MS Connection by National Multiple Sclerosis Society, Gateway Area Chapter

MOVING TOWARD A WORLD FREE OF MS | SPRING • 2010

GATEWAY AREA CHAPTER

Overcoming OBSTACLES

Staying Motivated ANXIETY

FATIGUE

MONEY

FAMILY

WORK

TIME

2 7

CROSS WORD PUZZLE 3

9 10

Night of 1000 Stars PAGE 6

Ask the Professional PAGE 10

From the Board PAGE 11

NEW! 17

MS Brain 20 Games PAGE 13 21 22

ON THE COVER

It seems like everywhere we look there can be obstacles or hurdles in the way of our moving forward. It’s hard to find time to exercise or relax. Sometimes it can be difficult to balance

work and family. In the recent economy raising money can be challenging. When fatigue and

anxiety hit, it can be

INSIDE THIS ISSUE

Features KEEP ON WALKING | 3 Knese Family Team strolls through a decade of Walk MS A LITTLE HELP FROM MY FRIENDS | 4 Wellness Network helps to keep you moving through your exercise routine

In Every Issue

VOLUNTEER COLUMNS | 8-9 Charlie Ries and Kathy Caveny share how they got involved with the Society and stay motivated ASK THE PROFESSIONAL | 10 Occupational Therapist Peggy Neufeld discusses ways to stay motivated

SPEAKING OUT – EDUCATING OTHERS | 5 Advocating begins at grassroots level with storytelling

FROM THE BOARD | 11 Michelle Keating has been a valued and dedicated member of our board for 15 years as well as team captain of one of our most successful Walk MS teams

SHINING STARS | 6-7 Chapter honors its achievement award winners at Night of 1,000 Stars

GETTING TO KNOW US | 12 There’s no off-season for our Development department

A DIFFERENT APPROACH | 16 Wii exercises mind and body from the comfort of your couch

a chore to do anything. In this issue read about how people in the Chapter are staying motivated and clearing those hurdles. 2 |

JOIN THE MOVEMENT: nationalMSsociety.org

MS BRAIN GAMES | 13 Exercise your mind with an MS crossword puzzle CHAPTER NEWS BRIEFS | 14 Read all about what’s going on in the Chapter RESEARCH | 15 Understanding “Benign MS” FROM THE PRESIDENT | 18 A letter from Chapter President Phyllis Robsham

DEVELOPMENT

Suzan Knese and her team have been walking for a decade and are showing no signs of slowing down. Walk MS kicks off in April. Go to gatewaymswalk.org to find a walk near you!

THIS TEAM WAS MADE FOR WALKING Suzan Knese has been participating in Walk MS for a decade raising nearly $25,000 in that time. She never has problems staying motivated to fundraise or to get her Knese Family team, to lace up their shoes for Walk MS in Clayton each year. Suzan finds plenty of motivation every time she visits her neurologist. “For me it’s a testament to all those people whose daily lives are affected by MS and the uncertainty and challenges that come with it,” Suzan said. “It’s for the people I see in the doctor’s office who are in wheelchairs and it’s just by a stroke of luck that I’m not. It’s an opportunity to give back and pay tribute to people who have been so affected. It’s a chance to raise money to find a better treatment and ultimately a cure for MS.”

Suzan was diagnosed with MS in 1999 shortly after having her second child, but she knew about MS long before that, as her friend’s mother lived with MS. “From a very young age I was exposed to MS and its devastating effects,” Suzan said. “I saw her go through all the myriad of treatments from FDA-approved therapies to exploratory ones. I grew up with her and saw her go from using a cane, to a walker, and eventually to a motor scooter.” Now, being a team captain for her Walk MS team is just something that Suzan does and she doesn’t consider stopping.

does,” Suzan said. “I explain how it feels to stand up and fall down or not being able to stand and the uncertainty that comes with MS. It’s about making it personal and having people understand that it’s something near and dear to my heart. I personally handwrite thank you notes to those who donate to me. I just want them to realize that I do appreciate what they do.” Her approach certainly works as in 2009 she had her best fundraising year yet, with nearly $5,000 raised despite the difficult economy. Suzan also appreciates her teammates, who include family and friends. She has used Walk MS as a bit of a reunion of sorts for her sorority from Southeast Missouri State University.

“The motivation for me is I know this is something that I made a commitment to that affects my family and me,” she said. “It’s part of who I am.” “I have a group of girls from my sorority who have been Her fundraising philosophy is incredibly supportive in my pretty simple – she just asks. walk,” Suzan. “I try to make it fun that the girls are getting back “I start out by thanking people together. It’s become like an for donating in the past and if annual reunion. It’s a fun event.” they can only donate $10 to acknowledge what that $10 TOLL FREE NUMBER 1 800 344 4867

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PROGRAMS

STRENGTH IN NUMBERS NETWORK HELPS MOTIVATE ITS PARTICIPANTS Everyone knows the benefits of regular exercise. You feel better and have more energy. The trouble is sticking with an exercise regime, especially for someone living with multiple sclerosis with fatigue being such a common symptom. Adrian Takir, diagnosed with MS in 1990, says every area of her life has been affected by the disease. Despite challenges, Adrian decided to get involved with the Chapter’s Wellness Network and now makes exercise an important part of her life. She began taking yoga classes seven years ago. Toni Kodner, a volunteer at the Society who also has MS, facilitates the Wellness Network and is moved by Adrian’s sheer determination when she shows up to class in a wheelchair. But to Adrian, it’s worth the extra effort. “I have learned through persistence that the practice of yoga makes a difference in my life,” Adrian said. “In many ways without it I lose out physically and emotionally at the very least.” She also participates in the Wellness Network’s seminars and other 4

events featuring health and exercise professionals. She is determined not to be viewed as different, but as someone who simply does things a little bit differently. “I always told my daughter growing up that we were just like everyone else,” Adrian said. “Every family, each person has something or someone in their lives or a condition that makes it more difficult to be ‘regular’. Some are just more visible than others.”

golfing with her husband, attending the theater and dining out. The Wellness Network has helped her have more control over her MS. “I’m depending on the Wellness Network to keep me motivated to be the best that I can be,” she said.

Judy Dawson, a retired teacher and a voluntary educational surrogate, has also been involved with the Wellness Network since its beginning. Judy was diagnosed in 2004 but thinks she had the disease a few years before that. She first came into contact with the Chapter online and later attended Tai Chi classes. She now tries to stay as involved and motivated as she can and credits her exercise success to the on-going support system. “Toni, our facilitator, has been so influential. Her calls and the Chapter’s e-mail reminders are very motivating,” Judy said. “My sister, Jeanne, who works at the fitness center that I joined, keeps me on track. I’ve also met someone in my stretch class who has MS and is another motivating influence.” MS presents Judy with challenges every day but she continues to do as much as she can including

JOIN THE MOVEMENT: nationalMSsociety.org

It’s always easier and more fun to exercise in a group setting. See pages 28-29 for a listing of therapeutic recreation programs and page 30 for information on the Chapter’s Wellness Network.

ADVOCACY

COMPELLING STORIES HELP CREATE CHANGE Advocating for any cause can be a challenge. You have to get someone’s ear and make your story compelling. A strong memorable message sticks in the mind of a voter or government official and can help cause action in advocacy. Chris Lepper, diagnosed with multiple sclerosis in 1997, has done just about everything for the Chapter. She’s been a Talk MS group leader, volunteered at Bike MS and Walk MS, been on the Speakers Bureau and served on the Government Relations Committee for about eight years. While the challenge of advocating can get frustrating if a piece of legislature takes longer than expected to pass or doesn’t pass at all, Chris is motivated by knowing there are others with MS who need help. “When I may get frustrated, when I don’t have the energy or want to take a break, I’ll get a phone call from somebody who is newly diagnosed looking for help or somebody in the Talk MS group is having a problem,” Chris said. “We’ll talk and I’ll hear what’s going on with them and that reenergizes me and helps me put things in perspective. When you can really see that some of what you’re doing is making a personal difference for somebody, that’s really rewarding. That helps as much as anything.”

Sometimes the advocate’s work isn’t tangible in the form of obtaining government funds or getting a piece of legislature passed, but that doesn’t mean it’s not important. In fact one of the most crucial aspects of advocating that anyone Chris Lepper knows that with MS can do is to by simply telling her story educate others. she can help advocate for “Nobody can tell the story change. like a person with a real connection to MS,” Chris said. “It’s important for people who have been touched by MS to talk to their elected officials. It’s important to explain to them what living with MS is all about and what public policy level people can do to give them a better quality of life. It’s important that we’re visible so when an issue arises that deals with disabilities or health care, that state legislators think of that person in their district who has MS. That personal connection is really important from the point of view of the legislator and we’re the ones who can tell our story most effectively.”

Chris is familiar with advocacy as she is a grassroots coordinator with the Missouri Bankers Association. She keeps people informed about what legislative issues are important for bankers and gets them engaged in the process. “One reason I was enthusiastic about getting involved in public policy is that I do grassroots and legislative work with my full-time job and it seemed like a good fit for me,” Chris said. “Since I spend Monday through Friday encouraging folks I work with to be involved in the political process and to speak up, it makes it very easy for me to see the value of that and to do that on behalf of people with MS.”

Building relationships and educating legislators is key to creating change for people with disabilities.

TOLL FREE NUMBER 1 800 344 4867

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EVENTS

CHAPTER HONORS ITS BRIGHTEST AT NIGHT OF A 1,000 STARS On January 21, the Chapter held its annual “Night of A Thousand Stars” Volunteer Recognition Dinner at the Sheraton Hotel at Westport Plaza Lakeside Chalet. Tom O’Neal, KTVI Fox 2 News anchor, served as emcee for the event. The Chapter honored its Annual Achievement Award Recipients, Pathligher Award Winners and Mission Possible Honorees.

2009 ANNUAL ACHIEVEMENT AWARDS

MOTHER OF THE YEAR MICHELLE LOWE

Michelle was diagnosed with MS at the young age of 23. She was fresh out of college, embarking on a new career and buying a house, in other words – just starting her life. Michelle worked full-time for many years as a project manager for a transportation company, and now is a full-time mom. In 6

addition to caring for her children, working as a volunteer in local schools’ reading programs, and volunteering at Bike MS, she has taken on the responsibility of heading up the Chapter’s Speakers Bureau Program.

UNSUNG HEROES OF THE YEAR RICK WEINSTEIN AND DON BAIRD

FATHER OF THE YEAR CHIP STOCKELL

Chip’s wife Patty nominated him and she wrote: “Daily I witness him going about his life with progressive MS. He was formally diagnosed about four years ago, but had symptoms for seven years. Never ONCE has he complained, asked God why, or asked for help. Daily he goes in to run his company, Stockell Consulting, and returns home to be with his wife and two highly-energetic boys, ages 7 and 10. This is the daddy they have always known. He is the epitome of grace, acceptance and love. He is a shining example of what someone can continue to accomplish with MS, and with an upbeat spirit.”

JOIN THE MOVEMENT: nationalMSsociety.org

Rick Weinstein has been dedicated to the cause and Bike MS for five years. He has organized a Bike MS team that is out there for the cause, not just because the members enjoy cycling. Rick has taken time to not only organize the highest fundraising team in 2009 but takes a personal interest in each one of the team members. He makes sure all riders, slow or fast are safe, comfortable, not left behind and encouraged to become better riders in the process. Rick’s cheerleading and determination encourage everyone to ride and not to view fund raising as a daunting task.

Don Baird has been the captain of the Team Kaldi’s Bike MS team for seven years. During that

EVENTS

time, he led the effort that has built Team Kaldi’s from a team of about a dozen riders raising less than $10,000 to a group of more than 120 riders raising well over $100,000 per year. He is the driving force behind one of the ride’s most accomplished and most respected teams. Under Don’s leadership, the team became a “friends and family” team on which new friends were always welcome.

INDIVIDUAL OF THE YEAR GAIL CAMERON

Gail Cameron is a dedicated and essential volunteer who lends to the success of the Chapter’s programs and events. She has been living with MS since 2002. In 2008, Gail volunteered as the Chapter’s family social program volunteer for Central Missouri to coordinate the Family Evening in Columbia. In 2009, she secured over $800 worth of in-kind donations for the event as well as entertainment. Also, from 2008 to 2009, the event doubled in attendance which Gail played a strong role in by identifying a new location, ensuring the site was accessible, supporting staff in the logistics of planning for the event, and spreading the word about the program in the community.

CAREGIVER OF THE YEAR CHESTER JAKUBOWICZ

Chester was nominated by David Sapp, his domestic partner since 1975. In his nomination, David wrote: “Chester’s entire day is spent in care of my needs with very little, if any, time for himself.” Chester does everything for David from dressing him, to feeding him, to taking care of all of his daily needs. “The most amazing thing that Chester has done for me is that he has given up his own life so that I can continue to lead a fulfilling and happy life, which I do. Chester is truly an angel and there are really no words that I can use to describe how much he does for me each and every hour of each and every day.”

his nomination: “Compassion for me and what I was going through was very high and I was treated as a normal employee. I have been lucky with my condition and I can still function in a certain work environment. Having been with McCarthy for less than two years I didn’t know what to expect, so I was greatly surprised at how well I was treated.”

PATHLIGHTER AWARDS Pathlighter Awards honor volunteers who have provided at least three years of service to the Chapter. These extraordinary volunteers are some of the finest examples of true stars who are blazing a path to create a world free of MS.

ADMINISTRATIVE

MICHAEL SMITH & ALICE DOUTHIT ADVOCACY

DR. THY & TIM HUSKEY

EMPLOYER OF THE YEAR MCCARTHY BUILDING COMPANY

COMMUNITY

After Chris Becklenberg was diagnosed with MS, folks at McCarthy went out of their way to help find a more stable environment in which for him to work and at the same time kept his condition private. Chris wrote in

JIM BLAIR

SANDY HOFFMAN DEVELOPMENT HEALTHCARE PROFESSIONAL

PENNY JAMES PROGRAMS

DEBBY RHODES

TOLL FREE NUMBER 1 800 344 4867

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THROUGH THE EYES

VOLUNTEER

CHARLIE RIES

BIKE MS PARTICIPANT ‘RIDER 281’ HELPLINE VOLUNTEER BIKE COMMITTEE VOLUNTEER SPEAKERS BUREAU VOLUNTEER “There’s another simple philosophy and if you’ve been on the bike ride, you’ve heard it – Act Now - Help Someone (along with Hip Hip Hoorays!). Believe it or not that’s how I live and that’s how I think a lot of people need to become involved. Any time you help somebody, it’s going to make you feel good. I think it’s a great way to live.”

Years ago when I was volunteering answering the helpline at the Chapter, I was speaking with someone who was a bit down. I told him I wanted to help him feel better so I said “between now and next Friday, take the time, whether it’s picking up the phone or knocking on the door of a neighbor, to do something for somebody. I guarantee you that person will feel better and you’ll feel better.” That’s been my philosophy and it’s how I have stayed motivated year after year volunteering for the Chapter and participating in Bike MS for more than 20 years. I enjoy touching people’s lives and the Chapter has given me the opportunity to do just that. I got involved with the Chapter through Bike MS simply because it’s a tremendously fun ride and I enjoy it. I don’t have MS and didn’t have any previous connection to it. After riding a couple of years I got more involved by working on the bike volunteer committee and answering the phones on the helpline for about five years when it was done locally. When I started I couldn’t spell multiple sclerosis but by talking

JOIN THE MOVEMENT: nationalMSsociety.org

to people living with MS every week, I learned more about MS and how it affects people. That motivated me to become more involved and to raise more money. I learned that the more knowledge you obtain about the disease or organization for which you are volunteering, the more intense you will be about your efforts. Every year I send out a letter to about 400 friends, family and acquaintances to raise money for Bike MS. After hand addressing about 6,000 letters and raising more than $260,000 through my Bike MS rides over the years, I still enjoy doing it. Why else would I be involved with the MS Society if I didn’t enjoy what I do for them? There’s another simple philosophy and if you’ve been on the bike ride, you’ve heard it – Act Now - Help Someone (along with Hip Hip Hoorays!). Believe it or not that’s how I live and that’s how I think a lot of people need to become involved. Any time you help somebody, it’s going to make you feel good. I think it’s a great way to live.

OF VOLUNTEERS

KATHY CAVENY

DELIVER A SMILE VOLUNTEER WALK MS PARTICIPANT

VOLUNTEER DONOR

team, Team Bit O’Irish, has raised the most money and been one of the largest teams the last three years at Walk MS in Godfrey. I am so proud of each and every one who got involved with our team. After the first Walk MS experience I thought that there must be more I can do. It was then I learned about the Deliver A Smile program. I contacted a Cub Scout pack, our church youth group, and decided to have my own “Friends Blanket Making Party.” We made more than 60 blankets that year and I’ve done it ever since.

Throughout the year people ask I joined the movement and if I am going to make blankets became involved with the again this year and my answer National MS Society in the fall is always “YES!” The ladies from of 2006 when I was diagnosed church helped this year and they with relapsing-remitting MS. I overwhelmed me with their participated in a research study attendance and how eager they with the John L. Trotter MS all were. Most were retired and Center at Washington University stayed the entire time cutting and which made me very aware of the tying until the blankets were all research being done today for MS. finished. These women touched me emotionally when I saw, that I decided then I was not going to wait around to see what was going despite their arthritis and having difficulty walking, they were to happen to me but to fight the all smiles in doing this task for only way I knew, through raising money for MS research. I really try someone they didn’t even know. to stay positive at all times. I never Since getting involved, I’ve wanted live in the past or wonder about to do more and more. Last summer my future but just enjoy my life I wanted to do something different today! Even though giving myself to raise money. I talked over a shots everyday makes me think few ideas with my husband and of my MS on a daily basis, I try to friends. We came up with a poolthink of myself as normal! side wine tasting party with a In 2006 I started my own team for tropical flare. I have always loved organizing parties with a theme Walk MS in Godfrey, IL. The first so we came up with “The Last year I had over 65 walkers. My

Sip of Summer.” I had so many close friends donate food, time and money, not to mention my neighbor’s house and pool area! It was a great success raising more than $3,000. This is how I stay motivated to go on each day. I keep my friends and family close and enjoy each minute I have with them. I have felt more love in the past three years since my diagnosis than I have my entire life. I guess I can say, in a way, I am even grateful for my MS.

DELIVER A SMILE Twice a year, Chapter staff and volunteers make visits to individuals living with MS and deliver small, personalized gifts that have been specifically requested by the individuals. About 100 were delivered in December and we will deliver another 100 this July. If you know someone with MS who is homebound or living in a long-term care facility or would like to donate, please contact Diana Post at the Chapter at diana. post@gatewaymssociety. org or 1-800-344-4867.

TOLL FREE NUMBER 1 800 344 4867

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MS CONNECTION

ASK THE PROFESSIONAL PATIENT QUESTION: How can I stay motivated to continue activities that I have enjoyed in the past or to learn new activities in ways that fit with my changing abilities from MS?

Peggy Neufeld, Ph.D., OTR/L, FAOTA Community Occupational Therapist

DID YOU KNOW THERE IS AN ART AND SCIENCE OF GETTING AND STAYING MOTIVATED? Research tells us that motivation comes from within, but people and places can also help by influencing your readiness to get involved and persist in activities. Since living with MS challenges confidence in taking part in favorite activities, it is important to think about your level of motivation. Staying motivated to be physically, mentally and socially active will promote health, life satisfaction and a sense of well-being.

One way to change motivation for activities is to use the stages of change approach. In the early contemplative stage you may feel somewhat stuck, but you are willing to think about change. At this point, reflect on favorite pasttimes to clarify your values and priorities. Reach out to friends and family to discuss what you enjoy doing, any difficulties in those activities and begin to recognize how some obstacles can be analyzed and potentially changed. You may also find professional assistance helpful when contemplating your motivation and readiness for change to resume past or try new meaningful activities. The next two stages in this approach are to prepare by making a plan of action, and then create goals and do what is needed to stay motivated and active. Creating an action plan includes finding times and situations that will feel easier to do activities that must be done differently than before. Explore activity options offered through the NMSS and other community resources. Set realistic goals and engage in activities that have the most meaning for 10

JOIN THE MOVEMENT: nationalMSsociety.org

you to benefit from their motivating effect. Enhance the places in which you live, work and play so they energize and move you toward your goals. Finally, know that a lapse into an unmotivated state of mind and inactivity is not uncommon, so be preventative. Create healthy rewards and incentives for yourself and share successes with others to motivate your continued involvement.

CALL TO ACTION Studies show that early and ongoing treatment with an FDAapproved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Societyâ&#x20AC;&#x2122;s medical advisors recommend that people with MS talk with their health-care professional about using one of these medications and about strategies and effective treatments to manage symptoms. The National MS Society is committed to ensuring that people with MS have the information and quality care they need to live healthy, productive and independent lives. If you or someone you know has MS, please contact the National Multiple Sclerosis Society today at www.nationalmssociety.org or 1-800-3444867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

2010 BOARD OF TRUSTEES

FROM THE BOARD

MICHELLE KEATING, RN, OCN, MSCN NURSE EDUCATOR CANCER INFORMATION CENTER ST. JOHN’S MERCY MEDICAL CENTER

Why did I join the movement? In 1981, I had been practicing as a nurse a few years when I developed numbness on my side. I was taking an exercise class at the time and figured it was just the result of something I did in class. It went away and about six weeks later I developed tingling in my hands and feet. At that point I realized something was not right. I remember quite well when I walked into the neurologist’s office and he said “What do you think could be wrong?” I said “I don’t know, maybe a brain tumor or MS.” He looked at me seriously and said “I think you have MS.” I will never forget the fear, grief, and anxiety I felt at that time. I have been living with MS for more than 28 years, but that doesn’t stop me from making extraordinary efforts to find a cure for the disease as well as be a positive model of energy, perseverance, and determination for others with the disease.

Today, despite everyday challenges, including decreased mobility (I get around using a leg brace and a crutch and with the help of a motorized scooter), I continue my career certified in oncology and MS nursing. In 1993, working as a nurse in cancer and health education at St. John’s, I started teaching self injection for MS treatment. Then I got more involved with a support group, and then as a speaker for the National MS Society and a pharmaceutical company. By 1995, I began providing professional MS nursing telephone educational and emotional support while maintaining my position as a cancer nurse educator at St. John’s. I joined the Board of Trustees in 1994. I have been involved with the Chapter in many MS programs, committees, advocacy efforts, and fundraising activities including Walk MS with my great team, Michelle’s Marchers.

Michelle Keating has been a board member for 15 years and her Clayton Walk MS Team, Michelle’s Marchers is always one of the top teams every year. The Society is committed to create a world free of world free of MS. It funds research, facilitates education and advocacy, and provides programs and services that help people with MS and their families move their lives forward. I continue my passion as a volunteer for the Society because I want to do something about MS now!

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GETTING TO KNOW US

THERE’S NO OFF-SEASON FOR CHAPTER’S DEVELOPMENT STAFF During the cold winter months when riding a bike or going for a long walk may be the last thing on people’s minds, the Chapter’s Development Staff cultivates relationships with event participants and looks for ways to improve each event over the previous year. The department has the task of ensuring the safety of nearly 10,000 walkers and cyclists during Bike MS, Challenge Walk MS and Walk MS. They also want to make each participant’s experience as fun and as rewarding as possible. While this is no easy task, the Development department does have quite a bit of help from volunteers and team captains. Volunteers and participants drive these events and none of them would exist without their hard work and dedication! The Development Staff works with event team captains by offering incentive team weeks to help captains grow their team and their fundraising. Between team weeks, staff members maintain regular contact with each team captain. After events, staff members work with participants on post-event fundraising and prize securing. Bike MS, Challenge Walk MS and Walk MS aren’t the only forms of fundraising. Corporate leaders who may not have a lot of time but are interested in fundraising can participate in the MS Corporate Achievers program. This six-week campaign is an easy and effective way to raise money and participants are featured in the St. Louis Business Journal and are provided with professional networking opportunities. 12

JOIN THE MOVEMENT: nationalMSsociety.org

The Chapter’s Development department includes (from left): Matt Jones, Erin Holtzclaw, Traci Buss, Angie Wiseman, Paula Eichholz, Lura January, Chariti Hoven and Randy Adler.

Every event ultimately supports the more than 6,300 people living with MS in our 90-county service area. Many participants dedicate their walks or rides to a person they know living with MS. For those participants who don’t have a direct connection to MS, we encourage people living with MS and event participants to develop partnerships through our Champions program. This program fosters relationships between participants and those living with MS in hopes that they will inspire each other. Each event also has a Champions tent where participants can meet and learn more about MS. We see many hugs and tears at these meetings as mutual respect and awe is communicated and marveled over. Each person is astonished at what the other person has gone through and many stories and laughs are also shared. We are grateful to everyone who plays a role, big or small, in helping us accomplish our goals. We anticipate 3,300 cyclists, 6,000 walkers and 250 challenge walkers to raise more than $4 million this year. The Development Staff is also working on a new fundraising event called the Mud Run. Stay tuned for the inaugural event on May 8 and how the department is branching out to offer another unique opportunity to raise funds to support people living with MS.

MS CROSS WORD PUZZLE Most of the answers can be found at the www.nationalmssociety.org website, Clinical Trials Handout, or the dictionary. 1

NEW!

MS BRAIN GAMES

27 Hand-written notes in a ______ help to remind

28. Disease Modifying Drug 8

ACROSS

10 11

1. What does the A in ABCR stand for

5. Fatty substance that surrounds the nerve fiber

17 18

8. Spinning sensation 12. Part of the body MS does not affect 14. Secondary Progressive MS

16. Possible precipitant exacerbation trigger

22 23

18. Almost _____ of the answers for this puzzle can be found on the National MS Society website

25 26

21. Tapered oral steroid exacerbation treatment 29

22. Difficulty in walking is also called ANSWER KEY ON PAGE 17

23. Primary Relapsing MS 25. Primary Progressive MS

DOWN

12. What does the B in ABCR stand for

2. MS medication should be taken _________as directed

13. Where oral steroids are taken

26. A symptom of Optic Nerve Neuritis

15. Distorted, interrupted nerve impulses make MS

29. MS Belly Hug pain also known as

4. Another name for MS Advocates sent to lobby MS Legislation 5. Image Detecting Technology 6. Hand written _____ in a log, or reminders on Post-It ____ help people with cognitive issues 9. Relapsing Remitting MS

17. Always try to _____ happy thoughts 19. Another name for MS plaques or scarring 20. Visual Evoked Potential

10. Central Nervous System

24. Most people with MS should avoid too much _____ on a hot day

11. Multiple Sclerosis

25. Common symptom of MS TOLL FREE NUMBER 1 800 344 4867

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NEWS BRIEFS

GET DIRTY FOR MS

You’ll never be this dirty for anything this good. That’s the motto of the MS Mud Run which will take place May 8 in St. Louis. If you’re looking for another challenge this is for you. The Mud Run is a 10K race with a series of boot camp-style obstacles that have been surrounded by mud. All of the fundraising contributions and a portion of the race proceeds are donated to the Chapter. The registration fee is $50 and the fundraising minimum is $100. For more information go to www.gatewaymssociety.org.

came to an abrupt halt when she was diagnosed with MS in 1991. Now, she is a life coach and motivational speaker and the Chapter is thrilled to welcome her as the keynote speaker at its second annual Women On The Move Luncheon Tuesday, April 27 at the Four Seasons Hotel in downtown St. Louis. At the event, the Chapter will honor three Women of Courage. If you are interested in attending or would like to nominate someone for the Women of Courage please go to www.gatewaymssociety.org and click on ‘Women on the Move.’

BENEFITING THE NATIONAL MULTIPLE SCLEROSIS SOCIETY

ELITE CYCLIST TO SPEAK AT WOMEN ON THE MOVE LUNCHEON As a member of the US Cycling Team, Maureen Manley won a national championship, set a national record, earned a silver and two bronze Maureen medals at the NaManley tional Championships, competed in three World Championships and won a silver medal in the 1990 World Championships. Her career 14

MS AWARENESS WEEK Be sure to check out our MS Awareness Week videos on our YouTube site at youtube.com/ gatewaymssociety. Mark your calendars for MS Awareness Week March 8-14. Wear orange that week, spread the word about the National MS Society and help us MOVE IT.

JOIN THE MOVEMENT: nationalMSsociety.org

YOUNG PROFESSIONALS GAINING MOMENTUM The Young Professionals Group of the Gateway Area Chapter recently held their quarterly meeting and happy hour at The Dubliner on Washington. With 16 guests and a great speaker, the group is building momentum. Young Professionals will be holding their second fundraiser, A Night on the Greens, on Friday, May 14th. The event will be held at the brand new Highlands Golf Course in Forest Park. The cost to participate is $200 for a team of four and includes 9 holes of night golf, glow equipment, two drinks and unlimited fun! Registration starts at 7 p.m., with an 8:15 p.m. shotgun start. This is a walking event, but caddies will be available for $20. All proceeds benefit the National MS Society.

To register or for more information regarding event sponsorship or volunteer opportunities, please go to www. gatewaymssociety.org, click on “Volunteer” and then “Young Professionals”.

RESEARCH

UNDERSTANDING “BENIGN MS” BY MARTHA KING

In addition to labels like relapsing-remitting MS, secondary-progressive MS and primaryprogressive MS, there is something labeled benign MS for people who live with MS for years without developing any disabilities at all. Like so much else in MS, no one understands why some MS is so mild. Even the proportion of people with benign MS is unclear. Estimates range from 5% to 40% in different studies, and some doctors have even called for a halt in the use of this term. Everyone agrees that benign describes the very mildest form of MS. These people have had enough neurological symptoms and MRI abnormalities to be diagnosed — but for the next 10 to 20 years, their physical disability is mild to nonexistent. The big catch Early on—which is the very best time to get on a disease-modifying drug—there is no way to predict who will have mild MS and who needs to start therapy as soon as possible. Teasing out the factors that distinguish the “benign” group from others would spare them from taking treatment they don’t need. The factors might also be clues to preventing more disabling MS. Researchers are eager to dig in. Investigators in Europe are pooling their imaging expertise in an ongoing collaborative MS research project called MAGNIMS. A recent report from this project warns against assuming mild MS is truly benign.* MAGNIMS researchers found cognitive impairment in up to 45% of people who had been designated as “benign.” They concluded that testing to rule out cognitive problems is

AJ, diagnosed in 2000 essential before a person is considered to have truly benign MS. The MAGNIMS team also saw some MRI abnormalities that suggested a future of worsening MS and they identified a connection between mild MS and a brain’s ability to compensate for damage by mobilizing other brain regions. In other words, some mild MS had caused real but hidden damage. The best idea for now The MAGNIMS analysis adds important insights into “benign MS” — and makes a clear case for further research involving large numbers of people with mild MS. Until more is known, the Society’s National Clinical Advisory Board recommends that treatment with one of the disease-modifying MS drugs be considered as soon as possible following a confirmed MS or CIS diagnosis. To learn more, visit the National MS Society Web site, nationalMSsociety.org and look for Benign MS in our Research/Clinical Updates. *Neurology 2009;72:1693-1701.

TOLL FREE NUMBER 1 800 344 4867

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DONOR

HITTING THE COURTS, FIELDS AND SLOPES FROM YOUR COUCH THE BENEFITS OF Wii FOR PEOPLE WITH MS The last time Ted Hellmuth was on the tennis court with his wife he shagged balls in his wheelchair while she worked on her serve. But with the Nintendo Wii, Ted can play tennis, as well as many other sports and other activities, from the comfort of his couch. “Playing the Wii is a unique way to allow somebody with multiple sclerosis to do things they can’t otherwise do,” said Ted, who was diagnosed in 1996. “I can play most of the games like boxing, tennis, bowling, baseball and those are all things I can’t go out on the field and do. But I can sit on my couch and be challenged in a fun way.” Ted had to retire from his career as a lawyer in 1996 due to fatigue, cognition challenges and other symptoms of his MS. “For me the hardest part of MS is the incredible inertia that sets in and the strong tendency would be to do nothing whatsoever,” Ted said. But with the Wii, Ted can remain active and still do things with his family like competing in ski jumping against his daughter or playing a doubles tennis match with his wife. The Hellmuths recently sold their pool table because it wasn’t getting used. But with the Wii, Ted is able to play pool with family and friends. So the Wii can also help in social settings at parties. 16

JOIN THE MOVEMENT: nationalMSsociety.org

With the Wii Ted Hellmuth can do things he normally can’t, like enjoy game of tennis with his wife Laurie. If you are interested in helping the Chapter establish a donation program to help get the Wii to people with MS please contact us.

“You can play the Wii by yourself, but there’s also the social aspect,” Ted’s wife Laurie said. “We were at a graduate school graduation party with our son and they had the Wii going. So there’s Ted with MS and he’s able to be out there engaging our son’s friends who are in their 20s and 30s and having a good time rather than just sitting and watching.” Aside from the games that can stimulate the mind and body while still remaining seated, the Wii also has trivial pursuit and exercise programs. “The trivia games get your mind going because they’re timed,” Ted said. “There is Wii Fit that has a balance platform. It has a personal trainer and it will challenge you to do different activities. It has yoga and strength training so if you wanted an exercise regime this could provide it.” While you can have a lot of fun with the Wii, there are some issues that Ted sees with it. One is the cost. The Gateway Area Chapter is hoping to develop a donor program specifically to get Wii into homes of people with MS. While learning how to play games is fairly easy, setting up the Wii and learning what games are the most fun and most beneficial could be a challenge. “I think the Wii is something that has potential, but it’s not self starting,” Ted said. “If you just dump a Wii on somebody with some games they may use it or they may not. A lot of things are fun for 10 minutes but then go into the attic. If you spend some time getting the right games and getting it set up, that’s when I think the value comes out.”

DONOR

Another helpful aspect for people with MS would be if there were reviews or articles explaining what games or programs people with MS might like the best or would benefit from the most. “If this was something that people with MS became interested in, it would be great to have reviews of the games in MS publications,” Ted said. “That would make a big difference because this is all trial and error on my part.” Despite some of the minor inconveniences, Ted definitely sees the benefit of the Wii. “It allows you to transcend your disability and do things that you can’t otherwise do,” Ted said.

MS CROSS WORD PUZZLE ANSWER KEY 1

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TOLL FREE NUMBER 1 800 344 4867

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(800) 344-4867

PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETY Contact Us at National MS Society Gateway Area Chapter 1867 Lackland Hill Parkway St. Louis, MO 63146 314-781-9020 or 1-800-344-4867 www.gatewaymssociety.org MS Connection © 2010 A quarterly newsletter published by the National Multiple Sclerosis Society, Gateway Area Chapter. Chapter President • Phyllis Robsham Newsletter Editor • Joe Cavato Writers Traci Buss Kathy Caveny Michelle Keating Beth Norviel

Joe Cavato Kim Fitzsimmons Peggy Neufeld Charlie Ries

NOTICE: The Gateway Area Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis. Our comments are based on professional advice, published experience, and expert opinion, but do not represent therapeutic recommendations or prescriptions. For specific information and advice, consult a qualified physician. The National Multiple Sclerosis Society does not endorse products, services, or manufacturers. Such names appear here solely because they are considered valuable as information. The National Multiple Sclerosis Society assumes no liability whatsoever for the contents or use of any product or service mentioned. Proud member of

JOIN THE MOVEMENT: nationalMSsociety.org

FROM THE PRESISDENT

A LETTER FROM THE PRESIDENT PHYLLIS ROBSHAM

American author and motivational speaker, Les Brown, once said, “Life takes on meaning when you become motivated, set goals and charge after them in an unstoppable manner.” This sentiment rings true at the Gateway Area Chapter every day. Through the relentless dedication of our volunteers, participants, clients and staff, we continue to be motivated toward our ultimate goal of a world free of MS. And the fulfillment of that goal gets closer and closer every day with your continued dedication in helping us raise money to support those living with MS in our area and to fund research, as well as helping us spread awareness of MS and what the Gateway Area Chapter has to offer. Through efforts such as MS Awareness Week, we can continue to pass our motivation on to others to join the movement. Walk MS season is right around the corner. What a great time to find renewed motivation to help us Move It one step at a time. Look on our website for all the site locations and details. If you know someone who would benefit from receiving this magazine and other information from the Chapter, please let us know so that we can reach out to them. Email us at movement@gatewaymssociety.org. Thank you for your motivation to our mission.

happenings Accessible Vehicles, Modifications Move Forward The latest technology and vehicle modifications are enabling people with disabilities the kind of mobility in society that was once only a dream. It is this mobility that helps provide freedom and independence like never before.

“Vehicle mobility used to be primarily the full-size vans with the bulky platform lifts,” said Stephen Kinstler, a Mobility Specialist with United Access (www. unitedaccess.com) of St. Louis, which sells, installs and services all types of advanced mobility technology. “The lowered floor minivans that we offer provide greater access to facilities, more comfort and better gas mileage, while also enabling the person in the wheelchair to sit up front and drive, which is what I do in mine.” United Access, one of the largest mobility dealers in the nation, is a full line dealer as well as an exclusive supplier of some technologies, which enable them to offer multiple vehicle solutions for any specific need. United Access has grown from one small store in St. Louis in 1997 to seven branches including Kansas City, MO,

United Access Open House Come learn about the latest technology in vehicle accessibility and modifications. Wednesday, March 24, 5:30-7 p.m. United Access 9389 Natural Bridge Road 314-989-1010 or 888-939-1010

“I think one of the best advancements in our industry is inventory. We have a Kim, diagnosed in 1986 lot full of brand new, modified vans as well as a large selection of used, modified vehicles,” said Richard May, owner and founder of United Access. “People can come here and leave the same day with a vehicle they want, that is perfectly suited to their needs and within their budget.” To help tackle the expense, United Access works with their customers to help find funding sources through federal, state and Veterans Administration sources. United Access also helps arrange vehicle financing, through their banking partners, to fit different budgets. In some cases, extended term financing of up to 10 years is available. From large inventories, to the dozens of mobility options to fit specific needs, to help with funding and extended financing, there is a lot to be excited about in the vehicle mobility industry. “I’ve been in this industry since the beginning and the new products and technology are great,” May said. “But what I love about this business is reaching out and helping people gain freedom, independence and mobility in life.” Call 1-800-344-4867 for a referral to a vehicle modification company in your area.

www.gatewaymssociety.org

HAPPENINGS

What has made the world more accessible and convenient is the advancement of wheelchair accessible vehicles, driving systems, mobility seats, scooter lifts, and other vehicle modifications.

Columbia, Mo., Springfield, Mo., Memphis, Tenn., Springfield, Ill., and Champaign, Ill., with plans to add two more branches next year.

Gateway Area Chapter

Family Evening at Grant’s Farm

Family Evening Registration

HAPPENINGS

Saturday, May 15, 2010 Time: 6:30-9 p.m.

[ ] Grant’s Farm, St. Louis, MO Saturday, May 15, 2010

Grant’s Farm 10501 Gravois Road St. Louis, MO 63123 Time to enjoy an evening with your friends and family and Grant’s Farm! The program begins with a ride on a Grant’s Farm tram and enjoying a tour of Deer Park. Your next stop is at The Bauernhof, home world-renowned stables, and location of the evening’s festivities. Activities include: g Meeting others living with MS g Photo with Clydesdales g Accessible tram tour of Deer Park-home to exotic animals from around the world! g Arts and Crafts area g Live music g Food buffet and beverages

Name_____________________________ Address____________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Do you use a mobility device?_______________ Do you prefer a vegetarian meal?_ ___________ Please list guest’s names and ages:_ __________ ________________________________ Payment Information (Grant’s Farm only) ( ) Fee waiver requested ( ) Check enclosed payable to MS Society ( ) Visa ( ) MasterCard ( ) Discover Card # _ ___________________________ Expiration Date:_______________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440

Register before May 3 to receive a special early registration fee. Early Bird Fee (Register before May 3) $10 adult $5 child Regular Fee $20 adult $10 child Registration deadline: May 10

To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend. Program sponsored by Boeing and United Access

Fee waivers available for program and transportation. 20

1.800.344.4867

happenings

Research MS

Research MS Registration Please mark which program

MS specialists will provide up-to-date information on research in MS in your community on: g Latest information on research and new therapies g New data on disease modifying medication for MS SPEAKERS & LOCATIONS April 17, 2010 Noon to 2 p.m. Holiday Inn – Carbondale, IL 2300 Reed Station Parkway Speaker: Dr. Amy Rauchway Assistant Professor of Neurology Department of Neurology & Psychiatry Saint Louis University School of Medicine, St. Louis, MO Registration deadline: April 9, 2010 April 17, 2010 Noon to 2 p.m. Jack’s Gourmet – Columbia, MO US Highway Bus Route 63 Speaker: Dr. Becky Parks Associate Professor of Neurology John L. Trotter MS Center Washington University, St. Louis, MO Registration deadline: April 9, 2010

HAPPENINGS

MS research is progressing at a remarkable rate, with more potential therapies in the pipeline than at any other time in history. The National MS Society is a driving force of MS research, supporting and stimulating worldclass research into ways to prevent, better treat and cure this unpredictable disease of the brain and spinal cord. Learn how far we’ve come, where we’re going and what the NMSS and others are doing to move toward a world free of MS.

[ ] April 17, 2010 Carbondale, IL [ ] April 17, 2010 Columbia, MO Name_____________________________ Address____________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Do you use a mobility device?_______________ Do you prefer a vegetarian meal?_ ___________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.

www.gatewaymssociety.org

Program sponsored by Wachovia.

Gateway Area Chapter

Spring Rendezvous Take one weekend to relax and have fun with other adults living with MS.

HAPPENINGS

Spring Rendezvous 2010

May 1-2 Pere Marquette Lodge in Grafton, IL. Plenty of activities are planned for the all-adult weekend including guest speakers on relationship building and effective communication, arts and crafts, accessible swimming, and evening entertainment. Must be 21 to attend. This program fills up quickly, so be sure to register early! Early registration (by Apr. 12) is $60 per person Regular registration (after Apr. 12) is $70 per person Registration includes overnight lodging, meals, and activities. A limited number of fee waivers are available for this program and/or accessible transportation. Start Date: Saturday, May 1, 2010 End Date: Sunday, May 2, 2010 Registration Deadline: April 26

Spring Rendezvous Registration [ ]

Pere Marquette Lodge Grafton, IL May 1-2, 2010

Name_____________________________ Address____________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Do you use a mobility device?_______________ Do you prefer a vegetarian meal?_ ___________ Please list guest’s names and ages:_ __________ ________________________________ Payment Information ( ) Fee waiver requested ( ) Check enclosed payable to MS Society ( ) Visa ( ) MasterCard ( ) Discover Card # _ ___________________________ Expiration Date:_______________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.

1.800.344.4867

happenings Family Evening Night at the Ballpark Saturday, June 12, 2010 Time: 6-9 p.m.

Family Evening Columbia, MO

Saturday, June 19, 2010 Time: 3-7 p.m.

Stephens Lake Park Riechmann Pavilion 2300 E. Walnut, Columbia, MO Family Evening-Columbia, MO is a great way to meet other people living with MS. Join us for an afternoon of fun, food, family and friends. The program will take place at an air-conditioned, indoor pavilion located with easy access to Stephens Lake. Activities include: g Arts and crafts area g Face Painting g Raffle prizes g Barbeque g Dessert potluck g Games and other outdoor activities Cost: FREE PROGRAM Fee waivers are available for transportation to program. Registration deadline: June 9

[ ]

Night at the Ballpark, Marion, IL Saturday, June 12

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Stephens Lake Park, Columbia, MO Saturday, June 19

Name_____________________________ Address____________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Do you use a mobility device?_______________ Do you prefer a vegetarian meal?_ ___________ Please list guest’s names and ages:_ __________ ________________________________ Payment Information (Night at the Ballpark only) ( ) Fee waiver requested ( ) Check enclosed payable to MS Society ( ) Visa ( ) MasterCard ( ) Discover Card # _ ___________________________ Expiration Date:_______________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend. Program sponsored by Boeing and United Access

www.gatewaymssociety.org

HAPPENINGS

Southern Illinois Miners vs. Windy City Thunderbolts Rent One Park 1000 Miners Dr. Marion, IL, 62959 Batter Up! Nothing says summertime like a trip to the ballpark. Grab your family and friends and cheer on the Southern Illinois Miners. Cost: $7 per person

Family Evening Registration

Gateway Area Chapter

TALK MS GROUPS

HAPPENINGS

MISSOURI Cape Girardeau

3rd Saturday, 10 am

Columbia

Call for Dates

Crystal City/Festus

2nd Tuesday, 1 pm

Fulton

April 7, 3 pm

Jefferson City

3rd Monday, 6 pm

New London

2nd Monday, 7 pm 2nd Sunday, 2 pm 3rd Sunday, 3pm

St. Francis Health & Wellness Center Healing Arts Building, Conference Room 150 S. Auburn, Cape Girardeau, MO 63703 University of Missouri-Columbia Quarterdeck Bldg., Rm. 118 2401 Lemone Ind. Dr., Columbia, MO 65201 Disability Resource Assn. 420B S. Truman Bl., Crystal City, MO 63019 Home Real Estate 2606 North Bluff, Fulton, MO 65251 St. Mary’s Health Center, Assembly Hall St. Mary’s Medical Plaza, off of West Dunklin, Jefferson City, MO 65101 Call for Location

First Christian Church 1601 North Main, Poplar Bluff, MO 63091 Hardees Restaurant at Mid Rivers Mall Dr. St. Charles and Mexico Rd. St. John’s Mercy Hospital, 851 East 5th St. 3rd Wednesday, NEW Washington Mercy Medical Building, Educational GROUP! 6 pm Department, Classrooms A&B 3rd Wednesday, Ozark Medical Ctr. Shaw Medical Bldg. 2nd West Plains 5 pm Fl. 909 Kentucky St., West Plains, MO 65775 ST. LOUIS METRO 3rd Wednesday, Weber Road Library Affton 7 pm 4444 Weber Rd, St. Louis, MO 63123 2nd Saturday St. John Rehab Hospital, 14561 North Mid-St. Louis County 1:30 pm Outer Hwy 40, St. Louis, MO 63017 2nd Tuesday, Living Word United Methodist Church West County 7 pm 17315 Manchester Rd., Wildwood, MO 63038 Perspectives on MS 1st Saturday, NMSS Office Gateway Area Chapter Networking Group 10 am 1867 Lackland Hill Pkwy, St. Louis, MO 63146 (mid-30’s & under) Poplar Bluff

NEW GROUP! 24

Sharon (573) 332-8148 Deanna (573) 882-6767 Marlene (636) 464-2533 Sharon webradleys@yahoo.com Diana (573) 642-9234 Cindy (573) 220-7331 Chris (573) 645-0130 clepper@mobankers.com Debby (573) 267-3365 mlrdsr@rallstech.com Tamra (573) 568-3912 cawalker@sbcglobal.net Jim (636) 940-1521 Anne (636) 359-6037 Charline (417) 469-1068 Sally (417) 469-4842 Linda (314) 544-5623 Kevin (314) 841-3755 Walt (636) 256-9171 Mary (314) 542-9303 Kidsho4@swbell.net Michelle (636) 447-5407

There will be a new Talk MS group beginning in Cuba, MO this summer. Contact Allison at (800) 344-4867 or allison.harper@gatewaymssociety.org.

1.800.344.4867

happenings TALK MS GROUPS ILLINOIS Alton/Wood River Belleville/ O’Fallon Granite City

Call for Dates

Litchfield

4th Tuesday, 6:30 pm

Metro East

Apr. 28, 7 pm June 23, 7 pm

Mt. Vernon

Call for Dates

Southern Illinois

2nd Tuesday, 5 pm

The United Presbyterian Church, 2550 Rock Hill Rd., Wood River, IL 62095

Lisa (618)-258-0615

First United Methodist Church 504 East Highway 50, O’Fallon, IL 62269

Amy (618) 235-4226 Group needs new leader.

Gateway Regional Medical Ctr, Pascal Hall Contact Allison at (800-344-4867) or 2100 Madison Ave, Granite City, IL 62040 allison.harper@gatewaymssociety.org Susan (217) 324-7106 Christian Church of Litchfield susie57@consolidated.net 131 Yaeger Lake Trail, Litchfield, IL 62056 Ruth (217) 999-8924 tuba66@frontier.net LINC, Inc. Diane (618) 235-8823 #1 Emerald Terrace Ste. 200 Earhart500@aol.com Swansea, IL 62226 Faith Lutheran Church 1104 N. 42nd St. Mt. Vernon, IL 62864 Heartland Regional-Medical Center Classroom #2 3333 West DeYoung, Marion, IL 62959

Terri (618) 242-8448 Robert (618) 983-0321

SPECIALIZED GROUPS Men’s Chat MS Fun, Friends & Food Veterans with MS CarePartner and Family Group

Last Tuesday of Telephone group the month, 7 pm David C. Pratt Cancer Center June 1 St. John’s Mercy Medical Center 6 pm 607 S. New Ballas Rd., St. Louis, MO 63147

Joe S. jsalacki@sbcglobal.net

Michelle (314) 251-6400 Debbie (636) 579-0264 debrafriends@hotmail.com 2nd Wednesday, Veterans Admin. Medical Center 1 Penny or Patti (314) 652-4100 ext. 10 am Jefferson Barracks Dr., St. Louis, MO 63125 4523 patricia.noonan2@med.va.gov Office Gateway Area Chapter 3rd Wednesday, NMSS Allison (800) 344-4867 1867 Lackland Hill Parkway, St. Louis, MO 63146 7 pm allison.harper@gatewaymssociety.org

Talk MS Group Open House

Upcoming Talk MS Group Open House Schedule: Cape Girardeau, MO Saturday, March 20

This is an exciting opportunity to see first hand how Talk MS is moving forward. Chapter staff will be attending to let you know about the programs and services offered by the Chapter. There is no fee to attend but you must register, so RSVP today at 1-800-3444867. Feel free to tell a friend or bring a guest. All Talk MS Group Open Houses will take place at the same location as regular group meetings. Please review the Talk MS Fulton, MO listing on Page 24 and above to learn more. Wednesday, April 7 www.gatewaymssociety.org

HAPPENINGS

3rd Tuesday of each month 7-9 pm 2nd Sunday, 2:30 pm

HAPPENINGS

Gateway Area Chapter

Sex is Not a 4-Letter Word

Sex is Not a 4-Letter Word Registration

Friday, April 30, 2010 6:30-9 p.m.

[ ]

St. Louis, MO Friday, April 30

[ ]

Columbia, MO Saturday, May 1

Forest Park Visitor and Education Center 5595 Grand, St. Louis, MO

Saturday, May 1, 2010 6-8:30 p.m. Les Bourgeois Vineyards 14020 W. Highway BB Rocheport, MO 65279

Objectives g How multiple sclerosis impacts sexual function g Understand what can be done to improve intimacy and sexual relations g Everything you always wanted to know but were afraid to ask Guest Speakers: Dr. Frederick Foley, Ph.D. Director of Neuropsychology and Psychosocial Research Multiple Sclerosis Comprehensive Care Center, Holy Name Hospital Teaneck, NJ Heather Raznick, MSW, LCSW Clinical Sex Therapist Private Practice St. Louis, MO

Name_______________________________ Address______________________________ City/State/Zip_ _________________________ Home phone___________________________ Work phone_ __________________________ E-mail_______________________________ Guests (please include age)__________________ Does anyone in your party use a mobility device?_ ____ Does anyone in your party have any dietary restrictions?_ __________________________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend. St. Louis program sponsored by Biogen Idec.

FREE PROGRAM INCLUDES DINNER!

1.800.344.4867

Columbia program sponsored by EMD Serono

happenings Living the Symptoms of MS

Living the Symptoms of MS Registration

Tuesday, May 11, 2010 6-9 p.m.

[ ]

St. Louis Zoo - Lakeside Café St. Louis, MO Speaker: Dr. Randall Schapiro President, The Schapiro Multiple Sclerosis Advisory Group Eagle, CO Using his book Managing The Symptoms of Multiple Sclerosis, Dr. Randall Schapiro will take people living with MS through three areas of MS management: the disease, the symptoms and the issues related to lifestyle and general wellness. He will explore all the symptoms of MS and discuss proven methods for proper and effective management. Participants will: Learn the three areas of MS management: the disease, the symptoms, and lifestyle and general wellness

Registration Dinner Program

Name_____________________________ Guest name_ ________________________ Address _ __________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Do you prefer to receive your confirmation via mail or e-mail?_ ____________________ Does anyone in your party use a mobility device?_ ____ Does anyone in your party have any dietary restrictions?_ __________________________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.

6 p.m. 6:30 p.m. 7-9 p.m.

Registration deadline: April 30th

www.gatewaymssociety.org

Program sponsored by Teva Neuroscience

HAPPENINGS

FREE PROGRAM!

St. Louis, MO Tuesday, May 11

Gateway Area Chapter

HAPPENINGS

MS Aquatics

METRO AREA

Wellbridge Athletic Club – (Clayton) Contact: Trudy C. (314) 746-1500 x1551

Carondelet Park Rec Plex Contact: Shannon (314) 768-9622

Wellbridge Athletic Club – (Town & Country) Contact: Abby (636) 207-3000

Bridgeton Community Center Contact: Cole (314) 739-5599

Center of Clayton Contact: Diane (314) 353-4960 Chesterfield JCC Contact: Sheena Koster (314) 442-3495

DIVE IN!

Everyone can participate in an aquatics class. You don’t need to know how to swim – you just need the desire to improve yourself, have fun, and make friends.

Why aquatics?

g The buoyancy of the water reduces your body weight, meaning less stress on joints! g Better cardiovascular fitness is gained using the resistance of the water! g Water keeps you cool and guards against fatigue, so you can exercise longer! Limited fee waivers for MS Aquatics programs are available. Please call 1-800-344-4867 for more information. Therapeutic recreation programs sponsored by Anthem Blue Cross and Blue Shield Foundation

MID MISSOURI

Columbia Activity & Recreation Center Contact: Janel (573) 874-7460 x7700

Emerson Family YMCA (North County) Contact: Georgia/Chris (314) 521-1822

Jefferson City YMCA Contact: Erica Hart (573) 761-9021

Hazelwood Community Center Contact: Jill A. (314) 731-0980

Mexico Family YMCA Contact: Consuelo (573) 581-1540

Jefferson College (Hillsboro) Contact: Christina C. (636) 942-3000 x382

SOUTHERN AND METRO ILLINOIS

Mid-County YMCA (Brentwood) Contact: Sandi (314) 962-9450 Show Me Aquatics Contact: Carolyn (636) 896-0999 South City Family YMCA Contact: Rich (314) 644-3100 St. Charles County YMCA Contact: Joyce (636) 928-1928 x250 The Pointe at Ballwin Commons Contact: Leslie or Adam (636) 227-8950 Washington Four Rivers Family YMCA Contact: Ann (636) 239-5704

1.800.344.4867

John A. Logan College Contact: Chris G. (618) 985-2828 x8504 Jerseyville Wellness Center Contact: Jennifer R. (618) 498-3500 O’Fallon Community YMCA Contact: (618) 628-7701

SOUTHEAST MISSOURI

Black River Coliseum Contact: Mandi E. (573) 686-8009 Cape Girardeau Municipal Pool Contact: Pat Grebe (573) 335-4040

happenings

Yoga Sites ST. LOUIS:

Yoga St. Louis Iyengar Yoga Class 3305 Jamieson Ave. St. Louis MO 63139 Tuesdays, 4:30 – 6 p.m. (Gentle Yoga Class) Call: Kimberly 1-800-344-4867, Opt. 2 St. John’s Mercy Medical Building (South County near I-270 & Tesson Ferry Rd.) 12348 Old Tesson Rd. , St. Louis MO Instructor: Linda Whitney (314) 729-0181 Tuesdays Feb. 23 - April 13 and April 20 - June 8 5:30-6:30 p.m. (Beginner) 7-8 p.m. (Gentle) Thursdays Feb. 25 - April 15 and April 22 - June 10 9:30-10:30 a.m. (Beginner)

Elm Street Yoga 904 Elm St, Suite 210, Columbia, MO 65201 www.elmstreetyoga.com CALL FOR CLASS TIMES Instructor: Linda Lutz Cost: $35 for 5 classes Class size limited to six people Contact: Linda (573) 441-8566 or lindalutz@mac.com

METRO & SOUTHERN ILLINOIS Sukha Yoga Center 18 South High St., Belleville, IL Instructor: Sarah Fraser Cost: call for class times/fees Contact: Sarah (618) 236-9642 Web site: www.sukhayogacenter.com One-O-One Yoga 101 South Graham Carbondale, IL Contact: Sarah Miller, 618-457-8186 Cost: Call for class times/fees Web site: www.center101yoga.com

Your Yoga for Your MS

Cost: $54 for 6 weeks and $72 for 8 weeks.

SOUTHEAST MISSOURI www.gatewaymssociety.org

PARC Fitness Center 2620 N. Westwood Blvd Poplar Bluff, MO 63901 Phone: 573-686-5985 Mondays, 7 - 7:45 p.m. Wednesdays, 6 - 7:30 p.m. (slower paced class) Walk-ins welcome! Instructor: Mindy Matthews

HAPPENINGS

Olivette Community Center 9723 Grandview Drive St. Louis, MO 63132 Cost: $10/ class Call: (314) 781-9020 or 1-800-344-4867 Wednesdays 10 - 11:30 a.m. (Iyengar Yoga Class) Instructor: Kathy Simon

MID MISSOURI

Yoga at The Firm 1610 Freedom Dr. West Plains, MO 65775 Instructor: Vicki Hogan Contact: Vicki (417) 293-1184 or The Firm at (417) 257-7800 Cost: $40 for an 8-week session

Adapting Yoga to All Ability Levels

MS yoga instructors have additional knowledge of MS and its symptoms. Instructors modify postures to your ability level using different props such as blankets, chairs, straps or blocks which help eliminate stress on the joints and make postures more comfortable and safe. For people with MS it can provide the following benefits: g Chronic pain relief g Diminishes fatigue g Relieves depression and anxiety g Improves spasticity g Helps overcome stiffness g Increases oxygen in the blood g Promotes relaxation and sound sleeping g Encourages living in the moment g Provides a fun way to exercise and meet new friends 29

Gateway Area Chapter

Wellness Network

HAPPENINGS

The Wellness Network connects people who have an interest in or who are actively participating in exercise programs through a monthly teleconference. These are similar to the Chapter “Talk MS” groups but each call will focus on a different topic relating to wellness. Upcoming topics include: • How Physical Therapy Can Help (March 25) • How to Stay Active During an Exacerbation (April 29) • Adaptive Exercise Equipment (May 27) • Nutrition (June 24) Participating in monthly calls is an opportunity to share ideas and provide encouragement and support to each other on challenges and successes one experiences while seeking and actively participating in exercise programs. The teleconferences are facilitated by Toni Kodner, a volunteer with extensive knowledge of MS and wellness and are from 7-8 p.m. Each month a guest speaker will also share expertise on a specific topic. The Wellness Network is free and provides resources to a wide variety of people with MS of all abilities. It is also helpful to those who are new to seeking out wellness opportunities and need some guidance and direction. If you are interested in becoming a member of the Wellness Network, please call 1-800-344-4867 or visit our website to register for the monthly calls. Getting to know the facilitator, Toni Kodner: Toni Kodner has been living with MS for over 20 years. She is very physically active and currently takes yoga classes two days per week and is dedicated to her own home exercise program. She volunteers weekly at the Chapter as a therapeutic exercise volunteer. 30

Wellness Network Registration [ ]

How Physical Therapy Can Help Thursday, March 25, 7-8 p.m.

[ ]

How to Stay Active During an Exacerbation Thursday, April 29, 2010, 7-8 p.m.

[ ]

Adaptive Exercise Equipment Thursday, May 27, 2010, 7-8 p.m.

[ ]

Nutrition Thursday, June 24, 2010, 7-8 p.m.

Name_____________________________ Address____________________________ City/State/Zip________________________ Home phone_________________________ Work phone_ ________________________ E-mail_____________________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend. Program sponsored by Anthem Blue Cross and Blue Shield Foundation

1.800.344.4867

happenings Midwest Teleconference Series

Teleconference Registration Please mark the sessions in which you would like to participate:

[ ]

Nutrition and MS Monday, March 8, 7-8 p.m.

HAPPENINGS

Mark your calendars for every second Monday of the month for the Midwest Teleconference Series. The series topics from March through May are:

[ ] Coping with Changes in Cognition Monday, April 12, 7-8 p.m.

Nutrition and MS

Speaker: Maria J. Brodsky, RD, LD, DNSD registered dietician Date/Time: March 8, 2010, 7-8 p.m. Objective: Increase knowledge of healthy eating strategies and techniques

[ ] MS and the Urinary Tract Monday, May 10, 7-8 p.m.

Coping with Changes in Cognition

Speaker: Jared Bruce Date/Time: April 12, 2010, 7-8 p.m. Objective: Increase knowledge of cognitive changes that can happen as a result of MS and practical tips for adapting to those changes.

MS and the Urinary Tract

Speaker: Brett Trockman, MD. Date/Time: May 10, 2010, 7-8 p.m. Objective: Increase knowledge of how MS affects the urinary tract

[ ] Coping with Change Monday, June 14, 7-8 p.m.

Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.

Coping with Change

Speaker: Lisa Sworowski, PH.D. MD. Date/Time: June 14, 2010, 7-8 p.m. Objective: Increase knowledge of coping techniques for people living with primary progressive, secondary progressive and relapseremitting MS

This program sponsored by Bayer Healthcare and, Biogen Idec,

www.gatewaymssociety.org

Gateway Area Chapter

Resource Center

HAPPENINGS

Did You Make Any Recent Home Modifications? Missouri residents who have made home modifications to their primary residence in the past year may be eligible for up to a $2,500 tax credit through the Residential Dwelling Accessibility Tax (DAT) Credit program.

Be on the look out for new literature on MS in your local library as Chapter staff and volunteers will be visiting more than 250 libraries throughout the entire area.

To be eligible for 100% of the tax credit, an individual or married couple filing a joint state return must have an adjusted gross income of $30,000 or less.

In your Library!

To be eligible for 50% of the tax credit, an individual or married couple filing a joint state return must have an adjusted gross income of $30,000 to $60,000. Eligible costs include constructing entrance or exit ramps, widening exterior or interior doorways, widening hallways, installing handrails or grab bars, moving electrical outlets and switches, installing stairway lifts, installing or modifying fire alarms, smoke detectors, and other alerting systems, modifying hardware of doors and modifying bathrooms. This program receives $100,000 in appropriations each year. Approved tax credits are issued in the order they are received, on a first-come, first-served basis. Application forms can be found on the Department of Revenue’s website: http://dor.mo.gov/tax/ taxcredit/dat.htm For more information and eligibility requirements, please contact Blake Fuhler at the National MS Society at blake.fuhler@nmss.org or 314-446-4193. 32

1.800.344.4867

The Gateway Area Chapter is excited to announce the availability of new MS resources in your community. We are visiting more than 250 public libraries across the 90 counties in our Chapter and providing them with two new books on MS. These books provide a wealth of information about MS, symptoms, therapies and how MS can affect your life, family and work. Both books provide complex information in easyto-read formats. You can visit the public library in your community to check out these books. You can also access the Chapter’s Lending Library for these books as well as many other books, DVDs and CDs specific to MS.

Find these books at your local public library:

• MS for Dummies by Rosalind Kalb, Nancy Holland and Barbara Giesser • Multiple Sclerosis: The Questions You Have—The Answers You Need, by Rosalind C. Kalb, PhD

happenings by Elinor Nauen

“Many things qualify as medical expenses,” said Trudy C. Durant, an accountant in New York and New Jersey: medical equipment; supplies; insurance premiums you pay yourself; transportation and lodging (but not meals) for medically essential trips — for both you and a companion; home attendants; and doctorrecommended programs such as weight loss or smoking cessation. A physician’s letter is essential in case you’re audited.

Let’s say you installed a $40,000 swimming pool. If it raises the value of your house by $10,000, you can deduct $30,000. Costs to remove a barrier, such as widening doorways to accommodate mobility aids, are also deductible. Spending the winter in Florida? Sorry, you’re out of luck. All these deductions kick in only after you’ve paid 7.5% of your adjusted gross income for medical expenses. So, for example, if your income was $ 50,000 a year, and you spent $6,000 on medical expenses, the first $3,750 is your responsibility. You can deduct $2,250 of your $6,000 expense. Your best bet is to keep really good records, group major expenses into one tax year if you can, and take the advice of a tax professional, including the IRS itself. “Use common sense. Some potential deductions haven’t been tested in the courts. You’ll

www.gatewaymssociety.org

have to decide if you want to chance having to fight for them,” Durant said. For more information: log on to irs.gov or call the IRS’s toll-free number: 1-800-8291040. For those who qualify, the IRS’s Volunteer Income Tax Assistance (VITA) program— with offices in many convenient neighborhood locations—helps prepare basic tax returns. Call 800-829-1040.

Knowledge is Power is a six-week, free, at-home educational program for people who are newly diagnosed. Mail or e-mail formats. To register call 1-800-344-4867, or visit nationalmssociety.org/knowledge. Join the movement.

HAPPENINGS

Just having MS may feel like more than enough to deal with, but you have to pay taxes like everybody else. There is some good news: You can potentially reduce your tax bite. Learn all you can about the allowances available to people with disabilities. First off, every penny you spend out of pocket, beyond what’s reimbursed by your insurance, may add up to legal deductions.

Home improvements that are primarily for medical care are also allowable. This would include air conditioners, a rollin shower, a stair lift, and an elevator. There is a catch. You can deduct what you spend minus the amount that the improvement increases the value of your property.

Tahirah, diagnosed in 2004

Tax Time 2010

Gateway Area Chapter

Optic Neuritis & MS

HAPPENINGS

Tuesday, April 20, 2010 6:30-8:30 p.m.

[ ]

Hilton St. Louis Frontenac 1335 South Lindbergh Boulevard St. Louis, MO 63131 Speaker:

Optic Neuritis & MS Registration

Dr. Robert Naismith, Neurologist, Barnes Jewish Hospital John L. Trotter MS Center

Please join us at this free program where Dr. Naismith will: • Explain how the visual system functions and how it is affected in MS. • Talk about the prognosis and treatments for optic neuritis. • Discuss why it is important to begin MS therapy as early as possible. • Summarize the research being done on optic neuritis at Washington University.

Registration: 6-6:30 p.m. Dinner: 6:30-7 p.m. Program: 7-8:30 p.m.

Program sponsored by EMD Serono

Cost: Free

St. Louis, MO Tuesday, April 20

1.800.344.4867

happenings Chapter Calendar

MAY 2010

6 8 11

Fitness MS – St. Louis, MO Midwest Teleconference Series New Connections Social Gathering, Cape Girardeau, MO MS Unplugged: Real Talk About Treating Your MS Program Fitness MS – Columbia, MO Fitness MS – St. Louis, MO Talk MS Open House, Cape Girardeau, MO United Access Open House, St. Louis, MO Wellness Network

Talk MS Open House, Fulton, MO Walk MS – Arnold, MO; Carbondale, IL; Eureka, MO Walk MS – Clayton, MO; Edwardsville, IL; St. Peters, MO Midwest Teleconference Series Research MS – Columbia, MO Research MS – Marion, IL Walk MS – Godfrey, IL Walk MS – Cape Girardeau, MO Optic Neuritis, St. Louis, MO Walk MS – Steppin’ Out for MS Night Walk, St. Louis, MO Walk MS – Columbia, MO; Millstadt, IL Women On the Move Luncheon, St. Louis, MO Wellness Network Sex Is Not A 4-Letter Word, St. Louis, MO

JUNE 2010

11 13 13 20 24 25

APRIL 2010

7 10 11 12 17 17 17 18 20 22 24 27 29 30

1 1 2 8 10 11 15 26 27

Sex Is Not A 4-Letter Word, Columbia, MO Spring Rendezvous, Grafton, IL Walk MS – Poplar Bluff, MO; Troy, MO Spring Rendezvous, Grafton, IL MS Mud Run Midwest Teleconference Series Living the Symptoms of MS, St. Louis, MO Family Evening at Grant’s Farm, St. Louis, MO World MS Day Wellness Network

4-6 Challenge Walk MS, St. Charles County, MO 12 Night at The Ballpark, Marion, IL 14 Midwest Teleconference Series 19 Family Evening, Columbia, MO 24 Wellness Network

Surfing the Internet and reading educational literature can be great ways to learn about treatments for relapsing MS, but you have other options. Another way to get the information you need is to attend a live program where you can interact with an MS expert and others living with MS. So join this upcoming educational session, listen to an MS expert discuss treatment options, ask questions, and hear from others living well with relapsing MS. This is an event you won’t want to miss! Guest speakers: Dr. Becky Jo Parks, MD, John L. Trotter Multiple Sclerosis Center, Department of Neurology Jordan Sigalet, MS LifeLines Ambassador, professional hockey player who lives with MS

Event details

Thursday, March 11 Hilton – St. Louis Frontenac Registration: 5:30 p.m. Program: 6 p.m. Includes complimentary dinner. Call 1-877-329-8327.

Take Me Out To the Ballgame

Batter Up! Nothing says summertime like a trip to the ballpark. Grab your family and friends and cheer on the Gateway Grizzlies or the River City Rascals. Keep a look out this spring for future announcements on when tickets will be available for these games. These tickets will be available on a first-come, first-served basis. If you would like to be placed on a mailing list to receive advanced notification, please contact Allison at (314) 446-4184 or allison.harper@gatewaymssociety.org.

www.gatewaymssociety.org

HAPPENINGS

MARCH 2010

MS Unplugged: Real Talk About Treating Your MS

FREE MATTER FOR THE BLIND AND HANDICAPPED

NON-PROFIT ORGANIZATION U.S. POSTAGE PAID Permit No. 3914 St. Louis, MO

Gateway Area Chapter 1867 Lackland Hill Parkway St. Louis, MO 63146 RETURN SERVICE REQUESTED

Gateway Area Chapter Gateway Area Chapter 1867 Lackland Hill Parkway

happenings St. Louis, MO 63146

making the most

National Multiple Sclerosis Society

of life and the least of MS

In this issue United Access Open House. . . . . . . . . 19 Family Evening at Grant’s Farm . . . . . 20 Research MS. . . . . . . . . . . . . . . . . . . . . 21 Spring Rendezvous. . . . . . . . . . . . . . . 22 Family Evening. . . . . . . . . . . . . . . . . . . 23 Talk MS Groups . . . . . . . . . . . . . . . 24-25 Sex Is Not A Four-Letter Word. . . . . . 26 Living The Symptoms of MS. . . . . . . . 27 Therapeutic Recreation. . . . . . . . . 28-29 Wellness Network. . . . . . . . . . . . . . . . 30 Midwest Teleconference Series . . . . . 31 Resource Center. . . . . . . . . . . . . . . . . . 32 Money Matters . . . . . . . . . . . . . . . . . . 33 Optic Neuritis. . . . . . . . . . . . . . . . . . . . 34 Chapter Calendar. . . . . . . . . . . . . . . . . 35

It’s time to spring forward and you can do that in a variety of ways with the Chapter in the upcoming months. Bring your family and friends out to Grant’s Farm (pg. 20) or to Family Evening in Columbia (pg. 23). The Chapter is always offering great learning opportunities. Upcoming ones include discussions on the symptoms of MS (pg. 27) and optic neuritis (pg. 34). Of course there are always the Chapter teleconferences (pg. 31)

which will include topics like nutrition and cognition. With spring also comes tax time. See pages 32 and 33 for information on possible tax credits and information on possible deductions from medical bills. You can also learn about the technological advancements in accessible vehicles and modifications (pg. 19). It’s also Walk MS season and there is sure to be a walk near you (pg. 35).

Your Source for Knowledge, Wellness, and Support

Spring 2010