( / , ) $ !93 !9 3 s ) . & / 2 - !4 ) / . s ) . 3 0 ) 2 !4 ) / .
Real Moms share with us
Gifts and Giving at home!
Do’s & Don’ts
Gifts of joy
for talking with family during the Season
Pho hot h otto by ©L ©La © Lady dyD d yDra yD rrag gonfl nfl flyC yyCC C /fl CC /flick ickr.com m
“Snowf lakes are one of nature’s most fragile things, but just look at what they can do when they stick together.” ~Vesta M. Kelly
inside this issue... Nov Dec 2015
Features
16 22
16
Real Moms Share
22
Gifting Holidays:
26
Keep the Holidays Happy:
8
Overcoming Challenges and Promoting Enjoyment
The Do’s and Don’ts for talking with Family and Friends
psn community news News & Noteworthy! Special Needs Water Park under way Nick Lachey Lends Support to TOYS“R”US Toy Guide NEW College program to include Special Needs Students
48
31
Four Moms share about gifts and giving in their home
check it out!
31
Holiday Gift Guide Gifts that bring Joy!
real life ( / , ) $ !93 !9 !9 93 s ) . & / 2 - !4 ) / . s ) . 3 0 ) 2 !4 ) / .
34 COVER: Savannah Sava Rose Richardson Image Courtesy: Aware of Angels/ Season Se Atwater Photography
Real Moms share with us
Gifts and Giving
12
Dr. Doug Are Too Many
14
FAPE?
Ask the
PROFESSION PROFESSIONAL AL
Toys & Games Hurting Your Child’s Health?
Is My Child Receiving FAPE?
at h at home home! om ome me!!
Do’s & Don’ts
Gifts of joy
for talking with family during the Seasons
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
3
inside this issue... Nov Dec 2015 your life
26
38 28
RESPITE:
48
Proud Moments
Take a Break to Recharge
Mommy Time Outs Bird’s eye view of the Alaskan Mountains
Celebrating our Children’s Triumphs
in focus
31
Holiday Gift Guide Gifts of Joy that bring us Closer Making Memories with Memorable Gifts Squatting Stuffers and Two Minutes of Movement: A Reasonable Guide to Holiday Movement
44
Tech the Halls and Transform Screen Time to Sharing Time PLUS: TOP 5 Apps of 2015
28
health & fitness Special Diets
46 in every issue
40 4
6 psn contributors 7 from the heart 11 contest/giveaways
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
40
Holidays Require Candy BONUS: Recipe Cards
fun & functional
44
Power of Play Game/Activity: MASSES of Bubbles
Cooking with Kids:
46
Turkey Quesadilla and Cran-Apple sauce Plus: Language Tips
Autism Resources at Your Fingertips! The Autism Community Hub is the best source for resources on Autism Spectrum Disorders (ASD) for individuals and the general community.
AUTISM AWARENESS COMMUNITY HUB
Presented by Children’s Specialized Hospital and Kohl’s Autism Awareness, The Community Hub is the only comprehensive source providing reliable information on Autism in your community. Together, we can build stronger, more inclusive communities. Take an adventure through The Community Hub now! VISIT: VISIT: www.childrens-specialized.org/ www.children-specialized.org/ KohlsAutismAwareness KohlsAutismAwareness
This community service is made possible by the Kohl’s Autism Awareness program at Children’s Specialized Hospital
psn contributors making a difference FOUNDER/EDITORIAL DIRECTOR
Chantai Snellgrove chantai@parentingspecialneeds.org PUBLISHER/EDITOR-IN CHIEF
Tom Snellgrove tom@parentingspecialneeds.org DESIGN DIRECTOR
Chantai Meme Hieneman
Barbara Sher
Eric Chessen
Barrie Silberberg
Ph.D. in Special Education
Pediatric Occupational Therapist & Author
M.S., YCS, Exercise Physiologist
Author
info@parentingspecialneeds.org GRAPHIC DESIGNER
Michael Leisttein info@parentingspecialneeds.org ADVERTISING SALES
Chantai/Judy Jaszcz Corporate Sponsors & Ad Sales Manager sales@parentingspecialneeds.org
Curt Mellott Tracy Felix
Douglas Haddad
Christina Bartlett
Ph.D. (“Dr. Doug”) Author, Full-time Contributing Writer
Ahren Hoffman
Xlinked1 Special Needs blogger
Registered Dietitian
(CTRS), Manager of Industry Relations & Partnerships at the National Lekotek Centerr
MidWest & Lower Eastern curt@parentingspecialneeds.org
Advertising Sales Person Needed inquire at Sales@parentingspecialneeds.org SOCIAL MEDIA SPECIALIST
Shannon Colon Shannon@parentingspecialneeds.org WEBMASTER
Sean Thompson sean@parentingspecialneeds.org
Cristen Reat Co-Founder Bridging Apps.org
Ernst VanBergeijk
Becca Eisenberg
Amanda Morin
Ph.D., M.S.W. NYIT/VIP
Speech Language Pathologist
Education Writer, Special Education Advocate & Author
“For it is in giving that we receive.” ~St. Francis of Assisi Angie Craft
Parenting Special Needs Magazine is available bi-monthly and distributed digitally for free. www. parentingspecialneeds.org Editorial Submission are welcome. We reserve the right to edit, reject, or comment editorially on all submitted material. We can not be held responsible for the return of any submitted materials. Articles and advertisements in Parenting Special Needs Magazine do not necessarily reflect the opinion of the publisher nor does the publisher assume responsibility for statements made by our advertisers or editorial contributors. Acceptance of advertising by Parenting Special Needs does not constitute an endorsement of products, services or information. Parenting Special Needs Magazine, is © 2015 Parenting Special Needs, LLC. All rights reserved. Reproduction in whole or part without permission is prohibited.
Deaf Education Specialist; Spec. Ed. Teacher
PUBLISHED BY: Parenting Special Needs ,LLC 518 S. Valencia Circle S.W. Vero Beach, FL 32968
6
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
4EL s &AX
www.parentingspecialneeds.org
editorial director from the heart
Grace and gratitude I was recently reminded of a trip that got delayed... well, it never happened. My oldest daughter and I had scheduled a trip with her best friend, her mother and cousin to travel to New York City to see the ball drop on New Year’s Eve! ) WAS EXCITED TO GET AWAY AND HAVE A BREAK TO SPEND SOME TIME WITH MY OLDER daughter, do girl things, not have to be responsible for anyone else and just “get away�.
5 THINGS I LEARNED FROM THIS ISSUE
1. There is a new Special Needs water park under way (p.8). 2. Tips to gracefully correct misinformation (p.26). 3. It’s OK to take a break and recharge! (p.38). 4. Fimo dough can be used as a “keepbusy�and fun activity (p.19). 5. That the Gorilla Gym is sturdy and safe and can be used indoors (p.34). Next Issue: Planning/Organizing
We all eagerly checked luggage, got our tickets and checked into the airport and waited for our plane‌and waited‌and waited. Eventually, the ight was cancelled because of bad snowstorms. I don’t recall what year that was, but %6%294().' WAS CANCELLED FOR SEVERAL DAYS %VERYONE IN OUR PARTY CRIED EXCEPT FOR me. I didn’t cry. About a year later at a birthday party, my friend was sharing with HER FAMILY AND FRIENDS ABOUT THIS EXPERIENCE AND SAYING hYOU KNOW #HANTAI YOU handled it with such grace, almost like you just anticipated it. I was most upset for you and felt so bad for youâ€?. I wasn’t sure how to take that response from my friend because I don’t want people to feel sorry for me, or pity me, or even think that way about my life. The “inside scoop reasonâ€? I didn’t cry was because I was, frankly, happy just to be with them (the group) even if it was just sitting in the airport. I got to read two whole magazines without being interrupted; I got to be with adults and I got to have a break from my regular life. I was happy for the time. I ďŹ gured if the plane didn’t take off and we couldn’t go it must be for the best! I’ve learned that things usually work out for the best! I think raising a child with special needs teaches we parents grace. We learn over time to “bendâ€?; we learn to hit all the curve balls that can be thrown at us. We ride the roller coaster even though it scares us (and want to hurl!) because we love our children and our families. And through it we learn to appreciate the view from the top as well as from the bottom. And sometimes even sitting on a bench so we won’t hurl. Others who have not walked in our shoes or “ridden the roller-coastersâ€? (trips to the hospital, sitting through your ďŹ rst of many IEPs, dealing with insurance companies, government agencies etc‌) may not understand and think we are showing such grace. When, in truth, we were just appreciative and grateful to be able to read two magazines and not be interrupted. I’ve learned over the years that I’m not going to be Martha Stewart; I’m not going to have a beautiful tree in the house perfectly decorated; not going to have the meal that’s perfect, with cookies to boot. I don’t strive for that anymore. Instead, I prefer just the simple and fun traditions that are inclusive, bring us closer and can be done with family and friends. We have added some new traditions that have really made our holidays more enjoyable. One started out as a way to encourage my daughter’s speech and turned into one of our family’s favorite traditions: we reciat go around the table and family members are asked to share what they appreciate about each person, or share a favorite memory about each person. Wishing you Grace & Gratitude Merry Christmas/Happy Holidays
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
7
psn community
news
Sharing
updates
Special Needs Water Park under way Morgan’s Wonderland officials broke ground for a multi-million-dollar expansion, Morgan’s Inspiration Island, the world’s first ultra-accessible splash park where guests of all ages and abilities can get wet and have fun together. The target completion date
is Spring, 2017. The park will concentrate on inclusion and inspire guests with special needs to do things previously thought to be impossible. Those without disabilities and those with, including individuals in wheelchairs and guests with hearing and visual impairments, will be able to play alongside each other and gain a greater understanding of each other. The water is even capable of being heated in some areas so guests with sensitivity to cold can still splash and play! Visit: www.MorgansWonderland.com
Nick Lachey Lends Support to 2015 TOYS“R”US Toy Guide The guide is an easy-to-use toy selection resource for those who know, love and shop for children with special needs. It is available now in Toys“R”Us and Babies“R”Us® stores nationwide and online at Toysrus. com/DifferentlyAbled. Because all children are unique, regardless of ability, toys in this catalog are not categorized by disability, gender or age. To see the guide visit:www.Toysrus.com/DifferentlyAbled
College program to include Special Needs Students The University of Georgia is launching a new inclusive post-secondary education program, Destination Dawgs, beginning in spring 2017. The program will assist students with intellectual or developmental disabilities transition into adulthood by fully immersing them in UGA life. The students will reside in on-campus housing, audit classes and be supported by peer mentors who will assist the students in courses and on campus to improve their independent living skills. Visit: www.uga.edu
brain-training
4-Award-Winner Device
Use your voice to boost your brain
"
Forbrain will play a significant therapeutic role in helping children with special needs and assisting in the rehabilitation process for individuals who suffer brain-related traumas.
"
Dr Doug Haddad Educator, Author and Health Expert
ATTENTION Forbrain’s dynamic
filter trains the brain to be more attentive improving not only attention but auditory processing and sensory integration.
SPEECH
Forbrain helps people to improve speech fluency, pronunciation, sound discrimination and rhythm, for clearer and more effective communication.
MEMORY
Forbrain helps people to improve short term memory, which impacts such skills as reading, writing and even chatting.
readers can insert this code in the order form on forbrain.com and receive 30% of discount : 1A0500881 100% Satisfaction or 30-day-money-back guarantee 2 years warranty - 3-5 days delivery.
Meet Raymear The best Christmas gift anyone could give l7-year-old Raymear is a family that will love him forever. This affectionate, friendly young man, who has Down syndrome, is fully mobile, but developmentally delayed. He enjoys his IPAD and computer; for fun he swims and dances. He greets those he knows with a hug and a smile, and calls out their names. Raymear is making rapid strides, but a loving and committed family will make all the difference in the way he grows up. Contact: acoleman@adopt.org
www.adopt.org
�There are no unwanted children... just unfound families�
about our cover...
Great Giveaways Log on to parenting special needs.org click on CONTESTS and enter to WIN these great products.
Want Wiitn! It ? Look for this symbol on pages then enter to WIN at PSN Contests
Smart Friends Busy Sounds Discovery Home from Ableplay
The Great Cheese Chase Board Game from Ableplay
Our cover “Angel” this issue is three year old Savannah Rose Richardson (Savvy). She has been diagnosed with Laryngeal Cleft Type 3, Tracheomalacia, and Bronchomalacia. She is very determined and has an ASL vocabulary or over 300 words. Savvy has just started preschool and loves it. In addition, she loves Super Mario and even loves sharks. While we are not sure what she wants to be when she grows up, it will probably involve something that includes the water, swimming, and helping people.
Magic Moves Electronic Wand from Ableplay
COVER IMAGE COURTESY:
Orbeez
NogginStik
from Ableplay
from Ableplay
AWARE OF ANGELS/ SEASON ATWATER PHOTOGRAPHY www.awareofangels.org www. seasonatwater.com DRESS BY LAURA ASHLEY www.lauraashleyusa.com
Stay in touch in order to W in! Like us on
Subscribe
Facebook.com/ Parenting Special Needs Magazine
Parenting Special Needs.org/ subscribe
SHOES BY FRESHLY PICKED www.freshlypicked.com
Follow us On Twitter PSNMAGAZINE
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
11
by Douglas Haddad, Ph.D.
W
ith the holiday season fast approaching, you can expect a vast array of toys and games to be advertised on television, in flyers, and certainly all over the Internet. Retailers will be gearing up ready to sell the latest influx of toys and games with the latest holiday deals. Take a look around your home for a minute and see how many games, puzzles, toys, and gadgets have accumulated. You may be surprised to discover just how much you’ve amassed and how many of these toys and games are no longer being used. How do all of these toys and games in your home affect your child’s overall well-being?
Creates more anxiety Too many toys equal too many options. And too many options create undue anxiety. As it pertains to video games, a child’s brain goes on overdrive and hyperstimulates a part of the brain responsible for emotional behavior and motivation called the amygdala. This causes
the brain to remain in a hyper-aroused state which results in a heightened state of constant alertness, elevated levels of the stress hormone cortisol being released throughout the body, and an increased desire for stimulation. Siblings argue about toys and tantrums tend to escalate with the number of new toys being introduced.
Prevents a child from fully developing their imagination In general, too many toys of any kind, traditional- or video game-based, can rob a child from delving deep into an activity and making a connection to the mere act of play. A child loses an opportunity to use his/her imagination to be creative and can be overwhelmed and distracted by the sheer number of options.
Decreases the level of appreciation and value for a toy/game A child who has fewer toys tends to value and take better care of their possessions than someone who has many toys readily available. The message that a child with many toys receives is that if something breaks, there will be another toy there to play with.
Takes away from developing valuable life skills Children with fewer toys are forced to share with their siblings and cooperate. Instead of giving up on a game or throwing aside a toy so hastily, children with fewer toys learn valuable life skills such as “stick-to-itiveness”, patience, and determination. If your child travels between you and the other parent’s home regularly, it is important that you are on the same page regarding the number of toys and games at
26 12
PARENTING PARENT T IN I G SSPECIAL P ECIAL NEEDS NEEDS.ORG ORG R
NOV/DEC 2015
advice real life each parent’s house. If not, the parent who has less toys and games will be asked for more and more toys and on will go the toy battle indefinitely. The other parent who has more toys will be doing their child a disservice by exacerbating the negative effects of excessive toys and games on their child.
Dr. Doug’s proposed ssolutions to get your child engaged in the right amount of toys and technology: s 0URCHASE LESS OF THE SAME KIND OF TOY OR video game. s #ONSIDER PURCHASING BOOKS TO STIMULATE YOUR CHILD S imagination and creativity. s 'ET YOUR CHILD INVOLVED IN THE ARTS DRAWING PAINTING writing, singing, playing an instrument). s !LLOW YOUR CHILD TO SELECT ONE TOY OR GAME THAT compliments their personality and interest. s )NSTEAD OF PLAYING A VIDEO GAME OR ONLINE GAME PLAY traditional games such as board games, card games,
“Almost all creativity involves purposeful play.” -Abraham Maslow (American psychologist) strategy games, or puzzles. The holiday l Th h lid season is i a perfect opportunity to play together as a family and strengthen the family bond. For more information on empowering your child and assisting in his/her maturation, decision-making, overall development and becoming super healthy, check out Dr. Doug’s official website: www.douglashaddad.comY Douglas Haddad, Ph.D. (“Dr. Doug”) is a public school teacher, nutritionist and the author of parenting/child guidance book Save Your Kids… Now! The Revolutionary Guide To Helping Youth Conquer Today’s Challenges and co-author of Top Ten Tips For Tip Top Shape: Super Health Programs For All Professional Fields. www.douglashaddad.com
g n i v i e c e R d l i h C y M Is
by Doreen Franklin ou know the acronym – FAPE. But do you know what it means? Do you know what it means for your child?
Y
Spelled out, FAPE is a Free Appropriate Public Education. It means that your child, whether a child with special needs or a non-disabled (typical) child, is entitled to a free and appropriate education in the public school system. Let’s break it down simply and a little further.
Your child with special needs: -
will receive an education and support through the IEP (Individualized Education Plan) free of charge just like their typical peers; you will be charged for fees that typical peers are charged for or asked to bring the same school supplies that the typical peers are asked to bring in
-
should be placed in their least restrictive environment (LRE), and the general education classroom is encouraged as that setting
-
will receive an “appropriate” education; it is not a “better” or “worse” education than their typical peers
-
is able to attend school in the public school system
14
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
unless you as a parent chose to place your child in a private school -
will receive special education and related services, accommodations & modifications (if any) that are agreed to by the IEP Team and then written into the IEP.
Under the 20 U.S. Code § 1400 (d) Purposes -www.law.cornell.edu/uscode/text/20/1400 “The purposes of this chapter are: (1) (A) to ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment, and independent living; ….” FAPE is written in the federal IDEA (Individuals with Disabilities Education Act) law, and is passed down to each state and then to every district so that our children with special needs will
The Family Hope Center presents
© woodleywonderworks/flickr.com
receive services to meet their unique needs. The law goes on to say FAPE will be provided so that our children will be prepared for further education, employment, and independent living which means your child should be able to enter the workforce and live “independently” (which might be in a group home with independent life skills) after high school. Services that are provided to your child through the IEP are to be provided by the School District and parents do not pay for these services. Your child should receive the same education in the public school as their typical peers; it is an equal education with access for your child to the curriculum and school activities. The services provided through the IEP do not “give” your child instruction that is “better or worse” in educating your child, but the IEP will state the services your child needs to meet his/her unique needs. You, as a parent, have the option of placing your child in a private school. Check with your state’s Dept. of Education and your district for the policies that apply to children in Exceptional Student Education for private school placement. Bottom line: your child should be educated in his/ her least restrictive environment (general education classes is suggested) with their peers and receive a free appropriate education in the public school and services and accommodations to meet his/her unique needs through the IEP. w Doreen Franklin Doreen is a Special Education Consultant. She assists families with children with special needs with their IEPs. Doreen & her husband adopted two daughters; both are special needs. Doreen homeschooled their older daughter and has tutored other children.
How to Help Your Child with Special Needs “I can see my son doing things I never dreamed of. Thank you!” If your child has been given the diagnosis of: • Autism • ADD/ADHD • Cerebral Palsy • Epilepsy • Developmental Delay • Down Syndrome Vinnicius and Tatiana P., Connecticut • Dyslexia • or other neurodevelopmental concerns,
FHC is here to help. The Family Hope Center Team has trained thousands of parents from around the world to understand the root causes of their child’s neurological challenges and how to significantly improve their child. This interactive, integrative and practical 3-day Parent Training Conference will teach you how the brain is really ‘wired’ and will give you significant tools and an organized approach to help your child progress.
2 Minutes with Click HERE to watch.
Learn more about this unique and proactive approach at an upcoming Parent Training Program “How to Help Your Child with Special Needs” Call (610) 397-1737 for location and registration information or visit:
FamilyHopeCenter.com
Gifts and Giving Four moms share how they celebrate the Holidays, what they look for when choosing gifts for their kids and tell us about their traditions in their home
Tracy Felix
Background Art Designed by Freepik
16
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
Elisha Von Haidenthaler
Debra Newman
Lisa Ewell NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
17
Tracy Felix We stick together even in the hard times. Life with 3 kids is interesting enough, but when you add in a special boy that is medically fragile and very rare, it adds dds d another level of stress, tears, love, and LOTS of teachable bllee bl us moments. It is awe inspiring to see how each one of us is taught to be better people because of one boy thatt can’t walk or talk. Tells us one gift your child wants? Our son is a doer.r. He loves to interact with others and do things. A few off his favorite things are hitting bumps in the road whilee riding in a vehicle, getting tickled, and being pushed in in heer. his chair on our gravel driveway by his younger brother. nkk Even though he cannot tell us what he wants, we think he would love a cart that attaches to a bike like the ones nees found on this site…www.wicycle.com. We also think esee he would like an indoor play area like anything in these pictures, especially the ball pit, sandbox, swings, mirrors, orrs, s and hammocks. What gift has your child received (regardless of their e eir ed d age) that is still very popular in the house or is used today? Noels favorite toy, by far is the Baby Einstein music turtle. We have extras in the house so we have a back up whenever this one dies. What do you look for when you select gifts for your urr child? We look for anything that lights up or plays music. We look for things that he has to initiate the sound or light, not ones that just play on their own. We try to find things that he can interact with and motivates him to do things he normally wouldn’t do on his own. Large Special Needs Trailer
Baby Einstein Music Turtle
We stick together even in the hard times
18
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
What is something that you and your family look forward to every holiday season (tradition or routine)? Before kids we would always go to the latest church service that we could and I was in the choir. The past few years, because the kids were/are so small we haven’t really had time to do any new traditions as just a family. We have always gone over to the extended families house to open gifts on Christmas morning and we look forward to that every year. As our kids get older we would like to start the tradition of going out to the woods and cutting down a tree as a family.Y
Elisha Von Haidenthaler My boys (10 and 11) are the youngest of four siblings. They have an older borther and sister and were also made “Uncles” in February and have taken to this role! We try to spend time as a family doing things together especially since they lost their father in April. This has been incredibly challenging, but they get through it day by day! Tells us one gift your child wants? My son. Leeloo, is a gaming wizard. He has written his list to Santa giving his reasons why he should be given an XBOX ONE! “I’ve been trying so hard in my new school!” he says. He does go to his older brother’s house to play his XBOX ONE. My other son, Belle, has not asked for anything specific and he is happy with anything he gets! He loves to watch DVD’s so I’m sure he would love a little TV with built in DVD player! What gift has your child received (regardless of their age) that is still very popular in the house or is used today? Every year the boys get some Fimo on Christmas Eve and we sit and make animals and key rings as a family activity. It also helps with the fine motor skills. We then bake the Fimo, glaze it and give the items as presents to relatives! The boys are so delighted knowing people actually use the items and have them on display! What do you look for when you select gifts for your child? The boys are very “sensory” so I have to make sure that they can touch it. They both get new, softer than soft, blankies for the tactile qualities! Leeloo over the years has had gaming equipment because he loves gaming! Belle loves bears that he can dress up and snuggle with at night!
Fimo Clay
XBOX ONE
We spend time as a family doing things together
What is something that you and your family look forward to every holiday season (tradition or routine)? We have for the past few years gone on the London Eye and gone ice skating a few days before Christmas. The boys love this because it’s usually dark but they love the twinkling lights and the fact that its cold and their “breath is smoking like a dragon!” We also celebrate their father’s death by letting off balloons on Primrose Hill near London Zoo! They have one balloon for each year their father lived and a Pirate balloon because he would always be a pirate for them on holiday! They write and draw pictures and they let them go! It is something we do so that the boys feel close to their father and we “Celebrate his Life!”.Y
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
19
Debra Newman I am a divorced mom of twins (one boy and one girl). My twins were born at 26.5 weeks and weighed 2lbs each. My son, Christopher, is non-verbal autistic and requires constant care. My daughter, Kristina, has high functioning autism and suffers from clinical depression. Despite our challenges, we live an active life by participating in many community based activities such as the Autism Walk, special needs community theatre, bowling etc. Tells us one gift your child wants? Because my son is non-verbal, it is difďŹ cult to precisely say what gift he would like. He is happy with his iPad and he takes my android tablet because it has all the pictures of family on it. He loves looking at pictures and videos. So, for the holidays I usually have many gifts under the tree with things that he needs such as clothes, shoes, etc. I know it sounds boring, but it makes him happy participating and opening gifts regardless of what they are. However, he loves Disney (especially the princesses). I think he would really enjoy seeing a live performance or a collection of Disney videos. There is also a Flaghouse split donut that he goes to every time we go to OT. It calms him down and he is so receptive to learning while in it. What gift has your child received (regardless of their age) that is still very popular in the house or is used today? The gift that he still loves is his iPad, it is not only a source of entertainment but he is being taught how to communicate with it. He has an iPad 2 and has used it for about 4 years.
Flaghouse Split Donut
Disney Princess Video Collection on iPad
We enjoy the food and decorations of the season! 20
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
What do you look for when you select gifts for your child? When I look for gifts for my son, I look for things that have light and sound (music). He loves things like that; something that he can operate without a large learning curve so he can enjoy it immediately. What is something that you and your family look forward to every holiday season (tradition or routine)? We look forward to the family time. We all enjoy the food and decorations that come along with the season and the anticipation of what’s under the tree. Every year we always go out for a drive and look at the Christmas lights on the various houses around the city. Christopher especially enjoys this activity. We also look forward to the family visiting and seeing each other..Y
Lisa Ewell Our family is an overall typical American family: a mother and father who work, two kids and a dog. However, one of our children has a little extra something...an extra copy of the 21st chromosome. My daughter, Lizzie, has Down syndrome. She is the youngest of my two beautiful daughters. Although she can be challenging at times, Lizzie has taught me so much about life; things I, otherwise, never would have had the opportunity to learn. I wouldn’t change a thing about her. She certainly is a gift. Tells us one gift your child wants? For Christmas, Lizzie asked for music CD’s, specifically Fifth Harmony. She loves her music. What gift has your child received (regardless of their age) that is still very popular in the house or is used today? The one gift that Lizzie always goes back to is her Barbie Dolls. Her kinetic sand table comes in a close second. What do you look for when you select gifts for your child? When choosing a gift for Lizzie, I try to pick something I know will keep her interest and enhance skills. However, I try to be careful not to get anything too advanced for her. What is something that you and your family look forward to every holiday season (tradition or routine)? Gift-giving at Christmas is handled in two parts: First, the family will exchange gifts on Christmas Eve. Then Santa Claus handles Christmas morning.
Fifth Harmony CD
Kinetic Sand Table
Aside from baking together, our family looks forward to driving through the neighborhood to see the decorated houses. Lizzie especially likes the houses that have lights that move with music.Y
We here at PSN hope that you have been inspired by our Real Moms that have shared, or have gained some new ideas about gifts to give as well as, perhaps, adding a new tradition to celebrate the holidays with your family.
Lizzie has taught me so much about life... NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
21
Gifting Holidays: Overcoming Challenges and Promoting Enjoyment by Kimberli Breen, Meme Hieneman & Victoria McMullen
B
irthdays, holidays and other special occasions (e.g., graduations, weddings) are commonly associated with gifts. Giving and receiving gifts during these celebrations can be exciting and enjoyable, but may also be quite challenging for children with special needs and their families. In fact, it is not uncommon for children to “meltdown” during these occasions. There are a variety of reasons gifting occasions may be difficult. First, exchanging gifts doesn’t happen on a regular basis, and may occur in a disorderly fashion, which may be confusing or stressful for some children. Gifting can feel chaotic or overwhelming if occasions are associated with a great deal of noise and excitement or children or relatives crowded around. Second,
the child with special needs
22
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
Images Courtesy of our Facebook Friends
may not be the focus of attention or recipient of gifts at all occasions or at all times during the events, making the child feel left out. It is difďŹ cult to watch someone else receive a gift if you are not receiving one. Finally, some children do not like the social demands that accompany gifts, especially when excited gift-givers expect immediate feedback on and use of the gifts they gave. We want children to be able to participate fully and enjoy gatherings that involve exchanging gifts. In this article, we offer some strategies to make these occasions better for children and their families.
Prepare Your Child for Occasions An ounce of prevention is worth a pound of success. You can prepare children for gifting holidays. You can place events on a calendar and share information regarding what to expect through social stories (see sidebar), as well as pictures of previous occasions or books or movies about particular holidays. You can contact the host, explaining that you want your child to participate successfully, and ask for speciďŹ c information about the event: s (OW MANY PEOPLE WILL BE IN ATTENDANCE n WILL they be crowded into one area? # #OULD YOU DESCRIBE THE PHYSICAL s
setting and where gifts will be exchanged? s $O YOU HAVE A PLAN FOR THE OVERALL SCHEDULE including when gifts will be exchanged? s !RE YOU PLANNING ANY SPECIAL ACTIVITIES E G involving gifts/prizes/giving or receiving)? s 7ILL THE ATTENDEES NEED ANYTHING IN PARTICULARx and will there be any parting gifts? If your child will be giving someone else a gift, engage them in planning, purchasing, and wrapping the items, talking with your child about what the person might appreciate and possible reactions to expect. If you anticipate your child having difďŹ culty with giving, consider purchasing an item that your child does not ďŹ nd as appealing (making it easier to give away).
Contain the Chaos during Gifting In addition to these preparations, you can make adjustments to the event itself to increase the likelihood of its success. This starts with establishing reasonable goals regarding how long to stay, ranging from dropping by to staying the entire time - and adjusting this depending on how your child is doing that day. It also depends on what you learned about the party schedule, possibly avoiding the most difďŹ cult times. If your child will be the recipient, you may also want to limit how many gifts to open during the event. At some parties, parents opt to delay opening of gifts for a later time, maybe when only close family is left or even to spread over multiple days. You may want to ask attendees d to only bring one gift to make it less overwhelming. ove ov e Y Yo You o can also structure the stru st ru gift giift exchange g to rreduce the chaos. chaa This may ch involve in nvo opening only one gift at-aat-a-time and/or assigning roles assig your child to yo others such and o handing out as ha gifts g fts o gi or collecting
NOV/DEC 2015 5
PARENTING PARENT PAR ENTING ING SPECIAL NEEDS.ORG
23
wrapping. If the gift exchange is likely to take some time, give your child something to keep him or her busy during exchange if that will help. Whenever possible, it is helpful to clarify these expectations and routines with attendees. If things go awry, plan an exit strategy.
Teach Generosity and Appreciation Giving and accepting gifts are skills, and skills are best practiced during less stressful times. It may therefore be helpful to practice what to say and do apart from the gift-giving occasion. You can model these skills as you provide reminders (e.g., “look at the gift and person, hand it to the person/accept it by taking the gift, say thank you - (even if you do not like it)/your welcome, smile or clap if others are doing soâ€?. Part of this instruction may be helping the child to put gifts aside and/or ask permission to examine someone else’s gifts. Thanking people for their generosity after the eventt is also important. You may need to prompt ro ompt your child to thank the host upon leaving and to follow up. A nice way to teach appreciation is to have your child send thank you CARDS $EPENDING ON YOUR CHILD S CAPABILITY YOU CAN provide ďŹ ll-in-the blank cards or pictures of the gifts with “thank youâ€? stamps.
Reward Child’s Positive Behavior As your child is learning these skills, it may be helpful to provide additional reinforcement. This may be in the form of praise for generosity and appreciation or special activities afterward (e.g., visit to the pet shop or
24
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
o the way home). If your parkk on d does not receive anything child durin ng the event, you may during wantt tto consider providing a small parting p small gift (e.g., playdoh, actio n ďŹ gure, balloon from party) action yours se as a reward for positive yourself behavior. behav vi For some so om children, being able leavve a confusing or chaotic to leave enviro on environment may be a relief. If so,, you y prom pro can prompt them to ask or signal that take a break (e.g., by h they h want to lleave or simply i taking a quick walk in the backyard) when you know they have participated as well as they can and had enough, but before they have misbehaved. This will reward their participation, as well as appropriate communication.
Ask about first time buyer special!
877-390-4851
Conclusion:
Does your child struggle to button jeans?
If you can predict it, you can prevent it. Making occasions enjoyable for everyone involved and teaching children generosity and tolerance is possible.
Social Story for Gifting Holidays: “Tomorrow we will be going to Steven’s birthday party. There will be lots of kids and family members there. Everyone will be focusing on Steven and many people will bring gifts. Steven may decide to open gifts during the party. This could be hard. You have a special gift for Steven that we believe he will like. We will ask that he open your gift first. When he does, you will need to wait patiently and tell him ‘you’re welcome’ if he says thank you. If you decide you need a break after he opens your gift, you may go to the backyard for a few minutes and then wait away from the group until the gifts have all been opened. Luckily, Steven’s mother will be providing cake and parting gifts as we leave. These will be nice treats for you.” Y
Independent Dressing!
NO BUTTONS NO ZIPPERS NO HASSLES Full Elastic Waistband Mock Fly Belt Loops Stylish, Comfortable Soft, Stretchy Denim Tagless
www.downsdesignsdreams.org
''
' by Amanda Morin
T
he holiday season is a time to spend with friends and family, but there’s a lot going on that can be tough for kids with special needs. And it can be tough to enjoy the season when not all your friends and family understand your child’s issues or are supportive of how you manage them. You make the season a little cheerier by having a low-key advocacy plan for talking about your child’s issues and some ideas of how to respond to comments that may come up at family gatherings. Here are some Do’s and Don’ts to consider:
DON’T: Assume that people are being ill-intentioned. Some people seem critical or ask questions that may seem insensitive simply because they don’t know much about your child’s disability. Older relatives may misunderstand your child abilities or have outdated about how the issues are managed.
DO: Correct misinformation gracefully. Hearing someone say something patently wrong can make you angry, but try to keep as calm as possible. Gather your thoughts, take a breath and explain what’s incorrect about the assumption. Then provide the correct
26
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
information. It’s helpful to keep in mind that you’re trying to explain and educate, not defend yourself or your child.
DON’T: Feel the need to tell everybody everything. There are some friends and family you may only see a few times of year. If you’re not in touch with them regularly, it’s okay to provide just enough information to make it through the day. For example, “Gwen had a recent surgery and she’s still recovering. She may need to leave the table before the meal is over to rest.”
DO: Figure out what you need to tell certain people ahead of time. There are also people who need more information to help you have a low-key holiday. For instance, if your child has food allergies, it’s important to share with the host of a holiday meal which foods are a problem. If you’re sharing a babysitter with family who live in a different town or state, so you can all enjoy a night out, you’ll need to explain your child’s needs and how to handle them.
DON’T: Worry about the technical terms (unless people want to know). Explaining that John has Autism Spectrum Disorder, Support Level 2, gives people a name doesn’t help them understand what it means for your child. They may know what ASD is, but they might not know how it affects his daily life.
DO: Explain what it means in plain language. Let people know that John may have a hard time with conversation or a difficult time adjusting to the noise or new people. Tell them, too, what they can do to make things easier. For example, “John may not want you to hug him, but he’ll definitely be happy to say hello to you.” The point is to let them know what they can expect and how to help. And encourage them to ask questions!
DON’T: Focus entirely on your child’s challenges. Remember that the holidays are a time for celebration and there are many things about your child to celebrate. Be positive about his accomplishments and bring to light his engaging qualities. Share the small, funny everyday kid things that have happened since you last saw your friends and family.
DO: Let your family celebrate you and enjoy the holidays! At holiday gatherings family and friends are there to support and celebrate you, too. You don’t have to spend all your time talking about your child. There’s plenty of opportunity for you to share in their joys and for them to share in yours. Keep in mind that talking to your family about your child’s issues can be helpful, but it doesn’t have to be the entire focus of your holiday season. Y
Amanda Morin, is an early intervention specialist, education writer, special education advocate and mother of two children with special needs. Her latest book, The Everything Parent’s Guide to Special Education, aims to demystify the special education process and empower parents.
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
27
Mommy’s Timeout: T ake a time out and use V isualization Meditation to relax. Imagine yourself here above the Alaskan Mountains Enjoy the beautiful serenity of this bird’s eye view. Take a couple of deep breaths and begin to let go of any stress. ALASKA MOUNTAINS Alaskan mountains seen from high altitude aboard the NASA P-3B during the IceBridge transit flight from Thule to Fairbanks on Mar. 21, 2013. Photos courtesy of Credit: NASA/Goddard/ Christy Hansen Music courtesy of Ryan Judd www.TheRhythmTree.com
breathing space your life
$FREE Enjoy Any Issue, Any Time! Subscribe S ubscribe N eds” Speciall Ne d to “Sp Today! ting Magazine dedicate en Par E NE LIN N ON E E EE RE FR F st The 1 Click Here
Covering all the Ages & Stages
“Real Life” raising a Child with Special Needs
e Access Anytipm lus
T EVLEENN A D R CA
Priceless n Informatio for Delivered Digitally to you
FREE
E E R F tion p ri sc Sub GET YOURS NOW!
Te EuA GeR rc so R
Needs Serving the Special
COMMUNITY
s.org gspecialneed www.parentin
Parenting Special Needs Magazine is a FREE, online publication. Empowering parents, caregivers, and everyone by providing resources, information and inspiration.
Subscribe FREE Today at WWW.PARENTING SPECIAL NEEDS.ORG
Gifts of joy That bring us closer Every year we always strive to find a perfect gift, or gifts that can be used beyond the holidays. This year’s Gift Guide has some ideas that are not only for your child, but also can involve the entire family and create memories that will last a lifetime.
Artwork by Lana Koopman Design
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
31
Gifts that Make Memories
B
C A Recommended by A Ahren hren H hre Hoffman
Even with all the wonder during the holidays, most kids will tell you that some of their favorite memories have to do with the presents they received and usually that means… TOYS! Lekotek agrees with the kids. As an authority on toys and play for 35 years, we are recalling five memorable toys that are sure to bring joy this holiday season.
D
A) Educational Insight Magic C) Maya Group G Ob For fun Orbeez with Orbeez, just add water. Starting Moves Electronic Wand Provides 90 fun commands, 26 musical tunes and incorporates light shows that flash to the beat of the music. Fundamental learning is provided through auditory, visual and kinesthetic stimulation during play.
B) Peacable Kingdom Great Cheese Chase A board game that has kids working together to get all of the mice—controlled by the players—to the attic for a cheese party. But watch out for the cat who will send them back to the start. This easy to play game is filled with colorful artwork and opportunities to teach kids teamwork.
32
PARENTING SPECIAL NEEDS.ORG
off as small pellets, with water added they grow into gel orbs that provide sensory stimulation. If they start to dry out, all you need to do is add water to watch them grow again.
D) SmartNoggin Toys NogginStik A toy that focuses on skills children need in the first developmental stages of their life. Unlike a traditional rattle, when Nogginstik is tapped or shaken, a soft glow light changes colors between red, green and blue to stimulate the eyes and encourage visual attention.
NOV/DEC 2015
E
E) Vtech Go! Go! Smart Friends Busy Sounds Discovery Home A home playset that inspires imagination and pretend play. Variety of characters and interactions provide open ended opportunities for fun and play.
For more information on these see y org g. products, go to www.ableplay.org. d by by tthe he AblePlay is a website sponsored er, a n nonprofit National Lekotek Center, an authority on products appropriatee for children with special needs at www.lekotek.org. Find us on Facebook!
SPECIAL ADVERTISING SECTION
giftsthatgi e A NEW WAY FOR EDUCATIONAL PLAY!
The Zumo Learning System is an electronic learning system that provides a fun, engaging and accessible learning experience for children of all abilities.
Tactile-Based Interaction Fun Educational Apps Empowering Learning Through Play
Order now by visiting our website http://zumolearning.com/
Shop On-line and Save Time
Squatting Stuffers and B
A) D Dynamax Medicine B Balls Another essential in A Autism Fitness programming, tthe Dynamax balls are soft, easily catchable, and very e ttough. We use these for ssquatting, a variety of different tthrows (push, overhead, scoop), ffrog hops, and overhead carries.
B) Sandbells S Throw them; press p them; carry them; squat w them. Sandbells are with v versatile and can be used at a ability level. Hyperwear any S Sandbells have been a c cornerstone of my equipment l for almost a decade and all list o my Autism Fitness athletes of u them. use
A Recommended by Eric Chessen, M.S, YCS
If I were entirely out of touch with reality and pompous enough to sit here at my computer desk (which I can only do for about twenty minutes at a time before pacing around or lifting one of the heavy things I keep in my home office), and suggest you have a half-hour-to-forty-five minutes free and clear for family movement time during the holidays, it would be right and proper to print this article out so you could add it to fireplace as kindling. You’re busy. The holidays are busy. And can be stressful. So here’s my plan; a few cool items that can be used anytime and just about anywhere, along with a few 1-2 minute exercise activities that can be performed as a break from the craze of the holidays or a break from reality.
34
PARENTING SPECIAL NEEDS.ORG
C) Gorilla Gym For a long time I wanted a youth-friendly pulling/ climbing unit that was sturdy, safe, and could be used in the house. Pulling and climbing are tremendously beneficial activities for developing motor planning, trunk stability, upper body and grip strength. The Gorilla Gym also features a bunch of cool attachments for climbing, swinging, and other monkey business.
C
NOV/DEC 2015
Two Minutes of Movement A REASONABLE GUIDE TO HOLIDAY MOVEMENT O Okay so you have two m minutes, maybe three but definitely not four. Here are d so some movement breaks that you and the family th can take. I get points for ca rh h rhyming there.
Bear walk + Jumps Step 1: Everyone in quadruped (fancy way to say knees and hands on floor)! Step 2: Knees up and bear walk into the next room Step 3: Stand up Step 4: Jump forward 3 times
Family Sandbell Slams Step 1: Set up a designated target on the floor. Options include a spot marker, bullseye target, or fruit cake Step 2: The first participant raises the Sandbell (suggested 2-6lb) and throws it down on the target Step 3: The participant picks up the Sandbell and hands it to the next person
Step 4: Repeat 2-3 times Step 5: Laugh and feel alleviated of that pent-up stress
Dynamax Ball partner Push Step 1: Each partner stands on one side with palms on the Dynamax ball Step 2: “Push” partner begins pushing the ball and partner walks backwards Step 3: Switch roles after 8-10 steps
Sandbell Stackers Step 1: Place 3-4 Sandbells or bean bags in a pile (a spot marker or colored plastic circle works well for this) Step 2: The first participant carries each Sandbell/bag to a designated spot marker, circle, or other place on the opposite side of the room and stacks them up Step 3: Once the first participant is finished, the next player goes
Frog Hop Race This can be performed with or without a Dynamax y ball.
Step 1: Start in squat position with elbows between legs Step 2: Jump forward to designated finish line (colored cones work well here)
Overhead Walk (race or turning cleaning into halfway fun) Step 1: Pick up 1 item (Sandbell, ball, large box) Step 2: Raise overhead and carry to designated spot Step 3: Bonus: Bear walk, crawl, or frog hop back to starting spot Step 4: Repeat until bells, boxes, or balls are completed
Star Jumps Step 1: Start in standing position with elbows close together and knees bent Step 2: Jump up and extend hands and feet, legs and arms to become a human star Step 3: Repeat 3-5 times Now take any of the activities llisted above and create your own 11-2 minute combinations. Start with sstar jumps and finish with Sandbell sstackers, or perhaps start with bear walks and end with Sandbell slams. w Now, of course, I am biased in saying N tthat physical activity can be included d during the holiday. Try it once or ttwice and let me know how it goes in making things a little more fun or at m lleast slightly interesting during g th this is busy, busy time of year. b Eric Chessen, M.S., is the Founder of Autism Fitness. An exercise physiologist with an extensive ABA background, Eric consults with families, educators, and fitness professionals around the world. Eric works with his athletes in the NY metro area and is the author of several E-books. Visit AutismFitness.com for more information.
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
35
Tech the Halls and Transform Screen Time to Sharing Time Music apps YouTube
Recommended by Amy Barry, Cristen Reat and Tara Rocha Gifting technology to a child during the holidays can be a terribly exciting experience. However, being chastised by well meaning relatives or friends about “too much screen” time can suck the joy right out of this thrilling time. Technology is woven into our everyday lives, and we parents have been bombarded by advice on a healthy balance of screen time in terms of quantity, such as limiting screen time or that kids today get too much screen time. At BridgingApps we focus less on technology in terms of quantity, but on quality - that is, how we use technology with our children who have special needs. If used effectively and intentionally, we have found that it can be a fabulous tool for inclusion, engagement, creativity and sharing. Music is the perfect way to bring people together during the holidays, whether it is cooking together, guiding a playdate with friends, or simply enjoying downtime together. Using musicspecific mobile device apps can turn screen time into a holiday sing along or dance party creating priceless family memories. Let the sharing begin!
By Google, Inc. Viewing Christmas songs on the YouTube app is a fun way to get everyone in the holiday spirit. Many feature a sing along version with words captioned at the bottom and animations to engage family members of all ages. We always recommend an adult be present to monitor children while using the YouTube app. Price: FREE iOS: https://itunes.apple.com/us/app/youtube/id544007664?mt=8 Android: https://play.google.com/store/apps/details?id=com.google. android.youtube&hl=en
Pandora - Free Music & Radio By Pandora Media, Inc. Pandora is a radio app that can be used to create personalized audio stations for listening to your family’s holiday favorites anytime anywhere. So, whether you are gathered around the Christmas tree or traveling, your family can enjoy Price: FREE iOS: https://itunes.apple.com/us/app/pandora-free-music-radio/ id284035177?mt=8 Android: https://play.google.com/store/apps/details?id=com.pandora. android&hl=en Full BridgingApps Review: https://insignio.bridgingapps.org/ apps/23092464-cb53-1326-0c10-4bd53812a2e5
CanTunes by University of Victoria We love CanTunes, it allows individuals with cognitive and/or developmental delays to play music independently without the complexities of typical play, stop, pause, and shuffle buttons on regular music operating devices like a CD player or boombox. It has been used with children with cognitive disabilities, fine motor challenges and low vision. CanTunes promotes independence, builds confidence and reduces the need for constant adult or caregiver monitoring. Price: FREE iOS: https://itunes.apple.com/us/app/id670015849 Full BridgingApps Review: https://insignio.bridgingapps.org/apps/ a999a35b-9a8b-6aa9-e3d7-cb81b0aa256a
36
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
BridgingApps TOP 5 Apps of 2015
SnapType
By Brendan Kirchner Price: FREE
Duolingo
By Duolingo Price: FREE
Todo Math: Play and Learn from Counting to Multiplication By Enuma, Inc. Price: FREE
Khan Academy By Khan Academy Price: FREE
Avaz - Help Kids with Autism Speak | Free AAC App for Autism By Avaz, Inc. Price: FREE
If you are interested in searching for more holiday apps, creating your own list of holiday apps and sharing them, please go to BridgingApps.org. BridgingApps, a program of Easter Seals Greater Houston, is a community of parents, therapists, doctors and teachers who share information about using mobile devices with people who have special needs. Amy Barry is the Content Manager and Editor at BridgingApps and mother of five children. Tara Rocha is the Digital Content Specialist with BridgingApps and mother of four young children. Cristen Reat is co-founder of BridgingApps and a mother who found success when using a mobile device with her children who have special needs. All share a passion for mobile technology in education.
giftsthatgi e
Special advertiSing Section
DEVORA, 29, started handpainting artisan picture frames using tactile adapted mittens. She was born missing the bridge between both halves of her brain, and this is an effort to help educate others that everyone is abled in their own way! Her frames can be custom ordered, or chosen from ones in stock. Gift certificates are also available! Order YOURS today!
www.framesbydevora.com framesbydevora@yahoo.com (224) 558-4509
Wishing you a wonderful holiday season, our gift to you
Shop On-line and Save Time
by Colleen Brosnan
M
ost parents I know, both special needs and “typical” ones, have a great deal of difficulty making time for priorities other than work and their children. Most parents may SAY it is important to take a break, but they BEHAVE as if they do not believe that there are priorities beyond work and their children. In this over-scheduled society of ours, we are in constant motion and constantly running to do the next thing on our “to-do” list. To top it off, these are stressful times with the dramatic increase in job losses coupled with a dramatic decrease in people’s bank accounts. It is more important than ever to make time for yourself, to fill up your energy reserves in order to be the best parent, spouse, family member and friend you can be. The pastor at my church, Monsignor Larry Carroll, gaveme a wonderful image about taking a break, a respite or a pause in your life to recharge. He described a way that dealing with the stressors of life is much like a stoplight. Most of the time we are at ‘green’ with the go, go, go of work, therapists and doctors appointments, grocery stores, hardware stores, PPT meetings, etc. You are full steam ahead… until the ‘yellow’ light turns on. What does the ‘yellow’ light mean? Proceed with caution. Look, listen and assess if you need to take a respite from your child and the daily grind of life. The ‘red’ light, of course, is when you actually stop and take a break to recharge. Figuring out the signs of when your yellow light is critical to having a far more harmonious, satisfying and joyous life.
26 38
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
Stress can get to everyone Let’s start with the most obvious and severe examples that your light is yellow. “Many parents, especially mothers, put everyone and everything ahead of themselves,” claims Jennifer Wider, MD, a physician, radio and television personality. “Stress can get to everyone but here a few signs it may be leading to something more serious like anxiety and/or depression:
-Changes in sleep patterns -Feelings overwhelmed or anxious -Changes in eating habits. -Anger or mood swings -Relationship problems (spouse or other family members) If the symptoms are getting in the way of your daily functioning, it’s time to get help! Don’t suffer in silence-sometimes just talking out how you are feeling can make a big difference.” Family and friends can help you by allowing you to vent; but often when these symptoms occur, you may need the help of a trained therapist to get you back on track.
advice your life Tune in to see if you need a break Those are more extreme examples that you have neglected yourself for too long. Most of the time, symptoms will be less extreme and you will need to tune in to see when a break is needed. A sure sign for me is when my normally long fuse becomes very short and I lose my patience with my children, my husband and my life in general far too easily. Leila becomes a cleaning fanatic (a problem my husband wishes I had) and cleans her house to control “something” in her life. For Bob, he knows he is past due for a break when he begins to dread going home from work several days in a row. Tom goes to the gym and works out like a maniac because he HAS to do it. Martha seeks comfort in junk food, “Chocolate covered pretzels make me feel better, but only for
about 5 minutes, so I keep eating them.” She says. You need to take a moment and inventory what your ‘yellow’ light signs are. It is best not to try to identify what those signs are while you are under stress. Choose a time that you are relatively calm and look back and see if you can point out some of the warning signs that you needed a break with a bit of perspective. Having that list in a place you see daily (think bathroom mirror or refrigerator) can help remind you to take a break when needed. Do you think it is selfish to take a break when you have a special needs child? If so, here is a bit of advice: get over it. Not only will you benefit, but also those around you, including your children, will enjoy the benefits of a relaxed and happy person.Y Article adapted from PSN Magazine; 11/2009
Helping your child thrive and ÀRXULVK ABR improves... Respiration Digestion and food absorption Sleep Trunk strength and posture Weight-bearing performance Balance Gaze Alertness HAPPINESS T: 514-328-9837 info@abrcanada.com www.abrcanada.com https://www.facebook.com/abr.canada
NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
39
health & fitness special diet
Holidays Require
CANDY by Barrie Silberberg
P
eople on special diets can still enjoy the holidays; it just takes a little bit of extra planning and organizing! Besides family, the most important thing about the holidays seems to be about the food. There are special meals, visiting relatives, vacationing and more during this time of year. All of which include eating and usually gift gifting. With careful planning ahead, your family can enjoy a wonderful holiday season, including the cuisine. Another important part of the December holidays is the gifts. Sometimes gifts can include food, especially candy for children. Candy can be purchased at a variety of locations. Below you will find several web sites that offer allergy friendly and allergy free concoctions. Some of these candies can be ordered directly from their web site or can be ordered from other popular web sites like the grocery and gourmet section of www.amazon.com . Go to the web sites and see if the items you would like to purchase can be located at stores in your neighborhood (look for the “stores” or “locations” tabs).
Candy Gifts One of the best online web sites for natural, nonchemical candy is Natural Candy Store. By going to their web site: www.naturalcandystore.com/category/special-diets , you can “check off” up to 37 items in order to search for candy that fits your needs. These 37 items are categorized into four sections: Special Diets (such as Feingold), Allergen Diets, Made Without and Sweeteners. You can check off as many boxes as you need in order to find the perfect candy! You can search for a certain type of candy: taffy, chewy, chocolate, jellies, lollipops, mint, caramel and more. You can also search by price, holiday, brand, colors, flavors or size. Free samples are included in each order! Premium Chocolatiers www.premiumchocolatiers.com has allergen free candies. They are guaranteed free of all nuts, gluten, dairy, and eggs. Their candies are Vegan and all natural, too. They form chocolates into many unique holiday shapes. Another company that cares about providing natural candies is the Surf Sweet Corporation. They use organic
40
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
ingredients that are 100% nut free, gluten free, dairy free, soy free, and the candy tastes like the organic fruit juices that they use with no corn syrup! They have some Vegan products, too. They carry gummies in a variety of shapes, including holiday shapes, jelly beans, rings, worms, and bears. Their web site even shows creative ways to turn the candy into gifts. www.surfsweets.com. You can go to the location tab to find out where you can purchase their candies at stores near you.
Fudgy Hanukkah Gelt (adapted to be GFCF) Recipe Courtesy of Barrie Silberberg 1 lb semisweet GFCF chocolate 1 lb powered sugar 1⁄2 cup unsweetened cocoa powder (pure) 6 tablespoons Earth Balance margarine 5 tablespoons alternative milk (potato, rice, cashew, coconut, almond, etc) 1 teaspoon vanilla 1. Coat baking sheet with non-stick cooking spray. 2. Chop chocolate. 3. In a double boiler, combine all ingredients, stir until melted and well blended, about 10 minutes. 4. Spread chocolate mix onto prepared sheet about 1/3” thick. Let cool 5 minutes. 5. With a 1 1/2” round Hanukkah cutter, cut out “gelt”. 6. Place on waxed sheet and chill for 15 minutes to harden. Re-melt leftover and repeat the process. Fudgy Hanukkah Gelt original recipe found on food.com Recipe Courtesy of Barrie Silberberg
www.parentingspecialneeds.org
Make Your Own Holiday Candy Gifts
Chewy Pumpkin Spice Candy
Gluten Free/Dairy Free Sunbutter Truffles
Recipe Courtesy of Jessica Espinoza
Recipe Courtesy of Carol Kicinski
20 oz. of pumpkin seeds, sunflower seeds, or nuts of your choice 3/4 cup ghee 1/8 cup virgin coconut oil 1 cup honey 1/4 cup maple syrup 1 tbsp. pumpkin pie spice 2 tsp. vanilla extract OR 1 tsp. vanilla bean powder 1/2 tsp. sea salt, plus a tad more for sprinkling as the bars cool
2 – 12 oz. packages dairy free dark (Bittersweet) chocolate chips – use divided 1 cup Natural Crunch or Creamy Sunbutter 2 tablespoons coconut oil 2 tablespoons agave nectarr ½ cup coconut milk ½ teaspoon kosher or sea salt 2 teaspoon pure vanilla extract For rolling choose one, all or a combination of: 1½ cups toasted coconut flakes (toast in 350 degree oven for 8 – 10 minutes until golden brown) 1½ cups coconut flakes 1 cup unsweetened cocoa powder 1 cup confectioners’ sugar – sifted ½ cup unsweetened cocoa powder mixed with ½ cup confectioners’ sugar – sifted
1. In a large frying pan, combine the ghee, coconut oil, honey, maple syrup, salt, pumpkin pie spice, and vanilla over medium heat. Stir it while it heats up to keep everything mixed together. 2. When the mixture starts to bubble, add your seeds (or nuts). Please be careful not to splatter yourself. This glaze is H.O.T. (don’t ask me how I know). Stir the seeds around until coated and smooth them out in the pan so they are in an even layer. 3. Lower the heat to low or medium low (depending on your stove) and let the mixture continue to bubble, stirring occasionally. The sauce will continue to thicken and reduce, but be sure to watch it closely, as it can burn quickly. 4. Keep stirring until the sauce has thickened (approx. 8-10 minutes). 5. Remove the mixture from heat and let it cool for a few minutes. 6. Spread in a single layer on a silicone mat (if you have one). You can also use wax paper. I like to sprinkle a dash of sea salt over the brittle at this time. 7. Let cool on the counter for 15-20 minutes and then you can transfer to the fridge or freezer to continue the cooling process. 8. Break or cut into pieces and serve. Store in an airtight container in the fridge or freezer. Serve at room temperature.
1. In a large microwave-safe mixing bowl, combine 12 oz. chocolate chips, the Sunbutter, coconut oil, agave nectar and salt. Microwave for 2 minutes or until the chocolate has mostly melted. 2. Heat the coconut milk to the boiling point. Pour the hot coconut milk over the chocolate/Sunbutter mixture and let set for 2 minutes. Add the vanilla. Stir until mixture is thick, smooth and glossy. Put mixture into an 8x8” baking dish and refrigerate for 1 hour. 3. Scoop the mixture into small balls and place on a sheet pan lined with parchment or wax paper. Refrigerate for at least 30 minutes. 4. Place the remaining 12 oz. of chocolate into a microwave safe bowl and heat for about 2 minutes, stirring once or twice until the chocolate is fully melted and warm to the touch but not too hot. 5. Dip the balls into the melted chocolate and coat fully. Then place the truffle in a bowl with one of the rolling ingredients, fully coat. Place on a sheet tray lined with parchment or wax paper and repeat. 6. Let the truffles set up in a cool place or in the refrigerator for about 1 hour. Truffles are best served at room temperature.
www.parentingspecialneeds.org
Recipe found on www.deliciousobsessions.com
www.parentingspecialneeds.org
Recipe found on www.simplygluten-free.com NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
41
Gluten Free/Dairy Free Christmas Bark Candy Recipes Recipe Courtesy of Carol Kicinski
Pistachio Cranberry Bark One 11 oz bag of semisweet chocolate chips 1 cup white chocolate chips 1 ½ cups roasted, salted pistachios, coarsely chopped 1 cup dried cranberries Line a sheet pan with a piece of parchment or waxed paper. Place the semisweet chocolate chips in a microwave safe bowl and heat on high until most of the chips are melted (about 2 minutes). Stir until all the chips are melted and the chocolate is smooth and glossy. Add 1 cup of the pistachios to the chocolate and stir to combine. Pour onto the paper and spread into an even layer with a spatula about an eighth to a quarter inch thick. Put the white chocolate chips in a microwave safe bowl and heat on high until they start to melt, about 1 ½ minutes. Stir until smooth. Drop spoonfuls of the white chocolate here and there with a spoon onto the semisweet chocolate. With a knife or back of a spoon swirl the white chocolate into the semisweet. Sprinkle the rest of the pistachios and the cranberries over the top. Let cool. Place in the refrigerator until hard (about half an hour). Cut or break into irregular sized and shaped pieces.
Candy Cane Bark ½ cup peppermint candy or broken candy canes One 11 oz bag of bittersweet chocolate chips One 11 oz bag of white chocolate chips Line a sheet pan with a piece of parchment or waxed paper. Put the candy or broken candy canes into a plastic bag and crush with a rolling pin or heavy skillet until you have small pieces. Place the bittersweet chocolate chips in a microwave safe bowl and heat on high until most of the chips are melted (about 2 minutes). Stir until all the chips are melted and the chocolate is smooth and glossy. Pour onto the paper and spread into an even layer with a spatula about
an eighth to a quarter inch thick. Put the white chocolate chips in a microwave safe bowl and heat on high until they start to melt, about 2 minutes. Alternatively you can put the chips in a heatproof bowl over a pan of barely simmering water (making sure the bottom of the bowl does not touch the water) and melt the chocolate. Stir until smooth. Drop spoonfuls of the white chocolate here and there with a spoon onto the semisweet chocolate. With a knife or back of a spoon swirl the white chocolate into the bittersweet. Sprinkle the candy pieces over the chocolates. Let cool. Place in the refrigerator until hard (about half an hour). Cut or break into irregular sized and shaped pieces.
ADDITIONAL RESOURCES: *SITES FOR NATURAL/ORGANIC/ CHEMICAL FREE CANDY CANES AND PEPPERMINT CANDIES (Or check your health food store) NATURAL CANDY STORE LINK: www.naturalcandystore.com/category/natural-candy-canes
TRUE JOY SWEETS LINK: www.trujoysweets.com/products/candy-canes/
GIAMBRIS LINK: www.giambris.com/All-Natural-Peppermint-Candy-Canes-1Doz_p_1690.html
Barrie Silberberg is the author of The Autism & ADHD Diet : A Step-by-Step Guide To Hope and Healing by Living Gluten Free and Casein Free (GFCF) And Others Interventions. Her web site is: www.puttingyourkidsfirst.com www.parentingspecialneeds.org
Recipe found on www.simplygluten-free.com
42
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
Join the Florida APBS Network. Membership provides:
‡ $FFHVV WR GLYHUVH JURXS RI LQGLYLGXDOV UHVHDUFKLQJ VXSSRUWLQJ LPSOHPHQWLQJ DQG XWLOL]LQJ 3%6 SUDF WLFHV DFURVV )ORULGD
‡ 5HDO WLPH LQIRUPDWLRQ DERXW 3%6 SROLF\ WUDLQLQJ RSSRUWXQLWLHV HYHQWV DQG ZHE EDVHG UHVRXUFHV
‡ 2SSRUWXQLWLHV WR VKDUH \RXU ZRUN NQRZOHGJH DQG HYHQWV DVVRFLDWHG ZLWK SRVLWLYH EHKDYLRU VXSSRUW
‡ &RQQHFWLRQ WR QDWLRQDO DQG LQWHUQDWLRQDO RUJDQL]D WLRQV DQG DFWLYLWLHV
)DPLO\ PHPEHUV WHDFKHUV DGPLQLVWUDWRUV UHVHDUFK HUV WKHUDSLVWV VWXGHQWV DQG RWKHU VXSSRUW DQG VHUYLFH SURYLGHUV DUH ZHOFRPH
WWW.FLAPBS.NET
Give the Gift of Games
www.gameslady.com amazon.com/author/barbarasher-gameslady
GOT GAME? Barbara Sher’s new book (available 12/10/15)
fun & functional power of play
by Barbara Sher
I
t’s the holidays and the kids are milling around nd looking nd for something to do. You got the solution and it’s everyone’s favorite—bubbles. Except, instead of one small bottle and a wand, your group plays together to produces masses of bubbles! All you need is a big bowl like a large salad bowl, water, liquid dish washing soap and one straw per person. Squirt one tablespoon of liquid dish soap into a bowl and fill one third of the bowl with water. The game is for everyone to blow through their straws into the bowl. The delight is watching the bubble monster grow and grow and see how big it can become before if topples, spectacularly, over the rim of maake the bowl. Children can poke the bubbles and make them pop before blowing again. p the bubbles es es If you’re worried that your child will suck up rather than blow them, you can make a little cut near the top of the straw that will prevent liquid from going into their mouth. You can vary the challenge with the size of the straw. Aquarium tubing works well and you can cut the length you wish. The longer or wider the straw, the more muscle control you need to blow. If you want a rainbow thrill, add food dyes to see bubbles of many colors fill and tumble over the bowl.Y GOT GAME? This game is from Barbara Sher’s new book (available 12/10/15): Everyday Games for Sensory Processing Disorder: 100 Playful Activities to Target the 10 Most Common Sensory Issues in Children with SPD. Also enjoy another recent book PLAYFUL MOMENTS, which has 52 spontaneous games for babies to teens at: amazon.com/author/barbarasher-gameslady
44
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
parent pare aren en e n tingspec ingspec ing e c ialnee i lneed ed dss.o ..or org o rg
Š 2011 011 Fo Fox xB Broa r dcasting roadcast ttiing C Com ompa pan p ny
Lauren Potter - American Actress As an actress, Lauren has appeared on the hit show, Glee, but she is also an advisor to the White House for People with Intellectual Disabilities and appointed by President Obama. Lauren was born with Down Syndrome.
no limits!
Support Different-Ability Awareness
Turkey Quesadillas & Cran-Apple Sauce Encouraging Speech & Creating Yum!
by PSN TEAM Language Tips by Becca Eisenberg
Ingredients 8 (8-inch) whole grain tortillas (Food for Life brown rice tortillas) 1 cup (4 ounces) shredded Daiya delicious dairy free mozzarella shreds or (other cheese) 2 cups shredded cooked turkey 2 handfuls baby spinach leaves 1 teaspoon Vegenaise (or your favorite mayonnaise)
T
he Thanksgiving holiday comes and goes so quickly, so much time is spent preparing for one meal that often times there is not time to actually enjoy the food. Here is an easy, fast, great tasting recipe you and your child can make together with any of the leftover Turkey.
Cran-apple sauce 2-3 tablespoons cranberry sauce) Âź cup apple sauce
46
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
foodie fun fun & functional
Language Time Tips:
Cooking Directions (for one) Adult: Preheat oven to 350 degrees. Adult/Child: Layout out
two tortillas on a sheet of non-stick parchment.
Child: Spread Vegenaise (mayonnaise on one side of each tortilla.)
Child: Sprinkle about a ½ cup of shredded turkey on top of tortilla.
Child: Pick five to six baby spinach leaves and place on top of turkey.
Child: Top with Cheese
1.Build vocabulary with nouns and actions! Nouns that can be targeted are the actual ingredients in the recipe: tortillas, cheese, turkey, spinach, vegenaise, cranberry, apple sauce. Other vocabulary can focus on specific cooking materials you need including: a pan, parchment paper, pizza cutter and plate. Action words targeted can include: shred, spread, mix, spray, lay out, sprinkle, pick, top, cut, move, remove and serve. Eating of course is the most motivating! 2.Colors and Size: This recipe is very colorful with the cran apple sauce. The tortilla, turkey and cheese are within the yellow, brown and white family. The cranberry sauce is bright pink which is an excellent contrast to other colors in the recipe. With regard to size, ask your child “How large would you like your piece?” Cut the wedges into 2 slices and then cut the other half into 2 slices. Which wedges are bigger? Which are smaller? 3.Comment and Describe! Focus on commenting
Child: Put the top of the other tortilla with
with the various tastes and textures of this recipe. The cranberry sauce can be chunky or smooth. The applesauce can also be smooth or chunky. How does the quesadilla taste? Crunchy and warm from the pan? Model words such as “sweet” (for the sauce), “tangy”
Adult: Move Tortilla to heated pan, cook until
(for the vegenaise), etc
mayonnaise side down over the first tortilla
the underside is lightly golden and flip over. Cook until cheese is melted. Remove from heat and serve on plate.
Child: Use a pizza cutter and cut quesadilla in
half and then half again. Creating 4 wedges and serve with prepared cran-apple sauce
Eat! Talk! Enjoy!
4.Sequencing and recalling information: The steps are simple and easy which makes it a perfect task for recalling information and helping your child discuss the steps of the recipe. Ask your child, “What did we do first?”, “Did we cook the quesadilla before or after we put the cheese on?” If it’s easier for your child, take some photographs and use them as visual prompts.
5.Answering and asking “wh” questions: “What did we make today?”, “What ingredients did we use?”, “What are we dipping our quesadillas in?” Encourage your child to ask questions throughout cooking together. If needed, model a question for your child and leave the ending off, “What does the pan need to be ______(hot) when we put the quesadilla in?”
Becca Eisenberg is a mother of two young children and a speech language pathologist, author and instructor. Her website, www. gravitybread.com encourages learning time during mealtime. On her website, she writes children’s book recommendations, app recommendations, as well as child friendly recipes with language tips their family. NOV/DEC 2015
PARENTING SPECIAL NEEDS.ORG
47
proud moments®
celebrating triump hs
Sharing“I CAN!” attitudes
Looking Good!
My autistic son, Alex, drew this self-portrait five years ago today when he was 8. He has always been incredibly gifted, and has taught me to appreciate life in all its glory, no matter your circumstances. He just keeps getting more and more impressive each and every day. His smile lights our path in life, and his compassion guides our journey. Alex, you are truly a blessing and you will forever have my heart!. Y
~ Angela Ray M. (Proud Mom)
Army Cadets Winning Team My 14 year old son (who has Aspergers Syndrome & ADHD) along with his fellow teammates winning the army cadets’ tug of war competition. I sat on the edge of my seat the whole time and I couldn’t have been more proud of him!Y ~Amanda C. (Proud Mom)
Hard Work Pays Off My daughter attends OT for tremors, SPD, and other issues and goes to therapy year round. At the beginning of summer, my almost 7 year old wanted an OT goal to be tying her shoes; three months of weekly tries later.... BAM! You CAN do anything! ! — feeling proud! Y ~ Mary W. (Proud Mom)
Winning a different lottery I had something happen to me one cold and dark winter’s morning getting my son up for school. I went into his bedroom to wake him up for breakfast. I normally go to his bed to give him lots of kisses and tell him that breakfast was ready and out of nowhere, and for the first time in his life, he said “I love you”. I can’t tell you how I felt to hear this for the frist time. I had given up hope to hear these words. My son has Down syndrome and is a little guy of few words. He has a very limited vocabulary. I always hoped he would be able to say more but after a few years, I understood that he probably was not going to say too much, but he does make himself understood in his own way. That was one of the best mornings I’ve ever had....I felt like I had won the lottery. Lots of best wishes to all of you from Sweden.Y ~ Pia K. (Proud Mom)
Share a Proud Moment with us Next Issue! Proud Moments can be any time that you have been extremely proud of your child with special needs. It can be when they are giving it their all or reaching a milestone. We share Triumphs every Tuesday on Facebook or send via email to submit@parentingspecialneeds.org
48
PARENTING SPECIAL NEEDS.ORG
NOV/DEC 2015
Images courteousy our Facebook Friends
Get Noticed,Get Promoted in our... EXTRA PERKS when you list with us!
Resource Directory www.parentingspecialneeds.org Serving the Special Needs Community
Here’s to you! TO ALL OUR PARTNERS, HELPING US TO UNITE THE SPECIAL NEEDS COMMUNITY To inquire about becoming a PSN Partner for PSN Parents, email: info@parentingspecialneeds.org