MOVING TOWARD A WORLD FREE OF MS | SPRING • 2011
GATEWAY AREA CHAPTER
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MS= MS=?
COMMUNITY HOPE RALLYING POINT
MS TALKING POINTS
Learn why it’s important to educate others about MS and techniques on how to do it | 3
What does MS mean to you?
LEGISLATIVE ACTION DAY
Educate others during MS Awareness Week March 14-20
WOMEN ON THE MOVE
Chapter staff and volunteers make voices heard in Jefferson City | 6 New York Times Bestseller to be featured speaker | 7
NYT Bestseller to Visit PAGE 7
MS TALKING POINTS
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MS AMBASSADORS
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LEGISLATIVE ACTION DAY 6 WOMEN ON THE MOVE
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VOLUNTEER COLUMNS
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ASK THE PROFESSIONAL
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FROM THE BOARD
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NEWS BRIEFS
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RESEARCH
13-14 15
NIGHT OF 1000 STARS 16-17 WALK MS TALK MS HAPPENINGS
Night of 1000 Stars PAGES16-17
M K I S C D C S P U O R G S M K L A T R
K E N E W C O N N E C T I O N S F Q O E
E E O E B I N F E N I L A O R I M U V S
S P X H L A N I O R S I W U N P K A O E
D S M K L A W E G N E L L A H C A T L A
N M N E R R Y A L H E F N Y P S L I U R
E Y E X D A E O L D T C F G C E H C N C
I E T S O U A T G K I O C I N M T S T H
WORD SEARCH
R L A M I E C E P A M B F D D V N O E M
F I N A N C I A L A S S I S T A N C E S
E N O N T S R P T T H N S K T S E E R C
MS Brain Games PAGE 13
L F D I P A L E L E G C A E E A P K S H
E M W O P A I K X L I R Y M N M R E A A
T N W R N T N C I E O N R A T L S S L M
I E I N P D I B H O A T S A W A L L A P
A LETTER FROM THE PRESIDENT PHYLLIS ROBSHAM
INSIDE THIS ISSUE
MS BRAIN GAMES
Ask the Professional PAGE 10
E C N E R E F N O C E L E T A C O V D A
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Springtime at the MS Society is about coming together and raising awareness. MS Awareness Week is March 14-20, 2011, and this year’s theme is “MS = ”. While MS can represent challenges to overcome, it can also represent opportunities to help others. MS can mean learning to adapt. Please think about what MS equals in your life, and share that with others. Walk MS has long been a signature event and rallying point for people who want to do something about MS now. For many, Walk MS is the single most important action they can take for their health, spirit and future. Walk MS says to everyone living with MS: You are not alone. This year thousands of people in our 90-county area will rally together to speak with one voice at one of our 10 Walk MS locations on April 16. In addition, walks will be held in Carbondale, IL (April 2) and Cape Girardeau, MO (April 10). We will also paint downtown St. Louis orange at the Steppin’ Out for MS Night Walk on Thursday, April 21 at Kiener Plaza. Walk MS and MS Awareness Week are chances to celebrate how far we’ve come and how far we are determined to go to create a world free of MS. If each of us does our part to share our stories or the stories of those we care about, to raise money and raise awareness, someday soon we will be able to say that MS equals a thing of the past.
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P.S. Please display the pull-out poster in the middle of this magazine in your workplace or home to show your commitment to a world free of MS! 2 |
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R E I N T E R S H I P S A P Y E E E E I
C N T T T A K E A C T I O N I R T I W O
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LIVING WITH MS
MS TALKING POINTS: EDUCATING OTHERS ABOUT MS Aside from facing symptoms like fatigue, numbness, balance issues and vision problems, people living with MS have to face something else – educating others about MS.
TALKING TO YOUR CHILDREN MS is hard enough to understand and it can be such a complicated issue - how do you tell your children? Tripp said it’s important to communicate with them at their level and describe how it may affect the child’s daily life.
While most people probably have heard of MS, it certainly doesn’t mean they understand what the disease really is. “Most of what people think is misconception,” said Karen Tripp, a licensed marriage and family counselor and leader of the Chapter’s monthly CarePartner Talk MS group. “People end up thinking a wheelchair and all kinds of different things when that may not be part of the person’s diagnosis at all. A lot of people aren’t aware of the progress that has been made and the medications now available to people with MS.”
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TALKING TO YOUR EMPLOYER One of the most nerve-racking situations people with MS may face is telling their employer they have MS. If you do decide to tell your employer, you don’t have to come out and overwhelm them by blurting ‘I have MS.’
“I would start to tell them about their symptoms and things that they’re coping with before telling them the diagnosis,” Tripp said. “I would explain Telling people you have MS can ‘I have this condition and be scary, but it’s important to be I’m having some issues with able to talk to people so you can memory right now and a little build a support system. bit of vertigo’ and whatever “It’s important that you aren’t in other things are affecting them, a state of isolation when you’re and describe what the situation coping with something like MS,” is before telling them the Tripp said. “It’s important to tell diagnosis.” someone and have some level of It may also be a good idea to support group where you don’t explain to them a bit about the have a sense of secrecy. If you treatment, and it’s important to want people to understand your educate them that the degree of situation and what you’re going symptoms can vary from day to through, you have to educate day and that if you relapse you them.” will probably be able to recover.
MS AWARENES WEEK = OPPORTUNIT Y MS Awareness Week is March 14-20 and is a great chance to spread awareness about MS and what MS means to you through the national theme of ‘MS =’. Post something on your Facebook page or add a tag on your email to educate others about MS.
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LIVING WITH MS
MS TALKING POINTS: CONTINUED “The first thing to do is really think about it from your child’s point of view,” Tripp said. “What are the things that mom or dad can’t do anymore? What are the things that mom or dad still can do? That’s the information the child needs. They need to know that mom gets tired very easily and is going to take more naps but mom is still going to be the one to pick them up from school every day.” Even if the signs of MS may not be visible to children, it is important to communicate with them and not be secretive. “When you’re doing that with children, our non-verbal communication is so loud,” Tripp said. “The kids know something is going on. Kids may start to develop their own problems in response to the tension in the home. Even if the symptoms are mild it’s important to let the kids know that mom sees a special doctor or mom needs some special medicine.”
TALKING TO YOUR PARTNER Most likely your partner will be the first person other than your 4
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neurologist and you to know of your diagnosis, and Tripp says that’s exactly how it should be. “From the very beginning you want to develop a relationship with your partner being involved, informed and aware of your disease, symptoms and treatments,” Tripp said. “Developing that partnership early before physical issues may become more severe is really primary to the stability of the relationship. It’s not obsessing over the MS. It’s just making sure everyone is on the same page. We signed up and we said we’d be with each other through sickness and health — this is it.”
TALKING TO SOMEONE YOU’RE NEWLY DATING
when it’s becoming a burden not to,” Tripp said. “When it’s becoming really painful keeping it from them, it may be time to have the conversation.” PRIVATE LIFE NOT SECRET LIFE If you have MS it doesn’t mean you have to give everyone the details of all the symptoms you’re dealing with and the different types of treatments you’ve taken, but keeping it a secret shouldn’t be a burden. “Having the stress of feeling that I’m walking around in my life and I have this secret about myself that I’m not sharing with other people is not a good thing,” Tripp said. “That doesn’t mean that you have to wear a T-shirt that reads ‘I have MS’ or you have to broadcast it to the universe. But it does mean that on some level you’re sharing it with people.” While talking to others about MS can be scary and frustrating, it can also be therapeutic and relieve a burden.
“The last thing people with MS need is more stress,” Tripp said. While most first-date “If you’re living in a place where conversations may surround you’re frightened of people where you grew up, what you like to do for fun, your family and knowing, that’s not good and needs to be dealt with.” pet preferences, it doesn’t have to include a declaration of your Karen Tripp, a licensed marriage MS. But how do you know when and family counselor, leads the to tell someone you’ve been Chapter’s monthly CarePartner dating? Talk MS group. See pages 28-29 for a listing of Talk MS groups. “You probably need to share it
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ADVOCACY
MS AMBASSADORS: SPREADING THE WORD AT A GRASSROOTS LEVEL When you are out and about town, and you see a small table covered with an orange table cloth and literature on MS manned by a volunteer handing out Tootsie Rolls, make it a point to stop by and talk for a few minutes to see what the passion is all about. You just might get interested enough to join us in the movement, to do something about MS now and become an MS Ambassador. We participate in health fairs, consumer shows, and a variety of other event venues, as representatives of the Chapter. We are trying to grow a small army of people, who have been impacted by MS in one way or another, who would be willing to volunteer their time and talents, and meet the public at large to share their experiences.
The MS Ambassadors have been busy spreading the word about MS and the Chapter.
If you would like to volunteer as an MS Ambassador or would like one to speak at your group go to gatewaymsambassadors.org. Our volunteer group has touched more than 8,000 area residents in the past four months…and we’re only just beginning. If you’re interested in our progress, check out our pages on the Chapter’s website at www. gatewaymsambassadors.org. Currently, we are looking for 100 people across the Chapter who are willing to make a nominal commitment of their time to become an MS Ambassador: to attend an orientation session, and then to meet people and talk about MS and the Gateway Area Chapter. We offer tools to make our Ambassadors successful, and offer the opportunity to get as
involved as they choose to be. We multiply the Chapter staff’s efforts to reach local businesses, civic groups, schools, universities, and medical groups. We deliver a message that is clear and consistent, so everyone we talk to gets the facts that they need to learn about MS, to volunteer, to participate, to fund research, to donate to help people address the challenges of living with MS… to do something about MS now. If you are interested in becoming an Ambassador or having an Ambassador speak to your group, let us know. Contact Tim Roccia at 314-651-0622 or troccia@ yahoo.com.
TOLL FREE NUMBER 1 800 344 4867
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ADVOCACY
REPRESENTATIVES MAKE VOICES HEARD AT CAPITOL On February 15-16, about 70 volunteers and staff members from the Gateway Area and Mid-America Chapters visited with their legislators to raise awareness of MS and the needs of people living with disabilities in Missouri. Volunteers personally spoke with about 80 state representatives and senators, and delivered materials to the offices of other legislators. Volunteers successfully pushed for a change that will make the Missouri legislative process more accessible for people with disabilities. Missouri’s beautiful domed capitol building was completed in 1917, decades before the Americans with Disabilities Act. Many of the legislators are in offices with stairs or narrow doorways that are inaccessible to people with mobility issues. Stephen Kinstler, an advocacy volunteer who has visited Jefferson City many times, described a visit with Rep. Kate Meiners, “I was surprised that I couldn’t get to her office on the Mezzanine. Instead we talked in the hallway, which was noisy and provided no privacy.” With the support of MO Speaker of the House Steven Tilley, this problem has been 6
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Among the many things representatives from the National MS Society did during legislative action day in Jefferson City was presenting Senator Eric Schmitt with a Committed Statesperson Award. Representative Tim Meadows, Senator Jay Wasson and Senator Bob Dixon also received awards. solved. An accessible area of the Capitol has been designated as a private meeting space that can be reserved by legislators for meetings with constituents who are unable to visit their offices.
delaying the need for expensive long-term care facility care. For more information on the Home Accessibility Tax Credit, please call the MO Dept. of Economic Development at 573-751-4539.
The second issue volunteers raised with legislators was maintaining the Home Accessibility Tax Credit, which makes home modifications, such as ramp installations and door widening, more affordable for middle class Missourians. The tax credit helps people with disabilities stay independent in their homes, which both improves their quality of life and saves taxpayers money by
Legislative Action Day also included the presentation of 2010 Committed Statesperson Awards to Representative Tim Meadows, Senator Jay Wasson, Senator Bob Dixon, and Senator Eric Schmitt for their support of the Society’s legislative priorities.
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EVENTS
NYT BESTSELLER HEADLINES ANNUAL LUNCHEON
While this year’s Women on the Move Luncheon keynote speaker does not have MS, she knows all about the affects of MS and is one of the National MS Society’s biggest advocates.
The Chapter is pleased to welcome New York Times bestselling author Jacquelyn Mitchard at the Women on the Move Luncheon May 5 at The RitzCarlton St. Louis. Mitchard, the 2006 recipient of the Society’s Advancing MS Awareness Award, is widely involved in the Society’s activities. Her most popular novel, “The Deep End of the Ocean,” has been chosen as one of the 10 most influential books in the past 25 years and was selected as the first novel in Oprah Winfrey’s book club. Mitchard became interested in learning and doing more for the MS community when her best friend of 40 years, Jeanine, was diagnosed. “Being an MS advocate lets me feel as though I’m really in the fight,” she said. “It’s possible that I’ll be able to be there when my best friend walks, runs and then leaps again.” Mitchard honors Jeanine for her courageous will against MS in her 2005 novel, “The Breakdown Lane,” by basing the main character on her. She is humbled by her friend, who despite whatever pain she feels, is still a constant source of support. “A thousand times, although she was weak, or postinjection, or in pain, Jeanine has been the shoulder for me,” Mitchard said. Mitchard is looking forward to speaking at the annual luncheon to encourage those facing the disease to hold on and keep loving to every degree possible because they will someday all “stand together for the moment of the cure.” Speaking engagements such as this are a gentle reminder of how her challenges pale in comparison to what Jeanine and others deal with on a daily
basis. Mitchard is greatly inspired by the tenacity of the people she has engaged with and often learns important life lessons from them.
“People with MS are not just tough. They’re engaged, fierce and powerful,” she said. “They don’t let MS win. Ever.”
New York Times bestselling author Jacquelyn Mitchard, will be the guest speaker at the Women on the Move Luncheon on May 5.
When she isn’t writing, Mitchard spends time with her husband and seven children. She is also an advocate for another disease close to her heart, colorectal cancer.
CALL TO ACTION
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health-care professional about using one of these medications and about strategies and effective treatments to manage symptoms. The National MS Society is committed to ensuring that people with MS have the information and quality care they need to live healthy, productive and independent lives. If you or someone you know has MS, please contact the National Multiple Sclerosis Society today at www.nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. TOLL FREE NUMBER 1 800 344 4867
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VOLUNTEER
THROUGH THE EYES
RICHARD KOSSMEYER
‘BUDDY’ COORDINATOR AT THE HEIGHTS In my professional life, I’m a sales trainer at Slumberland Furniture. In my volunteer life I’ve become the buddy coordinator for the Gateway Area Chapter of the National MS Society where we connect people living with MS at a long-term care community with volunteer ‘buddies.’
You may be asking how a furniture salesman becomes a buddy coordinator. I’ll tell you. I love finding out information on how I can better take care of the customers I see at Slumberland. In the past year we’ve had a few customers with MS. So I contacted the Gateway Area Chapter and requested a speaker come to the store and help educate our staff on how to properly assist our customers with MS. The Chapter’s MS Ambassadors sent Jennifer Luner who came in and did a great presentation for us and asked me to visit the office and meet some staff and I was hooked. I was introduced to The Heights, a wing of a longterm care community in west St. Louis County especially for people living with MS. I started visiting once a week just to hang out with the residents. I was surprised by how upbeat, positive, and funny everyone was. It felt really good just to hang out and talk at The Heights. I was having a great time so I started going to the meetings and helping out as often as I could. Then I was asked to be a buddy coordinator for The Heights. I was honored and very excited to be given the opportunity to help improve and change the lives of my newfound friends. My favorite thing about being part of The Heights is you don’t have to do anything special — just be yourself. You don’t have to spend money, have a 8
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The Chapter’s Buddy Program connects residents at The Heights MS Wing at NHC Town and Country with volunteers. cool car, flashy clothes, or try to impress anyone. You just get to be you and show up and have fun. Whenever I feel down or alone I always think about my friends at The Heights. I was always scared to volunteer because I felt almost guilty since I’m in good health. I would always wonder if I could even have a positive impact on anyone. I have found though, that something as simple as just being a good friend who listens and cares for another person goes a long way. I don’t do anything special, I just go where I’m always welcome and visit with friends. We have so much fun talking and joking, and laugh all day. We have had pizza parties at the mall and a Super Bowl party. Everyone is always grateful when I come and glad to see me, I love The Heights and am thankful every day to be a part of it. To learn more about the Chapter’s Buddy Program contact the Chapter at 1-800-344-4867.
OF VOLUNTEERS
SANDY SHERMAN TELEFRIEND VOLUNTEER COORDINATOR
I’ve had a long history with my MS, since 1987. I’ve also had a long history with the Gateway Area Chapter, I started volunteering in 1993. A couple of weeks after my MS prevented me from working, I knew I had to do something. So I got involved with the Chapter in the program which is now called Telefriends. The program connects trained volunteers who have MS with other people with MS who simply want someone to talk to. The volunteer calls their Telefriend regularly to answer questions, share tips on how to manage symptoms, to just chat and sometimes just to listen. After a couple of months of making connections with other people with MS, I was asked to be the volunteer coordinator for the
VOLUNTEER DONOR
program. This meant I was kind of a Telefriend to the Telefriend volunteers. The role included checking on the Telefriend volunteers each month, asking how many calls they made and how their Telefriends were doing. It became very, very important to me and it has been ever since, even 18 years later.
reaches out to people with MS. It’s a win for the volunteer because it makes them feel good because they’re able to help somebody. That’s what keeps me going.
The best thing about the program is that it helps the volunteers as much as it helps the person receiving the calls. And it doesn’t take much to make an impact as I don’t know of any other program a Telefriend volunteer. You don’t quite like it in any other nonhave to have all the answers, but profit organization where they just being there can make all have this many volunteers making the difference. When they say as much contact as we do. The ‘thank you Sandy for listening’ people receiving the calls need to that makes me feel so, so good. be getting these calls. They need It’s working both ways since I’m to talk to somebody who has helping them, and they in turn MS. Telefriend volunteers have help me keep going. MS, so we kind of understand TELEFRIENDS what they’re going through. We The TeleFriend program conmay not have exactly the same nects people with MS to symptoms that they do, but we trained volunteers living with understand why they have them. MS who truly understand the We can relate to them and that’s challenges MS can present. what this program is about. Weekly phone calls provide support, friendship, and a chance to share thoughts and feelings with others who are coping with MS. TeleFriend volunteers are people living with MS who want to share their own experience and supIt’s a win-win-win. It’s a win for the port their peers. Volunteers are person receiving the calls to talk to prepared to share information someone who can relate to them. on MS research, treatments, and resources available through It’s a win for Chapter because the Chapter. Contact the Chapit has a successful program that ter to get involved. I’ve had people ask me why I’ve volunteered in the Telefriend program for so many years. I do it because it helps me because I’m helping that person with MS who may be scared and has questions.
TOLL FREE NUMBER 1 800 344 4867
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MS CONNECTION
ASK THE PROFESSIONAL PATIENT QUESTION: What are some common misconceptions about MS?
Among the patients who see me in my office for multiple sclerosis some have opinions that can be described as myths or misconceptions about the disease.
Jagannadha Avasarala MD, Ph.D. Cape Neurology Specialists
Some of them think MS is fatal while others assume poor dietary habits or hereditary traits cause the disease. While genetic factors raise the risk of MS, they are not the sole cause. The list of myths that hound MS is endless but I will try and highlight a few of the misconceptions that seem to ‘make the rounds’.
In general, MS is not fatal and most of the deaths are related to complications in the chronic/progressive stages of the disease. Diet and MS have always intersected and patients are very keen about the type of diet they should follow to avoid further attacks. Anxious patients seek a ‘gluten-free’ diet or wonder if they should eat more calcium, but no nutritional deficiency is known to be a factor in MS, and addition of vitamins or minerals has not been proven to alter the disease course. Polyunsaturated fatty acids (PUFA) have slight immunosuppressive properties, but studies involving oils from sunflower/safflower seeds, primrose, and fish have yielded conflicting results. Of note, high circulating vitamin D levels in blood probably lower the risk of MS. Another myth is the fact that there are ‘cures’ in MS. There are none. We all acknowledge that the choices for a clinician to treat MS are many and continue to expand but no cures can be promised. As well, the extreme variability of presentation in MS makes it a perfect disease for ‘quacks.’ The only way to know whether a treatment is effective is to follow many patients for years to see whether those who receive the treatment do better than those who do not. ‘Quacks’ claim credit whenever 10
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anyone who consults them improves, and since the majority of attacks are followed by some partial recovery, persuasive ‘quacks’ can acquire patients who swear by whatever they recommend. Strategies promoted in the name of producing benefit include prokarin (skin cream/patch application), hyperbaric oxygen, hydrogen peroxide, coral calcium, bee venom therapy and other snake oil claims of success. The Therapeutic Claims Committee of the International Federation of Multiple Sclerosis Societies has analyzed more than a hundred alleged treatments and published the results in a book titled “Therapeutic Claims in Multiple Sclerosis,” which is updated frequently (Sibley W and others. Therapeutic Claims in Multiple Sclerosis, 4th edition. New York: Demos Vernande, 1996). MS patients should not fear pregnancy and must not mix up the disease with muscular dystrophy, two other areas where ignorance reigns. While mothers with MS can face special challenges in caring for their babies it should in no way deter them from considering the option of having children – indeed, acute attacks are sometimes lessened in the second and third trimesters. While it will take research to unravel the secrets of this complex disease, it pays to be aware of some common myths.
2011 BOARD OF TRUSTEES
WHY DID I JOIN THE MOVEMENT? Rhonda Ries-Aguilar Partner & CFO Osborn & Barr
What drew you to the Gateway Area Chapter? My mother was diagnosed with MS in 1994. Upon diagnosis, her neurologist immediately directed our family to the Gateway Area Chapter. The Chapter provides immense amounts of information for patients and their families, all in the spirit of support. What is your connection to MS? My mother suffered with MS for 14 years before dying from associated complications. I also have a number of friends and colleagues who live with the effects of MS daily. Seeing their spirit and perseverance is inspiring. What do you hope to bring to the Chapter? I hope to contribute both professionally and personally in advancing the organization’s mission to raise community awareness and support. Why did you want to join the board? I was approached by current board members, due to my experience in both finance and marketing. Honored by the invitation, coupled with my personal experience of seeing the support the Chapter provides — I felt obligated to participate and to give back. What do you hope to accomplish with the board? Utilizing my background, my goal is to contribute meaningful insight, effective counsel to my assigned committees, the Chapter and my fellow board members.
Lynette Roccia
Community Volunteer What drew you to the Gateway Area Chapter? We attended the Summer Swizzle in 2009 to give our son an opportunity to meet others living with MS. During the evening, he met the Volunteer Manager of the Gateway Area Chapter. What is your connection to MS? Our son has been living with MS since 1986. We also have a daughter who was diagnosed with MS eight years ago. What do you hope to bring to the Chapter? My hope is to share my expertise in fundraising. I have worked with many organizations in St. Louis, none as compelling as the MS Society. Why did you want to join the Board? After spending an afternoon with (board member) Mike Houlihan and (Chapter President) Phyllis Robsham, they convinced me I had qualities and experience to bring to the Board. I also have an ulterior motive — I want to help keep my kids moving! What do you hope to accomplish with the board? I am a “people” person. I plan to connect with as many people in the community as possible to help them realize that together we can work for a world free of MS.
TOLL FREE NUMBER 1 800 344 4867
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NEWS BRIEFS
AWARENESS WEEK = MARCH 14-20 MS Awareness Week is upon us! This year people throughout the nation are sharing what MS means to them through the ‘MS =’ campaign. This is a great opportunity to help educate others about MS and the National MS Society.
WALK MS SEASON IS HERE!
Walk MS is the rallying point of the MS Movement and this year thousands of people throughout our area will get together to celebrate hope on Saturday April 16 at 10 walks throughout the area. In addition there will be walks in Carbondale (April 2) and Cape Girardeau (April 10). We will also paint downtown orange for the Steppin’ Out for MS Night Walk, Thursday April 21 at Kiener Plaza in downtown St. Louis, MO. Another change this year is the St. Peters walk is moving from Kircher Park to St. Charles Community College. See the center spread for information on a walk in your community. 12
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15TH ANNUAL CHALLENGE WALK MS CORPORATE MS TO CELEBRATE ACHIEVERS 10TH ANNIVERSARY CAMPAIGN KICKS OFF This year On February 9, the 15th annual MS Corporate Achiever Campaign kicked off at Thompson Coburn. About 50 participants in the business community raise a minimum of $2011 each and honorees are featured in a special insert of the St. Louis Business Journal.
Challenge Walk MS is celebrating its 10th anniversary. The 50-mile, 3-day journey will be June 3-5 at St. Charles Community College. Go to www. gatewaymschallenge.org for more information.
AN AMAZING PREMIER
CAMP HOPE
The Chapter was thrilled to welcome Amazing Race host Phil Keoghan at a special premier of his movie ‘The Ride.’ The documentary chronicles Keoghan’s 3,500-mile ride from Los Angeles to New York to raise awareness and funds for MS. The event was held at the Regal St. Louis Mills Stadium 14 in Hazelwood. Go to noopportunitywasted.com for more information.
JOIN THE MOVEMENT: nationalMSsociety.org
The Chapter will initiate a brand new program this July just for youth ages 8-15 who have MS or a loved one with MS. The camp will be held at Touch of Nature, just outside Carbondale, IL and will include both recreational and educational activities to help young people affected by MS better understand the disease and ways to live with it in their lives.
READY. SET. PLAY!
Illinois Lottery tickets benefiting the National MS Society will start hitting stores in March. If your local convenience store does not carry them, ask them to order “It’s DoubleTime” scratch-off tickets!
MS CROSS WORD PUZZLE
MS BRAIN GAMES
All of the words have something to do with Walk MS. To register for Walk MS go to www.gatewayMSwalk.org. L
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• ARNOLD • BALLOONS • CAPE GIRARDEAU • CAPTAINS • CARBONDALE • CHAMPIONS • CLAYTON • COLUMBIA • EDWARDSVILLE ANSWER KEY ON PAGE 14
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• EUREKA • FAMILY • FRIENDS • FUNDRAISING • GODFREY • MILLSTADT • NIGHT WALK • MOBERLY • RALLYING POINT
NOTE: WORDS WITH SPACES SPACES NOT USED ON WORD GRID. SOME WORDS OVERLAP.
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• REST STOPS • ST. PETERS • TEAMS • TROY • VOLUNTEERS • WALK MS • WEAR ORANGE
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MS CONNECTION
SAVE THE DATE(S) - VOLUNTEER AT AN EVENT!
If you can’t join us as a participant at one of our events, you, your family and friends can be a key part of the event by volunteering. Contact Bobbie Appelbaum at bobbie.appelbaum@gatewaymssociety.org if you’re interested in volunteering.
APRIL 2 Carbondale, IL APRIL 10 Cape Girardeau, MO APRIL 21 Steppin’ Out for MS Night Walk St. Louis, MO
APRIL 16 Arnold, MO Clayton, MO Columbia, MO Edwardsville, IL Eureka, MO Godfrey, IL Millstadt, IL Moberly, MO St. Peters, MO Troy, MO
MAY 7 St. Louis, MO Harrah’s St. Louis
10th Anniversary 2011
JUNE 3-5 St. Louis, MO St. Charles Community College
SEPTEMBER 10-11 Columbia, MO Boone County Fairgrounds
MS CROSS WORD SEARCH ANSWER KEY
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FACEBOOK.COM/GATEWAYMSSOCIETY MYSPACE.COM/NATIONALMSSOCIETYGATEWAY TWITTER.COM/GATEWAYMS YOUTUBE.COM/GATEWAYMSSOCIETY
RESEARCH
THE WORLD OF MS RESEARCH In October, more than 5,500 neurologists and other investigators from around the world covered almost every aspect of current MS research in some 900 scientific presentations and posters at the annual ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) conference in Gothenberg, Sweden.
In a separate session, Dr. Antonio Uccelli of the University of Genoa described attempts to stop MS progression using infusions of an individual’s own bone marrow or blood stem cells (mesenchymal cells). Dr. Uccelli is now collaborating on a study that he hopes will show that these cells are beneficial. Restoring function
Several research teams reported progress in improving quality of life and specific symptoms, including fatigue and mobility issues, through group physical therapy, and Some research highlights supervised aerobics, yoga and resistance training classes. Another study suggested that memory A newly completed two-year, phase III trial of training can improve brain function. Many teriflunomide, an oral compound that inhibits reports focused on CCSVI specific immune cells, Two different doses of (chronic cerebrospinal venous in 1,088 people with relapsing MS, found teriflunomide significantly insufficiency), with mixed or conflicting results. Lab positive results. Dr. Paul reduced the rate of MS studies identified additional O’Connor of the University relapses by up to 31.5% molecules that may block the of Toronto reported that two different doses of compared to placebo, and ability of myelin-making cells to repair damage caused by teriflunomide significantly the higher dose reduced the MS; selectively turning them off reduced the rate of MS risk of disability progression could be useful for encouraging relapses by up to 31.5% myelin repair in people with compared to placebo, by 29.8%. MS. and that the higher dose reduced the risk of disability progression by Risk factors 29.8%. It also reduced the risk of new MS lesions and reduced disease activity. Additional clinical Dr. Trond Riise of the University of Bergen trials are underway. reviewed the growing list of factors that may contribute to an individual’s susceptibility to Other medications also show promise at various developing MS, and pointed to current studies trial stages. An oral compound called firategrast that may lead to a better understanding of the caused a significant decrease in the rate of new interactions and variations of these multiple risk MRI-detected lesions in a six-month trial in factors. relapsing-remitting MS. Ocrelizumab, which targets and kills immune B cells, reduced new For a more complete report on the conference, lesions by at least 89% over placebo in a 24-week search “ECTRIMS” at nationalmssociety.org. trial. TOLL FREE NUMBER 1 800 344 4867
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EVENTS
CHAPTER HONORS ACHIEVEMENT AWARD
Some have MS and live with the disease and the difficulties it presents. Some do not, but live with those who do, and their difficulties may be greater. They are mothers and fathers and children whose lives have been changed by MS, whether directly or indirectly. One is a company that understands the disease and is aware of how it affects their employees.
But they’re all winners — winners of the annual achievement awards that were an integral part of the Night of a Thousand Stars celebration Thursday, February 17 at the Sheraton Westport Lakeside Chalet Hotel. People with MS understand that it is a constantly changing disease, and those who love them and live with them understand that their lives change constantly, too. Today’s challenge may vanish tomorrow, or tomorrow may bring a different challenge, or one that is more severe. The caretaker must be constantly adaptable, like a utility infielder who may be playing a different position tomorrow, just like someone who has MS may learn that tomorrow’s pain may be a different one, 16
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stronger or in an unfamiliar place.
ACHIEVEMENT AWARD WINNERS
“She’s one of my personal touchstones,” said nominator Leann Chilton about Wendy Schneider, the Individual of the Year, adding, “It is her dogged passion to demonstrate her commitment to a cure and to help those of us who do not have MS by living, by giving and by doing. Wendy is the reason I walk.”
INDIVIDUAL OF THE YEAR
“I know my Dad has MS because he has wobbly legs,” said six-year-old Liza about Rudy Yanuck in a family letter that earned him the Father of the Year award. “He rocks!” added 15-year-old Carley. Rudy’s wife, Tamara, notes, “We were in a restaurant and the owner looked at Rudy walking out with his crutches and smiled at me and said ‘You are taking care of him.’ I had to say, ‘No. He takes care of me.’ That is what is beautiful about Rudy.” “Kendra is a person of character to the core,” wrote Debbie Robertson, one of many who nominated Kendra Yancey, the Mother of the Year. Neither Becky Salacki, Caregiver of the Year, nor Nancy Friedhoff, the Unsung
JOIN THE MOVEMENT: nationalMSsociety.org
WENDY SCHNEIDER FATHER OF THE YEAR
RUDY YANUCK
MOTHER OF THE YEAR
KENDRA YANCEY
CAREGIVER OF THE YEAR
BECKY SALACKI
UNSUNG HERO
NANCY FRIEDHOFF YOUNG ACHIEVER
AUTUMN BROWN
EMPLOYER OF THE YEAR
MEDASSETS
Hero, has MS, but their efforts have had a wide-ranging effect while showing how people can help one person, or hundreds. Becky has been married for 18 years to Joe, more than half of them since he was first diagnosed with MS. She not only takes care of him while handling a fulltime job, but also wore #1 at the 2010 Challenge Walk as the top fundraiser for 2009. “Things might be a little harder
EVENTS
WINNERS AT ANNUAL NIGHT OF 1000 STARS PATHLIGHTER AWARDS Pathlighter Awards honor volunteers who have provided at least three years of service to the Chapter. These extraordinary volunteers are some of the finest examples of true stars who are blazing a path to create a world free of MS.
ADMINISTRATIVE
ROBYN HULSEY
HEALTHCARE PROFESSIONAL
ELISSA BRADFORD COMMUNITY
AMY ANDERSON DEVELOPMENT
AL GUISE
or it might take us a little longer but that’s OK,” he wrote in his nominating letter. “You have to play the cards life deals you and I couldn’t ask for a better partner.” Nancy, nominated by a number of her co-workers at Express Scripts, organized and led its team in Bike MS for the last five
The Chapter honored its Achievement Award and Pathlighter Award winners as well as its Mission Possible honorees Thursday, February 17 at the annual Night of 1000 Stars Dinner at the Sheraton Westport Lakeside Chalet Hotel. years. Under her passionate conditions, making necessary leadership, a team that began adaptations at the work with 30 volunteers and riders place. Equally important ballooned to more than 200, is MedAssets’ approach to and fundraising grew from charitable efforts by its workers, $50,000 to more than a quarter- including matching funds they million. When she was offered raise. a promotion at Express Scripts, The Chapter added a new her sole stipulation was that she achievement award this year, would take it only if she could the Young Achiever of the Year. continue as leader of the MS The inaugural winner is Autumn team. Sadly, she was 49 when Brown who has helped grow she passed away suddenly in Walk MS in Carbondale, and November. increased MS Awareness on Sandy Hoffman nominated the campus of Southern Illinois MedAssets, her employer, University in Carbondale. as Employer of the Year. She Autumn’s passion for the cause has MS, and pointed out how comes from her dedication to MedAssets makes it possible her brother, who was diagnosed for her to have comfortable with MS in 2008 at age 21. and considerate working TOLL FREE NUMBER 1 800 344 4867
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DEVELOPMENT
TALKING THE TALK AND WALKING THE WALK Everyone who participates in Walk MS does so for a reason. Team Orange Lightning walks in the Godfrey Walk MS because all of their team members either have MS or have a close connection to it.
“We’re a close group, and we’re excited to participate and raise MS awareness in the community,” says team captain Lisa Hemphill, who is also the co-leader of the Alton/RiverBend Talk MS group. What makes this team special is that most of its members are also part of the Alton/RiverBend Talk MS group. “In the group, we get to talk to and support each other and learn about different topics on MS,” she said. “The Walk is our chance to go out and about and talk to other people about MS and the Walk.” Orange Lightning has also grown along with the Godfrey Walk. After being a rookie team last year, they have set a goal of $3,000, which will make them an Elite Team and earn them special perks.
The Alton/RiverBend Talk MS group has also formed a Walk MS team called Orange Lightning. For more on Talk MS groups see pages 28-29. The team name is inspired by one of their team members. “We were brainstorming at one of our Talk MS meetings and one of our members is jokingly but lovingly called ‘Lightning’ by her neighbor because she moves so slowly,” Lisa said. “ We all thought that was funny, so we took it and added ‘Orange’ for MS. The lady whose nickname is ‘Lightning’ always walks at Walk MS at least one time around the path, and we’re so glad she does. She inspires us.”
JOIN THE MOVEMENT
Did you know that 6,885 Walk MS participants raised $713,000 in 2010?
Did you know that 211 Challenge Walkers raised $510,000 in 2010?
Did you know that 522 Mud Run MS participants raised $109,000 in 2010?
Did you know that 3,341 Bike MS participants raised $2.6 million in 2010?
Did you know that YOU can be a part of these events without leaving your home? Inspire and educate these fundraisers through our MS Champions Program. Contact Traci Buss at 314-446-4186 or traci.buss@gatewaymssociety.org. 18
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JOIN THE MOVEMENT: nationalMSsociety.org
happenings MS Wellness Fair
St. Louis, MO March 26, 2011 The Rehabilitation Institute of St. Louis 4455 Duncan Avenue, St. Louis, MO 63110 COST: $10
Carole, diagnosed in 2005
CarePartner Teleconference The CarePartner Teleconference program provides an opportunity for family members or friends of those living with MS to connect. These calls are a chance to share coping techniques, experiences, and information. These calls include guest speakers to discuss topics important to carepartners and family members.
Upcoming CarePartner Teleconferences: Monday, April 4, 2011 7-8 p.m. Monday, June 6, 2011 7-8 p.m.
GUEST SPEAKER: Karen Tripp
Licensed Marriage and Family Counselor Leader of CarePartner and Family Talk MS Group
TOPIC: Struggling with Loneliness: Finding Connections as a Carepartner COST: FREE PROGRAM
REGISTER: Go to gatewaymssociety.org or see Page 35. www.gatewaymssociety.org
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HAPPENINGS
PROGRAM INCLUDES: g Individual screening appointments with a physical and occupational therapist g Strength assessment g Balance assessment g Activity assessment g Mobility device assessment g Range of motion tests g Various health screenings with a nurse g Opportunity to meet with a variety of healthcare disciplines g Opportunity to ask specific health and wellness questions g A continental breakfast or afternoon snacks g Information on the Chapter’s wellness programs and community wellness resources
Gateway Area Chapter
Understanding the Affordable Care Act
HAPPENINGS
Wednesday, April 6, 2011 Locations: Cape Girardeau, MO Columbia, MO St. Louis, MO Metro East, IL
Program I (for people with MS, friends, family), 3-5 p.m. What Does the Affordable Care Act Mean to Me and What Do I Need to Know? Participants will learn: • The resources available to help navigate MS and health care reform • What support services will be available for people with disabilities • How to apply knowledge to help in planning their future coverage Panel Discussion Featuring: • Judy Baker, Regional Director, Department of Health and Human Services (moderator) • Lauren Chiarello, Director of Federal Affairs, National MS Society • Linda Redford, RN, PhD, Director of Central Plains Geriatric Education Center & parent of young adult with MS • Erica Kiehnhoff, BSW, MSCIR, Manager of Direct Services, National MS Society, Mid America Chapter FREE PROGRAM Program II (for health providers) 5:30 - 7:30 p.m. Navigating the Affordable Care Act: What to expect after the one year anniversary CONTINUING EDUCATION CREDITS WILL BE AVAILABLE. At the conclusion of the session, participants should be able to: • Identify and utilize resources available to patients with MS and other disabilities. • Access and plan for support services that will be available for people with disabilities across their continuum of care. • Describe available insurance coverage and exchanges. Panel Discussion Featuring: • Judy Baker, Regional Director, Department of Health & Human Services (moderator) • Andrew Allison, Executive Director, Kansas Health Policy Authority • Sandy Praeger, Kansas Insurance Commissioner and Chair of the NAIC Health Insurance & Managed Care Committee. PROGRAM COST: $25 For more information, visit MSmidamerica.org or GatewayMSsociety.org, or call 1-800-344-4867. TO REGISTER, VISIT HTTP://COA.KUMC.EDU/CPGEC OR CALL 913-588-1464. 20
1.800.344.4867
happenings Mark Your Calendar for Spring Rendezvous!
Take one weekend to relax and have fun with other couples living with MS.
Cost: $60 (before April 13), $70 (after April 13) Registration deadline: April 18.
Imani, diagnosed in 2006
New Connections
Come meet with other people who have been newly diagnosed with MS in the past five years or who have recently moved to the area. Staff members from the Chapter will be attending to let you know what we do and how we can help. April 12, 2011 Location: DoubleTree Hotel 422 Monroe Jefferson City, MO 65101 Time: 6-8 p.m. Registration Deadline: April 1
The lodge is located in the 8,000-acre Pere Marquette State Park, overlooking the Illinois River. Built in the 1930s and continually maintained, the lodge combines rustic charm with modern amenities, all just 45 minutes from St. Louis. Guests may choose a variety of activities including: • Guest speakers on • Art Therapy relationship buildDemonstration ing, effective com- • Accessible Swimmunication and ming intimacy • Evening Entertain• Arts and Crafts ment A limited number of fee waivers are available for the program and/or accessible transportation. For details, please call Allison at 314-446-4184. For more information, questions, or to RSVP, contact the Chapter’s office at 1-800-344-4867. This program fills up quickly, so register early!
This program will feature guest speaker Dr. Barbara Green. A three-course dinner will also be included with this free program. Space is limited so make your reservation today!
www.gatewaymssociety.org
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HAPPENINGS
April 30 - May 1 Pere Marquette Lodge Grafton, Illinois
Gateway Area Chapter
Family Evening: Night at the Ballpark
Family Evening at Grant’s Farm
HAPPENINGS
Saturday, May 21, 2011 Time: 6:30-9 p.m. Grant’s Farm 10501 Gravois Road St. Louis, MO 63123 Time to enjoy an evening with your friends and family and Grant’s Farm! The program begins with a ride on a Grant’s Farm tram and enjoying a tour of Deer Park. Your next stop is at The Bauernhof, home world-renowned stables, and location of the evening’s festivities. Activities include: g Meeting others living with MS g Photo with Clydesdales g Accessible tram tour of Deer Park-home to exotic animals from around the world! g Arts and Crafts area g Live music g Food buffet and beverages
Batter Up! Nothing says summertime like a trip to the ballpark. Grab your family and friends and cheer on the Southern Illinois Miners on Saturday June 4. Check www. gatewaymssociety. org for our night at the Gateway Grizzlies and River City Rascals games. Call now to reserve your seats, as these events are sure to fill up quickly!
Saturday, June 4 Time: 6-9 p.m.
Southern Illinois Miners vs. Lake Erie Game time: 7:05 p.m. Rent One Park 1000 Miners Dr. Marion, IL, 62959 Cost: FREE (no meal option)
Register before May 2 to receive a special early registration fee. Early Bird Fee (Register before May 2) $10 adult $5 child Regular Fee $20 adult $10 child Registration deadline: May 9 Fee waivers available for program and transportation. 22
1.800.344.4867
happenings Family Evening in Columbia, MO Saturday, June 11, 2011 Time: 3-7 p.m.
Activities include: g Arts and crafts area g Face painting g Raffle prizes g Barbeque g Dessert potluck g Games and other outdoor activities
HAPPENINGS
Stephens Lake Park Riechmann Pavilion 2300 E. Walnut, Columbia, MO Family Evening-Columbia, MO is a great way to meet other people living with MS. Join us for an afternoon of fun, food, family and friends. The program will take place at an air-conditioned, indoor pavilion located with easy access to Stephens Lake. Cost: FREE PROGRAM Fee waivers are available for transportation to program. Registration deadline: June 6
Progressive MS Symposium Progressive MS manifests itself differently in each person. Whether your MS is “secondary-progressive,” which follows a period of “relapsing-remitting” MS, or “primary-progressive,” meaning it has been slowly progressing from the beginning, it is important to realize that “progressive” does not necessarily imply severe disability. While there are still no effective medical treatments to repair nerves or reverse permanent losses of function, there are many useful strategies and treatments. It is possible to alleviate many symptoms, to improve some functions, and — just as important — to compensate for disabilities and thus lessen their impact on your life. This program will directly address the issues of those living with progressive MS and research in the field of progressive MS.
PROGRAM INCLUDES: g Keynote speaker presentation by Dr. Lauren Krupp, Neurologist and Co-Director of MS Center at Stony Brook University in New York g Live at St. Louis location, via live video to all locations g Lunch g Resource Fair g Breakout Sessions at each location including: Bowel & Bladder, Caregiver support, Physical and Occupational Therapy
Saturday, June 18, 2011 10 a.m. - 2 p.m.
Cape Girardeau, MO; Carbondale, IL Columbia, MO; Metro East, IL; St. Louis, MO Go to www.gatewaymssociety.org for details on locations and registration.
www.gatewaymssociety.org
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Gateway Area Chapter
Relationship Matters
HAPPENINGS
Relationship Matters Enrichment Course: 8 Hours to a Lifetime of Relationship Satisfaction June 25-26, 2011 Conference Location: Drury Lodge at Lodging: Victorian Inn & Suites Cape Girardeau 3265 William St. 104 South Vantage Dr. Cape Girardeau, MO 63701 Cape Girardeau, MO 63701 Cost: $40 per couple Having a satisfactory relationship is hard work even in the best of times. MS can make it even harder. In this workshop you are able to explore ways to develop a team approach to living well with MS. This interactive and energetic workshop will focus on: • Improving communication and resolving conflicts • Having greater fulfillment in your relationship • Managing MS as a team • Helping your relationship thrive When you know how to take charge as a couple, MS doesn’t have to rule your relationship. Overnight lodging and meals are included with your registration. FEE WAIVERS FOR THIS PROGRAM AND/OR TRANSPORTATION ARE AVAILABLE. 24
1.800.344.4867
Rick, diagnosed in 1991
happenings Learn About MS - Anytime benefit, pros, cons and potential side effects. There are more than 50 other Learn Online videos available. Transcripts (.pdf format) and podcasts (.mp3 audio format) are available for most programs
For 10 years, MS Learn Online has provided educational webcasts, featuring health professionals from all over North America, accessible at nationalMSsociety.org/ mslearnonline any time, day or night. A recent feature presentation is “Getting a Good Night’s Sleep with MS,” in which Rock Heyman, MD, chief of the division of neuroimmunology and director of the MS Center, the University of Pittsburgh, explains why people with MS seem to be more prone to sleep disorders. He has some tips for dealing with the problem. Another new presentation is on Gilenya, the first oral disease-modifying therapy to be FDA-approved. Aaron Miller, MD, professor of neurology at Mount Sinai and medical director at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis in New York City, discusses Gilenya in two sessions covering how it works, who might
Sign up at nationalmssociety.org/ mslearnonline to receive an e-mail whenever a new webcast debuts. Explore Learn Online videos online: Basic Facts of MS, Treatments, Symptom Management, Healthy Living, Progressive MS, Research, Family Life and Relationships, Employment and Insurance, and En Español. On the first and third Thursdays of each month, two new videos are added. An update on disease-modifying therapy is generally added once a year. In a hurry? Visit Daily Minutes. In 60 seconds you’ll get some basics on Who Gets MS, What is Myelin, What is Relapsing-Remitting MS– and more. Click on the Daily Minute link in the blue box at nationalMSsociety.org/ mslearnonline.
www.gatewaymssociety.org
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HAPPENINGS
Dr. Aaron Miller discusses Gilenya, the first FDAapproved oral therapy for MS.
Correspondents who interview the MS experts not only have a professional background in broadcasting, they have MS themselves. “So what they want to know is often what other people with MS want to know,” said Julie Gibson, special projects consultant for the Society.
Gateway Area Chapter
Living Well With MS
HAPPENINGS
People live with MS, but is it possible to live well with MS? Many people do. They learn ways to address issues central to their overall well-being. “Wellness is not dependent on not having a disease—you can have a health issue and still live well. You can learn strategies to live optimally with the disease,” said Stephanie Fisher, MA, executive director of the Marilyn Hilton MS Achievement Center at UCLA, a joint program of the UCLA Department of Neurology and the Southern California Chapter of the Society. The Hilton Center recently shared its experiences as a leader in the wellness field. Here are some of what they view as core components of wellness. • Exercise. Physical activity blunts the impact of MS by improving the body’s overall condition—increasing strength, range of motion and cardiovascular health. “We know exercise is beneficial, within one’s personal limits,” said Denise Nowack, RD, executive vice president, Programs and Services, Southern California Chapter. Working with a health-care professional will help determine what and how much exercise works for you—whether it is tai chi, yoga, aquatic exercises, bicycling, or something else. • Eating well. “Good nutrition is important, as is managing weight, since extra weight adds to fatigue,” Nowack added. There are 26
lots of resources on eating healthily (and deliciously). Visit nationalMSsociety.org and search for “nutrition” to find recipes, meal planning and information on nutrients important to people with MS. • Knowledge. A current and accurate understanding of MS, its symptoms and treatments can help people navigate medical decisions and get more from their partnerships with health-care professionals. However, there’s lots of misinformation both online and off. Call us or visit nationalMSsociety.org to start finding up-todate and helpful resources. • Emotional and spiritual resources. The grief and sense of loss that a diagnosis brings up are powerful factors. Paying attention to one’s inner self can help people learn “to recognize the things that drain them emotionally and how they can minimize them,” Nowack said. “People can develop practices to carry them through their lifetime.” For more information on all the aspects of living well with MS, visit nationalMSsociety. org/healthyliving or call us for information about wellness-focused programs, classes, support groups and more for people with MS in this area.
1.800.344.4867
happenings Personal Training Pays Off For People With MS
Undeterred, Allen pushed forward. Today, with surgeries a relic of the past and MS his primary concern, Allen proudly boasts a daily exercise regimen that includes cardiovascular work, strength training and even swimming – all developed through a personal trainer at Gold’s Gym, made possible with financial assistance from the Chapter. “The personal trainer knew what I wanted to do and what I wanted to get out of working out,” Allen said. “He told me what to do and what not to do in terms of pushing it.” Denise Pisciotta, a competitive runner through her freshman year of college, turned to a personal trainer after MSrelated mobility concerns and a broken femur left her using a wheelchair.
“Once using a wheelchair, I knew I needed to continue maintaining strength, but did not know what exercises I should or should not be doing,” Denise said. “A friend of mine suggested a trainer who could model a program around my needs. The rest is history; I have been seeing a trainer for approximately 15 years.”
Denise and one of her trainers, physical therapist Pam Fisher of NutriFormance, work on trunk strengthening exercises and balance and motor skills once a week. “We work all muscles through the abdomen and the sides, and along the back,” Pam said. “We also challenge her eyehand coordination and timing.”
HAPPENINGS
Allen Kerperien was diagnosed with multiple sclerosis following a horrific motorcycle accident in 2003. With his legs severely broken and multiple surgeries on the horizon, doctors told Allen he would never walk again.
Janet Yost has had great success working with a personal trainer. MS left her struggling to stay positive – says the experience has transformed her demeanor and outlook.
As a result, Denise says she is able to sit up straighter in her wheelchair and has maintained strength in her arms, which allows her to get around and transfer into and out of her wheelchair.
“My self confidence is back,” Janet said. “My life used to be filled with what I could not do. Now I am constantly encouraged by what I can do, and what I will be able to do. Years of MS robbed me of not only my mobility, but of my hope. Now, I may have a few scars, but I look at them as battle wounds. And guess what: I’m winning the war.”
In addition to the physical benefits a personal trainer can bring, Janet Yost – who opted for a personal trainer after
For more information go gatewaymssociety.org g Programs & Services g Wellness.
www.gatewaymssociety.org
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Gateway Area Chapter
TALK MS GROUPS
HAPPENINGS
MISSOURI Cape Girardeau
3rd Saturday 10 a.m.
Columbia
Call for Dates
Crystal City/Festus Fulton
1st Monday 6 p.m.
Jefferson City
2nd Monday 7 p.m. 2nd Sunday 2 p.m.
New London Bootheel Area Salem
2nd Tuesday 1 p.m. 1st Wedneday 3 p.m.
NEW
GROUP!
St. Charles Washington West Plains
St. Francis Health & Wellness Center Healing Arts Building, Conference Room 150 S. Auburn, Cape Girardeau, MO 63703 University of Missouri-Columbia Quarterdeck Bldg., Rm. 118 2401 Lemone Ind. Dr., Columbia, MO 65201 Disability Resource Assn. 420B S. Truman Bl., Crystal City, MO 63019 At Home Real Estate 2606 North Blutt, Fulton, MO 65251 St. Mary’s Health Center, Assembly Hall St. Mary’s Medical Plaza, off of West Dunklin, Jefferson City, MO 65101 Call for Location Keller Public Library, 402 W. Grant St. Dexter, MO 63841
TBA
A new group is being formed.
3rd Sunday 3p.m. 3rd Monday 6 p.m. 3rd Wednesday 5 p.m.
Hardees Restaurant at Mid Rivers Mall Dr. and Mexico Rd. St. Peter’s United Church of Christ, 20 East 5th St., Washington, MO 63090 Ozark Medical Ctr. Shaw Medical Bldg. 2nd Fl. 909 Kentucky St., West Plains, MO 65775
3rd Wednesday 7 p.m. 2nd Saturday 1:30 p.m. 2nd Tuesday 7 p.m. 1st Saturday 10 a.m.
Weber Road Library 4444 Weber Rd, St. Louis, MO 63123 St. John Rehab Hospital, 14561 North Outer Hwy 40, St. Louis, MO 63017 Living Word United Methodist Church 17315 Manchester Rd., Wildwood, MO 63038 NMSS Office Gateway Area Chapter 1867 Lackland Hill Pkwy, St. Louis, MO 63146
Sharon (573) 332-8148 Deanna (573) 882-6767 Marlene (636) 464-2533 Sharon webradleys@yahoo.com Cindy (573) 220-0177 Chris (573) 645-0130 cdale@mobankers.com Debby (573) 267-3365 mlrdsr@rallstech.com Tamra (573) 624-0130 cawalker@sbcglobal.net Contact Allison at 800-344-4867 or allison.harper@gatewaymssociety. org if interested. Jim (636) 940-1521 Anne (636) 359-6037 Charline (417) 469-1068 Sally (417) 469-4842
ST. LOUIS METRO Affton Mid-St. Louis County West County Generation OptiMiSTic
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1.800.344.4867
Linda (314) 544-5623 Kevin (314) 841-3755 Walt (636) 256-9171 Michelle (636) 447-5407
happenings TALK MS GROUPS ILLINOIS
Metro East
April 27, 7 p.m.
Southern Illinois
2nd Tuesday 5 p.m.
The United Presbyterian Church, 2550 Rock Hill Rd., Wood River, IL 62095 First United Methodist Church 504 East Highway 50, O’Fallon, IL 62269 Christian Church of Litchfield 131 Yaeger Lake Trail, Litchfield, IL 62056 LINC, Inc. 120 East A Street, Belleville, IL 62220 Heartland Regional-Medical Center Classroom #2 3333 West DeYoung, Marion, IL 62959
Men’s Chat
Last Tuesday 7 p.m.
Telephone group
MS Fun, Friends & Food
May 3 6 p.m.
Lisa (618) Amy (618)258-0615 235-4226
Joe S. jsalacki@sbcglobal.net
Amy (618) 235-4226 Meredith (217) 556-4418
HAPPENINGS
3rd Tuesday 7-9 p.m. 2nd Sunday Belleville/ O’Fallon 2:30 p.m. Tuesday S’myelin Gang of Litchfield 4th 6:30 p.m. Alton/River Bend
Diane (618) 235-8823 Earhart500@aol.com Robert (618) 983-0321
SPECIALIZED GROUPS
Veterans with MS CarePartner and Family Group
David C. Pratt Cancer Center St. John’s Mercy Medical Center 607 S. New Ballas Rd., St. Louis, MO 63147 2nd Wednesday Veterans Admin. Medical Center 1 10 a.m. Jefferson Barracks Dr., St. Louis, MO 63125 Office Gateway Area Chapter 3rd Wednesday NMSS 1867 Lackland Hill Parkway, St. Louis, MO 63146 7 p.m.
Michelle (314) 251-6400 Debbie (636) 579-0264 debrafriends@hotmail.com Penny (314) 652-4100 ext. 63274 Allison (800) 344-4867 allison.harper@gatewaymssociety.org
NEW TALK MS GROUP - PROGRESSIVE MS CHAT The Gateway Area Chapter is excited to announce a new Progressive MS Talk MS telephone group. This group will address the many needs of people living with progressive forms of MS, such as planning for the future and working through feelings of isolation. This group will be led by licensed professional counselor Mary DuParri, who will guide topic specific discussions.
Martha, diagnosed in 1973
The group is scheduled to meet the first Thursday of most months from 2-3 p.m. The first meeting of the Progressive MS Talk MS Group is scheduled for April 7. To learn more and to register, please contact Allison at 314-446-4184 or allison.harper@gatewaymssociety.org. www.gatewaymssociety.org
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Gateway Area Chapter
MS Aquatics
ST. LOUIS METRO AREA Bridgeton Community Center Contact: Cole (314) 739-5599
HAPPENINGS
Carondelet Park Rec Plex Contact: Shannon (314) 768-9622 Center of Clayton Contact: Diane (314) 353-4960 Chesterfield JCC Contact: Sheena Koster (314) 442-3495
DIVE IN!
Everyone can participate in an aquatics class. You don’t need to know how to swim – you just need the desire to improve yourself, have fun, and make friends.
Why aquatics?
g The buoyancy of the water reduces your body weight, meaning less stress on joints! g Better cardiovascular fitness is gained using the resistance of the water! g Water keeps you cool and guards against fatigue, so you can exercise longer! The Chapter offers financial assistance for attendance and transportation to therapeutic recreation programs.
Emerson Family YMCA (North County) Contact: Georgia/Chris (314) 521-1822 Hazelwood Community Center Contact: Jill A. (314) 731-0980 Jefferson College (Hillsboro) Contact Christina C.(636) 942-3000 x382 Mid-County YMCA (Brentwood) Contact: Sandi (314) 962-9450 Show Me Aquatics Contact: Carolyn (636) 896-0999 South City Family YMCA Contact: Rich (314) 644-3100 St. Charles County YMCA Contact: Joyce (636) 928-1928 x250 The Pointe at Ballwin Commons Contact: Leslie or Adam (636) 227-8950 Washington Four Rivers Family YMCA Contact: Ann (636) 239-5704
30
1.800.344.4867
Wellbridge Athletic Club –( Clayton) Contact: Trudy C. (314) 746-1500 x1551 Wellbridge Athletic Club – (Town & Country) Contact: Abby (636) 207-3000
MID-MISSOURI
Columbia Activity & Recreation Center Contact: Janel (573) 874-7460 x7700 Jefferson City YMCA Contact: Erica Hart (573) 761-9021 Mexico Family YMCA Contact: Consuelo (573) 581-1540
SOUTHERN AND METRO ILLINOIS
John A. Logan College Contact: Chris G. (618) 985-2828 x8504 Jerseyville Wellness Center Contact: Jennifer R. (618) 498-3500 O’Fallon Community YMCA Contact: (618) 628-7701
SOUTHEAST MISSOURI
Black River Coliseum Contact: Mandi E. (573) 686-8009 Cape Girardeau Municipal Pool Contact: Pat Grebe (573) 335-4040
To register for an aquatics, yoga or Tai Chi class, please call the number listed. You do not register directly through the Chapter.
happenings
Yoga Sites ST. LOUIS:
www.gatewaymssociety.org
Contact: Sarah Miller (618) 457-8186 Cost: Call for class times/fees Web site: www.center101yoga.com
SOUTHEAST MISSOURI PARC Fitness Center 2620 N. Westwood Blvd Poplar Bluff, MO 63901 Phone: (573) 686-5985 Mondays, 7 - 7:45 p.m. Wednesdays, 6 - 7:30 p.m. (slower paced class) Walk-ins welcome! Instructor: Mindy Matthews
HAPPENINGS
Dragonfly Health Spa & Yoga 1272 A Jungermann Road Olivette Community Center 9723 Grandview Drive, St. Louis, MO 63132 St. Peters, MO 63376 Call: 636-498-5544 Cost: $10/ class Mondays Call: 314-781-9020 or 1-800-344-4867 Restorative Yoga: 10-11 a.m. Thursdays Gentle Chair/Floor Yoga: 11:30 a.m. - 12: 30 p.m. Noon - 1:30 p.m. Core Strengthening Yoga: 6:30-7:30 p.m. (Iyengar Yoga Class) Tuesdays Instructor: Kathy Simon Open Level Yoga: 6-7 p.m. Open Level Yoga: 7:15-8:15 p.m. Yoga St. Louis Wednesdays Iyengar Yoga Class Meditation Class: 6:30-7:30 p.m. 3305 Jamieson Ave. Thursdays St. Louis, MO 63139 Open Level Yoga: 7-8 p.m. Call: 314-645-9785 www.iyengaryogastlouis.com Saturdays Open Level Yoga: 9-10 a.m. St. John’s Mercy Medical Building MID-MISSOURI 12348 Old Tesson Rd. , St. Louis MO Instructor: Linda Whitney Elm Street Yoga Call: 314-729-0181 904 Elm St. Suite 210, Columbia, MO 65201 www.elmstreetyoga.com Tuesdays Tuesdays, 1:15-2:15 p.m. February 15 - April 12 Thursdays, 4:30-5:30 p.m. April 19 - June 7 Instructor: Linda Lutz 5:30-6:30 p.m. (Beginner) Cost: $35 for 5 classes 7-8 p.m. (Gentle) Class size limited to six people Thursdays Contact: Linda (573) 441-8566 or February 17 - April 14 lindalutz@mac.com April 21 - June 9 9:30-10:30 a.m. (Beginner) METRO & SOUTHERN ILLINOIS Saturdays Sukha Yoga Center April 23 - June 11 18 South High St., Belleville, IL 62220 9-10 a.m. (Beginner)** Instructor: Sarah Fraser Cost: $54 for 6 weeks, $72 for 8 weeks. Cost: call for class times/fees Contact: Sarah (618) 236-9642 Web site: www.sukhayogacenter.com One-O-One Yoga 101 South Graham Carbondale, IL 62901
Yoga at the Firm 1610 Freedom Dr. West Plains, MO 65775 Instructor: Vicki Hogan Contact: Vicki (417) 293-1184 or the Firm at (417) 257-7800 Cost: $40 for an 8-week session
Columbia, MO Yoga & Tai Chi NMSS Office 4816 Santana Circle Columbia, MO 65203 Tai Chi Mondays: 10-10:45 a.m. Instructor: Mary Cruise Yoga Fridays, 11:45 a.m. - 12:45 p.m. Instructor: Linda Lutz Cost: $35 for 5 classes or $10 per class Contact: Kimberly at 1-800-344-4867 or kimberly.wilcox@gatewaymssociety.org 31
Gateway Area Chapter
HAPPENINGS
Money Matters: The First Steps to Smart Money Management Financial planning is crucial for people with MS and their families. As the disease continues, expenses tend to grow which may bring difficult financial choices. Early planning can help.
Get started: Call us Begin by calling 1-800-344-4867 to connect with an MS Navigator™. This highly trained professional can refer you to service providers who can help you address issues like health insurance, employment and taxes. Next: Read up One key resource the Navigator will recommend is a brochure called Adapting: Financial Planning for a Life with Multiple Sclerosis. Full of worksheets, tips, and references, the 72-page publication is an overview of your financial options. The Navigator can mail you a free copy, or you can download it at nationalmssociety.org/financialplanning. Finally: Talk to a professional You may need more specific information, which means consulting one-on-one with a financial planning professional. Through the Society’s partnership with the Society of Financial Service Professionals (SFSP), the Financial Education Partners Program provides free personal counseling. In this program, you receive advice during a telephone session with a volunteer 32
from SFSP’s membership. These volunteers are certified public accountants, attorneys, or other professionals.
R R MS ON YOU CHECK OFF FO TA X FORM! xpayers issouri 1040 ta On line 45 of M r refund to $200 of thei can donate up “Addl Trust fund by inserting the amount h the donation code” of 10 wit de. co e th below inserted directly
The more honest and open you are the more your advisor can help. Sessions are completely confidential, and the volunteers are not there to sell you anything but to share their financial knowledge. Be aware that the program cannot help with crisis needs, such as foreclosure assistance. It is not a funding source and offers no programs for indigent care. The idea is to help you forge a workable plan to prevent crises from occurring in the future. While the advisor can’t serve as a long-term advisor, he or she can get you started toward whatever your financial goals might be.
FREE TAX PREPARATION SERVICES The IRS will help you prepare tax returns. The online Interactive Tax Assistant answers questions about deductions, eligibility for credit and more. For those who qualify, the IRS’s Volunteer Income Tax Assistance program offers free tax help by certified volunteers. Call 1-800906-9887. For general information, go to www.irs.gov or the IRS general number, 1-800-829-1040.
1.800.344.4867
happenings Wellness Network The Wellness Network connects people who have an interest in or who are actively participating in exercise programs through a monthly teleconference.
These monthly calls are an opportunity to share ideas and encouragement about exercise and include special guest speakers. The teleconferences are facilitated by Toni Kodner, a volunteer with extensive knowledge of MS and wellness, and are held from 7-8 p.m. The Wellness Network is free and provides resources to a wide variety of people with MS of all abilities. It is also helpful to those who are new to seeking out wellness opportunities and need some guidance and direction. If you are interested in becoming a member of the Wellness Network, please call 1-800-344-4867 or visit our website to register for the monthly calls. Getting to know the facilitator, Toni Kodner: Toni Kodner has been living with MS for over 20 years. She is very physically active and currently takes yoga classes two days per week and is dedicated to her own home exercise program. She volunteers weekly at the Chapter as a therapeutic exercise volunteer.
Midwest Teleconference Series
Mark your calendars on every second Monday of the month for the Midwest Teleconference Series. The series topics from March through Midwest June are:
Teleconference Know Your Rights Series Part I: Standing Up for Yourself
Speaker: Julie Brinkhoff Assistant Director Midwest Great Plains ADA Center Teleconference Date/Time: March 14, 2011, 7-8 p.m. Series
Know Your Rights Part II: Taking Control of Your Healthcare Speaker: Pat Kennedy, RN, CPN, MSCN Midwest Nurse Educator, ProgramsTeleconference Advisor Can Do Multiple SclerosisSeries Date/Time: April 11, 2011, 7-8 p.m.
Intimacy: Preparing for Pregnancy
Speakers: Dr. Barbara Green, Director, West County MS Center at St. John’s Mercy Medical Center Michelle Keating, RN Date/Time: May 9, 2011, 7-8 p.m.
Navigating Through Relationships Part 1: Taking Care of Yourself While Taking Care of Others Speaker: Julie Brinkhoff Assistant Director Great Plains ADA Center Date/Time: June 13, 2011, 7-8 p.m.
www.gatewaymssociety.org
33
HAPPENINGS
Upcoming topics include: • March 24, Zumba! • April 28, Diet and Nutrition • May 26, Adaptive Devices • June 23, Alternative Massage Therapy
Dial. Listen. Learn.
Gateway Area Chapter
Chapter Calendar MARCH 2011
PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETY
APRIL 2011
Contact Us at National MS Society Gateway Area Chapter 1867 Lackland Hill Parkway St. Louis, MO 63146 314-781-9020 or 1-800-344-4867 www.gatewaymssociety.org
HAPPENINGS
3 New Connections Social Gathering, Washington, MO 14-20 MS Awareness Week 14 Midwest Teleconference Series 14 Talk MS Meet & Greet, Hannibal, MO 24 Wellness Network 26 MS Wellness Fair, St. Louis, MO 2 4 7 10 11 13 16 21 28 30
Walk MS – Carbondale, IL Carepartner Teleconference New Connections Social Gathering, Jefferson City, MO Walk MS – Cape Girardeau, MO Midwest Teleconference Series Young Professionals Meeting Walk MS – Arnold, MO; Clayton, MO; Columbia, MO; Edwardsville, IL; Eureka, MO; Godfrey, IL; Millstadt, IL; Moberly, MO; St. Peters, MO; Troy, MO Walk MS – Steppin’ Out for MS Night Walk, St. Louis, MO Wellness Network Spring Rendezvous, Grafton, IL
1 1 5 7 9 14 20 21 26
Spring Rendezvous, Grafton, IL Bike MS Kickoff Ride, St. Louis, MO Women On the Move Luncheon, St. Louis, MO Mud Run MS Midwest Teleconference Series Bike MS Kickoff Ride, Columbia, MO Young Professionals Night on the Greens Family Evening at Grant’s Farm, St. Louis, MO Wellness Network
MAY 2011
JUNE 2011
3-5 Challenge Walk MS, St. Charles County, MO 4 Family Evening at the Ballpark, Marion, IL 6 Carepartner Teleconference 8 Young Professionals Meeting 11 Family Evening, Columbia, MO 13 Midwest Teleconference Series 18 Progressive MS Symposium 23 Wellness Network 25-26 Relationship Matters, Cape Girardeau, MO 34
MS Connection © 2011 A quarterly magazine published by the National Multiple Sclerosis Society, Gateway Area Chapter. Chapter President • Phyllis Robsham Newsletter Editor • Joe Cavato Writers • Dr. Jagannadha Avasarala • Joe Cavato • Kim Fitzsimmons • Dan Friedman • Joe Pollack • Tim Roccia • Nick Rosinia • Sandy Sherman • Stephanie Walgamott NOTICE: The Gateway Area Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis. Our comments are based on professional advice, published experience, and expert opinion, but do not represent therapeutic recommendations or prescriptions. For specific information and advice, consult a qualified physician. The National Multiple Sclerosis Society does not endorse products, services, or manufacturers. Such names appear here solely because they are considered valuable as information. The National Multiple Sclerosis Society assumes no liability whatsoever for the contents or use of any product or service mentioned. Proud member of
1.800.344.4867
happenings Program Registration
Name________________________________ Address_______________________________ ___________________________________ City/State/Zip___________________________ Home phone____________________________ Work phone____________________________ E-mail_______________________________ Guest Names and Ages______________________ ___________________________________ Does anyone in your party use a mobility device?_______ Would you like to request a fee waiver?____________ Do you prefer a vegetarian meal?________________ Date of Diagnosis_________________________ Payment Information ( ) Fee waiver requested ( ) Check enclosed payable to MS Society ( ) Visa ( ) MasterCard ( ) Discover ( ) Am. Express Card # ____________________________ Expiration Date:_______________________ Send to: National Multiple Sclerosis Society, 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 To register online go to www.gatewaymssociety.org, click “Programs & Services” then select “Program Calendar” to choose the program you would like to attend.
www.gatewaymssociety.org
35
HAPPENINGS
[ ] Know Your Rights Part I Teleconference March 14, 2011 COST: FREE PROGRAM [ ] New London, MO Meet & Greet March 14, 2011 COST: FREE PROGRAM [ ] Wellness Network - Zumba! March 24, 2011 COST: FREE PROGRAM [ ] MS Wellness Fair, St. Louis, MO March 26, 2011 COST: FREE PROGRAM [ ] CarePartner Teleconference April 4, 2011 COST: FREE PROGRAM [ ] Understanding the Affordable Health Care Act for people with MS, friends and family April 6, 2011 COST: FREE PROGRAM [ ] Understanding the Affordable Health Care Act for health providers April 6, 2011 COST: $25 [ ] Know Your Rights Part II Teleconference April 11, 2011 COST: FREE PROGRAM [ ] New Connections, Jefferson City, MO April 12, 2011 COST: FREE PROGRAM [ ] Wellness Network - Diet and Nutrition April 28, 2011 COST: FREE PROGRAM [ ] Spring Rendezvous at Pere Marquette April 30 - May 1, Grafton, IL Registration Deadline: April 18 COST: $60 before April 13, $70 after April 13 [ ] Intimacy: Preparing for Pregnancy Teleconference May 9, 2011 COST: FREE PROGRAM [ ] Family Evening at Grant’s Farm May 21, 2011 COST: $10/adult, $5 child by May 2 COST: $20/adult, $10 child after May 2 [ ] Wellness Network - Adaptive Devices May 26, 2011 COST: FREE PROGRAM [ ] Family Evening at the Ballpark, Marion, IL June 4, 2011 COST: FREE PROGRAM [ ] CarePartner Teleconference June 6, 2011 COST: FREE PROGRAM [ ] Family Evening, Columbia, MO June 11, 2011 COST: FREE PROGRAM [ ] Navigating Through Relationships Part 1: Teleconference June 13, 2011 COST: FREE PROGRAM [ ] Progressive MS Symposium June 18, 2011 COST: FREE PROGRAM [ ] Wellness Network - Alternative Massage Therapy June 23, 2011 COST: FREE PROGRAM [ ] Relationship Matters Enrichment Course, Cape Girardeau, MO June 25-26, 2011 COST: $40/COUPLE
NON-PROFIT ORGANIZATION U.S. POSTAGE PAID Permit No. 3914 St. Louis, MO
Gateway Area Chapter 1867 Lackland Hill Parkway St. Louis, MO 63146
Gateway Area Chapter Gateway Area Chapter 1867 Lackland Hill Parkway
happenings St. Louis, MO 63146
making the most In this issue
of life and the least of MS
MS Wellness Fair . . . . . . . . . . . . . . . . . 19 CarePartner Teleconference. . . . . . . . . 19 Affordable Care Act. . . . . . . . . . . . . . . 20 New Connections . . . . . . . . . . . . . . . . 21 Spring Rendezvous. . . . . . . . . . . . . . . 21 Family Evening at Grant’s Farm . . . . . 22 Family Evening at the Ballpark. . . . . . 22 Family Evening, Columbia . . . . . . . . . 23 Progressive MS Symposium. . . . . . . . 23 Relationship Matters. . . . . . . . . . . . . . 24 MS Learn Online . . . . . . . . . . . . . . . . . 25 Living Well With MS. . . . . . . . . . . . . . 26 Personal Training & MS. . . . . . . . . . . . 27 Talk MS Groups . . . . . . . . . . . . . . . 28-29 Therapeutic Recreation. . . . . . . . . 30-31 Money Matters . . . . . . . . . . . . . . . . . . 32 Wellness Network. . . . . . . . . . . . . . . . 33 Midwest Teleconference Series . . . . . 33 Chapter Calendar. . . . . . . . . . . . . . . . . 34 Registration Page. . . . . . . . . . . . . . . . . 35
The cold winter is finally behind us and spring is here. With it come great family programs (pgs. 22-23) and the always popular Spring Rendezvous (pg. 21). The Chapter will play host to another getaway at the Relationship Matters program (pg. 24).
Spring is also a great time to get out and get moving. Read about how people living with MS have benefitted from personal trainers (pg. 27) and there is sure to be a Walk MS event near you (see center spread).
We are always adding programing so be sure to go to In addition to all these programs www.gatewayMSsociety.org g at great locations, the Chapter Programs & Services g Program has resources you can access Calendar for the latest updates. from your home like the CarePartner Teleconference (pg. 19), the Wellness Network and Midwest Teleconference series (pg. 33) and MS Learn Online (pg. 25).
Your Source for Knowledge, Wellness, and Support
Spring 2011