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Lessons learned & next steps

• Keep an open mind – our work has taken a number of new turns since we started!

• We will now test some new processes with colleagues in other teams and disciplines. Our young people receive services from a lot of different agencies – therefore our improvement work needs to cross those boundaries.

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• We’ve updated our driver diagram as we learned more new change ideas emerged.

QI allowed us to focus on those smaller patient groups that we were most concerned about. We were able to direct work where it was needed rather than a whole case load approach.

QI helps you to track progress. It is helpful to take stock every now and then and review progress overall, and not just in individual PDSA cycles.

Our patient groups are small, so it can take time to see the full impact of our changes. We’re happy to be patient and see things through.

References

1. ‘Transitions from child to adult health care for young people with intellectual disabilities: A systematic review’, Brown, M. et al. Jan 2019

2.‘Stepping up - A guide to enabling a good transition to adulthood for young people with life-limiting and life-threatening conditions’ , Together for Short Lives. April 2015

Feedback from our stakeholders

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