Walk MS 2010 Three New Locations Added
Winter 2010
Wisconsin Board of Trustees Alyson Zierdt, Chair Retired attorney; Of Counsel, Davis & Kuelthau , S.C. Martin McLaughlin, Past Chair Reinhart Boerner Van Deuren, S.C.
Tom Golden M3 Insurance Solutions for Business
Michael Lutze, Vice Chair Ernst & Young Kenneth Minor, Vice Chair Sonic Foundry, Inc.
Karen Minor Community Advocate Bruce Olson The Marcus Corporation Shelley Peterman Schwarz Meeting Life’s Challenges
Robert Sowinski, Secretary Diversified Insurance Services, Inc.
David Raysich Plunkett Raysich Architects
Colleen Kalt, President & CEO National MS Society Wisconsin Chapter Carrie Raymond Bedore Carrie Raymond Bedore, LLC
Patricia Raysich Community Advocate
Robert Buhler Open Pantry Food Marts of Wisconsin, Inc Albert C. Elser II Community Advocate Robert Engel Retired, M&I Bank
David Rodgers, Treasurer Briggs & Stratton Corporation James Rose Baker Tilly Virchow Krause LLP Jeffrey Steren Steren Management/McDonald’s Robyn Turtenwald Community Advocate Molly Walsh Office of Governor Jim Doyle
If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National MS Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National MS Society recommends that all questions and information be discussed with a personal physician. The National MS Society is committed to seeing a world free of MS.
©2010 National Multiple Sclerosis Society - Wisconsin Chapter
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Join Us at Walk MS
Celebrate Hope for the Future Walk MS features three new sites this year – bringing our total to 14. I must admit, when we first began the walk 21 years ago, I had no idea how much it would change the course of the disease and the lives of the people we love. I believe that’s because Walk MS is the single most important action you can take for your health, your spirit and your future. Why? Because Walk MS brings people facing MS together to celebrate hope for the future. Walk MS changes lives. It changes them one step at a time. It changes them one hug and one smile and one knowing glance at a time. Research changes lives, too. And yes, the dollars you raise at Walk MS and other Chapter events do bring us closer to a world free of MS. You’ll see an example of that on Page 7 when you read about Dr. Alexander Ng’s Society-funded work at Marquette University. What’s more, you’ll hear directly from Dr. Ng that when it comes to research, the National Multiple Sclerosis Society is the global leader. Indeed, the National Multiple Sclerosis Society is the go-to organization for MS research. The Society funds the best science. And it engages the best and brightest minds. In fact, the Society fueled research for development of the six approved disease-modifying drugs recommended for individuals with MS. Most recently when news about CCSVI (Venous Insufficiency) spread around the globe at lightning speed, the Society very quickly took steps to establish and fund a critical scientific research process which is expected to result in CCSVI studies beginning as soon as July. So although it may seem like a simple morning stroll with family and friends, remember when you participate in this year’s Walk MS you are actually changing lives – beginning with your own. Sincerely,
Colleen G. Kalt President & CEO
MS CONNECTION: Winter 2010
‘I Walk to Help My Mommy’
Five-Year-OId Zachary is a Walk MS Top 100 Fundraiser By Shannon Stricker
Zachary “Zach” Boldt of Whitelaw, Wisconsin is much like any other five year old. He enjoys playing computer games, golfing and the occasional baseball game. Recently, Zach became involved in model railroading – he enjoys watching the train go around the track, and “imagining the lives of the passengers inside,” says his mom, Carie Boldt. It’s no wonder Zach is curious about the lives of others. Carie was diagnosed with multiple sclerosis in 1996, before Zach was born. “At first, there weren’t a lot of changes,” says Carie, “I was able to get around unassisted. Now I need to use walls, grab bars and find other support. I use a wheelchair for anything that requires a lot of walking.”
“Along the route, Zach collected ‘treasures’ – pine cones, rocks and sticks. On the way to the Finish Line, we had to stop on the bridge so he could throw all of his treasures into the water. He remembers this well and keeps asking when we’re going to go back to the bridge.”
I just say, ‘I’m doing a walk for mommy, would you like to pledge?’ - Zachary “Zach” Boldt
Perhaps the most inspiring part of young Zach’s story is the fact that in 2008, he became one of the youngest Top 100 Fundraisers in the Wisconsin Chapter’s history, raising a mind-blowing $2,307. Again in 2009, Zach was a Top 100 fundraiser with $2,230. “Both Mike and I are incredibly proud of him,” says Carie, “We were a little stunned to learn he made the Top 100.” But how does a five year old raise more than $2,000? “Dad helped make the web page, and mom helps send e-mails to everyone we know,” says Zach. “I just say, ‘I’m doing a walk for mommy, would you like to pledge?’” “Our biggest fundraising tip,” says Carie, “is to ask everyone you know. With the web page, it’s really easy to send a mass e-mail. And if people don’t want to donate, they can simply delete the e-mail.” It’s hard to believe, though, that anyone could resist donating to Zach and his quest to find a cure for MS and help his mommy. Top 100 Walk MS fundraiser Zachary Boldt with mom, Carie, and dad, Mike, is on a quest to find a cure for MS.
Carie and her husband, Mike, have been actively participating in Walk MS: Sheboygan since 1999. After Zach was born, they saw an opportunity to make the walk a family event. In 2007, at only three years old, Zach participated for the very first time. “He thought it was so fun,” Carie remembers.
Shannon Stricker served as the Wisconsin Chapter’s Team Coordinator in 2008 and 2009.
Register for Walk MS by visiting walkmswisconsin.org TOLL FREE NUMBER 1 800 242 3358
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Make a Mark for MS Income Tax Donation Program
100 Percent of Dollars Raised Benefit Wisconsin Residents Just how important is the Make a Mark for MS income tax donation program? Look at it this way: Total financial assistance awarded by the Wisconsin Chapter in the 26 years preceding the adoption of the Make a Mark for MS program was $735,103. In only three years, contributions to the Make a Mark for MS program have reached $266,103. Put another way, if the current pace of Make a Mark for MS contributions continues, during the next 26 years financial assistance donations will top $2.3 million. And don’t forget: Every penny raised in Wisconsin, stays in Wisconsin. Participating in the Make a Mark for MS program is easy. Simply locate “Donations” on your Wisconsin income tax form and enter the amount you would like to donate to Multiple Sclerosis. The amount of your donation is deducted from your income tax refund (or added to the amount you owe). Make a Mark for MS was signed into law December 2005. The number of individuals contributing to the program has increased each year, with more than 8,000 Wisconsin taxpayers supporting Make a Mark for MS in 2008. Jeremy Otte, senior manager community education and outreach for the Wisconsin Chapter and staff liaison for the organization’s Make a Mark for MS Committee, said the impact of the initiative has been tremendous. Through December 31, 2009, financial gifts totaling $90,495 were awarded to more than 100 clients. Those gifts are especially important because research shows the financial impact for each family living with multiple sclerosis averages $57,000 per year. “Make a Mark for MS is designed to support MSrelated needs,” said Otte. He clarified, however, that the Wisconsin Chapter cannot support purchases of products or services that already have alternative sources of funding, such as medications. Make tax time your time to Make a Mark for MS. For more information and to find tips for promoting Make a Mark for MS to your friends and co-workers, please visit wisMS.org.
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Your Donations at Work
Financial Assistance Helps Clients Maintain Health, Independence More than 100 residents with multiple sclerosis received financial assistance in 2009 from the Wisconsin Chapter’s Make a Mark for MS program. The program is administered by a seven-member advisory committee that meets monthly to review applications. If you are interested in applying for financial assistance, call toll-free in Wisconsin 800-242-3358 or 262-369-4400 or e-mail info@wisMS.org and place Make a Mark for MS in the subject line. A sampling of the Make a Mark for MS grants issued in 2009 includes: • Installation of an in-home Personal Emergency Response phone system • Counseling services related to a client’s MS diagnosis • Purchase of a manual wheelchair to provide mobility and independence • Installation of hand controls on a client’s vehicle • Bathroom modifications in a client’s home • Purchase of an air conditioner to assist a client with heat sensitivity • Repairs to a client’s power wheelchair • In-home assessment to allow a client to live independently • Purchase of cooling garments to assist a client with heat sensitivity • Installation of a wheelchair lift on an accessible van • Membership in aquatic therapy classes • Installation of voice-activated computer software to maintain a client’s independence • Installation of a ramp to provide accessibility to a client’s home
ORANGE
Create an
CRUSH
In Your Community
Celebrate MS Awareness Week March 8-14 The National Multiple Sclerosis Society’s MS Awareness Week is March 8 through 14, but you can promote MS awareness all year long. Check out wisMS.org for ideas. Inspire others by sharing your MS Awareness Week activities on the Wisconsin Chapter’s Facebook page. Here are a few ways to create an Orange Crush with friends, neighbors, relatives and co-workers. NEW! Attend MS Day at the Milwaukee Wave. Kick off MS Awareness Week at the Milwaukee Wave vs. Rockford Rampage professional soccer game March 7. The action starts at 2 p.m. at the U.S. Cellular Arena and includes the 18th Annual Mascot Game. Tickets are just $14, with $2 of each purchase donated to the Wisconsin Chapter. Order by calling Greg Wilcox at 414-908-6348 or e-mail gwilcox@milwaukeewave.com and request the National MS Society ticket block. You can also visit milwaukeewave.com, click “group ticket window” and order tickets using the username: MS Society and password: wave0910. Organize a “Wear Orange for MS” Day at Work. Charge $5 to wear orange and donate all proceeds to the Wisconsin Chapter.
Join the MS Street Team. Your mission: Create an Orange Crush in your community. How? Send e-mails, ask local businesses to “orange it up” with window displays, plan MS Pin-Up sales, sign-up Walk MS participants, turn your town’s iconic buildings orange. Interested? Call toll free in Wisconsin 800-242-3358 or 262-369-4400 Option 2 or e-mail info@wisMS.org to share your activities. Attend Legislative Affairs Day in Madison or Send a Supportive E-mail. Add your voice to the Wisconsin Chapter’s advocacy efforts by participating in Legislative Affairs Day on Wednesday, March 10 (find more details at wisMS.org). If you can’t make it to Madison; call, e-mail or write your legislator and ask for support. Don’t Miss the Third Annual MS Day at the Milwaukee Bucks. Celebrate the success of MS Awareness Week and attend the Third Annual MS Day at the Milwaukee Bucks. The match-up with the Indiana Pacers on March 14 starts at noon. Tickets can be purchased by calling Tom Demeter at 414.227.0584 or e-mailing tdemeter@bucks.com. The Bucks are donating $5 of each ticket purchased to the Wisconsin Chapter. Ticket prices are $15 upper level (regularly $24); $25 upper level (regularly $61); $50 lower level (regularly $96). TOLL FREE NUMBER 1 800 242 3358
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6th Annual MS Summit Slated for May 21-22
Hayes, Bobholz Confirmed as Speakers for Dells Gathering Mark your calendar and plan to attend the 6th Annual MS Summit (formerly known as the MS Summit and Family Getaway), May 21 to 22 in Wisconsin Dells. This exciting event provides families and individuals affected by MS with the opportunity to participate in educational workshops, socialize and network in a supportive environment. Dr. Colleen Hayes Dr. Colleen Hayes, a nationally-recognized MS researcher, and Dr. Julie Bobholz, a well-known neuropsychologist, will be the MS Summit’s keynote speakers. Dr. Hayes will share information on her vitamin D research, while Dr. Bobholz
will talk about emotional wellness. In addition to these two presentations, the MS Summit will feature a variety of break-out sessions on such topics as relationships, fatigue, nutrition, insurance, clinical trials and research. A panel will also Dr. Julie Bobholz discuss state resources available to individuals with MS. The MS Summit will be held at the Kalahari Resort and is open to people from Wisconsin and Minnesota who are affected by MS. Registration for the event opens February 15 and can be accessed by visiting wisMS.org or calling toll-free in Wisconsin 800-242-3358. The MS Summit is funded in part by educational grants from EMD Serono, Teva Neuroscience and Biogen Idec.
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Marquette Unviersity’s Dr. Ng Studying Physiological Impacts of MS
Society-Funded Research Addresses Fatigue and BMD By Heather Markovich
In May of 2008, the National Multiple Sclerosis Ng said can be 10 times greater among individuals with Society awarded Alexander Ng, Ph.D. of Marquette MS compared to the general population. A decrease in University, a $44,000 grant to pursue research on physical activity could lead to a decrease in BMD in physiological impacts of multiple sclerosis. Ng’s study is the general population. Ng is exploring if the same is one of six National MS Society-funded research projects true of individuals with MS. “Any intervention we can currently taking place in Wisconsin. discover – such as vitamin The National MS Society funds D, exercise or calcium – that more MS research than any other will maintain normal BMD nonprofit organization in the world. or increase low BMD could Indeed, since its founding in 1946, be instrumental in reducing the National MS Society has invested falling and bone fractures and more than $550 million in research. maintaining quality of life,” said Ng. MS and Muscle Fatigue In addition to a control Ng grew up in California group, the study has engaged and did his undergraduate work more than 25 Milwaukee-area in Biology at the University of participants. Each individual California-Davis. He moved has been diagnosed with MS, to the Midwest and completed is between the ages of 18 and his graduate work in Exercise 55 and has no immediate Physiology at the University family history of osteoporosis. Dr. Ng, left, measures research volunteer Jeffrey of Wisconsin-Madison. A After being screened by Dr. Gingold’s Rating of Perceived Exertion and oxygen post-doctoral fellowship brought Douglas Woo, a neurologist Ng back to California – and that’s uptake as he peddles an exercise bike. at Froedtert and the Medical when he first became interested in studying MS. He College of Wisconsin, each participant visited Ng’s wondered, for instance, how chronic disease affected laboratory at Marquette University. The visits with Ng muscle fatigue. consisted, in part, of a bone scan (femoral and lumbar In fact, one of the main complaints of people with spine), blood draw and a non-diagnostic resting EKG. MS is fatigue. Ng said fatigue occurs in more than 90 Participants were also asked to wear an activity monitor, percent of MS patients. Some of Ng’s early research similar to a pedometer, for a week. Biochemical analysis presented evidence that there are elements of muscle was also done to measure vitamin D levels as well fatigue that are not necessarily explained 100 percent as levels of the “stress hormone” cortisol, which can by the disease itself. Said Ng, “We discovered that there increase blood pressure and blood sugar and reduce were many other elements that could be contributing to immune system responses and BMD. All participants the fatigue experienced by individuals with MS.” received a medical interpretation of their bone scan and a summary of the various test results, which they could Ng’s MS Study share with their personal physician. “All of my studies Ng’s current research is focused on identifying the have relied on volunteer subjects who are so willing to mechanisms that trigger decreased bone density in give of their time and energy,” said Ng. patients with MS. Prior independent studies have shown “The reason I’m so excited about the work we’re that people with MS are at high risk of experiencing doing at Marquette University is that it could very well decreased bone mineral density (BMD). This can lead to lead to some kind of intervention,” said Ng. “It’s not just osteoporosis and increased risk of bone fractures, which finding out the ‘why,’ but it’s taking the next step.” TOLL FREE NUMBER 1 800 242 3358
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What Happens Next? MS Society Support Critical Multiple factors are being explored by Ng to more Ng’s current research is not the first he has had accurately pinpoint the cause of decreased BMD in funded by the National MS Society. He shared that individuals with MS. “In order to find out why this his first grant-supported study focused on fatigue is occurring, we are measuring a number of different and cardiovascular systems in MS patients, a study he factors such as vitamin D, cortisol and even investigating continues to receive data on to this day. Ng said the cardiovascular control.” Ng explained that among the results of that research suggested that cardiovascular general population, those with decreased BMD can also control and fatigue may indeed be related. have changes in their normal heart rhythm, or heart “Out of all the MS organizations, I feel the National rate variability. “If one of these factors is found to be MS Society has taken the lead,” said Ng. “Research associated with decreased BMD in individuals with MS, sponsored by the National MS Society has made then our next study will focus on that specific factor,” tremendous strides toward finding a cure as well as said Ng. managing the disease or rehabilitation, not to mention Physical activity is also a major focus of Ng’s study. advocacy. I am proud to be associated with the National “Several previous investigators have hypothesized that MS Society.” decreased physical activity can contribute to decreased BMD in MS, so one of our Life Outside Research questions was, ‘Is there evidence Ng teaches exercise physiology and that this is true?’” said Ng. exercise nutrition at Marquette University in In Ng’s study, the impact the Exercise Science Program, which is part of of physical activity is being the Physical Therapy Department. quantified using motion “I love Marquette,” said Ng. “My position detectors and accelerometers allows me to strike a good balance between (also known as activity teaching and research – both of which I enjoy monitors). In fact, Ng said thoroughly.” preliminary results indicate that Outside of teaching and research, Ng physical activity may be one enjoys a variety of outdoor sports such as of the more important factors fishing, cycling, cross country skiing, canoeing, contributing to decreased Bone mineral density screening was camping and climbing. He is currently a BMD. competitor in sprint triathlons, cross country done on bone scanners such as the “The results aren’t totally skiing events and citizen cycling in the Badger one pictured with Dr. Ng. in yet, but it certainly seems State Games and Senior Olympics. In addition physical activity may indeed play a large role in to these events, Ng regularly participates in Bike MS in decreased BMD among individuals with MS,” said Wisconsin, California and Arizona. While at home, Ng Ng. “We know that people with MS can get stronger enjoys spending time with his wife Carol and two sons, through resistance exercise,” said Ng, “but no one has ages 10 and 13, all of whom accompany him on his really looked at some of the ‘nerdier’ aspects of why “adventures”. or how.” Ng hopes to understand, for instance, the Heather Markovich is a Journalism major at Carroll University. specific mechanisms that trigger strength gain in the She was a 2009 fall intern at the Wisconsin Chapter. muscles of MS patients. This, explains Ng, could lead to the development of better and more specific exercise Interested in volunteering for Dr. Ng’s study? Please recommendations for individuals with MS. call at 414-288-6257 and ask for Molly, Brice or Ben.
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Affordable Prescriptions Act is Topic for March 10
Join Advocates in Madison for Legislative Affairs Day Past attendees have shared that attending the with legislators. We will prepare you with all the Wisconsin Chapter’s Legislative Affairs Day has been information you need to make an impact at the one of their most rewarding experiences. With that in Capitol.” mind, you’ll want to mark your Round-trip motor coach calendar for the 7th Annual transportation is available Legislative Affairs Day on for Legislative Affairs Wednesday, March 10. Day attendees from such The program begins at 10 locations as Milwaukee, a.m. at the Madison Concourse Green Bay, Plover and points Hotel with a complimentary in-between. The event ends lunch and educational speakers. at 3:30 p.m. Then it’s off to the Wisconsin Register for Legislative State Capitol to advocate for Affairs Day online at making MS prescriptions more wisMS.org. For more affordable. information about Cassie McManus, left, and Tracilyn Moon headed to Wisconsin Chapter Legislative Affairs Day, the Capitol for 2009’s Legislative Affairs Day Advocacy Manager Georgia please call Maxwell at Maxwell stresses that the program is turn-key and 262-369-7170 or toll-free in Wisconsin free-of-charge. “We make all the arrangements,” 800-242-3358 or e-mail georgia.maxwell@wisMS.org. said Maxwell, “including scheduling appointments
The Event will Challenge You. The Experience will Change You. Door County 3 Days, 50 Miles Challenge Walk September 24-26, 2010
For information call 800-242-3358 toll-free in Wisconsin or visit challengewalkMSwi.org or e-mail info@wisMS.org. Ask about the 2 day, 30 mile option. MS Connection is a publication of the National Multiple Sclerosis Society-Wisconsin Chapter. For information or to share story ideas, please call 262-369-4431. Editor: Cindy Yomantas, Art Director: Amy Malo
TOLL FREE NUMBER 1 800 242 3358
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14 walks. One destination. A world free of MS. << Lift this page
Brown County
Janesville - Rock River
Eau Claire - Chippewa Valley
La Crosse - Seven Rivers
Fond du Lac
Madison
When: Sunday, April 18 Where: West De Pere High School
When: Sunday, April 25 Where: UWEC Davies Center
When: Sunday, April 25 Where: Marian University
Fox Cities
When: Sunday, April 25 Where: Appleton North High School
When: Sunday, May 2 Where: Riverside Park - Janesville
When: Sunday, April 25 Where: La Crosse Center
When: Sunday, May 2 Where: Warner Park
USE FACEBOOK TO FUNDRAISE We’ll show you how
RAISE $100 Get an orange T-shirt I have MS, it does not have me. I know people who say, “Why me?” But I say, “WHY NOT ME?” I have family and friends who give me great support. Jessica Simon, Walk MS: Manitowoc-Two Rivers committee member As far back as 1992, my family (mom, dad, brothers, sisters, nieces, nephews, children and spouses), began volunteering at the Appleton walk. After a few years, we set out to create the same success in the Green Bay area. Today, 15 years later, it WARMS MY HEART that the Brown County walk continues to thrive and generate the much-needed funds for research and client services. Arita “Peach” Robinson, Walk MS: Brown County committee member, walk participant 18 years I have had MS for 21 years. This May I will have done the walk for 21 years. Usually, I WAS IN A WHEELCHAIR, but last year I actually walked to the first rest area. That was a very big accomplishment for me. Carol Azarian-Miller, Walk MS: Milwaukee, walk participant 21 years
Manitowoc - Two Rivers
Racine - Kenosha
When: Saturday, April 24 Where: Mariners Trail
When: Sunday, April 18 Where: UW Parkside Student Center
Menomonee Falls
Sheboygan
When: Saturday, April 17 Where: Good Shepherd Parish
When: Saturday, April 24 Where: Sheboygan South High School
Milwaukee
When: Sunday, May 2 Where: Summerfest Grounds
I volunteer because, as the husband of an MS patient, I read about MS and watch the progress of research, and I can see where the money I raise is actually going. It’s an ALMOST-INSTANT REWARD. Don Huston, Walk MS: Wausau-North Central Wisconsin committee member, walk volunteer seven years, Bike MS volunteer 10 years When MY OLDEST CHILD Andy WAS DIAGNOSED WITH MS at the age of 22, our family looked at the situation as fight or flight. We chose to fight. In 2009, Andy led the Fond du Lac walk, or should I say ran the walk and carried an orange flag for others to follow. Our family will continue to fight, one step at a time, by helping with the Fond du Lac walk and other MS fundraising activities. Cindy Koffman, Walk MS: Fond du Lac Committee Chair My husband Dan, who is on the Walk MS committee, suffers from MS. During my first walk eight years ago, I wasn’t sure what to expect. I became very emotional when I saw all the people from volunteers to walkers to their dogs! It was just heartwarming to know that there were so many others willing to help find a cure for this disease. I remember it was a beautiful spring day and the sun was shining, but I had TEARS IN MY EYES. I will never forget that walk. Someday, we will find a cure! Patti Rozinski, Walk MS: Fox Cities, walk participant 8 years We walk for our daughter who has MS, as well as for our friends and those in the community. The best part about Walk MS is the ENTHUSIASM and JOY you see in people’s faces, knowing that what they are doing is for such a good cause. Mary Callaway, Walk MS: La Crosse, walk participant one year
Waukesha
When: Sunday, April 25 Where: Carroll University
Wausau
When: Saturday, April 24 Where: Cedar Creek Mall-Rothschild
Register Today for Walk MS 2010! Visit walkMSwisconsin.org or call toll-free in Wisconsin 800-242-3358.
<< Lift this page
2009 Wisconsin Fundraisers in Review
More Fun, More Friends, More Funds to Move the Nationa When it comes to finding creative ways to raise money to support the National Multiple Sclerosis Society’s mission of driving research for a cure, Wisconsin can’t be beat. Where else in the span of one month would you find a Brat Fry, Bowling Tournament and Boozefest – all benefiting MS? Among last year’s 85 Community Events, nine contributed $10,000 or more and were honored by the Wisconsin Chapter as Mission Drivers. For information about conducting a 2010 Community Event, contact the Wisconsin Chapter at 262-369-4400 or toll-free in Wisconsin 800-242-3358 or e-mail info@wisMS.org. We’ll send you a how-to booklet and help you set up your own Community Event fundraiser. JANUARY 4th Annual Help-Find-ACure for Multiple Sclerosis Benefit. Produced by Rick Romenesko. Held January 9.
National MS Auction and Poker Run. Organized by Barb Lenz and the Cassville Ski Busters. Held February 21. 2nd Annual Being for the Benefit of Mr. Mike. Hosted by Michael Boyle on February 27. Raised $700. MARCH Jewelry Sale. Produced by Renee Goodell and Renee’s Angels Walk Team on March 1. MISSION DRIVER. Team Wendy 7th Annual Blarney Bash for MS. Organized by Wendy and Tony Machi and Patrick and Mary Topp on March 14. Raised $23,374. Brat Fry and Bake Sale. Organized by Team Two Step and Angel Barber on March 21.
FEBRUARY MISSION DRIVER. 7th Annual Bell Family Rabbit Hunt. Organized by Don, Eileen, Greg and Deana Bell on February 7. Raised $19,500.
BBQ Fundraiser. Produced by Team Biogen and Kurt Gorski on March 21. MS Pool Tournament. Organized by Julie Hoffman on March 28.
Music Can Beat MS. Produced by Steve Schmieding on February 7. Raised $2,400. MS Saturday Spin. Produced Mary Topp, left, accepted a Mission Driver by Team Fond du Lac/Oshkosh award for the Blarney Bash from Wisconsin Cyclery on February 14. Raised Chapter Board of Trustees Chair Alyson Zierdt $1,780. at November’s Annual Meeting. MISSION DRIVER. American Birkebeiner Skiers for Cures. Held February 19-21 and championed by Dr. Ian Duncan.
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Wine Tasting. Organized by Travis Kluewer and the Fighting Rams Bike MS team on March 28.
APRIL Dance for MS. Produced by Krista Chapman and Jerry Halkoski of the MS Oconomo-Walkers. Held April 3.
onal Multiple Sclerosis Society Mission Forward We’re Egan to Cure MS Vendor and Craft Show. Organized by Jenny and Mike Egan on April 4. MS Bowling Fun Day. Produced by Julie Hoffman. Held April 5. Multiple Sclerosis Benefit Trap and Skeet Fun Shoot. Organized by the Sauk Prairie Trap and Skeet Club. Held April 11 and generated $1,468. Fighting Rams Brat Fry. Produced Travis Kluewer on April 11. MS Aerobic-a-Thon. Hosted by Kathy Delker on April 18. Raised $970. Team Engebos Raffle. Concluded April 18. 5K Walk/Run. Coordinated by Amy Edmonds. Held April 19 and raised $500.
MAY Marilynn’s Walkers’ 2nd Annual Rummage Sale. Organized by Lynette Fochs on May 8. MISSION DRIVER. Hopp-Dakota MS Triathlon. Organized by Brian and Mary Hopp on May 9. Raised $23,678. Wildcat Lanes 3rd Annual Bowl and Raffle for MS. Organized by Mickey Thompson on May 9. Raised $1,225. Annual Day of Giving at Culvers in Shorewood. Organized by George Dimitropoulos on May 12. Raised $1,059. MISSION DRIVER. Knutz Krew 9 Pin Tap Bowling Tournament. Organized by Ron and Toni Knutson and Dan and Pam Patterson on May 16. Raised $14,820.
MS Raffle. Organized by Jacqui Engebos. Held April 19.
Open House Fundraiser. Organized by Karen Minor on May 16.
Buehler Bluegrass Boozefest for MS 2. Hosted by John Buehler and Team FMS on April 25.
Fox Valley Road & Track Classic IX. Hosted by Roy Fine on May 17. Raised $2,704.
Kappa Kappa Gamma 7th Annual MS Benefit at St. Norbert College. Organized by Kristin Busch and held April 25. Raised $1,810.
Packaging Corporation of America Employee Cookout. Held May 27 and raised $650.
Break MS Pool Tournament. Coordinated by Kevin and Julie McCollough on April 25. Raised $3,800. The Rhode Sisters, All New Folk Cabaret. Hosted by Shelly Stoeger on April 25. Raised $4,200.
Shop for a Cure at Besselli. Organized by Michelle Ibsen on May 29. Rummage Sale at St. Peter’s Episcopal Church in North Lake. Organized by Mary Buerosse on May 30.
MISSION DRIVER. Texas Hold ‘Em to Benefit MS. Organized by Connie Plier and Shawn Corbett. Held April 26 and generated $11,214.
JUNE Thornberry Creek Women’s Golf League MS Golf Outing. Held June 1 and raised $1,100.
HealthWorks Chirpractic Fundraiser. Hosted by Kelly Higgins and Team HealthWorks on April 30.
Texas Roadhouse in New Berlin Fundraising Night. Produced by Bernadette Gamma and Team Gamma on June 11.
TOLL FREE NUMBER 1 800 242 3358
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Hoerth’s Fundraising Party. Produced by Tom and Karol Hoerth. Held June 13.
Best Dam Bike Ride Wisconsin Raffle. Hosted by Team Schreiber and Ryan Price July 1-15.
Fifth Annual Neipert Golf Outing. Organized by Nikki Neipert. Held June 14 and raised $2,142.
Rock for the Ride. Organized by Stephanie Swinney on July 17.
David Jack Memorial Golf Outing. Produced by Jessie Jack on June 20. Raised $2,364.
Fighting RAMS Bowling Tournament. Organized by Ellen Fravel on July 18.
Brat Fry for Challenge Walk MS. Hosted by Wendy Crosby on June 27.
MISSION DRIVER. 3rd Annual Fighting MS Golf Scramble. Organized by Karen Pagel on July 20. Raised $11,277.
Caring About Families Summer Celebration. Organzied by Sandra Hickey. Held June 27. Diane Thompson Memorial Golf Outing. Organized by Kara Klipp on June 27. Damn Yahnkee’s Waterhing Hole 4th Annual MS Benefit. Hosted by Ron Scherwinski on June 27. Best Dam Bike Ride Party. Hosted by Terri Ellinger on June 28. JULY MISSION DRIVER. Croal Open. Organized by Dan, Michael and Tim Croal on July 17. Raised $31,060. Brat Fry. Organized by Steven Backhaus and Team Bikehaus on July 4. Texas Roadhouse Statewide Fundraising Night for MS. Organized by Wes Lazar on July 6. Raised $1,507. Park and Riders Buckhead Bonanza at Buckhead Saloon. Organized by Nate Klieve on July 17. Happy Hour Party at the Park. Organized by Nate Klieve and Team Park & Riders on July 17. MISSION DRIVER. Birdy’s Scramble for a Cure Golf Outing. Organized by Patrick and Lisa Haak on July 10. Raised $15,900.
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Jon Lancaster Toyota Raffle. Hosted by Sam Lancaster and held July 22. Minocqua Antique & Classic Boat Show. Organized by Gordon Moore and held July 24-26. Raised $5,558. AUGUST “A Drive for MS” Bogey Bare/MS Scramble. Organized by Ken Bare on August 8. Raised $6,856. Sneesby’s Denoon Saloon 2009 Golf Outing. Held on August 9. Pat’s Par-Tee 9th Annual Ladies Scramble. Organized by Pat Klotz on August 12. Raised $1,323. Challenge Walk Brat Fry. Organized by Wendy Crosby on August 15. JMO: A Drive for MS Golf Outing. Organized by Michelle Lock and Heidi Erdmann on August 15. Raised $3,140. Lori K’s 20th Anniversary of My 29th Birthday Bash to End MS. Organized by Lori Kolosowsky on August 22. Apple Holler’s MS Charity Orchard Walk. Hosted by Dave Flannery on August 29. Auto Paint & Supply Car Show for MS. Organized by John Scherwinski on August 23.
SEPTEMBER Professional Fire Fighters of Wisconsin Golf Outing. Hosted by Zach Beatty on September 9. Raised $3,882. Music on the Mount. Hosted by Randy Eddy on September 12. Shifting Gears on MS Bowling Tournament. Organized by Heather Knudson on September 12. 17th Annual Cellar Golf Outing to Benefit MS. Organized by Shirley Miksa. Held on September 12.
Steppin Up to Make a Difference. Organized by Alyssa Quinn on October 3. Raised $1,162. Horror in the Dark at Olin Park Haunted House. Organized by Jay Prall and the Madison Metro Jaycees. Held weekends October 16-31. Raised $3,000. Barry Farnam Multiple Sclerosis Charity Golf Classic. Organized by Jason Farnam on October 17. Raised $2,900. Spook Walk at Lynn Ann’s Campground. Hosted by Wayne Newby. Held October 30-31. Raised $1,000.
Oktoberfest 2009. Hosted by Team Wendy and the Knutz Krew. Held September 12-13. Tomkens Bar & Grill Raffle. Hosted by Gina Felten on September 13. Raised $2,705.
Lori Kolosowski, left, hosted “Lori K’s 20th Anniversary of My 29th Birthday Bash to End MS” – one of the most unique titles for a Community 5th Annual Paulifest 2009 Event. She and Cindy LaBlanc attended the Wisconsin Chapter’s Annual Meeting in November.
Halloween Party to Benefit the Fight Against MS. Produced by Debrea Forbes and Cynthia Miller on October 31. Raised $1,220. NOVEMBER Wild Styles Fundraiser. Organized by Julie Tushkowski on November 1. Raised $300.
Wrap Up the Summer Party. Produced by Paul Budiac. Held September 18.
Mom’s MS Circle of Hope Group Burger King Fundraiser. Held November 24.
ISM-Milwaukee Casino Night at Sprecher Brewery Company. Organized by Peggy Mat-Siewert and ISM. Held September 18.
2nd Annual Scan Interiors Furniture Fundraiser. Held November 27 to January 18. Raised $400.
2009 Multiple Sclerosis Golf Outing. Hosted by the Knutz Krew and CORE Consulting. Held on September 19. Avon Fundraiser. Organized by Sharon Severson and Team Fighting RAMS. Held June 19 through September 28. OCTOBER Silent Auction. Organized by the Physical Therapy Department at Richland Hospital on October 1. Raised $1,008.
DECEMBER Bar of Appleton Volleyball Tournament. Organized by Scott Wittmann on December 4-6. The Community Events included on this list represent those held in 2009 and registered with the Wisconsin Chapter. If you currently host a fundraiser that is not included on this list – or if you plan to produce an event in 2010 – please contact the Chapter at 262-369-4400 or toll-free in Wisconsin 800-242-3358 or e-mail info@wisMS.org.
TOLL FREE NUMBER 1 800 242 3358
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Disability Rights Offices in Milwaukee, Madison, Rice Lake
Wisconsin Offers Family Care and IRIS Ombudsman Program Do you need help understanding your Family Care, Partnership or IRIS (Include, Respect, I Self-Direct) services or benefits? Are you confused about your rights under Family Care, Partnership or IRIS? Are you satisfied with your care plan or services? Are you receiving services that meet your needs and support your outcomes? Do you have questions regarding your cost share? Disability Rights Wisconsin’s (DRW’s) Family Care and IRIS Ombudsman Program is now available. It can provide assistance regarding eligibility, services or other Family Care, Partnership or IRIS concerns. The Wisconsin Board on Aging and Long Term Care (BOALTC) will continue to provide its ombudsman services to Family Care and Partnership enrollees and potential enrollees age 60 and over. An ombudsman is an advocate. If you are applying for or receiving Family Care, Partnership or IRIS, you are eligible for DRW’s Ombudsman services. The ombudsman can assist you whether you are living in your own home, a supported apartment or another residential setting. If you are applying for, or are already enrolled in the Family Care, Partnership or IRIS programs and have a question or concern, call DRW at one of the toll-free numbers listed at the end of this article. The Family Care Ombudsman Program offers many services, including: • Investigating complaints • Resolving and mediating issues • Providing information and education on consumer rights • Assisting in negotiating care plans • Appealing denials of services or changes in services that you don’t agree with • Working with enforcement and regulatory agencies
The Family Care and IRIS Ombudsman Program has staff in DRW’s Madison, Milwaukee and Rice Lake offices and is available to advocate for Family Care, Partnership and IRIS participants in any Wisconsin Family Care county. It can help Family Care, Partnership and IRIS enrollees or potential enrollees, their guardians and families with issues such as:
For more information about Family Care or other disability advocacy issues, please visit the website at www.disabilityrightswi.org. This article was provided by the Survival Coalition of Wisconsin Disability Organizations, which works in partnership with the Wisconsin Council on Developmental Disabilities. For more information visit www.dawninfo.org.
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Development of a Care Plan that supports your goals: Were you actively involved in developing your care plan? Were your concerns and questions addressed? Does your team understand what kind of life you want your long-term care services to help you achieve? Did you get good information about all of your services (such as employing your own caregivers)? Were you given the opportunity to direct some or all of your services (such as employing your own caregivers)? Do you understand how decisions about your services were made? Reduction in Services: Have you requested services that are not provided? Were any previous services changed or reduced? If so, do you understand why? Employment: Are you interested in having a job or working toward employment? Are you getting support in getting or keeping a job? Living Arrangement: Are you living where you want? If you want to move, have you told your care team about that? Is your care team helping you live where you want? With whom you want? Young Adults Moving from School to Adulthood and Enrolling in Family Care or Partnership: If you are at least 17 years and 9 months old, do you know that you might be eligible for Family Care or Family Care Partnership? Are you getting information about your options for services? If you are age 18 to 59 years old, are applying for or are enrolled in the Family Care, Partnership or IRIS programs and have a question or concern, you can contact the Family Care Ombudsman Program at the Disability Rights office nearest you. • Madison: 608-267-0214; Toll-free: 800-928-8778 • Milwaukee: 414-773-4646; Toll-free: 800-708-3034 • Rice Lake: 715-736-1232; Toll-free: 877-338-3724
Grants Play Critical Role
Foundations Support Research, Services, Programs The Wisconsin Chapter extends its sincere gratitude to the following organizations for grants awarded October 1, 2009 through December 31, 2009. Your foundation can contribute and join the movement by calling Cindy Yomantas at 262-369-4431 or e-mail cindy.yomantas@wisMS.org. • $30,000 Forest County Potawatomi Foundation • $20,000 from the M & I Foundation • $10,000 from the Joseph & Vera Zilber Foundation • $15,000 from the Ladish Co. Foundation • $10,000 from the Puelicher Foundation, Inc. • $10,000 from the Bebe and Bob O’Toole Foundation • $5,000 from the Telly Foundation • $3,000 from the Waukesha County Community Foundation representing the Lettenberger Fund, Rhody and Caroly Megal Fund and the Ronald and Kathryn Bertieri Fund
• $3,000 from the Krause Family Foundation • $2,000 from the Hinrichs Foundation • $2,000 from the Barrow Medical Foundation • $1,000 from the Greater Menomonee Falls Foundation. • $1,000 from the Rhody and Carolyn Megal Fund • $1,000 from the Wal-Mart Foundation • $500 from the Fleck Foundation • $250 from the Greater Milwaukee Foundation Colton Charitable Fund
Securing SSI Benefits
Does Contacting a Member of Congress Do Any Good? By Attorney Thomas E. Bush
One hears stories such as this: “I heard about a guy who contacted his congressman and a few weeks later, the Social Security Administration found him disabled.” Claimants for Social Security disability and SSI benefits often ask, “Should I contact my U.S. senator or congressman?” If you’ve been denied benefits by the Social Security Administration (SSA) because you’re supposedly not disabled enough, contacting your U.S. senator or congressman won’t cause SSA to change its mind. This doesn’t work even if you personally know the senator or congressman. It is simply a coincidence when someone is found disabled shortly after contacting a U.S. senator or congressman. Turning down a Social Security disability or SSI claim is normal SSA behavior. A congressional inquiry won’t have any effect on normal SSA behavior. But when SSA engages in abnormal behavior, an inquiry from a senator or congressman very well could correct the problem. That is, when SSA makes a genuine mistake – when SSA does something truly unusual or fails to do what it is clearly supposed to do – the office of a member of congress may be the best place to go for help. An inquiry from a member of congress is useful because it gets SSA’s attention. SSA’s rules require
it to promptly reply to a congressional inquiry. No comparable rules require an immediate response to an inquiry from a claimant or a lawyer. What kinds of things can a congressional office help with? Bureaucratic mix-ups. True snafus. Inordinate delay. Trouble is, it often takes someone familiar with the SSA system to figure out if you’re dealing with normal or abnormal SSA behavior. For example, one would think that waiting 18 months for a hearing represents inordinate delay. But this is common. You often need a lawyer or someone else very familiar with how SSA operates in order to figure out when a congressional inquiry will help. Since it is so hard to figure out when a congressional inquiry will help, some claimants take the position that they may as well contact their members of congress about every issue with SSA, whether it is abnormal SSA behavior or not. This is a bad idea. You don’t want to wear out your welcome before the time comes when you genuinely need someone to go to bat for you. Tom Bush is the preeminent expert on SSDI in Southeastern Wisconsin. A Wisconsin Chapter volunteer for 19 years, in 2008 Tom was inducted into the National MS Society’s Volunteer Hall of Fame. Tom’s web site is www.tebush.com.
TOLL FREE NUMBER 1 800 242 3358
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Wisconsin Chapter News and Notes
This is How We Move It
Find us on Facebook. You can sign up to become a fan of the National MS Society-Wisconsin Chapter on Facebook. It’s a great way to stay connected to the Wisconsin Chapter’s programs and services. Wisconsin Chapter Calendar of Clinic Visits. Representatives of the Wisconsin Chapter regularly visit several of the organization’s official clinics. During these visits, Chapter staff is available to meet confidentially and answer questions plus share informative literature. The current schedule of clinic visits is as follows: • Aurora Baycare MS Clinic, Green Bay: 4th Friday of every month • Marshfield Clinic MS Center, Marshfield: 3rd Tuesday of every month • Regional Multiple Sclerosis Center, St. Luke’s Medical Center, Milwaukee: 2nd Thursday and 4th Monday of each month. • ProHealth Care Neuroscience Center, Waukesha Memorial Hospital: 4th Tuesday of each month. • UW Hospital and Clinics Neurology/MS Clinic, Madison: 4th Wednesday of each month. Have a question about MS? Contact the MS Navigator. Finding answers and making decisions relies on having the right information at the right time. Our MS Navigators are skilled professionals equipped to respond to your needs. Call toll-free 1-800-242-3358, Option 1, 7 a.m. to 6:30 p.m. Monday through Friday. Circle of Hope Support Groups. Wisconsin has more than 50 support groups and new groups sprout up regularly. For a complete listing including meeting dates, please visit www.wisms.org or call toll-free in Wisconsin 800-242-3358. Primary Progressive Multiple Sclerosis .....................................................................................
W H AT YO U N E E D TO K N OW
..................................................................................... Nancy J. Holland, EdD Jack S. Burks, MD Diana M. Schneider, PhD
Primary Progressive MS – What You Need to Know. The National Multiple Sclerosis Society announced the availability of a new book and companion DVD for individuals affected by primary progressive MS. The book and DVD are available free by calling 800-344-4867.
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You can be the Catalyst for Change. Sign up today to receive Action Alert e-mails. These informative updates will keep you connected to the issues that matter most to individuals with MS. Contact Georgia Maxwell at 262-369-7170 or e-mail georgia.maxwell@wisMS.org for details. Sign Up for the Pick ‘n Save We Care Program. A percentage of your grocery purchases will be donated to the Wisconsin Chapter by Roundy’s when you join the We Care program at any of the company’s participating Pick ‘n Save, Copps or Rainbow stores. The Wisconsin Chapter number is 532300. Free Newly Diagnosed DVD Available. Secure your copy of MS Next Step, the DVD and information booklet from the National MS Society for newlydiagnosed individuals, by calling 800-344-4867. Pied Piper of Running Raises Funds for MS. While Beaver Dam Middle School teacher Nikki Cahen has participated in Bike MS four of the last five years (she rides with Andy Scherwinski’s Athletic Supporters team), her real passion is running. She recently put that passion to Nikki Cahen ran good use when she created, mapped 52.3 miles in and ran her very own ultramarathon. one day. During 13 hours of running and resting, the 25-year-old completed 52.3 miles and raised $2,200 for the Wisconsin Chapter. Cahen said her goal is to motivate people to run, walk, bike and donate money to a cause. If You Want to Win … Buy the Birkie Ski for the Cure Pin. Even if you’re not participating in the American Birkebeiner February 25-27, you can still donate $20 or more and receive a 2010 commemorative Ski for the Cure pin. Those participating in the Birkebeiner or Kortelopet and wearing the Ski for the Cure pin on their bib have the chance to win exciting prizes,
Free Relationship Seminar Scheduled for Janesville The National MS Society invites including free 2011 Birkie registration. All funds generated through the sale of pins and the Birkebeiner’s you and your spouse or partner to a Skiers for Cures program support research to find a cure seminar for couples living with MS. for MS. For more details visit wisMS.org.
Wisconsin Resident Plans to Run Across the U.S. for MS. Brookfield resident Ashley Kumlien plans to run 20 to 30 miles a day, six days a week for approximately six months to complete a 3,230-mile journey from San Francisco to New York City. Ashley’s goal? Raising awareness for MS and inspiring others to donate to research. Her mother, Jill, was diagnosed with MS more than 27 years ago. Ashley hopes to begin her cross-country run in March, putting her in proximity to Milwaukee sometime in August. For more information, see the wisMS.org calendar or visit msruntheus.com.
Saturday, March 20 9 a.m. – 4 p.m. Holiday Inn Express 3100 Wellington Place Janesville
This dynamic program will help you to: • Break patterns that prevent effective communication • Apply successful problem-solving techniques • Work as a team to manage MS and your relationship Continental breakfast and lunch will be provided. In addition, each couple attending will receive a $50 American Express gift check. Space is limited. Register by Monday, March 15 by calling 1-800-242-3358.
Funding for this project was provided by the United States Department of Health and Human Services, Administration for Children and Families.
Wisconsin Chapter Calendar of Events American Birkebeiner & Birkie Skiers for Cures February 25-27
La Crosse Cognition Educational Seminar March 22
Walk MS: Sheboygan, Wausau April 24
Milwaukee Wave MS Awareness Game March 7
Make a Mark for MS Committee Meeting March 22
MS Awareness Week March 8-14
Wisconsin Chapter Board of Trustees Meeting March 25
Walk MS: Eau Claire - Chippewa Valley, Fond du Lac, Fox Cities, La Crosse, Waukesha April 25
Legislative Affairs Day March 10 Milwaukee Bucks MS Awareness Game March 14 Relationship Matters Seminar Janesville March 20
Walk MS: Menomonee Falls April 17 Walk MS: Brown County, Racine - Kenosha April 18
Walk MS: Janesville, Madison, Summerfest, Manitowoc - Two Rivers May 2 MS Summit: Wisconsin Dells May 21-22 MS Luncheon Milwaukee June 15
MS Luncheon Madison June 16 Wisconsin Chapter Board of Trustees Meeting June 22 Bike MS: Best Dam Bike Ride August 7-8 MS Day: Milwaukee County Zoo September 18 Challenge Walk MS: Door County September 24-26 Wisconsin Chapter Board of Trustees Meeting September 28
TOLL FREE NUMBER 1 800 242 3358
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Non-Profit Organization U.S. Postage
PAID
Milwaukee, WI 53202 Permit No. 2868
1120 James Drive Suite A Hartland, WI 53029 Mailing Label Changes Please check the appropriate box below, correct the label and return to the Wisconsin Chapter. Name change or misspelled Address change Remove from mailing list Received more than one copy Please send me my MS Connection via e-mail. My e-mail address is: __________________________________________
wisMS.org • Toll Free 1 800 242 3358 • 262 369 4400 Open Pantry Producing 12th Annual MS Pin-Up Campaign
Sell Pin-Ups to Raise Funds, Create Awareness, Generate Excitement Selling MS Pin-Ups (or encouraging businesses vendors,” said Buhler. “It’s about creating an MS you frequent to conduct a Pin-Up program), is an easy connection with our customers and their families.” and fun way to raise funds and generate awareness for Another great feature to remember: You can multiple sclerosis. That’s important because Wisconsin conduct a Pin-Up program anytime. In addition to has one of the highest rates of MS in the U.S., with Walk MS- and Bike MS-themed Pin-Ups, the Chapter 1-in-500 diagnosed. Chances are you know someone has MS logo-themed Pin-Ups perfect for MS Awareness (friend, family member, co-worker or customer), who Week or any promotion. has MS. And that’s why we’re encouraging you Produce a Pin-Up program and help move to participate in the National Multiple Wisconsin one step closer to creating a Sclerosis Society-Wisconsin Chapter’s world free of MS. The funds raised Pin-Up Program. through your MS Pin-Up program Pin-Ups are inexpensive will drive research for a cure and – usually a minimum $1 help address the needs of the donation – but can have a more than 10,000 Wisconsin big impact. Just ask Robert residents diagnosed with MS Buhler of Open Pantry (along with the 70,000 who Food Marts of Wisconsin. love and care for them). During the 11 years Call Angela Fischer they have conducted a today at 262-369-4402 or campaign, Buhler said e-mail angela.fischer@wisMS.org to secure your MS Pin-Ups. Open Pantry has generated Create a world free of multiple sclerosis Seeing thousands of MS more than $200,000 in MS Pin-Ups displayed at Pin-Up donations. “Three businesses, schools, places of months of each year, our 26 worship and more – it won’t be Open Pantry stores are proud to wisMS.org hard to imagine a world without MS. help move the MS mission forward by reaching out to our customers and
walk