Library Services Musgrove Park and Somerset Partnership
Current Awareness Dementia This monthly Current Awareness Bulletin is produced by the Library, Musgrove Park Academy to provide staff with a range of dementia-related resources to support practice. It includes recently published guidelines and research articles, news and policy items.
This guide provides a selection of resources relevant to the subject area and is not intended to be a comprehensive list. All websites have been evaluated and details are correct at the time of publications. Details correct at time of going to print. Please note that resources are continuously updated. For further help or guidance, please contact a member of library staff.
This guide has been compiled by: Jess Pawley Senior Library Assistant Musgrove Park Hospital Library Service jessica.pawley@tst.nhs.uk Issue 9 February/March 2016
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Contents Click on a section title to navigate contents Page Recent journal articles
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Books
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Cochrane Systematic Reviews
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Guidelines
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UpToDate & DynaMed Plus
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Dementia in the News
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Reports, publications and resources
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Topic Alerts and Updates
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Training & Networking Opportunities, Conferences, Events
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Literature search service
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Training and Athens
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Library contact details: Library Musgrove Park Academy Musgrove Park Hospital Taunton Somerset TA1 5DA Tel: 01823 34 (2433) Fax: 01823 34 (2434) Email: library@tst.nhs.uk Blog: http://librarymph.wordpress.com @musgrovesompar
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RECENT JOURNAL ARTICLES BACK TO TOP This is a list of journal articles on the topic of dementia. Some articles are available in the library or on-line via an OpenAthens password by following the full-text link. If you would like an article which is not available as full-text then please contact library staff. Please note that abstracts are not always available for all articles.
Title: Care Certificate: mental health, dementia and learning disabilities. Citation: Care Certificate: mental health, dementia and learning disabilities., 2016, vol./is. 18/3(172175), 14659301 Full Text: Available from EBSCOhost in Nursing & residential care : the monthly journal for care assistants, nurses and managers working in health and social care
Title: Managing verbal agitation in people with dementia and delirium. Citation: Managing verbal agitation in people with dementia and delirium., 2016, vol./is. 28/2(33-37), 14720795 Full Text: Available from Royal College of Nursing in Nursing Older People; Note: ; Notes: Click on 'Sign in' to top right, then choose OpenAthens option Available from RCN Publishing in Nursing Older People; Note: ; Notes: Click on 'Sign in' to top right, then choose OpenAthens option
Title: Decision-making in caring for people with dementia at the end of life in nursing homes. Citation: Decision-making in caring for people with dementia at the end of life in nursing homes., 2016, vol./is. 22/2(68-75), 13576321 Full Text: Available from EBSCOhost in International Journal of Palliative Nursing
Title: The impact of community-based arts and health interventions on cognition in people with dementia: a systematic literature review. Citation: Aging & mental health, Apr 2016, vol. 20, no. 4, p. 337-351, 1364-6915 (April 2016) Author(s): Young, Rhea, Camic, Paul M, Tischler, Victoria
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Abstract: Dementia is a progressive condition, affecting increasing numbers of people, characterised by cognitive decline. The current systematic review aimed to evaluate research pertaining to the impact of arts and health interventions on cognition in people with dementia. A literature search was conducted utilising PsychInfo, Cochrane Reviews, Web of Science, Medline and British Humanities Index databases. Seventeen studies were included in the review, including those related to literary, performing and visual arts. The review highlighted this as an emerging area of research with the literature consisting largely of small-scale studies with methodological limitations including lack of control groups and often poorly defined samples. All the studies suggested, however, that arts-based activities had a positive impact on cognitive processes, in particular on attention, stimulation of memories, enhanced communication and engagement with creative activities. The existent literature suggests that arts activities are helpful interventions within dementia care. A consensus has yet to emerge, however, about the direction for future research including the challenge of measurement and the importance of methodological flexibility. It is suggested that further research address some of these limitations by examining whether the impact of interventions vary depending on cognitive ability and to continue to assess how arts interventions can be of use across the stages of dementia. ________________________________________________________________________________ Title: Diagnosis and management of dementia in family practice. Citation: Aging & mental health, Apr 2016, vol. 20, no. 4, p. 362-369, 1364-6915 (April 2016) Author(s): Wilcock, Jane, Jain, Priya, Griffin, Mark, ThunĂŠ-Boyle, Ingela, Lefford, Frances, Rapp, David, Iliffe, Steve
Abstract: Improving quality of care for people with dementia is a high priority. Considerable resources have been invested in financial incentives, guideline development, public awareness and educational programmes to promote earlier diagnosis and better management. Evaluating family physicians' concordance with guidelines on diagnosis and management of people with dementia, from first documentation of symptoms to formal diagnosis. Analysis of medical records of 136 people with dementia recruited by 19 family practices in NW London and surrounding counties. Practices invited 763 people with dementia to participate, 167 (22%) agreed. Complete records were available for 136 (18%). The majority of records included reference to recommended blood tests, informant history and caregiver concerns. Presence or absence of symptoms of depression, psychosis, other behavioural and psychological symptoms of dementia, and cognitive function tests were documented in 30%-40% of records. Documentation of discussions about signs and symptoms of dementia, treatment options, care, support, financial, legal and advocacy advice were uncommon. Comparison of these findings from a similar study in 2000-2002 suggests improvements in concordance with blood tests, recording informant history, presence or absence of depression or psychosis symptoms. There was no difference in documenting cognitive function tests. Immediate referral to specialists was more common in the recent study. Five years after UK dementia guidelines and immediately after the launch of the dementia strategy, family physicians appeared concordant with clinical guidelines for dementia diagnosis (other than cognitive function tests), and referred most patients immediately. However, records did not suggest systematic dementia management.
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________________________________________________________________________________ Title: Positive attitudes and person-centred care predict of sense of competence in dementia care staff. Citation: Aging & mental health, Apr 2016, vol. 20, no. 4, p. 407-414, 1364-6915 (April 2016) Author(s): Mullan, Margaret A, Sullivan, Karen A Abstract: The number of people who will require institutional care for dementia is rapidly rising. This increase raises questions about how the workforce can meet the challenge of providing quality care. A promising psychological concept that could improve staff and care recipient outcomes is staff sense of competence in their capacity to provide dementia care. The purpose of this study was to elucidate the relative importance of staff factors associated with sense of competence. Sixty-one Australian dementia care staff (mostly nurses, 69%; and allied health, 21%) were recruited. Measures included the Sense of Competence in Dementia Care Staff (criterion) and standardised measures of empirically derived predictors: training, knowledge, attitudes and person-centred care strategies. Standard multiple regression revealed that 33.9% of the variance in sense of competence was explained by the combination of the four predictors. Attitudes and person-centred strategies each uniquely explained a moderate amount of variance, while training and knowledge were not significant predictors of sense of competence. A positive attitude towards people with dementia, and stronger intentions to implement personcentred care strategies, predicted a greater sense of competence to provide care, whereas knowledge and training, commonly believed to be important contributors to sense of competence in dementia care, did not predict this outcome. Investing in strategies that address staff attitude and encourage person-centred care could influence sense of competence, and by extension, dementia care. ________________________________________________________________________________ Title: Enhancing caregivers' understanding of dementia and tailoring activities in frontotemporal dementia: two case studies. Citation: Disability and rehabilitation, Apr 2016, vol. 38, no. 7, p. 704-714, 1464-5165 (April 2016) Author(s): O'Connor, Claire M, Clemson, Lindy, Brodaty, Henry, Gitlin, Laura N, Piguet, Olivier, Mioshi, Eneida Abstract: The purpose of this study is to describe the intervention process and results of the Tailored Activities Program (TAP) in two people diagnosed with Frontotemporal Dementia (FTD). TAP is an occupational therapy (OT) community-based intervention program that prescribes personalised activities to reduce difficult behaviours of dementia. The OT works with carers over a 4month period (assessment, activity prescription and generalisation of strategies). Study measures were collected (blind researcher) pre- and post-intervention: cognition, functional disability, behavioural symptoms and Caregiver Confidence and Vigilance. A 51-year-old woman with behavioural-variant FTD could consistently engage in more activities postintervention, with scores indicating improvements to behaviour, function and caregiver confidence. A 63-year-old man with semantic variant FTD engaged well in the prescribed activities, with scores reflecting reduced carer distress regarding challenging behaviours and improved caregiver vigilance. TAP is efficacious in FTD, allowing for differences in approach for FTD subtype, where behavioural symptoms are very severe and pervasive. Implications for Rehabilitation The Tailored Activities Program is an intervention which can be tailored to account for unique behavioural and language
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profiles inherent across frontotemporal dementia (FTD) subtypes. Maintaining a flexible approach when applying an intervention in FTD allows for tailoring to individual case variability within FTD subtypes. ________________________________________________________________________________ Title: Predicting outcome in older hospital patients with delirium: a systematic literature review. Citation: International journal of geriatric psychiatry, Apr 2016, vol. 31, no. 4, p. 392-399, 1099-1166 (April 2016) Author(s): Jackson, Thomas A, Wilson, Daisy, Richardson, Sarah, Lord, Janet M Abstract: Delirium is a serious neuropsychiatric syndrome common in older hospitalised adults. It is associated with poor outcomes, however not all people with delirium have poor outcomes and the risk factors for adverse outcomes within this group are not well described. The objective was to report which predictors of outcome had been reported in the literature. We performed a systematic review by an initial electronic database search of MEDLINE, Embase and PsycINFO using four key search criteria. These were: (1) participants with a diagnosis of delirium, (2) clearly defined outcome measures, (3) a clearly defined variable as predictor of outcomes and (4) participants in the general hospital, rehabilitation and care home settings, excluding intensive care. Studies were then selected in a systematic fashion using specific predetermined criteria by three reviewers. A total of 559 articles were screened, and 57 full text articles were assessed for eligibility. Twenty seven studies describing 18 different predictors of poor outcome were reported. The studies were rated by the Newcastle-Ottawa Score and were generally at low risk of bias. Four broad themes of predictor were identified; five delirium related predictors, two co-morbid psychiatric illness related predictors, eight patient related predictors and three biomarker related predictors. The most numerously described and clinically important appear to be the duration of the delirium episode, a hypoactive motor subtype, delirium severity and pre-existing psychiatric morbidity with dementia or depression. These are all associated with poorer delirium outcomes. Important predictors of poor outcomes in patients with delirium have been demonstrated. These could be used in clinical practice to focus direct management and guide discussions regarding prognosis. These results also demonstrate a number of key unknowns, where further research to explore delirium prognosis is recommended and is vital to improve understanding and management of this condition. Copyright Š 2015 John Wiley & Sons, Ltd. ________________________________________________________________________________ Title: Early-onset Alzheimer's disease versus frontotemporal dementia: resolution with genetic diagnoses? Citation: Neurocase, Apr 2016, vol. 22, no. 2, p. 161-167, 1465-3656 (April 2016) Author(s): Sha, Sharon J, Khazenzon, Anna M, Ghosh, Pia M, Rankin, Katherine P, Pribadi, Mochtar, Coppola, Giovanni, Geschwind, Daniel H, Rabinovici, Gil D, Miller, Bruce L, Lee, Suzee E Abstract: We report a diagnostically challenging case of a 64-year-old man with a history of remote head trauma who developed mild behavioral changes and dyscalculia. He was diagnosed with clinical Alzheimer's disease (AD), with additional features consistent with behavioral variant frontotemporal dementia. Structural magnetic resonance imaging revealed atrophy in bilateral frontal and parietal cortices and hippocampi on visual inspection and left frontal pole and bilateral anterior temporal
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encephalomalacia, suspected to be due to head trauma. Consistent with the diagnosis of Alzheimer's pathology, positron emission tomography (PET) with Pittsburgh compound B suggested the presence of beta-amyloid. Fluorodeoxyglucose PET demonstrated hypometabolism in bilateral frontal and temporoparietal cortices. Voxel-based morphometry showed atrophy predominant in ventral frontal regions (bilateral orbitofrontal cortex, pregenual anterior cingulate/medial superior frontal gyrus), bilateral mid cingulate, bilateral lateral temporal cortex, and posterior insula. Bilateral caudate, thalamus, hippocampi, and cerebellum were prominently atrophied. Unexpectedly, a pathologic hexanucleotide repeat expansion in C9ORF72 was identified in this patient. This report underscores the clinical variability in C9ORF72 expansion carriers and the need to consider mixed pathologies, particularly when imaging studies are inconsistent with a single syndrome or pathology. ________________________________________________________________________________ Title: Identifying Patients in the Acute Psychiatric Hospital Who May Benefit From a Palliative Care Approach. Citation: The American journal of hospice & palliative care, Apr 2016, vol. 33, no. 3, p. 228-232, 1938-2715 (April 2016) Author(s): Burton, M Caroline, Warren, Mark, Cha, Stephen S, Stevens, Maria, Blommer, Megan, Kung, Simon, Lapid, Maria I Abstract: Identifying patients who will benefit from a palliative care approach is the first critical step in integrating palliative with curative therapy. Criteria are established that identify hospitalized medical patients who are near end of life, yet there are no criteria with respect to hospitalized patients with psychiatric disorders. The records of 276 consecutive patients admitted to a dedicated inpatient psychiatric unit were reviewed to identify prognostic criteria predictive of mortality. Mortality predictors were 2 or more admissions in the past year (P = .0114) and older age (P = .0006). Twenty-two percent of patients met National Hospice and Palliative Care Organization noncancer criteria for dementia. Palliative care intervention should be considered when treating inpatients with psychiatric disorders, especially older patients who have a previous hospitalization or history of dementia. ________________________________________________________________________________
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BOOKS BACK TO TOP If you are unable to find a book, or require a book that is not on this list, please ask library staff who will be able to locate the book for you using interlibrary loan. Please note that some books detailed below may not be available in your local library and would need to be ordered for you. Person-centred dementia care: making services better with the VIPS framework Brooker et al nd 2016, 2 edition
A creative toolkit for communication in dementia care Marshall et al 2016
From the back of the book: What is person-centred dementia care, and how can it be used to improve care for people from diagnosis to end of life? How can we improve services in people's own homes, in care homes, in supported housing and in hospitals? This substantially updated second edition considers recent developments in person-centred care, presenting refreshed guidelines for practice. Dawn Brooker and Isabelle Latham explain the evolution of the key principles of personcentred care that comprise the VIPS model. They describe how it has been applied in diverse service settings, and show how to put the model into practice. A new chapter dedicated to culture of care will help service managers to get to grips with this slippery concept, and includes important information on how to guard against neglectful practice. Case studies from the CHOICE programme, a research project on culture of care, demonstrate the key factors that are important for people living with advanced dementia and complex needs to live well.
From the back of the book: How can carers and relatives support a person's identity, relationships and emotional wellbeing through changes that occur in the later stages of dementia? Drawing on over ten years' experience of working with people with dementia, Karrie Marshall provides a toolkit of tried and tested creative activities to support communication and relationships. Activities are vast and varied, with outdoor activities such as bird-watching and star-gazing aimed at supporting physical health, artistic activities such as collage creation to support identity, and musical activities such as sounds and voice warm-ups to support self-expression. Marshall also sensitively covers end of life care for people with dementia, explaining how emotional support can be provided through gentle breathing activities and even puppetry, as well as covering the legal importance of power of attorney.
Taunton and SomPar NHS staff - Have you visited the EBL eBook catalogue? Follow the links below and login via OpenAthens to read online books free for 5-10 minutes each day, send requests for eBook loans or purchase suggestions Taunton & Somerset eBook catalogue Somerset Partnership eBook catalogue About OpenAthens 8
COCHRANE SYSTEMATIC REVIEWS BACK TO TOP
Reviews from January 2016 Mini-Mental State Examination (MMSE) for the detection of dementia in clinically unevaluated people aged 65 and over in community and primary care populations
GUIDELINES BACK TO TOP NICE Guidelines NG22: Older people with social care needs and multiple long-term conditions- November 2015 NG16: Disability, dementia and frailty in later life- mid-life approaches to prevention- October 2015
UPTODATE & DYNAMED PLUS BACK TO TOP What’s new from our clinical decision-making tools on the topic of dementia. UpToDate (Access for Musgrove Park Staff only) DynaMed Plus Please contact library staff for details on how to access these resources; you will need an Athens password.
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DEMENTIA IN THE NEWS BACK TO TOP Behind the Headlines Link between indigestion drugs and dementia ‘inconclusive’ Alzheimer’s disease ‘wonder drug’ claims are premature Weight loss in middle age: a warning sign of dementia? New clues that Alzheimer’s may have been spread during surgery
REPORTS, PUBLICATIONS AND RESOURCES BACK TO TOP NICE Pathway on Dementia NICE Pathway on Dementia, Disability and Frailty in Later Life: Mid-Life Approaches to Delay or Prevent Onset overview SCIE (Social Care Institute for Excellence) Dementia Gateway th
10 UK Dementia Congress 2015- slides and presentations from this year’s conference Improving Dementia Education and Awareness (IDEA)- Online resource created by the University of Nottingham, listing online courses, news, events and resources. Age UK- resource and information page on dementia. DEEP- the dementia engagement and empowerment project
Comorbidity and dementia: a mixed-method study on improving health care for people with dementia (CoDem) A Health Services and Delivery Research Report Among people living with dementia (PLWD) there is a high prevalence of comorbid medical conditions but little is known about the effects of comorbidity on processes and quality of care and patient needs or how services are adapting to address the particular needs of this population. To explore the impact of dementia on access to non-dementia services and identify ways of improving the integration of services for this population. We undertook a scoping review, cross-sectional analysis of a population cohort database, interviews with PLWD and comorbidity and their family carers and focus groups or interviews with health-care professionals (HCPs). We focused specifically on three conditions: diabetes, stroke and vision impairment (VI). The analysis was informed by theories of continuity of care and access to care.
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Improving emergency admissions care for dementia patients At Wishaw General Hospital in Lanarkshire the Emergency Admissions team decided how to use the Carers Welcome principle to improve the care the offered to patients with dementia. Tracy Dodd, senior charge nurse and Jacqueline Young, nurse team leader, describe their approach to keeping patients together with their carers and also proactively seeking information from the carers whether they are present at the hospital or not. Montreal cognitive assessment for the diagnosis of alzheimer's disease and other dementias Dementia is a progressive syndrome of global cognitive impairment with significant health and social care costs. Global prevalence is projected to increase, particularly in resource-limited settings. Recent policy changes in Western countries to increase detection mandates a careful examination of the diagnostic accuracy of neuropsychological tests for dementia. To determine the diagnostic accuracy of the Montreal Cognitive Assessment (MoCA) at various thresholds for dementia and its subtypes. Evaluation of the Bradford Dementia Friendly Communities Programme This report identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like. This paper shares the lessons that have been learnt. Evaluation of the York Dementia Friendly Communities Programme This report identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme. This paper shares the lessons that have been learnt. Models of dementia assessment and diagnosis: Indicative Cost Review This report identifies and reviews in detail three models of dementia assessment and diagnosis currently being used in dementia care in England. It presents indicative costs for each model, benefits for patients and carers, key messages and considerations about developing the service, giving insight to how a local Clinical Commissioning Group might approach a review of their local services with an aim to making improvements. Challenges on dementia 2020: implementation plan The Prime Minister’s challenge on dementia 2020 set out more than 50 specific commitments that aim to make England the world-leader in dementia care, research and awareness by 2020. The implementation plan sets out how these commitments will be met. It sets out priority actions, and the organisation responsible, across 4 themes. This plan was developed in partnership with a range of stakeholders, including people with dementia and carers. The Influence of Primary Care Quality on Hospital Admissions for People with Dementia in England: A Regression Analysis To test the impact of a UK pay-for-performance indicator, the Quality and Outcomes Framework (QOF) dementia review, on three types of hospital admission for people with dementia: emergency admissions where dementia was the primary diagnosis; emergency admissions for ambulatory care sensitive conditions (ACSCs); and elective admissions for cataract, hip replacement, hernia, prostate disease, or hearing loss.
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TOPIC ALERTS AND UPDATES BACK TO TOP ABSTRACTS AVAILABLE VIA LINKS BELOW- FOR FULL-TEXT PLEASE ASK LIBRARY STAFF
What are the barriers to care integration for those at the advanced stages of dementia living in care homes in the UK? Health care professional perspective st Dementia, 1 March 2016, epub ahead of print FREE FULL TEXT
NHS Evidence Association of Proton Pump Inhibitors With Risk of Dementia- A Pharmacoepidemiological Claims Data Analysis JAMA Neurol. Published online February 15, 2016 Alzheimer’s disease Lancet, Published Online: 23 February 2016
Elsevier Practice Updates Assessment of Eating Behavior Disturbance and Associated Neural Networks in Frontotemporal Dementia JAMA Neurol. Published online January 25, 2016.
Performance and complications of lumbar puncture in memory clinics: Results of the multicenter lumbar puncture feasibility study Alzheimer’s and Dementia, February 2016 Volume 12, Issue 2, Pages 154–163
TRIP Database Efficacy of Cholinesterase Inhibitors in Vascular Dementia: An Updated Meta-Analysis. Eur Neurol. 2016 Feb 27;75(3-4):132-141. [Epub ahead of print] Longitudinal decline in mild-to-moderate Alzheimer's disease: Analyses of placebo data from clinical trials. Alzheimers Dement. 2016 Feb 22. pii: S1552-5260(16)00032-7. doi: 10.1016/j.jalz.2016.01.002. [Epub ahead of print]
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Effect of intellectual enrichment on AD biomarker trajectories: Longitudinal imaging study. Neurology. 2016 Feb 24. [Epub ahead of print] FREE FULL TEXT Could better phenotyping small vessel disease provide new insights into Alzheimer Disease and improve clinical trial outcomes? Curr Alzheimer Res. 2016 Feb 21. [Epub ahead of print] Effects of a long-term exercise programme on functional ability in people with dementia living in nursing homes: Research protocol of the LEDEN study, a cluster randomised controlled trial. Contemp Clin Trials. 2016 Feb 13;47:289-295. [Epub ahead of print]
Medline Plus Amyloid pathology and axonal injury after brain trauma Neurology, Published online before print February 3, 2016 FREE FULL TEXT Benzodiazepine use and risk of incident dementia or cognitive decline: prospective population based study BMJ 2016; 352 (Published 02 February 2016) FREE FULL TEXT Association of Seafood Consumption, Brain Mercury Level, and APOE Îľ4 Status With Brain Neuropathology in Older Adults JAMA. 2016;315(5) Incidence of Dementia over Three Decades in the Framingham Heart Study N Engl J Med 2016; 374:523-532
TWITTER BACK TO TOP The latest from popular Twitter pages dedicated to dementia: Dementia UK @DementiaUK Alzheimer’s Society @alzheimerssoc Dementia Today @DementiaToday Dementia Friends @DementiaFriends
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TRAINING & NETWORKING OPPORTUNITIES, CONFERENCES, EVENTS BACK TO TOP
Alzheimer’s Society Training and resources Dementia training for care providers Health Education England Dementia awareness training RCN Ongoing work at the RCN on dementia care
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Dementia 2020- Transforming Care, Support and Research- 12 April 2016 st
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31 International Conference of Alzheimer’s Disease International- 21 -24 April 2016, Budapest th
Dementia: Quality of Care- 27 April 2016, Manchester Conference Centre th
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SMI Alzheimer’s Conference- 10 & 11 May 2016, London th
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26 Alzheimer Europe Conference- 31 October-2
November 2016, Copenhagen
LITERATURE SEARCH SERVICE BACK TO TOP Looking for the latest evidence-based research but haven’t got time to trawl the databases? Do you need a literature search carried out? Do you need to find evidence to support an improvement? Do you want to know how something has been done elsewhere and whether it worked?
Library staff provide a literature search service for busy clinicians who are pressed for time.
To request a search please complete and return the appropriate form, providing as much information as possible. Alternatively if you would like an assisted search training session, where we will sit down with you and go through the steps of a literature search, then please contact the library. Musgrove staff click here to access literature search form Somerset Partnership staff click here to access literature search form
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TRAINING AND ATHENS BACK TO TOP Most electronic resources are available via an Athens password. You can register for this via the Library intranet page, or from home at www.swice.nhs.uk and following the link for Athens selfregistration. Please note that registering from home will take longer as it will need to be verified that you are NHS staff/student on placement. The library offers training on how to access and use Athens resources, as well as an introductory course on critical appraisal. You can book a course through the Learning and Development intranet page, or by contacting the library directly.
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