April end of life current awareness by Musgrove Park Hospital Library

Library Services Musgrove Park and Somerset Partnership

Current Awareness End of Life This monthly Current Awareness Bulletin is produced by the Library, Musgrove Park Academy to provide staff with a range of resources focussing on end of life care. It includes recently published guidelines and research articles, news and policy items.

This guide provides a selection of resources relevant to the subject area and is not intended to be a comprehensive list. All websites have been evaluated and details are correct at the time of publications. Details correct at time of going to print. Please note that resources are continuously updated. For further help or guidance, please contact a member of library staff.

This guide has been compiled by: Jess Pawley Senior Library Assistant Musgrove Park Hospital Library Service jessica.pawley@tst.nhs.uk Issue 3 April 2016

Contents Click on a section title to navigate contents Page Recent journal articles

3 8

Cochrane Systematic Reviews

UpToDate

Reports, publications and resources

Topic Alerts and Updates

Twitter

Training & Networking Opportunities, Conferences, Events

Literature search service

Training and Athens

Library contact details: Library Musgrove Park Academy Musgrove Park Hospital Taunton Somerset TA1 5DA Tel: 01823 34 (2433)

Email: library@tst.nhs.uk Blog: http://librarymph.wordpress.com @musgrovesompar

RECENT JOURNAL ARTICLES BACK TO TOP This is a list of journal articles on the topic of end of life. Some articles are available in the library or on-line via an OpenAthens password by following the full-text link. If you would like an article which is not available as full-text then please contact library staff. Please note that abstracts are not always available for all articles. Some books from our electronic book collection- click on book cover and log in with your OpenAthens password to browse free online or to request access.

Title: Modelling end-of-life care practices: Factors associated with critical care nurse engagement in care provision. Citation: Intensive & critical care nursing : the official journal of the British Association of Critical Care Nurses, Apr 2016, vol. 33, p. 48-55, 1532-4036 (April 2016) Author(s): Ranse, Kristen, Yates, Patsy, Coyer, Fiona Abstract: To identify factors associated with critical care nurses' engagement in end-of-life care practices. Multivariable regression modelling was undertaken on 392 responses to an online selfreport survey of end-of-life care practices and factors influencing practice by Australian critical care nurses'. Univariate general linear models were built for six end-of-life care practice areas. Six statistically significant (p<0.001) models were developed: Information sharing F(3, 377)=40.53, adjusted R(2) 23.8%; Environmental modification F(5, 380)=19.55, adjusted R(2) 19.4%; Emotional support F(10, 366)=12.10, adjusted R(2) 22.8%; Patient and family centred decision making F(8, 362)=17.61 adjusted R(2) 26.4%; Symptom management F(8, 376)=7.10, adjusted R(2) 11.3%; and Spiritual support F(9, 367)=14.66, adjusted R(2) 24.6%. Stronger agreement with values consistent with a palliative approach, and greater support for patient and family preferences were associated with higher levels of engagement in end-of-life care practices. Higher levels of preparedness and access to opportunities for knowledge acquisition were associated with engagement in the interpersonal practices of patient and family centred decision making and emotional support. This study provides evidence for interventions to address factors associated with nurse engagement to increase participation in all end-of-life care practice areas. Copyright 2015 Elsevier Ltd. All rights reserved.

Title: Intensive care nurses' experiences of end-of-life care. Citation: Intensive & critical care nursing : the official journal of the British Association of Critical Care Nurses, Apr 2016, vol. 33, p. 30-38, 1532-4036 (April 2016)

Author(s): Kisorio, Leah C, Langley, Gayle C Abstract: To explore intensive care nurses' experiences of end-of-life care in adult intensive care units. An exploratory, descriptive qualitative approach was utilised. Purposive sampling method was used to select nurse participants (n=24) working at the selected intensive care units in the three academic affiliated, tertiary specialist hospitals in the Johannesburg and Pretoria regions, South Africa. Using a focus group guide, three focus group discussions were conducted. Data were analysed using the long-table approach (Krueger and Casey, 2000). Trustworthiness of the study was ensured by following the criteria set out by Lincoln and Guba (1985). Five major themes related to nurses' experiences of end-of-life care emerged. These included: "difficulties we experience", "discussion and decision making", "support for patients", "support for families" and "support for nurses". End-of-life care can be difficult and a challenging process. Nevertheless, this study has highlighted some of the interventions and support systems that could be incorporated for improved caring process. Whereas the dying patients and their families need to be continuously supported, critical care nurses too need to be taken care of for them to continue providing the best possible endof-life care. Copyright 2015 Elsevier Ltd. All rights reserved.

Title: Exploring family experiences of nursing aspects of end-of-life care in the ICU: A qualitative study. Citation: Intensive & critical care nursing : the official journal of the British Association of Critical Care Nurses, Apr 2016, vol. 33, p. 56-64, 1532-4036 (April 2016) Author(s): Noome, Marijke, Dijkstra, Boukje M, van Leeuwen, Evert, Vloet, Lilian C M Abstract: The aim of this study was to examine the experience(s) of family with the nursing aspects of End-of-life care in the intensive care unit after a decision to end life-sustaining treatment, and to describe what nursing care was most appreciated and what was lacking. A phenomenological approach including inductive thematic analysis was used. Twenty-six family members of deceased critically ill-patients were interviewed within two months after the patient's death about their experiences with nursing aspects of end-of-life care in the intensive care unit. Most family members experienced nursing contribution to end-of-life care of the patient and themselves, especially supportive care. Families mentioned the following topics: Communication between intensive care nurses, critically ill patients and family; Nursing care for critically ill patients; Nursing care for families of critically ill patients; Pre-conditions. Families appreciated that intensive care nurses were available at any time and willing to answer questions. But care was lacking because families had for example, a sense of responsibility for obtaining information, they had problems to understand their role in the decision-making process, and were not invited by nurses to participate in the care. Most family appreciated the nursing EOLC they received, specifically the nursing care given to the patient and themselves. Some topics needed more attention, like information and support for the family. Copyright 2016 Elsevier Ltd. All rights reserved.

Title: Effect of integrated caregiver support on caregiver burden for people taking care of people with cancer at the end of life: A cohort and quasi-experimental clinical trial. Citation: International journal of nursing studies, Apr 2016, vol. 56, p. 17-26, 1873-491X (April 2016) Author(s): Lee, Kwo-Chen, Yiin, Jia-Jean, Chao, Yann-Fen

Abstract: Previous studies have shown small-to-medium effects of support on reducing the caregiver burden for advanced cancer patients. A dearth of studies utilized longitudinal design to examine and evaluate the effect of support for the caregiving burden till the patient's death. To test the ability of an integrative intervention program for caregivers of advanced cancer patients to lower caregiving burden as death approaches. A two-group comparative design with repeated measures. Two cancer wards of a single university hospital. Advanced cancer patients (N=81) and their caregivers were allocated into two groups: an experimental group (N=40) receiving coping strategies, assistance, recourses, and education intervention and a control group (N=41) receiving standard care. Caregivers received training in the caregiver support intervention at least 3 times every 2 weeks to help them reduce their caregiving burden. Subjective (Caregiver Reaction Assessment) and objective (Heart Rate Variability) measures of caregiver burden were evaluated for caregivers of patients approaching death. Only data within 3 months before the patients' death were analyzed. Caregiver self-efficacy significantly increased and the subjective caregiving burden significantly decreased in the experimental group as patients' death approached. Heart Rate Variability also indicated a calming effect of the intervention, helping caregivers face patients' death. The caregiver support intervention can increase caregiver self-efficacy and reduce the subjective caregiving burden. Heart Rate Variability parameters have the potential to be useful for monitoring caregiver burden in facing patients' death. Copyright 2016 Elsevier Ltd. All rights reserved.

Title: Toward a systematic approach to assessment and care planning in palliative care: A practical review of clinical tools. Citation: Palliative & supportive care, Apr 2016, vol. 14, no. 2, p. 161-173, 1478-9523 (April 2016) Author(s): Hudson, Peter, Collins, Anna, Bostanci, Adam, Willenberg, Lisa, Stephanov, Nikola, Phillip, Jennifer Abstract: Ensuring a consistent and systematic approach to the delivery of care for people with advanced disease is a priority for palliative care services worldwide. Many clinical tools are available to aid in this process; however, they are often used sporadically, and implementation of a routine set of clinical tools to guide care planning in the specialist palliative care sector in Australia has not been achieved. This study sought to recommend key clinical tools that may assist with the assessment and care planning of specialist palliative care provision for patients and family caregivers admitted to specialist palliative care settings (home, hospital, and hospice). A mixed-methods sequential approach over four phases was employed, involving: (1) a palliative care sector survey, (2) a systematic literature review, (3) an appraisal of identified clinical tools, and (4) a focus group with an expert panel who critiqued and endorsed a final suite of clinical tools recommended for specialist palliative care. Twelve tools with practical relevance were recommended for use across settings of care. Palliative services should review current practices and seek to implement this recommended suite of tools to enhance assessment and guide care delivery across care settings. Subsequent evaluation should also occur.

Title: Graduating nurses' self-efficacy in palliative care practice: An exploratory study. Citation: Nurse education today, Apr 2016, vol. 39, p. 141-146, 1532-2793 (April 2016) Author(s): Henderson, Amanda, Rowe, Jennifer, Watson, Karen, Hitchen-Holmes, Deborah

Abstract: Educational institutions and the health care industry agree that graduates from professional programs need to be "work ready" and capable of delivering competent and confident nursing care. One measure of program success is the student's self-efficacy in meeting expected graduate capabilities. In this study student's self-efficacy is related to palliative care graduate capabilities. To explore graduating Bachelor of Nursing Science (BNSc) students' self-efficacy in caring for palliative care patients. A qualitative design using semi-structured face-to-face interviews. A regional Australian university. A purposive sample of 10 students in their final semester of study in a Bachelor of Nursing Science degree program. Semi-structured face-to-face interviews were conducted. Interview questions were informed by published palliative care graduate capabilities. Interview data were transcribed verbatim and coded by capability. The coded data were then analysed to determine evidence of self-efficacy in caring for palliative care patients. All participants had experiences in caring for palliative care patients. However, the responses did not consistently reflect high degrees of selfefficacy in four documented palliative care graduate capabilities required to care for persons with a life-limiting illness. The findings support others that have identified gaps between curriculum and health care industry requirements in terms of students' beliefs about their empowerment to deliver nursing care as graduates. Education interventions and approaches to program evaluation require further development to better support students' growth of self-efficacy in undertaking their graduate roles. Copyright 2016 Elsevier Ltd. All rights reserved.

Title: Spiritual history taking in palliative home care: A cluster randomized controlled trial. Citation: Palliative medicine, Apr 2016, vol. 30, no. 4, p. 338-350, 1477-030X (April 2016) Author(s): Vermandere, Mieke, Warmenhoven, Franca, Van Severen, Evie, De Lepeleire, Jan, Aertgeerts, Bert Abstract: Many health-care providers experience barriers to addressing spiritual needs, such as not having the right vocabulary. The ars moriendi model might be a feasible tool for spiritual history taking in palliative care. To investigate the effect of a structured spiritual history taking on the spiritual wellbeing of palliative patients in home care. Cluster randomized controlled trial, conducted between February and October 2013. Registered nurses and general practitioners approached eligible patients with an incurable, life-threatening disease for study participation. Health-care providers allocated to the intervention arm of the study took a spiritual history on the basis of the ars moriendi model. Health-care providers in the control arm provided care as usual. Patient-reported outcomes on spiritual well-being, quality of life, pain, and patient-provider trust were assessed at two points in time. A total of 245 health-care providers participated in the study (204 nurses and 41 physicians). In all, 49 patient-provider dyads completed the entire study protocol. The median age of the patients was 75 years (range: 41-95 years), and 55% of the patients were female. There were no significant differences at any point in time in the scores on spiritual well-being, quality of life, pain, or patientprovider trust between the intervention and the control group. This cluster randomized controlled trial showed no demonstrable effect of spiritual history taking on patient scores for spiritual well-being, quality of life, health-care relationship trust, or pain. Further research is needed to develop instruments that accurately assess the effectiveness of spiritual interventions in palliative care populations. The Author(s) 2015.

Title: Integrating palliative care into primary care for patients with chronic, life-limiting conditions.

Citation: The Nurse practitioner, Mar 2016, vol. 41, no. 3, p. 42-48, 1538-8662 (March 15, 2016) Author(s): Cleary, Ann Selena Abstract: As longevity increases, individuals with chronic, life-limiting conditions will live longer with disease burden and functional decline. Nurse practitioners can integrate symptom management, early decision-making, and supportive care into the primary care setting to improve quality of life and decrease economic and emotional impact at the end of life.

BOOKS BACK TO TOP If you are unable to find a book, or require a book that is not on this list, please ask library staff who will be able to locate the book for you using interlibrary loan. Please note that some books detailed below may not be available in your local library and would need to be ordered for you. Some books from our electronic book collection- click on book cover and log in with your OpenAthens password to browse free online or to request access. Textbook of Palliative Care Communication Ferrell, BW 2015

Dying: a Social Perspective on the End of Life Broom, A 2015

From the back of the book: The Textbook of Palliative Care Communication is the authoritative text on communication in palliative care, providing a compilation of international and interdisciplinary perspectives. By featuring practical conversation and curriculum tools stemming from research, this text integrates scholarship and inquiry into translatable content that others can use to improve their practice, teach skills to others, and engage in patient-centered communication. The volume begins by defining communication, explicating debatable issues in research, and highlighting specific approaches to studying communication in a palliative care context. Team communication in various care settings is outlined and current research and education for healthcare professionals are summarized. Unique to this volume are chapters on conducting communication research, both qualitatively and quantitatively, to promote further research in palliative care.

From the back of the book: An inevitable and universal experience, dying is experienced by individuals in different ways, often related to the character of our relationships, family structures, gender identities, cultural backgrounds, and economic means. Drawing on extensive qualitative fieldwork with patients, carers and health professionals in Australia and the United Kingdom, Dying: A Social Perspective on the End of Life provides a critical examination of the different spheres of dying, in social and cultural context. Exploring complex issues such as the politics of assisted dying, negotiating medical futility, gender and dying, the desire for redemption, the moralities of 'the good fight' and the lived experience of bodily disintegration, this book links novel theoretical ideas within sociology to cuttingedge empirical data collected in palliative and end-of-life care contexts. A theoretically engaged understanding of the social mediation of the end of life, Dying: A Social Perspective on the End of Life also sheds light on the manner in which the end of life can be shaped by major economic, cultural and socio-cultural shifts including neo-liberalism, individualisation, medicalisation, professionalisation and detraditionalisation. As such, it will appeal to social science, health and medical researchers interested in the end of life, as well as those working in palliative and end-of-life care settings.

Taunton and SomPar NHS staff - Have you visited the EBL eBook catalogue? Follow the links below and login via OpenAthens to read online books free for 5-10 minutes each day, send requests for eBook loans or purchase suggestions Taunton & Somerset eBook catalogue Somerset Partnership eBook catalogue 8 About OpenAthens

COCHRANE SYSTEMATIC REVIEWS

Reviews from March 2016 Opioids for the palliation of refractory breathlessness in adults with advanced disease and terminal illness

GUIDELINES

NICE Guidelines NG31- Care of dying adults in the last days of life

UPTODATE BACK TO TOP What’s new from our clinical decision-making tool on the topic of end of life care. UpToDate (Access for Musgrove Park Staff only) Please contact library staff for details on how to access these resources; you will need an Athens password.

END OF LIFE CARE IN THE NEWS

BBC News Around the clock care for dying “not good enough”

REPORTS, PUBLICATIONS AND RESOURCES BACK TO TOP SCIE (Social Care Institute for Excellence) End of Life Care National Council for Palliative Care

European Association for Palliative Care European Association for Palliative Care th

14 World Congress of the European Association for Palliative Care- information from the 14 World Congress of the European Association for Palliative Care, held in May 2015 Royal College of Physicians Palliative and end of life care toolkit National Institute for Health Research Themed review- Better Endings: Right care, right place, right time NHS England Transforming end of life care in hospitals: the route to success â&#x20AC;&#x2DC;how toâ&#x20AC;&#x2122; guide e-Learning for Healthcare End of life care: e-learning modules to support NICE Guideline NG31 Care of Dying Adults in the Last Days of Life

End-of-life care and physician-assisted dying This project, launched in November 2014, aimed to examine both the public and medical professionals' attitudes on aspects of end-of-life care and physician-assisted dying. While recognising the many excellent examples of end-of-life care provision, this research highlights the variability in the quality of care between and within geographical areas and between different medical conditions. The report outlines the main challenges to providing good end-of-life care and the ways we can address them. It highlights three overarching themes which have come out of the research: the need to ensure the provision of consistently high-quality end-of-life care; the need for ongoing education, training and support for doctors; and the central role of families and those close to the patient. Accompanying video https://www.youtube.com/watch?v=LSN_wHkoTIE

End of life care audit- dying in hospital New end of life care audit is run by the Royal College of Physicians (RCP) and is funded by NHS England and Marie Curie, and commissioned by the Healthcare Quality Improvement Partnership. The results of the new end of life care audit run by the Royal College of Physicians (RCP) show that there has been steady progress in the care of dying people since the previous audit carried out in 2013 and published in 2014.

TOPIC ALERTS AND UPDATES BACK TO TOP ABSTRACTS AVAILABLE VIA LINKS BELOW- FOR FULL-TEXT PLEASE ASK LIBRARY STAFF Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue The American Journal of Geriatric Psychiatry April 2016 Volume 24, Issue 4, Pages 261–271 TRIP Database Palliative care in patients with heart failure BMJ. 2016 Apr 14;353 FREE FULL TEXT WITH ATHENS LOGIN Pharmacological treatments for fatigue associated with palliative care: executive summary of a Cochrane Collaboration systematic review J Cachexia Sarcopenia Muscle. 2016 Mar; 7(1): 23–27. FREE FULL TEXT Communication tools for end-of-life decision-making in the intensive care unit: a systematic review and meta-analysis Crit Care. 2016; 20: 97 Published online 2016 Apr 9 FREE FULL TEXT Guidelines for the withdrawal of life-sustaining measures Intensive Care Med. 2016 Apr 8. [Epub ahead of print] Caring for a dying spouse at the end of life: 'It's one of the things you volunteer for when you get married': a qualitative study of the oldest carers' experiences Age Ageing. 2016 Apr 7. [Epub ahead of print] Implementation of a Life-Sustaining Management and Alternative Protocol for Actively Dying Patients in the Emergency Department J Emerg Nurs. 2016 Apr 6. [Epub ahead of print]

TWITTER BACK TO TOP The latest from popular Twitter pages dedicated to end of life care: End of Life Studies @EndofLifeStudy Public Health Palliative Care @PHPalCare European Association for Palliative Care @EAPCOnlus Cicely Saunders Institute @CSI_KCL Palliative Medicine Journal @PalliativeMedJ

TRAINING & NETWORKING OPPORTUNITIES, CONFERENCES, EVENTS BACK TO TOP

Effective Non-Medical Prescribing in End of Life Care- 15 April 2016, Hallam Conference Centre, London th

Effective Nurse Prescribing in End of Life Care- 15 April 2016, Hallam Conference Centre, London Westminster Health Forum- Priorities for palliative and end of life care policy: choice, quality th and integration- 19 April 2016, London th

Implementing the NICE Clinical Guideline on Care of the Dying Adult- 19 May 2016, Hallam Conference Centre, London th

9 World Research Congress of the European Association for Palliative Care- 9 -11 June 2016, Dublin th

15 World Congress of the European Association for Palliative Care- 11 -13 May 2017, Madrid th

5 International Public Health and Palliative Care Conference- 18 - 20 September 2017, Ottawa, Ontario, Canada- Includes links to past conferences and presentations

LITERATURE SEARCH SERVICE BACK TO TOP Looking for the latest evidence-based research but havenâ&#x20AC;&#x2122;t got time to trawl the databases? Do you need a literature search carried out? Do you need to find evidence to support an improvement? Do you want to know how something has been done elsewhere and whether it worked?

Library staff provide a literature search service for busy clinicians who are pressed for time.

To request a search please complete and return the appropriate form, providing as much information as possible. Alternatively if you would like an assisted search training session, where we will sit down with you and go through the steps of a literature search, then please contact the library. Musgrove staff click here to access literature search form Somerset Partnership staff click here to access literature search form

TRAINING AND ATHENS BACK TO TOP Most electronic resources are available via an Athens password. You can register for this via the Library intranet page, or from home at www.swice.nhs.uk and following the link for Athens selfregistration. Please note that registering from home will take longer as it will need to be verified that you are NHS staff/student on placement. The library offers training on how to access and use Athens resources, as well as an introductory course on critical appraisal. You can book a course through the Learning and Development intranet page, or by contacting the library directly.