea Church. Call Jeanette at 805.682.8783 ext. 68103
Ontario 1st Saturday, 10:00 am, Redeemer Lutheran Christian Church. Call Emily at 909.851.6204 or Kathy at 909.621.3519
Ojai Valley Wallwalkers Lunch Meeting 4th Tuesday, 12:30 pm, Eggs N Potatoes. Call Donna at 805.646.3750 or Tammy at 805.648.6402
Palm Springs 2nd Sunday, 12:00 pm, Billy Reed’s Restaurant Contact Tony at 760.831.6365.
Simi Valley 1st Monday, 10:00 am, Cornerstone Church. Call Dennis at 805.584.2526 or Tina at 805.581.2264
Rancho Cucamonga - Moms with MS 2nd Tuesday, 12:00 pm, Rancho Cucamonga Resource Center. Call AnaMaria at 909.463.0334 or Kim at 909.904.0352
Thousand Oaks 2nd Monday, 9:30 am, Goebel Senior Adult Center Call Tina at 805.581.2264 or Ken at 818.518.4226 Ventura Last Friday, 11:30 am, Carrow’s. Contact Vincy at 805.340.9627 or vincyntha@hotmail.com Ventura Social Group 3rd Thursday, 3:00pm, Panera Bread in Ventura Call Tammy at 805.648.6402
Inland Empire/Coachella Valley Apple Valley/Victorville 1st Thursday, 10:00 am, Senior Select Advocate Apple Bear Center. Call Roseanne at 435.630.7572 Hemet 2nd Friday, 10:00 am, Hemet Public Library Call Tammy at 909.792.6518 Lake Arrowhead 1st Friday, 4:00 pm, Location varies Call Joyce at 909.337.7573
Palm Desert 4th Thursday, 11:00 am, Buffalo Wild Wings Call Richard at 760.899.4174 Riverside 1st Saturday, 10:00 am, Tucker Medical Building Call Gilbert at 951.544.1441 or Katrina at 951.906.1752 Temecula 1st Monday, 10:00 am, Mary Phillips Senior Center. Call Denise at 909.519.4410, Tammy at 909.792-6518, or Jacqueline (Spanish-speaking) at 951.302.3529 Temecula - Men’s Group 4th Monday of every other month at 1:00 pm Location TBD Call Ric at 619.985.5736 Upland Last Wednesday, 10:00 am, Calvary Chapel. Contact Tammy at 909.792.6518 or Denise at 909.519.4410.
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nationalmssociety.org/cal | 1-800-344-4867
Yucaipa 3rd Tuesday, 1:00 pm, Good Shepherd Church Call Clare at 909.795.5128 or Tom at 909.795.1717
Nevada & Northeastern california Las Vegas/Henderson - Oasis group 1st Saturday, 11:00 am. Call Ed at 702.271.3007 or Jerry at 702.285.6479 Las Vegas - MS Lunch Club 1st Tuesday, 11:30 am, Los Prados Country Club Call Darlene at 702.240.3210. Must RSVP and purchase lunch for $10/person Las Vegas - Westside Stories 3rd Wednesday, 6:00 pm, HealthSouth Call Darlene & Maria at 702.240.3210 Loyalton Rural Outreach to Wellness Call Bonni Sue at 530.993.4499 for details 213 Main Street/HWY. 49, Ste. 1 Mesquite 1st Tuesday, 2:00 pm, Mesa View Home Care Call Erica at 702.610.3786 Reno/Sparks 3rd Thursday, 2:00 pm The Continuum Call Christine at 775.560.1215 for more details Truckee 2nd Thursday, 5:30 pm, Tahoe Forest Hospital Cafeteria. Call Rick at 530.550.0654 or Bonni Sue at 530.993.4499
San Joaquin Valley Bakersfield 1st Thursday, 7:00 pm, HealthSouth Rehab Hospital. Call JoAnn at 661.872.1973. Bakersfield - Breakfast & Lunch Groups 2nd Wednesday, noon or 4th Wednesday, 9:30 am Lorene’s Coffee Shop. Call Ron at 661.833.0388 or Sarah at 661.865.6238 Bakersfield - Young Professionals Group 4th Tuesday, 5:30pm Call Christine at 661.321.9512 for details. Clovis/Fresno 3rd Saturday, 9:30 am, San Joaquin Rehab Hospital. Call Yolanda at 559.908.4644 or Doris at 559.299.2072 Fresno – Newly Diagnosed/Working Professionals Group Call Cherish at 559.287.3042 for details. Fresno – Spanish Speaking Group Call Sharon at 559.579.4096 for details. Hanford 1st Saturday, 10:00 am, First Christian Church Call Judy at 559.585.1198 or Debra at 559.585.8054 Tehachapi 2nd Thursday, 5:00 pm, Tehachapi Moose Lodge Optional “Dinner on the Grill” $3.50 & up Call Linda at 661.822.7440 Visalia 2nd Saturday, 10:00 am, Kaweah Delta Rehab Call Mary Ann at 559.936.3960
5150 W. Goldleaf Circle, Suite 400 Los Angeles, CA 90056
Southern California & Nevada Chapter 5150 W. Goldleaf Circle Suite 400 Los Angeles, CA 90056 310.479.4456 800.344.4867
CALIFORNIA OFFICES Channel Islands
1921 State Street, Suite A Santa Barbara, CA 93101 805.682.8783
Inland Empire
3110 E. Guasti Road Suite 320 Ontario, CA 91761 909.949.1363
Kern County
1800 30th Street Suite 105 Bakersfield, CA 93301 661.321.9512
San Joaquin Valley
7472 N. Fresno St., #210 Fresno, CA 93720 559.439.2154
NEVADA OFFICES Northern Nevada
4600 Kietzke Ln., #K-225 Reno, NV 89502 775.329.7180
Southern Nevada
2110 East Flamingo, #203 Las Vegas, NV 89119 702.736.7272
Finish MS offers runners, cyclists, swimmers and endurance athletes of all types and abilities the chance to create a world free of MS while pushing their own personal limits.
Learn more at www.FinishMS.com or call 800-344-4867 today!