Winter 2009
Collaboration It’s How We Move Wisconsin Toward a World Free of MS
Knudsons Work Together to Tackle Challenge Walk MS
Wisconsin Board of Trustees
Michael Lutze, Vice Chair Ernst & Young Kenneth Minor, Vice Chair Sonic Foundry, Inc.
Jess Levin Bank of Elmwood Karen Minor Community Advocate Bruce Olson The Marcus Corporation Shelley Peterman Schwarz Meeting Life’s Challenges
Patricia Ackerman, Treasurer A.O. Smith Corporation
David Raysich Plunkett Raysich Architects
Robert Sowinski, Secretary Diversified Insurance Services, Inc.
Patricia Raysich Community Advocate
Colleen Kalt, President & CEO National MS Society Wisconsin Chapter Carrie Raymond Bedore Carrie Raymond Bedore, LLC
Dave Rodgers Briggs & Stratton Corporation
Alyson Zierdt, Chair Community Advocate Martin McLaughlin, Past Chair Reinhart Boerner Van Deuren, S.C.
Robert Buhler Open Pantry Albert Elser II Community Advocate Robert Engel M&I Bank
James Rose Virchow, Krause and Company LLP John Steinhafel Steinhafels Furniture Maureen Steinhafel Community Advocate Jeffrey Steren Steren Management/McDonald’s Robyn Turtenwald Community Advocate
If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National MS Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National MS Society recommends that all questions and information be discussed with a personal physician. The National MS Society is committed to seeing a world free of MS.
©2009 National Multiple Sclerosis Society - Wisconsin Chapter
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JOIN THE MOVEMENT: wisMS.org
Let’s Collaborate “Join the Movement & Move Others.” That was the theme of the Society’s annual conference held November 5 to 7 in Chicago. And I’m pleased to report that many of you are doing just that. Alyson Zierdt, our newly-elected Board of Trustees Chair, was among a group of highly-charged Wisconsin Chapter volunteers and staff who attended the conference. Keynote speaker Malcolm Gladwell set the tone for the gathering when he offered a preview of his newest #1 best-seller, “Outliers: The Story of Success.” He shared the importance of being bold, imaginative and collaborative in achieving success. Dr. Stephen Hauser of the University of California at San Francisco credited collaboration for the groundbreaking work being done on the genetics of MS. “Can we make MS a simpler problem?” he asked conference attendees. Dr. Hauser believes we can. “We are within a year of getting to the next group of gene variants and learning how they work,” Dr. Hauser said. Dr. Harold Pollack of the University of Chicago and Society advocate Shawn O’Neal led packed workshops discussing how our bold Health Care Reform Principles have already made an impact on the inner Obama circle. Bringing it Home to the Badger State There’s no question that in these challenging times we will need to be bold, imaginative and collaborative to achieve our goals. In this issue of MS Connection, we’re putting the spotlight on collaboration. From the inspirational story about the Knudsons – a husbandand-wife team who successfully tackled the Challenge Walk; to our suggestions for “moving it” in March during MS Awareness Week; we think you’ll see the power of collaboration. And we hope you’ll be inspired to move others. Together we can do what we cannot do alone: We can create a world free of MS. Warm regards,
Colleen G. Kalt President & CEO MS CONNECTION: Winter 2009
Walking One Mile at a Time
Knudsons Take Bold Approach to a Challenging Event By Meghan Schnabl
Debbie and Bob Knudson had just finished the 2008 Walk MS event in their hometown of Racine when they learned about the new Challenge Walk MS. The promotional flier from the National Multiple Sclerosis Society (NMSS) - Wisconsin Chapter read:
One Challenge walker commented, “When I mentioned to Bob and Debbie that they had a lot of guts, Bob told me, ‘We’re no different Challenge Walk MS. than anyone else 3 days, 50 miles. here. We’re not The event will challenge you. special. We are just The experience will change you. one of you,’ and that really touched me.” Debbie, who has lived with multiple sclerosis (MS) The first day the for more than 20 years, thought this would be a great group completed 20 opportunity to follow in her daughter’s fundraising miles before retiring footsteps, as well as provide a personal physical to the host hotel to challenge. Debbie said, “I will never let MS stop me enjoy a traditional from anything, and I really wanted to raise money to Door County fish help in the fight against MS.” boil dinner. On Debbie decided to sign up for Challenge Walk Saturday night – MS, even though at the time she was recovering from a after completing recent fall. In fact, she had broken bones in both feet, another 20 miles – In 2008 Debbie and Bob Knudson and because of other unrelated injuries, was temporarily everyone gathered completed the Challenge Walk using a wheelchair. Of course that meant the only way at the host hotel MS and the Racine Walk MS Debbie could complete the 50-mile Challenge Walk MS for dinner and a was to have someone push her. And that someone was poignant candlelight ceremony to recognize loved ones her husband of 32 years, Bob. who have multiple sclerosis. Something else rather remarkable happened on that I will never let MS stop me from anything, and I really second day. wanted to raise money to help in the fight against MS. “Bob is my backbone, – Debbie Knudson, I couldn’t do it without him,” 2008 Challenge Walk MS participant explained Debbie. And while Bob pushed Debbie in her The 2008 Challenge Walk MS – held October wheelchair through most of the walk, on the second day 17, 18 and 19 in Door County – did indeed turn they changed positions – and for a short stretch, Debbie out to be an amazing and inspirational opportunity actually pushed Bob along part of the route. “She for the individuals who participated. And while the wanted to reverse the roles, and I found this experience breathtaking Door County setting contributed to the very humbling,” said Bob. overall experience, many walkers said their inspiration After lunch on the third and final day, the entire came from observing the Knudsons complete the group of 84 walkers conquered the last half mile 50-mile route with Bob pushing Debbie in her together, making their way down a hill to E. Murphy wheelchair. Park Pier, providing a stunning view of Lake Michigan TOLL FREE NUMBER 1 800 242 3358
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and the important 50-mile finish line sign. “We just took it mile by mile,” explained Bob. That doesn’t mean there weren’t rough spots. The Knudsons both acknowledged that there were a couple times they doubted whether they would make it to the finish line. But once again, Debbie was not going to let MS hold her back. “Our commitment of 32 years of marriage, our faith and dedication to fight multiple sclerosis got us through,” said Debbie. Bob added, “I thank God daily for my wife’s ability to walk beside me.” By all accounts, the 2008 inaugural Wisconsin Chapter Challenge Walk MS was a huge success. The participants have so far raised more than $225,000 – beating the revenue goal Day Two of the 2008 Challenge Walk MS in Door County started set for the event. These contributions will help at Cave Point County Park , overlooking Lake Michigan. fund MS research and provide programs for clients and families affected by multiple sclerosis. 2009 Challenge Walk MS Bob and Debbie remain determined to fight MS. Returning to Door County Their advice to others who have the disease: Don’t quit. “You have to keep driving for what you want no matter Challenge Walk MS is a three-day, 50-mile experience how hard the challenge,” said Debbie. that tests your strength and your spirit, and makes an The Knudsons strongly encourage others to extraordinary difference in the lives of the 400,000 participate in the Challenge Walk MS. Both Debbie people throughout the U.S. living with multiple and Bob said, “We didn’t go into this event expecting sclerosis. The 2009 event will once again be held in what we got out of it. The staff, volunteers and breathtaking Door County September 18-20. participants were so encouraging and supportive. • A minimum fundraising goal of $1,500 is The event was very inspiring.” required. Debbie reached her personal goal of completing the • Begin your journey by starting a team. 50-mile Challenge Walk MS with her husband Bob, Any group of four or more people can form and raised money for MS research and programs. But a team, and there are plenty of places to find little did she know that she and her husband would members – friends, family, your company or touch so many lives. Debbie and Bob hope others will your community. participate in the event to raise awareness of multiple • Remember: Challenge Walk MS is a fully sclerosis and join the MS Movement. supported event. That means while you train And yes, the Knudsons do plan to walk in the 2009 and fundraise, the Wisconsin Chapter handles Challenge Walk MS. everything else and will take care of you (your lodging, meals, etc.) throughout the event. Meghan Schnabl has worked for the Wisconsin Chapter for one year To learn more about the Challenge Walk MS and is the Development Relations Manager. She completed the 2008 contact the Wisconsin Chapter at info@wisMS.org, Challenge Walk MS. call 800-242-3358 or visit our website wisMS.org.
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JOIN THE MOVEMENT: wisMS.org
More Than $225,000 Raised in 2008
First Challenge Walk MS Exceeds Fundraising Goal Top Fundraisers
Congratulations to the following Challenge Walk MS participants for their outstanding fundraising accomplishments. Together this group raised $40,272 – representing 18 percent of the more than $225,000 generated by the event. Your incredible efforts are changing lives throughout Wisconsin. Jeane Kropp, Madison Jennifer Egan, Port Washington Laura Hermanns, Racine Stacey VanRens, Elm Grove Cindy Zydzik, Milwaukee Donna Mayer, Sheboygan
Sponsors
Congratulations are also in order as we salute our 2008 Challenge Walk MS sponsors. Without your support we could not have launched such a successful event. You have the heartfelt thanks of the entire Wisconsin MS Movement.
$10,395 $ 6,920 $ 6,618 $ 5,742 $ 5,537 $ 5,060
Volunteers
Volunteers – you were the engine that powered this program over three days and 50 miles. Please accept our deep and sincere gratitude for every contribution of time and talent. You made the inaugural 2008 Challenge Walk MS a great success.
The setting was beautiful, the volunteers unfailingly cheerful and encouraging, and the other walkers so very inspirational.
2008 Challenge Walk MS participant Congratulatory cheers greeted 2008 Challenge Walk MS participants as they made their way to E. Murphy Park Pier and the finish line. TOLL FREE NUMBER 1 800 242 3358
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Wisconsin Makes a Mark for MS
Program Provides Critical Financial Assistance were awarded to more than 100 clients. Those gifts Check the box. are especially important because research shows the That’s all it takes to make a difference in the life financial impact for each family living with MS is an of a Wisconsin resident living with multiple sclerosis average of $57,000 per year. and requiring financial assistance. Specifically, when MS tax check-off financial gifts have supported completing your 2008 Wisconsin Income Tax return, a wide range of requests – from paying for cooling go to “donations” and check “multiple sclerosis.” vests or room air conditioners to providing home You can donate whether or not you are receiving accessibility modifications or purchasing medical a tax refund. And even though filing taxes isn’t on equipment. “The program is designed to support MSanyone’s Top Ten list of ways to have fun, you will feel related needs and help our clients improve or maintain good knowing that 100 percent of your donation goes their independence,” said Otte. He added, however, directly to aid Wisconsin residents with MS. that the Wisconsin Chapter Wisconsin cannot support purchases Makes a Mark of products or services that for MS, was We’ve been able to help twice as already have alternative sources signed into law in many clients in a single year. of funding. For example: December 2005. - Jeremy Otte, Wisconsin Chapter Because pharmaceutical The first year the Programs and Services Manager companies have financial donation option assistance programs to help pay was available, more for medications, tax donations are not available for this than 7,000 Wisconsin taxpayers checked the donation purpose. box and generated $84,955. The next year the program But make no mistake – your donation at tax raised $88,611 – a four percent increase. This year the time does make a difference in the lives of Wisconsin Wisconsin Chapter hopes to set a third-straight record residents living with MS. And that’s why you should for donations. make tax time your time to make a mark for MS. Jeremy Otte, programs and services manager for the Wisconsin Chapter and staff liaison for the organization’s Wisconsin Makes a Mark for MS Tax Preparation Tips for People with MS Committee, said the impact of the initiative has been Visit wisMS.org and click on Winter Supplement tremendous. “We’ve been able to help twice as many to find a variety of helpful suggestions for completing clients in a single year,” said Otte. Through December your tax returns. 31, 2008, financial gifts totaling nearly $110,000
Even if you are not receiving a refund, you can still make a donation. Remember, 100 percent of your contribution goes to aid Wisconsin residents with MS.
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JOIN THE MOVEMENT: wisMS.org
More Than 100 Have Received Support
Your Income Tax Donation Makes a Difference By Jeremy Otte
New Ramp Brings Independence
The Wisconsin Chapter helped “Vikki” fund a ramp for her home. As her MS had progressed, it was more and more difficult for Vikki to get in-and-out of her home. In fact, her three-year-old son had to help carry groceries up the steps and into their house. The new ramp made it possible for Vikki to use her walker or wheelchair and enjoy enhanced independence. She stated recently, “You have improved the quality of my life, and given me freedom!”
for MS committee approved Jeff’s request, and the Chapter was able to pay the portion of the wheelchair cost not covered by his insurance. Jeff said, “Before the wheelchair, I was unable to attend a number of family functions. That’s changed. I attended my grandmother’s birthday, a family reunion and even the local fair where I got to sit with my eight-month-old grandson and observe his first parade.”
Application Process
If you would like to apply for funding, simply call the Chapter at 1-800-242-3358 or email info@wisms.org with “Make a Mark for MS” in the subject line. A formal application will be mailed to you and the committee, which meets monthly, will review your request. All applications are presented anonymously to respect the confidentiality of each individual.
I just wanted to let you know that I got door handles installed in my home today, and I’m Your income tax contributions go even further because the Chapter like a kid with a new toy! With the secures preferential pricing for projects such as this ramp. new handles I can actually open and close my doors myself. Thank you. Power Wheelchair Makes a Difference - Financial assistance recipient “Jeff’s” MS had been progressing, and he asked the Wisconsin Chapter to assist him with the purchase of a power wheelchair. The Wisconsin Makes a Mark
Programs and Services Manager Jeremy Otte has worked at the Wisconsin Chapter for three years.
Imagine being diagnosed with multiple sclerosis.
Imagine not being able to afford health care or living expenses. Imagine having to pay an average of $57,000 a year just to live with the disease.
Now, imagine a way to help the more than 10,000 people in Wisconsin with MS. It’s easy. See the “Donations” section on your Wisconsin Income Tax form, then donate funding to “multiple sclerosis”. All donations go directly to aid people with MS.
On Your Tax Return...Make a Mark for MS. TOLL FREE NUMBER 1 800 242 3358
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Milwaukee Bucks Fundraiser Kicks Off Celebration
Get Ready To ‘Move it’ in March for MS Awareness Week The theme for the National Multiple Sclerosis Society’s MS Awareness Week 2009 (March 2-8) is “Move it.” The Wisconsin Chapter will mark the occasion with a variety of exciting activities. But the critical question is: What’s on your calendar? Each and every passionate person who desires to see a world free of MS is invited to “Move it” in March. In other words: Take time to do something to show your commitment to a cure. That can be as simple as wearing your MS pin or bracelet or T-shirt. You can form a bike, walk or challenge team. You can email or write or visit your local legislator. You can also talk to friends or co-workers or potential donors about MS. It all adds up to create one big MS buzz that’s impossible to ignore. How do you get started? It’s easy. Visit the Wisconsin Chapter web site at wisMS.org to review the MS Awareness Week toolkit. You’ll find fun and easy-to-implement ideas. There’s even a special section devoted to school activities. From there, make plans to participate or support these key MS Awareness Week events: • • •
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Paint the Bradley Center orange. Everyone is invited to kick-off MS Awareness Week by attending the Milwaukee Bucks basketball game versus the Washington Wizards at 7:30 p.m. on Saturday, February 28. Tickets are $25 each, with $5 going to the Wisconsin Chapter. Be sure to wear your MS orange while you cheer the home team. Call Tom Demeter of the Bucks at 414-227-0584 or email tdemeter@bucks.com to purchase tickets. Stop moving for one minute and show your support for people with MS. Join with people throughout the state and stop moving for one minute on Tuesday, March 3 at 10 a.m. to acknowledge the more than 10,000 people who live with MS in Wisconsin. Put an orange MS spotlight on the State Capital. Wisconsin Governor Jim Doyle JOIN THE MOVEMENT: wisMS.org
has proclaimed March 2-8, 2009 “MS Awareness Week.” Legislative Affairs Day takes place Thursday, March 5. This is your opportunity to visit local legislators and inform them about the needs of Wisconsin residents living with MS. Complimentary bus transportation to Madison will be provided from key locations throughout the state, and the program runs from 10 a.m. to 3:30 p.m. For more information or to sign up for the day’s activities, call 800.242.3358 or email info@wisMS.org.
One final reminder: As you put together plans to “Move it” in March, be sure to share your ideas and photographs with the Wisconsin Chapter. Email info@wisMS.org and put “MS Awareness Week” in the subject line.
MS Awareness Week March 2-8
Seven Days of MS Action Follow the calendar below or visit wisMS.org to find a variety of creative ways and tools to help you “Move it” during MS Awareness Week 2009.
MONDAY, March 2 Help your local grade school, middle school or high school organize activities to recognize MS Awareness Week. Visit wisMS.org for fun school activity suggestions.
TUESDAY, March 3 Stop moving for one minute at 10 a.m. and show your support for people with MS.
WEDNESDAY, March 4 Be visible. Wear your MS hat, T-shirt or jewelry to show you are a proud member of the MS Movement. If you don’t have MS wearables, put on something orange.
THURSDAY, March 5 Participate in Legislative Affairs Day. Or if you can’t attend the activities in Madison, remember to send an email, make a telephone call or write a letter to boldly ask public officials for support.
FRIDAY, March 6 Find opportunities to volunteer. The Wisconsin Chapter makes it easy to get involved.
SATURDAY, March 7 Sign up for Walk MS, Bike MS or Challenge Walk MS. Already signed up? Ask two friends to join you. Remember: 71 percent of the funds raised through Wisconsin Chapter special events are generated by teams.
SUNDAY, March 8 Support the Society with a financial contribution. Every donation moves us closer to a world free of MS. TOLL FREE NUMBER 1 800 242 3358
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Daehlie Participating in American Birkebeiner
Olympic Ski Legend to Help Raise Funds for Promise: 2010 As Milwaukee Journal Sentinel reporter Tom Held noted in a blog at the newspaper’s Internet site: This year’s 2009 American Birkebeiner cross country skiing event “will present an opportunity akin to a swimmer taking a lane next to Michael Phelps.” That opportunity? No less than the chance to cross country ski with perhaps the greatest Nordic skier of all time: Bjorn Daehlie. Indeed, the Norwegian skiing legend has 12 Olympic medals – eight gold and four silver. He is the most successful Winter Olympic athlete in history. Daehlie’s appearance at the Birkebeiner is even Norwegian skiing legend more exciting because Bjorn Daehlie has 12 he’s participating to Olympic medals raise funds for multiple sclerosis research – and you can, too. Daehlie’s mother has multiple sclerosis, and that – along with a shared passion for cross country skiing – led him to Wisconsin’s Dr. Ian Duncan and the Birkebeiner. Dr. Duncan is a neuroscientist at the University of Wisconsin-Madison. He is leading one of four international dream teams identified by the National Multiple Sclerosis Society (NMSS) to focus on Nervous System Repair and Protection. In addition to UW-Madison, the other locations involved in the study are Johns Hopkins, Cambridge and University College London. The Nervous System Repair and Protection study is part of Promise: 2010, an initiative created by the NMSS to raise $35 million to find and fund
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the best and most promising MS research in the world. In addition to Nervous System Repair and Protection, the other Promise: 2010 studies receiving funding are: The MS Lesion Project, the Initiative on Pediatric Treatment Centers and the Sonya Slifka Longitudinal Study. “Although current medical treatments help some MS patients, they do not repair the damage that occurs in the brain and spinal cord,” said Dr. Duncan. “We are trying to devise strategies that will result in repair of areas of chronic demyelination.” Ned Zuelsdorff, executive director of the American Birkebeiner Ski Foundation, commented, “After Ian approached us, we felt the MS Society was a perfect match for our Birkebeiner fundraising campaign, called Birkie Skiers for Cures. This year, all funds raised through this program will support Promise: 2010.” The Birkebeiner is the largest Nordic ski event in North America. More than 9,000 skiers are expected to register for the 36th annual event and the other shorter races held during the weekend. Birkebeiner activities take place February 19-21 in Cable, Wisconsin. Zuelsdorff continued, “We hope Bjorn’s support and participation will allow us to exceed our past fundraising efforts.” In the last three years, Zuelsdorff noted, Birkie skiers have raised more than $84,000 for designated nonprofit beneficiaries. “We’re thrilled at the opportunity to partner with
We’re thrilled at the opportunity to partner with the Birkebeiner. - Colleen Kalt, President and CEO, Wisconsin Chapter the Birkebeiner,” said Colleen Kalt, president and CEO of NMSS – Wisconsin Chapter. “In Wisconsin and Minnesota alone, more than 20,000 families are affected by multiple sclerosis. Those who participate in the Birkebeiner are helping enrich lives and foster independence.”
You don’t have to ski to help
All Ski for the Cure Contributions Support Critical MS Research It’s easy for Birkebeiner skiers, families, fans and friends to raise funds for Promise: 2010 – and qualify for the opportunity to ski with Olympian Bjorn Daehlie.
Katie, diagnosed with MS in 2008, Team Bjorn will be participating in her third The Top 25 American Birkebeiner. skiers who raise $2,500 or more and are registered by February 15 automatically become part of Team Bjorn and receive: • Meet-and-greet opportunity with Bjorn Daehlie • Special ski session with Bjorn Daehlie on Thursday, February 19 • Lunch with Bjorn Daehlie on Thursday, February 19 Top Fundraiser In addition to being named a member of Team Bjorn, the participant raising the most money will also receive a free entry into the 2010 American Birkebeiner race of their choice, as well as a free get-away weekend at Lakewoods Resort near Cable, Wisconsin.
Prize Drawings Other individuals raising a minimum of $250 will be entered into a drawing for the chance to join Team Bjorn and ski with the Olympic champion. For every $250 raised, a ticket will be entered into the drawing (e.g. raise $750, receive three tickets in the Team Bjorn drawing). All skiers raising pledges of $250 or more will also be entered into a drawing to receive one of three prizes: • Get-away at Tagalong Golf and Resort, Birchwood, Wisconsin • Get-away at Spider Lake Lodge in Hayward, Wisconsin • Kayak from Winona Canoe Online Donations You don’t have to ski to help. Visit wisMS.org and select “Donate to a Birkebeiner Skier.” The prompts will allow you to contribute to a specific participant or to the National MS Society. While supplies last, pick up your Ski for the Cure button when you make a donation at the National MS Society expo booth at the Birkie on Thursday and Friday, February 19 and 20.
More Information For more information including fundraising deadlines, please visit wisMS.org or www.birkie.com and select Birkie Skiers for Cures. Or call 1-800-242-3358 or email info@wisMS.org. About The Birkie Celebrating its 36th year, the American Birkebeiner (1-800-USA-BRKE; www.birkie.com), February 1921, 2009, is the largest and most prestigious cross country ski marathon in North America. Spanning more than 50 kilometers from Cable to Hayward, the Birkie is part of the Worldloppet series of 15 international races. Find out more by emailing birkie@birkie.com.
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Fundraisers Fuel the Mission in 2008
Community Events Show the Power of Collaboration It takes the collaboration of many, many individuals to move our mission forward. But as the 2008 Year in Review demonstrates, Wisconsin rocks when it comes to finding exciting ways to fundraise. Indeed, in the fiscal year ending September 31, 2008, the Wisconsin Chapter generated just under $5 million. What will 2009 hold? More fun, more friends and more funds to move the MS mission forward. JANUARY The 25th Annual MS Snowmobile Tour kicked off the year’s major fundraising activities. Held January 31 to February 3, the event attracted 171 riders and generated more than $300,000 for MS research, client services and advocacy. Rick Romenesko was the event’s top fundraiser. During its 25-year history, the MS Snowmobile Tour has generated a remarkable $5.4 million to support the MS Movement. FEBRUARY The Bell family hosted the 6th Annual Rabbit Hunt on February 2 in Saukville. This unique and popular fundraising program generated $22,621. The Bell family – Don, Eileen, Greg and Deanna – was presented with a Mission Driver Award at the 2008 Annual Meeting. Team Fond du Lac Cyclery held Saturday Spin for MS at the Forest Mall on February 16. The event generated $2,161.
The Marian College Multiple Sclerosis Benefit was held February 29. The event included a silent auction, door prizes, food and three live bands. MARCH Kappa Beta Gamma’s 6th Annual MS Benefit at St. Norbert College was held March 1. In addition to a silent auction and raffle, the event also featured a dinner and special guest speakers. The Blarney Bash was held March 15 at American Serb Hall. The event included beer tasting, raffles, a silent auction and karaoke. Event organizers Wendy and Tony Machi plus Pat and Mary Topp received a Mission Driver Award at the 2008 Annual Meeting. Also on March 15 a Wine Tasting event was held at Tripoli Country Club. It included a silent auction to raise funds for MS. On March 27 the 5th Annual Dessert Bake Off for MS was held at the Riverside Ballroom in Green Bay. Area chefs and high schools competed for a variety of awards – while attendees enjoyed sampling desserts.
APRIL Buehler’s Bluegrass “Boozefest” for MS was held April 5 at Danny Haskell’s in Muskego. The festivities included live music. Also on April 5, the N.E.W. Beerfest was held at the Wave Bar & Ballroom in Grand Chute. The beer and wine-tasting event attracted more than 1,000. Family Fun Day to Benefit MS was held April 6 in Wind Lake. The community event featured such classic games as Red Light/Green Light, Musical Chairs and a Hula Hoop Contest. The Dance for MS was held April 11 in Ixonia. Polkas, country and classic rock were thrown into the mix along with a raffle, silent auction, door prizes and food. On April 12 the MS Benefit Skeet Shoot was held at the Sauk Prairie Trap & Skeet Club. The one-day clay target competition featured a charity shoot-off. Healthworks in Pewaukee held an Spin for MS took center stage in Februray at the Forest Mall in Open House on April 18 to benefit the MS Fond du Lac.
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Society. Activities included free chair massages, raffles, free muscle tension scans and games for kids. The Break MS Pool Tournament was held at the Retreat Bar & Grill in Presque Isle on April 19. The fundraiser also included a raffle and generated $4,495. A community fundraiser titled Put the Screws 2 MS was held in Kenosha on April 20. This annual event was held at Coin’s Sports Bar and included raffles, door prizes, live music and food. The first Walk MS of 2008 was held April 20 in Brown County. More than 1,300 individuals registered and raised just over $145,000. The following weekend, April 27, Walk MS events were held in Cedarburg, Chippewa Valley, Fond du Lac, Sheboygan, Waukesha and Wausau. Together these Walks attracted more than 2,800 individuals who raised more than $380,000 to support people with MS.
MS events generated nearly $1.6 million. Devlynn Ihlenfeld was the overall top Walk MS fundraiser. 2008 also marked the 20th Anniversary of Walk MS in Wisconsin, with a total of $18 million raised for the Movement. Bartender for Charity was held May 7 at Captain Mike’s in Kenosha, where guest bartenders helped raise funds.
Cynthia Gray, left, and her friend, Ann Davies cross the finish line MAY of Cynthia’s Run 4 MS in May. Throughout the month of May, Farnsworth Middle School in Sheboygan conducted a Penny War. By the end of May the On May 9 a Rummage Sale was held by Marilyn’s students had generated $506. Walkers Team to benefit MS. The event took place in Balistreri & Associates Physical Therapy in Kenosha Slinger. held the 17th Anniversary Swim-a-Thon and Cook On May 10 the annual Hopp Dakota MS Out on May 1 and raised $2,727. Triathlon featuring golf, horseshoes and darts was held Grillin’ for a Cure was organized by Team Kim and in River Falls. The event also included food and raffles also held on May 1. It took place at BD’s Mongolian and raised $21,183. Event organizers Brian and Mary Grill in Bayshore Mall in Milwaukee. Guest grillers Hopp received a Mission Driver Award at the 2008 from Brew City Wrestling participated in the event. Annual Meeting. On May 3 the Knutz Krew Bowling Tournament Cynthia’s Run 4 MS was held May 15 and 16. was held at Lakeview Lanes in Pewaukee. The event The course followed the Badger State Trail for 40 miles also included a silent auction, raffle prizes, cash prizes, between Madison and the Illinois state line. Event food and music. Organizers Ron and Toni Knutson plus organizer Cynthia Gray received a Mission Driver Dan and Pam Patterson were presented with a Mission Award at the 2008 Annual Meeting. Driver Award at the 2008 Annual Meeting. On May 18, Milwaukee-based performers Alissa The Fox Cities, La Crosse, Madison, Milwaukee, and Molly Rhode – along with honorary sister Rhonda Oconomowoc and Racine/Kenosha locations Rae Busch – presented Adventures of the Rhode held their Walk MS events on May 4. There were Sisters – A Folk Cabaret at the Wales-Genesee Lions more than 6,200 participants raising more than Club. The event raised $7,201. $960,000. Together the “lucky 13” 2008 Walk TOLL FREE NUMBER 1 800 242 3358
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The Fox Valley Road & Track Classic VIII was held May 18 in Neenah. The race-filled fundraiser also included breakfast and track time at Road America. JUNE On June 7 a Massage-a-Thon was held at the Relaxation Station Rejuvenation Center in Edgerton. Massages were provided around-the-clock for this fundraiser. The Second Annual Bowling and Raffle Fundraiser was held June 14 in Verona. Located at Wildcat Lanes, the tournament also included raffles, food and music. Patsy’s Second Annual Par-Tee Open was held June 14 at Apostle Island Golf Course in Bayfield. The event raised $1,250 and also included a dinner. On June 20 Cindy Zydzik’s MS Rummage Sale was held in Bay View to support her fundraising efforts for the new Challenge Walk MS. The 8th Annual Poker Run and Cruisin’ for a Cure 4 MS was held June 20 and 21. The event took place at the Green Bay Yacht Club and raised $700. On June 28 the 3rd Annual Damn Yankees Watering Hole MS Benefit and Duck Races was held in Hortonville. The fun-filled day included a silent auction, raffles, food and the popular duck races. The Help Fight Multiple Sclerosis Fundraiser was held June 29 in Port Washington. A variety of vendors provided prizes. JULY On July 11 the popular Birdys Scramble for a Cure was held at the Reid Municipal Golf Course in Appleton. The event raised $32,300 for MS. Event organizers Pat and Lisa Haak received a Mission Driver Award at the 2008 Annual Meeting. Fighting Rams Brat Fry and Raffle was held July 12 in Watertown. Greater Milwaukee Open tickets were sold by the Wisconsin Chapter and raised $1,320 for MS. The U.S. Bank Championship was held July 16-20 in Brown Deer. The 19th Annual Croal Open for Multiple Sclerosis was held July 18 at Ironwood Golf Course in Sussex.
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The golf outing included door prizes, raffles, dinner and music. Event organizers Dan, Mike and Tim Croal received a Mission Driver Award at the 2008 Annual Meeting. Also on July 19, participants were invited to Keep Up with Curtis at the stationary bike ride held at Curly’s Waterfront in Pewaukee. The Kohler International Challenge fundraiser was also It’s Time for You to held on July 19 in Elkhart Lake. The first of Engage your family, frie three Faces of create a 2009 fundraisin MS Luncheons was held July 22 Chapter coordinator Jen in Green Bay at jennifer.bremberger@w the Legends Club a helpful “how-to” book Room at Lambeau Field. The event Community Event logo. featured speaker Sara White, widow of NFL Hall of Fame defensive lineman Reggie White. Sara was diagnosed with MS in March of 2003. Pedal’rs Inn in Wales hosted its 4th Annual Lawn Concert to Benefit MS on July 22. The second Faces of MS Luncheon was held July 23 in at the Midwest Airlines Center in Milwaukee. This was the 8th Annual MS Milwaukee luncheon and featured guest speaker Rain Pryor, daughter of the late comedic icon Richard Pryor. A Texas Hold’em Showdown was held July 24 at Electronic Theatre Controls in Middleton. The final Faces of MS Luncheon was held July 25 at Monona Terrace in Madison and featured guest speaker Rain Pryor. Together the three MS luncheons generated just under $200,000 to support the Promise: 2010 research campaign.
Create a 2009 C
On July 26 the Antique & Classic Boat Show was held in Minocqua to benefit MS. The event raised $6,897. The 2nd Annual Rock for the Ride fundraiser was held July 26 at Liquor Sweets in Milwaukee. The event
Join the Movement
Community Event
ends, classmates and co-workers to ng Community Event. Contact Wisconsin nny Bremberger at 262-369-4435 or wisMS.org to get started. She’ll provide klet including a copy of the new MS
included a silent auction and live music from area bands. On July 28 the Rock River Hills Golf Club in Horicon hosted the 2nd Annual Heller & Pagel Families Fighting MS Golf Scramble. The event generated $4,521 and also included a silent auction, raffle baskets and a 50/50 cash raffle. AUGUST Kicking off August’s fundraising activities, Team Remission from Germantown hosted a Brat Fry on August 1. Also on August 1, the Road America fundraiser was held at the race track in Elkhart Lake. The 6th Annual Bogey Bear Golf Outing was held August 2 at the Alpine Valley Golf Resort in East Troy. The event raised $8,131 and included a banquet and door prizes.
The 25th Annual Best Dam Bike Ride was held August 2-3. Just over 1,600 cyclists came together to ride from Milwaukee to Madison and together raised more than $1.6 million. During the 25-year history of the event, more than $17 million has been raised to support the MS Movement. The Patty Moehn and Friends Cookbook was published on August 8 and generated $1,255 in sales for MS. On August 9 the “JMO” Jim and Mickey Open: A Drive for MS golf outing was held at the Rivermoor Country Club in Waterford. The event generated $4,812. The Rebekah Lodge #14 Walk to Benefit MS was held August 12 in Janesville and raised $540. Broadlands Golf Course in North Prairie was the site of the 8th Annual Pat’s Par-Tee featuring the Annual Ladies Scramble. The event was held August 13 and raised $2,121 for MS. The Bar of Green Bay held a Dunk Tank fundraiser for MS on August 15. The event generated $1,066. The Apple Holler MS Orchard Walk on August 23 provided an opportunity to put some BITE into the FIGHT against MS. The event was held at the Apple Holler in Sturtevant and featured a pancake breakfast and sales of the AppleBites MS Recipe Book On August 24 the Auto Paint & Supply Car Show for MS was held at Finn’s Bar & Grill in Wales. In addition to classic cars, the fundraiser featured food, beverages, games, raffles and a DJ. SEPTEMBER The Team McCormack Brat Fry was held September 5 at Piggly Wiggly in Hartland. Knutz Krew organized a Golf Outing at Lake Beulah Country Club in Mukwonago. Held September 6, the event included prizes and raffles. The Golf MS Invitational was held September 8. On September 12 the Jack Murphy Memorial Golf Outing raised $1,232. The Delafield Brewhaus was the site of an Oktoberfest fundraiser held September 13. TOLL FREE NUMBER 1 800 242 3358
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Also on September 13, the Shifting Gears on MS Team held a Bowling Tournament at Old Settlers Bowling Center in Union Grove. The 3rd Annual Ken Fest was held September 14 at Tomken’s Bar & Grill in Milwaukee and raised $2,645. A Mary Kay Back-to-School Sale for MS was held September 15. Also on September 15 an EBay Online Auction was held to benefit MS. OCTOBER A Tupperware Party was held October 6 in Janesville to benefit the MS Society. Uncork the Cure was held October 10 at the Westmoor Country Club in Brookfield. The event generated $20,661 and included wine tasting plus liveand silent auctions. On October 25 the YNOT II in Milwaukee hosted a community fundraiser to benefit MS. The event featured live music, give-away items and a bartender auction. Wisconsin’s first Challenge Walk MS was held October 17, 18 and 19 in beautiful Door County. The event attracted 84 walkers and six “super crew” and raised more than $225,000 – beating the goal set for the inaugural event. The walkers covered 50 miles in three days. The top fundraiser was Jeane Kropp.
Walkers, family and friends celebrate the completion of the 50-mile Challenge Walk MS.
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On October 31 and November 1 an outdoor Haunted House fundraiser for MS was held at Lynn Ann’s Campground in Germain. NOVEMBER A Kid’s Bowl-a-Thon for MS Research was held November 1 at Prairie Lanes in Markesan. The event included dinner and a silent auction. Also on November 1 a Halloween Party to Benefit the Fight Against MS was held in Deerbrook at Quinn’s Bar & Hall. The Halloween costume party also featured raffles, food and music. Battle for the Charities at Clovis Grove Park in Menasha was held November 8. The flag football competition included employees and customers of WOW Logistics. DECEMBER Throughout December Scan Interiors in Brookfield ran an in-store promotion to generate donations for the Wisconsin Chapter. Shoppers who purchased a recliner received $200 off their purchase when they made a $50 donation to the Wisconsin Chapter. The MS Christmas House at Pedal’rs Inn Bed & Breakfast opened in Wales on December 13. The event featured a visit and pictures with Santa, cookie decorating and a holiday jazz performance by the Kettle Moraine Lasers Jazz Ensemble. On December 16 a White Elephant Auction was held at Kelly’s Bar in Randolph. The fundraiser was organized by the Columbus/Fall River SnoBlazers Team. *The Community Events included on this list represent those held in 2008 and registered with the Wisconsin Chapter. If you currently host a fundraiser that is not included on this list – or if you plan to produce an event in 2009 to benefit the Wisconsin Chapter – please contact Jennifer Bremberger at 262-369-4435 or 800-242-3358 or email jennifer.bremberger@wisMS.org.
Great Strides Moved MS Research Forward During 2008 The National Multiple Sclerosis Society (NMSS) invested nearly $50 million in 2008 to support more than 440 new and ongoing multiple sclerosis research projects as part of its international effort to prevent, treat and cure MS. In addition, more than 130 clinical trials are underway around the world – with more than 12 final-phase trials of new therapies including some taken by mouth. Additional 2008 research highlights include: •
The Society’s Promise: 2010 research teams focusing on Nervous System Repair and Protection – including the University of Wisconsin-Madison team lead by Dr. Ian Duncan – published or presented more than 60 reports in 2008. The teams convened in January 2009 to further collaborations toward the goal of testing repair and protection in MS.
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For the first time, $5 million has been awarded for MS research within the Congressionally Directed Medical Research Programs, thanks in large part to efforts by MS activists across the country. This line-item allocation for investigator-initiated research projects is funded through the Department of Defense.
• The network of Pediatric Centers of Excellence established by the NMSS identified a data coordinating center that will expedite efforts to
investigate MS in children. The data center establishes the infrastructure necessary for larger, more comprehensive studies.
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More than 5,000 clinicians, clinical researchers and basic scientists from around the world convened in Montreal, Quebec in September to share findings at the first World Congress on Treatment and Research in Multiple Sclerosis. Research on nervous system repair, pediatric MS, new therapies and much more was reported in nearly 1,000 presentations.
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The first NMSS Tykeson Fellows Conference was held in November during the National Conference in Chicago to spur new ideas and collaborations among young scientists and physicians across North America. The conference offered insights into ways individuals can pursue successful careers as MS researchers.
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Fast Forward Announces $1 Million Agreement. Fast Forward’s first research award was announced in December. Apitope will receive $1 million to conduct a proof-of principle trial on a new treatment, ATX-MS-1467, intended to target and redirect immune response in MS. In January Apitope announced that it entered into a licensing agreement with Merck Serono. The Apitope/Merck Serono partnership assures that funding will be in place to take ATX- MS-1467 to the next research phase if the trial yields positive results. Apitope will also be able to expand efforts to discover additional therapeutic peptides which could be used for people with MS.
The complete overview of 2008 research highlights is available at nationalmssociety.org, click on “Research.”
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Clinical Advisory Committee Meets in Hartland The Chapter’s Clinical Advisory Committee (CAC) is composed of distinguished neurologists and medical professionals with an expertise in multiple sclerosis. The committee meets to discuss MS treatments, research and issues impacting client access and quality. CAC members also serve as keynote speakers at client programs and are liaisons to the medical community. Seated clockwise from left are: Stanya Smith, M.D., ProHealth Care Neuroscience Center at Waukesha Memorial Hospital ; Bhupendra Khatri, M.D., Center for Neurological Disorders at St. Luke’s Medical Center; John Fleming, M.D., University of Wisconsin Hospital and Clinics; Eric Maas, M.D., Advanced Healthcare; and Loran Rolak, M.D., Marshfield Clinic MS Center. Other CAC members are Merle Teetzen, M.D., Aurora Baycare Medical Center ; and Douglas Woo, M.D., Medical College of Wisconsin MS Clinic at Froedtert Memorial Lutheran Hospital.
Wisconsin Chapter Clinical Affiliations The National Multiple Sclerosis Society - Wisconsin Chapter currently has six formal clinical affiliations. The affiliations represent a collaborative approach to improving the quality of health care available for people with MS. Importantly, clinical affiliations enhance the ability of the Chapter and the facility to provide more comprehensive services in the areas of education, treatments, clinical trials, healthcare and community resources. Aurora Baycare 2845 Greenbrier Road Green Bay, Wisconsin 54311 Phone: 877-BAYCARE Web site: aurorabaycare.com Staff: Merle Teetzen, M.D. Marshfield Clinic MS Center 1000 North Oak Street Marshfield, Wisconsin 54449 Phone: 715-387-5350 Web site: marshfieldclinic.org Staff: Loren Rolak, M.D.
Medical College of Wisconsin MS Clinic at Froedtert Memorial Lutheran Hospital 9200 West Wisconsin Avenue Milwaukee, Wisconsin 53226 Phone: 414-805-5203 Web site: mcw.edu Staff: Douglas Woo, M.D.
University of Wisconsin Hospital and Clinics Neurology/MS Clinic 2B/2425 600 Highland Avenue Madison, Wisconsin 53792 Phone: 608-262-0546 Web site: uwhc.com Staff: John Fleming, M.D.
St. Luke’s Medical Center Center for Neurological Disorders 2801 West Kinickinnic River Parkway Suite 630 Milwaukee, Wisconsin 53215 Phone: 414-385-1801 Web site: aurorahealthcare.org Staff: Bhupendra Khatri, M.D.
ProHealth Care Neuroscience Center Waukesha Memorial Hospital 725 American Avenue Waukesha, Wisconsin 53188 Phone: 262-542-9503 Web site: waukeshamemorial.org Staff: Stanya Smith, M.D.
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Alyson K. Zierdt Named Board of Trustees Chair At the December meeting of the Board of Trustees of the Wisconsin Chapter, former Vice Chair Alyson K. Zierdt officially began a three-year term as Chair of the Board of Trustees. She succeeds Martin McLaughlin, who was the Chair for three years. “I look forward to leading the Board and working with Chapter President Colleen Kalt as we do what it takes to keep advancing the mission of ending MS during these challenging economic conditions,” said Zierdt.
private sector employment law and employment/civil litigation. She is a native of Milwaukee and a graduate of UW-Milwaukee and Marquette University Law School. Zierdt’s husband, Bill, is also retired, honored as a Professor Emeritus by Marian University. I look forward to leading the Board and working with The couple Alyson Zierdt joined the board in 2005 Chapter President Colleen Kalt as we do what it takes resides in to keep advancing the mission of ending MS during Fond du Lac. Zierdt was diagnosed with MS in these challenging economic conditions. April 2003. She joined the Wisconsin - Alyson K. Zierdt Chapter Board in 2005. In addition Zierdt, an attorney, is retired and “Of Counsel” to the to her duties as Chair of the Board of Trustees, Zierdt firm of Davis & Kuelthau, where she practiced for the also chairs the Executive Committee and currently last 8 of her 27 year career in its Oshkosh office. She serves on the Governance and Government Relations practiced in the areas of management-side public and Committees.
Workplace Giving Tips and Reminders Workplace giving programs provide an easy way to support the MS Movement. Simply sign up for your company’s workplace giving campaign and use an automatic payroll deduction to make regular gifts to the Wisconsin Chapter. All gifts made to the Wisconsin Chapter through workplace giving are tax deductible. Community Health Charities Wisconsin The Wisconsin Chapter proudly partners with Community Health Charities Wisconsin, the largest workplace giving program devoted solely to health issues. Corporate Employee Gift Programs Your company may have its own Corporate Employee Gift Program. Ask today.
Matching Gifts Be sure to ask your employer if they have a matching gift fund and request that they match your gift to the Wisconsin Chapter. Combined Federal Campaign of Greater Wisconsin Public sector and government employees can support the Wisconsin Chapter through the Combined Federal Campaign of Greater Wisconsin by selecting the designated code number: 36427. Be sure to look for the National Multiple Sclerosis Society-Wisconsin Chapter on the designation lists for your state, city, county or school employee giving campaigns.
Move Others. Tell Your Story. TOLL FREE NUMBER 1 800 242 3358
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Grant Support Powers Programs, Events and More The Wisconsin Chapter extends its sincere gratitude to the following contributors for a total of $43,600 in foundation, corporation and program grants awarded October 1 through December 31, 2008. • $20,000 from the Forest County Potawatomi Community Foundation for the MS Snowmobile Tour, Walk MS and MS Luncheon. • $1,000 from Biogen Idec for “MS Doesn’t Mean Losing Your Mind” presentation in Wausau. • $1,600 from the Delafield Wal-Mart to support the Holiday Giving program.
• $10,000 from EMD-Serono, Inc. for support of Bike MS.
• $1,000 from the Oshkosh Wal-Mart to support the Holiday Giving program.
• $10,000 from EMD-Serono, Inc. for statewide support of Walk MS. From left, Community Involvement Coordinator Victoria Doudna and Store Manager Joyce Greiber of the Delafield Wal-Mart present Jeremy Otte and Amy Reineke of the Wisconsin Chapter with a check for the Holiday Giving Program.
The Bodeau family welcomed participants to the Chippewa Valley Walk MS on April 27. Clockwise from left are Bob, Kim, Don and Lois.
Volunteer and Join the Wisconsin Movement Put your time, talent and passion to work for the Wisconsin Chapter. Volunteers are critical to the success of our special events, and they also play an important role in maintaining the efficiency of our administrative operations. Find out how you can make a volunteer connection. Simply contact Volunteer Coordinator Jenny Bremberger at 262-369-4435 or email jennifer.bremberger@wisMS.org.
Bike, Walk, Challenge Walk and Luncheons Among Opportunities
Build Your Business with Event Sponsorship Sponsoring Wisconsin Chapter events can positively impact your business. Consider this: • 85 percent of consumers say they have a more positive image of a product or company when it supports a cause they care about.
• 70 percent are likely or very likely to switch
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from one brand to another if the second brand is associated with a good cause (that figure jumps to 88 percent for 18- to 24-year-olds). For information about event sponsorship, please contact Laurie Schill at 920-423-3403 or email laurie.schill@wisMS.org. (Source: Cone Cause Evolution Study 2008)
Requests Increase 19 Percent in 2008
Holiday Giving Program Brings Cheer to More Than 200 Thanks to donations provided by long-time supporter Diversified Insurance Services, Inc., new sponsor Wal-Mart and the staff of the Wisconsin Chapter; last year the Holiday Giving program raised $10,150. These dollars were utilized to present gift cards to 203 children of parents living with MS. The number of recipients was up nearly 19 percent compared to 2007. The Wisconsin Chapter’s Holiday Giving program offers support to MS families so that they may purchase gifts for their children; secure necessities such as blankets, coats and clothing; or buy food for a holiday meal. Indeed, while many families struggle to make ends meet during the holidays, the impact on those affected by MS is particularly severe. Studies show that for parents living with MS, the health-related costs average $57,000 per year. Diversified Insurance Services, Inc. provided a gift of $7,000, while Wal-Mart stores located in
Delafield and Oshkosh contributed a total of $2,600. Additionally, instead of exchanging workplace gifts, the staff of the Wisconsin Chapter elected to make contributions to the Holiday Giving program and generated $685.
Family Expresses Appreciation for Son’s Christmas Gift December 2008
possibly tell you how much we need this, appreciate this and thank you!!! Dear Generous Holiday Giving Donors: Donors to the MS Society, activists, workers and As I was mindlessly going through the bills that founders of the MS Society have given our life new arrived in today’s mail, I meaning. We discovered an envelope wish Happy I’m so excited Mommy! I love the MS Society! from the Wisconsin Holidays to - Holiday Giving recipient Chapter of the National you and your Ms Society. Imagine my shrieks and jumps for families. Please remember that your act of generosity joy when I saw we were recipients of the Holiday and kindness has gone so far – farther than you can Giving program!!! I was crying out so loudly that imagine. my husband and son came running into the room. Thank you from the bottom of our hearts. My three-year-old son hugged me and said, “I’m so excited Mommy! I love the MS Society!” I do, too, Sincerely, son. I do, too! This gift gives us hope, excitement, cheer and a A Wisconsin Family gift for Christmas for our son. Words simply cannot TOLL FREE NUMBER 1 800 242 3358
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Tips for the Social Security Disability or SSI Hearing By Attorney Thomas E. Bush
More than half of all hearings result in the claimant receiving benefits. A hearing, which seldom takes more than an hour or so, is the crucial step of the Social Security disability/ SSI appeal process where a claimant who is denied initially has the best chance of winning. More than half of all hearings result in the claimant receiving benefits. Who participates in the hearing? Are the proceedings private? Disability hearings are private. The only people present are the administrative law judge (ALJ), the ALJ’s assistant who operates recording equipment, the claimant, claimant’s representative, the claimant’s witnesses and often a vocational or medical expert called by the judge. Anyone else present in the hearing room must have the claimant’s permission to be there. Is the hearing held in a courtroom? The hearing is held in a small conference room. Most hearing rooms have a smaller version of a courtroom bench (similar to those on TV) behind which the ALJ sits. The claimant, representative and witnesses sit at a conference table. Sometimes, if the claimant agrees, the hearing is held by video. How formal are the proceedings? Some ALJs wear judicial robes. Others do not. There may be an American flag and a seal of the Social Security Administration on the wall but other courtroom trappings such as bailiffs, gavels and court reporters are usually absent. Testimony is taken under oath, but the hearing, which is designed to be non-threatening, is informal. Strict rules of evidence do not apply.
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What kinds of questions should I anticipate? What types of evidence can I provide? Medical records are accepted as evidence. The judge or the claimant’s representative will ask the claimant about his or her education, training, work experience and the symptoms and limitations caused by the claimant’s impairments. The claimant may be asked to describe daily activities. There may be a few questions about medical history, but ALJs generally rely on medical records for history. The claimant may present witnesses. If the judge calls witnesses, what do they testify about? A medical expert may be called by the ALJ to testify about whether a claimant’s impairment meets or equals the medical disability requirements set forth in Social Security regulations. The medical expert may also give an opinion about the claimant’s limitations. A vocational expert may testify about the requirements of the claimant’s past jobs and, in answer to hypothetical questions, whether the claimant can still do a past job and whether other jobs within the claimant’s current capacity exist in significant numbers in the economy. The claimant’s representative (or the claimant, if unrepresented) has the right to cross-examine the experts. Is there a closing argument? The representative may be allowed to make a closing argument explaining why the claimant is disabled under Social Security regulations. Tom Bush is the preeminent expert on SSDI in Southeastern Wisconsin. A chapter volunteer for 19 years, Tom was inducted into the 2008 National MS Society’s Volunteer Hall of Fame.
Join the Lawry Circle
Create a Better Future for the MS Community Sylvia Lawry founded demonstrated a deep commitment to improving the the National Multiple lives of those with MS by establishing a deferred gift for Sclerosis Society in 1946, the National MS Society. hoping to find a cure for Deferred gifts include: her brother Bernard’s • bequest intentions in a will Multiple Sclerosis. While • charitable gift annuities the cure eluded them, • charitable trusts Sylvia Lawry’s legacy is • designating the Society as beneficiary of a Sylvia Lawry started the a national movement retirement account Society to find a cure for her that aggressively funds • designating the Society as beneficiary of a life brother Bernard’s MS. research, advocates for insurance policy, or the donation of a policy. change and provides programs and services that help all If you name the National MS Society in your estate Americans affected by MS move their lives forward. plan, please contact us so that we can recognize your The Lawry Circle is dedication. Should you choose to remain anonymous, comprised of people who know your gift will be kept completely confidential. For that the quest for a world free more information please contact Denise Jendusa, vice of MS must continue. It honors president of development and programs - Wisconsin donors who have informed the Chapter at 262-369-7166, 800-242-3358 or email Society of their intention to denise.jendusa@wisMS.org. help create a better future for the MS community through their will, trust or estate plan. The Lawry Circle The need that I felt to succeed was tremendous. recognizes and honors people who have - Sylvia Lawry, Society Founder
Never doubt that a small group of thoughtful, concerned citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead
LEGISLATIVE AFFAIRS DAY Thursday, March 5, 2009 10 a.m. – 3:30 p.m. Madison Invite your family and friends to join us as we visit legislators at the Wisconsin State Capitol in Madison and advocate for a world free of MS. The program begins at 10 a.m. at the Madison Concourse Hotel. Complimentary motor coach transportation is available from Milwaukee, Brookfield, Plover, Oshkosh and Fond du Lac. Contact the chapter at 800.242.3358 regarding transportation from Northern Wisconsin.
Call 800.242.3358 to register RSVP deadline is February 16 TOLL FREE NUMBER 1 800 242 3358
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Wisconsin Chapter News and Notes
This is How We Move It •
Knitting Group Contributes to Friendly Visitor Holiday Program. Over a dozen Wisconsin Chapter volunteers brought smiles to the faces of 80 clients residing in 27 long-term care facilities as part of our Friendly Visitor Holiday Program. Volunteers delivered holiday gift bags featuring a variety of goodies – some with handmade blankets from a Sussex knitting group.
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In-Kind Contributions Welcomed. Every budget-relieving contribution made to the Wisconsin Chapter provides increased opportunities to channel funds into MS research and client programming. Retail gift cards allow the greatest flexibility to purchase items that will have the most impact.
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Teams Rule. Of the total funds generated by Wisconsin Chapter special events (Bike MS, Walk MS and Challenge Walk MS), 71 percent is attributed to teams.
The Patti’s Pedalers team contributed to the success of Bike MS. Teams generate 71 percent of all Wisconsin Chapter special event revenue. •
Web Site Will Sport New Design. The Wisconsin Chapter’s web site is getting a make-over. The new design is expected to go live in the second quarter and is part of a national roll out.
• Sign Up for the Pick ‘n Save We Care Program. A percentage of your grocery purchases will be donated to the Wisconsin Chapter by Roundy’s
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when you join the We Care program at any of the company’s participating Pick ‘n Save, Copps or Rainbow stores. The Wisconsin Chapter number is 532300.
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Check Out the Lending Library. The Wisconsin Chapter’s lending library features a variety of books, VHS and audio tapes. For more information please contact the Chapter at 1-800-242-3358 or email info@wisMS.org for a list of available titles.
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Are You a Hilton Honors Member? If so, you can donate your points to the NMSS and do something about MS today. Points can be donated in increments of 10,000 (10,000 points equals a $25 donation). One hundred percent of your donation goes directly to the NMSS. To donate, please email hhonors_giving_back@hiltonres.com. Include the number of points you’d like to redeem; your name, address and Hilton Honors account number and Request Reward Code GBNMS.
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Well City Milwaukee Web Site Features MS Events. In an effort to bring the MS message to even more individuals, the Wisconsin Chapter is posting information about its events and programs on the Well City Milwaukee web site, wellcitymilwaukee.org. More than 80,000 Milwaukee-area employees are participating in the Well City Milwaukee initiative.
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Make GoodSearch Your Search Engine. Raising money to support the Wisconsin Chapter’s programs and services
MS
• Stock: A Beneficial Way to Give. Gifts of stock, bonds or other securities can be beneficial to the Wisconsin Chapter’s mission and your pocketbook.
For instance, if you want to dispose of stock that has depreciated in value, making a gift to the Wisconsin Chapter is a wise choice. To do so, you sell the depreciated stock (held for at least one year), and donate the cash proceeds to the Chapter. By doing so, you may claim a capital loss on your tax return for the difference between what you paid for the stock and the selling price. You will also receive a charitable deduction for the full amount of your donation.
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Learn About MS Online with Webcasts and Podcasts. You can tap into a wealth of educational programs and resources at nationalmssociety.org.
PE
To access webcasts and podcasts simply click lf H elp Gro Multimedia Library.
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Circle of Hope Self-Help Groups. Wisconsin has more than 50 self-help groups and new groups sprout up regularly. For a complete listing including meeting dates, please visit wisMS.org or call 1-800-242-3358. Also remember, the Information Resource Center is available 7 a.m. to 6:30 p.m. CST, Monday through Friday at 1-800-242-3358. Infoline 24-hour counseling can be reached by dialing 211.
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You First. Here’s a fundraising fact to consider: Before you ask others to join the Movement, show you are serious by pledging your personal support with an individual donation. It is easier to ask someone to do something you have already done yourself, and your personal gift will show how passionate you are about moving together toward a world free of MS.
up
is just a mouse click away. Use GoodSearch.com like any other search engine (they’ve partnered with Yahoo to ensure the best results). Each time you do, a contribution will be made to the Wisconsin Chapter. Get started today: Go to goodsearch.com and type NMSS – Wisconsin Chapter into the “I’m Supporting” box.
Se
cle of HO Cir
Families and friends flocked to the lakefront for the Milwaukee Walk MS on May 4. TOLL FREE NUMBER 1 800 242 3358
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2009 Calendar of Events February 19-21 American Birkebeiner, Cable
February 22 Milwaukee 20s/30s Gathering, Club Paragon, Greenfield, 6 – 9:30 p.m.
February 23, March 1, 8, 15, 22, 29 MS Exercise Class, UW-Madison Sports Medicine Fitness Center, Madison
March 2-8
March 5
MS Awareness Week
Legislative Affairs Day, Madison
March 16, 23, 30 & April 6 Moving Forward: Newly Diagnosed Series, UW Health West Clinic, Madison
April 4 20s/30s Celebrate Life! Blissflow Yoga Studio, Madison
April 19, 26 & May 3 April 19 Walk MS: Brown County April 26 Walk MS: Chippewa Valley Walk MS: Fond du Lac County Walk MS: Fox Cities Walk MS: La Crosse – Seven Rivers Walk MS: Racine/Kenosha Walk MS: Sheboygan County Walk MS: Waukesha County May 3 Walk MS: Madison Walk MS: Summerfest Grounds Walk MS: North Central Wisconsin (Wausau)
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May 29-31 2009 Wisconsin MS Summit, Kalahari Resort, Wisconsin Dells Don’t miss Wisconsin ’s largest gathering of individuals who want to do something now about multiple sclerosis. The event combines educational sessions, keynote speakers and networking opportunities in a family-friendly social setting. Discounted room rates available through April 29 Call 1-800-242-3358 $99 Friday, $129 Saturday Standard four-person room includes four water park passes
June 17 Faces of MS Luncheon, Pfister Hotel, Milwaukee
June 18 Faces of MS Luncheon, Madison Marriott West, Middleton
August 1-2 Bike MS: Best Dam Bike Ride Pewaukee to Whitewater to Madison
August 29 MS Family Day at the Milwaukee County Zoo
September 18-20 Challenge Walk MS: Door County
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Looking for a Fun Way to Raise Funds for MS?
It’s Time to Plan a Pin-Up Program Looking for a fun and easy way to generate revenue and awareness for the National Multiple Sclerosis Society (NMSS) or your Walk or Bike Team? The Wisconsin Chapter has the solution: Plan a Pin-Up Program. Pin-Ups are the attention-getting displays you often see featured on the walls or windows of area retailers. They call attention to a particular cause – and often feature the name of the person who purchased the pin-up. They’re inexpensive – usually just a $1 donation Walk MS Pin-Up or more – but can have a big impact when hundreds are displayed in a single location. In fact, Pin-Up Programs have raised as much as $30,000 for the Wisconsin Chapter. What’s more, for companies executing these programs, Pin-Up Programs have been shown to help strengthen customer loyalty. “In the two years I’ve been with Open Pantry, I always look forward to MS Pin-Up season,” said Dawn Hrischuk, executive assistant. “All 26 stores participate.
It always gets employees motivated and customers like to donate to the cause.” In addition to fundraising for a specific MS event, Pin-Up Programs can also be customized for a company and executed at any time of the year. They’re perfect for MS Awareness Week March 2-8. Culver’s locations in Oshkosh, Fond du Lac and Sheboygan are conducting Pin-Up Programs in March, with a special focus on MS Awareness Week. You can start your Pin-Up Program by contacting Shannon at the Wisconsin Chapter: 262-369-4407 or shannon.stricker@wisms.org. In short order you’ll receive all the materials necessary to execute a successful Pin-Up Program fundraiser.
Culver’s locations in Oshkosh, Fond du Lac and Sheboygan are conducting Pin-Up Programs in March, with a special focus on MS Awareness Week.
Bike MS Pin-Up
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